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<rss xmlns:itunes="http://www.itunes.com/dtds/podcast-1.0.dtd" xmlns:atom="http://www.w3.org/2005/Atom" xmlns:podcast="https://podcastindex.org/namespace/1.0" xmlns:media="http://search.yahoo.com/mrss/" version="2.0"><channel><title>Caregivers SHARE, a St. Jude Podcast</title><link>https://www.stjude.org/treatment/services/clinics-and-services/psychosocial-services/caregivers-share-podcast.html</link><description><![CDATA[A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.]]></description><atom:link href="https://www.spreaker.com/show/5915116/episodes/feed" rel="self" type="application/rss+xml"/><language>en</language><category>Health &amp; Fitness</category><copyright>2023</copyright><image><url>https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg</url><title>Caregivers SHARE, a St. Jude Podcast</title><link>https://www.stjude.org/treatment/services/clinics-and-services/psychosocial-services/caregivers-share-podcast.html</link></image><lastBuildDate>Tue, 18 Aug 2026 14:11:54 +0000</lastBuildDate><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:owner><itunes:name>St. Jude Children’s Research Hospital</itunes:name><itunes:email>sceo@stjude.org</itunes:email></itunes:owner><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:subtitle>A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear...</itunes:subtitle><itunes:summary><![CDATA[A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.]]></itunes:summary><itunes:category text="Health &amp; Fitness"/><itunes:category text="Health &amp; Fitness"><itunes:category text="Medicine"/></itunes:category><itunes:explicit>false</itunes:explicit><podcast:guid>f7b6c18b-6c4e-5863-b607-b3ec3be89beb</podcast:guid><itunes:type>episodic</itunes:type><item><title>Finding Your Voice: A Teen’s Perspective on Serious Illness</title><link>https://www.spreaker.com/episode/finding-your-voice-a-teen-s-perspective-on-serious-illness--74256319</link><description><![CDATA[When a teen has a serious illness, it can be hard to know how to help. Teens often want to do more on their own as they grow. Caregivers may wonder how to talk with their teen. They may also want to know how to include teens in care choices and help them handle hard feelings. <br /><br />In this episode, Erica Sirrine, PhD, LCSW, talks with St. Jude patient Michelle and Tori Hinton, PhD, CCLS, senior child life specialist at St. Jude Children’s Research Hospital. They share ways family caregivers can help teens during a serious illness. <br /><br />Michelle discusses what she learned during treatment for acute myeloid leukemia, or AML. She talks about how her family communicated, made care choices together, and handled difficult emotions. She also shares how art, journaling, calming exercises, and support from friends helped her manage stress and stay connected to who she is. <br /><br />Tori explains why giving teens a chance to take part in care decisions matters. She shares ways caregivers can support a teen’s independence while staying connected. The group also explores how to talk honestly, handle stress, and help teens feel heard. <br /><br />A special thank you to our host, Erica Sirrine, director of Social Work at St. Jude; our expert, Tori Hinton, senior child life specialist at St. Jude; and St. Jude patient Michelle. <br /><br />This episode was recorded on August 3, 2026.<br /><br />Learn more about Michelle’s AML diagnosis on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a>.   <br /><br />Read about Michelle’s art on the <a href="https://www.stjude.org/about-st-jude/stories/making-a-difference/patient-story-yike.html" target="_blank" rel="noreferrer noopener">St. Jude website</a>.  <br /><br />Learn about navigating serious illness as a teen or young adult on <a href="https://together.stjude.org/en-us/teensand20s.html" target="_blank" rel="noreferrer noopener">Together Teens &amp; 20s</a>.  <br /><br /><i>St. Jude does not endorse any product or organization mentioned in this podcast. </i><br />]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/74256319</guid><pubDate>Thu, 20 Aug 2026 05:00:04 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/74256319/2291266336_caregivers_share_podcast_s4_ep_29_aya_conversations.mp3" length="97302720" type="audio/mpeg"/><podcast:transcript url="https://transcription.spreaker.com/starship/9e94577a-4a1b-43ed-96b4-4d08970ac9a9/9e94577a-4a1b-43ed-96b4-4d08970ac9a9.srt" type="application/x-subrip" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/9e94577a-4a1b-43ed-96b4-4d08970ac9a9/9e94577a-4a1b-43ed-96b4-4d08970ac9a9.txt" type="text/plain" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/9e94577a-4a1b-43ed-96b4-4d08970ac9a9/9e94577a-4a1b-43ed-96b4-4d08970ac9a9.vtt" type="text/vtt" language="en"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When a teen has a serious illness, it can be hard to know how to help. Teens often want to do more on their own as they grow. Caregivers may wonder how to talk with their teen. They may also want to know how to include teens in care choices and help...</itunes:subtitle><itunes:summary><![CDATA[When a teen has a serious illness, it can be hard to know how to help. Teens often want to do more on their own as they grow. Caregivers may wonder how to talk with their teen. They may also want to know how to include teens in care choices and help them handle hard feelings. <br /><br />In this episode, Erica Sirrine, PhD, LCSW, talks with St. Jude patient Michelle and Tori Hinton, PhD, CCLS, senior child life specialist at St. Jude Children’s Research Hospital. They share ways family caregivers can help teens during a serious illness. <br /><br />Michelle discusses what she learned during treatment for acute myeloid leukemia, or AML. She talks about how her family communicated, made care choices together, and handled difficult emotions. She also shares how art, journaling, calming exercises, and support from friends helped her manage stress and stay connected to who she is. <br /><br />Tori explains why giving teens a chance to take part in care decisions matters. She shares ways caregivers can support a teen’s independence while staying connected. The group also explores how to talk honestly, handle stress, and help teens feel heard. <br /><br />A special thank you to our host, Erica Sirrine, director of Social Work at St. Jude; our expert, Tori Hinton, senior child life specialist at St. Jude; and St. Jude patient Michelle. <br /><br />This episode was recorded on August 3, 2026.<br /><br />Learn more about Michelle’s AML diagnosis on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a>.   <br /><br />Read about Michelle’s art on the <a href="https://www.stjude.org/about-st-jude/stories/making-a-difference/patient-story-yike.html" target="_blank" rel="noreferrer noopener">St. Jude website</a>.  <br /><br />Learn about navigating serious illness as a teen or young adult on <a href="https://together.stjude.org/en-us/teensand20s.html" target="_blank" rel="noreferrer noopener">Together Teens &amp; 20s</a>.  <br /><br /><i>St. Jude does not endorse any product or organization mentioned in this podcast. </i><br />]]></itunes:summary><itunes:duration>2433</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/da516e96dc8e8491650c109628e211a6.jpg"/><itunes:season>4</itunes:season><itunes:episode>2</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Fertility Preservation Decisions, Part 2</title><link>https://www.spreaker.com/episode/fertility-preservation-decisions-part-2--73072503</link><description><![CDATA[Fertility preservation is not always the first thing a family thinks about during a serious illness. But fertility preservation can shape a patient’s future in important ways.<br /><br />In this episode, Tekeima Townsend-Billups, MDiv, and Kari Bjornard, MD, talk with cancer survivor Keragan about her experience of going through fertility preservation years after completing cancer treatment. Keragan was diagnosed with Stage IV Hodgkin lymphoma at 17 years old.<br /><br />Now 25 years old and an emergency room nurse, Keragan shares her journey with fertility after cancer, including what she wishes she had known at the start of treatment. Kari offers insights into risks, timing, and how to talk with your care team. Tekeima guides the discussion that covers the emotional impact of these decisions, differences between male and female patients, and the many ways to build a family.<br /><br />A special thank you to our host, Tekeima Townsend-Billups, senior staff chaplain in <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care</a> at St. Jude; our expert Kari Bjornard, director of the <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/preservation-of-reproductive-health.html" target="_blank" rel="noreferrer noopener">Fertility Program</a> and assistant member of the Oncology faculty at St. Jude; and St. Jude patient Keragan.<br /><br />This episode was recorded on June 26, 2026. Listen to the first part of this conversation on <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-3/fertility-preservation-decisions.html" target="_blank" rel="noreferrer noopener">male fertility preservation decisions</a>.<br />  <br />Learn more about Keragan’s diagnosis of Hodgkin lymphoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and<i> </i><a href="https://together.stjude.org/en-us/conditions/cancers/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>. <br /><br />Learn more about <a href="https://together.stjude.org/en-us/teensand20s/how-treatments-may-affect-you/understanding-fertility-guide-for-females.html" target="_blank" rel="noreferrer noopener">female fertility</a> and <a href="https://together.stjude.org/en-us/medical-care/psychology.html" target="_blank" rel="noreferrer noopener">mental well-being </a>on <i>Together by St. Jude</i>™.<br /><i><br />St. Jude does not endorse any branded product or organization mentioned in this podcast.</i><br />]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/73072503</guid><pubDate>Thu, 23 Jul 2026 05:00:03 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/73072503/12207004288_caregivers_share_s4e1_fertility_preservation_in_females.mp3" length="95695680" type="audio/mpeg"/><podcast:transcript url="https://transcription.spreaker.com/starship/a1bbfcc7-3c44-4dc1-bf4a-eacf76c22962/a1bbfcc7-3c44-4dc1-bf4a-eacf76c22962.srt" type="application/x-subrip" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/a1bbfcc7-3c44-4dc1-bf4a-eacf76c22962/a1bbfcc7-3c44-4dc1-bf4a-eacf76c22962.txt" type="text/plain" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/a1bbfcc7-3c44-4dc1-bf4a-eacf76c22962/a1bbfcc7-3c44-4dc1-bf4a-eacf76c22962.vtt" type="text/vtt" language="en"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Fertility preservation is not always the first thing a family thinks about during a serious illness. But fertility preservation can shape a patient’s future in important ways.

