What is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts?

Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they struggled to find care. At three and a half years of age, he had a pulmonary artery banding procedure at Narayana Health in Bangalore. He currently needs the arterial switch procedure. Obtaining medical care is difficult in India, as there is no insurance for congenital conditions, forcing families to rely on private hospitals. To help other families affected by CHD, Sajani started a support group in India and a letter-writing campaign to urge the health minister in the central government to address CHD. Her efforts have attracted the attention of doctors and others, who are now working together to support her cause, a life of dignity for people born with CHD.

Facebook Link to Justice for Children with Congenital Heart Defects: https://www.facebook.com/sajaninairheartmom/

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