https://tsctalks.com
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>enAlternative HealthCopyright Jill Woodworthhttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/6770d17a3f0ac101ebeff2ff327630cd.jpghttps://tsctalks.comWed, 06 May 2026 01:24:41 +0000Jill WoodworthJill Woodworthpjlacy6@gmail.comTSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>trueepisodicSupport the podcast!https://www.spreaker.com/episode/tsc-talks-3-0-not-research-in-the-stone-chamber--71883156no links 
except go watch the video. the audio just won't cut it on this one
https://youtu.be/bEIqg2lcDU0

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/71883156Wed, 06 May 2026 01:24:35 +0000Jill WoodworthTaking a break from the harsh closed loops and hunkering down in dis stone chamber to give a little freestyle riff for this episode from the stone chamber no links  except go watch the video. the audio just won't cut it on this one...no links 
except go watch the video. the audio just won't cut it on this one
https://youtu.be/bEIqg2lcDU0

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>189conundrum,history,medicalsystem,nature,podcast,reflection,stonechamber,stones,tuberoussclerosisfalse311fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-10--71730708
Source Links for Further Research
I. Rare Disease Advocacy and Funding (Conflicts of Interest)
[TSC Alliance: Corporate Policies](https://www.tscalliance.org/about-tsc/corporate-policies/)
[TSC Alliance: COVID-19 Vaccine Position Statement](https://www.tscalliance.org/wp-content/uploads/2021/08/TSC-Alliance-COVID-19-Vaccine-Position-Statement-Update-August-2021-FINAL.pdf)
[TSC Alliance: Phenotypic Variability Research](https://www.tscalliance.org/tsc-matters/phenotypic-variability-in-tuberous-sclerosis-complex-tsc/)
[TSC Alliance: 2024 Talking Points](https://www.tscalliance.org/wp-content/uploads/2024/01/2024-Talking-Points-Final.pdf)
[NORD: Mission and Values](https://rarediseases.org/about-us/mission-values/)
[NORD: Research Grant Programs](https://rarediseases.org/advancing-research/research-grant-programs/) 
[EURORDIS: Our Funding](https://www.eurordis.org/who-we-are/our-funding/)
[Mass General: Herscot $50 Million Gift](https://giving.massgeneral.org/stories/herscots-make-50-million-gift-to-mass-general)
[NEJM: Industry Support for Patient Advocacy](https://www.nejm.org/doi/full/10.1056/NEJMsr1610625)
II. Gene Therapy (CRISPR), Risks, and Regulation 
[FDA: Cellular & Gene Therapy Products](https://www.fda.gov/vaccines-blood-biologics/cellular-gene-therapy-products)
[CRISPR-Cas9 Off-Target Effects (Synthego)](https://www.synthego.com/blog/crispr-off-target-editing/)
[CRISPR: Genome Engineering Advantages and Limitations (Taconic)](https://www.taconic.com/resources/crispr-genome-engineering-advantages-limitations)
[FDA: Regulatory Distinctions for Cell and Gene Therapies (LinkedIn)](https://www.linkedin.com/pulse/fda-vs-ema-key-regulatory-distinctions-cell-gene-therapies-ywzye) [Informed Consent and Clinical Trials (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC2659702/) [Immune Evasion in Engineered CRISPR Enzymes (Broad Institute)](https://www.broadinstitute.org/news/scientists-engineer-crispr-enzymes-evade-immune-system) [The Ethics of Gene Editing (Innovative Genomics)](https://innovativegenomics.org/crisprpedia/crispr-ethics/)
III. Vaccines, Toxins, and Environmental Amplification 