In this episode, Tekeima Townsend-Billups, MDiv, and Kari Bjornard, MD,...</itunes:subtitle><itunes:summary><![CDATA[Fertility preservation is not always the first thing a family thinks about during a serious illness. But fertility preservation can shape a patient’s future in important ways.<br /><br />In this episode, Tekeima Townsend-Billups, MDiv, and Kari Bjornard, MD, talk with cancer survivor Keragan about her experience of going through fertility preservation years after completing cancer treatment. Keragan was diagnosed with Stage IV Hodgkin lymphoma at 17 years old.<br /><br />Now 25 years old and an emergency room nurse, Keragan shares her journey with fertility after cancer, including what she wishes she had known at the start of treatment. Kari offers insights into risks, timing, and how to talk with your care team. Tekeima guides the discussion that covers the emotional impact of these decisions, differences between male and female patients, and the many ways to build a family.<br /><br />A special thank you to our host, Tekeima Townsend-Billups, senior staff chaplain in <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care</a> at St. Jude; our expert Kari Bjornard, director of the <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/preservation-of-reproductive-health.html" target="_blank" rel="noreferrer noopener">Fertility Program</a> and assistant member of the Oncology faculty at St. Jude; and St. Jude patient Keragan.<br /><br />This episode was recorded on June 26, 2026. Listen to the first part of this conversation on <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-3/fertility-preservation-decisions.html" target="_blank" rel="noreferrer noopener">male fertility preservation decisions</a>.<br />  <br />Learn more about Keragan’s diagnosis of Hodgkin lymphoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and<i> </i><a href="https://together.stjude.org/en-us/conditions/cancers/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>. <br /><br />Learn more about <a href="https://together.stjude.org/en-us/teensand20s/how-treatments-may-affect-you/understanding-fertility-guide-for-females.html" target="_blank" rel="noreferrer noopener">female fertility</a> and <a href="https://together.stjude.org/en-us/medical-care/psychology.html" target="_blank" rel="noreferrer noopener">mental well-being </a>on <i>Together by St. Jude</i>™.<br /><i><br />St. Jude does not endorse any branded product or organization mentioned in this podcast.</i><br />]]></itunes:summary><itunes:duration>2393</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/cc011a6795e754bec35c78c95a36f582.jpg"/><itunes:season>4</itunes:season><itunes:episode>1</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Late Effects of Treatment</title><link>https://www.spreaker.com/episode/late-effects-of-treatment--72368160</link><description><![CDATA[When treatment ends, families might expect life to return to normal. But, while treatment may have an end date, the late effects of serious illness are less defined. This means life does not always go back to what it was before treatment started.<br /><br />In this episode, host Mark Brown and expert Jeanette Lavecchia talk with parent Carla Wyatt about the late effects of her son Brett’s treatment.<br /><br />Carla shares her family’s story, highlighting Brett’s joy and humor through the late effects that have changed their daily lives. Jeanette offers insights from her years of helping families navigate new diagnoses and life after treatment. Mark emphasizes the importance of community and finding joy and grace.<br /><br />A special thank you to our host, Mark Brown, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care</a> at St. Jude; our expert Jeanette Lavecchia, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> manager at St. Jude; and our parent guest, Carla Wyatt.<br /><br />This episode was recorded on February 5, 2026.<br /><br />Learn more about Brett’s diagnosis of acute lymphoblastic leukemia (ALL) on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/acute-lymphoblastic-leukemia-all.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/acute-lymphoblastic-leukemia-all.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>. <br /><br />Learn more about <a href="https://together.stjude.org/en-us/treatment-tests-procedures/long-term-effects.html" target="_blank" rel="noreferrer noopener">late effects</a> of treatment and <a href="https://together.stjude.org/en-us/conditions/cancers/life-after-cancer.html" target="_blank" rel="noreferrer noopener">survivorship</a> on <i>Together by St. Jude</i>™. <br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/72368160</guid><pubDate>Thu, 18 Jun 2026 05:00:03 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/72368160/18281330079_caregivers_share_podcast_s3_ep13_late_effects_of_treatment_20260205.mp3" length="81905280" type="audio/mpeg"/><podcast:transcript url="https://transcription.spreaker.com/starship/4836e379-c1a8-46fa-8ec9-e8be6890c30b/4836e379-c1a8-46fa-8ec9-e8be6890c30b.srt" type="application/x-subrip" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/4836e379-c1a8-46fa-8ec9-e8be6890c30b/4836e379-c1a8-46fa-8ec9-e8be6890c30b.txt" type="text/plain" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/4836e379-c1a8-46fa-8ec9-e8be6890c30b/4836e379-c1a8-46fa-8ec9-e8be6890c30b.vtt" type="text/vtt" language="en"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When treatment ends, families might expect life to return to normal. But, while treatment may have an end date, the late effects of serious illness are less defined. This means life does not always go back to what it was before treatment started.

In...</itunes:subtitle><itunes:summary><![CDATA[When treatment ends, families might expect life to return to normal. But, while treatment may have an end date, the late effects of serious illness are less defined. This means life does not always go back to what it was before treatment started.<br /><br />In this episode, host Mark Brown and expert Jeanette Lavecchia talk with parent Carla Wyatt about the late effects of her son Brett’s treatment.<br /><br />Carla shares her family’s story, highlighting Brett’s joy and humor through the late effects that have changed their daily lives. Jeanette offers insights from her years of helping families navigate new diagnoses and life after treatment. Mark emphasizes the importance of community and finding joy and grace.<br /><br />A special thank you to our host, Mark Brown, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care</a> at St. Jude; our expert Jeanette Lavecchia, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> manager at St. Jude; and our parent guest, Carla Wyatt.<br /><br />This episode was recorded on February 5, 2026.<br /><br />Learn more about Brett’s diagnosis of acute lymphoblastic leukemia (ALL) on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/acute-lymphoblastic-leukemia-all.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/acute-lymphoblastic-leukemia-all.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>. <br /><br />Learn more about <a href="https://together.stjude.org/en-us/treatment-tests-procedures/long-term-effects.html" target="_blank" rel="noreferrer noopener">late effects</a> of treatment and <a href="https://together.stjude.org/en-us/conditions/cancers/life-after-cancer.html" target="_blank" rel="noreferrer noopener">survivorship</a> on <i>Together by St. Jude</i>™. <br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></itunes:summary><itunes:duration>2048</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/894b3d094396559ad48a88590557a618.jpg"/><itunes:season>3</itunes:season><itunes:episode>13</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Considering a Clinical Trial for a Child: A Caregiver's View</title><link>https://www.spreaker.com/episode/considering-a-clinical-trial-for-a-child-a-caregiver-s-view--72056442</link><description><![CDATA[When a child is facing a serious illness, being asked to consider a clinical trial can feel overwhelming. This episode of Caregivers SHARE continues our 2-part series on clinical trials by focusing on the real questions, emotions, and decisions caregivers face. <br /><br />Carina Richardson shares her family’s experience enrolling her son in a clinical trial. Seth Karol, MD, shares insights from a doctor’s perspective, on how he would approach a clinical trial as a caregiver. Clay Culp, LCSW, guides the conversation with thoughtful questions and key points. Together, they talk about how clinical trials may differ from standard treatment, what the consent process looks like, and why clear, ongoing communication is essential. <br /><br />This episode explores: <br /><ul><li>How clinical trials can change over time and differ for each child</li><li>What worries caregivers often have and how care teams can help</li><li>How child life specialists and other support services can help families</li><li>Why asking questions and speaking up matters </li></ul>This episode offers reassurance, perspective, and empowerment for caregivers making decisions about their child’s care. <br /><br />A special thank you to Clay Culp, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> manager at St. Jude; Seth Karol, MD, associate faculty member at St. Jude who specializes in <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma.html" target="_blank" rel="noreferrer noopener">leukemia and lymphoma</a>; and parent Carina Richardson. <br /> <br />This episode was recorded on March 5, 2026. <br /><br />For more background, listen to the previous episode: <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-3/what-is-a-clinical-trial.html" target="_blank" rel="noreferrer noopener">“What Is a Clinical Trial?”</a> <br />Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on <a href="https://together.stjude.org/en-us/conditions/cancers/medulloblastoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a> and <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/medulloblastoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a>.  <br /> <br />Learn more about clinical trials on <a href="https://together.stjude.org/en-us/treatment-tests-procedures/clinical-trials/what-are-clinical-trials.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a> and <a href="https://www.stjude.org/care-treatment/clinical-trials.html#f-sj_trialstatus=Recruiting" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment.</a>  <br /> <br /><i>The quote that Carina and Clay reference is, “The best laid schemes of mice and men go oft awry, and leave us nothing but grief and pain for promised joy,” written by poet Robert Burns in his poem “To a Mouse” in 1785. </i><br /><i> </i><br /><i>This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child. </i><br /><i> </i><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/72056442</guid><pubDate>Thu, 21 May 2026 05:00:04 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/72056442/11231138596_caregivers_share_s3e12_clinical_trials_2.mp3" length="120192000" type="audio/mpeg"/><podcast:transcript url="https://transcription.spreaker.com/starship/c96ae53b-d7e3-4ae4-b07f-5f25b64923a0/c96ae53b-d7e3-4ae4-b07f-5f25b64923a0.srt" type="application/x-subrip" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/c96ae53b-d7e3-4ae4-b07f-5f25b64923a0/c96ae53b-d7e3-4ae4-b07f-5f25b64923a0.txt" type="text/plain" language="en"/><podcast:transcript url="https://transcription.spreaker.com/starship/c96ae53b-d7e3-4ae4-b07f-5f25b64923a0/c96ae53b-d7e3-4ae4-b07f-5f25b64923a0.vtt" type="text/vtt" language="en"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When a child is facing a serious illness, being asked to consider a clinical trial can feel overwhelming. This episode of Caregivers SHARE continues our 2-part series on clinical trials by focusing on the real questions, emotions, and decisions...</itunes:subtitle><itunes:summary><![CDATA[When a child is facing a serious illness, being asked to consider a clinical trial can feel overwhelming. This episode of Caregivers SHARE continues our 2-part series on clinical trials by focusing on the real questions, emotions, and decisions caregivers face. <br /><br />Carina Richardson shares her family’s experience enrolling her son in a clinical trial. Seth Karol, MD, shares insights from a doctor’s perspective, on how he would approach a clinical trial as a caregiver. Clay Culp, LCSW, guides the conversation with thoughtful questions and key points. Together, they talk about how clinical trials may differ from standard treatment, what the consent process looks like, and why clear, ongoing communication is essential. <br /><br />This episode explores: <br /><ul><li>How clinical trials can change over time and differ for each child</li><li>What worries caregivers often have and how care teams can help</li><li>How child life specialists and other support services can help families</li><li>Why asking questions and speaking up matters </li></ul>This episode offers reassurance, perspective, and empowerment for caregivers making decisions about their child’s care. <br /><br />A special thank you to Clay Culp, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> manager at St. Jude; Seth Karol, MD, associate faculty member at St. Jude who specializes in <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma.html" target="_blank" rel="noreferrer noopener">leukemia and lymphoma</a>; and parent Carina Richardson. <br /> <br />This episode was recorded on March 5, 2026. <br /><br />For more background, listen to the previous episode: <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-3/what-is-a-clinical-trial.html" target="_blank" rel="noreferrer noopener">“What Is a Clinical Trial?”</a> <br />Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on <a href="https://together.stjude.org/en-us/conditions/cancers/medulloblastoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a> and <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/medulloblastoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a>.  <br /> <br />Learn more about clinical trials on <a href="https://together.stjude.org/en-us/treatment-tests-procedures/clinical-trials/what-are-clinical-trials.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a> and <a href="https://www.stjude.org/care-treatment/clinical-trials.html#f-sj_trialstatus=Recruiting" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment.</a>  <br /> <br /><i>The quote that Carina and Clay reference is, “The best laid schemes of mice and men go oft awry, and leave us nothing but grief and pain for promised joy,” written by poet Robert Burns in his poem “To a Mouse” in 1785. </i><br /><i> </i><br /><i>This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child. </i><br /><i> </i><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></itunes:summary><itunes:duration>3005</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/3ddd4ab71e8105117ced8e7458ac2139.jpg"/><itunes:season>3</itunes:season><itunes:episode>12</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>What is a Clinical Trial?</title><link>https://www.spreaker.com/episode/what-is-a-clinical-trial--71816562</link><description><![CDATA[Clinical trials are research studies that look at ways to improve care for serious illnesses. For many families, the terms “clinical trial” or “clinical research” may be unfamiliar or overwhelming. In this episode of Caregivers SHARE, listeners will learn what clinical trials are, how they work, and how they differ from standard medical care.<br /><br />Host Clay Culp, LCSW, is joined by <a href="https://www.stjude.org/people/k/seth-karol.html" target="_blank" rel="noreferrer noopener">Seth Karol, MD</a>, and caregiver Carina Richardson for a clear conversation about what families need to know when considering a clinical trial. Seth explains the different types and phases of clinical trials, what families can expect during the process, and the safety measures in place to protect children who participate. Clay addresses the emotional aspects of enrolling a child in a trial. Carina asks the questions many parents have as they work to make informed decisions about their child’s care.<br /><br />A special thank you to Clay Culp, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> manager at St. Jude; Seth Karol, a St. Jude doctor who specializes in <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma.html" target="_blank" rel="noreferrer noopener">leukemia and lymphoma</a>; and parent Carina Richardson.<br /><br />This episode was recorded on March 5, 2026.<br /><br />Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on <a href="https://together.stjude.org/en-us/conditions/cancers/medulloblastoma.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a> and <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/medulloblastoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a>.<br /><br />Find additional information about clinical trials on <a href="https://together.stjude.org/en-us/treatment-tests-procedures/clinical-trials/what-are-clinical-trials.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a> and <a href="https://www.stjude.org/care-treatment/clinical-trials.html#f-sj_trialstatus=Recruiting" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment.</a><br /><br /><i>This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child.</i><br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/71816562</guid><pubDate>Thu, 07 May 2026 05:00:03 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/71816562/11231138596_caregivers_share_s3e11_clinical_trials_1.mp3" length="45593186" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Clinical trials are research studies that look at ways to improve care for serious illnesses. For many families, the terms “clinical trial” or “clinical research” may be unfamiliar or overwhelming. In this episode of Caregivers SHARE, listeners will...</itunes:subtitle><itunes:summary><![CDATA[Clinical trials are research studies that look at ways to improve care for serious illnesses. For many families, the terms “clinical trial” or “clinical research” may be unfamiliar or overwhelming. In this episode of Caregivers SHARE, listeners will learn what clinical trials are, how they work, and how they differ from standard medical care.