https://www.spreaker.com/podcast/help-4-hd-liveenHealth & FitnessCopyright Help 4 HD Live!https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/b46bf784d9d8f7a2d65b06a5fda0061d.jpghttps://www.spreaker.com/podcast/help-4-hd-liveThu, 13 Aug 2026 21:41:52 +0000Help 4 HD Live!Help 4 HD Live!feeds@spreaker.comWelcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's...falseepisodichttps://www.spreaker.com/episode/traveling-tips-tricks--73837544Traveling Tips & Tricks
Host: Katrina Hamel
#HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel]]>https://api.spreaker.com/episode/73837544Thu, 13 Aug 2026 21:41:51 +0000Help 4 HD Live!Social Worker Spotlight with Jamie Holloway Traveling Tips & Tricks Host: Katrina Hamel #HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #TravelTraveling Tips & Tricks
Host: Katrina Hamel
#HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel]]>934hd,help4hd,help4hdlive,huntingtonsdisease,socialworkerspotlight,tipsandtricks,travelfalsefullhttps://www.spreaker.com/episode/hd-reach-crafting-corner--73574559hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm]]>https://api.spreaker.com/episode/73574559Thu, 06 Aug 2026 19:37:19 +0000Help 4 HD Live!Please visit https://hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pmhdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm]]>1343craftingcorner,hdreach,help4hd,help4hdlive,huntingtonsdisease,raredisease,supportgroupfalsefullhttps://www.spreaker.com/episode/patient-clinic-survey-update-with-hd-pace--73133141
On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from people across the U.S. HD community. Every response helps us better understand what's working, where improvements are needed, and how we can use real patient experiences to advocate for better care.

If you've been seen at any HD clinic in the United States or you are a support person who takes a loved one to an HD clinic, your voice matters.🎧

Please visit hdpace.org for more information! You can also access the survey here.]]>https://api.spreaker.com/episode/73133141Thu, 23 Jul 2026 20:34:21 +0000Help 4 HD Live!How are Huntington's disease clinics doing when it comes to the patient experience? On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're...
On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from people across the U.S. HD community. Every response helps us better understand what's working, where improvements are needed, and how we can use real patient experiences to advocate for better care.

If you've been seen at any HD clinic in the United States or you are a support person who takes a loved one to an HD clinic, your voice matters.🎧

Please visit hdpace.org for more information! You can also access the survey here.]]>1030hdpace,hdresearch,hdresources,help4hd,help4hdlive,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/response-to-roche-update-with-hdbuzz--72896764#HuntingtonsDisease. Dr. Rachel Harding of HDBuzz will be joining Lauren to talk about this and what it means for the HD community. ]]>https://api.spreaker.com/episode/72896764Thu, 09 Jul 2026 20:00:02 +0000Help 4 HD Live!Today, Roche announced they will be ending two of their programs for...#HuntingtonsDisease. Dr. Rachel Harding of HDBuzz will be joining Lauren to talk about this and what it means for the HD community. ]]>1005hdresearch,help4hd,help4hdlive,huntingtonsdisease,raredisease,rochefalsefullhttps://www.spreaker.com/episode/on-the-other-side-of-approval-with-jeremy-renz--72694148https://api.spreaker.com/episode/72694148Thu, 25 Jun 2026 20:46:12 +0000Help 4 HD Live!For years, we've talked about clinical trials, FDA meetings, setbacks, and progress. Today, we're talking about something many of us have dreamed about for a long time: What happens if AMT-130 gets approved? Approval wouldn't answer every question,...3008acceleratedapproval,amt130,fda,help4hdlive,huntingtonsdisease,raredisease,uniqurefalsefullhttps://www.spreaker.com/episode/all-about-advocacy-everywhere-usa--72489732
Right now, you can leave a comment about this program until June 29th. Here is the link
]]>https://api.spreaker.com/episode/72489732Thu, 11 Jun 2026 22:39:14 +0000Help 4 HD Live!In this episode, hear Christina DeGryse and Karl Miran speak at the Public Hearing of Commissioner’s National Priority Voucher (CNPV) Pilot Program. Right now, you can leave a comment about this program until June 29th....
Right now, you can leave a comment about this program until June 29th. Here is the link
]]>1503actwithurgency,advocacy,cnpv,fda,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/all-about-advocacy-everywhere--72353259https://api.spreaker.com/episode/72353259Thu, 04 Jun 2026 21:28:55 +0000Help 4 HD Live!For the next few weeks, we are going to talk about advocacy efforts going on everywhere. This week, we have HDYou Community Stories from HDYO. Dina and Sarina share what advocacy efforts are happening globally.3728advocacy,hdresearch,hdyo,hdyou,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/movement-symptoms-in-huntington-s-with-cheryl-turner--72213627https://api.spreaker.com/episode/72213627Thu, 28 May 2026 19:08:40 +0000Help 4 HD Live!Cheryl Turner joins Lauren to talk about movement symptoms in Huntington's Disease and what has been helpful in managing them in her husband.1184caregiver,caregiverlife,choreainhd,huntingtonsdisease,ingrezza,movementsymptoms,movementsymptomsinhd,rarediseasefalsefullhttps://www.spreaker.com/episode/cognitive-symptoms-in-hd-with-todd-knaack--72102204Todd's YouTube Channel]]>https://api.spreaker.com/episode/72102204Thu, 21 May 2026 20:00:04 +0000Help 4 HD Live!Please check out https://www.youtube.com/@HuntingtonsdiseasetoddTodd's YouTube Channel]]>2972cognitivehealth,cognitivesymptoms,help4hd,help4hdlive,huntingtonsdisease,itsnotmeitshd,rarediseasefalsefullhttps://www.spreaker.com/episode/mood-symptoms-in-hd-with-dr-karen-anderson--72011408https://api.spreaker.com/episode/72011408Thu, 14 May 2026 21:20:53 +0000Help 4 HD Live!Karen Anderson, MD, is a psychiatrist specializing in neuropsychiatry, and director of the Huntington’s Disease Care, Education and Research Center at MedStar Georgetown University Hospital. Dr. Anderson sees adult patients and families dealing with...1428hdawarenessmonth,huntingtonsdisease,mentalhealth,moodinhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-awareness-month-help-4-hd-style-with-katrina-and-katie--71745659Registration Form | Help 4 HD Internatio
To request a Help 4 HD HD Awareness Swag box: Registration Form | Help 4 HD Internatio]]>https://api.spreaker.com/episode/71745659Thu, 30 Apr 2026 16:00:03 +0000Help 4 HD Live!To Submit an awareness video: https://www.help4hd.org/events-1/hd-awareness-video-submissions/form To request a Help 4 HD HD Awareness Swag box: https://www.help4hd.org/events-1/hd-awareness-month-2026/formRegistration Form | Help 4 HD Internatio
To request a Help 4 HD HD Awareness Swag box: Registration Form | Help 4 HD Internatio]]>504help4hd,help4hdlive,huntingtonsdiseaseawarenessfalsefullhttps://www.spreaker.com/episode/i-am-the-swamp-with-rachel-reising--71415532https://api.spreaker.com/episode/71415532Fri, 17 Apr 2026 18:30:16 +0000Help 4 HD Live!After being publicly dismissed as “the swamp,” by a government official, Rachel Reising is turning that moment into something bigger -using her voice to advocate, to challenge, and to live out loud for herself and the entire community.3554huntingtonsdisease,iamtheswamp,patientadvocate,rarediseasefalsefullhttps://www.spreaker.com/episode/steps-of-courage-facing-chorea-head-on--71235908https://api.spreaker.com/episode/71235908Fri, 10 Apr 2026 16:35:21 +0000Help 4 HD Live!Katie Jackson and Jamie Holloway fill in for Lauren to discuss how chorea (movement) affects people with Huntington's Disease.1831chorea,help4hd,help4hdlive,huntingtonsdisease,movementdisorder,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-with-sarina-smith--70614251https://api.spreaker.com/episode/70614251Thu, 12 Mar 2026 22:01:50 +0000Help 4 HD Live!Sarina Smith joined Lauren to talk about her recent trip to Washington D.C. for Rare Disease Week and what she learned from other rare disease groups.2898everylifefoundation,help4hd,help4hdlive,huntingtonsdisease,rarediseaseadvocacy,rarediseases,rarediseaseweekfalsefullhttps://www.spreaker.com/episode/love-in-hd-with-heather-nathan-wilmoth--70038542https://api.spreaker.com/episode/70038542Fri, 13 Feb 2026 16:01:46 +0000Help 4 HD Live!Every year around Valentine's Day, we do a "Love in HD" show. This year, Heather and Nathan Wilmoth joined me to share their love story and how that love fuels not only their day-to-day life, but also their advocacy efforts.3407braindisease,caregiverawareness,help4hd,help4hdlive,huntingtonsdisease,loveinhd,neurodegenerativedisease,rarediseasefalsefullhttps://www.spreaker.com/episode/genetic-frontiers-with-susanna-smith--69823973here.

Susanna Smith, MPH, is a health & wellness coach, who trained through Duke University Health & Well-Being Program. Susanna specializes in coaching people who live at risk because years ago when she found out about her own genetic risks, she needed a coach to help her learn how to live with difficult genetic information. She never found that person so she trained to become that person for other people.












]]>https://api.spreaker.com/episode/69823973Thu, 05 Feb 2026 22:35:45 +0000Help 4 HD Live!For more information about Susanna's podcast and health/wellness coaching, please visit her website https://www.geneticfrontiers.org/ Susanna Smith, MPH, is a health & wellness coach, who trained through Duke University Health & Well-Being...here.

Susanna Smith, MPH, is a health & wellness coach, who trained through Duke University Health & Well-Being Program. Susanna specializes in coaching people who live at risk because years ago when she found out about her own genetic risks, she needed a coach to help her learn how to live with difficult genetic information. She never found that person so she trained to become that person for other people.












]]>1372cadasil,geneticdisorders,geneticfrontiers,genetics,help4hd,help4hdlive,huntingtonsdisease,neurodegenerativediseases,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-with-jeremy-r--69470223
Our Call to Action: Both petitions will be closing on Sunday, 1/18/2026. Please take the time to sign and share them before then!

The "non-organizational" petition: https://www.change.org/p/accelerate-breakthrough-drug-approval-for-huntington-s-disease-uniqure-amt-130

The "organization-led" petition: https://www.change.org/p/bring-hope-to-huntington-s-disease-families-urge-the-fda-to-uphold-accelerated-approval?recruiter=1395431917&recruited_by_id=5eb38b60-c0f9-11f0-833a-3786d08ac93b&utm_source=share_petition&utm_campaign=starter_onboarding_share_social&utm_medium=copylink]]>https://api.spreaker.com/episode/69470223Fri, 16 Jan 2026 17:44:14 +0000Help 4 HD Live!Jeremy Renz joined Lauren to talk about the petition to the FDA that he and other advocates created and why it's important we support it.  Our Call to Action: Both petitions will be closing on Sunday, 1/18/2026. Please take the time to sign and share...
Our Call to Action: Both petitions will be closing on Sunday, 1/18/2026. Please take the time to sign and share them before then!

The "non-organizational" petition: https://www.change.org/p/accelerate-breakthrough-drug-approval-for-huntington-s-disease-uniqure-amt-130

The "organization-led" petition: https://www.change.org/p/bring-hope-to-huntington-s-disease-families-urge-the-fda-to-uphold-accelerated-approval?recruiter=1395431917&recruited_by_id=5eb38b60-c0f9-11f0-833a-3786d08ac93b&utm_source=share_petition&utm_campaign=starter_onboarding_share_social&utm_medium=copylink]]>1302fdaacceleratedapproval,hdresearch,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-happenings-in-2026--69361828
You can also register to attend the events mentioned at the website: www.help4hd.org]]>https://api.spreaker.com/episode/69361828Thu, 08 Jan 2026 22:55:11 +0000Help 4 HD Live!Katrina Hamel joins Lauren to talk about what Help 4 HD has planned for 2026. Take a listen! You can also register to attend the events mentioned at the website: https://help4hd.org
You can also register to attend the events mentioned at the website: www.help4hd.org]]>1593help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/november-update-with-katie-jackson--68452129https://api.spreaker.com/episode/68452129Thu, 06 Nov 2025 21:00:08 +0000Help 4 HD Live!Please reach out to Lauren or Katie if you want contact information for the FDA.2520falsefullhttps://www.spreaker.com/episode/jhd-uncut-halloween-edition--68353971https://api.spreaker.com/episode/68353971Thu, 30 Oct 2025 20:02:43 +0000Help 4 HD Live!Happy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.1031help4hd,help4hdlive,huntingtonsdisease,jhd,juvenilehd,rarediseasefalsefullhttps://www.spreaker.com/episode/a-glimmer-of-light-in-the-shadows-with-jennifer-goddard--68082214here.]]>https://api.spreaker.com/episode/68082214Thu, 09 Oct 2025 20:00:08 +0000Help 4 HD Live!If you would like to purchase Jen's book, you can do so https://www.amazon.com/gp/product/B0FRQ7W2DM/ref=ppx_yo_dt_b_d_asin_title_351_o00?ie=UTF8&psc=1.here.]]>2721caregiver,huntingtonsdisease,jhd,jhdmom,juvenilehd,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-wiith-erin-paterson--67991008https://api.spreaker.com/episode/67991008Thu, 02 Oct 2025 19:55:49 +0000Help 4 HD Live!Author Erin Paterson joined Lauren Holder to talk about their mixed feelings regarding UniQure's recent update.1756genetherapy,hdresearch,hduncut,help4hd,help4hdlive,huntingtonsdisease,raredisease,rarediseaseresearch,uniqurefalsefullhttps://www.spreaker.com/episode/uniqure-update-with-dr-ed-wild--67900959recent update from UniQure.]]>https://api.spreaker.com/episode/67900959Thu, 25 Sep 2025 19:54:31 +0000Help 4 HD Live!Dr. Ed Wild joins Lauren Holder to talk about the https://www.bbc.com/news/articles/cevz13xkxpro from UniQure.recent update from UniQure.]]>2256genetherapy,hdresearch,help4hd,huntingtonsdisease,raredisease,uniqurefalsefullhttps://www.spreaker.com/episode/sunday-sit-down-with-terina-martinez--67757148here.]]>https://api.spreaker.com/episode/67757148Sun, 14 Sep 2025 21:34:43 +0000Help 4 HD Live!If you'd like to learn more about C-Path, please visit their website https://c-path.org/here.]]>3052c-path,criticalpathinstitute,hdresearch,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/important-update-with-hd-pace--67545526
Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 
 
📊 Once we have enough responses, results will be shared publicly at www.hdpace.org. 
 
Your voice matters! Please take the survey and share it with others in the HD community.  
#HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE 
 
🔗 Take the survey here.
]]>https://api.spreaker.com/episode/67545526Thu, 28 Aug 2025 20:00:08 +0000Help 4 HD Live!We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback.  | Your feedback can help improve...
Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 
 
📊 Once we have enough responses, results will be shared publicly at www.hdpace.org. 
 
Your voice matters! Please take the survey and share it with others in the HD community.  
#HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE 
 
🔗 Take the survey here.
]]>954hdpace,help4hd,help4hdlive,voice4hdfalsefullhttps://www.spreaker.com/episode/hdconnect-with-jenna-heilman--67483246https://api.spreaker.com/episode/67483246Fri, 22 Aug 2025 20:22:12 +0000Help 4 HD Live!Jenna Heilman from HDYO joins me to talk about the HDCONNECT event that will be happening alongside the Help 4 HD Symposium in FT. Lauderdale, FL, in September. We also discuss more collaborative efforts within the HD community, like joining Critical...1786collaboration,hdconnect,hdresources,hdsupport,hdyo,help4hd,help4hdlive,help4hdsymposium,rarediseasefalsefullhttps://www.spreaker.com/episode/attending-events-with-h-erika-and-melissa--67370949here. You can also find it on HD Reach's website and YouTube channel.]]>https://api.spreaker.com/episode/67370949Thu, 14 Aug 2025 20:01:53 +0000Help 4 HD Live!H. Patton, Erika and Melissa Boulavsky and I attended the HDYO Congress event in Prague together earlier this year. It was H's first HD event, and he decided to record his reactions while there. When we got back, all of us decided to sit down and do...here. You can also find it on HD Reach's website and YouTube channel.]]>5579gameoverhd,hdreach,hdyo,hdyocongress,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/ppem-roundtable-with-jamie-holloway--67306285https://api.spreaker.com/episode/67306285Fri, 08 Aug 2025 20:02:39 +0000Help 4 HD Live!Lauren and Jamie talk about the upcoming roundtable discussion happening at the Help 4 HD Symposium in September 2025.3072clinicaltrials,hdresearch,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/the-power-of-a-moment--67105427https://api.spreaker.com/episode/67105427Thu, 24 Jul 2025 21:41:51 +0000Help 4 HD Live!I share how moments with people in the HD community have had an impact on me and refilled my "cup" when I've needed it most.1193help4hd,help4hdlive,huntingtonsdisease,impact,rarediseasefalsefullhttps://www.spreaker.com/episode/mend-hd-with-dr-lori-quinn-and-dr-jamie-adams--67017674here.]]>https://api.spreaker.com/episode/67017674Thu, 17 Jul 2025 20:00:07 +0000Help 4 HD Live!Dr. Lori Quinn and Dr. Jamie Adams share about a new observational study for the HD community, one that you can do from the comfort of your own home! It's called MEND-HD, and you can find out more information https://www.mend-hd.com/.here.]]>626hdresearch,help4hd,help4hdlive,huntingtonsdisease,mendhdfalsefullhttps://www.spreaker.com/episode/prime-day-in-hd--66945673https://api.spreaker.com/episode/66945673Fri, 11 Jul 2025 15:55:01 +0000Help 4 HD Live!Here's the link for a list I made with Amazon Prime Day deals that you may find helpful: https://tinyurl.com/primedayinhd1635amazonprimeday,hdresources,help4hd,help4hdlive,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/liv-s-legacy-with-esme-gemma--66854396TW: Discussion of mental health challenges.]]>https://api.spreaker.com/episode/66854396Thu, 03 Jul 2025 21:31:57 +0000Help 4 HD Live!Today, we’re honoring the life and legacy of Liv, a beloved HDYO Ambassador. Esme & Gemma join me to talk about mental health, advocacy, and the importance of continuing Liv’s mission.  TW: Discussion of mental health challenges.TW: Discussion of mental health challenges.]]>3322hdyo,help4hd,huntingtonsdisease,mentalhealthawareness,rarediseasefalsefullhttps://www.spreaker.com/episode/ingrezza-with-dwight-tapp-of-neurocrine--66760358  Dwight is Associate Medical Director, Neurology, at Neurocrine Biosciences. Prior to joining the Medical Affairs team at Neurocrine Biosciences, Dwight worked in pharmaceutical, medical imaging and clinical trial management companies. He has advanced degrees in psychology, neuroscience and healthcare business administration, and completed fellowships and post-doctoral training in brain aging, dementia and neuroimaging. Dwight has conducted research in Alzheimer’s disease, Parkinson’s disease, tardive dyskinesia and Huntington’s disease.]]>https://api.spreaker.com/episode/66760358Thu, 26 Jun 2025 20:00:09 +0000Help 4 HD Live!In this episode, Dwight Tapp, MS, PhD, MBA, CCRP, CRCP, FACHE, sits down with Lauren Holder to discuss the INGREZZA® expansion into the treatment of chorea associated with Huntington’s disease for adults and the development of INGREZZA SPRINKLE. ...  Dwight is Associate Medical Director, Neurology, at Neurocrine Biosciences. Prior to joining the Medical Affairs team at Neurocrine Biosciences, Dwight worked in pharmaceutical, medical imaging and clinical trial management companies. He has advanced degrees in psychology, neuroscience and healthcare business administration, and completed fellowships and post-doctoral training in brain aging, dementia and neuroimaging. Dwight has conducted research in Alzheimer’s disease, Parkinson’s disease, tardive dyskinesia and Huntington’s disease.]]>1673chorea,help4hd,help4hdlive,huntingtonsdisease,ingrezza,movementdisorders,neurocrine,neurodegenerativediseases,raredisease,tardivedyskinesiafalsefullhttps://www.spreaker.com/episode/this-is-me-smiling-with-sarah-randy-foster--66634136here.

To find out more about Sarah and to follow her blog, please click here.]]>https://api.spreaker.com/episode/66634136Thu, 19 Jun 2025 19:21:28 +0000Help 4 HD Live!To buy Sarah's new book, "This is Me Smiling", please click...here.

To find out more about Sarah and to follow her blog, please click here.]]>4277help4hd,help4hdlive,huntingtonsdisease,raredisease,sarahfoster,thisismesmilingfalsefullhttps://www.spreaker.com/episode/being-united-with-gracey--66536510https://api.spreaker.com/episode/66536510Thu, 12 Jun 2025 20:00:08 +0000Help 4 HD Live!Gracey shares how HD has become a part of her life since she met her boyfriend, Jake, and how she supports him, making them a united front against HD.2396hduncut,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/spared-with-lori-jones--66411470
You can visit her website here.

You can buy her book on Amazon here.]]>https://api.spreaker.com/episode/66411470Thu, 05 Jun 2025 19:51:31 +0000Help 4 HD Live!Lori Jones is the author of Spared: A Memoir of Risk and Resolve. In it, she delves into her personal journey growing up in a family affected by Huntington’s Disease (HD), exploring themes of inherited trauma, caregiving, and ethical dilemmas. You...
You can visit her website here.

You can buy her book on Amazon here.]]>1883booksabouthd,caregiver,genetictesting,hduncut,help4hd,help4hdlive,huntingtonsdisease,raredisease,therealhdfalsefullhttps://www.spreaker.com/episode/powerhd-with-karmen-t--66206816here.]]>https://api.spreaker.com/episode/66206816Thu, 22 May 2025 20:00:08 +0000Help 4 HD Live!If you would like to join POWERHD, please click https://rare-x.org/huntingtonsdisease/.here.]]>2232globalgenes,hdresearch,huntingtonsdisease,powerhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hdyo-congress-2025-keynote-empowerment-through-gratitude--66106697
You can watch the full video here.]]>https://api.spreaker.com/episode/66106697Thu, 15 May 2025 20:17:07 +0000Help 4 HD Live!Jimmy Pollard closes HDYO's 2025 International Young Adult Congress with a speech on Empowerment Through Gratitude. You can watch the full video https://www.youtube.com/watch?v=bq5xedrtIso&list=PLfha5f75-ixIlgOHw6C264K2N6vtGe8LX&index=2
You can watch the full video here.]]>4714empowerment,gratitude,hdawarenessday,hdawarenessmonth,hdyo,hdyocongress2025,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-with-lance-k--66000513https://api.spreaker.com/episode/66000513Thu, 08 May 2025 20:00:08 +0000Help 4 HD Live!Lance joins me for our HD Uncut series to share his story and how being proactive about his mental health has made such a difference. 2111hdawarenessmonth,hduncut,help4hd,help4hdlive,huntingtonsdisease,mentalhealthinhd,rarediseasefalsefullhttps://www.spreaker.com/episode/rare-disease-warriors-at-wodc-usa-2025--65831018here.]]>https://api.spreaker.com/episode/65831018Thu, 01 May 2025 19:52:02 +0000Help 4 HD Live!The "Power Panel" at the World Orphan Drug Congress USA in Boston, MA, spoke about addressing common barriers in rare hereditary, progressive adult-onset diseases. You can watch the video https://www.youtube.com/watch?v=Xl-T-MwDasY.here.]]>1951hdawarenessmonth,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-with-corrie-harris--65616382https://api.spreaker.com/episode/65616382Thu, 17 Apr 2025 20:40:13 +0000Help 4 HD Live!Corrie Harris shares her family's HD journey with us, and it is both raw and beautiful. She shows how, for her family, there are no coincidences and love never fails. 3522caregiver,hduncut,help4hd,help4hdlive,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/resources-review-apps-edition--65340009
You can access the Goblin Tools browser version here.

You can find more information on Visible here.

You can find more information about Bearable here.]]>https://api.spreaker.com/episode/65340009Thu, 03 Apr 2025 20:04:34 +0000Help 4 HD Live!These are the top 3 apps that I personally use. You can access the Goblin Tools browser version https://goblin.tools/ You can find more information on Visible https://www.makevisible.com/. You can find more information about Bearable...
You can access the Goblin Tools browser version here.

You can find more information on Visible here.

You can find more information about Bearable here.]]>1468hdresources,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/badass-women-of-hd-with-erika-b--65166505
Erika Boulavsky of HD Reach and I not only take some time to honor the badass women of the HD community. We also talk about our recent experience at the HDYO Congress in Prague, and we talk about HD Reach's upcoming event in NC. You can learn more and register here: https://www.hdreach.org/conference/2025.html]]>https://api.spreaker.com/episode/65166505Thu, 27 Mar 2025 20:00:07 +0000Help 4 HD Live!March is Women's History Month, and our HD community has so many women who are truly badasses - from leadership in our Patient Advocacy Organizations to the JHD moms and caregivers to the people with HD who fight every single day. I wanted to take a...
Erika Boulavsky of HD Reach and I not only take some time to honor the badass women of the HD community. We also talk about our recent experience at the HDYO Congress in Prague, and we talk about HD Reach's upcoming event in NC. You can learn more and register here: https://www.hdreach.org/conference/2025.html]]>3271badasswomen,hdreach,help4hd,huntingtonsdisease,raredisease,womenshistorymonthfalsefullhttps://www.spreaker.com/episode/hd-in-costa-rica-with-juan-carlos--65024223Facebook and Instagram]]>https://api.spreaker.com/episode/65024223Fri, 21 Mar 2025 23:26:49 +0000Help 4 HD Live!You can find the Fundación Familia Huntington Costa Rica on https://www.facebook.com/fundacionfamiliahuntingtoncostarica/ and https://www.instagram.com/fundacionfamiliahuntingtoncr/Facebook and Instagram]]>1801costa,costarica,familia,fundación,hdresources,huntington,huntingtonsdisease,raredisease,ricafalsefullhttps://www.spreaker.com/episode/hdyo-congress-in-prague--64899993https://api.spreaker.com/episode/64899993Sat, 15 Mar 2025 14:34:23 +0000Help 4 HD Live!I'm attending and speaking at the HDYO Congress Event in Prague! Take a listen!721falsefullhttps://www.spreaker.com/episode/hd-pace-with-christy-dearien--64736577https://api.spreaker.com/episode/64736577Thu, 06 Mar 2025 21:00:08 +0000Help 4 HD Live!If you would like to learn more about how to get involved, please email me at lauren@help4hd.org1720advocacy,hdadvocacy,hdresearch,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/show-your-stripes-with-lauren-holder--64611423
Please visit NORD's website for information and resources for their #ShowYourStripes campaign. They have a social media toolkit, as well as playbooks with step-by-step guides on how to raise awareness for Rare Disease Day.

Another great organization with resources is Global Genes. You can participate in their #ZebraTales and #CareAboutRare campaigns. 
 ]]>https://api.spreaker.com/episode/64611423Thu, 27 Feb 2025 20:59:36 +0000Help 4 HD Live!Rare Disease Day is Feb 28, 2025.  Please visit NORD's https://rarediseases.org/rare-is-everywhere-be-a-champion-to-the-rare-disease-community-this-feb-28/ for information and resources for their #ShowYourStripes campaign. They have a social media...
Please visit NORD's website for information and resources for their #ShowYourStripes campaign. They have a social media toolkit, as well as playbooks with step-by-step guides on how to raise awareness for Rare Disease Day.

Another great organization with resources is Global Genes. You can participate in their #ZebraTales and #CareAboutRare campaigns. 
 ]]>430careaboutrare,help4hd,help4hdlive,huntingtonsdisease,raredisease,rarediseaseday,showyourstripes,zebratalesfalsefullhttps://www.spreaker.com/episode/hd-gratitude-day-with-jimmy-pollard--64482212
Recognizing Huntington’s Gratitude Day

What? A social media event recognizing the unique partnership between families and scientists working together towards an effective treatment, or “cure,” for HD on March 23rd, the anniversary of the discovery of the gene.It spotlights the contributions to that milestone achievement of impoverished families living with HD in Venezuela. They contributed their DNA to scientists of the U.S.-Venezuela Collaborative Research Project, led by Nancy Wexler, beginning in 1979.Families thank scientists all the time. Scientists thank families every chance they get. Together on Gratitude Day, we all appreciate our partnership together.
Why? There are several reasons to mark Gratitude Day:· In many ways our partnership is unique in all of Science.· The partnership is the foundation of all we have achieved to date.· From CAG counts, to genetic testing and gene-free babies, to clinical trials, our partnership has already changed the experience of living with HD.· The promising conclusion to the great quest for a “cure” will come from our partnership.· Our partnership will be strengthened by collectively setting aside a day to appreciate and recognize it.· As an initiative launched by Factor-H, we acknowledge the contributions of those original Venezuelan families who remain living in extreme poverty and our work to serve them.
When? March 23rd. In the greater community of families and scientists, the “gene find” is the most recognized date of the year.In 1993, on the next day, the New York Times front page reported:“After 10 backbreaking years in a research purgatoryof false leads, failed experiments and long stretches ofmordant despair, an international team of scientists saysit has discovered the most coveted treasure in molecularbiology, the gene behind Huntington’s disease.”It’s fitting that we continue marking this anniversary date to celebrate the essential element of our past achievements, as well as those which are to come.
What? H-Hands The “H-Hands” sign is our symbol. It’s made by joining your hands together in the common “heart hands” sign, then extending your index or “pointer” fingers, creating an “H.” It represents both the elements of Factor-H and our community at large. It’s used to show your participation in Gratitude Day.
Join us! You can participate yourself, as a family or friend, or with your office colleagues, lab staff, bench mates or any other team making the H-Hands sign:·
Post a personal message, video, or photo on any social media platform as early as Monday March 17th.· It’s about recognizing our unique partnership!· We encourage you to use the logo and “H-Hands.”· Last year, people posed in their offices, labs, next to their MRI machines, and outside corporate offices, hospitals, or buildings with their entire team making H-Hands. Families and friends posted their closeups, in kitchens, and on couches.· Poems, songs, signs, stories…we encourage you!· Spread the word among your colleagues!·
Use #HDGratitudeDay to share it. Factor-H This small band of volunteers loosely organizing Gratitude Day ask you to support Factor-H, our charity serving the descendants of those original family partners still living in extreme poverty in Venezuela. You can learn more about them, our work and donate at www.Factor-H.org.
More info? Thanks to hundreds of scientists and families who participated last year. It’s viral so it’s difficult to thank you all individually.


Questions, more information and help? Please contact any one of us who are organizing it: Asuncion Martinez asun@euro-hd.net, Cristina Ferreira scpsenas@gmail.com Jimmy Pollard jjpollard@comcast.net]]>https://api.spreaker.com/episode/64482212Thu, 20 Feb 2025 21:26:05 +0000Help 4 HD Live!Jimmy Pollard joined me to talk about HD Gratitude Day on 3/23/2025.  Recognizing Huntington’s Gratitude Day What? A social media event recognizing the unique partnership between families and scientists working together towards an effective...
Recognizing Huntington’s Gratitude Day

What? A social media event recognizing the unique partnership between families and scientists working together towards an effective treatment, or “cure,” for HD on March 23rd, the anniversary of the discovery of the gene.It spotlights the contributions to that milestone achievement of impoverished families living with HD in Venezuela. They contributed their DNA to scientists of the U.S.-Venezuela Collaborative Research Project, led by Nancy Wexler, beginning in 1979.Families thank scientists all the time. Scientists thank families every chance they get. Together on Gratitude Day, we all appreciate our partnership together.
Why? There are several reasons to mark Gratitude Day:· In many ways our partnership is unique in all of Science.· The partnership is the foundation of all we have achieved to date.· From CAG counts, to genetic testing and gene-free babies, to clinical trials, our partnership has already changed the experience of living with HD.· The promising conclusion to the great quest for a “cure” will come from our partnership.· Our partnership will be strengthened by collectively setting aside a day to appreciate and recognize it.· As an initiative launched by Factor-H, we acknowledge the contributions of those original Venezuelan families who remain living in extreme poverty and our work to serve them.
When? March 23rd. In the greater community of families and scientists, the “gene find” is the most recognized date of the year.In 1993, on the next day, the New York Times front page reported:“After 10 backbreaking years in a research purgatoryof false leads, failed experiments and long stretches ofmordant despair, an international team of scientists saysit has discovered the most coveted treasure in molecularbiology, the gene behind Huntington’s disease.”It’s fitting that we continue marking this anniversary date to celebrate the essential element of our past achievements, as well as those which are to come.
What? H-Hands The “H-Hands” sign is our symbol. It’s made by joining your hands together in the common “heart hands” sign, then extending your index or “pointer” fingers, creating an “H.” It represents both the elements of Factor-H and our community at large. It’s used to show your participation in Gratitude Day.
Join us! You can participate yourself, as a family or friend, or with your office colleagues, lab staff, bench mates or any other team making the H-Hands sign:·
Post a personal message, video, or photo on any social media platform as early as Monday March 17th.· It’s about recognizing our unique partnership!· We encourage you to use the logo and “H-Hands.”· Last year, people posed in their offices, labs, next to their MRI machines, and outside corporate offices, hospitals, or buildings with their entire team making H-Hands. Families and friends posted their closeups, in kitchens, and on couches.· Poems, songs, signs, stories…we encourage you!· Spread the word among your colleagues!·
Use #HDGratitudeDay to share it. Factor-H This small band of volunteers loosely organizing Gratitude Day ask you to support Factor-H, our charity serving the descendants of those original family partners still living in extreme poverty in Venezuela. You can learn more about them, our work and donate at www.Factor-H.org.
More info? Thanks to hundreds of scientists and families who participated last year. It’s viral so it’s difficult to thank you all individually.


Questions, more information and help? Please contact any one of us who are organizing it: Asuncion Martinez asun@euro-hd.net, Cristina Ferreira scpsenas@gmail.com Jimmy Pollard jjpollard@comcast.net]]>1631hdgratitudeday,help4hd,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/h4hd-audio-panel-discussion-increasing-patient-engagement--64364105Dying To Live.]]>https://api.spreaker.com/episode/64364105Thu, 13 Feb 2025 21:00:07 +0000Help 4 HD Live!This panel discussion occurred at the 2025 Southeast HD Symposium in Nashville, TN. The panelists included Maryann Emerick of HDSA, Jamie Holloway of Help 4 HD, Jenna Heilman of HDYO, and Erika Boulavsky of HD Reach. Author and advocate Christy...Dying To Live.]]>3509advocacyinaction,communityengagement,hdreach,hdsa,hdyo,help4hd,help4hdlive,huntingtonsdisease,livablelives,nya,patientadvocacy,patientadvocategroups,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-with-josh-holder--64305343https://api.spreaker.com/episode/64305343Mon, 10 Feb 2025 20:47:29 +0000Help 4 HD Live!This is an HD Uncut series episode with my husband, Josh Holder. I interview him for the 1st time in our 20-year marriage.2068hduncut,help4hd,help4hdlive,huntingtonsdisease,raredisease,therealhdfalsefullhttps://www.spreaker.com/episode/hdyo-ambassadors-hannah--64057327https://api.spreaker.com/episode/64057327Thu, 30 Jan 2025 23:17:37 +0000Help 4 HD Live!Hannah joins me to share her story about being a young caregiver and becoming an HDYO Ambassador.1127hdyo,help4hd,help4hdlive,huntingtonsdisease,raredisease,youngcaregiverfalsefullhttps://www.spreaker.com/episode/hd-uncut-with-amy-ogilvie--63858334https://api.spreaker.com/episode/63858334Thu, 23 Jan 2025 21:00:08 +0000Help 4 HD Live!Amy Ogilvie joins Lauren to discuss her HD journey and how it has led her to do research in HD.1929hduncut,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-resources-review-relationships--63717933
Webinar with Dr. Karen Anderson and Erika Boulavsky of HD Reach: Sex and Intimacy within the Huntington's Disease Journey

• Huntington's Disease Youth Organization - Relationships 

• Relationships - NYA 

• Huntington's Disease Youth Organization - Talking About HD with Family and Friends 

• Huntington's Disease Youth Organization - Being a Partner to a Young Person Impacted by HD 

• Huntington's Disease Youth Organization - Potential Outcomes of Not Discussing HD 

Global Genes has a blog post dedicated to this topic – it's called Love is in the RARE – and the link is https://globalgenes.org/blog/love-is-in-the-rare-tips-for-love-from-the-rare-disease-community/ 

They also have a Facebook group called Global Genes RARE disease community (https://www.facebook.com/groups/globalgenesrarediseasecommunity) 

www.thecenterforchronicillness.org/programs

]]>https://api.spreaker.com/episode/63717933Thu, 16 Jan 2025 21:05:34 +0000Help 4 HD Live!Jamie Holloway joined me to talk about intimacy and share relationship resources. Webinar with Dr. Karen Anderson and Erika Boulavsky of HD Reach: https://www.youtube.com/watch?v=5aB53Uwm8zo - https://www.hdyo.org/a/60-relationships  -...
Webinar with Dr. Karen Anderson and Erika Boulavsky of HD Reach: Sex and Intimacy within the Huntington's Disease Journey

• Huntington's Disease Youth Organization - Relationships 

• Relationships - NYA 

• Huntington's Disease Youth Organization - Talking About HD with Family and Friends 

• Huntington's Disease Youth Organization - Being a Partner to a Young Person Impacted by HD 

• Huntington's Disease Youth Organization - Potential Outcomes of Not Discussing HD 

Global Genes has a blog post dedicated to this topic – it's called Love is in the RARE – and the link is https://globalgenes.org/blog/love-is-in-the-rare-tips-for-love-from-the-rare-disease-community/ 

They also have a Facebook group called Global Genes RARE disease community (https://www.facebook.com/groups/globalgenesrarediseasecommunity) 

www.thecenterforchronicillness.org/programs

]]>1743hdresources,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-updates-for-2025-with-katie-jackson--63548904http://www.blogtalkradio.com/help4hd/2025/01/02/help-4-hd-updates-for-2025-with-katie-jacksonThu, 02 Jan 2025 17:30:00 +0000Help 4 HD Live!Help 4 HD Updates for 2025 with Katie Jackson2113help4hd,huntington’s disease,rarediseasefalse1306fullhttps://www.spreaker.com/episode/bloopy-the-alien-learns-about-hd-with-emma-erin--63480151wrote this book because she wanted to educate kids and adults about the disease and how to
interact with people in a kind and compassionate way. This is not just a book about Huntington’s disease; it is about having empathy and understanding for any older adults in our lives.

The book is published by Lemonade Press, a social purpose publisher that works with
underrepresented medical communities to create specialized books about medical conditions and rare diseases.

When Bloopy the alien comes to Earth to learn more about humans, he meets Emma and her
family. He quickly wonders why Emma’s grandpa is behaving so differently. In this
heartwarming story, Emma teaches Bloopy about having empathy and understanding for people
living with a rare disease.

You can order the book here: Bloopy The Alien Learns About Huntington's Disease

You can also check out Lemonade Press here: https://lemonadecommunity.com/]]>https://api.spreaker.com/episode/63480151Thu, 26 Dec 2024 20:34:03 +0000Help 4 HD Live!Emma Wajswasser is a 12-year-old student from Toronto whose grandpa is living with HD. She wrote this book because she wanted to educate kids and adults about the disease and how to interact with people in a kind and compassionate way. This is not...wrote this book because she wanted to educate kids and adults about the disease and how to
interact with people in a kind and compassionate way. This is not just a book about Huntington’s disease; it is about having empathy and understanding for any older adults in our lives.

The book is published by Lemonade Press, a social purpose publisher that works with
underrepresented medical communities to create specialized books about medical conditions and rare diseases.

When Bloopy the alien comes to Earth to learn more about humans, he meets Emma and her
family. He quickly wonders why Emma’s grandpa is behaving so differently. In this
heartwarming story, Emma teaches Bloopy about having empathy and understanding for people
living with a rare disease.