[TSC Drug Market & Prevalence (OpenPR)](https://www.openpr.com/news/3536609/tuberous-sclerosis-complex-drug-market-2034-epidemiology)
[Vaccines and the Rise in Pediatric Cancer (The Vaccine Reaction)](https://thevaccinereaction.org/2018/05/is-there-a-link-between-vaccines-and-the-rise-in-pediatric-cancer/) 
[Study of Vaccinated and Unvaccinated Children (Weston A. Price)](https://www.westonaprice.org/health-topics/vaccinations/chronic-disease-a-study-of-vaccinated-and-unvaccinated-children/#gsc.tab=0)
[Role of Environmental Toxins in Epigenetic Dysregulation (PLM Institute)](https://plminstitute.org/plmi-blog/the-role-of-environmental-toxins-in-epigenetic-dysregulation/) [Childhood Vaccination Schedule Explosion (Twitter - NVICLoeDown)](https://twitter.com/NVICLoeDown/status/1687176816774033408) [COVID-19 Vaccine Added to Childhood Schedule (Children's Health Defense)](https://childrenshealthdefense.org/defender/childhood-covid-vaccine-schedule/) [The Role of Environmental Exposures in Genetic Disease (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC4021822/)
IV. Alternative and Holistic Approaches
[Ketogenic Diet Inhibits the mTOR Pathway (AESnet)](https://aesnet.org/abstractslisting/the-ketogenic-diet-inhibits-the-mammalian-target-of-rapamycin-\(mtor\)-pathway)
[Ketogenic Diet for Epilepsy in TSC (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC5540690/) [Curcumin Inhibits mTOR Activity (ScienceDirect)](https://www.sciencedirect.com/science/article/abs/pii/S0944711318304860)
[Natural Treatment for TSC (Inspire Forum)](https://www.inspire.com/groups/tuberous-sclerosis-complex/discussion/natural-treatment-for-tsc/)
[Natural Products and Patenting (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC8521639/) [Anti-Inflammatory Living (Holistic Health Code)](https://www.holistichealthcode.com/articles/unlocking-metabolic-health)
contact Jill: pjlacy6@gmail.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/71730708Wed, 29 Apr 2026 11:26:31 +0000Jill WoodworthI bust through the third wall or whatevs in Episode 10 of TSC Talks 3.0 Research. Dropped the whiteboard til the end. Summed up the 9 episodes and added a bit on the end about CPTSD, TAND and the fact that the entire family system is drawn into the...
Source Links for Further Research
I. Rare Disease Advocacy and Funding (Conflicts of Interest)
[TSC Alliance: Corporate Policies](https://www.tscalliance.org/about-tsc/corporate-policies/)
[TSC Alliance: COVID-19 Vaccine Position Statement](https://www.tscalliance.org/wp-content/uploads/2021/08/TSC-Alliance-COVID-19-Vaccine-Position-Statement-Update-August-2021-FINAL.pdf)
[TSC Alliance: Phenotypic Variability Research](https://www.tscalliance.org/tsc-matters/phenotypic-variability-in-tuberous-sclerosis-complex-tsc/)
[TSC Alliance: 2024 Talking Points](https://www.tscalliance.org/wp-content/uploads/2024/01/2024-Talking-Points-Final.pdf)
[NORD: Mission and Values](https://rarediseases.org/about-us/mission-values/)
[NORD: Research Grant Programs](https://rarediseases.org/advancing-research/research-grant-programs/) 
[EURORDIS: Our Funding](https://www.eurordis.org/who-we-are/our-funding/)
[Mass General: Herscot $50 Million Gift](https://giving.massgeneral.org/stories/herscots-make-50-million-gift-to-mass-general)
[NEJM: Industry Support for Patient Advocacy](https://www.nejm.org/doi/full/10.1056/NEJMsr1610625)
II. Gene Therapy (CRISPR), Risks, and Regulation 
[FDA: Cellular & Gene Therapy Products](https://www.fda.gov/vaccines-blood-biologics/cellular-gene-therapy-products)