<br /><br />Host Clay Culp, LCSW, is joined by <a href="https://www.stjude.org/people/k/seth-karol.html" target="_blank" rel="noreferrer noopener">Seth Karol, MD</a>, and caregiver Carina Richardson for a clear conversation about what families need to know when considering a clinical trial. Seth explains the different types and phases of clinical trials, what families can expect during the process, and the safety measures in place to protect children who participate. Clay addresses the emotional aspects of enrolling a child in a trial. Carina asks the questions many parents have as they work to make informed decisions about their child’s care.<br /><br />A special thank you to Clay Culp, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> manager at St. Jude; Seth Karol, a St. Jude doctor who specializes in <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma.html" target="_blank" rel="noreferrer noopener">leukemia and lymphoma</a>; and parent Carina Richardson.<br /><br />This episode was recorded on March 5, 2026.<br /><br />Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on <a href="https://together.stjude.org/en-us/conditions/cancers/medulloblastoma.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a> and <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/medulloblastoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a>.<br /><br />Find additional information about clinical trials on <a href="https://together.stjude.org/en-us/treatment-tests-procedures/clinical-trials/what-are-clinical-trials.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a> and <a href="https://www.stjude.org/care-treatment/clinical-trials.html#f-sj_trialstatus=Recruiting" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment.</a><br /><br /><i>This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child.</i><br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>1900</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/790de0bd697a13a5f7aa925cfb285240.jpg"/><itunes:season>3</itunes:season><itunes:episode>11</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Communicating with the Care Team During End-of-Life Care</title><link>https://www.spreaker.com/episode/communicating-with-the-care-team-during-end-of-life-care--71293172</link><description><![CDATA[When a child’s condition changes or they are nearing the end of life, caregivers face hard choices. It can help to focus on comfort, quality of life, and what matters most to the child.<br /><br />In this episode, Tekeima Townsend‑Billups talks with parents Tasha and Dean Ives about caring for their daughter, Sydney, in her final months of life. They describe how their advocacy changed as Sydney’s health declined. They share what “quality of life” meant for their family, how they talked honestly with their children, and how they made day‑to‑day decisions based on Sydney’s well-being and wishes.<br /><br />Mike McNeil shares guidance on communicating with the care team during this time. He explains shared decision‑making and how trust supports better end‑of‑life care. He encourages caregivers to name their hopes and worries and to ask for the help they need.<br /><br />A special thank you to our host Tekeima Townsend‑Billups, senior staff <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">chaplain</a> at St. Jude; our expert Mike McNeil, pediatric oncologist and <a href="https://www.stjude.org/research/departments/oncology/quality-of-life-and-palliative-care.html" target="_blank" rel="noreferrer noopener">palliative care</a> physician at St. Jude; and our guests Tasha and Dean Ives.<br /><br />This episode was recorded on December 5, 2025.<br /><br />Learn more about palliative care on <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/quality-of-life-and-palliative-care.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and<i> <a href="https://together.stjude.org/en-us/medical-care/palliative-care.html" target="_blank" rel="noreferrer noopener">Together by St. Jude</a></i>™.<br /><br />Listen to Tasha and Dean discuss <a href="https://www.spreaker.com/episode/episode-9-communicating-with-the-care-team-during-treatment--70627952" target="_blank" rel="noreferrer noopener">communicating with the care team during treatment</a>.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/71293172</guid><pubDate>Thu, 16 Apr 2026 05:00:06 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/71293172/9810186514_caregivers_share_podcast_s3_ep10_communicatingwcareteamatendoflife_final.mp3" length="113369280" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When a child’s condition changes or they are nearing the end of life, caregivers face hard choices. It can help to focus on comfort, quality of life, and what matters most to the child.

In this episode, Tekeima Townsend‑Billups talks with parents...</itunes:subtitle><itunes:summary><![CDATA[When a child’s condition changes or they are nearing the end of life, caregivers face hard choices. It can help to focus on comfort, quality of life, and what matters most to the child.<br /><br />In this episode, Tekeima Townsend‑Billups talks with parents Tasha and Dean Ives about caring for their daughter, Sydney, in her final months of life. They describe how their advocacy changed as Sydney’s health declined. They share what “quality of life” meant for their family, how they talked honestly with their children, and how they made day‑to‑day decisions based on Sydney’s well-being and wishes.<br /><br />Mike McNeil shares guidance on communicating with the care team during this time. He explains shared decision‑making and how trust supports better end‑of‑life care. He encourages caregivers to name their hopes and worries and to ask for the help they need.<br /><br />A special thank you to our host Tekeima Townsend‑Billups, senior staff <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">chaplain</a> at St. Jude; our expert Mike McNeil, pediatric oncologist and <a href="https://www.stjude.org/research/departments/oncology/quality-of-life-and-palliative-care.html" target="_blank" rel="noreferrer noopener">palliative care</a> physician at St. Jude; and our guests Tasha and Dean Ives.<br /><br />This episode was recorded on December 5, 2025.<br /><br />Learn more about palliative care on <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/quality-of-life-and-palliative-care.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and<i> <a href="https://together.stjude.org/en-us/medical-care/palliative-care.html" target="_blank" rel="noreferrer noopener">Together by St. Jude</a></i>™.<br /><br />Listen to Tasha and Dean discuss <a href="https://www.spreaker.com/episode/episode-9-communicating-with-the-care-team-during-treatment--70627952" target="_blank" rel="noreferrer noopener">communicating with the care team during treatment</a>.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>2835</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/096057421ae053c79d642cc25a9511c8.jpg"/><itunes:season>3</itunes:season><itunes:episode>10</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Communicating with the Care Team During Treatment</title><link>https://www.spreaker.com/episode/communicating-with-the-care-team-during-treatment--70627952</link><description><![CDATA[Communicating with the care team can feel overwhelming, especially when your child is going through a serious illness and you are facing big decisions. In this episode, Tekeima Townsend-Billups talks with caregivers Tasha and Dean Ives, as well as patient family-centered care expert Brittany Barnett, about how to ask questions and advocate for your child.<br /><br />Tekeima describes advocacy as a “sacred practice of love in action.” Advocacy moves caregivers to speak up during treatment. Tasha and Dean share how they learned how to advocate for their daughter, Sydney, during her treatment for astrocytoma.<br /><br />They explain what helped them find their voice, understand treatment options, and work with the medical team. They discuss balancing hope and reality, handling hard conversations, and trusting their instincts as parents. Brittany offers tips for joining in medical rounds, finding support, and making sure that your concerns are heard.<br /><br />A special thank you to our host, Tekeima Townsend-Billups, senior staff <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">chaplain</a> at St. Jude; our expert, Brittany Barnett, manager of the <a href="https://www.stjude.org/care-treatment/patient-families/pfcc.html" target="_blank" rel="noreferrer noopener">Patient Family-Centered Care Program</a> at St. Jude; and to our guests, Tasha and Dean Ives.<br /><br />This episode was recorded on November 5, 2025.Learn more about Sydney’s diagnosis of <a href="https://together.stjude.org/en-us/conditions/cancers/astrocytoma.html" target="_blank" rel="noreferrer noopener">astrocytoma</a> on the <i>Together by St. Jude</i>™ online resource. Learn about <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors.html" target="_blank" rel="noreferrer noopener">brain and spine tumor treatment</a> on St. Jude Care &amp; Treatment.<br /><br />Learn more about patient family-centered care and shared decision-making on the <a href="https://together.stjude.org/en-us/blog/article/engaging-patients-and-families-in-their-care-journey.html" target="_blank" rel="noreferrer noopener">Together Blog</a>.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/70627952</guid><pubDate>Thu, 19 Mar 2026 05:00:04 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/70627952/9886066718_caregivers_share_podcast_s3_ep9_communicatingwcareteamduringtreatment.mp3" length="177752640" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Communicating with the care team can feel overwhelming, especially when your child is going through a serious illness and you are facing big decisions. In this episode, Tekeima Townsend-Billups talks with caregivers Tasha and Dean Ives, as well as...</itunes:subtitle><itunes:summary><![CDATA[Communicating with the care team can feel overwhelming, especially when your child is going through a serious illness and you are facing big decisions. In this episode, Tekeima Townsend-Billups talks with caregivers Tasha and Dean Ives, as well as patient family-centered care expert Brittany Barnett, about how to ask questions and advocate for your child.<br /><br />Tekeima describes advocacy as a “sacred practice of love in action.” Advocacy moves caregivers to speak up during treatment. Tasha and Dean share how they learned how to advocate for their daughter, Sydney, during her treatment for astrocytoma.<br /><br />They explain what helped them find their voice, understand treatment options, and work with the medical team. They discuss balancing hope and reality, handling hard conversations, and trusting their instincts as parents. Brittany offers tips for joining in medical rounds, finding support, and making sure that your concerns are heard.<br /><br />A special thank you to our host, Tekeima Townsend-Billups, senior staff <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">chaplain</a> at St. Jude; our expert, Brittany Barnett, manager of the <a href="https://www.stjude.org/care-treatment/patient-families/pfcc.html" target="_blank" rel="noreferrer noopener">Patient Family-Centered Care Program</a> at St. Jude; and to our guests, Tasha and Dean Ives.<br /><br />This episode was recorded on November 5, 2025.Learn more about Sydney’s diagnosis of <a href="https://together.stjude.org/en-us/conditions/cancers/astrocytoma.html" target="_blank" rel="noreferrer noopener">astrocytoma</a> on the <i>Together by St. Jude</i>™ online resource. Learn about <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors.html" target="_blank" rel="noreferrer noopener">brain and spine tumor treatment</a> on St. Jude Care &amp; Treatment.<br /><br />Learn more about patient family-centered care and shared decision-making on the <a href="https://together.stjude.org/en-us/blog/article/engaging-patients-and-families-in-their-care-journey.html" target="_blank" rel="noreferrer noopener">Together Blog</a>.]]></itunes:summary><itunes:duration>4444</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/e4f65b1fccf1a888aabd17e8f5a32871.jpg"/><itunes:season>3</itunes:season><itunes:episode>9</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Relationships and Social Life During Treatment</title><link>https://www.spreaker.com/episode/relationships-and-social-life-during-treatment--70086748</link><description><![CDATA[A healthy social life and relationships are important when going through cancer or another serious illness. In this episode, Clay Culp and Elyse Heidelberg talk with caregiver Polly Fulford and her college-aged son Taze about friendships and dating while you have cancer.<br /><br />Polly and Taze share how he balanced spending time with friends and his girlfriend while listening to his care team’s advice. Elyse explores ways to choose which social events to attend, how to ask the medical team questions, and what to share on social media. Clay guides the conversation with questions about friendships, hardships, and the importance of support.<br /><br />A special thank you to our host, Clay Culp, senior social worker at St. Jude; our expert, Elyse Heidelberg, clinical psychologist at St. Jude; and to our guests, Polly Fulford and Taze Fulford.<br /><br />This episode was recorded on January 8, 2026.<br /><br />Learn more about Taze’s diagnosis of Hodgkin lymphoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>.For information on nurturing your relationship with your partner as a child goes through treatment, listen to <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-2/how-to-keep-your-relationship-strong.html" target="_blank" rel="noreferrer noopener">“How to Keep Your Relationship Strong.”</a><br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/70086748</guid><pubDate>Wed, 18 Feb 2026 06:00:04 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/70086748/cs_s3e8_dating_relationships_final.mp3" length="115627200" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>A healthy social life and relationships are important when going through cancer or another serious illness. In this episode, Clay Culp and Elyse Heidelberg talk with caregiver Polly Fulford and her college-aged son Taze about friendships and dating...</itunes:subtitle><itunes:summary><![CDATA[A healthy social life and relationships are important when going through cancer or another serious illness. In this episode, Clay Culp and Elyse Heidelberg talk with caregiver Polly Fulford and her college-aged son Taze about friendships and dating while you have cancer.<br /><br />Polly and Taze share how he balanced spending time with friends and his girlfriend while listening to his care team’s advice. Elyse explores ways to choose which social events to attend, how to ask the medical team questions, and what to share on social media. Clay guides the conversation with questions about friendships, hardships, and the importance of support.<br /><br />A special thank you to our host, Clay Culp, senior social worker at St. Jude; our expert, Elyse Heidelberg, clinical psychologist at St. Jude; and to our guests, Polly Fulford and Taze Fulford.<br /><br />This episode was recorded on January 8, 2026.<br /><br />Learn more about Taze’s diagnosis of Hodgkin lymphoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>.For information on nurturing your relationship with your partner as a child goes through treatment, listen to <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-2/how-to-keep-your-relationship-strong.html" target="_blank" rel="noreferrer noopener">“How to Keep Your Relationship Strong.”</a><br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></itunes:summary><itunes:duration>2891</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/7ea251a834539b541df164bb9d0724e2.jpg"/><itunes:season>3</itunes:season><itunes:episode>8</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Self-Compassion and Seeking Support</title><link>https://www.spreaker.com/episode/self-compassion-and-seeking-support--69402854</link><description><![CDATA[When a child is diagnosed with cancer or another serious illness, caregivers focus so much on their child’s needs that they may forget to care for themselves. Practicing self-compassion and seeking support are essential parts of the journey.<br /><br />In this episode, host Erica Sirrine talks with parent Stacie Eirich and social worker Anna Shelley Johnson about the challenges caregivers face and the importance of showing kindness to oneself.<br />Stacie shares her family’s story, reflecting on the small acts of self-care and creativity that helped her cope while supporting her daughter Sadie through brain tumor treatment. Anna offers insights and practical tips for caregivers to nurture their own wellbeing and build resilience. The episode closes with<br />Stacie reading her original poem that celebrates hope, love, and courage.<br /><br />A special thank you to our host, Erica Sirrine, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> at St. Jude; our expert Anna Shelley Johnson, social worker at St. Jude; and our parent guest Stacie Eirich.<br /><br />This episode was recorded on September 12, 2025.Learn more about Sadie’s diagnosis of medulloblastoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/medulloblastoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/medulloblastoma.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a>.<br /><br />Listen to the Caregivers SHARE episode on <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-2/how-to-support-a-sick-childs-siblings.html" target="_blank" rel="noreferrer noopener">Supporting Siblings</a> for more insights into caring for the whole family while a child is in treatment.<br /><i></i><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/69402854</guid><pubDate>Thu, 15 Jan 2026 06:00:09 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/69402854/9714544533_caregivers_share_s3e7_seeking_support_selfcompassion_2025_1.mp3" length="83928960" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When a child is diagnosed with cancer or another serious illness, caregivers focus so much on their child’s needs that they may forget to care for themselves. Practicing self-compassion and seeking support are essential parts of the journey.