You can order the book here: Bloopy The Alien Learns About Huntington's Disease

You can also check out Lemonade Press here: https://lemonadecommunity.com/]]>988bloopythealien,hdresources,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-resources-review-grief-loss--63402997http://www.blogtalkradio.com/help4hd/2024/12/19/hd-resources-review-grief-lossThu, 19 Dec 2024 21:00:00 +0000Help 4 HD Live!Pay What You Can: www.paywhatyoucanpeersupport.com/faqs  Alliance of Hope: www.allianceofhope.org or phone number is 847-868-3313 National Suicide Hotline:   If you live in the US, contact the National Suicide Prevention Lifeline by calling 988 or...2023bereavement,grief,huntingtonsdisease,mentalhealth,rarediseasefalsefullhttps://www.spreaker.com/episode/hospice-for-end-of-life-care-explained--63400086http://www.blogtalkradio.com/help4hd/2024/12/12/hospice-for-end-of-life-care-explainedThu, 12 Dec 2024 21:00:00 +0000Help 4 HD Live!Erika (HD Reach) and Lauren (Help4HD Podcast) talk with Clinical Social Worker and Hospice Supervisor Shivani Borah about Hospice and the end-of-life process. We discuss medications, advanced directives, and the myths and misunderstandings surrounding...4142endoflife,hdresources,hospice,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-days-of-our-lives--63400090http://www.blogtalkradio.com/help4hd/2024/12/05/hd-uncut-days-of-our-livesThu, 05 Dec 2024 21:00:00 +0000Help 4 HD Live!HD Uncut: Days of Our Lives2252hduncut,help4hd,huntingtonsdisease,raredisease,therealhdfalsefullhttps://www.spreaker.com/episode/hd-resources-review-help-4-the-holidays-with-anna-jamie--63400104http://www.blogtalkradio.com/help4hd/2024/11/28/hd-resources-review-help-4-the-holidays-with-anna-jamieThu, 28 Nov 2024 21:00:00 +0000Help 4 HD Live!The Help 4 HD Resource Database has a resource called mRelief, which is a nonprofit that helps you determine eligibility and sign up for SNAP and other supplemental programs by using a quick survey via text message. You can text the word “Food” to...1815help4hd,help4hdlive,help4theholidays,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/update-about-sage-therapeutics-with-lauren-holder--63400100http://www.blogtalkradio.com/help4hd/2024/11/21/update-about-sage-therapeutics-with-lauren-holderThu, 21 Nov 2024 21:00:00 +0000Help 4 HD Live!Update about Sage Therapeutics with Lauren Holder1818dyingtolive,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-right-to-choose-with-lauren-holder--63400092http://www.blogtalkradio.com/help4hd/2024/11/07/hd-uncut-right-to-choose-with-lauren-holderThu, 07 Nov 2024 21:00:00 +0000Help 4 HD Live!If you'd like to check out the video, here's the link: https://youtu.be/NTiqiAeBMOw996dyingtolive,help4hd,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/rare-patient-voice-with-wes-michael--63400088http://www.blogtalkradio.com/help4hd/2024/10/24/rare-patient-voice-with-wes-michaelThu, 24 Oct 2024 20:00:00 +0000Help 4 HD Live!Please visit the Rare Patient Voice website for more information, or reach out to Lauren Holder at lauren@help4hd.org WES MICHAEL Founder and President, Rare Patient Voice Wes Michael founded Rare Patient Voice in 2013 to give patients and family...2030help4hd,huntingtonsdisease,raredisease,rarediseaseresearch,rarepatientvoicefalse1305fullhttps://www.spreaker.com/episode/breaking-down-barriers-a-conversation-around-access-with-hdyo--63400114http://www.blogtalkradio.com/help4hd/2024/10/17/breaking-down-barriers-a-conversation-around-access-with-hdyoThu, 17 Oct 2024 20:00:00 +0000Help 4 HD Live!Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video...4538hdyo,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/our-lived-experience-panel-from-help-4-hd-symposium--63400111http://www.blogtalkradio.com/help4hd/2024/10/10/our-lived-experience-panel-from-help-4-hd-symposiumThu, 10 Oct 2024 20:00:00 +0000Help 4 HD Live!Our Lived Experience (Panel from Help 4 HD Symposium)1898help4hd,huntingtonsdisease,livedexperience,rarediseasefalsefullhttps://www.spreaker.com/episode/are-you-prepared-for-a-disaster--63400087http://www.blogtalkradio.com/help4hd/2024/10/03/are-you-prepared-for-a-disasterThu, 03 Oct 2024 21:21:45 +0000Help 4 HD Live!Helpful information on being prepared for a disaster: https://www.ready.gov/disability Information about FEMA: https://www.disasterassistance.gov/ Here are some tips for people with disabilities to prepare for disasters:  Make a plan Create a...2084disability,huntingtonsdisease,jhd,neurodegenerativedisease,rarediseasefalse1303fullhttps://www.spreaker.com/episode/hd-uncut-thoughts-from-strasbourg--63400096http://www.blogtalkradio.com/help4hd/2024/09/19/hd-uncut-thoughts-from-strasbourgThu, 19 Sep 2024 20:00:00 +0000Help 4 HD Live!HD Uncut: Thoughts from Strasbourg1727hdresearch,help4hd,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/end-of-life-the-caregiver-perspective-part-2--63400112http://www.blogtalkradio.com/help4hd/2024/09/05/end-of-life-the-caregiver-perspective-part-2-1Thu, 05 Sep 2024 20:23:53 +0000Help 4 HD Live!End of Life: The Caregiver Perspective, Part 22518false1302fullhttps://www.spreaker.com/episode/uf-fixel-institute-for-hd-patients-with-dr-nick-mcfarland--63400093http://www.blogtalkradio.com/help4hd/2024/08/29/uf-fixel-institute-for-hd-patients-with-dr-nick-mcfarlandThu, 29 Aug 2024 20:00:00 +0000Help 4 HD Live!For more information about the UF Fixel Institute located in Gainesville, FL, please click here.1428huntingtonsdisease,juvenilehd,neurodegenerativedisease,raredisease,uffixelinstitutefalsefullhttps://www.spreaker.com/episode/hdyo-ambassador-molly--63400097http://www.blogtalkradio.com/help4hd/2024/08/08/hdyo-ambassador-mollyThu, 08 Aug 2024 20:00:00 +0000Help 4 HD Live!HDYO Ambassador: Molly1321hdyo,help4hd,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/we-are-at-war-with-hd--63400099http://www.blogtalkradio.com/help4hd/2024/08/02/we-are-at-war-with-hdFri, 02 Aug 2024 20:00:00 +0000Help 4 HD Live!To read the blog post BJ Viau wrote, please click here1702atwarwithhd,dyingtolive,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hdyo-ambassador-gemma--63400103http://www.blogtalkradio.com/help4hd/2024/07/19/hdyo-ambassador-gemmaFri, 19 Jul 2024 16:00:00 +0000Help 4 HD Live!HDYO Ambassador Gemma3073hdyoambassador,help4hdlive,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-being-gene-positive-a-scientist--63400098http://www.blogtalkradio.com/help4hd/2024/07/11/hd-uncut-being-gene-positive-a-scientistThu, 11 Jul 2024 20:00:00 +0000Help 4 HD Live!"Bri" joins me to discuss what it's like being gene-positive for HD and a scientist doing HD research.2792dyingtolive,hduncut,huntingtonsdisease,juvenilehd,rarediseasefalsefullhttps://www.spreaker.com/episode/end-of-life-the-caregiver-perspective--63400113http://www.blogtalkradio.com/help4hd/2024/07/05/end-of-life-the-caregiver-perspectiveFri, 05 Jul 2024 13:08:30 +0000Help 4 HD Live!End of Life: The Caregiver Perspective1495false1300fullhttps://www.spreaker.com/episode/stronger-together--63400118http://www.blogtalkradio.com/help4hd/2024/06/27/stronger-togetherThu, 27 Jun 2024 20:00:00 +0000Help 4 HD Live!We are Stronger Together1483falsefullhttps://www.spreaker.com/episode/hdyo-ambassadors-series-carly--63400120http://www.blogtalkradio.com/help4hd/2024/06/20/hdyo-ambassadors-series-carlyThu, 20 Jun 2024 20:00:00 +0000Help 4 HD Live!Please contact Jenna Heilman if you're interested in learning more about the HDYO Ambassadors program.956hdyo,help4hd,huntingtonsdisease,juvenilehd,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-genetics-clinical-trials-with-bj-viau--63400116http://www.blogtalkradio.com/help4hd/2024/06/13/hd-genetics-clinical-trials-with-bj-viauThu, 13 Jun 2024 20:00:00 +0000Help 4 HD Live!Please visit hdgenetics.com for more information.1769clinicaltrials,genetictesting,hdgenetics,help4hdlive,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-with-gina--63400123http://www.blogtalkradio.com/help4hd/2024/06/06/hd-uncut-with-ginaThu, 06 Jun 2024 22:00:00 +0000Help 4 HD Live!HD Uncut with Gina 2256hduncut,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-awareness-month-wrap-up-with-judy-bradley--63400091http://www.blogtalkradio.com/help4hd/2024/05/30/hd-awareness-month-wrap-up-with-judy-bradleyThu, 30 May 2024 20:00:00 +0000Help 4 HD Live!As a way to wrap up HD Awareness Month, let's #LightItUp4HD on social media tomorrow! Share a video or photo of you with blue and/or purple glow sticks tomorrow. Make sure to use #LightItUp4HDandJHD and/or #2024LightItUp4HD. If you want, also share...15972024lightitup4hd,hdawarenessmonth,hdwarrior,huntingtonsdisease,lightitup4hdandjhdfalsefullhttps://www.spreaker.com/episode/my-visit-with-uniqure--63400094http://www.blogtalkradio.com/help4hd/2024/05/16/my-visit-with-uniqureThu, 16 May 2024 20:00:00 +0000Help 4 HD Live!Recap of my visit with UniQure for HD Awareness Month706hdawarenessmonth,help4hdlive,uniqurefalsefullhttps://www.spreaker.com/episode/act-for-als-and-hd-with-thom-hart--63400124http://www.blogtalkradio.com/help4hd/2024/05/09/act-for-als-and-hd-with-thom-hartThu, 09 May 2024 20:00:00 +0000Help 4 HD Live!Thom Hart is the Director of Outreach with the Critical Path Institute (C-Path), which is a nonprofit created by the FDA to "improve the drug development process. It operates as a neutral third party to enable scientists from the regulated industry...2658actforals,cpath,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hdyo-ambassadors-ashley--63400130http://www.blogtalkradio.com/help4hd/2024/05/02/hdyo-ambassadors-ashleyThu, 02 May 2024 20:00:00 +0000Help 4 HD Live!For more information about the HDYO Ambassadors program, please visit www.hdyo.org.1853hdadvocate,hdyo,help4hd,huntington's disease,rarediseasefalsefullhttps://www.spreaker.com/episode/what-i-learned-at-the-world-orphan-drug-congress--63400117http://www.blogtalkradio.com/help4hd/2024/04/25/what-i-learned-at-the-world-orphan-drug-congressThu, 25 Apr 2024 20:00:00 +0000Help 4 HD Live!I recently attended the World Orphan Drug Congress in Boston, MA. The audio for this episode is from my YouTube video that you can find here: Dying to Live1287hdadvocacy,huntingtonsdisease,jhd,raredisease,worldorphanusafalsefullhttps://www.spreaker.com/episode/hd-uncut-with-meredith-patterson--63400140http://www.blogtalkradio.com/help4hd/2024/04/18/hd-uncut-with-meredith-pattersonThu, 18 Apr 2024 20:00:00 +0000Help 4 HD Live!Meredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/ She also has a podcast called "Confessions of an...4186hduncut,huntingtonsdisease,letstalkabouthd,meredithpatterson,rarediseasefalse1297fullhttps://www.spreaker.com/episode/using-optical-tweezers-in-hd-with-dr-piere-rodriguez-aliaga--63400138http://www.blogtalkradio.com/help4hd/2024/04/11/using-optical-tweezers-in-hd-with-dr-piere-rodriguez-aliagaThu, 11 Apr 2024 20:00:00 +0000Help 4 HD Live!Piere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time, which...1857hdresearch,hereditarydiseasefoundation,huntingtonsdisease,opticaltweezers,rarediseasefalsefullhttps://www.spreaker.com/episode/cognitive-symptoms-patient-reported-outcomes-with-dr-jennifer-petrillo-billet--63400144http://www.blogtalkradio.com/help4hd/2024/04/04/cognitive-symptoms-patient-reported-outcomes-with-dr-jennifer-petrillo-billetThu, 04 Apr 2024 20:00:00 +0000Help 4 HD Live!Jennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence for key...2801cognitivehealth,cognitivesymptoms,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hdyo-ambassador-series-rhiannon--63400122http://www.blogtalkradio.com/help4hd/2024/03/28/hdyo-ambassador-series-rhiannonThu, 28 Mar 2024 20:00:00 +0000Help 4 HD Live!Please visit www.hdyo.org for more information2067falsefullhttps://www.spreaker.com/episode/hd-gratitude-day--63400121http://www.blogtalkradio.com/help4hd/2024/03/21/hd-gratitude-dayThu, 21 Mar 2024 20:02:14 +0000Help 4 HD Live!Please visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.455factor-h,hdgratitudeday,huntingtonsdisease,jhd,rarediseasefalse1296fullhttps://www.spreaker.com/episode/samantha-decker--63400129http://www.blogtalkradio.com/help4hd/2024/03/14/samantha-deckerThu, 14 Mar 2024 20:00:00 +0000Help 4 HD Live!Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!1612hdresearch,hduncut,help4hd,huntington's disease,rare diseasefalsefullhttps://www.spreaker.com/episode/hdyo-ambassadors-series-ep-1-with-robyn--63400101http://www.blogtalkradio.com/help4hd/2024/02/29/hdyo-ambassadors-series-ep-1-with-robynThu, 29 Feb 2024 21:00:00 +0000Help 4 HD Live!HDYO Ambassadors Series: Ep 1. with Robyn1611hdyo,help4hdlive,huntingtonsdisease,raredisease,rarediseasedayfalsefullhttps://www.spreaker.com/episode/hd-uncut-ep-12-with-john-howard--63400127http://www.blogtalkradio.com/help4hd/2024/02/22/hd-uncut-ep-12-with-john-howardThu, 22 Feb 2024 21:00:00 +0000Help 4 HD Live!Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the...1529hdstrong,hduncut,huntingtonsdisease,raredisease,therealhdfalsefullhttps://www.spreaker.com/episode/layers-of-love-with-dave-susie-and-erika--63400126http://www.blogtalkradio.com/help4hd/2024/02/15/layers-of-love-with-dave-susie-and-erikaThu, 15 Feb 2024 21:00:00 +0000Help 4 HD Live!Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with...2548hdreach,help4hd,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/we-exist-with-tanita-allen--63400106http://www.blogtalkradio.com/help4hd/2024/02/08/we-exist-with-tanita-allenThu, 08 Feb 2024 21:00:00 +0000Help 4 HD Live!To follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We Exist1561hdstrong,help4hd,help4hdlive,huntington's disease,therealhdfalsefullhttps://www.spreaker.com/episode/dna-repair-in-hd-with-dr-joseph-hamilton--63400105http://www.blogtalkradio.com/help4hd/2024/02/01/dna-repair-in-hd-with-dr-joseph-hamiltonThu, 01 Feb 2024 21:00:00 +0000Help 4 HD Live!Please visit the Hereditary Disease Foundation website to find out more information.1638hdresearch,help4hd,help4hdlive,huntingtons disease,rarediseasefalsefullhttps://www.spreaker.com/episode/thehdhun-with-charlotte--63400109http://www.blogtalkradio.com/help4hd/2024/01/25/thehdhun-with-charlotteThu, 25 Jan 2024 21:00:00 +0000Help 4 HD Live!If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click Here1416hdstrong,huntingtonsdisease,raredisease,thehdhun,youngcaregiverfalsefullhttps://www.spreaker.com/episode/hd-uncut-ep-11-with-dina-de-sousa--63400110http://www.blogtalkradio.com/help4hd/2024/01/18/hd-uncut-ep-11-with-dina-de-sousaThu, 18 Jan 2024 21:00:00 +0000Help 4 HD Live!HD Uncut, Ep. 11, with Dina De Sousa2009hduncut,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-charge-with-dr-jamie-hamilton--63400143http://www.blogtalkradio.com/help4hd/2024/01/11/hd-charge-with-dr-jamie-hamiltonThu, 11 Jan 2024 21:00:00 +0000Help 4 HD Live!Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease. 2336chdi,hdresearch,help4hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/greater-than-hd-in-2024--63400108http://www.blogtalkradio.com/help4hd/2024/01/04/greater-than-hd-in-2024Thu, 04 Jan 2024 21:00:00 +0000Help 4 HD Live!Greater than HD in 20241586help4hd,huntington's disease,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-uncut-ep-10-with-leah--63400115http://www.blogtalkradio.com/help4hd/2023/12/28/hd-uncut-ep-10-with-leahThu, 28 Dec 2023 21:00:00 +0000Help 4 HD Live!HD Uncut, Ep. 10 with Leah2984hduncut,help4hd,huntingtonsdisease,raredisease,therealhdfalse1295fullhttps://www.spreaker.com/episode/livable-lives-with-christy-dearien--63400119http://www.blogtalkradio.com/help4hd/2023/12/21/livable-lives-with-christy-dearienThu, 21 Dec 2023 21:00:00 +0000Help 4 HD Live!If you'd like to follow Christy on social media, you can find her here:  Facebook - www.facebook.com/ChristyDearien Instagram - @christydearien1252help4hd,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/welcome-to-help-4-hd-anna-lunsford--63400141http://www.blogtalkradio.com/help4hd/2023/12/14/welcome-to-help-4-hd-anna-lunsfordThu, 14 Dec 2023 21:00:00 +0000Help 4 HD Live!If you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also...1113hdresources,help4hd,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-2023-with-katie-and-katrina--63400147http://www.blogtalkradio.com/help4hd/2023/12/07/help-4-hd-2023-with-katie-and-katrinaThu, 07 Dec 2023 21:00:00 +0000Help 4 HD Live!For more information about all that Help 4 HD is doing, please visit the website - www.help4hd.org1533falsefullhttps://www.spreaker.com/episode/coping-during-the-holidays-with-melissa-w--63400150http://www.blogtalkradio.com/help4hd/2023/11/30/coping-during-the-holidays-with-melissa-wThu, 30 Nov 2023 21:00:00 +0000Help 4 HD Live!Coping During the Holidays with Melissa W.3273holidays,huntingtonsdisease,jhd,mentalhealth,rarediseasesfalsefullhttps://www.spreaker.com/episode/hd-uncut-series-ep-9--63400152http://www.blogtalkradio.com/help4hd/2023/11/16/hd-uncut-series-ep-9Thu, 16 Nov 2023 20:50:34 +0000Help 4 HD Live!Lauren shares her feelings about the holidays and her recent birthday.1998false1292fullhttps://www.spreaker.com/episode/vico-therapeutics--63400159http://www.blogtalkradio.com/help4hd/2023/11/09/vico-therapeuticsThu, 09 Nov 2023 21:00:00 +0000Help 4 HD Live!Dr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.1369hd,hdresearch,huntington's disease,jhd,vicofalsefullhttps://www.spreaker.com/episode/hd-community-advisory-board-with-jenna-heilman--63400135http://www.blogtalkradio.com/help4hd/2023/10/26/hd-community-advisory-board-with-jenna-heilmanThu, 26 Oct 2023 20:00:00 +0000Help 4 HD Live!If you'd like to learn more about HD-CAB, including how to become a member, please visit the website here. You can also contact Jenna Heilman at jenna@hdyo.org. 2399hd-cab,hdcommunity,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/hd-mythbusters-generation-hd2--63400128http://www.blogtalkradio.com/help4hd/2023/10/12/hd-mythbusters-generation-hd2Thu, 12 Oct 2023 20:00:00 +0000Help 4 HD Live!Rita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, being...2554genentech,hdresearch,huntingtonsdisease,roche,tominersenfalsefullhttps://www.spreaker.com/episode/at-the-age-of-onset-with-chris-brown--63400161http://www.blogtalkradio.com/help4hd/2023/10/05/at-the-age-of-onset-with-chris-brownThu, 05 Oct 2023 20:00:00 +0000Help 4 HD Live!Chris Brown joins me to talk about the age of onset in HD3121hduncut,huntingtonsdisease,prodromalhd,raredisease,therealhdfalsefullhttps://www.spreaker.com/episode/rare-fair-yarr-with-sarina-smith--63400133http://www.blogtalkradio.com/help4hd/2023/09/28/rare-fair-yarr-with-sarina-smithThu, 28 Sep 2023 23:00:00 +0000Help 4 HD Live!Sarina Smith853false1291fullhttps://www.spreaker.com/episode/hd-uncut-ep-7-with-kayla-paige--63400136http://www.blogtalkradio.com/help4hd/2023/09/21/hd-uncut-ep-7-with-kayla-paigeThu, 21 Sep 2023 20:00:00 +0000Help 4 HD Live!If you'd like to join Kayla's Facebook group, please click here.994hduncut,help4hd,huntingtonsdisease,jhd,rarediseasefalsefullhttps://www.spreaker.com/episode/surveyor-a-personal-experience--63400165http://www.blogtalkradio.com/help4hd/2023/09/15/surveyor--a-personal-experienceFri, 15 Sep 2023 20:00:00 +0000Help 4 HD Live!Lauren's Experience with Surveyor2180falsefullhttps://www.spreaker.com/episode/sex-drugs-rock-n-roll-and-hd-with-erika-b-and-dr-katherine-mcdonell--63400134http://www.blogtalkradio.com/help4hd/2023/09/07/sex-drugs-rock-n-rolland-hd-with-erika-b-and-dr-katherine-mcdonellThu, 07 Sep 2023 20:00:00 +0000Help 4 HD Live!"Sex, Drugs, Rock 'n Roll...and HD" with Erika B. and Dr. Katherine McDonell3140hdreach,help4hd,raredisease,raretopicsforararediseasefalsefullhttps://www.spreaker.com/episode/is-it-greener-on-the-other-side--63400174http://www.blogtalkradio.com/help4hd/2023/08/31/is-it-greener-on-the-other-sideThu, 31 Aug 2023 20:00:00 +0000Help 4 HD Live!Dr. Jack Lam and Erika B. join me to discuss CBD, cannabis and HD3552falsefullhttps://www.spreaker.com/episode/photobiomodulation-therapy-with-kelly--63400151http://www.blogtalkradio.com/help4hd/2023/08/24/photobiomodulation-therapy-with-kellyThu, 24 Aug 2023 20:00:00 +0000Help 4 HD Live!Kelly Clark is a caregiver for her husband. They are currently using photobiomodulation therapy on her husband to help with his HD. For more information about the research being done, please visit Vielight at vielight.com Please add Kelly as a...2339huntington's disease,pmbtfalsefullhttps://www.spreaker.com/episode/hd-uncut-ep-6-with-kathryn-jordan--63400132http://www.blogtalkradio.com/help4hd/2023/08/10/hd-uncut-ep-6-with-kathryn-jordanThu, 10 Aug 2023 20:00:00 +0000Help 4 HD Live!Kathryn Jordan is a model, writer and HD advocate who currently lives in Toronto. She has a blog she uses for awareness, you can visit it at this link: www.popularizementalhealth.com You can also follow Kathryn on Instagram - @vintagebabetoronto992hduncut,help4hd,therealhdfalsefullhttps://www.spreaker.com/episode/when-life-gets-messy-with-erika-b-and-jeff-m--63400193http://www.blogtalkradio.com/help4hd/2023/08/03/when-life-gets-messy-with-erika-b-and-jeff-mThu, 03 Aug 2023 15:35:42 +0000Help 4 HD Live!Erika Boulavsky of HD Reach and I sat down with Jeff Marsocci to talk about when life gets messy - we talked about divorce, disability and so much more! This webinar is a great resource. To watch all of the Rare Topics for a Rare Disease webinars,...3786hdreach,hdresources,help4hd,raretopicsforararediseasefalse1290fullhttps://www.spreaker.com/episode/hd-uncut-ep-5-erika-and-olivia--63400162http://www.blogtalkradio.com/help4hd/2023/07/27/hd-uncut-ep-5--erika-and-oliviaThu, 27 Jul 2023 20:00:00 +0000Help 4 HD Live!HD Uncut, Ep. 5 - Erika and Olivia1812hduncut,help4hd,huntingtonsdisease,jhd,rarediseasefalse1289fullhttps://www.spreaker.com/episode/hdf-young-investigators-ep-2-the-gut-and-hd-with-dr-carolina-gubert--63400145http://www.blogtalkradio.com/help4hd/2023/07/20/hdf-young-investigators-ep-2--the-gut-and-hd-with-dr-carolina-gubertThu, 20 Jul 2023 20:00:00 +0000Help 4 HD Live!This project was inspired by increasing evidence that bugs inhabiting the gut influence brain function and dysfunction, and that the gut microbial community is abnormal in mice and people with Huntington’s disease. It has also been shown that the...1004hdresearch,help4hd,help4hdlive,huntingtonsdisease,rarediseasefalsefullhttps://www.spreaker.com/episode/focus-hd-with-matt-roche-of-chdi--63400188http://www.blogtalkradio.com/help4hd/2023/07/13/focus-hd-with-matt-roche-of-chdiThu, 13 Jul 2023 20:00:00 +0000Help 4 HD Live!To participate in the FOCUS Online study, please visit the following link: https://forms.office.com/r/eXfRT1ZanZ. Matthew Roché, PhD, is the Director of Outcomes Research. Matt earned his PhD in clinical psychology at State University of New York at...1825falsefullhttps://www.spreaker.com/episode/behind-the-badge-with-joe-thurman--63400154http://www.blogtalkradio.com/help4hd/2023/07/06/behind-the-badge-with-joe-thurmanThu, 06 Jul 2023 20:00:00 +0000Help 4 HD Live!Please visit the HD Reach website for more webinars with me and Erika.4242hdreach,help4hd,huntingtonsdisease,lawenforcement,resourcesforhdfalsefullhttps://www.spreaker.com/episode/hd-uncut-ep-4-with-chris-brown--63400167http://www.blogtalkradio.com/help4hd/2023/06/22/hd-uncut-ep-4-with-chris-brownThu, 22 Jun 2023 20:00:00 +0000Help 4 HD Live!HD Uncut, Ep. 4 with Chris Brown3679hdresearch,hdstrong,hduncut,huntingtonsdisease,therealhdfalsefullhttps://www.spreaker.com/episode/hdf-young-investigators-ep-1--63400197http://www.blogtalkradio.com/help4hd/2023/06/15/hdf-young-investigators-ep-1Thu, 15 Jun 2023 20:00:00 +0000Help 4 HD Live!Charlene Smith bio: "I am a project scientist in the lab of Dr Leslie Thompson at UC Irvine. I have worked here for 8 years studying Huntington's disease using HD patient derived stem cells. During that time I have received funding from the Hereditary...2431curehd,hdresearch,help4hd,hereditarydiseasefoundation,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/project-change-with-kevin-jess--63400125http://www.blogtalkradio.com/help4hd/2023/06/08/project-change-with-kevin-jessThu, 08 Jun 2023 20:00:00 +0000Help 4 HD Live!Kevin's journey with WeHaveAFace began over a decade ago when he joined as a regional advocate. Recognizing the urgent need for advocacy in the HD community, he immersed himself in the organization's mission to raise awareness and support for those...2546curehd,diagnosticcriteria,help4hd,huntingtonsdisease,projectchangefalsefullhttps://www.spreaker.com/episode/wishing-for-more-with-brandon-pechette--63400137http://www.blogtalkradio.com/help4hd/2023/05/25/wishing-for-more-with-brandon-pechetteThu, 25 May 2023 20:00:00 +0000Help 4 HD Live!Wishing for More with Brandon Pechette1376falsefullhttps://www.spreaker.com/episode/fighting-for-vince-gilmer-with-dr-benjamin-gilmer--63400191http://www.blogtalkradio.com/help4hd/2023/05/18/fighting-for-vince-gilmer-with-dr-benjamin-gilmerThu, 18 May 2023 20:00:00 +0000Help 4 HD Live!For more information about Dr. Benjamin Gilmer and his book, please visit his website: https://benjamingilmer.com/ Please send Vince a letter or note if you can. He is feeling very down now and any support with your words would be very helpful to...1684curehd,help4hd,huntington'sdisease,theotherdrgilmer,therealhdfalsefullhttps://www.spreaker.com/episode/advocate-perspective-on-prilenia-with-seth-rotberg--63400131http://www.blogtalkradio.com/help4hd/2023/05/11/advocate-perspective-on-prilenia-with-seth-rotbergThu, 11 May 2023 13:00:00 +0000Help 4 HD Live!Advocate Perspective on Prilenia with Seth Rotberg1693falsefullhttps://www.spreaker.com/episode/enduring-hd-with-lori-and-ariel--63400142http://www.blogtalkradio.com/help4hd/2023/05/05/enduring-hd-with-lori-and-arielFri, 05 May 2023 14:30:00 +0000Help 4 HD Live!Enduring HD with Lori and Ariel1525hdawareness,hdstrong,huntingtonsdisease,jhd,therealhdfalsefullhttps://www.spreaker.com/episode/institute-for-gene-therapies-with-erik-paulsen--63400139http://www.blogtalkradio.com/help4hd/2023/04/27/institute-for-gene-therapies-with-erik-paulsenThu, 27 Apr 2023 20:00:00 +0000Help 4 HD Live!To learn more about the Institute for Gene Therapies, please visit their website: www.gene-therapies.org Congressman Erik Paulsen (MN-3) served from 2009 to 2019 as a leading member on the House Ways and Means Committee, which has jurisdiction over...945gene therapies,huntington's disease,igt,mvp actfalsefullhttps://www.spreaker.com/episode/hd-uncut-ep-3-symptom-hunting--63400156http://www.blogtalkradio.com/help4hd/2023/04/20/hd-uncut-ep3-symptom-huntingThu, 20 Apr 2023 20:00:00 +0000Help 4 HD Live!Melissa Ryant joins me to talk about symptom hunting.3286hduncut,help4hd,huntingtonsdisease,symptomhuntingfalsefullhttps://www.spreaker.com/episode/health-and-wellness-with-katie-simos--63400146http://www.blogtalkradio.com/help4hd/2023/04/13/health-and-wellness-with-katie-simosThu, 13 Apr 2023 20:00:00 +0000Help 4 HD Live!If you are interested in learning more about what we are talking about, please send an email to Lauren at lauren@help4hd.org1701falsefullhttps://www.spreaker.com/episode/hd-heroes-with-erin-paterson--63400177http://www.blogtalkradio.com/help4hd/2023/04/06/hd-heroes-with-erin-patersonThu, 06 Apr 2023 20:00:00 +0000Help 4 HD Live!You can purchase the book here. To learn more about Erin Paterson, please visit her website here.1470curehd,erinpaterson,hdheroes,therealhdfalsefullhttps://www.spreaker.com/episode/hdyo-congress-2023-recap-with-jenna-heilman--63400149http://www.blogtalkradio.com/help4hd/2023/03/30/hdyo-congress-2023-recap-with-jenna-heilmanThu, 30 Mar 2023 20:00:00 +0000Help 4 HD Live!Recap of HDYO Congress 2023 with Jenna Heilman1158falsefullhttps://www.spreaker.com/episode/hd-uncut-with-katrina-hamel--63400181http://www.blogtalkradio.com/help4hd/2023/03/23/hd-uncut-with-katrina-hamelThu, 23 Mar 2023 19:00:00 +0000Help 4 HD Live!HD Uncut with Katrina Hamel - Gene-negative, caregiver for her mother and brother, and CFO of Help 4 HD International - comes on to talk to us uncut and uncensored about her HD journey.3863curehdandjhd,hdstrong,hduncut,help4hd,huntington's diseasefalse1279fullhttps://www.spreaker.com/episode/genetic-modifiers-of-hd--63400179http://www.blogtalkradio.com/help4hd/2023/03/09/genetic-modifiers-of-hdThu, 09 Mar 2023 21:00:00 +0000Help 4 HD Live!Dr. Rachel Harding, Dr. Leora Fox, and Dr. Sarah Hernandez join me to discuss genetic modifiers of HD.1609falsefullhttps://www.spreaker.com/episode/rare-topics-for-a-rare-disease--63400199http://www.blogtalkradio.com/help4hd/2023/03/02/rare-topics-for-a-rare-diseaseThu, 02 Mar 2023 21:00:00 +0000Help 4 HD Live!For more information about HD Reach and the upcoming education day and webinars, please visit www.hdreach.org  2058falsefullhttps://www.spreaker.com/episode/hd-uncut-episode-1-chris-brown--63400210http://www.blogtalkradio.com/help4hd/2023/02/23/hd-uncut-episode-1-chris-brownThu, 23 Feb 2023 21:00:00 +0000Help 4 HD Live!Chris Brown joins me for our very first episode of the HD Uncut series. 3389hduncut,huntington's disease,letstalkabouthd,therealhdfalsefullhttps://www.spreaker.com/episode/caregiver-action-network-with-nichole-goble--63400178http://www.blogtalkradio.com/help4hd/2023/02/16/caregiver-action-network-with-nichole-gobleThu, 16 Feb 2023 21:00:00 +0000Help 4 HD Live!Nichole Goble (she/her) is the current Director of Community Initiatives at Caregiver Action Network. She has been with the organization since 2017. As part of her role as Director of Community Initiatives, she manages activities/programs with...1215falsefullhttps://www.spreaker.com/episode/love-in-hd--63400192http://www.blogtalkradio.com/help4hd/2023/02/09/love-in-hdThu, 09 Feb 2023 19:13:21 +0000Help 4 HD Live!Love in HD1425false1277fullhttps://www.spreaker.com/episode/accepting-hd-with-abby--63400204http://www.blogtalkradio.com/help4hd/2023/02/02/accepting-hd-with-abbyThu, 02 Feb 2023 21:00:00 +0000Help 4 HD Live!Abby shares her story of accepting HD in her life1355falsefullhttps://www.spreaker.com/episode/life-and-loss-with-savannah-wilkes--63400153http://www.blogtalkradio.com/help4hd/2023/01/26/life-and-loss-with-savannah-wilkesThu, 26 Jan 2023 21:00:00 +0000Help 4 HD Live!You can find Savannah on Instagram. Her handle is @lifeandlosswith_sav1462grief,huntington's disease,life and lossfalsefullhttps://www.spreaker.com/episode/nc-chief-of-police-conference--63400160http://www.blogtalkradio.com/help4hd/2023/01/19/nc-chief-of-police-conferenceThu, 19 Jan 2023 21:00:00 +0000Help 4 HD Live!Erika Boulavsky and I talk about our recent experience at the NCACP Conference1378falsefullhttps://www.spreaker.com/episode/honestly-hd--63400157http://www.blogtalkradio.com/help4hd/2023/01/12/honestly-hdThu, 12 Jan 2023 21:00:00 +0000Help 4 HD Live!Please visit the Honestly HD website by going to www.honestlyhd.com Nina DeLucia is the Director of Consumer Marketing for AUSTEDO at Teva Pharmaceuticals.  She has worked in the life sciences industry for over 20 years for Pharmaceutical companies...1244hd research,hd resources,huntington's disease,teva pharmaceuticalsfalsefullhttps://www.spreaker.com/episode/diagnosis-and-disability--63400218http://www.blogtalkradio.com/help4hd/2023/01/05/diagnosis-and-disabilityThu, 05 Jan 2023 20:24:08 +0000Help 4 HD Live!Diagnosis and Disability1141false1273fullhttps://www.spreaker.com/episode/the-wishing-tree-for-hd--63400180http://www.blogtalkradio.com/help4hd/2022/12/30/the-wishing-tree-for-hdFri, 30 Dec 2022 21:00:00 +0000Help 4 HD Live!Crystal Collinsworth joins me to discuss her nonprofit, The Wishing Tree for HD.1673false1272fullhttps://www.spreaker.com/episode/i-don-t-have-the-spoons--63400184http://www.blogtalkradio.com/help4hd/2022/12/22/i-dont-have-the-spoonsThu, 22 Dec 2022 20:06:17 +0000Help 4 HD Live!To read the original article written by Christine Miserandino, please visit the following link: The Spoon Theory1036false1269fullhttps://www.spreaker.com/episode/best-gifts-for-people-with-hd--63400205http://www.blogtalkradio.com/help4hd/2022/12/15/best-gifts-for-people-with-hdThu, 15 Dec 2022 20:00:00 +0000Help 4 HD Live!To see some of the suggested holiday gifts, you can visit the following websites: Amazon list created by Lauren Holder: https://www.amazon.com/hz/wishlist/ls/36F3QP2FN6NE6?ref_=wl_share Adaptive Clothing: https://www.buckandbuck.com...2217false1268fullhttps://www.spreaker.com/episode/help4hd-updates-for-2022--63400225http://www.blogtalkradio.com/help4hd/2022/12/08/help4hd-updates-for-2022Thu, 08 Dec 2022 21:00:00 +0000Help 4 HD Live!Katie and Katrina provide updates for 2022, and look forward to 2023.2264falsefullhttps://www.spreaker.com/episode/new-hd-staging-system-with-dr-sarah-tabrizi--63400168http://www.blogtalkradio.com/help4hd/2022/11/24/new-hd-staging-system-with-dr-sarah-tabriziThu, 24 Nov 2022 21:00:00 +0000Help 4 HD Live!Sarah Tabrizi is Director of the UCL Huntington’s Disease (HD) Centre, Joint Head of Department Neurodegenerative Disease at the UCL Queen Square Institute of Neurology, a Principal Investigator at the UK Dementia Research Institute, and Honorary...1772hdresearch,huntington's diseasefalsefullhttps://www.spreaker.com/episode/happy-thanksgiving-from-hdbuzz--63400207http://www.blogtalkradio.com/help4hd/2022/11/17/happy-thanksgiving-from-hdbuzzThu, 17 Nov 2022 21:00:00 +0000Help 4 HD Live!Dr. Leora Fox from HDBuzz joins me1267falsefullhttps://www.spreaker.com/episode/ask-the-scientists--63400171http://www.blogtalkradio.com/help4hd/2022/10/27/ask-the-scientistsThu, 27 Oct 2022 20:00:00 +0000Help 4 HD Live!Leora and Rachel join me to answer questions about research and science2398falsefullhttps://www.spreaker.com/episode/hd-reach--63400148http://www.blogtalkradio.com/help4hd/2022/10/19/hd-reachWed, 19 Oct 2022 20:00:00 +0000Help 4 HD Live!www.hdreach.org eboulavsky@hdreach.org 919-327-1804 Erika Boulavsky, MSW, LCSWA, serves as the Community Outreach Specialist for HD Reach. Erika is responsible for helping to build relationships and education within the medical community as well as...1870false1267fullhttps://www.spreaker.com/episode/symposium-recap-with-maryann-emerick--63400194http://www.blogtalkradio.com/help4hd/2022/10/13/symposium-recap-with-maryann-emerickThu, 13 Oct 2022 18:00:00 +0000Help 4 HD Live!Symposium Recap with Maryann Emerick1630false1266fullhttps://www.spreaker.com/episode/hd-genetics--63400200http://www.blogtalkradio.com/help4hd/2022/09/30/hd-geneticsFri, 30 Sep 2022 16:00:00 +0000Help 4 HD Live!For more information, please visit www.hdgenetics.com Wes is a Certified Genetic Counselor (CGC) through the American Board of Genetic Counseling. He earned a Master of Science in Genetic Counseling from Johns Hopkins University in 2021. As part of...1526falsefullhttps://www.spreaker.com/episode/help4hd-october-2022-symposium--63400169http://www.blogtalkradio.com/help4hd/2022/09/22/help4hd-october-2022-symposiumThu, 22 Sep 2022 21:21:30 +0000Help 4 HD Live!Katie Jackson shares info on upcoming Symposium807false1265fullhttps://www.spreaker.com/episode/is-hd-a-whole-body-disease--63400212http://www.blogtalkradio.com/help4hd/2022/09/16/is-hd-a-whole-body-diseaseFri, 16 Sep 2022 20:00:00 +0000Help 4 HD Live!For more great information on research, please visit hdbuzz.net.2453falsefullhttps://www.spreaker.com/episode/join-hd--63400183http://www.blogtalkradio.com/help4hd/2022/09/08/join-hdThu, 08 Sep 2022 20:00:00 +0000Help 4 HD Live!For more information, please visit join-hd.org1389falsefullhttps://www.spreaker.com/episode/headlocks-for-huntington-s--63400213http://www.blogtalkradio.com/help4hd/2022/08/25/headlocks-for-huntingtonsThu, 25 Aug 2022 20:00:00 +0000Help 4 HD Live!Please visit www.championsforhd.org/donate or http://www.ringwarscarolina.net/992falsefullhttps://www.spreaker.com/episode/grief-and-loss-with-louanne-stanton--63400230http://www.blogtalkradio.com/help4hd/2022/08/18/grief-and-loss-with-louanne-stantonThu, 18 Aug 2022 20:00:00 +0000Help 4 HD Live!Louanne's bio:  I stood at the foot of my husband's hospital bed... "Where is the book?" I asked the doctor. "What book?" he asked... "The book that tells me how to do this..." I was 33 years old and my 35 year old husband lay in the bed, just...1618falsefullhttps://www.spreaker.com/episode/community-talks-receiving-disappointing-research-news--63400187http://www.blogtalkradio.com/help4hd/2022/08/10/community-talks-receiving-disappointing-research-newsWed, 10 Aug 2022 17:00:00 +0000Help 4 HD Live!Katie Jackson and I talk about the recent research announcements.2092falsefullhttps://www.spreaker.com/episode/what-s-your-why--63400220http://www.blogtalkradio.com/help4hd/2022/08/04/whats-your-why-1Thu, 04 Aug 2022 20:15:09 +0000Help 4 HD Live!https://www.youtube.com/watch?v=1ytFB8TrkTo1008false1262fullhttps://www.spreaker.com/episode/fda-listening-session-breakdown-with-danielle--63400242http://www.blogtalkradio.com/help4hd/2022/07/28/fda-listening-session-breakdown-with-danielleThu, 28 Jul 2022 20:00:00 +0000Help 4 HD Live!FDA Listening Session Breakdown with Danielle1316false1260fullhttps://www.spreaker.com/episode/informed-decisions-with-gene-veritas--63400201http://www.blogtalkradio.com/help4hd/2022/07/21/informed-decisions-with-gene-veritasThu, 21 Jul 2022 20:00:00 +0000Help 4 HD Live!We talk about Roe vs Wade being overturned and how that can affect the HD community2536falsefullhttps://www.spreaker.com/episode/hdbuzz-roundtable-1--63400233http://www.blogtalkradio.com/help4hd/2022/07/14/hdbuzz-roundtable-1Thu, 14 Jul 2022 20:00:00 +0000Help 4 HD Live!For more information about HDBuzz, please visit their website or twitter.2296falsefullhttps://www.spreaker.com/episode/picnichealth-with-ashley-ferreira--63400250http://www.blogtalkradio.com/help4hd/2022/07/07/picnichealth-with-ashley-ferreiraThu, 07 Jul 2022 20:00:00 +0000Help 4 HD Live!Ashley Ferreira has worked in the non-profit sector for over 10 years, 4 of those years in the rare disease space. She currently serves as one of PicnicHealth's Community Partnership Managers where she works with different advocacy and patient...792huntington's disease,picnichealth,researchfalsefullhttps://www.spreaker.com/episode/law-enforcement-education-with-vicki-owen--63400198http://www.blogtalkradio.com/help4hd/2022/06/30/law-enforcement-education-with-vicki-owenThu, 30 Jun 2022 16:00:00 +0000Help 4 HD Live!Law Enforcement Education with Vicki Owen. If you'd like to contact Vicki to get materials to hand out to your local law enforcement, you can email her at vicki@help4hd.org. 841huntington's disease,law enforcement educationfalsefullhttps://www.spreaker.com/episode/alzheimer-s-brain-awareness-month--63400249http://www.blogtalkradio.com/help4hd/2022/06/24/alzheimers-brain-awareness-monthFri, 24 Jun 2022 18:30:00 +0000Help 4 HD Live!Alzheimer's & Brain Awareness Month with Karen Owens. Link to Monthly Programs https://www.alzconnected.org/ https://www.alzheimersnavigator.org/ Link to Live Well Modules1017false1256fullhttps://www.spreaker.com/episode/this-is-hd-with-teresa-snider--63400202http://www.blogtalkradio.com/help4hd/2022/06/16/this-is-hd-with-teresa-sniderThu, 16 Jun 2022 20:00:00 +0000Help 4 HD Live!This is HD with Teresa Snider1571falsefullhttps://www.spreaker.com/episode/accelerate-hd-update--63400231http://www.blogtalkradio.com/help4hd/2022/05/27/accelerate-hd-updateFri, 27 May 2022 21:00:00 +0000Help 4 HD Live!Seth and BJ join me to talk about the upcoming FDA listening session1352falsefullhttps://www.spreaker.com/episode/gait-balance-and-exercise-in-hd--63400236http://www.blogtalkradio.com/help4hd/2022/05/19/gait-balance-and-exercise-in-hdThu, 19 May 2022 20:00:00 +0000Help 4 HD Live!Dr. Anne Kloos received her physical therapy degree from the University of Wisconsin-Madison and her doctoral degree in