[CRISPR-Cas9 Off-Target Effects (Synthego)](https://www.synthego.com/blog/crispr-off-target-editing/)
[CRISPR: Genome Engineering Advantages and Limitations (Taconic)](https://www.taconic.com/resources/crispr-genome-engineering-advantages-limitations)
[FDA: Regulatory Distinctions for Cell and Gene Therapies (LinkedIn)](https://www.linkedin.com/pulse/fda-vs-ema-key-regulatory-distinctions-cell-gene-therapies-ywzye) [Informed Consent and Clinical Trials (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC2659702/) [Immune Evasion in Engineered CRISPR Enzymes (Broad Institute)](https://www.broadinstitute.org/news/scientists-engineer-crispr-enzymes-evade-immune-system) [The Ethics of Gene Editing (Innovative Genomics)](https://innovativegenomics.org/crisprpedia/crispr-ethics/)
III. Vaccines, Toxins, and Environmental Amplification 
[TSC Drug Market & Prevalence (OpenPR)](https://www.openpr.com/news/3536609/tuberous-sclerosis-complex-drug-market-2034-epidemiology)
[Vaccines and the Rise in Pediatric Cancer (The Vaccine Reaction)](https://thevaccinereaction.org/2018/05/is-there-a-link-between-vaccines-and-the-rise-in-pediatric-cancer/) 
[Study of Vaccinated and Unvaccinated Children (Weston A. Price)](https://www.westonaprice.org/health-topics/vaccinations/chronic-disease-a-study-of-vaccinated-and-unvaccinated-children/#gsc.tab=0)
[Role of Environmental Toxins in Epigenetic Dysregulation (PLM Institute)](https://plminstitute.org/plmi-blog/the-role-of-environmental-toxins-in-epigenetic-dysregulation/) [Childhood Vaccination Schedule Explosion (Twitter - NVICLoeDown)](https://twitter.com/NVICLoeDown/status/1687176816774033408) [COVID-19 Vaccine Added to Childhood Schedule (Children's Health Defense)](https://childrenshealthdefense.org/defender/childhood-covid-vaccine-schedule/) [The Role of Environmental Exposures in Genetic Disease (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC4021822/)
IV. Alternative and Holistic Approaches
[Ketogenic Diet Inhibits the mTOR Pathway...]]>2156cptsd,crispr,epilepsy,geneediting,ketogenicdiet,raredisease,tand,trauma,tsc,tuberoussclerosiscomplex,vaccinesfalse310fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-9--71552367
Full list of links: https://docs.google.com/document/d/e/2PACX-1vQv_yBMqtFvxQmhm31TXozv20_nEGxCTwjUCclYrEK2yE9NGR6rQqc1GyMsA76lUNtNrZda-FF_Z2IM/pub


Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/71552367Wed, 22 Apr 2026 11:14:16 +0000Jill WoodworthIn this episode, I get into mitigation strategies related to the increasing reliance on tech with the arrival of 6G particularly for those living with a chronic and or rare disease that is on multiple medications and dependent on the grid. What would...
Full list of links: https://docs.google.com/document/d/e/2PACX-1vQv_yBMqtFvxQmhm31TXozv20_nEGxCTwjUCclYrEK2yE9NGR6rQqc1GyMsA76lUNtNrZda-FF_Z2IM/pub


Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>21646g,cptsd,emf,grounding,soundtherapy,tand,tsc,tuberoussclerosisfalse39fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-8--71342129Links:
mindandbodyexercises.com
https://medium.com
https://maescenter.com
rockarch.org
tikvahhealthandwellness.com
nih.gov
nih.gov
nutritiondiagnostics.com.au
nih.gov
psychologytoday.com
nih.gov
mcgill.ca
chop.edu
https://historyofvaccines.org
nih.gov
jpeds.com
https://time.com
nih.gov
nih.gov
nih.gov
2minutemedicine.com
nih.gov
nih.gov
sciencedirect.com
