https://www.spreaker.com/show/fara-podcastenHealth & FitnessCopyright Felicia DeRosahttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/620e09a522241493e61f7a8023b7078e.jpghttps://www.spreaker.com/show/fara-podcastWed, 07 Apr 2021 15:50:00 +0000Felicia DeRosaFelicia DeRosafeeds@spreaker.comFARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other...cleanepisodicFelicia DeRosafeeds@spreaker.comFARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.Nohttps://www.spreaker.com/user/11477110/fara-pod-episode-3https://api.spreaker.com/episode/19080123Thu, 12 Sep 2019 16:33:30 +0000Felicia DeRosaChairman of the FARA Board of Directors and Co-Founder of the FARA Energy Ball, Paul Avery and Auction Co-Chair, Amy Hull discuss the FARA Energy Ball gala event in Tampa. Hosted by, FARA Volunteer, Herman Fernandez.1546ataxia,ball,curefa,energy,fara,friedreich'scleanfullFelicia DeRosaChairman of the FARA Board of Directors and Co-Founder of the FARA Energy Ball, Paul Avery and Auction Co-Chair, Amy Hull discuss the FARA Energy Ball gala event in Tampa. Hosted by, FARA Volunteer, Herman Fernandez.Nohttps://www.spreaker.com/user/11477110/fara-pod-episode-2https://api.spreaker.com/episode/19080102Thu, 12 Sep 2019 16:28:50 +0000Felicia DeRosaThe University of South Florida, Director of the Ataxia Research Center- Dr. Theresa Zesiewicz and Alison Avery, a local Tampa young adult living with Friedreich's ataxia, offer insights on the condition from the clinical and patient perspective....730ataxia,ball,curefa,energy,fara,friedreich'scleanfullFelicia DeRosaThe University of South Florida, Director of the Ataxia Research Center- Dr. Theresa Zesiewicz and Alison Avery, a local Tampa young adult living with Friedreich's ataxia, offer insights on the condition from the clinical and patient perspective. Hosted by, FARA Volunteer, Herman Fernandez.Nohttps://www.spreaker.com/user/11477110/fara-pod-ep1-08-15https://api.spreaker.com/episode/19002556Wed, 04 Sep 2019 19:42:33 +0000Felicia DeRosaFARA Volunteer, Herman Fernandez, discusses the rare neuromuscular disease- Friedreich's ataxia (FA) with the Co-Founder and President of the non-profit organization- the Friedreich's Ataxia Research Alliance (FARA), Ron Bartek. Learn more about FA...1161ataxia,ball,curefa,energy,fara,friedreich'scleanfullFelicia DeRosaFARA Volunteer, Herman Fernandez, discusses the rare neuromuscular disease- Friedreich's ataxia (FA) with the Co-Founder and President of the non-profit organization- the Friedreich's Ataxia Research Alliance (FARA), Ron Bartek. Learn more about FA and FARA's work to fund and facilitate research to treat and cure the disease.No