https://www.spreaker.com/podcast/storycorps-sickle-cell-disease--4957861enHealth & FitnessCopyright Children's Minnesotahttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/a3d2f153475357bd670d9f8c7b08a7e1.jpghttps://www.spreaker.com/podcast/storycorps-sickle-cell-disease--4957861Sun, 17 Mar 2024 16:05:31 +0000Children's MinnesotaChildren's Minnesotafeeds@spreaker.comfalse25062043-7fd7-5c99-bd73-b3ba1acf8490episodichttps://www.spreaker.com/episode/sickle-cell-disease-romel-and-nicole-s-story--45206202https://api.spreaker.com/episode/45206202Mon, 07 Jun 2021 21:00:10 +0000Children's MinnesotaRomel and Nicole discuss their experience with the Caribbean medical care system compared to the United States. They agree that the team at Children’s Minnesota has delivered outstanding care for their daughter, Daniella.405falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-trevon-and-rae-s-story--45206180https://api.spreaker.com/episode/45206180Mon, 07 Jun 2021 20:58:51 +0000Children's MinnesotaRae recounts her experiences in caring for her son with sickle cell. In the beginning, she remembers not knowing what questions to ask. Trevon sees himself as an advocate for those who do not have a voice in the sickle cell community.274falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-precious-and-joanna-s-story--45206173https://api.spreaker.com/episode/45206173Mon, 07 Jun 2021 20:55:57 +0000Children's MinnesotaMother and daughter highlight the normalcy of childhood despite a sickle cell diagnosis. Both mother and daughter receive support from family members.235falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-oliver-and-charlie-s-story--45206165https://api.spreaker.com/episode/45206165Mon, 07 Jun 2021 20:55:01 +0000Children's MinnesotaOliver discusses his experience with sickle cell, including triumphs and challenges. His mother, Charlie, discusses the support she has received through her family and Children’s Minnesota.336falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-mary-and-okuny-s-story--45205827https://api.spreaker.com/episode/45205827Mon, 07 Jun 2021 20:48:41 +0000Children's MinnesotaPatients Mary and Okuny discuss their individual experiences with sickle cell and how it has impacted their outlook on life. They both believe that sickle cell can not be used as an excuse, but rather, a source of resilience.280falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-ed-jenkins-iii-and-ed-jenkins-jr-s-story--45205811https://api.spreaker.com/episode/45205811Mon, 07 Jun 2021 20:31:39 +0000Children's MinnesotaFather and son discuss how sickle cell has impacted understanding of their family and childhood experience.367falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-tamara-and-candice-s-story--45205802https://api.spreaker.com/episode/45205802Mon, 07 Jun 2021 20:30:59 +0000Children's MinnesotaCandice and her daughter, Tamara, discuss the challenges sickle cell disease has presented, however they both stay rooted in their faith and also in their personal resilience values.368falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-jalen-anthony-and-lenora-s-story--45171895https://api.spreaker.com/episode/45171895Fri, 04 Jun 2021 23:29:32 +0000Children's MinnesotaLenora interviews her sons Jalen and Anthony (TJ). Both are diagnosed with sickle cell. Although the brothers share a diagnosis, their experiences differ broadly.261falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-patricia-and-bjork-s-story--45171881https://api.spreaker.com/episode/45171881Fri, 04 Jun 2021 23:28:50 +0000Children's MinnesotaMother, Patricia, and daughter, Bjork, discuss the resilience rooted in sickle cell disease. Although sickle cell pain crises can be challenging, support from Children’s Minnesota has allowed for a strong bond to form between mother and daughter.253falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-blandine-and-jalen-s-stories--45171813https://api.spreaker.com/episode/45171813Fri, 04 Jun 2021 23:25:57 +0000Children's MinnesotaTeenage friends Blandine and Jalen discuss their individual and shared experiences with sickle cell. The two friends met at Children’s Minnesota and have shared a unique bond ever since.372falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-matthew-s-story--45171778https://api.spreaker.com/episode/45171778Fri, 04 Jun 2021 23:25:26 +0000Children's MinnesotaA friend, Ephriam, interviews sickle cell patient, Matthew, about his experience growing up with sickle cell disease. Matthew reflects that he appreciates life despite his diagnosis, and that his faith gives him strength. Matthew does not let his...309falsefullhttps://www.spreaker.com/episode/sickle-cell-disease-justin-hawa-and-jj-s-story--45170941https://api.spreaker.com/episode/45170941Fri, 04 Jun 2021 21:32:52 +0000Children's MinnesotaHusband and wife Justin and Hawa work together to care for their son who was diagnosed with sickle cell and undergoes a bone marrow transplant. Throughout their journey, they place faith in their religion and maintain hope.389falsefull