nih.gov
cdc.gov
nih.gov
https://richd.org
nih.gov
wikipedia.org
empr.com
https://historyofvaccines.org
https://drgreenmom.com
mayoclinic.org
kaiserpermanente.org
nih.gov
kff.org
forbes.com
itu.int
ciocoverage.com
https://studyfinds.org

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/71342129Wed, 15 Apr 2026 12:34:01 +0000Jill WoodworthEpisode 8 of TSC Talks 3.0 Research... continuing on with the extensive history of the rare disease Tuberous Sclerosis Complex, the set up for data harvesting and gene editing and the inevitability of enhanced grid adhesion. Woohoo! Next episode I'm...Links:
mindandbodyexercises.com
https://medium.com
https://maescenter.com
rockarch.org
tikvahhealthandwellness.com
nih.gov
nih.gov
nutritiondiagnostics.com.au
nih.gov
psychologytoday.com
nih.gov
mcgill.ca
chop.edu
https://historyofvaccines.org
nih.gov
jpeds.com
https://time.com
nih.gov
nih.gov
nih.gov
2minutemedicine.com
nih.gov
nih.gov
sciencedirect.com
nih.gov
cdc.gov
nih.gov
https://richd.org
nih.gov
wikipedia.org
empr.com
https://historyofvaccines.org
https://drgreenmom.com
mayoclinic.org
kaiserpermanente.org
nih.gov
kff.org
forbes.com
1800crispr,epigenetics,geneediting,tsc,tuberoussclerosisfalse38fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-7--71169916they're juicing it.
Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simplicity"...
Just my opinion?
I welcome all listeners and critical thinkers.
📚 Primary Research & Databases PubMed Central (Full-Text Archive): https://pmc.ncbi.nlm.nih.gov
PubMed (Citations & Abstracts): https://pubmed.ncbi.nlm.nih.gov
ScienceDirect: sciencedirect.com
Wiley Online Library: https://onlinelibrary.wiley.com
Springer Link: https://link.springer.com
ResearchGate: researchgate.net Academia.edu: academia.edu
🏥 Health Organizations & Agencies NIH / National Library of Medicine: https://www.ncbi.nlm.nih.gov
NINDS (Neurological Disorders): https://www.ninds.nih.gov
MedlinePlus: https://medlineplus.gov
HRSA (Health Resources): hrsa.gov
Texas Children’s Hospital: texaschildrens.org
TSC Alliance: tscalliance.org
Epilepsy Foundation: epilepsy.com
🔬 Specialized Medical Journals
The Lancet: thelancet.com Pediatric Neurology: pedneur.com
Neurotherapeutics: neurotherapeuticsjournal.org
Frontiers in Science: frontiersin.org eLife Sciences: https://elifesciences.org
AMA Journal of Ethics: ama-assn.org
AAP Publications: aap.org ACR Journals: https://acrjournals.onlinelibrary.wiley.com
ACR Abstracts: https://acrabstracts.org
2 Minute Medicine: https://www.2minutemedicine.com
📰 News, Legal & Historical Context
TIME Magazine: https://time.com
Medical Xpress: https://medicalxpress.com
History of Vaccines: https://historyofvaccines.org
Texas Vaccine Lawyers: texasvaccinelawyers.com
Digital Commons (Rockefeller): rockefeller.edu HealthCentral: healthcentral.com Changing Aging: https://changingaging.org
Medium: https://medium.com
Meridian Health Clinic: https://meridianhealthclinic.com
Wikipedia: wikipedia.org WikiDoc: wikidoc.org
contact Jill ~ pjlacy6@gmail.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/71169916Wed, 08 Apr 2026 01:10:41 +0000Jill WoodworthThe history of Tuberous Sclerosis Complex. they're juicing it. Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simplicity"... Just my opinion? I welcome all listeners...they're juicing it.
Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simplicity"...
Just my opinion?
I welcome all listeners and critical thinkers.
