Settings
Light Theme
Dark Theme

Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy

Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy
Support
Feb 28, 2024 · 41m 26s

As a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie...

show more
As a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their experiences navigating this complex journey. Together, we discuss the importance of trusting your instincts, seeking early intervention, and finding the right support system for your family.

In this heartfelt episode, we explore the challenges of getting a diagnosis and the critical role of having an IEP in place to support our children. We share our experiences with ABA therapy during the pandemic and how it has helped us better understand our children's behavior. We also discuss the importance of connecting with other parents for emotional and practical support, and how tenacity and a willingness to try different approaches are essential when it comes to finding the right program for your child.

Our journey as parents has shown us the power of advocacy within the congenital heart community. Throughout this episode, we emphasize the need for early intervention, support, and utilizing trusted medical resources to provide the best help for our children. By sharing our experiences, we hope to inspire and empower you to become an advocate for the congenital heart community and ensure that our neurologically and cardiac-challenged children receive the care and attention they deserve.

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.
show less
Information
Author Anna Jaworski
Website -
Tags

Looks like you don't have any active episode

Browse Spreaker Catalogue to discover great new content

Current

Looks like you don't have any episodes in your queue

Browse Spreaker Catalogue to discover great new content

Next Up

Episode Cover Episode Cover

It's so quiet here...

Time to discover new episodes!

Discover
Your Library
Search