https://www.spreaker.com/podcast/toms-hirschsprungs-podcast--6073716enHealth & FitnessCopyright Tom Richardhttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/a0e7d215f5345f918505a399b123a01c.jpghttps://www.spreaker.com/podcast/toms-hirschsprungs-podcast--6073716Thu, 20 Aug 2026 07:26:42 +0000Tom RichardTom Richardfeeds@spreaker.comStarting in 2024 🎧! I provide a look into the remarkable experiences of some of the most inspiring people around #hirschsprungsdisease and sport. I will be sharing my own thoughts, with over 30 years of lived experiences with #hirschsprungsdisease...true1636b6e5-6c23-56d2-a09b-c26d789a589bepisodichttps://www.spreaker.com/episode/episode-137-with-lex--743686211e12cf20-ccf2-4c13-bc47-3a0004e01ec4Thu, 20 Aug 2026 05:00:00 +0000Tom RichardLex talks about her son Frankie's complicated Hirschsprung's story as well as being diagnosed with short gut/intestinal failure.We also chat about surgery, as Frankie has already had 14, and the impact this can have on young children. Lex also...2753false1137fullhttps://www.spreaker.com/episode/episode-136-with-megan-wallis--738921164de9c63c-1728-490b-834c-37669c06e9dfThu, 13 Aug 2026 05:00:00 +0000Tom RichardAfter her local hospital had no idea what was wrong, Megan became increasingly concerned about her son Oaklee when he was diagnosed with Hirschsprung's Disease.We also chat about Megan and her families involvement in the Every Step Campaign, an...2874false1136fullhttps://www.spreaker.com/episode/episode-135-with-jodie--73539702Follow Jodie - @growingwithlibby]]>1b3175c3-a659-4619-98f8-07fc050d8a7cThu, 06 Aug 2026 05:00:00 +0000Tom RichardJodie talks about her 8 month old daughter Libby and her variety of medical conditions, including Hirschsprung's Disease and Mowat-Wilson Syndrome.We talk about the need for advocacy and how Jodie and her husband have had to learn a lot in the first 8...Follow Jodie - @growingwithlibby]]>2355false1135fullhttps://www.spreaker.com/episode/episode-134-with-megha-part-2--73252832fe758602-af3a-4dc9-8b08-a65922726d06Thu, 30 Jul 2026 05:00:00 +0000Tom RichardMegha comes back on the show to give us an update on life after 18 months. Although not without its challenges, this is a wonderfully positive episode focusing on how Anya is progressing with her Hirschsprung's.2751false1134fullhttps://www.spreaker.com/episode/episode-133-with-nicole-voss--7312092598fd2a56-6e3b-4865-ac73-af8c0baa7f1cThu, 23 Jul 2026 05:00:00 +0000Tom RichardMum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the hospital, as well as how her mothers instinct was...4087false1133fullhttps://www.spreaker.com/episode/episode-132-with-natalie-little--73008766e961fc5c-32f9-438d-8372-b86a6219d311Thu, 16 Jul 2026 05:00:00 +0000Tom RichardNatalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives us an insight into juggling hospital and family...2997false1132fullhttps://www.spreaker.com/episode/episode-131-with-katie-thomson--72881931becd0da1-7198-4a3a-a713-e394c8ca0c12Thu, 09 Jul 2026 05:00:00 +0000Tom RichardIn this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk.After her son was born, Katie had an unfortunate time with...2350false1131fullhttps://www.spreaker.com/episode/episode-130-with-andrea-guse--72785459andrearguse]]>3b11045e-dfed-41f1-a776-9e45a5fb4f64Thu, 02 Jul 2026 05:00:00 +0000Tom RichardA very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public...andrearguse]]>3636false1130fullhttps://www.spreaker.com/episode/episode-129-with-jodie-mulrainey--72684125Follow Jodie - @jodie_mulrainey28]]>78213e3e-7c3b-4f55-b02c-0d6abb5f260dThu, 25 Jun 2026 05:00:00 +0000Tom RichardJodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts of enterocolitis and stoma issues. Later on we talk...Follow Jodie - @jodie_mulrainey28]]>3672false1129fullhttps://www.spreaker.com/episode/episode-128-with-stephanie-luster--72574202662b83bc-2020-4592-adb8-e16037a733d2Thu, 18 Jun 2026 05:00:00 +0000Tom RichardAn episode full of twists and turns awaits, as Stephanie joins me to talk about her daughter with Total Colonic Hirschsprung's Disease, this is most certainly not a straightforward case.In this episode we discuss the power of faith to get through...2610false1128fullhttps://www.spreaker.com/episode/episode-127-with-zandra-thomas--724727919f7187d2-7f4e-44ee-9de9-38c68f565180Thu, 11 Jun 2026 05:00:00 +0000Tom RichardToday Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures,...2464false1127fullhttps://www.spreaker.com/episode/episode-126-with-laura-rigg--7233768258f81c68-c4ab-49a1-a7f6-72c401f5f2b1Thu, 04 Jun 2026 05:00:00 +0000Tom RichardHirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's.Originally thought to be short segment, until the biopsy found just a few centimetres of colon with living ganglion cells, we talk through the...2681false1126fullhttps://www.spreaker.com/episode/episode-125-with-bekki--72201237Please enjoy the episode!]]>8e5b7503-ee82-47f4-8ecc-e5a250ce2c98Thu, 28 May 2026 05:00:00 +0000Tom RichardThis week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis. In this episode we discuss preparing for surgeries, from both the parental and child point of view as well as how stomas can affect the body ability to retain...Please enjoy the episode!]]>2594false1125fullhttps://www.spreaker.com/episode/episode-124-with-denise-welch--72093348Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of the most loved and respected personalities in the country.
This story is full of incredible highs and lows when it comes to Hirschsprung's, and a huge thank you to Denise and her team for making this episode possible.
Enjoy the episode!]]>879d5a53-e36d-4453-a2cc-05578915360eThu, 21 May 2026 05:00:00 +0000Tom RichardActor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time! Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of...Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of the most loved and respected personalities in the country.
This story is full of incredible highs and lows when it comes to Hirschsprung's, and a huge thank you to Denise and her team for making this episode possible.
Enjoy the episode!]]>3449false1124fullhttps://www.spreaker.com/episode/episode-123-with-sadie--72001131https://l.instagram.com/?u=https%3A%2F%2Fgofund.me%2Fb8f9bf96f%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGndj_B6xpbT38Rj134NmgWw37M8tYKAHweA-c4KxR8mBr1H6uFW7IWBLfPfr0_aem_kqKRbLlLBDLehYCKPK0Img&e=AT5Rvvkn_Dg2Z9ybEHwc8ACeK1wytrbuYR1RpUnaSLfFdj6stB3dShjgq8Dd33eplU9gXQG55mYlhgXxELqhzSmWkGi4u0ok5T2yPtNtmAFollow Sadie - @sadieray__]]>6ee3f23d-def2-4035-ad17-affe8bb32290Thu, 14 May 2026 05:00:00 +0000Tom RichardSadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease.Whilst the likelihood of Hirschsprung's was initialised dismissed , although the classic symptoms were present, a hospital in London (Ontorio)...https://l.instagram.com/?u=https%3A%2F%2Fgofund.me%2Fb8f9bf96f%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGndj_B6xpbT38Rj134NmgWw37M8tYKAHweA-c4KxR8mBr1H6uFW7IWBLfPfr0_aem_kqKRbLlLBDLehYCKPK0Img&e=AT5Rvvkn_Dg2Z9ybEHwc8ACeK1wytrbuYR1RpUnaSLfFdj6stB3dShjgq8Dd33eplU9gXQG55mYlhgXxELqhzSmWkGi4u0ok5T2yPtNtmAFollow Sadie - @sadieray__]]>2945false1123fullhttps://www.spreaker.com/episode/episode-122-with-lauren-and-kieran-jewell--719024444a4839da-42be-4d9a-9cca-3ef1ba32d73fThu, 07 May 2026 05:00:00 +0000Tom RichardThis week I am joined by 2 guests as Lauren and Kieran talk about their 3 year old son Freddie, and his journey with Hirschsprung's.Lauren talks through Freddie's 3 surgeries and Kieran talks about stoma care, as they both share their thoughts over...2704false1122fullhttps://www.spreaker.com/episode/episode-121-with-paul-leonard-morgan--71769868Follow Paul - @paulleonardmorgan
]]>a78b057f-0a6b-42f3-87a1-9c7ed47710bbThu, 30 Apr 2026 05:00:00 +0000Tom RichardWorld renowned composer and BAFTA award winner Paul joins me to talk about his daughters experience with Hirschsprung's.Later in the episode we talk about Paul's incredible kilt walking exploits over the last 13 years, stay tuned to listen to how Paul...Follow Paul - @paulleonardmorgan
]]>2993false1121fullhttps://www.spreaker.com/episode/episode-120-with-ann-marie-castille--715828385fdb3d98-908b-4be9-9720-8c443efff0a8Thu, 23 Apr 2026 05:00:00 +0000Tom RichardJust 5 1/2 months after giving birth to her fourth child, Ann-Marie joins me to talk about her sons journey so far with Hirschsprung's.We go through the last 5 1/2 months, with helicopter rides, thunderstorms and a sea of emotions, as Ann-Marie shares...3734false1120fullhttps://www.spreaker.com/episode/episode-119-with-bria--71359352Later in the episode Bria talks about her informative TikTok's explaining various points on Hirschsprung's Disease and how this has helped families from all over the world.
Enjoy the episode.
Follow Bria - Instagram - @itsbeeingbriaTikTok - @beeingbria]]>489b0176-5b98-4ba9-a025-6561418340d4Thu, 16 Apr 2026 05:00:00 +0000Tom RichardBria chats to me about her 3 year old son and his story with Hirschsprung's. Having had one child already, Bria and her family had no idea that Hirschsprung's existed as we talk through procedures and the pull-through surgery. Later in the episode...Later in the episode Bria talks about her informative TikTok's explaining various points on Hirschsprung's Disease and how this has helped families from all over the world.
Enjoy the episode.
Follow Bria - Instagram - @itsbeeingbriaTikTok - @beeingbria]]>2616false1119fullhttps://www.spreaker.com/episode/episode-118-with-tony-brattoli--71204197Follow Tony:-Instagram:- @tonybrattolicomposerTikTok:- @tonybrattoli]]>aacb9a5a-adb3-4609-aa7e-a0b653249212Thu, 09 Apr 2026 05:00:00 +0000Tom RichardMusician and Composer Tony talks about his life with a variety of conditions, including Hirschsprung's.Having interviewed Tony's brother James, we discover that both men's lives have been very different, with Tony also being lactose intolerant, having...Follow Tony:-Instagram:- @tonybrattolicomposerTikTok:- @tonybrattoli]]>2634false1118fullhttps://www.spreaker.com/episode/episode-117-with-shakeyra-sanders--71056617Follow Shakeyra - @shakeyraloving_life24]]>b9eb0011-eb66-43d8-920e-38be0f12c7adThu, 02 Apr 2026 05:00:00 +0000Tom RichardA tricky and emotional episode as Shakeyra tells her story with Hirschsprung's from the beginning. Towards the end we talk about what good days and bad days look like for Shakeyra and her Hirschsprung's. Follow Shakeyra - @shakeyraloving_life24Follow Shakeyra - @shakeyraloving_life24]]>2591false1117fullhttps://www.spreaker.com/episode/special-announcement--71018528Listen to find out what it is and all the details.
Ticket link:-https://www.ucl.ac.uk/population-health-sciences/events/2026/jul/ucl-hirschsprung-disease-awareness-day
HD study discussed in the episode:-https://fg.bmj.com/content/early/2026/01/02/flgastro-2025-103478.info]]>c92968a6-e05c-4a2c-9511-ff9c4e10d8eeTue, 31 Mar 2026 11:07:22 +0000Tom RichardToday I chat with Ben Jevans and Georgina Merckel to make a special announcement regarding a Hirschsprung's event on Saturday 4th July 2026. Listen to find out what it is and all the details. Ticket...Listen to find out what it is and all the details.
Ticket link:-https://www.ucl.ac.uk/population-health-sciences/events/2026/jul/ucl-hirschsprung-disease-awareness-day
HD study discussed in the episode:-https://fg.bmj.com/content/early/2026/01/02/flgastro-2025-103478.info]]>1081falsefullhttps://www.spreaker.com/episode/episode-116-with-annalise-steele--70888473Follow Annalise - @annalisekatherine]]>aed26de9-0787-4090-9684-1c1507362823Thu, 26 Mar 2026 06:00:00 +0000Tom RichardNot only was Jack diagnosed with Hirschsprung's Disease, (a 1 in 5000 chance) he was also diagnosed earlier with Duodenal Atresia (a 1 in 6000 chance) thus making one of the rarest combinations ever seen on the podcast.Annalise talks through Jack's...Follow Annalise - @annalisekatherine]]>3047false1116fullhttps://www.spreaker.com/episode/episode-115-with-hana-walker--70736051We also chat about ostomy surgery and how Hana's life has improved since the operation 2 years ago.]]>39af5382-256b-4002-af37-88da55545b9cThu, 19 Mar 2026 06:00:00 +0000Tom RichardAn extraordinary story unfolds as 24 year-old Hana wasn't diagnosed with Hirschsprung's until 22 years of age, having gone through many years of frustration and gaslighting. We also chat about ostomy surgery and how Hana's life has improved since the...We also chat about ostomy surgery and how Hana's life has improved since the operation 2 years ago.]]>2553false1115fullhttps://www.spreaker.com/episode/episode-114-with-charli-warriner--706045852fe84823-fa1b-41da-b5b7-aa1e30725694Thu, 12 Mar 2026 06:00:00 +0000Tom RichardCharli tells the story of her 3 year old son with Hirschsprung's, with a difficult initial diagnosis, but a positive look towards the future.Despite a hospital mix-up, and being told that Hirschsprung's was 99% not in Teddy's future, Charli advocated...2666false1114fullhttps://www.spreaker.com/episode/episode-113-with-hannah-blewitt--7047273535e7d67c-77ba-4741-9975-dc48a144e950Thu, 05 Mar 2026 06:00:00 +0000Tom RichardHannah joins me to talk about her 5 month old son Oliver and his story with Hirschsprung's. With no family history of Hirschsprung's, the diagnosis obviously came as a shock, especially with a bout of Enterocolitis in January.Hannah also explains her...2341false1113fullhttps://www.spreaker.com/episode/episode-112-with-james-brattoli--702948253dc2f1cc-4cf2-4c5c-bd8a-375aef9eab60Thu, 26 Feb 2026 06:00:00 +0000Tom RichardJames is an Actor and Screenwriter from LA, who shares his incredibly raw and honest account of his life with Hirschsprung's from the very start.With over 20 surgeries before the age of 6 as well as his older brother having Hirschsprung's, James...2819false1112fullhttps://www.spreaker.com/episode/alder-hey-parent-support-group-explanation--70186946We will discuss:-- What is the parent support group- How did it all come about- How is it going to work
Please enjoy the episode]]>074e33eb-1a49-4aa3-b8df-adbbc7c70fe6Sat, 21 Feb 2026 07:13:34 +0000Tom RichardIn this episode myself, Faye and Elle will talk about the new parent support group, specific to Hirschsprung's that's coming soon We will discuss:-- What is the parent support group- How did it all come about- How is it going to work Please enjoy the...We will discuss:-- What is the parent support group- How did it all come about- How is it going to work
Please enjoy the episode]]>1273false1117fullhttps://www.spreaker.com/episode/episode-111-with-kayleigh-acquah--70143667423f8fda-93ff-45dd-8a16-0a27789af9e4Thu, 19 Feb 2026 06:00:00 +0000Tom RichardAfter having 3 children, Kayleigh knew something wasn't quite right when her 4th child Micah, hadn't passed meconium. Kayleigh alerted the doctors at her local hospital before being moved to the specialist hospital, Alder Hey.Kayleigh talks about her...2550false1111fullhttps://www.spreaker.com/episode/episode-110-with-sarah-hartwick--70007085c6dd0e50-698e-4d39-b4cc-9f72dbb1a1caThu, 12 Feb 2026 06:00:00 +0000Tom RichardAfter giving birth just 11 weeks ago, Sarah joins me to talk about the whirlwind of the last few months!Sarah is also a Nurse Practitioner, specialising in gastroenterology, so comes at the subject of being a mum with a Hirschsprung's child from a...2650false1110fullhttps://www.spreaker.com/episode/episode-109-with-emily-arner--69805904399fd691-a747-4eb3-8a39-37f5e2dcb62dThu, 05 Feb 2026 06:00:00 +0000Tom RichardEmily tells the story of her 5 1/2 year old son, who is also a twin, and his journey with Hirschsprung's Disease. We talk about the late diagnosis, and how parental instinct kicked in when Emily and her husband realised something wasn't quite right.A...2889false1109fullhttps://www.spreaker.com/episode/episode-108-ed-leach-and-laura-wilson-part-2--69660441As we talk through the family history it shows how different Hirschsprung's can be in each individual.]]>0ee8929d-8aa2-4ffa-be94-c02f81ed5d38Thu, 29 Jan 2026 06:00:00 +0000Tom RichardWe follow straight on from the first part as we chat through the rest of Elodie's Hirschsprung's story, including Laura's family history when it comes to this condition. As we talk through the family history it shows how different Hirschsprung's can...As we talk through the family history it shows how different Hirschsprung's can be in each individual.]]>2710false1108fullhttps://www.spreaker.com/episode/episode-107-ed-leach-and-laura-wilson-part-1--69542337This is an episode full of resiliency, with part 2 out next week]]>9344d029-9fb8-4c75-859e-083b6db26086Thu, 22 Jan 2026 06:00:00 +0000Tom RichardIn an emotional first part, both Laura and Ed tell the story of their daughter Elodie and her remarkable Hirschsprung's battle.We start from the beginning with a litany of conditions that Elodie was born with including, Congenital malrotation of...This is an episode full of resiliency, with part 2 out next week]]>2787false1107fullhttps://www.spreaker.com/episode/episode-106-with-karen-hill--69450117a11b8bd5-30cf-4d85-91b3-2f0b68201f00Thu, 15 Jan 2026 06:00:00 +0000Tom RichardKaren talks about her 19 year old son Kai, and his experience with Hirschsprung's, Autism and ADHD as her starts to find a career.We chat about Kai's major passion in life of creative writing, and his determination to succeed in this field.Follow...2723false1106fullhttps://www.spreaker.com/episode/episode-1-an-introduction-to-hirschsprung-s-disease-and-my-story--693870841 - What is Hirschsprung's Disease?, including symptoms and potential treatments2 - Who am I?3 - Why am I doing this podcast?4 - What to expect from the show?