In this...</itunes:subtitle><itunes:summary><![CDATA[When a child is diagnosed with cancer or another serious illness, caregivers focus so much on their child’s needs that they may forget to care for themselves. Practicing self-compassion and seeking support are essential parts of the journey.<br /><br />In this episode, host Erica Sirrine talks with parent Stacie Eirich and social worker Anna Shelley Johnson about the challenges caregivers face and the importance of showing kindness to oneself.<br />Stacie shares her family’s story, reflecting on the small acts of self-care and creativity that helped her cope while supporting her daughter Sadie through brain tumor treatment. Anna offers insights and practical tips for caregivers to nurture their own wellbeing and build resilience. The episode closes with<br />Stacie reading her original poem that celebrates hope, love, and courage.<br /><br />A special thank you to our host, Erica Sirrine, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> at St. Jude; our expert Anna Shelley Johnson, social worker at St. Jude; and our parent guest Stacie Eirich.<br /><br />This episode was recorded on September 12, 2025.Learn more about Sadie’s diagnosis of medulloblastoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/medulloblastoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/medulloblastoma.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a>.<br /><br />Listen to the Caregivers SHARE episode on <a href="https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast/caregivers-share-season-2/how-to-support-a-sick-childs-siblings.html" target="_blank" rel="noreferrer noopener">Supporting Siblings</a> for more insights into caring for the whole family while a child is in treatment.<br /><i></i><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>2099</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/2d104f4137fd81b1dd18d45988767023.jpg"/><itunes:season>3</itunes:season><itunes:episode>7</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Glimpses of Light in the Darkness</title><link>https://www.spreaker.com/episode/glimpses-of-light-in-the-darkness--69118887</link><description><![CDATA[When a child is diagnosed with a serious illness, families are faced with emotions, daily changes, and the challenge of finding light in the midst of darkness. In this episode, subject matter expert Erica Sirrine talks with Shane and Ashley Timmons about their daughter Ophie’s journey with a brain tumor and the realities of caregiving through uncertainty. <br /><br />Shane and Ashley share what it was like to navigate the early days of diagnosis, the ongoing medical complexities, and the daily process of holding both grief and hope. They discuss how their family learned to recognize and celebrate small victories, the importance of community support, and the intentional steps they take to seek out moments of joy—even on the hardest days. Erica offers insights into coping with loss, balancing family and sibling needs, and finding light through connection and vulnerability.  <br /><br />A special thank you to our host and expert, Erica Sirrine, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> at St. Jude, and to our guests, parents Shane and Ashley Timmons. <br /><br />This episode was recorded September 23, 2025.  <br /><br />Learn more about Ophie’s diagnosis of anaplastic PFA ependymoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/ependymoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/ependymoma.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a>. <br /><br />Learn more about <a href="https://together.stjude.org/en-us/treatment-tests-procedures/medicines-list/bevacizumab.html" target="_blank" rel="noreferrer noopener">Avastin®</a>, <a href="https://together.stjude.org/en-us/medical-care/clinical-nutrition/feeding-tubes-for-nutrition-support.html" target="_blank" rel="noreferrer noopener">feeding tubes</a>, and <a href="https://together.stjude.org/en-us/treatment-tests-procedures/treatments/radiation-therapy.html" target="_blank" rel="noreferrer noopener">radiation therapy</a> on Together by St. Jude™. <br />St. Jude does not endorse any branded product or organization mentioned in this podcast. ]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/69118887</guid><pubDate>Thu, 18 Dec 2025 15:05:38 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/69118887/9553965884_caregivers_share_s3e6_claiming_moments_of_joy_1.mp3" length="88810560" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When a child is diagnosed with a serious illness, families are faced with emotions, daily changes, and the challenge of finding light in the midst of darkness. In this episode, subject matter expert Erica Sirrine talks with Shane and Ashley Timmons...</itunes:subtitle><itunes:summary><![CDATA[When a child is diagnosed with a serious illness, families are faced with emotions, daily changes, and the challenge of finding light in the midst of darkness. In this episode, subject matter expert Erica Sirrine talks with Shane and Ashley Timmons about their daughter Ophie’s journey with a brain tumor and the realities of caregiving through uncertainty. <br /><br />Shane and Ashley share what it was like to navigate the early days of diagnosis, the ongoing medical complexities, and the daily process of holding both grief and hope. They discuss how their family learned to recognize and celebrate small victories, the importance of community support, and the intentional steps they take to seek out moments of joy—even on the hardest days. Erica offers insights into coping with loss, balancing family and sibling needs, and finding light through connection and vulnerability.  <br /><br />A special thank you to our host and expert, Erica Sirrine, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> at St. Jude, and to our guests, parents Shane and Ashley Timmons. <br /><br />This episode was recorded September 23, 2025.  <br /><br />Learn more about Ophie’s diagnosis of anaplastic PFA ependymoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/brain-tumors/ependymoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/ependymoma.html" target="_blank" rel="noreferrer noopener">Together by St. Jude™</a>. <br /><br />Learn more about <a href="https://together.stjude.org/en-us/treatment-tests-procedures/medicines-list/bevacizumab.html" target="_blank" rel="noreferrer noopener">Avastin®</a>, <a href="https://together.stjude.org/en-us/medical-care/clinical-nutrition/feeding-tubes-for-nutrition-support.html" target="_blank" rel="noreferrer noopener">feeding tubes</a>, and <a href="https://together.stjude.org/en-us/treatment-tests-procedures/treatments/radiation-therapy.html" target="_blank" rel="noreferrer noopener">radiation therapy</a> on Together by St. Jude™. <br />St. Jude does not endorse any branded product or organization mentioned in this podcast. ]]></itunes:summary><itunes:duration>2221</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/08100d3640a7e383eda55f9d46f8f3f3.jpg"/><itunes:season>3</itunes:season><itunes:episode>6</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Emotional Wellbeing</title><link>https://www.spreaker.com/episode/emotional-wellbeing--68608801</link><description><![CDATA[Emotional wellbeing involves being present, having courage, and focusing on what’s important—even in tough times. But emotional health may look different when a child has a serious illness, especially if emotional health needs were there before diagnosis. <br /> <br />In this episode, Clay Culp and Kendra Parris talk with caregiver Patricia LeBlanc and her daughter Sophie about emotional health while Sophie was going through treatment. Sophie was diagnosed with Ewing sarcoma at age 12. Kendra talks about the importance of taking care of yourself before you can take care of your child. Patricia discusses how her vision for Sophie’s life had to shift and explains how they embraced times to play and have fun together. Sophie talks about how her confidence grew and how she learned to manage her anxiety. The group explores the importance of sharing your burdens and getting support.  <br /> <br />A special thank you to our host, Clay Culp, senior <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social worker</a> at St. Jude; our expert Kendra Parris, associate member of the St. Jude faculty in <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/psychology-clinic.html" target="_blank" rel="noreferrer noopener">Psychology</a> and Biobehavioral Sciences; and Patricia and Sophie LeBlanc. <br /> <br />This episode was recorded August 1, 2025. <br /> <br />Learn more about Sophie’s diagnosis of Ewing sarcoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/solid-tumors/ewing-sarcoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/ewing-sarcoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>. <br /> <br />Learn more about <a href="https://together.stjude.org/en-us/medical-care/psychology.html" target="_blank" rel="noreferrer noopener">Psychology and Mental Health Services</a> and <a href="https://together.stjude.org/en-us/treatment-tests-procedures/procedures/negative-pressure-wound-therapy.html" target="_blank" rel="noreferrer noopener">wound vac therapy</a> on <i>Together by St. Jude</i>™. <br /><i> </i><br /><i>A halo brace (or halo vest), mentioned in this episode, is a brace used to keep the spine and neck from moving and protect them after surgery.  </i><br /><br /><i>If you’re feeling hopeless, contact the 988 Suicide &amp; Crisis Lifeline by calling or texting 988, or chatting online for support.  </i><br /><i> </i><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/68608801</guid><pubDate>Thu, 20 Nov 2025 06:00:12 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/68608801/9553965543_caregivers_share_s3e5_emotional_wellbeing_final.mp3" length="84451200" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Emotional wellbeing involves being present, having courage, and focusing on what’s important—even in tough times. But emotional health may look different when a child has a serious illness, especially if emotional health needs were there before...</itunes:subtitle><itunes:summary><![CDATA[Emotional wellbeing involves being present, having courage, and focusing on what’s important—even in tough times. But emotional health may look different when a child has a serious illness, especially if emotional health needs were there before diagnosis. <br /> <br />In this episode, Clay Culp and Kendra Parris talk with caregiver Patricia LeBlanc and her daughter Sophie about emotional health while Sophie was going through treatment. Sophie was diagnosed with Ewing sarcoma at age 12. Kendra talks about the importance of taking care of yourself before you can take care of your child. Patricia discusses how her vision for Sophie’s life had to shift and explains how they embraced times to play and have fun together. Sophie talks about how her confidence grew and how she learned to manage her anxiety. The group explores the importance of sharing your burdens and getting support.  <br /> <br />A special thank you to our host, Clay Culp, senior <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social worker</a> at St. Jude; our expert Kendra Parris, associate member of the St. Jude faculty in <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/psychology-clinic.html" target="_blank" rel="noreferrer noopener">Psychology</a> and Biobehavioral Sciences; and Patricia and Sophie LeBlanc. <br /> <br />This episode was recorded August 1, 2025. <br /> <br />Learn more about Sophie’s diagnosis of Ewing sarcoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/solid-tumors/ewing-sarcoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/ewing-sarcoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>. <br /> <br />Learn more about <a href="https://together.stjude.org/en-us/medical-care/psychology.html" target="_blank" rel="noreferrer noopener">Psychology and Mental Health Services</a> and <a href="https://together.stjude.org/en-us/treatment-tests-procedures/procedures/negative-pressure-wound-therapy.html" target="_blank" rel="noreferrer noopener">wound vac therapy</a> on <i>Together by St. Jude</i>™. <br /><i> </i><br /><i>A halo brace (or halo vest), mentioned in this episode, is a brace used to keep the spine and neck from moving and protect them after surgery.  </i><br /><br /><i>If you’re feeling hopeless, contact the 988 Suicide &amp; Crisis Lifeline by calling or texting 988, or chatting online for support.  </i><br /><i> </i><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast. </i>]]></itunes:summary><itunes:duration>2112</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/dff613754cf48115d59c56e0d46e402c.jpg"/><itunes:season>3</itunes:season><itunes:episode>5</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Fertility Preservation Decisions</title><link>https://www.spreaker.com/episode/fertility-preservation-decisions--68052677</link><description><![CDATA[Some treatments for serious illness can affect a patient’s ability to have biological children later in life, but there are ways to protect fertility. When a child is seriously ill, fertility preservation is a tough but important topic to address.<br /><br />In this episode, Mark Brown and Kari Bjornard talk with Evan Moore about fertility preservation when he was going through treatment. An elite NCAA track and cross-country athlete, Evan was diagnosed with Hodgkin lymphoma in his early 20s. Evan discusses the honest conversations he had with his mom and fiancée about preserving fertility. Kari offers insights into the timing, steps to take, talking to your care team, and other options for having a family. The group talks about staying positive and being with the people you love.<br /><br />A special thank you to our host, Mark Brown, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care Services</a> at St. Jude; our expert Kari Bjornard, director of the <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/fertility-clinic.html" target="_blank" rel="noreferrer noopener">Fertility Program</a> and assistant member of the Oncology faculty at St. Jude; and patient Evan Moore.<br /><br />This episode was recorded August 7, 2025. Stay tuned for a forthcoming episode on female fertility preservation decisions.<br /><br />Learn more about Evan’s diagnosis of Hodgkin lymphoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>.<br /><br />Learn more about <a href="https://together.stjude.org/en-us/teensand20s/how-treatments-may-affect-you/understanding-fertility-guide-for-males.html" target="_blank" rel="noreferrer noopener">male fertility</a> and <a href="https://together.stjude.org/en-us/teensand20s/how-treatments-may-affect-you/understanding-fertility-guide-for-females.html" target="_blank" rel="noreferrer noopener">female fertility</a> on <i>Together by St. Jude</i>™.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/68052677</guid><pubDate>Thu, 16 Oct 2025 05:00:10 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/68052677/s3e4_fertility_preservation_decisions_final.mp3" length="92702400" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Some treatments for serious illness can affect a patient’s ability to have biological children later in life, but there are ways to protect fertility. When a child is seriously ill, fertility preservation is a tough but important topic to address.

