https://www.spreaker.com/show/warriors-of-dystonia-podcastenPersonal JournalsCopyright Karlhttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/fd3722efcd7c601c000526d98d6af37d.jpghttps://www.spreaker.com/show/warriors-of-dystonia-podcastThu, 02 Mar 2023 02:14:49 +0000KarlKarlfeeds@spreaker.comWarriors of Dystonia has been set up to spread awareness of the neurological condition known as dystonia. This podcast will be a mix of interviews and discussions with people from around the world on their journey with this condition.cleanepisodichttps://www.spreaker.com/user/13113307/warriors-of-dystonia-podcast-shelbys-stoe8cffcc7-3666-4b41-b8c8-9162d2980a0eSun, 24 Jul 2022 11:22:35 +0000KarlIn this episode of the Warriors of Dystonia podcast I talk with Shelby, who kindly chatted to me about her experience of living with Dopamine responsive dystonia (dopa responsive), which she was diagnosed with at the age of seven.2783clean24fullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-podcast-sara-janes-63ef91f8-47e0-45f9-8025-2ebc5bb60fddFri, 24 Jun 2022 06:04:22 +0000KarlIn this episode, Sara Jane talks candidly about her experiences of life with Cervical dystonia, sharing the implications of the condition on her career as well as some of the lesser spoken ways that this type of dystonia can affect most people.  For...4359cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-podcast-kates-story35fa9524-23dc-42f3-84ee-c35249b93b21Sat, 23 Apr 2022 07:40:33 +0000KarlIn this episode of the Warriors of Dystonia Podcast Kate took the time to share her experiences of living with benign essential blepharospasm, which began four years ago. Benign essential blepharospasm is a rare form of dystonia that affects the...1585cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-podcast-tim-and-ell137d1387-e404-4496-b6fc-c93cc94d2328Thu, 17 Mar 2022 06:34:41 +0000KarlIn this episode of the Warriors of Dystonia Podcast I had the pleasure of chatting to Tim, a father of a boy named Ellis, who has developed generalised dystonia.  Tim was kind enough to share their journey and experiences.2156cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-jakki-may-2020bdc6d464-1e72-4c21-9406-ea870e89f415Sun, 20 Jun 2021 05:08:53 +0000KarlThis episode of the Warriors of Dystonia is Jakki's story.  Jakki is living with an extremely rare condition which combines three severe forms of dystonia, called "tetrahydrobiopterin deficiency generalised dopa responsive dystonia" There are very few...1634cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-kerry-10-01-21
You can get in touch with Kerry over on Instagram at - search for DobbieKerry]]>48379b2f-c09c-44f3-924b-67a2a3243f6fTue, 09 Mar 2021 06:28:57 +0000KarlThe following podcast is with my friend Kerry from Huntsville, Alabama, who takes us on a journey through her experience with dystonia from its beginnings and issues with her hip to where she is today in 2021.  Kerry has been an avid supporter of this...
You can get in touch with Kerry over on Instagram at - search for DobbieKerry]]>650cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-lindsay-8-22-20ff6a4691-4541-48b3-960e-37a8f29a077fSat, 21 Nov 2020 07:08:23 +0000KarlThe following podcast is with the fantastic Lindsay from North Carolina.  A passionate and caring advocate, determined to spread awareness of dystonia, being there for anyone that needs her, and being a true dystonia warrior. This is Lindsay’s journey.3230cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-andy-22-09-20dfb23b64-a471-436c-a31c-f466ccff1424Thu, 15 Oct 2020 11:01:23 +0000KarlThe following podcast is with my friend Andy, from Iron Mountain Michigan. This is his journey with FND and dystonia. From its terrifying and sudden appearance, to Andy’s treatments, coping mechanisms and his mission to spread love and awareness...1561cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-eugenee1e03e80-85f2-42f0-9ae7-ebf9da065b0dMon, 28 Sep 2020 13:16:58 +0000KarlIn this podcast, Eugene, a dystonia warrior living in Alberta, Canada, shares his journey with dystonia and talks about an amputation that was supposed to help with the condition.1994cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-pilot-karl9a192c67-26e1-45d2-a896-cbe56c7ef087Sat, 12 Sep 2020 06:36:53 +0000KarlThis is the first Warriors of Dystonia Podcast.  Karl, the founder of the Warriors of Dystonia, shares his story of Cervical Dystonia.2171cleanfullhttps://www.spreaker.com/user/13113307/warriors-of-dystonia-podcast-trailer430798c9-f65d-4d71-886c-af949bddcfe6Thu, 10 Sep 2020 19:19:48 +0000Karl58cleanfull