Nothing about us without us: patient-led policy and advocacy

Sep 1, 2022 · 25m 49s
Nothing about us without us: patient-led policy and advocacy
Description

We're back from our summer break and our host, Sam Pauly, is delighted to be joined today by Dr Orla Galvin, Executive Director of the European Federation of Neurological Associations...

show more
We're back from our summer break and our host, Sam Pauly, is delighted to be joined today by Dr Orla Galvin, Executive Director of the European Federation of Neurological Associations (EFNA) to discuss the important role patients play in guiding policy and leading advocacy in the brain space, particularly as the "experts" in their own brain conditions. A common phrase in the community always is, "nothing about us without us", a strong call to decision-makers to ensure that the people most affected by their decisions are involved from the beginning.

Accompanied by Dr Elke De Witte, Head of Project Development at the European Brain Council, Sam explores the importance of patient involvement in policy and advocacy, the challenges and roadblocks faced to do so (and how to overcome them) and innovative approaches for improvement at present and in the future.

For more information, visit http://efna.net/ and braininnovationdays.eu
show less
Information
Author Brain Innovation Days
Organization Brain Innovation Days
Website -
Tags

Looks like you don't have any active episode

Browse Spreaker Catalogue to discover great new content

Current

Podcast Cover

Looks like you don't have any episodes in your queue

Browse Spreaker Catalogue to discover great new content

Next Up

Episode Cover Episode Cover

It's so quiet here...

Time to discover new episodes!

Discover
Your Library
Search