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We are a group of like minded #Patient_Advocates speaking for the 5+ million Fighting for Awareness & Change needed in the USA in the current Motility Bill HR1187 our research...
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We are a group of like minded #Patient_Advocates speaking for the 5+ million Fighting for Awareness & Change needed in the USA in the current Motility Bill HR1187 our research enhancement Act. We need cosponsors to move this budget neutral piece of legislation out of committee. It would ultimately help us Worldwide in the Motility Disorder Community as it knows no boundaries either in its diagnosis nor in any kind of help or research which is done in any place of the world. We as advocates have come together in this battle. We have organized and every morsel of information is sent like flash in a second across social media. This is the good news part of our story.
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Deb Iamokaynow's show
Deb Iamokaynow's show
28 APR 2018 · Biofeedback explained by a #Spoonie
18 DEC 2017 · Thoughts on meditation, prayer, and how to stay positive while living with chronic illness
8 DEC 2017 · A description of how to begin your day with meditation, prayer, and a few resources to help you get started.
16 NOV 2017 · A #GPReport on options for #Thanksgiving2017 while living with #Chronic illnesses like #Gastroparesis a Motility digestive disease. How we can prioritize our lives and still be happy/healthful. Thanks+giving is a blessing in our lives every day and we really appreciate this time of year to be able feel vicariously happy for all the #TakeABite4GP ‘s happening it has been happening unbeknownst to many for so many years. We hope this year will be an even more active participation as we see our advocacy grow in worldwide empathy.
1 NOV 2017 · We are reflecting on our #CureGP #GP is #Gastroparesis a #MotilityDisorder. #TakeABite4GP an empathetic Worldwide Campaign & #HR1187 our #MotilityBill requires cosponsors. Y’all we #Advocate from #Chronic like y’all on some days .. #JesusLiterallyTakesTheWheel & we get a dose of #GPHumbled cause we look #GPFoggy foolish, but those with #Chronic understand and have our backs... some days our brains - just check out on us. We ain’t too proud - nope ❤️🥄❤️🥄❤️🥄🥄🥄🥄✨✨✨
25 OCT 2017 · #TakeABite4GP is an #Empathetic WORLDWIDE campaign for awareness of Motility issues like Gastroparesis, chronic Intestinal pseudo obstruction, Colonic Inertia, Crohn’s, IBS, Barrett’s esophageal-syndrome, short bowel syndrome, etc .. whether they be from diabetes, idiopathic, autoimmune diseases, surgical procedures, viral diseases or however they were diagnosed —we ask you to have empathy for anyone unable to eat, absorb nutrients and expel their body’s wastes like anyone else in a normal day. We deserve to thrive and live to exist. We ask that we make the taboo conversation of body functions off the table to see what is not on our table—> the bites we cannot eat!! #TakeABite4GP WORLDWIDE
IN THE USA a #MotilityBill #HR1187 We need our representatives to Cosponsor this bill! We need to move its budget neutral piece of legislature out of committee! How can this still be in committee right? We can change this! Right NOW!
https://goo.gl/goU9Ft & https://www.facebook.com/townhall/ both of these are fast ways to contact our representatives in USA House of Representatives—> this is how we create change to act for all who cannot eat and absorb nutrients.. we DO NOT HAVE TO REACH CRITICAL MASS TO EFFECT CHANGE! It matters that there are over 5+ million suffering and we don’t know how many dying? We matter - WE COUNT!!
21 OCT 2017 · How life can come at you like a train 🚂 a confluence of incurable, invisible, symptoms, a wrecking ball inside of you often not even revealing itself in blood work. Years of malnutrition and dehydration can take its toll on your organs before it begins to throw red flags into your blood work.
19 OCT 2017 · I am reflecting on my #CureGP journey. GP is Gastroparesis a motility Disorder of which there are many in the spectrum on Functional Gastrointestinal Motility Disorders #FGIMD #IBS is that also on the spectrum along with Crohn’s. Our motility bill HR 1187 would mean better treatments, research, quality of life, and ultimately cures for motility Disorders. We are seeking to increase awareness for HR1187 and the need for cosponsors on the bill which is in committee. If you are a representative, we would love for you to be a cosponsor. If you are a constituent, we would love for you to request your representative to be a cosponsor. You will find on the pages that we post this on a link to, an app called Capitol Call- you download that app onto your phone and then you will see the representatives in your area and the ability to call, email them, to request them to be cosponsors on #HR1187. There is also a Townhall feature on your Facebook which gives you access to your Representatives and allows you to further tell your stories and request they do all they can for the Motility Disorder Community. Our best hope at this time, is #HR1187.
We are a group of like minded #Patient_Advocates speaking for the 5+ million Fighting for Awareness & Change needed in the USA in the current Motility Bill HR1187 our research...
show more
We are a group of like minded #Patient_Advocates speaking for the 5+ million Fighting for Awareness & Change needed in the USA in the current Motility Bill HR1187 our research enhancement Act. We need cosponsors to move this budget neutral piece of legislation out of committee. It would ultimately help us Worldwide in the Motility Disorder Community as it knows no boundaries either in its diagnosis nor in any kind of help or research which is done in any place of the world. We as advocates have come together in this battle. We have organized and every morsel of information is sent like flash in a second across social media. This is the good news part of our story.
show less
Information
| Author | Deb Iamokaynow |
| Organization | Deb Iamokaynow |
| Categories | Health & Fitness |
| Website | iamokaynow.com |
| gpfightingforachange@gmail.com |
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