This intro is far more relevant than the original made in 2024, and will hopefully give everyone a better starting point.
Follow me on Facebook, Instagram and TikTok - @toms_hirschsprungs_podcast
Contact me on socials or via email - tomshirschsprungspodcast@gmail.com]]>fea3b838-e817-4f35-8dfb-76f1babc3680Sun, 11 Jan 2026 06:00:00 +0000Tom Richard**** NEW AND IMPROVED****This is the complete introduction of my podcast covering four different topics:- 1 - What is Hirschsprung's Disease?, including symptoms and potential treatments2 - Who am I?3 - Why am I doing this podcast?4 - What to expect...1 - What is Hirschsprung's Disease?, including symptoms and potential treatments2 - Who am I?3 - Why am I doing this podcast?4 - What to expect from the show?
This intro is far more relevant than the original made in 2024, and will hopefully give everyone a better starting point.
Follow me on Facebook, Instagram and TikTok - @toms_hirschsprungs_podcast
Contact me on socials or via email - tomshirschsprungspodcast@gmail.com]]>992false11fullhttps://www.spreaker.com/episode/episode-105-2nd-anniversary-special-with-mark-schulz--69350043]]>0d3afc73-87cb-4e52-9597-0fcf302dd445Thu, 08 Jan 2026 06:00:00 +0000Tom RichardMultiple time marathon finisher and Bloomberg CFO Mark Schulz, joins me to celebrate the podcasts second birthday as he talks through his extraordinary family lineage dating back to the 1800's!As well as having short segment Hirschsprung's, Mark is...]]>2799false1105fullhttps://www.spreaker.com/episode/episode-104-with-tiffany-smith--69264934A very interesting story of Hirschsprung's management without surgery, and Tiffany's reasons for doing so.
We also chat about potential stem cell therapy and what the future may hold for Hirschsprung's patients moving forward.
Enjoy the episode.]]>ec12280b-8d91-4cc8-aad0-bc63f5e0dd70Thu, 01 Jan 2026 06:00:00 +0000Tom RichardProfessional Doula and mum of 4, Tiffany, joins me to talk about her son and his Hirschsprung's diagnosis. A very interesting story of Hirschsprung's management without surgery, and Tiffany's reasons for doing so. We also chat about potential stem...A very interesting story of Hirschsprung's management without surgery, and Tiffany's reasons for doing so.
We also chat about potential stem cell therapy and what the future may hold for Hirschsprung's patients moving forward.
Enjoy the episode.]]>2819false1104fullhttps://www.spreaker.com/episode/episode-103-with-gemma-carter--69201895We also talk about how to find information on Hirschsprung's and the importance of having a community, as it can be a very lonely place for parents.
Please enjoy the episode!
Merry Christmas!!!]]>0e30fe86-8e67-4fab-b6c4-39eba4798be5Thu, 25 Dec 2025 06:00:00 +0000Tom RichardGemma bravely shares the story of her 11 month old son Rowan, as we delve into the often unspoken topic on parental mental health when it comes to having a child diagnosed with a complex medical condition. We also talk about how to find information on...We also talk about how to find information on Hirschsprung's and the importance of having a community, as it can be a very lonely place for parents.
Please enjoy the episode!
Merry Christmas!!!]]>2895false1103fullhttps://www.spreaker.com/episode/episode-102-with-lillie-walizer--69112656We discuss hospital life, and how to navigate the challenging medical terms of a rare disease, as well as passing time when it comes to surgery.
Both Lillie and her wife had never heard of Hirschsprung's, but after some initial difficulties we talk about how well Oakley is doing now.]]>f5b56018-c7a9-4f8d-9237-21cea0f06259Thu, 18 Dec 2025 06:00:00 +0000Tom RichardWith no family history of Hirschsprung's Lillie talks through her son's 8 month journey with this condition. We discuss hospital life, and how to navigate the challenging medical terms of a rare disease, as well as passing time when it comes to...We discuss hospital life, and how to navigate the challenging medical terms of a rare disease, as well as passing time when it comes to surgery.
Both Lillie and her wife had never heard of Hirschsprung's, but after some initial difficulties we talk about how well Oakley is doing now.]]>2422false1102fullhttps://www.spreaker.com/episode/episode-101-with-jess-harris-part-2--68987352Within this episode we will chat about living with a stoma, and the importance of having a community that understands this.
Please enjoy the episode]]>4f649d68-a15f-4932-81d0-418d8d82eb80Thu, 11 Dec 2025 06:00:00 +0000Tom RichardI continue my chat with Jess as we take a greater deep dive into her life and living with Hirschsprung's Disease. Within this episode we will chat about living with a stoma, and the importance of having a community that understands this. Please enjoy...Within this episode we will chat about living with a stoma, and the importance of having a community that understands this.
Please enjoy the episode]]>2531false1101fullhttps://www.spreaker.com/episode/episode-100-with-duncan-armstrong--68874274Duncan reveals details surrounding his Hirschsprung's that he has never shared before, including a family connection and how he coped during childhood.
We spend the majority of the episode talking about Duncan's greatest sporting triumph, his Olympic gold medal, including the mindset he had going in and the feelings during and after.
Enjoy the episode!]]>b0278901-c0dc-4c04-bd2b-c39a8e428b73Thu, 04 Dec 2025 06:00:00 +0000Tom RichardOlympic gold medallist and former world record holder, Duncan Armstrong, joins me to celebrate the 100th podcast episode as we talk about all things Hirschsprung's and sport. Duncan reveals details surrounding his Hirschsprung's that he has never...Duncan reveals details surrounding his Hirschsprung's that he has never shared before, including a family connection and how he coped during childhood.
We spend the majority of the episode talking about Duncan's greatest sporting triumph, his Olympic gold medal, including the mindset he had going in and the feelings during and after.
Enjoy the episode!]]>3020false1100fullhttps://www.spreaker.com/episode/episode-99-with-jess-harris-part-1--68766691Jess will take us through an overview of her various conditions, including Hirschsprung's, Diversion Colitis, Vertigo, Complex PTSD, Autism, Bipolar Disorder and Tourette's!
The first part of Jess's story is one of resilience, which will continue next week in part 2]]>bf670e67-8e3b-42af-8002-0d47cd506c8dThu, 27 Nov 2025 06:00:00 +0000Tom RichardA truly remarkable journey unfolds, as Jess takes us through her life from the beginning. Jess will take us through an overview of her various conditions, including Hirschsprung's, Diversion Colitis, Vertigo, Complex PTSD, Autism, Bipolar Disorder...Jess will take us through an overview of her various conditions, including Hirschsprung's, Diversion Colitis, Vertigo, Complex PTSD, Autism, Bipolar Disorder and Tourette's!
The first part of Jess's story is one of resilience, which will continue next week in part 2]]>2876false199fullhttps://www.spreaker.com/episode/episode-98-with-courtney-crawford--68650976Unfortunately Courtney experienced medical gaslighting from her GP with a host of excuses, which led to life saving stoma surgery.
Listen to a journey of resilience and self-advocacy, as well as a battle to raise awareness for Hirschsprung's.]]>dba424e4-327f-4747-b4b9-e34ab972f97dThu, 20 Nov 2025 06:00:00 +0000Tom RichardWe start this episode with Courtney's misdiagnosis of Encopresis instead of the Hirschsprung's she actually has. Unfortunately Courtney experienced medical gaslighting from her GP with a host of excuses, which led to life saving stoma surgery. Listen...Unfortunately Courtney experienced medical gaslighting from her GP with a host of excuses, which led to life saving stoma surgery.
Listen to a journey of resilience and self-advocacy, as well as a battle to raise awareness for Hirschsprung's.]]>2859false198fullhttps://www.spreaker.com/episode/episode-97-with-donna-broughton--68550022Donna's 20 year old step-son has genetic Hirschsprung's , so Donna and her husband went through a PGD route so that we didn’t pass it on and stopped it in our family line.
I appreciate that this can be a controversial and potentially divisive topic, but I felt as though this was an important aspect of Hirschsprung's to share.
Please enjoy the episode.]]>f3f0255b-24db-4ec3-b56a-ce544a957ffbThu, 13 Nov 2025 06:00:00 +0000Tom RichardDonna and I chat about PGD (Pre-Implantation Genetic Diagnosis) and how she and her husband went down this route when they had their child. Donna's 20 year old step-son has genetic Hirschsprung's , so Donna and her husband went through a PGD route so...Donna's 20 year old step-son has genetic Hirschsprung's , so Donna and her husband went through a PGD route so that we didn’t pass it on and stopped it in our family line.
I appreciate that this can be a controversial and potentially divisive topic, but I felt as though this was an important aspect of Hirschsprung's to share.
Please enjoy the episode.]]>2710false197fullhttps://www.spreaker.com/episode/episode-96-with-sydney-foland--68442910Instagram - @Simacek_28
]]>3fb54a5a-dca2-43e9-adf0-d58efbe2d92bThu, 06 Nov 2025 06:00:00 +0000Tom RichardSydney chats to me about her 17 month old daughter, Loretta and how despite the early difficulties and uncertainties she is thriving now.Having also had multiple trips to the specialist hospital for Enterocolitis as well as a suspected perforated...Instagram - @Simacek_28
]]>2481false196fullhttps://www.spreaker.com/episode/episode-95-with-ollie-mcfarlane-part-2--68346429The episode will cover:-Fitness tips from his aerobics classesHow a vegan diet for 2 weeks affected his Hirschsprung'sHis new business venture to help women's fitness for both pre and post pregnancy
Please enjoy the episode
Follow Ollie - @bigfriendlypersonaltraining]]>dc0f5747-1074-4465-9de4-6ba4f2dee147Thu, 30 Oct 2025 06:00:00 +0000Tom RichardOllie returns to the pod to talk about a few important subjects as well as an update on his life since we last spoke a few months ago. The episode will cover:-Fitness tips from his aerobics classesHow a vegan diet for 2 weeks affected his...The episode will cover:-Fitness tips from his aerobics classesHow a vegan diet for 2 weeks affected his Hirschsprung'sHis new business venture to help women's fitness for both pre and post pregnancy
Please enjoy the episode
Follow Ollie - @bigfriendlypersonaltraining]]>2534false195fullhttps://www.spreaker.com/episode/episode-94-with-sandeep-kumar--68249396Enjoy the episode!]]>a72122a8-cf32-4722-aa11-f5f4e6099a51Thu, 23 Oct 2025 05:00:00 +0000Tom RichardSandeep talks about his son's Hirschsprung's condition, we talk about diet, medicine and treatments.This is a slightly shorter episode but it still packed with plenty of interesting topics that I hope you find very useful. Enjoy the episode!Enjoy the episode!]]>2117false194fullhttps://www.spreaker.com/episode/episode-93-with-stacey-haines--681606353d8eb863-f77c-42f1-9417-e57424ac880cThu, 16 Oct 2025 05:00:00 +0000Tom RichardStacey from Rare Patient Voices joins me to talk about the vital work that the company does in supporting rare and non-rare conditions.We chat about how the business was formed and how it has grown many times over to be the world's leading medical...2236false193fullhttps://www.spreaker.com/episode/episode-92-with-sarah-novatt--68073257f5c597cd-eb71-466b-af23-7904fa2e34c8Thu, 09 Oct 2025 05:00:00 +0000Tom RichardSarah talks about her son Remy and his experience with Total Colonic Hirschsprung's Disease. During the episode I also find out the family dynamic when it comes to Hirschsprung's, and why it was very surprising when the hospital dismissed Remy's...2643false192fullhttps://www.spreaker.com/episode/episode-91-with-laura-o-reilly-part-4--679819464ed197c9-365b-4e04-b16d-7cab32bfa70dThu, 02 Oct 2025 05:00:00 +0000Tom RichardAn inspirational story of resilience and perseverance continues, as Laura shares all about her latest business venture 'FYN Coaching' or 'Finish Your Now Coaching' The passion for coaching and seeing others succeed is evident in Laura's voice from the...2725false191fullhttps://www.spreaker.com/episode/episode-90-with-wim-predhomme--6788836661c5bb5a-94a3-4071-afe4-5d75efa37b2bThu, 25 Sep 2025 05:00:00 +0000Tom RichardParaglider and Metal Artist, Wim Predhomme joins me to talk through his life with Hirschsprung's, including some of the highs and lows that come along with the condition.Wim chats through various parts of his life, including how he copes with...3193false190fullhttps://www.spreaker.com/episode/episode-89-with-saffire-eden--678035934145006c-eace-4f6f-8eba-2077be770b3fThu, 18 Sep 2025 05:00:00 +0000Tom RichardSome very important topics are discussed in today's episode, as I chat with Saffire about her daughters diagnosis of Hirschsprung's 9 months ago. During what was undoubtedly a very stressful and worrying time for all the family, the miscommunication...2515false189fullhttps://www.spreaker.com/episode/episode-88-with-sadie-goldthorpe--67715549We start the story when Sadie is 10 weeks pregnant and she has a test for Cody that comes back as 1 in 8 chance of her son having Downs Syndrome.
With Cody being Sadie and Andy’s second child, she knew what to look for and could feel that things were not as they were supposed to be.
