This episode of the Warriors of Dystonia is Jakki's story.  Jakki is living with an extremely rare condition which combines three severe forms of dystonia, called "tetrahydrobiopterin deficiency generalised dopa responsive dystonia" There are very few documented cases of this form of dystonia around the world and Jakki is the only know person to have this in the UK.  She was diagnosed in 2009, but has had the condition since birth in 1968.  This is Jakki's story in her own words.