In...</itunes:subtitle><itunes:summary><![CDATA[Some treatments for serious illness can affect a patient’s ability to have biological children later in life, but there are ways to protect fertility. When a child is seriously ill, fertility preservation is a tough but important topic to address.<br /><br />In this episode, Mark Brown and Kari Bjornard talk with Evan Moore about fertility preservation when he was going through treatment. An elite NCAA track and cross-country athlete, Evan was diagnosed with Hodgkin lymphoma in his early 20s. Evan discusses the honest conversations he had with his mom and fiancée about preserving fertility. Kari offers insights into the timing, steps to take, talking to your care team, and other options for having a family. The group talks about staying positive and being with the people you love.<br /><br />A special thank you to our host, Mark Brown, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care Services</a> at St. Jude; our expert Kari Bjornard, director of the <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/fertility-clinic.html" target="_blank" rel="noreferrer noopener">Fertility Program</a> and assistant member of the Oncology faculty at St. Jude; and patient Evan Moore.<br /><br />This episode was recorded August 7, 2025. Stay tuned for a forthcoming episode on female fertility preservation decisions.<br /><br />Learn more about Evan’s diagnosis of Hodgkin lymphoma on <a href="https://www.stjude.org/care-treatment/treatment/childhood-cancer/leukemia-lymphoma/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a> and <a href="https://together.stjude.org/en-us/conditions/cancers/hodgkin-lymphoma.html" target="_blank" rel="noreferrer noopener"><i>Together by St. Jude</i>™</a>.<br /><br />Learn more about <a href="https://together.stjude.org/en-us/teensand20s/how-treatments-may-affect-you/understanding-fertility-guide-for-males.html" target="_blank" rel="noreferrer noopener">male fertility</a> and <a href="https://together.stjude.org/en-us/teensand20s/how-treatments-may-affect-you/understanding-fertility-guide-for-females.html" target="_blank" rel="noreferrer noopener">female fertility</a> on <i>Together by St. Jude</i>™.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>2318</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/d0287d349e7f069829b9013619351510.jpg"/><itunes:season>3</itunes:season><itunes:episode>4</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Understanding Sickle Cell Disease</title><link>https://www.spreaker.com/episode/understanding-sickle-cell-disease--67677729</link><description><![CDATA[Sickle cell disease is a blood disorder that affects patients physically, emotionally, and socially. Even though sickle cell research and treatment have improved over the last several years, many are still learning about how this condition impacts the body and daily life.<br /><br />In this episode, parents Audrey Davis and Quenton Mullins talk with Tekeima Townsend-Billups and Jerlym Porter about going through sickle cell disease with their daughters Courtney and Nia. They discuss the invisible and unpredictable nature of the disease, dealing with pain crises, the importance of therapy, and advocating for their children.<br /><br />A special thank you our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Jerlym Porter, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and parents Audrey Davis and Quenton Mullins.<br /><br />Learn more about Courtney and Nia’s diagnosis of <a href="https://together.stjude.org/en-us/conditions/blood-disorders/sickle-cell-disease.html" target="_blank" rel="noreferrer noopener">sickle cell disease</a> and the <a href="https://together.stjude.org/en-us/emotional-support-daily-life/transition-to-adult-health-care.html" target="_blank" rel="noreferrer noopener">transition to adult health care</a> on <i>Together by St. Jude</i>™.<br /><br />The statistics that Quenton mentions on sickle cell disease in the U.S. can be found on <a href="https://www.cdc.gov/sickle-cell/data/index.html" target="_blank" rel="noreferrer noopener">the CDC’s website</a>.<br /><br />Discover more insights into <a href="https://together.stjude.org/en-us/blog/article/asking-questions-helps-family-manage-sickle-cell-disease.html" target="_blank" rel="noreferrer noopener">Nia’s journey</a> on the <a href="https://together.stjude.org/en-us/blog.html" target="_blank" rel="noreferrer noopener"><i>Together</i> blog</a>.<br /><br />This episode was recorded May 15, 2025.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/67677729</guid><pubDate>Thu, 18 Sep 2025 05:00:10 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/67677729/s3e3_sickle_cell_final.mp3" length="107800320" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Sickle cell disease is a blood disorder that affects patients physically, emotionally, and socially. Even though sickle cell research and treatment have improved over the last several years, many are still learning about how this condition impacts the...</itunes:subtitle><itunes:summary><![CDATA[Sickle cell disease is a blood disorder that affects patients physically, emotionally, and socially. Even though sickle cell research and treatment have improved over the last several years, many are still learning about how this condition impacts the body and daily life.<br /><br />In this episode, parents Audrey Davis and Quenton Mullins talk with Tekeima Townsend-Billups and Jerlym Porter about going through sickle cell disease with their daughters Courtney and Nia. They discuss the invisible and unpredictable nature of the disease, dealing with pain crises, the importance of therapy, and advocating for their children.<br /><br />A special thank you our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Jerlym Porter, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and parents Audrey Davis and Quenton Mullins.<br /><br />Learn more about Courtney and Nia’s diagnosis of <a href="https://together.stjude.org/en-us/conditions/blood-disorders/sickle-cell-disease.html" target="_blank" rel="noreferrer noopener">sickle cell disease</a> and the <a href="https://together.stjude.org/en-us/emotional-support-daily-life/transition-to-adult-health-care.html" target="_blank" rel="noreferrer noopener">transition to adult health care</a> on <i>Together by St. Jude</i>™.<br /><br />The statistics that Quenton mentions on sickle cell disease in the U.S. can be found on <a href="https://www.cdc.gov/sickle-cell/data/index.html" target="_blank" rel="noreferrer noopener">the CDC’s website</a>.<br /><br />Discover more insights into <a href="https://together.stjude.org/en-us/blog/article/asking-questions-helps-family-manage-sickle-cell-disease.html" target="_blank" rel="noreferrer noopener">Nia’s journey</a> on the <a href="https://together.stjude.org/en-us/blog.html" target="_blank" rel="noreferrer noopener"><i>Together</i> blog</a>.<br /><br />This episode was recorded May 15, 2025.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>2696</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/2fb4bb4dab213f477e8ade77c0c8f1c7.jpg"/><itunes:season>3</itunes:season><itunes:episode>3</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>The Importance of Sleep</title><link>https://www.spreaker.com/episode/the-importance-of-sleep--67370227</link><description><![CDATA[Sleep can be hard for both the patient and family when a child is sick. <a href="https://together.stjude.org/en-us/treatment-tests-procedures/symptoms-side-effects/sleep-disorders.html" target="_blank" rel="noreferrer noopener">Sleep problems</a> are common in children with serious illnesses. Trouble sleeping could be caused by treatment, medicines, or the effects of illness. But getting sleep is very important for healing and recovery.<br /><br />In this episode, Erica Sirrine and Valerie Crabtree talk with parents Andy and Caitlin about how they managed to get sleep when their son Max (now age 5) was going through treatment for Langerhans cell histiocytosis (LCH). Andy and Caitlin explain how they reached a compromise on sleeping arrangements at home. Valerie emphasizes that there is no playbook to figuring out sleep for your family. The group talks about the pressure to do things perfectly, and the joy of a simple nighttime song. Listeners will hear expert advice on routine, screen time, using melatonin as sleep aid, and co-sleeping.<br /><br />A special thank you to our host, Erica Sirrine, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> at St. Jude; our expert Valerie Crabtree, vice president of Psychosocial Services at St. Jude and a pediatric <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/psychology-clinic.html" target="_blank" rel="noreferrer noopener">psychologist</a> who specializes in sleep; and parents Andy and Caitlin.<br /><br />This episode was recorded April 24, 2025.<br /><br />Learn more about Max’s diagnosis of <a href="https://www.stjude.org/care-treatment/treatment/immune-disorders/histiocytosis/langerhans-cell-histiocytosis.html" target="_blank" rel="noreferrer noopener">Langerhans cell histiocytosis (LCH)</a> on <a href="https://www.stjude.org/care-treatment.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a>.<br /><br />Read about one patient’s <a href="https://together.stjude.org/en-us/blog/article/from-exhaustion-to-empowerment-a-sleep-success-story.htmlt.html" target="_blank" rel="noreferrer noopener">sleep success story</a> on the <a href="https://together.stjude.org/en-us/blog.html" target="_blank" rel="noreferrer noopener">Together blog</a>.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/67370227</guid><pubDate>Thu, 21 Aug 2025 05:00:11 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/67370227/s3e2_sleep_final.mp3" length="84460800" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Sleep can be hard for both the patient and family when a child is sick. https://together.stjude.org/en-us/treatment-tests-procedures/symptoms-side-effects/sleep-disorders.html are common in children with serious illnesses. Trouble sleeping could be...</itunes:subtitle><itunes:summary><![CDATA[Sleep can be hard for both the patient and family when a child is sick. <a href="https://together.stjude.org/en-us/treatment-tests-procedures/symptoms-side-effects/sleep-disorders.html" target="_blank" rel="noreferrer noopener">Sleep problems</a> are common in children with serious illnesses. Trouble sleeping could be caused by treatment, medicines, or the effects of illness. But getting sleep is very important for healing and recovery.<br /><br />In this episode, Erica Sirrine and Valerie Crabtree talk with parents Andy and Caitlin about how they managed to get sleep when their son Max (now age 5) was going through treatment for Langerhans cell histiocytosis (LCH). Andy and Caitlin explain how they reached a compromise on sleeping arrangements at home. Valerie emphasizes that there is no playbook to figuring out sleep for your family. The group talks about the pressure to do things perfectly, and the joy of a simple nighttime song. Listeners will hear expert advice on routine, screen time, using melatonin as sleep aid, and co-sleeping.<br /><br />A special thank you to our host, Erica Sirrine, director of <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> at St. Jude; our expert Valerie Crabtree, vice president of Psychosocial Services at St. Jude and a pediatric <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/psychology-clinic.html" target="_blank" rel="noreferrer noopener">psychologist</a> who specializes in sleep; and parents Andy and Caitlin.<br /><br />This episode was recorded April 24, 2025.<br /><br />Learn more about Max’s diagnosis of <a href="https://www.stjude.org/care-treatment/treatment/immune-disorders/histiocytosis/langerhans-cell-histiocytosis.html" target="_blank" rel="noreferrer noopener">Langerhans cell histiocytosis (LCH)</a> on <a href="https://www.stjude.org/care-treatment.html" target="_blank" rel="noreferrer noopener">St. Jude Care &amp; Treatment</a>.<br /><br />Read about one patient’s <a href="https://together.stjude.org/en-us/blog/article/from-exhaustion-to-empowerment-a-sleep-success-story.htmlt.html" target="_blank" rel="noreferrer noopener">sleep success story</a> on the <a href="https://together.stjude.org/en-us/blog.html" target="_blank" rel="noreferrer noopener">Together blog</a>.