TSC Talks; Episode 28, Ripple. A Discussion with Danny Van Leeuwen, MPH, RN, CPHQ, Patient and Caregiver Activist, Writer, Speaker & More!
Feb 8, 2019 ·
50m 34s
Danny graciously put down one of his many "health hats" and came on the podcast to share his wisdom and deep knowledge of the inner workings of the medical industrial...
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Danny graciously put down one of his many "health hats" and came on the podcast to share his wisdom and deep knowledge of the inner workings of the medical industrial complex, aka healthcare system, from the many hats he's worn within the healthcare system across his lifetime. In turn, TSC management across a lifetime requires one to wear many "hats" as well. We discussed transitions and autonomy as it relates to moving from pediatric care to adult care in the medical/mental health/social services system. Like an elephant in the room, this man truly has seen the whole elephant. Danny took the time to talk to me about my experience with the many facets of TSC care over the last 22 years and validate the challenges, exclaim over the disconnects, yet also share how it's possible to find ways to work together. He has vast experience as a patient/caregiver, activist, writing, speaking, and advising people in their health journey. Danny is MPH, RN, CPHQ, a nationally recognized nurse leader and advocate for family caregivers and much more. His website is www.health-hats.com .
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