#raredisease

93. Rare Autoimmune Diseases EoE with Andrew McIver
93. Rare Autoimmune Diseases EoE with Andrew McIver
Episode 160 - Overcoming adversity, finding gifts in the challenges - ft. Holly Frances, rare illness advocate and survivor
Episode 160 - Overcoming adversity, finding gifts in the challenges - ft. Holly Frances, rare illness advocate and survivor
Human-Centered Health Ep. 11: Dr. Chip Chambers
Human-Centered Health Ep. 11: Dr. Chip Chambers
MSD - Ep. 001
MSD - Ep. 001
EP91: Chronic Disease & HOPE with Barby Ingle
EP91: Chronic Disease & HOPE with Barby Ingle
RaDiChal, Nadir Hastalıklar ve Wu Sendromu
RaDiChal, Nadir Hastalıklar ve Wu Sendromu
Dad to Dad 216 - Sanath Kumar Ramesh of San Jose, CA Father of a Son With SSMD and Co-Founder of the Open Treatment Foundation
Dad to Dad 216 - Sanath Kumar Ramesh of San Jose, CA Father of a Son With SSMD and Co-Founder of the Open Treatment Foundation
Man Turning Into Stone - My Conversation with Joe Sooch
Man Turning Into Stone - My Conversation with Joe Sooch
Dad to Dad 212 - Joe Lang of Sacramento, CA, Whose Daughter Jordan is the Namesake for Jordan Syndrome & Jordan's Guardian Angels
Dad to Dad 212 - Joe Lang of Sacramento, CA, Whose Daughter Jordan is the Namesake for Jordan Syndrome & Jordan's Guardian Angels
Monkeypox Conspiracy
Monkeypox Conspiracy
Identifying a rare neurological condition in children through innovative approaches
Identifying a rare neurological condition in children through innovative approaches
My Race Against the Clock - My Conversation with Seth Rotberg
My Race Against the Clock - My Conversation with Seth Rotberg
"I'm Not Done Yet" - My conversation with Eric Houck
"I'm Not Done Yet" - My conversation with Eric Houck
TSC Talks! Finding A Cure?
TSC Talks! Finding A Cure?
Season 1: Episode 5 - Benign but deadly? Vestibular Schwannoma (aka Acoustic Neuroma) and the routine checkup
Season 1: Episode 5 - Benign but deadly? Vestibular Schwannoma (aka Acoustic Neuroma) and the routine checkup
EP21: Fear & COVID-19 with Dr. Seema Kanwal
EP21: Fear & COVID-19 with Dr. Seema Kanwal
Voice Of Resesif16 | Podcast
Voice Of Resesif16 | Podcast
Kearns Sayre Syndrome (KSS)
Kearns Sayre Syndrome (KSS)
Ehlers-Danlos syndromes: Current landscape and hopes for future directions
Ehlers-Danlos syndromes: Current landscape and hopes for future directions
TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and Coping
TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and Coping
Dad to Dad 132 - Casey Parks of Mercer Island, WA Has A Son With CTNNB1 Syndrome, A Rare Genetic Deletion
Dad to Dad 132 - Casey Parks of Mercer Island, WA Has A Son With CTNNB1 Syndrome, A Rare Genetic Deletion
Clinical Data Shows Promise for SCID Treatment
Clinical Data Shows Promise for SCID Treatment
11 - Enfermedades Raras. Idic 15 (Parte 1 de 2). (Episodio 11).
11 - Enfermedades Raras. Idic 15 (Parte 1 de 2). (Episodio 11).
TSC Talks! TSC and COVID~A Conversation on Impact. Hosted by Daniel Price
TSC Talks! TSC and COVID~A Conversation on Impact. Hosted by Daniel Price
Dad to Dad 116 - Daniel DeFabio Part 2 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
Dad to Dad 116 - Daniel DeFabio Part 2 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
Dad to Dad 115 - Daniel DeFabio Part 1 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
Dad to Dad 115 - Daniel DeFabio Part 1 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
TSC Talks! Three On TSC: "You Got This Now, Tomorrow's Gonna Be Better" with Brielle Izabelle & Co-Hosted by Brooke Alisha
TSC Talks! Three On TSC: "You Got This Now, Tomorrow's Gonna Be Better" with Brielle Izabelle & Co-Hosted by Brooke Alisha
TSC Talks! Calming the Chaos with Brooke Alisha~TSC/TAND Advocate, Adult/Parent Living with TSC, Hair Stylist, Thriver!
TSC Talks! Calming the Chaos with Brooke Alisha~TSC/TAND Advocate, Adult/Parent Living with TSC, Hair Stylist, Thriver!
