Contacts
Info
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every...
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
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Episodes & Posts
Episodes
Posts
5 FEB 2026 · For more information about Susanna's podcast and health/wellness coaching, please visit her website https://www.geneticfrontiers.org/
Susanna Smith, MPH, is a health & wellness coach, who trained through Duke University Health & Well-Being Program. Susanna specializes in coaching people who live at risk because years ago when she found out about her own genetic risks, she needed a coach to help her learn how to live with difficult genetic information. She never found that person so she trained to become that person for other people.
16 JAN 2026 · Jeremy Renz joined Lauren to talk about the petition to the FDA that he and other advocates created and why it's important we support it.
Our Call to Action: Both petitions will be closing on Sunday, 1/18/2026. Please take the time to sign and share them before then!
The "non-organizational" petition: https://www.change.org/p/accelerate-breakthrough-drug-approval-for-huntington-s-disease-uniqure-amt-130
The "organization-led" petition: https://www.change.org/p/bring-hope-to-huntington-s-disease-families-urge-the-fda-to-uphold-accelerated-approval?recruiter=1395431917&recruited_by_id=5eb38b60-c0f9-11f0-833a-3786d08ac93b&utm_source=share_petition&utm_campaign=starter_onboarding_share_social&utm_medium=copylink
8 JAN 2026 · Katrina Hamel joins Lauren to talk about what Help 4 HD has planned for 2026. Take a listen!
You can also register to attend the events mentioned at the website: https://help4hd.org
6 NOV 2025 · Please reach out to Lauren or Katie if you want contact information for the FDA.
30 OCT 2025 · Happy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.
9 OCT 2025 · If you would like to purchase Jen's book, you can do so https://www.amazon.com/gp/product/B0FRQ7W2DM/ref=ppx_yo_dt_b_d_asin_title_351_o00?ie=UTF8&psc=1.
2 OCT 2025 · Author Erin Paterson joined Lauren Holder to talk about their mixed feelings regarding UniQure's recent update.
25 SEP 2025 · Dr. Ed Wild joins Lauren Holder to talk about the https://www.bbc.com/news/articles/cevz13xkxpro from UniQure.
14 SEP 2025 · If you'd like to learn more about C-Path, please visit their website https://c-path.org/
28 AUG 2025 · We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback. |
Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease.
📊 Once we have enough responses, results will be shared publicly at https://www.hdpace.org/.
Your voice matters! Please take the survey and share it with others in the HD community.
#HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE
🔗 Take the survey https://forms.gle/QYpYjQ8pus4c1msy7
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every...
show more
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
show less
Information
| Author | Help 4 HD Live! |
| Organization | katrina hamel |
| Categories | Health & Fitness , Non-Profit |
| Website | www.spreaker.com |
| - |
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