Important Update with HD-PACE

Aug 28, 2025 · 15m 53s
Important Update with HD-PACE
Description

We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients...

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We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback.  |

Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 
 
📊 Once we have enough responses, results will be shared publicly at www.hdpace.org
 
Your voice matters! Please take the survey and share it with others in the HD community.  
#HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE 
 
🔗 Take the survey here.
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Information
Author Help 4 HD Live!
Organization katrina hamel
Website -
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