biology/neuroscience from Cleveland State University. She is currently a Professor Clinical in the Physical Therapy Division at the...1568falsefullhttps://www.spreaker.com/episode/stop-collaborate-and-listen--63400252http://www.blogtalkradio.com/help4hd/2022/05/12/stop-collaborate-and-listenThu, 12 May 2022 20:00:00 +0000Help 4 HD Live!Jenna Heilman joins me to talk about collaboration1441falsefullhttps://www.spreaker.com/episode/vibrant-hd-with-beth-borowsky-of-novartis--63400224http://www.blogtalkradio.com/help4hd/2022/05/10/vibrant-hd-with-beth-borowsky-of-novartisTue, 10 May 2022 03:30:00 +0000Help 4 HD Live!Beth Borowsky is an Executive Director and Senior Global Program Clinical Head in Neuroscience at Novartis Pharmaceutical Corporation, where she has been since 2018. Prior to Novartis, Beth spent 12 years doing clinical research and development for...1492falsefullhttps://www.spreaker.com/episode/rare-youth-revolution--63400170http://www.blogtalkradio.com/help4hd/2022/04/28/rare-youth-revolutionThu, 28 Apr 2022 20:00:00 +0000Help 4 HD Live!Nicola is the co-founder and editor-in-chief for Rare Revolution Magazine. With a strong background in design and a passion for writing, Nicola is the driving force behind their creative vision, and uses her strategic experience in large-scale project...1269huntington's disease,rare diseases,rarerevolutionmagazine,rare youth revolutionfalsefullhttps://www.spreaker.com/episode/my-hd-story--63400206http://www.blogtalkradio.com/help4hd/2022/04/21/my-hd-storyThu, 21 Apr 2022 20:00:00 +0000Help 4 HD Live!Karen Anderson, MD, is a psychiatrist specializing in neuropsychiatry, and director of the Huntington’s Disease Care, Education and Research Center at MedStar Georgetown University Hospital. Dr. Anderson sees adult patients and families dealing with...1140falsefullhttps://www.spreaker.com/episode/may-is-hd-awareness-month--63400228http://www.blogtalkradio.com/help4hd/2022/04/14/may-is-hd-awareness-monthThu, 14 Apr 2022 20:00:00 +0000Help 4 HD Live!Join us to hear about what Help 4 HD International is doing for awareness during the month of May. 568falsefullhttps://www.spreaker.com/episode/advocacy-als-edition--63400263http://www.blogtalkradio.com/help4hd/2022/04/07/advocacy-als-editionThu, 07 Apr 2022 20:00:00 +0000Help 4 HD Live!For more information: https://iamals.org/stories/jean-swidler/2671advocacy,als,huntington's disease,neurodegenerative diseases,rare diseasesfalse1254fullhttps://www.spreaker.com/episode/autumn-s-sweet-16--63400208http://www.blogtalkradio.com/help4hd/2022/03/31/autumns-sweet-16Thu, 31 Mar 2022 20:00:00 +0000Help 4 HD Live!Please reach out to Londen Tabor (Londen@Help4HD.org) or Lauren Holder (lauren@help4hd.org) to donate to Autumn's Adventure Fund. :)535falsefullhttps://www.spreaker.com/episode/dr-hayden-with-prilenia--63400172http://www.blogtalkradio.com/help4hd/2022/03/18/dr-hayden-with-prileniaFri, 18 Mar 2022 16:00:00 +0000Help 4 HD Live!Dr. Hayden is the CEO of Prilenia. He is an accomplished scientist and physician. He is a Killam Professor at the University of British Columbia and Senior Scientist at the Centre for Molecular Medicine and Therapeutics. He is also a Canadian Research...1752huntington's disease,prilenia,researchfalsefullhttps://www.spreaker.com/episode/world-social-work-day--63400173http://www.blogtalkradio.com/help4hd/2022/03/15/world-social-work-dayTue, 15 Mar 2022 19:30:00 +0000Help 4 HD Live!Happy Social Work Day and Social Work Month to all the social workers out there!!1505huntington's disease,world social work dayfalse1252fullhttps://www.spreaker.com/episode/hdtc-2022-review--63400176http://www.blogtalkradio.com/help4hd/2022/03/03/hdtc-2022-reviewThu, 03 Mar 2022 23:00:00 +0000Help 4 HD Live!CHDI is currently having their HD Therapeutics Conference! HDBuzz has been reporting via live tweets on Twitter - they've done a great job in sharing the research. Seth Rotberg and Lauren Holder have been following along, and give a review.2305falsefullhttps://www.spreaker.com/episode/3-squeezes--63400211http://www.blogtalkradio.com/help4hd/2022/02/24/3-squeezesThu, 24 Feb 2022 21:00:00 +0000Help 4 HD Live!Please visit the 3 Squeezes website by going to www.3squeezes.com Laura Vazac has a special, limited edition bracelet right now where 20% of the proceeds go to Help 4 HD International.16083squeezes,huntington's disease,jhd,rare diseasefalsefullhttps://www.spreaker.com/episode/public-impact-and-discrimination-in-hd--63400185http://www.blogtalkradio.com/help4hd/2022/02/18/public-impact-and-discrimination-in-hdFri, 18 Feb 2022 22:00:00 +0000Help 4 HD Live!In this episode, Katrina Hamel and Katie Jackson talk about the public impact our families have to endure living in a family impacted by HD. 1159awareness,education,help4hdlive,huntingtonsdisease,supportfalsefullhttps://www.spreaker.com/episode/love-in-hd--63400235http://www.blogtalkradio.com/help4hd/2022/02/10/love-in-hdThu, 10 Feb 2022 23:00:00 +0000Help 4 HD Live!Melissa (Dilley) Ryant is 34 years old and originally from Ohio. Her mom was the first in her family to be formally diagnosed with HD, and these symptoms began when Melissa was a child. Her mom passed away on 2/14/2008. When Melissa was 24, she tested...1692huntington's disease,loveinhdfalse1250fullhttps://www.spreaker.com/episode/kinect-hd-with-casey-and-sandra--63400237http://www.blogtalkradio.com/help4hd/2022/02/03/kinect-hd-with-casey-and-sandraThu, 03 Feb 2022 21:00:00 +0000Help 4 HD Live!Sandra Kostyk received her MD, PhD degrees from the Pritzker School of Medicine at the University of Chicago and completed her residency in neurology at the Massachusetts General Hospital, Harvard Medical School. Following her residency, she was...2037hdresearch,hsg,huntingtonsdisease,kinect-hdfalsefullhttps://www.spreaker.com/episode/the-eyes-in-hd--63400155http://www.blogtalkradio.com/help4hd/2022/01/27/the-eyes-in-hdThu, 27 Jan 2022 21:00:00 +0000Help 4 HD Live!Dr. Alby Richard is a movement disorders neurologist and assistant professor in the department of Neuroscience at the University of Montreal, in addition to being an adjunct professor in the Department of Neurology and Neurosurgery of McGill...2048acceleratehd,hdresearch,help4hd,huntington's diseasefalsefullhttps://www.spreaker.com/episode/hipe-orlando-recap--63400257http://www.blogtalkradio.com/help4hd/2022/01/20/hipe-orlando-recapThu, 20 Jan 2022 21:00:00 +0000Help 4 HD Live!HIPE Orlando Recap1949false1249fullhttps://www.spreaker.com/episode/discord--63400278http://www.blogtalkradio.com/help4hd/2022/01/14/discordFri, 14 Jan 2022 21:00:00 +0000Help 4 HD Live!If you would like to join us on Discord, here is the link: https://discord.gg/VeUzU2TA2271acceleratehdfalsefullhttps://www.spreaker.com/episode/genetic-discrimination-is-alive-and-well--63400271http://www.blogtalkradio.com/help4hd/2022/01/06/genetic-discrimination-is-alive-and-wellThu, 06 Jan 2022 21:00:00 +0000Help 4 HD Live!Genetic discrimination is still happening every day. Know your rights. Learn about the GINA Act, and follow GINAhelp.org - Your GINA Resource Great article: Genetic Discrimination in the Workplace: What You Need to Know - ToughNickel1512false1248fullhttps://www.spreaker.com/episode/help-4-hd-wrap-up--63400270http://www.blogtalkradio.com/help4hd/2021/12/29/help-4-hd-wrap-upWed, 29 Dec 2021 20:00:00 +0000Help 4 HD Live!Katie and Katrina do a wrap up for 2021!1373false1247fullhttps://www.spreaker.com/episode/hd-cab--63400221http://www.blogtalkradio.com/help4hd/2021/12/16/hd-cabThu, 16 Dec 2021 21:00:00 +0000Help 4 HD Live!For more information about HD-CAB, please visit Introducing HD-CAB, OneVoice4HD – European Huntington Association (eurohuntington.org)1943falsefullhttps://www.spreaker.com/episode/accelerate-hd--63400240http://www.blogtalkradio.com/help4hd/2021/12/10/accelerate-hdFri, 10 Dec 2021 21:00:00 +0000Help 4 HD Live!Accelerate HD 2003falsefullhttps://www.spreaker.com/episode/grief-and-depression-during-the-holidays--63400219http://www.blogtalkradio.com/help4hd/2021/12/02/grief-and-depression-during-the-holidaysThu, 02 Dec 2021 20:00:00 +0000Help 4 HD Live!Grief and Depression During The Holidays1677false1245fullhttps://www.spreaker.com/episode/it-s-a-partnership--63400248http://www.blogtalkradio.com/help4hd/2021/11/24/its-a-partnershipWed, 24 Nov 2021 21:00:00 +0000Help 4 HD Live!Recording of an interview with the coordinators of PREVENT-HD when I traveled to Madison, WI.1768curehd,curejhd,hdresearch,huntington's disease,prevent-hdfalsefullhttps://www.spreaker.com/episode/rare-revolution-magazine--63400277http://www.blogtalkradio.com/help4hd/2021/11/18/rare-revolution-magazineThu, 18 Nov 2021 21:00:00 +0000Help 4 HD Live!Nicola is the co-founder and editor-in-chief of RARE Revolution Magazine, a not-for-profit magazine and movement dedicated to amplifying the voice of rare disease stakeholders globally. RARE Revolution is also the home of the dedicated youth platform,...1731huntington's disease,rare diseases,rare revolution magazine,xeroderma pigmentosumfalsefullhttps://www.spreaker.com/episode/bladder-bowel-and-sexual-dysfunction--63400229http://www.blogtalkradio.com/help4hd/2021/11/11/bladder-bowel-and-sexual-dysfunctionThu, 11 Nov 2021 21:00:00 +0000Help 4 HD Live!Brenda started at the UWMC in 1995 after graduating as a registered nurse. She has devoted her career to working exclusively with patients with neurological disease in Urology. She began working half-time with patients and families in the Huntington’s...2123falsefullhttps://www.spreaker.com/episode/sybil-on-tour--63400234http://www.blogtalkradio.com/help4hd/2021/11/04/sybil-on-tourThu, 04 Nov 2021 20:00:00 +0000Help 4 HD Live!Jackie Harrison is a member of the HD community who created a very fun way to bring awareness to HD. Visit @sybilontour on Twitter to see all the amazing places Sybil has been. :)1188falsefullhttps://www.spreaker.com/episode/ask-autumn--63400238http://www.blogtalkradio.com/help4hd/2021/10/27/ask-autumnWed, 27 Oct 2021 23:30:00 +0000Help 4 HD Live!Ask Autumn486falsefullhttps://www.spreaker.com/episode/hdclarity--63400195http://www.blogtalkradio.com/help4hd/2021/10/14/hdclarityThu, 14 Oct 2021 20:00:00 +0000Help 4 HD Live!Dr. Wild is a Professor of Neurology at University College London, a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery in London’s Queen Square, and Associate Director of UCL Huntington’s Disease Centre. He runs clinics in...2575hdclarity,hdresearch,huntington's diseasefalsefullhttps://www.spreaker.com/episode/erin-paterson-and-all-good-things--63400280http://www.blogtalkradio.com/help4hd/2021/10/07/erin-paterson-and-all-good-thingsThu, 07 Oct 2021 20:00:00 +0000Help 4 HD Live!Toronto author and public speaker, Erin Paterson, tested gene positive for Huntington’s Disease (HD) in 2006. Shortly after she started suffering from depression, then received more crushing news, she was infertile.  Despite those diagnoses she was...1221all good things,erin paterson,family planning,huntington's disease,rare diseasesfalsefullhttps://www.spreaker.com/episode/alliancerx-walgreens-prime-and-tailormed--63400158http://www.blogtalkradio.com/help4hd/2021/09/30/alliancerx-walgreens-prime-and-tailormedThu, 30 Sep 2021 20:00:00 +0000Help 4 HD Live!Lisa Mymo is responsible for the strategy and execution of AllianceRx Walgreens Prime’s specialized programs, services and offerings.  Lisa and her teams are focused on best in class performance in the areas manufacturer and HUB services, patient...1275alliancerx,huntington's disease,specialty meds,specialty pharmacy,tailormedfalsefullhttps://www.spreaker.com/episode/signs-from-above--63400239http://www.blogtalkradio.com/help4hd/2021/09/23/signs-from-aboveThu, 23 Sep 2021 22:06:49 +0000Help 4 HD Live!Signs from above784false1239fullhttps://www.spreaker.com/episode/the-heart-in-hd--63400203http://www.blogtalkradio.com/help4hd/2021/09/17/the-heart-in-hdFri, 17 Sep 2021 20:00:00 +0000Help 4 HD Live!Sophie St-Cyr, PhD of Children's Hospital of Philadelphia joins us to talk about the heart. Heart disease is the second cause of mortality from Huntington'sand patients present an increased incidence of heart failure and a smaller heart. This heart...1314curehd,hdresearch,heart disease,huntington's disease,jhdfalsefullhttps://www.spreaker.com/episode/let-s-be-candles--63400241http://www.blogtalkradio.com/help4hd/2021/09/09/lets-be-candlesThu, 09 Sep 2021 20:00:00 +0000Help 4 HD Live!Let's Be Candles1631false1236fullhttps://www.spreaker.com/episode/londen-tabor-joins-help-4-hd--63400163http://www.blogtalkradio.com/help4hd/2021/09/02/londen-tabor-joins-help-4-hdThu, 02 Sep 2021 20:00:00 +0000Help 4 HD Live!Londen Tabor Joins Help 4 HD1581falsefullhttps://www.spreaker.com/episode/bridging-the-gap-with-seth-and-bj--63400243http://www.blogtalkradio.com/help4hd/2021/08/26/bridging-the-gap-with-seth-and-bj-1Thu, 26 Aug 2021 20:00:00 +0000Help 4 HD Live!Bridging The Gap with Seth and BJ1271falsefullhttps://www.spreaker.com/episode/brave-breanna--63400246http://www.blogtalkradio.com/help4hd/2021/08/20/brave-breannaFri, 20 Aug 2021 20:00:00 +0000Help 4 HD Live!Shelby Lentz talks about her new book.782falsefullhttps://www.spreaker.com/episode/patientslikeme-with-louise-vetter--63400251http://www.blogtalkradio.com/help4hd/2021/08/12/patientslikeme-with-louise-vetterThu, 12 Aug 2021 20:00:00 +0000Help 4 HD Live!Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the...800hdsa,huntington's disease,jhd,patientslikemefalsefullhttps://www.spreaker.com/episode/the-geomic-approach--63400209http://www.blogtalkradio.com/help4hd/2021/08/06/the-geomic-approachFri, 06 Aug 2021 17:00:00 +0000Help 4 HD Live!Christian Neri is a Research Director with a demonstrated history of working in the research industry. Skilled in genome science, computational biology, machine learning, translational research, R&D, target discovery, drug discovery, molecular...1339geomic,huntington's disease,jhd,neurodegenerative disease,rare diseasesfalsefullhttps://www.spreaker.com/episode/we-need-an-army--63400164http://www.blogtalkradio.com/help4hd/2021/07/29/we-need-an-armyThu, 29 Jul 2021 20:00:00 +0000Help 4 HD Live!Seth, BJ and I talk about making changes in the HD community If you are interested in participating, please email Lauren Holder at lauren@help4hd.org2095changehd,hdurgency,huntingtonsdisease,juvenilehdfalsefullhttps://www.spreaker.com/episode/how-fan1-affects-hd--63400245http://www.blogtalkradio.com/help4hd/2021/07/22/how-fan1-affects-hdThu, 22 Jul 2021 20:00:00 +0000Help 4 HD Live!Mike is a Neurology Registrar at the National Hospital for Neurology and Neurosurgery in London, and works on clinical trials in genetic diseases. He graduated from Cambridge in 2009 and completed a PhD in neurogenetics at UCL in 2018. His research...2138false1228fullhttps://www.spreaker.com/episode/national-sheriff-s-association-with-katie-jackson--63400186http://www.blogtalkradio.com/help4hd/2021/07/15/national-sheriffs-association-with-katie-jacksonThu, 15 Jul 2021 20:00:00 +0000Help 4 HD Live!Katie Jackson and others from Help 4 HD recently went to the National Sheriff's Association conference to educate law enforcement about HD and JHD. 1480huntingtons disease,jhd,law enforcementfalsefullhttps://www.spreaker.com/episode/the-msh3-gene-and-hd--63400254http://www.blogtalkradio.com/help4hd/2021/07/08/the-msh3-gene-and-hdThu, 08 Jul 2021 20:00:00 +0000Help 4 HD Live!Daniel O’Reilly Ph.D. is currently a Post-Doctoral Associate at Khvorova Lab, RNA Therapeutics Institute,University of Massachusetts Medical School, Worcester, MA.  Previously a Ph.D. student in Prof. Masad Damha’s lab at McGill University in...1266genetic modifiers,huntington's disease,jhd,msh3falsefullhttps://www.spreaker.com/episode/planning-a-memorial--63400259http://www.blogtalkradio.com/help4hd/2021/07/01/planning-a-memorialThu, 01 Jul 2021 19:58:44 +0000Help 4 HD Live!Planning a Memorial Service for during a pandemic1716false1221fullhttps://www.spreaker.com/episode/dystonia-with-dr-walker--63400255http://www.blogtalkradio.com/help4hd/2021/06/24/dystonia-with-dr-walkerThu, 24 Jun 2021 20:00:00 +0000Help 4 HD Live!Francis O. Walker, MD, Professor of Neurology and Director of the Movement Disorder Clinic at Wake Forest University, has had significant involvement in clinical care and research in Huntington’s Disease for over 30 years. Following residency training...1400dystonia,huntingtons disease,jhd,juvenile huntington's disease,neurologic disordersfalse1219fullhttps://www.spreaker.com/episode/the-new-normal--63400266http://www.blogtalkradio.com/help4hd/2021/06/16/the-new-normalWed, 16 Jun 2021 20:00:00 +0000Help 4 HD Live!Samantha Griffin is a member of the HD community. She was a caregiver for her mom since the age of 15.1776falsefullhttps://www.spreaker.com/episode/diagnosing-hd--63400244http://www.blogtalkradio.com/help4hd/2021/06/11/diagnosing-hdFri, 11 Jun 2021 16:02:55 +0000Help 4 HD Live!Dr. Hugh Rickards and I delve into the topic of diagnosing HD and what it means.  "People with HD may consult with a psychiatrist, a neurologist and a psychologist for their diverse symptoms, but what they really need, says Hugh Rickards, FRCPsych,...1494curehd,huntington's disease,neuropsychiatryfalse1216fullhttps://www.spreaker.com/episode/hd-parity-act--63400283http://www.blogtalkradio.com/help4hd/2021/06/03/hd-parity-actThu, 03 Jun 2021 20:00:00 +0000Help 4 HD Live!For more information on how you can get involved, please visit www.hdsa.org/takeaction1139falsefullhttps://www.spreaker.com/episode/next-generation-of-hd-warriors--63400247http://www.blogtalkradio.com/help4hd/2021/05/27/next-generation-of-hd-warriorsThu, 27 May 2021 20:00:00 +0000Help 4 HD Live!Next Generation of HD Warriors1134falsefullhttps://www.spreaker.com/episode/heated-task-force--63400272http://www.blogtalkradio.com/help4hd/2021/05/20/heated-task-forceThu, 20 May 2021 20:00:00 +0000Help 4 HD Live!Professor Hugh Rickards is a self-avowed "HD-nerd".  He loves all things HD and has been running a service for people with HD in Birmingham, UK since 1997.  He's particularly interested in how people with HD view the world.  He founded the HEATED...2794curehd,ehdn,huntington's diseasefalsefullhttps://www.spreaker.com/episode/family-matters--63400261http://www.blogtalkradio.com/help4hd/2021/05/13/family-mattersThu, 13 May 2021 14:08:20 +0000Help 4 HD Live!Ashley Clarke's bio: I am 28 years old and Huntington's first entered my life when i was around 14 years old, with the positive diagnosis of my dad. From the age of 17, i cared for my dad alongside my brother, attended school/ university, worked...994curehd,curejhd,hdawarenessmonth,hdfamilymatters,hdstrongfalse1210fullhttps://www.spreaker.com/episode/hd-awareness-month-2021-kickoff--63400260http://www.blogtalkradio.com/help4hd/2021/05/06/hd-awareness-month-2021-kickoffThu, 06 May 2021 20:30:00 +0000Help 4 HD Live!HD Awareness Month 2021 Kickoff1627curehd,hdawarenessmonth,hdcanttameme,hdstrongfalse1209fullhttps://www.spreaker.com/episode/sex-differences-in-huntington-s-disease--63400253http://www.blogtalkradio.com/help4hd/2021/04/28/sex-differences-in-huntingtons-diseaseWed, 28 Apr 2021 20:00:00 +0000Help 4 HD Live!We talk with Dr. Natalia Rocha about research she's been working on, specifically "Sex Differences in Huntington's Disease: Evaluating the Enroll‐HD Database" Dr. Rocha joined The University of Texas Health Science Center at Houston as a Postdoctoral...1413curehd,hd research,huntington's diseasefalsefullhttps://www.spreaker.com/episode/hd-reach-pathway-program--63400216http://www.blogtalkradio.com/help4hd/2021/04/21/hd-reach-pathway-programWed, 21 Apr 2021 20:00:00 +0000Help 4 HD Live!For more information about the Pathway Program, please visit: https://www.hdreach.org/1990falsefullhttps://www.spreaker.com/episode/advance-care-planning--63400217http://www.blogtalkradio.com/help4hd/2021/04/16/advance-care-planningFri, 16 Apr 2021 15:00:00 +0000Help 4 HD Live!Ben joined NHPCO in October 2020, bringing 30 years of leadership experience in educational, healthcare, and social service settings. Prior to joining the NHPCO senior leadership team, Ben was with Hospice of the Chesapeake where he served as...1237false1206fullhttps://www.spreaker.com/episode/change-hd--63400282http://www.blogtalkradio.com/help4hd/2021/04/07/change-hdWed, 07 Apr 2021 20:00:00 +0000Help 4 HD Live!If you are interested in the ChANGE HD study, you can find out more at our website: www.changehd.org or come see us on Facebook: @ChangeHDresearch You can also call our toll-free number: 1-866-514-0858 or send us an e-mail at: change-hd@uiowa.edu  1696changehd,curehd,help4hd,huntingtonsdisease,researchforhdfalsefullhttps://www.spreaker.com/episode/grief-the-stop-of-a-clinical-trial-is-a-loss--63400264http://www.blogtalkradio.com/help4hd/2021/03/30/griefthe-stop-of-a-clinical-trial-is-a-lossTue, 30 Mar 2021 23:00:00 +0000Help 4 HD Live!Tune in to hear Katie Jackson, Katrina Hamel, and Lauren Holder talk about the news that came out of Genentech/Roche.1310clinicaltrials,hd,help4hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/adira-foundation--63400196http://www.blogtalkradio.com/help4hd/2021/03/17/adira-foundationWed, 17 Mar 2021 20:00:00 +0000Help 4 HD Live!For more information about Adira Foundation, please visit https://adirafoundation.org/about/letter-from-ceo/2211falsefullhttps://www.spreaker.com/episode/upcoming-virtual-hd-events--63400214http://www.blogtalkradio.com/help4hd/2021/03/10/upcoming-virtual-hd-eventsWed, 10 Mar 2021 21:00:00 +0000Help 4 HD Live!TODAY (3/10) is the LAST DAY to register for HIPE. You can register at this link: https://www.help4hd.org/events-1/help-4-hd-hipe-virtual-myth-busters/form HDYO's virtual event for young adults is March 13th and 14th. You can register for this event...1330falsefullhttps://www.spreaker.com/episode/show-your-stripes--63400267http://www.blogtalkradio.com/help4hd/2021/03/03/show-your-stripesWed, 03 Mar 2021 20:42:15 +0000Help 4 HD Live!Show Your Stripes for Rare Disease Day and all year long! Visit https://www.rarediseaseday.org for more information on Rare Disease Day Great resource for rare diseases: https://rarediseases.info.nih.gov/  1118curehd,curejhd,rarediseaseday2021,rarediseases,showyourstripesfalse1201fullhttps://www.spreaker.com/episode/tracing-your-hd-ancestry--63400268http://www.blogtalkradio.com/help4hd/2021/02/25/tracing-your-hd-ancestryThu, 25 Feb 2021 20:00:00 +0000Help 4 HD Live!Tracing your HD Ancestry2189false1200fullhttps://www.spreaker.com/episode/sharing-about-caring-with-carlos--63400273http://www.blogtalkradio.com/help4hd/2021/02/17/sharing-about-caring-with-carlosWed, 17 Feb 2021 21:00:00 +0000Help 4 HD Live!Carlos Briceño has started a new podcast that focuses on the caregiver journey and having a healthy emotional outlet¨ through creativity. This includes original poems, music and more. You can learn more about the podcast and submit content...1330falsefullhttps://www.spreaker.com/episode/kinect-hd-update--63400276http://www.blogtalkradio.com/help4hd/2021/02/10/kinect-hd-updateWed, 10 Feb 2021 21:00:00 +0000Help 4 HD Live!Let's talk about Kinect-HD trial with Dr. Erin Furr-Stimming and Dr. Dan Claasen1346falsefullhttps://www.spreaker.com/episode/hd-mythbusters-treatments-for-hd--63400285http://www.blogtalkradio.com/help4hd/2021/01/27/hd-mythbusters--treatments-for-hdWed, 27 Jan 2021 21:00:00 +0000Help 4 HD Live!Dr. Tamara Maiuri works as a Research Associate in Dr. Ray Truant’s lab at McMaster University in Hamilton, Canada, where her research is focused on the role of the huntingtin protein in DNA repair. Tam is also an active member of the HD community who...1793hd mythbusters,huntington's disease,treatments for hdfalsefullhttps://www.spreaker.com/episode/a-covid-story-with-the-sweets--63400288http://www.blogtalkradio.com/help4hd/2021/01/27/a-covid-story-with-the-sweetsWed, 27 Jan 2021 18:00:00 +0000Help 4 HD Live!Tune in to hear about Nancy Sweets horrible situation with a rehab facility that was supposed to be caring for her son living with HD and tested positive for COVID.1594false1196fullhttps://www.spreaker.com/episode/hd-mythbusters-passing-on-hd--63400281http://www.blogtalkradio.com/help4hd/2021/01/20/hd-mythbusters--passing-on-hdWed, 20 Jan 2021 21:00:00 +0000Help 4 HD Live!HD Mythbusters - Passing on HD1486falsefullhttps://www.spreaker.com/episode/hd-mythbusters-stages-of-hd--63400291http://www.blogtalkradio.com/help4hd/2021/01/13/hd-mythbusters--stages-of-hdWed, 13 Jan 2021 21:30:00 +0000Help 4 HD Live!Katie Jackson and Dr. Sam Frank talk about the stages of Huntington's Disease.1531false1194fullhttps://www.spreaker.com/episode/hd-mythbusters-cag-in-hd--63400269http://www.blogtalkradio.com/help4hd/2021/01/06/hd-mythbusters--cag-in-hdWed, 06 Jan 2021 21:00:00 +0000Help 4 HD Live!First episode of the "HD Mythbusters" series with Dr. Thomas Bird. We discuss "CAG" in HD.2670hd mythbusters,help4hd,huntington's diseasefalsefullhttps://www.spreaker.com/episode/physical-therapy-in-hd--63400287http://www.blogtalkradio.com/help4hd/2020/12/23/physical-therapy-in-hdWed, 23 Dec 2020 16:04:30 +0000Help 4 HD Live!Physical therapy in HD1439false1190fullhttps://www.spreaker.com/episode/loqus23--63400222http://www.blogtalkradio.com/help4hd/2020/12/17/loqus23Thu, 17 Dec 2020 15:03:39 +0000Help 4 HD Live!Dr. David Reynolds and Dr. Caroline Benn of LoQus23 share what they are doing in regards to HD research. This show was done on Zoom. You can see the recording soon.2465huntington's disease,loqus23false1188fullhttps://www.spreaker.com/episode/surviving-the-holidays-2020-edition--63400295http://www.blogtalkradio.com/help4hd/2020/12/12/surviving-the-holidays-2020-editionSat, 12 Dec 2020 20:17:24 +0000Help 4 HD Live!Marie Clay and Lauren Holder talk about the holidays with a pandemic going on.2255false1187fullhttps://www.spreaker.com/episode/finding-nana-s-smile--63400265http://www.blogtalkradio.com/help4hd/2020/12/02/finding-nanas-smileWed, 02 Dec 2020 15:00:00 +0000Help 4 HD Live!To order Jimmy's book, please visit lulu.com1401children's book,huntington's disease,neurological disorders,neurologic diseases,parkinson's diseasefalse1185fullhttps://www.spreaker.com/episode/proof-hd--63400223http://www.blogtalkradio.com/help4hd/2020/11/27/proof-hdFri, 27 Nov 2020 15:00:00 +0000Help 4 HD Live!Please visit www.huntingtonstudygroup.org or www.clinicaltrials.gov for study locations1776huntington's disease,researchfalse1184fullhttps://www.spreaker.com/episode/telehealth--63400274http://www.blogtalkradio.com/help4hd/2020/11/21/telehealthSat, 21 Nov 2020 20:51:59 +0000Help 4 HD Live!Telehealth763false1183fullhttps://www.spreaker.com/episode/bj-viau-on-genetic-testing--63400284http://www.blogtalkradio.com/help4hd/2020/11/11/bj-viau-on-genetic-testingWed, 11 Nov 2020 21:00:00 +0000Help 4 HD Live!BJ Viau (view) has been a Huntington's Disease advocate for the past 20 years in multiple roles.  After his mom was diagnosed in the mid-90s his family hosted a  basketball fundraising event for 15 years that raised funds supporting the Huntington's...1931cure hd,genetic testing,huntington's disease,jhdfalsefullhttps://www.spreaker.com/episode/the-holidays-and-covid-19--63400227http://www.blogtalkradio.com/help4hd/2020/11/04/the-holidays-and-covid-19Wed, 04 Nov 2020 21:00:00 +0000Help 4 HD Live!We talk with Lauren Yaeger about how COVID-19 is impacting the holidays811falsefullhttps://www.spreaker.com/episode/the-gut-and-hd--63400262http://www.blogtalkradio.com/help4hd/2020/10/28/the-gut-and-hdWed, 28 Oct 2020 22:06:06 +0000Help 4 HD Live!Dr. Julie Stout and Cory Wasser join us from Australia.1541false1180fullhttps://www.spreaker.com/episode/home-health-care--63400286http://www.blogtalkradio.com/help4hd/2020/10/21/home-health-careWed, 21 Oct 2020 20:00:00 +0000Help 4 HD Live!Katrina Hamel and Lauren talk about home health care1842falsefullhttps://www.spreaker.com/episode/let-s-talk-about-signal--63400290http://www.blogtalkradio.com/help4hd/2020/10/14/lets-talk-about-signalWed, 14 Oct 2020 19:30:00 +0000Help 4 HD Live!Let's Talk about SIGNAL with Christie and Chad.1322false1178fullhttps://www.spreaker.com/episode/campaign-for-my-brain--63400294http://www.blogtalkradio.com/help4hd/2020/10/07/campaign-for-my-brainWed, 07 Oct 2020 20:00:00 +0000Help 4 HD Live!For more info, visit http://campaignformybrain.co.uk You can purchase "Harry Needs a Hug" here: https://www.amazon.com/Harry-needs-hug-children-Huntingtons/dp/B08FNJK2BN  1027falsefullhttps://www.spreaker.com/episode/help-4-hd-symposium--63400289http://www.blogtalkradio.com/help4hd/2020/09/30/help-4-hd-symposiumWed, 30 Sep 2020 20:00:00 +0000Help 4 HD Live!Help 4 HD Symposium1105falsefullhttps://www.spreaker.com/episode/huntington-s-disease-alters-human-development-in-the-fetal-stage--63400258http://www.blogtalkradio.com/help4hd/2020/09/23/huntingtons-disease-alters-human-development-in-the-fetal-stageWed, 23 Sep 2020 20:00:00 +0000Help 4 HD Live!Huntington's Disease Alters Human Development in the Fetal Stage1292false1170fullhttps://www.spreaker.com/episode/durable-medical-equipment-and-hd--63400298http://www.blogtalkradio.com/help4hd/2020/09/17/durable-medical-equipment-and-hd-1Thu, 17 Sep 2020 20:01:23 +0000Help 4 HD Live!To see the Facebook Live and see the resources I posted: https://www.facebook.com/585948945/videos/10157636988738946 For an amazing resource dealing with assistance for durable medical...3551false1174fullhttps://www.spreaker.com/episode/jhd-tips-and-tricks-with-michele--63400296http://www.blogtalkradio.com/help4hd/2020/09/09/jhd-tips-and-tricks-with-micheleWed, 09 Sep 2020 20:00:00 +0000Help 4 HD Live!JHD Tips and Tricks with Michelle1496false1169fullhttps://www.spreaker.com/episode/neubase-therapeutics--63400275http://www.blogtalkradio.com/help4hd/2020/09/02/neubase-therapeuticsWed, 02 Sep 2020 20:00:00 +0000Help 4 HD Live!Dr. Stephan is an industry veteran who is considered one of the fathers of the field of precision medicine, having trained with the leadership of the Human Genome Project at the NIH and then going on to lead discovery research at the Translational...1279false1168fullhttps://www.spreaker.com/episode/inadequate-care-in-hd--63400279http://www.blogtalkradio.com/help4hd/2020/08/26/inadequate-care-in-hdWed, 26 Aug 2020 20:00:00 +0000Help 4 HD Live!Dr. Ratna and Lauren Holder talk about Dr. Ratna's research and inadequate care in the HD community in India "I am a doctor, pursuing clinical care and research in HD for the past 5 years. I met approximately 150 HD patients and about 50 families are...795false1163fullhttps://www.spreaker.com/episode/trey-gray--63400292http://www.blogtalkradio.com/help4hd/2020/08/18/trey-grayTue, 18 Aug 2020 16:00:00 +0000Help 4 HD Live!Please visit https://www.thetreygrayfoundation.org/about-trey for more information!1772falsefullhttps://www.spreaker.com/episode/anticipatory-grief--63400297http://www.blogtalkradio.com/help4hd/2020/08/12/anticipatory-griefWed, 12 Aug 2020 20:00:00 +0000Help 4 HD Live!Anticipatory Grief with Lauren and Sharon1831false1161fullhttps://www.spreaker.com/episode/anne-elizabeth-reair--63400293http://www.blogtalkradio.com/help4hd/2020/08/05/anne-elizabeth-reairWed, 05 Aug 2020 20:00:00 +0000Help 4 HD Live!Anne-Elizabeth shares her HD story1116falsefullhttps://www.spreaker.com/episode/azevan-needs-our-help--63401047http://www.blogtalkradio.com/help4hd/2020/07/29/azevan-needs-our-helpWed, 29 Jul 2020 20:00:00 +0000Help 4 HD Live!HD CAREGIVERS, WE NEED YOUR HELP! To prepare for a clinical trial of a drug that may reduce the disruptive aggressive behavior that some persons or patients with HD suffer from, we would like to interview about 25 caregivers who are parents,...1111falsefullhttps://www.spreaker.com/episode/triplet-therapeutics-part-2--63401098http://www.blogtalkradio.com/help4hd/2020/07/22/triplet-therapeutics-part-2Wed, 22 Jul 2020 20:00:00 +0000Help 4 HD Live!Irina has worked in drug development for over 18 years, with a focus on translational medicine and early development in neuroscience, but also ophthalmology and immunology. She has gained experience with development of small molecules, biologics as...1714falsefullhttps://www.spreaker.com/episode/triplet-therapeutics-part-1--63401071http://www.blogtalkradio.com/help4hd/2020/07/15/triplet-therapeutics-part-1Wed, 15 Jul 2020 20:00:00 +0000Help 4 HD Live!Nessan Bermingham is founder and CEO of Triplet Therapeutics, Inc. He is a serial biotech entrepreneur and investor who has founded several companies including Triplet, Korro Bio and Intellia Therapeutics, “one of the top 10 biotech start-ups in 2014”...1403falsefullhttps://www.spreaker.com/episode/kirsten-and-covid19--63401049http://www.blogtalkradio.com/help4hd/2020/07/08/kirsten-and-covid19Wed, 08 Jul 2020 20:00:00 +0000Help 4 HD Live!Kirsten and COVID19896falsefullhttps://www.spreaker.com/episode/update-from-uniqure--63401118http://www.blogtalkradio.com/help4hd/2020/07/01/update-from-uniqureWed, 01 Jul 2020 20:00:00 +0000Help 4 HD Live!Matt Kapusta from UniQure joins us to provide an update.1522clinicaltrials,curehd,curejhd,hdresearch,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/kay-and-taylor--63401053http://www.blogtalkradio.com/help4hd/2020/06/24/kay-and-taylorWed, 24 Jun 2020 20:00:00 +0000Help 4 HD Live!Join us as we talk with Kay and her best friend Taylor who has HD1117false1154fullhttps://www.spreaker.com/episode/kary-portillo--63401058http://www.blogtalkradio.com/help4hd/2020/06/18/kary-portilloThu, 18 Jun 2020 17:00:00 +0000Help 4 HD Live!Huntington PARAGUAY1390false1153fullhttps://www.spreaker.com/episode/anne-elizabeth--63401048http://www.blogtalkradio.com/help4hd/2020/06/10/anne-elizabethWed, 10 Jun 2020 20:00:00 +0000Help 4 HD Live!Anne-Elizabeth1116false1150fullhttps://www.spreaker.com/episode/ashley-fajardo--63401149http://www.blogtalkradio.com/help4hd/2020/06/04/ashley-fajardoThu, 04 Jun 2020 20:00:00 +0000Help 4 HD Live!Ashley Fajardo1521false1149fullhttps://www.spreaker.com/episode/it-s-not-always-hd--63401075http://www.blogtalkradio.com/help4hd/2020/05/27/its-not-always-hdWed, 27 May 2020 20:00:00 +0000Help 4 HD Live!It's not always HD1968false1147fullhttps://www.spreaker.com/episode/the-importance-of-insurance--63401045http://www.blogtalkradio.com/help4hd/2020/05/20/the-importance-of-insuranceWed, 20 May 2020 20:00:00 +0000Help 4 HD Live!Katie Simos is a Regional Sales Manager with AFLAC and longtime friend of Lauren Holder.  *Please note: This information is for educational purposes only, not to sell you anything. However, if you would like to get more information about how AFLAC...839huntingtonsdisease,jhdfalsefullhttps://www.spreaker.com/episode/my-wife-s-caregiver--63401165http://www.blogtalkradio.com/help4hd/2020/05/13/my-wifes-caregiverWed, 13 May 2020 20:00:00 +0000Help 4 HD Live!Paul talks to us about being his wife's caregiver2901caregiver,curehd,huntingtonsdisease,jhd,juvenilehdfalse1145fullhttps://www.spreaker.com/episode/vaccinex--63401144http://www.blogtalkradio.com/help4hd/2020/05/06/vaccinexWed, 06 May 2020 20:00:00 +0000Help 4 HD Live!Maurice Zauderer, Ph.D. has served as Vaccinex’s President and Chief Executive Officer and a member of the board of directors since the company’s inception in April 2001. Prior to founding Vaccinex, Dr. Zauderer was an Associate Professor at the...1917curehd,curejhd,huntingtonsdisease,vaccinexfalsefullhttps://www.spreaker.com/episode/dysphagia--63401091http://www.blogtalkradio.com/help4hd/2020/04/29/dysphagiaWed, 29 Apr 2020 16:30:00 +0000Help 4 HD Live!For more information, please visit https://www.asha.org/1592false1143fullhttps://www.spreaker.com/episode/becky-crumpler--63401061http://www.blogtalkradio.com/help4hd/2020/04/22/becky-crumplerWed, 22 Apr 2020 20:00:00 +0000Help 4 HD Live!Becky Crumpler talks about her daughter being in a facility during COVID-191124covid19,curehd,curejhd,huntingtonsdisease,juvenilehdfalsefullhttps://www.spreaker.com/episode/er-visits-during-covid-19--63401050http://www.blogtalkradio.com/help4hd/2020/04/15/er-visits-during-covid-19Wed, 15 Apr 2020 20:00:00 +0000Help 4 HD Live!ER Visits during COVID-191350covid19,hd,huntingtonsdisease,jhdfalsefullhttps://www.spreaker.com/episode/covid-19-and-hd--63401237http://www.blogtalkradio.com/help4hd/2020/04/08/covid-19-and-hdWed, 08 Apr 2020 20:00:00 +0000Help 4 HD Live!Because we are all concerned about COVID-19 right now, we are re-airing our show with Dr. Wheelock and Lisa Mooney. Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic...2594covid19,covid-19,huntingtonsdisease,jhd,juvenilehdfalsefullhttps://www.spreaker.com/episode/lauren-holder-and-covid19--63401087http://www.blogtalkradio.com/help4hd/2020/04/01/lauren-holder-and-covid19Wed, 01 Apr 2020 20:00:00 +0000Help 4 HD Live!Lauren Holder and COVID191578falsefullhttps://www.spreaker.com/episode/wave-life-sciences--63401062http://www.blogtalkradio.com/help4hd/2020/03/25/wave-life-sciencesWed, 25 Mar 2020 20:00:00 +0000Help 4 HD Live!Among Dr. Kenechi Ejebe’s responsibilities at Wave is to serve as the clinical lead of the Neurology (CNS) programs which include Huntington’s disease, amyotrophic lateral sclerosis, and frontotemporal dementia. Dr. Ejebe has more than 10 years of...1250curehd,curejhd,hdresearch,huntingtonsdisease,wavelifesciencesfalsefullhttps://www.spreaker.com/episode/dr-wheelock-and-lisa-mooney-talk-risk-factor-and-more-with-covid-19-and-hd--63401201http://www.blogtalkradio.com/help4hd/2020/03/19/dr-wheelock-and-lisa-mooney-talk-risk-factor-and-more-with-covid-19-and-hdThu, 19 Mar 2020 22:00:00 +0000Help 4 HD Live!Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic at UC Davis is to provide expert and compassionate care to people and families affected by HD, to provide outreach...2594false1136fullhttps://www.spreaker.com/episode/terry-tempkin-np-c-msn-talks-about-hd-during-these-hard-times-with-covid-19--63401150http://www.blogtalkradio.com/help4hd/2020/03/18/terry-tempkinnp-c-msn-talks-about-hd-during-these-hard-times-with-covid-19-1Wed, 18 Mar 2020 20:08:41 +0000Help 4 HD Live!Terry Tempkin, NP-C, MSN, is an Adult Nurse Practitioner who spent 18 years working with Huntington’s disease families at the University of California Davis Health System. During her time there, she worked with the HD team to build one of the largest...2660false1135fullhttps://www.spreaker.com/episode/european-huntington-association--63401064http://www.blogtalkradio.com/help4hd/2020/03/12/european-huntington-associationThu, 12 Mar 2020 20:00:00 +0000Help 4 HD Live!Please visit http://eurohuntington.org/ for more information.1260curehd,curejhd,huntingtonsdisease,strongertogetherfalsefullhttps://www.spreaker.com/episode/kinect-hd--63401103http://www.blogtalkradio.com/help4hd/2020/03/04/kinect-hdWed, 04 Mar 2020 21:00:00 +0000Help 4 HD Live!For more information about KINECT-HD, please visit the HSG website at: https://huntingtonstudygroup.org/current-clinical-trials/kinect-hd/1709curehd,curejhd,hsg,huntingtonsdisease,kinect-hdfalsefullhttps://www.spreaker.com/episode/what-makes-me-rare--63401044http://www.blogtalkradio.com/help4hd/2020/02/26/what-makes-me-rareWed, 26 Feb 2020 21:00:00 +0000Help 4 HD Live!https://www.rarediseaseday.org/ https://huntingtonsdiseasenews.com/2020/02/20/rare-disease-day-2020-recognized-around-the-world/ #whatmakesmerareHD570curehd,curejhd,huntington's disease,rare disease,whatmakesmerarehdfalse1131fullhttps://www.spreaker.com/episode/hdyo-genetic-testing--63401057http://www.blogtalkradio.com/help4hd/2020/02/19/hdyo-genetic-testingWed, 19 Feb 2020 21:00:00 +0000Help 4 HD Live!HDYO has a new Genetic Testing program! Please visit their website for more information: www.hdyo.org Matt Ellison's bio: "Hi! My role at HDYO includes developing all the educational project work we do for our website, including video projects,...939falsefullhttps://www.spreaker.com/episode/gene-veritas-rerun--63401109http://www.blogtalkradio.com/help4hd/2020/02/12/gene-veritas-rerunWed, 12 Feb 2020 21:00:00 +0000Help 4 HD Live!Gene Veritas Rerun 3027falsefullhttps://www.spreaker.com/episode/patty-and-bryan--63401142http://www.blogtalkradio.com/help4hd/2020/02/05/patty-and-bryanWed, 05 Feb 2020 21:00:00 +0000Help 4 HD Live!Patty Romero-Mabry shares her HD experience as a caregiver for her husband and her son with JHD. For information on how you can help Patty and Bryan, please contact Lauren Holder at lauren@help4hd.org2404falsefullhttps://www.spreaker.com/episode/melissa-dilley-s-hd-journey-part-2--63401052http://www.blogtalkradio.com/help4hd/2020/01/29/melissa-dilleys-hd-journey-part-2Wed, 29 Jan 2020 21:00:00 +0000Help 4 HD Live!Melissa (Dilley) Ryant has been a member of the Huntington's Disease Society of America's (HDSA) National Youth Alliance (NYA) since attending her first convention in 2013. From that point, Melissa volunteered to serve on the NYA board for 6 years....863falsefullhttps://www.spreaker.com/episode/melissa-dilley-s-hd-journey--63401113http://www.blogtalkradio.com/help4hd/2020/01/22/melissa-dilleys-hd-journeyWed, 22 Jan 2020 21:00:00 +0000Help 4 HD Live!Melissa (Dilley) Ryant has been a member of the Huntington's Disease Society of America's (HDSA) National Youth Alliance (NYA) since attending her first convention in 2013. From that point, Melissa volunteered to serve on the NYA board for 6 years....1893curehd,huntingtonsdisease,jhd,juvenilehdfalse1126fullhttps://www.spreaker.com/episode/felodipine-and-hd--63401110http://www.blogtalkradio.com/help4hd/2020/01/15/felodipine-and-hdWed, 15 Jan 2020 21:00:00 +0000Help 4 HD Live!David Rubinsztein is Professor of Molecular Neurogenetics and a UK Dementia Research Institute Professor at the University of Cambridge. He is Deputy Director of the Cambridge Institute for Medical Research. Dr. Rubinsztein earned his MB ChB,...1711curehd,curejhd,huntingtonsdisease,jhdfalse1124fullhttps://www.spreaker.com/episode/help-4-hd-2019-recap--63401101http://www.blogtalkradio.com/help4hd/2020/01/08/help-4-hd-2019-recapWed, 08 Jan 2020 18:30:00 +0000Help 4 HD Live!Join us as Katie Jackson and Katrina Hamel give a recap of 20192165false1123fullhttps://www.spreaker.com/episode/coming-down-from-the-holiday-season-rerun--63401124http://www.blogtalkradio.com/help4hd/2020/01/01/coming-down-from-the-holiday-season--rerunWed, 01 Jan 2020 21:00:00 +0000Help 4 HD Live!Coming Down From The Holiday Season - Rerun2730curehd,curejhd,holidaysfalsefullhttps://www.spreaker.com/episode/surviving-the-holidays-rerun--63401092http://www.blogtalkradio.com/help4hd/2019/12/25/surviving-the-holidays-rerunWed, 25 Dec 2019 21:00:00 +0000Help 4 HD Live!Surviving the Holidays Rerun2128curehd,curejhd,survivingtheholidaysfalsefullhttps://www.spreaker.com/episode/mc10-and-gait-impairment--63401089http://www.blogtalkradio.com/help4hd/2019/12/18/mc10-and-gait-impairmentWed, 18 Dec 2019 21:00:00 +0000Help 4 HD Live!Arthur Combs, MD is a physician executive and serial entrepreneur. After more than 20 years in clinical practice Art has spent the last 20 years bringing new medical technologies to market, as an officer of 5 successful start-up companies and a...1856curehd,gait impairment,hd,huntington's disease,jhdfalse1120fullhttps://www.spreaker.com/episode/dr-david-baranger--63401151http://www.blogtalkradio.com/help4hd/2019/12/11/dr-david-barangerWed, 11 Dec 2019 21:00:00 +0000Help 4 HD Live!Dr. Baranger is a Postdoctoral Scholar with Dr. Erika Forbes, at the University of Pittsburgh. He studies how risk factors for psychopathology - particularly early life stress and genetic risk - influence brain development. His work has so far focused...2052curehd,help4hd,huntingtonsdisease,huntington's disease,jhdfalse1119fullhttps://www.spreaker.com/episode/emerald-health-pharmaceuticals--63401051http://www.blogtalkradio.com/help4hd/2019/12/04/emerald-health-pharmaceuticalsWed, 04 Dec 2019 21:00:00 +0000Help 4 HD Live!Dr. Jim DeMesa is the Chief Executive Officer of Emerald Health Pharmaceuticals (“EHP”). Dr. DeMesa has 30 years of experience in biotechnology and pharmaceutical leadership, product development and clinical and regulatory management. He is a former...1160hd,hdresearch,huntington's disease,jhd,juvenile hdfalsefullhttps://www.spreaker.com/episode/change-hd--63401120http://www.blogtalkradio.com/help4hd/2019/11/27/change-hdWed, 27 Nov 2019 21:00:00 +0000Help 4 HD Live!Sonia Slevinski, MS, NCC, is a research manager and has been with the Peg Nopoulos Laboratory since 2008. Slevinski studied sociology and counseling psychology and is a National Certified Counselor (NCC). She worked in community and inpatient mental...1667hd,huntington's disease,jhd,juvenilehdfalsefullhttps://www.spreaker.com/episode/dr-julie-stout--63401085http://www.blogtalkradio.com/help4hd/2019/11/20/dr-julie-stoutWed, 20 Nov 2019 21:00:00 +0000Help 4 HD Live!Julie Stout is Professor in the School of Psychological Sciences at Monash University. She leads a team of post-docs, students, and IT specialists, employing techniques from neuropsychology and cognitive neuroscience to characterise the effects of...1880huntington's disease,juvenile hdfalse1116fullhttps://www.spreaker.com/episode/when-does-it-begin--63401215http://www.blogtalkradio.com/help4hd/2019/11/13/when-does-it-beginWed, 13 Nov 2019 21:00:00 +0000Help 4 HD Live!Dr. Ellen van der Plas is an assistant professor at the University of Iowa Hospital & Clinics. Ellen received her Bachelor’s and Master’s degree in Developmental Psychology at the University of Leiden in the Netherlands. She moved to the US in...1811huntington's disease,juvenile hdfalse1114fullhttps://www.spreaker.com/episode/zinc-fingers--63401157http://www.blogtalkradio.com/help4hd/2019/11/06/zinc-fingersWed, 06 Nov 2019 21:00:00 +0000Help 4 HD Live!Ed is a consultant neurologist at the National Hospital for Neurology and Neurosurgery and Associate Director of the UCL Huntington’s Disease Centre, where his research team is focused on accelerating drug development through discovering new...1506hd buzz,huntington's disease,researchfalsefullhttps://www.spreaker.com/episode/guilt-and-grief-in-hd--63401143http://www.blogtalkradio.com/help4hd/2019/10/30/guilt-and-grief-in-hdWed, 30 Oct 2019 20:30:00 +0000Help 4 HD Live!Katie Jackson and Katrina Hamel talk about guilt and grief2288community,guilt,guilt and grief,huntington's disease,juvenile hdfalsefullhttps://www.spreaker.com/episode/falls-prevention--63401188http://www.blogtalkradio.com/help4hd/2019/10/23/falls-preventionWed, 23 Oct 2019 20:00:00 +0000Help 4 HD Live!Some resources that are available:  https://www.ncoa.org/healthy-aging/falls-prevention/ http://stopfalls.org/ https://www.help4hd.org/resources2170fall prevention,huntington's disease,juvenile hdfalsefullhttps://www.spreaker.com/episode/always-looking-forward--63401125http://www.blogtalkradio.com/help4hd/2019/10/16/always-looking-forwardWed, 16 Oct 2019 20:00:00 +0000Help 4 HD Live!Alexus writes the column Always Looking Forward at Huntington's Disease News. She is 22 and was diagnosed as a Huntington's Gene carrier earlier this year. Additionally, she works in healthcare consulting, which she started after graduating undergrad...1644blog,huntington's disease,huntington's disease news,juvenile hdfalsefullhttps://www.spreaker.com/episode/kate-miner-and-hd--63401080http://www.blogtalkradio.com/help4hd/2019/10/09/kate-miner-and-hdWed, 09 Oct 2019 20:00:00 +0000Help 4 HD Live!Re-run of our show with Kate Miner1699falsefullhttps://www.spreaker.com/episode/american-foundation-for-suicide-prevention--63401131http://www.blogtalkradio.com/help4hd/2019/10/02/american-foundation-for-suicide-preventionWed, 02 Oct 2019 20:00:00 +0000Help 4 HD Live!As a psychologist with experience that spans clinical, educational, and professional settings, Dr. Marshall has been engaged in local and national suicide prevention and postvention work for more than 15 years. Since joining AFSP in 2014, Dr. Marshall...2097afsp,cure hd,huntington's disease,juvenile hd,suicide preventionfalse1106fullhttps://www.spreaker.com/episode/peter-holmans-research--63401056http://www.blogtalkradio.com/help4hd/2019/09/25/peter-holmans-researchWed, 25 Sep 2019 20:00:00 +0000Help 4 HD Live!Dr. Holmans is head of the Biostatistics and Bioinformatics Unit at the MRC Centre for Neuropsychiatric Genetics and Genomics at Cardiff University, and has over 25 years' experience in the statistical analysis of complex genetic traits, both in data...1339falsefullhttps://www.spreaker.com/episode/hndc-in-wichita--63401133http://www.blogtalkradio.com/help4hd/2019/09/18/hndc-in-wichitaWed, 18 Sep 2019 20:00:00 +0000Help 4 HD Live!Norberta Robertson, aka “Birdie”, began her involvement with HNDC many years ago as an event volunteer. Her interest in Huntington’s disease quickly moved forward in 2012 when she joined the HD Clinic Medical Team as a volunteer Social Worker for the...1238huntington's disease,juvenile hdfalsefullhttps://www.spreaker.com/episode/national-suicide-prevention-week--63401088http://www.blogtalkradio.com/help4hd/2019/09/11/national-suicide-prevention-weekWed, 11 Sep 2019 17:30:00 +0000Help 4 HD Live!National Suicide Prevention Week: https://afsp.org/campaigns/national-suicide-prevention-week-2019/ Resources: https://afsp.org/find-support/resources/ Suicide Prevention Awareness...1860huntington's disease,juvenile huntington's disease,national suicide prevention we,suicide prevention,suicide prevention awareness mfalse1103fullhttps://www.spreaker.com/episode/hd-reach-pathways-program--63401084http://www.blogtalkradio.com/help4hd/2019/09/04/hd-reach-pathways-programWed, 04 Sep 2019 20:00:00 +0000Help 4 HD Live!Debbi Fox-Davis has enjoyed a 23-year career leading and developing resources for nonprofits in North Carolina. Her career accomplishments include being the first Executive Director for Dress for Success of the Triangle; raising funding and engaging...1316hd,hd reach,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/law-enforcement-education-2--63401054http://www.blogtalkradio.com/help4hd/2019/08/28/law-enforcement-education-2-1Wed, 28 Aug 2019 20:27:53 +0000Help 4 HD Live!Law Enforcement Education 2357false1100fullhttps://www.spreaker.com/episode/law-enforcement-education--63401063http://www.blogtalkradio.com/help4hd/2019/08/28/law-enforcement-education-3Wed, 28 Aug 2019 20:10:56 +0000Help 4 HD Live!Law Enforcement Education901false199fullhttps://www.spreaker.com/episode/good-samaritan-hd-unit--63401082http://www.blogtalkradio.com/help4hd/2019/08/21/good-samaritan-hd-unitWed, 21 Aug 2019 20:00:00 +0000Help 4 HD Live!Gwen has worked at the Good Samaritan Society’s University Specialty Center for the past 39 years. She is the nurse manager of the Huntington’s Unit. Gwen has been an advocate of HD for 23 years, helping residents and their families to navigate...1504hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/our-odyssey--63401066http://www.blogtalkradio.com/help4hd/2019/08/14/our-odysseyWed, 14 Aug 2019 20:00:00 +0000Help 4 HD Live!Seth Rotberg talks about his new organization, Our Odyssey.1756huntington's disease,rare diseasesfalsefullhttps://www.spreaker.com/episode/eip-pharma--63401231http://www.blogtalkradio.com/help4hd/2019/08/07/eip-pharmaWed, 07 Aug 2019 20:00:00 +0000Help 4 HD Live!John Alam is President and CEO of EIP Pharma. Until May 2014, he was therapeutic area head for diseases of aging within Sanofi R&D. In that role he led global R&D activities at Sanofi directed at Alzheimer’s disease and Parkinson’s disease,...1559huntington's disease,researchfalse194fullhttps://www.spreaker.com/episode/uniqure--63401146http://www.blogtalkradio.com/help4hd/2019/07/31/uniqureWed, 31 Jul 2019 20:00:00 +0000Help 4 HD Live!Re-air of the UniQure show from February 20192045cure hd,cure jhd,huntington's disease,research for hd,uniqurefalsefullhttps://www.spreaker.com/episode/update-from-help-4-hd--63401046http://www.blogtalkradio.com/help4hd/2019/07/24/update-from-help-4-hdWed, 24 Jul 2019 22:30:00 +0000Help 4 HD Live!Update from Help 4 HD458false191fullhttps://www.spreaker.com/episode/factor-h--63401070http://www.blogtalkradio.com/help4hd/2019/07/17/factor-hWed, 17 Jul 2019 20:00:00 +0000Help 4 HD Live!Please join us as Ignacio talks about his organization Factor-H and how he is helping the HD community. https://factor-h.org/ To donate, please visit: https://help4hd.org/project-abrazos/ Also, for more information about "Dancing at the Vatican",...1205factor-h,hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/resources-with-jennifer-ruggiano--63401104http://www.blogtalkradio.com/help4hd/2019/07/11/resources-with-jennifer-ruggianoThu, 11 Jul 2019 20:00:00 +0000Help 4 HD Live!For more information about resources or contact information for Jennifer, please visit www.hdsa.org/epa1130hd,huntington's disease,jhd,juvenile hdfalsefullhttps://www.spreaker.com/episode/brandon-pechette--63401129http://www.blogtalkradio.com/help4hd/2019/07/03/brandon-pechetteWed, 03 Jul 2019 20:00:00 +0000Help 4 HD Live!Join us as Brandon shares his story about HD and the military1950hd,militaryfalsefullhttps://www.spreaker.com/episode/pace-hd--63401077http://www.blogtalkradio.com/help4hd/2019/06/26/pace-hdWed, 26 Jun 2019 20:00:00 +0000Help 4 HD Live!Cheney Drew is a research fellow and senior trials manager working in the Centre for Trials research at Cardiff University. She has a PhD in the neurobiology underpinning Huntington’s disease and now works as a clinical trials researcher, primarily...1292huntington's disease,researchfalsefullhttps://www.spreaker.com/episode/resources-in-ct--63401055http://www.blogtalkradio.com/help4hd/2019/06/21/resources-in-ctFri, 21 Jun 2019 19:00:00 +0000Help 4 HD Live!Debbie Pausig, LMFT, CT, is a Licensed Marriage and Family Therapist, a Certified Thanatologist, Professional Support Group Leader for HDSA CT-Chapter. Hospice Bereavement Coordinator for VNA Community Healthcare & Hospice. She is a National...847hd,huntington's disease,jhd,juvenile huntington's disease,resources for hdfalsefullhttps://www.spreaker.com/episode/rachel-reimers-ivf-pgd--63401086http://www.blogtalkradio.com/help4hd/2019/06/12/rachel-reimers-ivf-pgdWed, 12 Jun 2019 20:00:00 +0000Help 4 HD Live!Listen to Rachel Reimers share her journey with IVF-PGD1417huntington's disease,ivf,jhd,juvenile hd,pgdfalsefullhttps://www.spreaker.com/episode/dr-thomas-bird--63401128http://www.blogtalkradio.com/help4hd/2019/06/05/dr-thomas-birdWed, 05 Jun 2019 20:00:00 +0000Help 4 HD Live!Dr. Bird is a clinical neurogeneticist with interests in a wide range of hereditary disorders of the nervous system. In 1974, Dr. Thomas Bird founded the first clinic for adults with neurogenetic diseases in the United States. For more than 40 years,...1631dr. thomas bird,hd,huntington's disease,jhd,juvenile huntington's diseasefalse183fullhttps://www.spreaker.com/episode/kate-miner--63401078http://www.blogtalkradio.com/help4hd/2019/05/22/kate-minerWed, 22 May 2019 20:00:00 +0000Help 4 HD Live!Join us as we talk to Kate Miner for HD Awareness Month.1699cure hd,cure jhd,hd awareness month,kate minerfalse182fullhttps://www.spreaker.com/episode/shana-verstegen--63401111http://www.blogtalkradio.com/help4hd/2019/05/15/shana-verstegenWed, 15 May 2019 20:00:00 +0000Help 4 HD Live!Shana (Martin) Verstegen has many things to be proud of, but her work with the Huntington’s disease Society of America in honor of her mother will always top that list. Shana’s mother passed away from Huntington’s Disease in March of 2013. After...1664cure hd,cure jhd,hd awareness month,huntington's disease,juvenile huntington's diseasefalse181fullhttps://www.spreaker.com/episode/living-with-huntington-s-disease-what-i-ve-learned-as-a-caregiver--63401220http://www.blogtalkradio.com/help4hd/2019/05/08/living-with-huntingtons-disease-what-ive-learned-as-a-caregiverWed, 08 May 2019 20:00:00 +0000Help 4 HD Live!Join us as Sharon Thomason talks about her new book3615book,caregiver,hd,jhd,resourcesfalsefullhttps://www.spreaker.com/episode/gene-veritas--63401176http://www.blogtalkradio.com/help4hd/2019/05/01/gene-veritasWed, 01 May 2019 20:00:00 +0000Help 4 HD Live!Gene Veritas – whose real name is Kenneth P. Serbin – has been active in the Huntington’s disease community since his mother’s diagnosis with the disease in 1995. She died of HD in 2006 after a 20-year fight. Serbin tested positive for the HD gene in...3027gene veritas,hd,hd awareness month,huntington's disease,juvenile huntington's diseasefalse180fullhttps://www.spreaker.com/episode/phil-s-kids--63401141http://www.blogtalkradio.com/help4hd/2019/04/24/phils-kidsWed, 24 Apr 2019 20:00:00 +0000Help 4 HD Live!Phil’s Kids was set up in memory of Dr Phil, who sadly passed away from Huntington’s Disease (HD) in 2014. Whenever Dr Phil lost a patient he would immediately go and look at the new-born babies. He did this, he said, because it reminded him of the...1852cure hd,cure jhd,huntington's disease,juvenile huntington's disease,phil's kidsfalsefullhttps://www.spreaker.com/episode/dr-leslie-thompson--63401060http://www.blogtalkradio.com/help4hd/2019/04/17/dr-leslie-thompsonWed, 17 Apr 2019 20:00:00 +0000Help 4 HD Live!Dr. Leslie Thompson talks about her research833hd,huntington's disease,jhd,research,stem cellfalse176fullhttps://www.spreaker.com/episode/neuropsych-testing-in-presymptomatic--63401179http://www.blogtalkradio.com/help4hd/2019/04/10/neuropsych-testing-in-presymptomaticWed, 10 Apr 2019 20:00:00 +0000Help 4 HD Live!Peg Nopoulos, M.D. is Professor of Psychiatry, Pediatrics and Neurology. She is the DEO and Chair of the Department of Psychiatry at the University of Iowa Hospitals in Iowa City, Iowa. Dr Nopoulos is a physician-scientist. Her clinical care consists...1546hd,hd positive,huntington's disease,jhd,neuropsychiatryfalse175fullhttps://www.spreaker.com/episode/racer-john-paul-jr--63401102http://www.blogtalkradio.com/help4hd/2019/04/03/racer-john-paul-jrWed, 03 Apr 2019 20:00:00 +0000Help 4 HD Live!John Paul Jr.’s driving career began in 1979 driving Formula Fords. The following year he joined his father’s racing team as co-driver in the IMSA series. After only two years of competing, John Paul Jr. started the 1982 season with back-to-back wins...1205hd,huntington's disease,john paul jr,positive people,positivityfalsefullhttps://www.spreaker.com/episode/resources-in-arkansas--63401059http://www.blogtalkradio.com/help4hd/2019/03/27/resources-in-arkansasWed, 27 Mar 2019 20:00:00 +0000Help 4 HD Live!Tuhin Virmani received a combined M.D./Ph.D. at UT Southwestern Medical School in Dallas, Texas. His doctoral thesis explored the physiologic mechanisms of synaptic chemical neurotransmission. After neurology residency at Washington University in St....841hd,hd resources,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/dr-nancy-wexler--63401244http://www.blogtalkradio.com/help4hd/2019/03/20/dr-nancy-wexlerWed, 20 Mar 2019 20:00:00 +0000Help 4 HD Live!To view the original show page, please visit http://www.blogtalkradio.com/help4hd/2016/05/18/dr-nancy-wexler-on-help4hd-live "We are so honored and priviledged to have Dr. Nancy Wexler on Help4HD Live! The "Blond Angel" the "Gene Hunter" as she is so...4398hd,hereditary disease foundation,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/hdyo-genetic-testing--63401079http://www.blogtalkradio.com/help4hd/2019/03/13/hdyo-genetic-testingWed, 13 Mar 2019 20:00:00 +0000Help 4 HD Live!HDYO has a new Genetic Testing program! Please visit their website for more information: www.hdyo.org Matt Ellison's bio: "Hi! My role at HDYO includes developing all the educational project work we do for our website, including video projects,...939hd,hdyo,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/hsg-discusses-the-importance-of-participation-retention-in-clinical-trials--63401228http://www.blogtalkradio.com/help4hd/2019/03/06/hsg-discusses-the-importance-of-participation-retention-in-clinical-trialsWed, 06 Mar 2019 21:00:00 +0000Help 4 HD Live!Daniel Claassen, MD Lead Investigator at HSG’s Vanderbilt University Medical Center site and Director of the Huntington’s Disease Center of ExcellenceMember of the HSG Research Advisory BoardAssociate Professor of Neurology at Vanderbilt...2409hd,hsg,huntington's disease,huntington study group,jhdfalse169fullhttps://www.spreaker.com/episode/dr-victor-sung--63401221http://www.blogtalkradio.com/help4hd/2019/02/27/dr-victor-sungWed, 27 Feb 2019 21:00:00 +0000Help 4 HD Live!Dr. Victor Sung, a native of Houston, TX, graduated from Vanderbilt University with a B.S. in Neuroscience and a minor in music in 2001. He received his medical degree from UT-Southwestern in Dallas in 2005. He completed residency training in...2162alabama,hd,huntington's disease,jhd,uabfalse168fullhttps://www.spreaker.com/episode/uniqure--63401223http://www.blogtalkradio.com/help4hd/2019/02/20/uniqureWed, 20 Feb 2019 21:00:00 +0000Help 4 HD Live!Dr. Higgins is the Vice President of Clinical Development at uniQure. He is responsible for the early development of clinical gene therapy trials for neurological disorders. Prior to joining uniQure in 2018, Dr. Higgins was responsible for all...2136cure hd,cure jhd,hd,huntington's disease,jhdfalsefullhttps://www.spreaker.com/episode/european-hd-network--63401171http://www.blogtalkradio.com/help4hd/2019/02/13/european-hd-networkWed, 13 Feb 2019 21:00:00 +0000Help 4 HD Live!Anne Rosser is Professor of Clinical Neuroscience at Cardiff University and Honorary Consultant Neurologist at the University Hospital of Wales. She trained in Medicine at Cambridge University where she also undertook her PhD in Neuroscience. She has...1245hd,huntington's disease,jhd,research,resourcesfalsefullhttps://www.spreaker.com/episode/dr-nicolo-zarotti--63401072http://www.blogtalkradio.com/help4hd/2019/02/06/dr-nicolo-zarottiWed, 06 Feb 2019 21:00:00 +0000Help 4 HD Live!Tune in to hear Dr. Nicolo Zarotti talk about some of his research.1620hd,huntington's disease,researchfalsefullhttps://www.spreaker.com/episode/speech-therapy-hd--63401100http://www.blogtalkradio.com/help4hd/2019/01/30/speech-therapy-hdWed, 30 Jan 2019 21:00:00 +0000Help 4 HD Live!Dr. Amy J. Rose is an Assistant Professor in the Department of Communication Sciences and Disorders at Western Carolina University. She received her doctorate from the University of North Carolina at Greensboro and has over 25 years of clinical...1862falsefullhttps://www.spreaker.com/episode/jhd-advocacy--63401065http://www.blogtalkradio.com/help4hd/2019/01/23/jhd-advocacyWed, 23 Jan 2019 21:00:00 +0000Help 4 HD Live!Our guest this week is Kinser Cancelmo. Kinser lost her husband to HD and her daughter to JHD. Meg was only 15 when she lost her battle with JHD. Kinser started the “Meg’s Fight for a Cure JHD Foundation” in memory of Meg to help raise research funds...1469falsefullhttps://www.spreaker.com/episode/survivor-s-guilt--63401114http://www.blogtalkradio.com/help4hd/2019/01/16/survivors-guiltWed, 16 Jan 2019 21:00:00 +0000Help 4 HD Live!Join our host, as Ginnievive Patch discusses her recent article in The Huntington's Post about Survivor's Guilt. It is very common for family members that are HD negative to feel guilty about their results. 2108falsefullhttps://www.spreaker.com/episode/help-4-hd-international-s-law-enforcement-program--63401094http://www.blogtalkradio.com/help4hd/2019/01/09/help-4-hd-internationals-law-enforcement-programWed, 09 Jan 2019 21:00:00 +0000Help 4 HD Live!Tune in to hear Vicki Owen, head of Help 4 HD International's LEEP program, talk about their recent experience exhibiting at Alabama Chief of Police Winter Conference.1988falsefullhttps://www.spreaker.com/episode/let-s-talk-about-gene-editing--63401238http://www.blogtalkradio.com/help4hd/2019/01/02/lets-talk-about-gene-editingWed, 02 Jan 2019 21:00:00 +0000Help 4 HD Live!Listen as Katie Jackson and our guest, Peter Deng discuss JHD and gene editing. Peter is a Doctoral Candidate in the Pharmacology and Toxicology program at UC Davis.  Currently, he is being mentored by Drs. Jan Nolta, Kyle Fink, and David Segal at the...5401falsefullhttps://www.spreaker.com/episode/coming-down-from-the-holiday-season--63401178http://www.blogtalkradio.com/help4hd/2018/12/23/coming-down-from-the-holiday-seasonSun, 23 Dec 2018 17:00:00 +0000Help 4 HD Live!Terry has spent 18 years working at the University of California Davis HDSA Center of Excellence. During her time there, she worked with the HD team to build one of the largest HD programs in the country, noted for their expertise in HD/JHD. She has...2730hd,holidays,huntington's disease,stressfalse162fullhttps://www.spreaker.com/episode/holiday-tips--63401090http://www.blogtalkradio.com/help4hd/2018/12/19/holiday-tipsWed, 19 Dec 2018 21:00:00 +0000Help 4 HD Live!Tips for surviving the holidays1771caregiver,hd,holidays,huntington's diseasefalse161fullhttps://www.spreaker.com/episode/gift-giving--63401139http://www.blogtalkradio.com/help4hd/2018/12/12/gift-givingWed, 12 Dec 2018 21:00:00 +0000Help 4 HD Live!Join us as we discuss good gifts to give this holiday season1665caregiver,gifts,hd,holidays,jhdfalse160fullhttps://www.spreaker.com/episode/surviving-the-holidays--63401154http://www.blogtalkradio.com/help4hd/2018/12/05/surviving-the-holidaysWed, 05 Dec 2018 21:00:00 +0000Help 4 HD Live!Dr. Bonnie L. Hennig-Trestman currently has a private tele-therapy practice and serves on the Board of Directors for the Huntington’s Disease Youth Organization (HDYO). Dr. Hennig-Trestman has over 30 years of expertise providing clinical service and...2127family,hd,holidays,huntington's diseasefalse159fullhttps://www.spreaker.com/episode/pharmacist-dr-jordan-schultz--63401170http://www.blogtalkradio.com/help4hd/2018/11/28/pharmacist-dr-jordan-schultzWed, 28 Nov 2018 21:00:00 +0000Help 4 HD Live!Jordan Schultz, PharmD, graduated from the University of Iowa College of Pharmacy in 2013.  After completing a 2 year residency, he began providing clinical pharmacy services to patients with neurodegenerative diseases, including Huntington’s...2963hd,huntington's disease,medication,pharmacist,resourcesfalse158fullhttps://www.spreaker.com/episode/happy-thanksgiving--63401074http://www.blogtalkradio.com/help4hd/2018/11/21/happy-thanksgivingWed, 21 Nov 2018 21:00:00 +0000Help 4 HD Live!Katie, Lauren and Katrina talk about being thankful this holiday season1916hd,holidays,huntington's disease,thankful,thanksgivingfalse157fullhttps://www.spreaker.com/episode/brain-donation--63401136http://www.blogtalkradio.com/help4hd/2018/11/14/brain-donationWed, 14 Nov 2018 21:00:00 +0000Help 4 HD Live!Dr. Hefti is Assistant Professor of Pathology at the University of Iowa and directs the Iowa Brain Bank. He received his MD from the Mount Sinai School of Medicine in New York City and did his pathology training at Harvard Medical School in Boston...1632brain donation,hd,huntington's disease,research,resourcesfalse156fullhttps://www.spreaker.com/episode/dr-lavonne-goodman-part-3--63401193http://www.blogtalkradio.com/help4hd/2018/11/07/dr-lavonne-goodman-part-3Wed, 07 Nov 2018 21:00:00 +0000Help 4 HD Live!Please follow along on http://hddrugworks.org/dr-goodmans-blog Dr. LaVonne Goodman's bio: -Family member, lost first husband to HD -Internal Medicine M.D. more than 40 years -Practice limited to HD last decade -Now retired from office practice but...3739hd,huntington's disease,mental health,mental illness,psychosisfalse155fullhttps://www.spreaker.com/episode/dr-lavonne-goodman-part-2--63401182http://www.blogtalkradio.com/help4hd/2018/10/31/dr-lavonne-goodman-part-2Wed, 31 Oct 2018 20:00:00 +0000Help 4 HD Live!Please follow along on http://hddrugworks.org/dr-goodmans-blog Dr. LaVonne Goodman's bio: -Family member, lost first husband to HD -Internal Medicine M.D. more than 40 years -Practice limited to HD last decade -Now retired from office practice...3459hd,huntington's disease,mental health,psychiatric,resourcesfalse154fullhttps://www.spreaker.com/episode/dr-lavonne-goodman--63401186http://www.blogtalkradio.com/help4hd/2018/10/24/dr-lavonne-goodmanWed, 24 Oct 2018 20:00:00 +0000Help 4 HD Live!Dr. LaVonne Goodman's bio: -Family member, lost first husband to HD -Internal Medicine M.D. more than 40 years -Practice limited to HD last decade -Now retired from office practice but serve as a “volunteer physician”, continuing to see homebound...2954behavioral health,hd,huntington's disease,neuropsychiatric,psychiatricfalse153fullhttps://www.spreaker.com/episode/dr-ed-wild-from-hd-buzz--63401161http://www.blogtalkradio.com/help4hd/2018/10/17/dr-ed-wild-from-hd-buzz-1Wed, 17 Oct 2018 20:00:00 +0000Help 4 HD Live!Ed a consultant neurologist at the National Hospital for Neurology and Neurosurgery and Associate Director of the UCL Huntington’s Disease Centre, where his research team is focused on accelerating drug development through discovering new biomarkers...2072hd,huntington's disease,researchfalsefullhttps://www.spreaker.com/episode/shelby--63401099http://www.blogtalkradio.com/help4hd/2018/10/09/shelbyTue, 09 Oct 2018 21:47:15 +0000Help 4 HD Live!While she may be petite in stature, Shelby Lentz has a voice that will fill any venue. Shelby's talent was recognized at an early age and by fourteen, she was singing the National Anthem at local sporting venues, performed for the first time at the...593false151fullhttps://www.spreaker.com/episode/shelby-lentz-champions-for-hd--63401076http://www.blogtalkradio.com/help4hd/2018/10/09/shelby-lentz--champions-for-hdTue, 09 Oct 2018 21:30:00 +0000Help 4 HD Live!While she may be petite in stature, Shelby Lentz has a voice that will fill any venue. Shelby's talent was recognized at an early age and by fourteen, she was singing the National Anthem at local sporting venues, performed for the first time at the...909benefit concert,champions for hd,hd,huntington's disease,musicfalse150fullhttps://www.spreaker.com/episode/zoe-cruz-huntington-puerto-rico--63401158http://www.blogtalkradio.com/help4hd/2018/09/26/zoe-cruz--huntington-puerto-ricoWed, 26 Sep 2018 20:00:00 +0000Help 4 HD Live!Join us to hear Zoe Cruz talk about the Puerto Rico Huntington's Foundation2495charity,hd,huntington's disease,nonprofit,puerto ricofalse149fullhttps://www.spreaker.com/episode/lauren-holder-ivf-with-pgd--63401083http://www.blogtalkradio.com/help4hd/2018/09/20/lauren-holder--ivf-with-pgdThu, 20 Sep 2018 20:00:00 +0000Help 4 HD Live!Check out the group IVF with PGD for Huntington's disease on Facebook. Also check out the following links: http://babyquestfoundation.org/ https://www.univfy.com/fertilitychronicles/grant-programs1033hd,huntington's disease,in vitro fertilization,ivf,pgdfalse148fullhttps://www.spreaker.com/episode/stacey-and-vicki-chief-of-police-conference--63401069http://www.blogtalkradio.com/help4hd/2018/09/12/stacey-and-vicki--chief-of-police-conferenceWed, 12 Sep 2018 20:00:00 +0000Help 4 HD Live!Join us to hear from Stacey and Vicki about their advocacy efforts at the Chief of Police Conference2131advocacy,huntington's disease,law enforcement,law enforcement education,policefalse147fullhttps://www.spreaker.com/episode/leah-barker-how-suicide-affects-the-hd-community--63401135http://www.blogtalkradio.com/help4hd/2018/09/05/leah-barker--how-suicide-affects-the-hd-communityWed, 05 Sep 2018 20:00:00 +0000Help 4 HD Live!You can find Leah's bio on capturingthecorners.com1834hd,huntington's disease,mental health,mental illness,suicidefalse146fullhttps://www.spreaker.com/episode/matt-ellison--63401068http://www.blogtalkradio.com/help4hd/2018/08/29/matt-ellisonWed, 29 Aug 2018 20:00:00 +0000Help 4 HD Live!Join us to hear Matt Ellison give an update on what’s happening with HDYO.1283falsefullhttps://www.spreaker.com/episode/chris-delaney-legalshield--63401108http://www.blogtalkradio.com/help4hd/2018/08/15/chris-delaney--legalshieldWed, 15 Aug 2018 20:00:00 +0000Help 4 HD Live!Chris Delaney's bio:  "Everything changes when you make all of your decisions based on a dream" Chris Delaney has trained and spoken in front of thousands across the United Staes in various leadership roles within the Corporate America, small...1804hd,huntington's disease,legal services,legalshield,resourcesfalse144fullhttps://www.spreaker.com/episode/leah-barker-capturing-the-corners--63401121http://www.blogtalkradio.com/help4hd/2018/08/08/leah-barker--capturing-the-cornersWed, 08 Aug 2018 20:00:00 +0000Help 4 HD Live!Leah Barker is a young woman who has tested positive for Huntington's Disease. She is an advocate for HD and mental health, and is also the owner of the blog "Capturing the Corners", which delves into the difficult topic of mental illness. You can...1622blog,capturing the corners,depression,hd,huntington's diseasefalse143fullhttps://www.spreaker.com/episode/amy-rose-speech-therapy-hd--63401137http://www.blogtalkradio.com/help4hd/2018/07/25/amy-rosespeech-therapy-hdWed, 25 Jul 2018 20:00:00 +0000Help 4 HD Live!Dr. Amy J. Rose is an Assistant Professor in the Department of Communication Sciences and Disorders at Western Carolina University. She received her doctorate from the University of North Carolina at Greensboro and has over 25 years of clinical...1802false141fullhttps://www.spreaker.com/episode/staci-cushenberry-aging-out-of-nya--63401156http://www.blogtalkradio.com/help4hd/2018/07/18/staci-cushenberryaging-out-of-nyaWed, 18 Jul 2018 20:00:00 +0000Help 4 HD Live!I’m Staci Cushenbery, formally Nicholas and am 34 years old. My husband and I live in Harper, KS with our 4 kiddos and several dogs. Together we own a trucking business in the oil field and I also am a LuLaRoe retailer. On top of my super busy life I...1370hd,hdyac,huntington's disease,nya,supportfalse140fullhttps://www.spreaker.com/episode/anna-lunsford-dearhd--63401067http://www.blogtalkradio.com/help4hd/2018/07/11/anna-lunsforddearhdWed, 11 Jul 2018 20:00:00 +0000Help 4 HD Live!"My name is Anna Lunsford, I am 22 years old and live in Columbus, Ohio. I graduated from Ohio State University with a Bachelor's in Psychology and Women's Studies and will return this fall to begin my Masters in Social Work. My dad and four of his...1056dearhdfalsefullhttps://www.spreaker.com/episode/lauren-holder-pregnancy-and-genetic-testing--63401105http://www.blogtalkradio.com/help4hd/2018/07/04/lauren-holder--pregnancy-and-genetic-testingWed, 04 Jul 2018 20:00:00 +0000Help 4 HD Live!Lauren Holder’s grandfather was diagnosed with Huntington’s disease (HD) when she was just a teen. After a few years, at the age of 20, Lauren decided to be tested for HD, ultimately testing positive. Despite this, Lauren remained dedicated to caring...1348genetic testing,hd,huntington's disease,pregnancyfalse138fullhttps://www.spreaker.com/episode/hopes--63401095http://www.blogtalkradio.com/help4hd/2018/06/27/hopesWed, 27 Jun 2018 20:00:00 +0000Help 4 HD Live!HOPES is a student-run project at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to patients and the public. Their goal is to survey the rapidly growing scientific and clinical...909false136fullhttps://www.spreaker.com/episode/global-genes--63401093http://www.blogtalkradio.com/help4hd/2018/06/20/global-genesWed, 20 Jun 2018 20:00:00 +0000Help 4 HD Live!  Angie Rowe joins the Global Genes team as Chief Operating Officer. She has over 17 years experience in executive management of LLCs and non-profits. She most recently spent the past 8 years managing and directing various aspects of the U.S. Bank OC...1583false135fullhttps://www.spreaker.com/episode/challenges-in-placing-our-loved-ones-with-hd--63401123http://www.blogtalkradio.com/help4hd/2018/06/13/challenges-in-placing-our-loved-ones-with-hdWed, 13 Jun 2018 20:00:00 +0000Help 4 HD Live!Tune in to hear Katrina Hamel talk about placing our loved ones with HD. We hear over and over about the challenges our families face when it comes to placing their loved ones with HD. Katrina has worked in hospice care for over 15 years. Her...1815false134fullhttps://www.spreaker.com/episode/hd-advocate-gia-mannone--63401096http://www.blogtalkradio.com/help4hd/2018/06/06/hd-advocate-gia-mannoneWed, 06 Jun 2018 20:00:00 +0000Help 4 HD Live!We are excited to have Gia Mannone on the show with us to talk about her advocacy projects she is working on to spread awareness about HD. Gia has done some very creative and successful awareness campaigns on social media to spread awareness and tell...1479advocacy,awareness,hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-overview-on-may-programs--63401081http://www.blogtalkradio.com/help4hd/2018/05/23/help-4-hd-overview-on-may-programsWed, 23 May 2018 20:00:00 +0000Help 4 HD Live!Tune in to hear Katie Jackson and Katrina Hamel discuss all that Help 4 HD International did for Huntington's Awareness Month1504false133fullhttps://www.spreaker.com/episode/the-huntington-study-group--63401196http://www.blogtalkradio.com/help4hd/2018/05/16/the-huntington-study-groupWed, 16 May 2018 20:00:00 +0000Help 4 HD Live!About HSG The Huntington Study Group (HSG), which was formed in 1993, is the world’s first HD cooperative therapeutic research organization. Today, HSG is a world leader in facilitating high quality clinical research trials and studies that bring us...2558hd,hsg,liveinhope,researchfalse131fullhttps://www.spreaker.com/episode/stand-up-and-show-up-an-interview-with-hd-advocate-lauren-steffan--63401115http://www.blogtalkradio.com/help4hd/2018/05/09/stand-up-and-show-up-an-interview-with-hd-advocate-lauren-steffanWed, 09 May 2018 20:00:00 +0000Help 4 HD Live!Lauren Steffan will be on with us to talk about all that she is doing to advocate for our HD community when it comes to research and care. 1944false132fullhttps://www.spreaker.com/episode/seth-rotberg--63401235http://www.blogtalkradio.com/help4hd/2018/05/02/seth-rotbergWed, 02 May 2018 20:00:00 +0000Help 4 HD Live!Seth found out as a 15-year-old that his mom had a rare, neurological, genetic disease known as Huntington’s Disease (HD). HD is like having symptoms of ALS, Alzheimer’s, and Parkinson’s all at once, and there currently is no cure. Five years later,...2460falsefullhttps://www.spreaker.com/episode/hd-gem-project--63401073http://www.blogtalkradio.com/help4hd/2018/04/25/hd-gem-projectWed, 25 Apr 2018 20:00:00 +0000Help 4 HD Live!Join us as founder and creator, Casey Herrington discusses the Huntington's Disease Global Ecosystem Map (HD GEM) Project. HD GEM Project's mission is to further engage with the "silent" 70% of the HD community by helping those impacted by...1269hd,help4hdlive,jhd,resources,togetherwearestrongerfalse126fullhttps://www.spreaker.com/episode/survivors-guilt--63401132http://www.blogtalkradio.com/help4hd/2018/04/18/survivors-guilt-1Wed, 18 Apr 2018 20:00:00 +0000Help 4 HD Live!Join our host, as Ginnievive Patch discusses her recent article in The Huntington's Post about Survivor's Guilt. It is very common for family members that are HD negative to feel guilty about their results. 2108falsefullhttps://www.spreaker.com/episode/cozie-care--63401097http://www.blogtalkradio.com/help4hd/2018/04/11/cozie-careWed, 11 Apr 2018 20:00:00 +0000Help 4 HD Live!Tune in to hear Cossetta Stroud talk about her organization Cozie Care and an event they are hosting in Southern California.1489hd,help4hd,help4hdlive,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/huntington-s-study-group-and-signal--63401106http://www.blogtalkradio.com/help4hd/2018/04/04/huntingtons-study-group-and-signalWed, 04 Apr 2018 20:00:00 +0000Help 4 HD Live!Join us as Andrew Feigin, SIGNAL Principal Investigator and Maurice Zauderer, PhD, President of Vaccinex discuss the SIGNAL trial.  