This all takes place during lockdown/covid times as Sadie and her husband Andy navigate the first few months of Cody's Hirschsprung's.
Follow Sadie - @sadegoldthorpe]]>7679d195-a3ba-4b68-b3e4-d9a570c3a510Thu, 11 Sep 2025 05:00:00 +0000Tom RichardSadie joins me to talk about her 4 year son Cody and his Hirschsprung's story. We start the story when Sadie is 10 weeks pregnant and she has a test for Cody that comes back as 1 in 8 chance of her son having Downs Syndrome. With Cody being Sadie and...We start the story when Sadie is 10 weeks pregnant and she has a test for Cody that comes back as 1 in 8 chance of her son having Downs Syndrome.
With Cody being Sadie and Andy’s second child, she knew what to look for and could feel that things were not as they were supposed to be.
This all takes place during lockdown/covid times as Sadie and her husband Andy navigate the first few months of Cody's Hirschsprung's.
Follow Sadie - @sadegoldthorpe]]>2715false188fullhttps://www.spreaker.com/episode/episode-87-with-alexa-murphy--67628225What follows is a roller-coaster week of emergency rooms, out of body experiences and a speedy trip to the NICU, with doctors 99% certain of Hirschsprung's.
A fascinating recount of the last 7 months, with lots of hope for the future.
Follow Alexa - IG - @latelywithlexaTikTok - @latelywithlexa]]>ff13490e-7340-424c-b692-84a5325b1a6aThu, 04 Sep 2025 04:00:00 +0000Tom RichardWe start this episode 7 months ago, Lexi has just given birth to her third child, Emmett and like many people, has no family history of Hirschsprung's and has never heard of the condition! What follows is a roller-coaster week of emergency rooms, out...What follows is a roller-coaster week of emergency rooms, out of body experiences and a speedy trip to the NICU, with doctors 99% certain of Hirschsprung's.
A fascinating recount of the last 7 months, with lots of hope for the future.
Follow Alexa - IG - @latelywithlexaTikTok - @latelywithlexa]]>2619false187fullhttps://www.spreaker.com/episode/episode-86-with-kirstie-and-aubrey-law--67539266Aubrey chats about her condition, including how she explains Hirschsprung's to her friends and her admiration for a fellow Hirschsprung's warrior - Zoe Colletti.
Please enjoy the episode
Follow Kirstie - @Kirstie8811]]>01c621f9-2d88-49ba-a28b-2ca5a13ad0deThu, 28 Aug 2025 05:00:00 +0000Tom Richard2 generations of Hirschsprung's are discussed with Kirstie and her daughter Aubrey, we mainly chat about Aubrey's journey with TIA (Total Intestinal Aganglionosis) Aubrey chats about her condition, including how she explains Hirschsprung's to her...Aubrey chats about her condition, including how she explains Hirschsprung's to her friends and her admiration for a fellow Hirschsprung's warrior - Zoe Colletti.
Please enjoy the episode
Follow Kirstie - @Kirstie8811]]>2661false186fullhttps://www.spreaker.com/episode/episode-85-with-kelly-kronowski--67464455cc44f5ae-95f5-43af-a6ca-2b2da79698d7Thu, 21 Aug 2025 04:58:00 +0000Tom RichardKelly chats to me about her son Kellen, who has Hirschsprung's and is 7 and half years old. In this episode we discuss the vital importance of mothers intuition and the need for this intuition to be addressed, with Kelly's son not being diagnosed...2944false185fullhttps://www.spreaker.com/episode/episode-84-with-gemma-pope-and-carl-ray--67364261]]>8b50d58c-2107-40f4-b115-c9f087f6bbb7Thu, 14 Aug 2025 04:00:00 +0000Tom RichardGemma and Carl discuss 3 generations of Hirschpsrung's with a surprise genetic twist!Carl, Gemma and Gemma's daughter Jessica all have Long Segment Hirschsprung's despite Gemma being the oldest of 6 children and Jessica being the youngest of 3.They...]]>3047false184fullhttps://www.spreaker.com/episode/episode-83-with-anna-obendorfer--67281839Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics throughout the hour + long episode.
Topics will include:-- Mothers intuition- Seeking quality care- Different treatment paths- The importance of community support
Please enjoy the episode
Follow Anna - @themosthopelesstourguide]]>0e3f6608-cf27-4a9a-aeb2-1cf393723c09Thu, 07 Aug 2025 05:00:00 +0000Tom RichardI'm joined by Anna, this time from America. Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics throughout the hour + long episode. Topics will include:-- Mothers intuition- Seeking...Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics throughout the hour + long episode.
Topics will include:-- Mothers intuition- Seeking quality care- Different treatment paths- The importance of community support
Please enjoy the episode
Follow Anna - @themosthopelesstourguide]]>4198false183fullhttps://www.spreaker.com/episode/episode-82-with-amy-parker-part-2--67197911With the first 6 months being incredibly difficult Amy discusses how important having a support system is whilst abroad, Amy uses her knowledge as well as her medical friends and family to achieve the best outcome for her daughter.
Please enjoy the episode
Follow Amy - @lifeofamy34]]>787e6d3f-dafb-431f-9f62-18cee6417c16Thu, 31 Jul 2025 05:40:00 +0000Tom RichardStarting straight from the of the last episode, when Amy's daughter had her stoma fitted we talk about how stoma care differs from country to country. With the first 6 months being incredibly difficult Amy discusses how important having a support...With the first 6 months being incredibly difficult Amy discusses how important having a support system is whilst abroad, Amy uses her knowledge as well as her medical friends and family to achieve the best outcome for her daughter.
Please enjoy the episode
Follow Amy - @lifeofamy34]]>3376false182fullhttps://www.spreaker.com/episode/episode-81-with-amy-parker-part-1--67096013From doctors being puzzled as to what might be wrong to having to adjust to the Zambian healthcare system, this two part special goes through a variety of situations.
Please enjoy the episode
Follow Amy - @lifeofamy34]]>31c9ac10-c254-4a03-88ed-67323be11a98Thu, 24 Jul 2025 05:00:00 +0000Tom RichardChina is our next stop as I chat with Amy all about her daughter's diagnosis of Hirschsprung's Disease from Zambia to China via the UK. From doctors being puzzled as to what might be wrong to having to adjust to the Zambian healthcare system, this two...From doctors being puzzled as to what might be wrong to having to adjust to the Zambian healthcare system, this two part special goes through a variety of situations.
Please enjoy the episode
Follow Amy - @lifeofamy34]]>2923false181fullhttps://www.spreaker.com/episode/episode-80-with-kaytlin-slaughter--67010168Kaitlyn explains the journey that her family have been on as well as sharing a wider perspective on their Hirschsprung's experience, both positive and negative.
Please enjoy the episode
Follow KaitlynTikTok - @mamaslaughter]]>1bda6a6a-8547-4a17-8665-5a1fe0ebe161Thu, 17 Jul 2025 05:00:00 +0000Tom RichardIn todays episode, conducted from the hospital room, Kaitlyn chats to me about her 5 year old daughter, including topics such as diet, Hirschsprung's resources, procedures and parental health. Kaitlyn explains the journey that her family have been on...Kaitlyn explains the journey that her family have been on as well as sharing a wider perspective on their Hirschsprung's experience, both positive and negative.
Please enjoy the episode
Follow KaitlynTikTok - @mamaslaughter]]>2733false180fullhttps://www.spreaker.com/episode/episode-79-with-libby--66922835We begin with Libby being discharged from hospital with her daughter, despite Darla not passing her meconium and having coughed up green bile (classic signs of Hirschsprung's). Thankfully a visiting midwife became her saviour as she was transferred to a specialist hospital (Alder Hey), where her daughter could receive life saving treatment.
Later in the episode Libby explains the need for mothers to be offered support if your child has gone through a condition such as Hirschsprung's, as it is a very traumatic time for both parent and child, especially when it comes to surgery.
Please enjoy the episode!
Follow Libby:-Instagram - @ldarcie_TikTok - @ldarcie]]>59e800a6-e7e6-4bb7-94a7-41d938683d80Thu, 10 Jul 2025 05:00:00 +0000Tom RichardLibby shares the story of her 2 year old daughter with Hirschsprung's from the very start. We begin with Libby being discharged from hospital with her daughter, despite Darla not passing her meconium and having coughed up green bile (classic signs of...We begin with Libby being discharged from hospital with her daughter, despite Darla not passing her meconium and having coughed up green bile (classic signs of Hirschsprung's). Thankfully a visiting midwife became her saviour as she was transferred to a specialist hospital (Alder Hey), where her daughter could receive life saving treatment.
Later in the episode Libby explains the need for mothers to be offered support if your child has gone through a condition such as Hirschsprung's, as it is a very traumatic time for both parent and child, especially when it comes to surgery.
Please enjoy the episode!
Follow Libby:-Instagram - @ldarcie_TikTok - @ldarcie]]>2802false179fullhttps://www.spreaker.com/episode/episode-78-with-taylor-lammonds--66847025Bowen was diagnosed with Hirschsprung's despite passing his meconium at 3 weeks old. Taylor talks through the story from her own point of view as well as sharing handy hints and tips on TikTok.
Later on we talk about how well Bowen is progressing and Taylor's thoughts on the future.
Please enjoy the episode
Follow Taylor:-Instagram - @taylammonds_TikTok - @tay_l0r]]>36e330e8-af74-4d43-bd51-eab65c3ef8e7Thu, 03 Jul 2025 05:00:00 +0000Tom RichardWith no family of Hirschsprung's, Taylor discusses her journey so far about her son Bowen, who is 7 months old. Bowen was diagnosed with Hirschsprung's despite passing his meconium at 3 weeks old. Taylor talks through the story from her own point of...Bowen was diagnosed with Hirschsprung's despite passing his meconium at 3 weeks old. Taylor talks through the story from her own point of view as well as sharing handy hints and tips on TikTok.
Later on we talk about how well Bowen is progressing and Taylor's thoughts on the future.
Please enjoy the episode
Follow Taylor:-Instagram - @taylammonds_TikTok - @tay_l0r]]>3002false178fullhttps://www.spreaker.com/episode/episode-77-with-georgina-merckel-part-3--66753375Later on Georgina gives us an update on her son Ffredi, as well as some valuable hints and tips that she has learnt so far.
Follow Georgina - @livewithgeorgina]]>09ae6e69-6912-4516-b3aa-bcf0d549cf9eThu, 26 Jun 2025 05:00:00 +0000Tom RichardIn this episode we follow on from last week, where we talked about the new Hirschsprung's website, www.hirschsprungsdisease.co.uk and how this all came to be. Later on Georgina gives us an update on her son Ffredi, as well as some valuable hints and...Later on Georgina gives us an update on her son Ffredi, as well as some valuable hints and tips that she has learnt so far.
Follow Georgina - @livewithgeorgina]]>2949false177fullhttps://www.spreaker.com/episode/episode-76-with-georgina-merckel-part-2--66621186In the first half of the 2 part special we delve into the stats and current research surrounding Hirschsprung's, especially in the UK as well as interesting studies taking place including HAWAII, BEACH and ALOHA.
Tune in next week for part 2.
Follow Georgina - @livewithgeorgina
Visit the Hirschsprung's UK website:-www.hirschsprungsdisease.co.uk]]>c0d4976d-45ec-4a0a-9db0-49a1a8d6d737Thu, 19 Jun 2025 05:00:00 +0000Tom RichardNearly 7 months after her last appearance, Georgina talks to me about her exciting new project - a UK dedicated Hirschsprung's website! In the first half of the 2 part special we delve into the stats and current research surrounding Hirschsprung's,...In the first half of the 2 part special we delve into the stats and current research surrounding Hirschsprung's, especially in the UK as well as interesting studies taking place including HAWAII, BEACH and ALOHA.
Tune in next week for part 2.
Follow Georgina - @livewithgeorgina
Visit the Hirschsprung's UK website:-www.hirschsprungsdisease.co.uk]]>2828false176fullhttps://www.spreaker.com/episode/episode-75-with-ollie-mcfarlane--66523290Ollie was diagnosed with short segment Hirschsprung's Disease and has had 5 surgeries, but he was determined that this would not stop him from pursuing his acting dreams.
Later on we chat about scars and body confidence as Ollie has recently taken part in his own photoshoot, to promote his business.
Follow Ollie - @bigfriendlypersonaltraining @bfthesp
Follow the podcast on Instagram, Facebook, TikTok, Youtube and Reddit - Toms Hirschsprungs Podcast]]>e1975230-63bc-4f49-aa60-4a024afec819Thu, 12 Jun 2025 05:00:00 +0000Tom RichardActor and personal trainer, Ollie chats to me about how his career is going as well as some funny stories along the way. Ollie was diagnosed with short segment Hirschsprung's Disease and has had 5 surgeries, but he was determined that this would not...Ollie was diagnosed with short segment Hirschsprung's Disease and has had 5 surgeries, but he was determined that this would not stop him from pursuing his acting dreams.
Later on we chat about scars and body confidence as Ollie has recently taken part in his own photoshoot, to promote his business.
Follow Ollie - @bigfriendlypersonaltraining @bfthesp
Follow the podcast on Instagram, Facebook, TikTok, Youtube and Reddit - Toms Hirschsprungs Podcast]]>2982false175fullhttps://www.spreaker.com/episode/episode-74-ashley-matthews-part-2--66404192eb5b8a32-4136-4836-a1d2-1fde7916f255Thu, 05 Jun 2025 05:04:00 +0000Tom RichardIn the second part of my chat with Ashley, we talk about the somatic energy in relation to Hirschsprung's and how attunement plays a vital role in the relationship between a parent and child.Ashley is a qualified level 2 Reiki instructor as well as a...2890false174fullhttps://www.spreaker.com/episode/episode-73-with-ashley-matthews--66323221Part 2 coming soon.
Follow Ashley - @somaticmagicmama]]>aec6b3cd-261c-432b-b909-ed66aeacc43fThu, 29 May 2025 05:00:00 +0000Tom RichardAshley chats about her son, Milo and his dual diagnosis of Hirschsprung's and Downs Syndrome, as well as some handy tips when it comes to performing enemas, belly massages and irrigations. Part 2 coming soon. Follow Ashley - @somaticmagicmamaPart 2 coming soon.
Follow Ashley - @somaticmagicmama]]>3021false173fullhttps://www.spreaker.com/episode/episode-72-with-rebecca-wichert--66197313From around 34 mins - 42 mins we talk about Rebecca's late husband and the danger of misinformation in the medical world.
Rebecca also shares her positive thoughts on Valerie's future and how despite having a difficult start to life, she is a very capable and happy girl.
Please enjoy the episode]]>f8212c04-5b11-4c63-9b3a-c924946877d9Thu, 22 May 2025 05:00:00 +0000Tom Richard*****Trigger warning - contains suicide*****Rebecca recounts her daughter's story with long segment Hirschsprung's disease as well as the 7 MLB's, 3 intestinal surgeries and 6 central line placements that Valerie has had. From around 34 mins - 42 mins...From around 34 mins - 42 mins we talk about Rebecca's late husband and the danger of misinformation in the medical world.
Rebecca also shares her positive thoughts on Valerie's future and how despite having a difficult start to life, she is a very capable and happy girl.
Please enjoy the episode]]>3079false172fullhttps://www.spreaker.com/episode/episode-71-with-lila-mackenzie--66096638With no family history of HD and being a mum to two children already, Lila talks openly around the feelings and concerns of her son's diagnosis.
Lila talks in detail around the importance of the connection to her children and how attunement has played a huge role in her life as a mother.