📚 Primary Research & Databases PubMed Central (Full-Text Archive): https://pmc.ncbi.nlm.nih.gov
PubMed (Citations & Abstracts): https://pubmed.ncbi.nlm.nih.gov
ScienceDirect: sciencedirect.com
Wiley Online Library: https://onlinelibrary.wiley.com
Springer Link: https://link.springer.com
ResearchGate: researchgate.net Academia.edu: academia.edu
🏥 Health Organizations & Agencies NIH / National Library of Medicine: https://www.ncbi.nlm.nih.gov
NINDS (Neurological Disorders): https://www.ninds.nih.gov
MedlinePlus: https://medlineplus.gov
HRSA (Health Resources): hrsa.gov
Texas Children’s Hospital: texaschildrens.org
TSC Alliance: tscalliance.org
Epilepsy Foundation: epilepsy.com
🔬 Specialized Medical Journals
The Lancet: thelancet.com Pediatric Neurology: pedneur.com
Neurotherapeutics: neurotherapeuticsjournal.org
Frontiers in Science: frontiersin.org eLife Sciences: https://elifesciences.org
AMA Journal of Ethics: ama-assn.org
AAP Publications: aap.org ACR Journals: https://acrjournals.onlinelibrary.wiley.com
ACR Abstracts: https://acrabstracts.org
2 Minute Medicine: https://www.2minutemedicine.com
📰 News, Legal & Historical Context
TIME Magazine: https://time.com
Medical Xpress: https://medicalxpress.com
History of Vaccines: https://historyofvaccines.org
Texas Vaccine Lawyers: texasvaccinelawyers.com
Digital Commons (Rockefeller): rockefeller.edu HealthCentral: healthcentral.com Changing Aging: https://changingaging.org
Medium: https://medium.com
Meridian Health Clinic: https://meridianhealthclinic.com
Wikipedia: wikipedia.org WikiDoc: wikidoc.org
contact Jill ~ pjlacy6@gmail.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2029biodigitalconvergence,crispr,epilepsy,eugenics,geneediting,genetics,history,human2.0,humanaugmentation,mtor,raredisease,rockefeller,transhumanism,tsc,tuberoussclerosisfalse37fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-6--71048885YouTube Video: https://youtu.be/OqLKIZ7Q54s?si=8svWmKHp4ekiFOnR
Links: https://www.liebertpub.com/doi/10.1089/crispr.2024.0079 
https://pubmed.ncbi.nlm.nih.gov/39654514/ 
https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7793581/ 
https://innovativegenomics.org/news/crispr-clinical-trials-2026/ https://frontlinegenomics.com/sickle-cell-disease-a-2024-update/ epidiolexhcp.com 
nih.gov 
sciencedaily.com 
https://www.researchgate.net/publication/348347376_Gene_therapy_for_tuberous_sclerosis_complex_type_2_in_a_mouse_model_by_delivery_of_AAV9_encoding_a_condensed_form_of_tuberin globalgenes.org neurologylive.com berkeley.edu ccf.org

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/71048885Wed, 01 Apr 2026 18:41:07 +0000Jill WoodworthIn Episode 6 of TSC Talks Research 3.0, I finish up the discussion of CRISPR and TSC and the trajectory, I get into cannabis and the way they've deglimmered exploration of consciousness for those with rare diseases on hefty meds and how this relates...YouTube Video: https://youtu.be/OqLKIZ7Q54s?si=8svWmKHp4ekiFOnR
Links: https://www.liebertpub.com/doi/10.1089/crispr.2024.0079 
https://pubmed.ncbi.nlm.nih.gov/39654514/ 
https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7793581/ 
https://innovativegenomics.org/news/crispr-clinical-trials-2026/ https://frontlinegenomics.com/sickle-cell-disease-a-2024-update/ epidiolexhcp.com 
nih.gov 
sciencedaily.com 
https://www.researchgate.net/publication/348347376_Gene_therapy_for_tuberous_sclerosis_complex_type_2_in_a_mouse_model_by_delivery_of_AAV9_encoding_a_condensed_form_of_tuberin globalgenes.org neurologylive.com berkeley.edu ccf.org