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>2112</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/1d5a8535a7117d57a25566ac9c90a14f.jpg"/><itunes:season>3</itunes:season><itunes:episode>2</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>What Resilience Means</title><link>https://www.spreaker.com/episode/what-resilience-means--66974232</link><description><![CDATA[What does resilience mean when a child is sick? Clay Culp, Janet Sellers, and parent Sara Lohse talk about resilience, or the ability to bounce back, when a child has a serious illness. Sara says “resilient” is the last thing she felt as her family navigated her daughter Madi’s cancer diagnosis and treatment. She shares one of the hardest moments their family experienced. The group talks about how resilience can mean acceptance and taking the next step.<br /><br />A special thank you to our host Clay Culp, senior <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social worker</a> at St. Jude; Janet Sellers, manager of the St. Jude Staff Resilience Center; and parent Sara Lohse.<br /><br />Learn more about Madi’s diagnosis of <a href="https://together.stjude.org/en-us/conditions/cancers/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">acute myeloid leukemia (AML)</a> and <a href="https://together.stjude.org/en-us/emotional-support-daily-life/parents.html" target="_blank" rel="noreferrer noopener">emotional support and daily life</a> on Together by St. Jude™.<br /><br />This episode was recorded April 24, 2025.The book that Sara references in the episode is <i>It’s Not Supposed to Be This Way</i> by Lysa TerKeurst.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/66974232</guid><pubDate>Thu, 17 Jul 2025 05:00:10 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/66974232/s3e1_resilience_final.mp3" length="98695680" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>What does resilience mean when a child is sick? Clay Culp, Janet Sellers, and parent Sara Lohse talk about resilience, or the ability to bounce back, when a child has a serious illness. Sara says “resilient” is the last thing she felt as her family...</itunes:subtitle><itunes:summary><![CDATA[What does resilience mean when a child is sick? Clay Culp, Janet Sellers, and parent Sara Lohse talk about resilience, or the ability to bounce back, when a child has a serious illness. Sara says “resilient” is the last thing she felt as her family navigated her daughter Madi’s cancer diagnosis and treatment. She shares one of the hardest moments their family experienced. The group talks about how resilience can mean acceptance and taking the next step.<br /><br />A special thank you to our host Clay Culp, senior <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social worker</a> at St. Jude; Janet Sellers, manager of the St. Jude Staff Resilience Center; and parent Sara Lohse.<br /><br />Learn more about Madi’s diagnosis of <a href="https://together.stjude.org/en-us/conditions/cancers/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">acute myeloid leukemia (AML)</a> and <a href="https://together.stjude.org/en-us/emotional-support-daily-life/parents.html" target="_blank" rel="noreferrer noopener">emotional support and daily life</a> on Together by St. Jude™.<br /><br />This episode was recorded April 24, 2025.The book that Sara references in the episode is <i>It’s Not Supposed to Be This Way</i> by Lysa TerKeurst.<br /><br /><i>St. Jude does not endorse any branded product or organization mentioned in this podcast.</i>]]></itunes:summary><itunes:duration>2468</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/c15a80bd8093349700b2b7a59a7294d6.jpg"/><itunes:season>3</itunes:season><itunes:episode>1</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Season 3 Trailer</title><link>https://www.spreaker.com/episode/season-3-trailer--66897476</link><description><![CDATA[We're happy to present season 3 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.<br /><br />At St. Jude, we understand the challenges that families face during this difficult time, and we are committed to providing resources to help. Each episode of the podcast focuses on S.H.A.R.E—Supporting, Honoring, Advising, Reflecting, and Encouraging caregivers.<br /><br />The first episode of Season 3 will drop on July 17, 2025. ]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/66897476</guid><pubDate>Thu, 10 Jul 2025 05:00:10 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/66897476/podcast.mp3" length="1395840" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>We're happy to present season 3 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.

At St. Jude, we understand the...</itunes:subtitle><itunes:summary><![CDATA[We're happy to present season 3 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.<br /><br />At St. Jude, we understand the challenges that families face during this difficult time, and we are committed to providing resources to help. Each episode of the podcast focuses on S.H.A.R.E—Supporting, Honoring, Advising, Reflecting, and Encouraging caregivers.<br /><br />The first episode of Season 3 will drop on July 17, 2025. ]]></itunes:summary><itunes:duration>35</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>3</itunes:season><itunes:episodeType>trailer</itunes:episodeType></item><item><title>Living with Grief During a Time of Celebration</title><link>https://www.spreaker.com/episode/living-with-grief-during-a-time-of-celebration--62743931</link><description><![CDATA[In this episode, Brenda Stephens and Erica Sirrine talk about loss and keeping memories alive. Brenda’s daughter Emily died of cancer at age 23. Brenda discusses navigating the first year after Emily died, the ways her family keeps Emily’s light alive, and being mentored by other parents through the journey. Brenda and Erica emphasize the importance of allowing oneself to feel, creating new traditions, and continuing to tell Emily’s story and celebrate her life. Brenda encourages other grieving parents to turn grief into love and give to others.<br /><br />A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/treatment/services/clinics-and-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> director at St. Jude, and our parent caregiver, Brenda Stephens.<br /><br />Learn more about <a href="https://together.stjude.org/en-us/emotional-support-daily-life/bereavement.html" target="_blank" rel="noreferrer noopener">grief and bereavement</a> on <i>Together by St. Jude</i>™.This episode was recorded on 04/26/24. ]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/62743931</guid><pubDate>Wed, 20 Nov 2024 06:00:08 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/62743931/episode_6_final.mp3" length="55122240" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>In this episode, Brenda Stephens and Erica Sirrine talk about loss and keeping memories alive. Brenda’s daughter Emily died of cancer at age 23. Brenda discusses navigating the first year after Emily died, the ways her family keeps Emily’s light...</itunes:subtitle><itunes:summary><![CDATA[In this episode, Brenda Stephens and Erica Sirrine talk about loss and keeping memories alive. Brenda’s daughter Emily died of cancer at age 23. Brenda discusses navigating the first year after Emily died, the ways her family keeps Emily’s light alive, and being mentored by other parents through the journey. Brenda and Erica emphasize the importance of allowing oneself to feel, creating new traditions, and continuing to tell Emily’s story and celebrate her life. Brenda encourages other grieving parents to turn grief into love and give to others.<br /><br />A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/treatment/services/clinics-and-services/social-work.html" target="_blank" rel="noreferrer noopener">social work</a> director at St. Jude, and our parent caregiver, Brenda Stephens.<br /><br />Learn more about <a href="https://together.stjude.org/en-us/emotional-support-daily-life/bereavement.html" target="_blank" rel="noreferrer noopener">grief and bereavement</a> on <i>Together by St. Jude</i>™.This episode was recorded on 04/26/24. ]]></itunes:summary><itunes:duration>1379</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/04c6fb81c2824a479388a8e28e09f965.jpg"/><itunes:season>2</itunes:season><itunes:episode>6</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Navigating Serious Illness with Teens and Young Adults</title><link>https://www.spreaker.com/episode/navigating-serious-illness-with-teens-and-young-adults--62609924</link><description><![CDATA[In this episode, Carol Bailey and her daughter Katie talk with child life specialist Heather Haluska about going through cancer during the teen years. Katie was diagnosed with acute myeloid leukemia when she was a senior in high school. She continues to deal with chronic health conditions related to her diagnosis. Katie shares how she handled missing out on teenage experiences, used creativity as an outlet, and learned to advocate for herself in medical settings. Carol discusses learning to take time for herself. Both mother and daughter highlight the importance of communication and listening, even when they could only communicate through eye contact.<br /><br />A special thank you to our moderator, Heather Haluska, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life.html" target="_blank" rel="noreferrer noopener">child life</a> specialist at St. Jude; our parent caregiver, Carol Bailey; and patient, Katie Bailey.Learn more about Katie’s diagnosis of <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/leukemia/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">acute myeloid leukemia (AML)</a> on <i>Together by St. Jude</i>™.This episode was recorded on 04/04/2024.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/62609924</guid><pubDate>Wed, 06 Nov 2024 06:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/62609924/episode_5_final.mp3" length="32007360" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>In this episode, Carol Bailey and her daughter Katie talk with child life specialist Heather Haluska about going through cancer during the teen years. Katie was diagnosed with acute myeloid leukemia when she was a senior in high school. She continues...</itunes:subtitle><itunes:summary><![CDATA[In this episode, Carol Bailey and her daughter Katie talk with child life specialist Heather Haluska about going through cancer during the teen years. Katie was diagnosed with acute myeloid leukemia when she was a senior in high school. She continues to deal with chronic health conditions related to her diagnosis. Katie shares how she handled missing out on teenage experiences, used creativity as an outlet, and learned to advocate for herself in medical settings. Carol discusses learning to take time for herself. Both mother and daughter highlight the importance of communication and listening, even when they could only communicate through eye contact.<br /><br />A special thank you to our moderator, Heather Haluska, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life.html" target="_blank" rel="noreferrer noopener">child life</a> specialist at St. Jude; our parent caregiver, Carol Bailey; and patient, Katie Bailey.Learn more about Katie’s diagnosis of <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/leukemia/acute-myeloid-leukemia-aml.html" target="_blank" rel="noreferrer noopener">acute myeloid leukemia (AML)</a> on <i>Together by St. Jude</i>™.This episode was recorded on 04/04/2024.]]></itunes:summary><itunes:duration>801</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/a494a2675eb30165182e8b81f54711c6.jpg"/><itunes:season>2</itunes:season><itunes:episode>5</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Navigating Serious Illness with School-age Children</title><link>https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html</link><description><![CDATA[Elnora Lee describes her 17-year journey with 3 school-age daughters navigating cancer. She talks with Randy Thompson of the St. Jude Imagine Academy about learning challenges, relationship challenges, and the importance of having compassion and empathy. She offers tips for helping a school-age child retain multiplication facts and turning trips to the store into learning experiences. Elnora emphasizes the importance of setting the tone, being firm, and focusing on the future.<br /><br />A special thank you to our moderator, Randy Thompson, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life/school-program.html" target="_blank" rel="noreferrer noopener">STEMM coordinator, Imagine Academy by Chili’s at St. Jude</a>, and our parent caregiver, Elnora Lee.