In the final part we chat about the need to save the team at her local hospital and just how important they are, if you live in the Victoria area and would like to sign the petition, please sign it here:-
https://www.parliament.vic.gov.au/get-involved/petitions/colorectal-and-pelvic-reconstruction-service-at-the-royal-childrens-hospital
Please enjoy the episode
Instagram links:-@lilamack]]>de178f17-4f48-4a7d-b7dd-2fb2e689021dThu, 15 May 2025 05:00:00 +0000Tom RichardThis week we take another trip to Australia as Lila discusses her experience of being a Hirschsprung's mum with a 14 month old son. With no family history of HD and being a mum to two children already, Lila talks openly around the feelings and...With no family history of HD and being a mum to two children already, Lila talks openly around the feelings and concerns of her son's diagnosis.
Lila talks in detail around the importance of the connection to her children and how attunement has played a huge role in her life as a mother.
In the final part we chat about the need to save the team at her local hospital and just how important they are, if you live in the Victoria area and would like to sign the petition, please sign it here:-
https://www.parliament.vic.gov.au/get-involved/petitions/colorectal-and-pelvic-reconstruction-service-at-the-royal-childrens-hospital
Please enjoy the episode
Instagram links:-@lilamack]]>2989false171fullhttps://www.spreaker.com/episode/episode-70-with-tash-jacobs-part-2--65993101Topics that we cover today will be; how life is now for Tyler and Casey, travelling to America and South Africa with a stoma and how being prepared is one of the most essential parts of the process.
Tash also talks about the incredible support she has received from her husband and vice versa, she will explain how much of a team effort looking after her two boys has been.
Please enjoy the episode
Instagram links:-Toms_Hirschsprungs_Podcast]]>7f14d89d-8710-47a8-b5bc-a712d0a46fa7Thu, 08 May 2025 05:00:00 +0000Tom RichardTash is back to talk about some important subjects the lifestyle that we didn't get time to chat about on the last episode. Topics that we cover today will be; how life is now for Tyler and Casey, travelling to America and South Africa with a stoma...Topics that we cover today will be; how life is now for Tyler and Casey, travelling to America and South Africa with a stoma and how being prepared is one of the most essential parts of the process.
Tash also talks about the incredible support she has received from her husband and vice versa, she will explain how much of a team effort looking after her two boys has been.
Please enjoy the episode
Instagram links:-Toms_Hirschsprungs_Podcast]]>2495false170fullhttps://www.spreaker.com/episode/episode-69-with-robyn-taylor-part-2--65820595We start at the end of the last episode as Robyn and her husband were wrestling with the thoughts of whether to go ahead with the operation for their energetic 3 year old.
Robyn discusses her candid feelings before, during and after the surgery, her worries and concerns, but ultimately her relief that she made the right decision.
Please enjoy the episode!
Links:-Instagram - @robyn_lynneFacebook - Robyn Taylor
Instagram - Tom's Hirschsprung's Podcast]]>fe125f0b-916f-43df-a20d-16409af8493eThu, 01 May 2025 05:00:00 +0000Tom RichardFollowing on from our 1st episode in mid-November Robyn joins me once again to give an update on her daughter Charlee, as we discuss her Ace Malone procedure that she had in December. We start at the end of the last episode as Robyn and her husband...We start at the end of the last episode as Robyn and her husband were wrestling with the thoughts of whether to go ahead with the operation for their energetic 3 year old.
Robyn discusses her candid feelings before, during and after the surgery, her worries and concerns, but ultimately her relief that she made the right decision.
Please enjoy the episode!
Links:-Instagram - @robyn_lynneFacebook - Robyn Taylor
Instagram - Tom's Hirschsprung's Podcast]]>2740false169fullhttps://www.spreaker.com/episode/episode-68-with-elle-woods-marshall--65696095We take a deep dive into the social and mental impact that a chronic illness can have, as well as how Elle was diagnosed with OCD at just 12 years old.
Later on Elle talks about her ambitious plans for a 'buddy system' to help connect people who have Hirschsprung's together, so that they do not feel alone.
Please enjoy the episode
Instagram links:-Elle - @ellewoods07
Tom's Hirschsprung's Podcast - @toms_hirschsprungs_podcast]]>dabeefe8-d330-4e06-b174-cb523ec936b5Thu, 24 Apr 2025 05:00:00 +0000Tom RichardIn this weeks edition of the show, I chat to Elle about her story with Hirschsprung's and how, as a women in her mid 20's, this has impacted her life both positively and negatively. We take a deep dive into the social and mental impact that a chronic...We take a deep dive into the social and mental impact that a chronic illness can have, as well as how Elle was diagnosed with OCD at just 12 years old.
Later on Elle talks about her ambitious plans for a 'buddy system' to help connect people who have Hirschsprung's together, so that they do not feel alone.
Please enjoy the episode
Instagram links:-Elle - @ellewoods07
Tom's Hirschsprung's Podcast - @toms_hirschsprungs_podcast]]>2720false168fullhttps://www.spreaker.com/episode/episode-67-with-faye-roberts-part-2--65603028In a more light-hearted segment, we talk about our mutual love of dogs and how important they have been in Faye's continued recovery.
Please enjoy the episode!
Follow Faye - @fayemond89]]>a7b232d1-950c-46da-984e-aa70172a6151Thu, 17 Apr 2025 05:00:00 +0000Tom RichardIn the second part of my chat with Faye we talk about a variety of Hirschsprung's topics, including the impact it has had on Faye's life. In a more light-hearted segment, we talk about our mutual love of dogs and how important they have been in Faye's...In a more light-hearted segment, we talk about our mutual love of dogs and how important they have been in Faye's continued recovery.
Please enjoy the episode!
Follow Faye - @fayemond89]]>1470false167fullhttps://www.spreaker.com/episode/episode-66-with-faye-roberts-part-1--65511718An incredible story of mental and physical resilience, Faye also explains how important her family have been to her especially her mum and husband.
Part 2 will be out next week.
Please enjoy the episode
Follow Faye on Instagram@fayemond89]]>0de85746-070b-4c68-a3e1-c223f92ee17dThu, 10 Apr 2025 05:00:00 +0000Tom RichardWith a long and complicated medical history, Faye chats to me about how her epic journey with Hirschsprung's unfolded. An incredible story of mental and physical resilience, Faye also explains how important her family have been to her especially her...An incredible story of mental and physical resilience, Faye also explains how important her family have been to her especially her mum and husband.
Part 2 will be out next week.
Please enjoy the episode
Follow Faye on Instagram@fayemond89]]>3796false166fullhttps://www.spreaker.com/episode/episode-65-with-laura-o-reilly-part-3--65332346Laura talks about how her condition led to a thirst for knowledge in how to improve her lifestyle, this has in turn led her towards this new stage in her life.
Follow Laura - @laura.ibd.fitness
Follow the show - @toms_hirschsprungs_podcast]]>efcc7daf-90dd-4935-9a47-935000e556a3Thu, 03 Apr 2025 05:00:00 +0000Tom RichardFor this episode I welcome back Laura, who gives the exclusive lowdown on her latest exciting business venture, as well a recap of an important IBD fitness event in London. Laura talks about how her condition led to a thirst for knowledge in how to...Laura talks about how her condition led to a thirst for knowledge in how to improve her lifestyle, this has in turn led her towards this new stage in her life.
Follow Laura - @laura.ibd.fitness
Follow the show - @toms_hirschsprungs_podcast]]>2796false165fullhttps://www.spreaker.com/episode/episode-64-with-anrie-gibson--65154882Instagram links:-Anrie - @anriegibson]]>2fa3db62-9595-48c4-99a3-e959a1ccfc7fThu, 27 Mar 2025 06:00:00 +0000Tom RichardThe first Ultra-short segment episode of the series as Anrie joins me to talk about her son's unusual diagnosis, and ultimately thriving journey.Based in South Africa, Anrie chats to me about how the nurses noticed her son's white forelock and the...Instagram links:-Anrie - @anriegibson]]>2768false164fullhttps://www.spreaker.com/episode/episode-63-with-tash-jacobs-part-1--64989561b5f0a4cb-9902-4d3c-a396-46eb5981f923Thu, 20 Mar 2025 06:00:00 +0000Tom RichardTash joins me to talk about her two sons who were both born with two very different types of Hirschsprung's, despite not having any family history.We follow the journey from the very beginning from Manchester hospital to Alder Hey, via Italy! - found...2491false163fullhttps://www.spreaker.com/episode/episode-62-with-reach-hd-co-founder-isabelle-schnidag--64856655 Isabelle also chats about the two books that she has written as well as the charities ambassador programme.
Please enjoy the episode
Instagram links:- @reach_hd]]>5f39cd34-d637-4247-88eb-4084fac72d1fThu, 13 Mar 2025 06:03:00 +0000Tom RichardThe Co-Founder of REACH HD joins me to talk about how the charity started and why the dual diagnosis of Hirschsprung's and Downs Syndrome have a personal connection to her. Isabelle also chats about the two books that she has written as well as the... Isabelle also chats about the two books that she has written as well as the charities ambassador programme.
Please enjoy the episode
Instagram links:- @reach_hd]]>2770false162fullhttps://www.spreaker.com/episode/episode-61-with-megha--64725281 Follow Megha - @hirschsprungs.mum]]>c1f3b134-a1fa-4e20-a761-67e8326fe996Thu, 06 Mar 2025 06:00:00 +0000Tom RichardIn this episode myself and Tom's Hirschsprung's Podcast Co-Founder Louisa Shapton are joined by Megha, who only gave birth 6 WEEKS AGO!, to talk about her daughter's experience with Total Colonic Hirschsprung's. Megha explains the ups and downs so... Follow Megha - @hirschsprungs.mum]]>2641false161fullhttps://www.spreaker.com/episode/episode-60-with-gemma-keir--64599345d074c86a-e8d8-427f-b493-2aca97342934Thu, 27 Feb 2025 06:00:00 +0000Tom RichardThe author and founder of The Abilities In Me Foundation, Gemma Keir, shares her incredible journey with the charity from the very beginning. Gemma talks about her inspiration for starting the book series and how it has gone on to help people from...2815false160fullhttps://www.spreaker.com/episode/episode-59-with-simone-rist--64471043 Follow Simone:- @oscar_the_unstoppable]]>7cd69eab-5068-4636-8d03-f87bb9a37279Thu, 20 Feb 2025 06:00:00 +0000Tom RichardThe author of 'Oscar The Unstoppable' , Simone Rist, joins me to talk about her son's Hirschsprung's story as well as her brilliant book, all about perseverance through Hirschsprung's disease. Simone's book has sold worldwide, much to Oscar's... Follow Simone:- @oscar_the_unstoppable]]>2711false159fullhttps://www.spreaker.com/episode/episode-58-with-courtney-lf--64352897232c6301-1174-4056-97a2-c919d709a8bfThu, 13 Feb 2025 06:00:00 +0000Tom RichardCourtney chats to me about the need for advocacy as well as how having the power of positivity helped her and her family through some incredibly tough moments. Courtney's son, Theo, was born just over a year ago and we chat about his life so far,...2957false158fullhttps://www.spreaker.com/episode/episode-57-with-sherry-maavich--64223561 We discuss the importance of having a positive HD community as well as Sherry's ongoing battle with Covid and how this has affected her Hirschsprung's.
Please enjoy the episode
Instagram links:- Sherry - @sherrymaavich Me - @toms_hirschsprungs_podcast]]>8dff0bff-3bfd-4e0b-9c22-f75eac832b12Thu, 06 Feb 2025 06:00:00 +0000Tom RichardWith over 6 decades of lived experience with Hirschsprung's, Sherry recounts her amazing story as well as her admiration for world renowned surgeon, Dr C Everett Koop. We discuss the importance of having a positive HD community as well as Sherry's... We discuss the importance of having a positive HD community as well as Sherry's ongoing battle with Covid and how this has affected her Hirschsprung's.
Please enjoy the episode
Instagram links:- Sherry - @sherrymaavich Me - @toms_hirschsprungs_podcast]]>2304false157fullhttps://www.spreaker.com/episode/episode-56-with-lexi-liljenquist--64030618 Having had a daughter already, and with no family history of Hirschsprung's, Lexi tells the story of how surprised and shocked her and her husband were when this little known disease was first mentioned.
An uplifting and positive episode, listen to Lexi as she tells her own thoughts and feelings, as well as her interaction with a special influencer
Follow Lexi - lexi.liljenquist]]>2eeabfc0-b998-4b7e-86ab-8be395020b07Thu, 30 Jan 2025 06:00:00 +0000Tom RichardThis week we discuss Krew's HD journey as his mum Lexi joins me to talk about her happy, jolly, 9 month old. Having had a daughter already, and with no family history of Hirschsprung's, Lexi tells the story of how surprised and shocked her and her... Having had a daughter already, and with no family history of Hirschsprung's, Lexi tells the story of how surprised and shocked her and her husband were when this little known disease was first mentioned.
An uplifting and positive episode, listen to Lexi as she tells her own thoughts and feelings, as well as her interaction with a special influencer
Follow Lexi - lexi.liljenquist]]>2338false156fullhttps://www.spreaker.com/episode/episode-55-with-hannah-davis-part-2--63837620976898c4-cac6-456a-bf24-3aacc6705df9Thu, 23 Jan 2025 06:00:00 +0000Tom RichardThe second part of my interview with Hannah we talk about her legal fight against the NHS, in her pursuit for justice. Hannah talks candidly about the emotional rollercoaster that she faced as well as her reasons for going down this route. Follow...2983false155fullhttps://www.spreaker.com/episode/episode-54-with-hannah-davis-part-1--63710744Later on we chat about how her son, Jasper, is thriving in both football and running despite the initial struggles for the first 2.5 years
Follow Hannah - @now_its_hannah]]>23e8c4b1-1f16-4634-81af-602f25bcff6eThu, 16 Jan 2025 06:00:00 +0000Tom RichardIn the first part of Hannah's episode, we talk about her son's diagnosis of Hirschsprung's Disease as well as the the extraordinary lengths that her family went to in their fight for a diagnosis. Later on we chat about how her son, Jasper, is thriving...Later on we chat about how her son, Jasper, is thriving in both football and running despite the initial struggles for the first 2.5 years
Follow Hannah - @now_its_hannah]]>2656false154fullhttps://www.spreaker.com/episode/episode-53-1-year-anniversary-special-with-mr-joe-curry-and-fred-gray--636222448f7c5983-ea98-4bac-8e1d-7473f07a3ebaThu, 09 Jan 2025 06:00:00 +0000Tom RichardAs the podcast celebrates it's first birthday, I am delighted to be joined by not one, but two guests in a returning Fred Gray and a man I've not seen in over 20 years, Mr Curry. We discuss Mr Curry's career at Great Ormond Street Hospital, as well...2692false153fullhttps://www.spreaker.com/episode/episode-52-with-gemma-boggs--63542234 Gemma recounts her story over 5 hectic days of hospital stays, tests, operations as well as how she was feeling at the time.
Follow Gemma - @Gem_boggs]]>e7081a31-c94b-465e-876f-10ca16497cdfThu, 02 Jan 2025 06:00:00 +0000Tom Richard1 years worth of the podcast is celebrated as I welcome Gemma to talk about her daughters Hirschsprung's diagnosis and the challenges that Dorothy has overcome. Gemma recounts her story over 5 hectic days of hospital stays, tests, operations as well... Gemma recounts her story over 5 hectic days of hospital stays, tests, operations as well as how she was feeling at the time.
Follow Gemma - @Gem_boggs]]>2758false152fullhttps://www.spreaker.com/episode/episode-51-with-fred-gray--63474445 6 weeks ago I interviewed Fred's wife, Jamie Birkett, who shared her side of the story and now Fred talks about what it was like to go through as a first time father.
As revealed in Jamie's episode, me and Fred both shared the same phenomenal consultant whilst at Great Ormond Street, as he and I share our experiences and thoughts of the wonderful Mr Ed Kiely.
Please enjoy the episode.
