BBDC: Exploring Patient Perspectives on Psychosocial Burdens and Positive Factors in Adults with Osteogenesis Imperfecta
Oct 17, 2023 ·
1m 56s
New research from the Brittle Bone Disorders Consortium (BBDC). This summary is based on a paper published in the American Journal of Medical Genetics on June 15, 2023, titled "A...
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New research from the Brittle Bone Disorders Consortium (BBDC). This summary is based on a paper published in the American Journal of Medical Genetics on June 15, 2023, titled "A qualitative exploration of patient perspectives on psychosocial burdens and positive factors in adults with osteogenesis imperfecta."
Read the paper here: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.63323
Learn more about BBDC: https://bbd.rarediseasesnetwork.org
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Read the paper here: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.63323
Learn more about BBDC: https://bbd.rarediseasesnetwork.org
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