<br /><br />Learn more about <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/brain-spinal-tumors.html" target="_blank" rel="noreferrer noopener">brain and spinal cord tumors</a> on Together by St. Jude™.<br /><br />This episode was recorded on 08/05/24.<br />]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/62387905</guid><pubDate>Wed, 23 Oct 2024 05:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/62387905/episode_4_final.mp3" length="25804800" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Elnora Lee describes her 17-year journey with 3 school-age daughters navigating cancer. She talks with Randy Thompson of the St. Jude Imagine Academy about learning challenges, relationship challenges, and the importance of having compassion and...</itunes:subtitle><itunes:summary><![CDATA[Elnora Lee describes her 17-year journey with 3 school-age daughters navigating cancer. She talks with Randy Thompson of the St. Jude Imagine Academy about learning challenges, relationship challenges, and the importance of having compassion and empathy. She offers tips for helping a school-age child retain multiplication facts and turning trips to the store into learning experiences. Elnora emphasizes the importance of setting the tone, being firm, and focusing on the future.<br /><br />A special thank you to our moderator, Randy Thompson, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life/school-program.html" target="_blank" rel="noreferrer noopener">STEMM coordinator, Imagine Academy by Chili’s at St. Jude</a>, and our parent caregiver, Elnora Lee.<br /><br />Learn more about <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/brain-spinal-tumors.html" target="_blank" rel="noreferrer noopener">brain and spinal cord tumors</a> on Together by St. Jude™.<br /><br />This episode was recorded on 08/05/24.<br />]]></itunes:summary><itunes:duration>646</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/3428dffe3880a35a41802da22b8785b6.jpg"/><itunes:season>2</itunes:season><itunes:episode>4</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Navigating Serious Illness with Early Childhood Children</title><link>https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html</link><description><![CDATA[In this episode, Ela Molina talks with Jen Harman about Ela’s daughter’s experience with cancer. Isa Molina was diagnosed with acute lymphoblastic leukemia at 22 months old. Jen was Ela and Isa’s psychologist at St. Jude while Isa went through treatment. Ela and Jen reflect on that time. They offer tips for using play, setting limits, keeping a routine, and using positive reinforcement with young children. Ela highlights how helpful <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life.html" target="_blank" rel="noreferrer noopener">child life</a> and <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life/music-therapy.html" target="_blank" rel="noreferrer noopener">music therapy</a> were for Isa in the hospital. For parents and caregivers, Jen and Ela emphasize the importance of helping others through finding their own calling.<br /><br />A special thank you to our moderator, Jen Harman, formerly Assistant Director of the <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/psychology-clinic.html" target="_blank" rel="noreferrer noopener">Psychology Clinic</a> at St. Jude, and our parent caregiver, Ela Molina.<br /><br />Learn more about Isa’s diagnosis of <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/leukemia/acute-lymphoblastic-leukemia-all.html" target="_blank" rel="noreferrer noopener">acute lymphoblastic leukemia</a> (ALL) on <i>Together by St. Jude</i>™.<br /><br />This episode was recorded on 05/22/2024.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/62134807</guid><pubDate>Wed, 09 Oct 2024 05:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/62134807/episode_3_final.mp3" length="53605440" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>In this episode, Ela Molina talks with Jen Harman about Ela’s daughter’s experience with cancer. Isa Molina was diagnosed with acute lymphoblastic leukemia at 22 months old. Jen was Ela and Isa’s psychologist at St. Jude while Isa went through...</itunes:subtitle><itunes:summary><![CDATA[In this episode, Ela Molina talks with Jen Harman about Ela’s daughter’s experience with cancer. Isa Molina was diagnosed with acute lymphoblastic leukemia at 22 months old. Jen was Ela and Isa’s psychologist at St. Jude while Isa went through treatment. Ela and Jen reflect on that time. They offer tips for using play, setting limits, keeping a routine, and using positive reinforcement with young children. Ela highlights how helpful <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life.html" target="_blank" rel="noreferrer noopener">child life</a> and <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life/music-therapy.html" target="_blank" rel="noreferrer noopener">music therapy</a> were for Isa in the hospital. For parents and caregivers, Jen and Ela emphasize the importance of helping others through finding their own calling.<br /><br />A special thank you to our moderator, Jen Harman, formerly Assistant Director of the <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/psychology-clinic.html" target="_blank" rel="noreferrer noopener">Psychology Clinic</a> at St. Jude, and our parent caregiver, Ela Molina.<br /><br />Learn more about Isa’s diagnosis of <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/leukemia/acute-lymphoblastic-leukemia-all.html" target="_blank" rel="noreferrer noopener">acute lymphoblastic leukemia</a> (ALL) on <i>Together by St. Jude</i>™.<br /><br />This episode was recorded on 05/22/2024.]]></itunes:summary><itunes:duration>1341</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/4887ba5859e1c3d9960a49d9fb793302.jpg"/><itunes:season>2</itunes:season><itunes:episode>3</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>How to Support a Sick Child’s Siblings</title><link>https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html</link><description><![CDATA[ShaQuitta McGhee and Jessica Watts reflect on how they supported their other children while their child was sick. ShaQuitta discusses how she relied on family and a counselor. She admits she didn’t always get it right when parenting her daughter, Reign Bella, and her sons at the same time. Jessica sheds light on how she found ways to include her younger son in family activities when he couldn’t be involved in her older son Charlie’s treatment. Both women share the importance of relishing moments together and celebrating the ones we love.<br /><br />A special thank you to our moderator, Ashley Carr, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life.html" target="_blank" rel="noreferrer noopener">child life specialist</a> at St. Jude, and our parent caregivers, ShaQuitta McGhee and Jessica Watts.<br />]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/62046205</guid><pubDate>Wed, 25 Sep 2024 05:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/62046205/episode_2_final.mp3" length="63624000" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>ShaQuitta McGhee and Jessica Watts reflect on how they supported their other children while their child was sick. ShaQuitta discusses how she relied on family and a counselor. She admits she didn’t always get it right when parenting her daughter,...</itunes:subtitle><itunes:summary><![CDATA[ShaQuitta McGhee and Jessica Watts reflect on how they supported their other children while their child was sick. ShaQuitta discusses how she relied on family and a counselor. She admits she didn’t always get it right when parenting her daughter, Reign Bella, and her sons at the same time. Jessica sheds light on how she found ways to include her younger son in family activities when he couldn’t be involved in her older son Charlie’s treatment. Both women share the importance of relishing moments together and celebrating the ones we love.<br /><br />A special thank you to our moderator, Ashley Carr, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/child-life.html" target="_blank" rel="noreferrer noopener">child life specialist</a> at St. Jude, and our parent caregivers, ShaQuitta McGhee and Jessica Watts.<br />]]></itunes:summary><itunes:duration>1591</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/7234026ff049b2d6effd01a496dfb29b.jpg"/><itunes:season>2</itunes:season><itunes:episode>2</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>How to Keep Your Relationship Strong</title><link>https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html</link><description><![CDATA[In this episode, Wes and Kady Shell talk about how they kept their marriage strong and remained close while their daughter Hattie went through an extended ICU stay. Wes and Cady discuss how they learned to let go, meet their spouse where they were, and check in often. One is an early riser and one of them is a night owl. This fact that used to irritate them became key in taking shifts in the ICU. Their differences became their strengths.<br /><br />A special thank you to our moderator, Clay Culp, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social worker</a> at St. Jude, and our parent caregivers, Wesley and Kady Shell.<br /><br />Learn more about Hattie’s diagnosis of <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/lymphoma/non-hodgkin-lymphoma/anaplastic-large-cell-lymphoma.html" target="_blank" rel="noreferrer noopener">anaplastic large cell lymphoma</a> on Together by St. Jude™.<br /><br />This episode was recorded on 04/04/2024.<br />]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/61325995</guid><pubDate>Wed, 11 Sep 2024 05:00:03 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/61325995/episode_1_season_2.mp3" length="51350400" type="audio/mpeg"/><podcast:transcript url="https://freepodcasttranscription.com/transcription/905ba78c9d70dfe89d25179c32b64bcc10d319f3.srt" type="application/x-subrip" language="en"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>In this episode, Wes and Kady Shell talk about how they kept their marriage strong and remained close while their daughter Hattie went through an extended ICU stay. Wes and Cady discuss how they learned to let go, meet their spouse where they were,...</itunes:subtitle><itunes:summary><![CDATA[In this episode, Wes and Kady Shell talk about how they kept their marriage strong and remained close while their daughter Hattie went through an extended ICU stay. Wes and Cady discuss how they learned to let go, meet their spouse where they were, and check in often. One is an early riser and one of them is a night owl. This fact that used to irritate them became key in taking shifts in the ICU. Their differences became their strengths.<br /><br />A special thank you to our moderator, Clay Culp, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">social worker</a> at St. Jude, and our parent caregivers, Wesley and Kady Shell.<br /><br />Learn more about Hattie’s diagnosis of <a href="https://together.stjude.org/en-us/about-pediatric-cancer/types/lymphoma/non-hodgkin-lymphoma/anaplastic-large-cell-lymphoma.html" target="_blank" rel="noreferrer noopener">anaplastic large cell lymphoma</a> on Together by St. Jude™.<br /><br />This episode was recorded on 04/04/2024.<br />]]></itunes:summary><itunes:duration>1284</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/797f2bb11bf396ce1af7702733829ef6.jpg"/><itunes:season>2</itunes:season><itunes:episode>1</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Season 2 Trailer</title><link>https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html</link><description><![CDATA[We are happy to present season 2 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.<br /><br />At St. Jude, we understand the challenges that families face during this difficult time, and we are committed to providing resources to help. Each episode of the podcast focuses on S.H.A.R.E—Supporting, Honoring, Advising, Reflecting, and Encouraging caregivers.<br /><br />The first episode of Season 2 will drop on September 12, 2024.<br /><br />https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/61251916</guid><pubDate>Thu, 05 Sep 2024 05:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/61251916/caregivers_share_s2_trailer.mp3" length="621505" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>We are happy to present season 2 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.