Instagram links:- Fred - @fred_gray13 Me - @toms_hirschsprungs_podcast]]>244bc779-1fba-49bd-911b-5742c833353fThu, 26 Dec 2024 06:48:00 +0000Tom RichardActor, Director and RADA Alumni, Fred Gray discusses his experiences with Total Colonic Hirschsprung's as well as his talking about his son and father who also have HD. 6 weeks ago I interviewed Fred's wife, Jamie Birkett, who shared her side of the... 6 weeks ago I interviewed Fred's wife, Jamie Birkett, who shared her side of the story and now Fred talks about what it was like to go through as a first time father.
As revealed in Jamie's episode, me and Fred both shared the same phenomenal consultant whilst at Great Ormond Street, as he and I share our experiences and thoughts of the wonderful Mr Ed Kiely.
Please enjoy the episode.
Instagram links:- Fred - @fred_gray13 Me - @toms_hirschsprungs_podcast]]>3069false151fullhttps://www.spreaker.com/episode/episode-50-with-karen-dick--63387517 Coming from a family of teachers Karen always knew that she wanted to be in a career helping people, thus leading to the seamless transition into nursing.
Later on Karen explains the 3 different types of pull-through surgery that all HD patients will have in order to remove the diseased part of the bowel.
Enjoy the episode!
Follow Karen - @auntynurse7819 Follow the podcast - @toms_hirschsprungs_podcast]]>49a92ff6-4e39-4c02-9ae9-22defa92c770Thu, 19 Dec 2024 06:00:00 +0000Tom RichardHirschsprung's nurse specialist Karen, talks about her decade plus experience as a nurse, specialising in Hirschsprung's disease. Coming from a family of teachers Karen always knew that she wanted to be in a career helping people, thus leading to... Coming from a family of teachers Karen always knew that she wanted to be in a career helping people, thus leading to the seamless transition into nursing.
Later on Karen explains the 3 different types of pull-through surgery that all HD patients will have in order to remove the diseased part of the bowel.
Enjoy the episode!
Follow Karen - @auntynurse7819 Follow the podcast - @toms_hirschsprungs_podcast]]>2686false150fullhttps://www.spreaker.com/episode/episode-49-with-lynn-wolfson--63280506 Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging start to becoming one of the leading lights for advocacy across the entire world.
The start of the story does contain abuse stories starting from the beginning - skip ahead to 12:35 if you do not want to hear this.
Lynn will talk in detail about her advocacy, as well as being recognised nationally by mayors and senators for her dedication to making life more comfortable for those with HD and Ostomys.
Follow the podcast - @toms_hirschsprungs_podcast]]>c23ff4f8-b12d-486d-bff4-2a7e04ae7f1aThu, 12 Dec 2024 06:00:00 +0000Tom Richard**** Trigger warning - contains abuse **** Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging start to becoming one of the leading lights for advocacy across the entire world. The... Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging start to becoming one of the leading lights for advocacy across the entire world.
The start of the story does contain abuse stories starting from the beginning - skip ahead to 12:35 if you do not want to hear this.
Lynn will talk in detail about her advocacy, as well as being recognised nationally by mayors and senators for her dedication to making life more comfortable for those with HD and Ostomys.
Follow the podcast - @toms_hirschsprungs_podcast]]>2691false149fullhttps://www.spreaker.com/episode/episode-48-with-paul-balson-from-great-ormond-street-hospital--63160049 I'm joined this week by Head of Membership and Corporate Governance, Paul Balson who I met in person at the GOSH 5K in October, to talk about the key points about the hospital and how the foundation plays a vital role in the community.
Please enjoy the episode!
Instagram links - Follow Paul - @balsonp Follow Great Ormond Street Hospital - @greatormondst]]>9f5b6d7e-7787-4ac1-896b-fd72153e8f15Thu, 05 Dec 2024 06:00:00 +0000Tom RichardA place very close to me and many others, Great Ormond Street Hospital, is one of the world's leading children's hospitals. I'm joined this week by Head of Membership and Corporate Governance, Paul Balson who I met in person at the GOSH 5K in... I'm joined this week by Head of Membership and Corporate Governance, Paul Balson who I met in person at the GOSH 5K in October, to talk about the key points about the hospital and how the foundation plays a vital role in the community.
Please enjoy the episode!
Instagram links - Follow Paul - @balsonp Follow Great Ormond Street Hospital - @greatormondst]]>1765false148fullhttps://www.spreaker.com/episode/episode-47-with-jazz-hind-from-ronald-mcdonald-house-charities--63040554 Ronald McDonald House Charities have helped hundreds of thousands of families all over the world, in being 'the home away from home' when their children are being looked after in hospital.
QUICK FACTS! - It costs RMHCUK £35 to accommodate one family for one night. - RMHCUK saved families travelling more than 10,000,000 miles to and from hospital in 2023 - Families stay in Ronald McDonald House for an average of 16 nights - Ronald McDonald House Alder Hey is the largest in the UK - with 83 en-suite bedrooms
My thanks to Jazz and all the team at @RMHCUK for helping to organise this episode. Please enjoy!
Follow RMHCUK on Instagram - @RMHCUK]]>95c9bea8-b4eb-4e39-b207-d63bb6fbf69fThu, 28 Nov 2024 06:00:00 +0000Tom RichardJazz joins me to talk about the history and importance of Ronald McDonald House Charities, as well as celebrating 35 years here in the UK and 50 years worldwide! Ronald McDonald House Charities have helped hundreds of thousands of families all over... Ronald McDonald House Charities have helped hundreds of thousands of families all over the world, in being 'the home away from home' when their children are being looked after in hospital.
QUICK FACTS! - It costs RMHCUK £35 to accommodate one family for one night. - RMHCUK saved families travelling more than 10,000,000 miles to and from hospital in 2023 - Families stay in Ronald McDonald House for an average of 16 nights - Ronald McDonald House Alder Hey is the largest in the UK - with 83 en-suite bedrooms
My thanks to Jazz and all the team at @RMHCUK for helping to organise this episode. Please enjoy!
Follow RMHCUK on Instagram - @RMHCUK]]>2470false147fullhttps://www.spreaker.com/episode/episode-46-with-leanne-constable--62944841 We talk candidly about Leanne's feelings around Parker's initial diagnosis of Down's Syndrome before being told that Parker also has Hirschsprung's Disease.
Leanne also shares her hopes and potential concerns around schooling, whilst telling some amazing stories of Parker's thriving personality and tenacious spirit.
Follow Leanne on Instagram - @parkersjourney08 Follow Tom's Hirschsprung's Podcast on Facebook and Instagram]]>a5e860b0-5d2a-456c-804b-760f41b160f6Thu, 21 Nov 2024 06:00:00 +0000Tom RichardThis week we delve into 'Parkers Journey' with Leanne, the wonderful person behind the Instagram account 'parkersjourney08'. We talk candidly about Leanne's feelings around Parker's initial diagnosis of Down's Syndrome before being told that Parker... We talk candidly about Leanne's feelings around Parker's initial diagnosis of Down's Syndrome before being told that Parker also has Hirschsprung's Disease.
Leanne also shares her hopes and potential concerns around schooling, whilst telling some amazing stories of Parker's thriving personality and tenacious spirit.
Follow Leanne on Instagram - @parkersjourney08 Follow Tom's Hirschsprung's Podcast on Facebook and Instagram]]>2585false146fullhttps://www.spreaker.com/episode/episode-45-with-robyn-taylor--62732916 Robyn has been on a quest for answers ever since her daughter started developing complications after pull through surgery.
For over a year Robyn searched across the country before finding a doctor that understood Hirschsprung's Disease more than most - but did they find the answers that they so desperately sought for?
Instagram links Follow Robyn - @robyn_lynne Follow the podcast - @toms_hirschsprungs_podcast]]>1c7d9361-263f-4a7d-a591-63449a4b1c2bThu, 14 Nov 2024 06:00:00 +0000Tom RichardEntrepreneur and the host of 'Embrace your bravery' podcast, Robyn Taylor joins me to talk about her daughters experience with Hirschsprung's Disease. Robyn has been on a quest for answers ever since her daughter started developing complications... Robyn has been on a quest for answers ever since her daughter started developing complications after pull through surgery.
For over a year Robyn searched across the country before finding a doctor that understood Hirschsprung's Disease more than most - but did they find the answers that they so desperately sought for?
Instagram links Follow Robyn - @robyn_lynne Follow the podcast - @toms_hirschsprungs_podcast]]>2449falsefullhttps://www.spreaker.com/episode/episode-44-with-jamie-birkett--62649429 Follow along as Jamie recounts the highs and lows of hospital life, including the incredible nurses at Great Ormond Street and how they helped her get through her most difficult time.
Later in the episode we both discover that me and her husband Fred both share something rather unusual in common, apart from both having Hirschsprung's Disease.
Instagram Links Follow Jamie - @jkmbirkett , @mamabirkett Follow me - @toms_hirschsprungs_podcast]]>e9a2b4f8-0772-4542-a6b3-9e43531121ddThu, 07 Nov 2024 06:00:00 +0000Tom RichardActor and West End star Jamie Birkett chats to me about her son and husbands journey with Hirschsprung's Disease as well as her own personal challenges. Follow along as Jamie recounts the highs and lows of hospital life, including the incredible... Follow along as Jamie recounts the highs and lows of hospital life, including the incredible nurses at Great Ormond Street and how they helped her get through her most difficult time.
Later in the episode we both discover that me and her husband Fred both share something rather unusual in common, apart from both having Hirschsprung's Disease.
Instagram Links Follow Jamie - @jkmbirkett , @mamabirkett Follow me - @toms_hirschsprungs_podcast]]>2608falsefullhttps://www.spreaker.com/episode/episode-43-with-louise--62565787 We start as we always do, from the beginning, about Jacob's Hirschsprung's diagnosis before segwaying into various highs and lows when it comes to ADHD and Hirschsprung's
Concluding the episode we chat about how Jacob is thriving academically and sporting wise.
Please enjoy the episode!
Follow Louise - @looloo1611 , @livelove_lettering]]>fa604df5-4745-4f91-abf3-37df84a7f326Thu, 31 Oct 2024 06:00:00 +0000Tom RichardToday on the show we will be discussing a unique set of challenges with Louise about her 12 year old so, Jacob. We start as we always do, from the beginning, about Jacob's Hirschsprung's diagnosis before segwaying into various highs and lows when it... We start as we always do, from the beginning, about Jacob's Hirschsprung's diagnosis before segwaying into various highs and lows when it comes to ADHD and Hirschsprung's
Concluding the episode we chat about how Jacob is thriving academically and sporting wise.
Please enjoy the episode!
Follow Louise - @looloo1611 , @livelove_lettering]]>2872false143fullhttps://www.spreaker.com/episode/episode-42-with-samuel-bell--62484838 In this episode we discuss Sam's own HD story and how this inspired him to start his own charity to help people with rare diseases.
Later on we discuss family, and Sam's son and father, who also have Hirschsprung's and how this has affected their lives.
Follow Samuel Smiles - www.samuels-smile.co.uk]]>8e055e35-e9ac-4223-9eb5-3653189fa169Thu, 24 Oct 2024 05:00:00 +0000Tom RichardThe founder of 'Samuel's Smiles' joins me to talk about his very rare form of Hirschsprung's Disease as well as his experiences of fatherhood. In this episode we discuss Sam's own HD story and how this inspired him to start his own charity to help... In this episode we discuss Sam's own HD story and how this inspired him to start his own charity to help people with rare diseases.
Later on we discuss family, and Sam's son and father, who also have Hirschsprung's and how this has affected their lives.
Follow Samuel Smiles - www.samuels-smile.co.uk]]>2996false142fullhttps://www.spreaker.com/episode/episode-41-with-georgina-merckel--62392857 Georgina talks through her first 5 months of juggling motherhood and being a business owner, with the triumphs and challenges that have followed. We also chat about the importance of taking time for yourself and how keeping up hobbies has been an important way of managing stress.
Please enjoy the episode!
Follow Georgina on Instagram - @livewithgeorgina
Follow the podcast on Instagram - @toms_hirschsprungs_podcast]]>613c9e91-78b8-4b91-94fd-9c56c25a6c83Thu, 17 Oct 2024 05:00:00 +0000Tom RichardIn this weeks episode I am joined by new mum, Georgina, as we discuss her son Ffredi and his diagnosis of Hirschsprung's Disease. Georgina talks through her first 5 months of juggling motherhood and being a business owner, with the triumphs and... Georgina talks through her first 5 months of juggling motherhood and being a business owner, with the triumphs and challenges that have followed. We also chat about the importance of taking time for yourself and how keeping up hobbies has been an important way of managing stress.
Please enjoy the episode!
Follow Georgina on Instagram - @livewithgeorgina
Follow the podcast on Instagram - @toms_hirschsprungs_podcast]]>2692false141fullhttps://www.spreaker.com/episode/episode-40-with-rachel-gutsy-mum--62309575 Rachel has been a fantastic advocate for Hirschsprung's as well as ostomates and uses her platform to promote handy guides and tips for parents with children who have a similar condition to her.
We also talk about Rachel's various charity work and how she became involved in all 3 of incredible endeavours.
Follow Rachel on instagram - @gutsy.mum]]>5ec14109-ea77-47ce-ad6e-b1c65ce39bdfThu, 10 Oct 2024 05:00:00 +0000Tom RichardRachel joins me to celebrate 40 episodes of the podcast, as she discusses her unique journey through Hirschsprung's disease and motherhood. Rachel has been a fantastic advocate for Hirschsprung's as well as ostomates and uses her platform to promote... Rachel has been a fantastic advocate for Hirschsprung's as well as ostomates and uses her platform to promote handy guides and tips for parents with children who have a similar condition to her.
We also talk about Rachel's various charity work and how she became involved in all 3 of incredible endeavours.
Follow Rachel on instagram - @gutsy.mum]]>2824false140fullhttps://www.spreaker.com/episode/episode-39-with-jodi-longdo--62205926 As well as an Ironman, Jodi is also a fully qualified Paediatric Nurse Practitioner, who specialises in GI disorders, as we talk about how she has used her own health experiences to help others.
A fascinating and humble woman to talk to, Jodi's journey of perseverance and determination is one of great strength and inspiration.]]>920aa2b5-dafc-4a13-bbc6-05a3ab020e95Thu, 03 Oct 2024 05:02:00 +0000Tom Richard3 time Ironman finisher Jodi Longdo joins me to talk about her near 50 year journey through sport and healthcare with Hirschsprung's Disease. As well as an Ironman, Jodi is also a fully qualified Paediatric Nurse Practitioner, who specialises in GI... As well as an Ironman, Jodi is also a fully qualified Paediatric Nurse Practitioner, who specialises in GI disorders, as we talk about how she has used her own health experiences to help others.
A fascinating and humble woman to talk to, Jodi's journey of perseverance and determination is one of great strength and inspiration.]]>2499false139fullhttps://www.spreaker.com/episode/episode-38-with-steffy-and-samantha-little--62112900 Samantha reveals her swimming aspirations and the hope to make it to the 2026 Olympics in Los Angeles, whereas Stef talks about her fitness journey and how finding the right support was crucial to her success.
Finally we talk about Hirschsprung's Awareness Month, a month that Steffy created, and how it's adopted all over the world.
Follow Steffy on Instagram - @Steffy_Little Follow Kicking Hirschsprung's Disease In The Ass on Facebook]]>31e9fff5-0ac1-4040-87be-4a6909ee1c2bThu, 26 Sep 2024 05:00:00 +0000Tom RichardIn the second part of my interview with Steffy, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease. Samantha reveals her swimming aspirations and the hope to make it to the 2026 Olympics in Los Angeles,... Samantha reveals her swimming aspirations and the hope to make it to the 2026 Olympics in Los Angeles, whereas Stef talks about her fitness journey and how finding the right support was crucial to her success.
Finally we talk about Hirschsprung's Awareness Month, a month that Steffy created, and how it's adopted all over the world.
Follow Steffy on Instagram - @Steffy_Little Follow Kicking Hirschsprung's Disease In The Ass on Facebook]]>2512false138fullhttps://www.spreaker.com/episode/episode-37-with-toni-schneider--62021740 Around the mid-point of the episode we discuss our love of dogs, including one particular member of the Ostique team, the morale officer, Ralph.