1314false123fullhttps://www.spreaker.com/episode/wehaveaface-annual-convention--63401164http://www.blogtalkradio.com/help4hd/2018/03/28/wehaveaface-annual-conventionWed, 28 Mar 2018 20:00:00 +0000Help 4 HD Live!James Valvano, CEO and founder of WeHaveAFace will be joining our host to discuss their upcoming convention in Orlando, Florida. Please tune in to get all of the details. 2156convention,florida,hd,jhd,wehaveafacefalse122fullhttps://www.spreaker.com/episode/help-4-hd-law-enforcement-education-program--63401226http://www.blogtalkradio.com/help4hd/2018/03/21/help-4-hd-law-enforcement-education-programWed, 21 Mar 2018 20:00:00 +0000Help 4 HD Live!Tune in to hear Vicki Owen, head of Help 4 HD International's LEEP program, talk about their recent experience exhibiting at Alabama Cheif of Police Winter Conference.1957false121fullhttps://www.spreaker.com/episode/clinical-trials-and-informed-consent-huntington-s-disease--63401239http://www.blogtalkradio.com/help4hd/2018/03/14/clinical-trials-and-informed-consent-huntingtons-diseaseWed, 14 Mar 2018 20:00:00 +0000Help 4 HD Live!Join Sharon and Katie to hear a discussion of Help 4 HD International's newest brochure, "Clinical Trials." They will talk about how to get involved in clinical trials, what "informed consent" means, the challenges of clinical trials and how to best...3029hd,help 4 hd,huntington's disease,jhd,juvenile huntington's diseasefalse120fullhttps://www.spreaker.com/episode/bioethics-and-irbs-for-huntington-s-disease--63401168http://www.blogtalkradio.com/help4hd/2018/03/07/bioethics-and-irbs-for-huntingtons-diseaseWed, 07 Mar 2018 21:30:00 +0000Help 4 HD Live!Dr. Mark Yarborough, Dean's Professor of Bioethics from UC Davis, joins us to talk about the bioethics of clinical trials--the question of whether new practices in biological research are both moral and ethical. This topic has a huge impact on...2124bioethics,clinical trials,dr. mark yarborough,institutional review boards,uc davisfalsefullhttps://www.spreaker.com/episode/hdyo-2018-camp--63401138http://www.blogtalkradio.com/help4hd/2018/02/28/hdyo-2018-campWed, 28 Feb 2018 21:00:00 +0000Help 4 HD Live!The Huntington’s Disease Youth Organization is an international non-profit organization set up to specifically provide support for young people around the world impacted by Huntington’s disease.1886camp,hdyo,help4hd,huntingtonsdiseasefalse117fullhttps://www.spreaker.com/episode/wave-life-sciences--63401126http://www.blogtalkradio.com/help4hd/2018/02/21/wave-life-sciencesWed, 21 Feb 2018 21:00:00 +0000Help 4 HD Live!We are excited to have Wendy Erler, Vice President of Patient Advocacy, share the latest on gene editing on “Help 4 HD Live!” Wave Life Sciences goal: Our goal is to bring meaningful therapies to patients with serious genetic diseases.1355huntingtons disease,juvenilehuntingtonsdisease,research,sciencefalse116fullhttps://www.spreaker.com/episode/a-caregiver-s-love--63401194http://www.blogtalkradio.com/help4hd/2018/02/14/a-caregivers-loveWed, 14 Feb 2018 21:00:00 +0000Help 4 HD Live!In honor of Valentine's Day, we are celebrating the very special love that caregivers exhibit every single day as they care for their loved ones who have HD or JHD. Our guests are four amazing women: Barb Sipes, Carla Arriola, Sue Gamble, and Tina...3092falsefullhttps://www.spreaker.com/episode/california-institute-of-regenerative-cures--63401160http://www.blogtalkradio.com/help4hd/2018/02/07/california-institute-of-regenerative-curesWed, 07 Feb 2018 21:00:00 +0000Help 4 HD Live!CIRM's mission is to accelerate stem cells teatments to patients with unmeant medical needs.2020cures,huntingtonsdisease,juvenilehuntingtonsdisease,reearch,stemcellfalse115fullhttps://www.spreaker.com/episode/jhd-advocacy-and-meg-s-fight-for-a-cure-jhd-foundation--63401155http://www.blogtalkradio.com/help4hd/2018/01/10/jhd-advocacy-and-megs-fight-for-a-cure-jhd-foundationWed, 10 Jan 2018 23:00:00 +0000Help 4 HD Live!Our guest this week is Kinser Cancelmo. Kinser lost her husband to HD and her daughter to JHD. Meg was only 15 when she lost her battle with JHD. Kinser started the “Meg’s Fight for a Cure JHD Foundation” in memory of Meg to help raise research funds...1469hd,help4hd,help4hdlive,jhd,researchfalse114fullhttps://www.spreaker.com/episode/let-s-talk-about-hd-jhd-and-cannabis--63401199http://www.blogtalkradio.com/help4hd/2017/12/20/lets-talk-about-hdjhd-and-cannabisWed, 20 Dec 2017 21:00:00 +0000Help 4 HD Live!Join us and our guest Ezra Parzybo, Cannabis Consultant and author of "Cannabis Consulting; Helping Patients, Parents, and Practitioners Understand Medical Marijuana" available from UPNE Spring, 2018. Ezra will be joining us to discuss his work in the...3507cannabis,hd,jhd,liveinhope,togetherwearestrongerfalse113fullhttps://www.spreaker.com/episode/help-4-hd-and-the-holidays--63401242http://www.blogtalkradio.com/help4hd/2017/12/13/help-4-hd-and-the-holidaysWed, 13 Dec 2017 21:00:00 +0000Help 4 HD Live!Join us as Help 4 HD's executive team and volunteers share how they will navigate through the holiday season. As a follow up from last week's radio show with Dr. Bonnie Hennig-Trestman, the team members will share their current and past experiences as...3499hd,help4hd,holidays,jhd,liveinhopefalse112fullhttps://www.spreaker.com/episode/navigating-the-holiday-season--63401187http://www.blogtalkradio.com/help4hd/2017/12/06/navigating-the-holiday-seasonWed, 06 Dec 2017 21:00:00 +0000Help 4 HD Live!Our guest this week is Dr. Bonnie Hennig-Trestman, LCSW, DSW. She is joining us to discuss how HD and JHD families can navigate through the holiday season with less stress and more enjoyment.  Dr. Bonnie L. Hennig-Trestman currently has a private...1871hd,help4hd,help4hdlive,jhd,liveinhopefalse111fullhttps://www.spreaker.com/episode/dr-peg-nopoulos-talks-about-hd-and-jhd--63401209http://www.blogtalkradio.com/help4hd/2017/11/29/dr-peg-nopoulos-talks-about-hd-and-jhdWed, 29 Nov 2017 21:00:00 +0000Help 4 HD Live!Dr. Peg Nopoulos joins Katie Jackson on Help4HD Live! and discusses her work at the University of Iowa. Dr. Nopoulos is a psychiatrist that works with clients that have HD and JHD. There are several observational studies and clinical trials that are...2505hd,help4hd,jhd,research,universityof iowafalse110fullhttps://www.spreaker.com/episode/let-s-talk-about-jhd-and-gene-editing--63401243http://www.blogtalkradio.com/help4hd/2017/11/16/lets-talk-about-jhd-and-gene-editingThu, 16 Nov 2017 21:00:00 +0000Help 4 HD Live!Listen as Katie Jackson and our guest, Peter Deng discuss JHD and gene editing. Peter is a Doctoral Candidate in the Pharmacology and Toxicology program at UC Davis.  Currently, he is being mentored by Drs. Jan Nolta, Kyle Fink, and David Segal at the...5401geneediting,hd,jhd,research,togetherwearestrongerfalse19fullhttps://www.spreaker.com/episode/reflections-on-hipe-day-in-cedar-rapids-iowa--63401107http://www.blogtalkradio.com/help4hd/2017/11/07/reflections-on-hipe-day-in-cedar-rapids-iowaTue, 07 Nov 2017 21:00:00 +0000Help 4 HD Live!We are excited to have Sonia Slevinski, research manager at Dr. Peg Nopoulos’s Lab at the University of Iowa, join us on Help 4 HD Live! She is joining us to discuss Help 4 HD’s HIPE Education Day that was held in Cedar Rapids, Iowa, in August. 1214false17fullhttps://www.spreaker.com/episode/elder-law-and-end-of-life-care--63401122http://www.blogtalkradio.com/help4hd/2017/11/01/elder-law-and-end-of-life-careWed, 01 Nov 2017 17:00:00 +0000Help 4 HD Live!Sean W. Scott will join our host, Katie Jackson to discuss elder law and end-of-life care. Many HD/JHD families haven’t even thought of end-of-life care and the type of things they should have in place and may not know where to begin. Oftentimes,...1519awareness,elderlaw,endoflifecare,help4hd,togetherwearestrongerfalse16fullhttps://www.spreaker.com/episode/a-spouse-s-journey-with-huntington-s-disease--63401127http://www.blogtalkradio.com/help4hd/2017/10/25/a-spouses-journey-with-huntingtons-diseaseWed, 25 Oct 2017 20:00:00 +0000Help 4 HD Live!As the spouse of a man with Huntington's Disease, Laurie Moore will share her journey with her husband. Through all the emotional ups and downs, the appointments, and everything else that comes with HD, Laurie is going to share their experience on...1207advocacy,awareness,help4hd,liveinhope,togetherwearestrongerfalse15fullhttps://www.spreaker.com/episode/let-s-talk-to-hsg--63401167http://www.blogtalkradio.com/help4hd/2017/10/17/lets-talk-to-hsgTue, 17 Oct 2017 20:00:00 +0000Help 4 HD Live!Heather Hare, Director of Communications and Outreach with the Huntington Study Group is joining us to discuss the mission of HSG and their important contributions to the HD/JHD community, including their Annual Event that will take place in Denver,...2255awareness,familyday,help4hd,help4jhd,hsgfalse14fullhttps://www.spreaker.com/episode/the-purple-road-part-2--63401213http://www.blogtalkradio.com/help4hd/2017/10/11/the-purple-road-part-2Wed, 11 Oct 2017 20:17:07 +0000Help 4 HD Live!CEO/Founder of WeHaveAFace, James Valvano, talks about their newest project "The Purple Road"1736false13fullhttps://www.spreaker.com/episode/the-purple-road--63401116http://www.blogtalkradio.com/help4hd/2017/10/11/the-purple-roadWed, 11 Oct 2017 20:00:00 +0000Help 4 HD Live!Join our host, Katie Jackson as she interviews James Valvano, founder and President of WeHaveAFace.org about the filming of their documentary "The Purple Road". The documentary is about families living with Juvenile Huntington's Disease. James has...921awareness,help4hd,help4jhd,jhdawareness,wehaveafacefalse12fullhttps://www.spreaker.com/episode/research-in-india-with-roshni-bhatt--63401175http://www.blogtalkradio.com/help4hd/2017/10/04/research-in-india-with-roshni-bhattWed, 04 Oct 2017 18:00:00 +0000Help 4 HD Live!Join us on Help 4 HD Live! as Roshni Bhatt discusses her continued research in India and her background with Huntington's Disease. Roshni has been on the show before and will share the progress that has been made with her research. 1371hdawareness,help4hd,help4hdlive,help4jhd,researchfalse11fullhttps://www.spreaker.com/episode/be-an-advocate-with-lauren-holder--63401216http://www.blogtalkradio.com/help4hd/2017/09/27/be-an-advocate--with-lauren-holderWed, 27 Sep 2017 17:00:00 +0000Help 4 HD Live!Lauren Holder is on the show today to talk about herself as an advocate. Lauren is well know in the HD community and has frequented our talk show since the very beginning. Today we will be talking about her recent trip to Washington D.C. and all that...1155advocacy,hd,help4hd,laurenholder,passtheparityactfalsefullhttps://www.spreaker.com/episode/jhd-moms-share-their-experiences-in-caring-for-their-children--63401227http://www.blogtalkradio.com/help4hd/2017/09/20/jhd-moms-share-their-experiences-in-caring-for-their-childrenWed, 20 Sep 2017 20:00:00 +0000Help 4 HD Live!Caring for a child with Juvenile Huntington's Disease has a unique set of challenges. From dealing with school officials, IEPs, doctors that aren't familiar with their child's symptoms. Chloe and Misty are going to join our host, Katie Jackson and...3621challenges,help4hd,jhd,jhd awareness,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/today-s-caregiver--63401205http://www.blogtalkradio.com/help4hd/2017/09/13/todays-caregiverWed, 13 Sep 2017 20:00:00 +0000Help 4 HD Live!Gary Barg, founder and CEO to Today's Caregiver, caregiver.com, and Fearless Caregiver, began his journey in 1995, after returning home to help his mother care for his elderly grandparents. Overwhelmed by everything this entailed--finding a care home,...2674hd,help 4 hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/ask-dr-goodman-my-experience-with-austedo--63401189http://www.blogtalkradio.com/help4hd/2017/09/06/ask-dr-goodman-my-experience-with-austedoWed, 06 Sep 2017 20:00:00 +0000Help 4 HD Live!After clinical trial results were announced for deutetrabenazine (Austedo), I hoped we might be getting a drug that didn't cause the side effects of other chorea treatments (antipsychotics or the old tetrabenazine). And now that I have prescribed it,...2407chorea,hd,help4hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/cindy-moore-a-mom-fighting-for-her-daughter-with-jhd--63401112http://www.blogtalkradio.com/help4hd/2017/08/30/cindy-moore--a-mom-fighting-for-her-daughter-with-jhdWed, 30 Aug 2017 20:00:00 +0000Help 4 HD Live!Cindy Moore is Erin's mom. Cindy has walked every step, alongside her daughter and the struggles that go along with Juvenile Huntington's Disease. Cindy lives in Canada and is also the President of We Have A Face - Canada. This past weekend Cindy and...1633hd,huntingtonsdisease,jhd,jhdawareness,juvenilehuntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-exhibits-at-alabama-association-of-chiefs-of-police-summer-conference--63401163http://www.blogtalkradio.com/help4hd/2017/08/23/help-4-hd-exhibits-at-alabama-association-of-chiefs-of-police-summer-conferenceWed, 23 Aug 2017 20:00:00 +0000Help 4 HD Live!This year Help 4 HD International exhibited at the Alabama Association of Chiefs of Police Summer Conference. Join us to hear about Vicki Owens experience coming face to face with law enforcement agents from the state of Alabama and teaching them...1912awareness,education,hd,help4hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/phil-s-kids--63401234http://www.blogtalkradio.com/help4hd/2017/08/16/phils-kids-5Wed, 16 Aug 2017 20:00:00 +0000Help 4 HD Live!Phil’s Kids was set up in memory of Dr Phil, who sadly passed away from Huntington’s Disease (HD) in 2014. Whenever Dr Phil lost a patient he would immediately go and look at the new-born babies. He did this, he said, because it reminded him of the...1852falsefullhttps://www.spreaker.com/episode/another-resource-for-huntington-s-and-juvenile-huntington-s-disease-genefo--63401240http://www.blogtalkradio.com/help4hd/2017/08/09/another-resource-for-huntingtons-and-juvenile-huntingtons-disease-genefoWed, 09 Aug 2017 20:00:00 +0000Help 4 HD Live!Neer Ziskind is the CEO and co-founder, along with geneticist Dr.Yael Wilnai, of GeneFo. GeneFo was created as a solution to patients and medical experts wishing to connect and enrich their understanding of their condition, how to better manage it,...1778hd,help4hd,huntingtonsdisease,jhd,juvenilehuntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/hd-blues--63401204http://www.blogtalkradio.com/help4hd/2017/08/02/hd-bluesWed, 02 Aug 2017 20:00:00 +0000Help 4 HD Live!Brian Schrag is a Dallas-based composer, performer, sit-down comic, and community arts therapist. He and his family lived in central Africa for about 7 years, helping communities translate the Bible into their languages and use their own arts to make...2287hdblues,help4hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/lanise-shortell-rn-and-certified-grief-recovery-specialist-talks-about-grief--63401210http://www.blogtalkradio.com/help4hd/2017/07/26/lanise-shortell-rn-and-certified-grief-recovery-specialist-talks-about-grief-1Wed, 26 Jul 2017 20:00:00 +0000Help 4 HD Live!Lanise Shortell, RN, is a Pediatric Clinical Care Nurse Specialist who received her degree from Georgia State University. She has worked with The Children’s Program of Hospice Atlanta, Visiting Nurse Hospice Atlanta, since 2007. Ms. Shortell was...3196grief,grief and loss,grief recovery,huntingtons disease,juvenile huntingtons diseasefalsefullhttps://www.spreaker.com/episode/miss-greater-kalamazoo-2017-shelby-lentz-tells-her-story-about-hd-w-positivity--63401173http://www.blogtalkradio.com/help4hd/2017/07/19/miss-greater-kalamazoo-2017--shelby-lentz-tells-her-story-about-hd-wpositivityWed, 19 Jul 2017 20:00:00 +0000Help 4 HD Live!Shelby Lentz, Miss Greater Kalamazoo, is on our show to talk about how she became aware of Huntington's disease running in her family. Shelby is a Huntington's Disease advocate and due to her own experience with this disease she is able to shed light...1986hdawareness,hdstories,help4hd,huntingtons disease,missgreaterkalamazoofalsefullhttps://www.spreaker.com/episode/another-resource-for-huntington-s-juvenile-huntington-s-disease-genefo--63401166http://www.blogtalkradio.com/help4hd/2017/07/12/another-resource-for-huntingtons-juvenile-huntingtons-disease-genefoWed, 12 Jul 2017 14:30:00 +0000Help 4 HD Live!Neer Ziskind is the CEO and co-founder, along with geneticist Dr.Yael Wilnai, of GeneFo. GeneFo was created as a solution to patients and medical experts wishing to connect and enrich their understanding of their condition, how to better manage it,...1747genefo,hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/azevan-pharmaceuticals--63401198http://www.blogtalkradio.com/help4hd/2017/07/05/azevan-pharmaceuticalsWed, 05 Jul 2017 20:00:00 +0000Help 4 HD Live!Azevan Pharmaceuticals is a clinical stage, small molecule drug development company developing novel therapeutics to treat disorders of stress, mood, and behavior. The Company’s first clinical compounds selectively block the effects of arginine...1277clinicaltrial,help4hd,huntingtonsdisease,irritabiltyfalsefullhttps://www.spreaker.com/episode/watching-their-dance-three-sister-a-genetic-disease-and-marrying-into-a-family--63401147http://www.blogtalkradio.com/help4hd/2017/06/14/watching-their-dance-three-sister-a-genetic-disease-and-marrying-into-a-familyWed, 14 Jun 2017 20:00:00 +0000Help 4 HD Live!Therese Marin will be joining us on Help 4 HD Live to give us a update on her book "Watching Their Dance."1383hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/a-caregiver-s-fight-mary-robertson--63401145http://www.blogtalkradio.com/help4hd/2017/05/31/a-caregivers-fight--mary-robertsonWed, 31 May 2017 20:00:00 +0000Help 4 HD Live!Mary Robertson Knows exactly what it's like to care for someone with Huntington's disease. Mary is a caregiver extraordinaire and offers support, resources and a listening ear to hundreds. Mary sits on the Board of Directors at WeHaveAFace as the...1041hd,hdawareness,help4hd,togetherwearestronger,wehaveafacefalsefullhttps://www.spreaker.com/episode/i-fight-for-understanding--63401180http://www.blogtalkradio.com/help4hd/2017/05/06/i-fight-for-understandingSat, 06 May 2017 20:00:00 +0000Help 4 HD Live!Ginnievive Patch is the pseudonym used by the author of Help 4 HD's new book, I Fight for Understanding. Ginnievive is both a nurse and a caregiver extraordinaire who has many insightful tips for caregivers. She is a caregiver to her ex-husband, her...2131caregivers,hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/chronically-smiling--63401134http://www.blogtalkradio.com/help4hd/2017/05/05/chronically-smilingFri, 05 May 2017 19:00:00 +0000Help 4 HD Live!"ChronicallySmiling.com is a part of Chronic Connect Inc.  Chronic Connect Incorporated seeks to serve the chronic illness community by providing resources and community for patients. We will be developing technology that allows patients to find local...1224falsefullhttps://www.spreaker.com/episode/i-fight-for-jhd--63401211http://www.blogtalkradio.com/help4hd/2017/05/04/i-fight-for-jhdThu, 04 May 2017 16:00:00 +0000Help 4 HD Live!Stacey and her husband, Terry Sargent, are incredible JHD warrior parents who live outside of Atlanta, Georgia. Terry adopted Stacey's son, Cory, and served, in every sense, as Cory's father, loving him as his own child.  When Cory started school, he...3046huntingtonsdisease,juvenilehuntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/a-mother-s-fight--63401190http://www.blogtalkradio.com/help4hd/2017/05/03/a-mothers-fight-1Wed, 03 May 2017 20:00:00 +0000Help 4 HD Live!Tune in to hear an interview with Deborah Bunting, who is the caregiver for her adult son, Jimmy, who lives with Huntington’s disease. Deborah and Jimmy made a bucket list for Jimmy, and Deborah is fighting to make sure all her son's dreams come true....2070blueribbonforacure,help4hd,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/kisa-heyer-dream-foundation-who-qualifies-and-how--63401140http://www.blogtalkradio.com/help4hd/2017/04/27/kisa-heyer--dream-foundation--who-qualifies-and-howThu, 27 Apr 2017 20:00:00 +0000Help 4 HD Live!  Tune in to Help4HD LIVE! On Thursday, April 27th, 2017 to hear from Kisa Heyer, Chief Executive Officer of Dream Foundation. Kisa Heyer directs the operations of Dream Foundation, the only national dream-granting organization for terminally-ill...1175dreamfoundation,hd,help4hd,huntingtonsdisease,resourcesfalsefullhttps://www.spreaker.com/episode/hipe-highly-interactive-participant-education-day-in-washington-state--63401222http://www.blogtalkradio.com/help4hd/2017/04/19/hipe-highly-interactive-participant-education-day-in-washington-stateWed, 19 Apr 2017 20:00:00 +0000Help 4 HD Live!Terry Tempkin is an ARNP who worked with Huntington's families for 19 years at the UC Davis HD Canter, helping patients and families through their HD/JHD journey. Terry has retired from UC Davis, but she hasn't retired from HD! She works tirelessly as...2699hd,help 4 hd,hipe,huntington's disease,terry tempkinfalsefullhttps://www.spreaker.com/episode/fda-approves-austedo--63401184http://www.blogtalkradio.com/help4hd/2017/04/10/fda-approves-austedoMon, 10 Apr 2017 15:00:00 +0000Help 4 HD Live!Samuel Frank, MD,is an associate professor of Neurology at Beth Israel Deaconess Medical Center and Harvard Medical School. After completing his residency and fellowship at the University of Rochester, he joined the neurology faculty at Boston...1985chorea,fda,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/what-s-new-with-the-huntington-study-group-hsg--63401197http://www.blogtalkradio.com/help4hd/2017/03/29/whats-new-with-the-huntington-study-group-hsgWed, 29 Mar 2017 20:00:00 +0000Help 4 HD Live!Listen in to hear more about The Huntington Study Group and what is coming in the near future.   Heather Hare, Director of Communications & Outreach at HSG, will be on the show today, along with Ann Nelson, a loving wife and caregiver for her...2288hdawareness,help4hd,hsg,huntingtonsdisease,iamthedifferencefalsefullhttps://www.spreaker.com/episode/an-interview-with-jason-evans--63401181http://www.blogtalkradio.com/help4hd/2017/03/22/an-interview-with-jason-evansWed, 22 Mar 2017 20:00:00 +0000Help 4 HD Live!Jason Evans is an incredible man, and we are excited to have him on Help 4 HD Live! Jason Evans is a farmer, philosopher, and an avid outdoors man. He was born in Oregon but has lived in places like Malaysia, England, and Norway. Jason’s family is...2006falsefullhttps://www.spreaker.com/episode/the-possible-power-of-laughter--63401152http://www.blogtalkradio.com/help4hd/2017/03/10/the-possible-power-of-laughterFri, 10 Mar 2017 18:00:00 +0000Help 4 HD Live!Dr. Brown received his MD at Harvard, followed by internship and PM&R residency at the University of Washington, a Master of Public Health at UC Berkeley, and most recently, a fellowship in Multiple Sclerosis (MS)  at U. Washington.   He  is a...1836evergreen,huntington's disease,laughter therapyfalsefullhttps://www.spreaker.com/episode/caring-voice-coalition-cares-for-hd-jhd-community--63401202http://www.blogtalkradio.com/help4hd/2017/03/08/caring-voice-coalition-cares-for-hdjhd-communityWed, 08 Mar 2017 21:00:00 +0000Help 4 HD Live!Do you need help with applying for disability? Help with paying for prescriptions? Our very special guest today is Heather Fortune, Case Manager II for Caring Voice Coalition, a 501(c)(3) organization that empowers patients who live with a...2300caring voice coalition,hd,help 4 hd,huntington's disease,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/hd-trial-finder--63401200http://www.blogtalkradio.com/help4hd/2017/02/22/hd-trial-finderWed, 22 Feb 2017 21:00:00 +0000Help 4 HD Live!Join us to learn more about HD Trial Finder, a very important program at HDSA. Without clinical trials, we will never have an FDA-approved drug or therapy for Huntington's disease. HD Trial Finder is an important program because it alerts community...1601hdsa,hd trial finder,huntington's diseasefalsefullhttps://www.spreaker.com/episode/a-caregiver-s-love-a-very-special-love--63401236http://www.blogtalkradio.com/help4hd/2017/02/15/a-caregivers-love-a-very-special-loveWed, 15 Feb 2017 21:00:00 +0000Help 4 HD Live!In honor of Valentine's Day, we are celebrating the very special love that caregivers exhibit every single day as they care for their loved ones who have HD or JHD. Our guests are four amazing women: Barb Sipes, Carla Arriola, Sue Gamble, and Tina...4788caregivers,hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/before-you-test--63401214http://www.blogtalkradio.com/help4hd/2017/02/08/before-you-testWed, 08 Feb 2017 21:00:00 +0000Help 4 HD Live!Tune in to hear this very important show. There are so many things to think about before you take the step to be tested for Huntington's disease. Dr. Bonnie Hennig is coming on Help 4 HD Live! to talk about some of those things we need to think...2845gentetic testing,huntington'sdiseasefalsefullhttps://www.spreaker.com/episode/ask-dr-goodman-gi-and-gu-issues-often-associated-with-hd--63401212http://www.blogtalkradio.com/help4hd/2017/02/01/ask-dr-goodman-gi-and-gu-issues-often-associated-with-hdWed, 01 Feb 2017 21:00:00 +0000Help 4 HD Live!Tune in to hear Dr. Goodman answer questions from the community! Dr. Goodman will also discuss GI (gastrointestinal) and GU (genitourinary) issues often associated with HD.2764hd,help 4 hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/an-interview-with-brent-walker-author-of-look-up-rebroadcast--63401148http://www.blogtalkradio.com/help4hd/2017/01/25/an-interview-with-brent-walker-author-of-look-up-rebroadcastWed, 25 Jan 2017 21:00:00 +0000Help 4 HD Live!Brent says, "I have always been very fond of writing and have written a lot of short stories in the past (I even wrote a screenplay once). but none of them have ever been published. For me it is very simple. I want to help people. I don't care about...2011falsefullhttps://www.spreaker.com/episode/an-interview-with-brent-walker-author-of-look-up--63401192http://www.blogtalkradio.com/help4hd/2017/01/18/an-interview-with-brent-walker-author-of-look-upWed, 18 Jan 2017 21:00:00 +0000Help 4 HD Live!Brent Walker watched Huntington's disease tear his family apart, although they didn't know at first that it was Huntington's disease. About 20 years ago, he became familiar with Huntington's disease and realized his father was at risk. He later found...1981author,fiction writer,huntingtonsdisease,neurology,short storiesfalsefullhttps://www.spreaker.com/episode/capturing-the-corners-with-leah-amberly-barker--63401230http://www.blogtalkradio.com/help4hd/2017/01/11/capturing-the-corners-with-leah-amberly-barkerWed, 11 Jan 2017 21:00:00 +0000Help 4 HD Live!Leah Amberly Barker describes herself as "a 24-year-old who’s still in college, a poet, an author, a spoken word artist, avid nail-biter, lover to the ocean in a fiery affair with the stars, a C- student, hoarder of antiques, seeker of soul mates,...3115capturing the corners,hd,help 4 hd,huntington's disease,leah amberly barkerfalsefullhttps://www.spreaker.com/episode/help-4-hd-a-look-back-2016-a-look-forward-2017--63401218http://www.blogtalkradio.com/help4hd/2017/01/04/help-4-hd-a-look-back-2016-a-look-forward-2017Wed, 04 Jan 2017 21:00:00 +0000Help 4 HD Live!Join us to hear an overview of some of Help 4 HD International's programs and projects we ran in 2016. We will also do a sneak peek of some things to come in 2017, including our 5th annual symposium4068help4hd,help4hdinternational,help4jhd,huntingtonsdisease,huntington's diseasefalsefullhttps://www.spreaker.com/episode/celebrating-the-season-of-giving-an-interview-with-kinser-cancelmo--63401207http://www.blogtalkradio.com/help4hd/2016/12/28/celebrating-the-season-of-giving-an-interview-with-kinser-cancelmoWed, 28 Dec 2016 16:00:00 +0000Help 4 HD Live!Kinser became more involved with both HD and JHD after her daughter Meaghan passed from JHD after spending four months in the hospital, with doctors unsure about how to help her. Kinser lost her husband to HD shortly after she lost her daughter....2482hd,huntington's disease,jhd,juvenile huntington's disease,patient advocacyfalsefullhttps://www.spreaker.com/episode/a-season-of-giving-celebrating-the-patient-advocate--63401130http://www.blogtalkradio.com/help4hd/2016/12/15/a-season-of-giving-celebrating-the-patient-advocateThu, 15 Dec 2016 03:00:00 +0000Help 4 HD Live!Tune in to hear Havanna Lowe talk about her role as a patient advocate in the HD/JHD community. Havanna, who is 17, helps care for her aunt and her cousins while also attending school and working. She's a force to be reckoned with as she advocates for...1615falsefullhttps://www.spreaker.com/episode/celebrating-the-season-of-giving-an-interview-with-lauren-holder--63401172http://www.blogtalkradio.com/help4hd/2016/12/07/celebrating-the-season-of-giving-an-interview-with-lauren-holderWed, 07 Dec 2016 21:00:00 +0000Help 4 HD Live!Join us on December 7, 2016, to hear Help 4 HD International interview the amazing Lauren Holder. We are going to talk about Lauren's story, some of Lauren's advocacy projects she has done, and about her recent article in Good Housekeeping, "How a...1583genetic testing,hd,help 4 hd,huntington's disease,patient advocatefalsefullhttps://www.spreaker.com/episode/wave-lifesciences--63401119http://www.blogtalkradio.com/help4hd/2016/11/30/wave-lifesciencesWed, 30 Nov 2016 21:00:00 +0000Help 4 HD Live!WAVE Life Sciences is a preclinical genetic medicine company focused on advancing first-in-class or best-in-class stereopure nucleic acid therapies for patients impacted by rare diseases. We are utilizing our innovative and proprietary synthetic...1782falsefullhttps://www.spreaker.com/episode/i-mnotdrunk-an-interview-with-ashley-clarke--63401183http://www.blogtalkradio.com/help4hd/2016/11/23/imnotdrunk-an-interview-with-ashley-clarkeWed, 23 Nov 2016 21:00:00 +0000Help 4 HD Live!Intro into Ashley Clarke's Blog: https://kyraashley.wordpress.com/ They say there’s a reason for everything. So there must be a reason my life is affected by Huntington’s Disease. And that is the reason for this blog. My name is Ashley. And I...2677caregiver stress,huntingtonsdisease,huntington's disease,i'mnotdrunk,silent diseasefalsefullhttps://www.spreaker.com/episode/death-with-dignity-a-discussion-with-alan-a-pfeffer-esq--63401229http://www.blogtalkradio.com/help4hd/2016/11/16/death-with-dignity-a-discussion-with-alan-a-pfeffer-esqWed, 16 Nov 2016 23:00:00 +0000Help 4 HD Live!Should people who are suffering from terminal illnesses be allowed to choose death with dignity? Should families of loved ones who are suffering from terminal conditions be allowed to “pull the plug”—or even administer lethal doses of medication?...4062assisted suicide,death with dignity,hd,huntington's disease,right to diefalsefullhttps://www.spreaker.com/episode/death-with-dignity-a-discussion-with-alan-a-pfeffer-esq--63401225http://www.blogtalkradio.com/help4hd/2016/11/14/death-with-dignity-a-discussion-with-alan-a-pfeffer-esqMon, 14 Nov 2016 23:30:00 +0000Help 4 HD Live!Should people who are suffering from terminal illnesses be allowed to choose death with dignity? Should families of loved ones who are suffering from terminal conditions be allowed to “pull the plug”—or even administer lethal doses of medication?...3972assisted suicide,death with dignity,hd,huntington's disease,right to diefalsefullhttps://www.spreaker.com/episode/legato-hd--63401153http://www.blogtalkradio.com/help4hd/2016/11/09/legato-hdWed, 09 Nov 2016 17:30:00 +0000Help 4 HD Live!Join us to hear Dr. Anderson and Dr. Feigin give us a update on LEGATO-HD.2072help 4 hd,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/wave-life-sciences-clinical-trial-coming-soon--63401117http://www.blogtalkradio.com/help4hd/2016/10/20/wave-life-sciences-clinical-trial-coming-soonThu, 20 Oct 2016 18:30:00 +0000Help 4 HD Live!Pre-recorded at WAVE Life Sciences headquarters in Cambridge, Massachusetts, Katie Jackson interviews three of the leaders of this inspiring 10-year-old company. Paul Bolno is the CEO, Michael Panzara is the head neurologist, and Wendy Erler is the...1690help 4 hd,katie jackson,michael panzara,paul bolno,wendy erlerfalsefullhttps://www.spreaker.com/episode/help-4-hd-live-hdyo--63401169http://www.blogtalkradio.com/help4hd/2016/10/12/help-4-hd-live-hdyoWed, 12 Oct 2016 20:00:00 +0000Help 4 HD Live!Join us to hear all about what is going on at HDYO. The Huntington's Disease Youth Organization (HDYO) is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by...1683hdyo,help 4 hd,huntington's diseasefalsefullhttps://www.spreaker.com/episode/national-organization-of-rare-disease-nord-on-help-4-hd-live--63401208http://www.blogtalkradio.com/help4hd/2016/10/04/national-organization-of-rare-disease-nord-on-help-4-hd-liveTue, 04 Oct 2016 20:00:00 +0000Help 4 HD Live!NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 250 patient organization members,  is committed to the...2446falsefullhttps://www.spreaker.com/episode/help-4-hd-international-symposium-2016-florida--63401203http://www.blogtalkradio.com/help4hd/2016/09/28/help-4-hd-international-symposium-2016-floridaWed, 28 Sep 2016 20:00:00 +0000Help 4 HD Live!Join us to hear about all the exciting speaker and activities that are taking place at this years annual symspoium in Florida. https://www.research.net/r/symposium-registration  2339help 4 hd,huntington's disease,sympsoium 2016falsefullhttps://www.spreaker.com/episode/scottish-huntington-s-association-youth-project--63401174http://www.blogtalkradio.com/help4hd/2016/09/21/scottish-huntingtons-association-youth-projectWed, 21 Sep 2016 20:00:00 +0000Help 4 HD Live!SHAYP (Scottish Huntington's Association Youth Project) has existed for 15 years and provides support to young people aged 8-25 living in families impacted by Huntington's disease throughout Scotland. SHAYP provide one to one support, group work...2395help 4 hd,huntington's disease,scottish huntington's associatfalsefullhttps://www.spreaker.com/episode/help-4-jhd-live-lisa-mooney--63401195http://www.blogtalkradio.com/help4hd/2016/09/14/help-4-jhd-live-lisa-mooneyWed, 14 Sep 2016 20:00:00 +0000Help 4 HD Live!Join us to hear Deena Cannastraci interview social worker Lisa Mooney from UC Davis about topics that will help families living with a child with Juvenile Huntington's disease.2489help 4 hd,help 4 jhd,huntingtingtons disease,juvenile huntingtons diseasefalsefullhttps://www.spreaker.com/episode/ask-dr-goodman-the-problem-s-with-drug-treatments-for-hd--63401185http://www.blogtalkradio.com/help4hd/2016/09/07/ask-dr-goodman-the-problems-with-drug-treatments-for-hdWed, 07 Sep 2016 20:00:00 +0000Help 4 HD Live!Tune in to hear Dr. Goodman speak about Akathisia. Akathisia isa state of agitation, distress, and restlessness that is an occasional side-effect of antipsychotic drugs.  visit www.hddrugworks.com to read the whole article about "The Problem(s) with...2415help 4 hd,help 4 hd international,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/be-hd-aware-live-for-life-foundation--63401206http://www.blogtalkradio.com/help4hd/2016/08/31/be-hd-aware-live-for-life-foundationWed, 31 Aug 2016 20:00:00 +0000Help 4 HD Live!2010 was the start for all involved with the foundation, Talks with MPS; Angela Constance, Fiona Hislop and then Scotland's First Minister; Alex Salmond to ask them to support our foundation so we could achieve our goals and let Scotland be HD / JHD...2755falsefullhttps://www.spreaker.com/episode/florida-s-annual-summer-police-chief-s-conference-and-exposition--63401159http://www.blogtalkradio.com/help4hd/2016/08/24/floridas-annual-summer-police-chiefs-conference-and-expositionWed, 24 Aug 2016 20:00:00 +0000Help 4 HD Live!Tune into to hear about all that went on at this years Florida's Police Chiefs Conference. Help 4 HD International had a booth there and was able to bring HD awareness to this very important event!1826help4hd,huntingtons disease,law enforcement education,leepfalsefullhttps://www.spreaker.com/episode/roshni-bhatt-joins-help-4-hd-radio-to-discuss-her-research-in-india--63401162http://www.blogtalkradio.com/help4hd/2016/08/17/roshni-bhatt-joins-help-4-hd-radio-to-discuss-her-research-in-indiaWed, 17 Aug 2016 20:00:00 +0000Help 4 HD Live!We are excited to have Roshni Bhatt on Help 4 hd Radio to dicuss her research and background in studying Huntington's disease.  Here is Roshni Bhatt'sresearch interest from her CV. Research Interest: I have designed an in-silico biochemical pathway...2030falsefullhttps://www.spreaker.com/episode/huntington-s-waltz-peter-lehndorff--63401191http://www.blogtalkradio.com/help4hd/2016/08/10/huntingtons-waltz-peter-lehndorffWed, 10 Aug 2016 20:00:00 +0000Help 4 HD Live!GRAPHICS: During the day I am a graphic designer. My wife, Kathy went from being a fine artist doing mixed media sculptural pieces to helping me in my design business. CAREGIVING: For over ten years, I was my late wife Kathy's full-time caregiver....2690help 4 hd,help 4 hd international,huntington's disease,the huntington's waltzfalsefullhttps://www.spreaker.com/episode/the-dr-goodman-show--63401177http://www.blogtalkradio.com/help4hd/2016/08/03/the-dr-goodman-showWed, 03 Aug 2016 20:30:00 +0000Help 4 HD Live!Dr. Goodman has a open show today where she will answer questions from the community. 