At St. Jude, we understand the...</itunes:subtitle><itunes:summary><![CDATA[We are happy to present season 2 of Caregivers SHARE, a St. Jude podcast. Hear from families and health care providers as they share personal stories and offer support to those caring for a child with a serious illness.<br /><br />At St. Jude, we understand the challenges that families face during this difficult time, and we are committed to providing resources to help. Each episode of the podcast focuses on S.H.A.R.E—Supporting, Honoring, Advising, Reflecting, and Encouraging caregivers.<br /><br />The first episode of Season 2 will drop on September 12, 2024.<br /><br />https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html]]></itunes:summary><itunes:duration>39</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>2</itunes:season><itunes:episodeType>trailer</itunes:episodeType></item><item><title>Holiday Episode: Finding Joy in the Simple Moments</title><link>https://www.stjude.org/care-treatment/patient-families/family-caregiver/caregivers-share-podcast.html</link><description><![CDATA[St. Jude Director of <a href="https://www.stjude.org/treatment/services/clinics-and-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care Services</a> Mark Brown talks with caregiver Nikole Sullivan. Listeners will learn how her family managed the holidays with a child in the hospital, created new memories, and embraced simple joys together. Nikole shares how she let go of the pressure that comes with the holiday season and navigated being apart from family members.<br /><br />A special thank you to Mark Brown and our parent caregiver Nikole Sullivan.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/57823473</guid><pubDate>Mon, 04 Dec 2023 15:00:03 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/57823473/final_caregivers_share_holiday_episode.mp3" length="36309120" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>St. Jude Director of https://www.stjude.org/treatment/services/clinics-and-services/spiritual-care-services.html Mark Brown talks with caregiver Nikole Sullivan. Listeners will learn how her family managed the holidays with a child in the hospital,...</itunes:subtitle><itunes:summary><![CDATA[St. Jude Director of <a href="https://www.stjude.org/treatment/services/clinics-and-services/spiritual-care-services.html" target="_blank" rel="noreferrer noopener">Spiritual Care Services</a> Mark Brown talks with caregiver Nikole Sullivan. Listeners will learn how her family managed the holidays with a child in the hospital, created new memories, and embraced simple joys together. Nikole shares how she let go of the pressure that comes with the holiday season and navigated being apart from family members.<br /><br />A special thank you to Mark Brown and our parent caregiver Nikole Sullivan.]]></itunes:summary><itunes:duration>908</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/8d8df818c958ec90a799bdec30283394.jpg"/><itunes:episodeType>full</itunes:episodeType></item><item><title>Friends, Relationships, and Mental Health</title><link>https://www.spreaker.com/episode/friends-relationships-and-mental-health--56159219</link><description><![CDATA[The transition off therapy can be socially and psychosocially challenging. Caregivers can have feelings of release and relief, but they can also be confused and overwhelmed. How can you take care of your mental health while ensuring the health of your child? LaChaka and Darick explore returning to work, managing finances, asking for help, and navigating strained relationships. They emphasize the importance of giving back by helping others with children who have serious illnesses. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56159219</guid><pubDate>Wed, 18 Oct 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56159219/caregivers_share_episode_7.mp3" length="35848912" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>The transition off therapy can be socially and psychosocially challenging. Caregivers can have feelings of release and relief, but they can also be confused and overwhelmed. How can you take care of your mental health while ensuring the health of your...</itunes:subtitle><itunes:summary><![CDATA[The transition off therapy can be socially and psychosocially challenging. Caregivers can have feelings of release and relief, but they can also be confused and overwhelmed. How can you take care of your mental health while ensuring the health of your child? LaChaka and Darick explore returning to work, managing finances, asking for help, and navigating strained relationships. They emphasize the importance of giving back by helping others with children who have serious illnesses. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></itunes:summary><itunes:duration>2241</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>7</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Going Back to School</title><link>https://www.spreaker.com/episode/going-back-to-school--56159163</link><description><![CDATA[When your child transitions off therapy, how do you know when to send them back to school? Emily, Darick, and LaChaka discuss how to confidently make that decision, as well as what accommodations might be needed, such as IEPs (Individualized Education Plans) or 504 plans. They speak about the importance of communicating openly with the care team, child life specialists, social workers, and school administrators. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56159163</guid><pubDate>Wed, 04 Oct 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56159163/caregivers_share_episode_6.mp3" length="26387152" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When your child transitions off therapy, how do you know when to send them back to school? Emily, Darick, and LaChaka discuss how to confidently make that decision, as well as what accommodations might be needed, such as IEPs (Individualized Education...</itunes:subtitle><itunes:summary><![CDATA[When your child transitions off therapy, how do you know when to send them back to school? Emily, Darick, and LaChaka discuss how to confidently make that decision, as well as what accommodations might be needed, such as IEPs (Individualized Education Plans) or 504 plans. They speak about the importance of communicating openly with the care team, child life specialists, social workers, and school administrators. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></itunes:summary><itunes:duration>1650</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>6</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Back to the Local Care Team</title><link>https://www.spreaker.com/episode/back-to-the-local-care-team--56158985</link><description><![CDATA[The transition from a hospital care team to a local care team comes with its challenges. LaChaka and Darick map out the medical journey each of them took with their children’s treatment. LaChaka outlines how she kept her home pediatrician in the loop so that the transition went smoothly. Both caregivers offer tips on organizing medical records and teaching a child to take an active role in their own care. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56158985</guid><pubDate>Wed, 20 Sep 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56158985/caregivers_share_episode_5.mp3" length="25330133" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>The transition from a hospital care team to a local care team comes with its challenges. LaChaka and Darick map out the medical journey each of them took with their children’s treatment. LaChaka outlines how she kept her home pediatrician in the loop...</itunes:subtitle><itunes:summary><![CDATA[The transition from a hospital care team to a local care team comes with its challenges. LaChaka and Darick map out the medical journey each of them took with their children’s treatment. LaChaka outlines how she kept her home pediatrician in the loop so that the transition went smoothly. Both caregivers offer tips on organizing medical records and teaching a child to take an active role in their own care. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></itunes:summary><itunes:duration>1584</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>5</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>The Emotions of Transitioning Off Therapy</title><link>https://www.spreaker.com/episode/the-emotions-of-transitioning-off-therapy--56158979</link><description><![CDATA[When it’s time to transition off therapy, what happens next? While it might seem like an exciting time, the transition off therapy can come with anxiety and fear. Parents LaChaka and Darick share how they handled the emotional aspect of leaving the safety net of the hospital. They talk about the time required to process the experience and how they’ve been humbled by it. LaChaka and Darick reflect on hard emotions like survivor’s guilt. They also explain how creating a support net with other families helped them get through. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56158979</guid><pubDate>Thu, 07 Sep 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56158979/caregivers_share_episode_4.mp3" length="28636190" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>When it’s time to transition off therapy, what happens next? While it might seem like an exciting time, the transition off therapy can come with anxiety and fear. Parents LaChaka and Darick share how they handled the emotional aspect of leaving the...</itunes:subtitle><itunes:summary><![CDATA[When it’s time to transition off therapy, what happens next? While it might seem like an exciting time, the transition off therapy can come with anxiety and fear. Parents LaChaka and Darick share how they handled the emotional aspect of leaving the safety net of the hospital. They talk about the time required to process the experience and how they’ve been humbled by it. LaChaka and Darick reflect on hard emotions like survivor’s guilt. They also explain how creating a support net with other families helped them get through. A special thank you to Emily Browne, <a href="https://www.stjude.org/care-treatment/patient-families/childhood-cancer-survivors/transition-oncology-program.html" target="_blank" rel="noreferrer noopener">Transition Oncology Program</a> Director at St. Jude, and our parent caregivers LaChaka Davis and Darick Hemphill.]]></itunes:summary><itunes:duration>1790</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>4</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Seeking Help and Support</title><link>https://www.spreaker.com/episode/seeking-help-and-support--56158943</link><description><![CDATA[Paula and Jason explore ways to find support during treatment, whether from the medical team, social workers, or others. They share the importance of advocating for yourself and your child and how important it is to speak up when you know something is not right. Jason and Paula explain how they responded to unsolicited medical advice during treatment, and when to ask for help from someone outside the care team. They point to self-care, connecting with patient families, and living in the moment as tools for making it through. A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56158943</guid><pubDate>Thu, 24 Aug 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56158943/caregivers_share_episode_3.mp3" length="26657153" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>Paula and Jason explore ways to find support during treatment, whether from the medical team, social workers, or others. They share the importance of advocating for yourself and your child and how important it is to speak up when you know something is...</itunes:subtitle><itunes:summary><![CDATA[Paula and Jason explore ways to find support during treatment, whether from the medical team, social workers, or others. They share the importance of advocating for yourself and your child and how important it is to speak up when you know something is not right. Jason and Paula explain how they responded to unsolicited medical advice during treatment, and when to ask for help from someone outside the care team. They point to self-care, connecting with patient families, and living in the moment as tools for making it through. A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/care-treatment/treatment/clinics-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.]]></itunes:summary><itunes:duration>1667</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>3</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Handling Logistics and Household Decisions</title><link>https://www.spreaker.com/episode/handling-logistics-and-household-decisions--56158933</link><description><![CDATA[How does a caregiver handle day-to-day logistics at home when their child has a serious illness? Paula and Jason share how they were able to ask for much-needed help from friends and loved ones, even with mundane tasks like yard work and oil changes. They discovered that sometimes coping means focusing on a calendar or a to-do list. They also learned that it’s OK to realize you can’t do it all on your own. Listeners learn tips for keeping logistics organized and which items to pack for long hospital stays. A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/treatment/services/clinics-and-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56158933</guid><pubDate>Thu, 10 Aug 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56158933/caregivers_share_episode_2.mp3" length="22541927" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>How does a caregiver handle day-to-day logistics at home when their child has a serious illness? Paula and Jason share how they were able to ask for much-needed help from friends and loved ones, even with mundane tasks like yard work and oil changes....</itunes:subtitle><itunes:summary><![CDATA[How does a caregiver handle day-to-day logistics at home when their child has a serious illness? Paula and Jason share how they were able to ask for much-needed help from friends and loved ones, even with mundane tasks like yard work and oil changes. They discovered that sometimes coping means focusing on a calendar or a to-do list. They also learned that it’s OK to realize you can’t do it all on your own. Listeners learn tips for keeping logistics organized and which items to pack for long hospital stays. A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/treatment/services/clinics-and-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.]]></itunes:summary><itunes:duration>1409</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>2</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>The Shock of a New Diagnosis</title><link>https://www.spreaker.com/episode/the-shock-of-a-new-diagnosis--56158897</link><description><![CDATA[How does it feel to first receive a child’s diagnosis of a serious illness? Paula shares her initial feelings of having the rug pulled out from under her. Jason reflects on feeling out of control and exhausted. In the fog of a new diagnosis, how do you keep a clear head to make key health decisions for your child? Jason and Paula discuss the small losses and changes along the way. They also discuss the moment of realization that nothing will ever be the same. As Jason reflects, “the dreams [you had for your child] aren’t gone. They do change.” A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/treatment/services/clinics-and-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56158897</guid><pubDate>Thu, 27 Jul 2023 14:00:02 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56158897/caregivers_share_episode_1.mp3" length="19219988" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>How does it feel to first receive a child’s diagnosis of a serious illness? Paula shares her initial feelings of having the rug pulled out from under her. Jason reflects on feeling out of control and exhausted. In the fog of a new diagnosis, how do...</itunes:subtitle><itunes:summary><![CDATA[How does it feel to first receive a child’s diagnosis of a serious illness? Paula shares her initial feelings of having the rug pulled out from under her. Jason reflects on feeling out of control and exhausted. In the fog of a new diagnosis, how do you keep a clear head to make key health decisions for your child? Jason and Paula discuss the small losses and changes along the way. They also discuss the moment of realization that nothing will ever be the same. As Jason reflects, “the dreams [you had for your child] aren’t gone. They do change.” A special thank you to our moderator, Erica Sirrine, <a href="https://www.stjude.org/treatment/services/clinics-and-services/social-work.html" target="_blank" rel="noreferrer noopener">Social Work</a> Director at St. Jude, and our parent caregivers, Paula Elsener and Jason Winkle.]]></itunes:summary><itunes:duration>1202</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episode>1</itunes:episode><itunes:episodeType>full</itunes:episodeType></item><item><title>Trailer: Caregivers SHARE, a St. Jude Podcast</title><link>https://www.spreaker.com/episode/trailer-caregivers-share-a-st-jude-podcast--56221672</link><description><![CDATA[A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by <a href="https://www.stjude.org/treatment/patient-resources/patient-family-centered-care.html" target="_blank" rel="noreferrer noopener">Patient Family-Centered Care</a> and <a href="https://www.stjude.org/treatment/services/clinics-and-services/psychosocial-services.html" target="_blank" rel="noreferrer noopener">Psychosocial Services</a> at St. Jude Children’s Research Hospital.]]></description><guid isPermaLink="false">https://api.spreaker.com/episode/56221672</guid><pubDate>Tue, 25 Jul 2023 21:52:44 +0000</pubDate><enclosure url="https://api.spreaker.com/download/episode/56221672/caregivers_share_trailer.mp3" length="624431" type="audio/mpeg"/><itunes:author>St. Jude (SJCRH)</itunes:author><itunes:subtitle>A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear...</itunes:subtitle><itunes:summary><![CDATA[A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by <a href="https://www.stjude.org/treatment/patient-resources/patient-family-centered-care.html" target="_blank" rel="noreferrer noopener">Patient Family-Centered Care</a> and <a href="https://www.stjude.org/treatment/services/clinics-and-services/psychosocial-services.html" target="_blank" rel="noreferrer noopener">Psychosocial Services</a> at St. Jude Children’s Research Hospital.]]></itunes:summary><itunes:duration>40</itunes:duration><itunes:explicit>false</itunes:explicit><itunes:image href="https://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/27edb2ee79d75b46c7b6b2f7cd2cee60.jpg"/><itunes:season>1</itunes:season><itunes:episodeType>trailer</itunes:episodeType></item></channel></rss>
