https://www.spreaker.com/podcast/turtle-talk--4331566
“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review]]>enSociety & CultureCopyright Turtle Talkhttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/255fd74b0af8cc44f92fb46908f761a3.jpghttps://www.spreaker.com/podcast/turtle-talk--4331566Sun, 07 Aug 2022 12:25:04 +0000Turtle TalkTurtle Talksmile.e.turtle@pcdsmiles.comGrab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your...
“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review]]>cleanepisodichttps://www.spreaker.com/episode/june-6-2022-nutritional-tips-for-pcd--50080008On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies to help you cope with the activity of actually eating, and finally on this week’s editorial we will discuss how hiding medications in your PCD loved one’s food has lasting repercussions for your loved one’s lifetime.]]>https://api.spreaker.com/episode/50080008Mon, 06 Jun 2022 03:12:01 +0000Turtle TalkSeason 2, Episode 5; Nutritional Tips for PCD On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more...On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies to help you cope with the activity of actually eating, and finally on this week’s editorial we will discuss how hiding medications in your PCD loved one’s food has lasting repercussions for your loved one’s lifetime.]]>3217pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean2fullhttps://www.spreaker.com/episode/january-24-2022-pcd-airway-clearance--48431968https://api.spreaker.com/episode/48431968Tue, 25 Jan 2022 01:47:32 +0000Turtle TalkOn today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of airway clearance in PCD, the alarming trends to ditch airway clearance for PCD patients, mixing up airway clearance techniques to aid in better...3305pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/january-17-2022-chronic-illness-in-a-post-2020-world--48326699https://api.spreaker.com/episode/48326699Mon, 17 Jan 2022 00:14:37 +0000Turtle TalkOn today’s episode about life with primary ciliary dyskinesia; we will talk about the realities of time, exhausted providers, appearance of infection control policies verses the realities, we will explore another PCD myth, and finally on this week’s...3657pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/january-9-2022-navigating-new-or-worsening-symptoms--48229410https://api.spreaker.com/episode/48229410Sun, 09 Jan 2022 20:32:28 +0000Turtle TalkOn today’s episode about life with primary ciliary dyskinesia; we will talk about navigating new or worsening symptoms, riding them out at home or heading to the emergency room, we will explore another PCD myth, and finally on this week’s editorial we...3446pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/january-1-2022-ringing-in-2022--48130522https://api.spreaker.com/episode/48130522Sat, 01 Jan 2022 18:36:08 +0000Turtle TalkOn today’s episode about life with primary ciliary dyskinesia; we will talk about ringing in the New Year, pacing yourself, winter survival tips, we will explore another PCD myth, and finally on this week’s editorial we will discuss new year, new...2915pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/december-24-2021-christmas-with-pcd--48049122https://api.spreaker.com/episode/48049122Fri, 24 Dec 2021 17:06:18 +0000Turtle TalkOn today’s episode about life with primary ciliary dyskinesia; we will talk about surviving the Christmas holiday, holiday gathering considerations, strategic planning, we will explore another PCD myth, and finally on this week’s editorial we will...3201pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/december-13-2021-intimacy-with-pcd--47897033https://api.spreaker.com/episode/47897033Mon, 13 Dec 2021 01:47:18 +0000Turtle TalkOn today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about sexual health, intimacy with PCD, intimacy without sex, she will explore another PCD myth, and finally on this week’s editorial she...3274pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/december-6-2021-social-support-groups--47814200https://api.spreaker.com/episode/47814200Tue, 07 Dec 2021 03:57:25 +0000Turtle TalkOn today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about social media support groups, group etiquette , sharing experiences over giving directions, she will explore another PCD myth, and...3649pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/november-29-2020--47714525https://api.spreaker.com/episode/47714525Tue, 30 Nov 2021 03:50:08 +0000Turtle TalkOn today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; She will talk more in-depth about PCD care, tune-ups, home tune-ups, she will explore another PCD myth, and finally on this week’s editorial she will...3702pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/november-22-2021--47587485https://api.spreaker.com/episode/47587485Sun, 21 Nov 2021 18:53:28 +0000Turtle TalkOn today’s episode, join our Host Reneéas she talks about life with primary ciliary dyskinesia; she will talk about the importance of managing nausea, homeopathic treatments, sleep, she will explore another PCD myth, and finally on this week’s...3206pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/november-15-2021--47471168https://api.spreaker.com/episode/47471168Sun, 14 Nov 2021 19:43:36 +0000Turtle TalkOn today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about the importance of maintaining your strength, nutrition, energy preservation, she will explore another PCD myth, and finally on this...3627pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/november-8-2021--47365059https://api.spreaker.com/episode/47365059Mon, 08 Nov 2021 01:28:10 +0000Turtle Talkjoin our host Reneé on today’s episode about life with primary ciliary dyskinesia; she will talk about the importance of knowing your medications, seeking additional opinions, being your best advocate, she will explore another PCD myth, and finally