Toni explains about the different products that Ostique offers and why they are unique in the stoma world!]]>226ede57-78e3-4219-8d1b-741e8a038233Thu, 19 Sep 2024 05:00:00 +0000Tom RichardThis week I chat with Ostique COO, (Chief Operating Officer) Toni Schneider about how the business was formed through 3 school friends with a shared passion for helping others. Around the mid-point of the episode we discuss our love of dogs,... Around the mid-point of the episode we discuss our love of dogs, including one particular member of the Ostique team, the morale officer, Ralph.
Toni explains about the different products that Ostique offers and why they are unique in the stoma world!]]>2719false137fullhttps://www.spreaker.com/episode/hirschsprung-s-explanation-episode--61834979 I will start by talking about what HD is and the various types, Louisa will explain the symptoms and diagnosis and Carla will go through the treatments that you may come to expect if your child is diagnosed with Hirschsprung's Disease.
I hope you find this episode useful.
Follow Tom's Hirschprung's Podcast on Instagram - @Toms_Hirschsprungs_Podcast]]>4f24b50c-91e5-4283-af03-fa6ab4beef2dMon, 16 Sep 2024 12:22:59 +0000Tom RichardIn what should have probably been episode 1!! Me and my two co-founders, Louisa Shapton and Carla Scaramella, explain Hirschsprung's Disease to you. I will start by talking about what HD is and the various types, Louisa will explain the symptoms... I will start by talking about what HD is and the various types, Louisa will explain the symptoms and diagnosis and Carla will go through the treatments that you may come to expect if your child is diagnosed with Hirschsprung's Disease.
I hope you find this episode useful.
Follow Tom's Hirschprung's Podcast on Instagram - @Toms_Hirschsprungs_Podcast]]>686falsefullhttps://www.spreaker.com/episode/episode-36-with-charlotte--61356231 Follow Charlotte - @dazzling_zebra_reborn]]>4c36fa78-354a-4900-bea7-855dd492a477Thu, 12 Sep 2024 05:00:00 +0000Tom RichardIn this weeks edition of the podcast Charlotte joins me to talk about a variety of conditions including:- EDS, POTS, MCAS, suspected endo, cPTSD and brain damage related balance issues. Charlottes upbeat a positive attitude towards her conditions... Follow Charlotte - @dazzling_zebra_reborn]]>2804false136fullhttps://www.spreaker.com/episode/special-ama-ask-me-anything-episode--61301123 Please feel free to send more questions on Instagram or Facebook by finding me @toms_hirschsprungs_podcast or email me on tomshirschsprungspodcast@gmail.com]]>aa2870c7-69ce-4576-8ca7-7d7c97300b3bSun, 08 Sep 2024 11:09:17 +0000Tom RichardA special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of people on all manner of different topics. Please feel free to send more questions on Instagram... Please feel free to send more questions on Instagram or Facebook by finding me @toms_hirschsprungs_podcast or email me on tomshirschsprungspodcast@gmail.com]]>3642falsefullhttps://www.spreaker.com/episode/episode-35-with-nicole-and-benjamin-perry--61270074 Please enjoy the episode
Follow Nicole - @nicole.perry.18]]>312ad009-5e70-4611-8153-3f94695c6dedThu, 05 Sep 2024 05:00:00 +0000Tom RichardIn the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis. Benjamin and I discuss the differences between life as... Please enjoy the episode
Follow Nicole - @nicole.perry.18]]>2781false135fullhttps://www.spreaker.com/episode/episode-34-with-lauren-wood--61194609 We talk extensively about Lauren's raising awareness for invisible illnesses and disabilities, as well as Lauren's many conditions as well as Hirschsprung's including; Mega Colon, Colonic Inertia, Dysmotility and Whole Gut Slow Transit.
Lauren talks about her love of animals, dogs in particular, and how having hobbies can really help take your mind off pain after surgery.
Follow Lauren on Instagram - @stomachick.x_x Follow Tom's Hirschsprung's Podcast on Instagram - @toms_hirschsprungs_podcast]]>73b74cc9-52fa-4f96-b053-796661e60e43Thu, 29 Aug 2024 05:00:00 +0000Tom RichardIn this weeks episode I am joined by Lauren Wood as she shares her story about life with Hirschsprung's disease as well as how her stoma saved her life. We talk extensively about Lauren's raising awareness for invisible illnesses and disabilities,... We talk extensively about Lauren's raising awareness for invisible illnesses and disabilities, as well as Lauren's many conditions as well as Hirschsprung's including; Mega Colon, Colonic Inertia, Dysmotility and Whole Gut Slow Transit.
Lauren talks about her love of animals, dogs in particular, and how having hobbies can really help take your mind off pain after surgery.
Follow Lauren on Instagram - @stomachick.x_x Follow Tom's Hirschsprung's Podcast on Instagram - @toms_hirschsprungs_podcast]]>1705false134fullhttps://www.spreaker.com/episode/episode-33-with-rebecca-johnson-richards--61111244 Follow Rebecca on Instagram @rebeccas.journey_ Follow this podcast @toms_hirschsprungs_podcast]]>2c8e0bb5-7779-4b8d-b46d-192b6721f19eThu, 22 Aug 2024 05:00:00 +0000Tom RichardEndometriosis will be the main topic of discussion for this episode as Rebecca talks to me about her condition and the 10 year wait for a diagnosis! Rebecca tells her brave story of having to advocate for herself over and over until being eventually... Follow Rebecca on Instagram @rebeccas.journey_ Follow this podcast @toms_hirschsprungs_podcast]]>2010false133fullhttps://www.spreaker.com/episode/episode-32-with-zoe-colletti--61034376 We start Zoe's story talking about her HD diagnosis, and how a medical error left her with far more complications than necessary. The conversation also moves on to how important her mother Cheryl has been in supporting her acting career as well as hospital visits.
Zoe talks about her already glistening acting and YouTube career as we discuss the star studded casts that she's worked with including Selena Gomez, Mark Wahlberg and Cameron Diaz.
Please enjoy the episode.
Follow Zoe on IG - @zoecolletti on YouTube - ZoeTube]]>562b3c54-b407-45e3-910a-3dc6d910be66Thu, 15 Aug 2024 05:00:00 +0000Tom RichardA very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career. We start Zoe's story talking about her HD diagnosis, and how a medical... We start Zoe's story talking about her HD diagnosis, and how a medical error left her with far more complications than necessary. The conversation also moves on to how important her mother Cheryl has been in supporting her acting career as well as hospital visits.
Zoe talks about her already glistening acting and YouTube career as we discuss the star studded casts that she's worked with including Selena Gomez, Mark Wahlberg and Cameron Diaz.
Please enjoy the episode.
Follow Zoe on IG - @zoecolletti on YouTube - ZoeTube]]>2982false132fullhttps://www.spreaker.com/episode/episode-31-with-lori--60954491 We discuss Alexis's diagnosis and how far medical advancements have evolved since 1986, we talk through her journey from the difficult early days to her life as a happy, successful mother of 3.
In the second half of the episode we discuss the formation of Hirschsprung's Aware Bears, how and why it was formed and how Lori helps people from all over the world
Follow Lori on Facebook - Hirschsprung's Aware Bears
Follow us on Instagram and Facebook - Tom's Hirschsprung's Podcast]]>4e74ec78-8cde-4445-9aa3-cc20d8bf8495Thu, 08 Aug 2024 05:00:00 +0000Tom RichardFor this weeks episode I talk to the 'Hirschsprung's Aware Bears' founder Lori, who chats to me about her experiences with her daughter Alexis, who has Hirschsprung's disease. We discuss Alexis's diagnosis and how far medical advancements have... We discuss Alexis's diagnosis and how far medical advancements have evolved since 1986, we talk through her journey from the difficult early days to her life as a happy, successful mother of 3.
In the second half of the episode we discuss the formation of Hirschsprung's Aware Bears, how and why it was formed and how Lori helps people from all over the world
Follow Lori on Facebook - Hirschsprung's Aware Bears
Follow us on Instagram and Facebook - Tom's Hirschsprung's Podcast]]>1816false133fullhttps://www.spreaker.com/episode/episode-30-with-laura-o-reilly-and-aao-coach-dan--60881598 In this episode we will discuss the recent Tough Mudder that both Laura and Dan completed, as well as Dan's journey from diagnosis of Crohn's disease in the army, to how he developed his thriving online fitness business.
Laura talks about what fitness means to her and how it has shaped her life in the last 18 months, as well as what she would like to achieve in the future.
A lovely chat with two wonderful people who have become an inspiration for many!
Please enjoy the episode! Follow Laura on Instagram @laura.ibd.fitness Follow Dan on Instagram @aao.crohns]]>0856e455-93ec-4281-a20b-2b907a997a22Thu, 01 Aug 2024 05:00:00 +0000Tom RichardAs Tom's Hirschsprung's Podcast reaches the big 3 0, I have my first ever returning guest as Laura O'Reilly joins me once again with her coach Dan from AAO. In this episode we will discuss the recent Tough Mudder that both Laura and Dan completed,... In this episode we will discuss the recent Tough Mudder that both Laura and Dan completed, as well as Dan's journey from diagnosis of Crohn's disease in the army, to how he developed his thriving online fitness business.
Laura talks about what fitness means to her and how it has shaped her life in the last 18 months, as well as what she would like to achieve in the future.
A lovely chat with two wonderful people who have become an inspiration for many!
Please enjoy the episode! Follow Laura on Instagram @laura.ibd.fitness Follow Dan on Instagram @aao.crohns]]>2389true130fullhttps://www.spreaker.com/episode/episode-29-with-stefania-little--6079822678e71ea8-e2e9-4e0b-88aa-3b27f134aa4fThu, 25 Jul 2024 05:00:00 +0000Tom RichardThis week I chat with Hirschsprung's awareness month founder Stef Little, Stef also created 'Kicking Hirschsprung's Disease In The Ass' Facebook page that now has around 3000 followers. As well as being an entrepreneur, Stef and her daughter Sam also...4355false129fullhttps://www.spreaker.com/episode/episode-28-with-louis-healy-healytymd--60726173 Follow Louis on Instagram @healytymd Follow Tom's Hirschsprung's Podcast @Toms_hirschsprungs_podcast]]>c1f3551f-f550-45d7-aa56-6fae5ad357f4Thu, 18 Jul 2024 05:00:00 +0000Tom RichardA very special episode of Tom's Hirschsprung's podcast as Emmerdale and Hotel Portofino star Louis Healy joins us to talk about being diagnosed with Hirschsprung's disease as well as his incredible acting career. Louis talks about the fantastic care... Follow Louis on Instagram @healytymd Follow Tom's Hirschsprung's Podcast @Toms_hirschsprungs_podcast]]>3851false128fullhttps://www.spreaker.com/episode/episode-27-with-nicky-kilpatrick-nickykilpatrickcoach--60660699@nickykilpatrickcoach - Out Thursday 11th July
This Thursday sees the interview of wellness coach and host of the Bowel Chronicles podcast - Nicky Kilpatrick.
We start Nicky's story around 2015, when she was preparing for a holiday - 24 hours later Nicky was in hospital, being diagnosed with an extra large bowel!- otherwise known as Megacolon.
Nicky talks candidly about her condition, as well as her life helping others with bowel conditions, via her job as a Wellness Coach and Mentor.
Follow Nicky on Instagram - @nickykilpatrickcoach
Facebook - Nicky Kilpatrick-Coach
Follow The Bowel Chronicles - on Spotify, Apple Podcasts and Youtube
#thebowelchronicles #hirschprungsdisease #hirschsprung #hirschprungsdiseaseawareness #wellness #wellnesscoach #wellnesscoaching #bowel #stomapositivity #healthjourney #bowelhealth #ostomy #ostomyawareness #healthstories]]>e910df3f-c9ec-493d-8f7b-30677512576aThu, 11 Jul 2024 05:00:00 +0000Tom RichardEpisode 27 - With Nicky Kilpatrick https://www.instagram.com/nickykilpatrickcoach/ - Out Thursday 11th July This Thursday sees the interview of wellness coach and host of the Bowel Chronicles podcast - Nicky Kilpatrick. We start Nicky's story around...@nickykilpatrickcoach - Out Thursday 11th July
This Thursday sees the interview of wellness coach and host of the Bowel Chronicles podcast - Nicky Kilpatrick.
We start Nicky's story around 2015, when she was preparing for a holiday - 24 hours later Nicky was in hospital, being diagnosed with an extra large bowel!- otherwise known as Megacolon.
Nicky talks candidly about her condition, as well as her life helping others with bowel conditions, via her job as a Wellness Coach and Mentor.
Follow Nicky on Instagram - @nickykilpatrickcoach
Facebook - Nicky Kilpatrick-Coach
Follow The Bowel Chronicles - on Spotify, Apple Podcasts and Youtube
#thebowelchronicles #hirschprungsdisease #hirschsprung #hirschprungsdiseaseawareness #wellness #wellnesscoach #wellnesscoaching #bowel #stomapositivity #healthjourney #bowelhealth #ostomy #ostomyawareness #healthstories]]>3195false127fullhttps://www.spreaker.com/episode/episode-26-with-loren-harris--60597067841639d7-909c-48a3-957b-4b4ee3e9c5efThu, 04 Jul 2024 05:00:00 +0000Tom RichardMy guest this week, Loren, comes from Germany as I continue to scour the world looking for incredible Hirschsprung's related journey's - and this one was a real surprise!! We talk about Loren's story with the unusual twist that she was diagnosed with...3190false126fullhttps://www.spreaker.com/episode/episode-25-with-ashley-yodkovik-chronicallygimperella--60524366 Ashley was diagnosed with Crohn's disease fairly recently, but is determined to become an incredible advocate for chronic conditions, through her experiences with her own conditions as well as job as a healthcare worker.
Join us for plenty of upbeat conversation about our conditions as well as some funny stories - including how Ashley came up with the Instagram handle @chronicallygimperella
Follow Ashley @chronicallygimperella Listen to Chronic Convos @chronic.convos]]>e100f878-b4f8-472c-8ec9-f7bae7d6a1c2Thu, 27 Jun 2024 05:00:00 +0000Tom RichardTo mark a quarter century of episodes I interview the host of the Chronic Convos podcast, Ashley Yodkovik, about her life as a chronic health advocate with 10 autoimmune conditions. Ashley was diagnosed with Crohn's disease fairly recently, but is... Ashley was diagnosed with Crohn's disease fairly recently, but is determined to become an incredible advocate for chronic conditions, through her experiences with her own conditions as well as job as a healthcare worker.
Join us for plenty of upbeat conversation about our conditions as well as some funny stories - including how Ashley came up with the Instagram handle @chronicallygimperella
Follow Ashley @chronicallygimperella Listen to Chronic Convos @chronic.convos]]>3817false125fullhttps://www.spreaker.com/episode/episode-24-with-vicky-welsh-meandthebigbadibd--60445683 Follow Vicky - @meandthebigbadibd Listen to each episode on @Spotify]]>60ae1489-001f-4378-9af1-f0b400130f88Thu, 20 Jun 2024 05:00:00 +0000Tom RichardVicky joins me to talk about her extraordinary fitness journey and how being diagnosed with Ulcerative Colitis in 2021 did not stop her from achieving her goals! We start the story with Vicky trying to find out everything she can about UC after her... Follow Vicky - @meandthebigbadibd Listen to each episode on @Spotify]]>1810false124fullhttps://www.spreaker.com/episode/episode-23-with-dennis-ibd-i-became-dennis--60370108 We also talk tattoos and the fascinating story behind each one of Dennis's 5 works of ink, as well as why he decided to post motivational content.
Dennis is taking part in a 42km obstacle course in September, we chat about how his training is going and what he's looking forward to at the event.