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1920biodigitalconvergence,cannabis,cbd,crispr,epidiolex,geneediting,rarediseases,tuberoussclerosisfalse36fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-5--70869287
LINKS:
pmc.ncbi.nlm.nih.gov
pubmed.ncbi.nlm.nih.gov
https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/
https://cdmrp.health.mil/tscrp/default
http://tuberous-sclerosis.org/research/tsa-funded-research/
https://www.mdpi.com/2075-1729/15/3/368
https://www.tscalliance.org/wp-content/uploads/2023/02/Training-Packet-Documents.pdf
https://pmc.ncbi.nlm.nih.gov/articles/PMC3010088/
https://pmc.ncbi.nlm.nih.gov/articles/PMC4527140/
https://pubmed.ncbi.nlm.nih.gov/19028034/
https://pmc.ncbi.nlm.nih.gov/articles/PMC6851053/
https://www.youtube.com/watch?v=hXRRq-dFuYg
https://www.youtube.com/watch?v=Hu2TvhhdEHY
https://www.youtube.com/watch?v=BFuXttZspaY
https://pmc.ncbi.nlm.nih.gov/articles/PMC5727703/
https://globalgenes.org/raredaily/transforming-tsc-epilepsy-with-a-precision-therapy/
https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/
https://pmc.ncbi.nlm.nih.gov/articles/PMC3164024/
https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/
https://www.biorxiv.org/content/10.1101/2024.02.22.581652v1.full-text
https://pmc.ncbi.nlm.nih.gov/articles/PMC6408922/
https://www.mdpi.com/2076-3417/14/3/1132
https://pmc.ncbi.nlm.nih.gov/articles/PMC3744999/
https://www.researchgate.net/publication/24217930_Magnetically_Responsive_Nanoparticles_for_Drug_Delivery_Applications_Using_Low_Magnetic_Field_Strengths
https://pmc.ncbi.nlm.nih.gov/articles/PMC2933363/
https://pmc.ncbi.nlm.nih.gov/articles/PMC7998448/
https://pmc.ncbi.nlm.nih.gov/articles/PMC9230665/


Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/70869287Wed, 25 Mar 2026 11:00:56 +0000Jill WoodworthIn this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this new technology, and my theories with documentation...
LINKS:
pmc.ncbi.nlm.nih.gov
pubmed.ncbi.nlm.nih.gov
https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/
https://cdmrp.health.mil/tscrp/default
http://tuberous-sclerosis.org/research/tsa-funded-research/
https://www.mdpi.com/2075-1729/15/3/368
https://www.tscalliance.org/wp-content/uploads/2023/02/Training-Packet-Documents.pdf
https://pmc.ncbi.nlm.nih.gov/articles/PMC3010088/
https://pmc.ncbi.nlm.nih.gov/articles/PMC4527140/
https://pubmed.ncbi.nlm.nih.gov/19028034/
https://pmc.ncbi.nlm.nih.gov/articles/PMC6851053/
https://www.youtube.com/watch?v=hXRRq-dFuYg
https://www.youtube.com/watch?v=Hu2TvhhdEHY
https://www.youtube.com/watch?v=BFuXttZspaY
https://pmc.ncbi.nlm.nih.gov/articles/PMC5727703/
https://globalgenes.org/raredaily/transforming-tsc-epilepsy-with-a-precision-therapy/
https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/
https://pmc.ncbi.nlm.nih.gov/articles/PMC3164024/
https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/1736biodigitalconvergence,cas9,crispr,geneediting,raredisease,tuberoussclerosis,tuberoussclerosiscomplexfalse35fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-4--70716062Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome such as environmental (vaccines included) amplifications so they can justify the need for gene therapy via crispr, etchttps://rarediseases.org/about-us/financials-governance/
https://rarediseases.org/collection/nord-financials/
https://rarediseases.org/nord-releases-report-on-the-state-of-rare-disease-diagnosis-care-and-treatment-in-america-over-three-decades/
https://rarediseases.org/nord-state-report-card/
rarediseases.org
https://rarediseases.org/wp-content/uploads/2022/10/NORD_2020_Annual-Report_wFinancials.pdf
https://rarediseases.org/wp-content/uploads/2022/01/NORD_2020_Annual-Report_FINAL_SpreadView_web.pdf