Dad to Dad 87 - Juan Vaglienty Has Two Children with Special Needs: Pallister-Kallian & Down Syndrome
Dad to Dad 87 - Juan Vaglienty Has Two Children with Special Needs: Pallister-Kallian & Down Syndrome
Dad to Dad 84- Special Moments of the Dad to Dad Podcast
Dad to Dad 84- Special Moments of the Dad to Dad Podcast
TSC Talks! No Holds Barred~Advocate Extraordinaire! Daniel Price~TSC, Rare Disease, Adoption & LGBTQ Advocate
TSC Talks! No Holds Barred~Advocate Extraordinaire! Daniel Price~TSC, Rare Disease, Adoption & LGBTQ Advocate
Criterios Clasificación EULAR/ACR 2019 de enfermedad por IgG4
Criterios Clasificación EULAR/ACR 2019 de enfermedad por IgG4
Dad to Dad 71 - John Crowley of Princeton, NJ Saved His Kids' Lives By Finding a Cure to Pompe Disease
Dad to Dad 71 - John Crowley of Princeton, NJ Saved His Kids' Lives By Finding a Cure to Pompe Disease
TSC Talks! Alexis Minnaar, Living with TSC; Never A Dull Moment-A South African Perspective
TSC Talks! Alexis Minnaar, Living with TSC; Never A Dull Moment-A South African Perspective
TSC Talks! Mark Martin, THE TSC CONNECTOR! 6 State Regional Coordinator, Advocate, Musician &  Adult & Parent Living w/TSC
TSC Talks! Mark Martin, THE TSC CONNECTOR! 6 State Regional Coordinator, Advocate, Musician &  Adult & Parent Living w/TSC
TSC Talks! An Invitation to Inspiration with Devoted Dad, Husband & TSC Advocate Rob Grandia
TSC Talks! An Invitation to Inspiration with Devoted Dad, Husband & TSC Advocate Rob Grandia
TSC Talks! Part 1; Are You Listening? Getting Real with Cecilia Pratt, TSC Case Manager & Mom
TSC Talks! Part 1; Are You Listening? Getting Real with Cecilia Pratt, TSC Case Manager & Mom
TSC Talks! Hope on the Horizon, Part 2-with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance
TSC Talks! Hope on the Horizon, Part 2-with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance
TSC Talks! Hope on the Horizon, with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance
TSC Talks! Hope on the Horizon, with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance
TSC Talks! Trauma 101-A Preview; For Parents of Medically Complex Kids-with Caroline Clyborne, LPC
TSC Talks! Trauma 101-A Preview; For Parents of Medically Complex Kids-with Caroline Clyborne, LPC
TSC Talks! Dedicated, Dynamic Dena! Part 2; Creation, Implementation & Development of Volunteer Programs at the TS Alliance
TSC Talks! Dedicated, Dynamic Dena! Part 2; Creation, Implementation & Development of Volunteer Programs at the TS Alliance
TSC Talks! The Benefits of Community Connection, Turning the Tables on TSC with Emilie Peters
TSC Talks! The Benefits of Community Connection, Turning the Tables on TSC with Emilie Peters
TSC Talks; "Bring on the Rain", Part 3- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom
TSC Talks; "Bring on the Rain", Part 3- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom
TSC Talks; "Bring on the Rain", Part 2- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom
TSC Talks; "Bring on the Rain", Part 2- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom
TSC Talks; The Tidal Waves of TSC; Part 2 Strength Under Pressure, with Chelsea Holman
TSC Talks; The Tidal Waves of TSC; Part 2 Strength Under Pressure, with Chelsea Holman
TSC Talks; The Tidal Waves of TSC; Taking it A Day at A Time & Making it Work, Part 1 with TSC Mom, Chelsea Holman
TSC Talks; The Tidal Waves of TSC; Taking it A Day at A Time & Making it Work, Part 1 with TSC Mom, Chelsea Holman
TSC Talks; "No Young Adult with TSC Fights Alone", with TS Alliance Junior Leader & Young Adult Advocate, Brianna Johnson
TSC Talks; "No Young Adult with TSC Fights Alone", with TS Alliance Junior Leader & Young Adult Advocate, Brianna Johnson
TSC Talks! Living It; Giving Everything But Up! Lauren Shores Shillinger, TSC Mom, Advocate & a TS Alliance Volunteer of the Year
TSC Talks! Living It; Giving Everything But Up! Lauren Shores Shillinger, TSC Mom, Advocate & a TS Alliance Volunteer of the Year
TSC Talks; Triathlons, Transition and TSC with Reiko Donato, TSC Mom, Ironman Triathlete, Chair TS Alliance GA
TSC Talks; Triathlons, Transition and TSC with Reiko Donato, TSC Mom, Ironman Triathlete, Chair TS Alliance GA
TSC Talks;  "Vocatus atque non vocatus, Deus aderit.” with Grassroots TSC Advocate & Griffin's Mom, Debora Moritz
TSC Talks; "Vocatus atque non vocatus, Deus aderit.” with Grassroots TSC Advocate & Griffin's Mom, Debora Moritz
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