Katherine Bhana
1 month ago
Sending you prayers, I was diagnosed in 2010 and seemed to go down hill quickly. In six years I could no longer work and had real problems with balance and joint pain. Brain fog was really bad sometimes. I took rebif and had a lot of problems and had to quit. I have been on techfadera (not spelled right) for a few years and have several side effects. I felt lost and decided to quit my meds due to side effects. Our care provider introduced me to Ayurvedic treatment. I had a total decline of all symptoms including vision problems, numbness and others. Sometimes, i totally forget i ever had MS. Visit Natural Herbs Centre web-site naturalherbscentre. com. I am very pleased with this treatment. I eat well, sleep well and exercise regularly. God bless all MS Warriors
Thomas Boylan
6 months ago
Ezequiel Pereira, I noticed your comment stating the you are on Tecfudera. I was the first Veteran on this with the VA. I caution you to get tested at least annually, if ot twice a year to specifically on it or the level of JC Virus (Jack Cunningham Virus) in your system. Tecfudera has shown to cause a raise in this virus which at a certain level can be extremely problematic. I had to be taken off the Tecfudera due to this side effect
J
Jeffrey Lehrer
6 months ago
I'm a bit confused. The study that showed a 22% higher incidence rate I believe was a Korean study of over 100,000 respondents who served in Vietnam. I thought Asians were less likely to contract the disease though? Isn't that significant that a group of people less likely to get MS has a higher rate of incidence for the disease?
J
Jeffrey Lehrer
6 months ago
I am new to this podcast. I was diagnosed in the late 80's with MS. I served a tour in Vietnam in the infantry and was exposed to Agent Orange while there. I have been denied coverage under the court ordered settlement by the VA since finally filing for it in 2007. My brother served a tour of duty prior to my tour. He was not exposed to the chemical and he is MS free, so I'd like to rule out genetics as a cause. I have a physical therapist wife who impressed into my mind that MS was only a diagnosis, not a disability. I have lived my life since then with that firmly in mind. I stay as active as I can, eat well and try to keep a positive attitude. So far, it has helped. I went to see a non VA neurologist who gave me pamphlets describing the various prescription drugs that could possibly help me. After pricing them at my pharmacy, the least expensive one was $72,000 per year. I continue to struggle with balance, walking, spasticity, and extremity numbness.
Ezequiel Pereira
6 months ago
I was diagnosed while deployed at GTMO in 2008. I am on DMT Tecfudera Dymethyl Fumerate 240mg. Eventually I had to retire on disability because of the limitations it manifested which hindered my ability to do my job. So far I have been able to moderately remain functional, walk on mhy own, on good days, on bad days I use a rollator to help me move around. I was 38 years old when I was diagnosed with MS and eventually have developed Spasmodic Dysphonia. Thank you for this podcast as it is always helpful and opens doors to meet and share our particular experience with this disease with others. Stay strong, eat well, rest well, avoid exceses and stay safe.
George Moschouris
6 months ago
George Moschouris, I was diagnosed in 1986. I have had many therapies since then, but I think my biggest take away from acquiring the disease is to never look back, because it's infuriating. Having a positive attitude, eating healthy and exercise, keeps me going.
George Moschouris
6 months ago
George Moschouris
Sonya Thomas
6 months ago
I was diagnosed with MS in 2021. I found out that I most likely had MS since 1999. This would explain all my problems I had while in the military. I firmly believe that the anthrax shots I received contributed to me getting MS. Prior to starting my treatments I was extremely tired, had extreme back, leg and feet pain. I had headaches and severe dizziness. Since finding an excellent doctor that runs a MS clinic I have been so much better. I am currently on Tysabri which I get infused every 28 days. Since I started I have had no new lesions and actually get to lead a fairly normal life. I used to let MS control my life but I have learned to share my life with MS but I am in the drivers seat.
I was diagnosed with multiple sclerosis August 1996 and I'm on once a week shot of avonex and I'm a T2 and have my good days and bad days but have a good mind set and have dealt with it pretty good but get tired of how it effects my sleep and how I feel in general and after 27 years I look at my MS as the little friend that get's out of control until I smack it down and life goes on.
Keith Schnebel
6 months ago
I was designated with MS in 1997. I currently have no lesions which I once had. I know of no environmental or genetic possibility as it relates to my MS. I currently have terrible pain in my back and feet. My doctors are convinced it is not related to my MS yet they can't tell me the cause I have had many MRI's and nothing has been resolved. Any help would be appreciated
