My Race Against the Clock - My Conversation with Seth Rotberg
"I'm Not Done Yet" - My conversation with Eric Houck
TSC Talks! Finding A Cure?
Season 1: Episode 5 - Benign but deadly? Vestibular Schwannoma (aka Acoustic Neuroma) and the routine checkup
EP21: Fear & COVID-19 with Dr. Seema Kanwal
Voice Of Resesif16 | Podcast
Kearns Sayre Syndrome (KSS)
Ehlers-Danlos syndromes: Current landscape and hopes for future directions
TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and Coping
Dad to Dad 132 - Casey Parks of Mercer Island, WA Has A Son With CTNNB1 Syndrome, A Rare Genetic Deletion
Clinical Data Shows Promise for SCID Treatment
11 - Enfermedades Raras. Idic 15 (Parte 1 de 2). (Episodio 11).
TSC Talks! TSC and COVID~A Conversation on Impact. Hosted by Daniel Price
Dad to Dad 116 - Daniel DeFabio Part 2 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
Dad to Dad 115 - Daniel DeFabio Part 1 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
TSC Talks! Three On TSC: "You Got This Now, Tomorrow's Gonna Be Better" with Brielle Izabelle & Co-Hosted by Brooke Alisha
TSC Talks! Calming the Chaos with Brooke Alisha~TSC/TAND Advocate, Adult/Parent Living with TSC, Hair Stylist, Thriver!
Dad to Dad 87 - Juan Vagilenty Has Two Children with Special Needs: Pallister-Kallian & Down Syndrome
Dad to Dad 84- Special Moments of the Dad to Dad Podcast
TSC Talks! No Holds Barred~Advocate Extraordinaire! Daniel Price~TSC, Rare Disease, Adoption & LGBTQ Advocate
Criterios Clasificación EULAR/ACR 2019 de enfermedad por IgG4
Ep#002: Making Sense of Genomic Data with Dr. Rocío Acuña Hidalgo
Dad to Dad 71 - John Crowley Saved His Kids' Lives By Finding a Cure to Pompe Disease
TSC Talks! Alexis Minnaar, Living with TSC; Never A Dull Moment-A South African Perspective
TSC Talks! Mark Martin, THE TSC CONNECTOR! 6 State Regional Coordinator, Advocate, Musician & Adult & Parent Living w/TSC
TSC Talks! An Invitation to Inspiration with Devoted Dad, Husband & TSC Advocate Rob Grandia
TSC Talks! Part 1; Are You Listening? Getting Real with Cecilia Pratt, TSC Case Manager & Mom
TSC Talks! Hope on the Horizon, Part 2-with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance
TSC Talks! Hope on the Horizon, with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance
TSC Talks! Trauma 101-A Preview; For Parents of Medically Complex Kids-with Caroline Clyborne, LPC
TSC Talks! Dedicated, Dynamic Dena! Part 2; Creation, Implementation & Development of Volunteer Programs at the TS Alliance
TSC Talks! The Benefits of Community Connection, Turning the Tables on TSC with Emilie Peters
TSC Talks; "Bring on the Rain", Part 3- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom
TSC Talks; "Bring on the Rain", Part 2- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom
TSC Talks; The Tidal Waves of TSC; Part 2 Strength Under Pressure, with Chelsea Holman
TSC Talks; The Tidal Waves of TSC; Taking it A Day at A Time & Making it Work, Part 1 with TSC Mom, Chelsea Holman
TSC Talks; "No Young Adult with TSC Fights Alone", with TS Alliance Junior Leader & Young Adult Advocate, Brianna Johnson
TSC Talks! Living It; Giving Everything But Up! Lauren Shores Shillinger, TSC Mom, Advocate & a TS Alliance Volunteer of the Year
TSC Talks; Triathlons, Transition and TSC with Reiko Donato, TSC Mom, Ironman Triathlete, Chair TS Alliance GA
TSC Talks; "Vocatus atque non vocatus, Deus aderit.” with Grassroots TSC Advocate & Griffin's Mom, Debora Moritz
TSC Talks; Closing the Deal. with TSC Mom, Blogger & TSC Advocate Heather Lens as She Turns No to Yes in Congress & Life
TSC Talks; March on Capitol Hill 2019 Mastermind! TS Alliance Manager of Research & Global Affairs, Katie Smith
TSC Talks; Steering the Ship with Passion & Purpose; TS Alliance President & CEO, Kari Luther Rosbeck
Keeping It Real 3-1-19: Pretending It Will All Work Out Vs. Making it All work Out
TSC Talks; Everything is Broken. Trauma, TSC & Me. Family Impact, Survival and Hope with 22 yr. Grizzled TSC Vet & Mom, Jill
TSC Talks; Episode 30, Riding the Waves of TSC & TAND, an Update with Marlo, TSC Mom & Past Chair of the TS Alliance of New England
TSC Talks; Episode 29, Charting a Course Home. TSC Mom, Heather Little, Describes How She's Managed & Overcome Infinite Challenges with TSC.
TSC Talks; Episode 24, Weed Indeed! Drop Seizures, Cannabis Advocacy and More with Becky Gaunt
TSC Talks; Episode 23, Rebecca Thereault. Joy and Sorrow on the TSC Journey, "Laughing at the Insanity of Life"
TSC Talks; Episode 22, PTSD in Parents and Caregivers with Hillary Savoie, "Listen to us, do not turn the other way"
Discover more
Search