Follow Dennis @ibd_i_became_dennis]]>b68ebcc6-9bf8-4cf8-9492-4831d5576335Thu, 13 Jun 2024 05:00:00 +0000Tom RichardIn this weeks episode I talk to Dennis about how he overcame his personal demons to help motivate other people with IBD and UC. We also talk tattoos and the fascinating story behind each one of Dennis's 5 works of ink, as well as why he decided to... We also talk tattoos and the fascinating story behind each one of Dennis's 5 works of ink, as well as why he decided to post motivational content.
Dennis is taking part in a 42km obstacle course in September, we chat about how his training is going and what he's looking forward to at the event.
Follow Dennis @ibd_i_became_dennis]]>2001false123fullhttps://www.spreaker.com/episode/episode-22-with-amy-green-godsbestjpouch--60296391 We start the story at the night of Amy's senior prom, when she first discovered her illness, but like many, thought her symptoms would clear up after a couple of days - unfortunately this was not the case.
Join us as we talk through life's ups and downs through Amy's eyes, as we discuss the often unspoken mental and emotional toll that surgery can take on a person, as well as how Amy learned to find herself again and find light at the end of a very dark tunnel, to become the inspirationally uplifting person she is today.
Follow Amy @godsbestjpouch on Instagram Follow @tomshirschsprungspodcast on Instagram]]>82581f9e-60c6-41c3-bce9-03ed2d0df267Thu, 06 Jun 2024 04:59:00 +0000Tom RichardTo kick off the month of June I talk to the fascinating Amy Green, as she bravely talks about her medical journey from all aspects, not just physically, but mentally and emotionally too. We start the story at the night of Amy's senior prom, when she... We start the story at the night of Amy's senior prom, when she first discovered her illness, but like many, thought her symptoms would clear up after a couple of days - unfortunately this was not the case.
Join us as we talk through life's ups and downs through Amy's eyes, as we discuss the often unspoken mental and emotional toll that surgery can take on a person, as well as how Amy learned to find herself again and find light at the end of a very dark tunnel, to become the inspirationally uplifting person she is today.
Follow Amy @godsbestjpouch on Instagram Follow @tomshirschsprungspodcast on Instagram]]>2694false122fullhttps://www.spreaker.com/episode/episode-21-with-kyle-willmington-kylewill-tv--60217546 Kyle was born with a very rare condition called Charcot Marie Tooth disease and epitomises the spirit of the podcast by refusing to let his condition define him.
We discuss Kyle's determination to succeed as an entrepreneur, through his various self-made businesses as well as his fitness journey.
His message is a simple one 'Regardless of physical abilities, everyone deserves to live a fulfilling and healthy life. I am committed to helping others achieve their health and fitness goals'.
Follow Kyle @Kylewill.tv on Instagram]]>ced93f5a-3ecc-46da-9ac6-022c10a20496Thu, 30 May 2024 05:00:00 +0000Tom RichardEpisode 21 sees me interview Kyle Willmington, who is a healthy lifestyle and disability advocate. Kyle was born with a very rare condition called Charcot Marie Tooth disease and epitomises the spirit of the podcast by refusing to let his condition... Kyle was born with a very rare condition called Charcot Marie Tooth disease and epitomises the spirit of the podcast by refusing to let his condition define him.
We discuss Kyle's determination to succeed as an entrepreneur, through his various self-made businesses as well as his fitness journey.
His message is a simple one 'Regardless of physical abilities, everyone deserves to live a fulfilling and healthy life. I am committed to helping others achieve their health and fitness goals'.
Follow Kyle @Kylewill.tv on Instagram]]>1841false121fullhttps://www.spreaker.com/episode/episode-20-with-chris-robert-thegutcoachibd--60145172We talk about his coaching philosophies, and why he believes that helping people via a full 360 degree approach is the best way to long term success.
As a person with IBD himself, his mission is to inspire those navigating IBD, helping them to achieve a life of freedom from the constraints of their condition.
Follow Chris
@thegutcoachibd
www.thegutcoach.co.uk
www.youtube.com/TheGutCoach
]]>66245132-4afb-4d85-ba31-e7726bd0c367Thu, 23 May 2024 05:00:00 +0000Tom RichardIn this weeks episode I chat with Chris about his coaching business, Chris is a certified health coach, where he specialises in helping people with IBD to get their lives back on track. We talk about his coaching philosophies, and why he believes that...We talk about his coaching philosophies, and why he believes that helping people via a full 360 degree approach is the best way to long term success.
As a person with IBD himself, his mission is to inspire those navigating IBD, helping them to achieve a life of freedom from the constraints of their condition.
Follow Chris
@thegutcoachibd
www.thegutcoach.co.uk
www.youtube.com/TheGutCoach
]]>1921false120fullhttps://www.spreaker.com/episode/episode-19-part-2-of-my-interview-with-reach-hd-canada-president-liz-crawford--60056123@reach_hd Canada, including the highly acclaimed and much celebrated @thevanityparty
In 2019 @swishproductionswpg and @jaguar hosted #TheVanityParty , they raised over $30000 for @reach_hd Canada to improve the lives of children and families affected by #hirschsprungsdisease , and one day to hopefully find a cure.
Please enjoy the episode!!!
Download every episode on @spotify , @applepodcasts and @spreaker
Follow Liz - @swishmodels @swishproductionswpg @swishstudios.ca
Follow REACH HD for information on #hirschsprungsdisease as well as personal stories - @reach_hd
Follow Tom's Hirschsprung's Podcast @toms_hirschsprungs_podcast
#swishmodels #swishmodelmanagement #reachhd #hirschpsprungdisease #hirschsprungsawareness #hirschsprungspodcast #thp #raredisease #rarediseaseawareness #thevanityparty #reachhdcanada #busiestpersonever #reachhdUS]]>1ba619cb-4a97-49a9-bd56-20b563c9be57Thu, 16 May 2024 05:00:00 +0000Tom RichardIn part 2 we will discuss the formation, and continued success of https://www.instagram.com/reach_hd/ Canada, including the highly acclaimed and much celebrated https://www.instagram.com/thevanityparty/ In...@reach_hd Canada, including the highly acclaimed and much celebrated @thevanityparty
In 2019 @swishproductionswpg and @jaguar hosted #TheVanityParty , they raised over $30000 for @reach_hd Canada to improve the lives of children and families affected by #hirschsprungsdisease , and one day to hopefully find a cure.
Please enjoy the episode!!!
Download every episode on @spotify , @applepodcasts and @spreaker
Follow Liz - @swishmodels @swishproductionswpg @swishstudios.ca
Follow REACH HD for information on #hirschsprungsdisease as well as personal stories - @reach_hd
Follow Tom's Hirschsprung's Podcast @toms_hirschsprungs_podcast
#swishmodels #swishmodelmanagement #reachhd #hirschpsprungdisease #hirschsprungsawareness #hirschsprungspodcast #thp #raredisease #rarediseaseawareness #thevanityparty #reachhdcanada #busiestpersonever #reachhdUS]]>1494false119fullhttps://www.spreaker.com/episode/episode-18-part-1-of-my-interview-with-reach-hd-canada-president-liz-crawford--59939089#hirschsprungsdisease diagnosis.
Liz has been raising awareness of #hirschsprungsdisease for well over 15 years as well as organising charity events, with the help of her modelling company @swishmodels.
Along with Liz, the @reach_hd charity has 5 other board members, who work tirelessly to maintain the fellowship program, as well as providing over $300000 towards research grants!!!
In part 2 we will discuss the formation, and continued success of @reach_hd Canada, including the highly acclaimed and much celebrated @thevanityparty
In 2019 @swishproductionswpg and @jaguar hosted #TheVanityParty , they raised over $30000 for @reach_hd Canada to improve the lives of children and families affected by #hirschsprungsdisease , and one day to hopefully find a cure.
Please enjoy the episode!!!
Part 2 will be available on Thursday 16th May
Download every episode on @spotify , @applepodcasts and @spreaker
Follow Liz - @swishmodels @swishproductionswpg @swishstudios.ca
Follow REACH HD for information on #hirschsprungsdisease as well as personal stories - @reach_hd
Follow Tom's Hirschsprung's Podcast @toms_hirschsprungs_podcast
#swishmodels #swishmodelmanagement #reachhd #hirschpsprungdisease #hirschsprungsawareness #hirschsprungspodcast #thp #raredisease #rarediseaseawareness #thevanityparty #reachhdcanada #busiestpersonever #reachhdUS]]>8ce38204-bae1-4409-b190-5d719ec99f49Thu, 09 May 2024 05:00:00 +0000Tom RichardIn the first of a 2 part episode I have a fascinating chat with Liz about how she became involved in the charity, through her sons https://www.instagram.com/explore/tags/hirschsprungsdisease/ diagnosis. Liz has been raising awareness...#hirschsprungsdisease diagnosis.
Liz has been raising awareness of #hirschsprungsdisease for well over 15 years as well as organising charity events, with the help of her modelling company @swishmodels.
Along with Liz, the @reach_hd charity has 5 other board members, who work tirelessly to maintain the fellowship program, as well as providing over $300000 towards research grants!!!
In part 2 we will discuss the formation, and continued success of @reach_hd Canada, including the highly acclaimed and much celebrated @thevanityparty
In 2019 @swishproductionswpg and @jaguar hosted #TheVanityParty , they raised over $30000 for @reach_hd Canada to improve the lives of children and families affected by #hirschsprungsdisease , and one day to hopefully find a cure.
Please enjoy the episode!!!
Part 2 will be available on Thursday 16th May
Download every episode on @spotify , @applepodcasts and @spreaker
Follow Liz - @swishmodels @swishproductionswpg @swishstudios.ca
Follow REACH HD for information on #hirschsprungsdisease as well as personal stories - @reach_hd
Follow Tom's Hirschsprung's Podcast @toms_hirschsprungs_podcast
#swishmodels #swishmodelmanagement #reachhd #hirschpsprungdisease #hirschsprungsawareness 1782false118fullhttps://www.spreaker.com/episode/episode-17-with-laura-o-reilly-laura-ibd-and-me--59765125 Listen through Laura's journey from someone who would have run a mile from the gym (her own words!) to a fitness inspiration for people with IBD.
Follow Laura on Instagram - @Laura_ibd_and_me_ Follow Tom's Hirschsprungs Podcast on Instagram -@toms_hirschsprungs_podcast]]>326f18e0-87e3-4dd4-abf4-205e4dadec3fThu, 02 May 2024 05:00:00 +0000Tom RichardIn this weeks episode I talk to the brilliant Laura O'Reilly @Laura_ibd_and_me_ ,who recently hosted @keepingupwiththegowls podcast, about all things IBD and fitness. Listen through Laura's journey from someone who would have run a mile from the gym... Listen through Laura's journey from someone who would have run a mile from the gym (her own words!) to a fitness inspiration for people with IBD.
Follow Laura on Instagram - @Laura_ibd_and_me_ Follow Tom's Hirschsprungs Podcast on Instagram -@toms_hirschsprungs_podcast]]>2018false117fullhttps://www.spreaker.com/episode/episode-16-with-patrick-belton-theostomyathlete--59647789@theostomyathlete
This week I chat with Patrick about his incredible journey of overcoming challenges and achieving incredible mountaineering endeavours.
Patrick shares his inspirational story from his diagnosis in his teens all the way through to forming his mountaineering team, with 3 more exceptional ostomy athletes from the UK, US and Canada.
Along the way we discuss how Patrick got into extreme sports, the moments that inspired him, and also how he help others in the ostomy community, through maintaining a high degree of positivity.
We end on a couple of stand out moments that are personal to Patrick during his climbs - be sure to stick around to the end to find out!
Follow Patrick, the "Ostomy Athlete," on Instagram @theostomyathlete. Visit Patrick's website theostomyathlete.com for more information and resources.
Follow @toms_hirschsprungs_podcast on @spotify]]>355d23cb-4203-4e52-87d3-a79efc392a79Thu, 25 Apr 2024 05:00:00 +0000Tom RichardEPISODE 16 - WITH PATRICK BELTON https://www.instagram.com/theostomyathlete/ This week I chat with Patrick about his incredible journey of overcoming challenges and achieving incredible mountaineering endeavours. Patrick shares his inspirational story...@theostomyathlete
This week I chat with Patrick about his incredible journey of overcoming challenges and achieving incredible mountaineering endeavours.
Patrick shares his inspirational story from his diagnosis in his teens all the way through to forming his mountaineering team, with 3 more exceptional ostomy athletes from the UK, US and Canada.
Along the way we discuss how Patrick got into extreme sports, the moments that inspired him, and also how he help others in the ostomy community, through maintaining a high degree of positivity.
We end on a couple of stand out moments that are personal to Patrick during his climbs - be sure to stick around to the end to find out!
Follow Patrick, the "Ostomy Athlete," on Instagram @theostomyathlete. Visit Patrick's website theostomyathlete.com for more information and resources.
Follow @toms_hirschsprungs_podcast on @spotify]]>3388false116fullhttps://www.spreaker.com/episode/episode-15-with-melissa-jones-hd-uk-facebook-group-founder--59525568My guest this week is Melissa Jones, Melissa runs the very popular @facebook page 'Hirschsprung's Disease family support UK'
Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the @facebook group.
We also chat about the @facebook page, how and why it was set up, as well as hopes for the group in the future.
To join the group search 'Hirschsprung's Disease family support UK' on @facebook
Follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #hdwarrior #hdwarriors #raredisease #rarediseaseawareness #tomshirschsprungspodcast #hirschsprungsjourney #hirschsprungsdiseaseuk #familysupport #familysupportuk]]>3262e541-ebd5-4c35-8a3c-93208938b815Thu, 18 Apr 2024 07:46:45 +0000Tom RichardEPISODE 15 - WITH MELISSA JONES - OUT NOW!!! My guest this week is Melissa Jones, Melissa runs the very popular https://www.instagram.com/facebook/ page 'Hirschsprung's Disease family support UK' Melissa is also the mum of Mia, who has Hirschsprung's...My guest this week is Melissa Jones, Melissa runs the very popular @facebook page 'Hirschsprung's Disease family support UK'
Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the @facebook group.
We also chat about the @facebook page, how and why it was set up, as well as hopes for the group in the future.
To join the group search 'Hirschsprung's Disease family support UK' on @facebook
Follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #hdwarrior #hdwarriors #raredisease #rarediseaseawareness #tomshirschsprungspodcast #hirschsprungsjourney #hirschsprungsdiseaseuk #familysupport #familysupportuk]]>1667false115fullhttps://www.spreaker.com/episode/episode-15-with-melissa-jones-hd-uk-facebook-group-founder--59524586Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the Facebook group.
We also chat about the Facebook page, how and why it was set up, as well as hopes for the group in the future.
To join the group search 'Hirschsprung's Disease family support UK' on Facebook]]>228883c2-bbb8-41d8-acda-686f873f6037Thu, 18 Apr 2024 05:00:00 +0000Tom RichardMy guest this week is Melissa Jones, Melissa runs the very popular Facebook page 'Hirschsprung's Disease family support UK' Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the...Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the Facebook group.
We also chat about the Facebook page, how and why it was set up, as well as hopes for the group in the future.
To join the group search 'Hirschsprung's Disease family support UK' on Facebook]]>1668false115fullhttps://www.spreaker.com/episode/episode-14-with-andy-browne-andyb-96--59413632Andy's story of resilience and perseverance is one great inspiration, and I really hope you enjoy the show when it releases later this week.
We chat about his medical and sporting life up until now, as well his hopes for the future. We also go slightly off topic at the end, as we share our mutual love of football with his @realmadrid and my beloved @nufc !!!
follow Andy @andyb.96
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungs #crohnsdisease #crohnswarrior #crohns #ulceratedcolitis #colitiswarrior #colitis #golf #golfpro #hdwarrior #raredisease #rarediseases #ulcerativecollitis]]>011ea078-2659-450e-9062-1ac9f37e16e9Thu, 11 Apr 2024 05:33:00 +0000Tom RichardIn this weeks episode I speak with professional golfer Andy Browne, where he talks about his incredible journey through being a professional sportsman with Ulcerative Colitis and Crohns. Andy's story of resilience and perseverance is one great...Andy's story of resilience and perseverance is one great inspiration, and I really hope you enjoy the show when it releases later this week.