2796falsefullhttps://www.spreaker.com/episode/ask-dr-goodman-show-genetic-testing-guidelines--63401219http://www.blogtalkradio.com/help4hd/2016/07/07/ask-dr-goodman-show-genetic-testing-guidelinesThu, 07 Jul 2016 20:00:00 +0000Help 4 HD Live!Tune in to hear Dr. Goodman talk about the genetic testing criteria associated with Huntington’s disease. There has been a lot of confusion within the community about genetic testing criteria and what it means. If anyone has questions for Dr. Goodman...2668genetic testing,huntington's diseasefalsefullhttps://www.spreaker.com/episode/help-4-jhd-live-peer-to-peer--63401233http://www.blogtalkradio.com/help4hd/2016/06/23/help-4-jhd-live-peer-to-peerThu, 23 Jun 2016 20:00:00 +0000Help 4 HD Live!Two moms, one at the beginning of her journey and one at the end of her journey, talk about raising a child with JHD. This will be a show full of advicefor families living with JHD from the people who know best, the JHD families.2676help4jhd,jhd,juvenile huntingtons diseasefalsefullhttps://www.spreaker.com/episode/sam-frank-talks-first-hd-and-arc-trials-sponsored-by-teva--63401217http://www.blogtalkradio.com/help4hd/2016/06/15/sam-frank-talks-first-hd-and-arc-trials-sponsored-by-tevaWed, 15 Jun 2016 20:00:00 +0000Help 4 HD Live!Samuel Frank is a movement disorder neurologist at Beth Israel Deaconess Medical Center (BIDMC), a teaching hospital for Harvard Medical School. After completing his residency and fellowship at the University of Rochester, he joined the neurology...1430falsefullhttps://www.spreaker.com/episode/help-4-jhd-live-peer-to-peer--63401241http://www.blogtalkradio.com/help4hd/2016/06/02/help-4-jhd-live-peer-to-peerThu, 02 Jun 2016 20:00:00 +0000Help 4 HD Live!Deena is a wife and mother of three beautiful children. Her husband was diagnosed with HD two years ago and is now in the mid stages of the disease. Most recently, her youngest child was diagnosed with childhood-onset JHD at age 4. Her other 2 kids...4730hd,huntington's disease,jhd,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/author-therese-crutcher-marin--63401224http://www.blogtalkradio.com/help4hd/2016/05/25/author-therese-crutcher-marinWed, 25 May 2016 18:00:00 +0000Help 4 HD Live!Therese Crutcher-Marin, who has a Masters in Health Care Administration, is retired from Sutter Auburn Faith Hospice, having worked in health care for twenty years. She is publishing her first non-fiction book, a heartfelt memoir, whose proceeds will...1927falsefullhttps://www.spreaker.com/episode/help-4-jhd-live--63402886http://www.blogtalkradio.com/help4hd/2016/05/19/help-4-jhd-liveThu, 19 May 2016 20:00:00 +0000Help 4 HD Live!Tune in to hear Dr. Kyle Fink and Dr. Peg Nolpoulos give us a overview and answer questions about their presentations they recently gave at Help 4 HD International Symposium, Sacramento. https://vimeo.com/166162213 https://vimeo.com/166162226...3408help 4 hd,huntington's disease,juvenile huntington's diseasefalsefullhttps://www.spreaker.com/episode/dr-nancy-wexler-on-help4hd-live--63402983http://www.blogtalkradio.com/help4hd/2016/05/18/dr-nancy-wexler-on-help4hd-liveWed, 18 May 2016 20:00:00 +0000Help 4 HD Live!Wednesday, May 18 at 1:00 pm PST/4:00 pm EST We are so honored and priviledged to have Dr. Nancy Wexler on Help4HD Live! The "Blond Angel" the "Gene Hunter" as she is so endeard by her subjects, has devoted her life and career as a Geneticist to...43982016 muller award,hereditary disease foundation,huntington disease,venezuela huntingtons disease falsefullhttps://www.spreaker.com/episode/the-huntington-study-group-on-help-4-hd-live--63402822http://www.blogtalkradio.com/help4hd/2016/05/11/the-huntington-study-group-on-help-4-hd-liveWed, 11 May 2016 20:00:00 +0000Help 4 HD Live!The Huntington Study Group is a world leader in facilitating high-quality clinical research trials and studies in Huntington disease (HD). HSG has the first and largest HD clinical research network of over 400 active and compassionate investigators,...1824falsefullhttps://www.spreaker.com/episode/ask-dr-goodman-show-on-psychosis--63403041http://www.blogtalkradio.com/help4hd/2016/05/04/ask-dr-goodman-show-on-psychosisWed, 04 May 2016 20:00:00 +0000Help 4 HD Live!Join us to hear Dr. Goodman speak about psychosis. Pyschosis is a symptom associated with Huntington's disease that can have a great impact on familes. Psychosis, like many psychiatric symptoms, may have been symtom that was not talked about. It was...3186falsefullhttps://www.spreaker.com/episode/jimmy-pollard--63402830http://www.blogtalkradio.com/help4hd/2016/04/27/jimmy-pollardWed, 27 Apr 2016 20:00:00 +0000Help 4 HD Live!In 1986, Jimmy Pollard, a special education teacher by training, found himself managing a specialist unit in a nursing home. Unaware of Huntington’s disease, he rejected for admission a young woman living with it. Her mother gently persuaded him to...2760falsefullhttps://www.spreaker.com/episode/help-4-hd-affordability-shop-and-resource-center--63402926http://www.blogtalkradio.com/help4hd/2016/04/20/help-4-hd-affordability-shop-and-resource-centerWed, 20 Apr 2016 20:00:00 +0000Help 4 HD Live!Liten to Katrina Hamel talk about all that is going on at Caring 4 HD Affordabilty Shop and Resource Center. 1641falsefullhttps://www.spreaker.com/episode/one-woman-s-amazing-story-about-her-journey-finding-out-about-hd--63402985http://www.blogtalkradio.com/help4hd/2016/04/13/one-womans-amazing-story-about-her-journey-finding-out-about-hdWed, 13 Apr 2016 20:00:00 +0000Help 4 HD Live!We are exciting to have Lisa Davenport on Help 4 HD Live to talk about her great jouney to find her birth mother. Hear about her going back in time to the 1500's tracking her biologic families hystory trying to find one answer, who was her biologic...2939falsefullhttps://www.spreaker.com/episode/kids-hd-study-update--63403016http://www.blogtalkradio.com/help4hd/2016/03/30/kids-hd-study-updateWed, 30 Mar 2016 20:00:00 +0000Help 4 HD Live!Hear Dr. Peg Nopoulos speak about an ongoing study run by her and her research team at the University of Iowa. The study looks at the brain structure and brain function in kids from Huntington's disease families to determine how the brain develops in...2702falsefullhttps://www.spreaker.com/episode/what-a-difference-a-dedicated-social-worker-can-make-in-so-many-lives--63402913http://www.blogtalkradio.com/help4hd/2016/03/23/what-a-difference-a-dedicated-social-worker-can-make-in-so-many-livesWed, 23 Mar 2016 20:00:00 +0000Help 4 HD Live!We are excited to have Amanda Miller on the show!  Amanda has done wonderful things as far as supporting HD and JHD families. This is going to be a great show for JHD. Amanda has visited schools where a child with JHD is attending to talk to the...3467falsefullhttps://www.spreaker.com/episode/huntington-s-disease-law-enforcement-education-program--63402834http://www.blogtalkradio.com/help4hd/2016/03/16/huntingtons-disease-law-enforcement-education-programWed, 16 Mar 2016 20:00:00 +0000Help 4 HD Live!Tune in to hear Vicki  Owen and Deborah Bunting discuss all that they are doing to educate law enforcement in the state of Florida.2666falsefullhttps://www.spreaker.com/episode/sharon-thomason-talks-about-life-interrupted-and-her-over-30-years-of-advocacy--63402840http://www.blogtalkradio.com/help4hd/2016/03/09/sharon-thomason-talks-about-life-interrupted-and-her-over-30-years-of-advocacy-1Wed, 09 Mar 2016 21:00:00 +0000Help 4 HD Live!Sharon Thomason, managing editor at Help 4 HD, talks about her over 30 years of advocacy an being a HD caregiver. She will also speak about what it was like heading up "Life Interrupted." Sharon's son just went through a new genetic test that offers...2965falsefullhttps://www.spreaker.com/episode/ask-dr-goodman--63402923http://www.blogtalkradio.com/help4hd/2016/03/02/ask-dr-goodmanWed, 02 Mar 2016 21:00:00 +0000Help 4 HD Live!Tune in to hear Dr. LaVonne Goodman speak about the psychiatric symptoms often associated with Huntington's disease. This is the first show to kick off a series of shows, "Breaking the Stigma, Let's Talk Psychiatric Symptoms."  One thing that was loud...2282dr. goodman,huntington's diseasefalsefullhttps://www.spreaker.com/episode/dr-mary-edmondson-ann-lassiter-of-hd-reach--63402944http://www.blogtalkradio.com/help4hd/2016/02/29/dr-mary-edmondson-ann-lassiter-of-hd-reachMon, 29 Feb 2016 23:30:00 +0000Help 4 HD Live!Monday, February 29 at 3:30 pm PST/6:30 pm EST Join us for a really fantastic show with sisters Dr. Mary Edmondson and Ann Lassiter of HD Reach in North Carolina. Mary the founder of HD Reach and her group has been problem solving about what prevents...3192duke university,hd care,hd reach,help4hd radio,wake forestfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-kevin-mccormack-from-cirm--63402933http://www.blogtalkradio.com/help4hd/2016/02/09/the-hd-view-with-kevin-mccormack-from-cirmTue, 09 Feb 2016 23:30:00 +0000Help 4 HD Live!Tonight our incredible special guest is Kevin McCormack, the communications director at CIRM, California’s stem cell institute. Kevin is also a dear friend of Help4HD and was a featured keynote speaker at our first symposium in 2014. He considers...2968cirm,fda,patient advocacy,stem cell therapyfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63402943http://www.blogtalkradio.com/help4hd/2016/01/12/the-hd-view-ask-dr-goodmanTue, 12 Jan 2016 23:30:00 +0000Help 4 HD Live!Tuesday, January 12, 2016 - 3:30 pm PST/6:30 pm EST Huntington's Disease Care Posted January 10, 2016 by LaVonne Veatch Goodman, M.D. There have been a number of studies about the impact and burden of Huntington's disease (HD) on both those affected...3279huntington's disease carefalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63402948http://www.blogtalkradio.com/help4hd/2015/12/15/the-hd-view-ask-dr-goodmanTue, 15 Dec 2015 23:30:00 +0000Help 4 HD Live!TUESDAY, DECEMBER 15, 2015: 3:30 PM PST The Huntington Study Group (HSG) hosted more than 400 attendees from around the world that included expert clinicians, researchers, and coordinators of clinical studies at their annual meeting in late October....2434hdsa,help4hd,hsg,sd-809,tevafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-mr-alan-a-pfeffer-esq--63403035http://www.blogtalkradio.com/help4hd/2015/10/27/the-hd-view-with-mr-alan-a-pfeffer-esqTue, 27 Oct 2015 22:30:00 +0000Help 4 HD Live!TUESDAY, OCTOBER 27, 2015 - 3:30PM PST/6:30 PM EST Death with Dignity Law is the topic of our show today. This is not an easy topic to talk about, unless, you are facing an ultimately fatal condition with debilitating pain and suffering which has no...4196centers of excellence,death with dignity law,huntington disease,neurodegenerative diseases,nys dept of healthfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402896http://www.blogtalkradio.com/help4hd/2015/10/06/the-hd-view-ask-dr-goodman-showTue, 06 Oct 2015 22:30:00 +0000Help 4 HD Live!TUESDAY, OCTOBER 6, 2015 - 3:30 pm PST/6:30 pm EST We will be talking about Dr. Goodman's recent article: Antipsychotics and Tetrabenezine: More Rapid Pregression of HD? Dr. Goodman writes... In a recent publication in the Journal for Huntington's...3159antipsychotic drugs,dr. lavonne goodman,hd care,hd research,huntington's diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-legato-hd-with-dr-andrew-feigin-dr-karen-elta-anderson--63402996http://www.blogtalkradio.com/help4hd/2015/09/22/the-hd-view-legato-hd-with-dr-andrew-feigin-dr-karen-elta-andersonTue, 22 Sep 2015 21:00:00 +0000Help 4 HD Live!TUESDAY, SEPT 22, 2015 ~ 2:00 PM PST/5:00 PM EST Tonight we have two of our most favorite incredible special guests, Dr. Karen Elta Anderson, Director at Georgetown/MedStar HD Clinic and Dr. Andrew Feigin, Director at the HD Center North Shore-LIJ...2914hsg,huntington disease,legato-hd,liquinimod,teva neurosciencefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-kyle-fink--63402862http://www.blogtalkradio.com/help4hd/2015/09/15/the-hd-view-with-dr-kyle-finkTue, 15 Sep 2015 22:30:00 +0000Help 4 HD Live!TUESDAY, SEPTEMBER 15 - 3:30 pm PST/6:30 pm EST Happy Tuesday everyone!  This is Melissa Biliardi, your host. Our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show.  Thank you 95 thousand...3579help4hd,huntington's disease,ipsc's,jhd research,uc davis ircfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-andrew-feigin-md--63402994http://www.blogtalkradio.com/help4hd/2015/08/14/the-hd-view-with-dr-andrew-feigin-mdFri, 14 Aug 2015 18:00:00 +0000Help 4 HD Live!FRIDAY, AUGUST 14, 2015: 2:00 PM EST Tonight we have a very special show with Dr. Andrew Feigin, Professor of Neurology and Director of the Huntington’s Disease Center at North Shore University Hospital and the Director of the Laboratory of...2086hdsa,hsg,huntington's disease,vaccinex,vx15falsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-ottavio-vitolo-md-mms--63403002http://www.blogtalkradio.com/help4hd/2015/08/13/the-hd-view-with-dr-ottavio-vitolo-md-mmsThu, 13 Aug 2015 22:30:00 +0000Help 4 HD Live!THURSDAY, AUGUST 13, 2015: 6:30 PM EST Tonight we have a very special show with Dr. Ottavio V. Vitolo a neuropsychiatrist and Medical Director at Pfizer Inc. He is the Research Project Lead and Global Clinical Lead for the PDE10 in Huntington’s...1772amaryllis clinica study,hdsa,help4hd,huntington's disease,pfizer incfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402871http://www.blogtalkradio.com/help4hd/2015/07/07/the-hd-view--ask-dr-goodman-showTue, 07 Jul 2015 22:30:00 +0000Help 4 HD Live!Happy Tuesday everyone!  This is the Ask Dr. Goodman Show and this is Melissa Biliardi, your host. Tonight our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show. Thank you 93,000 listeners...3752dr. lavonne goodman,hd clinical trials,hd drug works,pride hd,pridopidinefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-george-yohrling--63402870http://www.blogtalkradio.com/help4hd/2015/06/30/the-hd-view-with-dr-george-yohrlingTue, 30 Jun 2015 22:30:00 +0000Help 4 HD Live!Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's  newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz,...3719hd buzz,hd drug works,hdsa,hsg,huntington society of canadafalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-guests--63403014http://www.blogtalkradio.com/help4hd/2015/06/02/the-hd-view-ask-dr-goodman-guestsTue, 02 Jun 2015 22:30:00 +0000Help 4 HD Live!TUESDAY JUNE 2, 2015 - 3:30 pm PST Tonight we have a special show with two of Dr. Goodman’s incredible friends who are working directly with the homeless community in Washington State.  As many of you know Huntington’s disease sufferers sometimes end...3439care providers,compassion,homeless,nursing homes,sheltersfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403012http://www.blogtalkradio.com/help4hd/2015/05/05/the-hd-view-ask-dr-goodman-showTue, 05 May 2015 22:30:00 +0000Help 4 HD Live!Let's talk about caregiving!  Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones.  Many of us are dealing with so much loss before the loss and after the loss of our loved ones.  If you are a...3471caregiving,caregiving stress,carersfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jimmy-pollard--63402951http://www.blogtalkradio.com/help4hd/2015/04/14/the-hd-view-with-jimmy-pollardTue, 14 Apr 2015 22:30:00 +0000Help 4 HD Live!Tuesday, April 14 - 3:30 pm The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight.  Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD...2992books,clinical trials,enroll-hd,huntington's diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402936http://www.blogtalkradio.com/help4hd/2015/04/07/the-hd-view-ask-dr-goodman-showTue, 07 Apr 2015 22:30:00 +0000Help 4 HD Live!What is Laqunimod?  Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS).  This drug is thought to affect (or modulate) immune...2086hdf,hdsa,help4hd,hsg,tevafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-patricia-ortiz-vp-patient-liaison--63402949http://www.blogtalkradio.com/help4hd/2015/03/31/the-hd-view-with-patricia-ortiz-vp-patient-liaisonTue, 31 Mar 2015 20:00:00 +0000Help 4 HD Live!TUESDAY, MARCH 31 - 1:00 PM PST Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the...2226clinical trials,drug development,hd,lam,rare diseasesfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-peg-nopoulos-kids-hd-kids-jhd--63402967http://www.blogtalkradio.com/help4hd/2015/03/17/the-hd-view-with-dr-peg-nopoulos-kids-hdkids-jhdTue, 17 Mar 2015 22:30:00 +0000Help 4 HD Live!TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa.  We will be talking about the clinical study called Kids-HD/Kids-JHD.  This study...4530chdi,hdsa,huntington's disease,juvenile huntington's disease,university of iowafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-margaret-tollerton-missouri-cures--63402879http://www.blogtalkradio.com/help4hd/2015/03/10/the-hd-view-with-margaret-tollerton-missouri-curesTue, 10 Mar 2015 22:30:00 +0000Help 4 HD Live!Tuesday, March 10, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guest is Margaret Tollerton who is the Statewide Outreach Director for the Missouri Cures Education Foundation. She brings with her three decades of marketing,...3780als,cancer,huntington's disease,medical conditios,parkinson's diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402960http://www.blogtalkradio.com/help4hd/2015/03/03/the-hd-view-ask-dr-goodman-showTue, 03 Mar 2015 23:30:00 +0000Help 4 HD Live!ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article... "PRIDE-HD: Why We Should Bother" Recruitment is not going well for PRIDE-HD, an important clinical trial...3041hd clinical trials,hd research,huntington's disease,neurogenetic,pridopidinefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-trey-gray-doug-michael--63402963http://www.blogtalkradio.com/help4hd/2015/02/05/the-hd-view-with-trey-gray-doug-michaelThu, 05 Feb 2015 23:30:00 +0000Help 4 HD Live!Tonight, we have two very incredible special guests here with us to share their story and mission to raise research dollars to find the cure for Huntington’ disease. Trey Gray (touring drummer in Nashville) and Doug Michael (recording engineer), best...2470bike for a cure,bike tour for hd,hd fundraising,huntingtons disease awareness,trey gray fund for huntingtonsfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402965http://www.blogtalkradio.com/help4hd/2015/02/03/the-hd-view-ask-dr-goodman-showTue, 03 Feb 2015 23:30:00 +0000Help 4 HD Live!TUESDAY, FEBRUARY 3, 2015 - 3:30 PM PST/6:30 PM EST Tonight Dr. Goodman will be talking about aggression in Huntington’s disease. A recent article reports that aggression is common in individuals with Huntington's disease. Authors report rates of...2928agressive behavior,ask dr goodman show,hd drug works,huntingtons disease,jama neurologyfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-attorney-esther-wang--63402972http://www.blogtalkradio.com/help4hd/2015/01/27/the-hd-view-with-attorney-esther-wangTue, 27 Jan 2015 19:00:00 +0000Help 4 HD Live!TUESDAY, JANYARY 27, 2015 - 11:00 am PST/2:00 pm EST Tonight our incredible special guest is Attorney Esther Wang, a very special person to our Huntington's community in the Riverside County, California area and someone who has been providing quality...3612jhd planning,medicaid,social security,special needs trust,va benefitsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-victor-sung--63402962http://www.blogtalkradio.com/help4hd/2015/01/13/the-hd-view-with-dr-victor-sungTue, 13 Jan 2015 21:30:00 +0000Help 4 HD Live!Tuesday, January 12, 2015 - 1:30 pm PST/3:30 pm CST/4:30 pm EST Dr. Victor Sung is Assistant Professor, Department of Neurology, Division of Movement Disorders at the University of Alabama at Birmingham. This afternoon we will talk about his HD...3157clinical trials,cns,hsg,huntingtons disease,neurological brain disorderfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403011http://www.blogtalkradio.com/help4hd/2015/01/06/the-hd-view-ask-dr-goodman-showTue, 06 Jan 2015 23:30:00 +0000Help 4 HD Live!Tuesday, January 6, 2015 Happy New Year! Tonight Ask Dr. Goodman about deciphering clinical trial data. We just happen to have some very exciting positive topline results to talk about from Auspex Pharmaceuticals Phase 3 registration trial of SD-809...2264auspex pharmaceutials inc,clinical trials,hd drug works,huntington's disease,sd-809falsefullhttps://www.spreaker.com/episode/the-hd-view-celebrating-the-advocates-prerecorded--63402912http://www.blogtalkradio.com/help4hd/2014/12/23/the-hd-view-celebrating-the-advocates-prerecordedTue, 23 Dec 2014 23:30:00 +0000Help 4 HD Live!Hello everyone and Happy Holidays to all. Tonight we are re-running Celebrating The Advocates.These four amazine women who are JHD/HD advocates and caregivers deserve gold medals in my book. We wish to honor them and encourage them in this...3640advocates,caregivers,huntingtons disease,juvenile huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-celebrates-the-jhd-hd-advocates--63402981http://www.blogtalkradio.com/help4hd/2014/12/16/the-hd-view-celebrates-the-jhdhd-advocatesTue, 16 Dec 2014 23:30:00 +0000Help 4 HD Live!Tuesday, December 16, we are celebrating all of our amazing JHD/HD advocates who give of their time and energy so willingly and freely to make a difference for their loved ones and for our community members who are suffering from Juvenile Huntington's...3640community,hd advocates,huntington disease,jhd advocates,juvenile huntington diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-frances-saldana--63403023http://www.blogtalkradio.com/help4hd/2014/12/09/help-4-hd-news-update-with-frances-saldanaTue, 09 Dec 2014 23:30:00 +0000Help 4 HD Live!Tuesday, December 9, 2014 3:30 pm PST/6:30 pm EST With suprise guest HD researcher Dr. Leslie Thompson from the University of California at Irvine and Super HD Advocate Warrior, Frances Saldana, will be here to give us an update on HD research at UCI...1815basal ganglia disease,brain diseases,genetic disease inborn,hd research,huntingtons disease researchfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402995http://www.blogtalkradio.com/help4hd/2014/12/02/the-hd-view-ask-dr-goodman-showTue, 02 Dec 2014 23:30:00 +0000Help 4 HD Live!Tuesday, December 2, 2014 - 3:30 pm PST/6:30 pm EST Tonight we will be discussing Dr. Goodman's latest article "2014: A Yin-Yang year for HD". She writes: "Particularly during this past year, living with Huntington's disease (HD) has been full of...3277clinical trials,hd research,huntington disease,neurology,tevafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-margaret-gallardo-from-mexico-city--63402903http://www.blogtalkradio.com/help4hd/2014/11/25/the-hd-view-with-margaret-gallardo-from-mexico-cityTue, 25 Nov 2014 23:30:00 +0000Help 4 HD Live!This show was pre-recorded. We wish to play this show today as Help 4 HD Director of International Affairs, Daniel Medina is in Mexico City right now visiting Margaret and her center.  Margaret D’Aiuto Martarano de Gallardo was born in California she...3700hd care centers,huntington disease,mexico city,neuology,nursingfalsefullhttps://www.spreaker.com/episode/help-4-hd-interview-with-dr-andrew-mcgarry--63403045http://www.blogtalkradio.com/help4hd/2014/11/18/help-4-hd-interview-with-dr-andrew-mcgarryTue, 18 Nov 2014 23:30:00 +0000Help 4 HD Live!Tuesday, November 18, 2014 – 3:30 pm PST/6:30 pm EST Our incredible special guest is Dr. Andrew McGarry from Cooper University NJ, who is Co-PI for the PRIDE-HD study in the USA, which is sponsored by Teva Branded Pharmaceutical Products R&D and...3785basal ganglia disease,brain diseases,hd research,huntingtons disease drug trial,pharmacuetical companiesfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-louise-vetter-ceo-hdsa--63403008http://www.blogtalkradio.com/help4hd/2014/11/11/help-4-hd-news-update-with-louise-vetter-ceo-hdsaTue, 11 Nov 2014 23:30:00 +0000Help 4 HD Live!Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.   We will be...3264centers of excellence,hd research,hdsa,huntingtons disease,rare diseasesfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402917http://www.blogtalkradio.com/help4hd/2014/11/04/the-hd-view-ask-dr-goodman-showTue, 04 Nov 2014 23:30:00 +0000Help 4 HD Live!TUESDAY, NOVEMBER 4, 2014 Dr. Goodman writes, “Bummed" was what this author felt after the recent announcement of (HD).  We can put some positive spins on recent trial failures; we have learned how to run large clinical trials, we can learn from...3421clinical trials,crest-e,hd drug works,hsg,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-claudia-testa-pre-recorded--63403004http://www.blogtalkradio.com/help4hd/2014/10/28/the-hd-view-with-dr-claudia-testa-pre-recordedTue, 28 Oct 2014 22:30:00 +0000Help 4 HD Live!PRE-RECORDED - TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center....3592claudia testa,huntingtons disease,neurology,parkinsons disease,vcu parkinsons centerfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-regenerative-medicine-foundation-and-kelly-milukas--63402953http://www.blogtalkradio.com/help4hd/2014/10/21/the-hd-view-with-regenerative-medicine-foundation-and-kelly-milukasTue, 21 Oct 2014 22:30:00 +0000Help 4 HD Live!PRE-RECORDED TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have...3792national regenerative medicine,regenerative medicine therapie,rmf,stem cell therapy,wakeforestfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-dan-van-kammen-dr-lorna-speid--63402919http://www.blogtalkradio.com/help4hd/2014/10/14/the-hd-view-with-dr-dan-van-kammen-dr-lorna-speidTue, 14 Oct 2014 22:30:00 +0000Help 4 HD Live!  TUESDAY, OCTOBER 14, 2014 We are very pleased to have Dr.’s Daniel Van Kammen and Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She will...3567bipolar disorder,clinical trials,huntingtons disease,neurology,schitzophreniafalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402971http://www.blogtalkradio.com/help4hd/2014/10/07/the-hd-view--ask-dr-goodman-showTue, 07 Oct 2014 22:30:00 +0000Help 4 HD Live!  Tonight our topic for discussion is “Gastrointestinal Problems in Huntington's disease” Also read Dr. Goodman’s article http://hddrugworks.org/index.php?option=com_content&task=view&id=341&Itemid=30 Dr. Goodman writes, “Human study...3090ask dr goodman,dr goodman,hd care,hd drug works,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-kristen-powers-twitch-documentary--63403026http://www.blogtalkradio.com/help4hd/2014/09/30/the-hd-view-with-kristen-powers-twitch-documentaryTue, 30 Sep 2014 22:30:00 +0000Help 4 HD Live!Tonight our incredible special guest is none other than the famous and super powerful Kristen Powers, creator of “Twitch” the documentary about her journey with Huntington’s disease, the possibility that she has inherited the same fate as her mother...2728documentary films,film,hd awareness,hd education,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-lorna-speid-phd--63403058http://www.blogtalkradio.com/help4hd/2014/09/23/the-hd-view-with-lorna-speid-phdTue, 23 Sep 2014 22:30:00 +0000Help 4 HD Live!Tonight we welcome back to the show, Dr. Lorna Speid who works in the pharmaceutical industry as a regulatory affairs and drug development consultant. We will be talking about the role of the PI (Principal Investigator) in clinical trials. After...3565clinical trials,huntingtons disease,pharmaceutical companies,pi,principal investigatorsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-vicki-wheelock-and-pre-cell--63402968http://www.blogtalkradio.com/help4hd/2014/09/09/the-hd-view-with-dr-vicki-wheelock-and-pre-cellTue, 09 Sep 2014 22:30:00 +0000Help 4 HD Live!Pre-Recorded I am extremely honored and excited to introduce our incredible special guest/s tonight Dr. Vicki Wheelock/and Teresa Tempkin RNC, MSN, ANP… Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology...3653stem cell therapy,uc davisfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show-3-5-12--63402999http://www.blogtalkradio.com/help4hd/2014/09/02/the-hd-view-ask-dr-goodman-show-3-5-12Tue, 02 Sep 2014 22:30:00 +0000Help 4 HD Live!PRE RECORDED ON 3-5-12 Ask Dr. Goodman is back... tonight we ar going to talk about why a healthy life style is important in HD.  A big part of the answer include factors that promote the process of neuroplasticity. The "plasticity" part of...4587exercise,healty lifestyle,huntington's disease,nutrition,sleepfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-carla-muller-a-place-for-mom--63403030http://www.blogtalkradio.com/help4hd/2014/08/26/the-hd-view-with-carla-muller--a-place-for-momTue, 26 Aug 2014 22:30:00 +0000Help 4 HD Live!Today, our incredible special guest is Carla Muller, Eldercare Advisor at A Place For Mom, connecting families to senior care and dementia care. A Place For Mom is the Nation's largest senior care information service. Learn about assisted living...3696dementia care,longterm care,senior carefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-author-mona-gable--63402979http://www.blogtalkradio.com/help4hd/2014/08/19/the-hd-view-with-author-mona-gableTue, 19 Aug 2014 22:30:00 +0000Help 4 HD Live!TUESDAY, AUG 19, 3:30 PM PST/6:30 PM EST - Call in: 310-982-4227 or toll free: 877-497-4103 Tonight our incredible special guest is the intelligent and beautiful Mona Gable, a freelance writer in Los Angeles and the author of “Blood Brother: The Gene...3242books,huntington disease,mona gable,the sacramento bee,writersfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403039http://www.blogtalkradio.com/help4hd/2014/08/05/the-hd-view--ask-dr-goodman-showTue, 05 Aug 2014 22:30:00 +0000Help 4 HD Live!TUESDAY, AUG 5, 2014 - 3:30 PM PST/6:30 PM EST Swallowing difficulty and Huntington's disease Posted August 3, 2014, by LaVonne Goodman, M.D. Dysphagia, or difficulty swallowing, is a big problem in Huntington's disease (HD), but surprisingly...3550ask dr goodman,dysphagia,hd drug works,huntington disease,swallowing dysfunctionfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-lorna-speid--63403029http://www.blogtalkradio.com/help4hd/2014/07/29/the-hd-view-with-dr-lorna-speidTue, 29 Jul 2014 22:30:00 +0000Help 4 HD Live!We are very pleased to have Dr. Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She has a practice in the development of new treatments for...3957clinical trials,fda,huntingtons disease,pharma industry,regulatory affairsfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403027http://www.blogtalkradio.com/help4hd/2014/07/08/the-hd-view-ask-dr-goodman-showTue, 08 Jul 2014 22:30:00 +0000Help 4 HD Live!Tonight we will talk about preimplantation genetic diagnosis or (PGD) for Huntington’s disease with Dr. Goodman. Read her article on www.HDDrugworks.org titled: PGD for the Prevention of HD....2882dr goodman,huntington disease,ivf,pgdfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-claudia-testa--63402882http://www.blogtalkradio.com/help4hd/2014/06/17/the-hd-view-with-dr-claudia-testaTue, 17 Jun 2014 22:30:00 +0000Help 4 HD Live!TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims...3592claudia testa,huntington disease,neurology,parkinson disease,vcu parkinsons centerfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-first-hd-and-arc-hd--63402976http://www.blogtalkradio.com/help4hd/2014/05/27/help-4-hd-news-update-with-first-hd-and-arc-hdTue, 27 May 2014 22:30:00 +0000Help 4 HD Live!Happy Tuesday everyone! Tonight we are going to get an update on the HSG Clinical Trial for Huntington's disease called First-HD and ARC-HD. Our incredible special guests are: Samuel Frank, MD – First-HD and ARC-HD PI Claudia Testa, MD, PhD –...2285arc hd,auspex pharmaceuticals,first hd,hsg,huntington study groupfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-vicki-wheelock-pre-cell--63402909http://www.blogtalkradio.com/help4hd/2014/05/20/the-hd-view-with-dr-vicki-wheelock-pre-cellTue, 20 May 2014 22:30:00 +0000Help 4 HD Live!PreRecorded 2-11-2014 Our incredible special guest: Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology Residency Program, Director Huntington’s Disease Clinic, Site Investigator, Huntington Study Group and...3645clinical trials,dr vicki wheelock,pre cell,regenerative medicine,uc davis neurologyfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-pontow--63403038http://www.blogtalkradio.com/help4hd/2014/05/13/the-hd-view-with-dr-pontowTue, 13 May 2014 22:30:00 +0000Help 4 HD Live!Tonight our incredible special guest is: Suzanne Pontow, PhD, is a cell biologist focusing her research on neonatal stem cells at the Institute for Regenerative Cures within the UC Davis Health System in Sacramento.  Dr. Pontow received her BS in...3163cord blood,dr pontow,institute for regenerative med,regenerative medicine,uc davisfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402982http://www.blogtalkradio.com/help4hd/2014/05/06/the-hd-view-ask-dr-goodman-showTue, 06 May 2014 22:30:00 +0000Help 4 HD Live!Tonight Dr. Goodman is back with us… we will be talking with her about the role we take as caregivers… the hazards and the rewards. Read her newest article “Caregiving: A Risky Profession?” posted on May 4th on www.hddrugworks.org. Direct Link to The...3471caregiving,dr goodman,health risks,huntingtons disease,rewarding professionsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-regenerative-medicine-foundation-kelly-milukas--63402984http://www.blogtalkradio.com/help4hd/2014/04/29/the-hd-view-with-regenerative-medicine-foundation-kelly-milukasTue, 29 Apr 2014 22:30:00 +0000Help 4 HD Live!TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have four amazing...3792kelly milukas,keys to the cure,regenerative medicine foundati,rmf,stem cell researchfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-emily-fisher-msc-medical-genetics--63403031http://www.blogtalkradio.com/help4hd/2014/04/22/the-hd-view-with-emily-fisher-msc-medical-geneticsTue, 22 Apr 2014 22:30:00 +0000Help 4 HD Live!PRE-RECORDED TUESDAY, July 9, 2013 Tonight our incredible special guest is Emily Fisher, MSc Medical Genetics, Centre for Molecular Medicine and Therapeutics at the University of British Columbia. In 2012, Emily Fisher completed her Master's degree...3066canada,genetic counseling,huntington disease,usafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-matt-austin-chris-furbee--63403052http://www.blogtalkradio.com/help4hd/2014/04/15/the-hd-view-with-matt-austin-chris-furbeeTue, 15 Apr 2014 22:30:00 +0000Help 4 HD Live!Chris Furbee and Matt Austin are here with us to talk about their recently finished independent films about their lives and perspectives living with Huntington's disease. Robert Rippberger produced and finished Matt Austin's film "Breaking the Cycle"...3222hd advocacy,hd awareness,huntingtons disease,independent filmfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-margaret-d-aiuto-martarano-de-gallardo--63403054http://www.blogtalkradio.com/help4hd/2014/04/08/the-hd-view-with-margaret-daiuto-martarano-de-gallardoTue, 08 Apr 2014 22:30:00 +0000Help 4 HD Live!Tonight our incredible special guest is Margaret D’Aiuto Martarano de Gallardo. Born in California she becomes a nurse, meets and marries her husband Dr. Luis Gallardo Ayala, and moves to Mexico. She has seven children and at the age of 61, her...3700asociación mexicana de la enfe,huntingtons disease,www.huntingtonmexico.orgfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403064http://www.blogtalkradio.com/help4hd/2014/04/01/the-hd-view--ask-dr-goodman-showTue, 01 Apr 2014 22:30:00 +0000Help 4 HD Live!Tuesday, April 1, 2014 - It's time for the Ask Dr. Goodman Show! Tonight we will be discussing these articles with Dr. Goodman: What is Cysteine? And what does it have to do with Huntington's Disease? Posted March 27, 2014 by LaVonne Goodman, M.D....3077clinical trials,cysteamine,cystenine,hd drug works,raptorfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-albert-yu--63402888http://www.blogtalkradio.com/help4hd/2014/03/26/the-hd-view-with-dr-albert-yuWed, 26 Mar 2014 22:30:00 +0000Help 4 HD Live!Wednesday, March 25, 2014 Tonight's incredible special guest is Dr. Albert Yu from Omeros here to talk about their Phase II clinical trial with OMS824 a PDE10 inhibitor for Huntington's disease. Phase II is for tolerability, safety and...1918clinical trials,huntingtons disease,omeros,oms824falsefullhttps://www.spreaker.com/episode/the-hd-view-with-cirm-s-dr-ellen-feigal--63402908http://www.blogtalkradio.com/help4hd/2014/03/11/the-hd-view-with-cirms-dr-ellen-feigalTue, 11 Mar 2014 20:00:00 +0000Help 4 HD Live!Tuesday, March 11, 2014 Our incredible special guest today is Dr. Ellen Feigal from CIRM. Tune in for an update from California Institute for Regenerative Medicine.2546cirm,dr ellen feigal,huntingtons disease research,stem cell researchfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63402892http://www.blogtalkradio.com/help4hd/2014/03/04/the-hd-view-ask-dr-goodmanTue, 04 Mar 2014 23:30:00 +0000Help 4 HD Live!Pre-recorded We are talking about body discomfort in Huntington's disease. Like my sweet Jimbo, many of our HD and JHD individuals suffer from body pain. We must study this in order to find treatments and therapies. Listen to Dr. Goodman speak about...3857clinical studies,hd,huntingtons disease,jhd,pain in hdfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-ben-deverman-caltech--63403013http://www.blogtalkradio.com/help4hd/2014/02/25/the-hd-view-with-dr-ben-deverman-caltechTue, 25 Feb 2014 23:30:00 +0000Help 4 HD Live!Pre-recorded Dr. Deverman from Cal Tech is offering our listeners a series of educational shows outlining gene therapy and what science is happening right now for Huntington's disease. Tune in for Part 1 of Gene Therapy 101...  3245cal tech,gene therapy 101,molecular cell biology,neurosciencefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-mary-edmondson--63403006http://www.blogtalkradio.com/help4hd/2014/02/17/the-hd-view-with-dr-mary-edmondsonMon, 17 Feb 2014 23:30:00 +0000Help 4 HD Live!MONDAY, February 17, 2014 Dr. Mary Edmondson is back! We love her wisdom and care of our Huntington's families in North Carolina. She is working on a model Family Education Program and we will get to hear all about that today. Tune in for some...4036hd families,hdreach,hd research,huntingtons disease carefalsefullhttps://www.spreaker.com/episode/the-hd-view-pre-cell-with-dr-vicki-wheelock--63403007http://www.blogtalkradio.com/help4hd/2014/02/11/the-hd-view--pre-cell-with-dr-vicki-wheelockTue, 11 Feb 2014 23:30:00 +0000Help 4 HD Live!TUESDAY, February 11, 2014 Special incredible guests tonight are Dr. Vicki Wheelock and Teresa Tempkin RNC, MSN, ANP from UC Davis HD Clinic. Tonight's topic is PRE-CELL, an observational study and precurser to HD-CELL. For more information about...3653clinicalstudies,drwheelock,precell,ucdavisfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403071http://www.blogtalkradio.com/help4hd/2014/02/04/the-hd-view-ask-dr-goodmanTue, 04 Feb 2014 23:30:00 +0000Help 4 HD Live!It's time for Ask Dr. Goodman! Get your questions ready... Tonight we will be talking about antipsychotic medications for individuals suffering from symptoms of Huntington's disease. Read her latest article:...3527antipsychotic drugs,dr goodman,hddrugworks,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-fara--63403043http://www.blogtalkradio.com/help4hd/2014/02/03/the-hd-view-with-faraMon, 03 Feb 2014 21:30:00 +0000Help 4 HD Live!Today’s incredible special guests are Ron Bartek, Co-Founder and President and Jen Farmer Executive Director, coordinator, of FARA /, The Friedreich's Ataxia Research Alliance a national, public, 501(c)(3), non-profit, tax-exempt organization...2921fara,friedricks ataxia,neurologic disease,orphan diseases,rare diseasesfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-gene-veritas-at-world-stem-cell-summit--63402902http://www.blogtalkradio.com/help4hd/2014/01/29/the-hd-view-with-gene-veritas-at-world-stem-cell-summitWed, 29 Jan 2014 21:30:00 +0000Help 4 HD Live!WEDNESDAY, January 29, 2014 - 1:30 pm PST/4:30 pm EST Gene Veritas aka Ken Serbin will be here to talk about the World Stem Cell Summit from December 2013.3460huntingtons disease,stem cell research,world stem cell summitfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-brenda-vega-en-espanol--63403068http://www.blogtalkradio.com/help4hd/2014/01/25/the-hd-view-with-brenda-vega-en-espanolSat, 25 Jan 2014 17:00:00 +0000Help 4 HD Live!SATURDAY, January 25, 2014 - 9:00 am PST/11:00 am Mexico City time Brenda Vega from Fundacion Huntington Mexico will be our incredible special guest. Co-Host Daniel Medina will be speaking to our Espanol compadres and translating en Ingles. Stay...3495hd advocates,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-benjamin-e-deverman-part-i--63403042http://www.blogtalkradio.com/help4hd/2014/01/21/the-hd-view-with-dr-benjamin-e-deverman--part-iTue, 21 Jan 2014 23:30:00 +0000Help 4 HD Live!TUESDAY, January 21, 2014 - 3:30 pm PST/6:30 pm EST Join us for a 3-part series on gene therapy for Huntington's disease. Our incredible special presenter is Benjamin E. Deverman, Ph.D. from California Institute of Technology who is going to give us...3239asos,cal tech,huntingtons research,naked dna,rnasfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-crest-e--63402899http://www.blogtalkradio.com/help4hd/2014/01/16/the-hd-view-with-crest-eThu, 16 Jan 2014 23:30:00 +0000Help 4 HD Live!THURSDAY - January 16, 2014 - 3:30 pm PST/6:30 pm EST It's time for an update from the CREST-E clinical trial with Bonnie Hennig. THE MISSION: To provide patients and families with information about CREST-E. The discussion today will be focused on...2974crest e,hd clinical trials,hsg,huntingtons disease,uchcfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jimmy-pollard--63403072http://www.blogtalkradio.com/help4hd/2014/01/14/the-hd-view-with-jimmy-pollardTue, 14 Jan 2014 23:30:00 +0000Help 4 HD Live!TUESDAY January 14, 2014  -  3:30 pm PST/6:30 pm EST Jimmy Pollard is back with us to share with us his travels and lectures around the country speaking to our amzaing Huntington's families. He has been lecturing in California, South Dakota, and has...3665hd advocacy,hd outreach,huntingtons caregiving,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-veronica-ruiz-moreno--63403076http://www.blogtalkradio.com/help4hd/2014/01/11/the-hd-view-with-veronica-ruiz-morenoSat, 11 Jan 2014 17:00:00 +0000Help 4 HD Live!SATURDAY/SABADO, 11 DE ENERO 2014 Help 4 HD International está feliz y orgulloso de estrenar su primer programa de radio en vivo en Español / Inglés que sera transmitido este Sábado, 11 de Enero 2014 a las 9:00 am Tiempo Del Pacifico/11:00 am Tiempo...4715englishspanish,hd advocacy,huntingtons disease,marathons,spanishfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403059http://www.blogtalkradio.com/help4hd/2014/01/07/the-hd-view-ask-dr-goodman-showTue, 07 Jan 2014 23:30:00 +0000Help 4 HD Live!January 7, 2014 - We welcome you to another amazing year of the Ask Dr. Goodman Show. Practical and compassionate advice from an incredible physician treating our loved ones suffering with Huntington's disease in Washington and now reaching patients,...2626hd care,hddrugworks,hd drug works,hd research,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-misdee-and-dr-scott-guess--63402916http://www.blogtalkradio.com/help4hd/2013/12/21/the-hd-view-with-misdee-and-dr-scott-guessSat, 21 Dec 2013 20:00:00 +0000Help 4 HD Live!This month of December 2013 we are celebrating our HD advocates and this Saturday is no exception. Dr. Scott Guess and his better half, Misdee L. Kornder-Guess, RN are my favorite pharmacists in the world and today you are going to find out why. They...3558pain management,pain medications,pharmaceutical companies,pharmacy,rxfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-the-wilderness-kids--63403062http://www.blogtalkradio.com/help4hd/2013/12/17/the-hd-view-with-the-wilderness-kidsTue, 17 Dec 2013 23:30:00 +0000Help 4 HD Live!Welcome to this December 17 show. Help 4 HD Radio has designated the month of December for celebrating our amazing HD advocates. Tonight we are happy to introduce Papa Mike, Raima and The Wilderness Kids as our incredible special guests. Best known as...2585hd advocates,hd families,huntingtons disease,jhd families,the wilderness kidsfalsefullhttps://www.spreaker.com/episode/help4hd-the-hd-view-celebrating-the-advocates-matt-ward--63402998http://www.blogtalkradio.com/help4hd/2013/12/10/help4hd--the-hd-view--celebrating-the-advocates-matt-wardTue, 10 Dec 2013 23:30:00 +0000Help 4 HD Live!Help4HD - The HD View - Celebrating the Advocates: Matt Ward! Join us as we continue to celebrate our amazing international advocates for Huntington's disease.  