on...5041pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/november-1-2021--47267199https://api.spreaker.com/episode/47267199Tue, 02 Nov 2021 02:14:51 +0000Turtle TalkOn today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; we will talk about sinuses, dogs, school exclusions, we will explore another PCD myth, and finally on this week’s editorial we will discuss comparing PCD...3653pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/october-25-2021--47154144https://api.spreaker.com/episode/47154144Tue, 26 Oct 2021 01:22:05 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she wraps up PCD Awareness month, talk about the next steps in awareness, she will cover some personal experiences in advocacy, explore another PCD myth, and on this week’s editorial we will...3940pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/october-18-2021--47038189https://api.spreaker.com/episode/47038189Tue, 19 Oct 2021 01:40:41 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses independence, caregivers, PCD life post pandemic, we will explore another PCD myth, and finally on this week’s editorial we will discuss PCD awareness month.4397pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/october-11-2021--46912560https://api.spreaker.com/episode/46912560Sun, 10 Oct 2021 21:22:31 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses fatigue, tissues, nausea, another PCD myth, and finally on this week’s editorial she will discuss frog soup; as they relate to the primary ciliary dyskinesia patient.3731pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/october-4-2021--46805166https://api.spreaker.com/episode/46805166Sun, 03 Oct 2021 20:33:36 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses PCD is it a disorder or a disease, airway medication does the order matter, do PCD children do know when they are in trouble medically, she will explore another PCD myth, and...3380pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/september-27-2021--46708942https://api.spreaker.com/episode/46708942Mon, 27 Sep 2021 15:05:39 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses PCD awareness month, pitfalls of PCD awareness month, lung exerciser or airway clearance device, she will explore a PCD myth, and finally on this week’s editorial she will discuss...4100pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/september-20-2021--46595994https://api.spreaker.com/episode/46595994Mon, 20 Sep 2021 03:30:44 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses PCD Smiles, how to rock that hospitalization, truancy issues, she will explore a PCD myth, and finally on this week’s editorial she will discuss unsolicited advice; as they relate...3442pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/september-13-2021--46486364https://api.spreaker.com/episode/46486364Sun, 12 Sep 2021 17:59:20 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses the question of the PCD Artist Project, pulmonary rehabilitation, transplants in PCD, she will explore a PCD myth, and finally on this week’s editorial she will discuss treatment...3933pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/september-6-2021--46393010https://api.spreaker.com/episode/46393010Mon, 06 Sep 2021 04:40:50 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses the mucociliary escalator, postoperative pneumonia in PCD, inversion as an airway clearance technique, we will explore a PCD myth, and her personal editorial as they relate to the...3501pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/august-30-2021--46290473https://api.spreaker.com/episode/46290473Sun, 29 Aug 2021 23:28:10 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses the question of PCD hearing, answer your question antibiotics without cultures, talk about the direct link of bladder leakage to PCD, she will explore a PCD myth, and finally on...3017pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/august-23-2021--46186159https://api.spreaker.com/episode/46186159Sun, 22 Aug 2021 05:00:12 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses the questions of PCD related, CF connection, answer your question of prophylactic or inflammation control, talk about the reporting of better health in PCD during the pandemic, we...3323pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/turtle-talk-august-16-2021--46096839https://api.spreaker.com/episode/46096839Sun, 15 Aug 2021 05:00:12 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses the question of PCD related, palliative care and PCD, the evolution of social distancing through the years, PCD exacerbations, and my personal editorial as they relate to the...3146pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/turtle-talk-august-9-2021--45996292https://api.spreaker.com/episode/45996292Sun, 08 Aug 2021 05:00:18 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses the NEW Turtle On 100 Day Challenge, exhaustion, sinuses, holistic approaches, and her personal editorial as they relate to the primary ciliary dyskinesia patient.3611pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/turtle-talk-august-2-2021--45905250https://api.spreaker.com/episode/45905250Sun, 01 Aug 2021 05:00:14 +0000Turtle TalkJoin our Host Reneé, on this episode of Turtle Talk, as she discusses PCD basics, turtles, myths, nutrition, and her personal editorial as they relate to the primary ciliary dyskinesia patient.3085pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1fullhttps://www.spreaker.com/episode/welcome-to-turtle-talk--45838522https://api.spreaker.com/episode/45838522Sun, 25 Jul 2021 22:27:59 +0000Turtle TalkGrab your favorite drink and settle in with us weekly, beginning in August as we discuss all the happenings in the PCD world. Join us as we discuss topics including the tips and tricks of living with PCD in your everyday lives, the latest on treatment...97pcd,pcdsmiles,pcdstyle,primaryciliarydyskinesia,turtletalkclean1full