We chat about his medical and sporting life up until now, as well his hopes for the future. We also go slightly off topic at the end, as we share our mutual love of football with his @realmadrid and my beloved @nufc !!!
follow Andy @andyb.96
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungs #crohnsdisease #crohnswarrior #crohns #ulceratedcolitis #colitiswarrior #colitis #golf #golfpro #hdwarrior #raredisease #rarediseases #ulcerativecollitis]]>2490true114fullhttps://www.spreaker.com/episode/episode-12a-a-review-of-the-podcast-so-far-and-a-look-forward-to-the-future--59365565 It may be a bit early to start reviewing something that is only a matter of months old, but I didn't want anyone to be episode 13, so I've called this one 12A and the next episode, with Andy Browne, releasing on Thursday 11th April will be no. 14.
Thanks for listening!!
Follow Tom's Hirschsprung's Podcast on Instagram and Spotify]]>69b7a63c-705c-4c91-a373-93fd22d115d5Tue, 09 Apr 2024 11:47:34 +0000Tom RichardIn this special episode I take a look back on the short life of Tom's Hirschsprung's Podcast as well as giving an idea of the schedule and guests in the coming weeks/months. It may be a bit early to start reviewing something that is only a matter of... It may be a bit early to start reviewing something that is only a matter of months old, but I didn't want anyone to be episode 13, so I've called this one 12A and the next episode, with Andy Browne, releasing on Thursday 11th April will be no. 14.
Thanks for listening!!
Follow Tom's Hirschsprung's Podcast on Instagram and Spotify]]>526false1fullhttps://www.spreaker.com/episode/episode-12-interview-with-aliz-david-thechronicallyfitcoach--59288462Aliz talks about her own health conditions, and how she was inspired to become a PT, through a holistic approach and embracing wellness.
Follow Aliz @thechronicallyfitcoach
Follow @toms_hirschsprungs_podcast on @spotify and  @spreaker
#hirschsprungsdiseaseawareness #chronicpainwarrior  #hirschsprungsdisease #tomshirschsprungspodcast  #thechronicallyfitcoach #hdwarrior  #hirschsprungsjourney #spotify #raredisease  #rarediseasewarrior]]>6b3ca0f3-9dbb-4951-9cde-a56a4745b635Thu, 04 Apr 2024 05:00:00 +0000Tom RichardIn this Thursdays episode with Aliz, we chat about her life as a personal trainer, specialising in helping people with chronic illness. Aliz talks about her own health conditions, and how she was inspired to become a PT, through a holistic approach...Aliz talks about her own health conditions, and how she was inspired to become a PT, through a holistic approach and embracing wellness.
Follow Aliz @thechronicallyfitcoach
Follow @toms_hirschsprungs_podcast on @spotify and  @spreaker
#hirschsprungsdiseaseawareness #chronicpainwarrior  #hirschsprungsdisease #tomshirschsprungspodcast  #thechronicallyfitcoach #hdwarrior  #hirschsprungsjourney #spotify #raredisease  #rarediseasewarrior]]>1901true112fullhttps://www.spreaker.com/episode/episode-11-interview-with-jonathan-o-konek-jonathanokonek--59203892#rarediseaseawareness, through his son, Sheamus.
To date Jonathan has written 3 children's books with an exclusive update on the 4th in this episode!!
Follow Jonathan on:
Instagram - @jonathanokonek
facebook.com/jonathanokonek
amazon.com/Jonathan-OKonek
twitter.com/JonathanOkonek
Linkedin.com/in/jonathanokonek
Purchase Jonathan's books at
www.okonekbooks.com
Listen to each and every episode on @spotify and @spreaker by searching for 'Toms Hirschsprungs Podcast']]>f926902b-198d-4bde-8bb4-b35f4e0d7ba4Thu, 28 Mar 2024 03:36:00 +0000Tom RichardMy guest this week is army veteran, attorney and children's author Jonathan O'Konek, who explains his fascinating life story, as well as how he became an advocate for https://www.instagram.com/explore/tags/rarediseaseawareness/, through his son,...#rarediseaseawareness, through his son, Sheamus.
To date Jonathan has written 3 children's books with an exclusive update on the 4th in this episode!!
Follow Jonathan on:
Instagram - @jonathanokonek
facebook.com/jonathanokonek
amazon.com/Jonathan-OKonek
twitter.com/JonathanOkonek
Linkedin.com/in/jonathanokonek
Purchase Jonathan's books at
www.okonekbooks.com
Listen to each and every episode on @spotify and @spreaker by searching for 'Toms Hirschsprungs Podcast']]>1766false111fullhttps://www.spreaker.com/episode/episode-10-with-laquita-williamson--59123092@hairbylaquita_ who is the owner of She's Von Salon and mother to her son, Marcus jnr, who has #hirschsprungsdisease.
Laquita shares Marcus jnr's story, from the beginning right through to present day, as well as hopes for the future.
Follow Laquita @hairbylaquita_
Follow and listen to @toms_hirschsprungs_podcast on @spotify and @spreaker
#hairbylaquita #hirschsprungsdisease #hdwarrior #tomshirschsprungspodcast #hirschsprungsdiseaseawareness #hirschsprung #hirschsprungs #hirschsprungsjourney #spotify #raredisease #rarediseasewarrior]]>322d68e8-4193-4133-b324-0b3b696ac828Thu, 21 Mar 2024 06:00:00 +0000Tom RichardIn our landmark 10th Episode, I interview Laquita Williamson https://www.instagram.com/hairbylaquita_/ who is the owner of She's Von Salon and mother to her son, Marcus jnr, who has https://www.instagram.com/explore/tags/hirschsprungsdisease/. Laquita...@hairbylaquita_ who is the owner of She's Von Salon and mother to her son, Marcus jnr, who has #hirschsprungsdisease.
Laquita shares Marcus jnr's story, from the beginning right through to present day, as well as hopes for the future.
Follow Laquita @hairbylaquita_
Follow and listen to @toms_hirschsprungs_podcast on @spotify and @spreaker
#hairbylaquita #hirschsprungsdisease #hdwarrior #tomshirschsprungspodcast #hirschsprungsdiseaseawareness #hirschsprung #hirschsprungs #hirschsprungsjourney #spotify #raredisease #rarediseasewarrior]]>1811false110fullhttps://www.spreaker.com/episode/episode-9-part-2-of-my-interview-with-shellie-warner--59040547 Check out part 1 to hear all about Adonis's incredible medical story follow Shellie at @discoveringadonis and @_shellend
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdiseaseawareness #hirschprungsdisease #hdwarrior #downsyndromeawareness #postiveaboutdownssyndrome #hirschsprungsjourney #nothingdownaboutit #tomshirschsprungspodcast]]>2fa5e6b8-364a-4b30-a7f5-902bf9f2c7f1Thu, 14 Mar 2024 06:00:00 +0000Tom RichardIn part 2 of Shellie's interview, Shellie talks about her amazing charity work as well as how she has become involved in working for Footprints Foundation in Nottingham. Stay tuned until the end to find out the incredible activity Shellie will be... Check out part 1 to hear all about Adonis's incredible medical story follow Shellie at @discoveringadonis and @_shellend
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdiseaseawareness #hirschprungsdisease #hdwarrior #downsyndromeawareness #postiveaboutdownssyndrome #hirschsprungsjourney #nothingdownaboutit #tomshirschsprungspodcast]]>1205false19fullhttps://www.spreaker.com/episode/episode-8-part-1-of-my-interview-with-shellie-warner-discoveringadonis-shellend--58955037@discoveringadonis @_shellend - PART 1 OUT THIS THURSDAY 7TH MARCH
In part 1 of a 2 part special, I interview Shellie about her amazing and uplifting journey through her first year and half of motherhood.
We talk about her son, Donny, and his early diagnosis of #downsyndrome and #hirschsprungsdisease as well as the incredible support from her family and nurses.
Stay tuned for a special exclusive in part 2!!!
follow Shellie at @discoveringadonis and @_shellend
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdiseaseawareness #hirschprungsdisease #hdwarrior #downsyndromeawareness #postiveaboutdownssyndrome #hirschsprungsjourney #nothingdownaboutit #tomshirschsprungspodcast]]>a20f79d2-27b1-4ed9-9db5-194e457bdd7bThu, 07 Mar 2024 06:00:00 +0000Tom RichardNEW EPISODE WITH SHELLIE WARNER https://www.instagram.com/discoveringadonis/ https://www.instagram.com/_shellend/ - PART 1 OUT THIS THURSDAY 7TH MARCH In part 1 of a 2 part special, I interview Shellie about her amazing and uplifting journey through...@discoveringadonis @_shellend - PART 1 OUT THIS THURSDAY 7TH MARCH
In part 1 of a 2 part special, I interview Shellie about her amazing and uplifting journey through her first year and half of motherhood.
We talk about her son, Donny, and his early diagnosis of #downsyndrome and #hirschsprungsdisease as well as the incredible support from her family and nurses.
Stay tuned for a special exclusive in part 2!!!
follow Shellie at @discoveringadonis and @_shellend
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdiseaseawareness #hirschprungsdisease #hdwarrior #downsyndromeawareness #postiveaboutdownssyndrome #hirschsprungsjourney #nothingdownaboutit #tomshirschsprungspodcast]]>1478false18fullhttps://www.spreaker.com/episode/episode-7-interview-with-aimee-fernandflo--58873163e4c55b5c-7c71-45ee-bd6b-821e9fe49e9fThu, 29 Feb 2024 06:00:00 +0000Tom RichardMy guest this week is Aimee, who is a fellow HD warrior and is currently starting a business called Fern and Flo. Aimee is a Bachelor of health science and nutrition, a Pilates instructor and is now starting a new business focusing on holistic health...2129false17fullhttps://www.spreaker.com/episode/episode-6-from-struggle-to-strength-interview-with-harvey-haworth--58773572 We begin the story in 2016 with Harvey's first symptoms and follow his journey through his diagnosis and up to the present day
]]>0c86327b-154d-4d8f-8c21-183b8e626171Thu, 22 Feb 2024 06:00:00 +0000Tom RichardEpisode 6 tells an interesting story with Harvey Haworth, Harvey talks to me about his battle with Colitis, as well as his ambitions for the future - including running the upcoming Manchester Marathon!! We begin the story in 2016 with Harvey's first... We begin the story in 2016 with Harvey's first symptoms and follow his journey through his diagnosis and up to the present day
]]>2820false16fullhttps://www.spreaker.com/episode/episode-1-an-introduction-to-toms-hirschsprung-s-podcast-reupload--58752025 Follow us on Instagram at @toms_hirschsprungs_podcast Contact us at tomshirschsprungspodcast@gmail.com]]>de7f9776-917c-478e-993e-61bc20d353deTue, 20 Feb 2024 13:38:37 +0000Tom RichardA short introduction into Toms Hirschsprung's Podcast covering who I am, why I'm recording this, the aims of the podcast, when and where to find us, as well as details on upcoming special guests. Follow us on Instagram at @toms_hirschsprungs_podcast... Follow us on Instagram at @toms_hirschsprungs_podcast Contact us at tomshirschsprungspodcast@gmail.com]]>541false1fullhttps://www.spreaker.com/episode/episode-5-interview-with-carla-scaramella--58692063@toms_hirschsprungs_podcast co-founder, about her fantastic work helping parents and families with #hirschsprungsdisease across Argentina.
We will share stories about how and why Carla started the patient advocacy group, as well as the invention of the Spanish HD alert card!
Listen and follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungs #hirschsprungsdiseaseawareness #hdwarrior #hirschsprungawareness]]>c99594ac-ce7d-4fa4-b531-5a00a6bcd701Thu, 15 Feb 2024 06:00:00 +0000Tom RichardThis week I chat with Carla Scaramella, our third https://www.instagram.com/toms_hirschsprungs_podcast/ co-founder, about her fantastic work helping parents and families with https://www.instagram.com/explore/tags/hirschsprungsdisease/ across...@toms_hirschsprungs_podcast co-founder, about her fantastic work helping parents and families with #hirschsprungsdisease across Argentina.
We will share stories about how and why Carla started the patient advocacy group, as well as the invention of the Spanish HD alert card!
Listen and follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungs #hirschsprungsdiseaseawareness #hdwarrior #hirschsprungawareness]]>2073false15fullhttps://www.spreaker.com/episode/episode-4-interview-with-louisa-and-andrew-shapton--58606962 Listen and follow Tom's Hirschsprung's Podcast on Spotify]]>8772fc26-1f27-4b20-93e1-450bcfa14cabThu, 08 Feb 2024 06:00:00 +0000Tom RichardIn this weeks episode, I chat with one of the co-founders of Tom's Hirschsprung's Podcast, and her father about her experiences with having Hirschsprung's disease, as well as her achievements as a business owner. Listen and follow Tom's... Listen and follow Tom's Hirschsprung's Podcast on Spotify]]>3185falsefullhttps://www.spreaker.com/episode/episode-3-part-2-of-my-interview-with-kyla-thomson-kylact--58530074 We also talk about Bella's rise to fame and their mission to inspire others to be #BELLABRAVE
Follow @kylact to see Bella's story on IG and @tiktok
Please consider supporting Bella and her family by checking out her website - www.bella-brave.com and purchasing some great BELLA BRAVE merch
Follow Tom's Hirshcsprungs Podcast on spotify]]>dbf3aefc-5438-4aa5-b7d0-b8c663fa4fabThu, 01 Feb 2024 09:00:00 +0000Tom RichardPart 2 of my interview with Kyla Thomson, in which we will continue the discussion about her daughter Bella's captivating medical adventure, as well as their phenomenal charity work. We also talk about Bella's rise to fame and their mission to... We also talk about Bella's rise to fame and their mission to inspire others to be #BELLABRAVE
Follow @kylact to see Bella's story on IG and @tiktok
Please consider supporting Bella and her family by checking out her website - www.bella-brave.com and purchasing some great BELLA BRAVE merch
Follow Tom's Hirshcsprungs Podcast on spotify]]>3048falsefullhttps://www.spreaker.com/episode/episode-2-part-1-of-my-interview-with-kyla-thomson-kylact--58475172 Subscribe to @toms_hirschsprungs_podcast on instagram
Follow Kyla Thomson @kylact
#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #bellabrave #hdwarrior #hdwarriors #hirschsprungspodcast]]>00037276-7291-47bc-91a3-145e77494901Thu, 25 Jan 2024 09:00:00 +0000Tom RichardThe first half of my interview with the inspirational Kyla Thomson, where we discuss her daughter Bella's fascinating medical journey from the very beginning, right up until the incredible events that unfolded in August 2023! Subscribe to... Subscribe to @toms_hirschsprungs_podcast on instagram
Follow Kyla Thomson @kylact
#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #bellabrave #hdwarrior #hdwarriors #hirschsprungspodcast]]>2193falsefullhttps://www.spreaker.com/episode/episode-1-a-short-introduction-into-toms-hirschsprungs-podcast--58475173Next episode will release on Thursday 25th January 2024
Follow us on Instagram at toms_hirschsprungs_podcast Contact us at tomshirschsprungspodcast@gmail.com

]]>4910a0b3-30e3-4508-8024-9b2afd559fdfThu, 11 Jan 2024 09:00:00 +0000Tom RichardA short introduction into Toms Hirschsprungs Podcast covering who I am, why I'm recording this, the aims of the podcast, when and where to find us as well as details on upcoming special guests. Next episode will release on Thursday 25th January 2024...Next episode will release on Thursday 25th January 2024
Follow us on Instagram at toms_hirschsprungs_podcast Contact us at tomshirschsprungspodcast@gmail.com

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