We are excited to have the amazing "HD Warrior" Matt Ward from Nottingham, United Kingdom...3288brain,community,disease,huntington's disease,sciencefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-elizabeth-valenzuela--63403077http://www.blogtalkradio.com/help4hd/2013/12/03/the-hd-view-with-elizabeth-valenzuelaTue, 03 Dec 2013 23:30:00 +0000Help 4 HD Live!Tuesday, December 3, 2013 I am so excited about the month of December shows. This is the time of year for giving. We give to our family; to our friends and to others without expecting much in return. Tonight we are going to talk about the spirit of...4202board and care,homeless,huntingtons disease,kindness,sheltersfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-kenneth-p-serbin--63403080http://www.blogtalkradio.com/help4hd/2013/11/20/the-hd-view-with-dr-kenneth-p-serbinWed, 20 Nov 2013 21:30:00 +0000Help 4 HD Live!Our incredible special gues this afternoon is Kenneth P. Serbin, Ph.D., professor and chair in the USD College of Arts and Sciences,Department of History, served as vice president, president, and immediate past president of the Brazilian Studies...3770brazilian studies association,history professor,huntingtons disease,latin american studies associa,usd college of arts and sciencfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-karen-anderson--63402914http://www.blogtalkradio.com/help4hd/2013/11/19/the-hd-view-with-dr-karen-andersonTue, 19 Nov 2013 23:30:00 +0000Help 4 HD Live!Tonight our incredible special guest is Karen E. Anderson, MD. She is an Associate Professor of Psychiatry & Neurology and the newly appointed Director of the Huntington Disease Care, Education and Research Center (HDCERC), a joint endeavor of...4516huntingtons disease,neurology,psychiatry,research,sciencefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-first-hd-crew--63403078http://www.blogtalkradio.com/help4hd/2013/11/12/the-hd-view-with-first-hd-crewTue, 12 Nov 2013 23:30:00 +0000Help 4 HD Live!Tuesday, November 12, 2013 Join us for an update on the HSG First-HD clinical trial with incredible special guests Jody Goldstein from Rochester and Greg Suter from the HNDC.   First-HD is a Phase III clinical research trial of an investigational...2405clinical trials,first hd,hndc,hsg,sd 809falsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-mary-edmondson--63403079http://www.blogtalkradio.com/help4hd/2013/10/29/the-hd-view-with-dr-mary-edmondsonTue, 29 Oct 2013 22:30:00 +0000Help 4 HD Live!Pre-Recorded 9-17-13 Our incredible special guest is Dr. Mary Edmondson, Psychiatry from Duke University HD Clinic and HD Reach. Hear about the HSG Symposium set for November 7-8-9 in North Carolina.  4534dr mary edmondson,hd care in north carolina,hd reach,hd research,hsg symposiumfalsefullhttps://www.spreaker.com/episode/help4hd-the-hd-view-celebrating-the-advocates-kris-king--63402927http://www.blogtalkradio.com/help4hd/2013/10/22/help4hd--the-hd-view-celebrating-the-advocates-kris-kingTue, 22 Oct 2013 22:30:00 +0000Help 4 HD Live!"Help4HD - The HD View: Celebrating the Advocates" Tuesday, October 22, 2013 is the premier of our new component of Help4HD Programming - "Help4HD - The HD View: Celebrating the Advocates."  It is so important that we take the time to acknowledge and...2450disease,fitness,health,huntingtons disease,wellnessfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402918http://www.blogtalkradio.com/help4hd/2013/10/15/the-hd-view-ask-dr-goodman-showTue, 15 Oct 2013 22:30:00 +0000Help 4 HD Live!Tuesday, September 15, 2013 It's time for The HD View Ask Dr. Goodman Show!  Tonight we are going to be talking about substance abuse in Huntington's disease. Dr Goodman writes articles each month for Help 4 HD - The HD View to discuss on the Ask Dr....2996alcohol,dr lavonne goodman,hd drug works,marijuana,neuroprotectivefalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-first-hd--63402920http://www.blogtalkradio.com/help4hd/2013/10/08/help-4-hd-news-update-with-first-hdTue, 08 Oct 2013 22:30:00 +0000Help 4 HD Live!PRE-RECORDED   - First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will be enrolling participants across North America...3016auspex,clinical trials,first hd,hsg,sd-809 erfalsefullhttps://www.spreaker.com/episode/the-jhd-view-with-dr-peg-nopoulos--63403005http://www.blogtalkradio.com/help4hd/2013/10/01/the-jhd-view-with-dr-peg-nopoulosTue, 01 Oct 2013 19:00:00 +0000Help 4 HD Live!Tuesday, October 1, 2013 Dr. Peg Nopoulos, professor in Psychiatry, Pediatrics and Neurology at the University of Iowa Hospitals and Clinics will be our incredible special guest tonight.  She will be talking about Kids HD and Kids JHD and why the two...4846clinical studies,huntingtons disease,kids hd,kids jhd,university iowafalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-dr-ira-shoulson--63402921http://www.blogtalkradio.com/help4hd/2013/09/24/help-4-hd-news-update-with-dr-ira-shoulsonTue, 24 Sep 2013 22:30:00 +0000Help 4 HD Live!Pre-recorded Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Dr. Shoulson is Professor of Neurology, Pharmacology and Human Science and Director of the Program for...4321clinical studies,clinical trials,hd research,hsg,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-mary-edmondson--63402929http://www.blogtalkradio.com/help4hd/2013/09/17/the-hd-view-with-dr-mary-edmondsonTue, 17 Sep 2013 22:30:00 +0000Help 4 HD Live!Dr. Mary Edmondson, MD, Psychiatry from Duke University HD Clinic and HD Reach is back with us tonight.  HD Reach is a non-profit organization dedicated to providing access to care, education, and social assistance to patients and families affected by...4529clinical trials,dr mary edmondson,hd care,hd reach,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-veiw-ask-dr-goodman-show--63403091http://www.blogtalkradio.com/help4hd/2013/09/03/the-hd-veiw-ask-dr-goodman-showTue, 03 Sep 2013 22:30:00 +0000Help 4 HD Live!Tuesday, September 3, 2013 Tonight we will be discussing obsessive compulsive behaviors in Huntington's disease. Read the article: Obsessive Compulsive Behaviors and Huntington's Disease...4026ask dr goodman,behaviors,hd drug works,huntingtons disease,ocbfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-first-hd--63402935http://www.blogtalkradio.com/help4hd/2013/08/20/the-hd-view-with-first-hdTue, 20 Aug 2013 22:30:00 +0000Help 4 HD Live!Tonight our special guests are Dr. Samuel Frank - Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University and is involved with many HSG studies and trials, and Dr. David Stamler - Chief Medical Officer at...3015auspex pharmaceutical,hd clinical drug trial,hd research,huntington study group,sd 809 erfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63403089http://www.blogtalkradio.com/help4hd/2013/08/13/the-hd-view-ask-dr-goodman-showTue, 13 Aug 2013 22:30:00 +0000Help 4 HD Live!Tuesday, August 13, 2013 Ask Dr. Goodman about pain in Huntington's disease tonight. Read her new article, "Body Discomfort and Pain in Huntington's Disease" According to two recent studies from the United Kingdom, bodily discomfort (which refers to...3857body pain in hd,chronic pain,dr lavonne goodman,hddrugworks,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-with-terry-tempkin-of-uc-davis--63403104http://www.blogtalkradio.com/help4hd/2013/08/06/help-4-hd--news-channel-with-terry-tempkin-of-uc-davisTue, 06 Aug 2013 22:30:00 +0000Help 4 HD Live!PRE-CELL! Help 4 HD International is excited to announce that UC Davis will begin recruitment for PRE-CELL which is the lead-in observational study for their future planned stem cell trial for Huntington's disease. Per Terry Tempkin (Clinical...4000disease,huntington,neurology,stem cell,uc davisfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-review-with-dr-jan-nolta--63403090http://www.blogtalkradio.com/help4hd/2013/07/30/help-4-hd-news-channel-review-with-dr-jan-noltaTue, 30 Jul 2013 22:30:00 +0000Help 4 HD Live!Pre-Recorded Show... Today's episode is a prelude to next weeks LIVE update with Teresa Tempkin RNC, MSN, ANP from the HDSA Center of Excellence, University of California, Davis Medical Center, Department of Neurology. Hello everyone! It was one...2757cirm,dr jan nolta,pre cell,stem cells,uc davisfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-alicia-semaka--63402942http://www.blogtalkradio.com/help4hd/2013/07/23/the-hd-view-with-dr-alicia-semakaTue, 23 Jul 2013 22:30:00 +0000Help 4 HD Live!Tuesday, July 23, 2013 - 3:30 pm PST/6:30 pm EST Our incredible special guest tonight is Dr. Alicia Semaka, a Postdoctoral Fellow at the University of British Columbia. She received her MSc in Genetic Counseling in 2005 and her PhD in Medical...2433cag,genetic counseling,haplotype,huntingtons disease,university of british columbiafalsefullhttps://www.spreaker.com/episode/the-hd-view-prequel-update--63403015http://www.blogtalkradio.com/help4hd/2013/07/16/the-hd-view-prequel-updateTue, 16 Jul 2013 22:30:00 +0000Help 4 HD Live!Tuesday, July 16, 2013 - 3:30 pm PST/6:30 pm EST Our incredible special guest tonight is Dr. Christopher Ross who is Professor of Psychiatry, Neurology, Pharmacology and Neuroscience at Johns Hopkins University School of Medicine, Director of the...3463coq10,dr christopher ross,hsg clinical trials,huntingtons disease,johns hopkins university schoofalsefullhttps://www.spreaker.com/episode/the-hd-view-with-emily-fisher--63403019http://www.blogtalkradio.com/help4hd/2013/07/09/the-hd-view-with-emily-fisherTue, 09 Jul 2013 22:30:00 +0000Help 4 HD Live!TUESDAY, July 9, 2013 Tonight our incredible special guest is Emily Fisher, MSc Medical Genetics, Centre for Molecular Medicine and Therapeutics at the University of British Columbia. In 2012, Emily Fisher completed her Master's degree in science...3076hd epidemiology,hd therapeutics,huntingtons disease,medical genetics,ubcfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dan-brennan-at-lundbeck--63403073http://www.blogtalkradio.com/help4hd/2013/06/04/help-4-hd-with-dan-brennan-at-lundbeckTue, 04 Jun 2013 22:30:00 +0000Help 4 HD Live!Pre-Recorded in 2011... Introducing Dan Brennan from Lundbeck and talk about RNAi.2336hd care,hd research,huntingtons disease,lundbeck,rnaifalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-robert-pacifici-chdi-foundation--63403092http://www.blogtalkradio.com/help4hd/2013/05/28/help-4-hd-with-dr-robert-pacifici-chdi-foundation-1Tue, 28 May 2013 22:30:00 +0000Help 4 HD Live!PRE-RECORDED... December 2010, hosted by BJ Viau Robert Pacifici was the Site Director and Chief Scientific Officer at the Research Triangle Park Laboratories of Eli Lilly and Company. There he oversaw the company's global screening and...1854chdi,clinical trials,drug therapies,huntingtons disease,world congressfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jimmy-pollard--63402934http://www.blogtalkradio.com/help4hd/2013/05/21/the-hd-view-with-jimmy-pollardTue, 21 May 2013 22:30:00 +0000Help 4 HD Live!Tuesday, May 21 PRE-RECORDED... Celebrating Woodie Guthrie through the eyes of Jimmy Pollard. May is Huntington's Disease awareness month. Tune in to a fabulous interview with the one and only Jimmy Pollard.5071hd advocacy,hd archives,huntingtons disease awareness,jimmy pollard,woodie guthriefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jenni-davis--63402946http://www.blogtalkradio.com/help4hd/2013/05/14/the-hd-view-with-jenni-davisTue, 14 May 2013 22:30:00 +0000Help 4 HD Live!PRE-RECORDED3905cancer,caregiving,family,hospice,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402947http://www.blogtalkradio.com/help4hd/2013/05/07/the-hd-view-ask-dr-goodman-showTue, 07 May 2013 22:30:00 +0000Help 4 HD Live!Tuesday... new show time! Dr. Goodman will be with us tonight to talk about CHDI foundation and their role as the "collaborative enabler" with financial clout in drug development for Huntington's disease. Tune in for a very informative show.3453chdi,clinical trials,drug development,huntingtons disease,lavonne goodman mdfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-diana-rosas-crest-e-iii--63403036http://www.blogtalkradio.com/help4hd/2013/04/29/help-4-hd-with-dr-diana-rosas--crest-e-iiiMon, 29 Apr 2013 22:30:00 +0000Help 4 HD Live!Our incredible special guest tonight is Dr. Diana Rosas, MD, Director, Center for Neuro-Imaging of Aging and Neurodegenerative Disease. Dr. Rosas and her team have focused primarily on the development of biomarkers for use in the study of...2715biomarkers,dr diana rosas,huntington study group,mri,neuroimagingfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-ira-shoulson--63403022http://www.blogtalkradio.com/help4hd/2013/04/22/help-4-hd-with-dr-ira-shoulsonMon, 22 Apr 2013 22:30:00 +0000Help 4 HD Live!Pre-recorded... Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Be sure to listen to our first interview with Dr. Shoulson on May 9, 2011. Dr. Shoulson is Professor of...4321clinical trials,hsg,huntingtons disease,parkinsons disease,psgfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-mary-edmondson--63402956http://www.blogtalkradio.com/help4hd/2013/04/15/the-hd-view-with-dr-mary-edmondsonMon, 15 Apr 2013 22:30:00 +0000Help 4 HD Live!PRE-RECORDED January 30, 2012 Today's episode is with Dr. Mary Edmondson, a medical physician and a psychiatrist from Duke University, North Carolina; and a founder of the North Carolina Center for the Care of Huntington's Disease NC-CCHD), which is...5543dr mary edmondson,duke university,hd care,huntingtons disease,nc cchdfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-danny-cahill--63403020http://www.blogtalkradio.com/help4hd/2013/04/08/the-hd-view-with-danny-cahill-1Mon, 08 Apr 2013 22:30:00 +0000Help 4 HD Live!Monday, April 8, 2013 3:30 pm PT/6:30 pm ET - Super special incredible guest tonight will be Danny Cahill, winner of the hit TV series, season 8 of The Biggest Loser. Danny lost 239 pounds in 7 months! Amazing story about how his life was literally...3663danny cahill,darci cahill,ministry,the biggest loser,weight lossfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-show--63402958http://www.blogtalkradio.com/help4hd/2013/04/01/the-hd-view-ask-dr-goodman-showMon, 01 Apr 2013 22:30:00 +0000Help 4 HD Live!MONDAY,  April 1, 2013  3:30 pm PT/6:30 pm ET It's time to ask Dr. Goodman "your" questions about the care and treatment of Huntington's disease... Tonight the topic is "What's empathy got to do with it?" Read her article, ask Dr. Goodman "your"...3547empathy,huntingtons care,huntingtons disease,juvenile huntingtons disease,neuron systemfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-neal-hermanowicz--63402955http://www.blogtalkradio.com/help4hd/2013/03/25/the-hd-view-with-dr-neal-hermanowiczMon, 25 Mar 2013 22:30:00 +0000Help 4 HD Live!MONDAY, March 25, 2013 Our incredible special guest tonight is Dr. Neal Hermanowicz, Director of the Movement Disorders Program at the University of California at Irvine. Dr. Hermanowicz is engaged foremost in patient care. He is a member of the...4166hsg,huntingtons disease,movement disorders,parkinsons disease,uc irvinefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-prana-biotechnology-ltd--63402950http://www.blogtalkradio.com/help4hd/2013/03/18/the-hd-view-with-prana-biotechnology-ltdMon, 18 Mar 2013 22:30:00 +0000Help 4 HD Live!MONDAY, March 18, 2013 Topics that will be focused on are: Our therapeutic strategy ‘MPAC’ technology, what are these compounds like PBT2? Brief historical background as to where our HD program came from.  A bit of science (although without AV...3743biotechnology,clinical trials,mpac,reach2hd,therapeuticsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-mary-edmondson--63403106http://www.blogtalkradio.com/help4hd/2013/03/11/the-hd-view-with-dr-mary-edmondsonMon, 11 Mar 2013 22:30:00 +0000Help 4 HD Live!MONDAY, MARCH 11, 2013, 3:30 PM PT/6:30 PM ET Our incredible special guest tonight is Dr. Mary Edmondson. She is a physician/psychiatrist from Duke University, North Carolina and a founder of the North Carolina Center for the Care of Huntington's...5028anosognosia,communications skills,empathy,huntingtons disease,psychiatryfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-update-with-dr-goodman--63403075http://www.blogtalkradio.com/help4hd/2013/02/18/help-4-hd-news-channel-update-with-dr-goodmanMon, 18 Feb 2013 23:30:00 +0000Help 4 HD Live!MONDAY FEBRUARY 18, 2013Happy Monday everyone and thank you for tuning in to Help 4 HD News Channel! This is your host, Melissa Biliardi. Please tell all your colleagues, friends and family about Help 4 HD Radio and click “Follow” on our Show Page to...2840dr lavonne goodman,hd drug works,huntingtons disease,off label drugs,parkinsons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jimmy-pollard--63402961http://www.blogtalkradio.com/help4hd/2013/02/11/the-hd-view-with-jimmy-pollardMon, 11 Feb 2013 23:30:00 +0000Help 4 HD Live!Monday, February 11, 20133:30 pm PT/6:30 pm ETTonight our dear friend Jimmy Pollard is back on the show with us. We will get to catch up with what he’s been up to in the last year. He is very involved in the history, culture, lore and folklore of...5071enroll hd,folklore,huntingtons disease,hurry up and wait,the guthrie centerfalsefullhttps://www.spreaker.com/episode/replay-of-the-hd-view-ask-dr-goodman-show--63403094http://www.blogtalkradio.com/help4hd/2013/02/07/replay-of-the-hd-view--ask-dr-goodman-showThu, 07 Feb 2013 23:30:00 +0000Help 4 HD Live!Due to such an informative show, we are replaying of February 4, 2013 Show on February 7, 2013! Dr. Lavonne Goodman is back with us tonight on The HD View ~ Ask Dr. Goodman Show. Her knowledge and experience in treating Huntington's disease is a...4290dr. goodman,genetic testing,health,huntington's disease,medicalfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63402954http://www.blogtalkradio.com/help4hd/2013/02/04/the-hd-view-ask-dr-goodmanMon, 04 Feb 2013 23:30:00 +0000Help 4 HD Live!Monday, Feb 4, 2013 at 3:30 pm PT/6:30 pm ET. It's time to ask Dr. Goodman your questions tonight about HD testing. Read here newest article "Predictive Testing for Huntington's disease" on her website: www.hddrugworks.org. Tune in for another very...4290clinical studies,genetic counseling,huntingtons disease,predict,predictive testingfalsefullhttps://www.spreaker.com/episode/help-4-jhd-news-update-with-dr-peg-nopoulos--63402952http://www.blogtalkradio.com/help4hd/2013/01/28/help-4-jhd-news-update-with-dr-peg-nopoulosMon, 28 Jan 2013 23:30:00 +0000Help 4 HD Live!Monday, January 28, 2013 at 3:30 pm PT/5:30 CT/6:30 ET Our incredible special guest tonight is Dr. Peg Nopoulos from University of Iowa Hospitals and Clinics where her primary clinical work has been working in the HD Center of Excellence. She is...2669brain imaging,clinical study,huntingtons disease,juvenile huntingtons disease,mrifalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-dr-ira-shoulson--63403032http://www.blogtalkradio.com/help4hd/2013/01/21/help-4-hd-news-update-with-dr-ira-shoulsonMon, 21 Jan 2013 23:30:00 +0000Help 4 HD Live!Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Be sure to listen to our first interview with Dr. Shoulson on May 9, 2011. Dr. Shoulson is Professor of Neurology,...4321clinical trials,huntington disease,huntington study group,observational studies,parkinson diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-dorsey-and-dr-biglan--63402966http://www.blogtalkradio.com/help4hd/2013/01/14/help-4-hd-with-dr-dorsey-and-dr-biglanMon, 14 Jan 2013 23:30:00 +0000Help 4 HD Live!MONDAY, JANUARY 14, 2013 3:30 pm PST/6:30 pm EST Happy New Year everyone and thank you for tuning in to Help 4 HD Radio! This is your host, MELISSA BILIARDI. Tonight our call-in numbers are 310-982-4227 and 877-497-4103. When you call-in press “1” and...3570clinical care,huntingtons disease,parkinsons disease,telemedicine,video conferencingfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman-new-season-premiere--63403021http://www.blogtalkradio.com/help4hd/2013/01/07/the-hd-view-ask-dr-goodman-new-season-premiereMon, 07 Jan 2013 23:30:00 +0000Help 4 HD Live!MONDAY, JANUARY 7, 2013 3:30 pm PST/6:30 pm EST Tonight our incredible Dr. LaVonne Goodman is back for a new season of  the "Ask Dr. Goodman Show". Her knowledge and experience in treating Huntington's disease is a valuable and viable asset to our...3246hd clinical trials,hd drug works,hd research,huntingtons disease,huntingtons study groupfalsefullhttps://www.spreaker.com/episode/pr-the-hd-view-with-author-wanda-marie-clark--63403034http://www.blogtalkradio.com/help4hd/2012/12/24/pr-the-hd-view-with-author-wanda-marie-clarkMon, 24 Dec 2012 23:30:00 +0000Help 4 HD Live!MONDAY, December 24, 2012 PRE-RECORDED I thought it befitting to re-run the show I did with author of "The Butterfly Ball", Wanda Marie Clarke. In the honor and memory of all of those who have been lost, whether in physical body or mind, this...5254god,love,meaning of names,praise,spiritfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jenni-davis-patient-advocate--63403107http://www.blogtalkradio.com/help4hd/2012/12/17/the-hd-view-with-jenni-davis--patient-advocateMon, 17 Dec 2012 23:30:00 +0000Help 4 HD Live!MONDAY, December 17, 2012 Tonight our incredible special guest is patient advocate, Jenni Davis. She is the Oncology Counselor and Patient Advocate for Mission Hope Cancer Center in Santa Maria, California. With 20 years experience in the Worker's...3905caregiving,community,huntingtons disease,patient advocate,support groupfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-katie-jackson-e-book-fundraiser--63403024http://www.blogtalkradio.com/help4hd/2012/12/10/help-4-hd-news-katie-jackson-e-book-fundraiserMon, 10 Dec 2012 23:30:00 +0000Help 4 HD Live!MONDAY, December 10, 2012 3:30 pm PST/6:30 pm EST Katie Jackson, author of "Ferris Wheel" will be on the show to talk about her e-book fundraiser on www.Research4HD.org. 100 percent of the net proceeds will go to Dr. Jan Nolta's Stem Cell Program for...2418dr jan nolta,fundraising,huntingtons disease,stem cell research,uc davisfalsefullhttps://www.spreaker.com/episode/pre-recorded-help-4-jhd-natural-history-study--63402964http://www.blogtalkradio.com/help4hd/2012/12/03/pre-recorded--help-4-jhd-natural-history-studyMon, 03 Dec 2012 23:30:00 +0000Help 4 HD Live!MONDAY - DEC 3, 2012 Pre-recorded on October 10, 2011 - Dr. Jane Paulson and Stacie Vik from the University of Iowa talk about the Natural History Study at UI. The University of Iowa is currently recruiting individuals who have shown features of JHD...1254dr jane paulsen,huntingtons disease,juvenile huntingtons disease,natural history study,university of iowafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-author-wanda-marie-clarke--63402970http://www.blogtalkradio.com/help4hd/2012/11/26/the-hd-view-with-author-wanda-marie-clarkeMon, 26 Nov 2012 23:30:00 +0000Help 4 HD Live!MONDAY, NOVEMBER 26 2012 Tonight our incredible special guest is Wanda Marie Clarke, author, "The Butterfly Ball" and Contributing Writer at The Huntington's Post. Huntington's disease just happens to be in her family and so she knows all too well...5254huntingtons disease,juvenile huntingtons disease,prayer,spiritual gifts,writtingfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-a-ride-with-matt--63403102http://www.blogtalkradio.com/help4hd/2012/11/19/help-4-hd-news-update-a-ride-with-mattMon, 19 Nov 2012 23:30:00 +0000Help 4 HD Live!MONDAY, NOV 19 2012 Matt Austin will be here today to give us an update on their film project, "A Ride With Matt". Together with Matt's brother Adam and producer Robert Rippberger we are going to have a lot of fun discussing the bike tour and how...4085advocacy,bike tour,film,huntingtons disease,juvenile huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-news-update-with-hsg-s-reach2hd--63403049http://www.blogtalkradio.com/help4hd/2012/11/12/help-4-hd-news-update-with-hsgs-reach2hdMon, 12 Nov 2012 23:30:00 +0000Help 4 HD Live!MONDAY, NOVEMBER 12, 2012 (3:30 pm PST/6:30 pm EST) We are excited to present a Reach2HD update from the following amazing individuals: Dr. Martha Nance is the Director of the HD COE. She is a co-author of “The Physician’s Guide to HD” and “The...2893clinical trials and studies,hsg,huntingtons disease,huntington study group,reach2hdfalsefullhttps://www.spreaker.com/episode/help-4-hd-the-hd-view-new-season-premiere--63403101http://www.blogtalkradio.com/help4hd/2012/11/05/help-4-hd--the-hd-view-new-season-premiereMon, 05 Nov 2012 23:30:00 +0000Help 4 HD Live!MONDAY - NOVEMBER 5 2012 - NEW SEASON! New season, new show, new format! Tune in at 3:30 pm PST/6:30 pm EST for the third season premiere of Help 4 HD - The HD View. Tonight, Host Melissa Biliardi will be interviewed by Producer James Valvano. Hear...4349advocacy,huntingtons disease,media,research,sciencefalsefullhttps://www.spreaker.com/episode/help-4-hd-411-with-james-valvano--63403098http://www.blogtalkradio.com/help4hd/2012/10/29/help-4-hd-411-with-james-valvanoMon, 29 Oct 2012 22:30:00 +0000Help 4 HD Live!PRE-RECORDED - April 2011 Our incredible special guest today is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and  brought us out of the proverbial closet...3164disability,hd advocacy,hd awareness,hd parity act,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/7-best-the-hd-view-ask-dr-goodman--63403118http://www.blogtalkradio.com/help4hd/2012/10/22/7-best-the-hd-view-ask-dr-goodmanMon, 22 Oct 2012 22:30:00 +0000Help 4 HD Live!PRE-RECORDED 9-4-12 Tonight we will be discussing a little controversial subject Lithium. Read Dr. Goodman’s new article on her website at www.hddrugworks.org titled: NP03 Lithium: A Potential New Drug for HD NP03 is a new drug from Medesis Pharma...2662drugs,huntingtons disease,lithium,medesis pharma,treatmentsfalsefullhttps://www.spreaker.com/episode/6-best-the-hd-view-with-dr-beth-john--63403057http://www.blogtalkradio.com/help4hd/2012/10/15/6-best--the-hd-view-with-dr-beth-johnMon, 15 Oct 2012 22:00:00 +0000Help 4 HD Live!PRE-RECORDED  Tonight, our incredible special guest is Dr. Beth John, doctor of chiropractic with 22 years’ experience treating patients using gentle chiropractic techniques as well as the more traditional techniques. Dr. John is also a certified...4643chiropractic,edgar casey,huntingtons disease,nutrition,safafalsefullhttps://www.spreaker.com/episode/5-best-the-hd-view-premiere--63402993http://www.blogtalkradio.com/help4hd/2012/10/09/5-best-the-hd-view-premiereTue, 09 Oct 2012 22:00:00 +0000Help 4 HD Live!PRE-RECORDED It's been 18 months since the premiere of The HD View here on BlogTalkRadio. We have grown exponentally. It's fun to look back and listen again to its' beginning. 30,000 listeners like Help 4 HD - The HD View. Enjoy!6194advocacy,huntingtons disease,radio,resources,supportfalsefullhttps://www.spreaker.com/episode/4-best-the-hd-view-with-andrea-zanko-ms-lgc--63402974http://www.blogtalkradio.com/help4hd/2012/10/01/4-best-the-hd-view-with-andrea-zanko-ms-lgcMon, 01 Oct 2012 22:00:00 +0000Help 4 HD Live!  PRE-RECORDED - # 4 BEST SHOW Our incredible special guest is the esteemed Andrea Zanko from UCSF - MAC. She received her Masters in genetic counseling from the University of California at Berkeley and her Bachelors Degree from Boston University....3470genetic counselor,hd clinic,huntingtons disease,juvenile huntingtons disease,ucsffalsefullhttps://www.spreaker.com/episode/3-best-show-the-hd-view-with-gabrielle-hamilton-lcsw--63403051http://www.blogtalkradio.com/help4hd/2012/09/24/3-best-show--the-hd-view-with-gabrielle-hamilton-lcswMon, 24 Sep 2012 22:00:00 +0000Help 4 HD Live!PRE-RECORDED on August 13, 2012 - Our incredible special guest tonight is Gabrielle Hamilton, therapist, speaker, published author and Huntington’s Disease (HD) Activist. In 1994 Gabrielle joined the board of the Greater NY/LI Chapter of...2935advocacy,counseling,huntingtons disease,social workers,teletherapyfalsefullhttps://www.spreaker.com/episode/2-best-show-help-4-hd-news-channel-with-aan--63402975http://www.blogtalkradio.com/help4hd/2012/09/17/2-best-show-help-4-hd-news-channel-with-aanMon, 17 Sep 2012 22:00:00 +0000Help 4 HD Live!PRE-RECORDED -- MONDAY, September 17, 2012 In direct response to a previous show with Dr. LaVonne Goodman and information disseminated about the AAN (the American Academy of Neurology) Guidelines for Treating Chorea in Huntington's, (see report)...2230american academy of neurology,chorea,huntingtons disease,neurology,treatment guidelinesfalsefullhttps://www.spreaker.com/episode/the-hd-view-best-with-jody-goldstein--63403122http://www.blogtalkradio.com/help4hd/2012/09/10/the-hd-view-best-with-jody-goldsteinMon, 10 Sep 2012 22:00:00 +0000Help 4 HD Live!PRE-RECORDED Jody Goldstein has a very long list of accomplishments: BS in Biology from the University of California, San Diego (UCSD), 10 years as coordinator for the UCSD Huntington's Disease Clinical Research Center (HDCRC), Genetically...1998clinical research,clinical trials,hsg,huntingtons disease,ucsdfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403055http://www.blogtalkradio.com/help4hd/2012/09/04/the-hd-view-ask-dr-goodmanTue, 04 Sep 2012 22:30:00 +0000Help 4 HD Live!TUESDAY, September 4, 2012 It's time for the Ask Dr. Goodman show. Get your questions ready for another hour with our incredible Internist LaVonne Goodman. www.HDdrugworks.org2662chorea,hddrugworks,huntingtons disease,oc behaviors,treatmentsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-andrea-zanko--63403113http://www.blogtalkradio.com/help4hd/2012/08/27/the-hd-view-with-andrea-zankoMon, 27 Aug 2012 22:30:00 +0000Help 4 HD Live!MONDAY, August 27, 2012 - 3:30 pm PDT/6:30 pm EDT Our amazing incredible guest today is the estemed Andrea Zanko, MS, LGC  - Genetic Counselor from UCSF (University of California, San Francisco). For over 30 years, she has been working with children...3469genetic counseling,hd research,huntingtons disease,juvenile huntingtons disease,ucsffalsefullhttps://www.spreaker.com/episode/the-hd-view-with-gabrielle-hamilton-lcsw--63403053http://www.blogtalkradio.com/help4hd/2012/08/13/the-hd-view-with-gabrielle-hamilton-lcswMon, 13 Aug 2012 22:30:00 +0000Help 4 HD Live!MONDAY, August 13, 2012 -- 3:30 pm PST/6:30 pm EST Gabrielle Hamilton is a therapist, Speaker and Huntington’s Disease (HD) Activist. Gabrielle became a Certified Social Worker in 1997 and began providing therapy to children and families through a...2935advocacy,huntingtons disease,lcsw,speaker,therapistfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-aan-update--63403060http://www.blogtalkradio.com/help4hd/2012/08/08/help-4-hd-news-channel-aan-updateWed, 08 Aug 2012 22:00:00 +0000Help 4 HD Live!Wednesday, August 8, 2012 In direct response to previous shows and information disseminated about the AAN (the American Academy of Neurology) guidelines for treating chorea in Huntington's, Melissa Armstrong, MD, MSc and Gary Gronseth, MD, FAAN are...2229aan,huntingtons disease,neurology,pharmacologic,treatment guidelinesfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403056http://www.blogtalkradio.com/help4hd/2012/08/06/the-hd-view-ask-dr-goodmanMon, 06 Aug 2012 22:30:00 +0000Help 4 HD Live!MONDAY, August 6, 2012 -- 3:30 pm PST/6:30 pm EST It's time to ask Dr. Goodman anything about drugs and treatments for the symptoms of Huntington's disease. While there is no effective treatment to stop the progression of Huntington's disease and...2597algorithms,ask dr goodman,hddrugworks,huntingtons disease,treatmentsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jody-goldstein--63402973http://www.blogtalkradio.com/help4hd/2012/07/30/the-hd-view-with-jody-goldsteinMon, 30 Jul 2012 22:30:00 +0000Help 4 HD Live!MONDAY, July 30, 2012 -- 3:30 pm PST/6:30 pm EST Jody Goldstein received her B.S. in Biology from the University of California, San Diego (UCSD).  For the last 10 years, Jody has served as the coordinator for the UCSD Huntington’s Disease Clinical...1998clinical trials,genetic counseling,ghpp,huntingtons disease,ucsdfalsefullhttps://www.spreaker.com/episode/the-hd-view-dr-jan-nolta-s-update-pre-recorded--63403127http://www.blogtalkradio.com/help4hd/2012/07/27/the-hd-view-dr-jan-noltas-update-pre-recordedFri, 27 Jul 2012 22:00:00 +0000Help 4 HD Live!MONDAY, July 23, 2012 - 3:30 pm PST/6:30 pm EST BACK BY POPULAR DEMAND - Our incredible special guest is Jan A. Nolta, Ph.D., the Director of the Stem Cell Program at UC Davis School of Medicine, and directs the new Institute for Regenerative Cures....3865endhd,huntingtons disease,regenerative medicine,stem cell therapy,uc davisfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-dr-jan-nolta-update--63403140http://www.blogtalkradio.com/help4hd/2012/07/23/help-4-hd-news-channel-dr-jan-nolta-updateMon, 23 Jul 2012 22:30:00 +0000Help 4 HD Live!MONDAY, July 23, 2012 - 3:30 pm PST/6:30 pm EST EXCITING NEWS! Dr. Jan Nolta will be here to give us an update on her stem cell clinical trial with PI Dr. Vicki Wheelock at UC Davis Medical Center. CIRM # 1 Scientific Score: Vicki Wheelock, UC...2757cirm,dr jan nolta,huntingtons disease,science,stem cell researchfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-beth-john--63402986http://www.blogtalkradio.com/help4hd/2012/07/16/the-hd-view-with-dr-beth-johnMon, 16 Jul 2012 22:30:00 +0000Help 4 HD Live!MONDAY, July 16, 2012 - Tonight, our exciting special guest is Dr. Beth John. She is a doctor of chiropractic with 22 years’ experience treating patients using gentle chiropractic techniques as well as the more traditional techniques. Dr. John is also...4643dr beth john,edgar casey,safa center,science,wet cell technologyfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403145http://www.blogtalkradio.com/help4hd/2012/07/02/the-hd-view-ask-dr-goodmanMon, 02 Jul 2012 22:30:00 +0000Help 4 HD Live!MONDAY, JULY 2 , 2012 Dr. LaVonne Goodman will be here this week to talk about her new article "Enroll-HD and the Cystic Fibrosis Model for Quality Care". Read more... www.HDDugWorks.org3139chdi,clinical study,enroll-hd,hddrugworks,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-reach2hd-prana-update--63403148http://www.blogtalkradio.com/help4hd/2012/06/25/help-4-hd-news-channel-reach2hdprana-updateMon, 25 Jun 2012 22:30:00 +0000Help 4 HD Live!MONDAY, June 25, 2012 - 3:30 pm PST/6:30 pm EST Tonight - an update from our amazing Huntington Study Group (HSG) Reach2HD clinical trial Principal Investigator (PI) Dr. Ray Dorsey and Dr. Caroline Herd, Chief Development Consultant from Prana...3014genetically handicapped person,hsg,huntingtons disease,reach2hd,ucsdfalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-a-ride-with-matt--63402977http://www.blogtalkradio.com/help4hd/2012/06/18/help-4-hd-news-channel-a-ride-with-mattMon, 18 Jun 2012 22:30:00 +0000Help 4 HD Live!MONDAY, June 18, 2012 - 3:30 pm PST/6:30 pm EST Tonight we get to meet an incredible young man, Matt Austin, and his uncle, Adam Austin, who are setting out on the ride of their lives in a two-part bicycling adventure… a legacy journey… Starting on...2915adventure,bicycle,film,fundraising,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-meta-orear--63403069http://www.blogtalkradio.com/help4hd/2012/06/11/the-hd-view-with-meta-orearMon, 11 Jun 2012 22:30:00 +0000Help 4 HD Live!Monday, June 11, 2012 Our most incredible special guest tonight is Meta Orear. She received her certification as a Certified Professional Coach from Coaches Institute International (now The Fowler-Wainwright Institute). This is a wonderful method of...5477healing,life coach,meditation,reiki,tappingfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403063http://www.blogtalkradio.com/help4hd/2012/06/04/the-hd-view-ask-dr-goodmanMon, 04 Jun 2012 22:30:00 +0000Help 4 HD Live!Monday, June 4, 2012 Our subject tonight is about Huntington's disease and using supplements. See Dr. Goodman's latest article on Supplements and HD on her website at  www.hddrugworks.org.   