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Rare Research Report features summaries of recent scientific publications from the Rare Diseases Clinical Research Network, which is funded by the National Institutes of Health. The network includes 20 active consortia—teams of researchers, patients, and clinicians—each focused on a group of rare disorders. Join us for new episodes each month.

Learn more about the RDCRN: https://www.rarediseasesnetwork.org
Rare Research Report features summaries of recent scientific publications from the Rare Diseases Clinical Research Network, which is funded by the National Institutes of Health. The network includes 20 active consortia—teams of researchers, patients, and clinicians—each focused on a group of rare disorders. Join us for new episodes each month. Learn more about the RDCRN: https://www.rarediseasesnetwork.org read more read less
  • BBDC: Examining Psychosocial Outcomes of Pain and Pain Management in Adults with Osteogenesis Imperfecta
    22 Mar, 2024 - 02:21
  • CEGIR: Investigating the Progression of Eosinophilic Esophagitis Variants Over Time
    22 Mar, 2024 - 01:48
  • CReATe: Temporal Course of Cognitive and Behavioral Changes in Motor Neuron Diseases
    22 Mar, 2024 - 03:00
  • DC: Conducting an Exploratory, Randomized, Double-Blind Clinical Trial of Dipraglurant for Blepharospasm
    22 Mar, 2024 - 01:36
  • LDN: Assessing Auditory Sensory Memory Capabilities in CLN3 Disease as a Biomarker for Neurocognitive Decline
    22 Mar, 2024 - 02:01
  • MGNet: Providing a Comprehensive Overview of Molecular Therapies for Myasthenia Gravis
    22 Mar, 2024 - 01:46
  • NEPTUNE: Describing the Design and Implementation of the NEPTUNE Match Study
    22 Mar, 2024 - 02:18
  • NEPTUNE: Providing a Snapshot of Pediatric Patients and Lessons Learned from the NEPTUNE Cohort Study
    23 Feb, 2024 - 01:50
  • PHEFREE: Discussing State-of-the-Art Gene Therapy Approaches for Phenylketonuria
    23 Feb, 2024 - 01:37
  • PIDTC: Investigating Outcomes of Allogeneic Hematopoietic Cell Transplantation in Chronic Granulomatous Disease
    23 Feb, 2024 - 01:43
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