Over the past decade a number of over-the-counter...5068coenzyme q 10,creatine,huntingtons disease,supplements,trehalosefalsefullhttps://www.spreaker.com/episode/help-4-hd-news-channel-with-dr-stuart-blatt-pt--63402980http://www.blogtalkradio.com/help4hd/2012/05/29/help-4-hd-news-channel-with-dr-stuart-blatt-ptTue, 29 May 2012 22:30:00 +0000Help 4 HD Live!MONDAY, MAY 29 - 2012, 3:30 pm PST/6:30 pm EST Stuart Blatt, MA. PT, Ph.D, from Howell MI, is a physical therapist with 25 years of clinical experience, treating persons with various neurological injuries. Dr. Blatt received his doctoral degree from...2658hd,ms,neurological diseases,parkinsons,physical therapyfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-steven-finkbeiner--63403067http://www.blogtalkradio.com/help4hd/2012/05/21/the-hd-view-with-dr-steven-finkbeinerMon, 21 May 2012 22:30:00 +0000Help 4 HD Live!MONDAY, MAY 21 - 2012, 3:30 pm PST/6:30 pm EST Steven Finkbeiner, MD, PhD  Director, Taube-Koret Center for Huntington's Disease Research Senior Investigator and Associate Director, Gladstone Institute of neurological Disease Professor of...4010c terminus,memory,neurodegeneration,nmda,predictorsfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-jimmy-pollard--63403066http://www.blogtalkradio.com/help4hd/2012/05/14/the-hd-view-with-jimmy-pollardMon, 14 May 2012 22:30:00 +0000Help 4 HD Live!MONDAY, MAY 14 - 2012, 3:30 pm PST/6:30 pm EST Jimmy's career and interests center on creating, developing and/or managing health care and special education programs for folks with neurologic conditions and developmental challenges, as well as...4936child development,huntingtons disease,neuologic conditions,special education,teachingfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403139http://www.blogtalkradio.com/help4hd/2012/05/07/the-hd-view-ask-dr-goodmanMon, 07 May 2012 22:30:00 +0000Help 4 HD Live!MONDAY, MAY 7 - 2012 It's time for The HD View Ask Dr. Goodman show!3944dr goodman,drugs,hd drug works,huntingtons disease,treatmentsfalsefullhttps://www.spreaker.com/episode/the-hd-veiw-with-dr-michael-geschwind--63403061http://www.blogtalkradio.com/help4hd/2012/04/30/the-hd-veiw-with-dr-michael-geschwindMon, 30 Apr 2012 22:30:00 +0000Help 4 HD Live!Monday, April 30, 2012 at 3:30 pm PST/6:30 pm EST Dr. Michael Geschwind is Associate Professor of Neurology and the Michael J. Homer Chair in Neurology. He received his MD and PhD in neuroscience through the National Institutes of Health-sponsored...4765dementia,hsg,huntingtons disease,neurology,ucsf macfalsefullhttps://www.spreaker.com/episode/the-jhd-view-with-dr-peg-nopoulos--63402987http://www.blogtalkradio.com/help4hd/2012/04/23/the-jhd-view-with-dr-peg-nopoulosMon, 23 Apr 2012 22:30:00 +0000Help 4 HD Live!Monday, April 23, 2012 at 3:30 pm PST/6:30 pm EST Dr. Peg Nopoulos is with the University of Iowa and her primary work has been working in Neuropsychiatry at the HD Center of Excellence at the UI Hospitals and Clinics. Her research focuses on...4224brain imaging,huntingtons disease,mri,neuropsychiatry,university of iowafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-paul-muchowski--63403159http://www.blogtalkradio.com/help4hd/2012/04/16/the-hd-view-with-dr-paul-muchowskiMon, 16 Apr 2012 22:30:00 +0000Help 4 HD Live!Monday, April 16, 2012 at 3:30 pm PST/6:30 pm EST Dr. Paul Muchowsli is Associate Investigator at Gladstone Institute of Neurological Disease and Associate Professor of Neurology at UCSF in California. The major research goal of his lab is to...4660gladstone institute,huntingtons disease,misfolding,paul muchowski,ucsffalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-frank--63402992http://www.blogtalkradio.com/help4hd/2012/04/09/the-hd-view-with-dr-frankMon, 09 Apr 2012 22:30:00 +0000Help 4 HD Live!Monday, April 9, 2012 at 3:30 pm PST/6:30 pm EST.   Our amazing guest tonight is Dr. Samuel Frank, Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University. Since completing his fellowship at the...4847advanced hd,doc4hd,huntingtons disease,patient education,therapiesfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403086http://www.blogtalkradio.com/help4hd/2012/04/02/the-hd-view-ask-dr-goodmanMon, 02 Apr 2012 22:30:00 +0000Help 4 HD Live!  Monday, April 2, 2012 at 3:30 pm PST/6:30 pm EST   Our very own brilliant and dedicated Dr. LaVonne Goodman will be with us again to talk about how to treat depression, insomnia and irritability in Huntington's disease. We'll also talk to her...4164drugs,hd drug works,huntingtons disease,sleep,treatmentsfalsefullhttps://www.spreaker.com/episode/the-hd-view-hsg-reach2-hd--63403088http://www.blogtalkradio.com/help4hd/2012/03/26/the-hd-view-hsg-reach2-hdMon, 26 Mar 2012 22:30:00 +0000Help 4 HD Live!MONDAY, MARCH 26, 2012 Reach2HD is a Huntington's disease research trial sponsored by the Huntington's Study Group and Prana Biotechnology to study whether PBT2 (an investigational drug) is safe and effective and to determine if its effect on...3670clinical trials,huntingtons disease,huntington study group,pbt2,reach2hdfalsefullhttps://www.spreaker.com/episode/the-jhd-view-2012--63403003http://www.blogtalkradio.com/help4hd/2012/03/24/the-jhd-view-2012Sat, 24 Mar 2012 17:00:00 +0000Help 4 HD Live!Saturday, March 24, 2012 ~ Our second show with the super moms of JHD. Let's talk!7216advocacy,help 4 hd,huntingtons disease,juvenile hd,support groupsfalsefullhttps://www.spreaker.com/episode/the-hd-view-happy-anniversary-to-wehaveaface--63403017http://www.blogtalkradio.com/help4hd/2012/03/19/the-hd-view-happy-anniversary-to-wehaveafaceMon, 19 Mar 2012 22:30:00 +0000Help 4 HD Live!Monday, March 19, 2012 at 3:30 pm  Back by popular demand and for those of you who couldn't tune in on Friday, this is a show you can not miss... Announcing James Valvano's The Huntington's Disease Project lottery winners... And lots more......4307advocacy,docmentary,huntingtons disease,james valvano,wehaveafacefalsefullhttps://www.spreaker.com/episode/the-hd-view-wehaveaface-org-anniversary-show--63403156http://www.blogtalkradio.com/help4hd/2012/03/16/the-hd-view-wehaveaface-anniversary-showFri, 16 Mar 2012 22:30:00 +0000Help 4 HD Live!Friday, March 16, 2012...  marks the one year anniversary of James Valvano's WeHaveAFace.org. Let's honor this amazing person who has a very huge heart for juvenile Huntington's disease and Huntington's disease advocacy.  James was born and raised in...4307advocacy,huntingtons disease,juvenile huntingtons disease,non porfits,wehaveafacefalsefullhttps://www.spreaker.com/episode/the-hd-view-dr-jan-nolta-s-update--63402978http://www.blogtalkradio.com/help4hd/2012/03/12/the-hd-view-dr-jan-noltas-updateMon, 12 Mar 2012 22:30:00 +0000Help 4 HD Live!Monday, March 12, 2012 Our incredible special guest is Jan A. Nolta, Ph.D., the Director of the Stem Cell Program at UC Davis School of Medicine, and directs the new Institute for Regenerative Cures. The UC Davis stem cell program has over 150 faculty...3865cellular therapy,clinical trials,institute for regenerative cur,mesenchymal stem cells,uc davis school of medicinefalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403087http://www.blogtalkradio.com/help4hd/2012/03/05/the-hd-view-ask-dr-goodmanMon, 05 Mar 2012 23:30:00 +0000Help 4 HD Live!MONDAY, MARCH 5, 2012 at 3:30 pm PST/6:30 pm EST It's time for The HD View ~ Ask Dr. Goodman Show!   Tonight we get to welcome back the esteemed Dr. LaVonne Goodman, Internist and owner of www.HDDrugworks.org, which she founded with her husband...4587dr goodman,hddrugworks,huntingtons disease,news,researchfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-ellen-feigal--63403065http://www.blogtalkradio.com/help4hd/2012/02/27/the-hd-view-with-dr-ellen-feigalMon, 27 Feb 2012 23:30:00 +0000Help 4 HD Live!Monday, February 27, 2012 -  Our incredible special guest tonight is Dr. Ellen G. Feigal, Senior Vice President, Research and Development at the CIRM, the California Institute for Regenerative Medicine.  Prior to joining CIRM in January, 2011, she was...4237cirm,help 4 hd,hematology,huntingtons disease,stem cell researchfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-sean-thompson--63402990http://www.blogtalkradio.com/help4hd/2012/02/20/the-hd-view-with-sean-thompsonMon, 20 Feb 2012 23:30:00 +0000Help 4 HD Live!Monday, February 20, 2012 - Our incredible special guest is Sean Thompson, Public Relations Coordinator for the University of Iowa Center of Excellence and the PREDICT-HD study. Sean leads multiple efforts aimed at informing our HD community of...3395advocacy,help 4 hd,huntingtons disease,radio,university of iowafalsefullhttps://www.spreaker.com/episode/the-jhd-view-2012--63403085http://www.blogtalkradio.com/help4hd/2012/02/18/the-jhd-view-2012Sat, 18 Feb 2012 18:00:00 +0000Help 4 HD Live!SATURDAY, February 18, 2012 - (10AM PST) - (1PM EST) We are so proud and pleased to have special guests: Janice Stephens, Tina Wooldridge, and Sherry Dempsey Byram with us to discuss their experiences with JHD.  This is a very special "Help 4 HD -...7047dystonia,help 4 jhd,huntingtons disease,juvenile hd,seizuresfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-clare-gibbons--63403095http://www.blogtalkradio.com/help4hd/2012/02/13/the-hd-view-with-clare-gibbonsMon, 13 Feb 2012 23:30:00 +0000Help 4 HD Live!Monday, February 13, 2012 - (3:30PM PST - 6:30PM EST - 11:30PM UK) Our incredible guest is Clare Gibbons a Genetic Counselor at North York General Hospital.  Clare Gibbons obtained a Master of Science degree in Genetic Counseling from Sarah Lawrence...4512genetic counseling,genetics,help 4 hd,huntingtons disease,psychologyfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403136http://www.blogtalkradio.com/help4hd/2012/02/06/the-hd-view-ask-dr-goodmanMon, 06 Feb 2012 23:30:00 +0000Help 4 HD Live!Monday, February 6, 2012 - (6:30PM - EST) It's time for The HD View ~ Ask Dr. Goodman Show! Tonight we will be talking about the forth component of Huntington's Disease which our incredible special guest suggests is stigma. Dr. Lavonne Goodman states...4527dr lavonne goodman,hddrugworks,help 4 hd,huntingtons disease,stigmafalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-mary-edmondson--63403165http://www.blogtalkradio.com/help4hd/2012/01/30/the-hd-view-with-dr-mary-edmondsonMon, 30 Jan 2012 20:30:00 +0000Help 4 HD Live!  MONDAY, JANUARY 30, 2012 - Our incredible special guset is Dr. Mary Edmondson, a medical physician and a psychiatrist from Duke University, North Carolina who is also a founder of the North Carolina Center for the Care of Huntington's Disease...5543duke university,huntingtons disease,nc cchd,ocb,prefrontal cortexfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-judy-roberson--63403018http://www.blogtalkradio.com/help4hd/2012/01/23/the-hd-view-with-judy-robersonMon, 23 Jan 2012 23:30:00 +0000Help 4 HD Live!Monday, January 23, 2012 - Tonight our incredible special guest is Judy Roberson from Sacramento, California. We want to thank her for the advocacy work she has done for many years for Huntington’s disease. Tonight we honor Judy Roberson, President...4399cirm,fda,huntingtons disease,joseph p roberson foundation,judy robersonfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-carla-muller-a-place-for-mom--63403164http://www.blogtalkradio.com/help4hd/2012/01/17/the-hd-view-with-carla-muller--a-place-for-momTue, 17 Jan 2012 23:30:00 +0000Help 4 HD Live!Tuesday, January 17, 2012 - Our incredible special guest is Carla Muller from A Place For Mom. The Nation's largest senior care information service, Carla with A Place For Mom is an amazing resource for assisted living and nursing home placement.   ...3098assisted living,carla muller,nursing homes,senior care,senior servicesfalsefullhttps://www.spreaker.com/episode/the-hd-view-ask-dr-goodman--63403025http://www.blogtalkradio.com/help4hd/2012/01/02/the-hd-view-ask-dr-goodmanMon, 02 Jan 2012 23:30:00 +0000Help 4 HD Live!Monday, January 2, 2012 – Our incredible special guest is Dr. LaVonne Goodman who has graciously agreed to participate in our program series “Ask Dr. Goodman”. She is an expert in Internal Medicine and has treated Huntington’s patients for many years....7050ask dr goodman,help 4 hd,ivf pgd,medication,terminationfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-john-la-puma-chef-md--63402989http://www.blogtalkradio.com/help4hd/2011/12/26/help-4-hd-with-dr-john-la-puma-chef-mdMon, 26 Dec 2011 23:30:00 +0000Help 4 HD Live!  Monday, December 26, 2011 - Back by popular demand, Dr. John La Puma a board-certified specialist in internal medicine and professionally trained chef will be talking about ways to help our H’Dear caregivers and community look, feel and live better...4043chef md,dr john la puma,food,health,whats cookingfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-christopher-ross--63403081http://www.blogtalkradio.com/help4hd/2011/12/19/the-hd-view-with-dr-christopher-rossMon, 19 Dec 2011 23:30:00 +0000Help 4 HD Live!Monday, December 19, 2011 - Our incredible special guest is Dr. Christopher Ross, PI for the HSG sponsored PREQUEL Coenzyme Q10 study. Dr. Ross is Professor of Psychiatry, Neurology and Neurosciences at Johns Hopkins. In their study of...7344awareness,clinical trials,education,huntingtons disease,prequelfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-katie-jackson--63403167http://www.blogtalkradio.com/help4hd/2011/11/28/help-4-hd-with-katie-jacksonMon, 28 Nov 2011 23:30:00 +0000Help 4 HD Live!Monday, November 28, 2011– Our incredible special guest tonight is Katie Jackson, author of Ferris Wheel and advocate extraordinaire for Huntington’s disease. Katie is an inspiring author in Sacramento, California and she began writing Ferris Wheel in...3872author,ebooks,ferris wheel,huntingtons disease,katie jacksonfalsefullhttps://www.spreaker.com/episode/happy-anniversary-help-4-hd--63403074http://www.blogtalkradio.com/help4hd/2011/11/21/happy-anniversary-help-4-hdMon, 21 Nov 2011 23:30:00 +0000Help 4 HD Live!November 21, 2011 - Happy Anniversary Help 4 HD on Blog Talk Radio! Tonight we will be honoring Melissa Biliardi for her outstanding dedication and advocacy for the JHD/HD community!  Melissa is a pioneer!  A year ago, she made the decision to pilot...3860btr,help 4 hd,help 4 jhd,the hd view,the jhd viewfalsefullhttps://www.spreaker.com/episode/pre-recorded-help-4-hd-with-stacy-brookhyser--63403046http://www.blogtalkradio.com/help4hd/2011/11/14/pre-recorded-help-4-hd-with-stacy-brookhyserMon, 14 Nov 2011 23:00:00 +0000Help 4 HD Live!PRE-RECORDED: Our incredible special guest today is Stacy Brookhyser, mother of twins free of HD. She is a super duper proactive HD warrior who is spreading the word about a new procedure to stop HD in its tracks.   The Procedure: IVF/PGD Yes, you...2434fertility,hd warrior,huntingtons disease,ivf,pgdfalsefullhttps://www.spreaker.com/episode/halloween-4-hd--63403152http://www.blogtalkradio.com/help4hd/2011/10/31/halloween-4-hdMon, 31 Oct 2011 22:30:00 +0000Help 4 HD Live!Monday, October 31, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time – Tonight we will be highlighting an incredible book by author John Lerma, MD titled “Into The Light”. Maybe you’ve heard about this poignant book. It’s an accounting of real life...4322ghost stories,halloween,huntingtons disease,jhd,paranormalfalsefullhttps://www.spreaker.com/episode/the-hd-view-with-dr-lavonne-goodman--63403105http://www.blogtalkradio.com/help4hd/2011/10/24/the-hd-view-with-dr-lavonne-goodmanMon, 24 Oct 2011 22:30:00 +0000Help 4 HD Live!Monday, October 24, 2011 - Our incredible special guest is Dr. LaVonne Goodman from HD Drug Works. Though the HDSA has provided the "A Physicians Guide to the Management of Huntington's Disease" for more than a decade (3rd edition recently...3939algorithm,dr lavonne goodman,hd drug works,public library of science,treatment guidelinefalsefullhttps://www.spreaker.com/episode/the-hd-view-with-frances-saldana--63403161http://www.blogtalkradio.com/help4hd/2011/10/17/the-hd-view-with-frances-saldanaMon, 17 Oct 2011 22:30:00 +0000Help 4 HD Live!Monday, October 17, 2011 – Our incredible special guest is Frances Saldaña Advocacy Chairman for the HDSA OC Chapter; Patient Advocacy Committee Member with the Sue and Bill Gross Stem Cell Research Center at UC Irvine; and she was Keynote Speaker at...4701advocacy,hdsa oc chapter,huntingtons disease,stem cell research,university of california irvinfalsefullhttps://www.spreaker.com/episode/help-4-jhd-hd-yo-with-matt-ellison--63402988http://www.blogtalkradio.com/help4hd/2011/10/11/help-4-jhd-hdyo-with-matt-ellisonTue, 11 Oct 2011 22:30:00 +0000Help 4 HD Live!  Tuesday, October 11, 2011 at 6:30 pm ET/11:30 pm UK time - Our incredible special guest tonight is Matt Ellison, founder of HDYO (Huntington’s Disease Youth Organization). Launching in January 2012, HDYO is an organization that will focus...2004hdyo,huntingtons disease,jhd,marathon,youthfalsefullhttps://www.spreaker.com/episode/help-4-jhd-natural-history-study-with-jane-stacie--63403047http://www.blogtalkradio.com/help4hd/2011/10/10/help-4-jhd-natural-history-study-with-jane-stacieMon, 10 Oct 2011 22:30:00 +0000Help 4 HD Live!Monday, October 10, 2011 - Our incredible special guests tonight are Jane Paulsen and Stacie Vik from the University of Iowa. UI is currently recruiting individuals who have shown features of JHD before the age of 20 to be a part of a Natural History...3053clinical studies,jhd natural history study,jhd qualitative study,juvenile huntingtons disease,university of iowafalsefullhttps://www.spreaker.com/episode/help-4-hd-the-hd-view-premier--63403194http://www.blogtalkradio.com/help4hd/2011/10/04/help-4-hd-the-hd-view-premierTue, 04 Oct 2011 22:30:00 +0000Help 4 HD Live!Tuesday, October 4, 2011 – Tonight is the special premier of The HD View a new HELP 4 HD pilot program where we will be discussing current topics and concerns of the JHD and HD community. The goal is to get you talking about what matters to you. Let’s...6196hd community,huntingtons disease,juvenile huntingtons disease,love,truthfalsefullhttps://www.spreaker.com/episode/help-4-hd-what-is-enroll-hd-with-joe-giuliano--63403050http://www.blogtalkradio.com/help4hd/2011/09/27/help-4-hd-what-is-enroll-hd-with-joe-giulianoTue, 27 Sep 2011 22:30:00 +0000Help 4 HD Live!Tuesday, September 27, 2011 - Our incredible special guest is Joe Giuliano, Director of Clinical Operations at CHDI Foundation, Inc. He received his degrees in Chemistry and Nursing at the Catholic University of America in Washington, DC and trained...2745chdi,clinical trials,cohort,enroll hd,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-jhd-with-lauren-holder--63402991http://www.blogtalkradio.com/help4hd/2011/09/13/help-4-jhd-with-lauren-holderTue, 13 Sep 2011 22:30:00 +0000Help 4 HD Live!Tuesday, September 12, 2011 – Our incredible special guest tonight is Lauren Holder, woman on a mission to bring JHD/HD awareness and advocacy to the World. She is Chapter President of the HDSA North Carolina Chapter in Mebane, NC. She is also...3553caregiver,huntingtons disease,juvenile hd,nya,wehaveafacefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-chris-lorraine-stiehl--63403082http://www.blogtalkradio.com/help4hd/2011/09/06/help-4-hd-with-chris-lorraine-stiehlTue, 06 Sep 2011 22:30:00 +0000Help 4 HD Live!Tuesday, September 6, 2011 - Our incredible special guests tonight are Chris and Lorraine Stiehl who are the Patient Advocate Coordinators for CIRM - the California Institute for Regenerative Medicine - the state stem cell agency. This agency was...3004cirm,huntingtons disease,regenerative medicine,science,stem cell grantsfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-diana-dunkelberger--63403084http://www.blogtalkradio.com/help4hd/2011/08/29/help-4-hd-with-diana-dunkelbergerMon, 29 Aug 2011 22:30:00 +0000Help 4 HD Live!Monday, August 29, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time– Our incredible special guest tonight is Diana Dunkelberger from the Paul Muchowski Lab at the Gladstone Institute, UC San Francisco in California. She recently received the HDSA Donald...2058cb2 receptors,huntingtons disease,neuroprotective,paul muchowski lab,ucsffalsefullhttps://www.spreaker.com/episode/help-4-hd-2care-series-part-ii-with-lisa-de-blieck--63403099http://www.blogtalkradio.com/help4hd/2011/08/22/help-4-hd-2care-series-part-ii-with-lisa-de-blieckMon, 22 Aug 2011 22:30:00 +0000Help 4 HD Live!Our incredible special guest is Elisabeth (Lisa) de Blieck, MPA CCRC is a Program Manager at the Clinical Trials Coordination Center (CTCC), which is part of the Center for Human Experimental Therapeutics at the University of Rochester. Ms. de Blieck...2477clinical trials coordination c,coenzyme q 10,double blind study,huntington study group,university of rochesterfalsefullhttps://www.spreaker.com/episode/help-4-hd-hdif-project-with-james-valvano--63403184http://www.blogtalkradio.com/help4hd/2011/08/15/help-4-hd-hdif-project-with-james-valvanoMon, 15 Aug 2011 22:30:00 +0000Help 4 HD Live!Monday, August 15, 2011 – Our incredible special guest tonight is James Valvano and it’s time for an update about his international film project “The Faceless Faces of Huntington’s Disease: I am No Longer A Faceless Face”. He has recently returned...2679documentary,film,hd community,huntingtons disease,jhdfalsefullhttps://www.spreaker.com/episode/help-4-jhd-premier-with-jonathan-carla-bj--63403843http://www.blogtalkradio.com/help4hd/2011/08/08/help-4-jhd-premier-withMon, 08 Aug 2011 22:30:00 +0000Help 4 HD Live!Monday, August 8, 2011 – We have an incredible line-up tonight to kick-off the Help 4 JHD Premier with some amazing special guests. Jacey Mukka and Jane Mervar are here to give us an update on the JHD Iniative; Carla Krull from Southern California is...2104clinical study,jhd,jhd initiative,juvenile huntingtons disease,university of iowafalsefullhttps://www.spreaker.com/episode/help-4-hd-crest-e-series-part-iii-with-dr-rosas--63403840http://www.blogtalkradio.com/help4hd/2011/08/01/help-4-hd-crest-e-series-part-iii-with-dr-rosasMon, 01 Aug 2011 22:30:00 +0000Help 4 HD Live!Monday, August 1, 2011 – Our incredible special guest tonight is Dr. Diana Rosas, MD, Director, Center for Neuro-Imaging of Aging and Neurodegenerative Disease. Dr. Rosas and her team have focused primarily on the development of biomarkers for use in...2715biomarkers,creatine,huntingtons disease,neuro imaging,researchfalsefullhttps://www.spreaker.com/episode/help-4-hd-predict-hd-with-pat-ryan-anne-leserman--63403855http://www.blogtalkradio.com/help4hd/2011/07/25/help-4-hd--predict-hdMon, 25 Jul 2011 22:30:00 +0000Help 4 HD Live!Monday, July 24, 2011 – Our incredible special guests tonight are Anne Leserman and Pat Ryan from the University of Iowa. Pat is the research coordinator for PREDICT-HD at the UI, and Anne is PREDICT-HD's recruitment coordinator. PREDICT-HD is an...2504bio markers,clinical research study,huntington study group,neurobiological,predict hdfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-merit-cudkowicz-2care-series-part-i--63403869http://www.blogtalkradio.com/help4hd/2011/07/18/help-4-hd-with-dr-merit-cudkowicz-2care-series-part-iMon, 18 Jul 2011 22:30:00 +0000Help 4 HD Live!Monday, July 18, 2011 – Our incredible special guest is Dr. Merit Cudkowicz who is the Julieanne Dorn Professor of Neurology at Harvard Medical School. Dr. Cudkowicz's research and clinical activities are dedicated to the study and treatment of...24982care,clinical study,coq10,huntingtons disease,huntington study groupfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-douglas-lowell-find-a-cure-panel--63403881http://www.blogtalkradio.com/help4hd/2011/07/11/help-4-hd-with-douglas-lowell--find-a-cure-panelMon, 11 Jul 2011 22:30:00 +0000Help 4 HD Live!Monday, July 11, 2011 - Doug Lowell is the president of  Find A Cure Panel.  A division of Sample Czar. Find A Cure Panel specializes in online patient research for serious diseases including HD. More specifically, finding people to participate in...4068donations,find a cure panel,non porfits,pharma,researchfalsefullhttps://www.spreaker.com/episode/help-4-hd-giovanni-schifitto-crest-e-series-part-ii--63403842http://www.blogtalkradio.com/help4hd/2011/07/05/help-4-hd--giovanni-schifitto-crest-e-series-part-ii-1Tue, 05 Jul 2011 22:30:00 +0000Help 4 HD Live!Tuesday, July 5, 2011 – Our incredible special guest is Giovanni Schifitto, MD, MS, Associate Professor of Neurology and Imaging Sciences and Associated Co-Director of the Clinical Research Core of the Clinical Translational Science Institute at the...3751clinical studies,creatine,crest-e,hd research,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-stacy-brookhyser--63403889http://www.blogtalkradio.com/help4hd/2011/06/27/help-4-hd-with-stacy-brookhyserMon, 27 Jun 2011 22:30:00 +0000Help 4 HD Live!Monday, June 27, 2011 - Our incredible special guest is Stacy Brookhyser (CAG 42), mother of twins free of HD. She is a super duper proactive HD warrior who is spreading the word about a new procedure to stop HD in its tracks. Planning an HD-free...2374disease prevention,hd testing,huntingtons disease,insurance,ivf pgdfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-martha-nance--63403846http://www.blogtalkradio.com/help4hd/2011/06/20/help-4-hd-with-dr-martha-nanceMon, 20 Jun 2011 22:30:00 +0000Help 4 HD Live!Monday, June 20, 2011 –Our incredible special guest tonight is Dr. Martha A. Nance, director of the HD Center of Excellence at Hennepin County Medical Center since 1991. She received her BS from Yale University and her MD from Medical College of...3482hdsa center of excellence,huntingtons disease,juvenile huntingtons disease,physicians guide to hd,the juvenile hd handbookfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-will-huff-liani-johnson--63403857http://www.blogtalkradio.com/help4hd/2011/06/13/help-4-hd-with-will-huff-liani-johnson-1Mon, 13 Jun 2011 22:30:00 +0000Help 4 HD Live!Monday, June 13, 2011 – Our incredible special guests tonight are Will Huff from Grass Roots Research & Education in Goleta and Liani Johnson, founder of Cannabee Products Inc. in Palm Springs. Both are California medicinal cannabis specialists....3199cb2 receptors,huntingtons disease,medical cannabis,neuro protection,researchfalsefullhttps://www.spreaker.com/episode/help-4-hd-crest-e-hd-study-episode-1-of-3--63403850http://www.blogtalkradio.com/help4hd/2011/06/06/help-4-hd-crest-e-hd-study-episode-1-of-3Mon, 06 Jun 2011 22:30:00 +0000Help 4 HD Live!Monday, June 6, 2011 – Our incredible special guest is Steven Hersch, MD, PhD, Professor of Neurology at Massachusetts General Hospital and Harvard Medical School; Director, Laboratory of Neurodegeneration and Neurotherapeutics, MassGeneral Institute...3134clinical studies,creatine,hd clinical studies,hsg,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-the-huntingtons-disease-project--63403901http://www.blogtalkradio.com/help4hd/2011/05/29/help-4-hd-the-huntingtons-disease-projectSun, 29 May 2011 17:30:00 +0000Help 4 HD Live!Sunday, May 29 - Our incredible special guests are James Valvano (WeHaveAFace.org) and his A Team comprised of an incredible team of individuals within the Huntington's disease community. These individuals have joined the project to promote the film...3039advocacy,documentary,huntingtons disease,juvenile huntingtons disease,neuro film festivalfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-jacey-mukka-jane-mervar-jon-monkemeyer--63403865http://www.blogtalkradio.com/help4hd/2011/05/16/help-4-hd-with-jacey-mukka-jane-mervar-jon-monkemeyerMon, 16 May 2011 22:30:00 +0000Help 4 HD Live!Monday, May16, 2011– Our incredible special guests today are Jacey Mukka, Jane Mervar and Jonathan Monkemeyer. Jacey Mukka – will discuss the JHD Initiative, LLC. (Juvenile Huntington's Disease Initiative). Jacey is our very first JH'Dear on Help 4...4064facebook groups,hdsa youth alliance,jhd advocacy,jhd initiative,juvenile huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-ira-shoulson-md--63403854http://www.blogtalkradio.com/help4hd/2011/05/09/help-4-hd-with-ira-shoulson-mdMon, 09 May 2011 22:30:00 +0000Help 4 HD Live!Monday, May 9, 2011 - Our incredible special guest is Ira Shoulson, MD Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University – new full-time academic...2696clinical studies,hsg,huntingtons disease,neurology,researchfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-jane-kogan-hdsa-advocacy--63403875http://www.blogtalkradio.com/help4hd/2011/05/02/help-4-hd-with-jane-kogan-hdsa-advocacyMon, 02 May 2011 22:30:00 +0000Help 4 HD Live!Monday, May 2, 2011 - Our incredible special guest is Jane Kogan, HDSA Advocacy Manager. She is going to give us the complete explanation of the Huntington's Disease Parity Act: S. 648/HR 718 and we will talk about many facets of HDSA's National...2636advocacy,government,hd parity act,hdsa,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-john-la-puma-chefmd--63403879http://www.blogtalkradio.com/help4hd/2011/04/21/help-4-hd-with-dr-john-la-puma-chefmdThu, 21 Apr 2011 18:30:00 +0000Help 4 HD Live!Thursday, April 21, 2011– Our incredible special guest is Dr. La Puma, a board-certified specialist in internal medicine and professionally trained chef. The leading practicing physician voice for the importance of food in health care, and a New York...4043caregiver,food,helath,huntingtons disease,internistfalsefullhttps://www.spreaker.com/episode/help-4-hd-411-with-james-valvano--63403847http://www.blogtalkradio.com/help4hd/2011/04/11/help-4-hd--411-with-james-valvanoMon, 11 Apr 2011 22:30:00 +0000Help 4 HD Live!Monday, our incredible special guest is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and brought us out of the proverbial closet with his films, The...3164clinical studies,film,hd advocacy,hdsa,huntingtons diseasefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-terry-tempkin-ucd-coe-10th-anniversary-show--63403867http://www.blogtalkradio.com/help4hd/2011/04/04/help-4-hd-with-terry-tempkin-ucd-coe-10th-anniversary-showMon, 04 Apr 2011 22:30:00 +0000Help 4 HD Live!Happy 10th Anniversary to everyone at the HDSA Center of Excellence at the UC Davis Medical Center in Sacramento! Terry Tempkin, Co-Director and Nurse Practitioner extraordinaire will be our incredible special guest this week. She is going to share...2980center of excellence,dr wheelock,hdsa,huntingtons disease,neurologyfalsefullhttps://www.spreaker.com/episode/help-4-hd-march-4-hdsa-with-jane-kogan-jules-greenwald--63403905http://www.blogtalkradio.com/help4hd/2011/03/28/help-4-hd-march-4-hdsa-with-jane-kogan-jules-greenwaldMon, 28 Mar 2011 22:30:00 +0000Help 4 HD Live!MAR28__This is the last of four shows in the March 4 HDSA series. Every Monday we have been showcasing another segment of the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guests tonight are Jane...2798advocacy,fundraising,hdsa,huntingtons disease,nyofalsefullhttps://www.spreaker.com/episode/help-4-hd-march-4-hdsa-with-fred-taubman-dr-jang-ho-cha--63403887http://www.blogtalkradio.com/help4hd/2011/03/21/help-4-hd-march-4-hdsa-with-fred-taubman-dr-jang-ho-chaMon, 21 Mar 2011 22:30:00 +0000Help 4 HD Live!MAR 21__This is the third show in the March 4 HDSA series. Each Monday we will be showcasing another segment of the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guest tonight is Fred Taubman,...3115clinical trials,fundraising,hdsa,huntingtons disease,scientific researchfalsefullhttps://www.spreaker.com/episode/help-4-hd-march-4-hdsa-with-debra-lovecky--63403845http://www.blogtalkradio.com/help4hd/2011/03/14/help-4-hd-march-4-hdsa-with-debra-loveckyMon, 14 Mar 2011 22:30:00 +0000Help 4 HD Live!MAR 14__This is the second show in the March 4 HDSA series. We will be showcasing the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guest this tonight is Debra Lovecky, Director of Programs and...2516huntingtons disease,non-profit,programs,services,volunteerfalsefullhttps://www.spreaker.com/episode/help-4-hd-march-4-hdsa-with-louise-vetter-nancy-rhodes--63403861http://www.blogtalkradio.com/help4hd/2011/03/07/help-4-hd-march-for-hdsaMon, 07 Mar 2011 23:30:00 +0000Help 4 HD Live!MAR 7__This is the first show in the March 4 HDSA series. Each Monday we will be showcasing another segment of the largest non-profit volunteer organization of its kind for our HD community. Our incredible special guests are Louise Vetter, CEO and...2406hdsa,huntingtons disease,programs,resources,servicesfalsefullhttps://www.spreaker.com/episode/help-4-hd-mow-show-with-mike-ratel--63403863http://www.blogtalkradio.com/help4hd/2011/02/28/help-4-hd-mow-show-with-mike-ratelMon, 28 Feb 2011 23:30:00 +0000Help 4 HD Live!Special guest Mike Ratel is Producer/Director of "On Your Mark, Get Set Mow", a movie about mower racing and raising mow money for Huntington's Disease awareness and research in MI. This is going to be a great show... so mark, and set your calendars...1542event,fundraising,huntingtons disease,mower racing,uslmrafalsefullhttps://www.spreaker.com/episode/help-4-hd-with-james-valvano--63403874http://www.blogtalkradio.com/help4hd/2011/02/21/help-4-hd-with-james-valvanoMon, 21 Feb 2011 23:30:00 +0000Help 4 HD Live!James Valvano has postponed his trip to Egypt for now. The exciting news is that his new film "The Faceless Faces of Huntington's Disease" is currently taking first place in the Neuro Film Festival contest. Go to this link...2649empower,fundraising,huntingtons disease,neuro film festival,stigmafalsefullhttps://www.spreaker.com/episode/help-4-hd-with-jonathan-dickinson--63403904http://www.blogtalkradio.com/help4hd/2011/02/14/help-4-hd-with-jonathan-dickinsonMon, 14 Feb 2011 23:30:00 +0000Help 4 HD Live!In loving memory of Peter Dickinson AKA “Pops” who has passed on to the Himalayas in Heaven. Join us for a fantastic show with Jonathan Dickinson who is wrapping up this courageous documentary/feature film Called “Father Spirit” about he and his dad...3114himalayas,huntingtons disease,india,motorcycle,travelfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-audrey-watson--63403870http://www.blogtalkradio.com/help4hd/2011/02/07/help-4-hd-with-audrey-watsonMon, 07 Feb 2011 23:30:00 +0000Help 4 HD Live!This is going to be a very exciting show with Audrey Watson. She is a marathon ultra-runner for Huntington's Disease awareness and fundraising. Whether she is running the Himalayan 100 Stage Race in October 2010, the Avalon 50 Mile Run at Catalina,...2033fundraising,hdsa,health,huntingtons disease,runningfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-daniel-brennan--63403866http://www.blogtalkradio.com/help4hd/2011/01/31/help-4-hd-with-daniel-brennanMon, 31 Jan 2011 23:30:00 +0000Help 4 HD Live!Our special guest tonight is Daniel Brennan who joined Lundbeck in July 2009, after Xenazine had been developed and launched in the USA. He is Vice President and General Manager of Neurology Franchise at Lundbeck and now leads the group of people that...2336chorea,drug therapies,huntingtons disease,lundbeck inc,xenazinefalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-lavonne-goodman--63403871http://www.blogtalkradio.com/help4hd/2011/01/24/help-4-hd-with-dr-lavonne-goodmanMon, 24 Jan 2011 23:30:00 +0000Help 4 HD Live!Our special guest tonight is Dr. LaVonne Goodman, a “mostly retired” internist and patient advocate who decided to help a Seattle clinic recruit patients with Huntington’s Disease (HD) and was wildly successfully at it. Her secret, she says, is having...2312advocacy,clinical trials,cohort,huntingtons disease,huntington study groupfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-kim-gibson-james-valvano--63403938http://www.blogtalkradio.com/help4hd/2011/01/17/help-4-hd-openMon, 17 Jan 2011 23:30:00 +0000Help 4 HD Live!Our special guests tonight are Kimberly Gibson (repeat performance) and James Valvano. We will be talking about the Faith & Hope Society again, a new addition blog to their website called “James Talk” written by James Valvano and what they are...2230advocacy,books,huntingtons disease,non-profits,websitesfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-lisa-kjer--63403916http://www.blogtalkradio.com/help4hd/2011/01/10/help-4-hd-with-lisa-kjerMon, 10 Jan 2011 23:30:00 +0000Help 4 HD Live!Our special guest tonight is the amazing Lisa Kjer. She is a Master of Social Work for the UC Davis HDSA Center of Excellence in Sacramento, CA and works with 200+ families who come to see the center's dedicated neurologist. Lisa was hooked on social...2670caregivers,hdsa centers of excellence,huntingtons disease,social worker,uc davis medical centerfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-gina-mcgahen-becker--63403880http://www.blogtalkradio.com/help4hd/2011/01/03/help-4-hd-with-gina-beckerMon, 03 Jan 2011 23:30:00 +0000Help 4 HD Live!Our incredible special guest tonight is Gina McGahen Becker who is doing great work to bring awareness to her community about HD. When I asked her to tell me something about herself, she immediately started telling me about how much she loves her...2366fundraising,hdsa,huntingtons disease,leadership,team hope walkfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-kimberly-gibson--63403856http://www.blogtalkradio.com/help4hd/2010/12/27/help-4-hd-with-kimberly-gibson--faith-hope-societyMon, 27 Dec 2010 23:30:00 +0000Help 4 HD Live!Monday night our special guest is KIMBERLY GIBSON. She is gene positive for Huntington's Disease and grew up surrounded by HD. Like so many HD families, she has helplessly watched as the people she loved died in front of her. As the caregiver to her...2147charity,faith,hope,huntingtons disease,non-profit organizationfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-dr-jan-nolta--63403907http://www.blogtalkradio.com/help4hd/2010/12/20/help-4-hd-with-dr-jan-noltaMon, 20 Dec 2010 23:30:00 +0000Help 4 HD Live!This show is going to blow you away!.... Our special guest is the esteemed JAN A. NOLTA Ph.D., Director Professor, UC Davis Stem Cell Program and Institute for Regenerative Cures…. She and other amazing scientists have been working day and night to...1905clinical trials,huntingtons disease,stem cells,the institute for regenerative,uc davisfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-chris-furbee--63403844http://www.blogtalkradio.com/help4hd/2010/12/13/help-4-hd-with-chris-furbeeMon, 13 Dec 2010 23:30:00 +0000Help 4 HD Live!Our special guest this show is the amazing and dynamic CHRIS FURBEE. Chris was born April 30, 1966 and tested positive (43 repeats) for the Huntington's Gene in 1996. He recently came to terms that he is in the early stages of Huntington's Disease. He...2177hdsa,hopes,huntingtons dance,huntingtons disease,mindfalsefullhttps://www.spreaker.com/episode/help-4-hd-special-guest-dr-robert-pacifici-from-chdi-foundation-hosted-by-bj-viau--63403917http://www.blogtalkradio.com/help4hd/2010/12/06/help-4-hd-hosted-by-bj-viauMon, 06 Dec 2010 23:30:00 +0000Help 4 HD Live!Dr. Robert Pacifici, Chief Scientific Officer from CHDI Foundation will be our special guest on the show. Dr. Pacifici will talk to us about who is CHDI, what their goals are as a foundation, the future outlook in HD research and how HD families can...1854chdi,clinical trials,drugs,huntingtons disease,therapiesfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-mike-brown--63403885http://www.blogtalkradio.com/help4hd/2010/11/29/help-4-hdMon, 29 Nov 2010 23:30:00 +0000Help 4 HD Live!SPECIAL GUEST: Mike Brown.... Mike and Allie are very special friends of ours. Mike started the first Huntington's Disease support group on the California Central Coast in 2007. He will talk to us about the clinical trial his wife Allie has...3572clinical trials,hdsa,health,huntingtons,supportfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-matty-ellison-from-the-uk--63403947http://www.blogtalkradio.com/help4hd/2010/11/22/help-4-hdMon, 22 Nov 2010 23:30:00 +0000Help 4 HD Live!SPECIAL GUEST: Matty Ellison from the UK….SUBJECT: Matty is working hard on a new project called the Huntington’s Disease Youth Organization (HDYO). HDYO will support young people from the HD community all over the world….Launching in late 2011, HDYO...1989hd,hdsa,hdsgccc,huntingtons,non-profitsfalsefullhttps://www.spreaker.com/episode/help-4-hd-with-lauren-holder--63403877http://www.blogtalkradio.com/help4hd/2010/11/15/help-4-hdMon, 15 Nov 2010 23:30:00 +0000Help 4 HD Live!SPECIAL GUEST: Lauren Holder.... SUBJECT 1: H.R. 678 (The HD Parity Act).... LAUREN is our incredible special guest on HELP 4 HD. She is an HD activist with the "PASSION FACTOR" and she is on a mission to educate our government about how critically...3012advocacy,hd,hdsa,hdsgccc,huntingtonsfalsefull