https://rarediseases.org/wp-content/uploads/2022/10/NRD-1198-2019_Annual-Report_FNL_WebSize.pdf
https://www.eurordis.org/who-we-are/our-funding/
https://www.eurordis.org/who-we-are/projects-and-partnerships/
https://www.eurordis.org/partnerships/
https://www.eurordis.org/get-involved/join-the-eurordis-round-table-of-companies/
https://www.eurordis.org/publications/eurordis-policy-on-financial-support-by-commercial-companies-2/
https://www.eurordis.org/our-priorities/research/
https://www.eurordis.org/eurordis-supports-member-states-efforts-operating-grants-reintroduction/
https://www.eurordis.org/videos/rare-but-real-talking-rare-diseases-part-1-6/
download2.eurordis.org
vzacna-onemocneni.cz
https://everylifefoundation.org/rare-hub/rare-hub-partners-current-1-3/
https://everylifefoundation.org/financial-support/
https://everylifefoundation.org/everylifeeveryaction/
https://everylifefoundation.org/sitemap/
https://everylifefoundation.org/wp-content/uploads/2025/08/ELF-AnnualReport-2024-8.5x11-Proof-v6-081225.pdf
https://everylifefoundation.org/wp-content/uploads/2022/01/Guide-to-Patient-Involvement-FINAL-COMPLETE-GUIDE-Rev.pdf
https://everylifefoundation.org/wp-content/uploads/2016/05/Industry-Brochure-FINAL-May-2016.pdf


Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/70716062Wed, 18 Mar 2026 12:45:26 +0000Jill WoodworthTSC Talks 3.0 Research, Episode 4 Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome...Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome such as environmental (vaccines included) amplifications so they can justify the need for gene therapy via crispr, etchttps://rarediseases.org/about-us/financials-governance/
https://rarediseases.org/collection/nord-financials/
https://rarediseases.org/nord-releases-report-on-the-state-of-rare-disease-diagnosis-care-and-treatment-in-america-over-three-decades/
https://rarediseases.org/nord-state-report-card/
rarediseases.org
https://rarediseases.org/wp-content/uploads/2022/10/NORD_2020_Annual-Report_wFinancials.pdf
https://rarediseases.org/wp-content/uploads/2022/01/NORD_2020_Annual-Report_FINAL_SpreadView_web.pdf
https://rarediseases.org/wp-content/uploads/2022/10/NRD-1198-2019_Annual-Report_FNL_WebSize.pdf
https://www.eurordis.org/who-we-are/our-funding/
https://www.eurordis.org/who-we-are/projects-and-partnerships/
https://www.eurordis.org/partnerships/
https://www.eurordis.org/get-involved/join-the-eurordis-round-table-of-companies/
https://www.eurordis.org/publications/eurordis-policy-on-financial-support-by-commercial-companies-2/
https://www.eurordis.org/our-priorities/research/
https://www.eurordis.org/eurordis-supports-member-states-efforts-operating-grants-reintroduction/
https://www.eurordis.org/videos/rare-but-real-talking-rare-diseases-part-1-6/
download2.eurordis.org
vzacna-onemocneni.cz
1814crispr,geneediting,raredisease,tuberoussclerosisfalse34fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-3--70636885I drill down with the AI on the reality of what is happening in the rare disease expanse. The full expanse it's not explored we are jumping right into gene editing, like using whiteout, it isn't quite the same. It's a closed loop system. That is for sure.
links:
https://www.ninds.nih.gov/health-information/disorders/tuberous-sclerosis-complex#
https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/
https://www.ncbi.nlm.nih.gov/books/NBK1220/#
https://patienteducation.asgct.org/understanding-cell-gene-therapy/ethical-issues-germline-gene-editing#
https://pmc.ncbi.nlm.nih.gov/articles/PMC12103018/#
https://pubmed.ncbi.nlm.nih.gov/6873497/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC6277505/#
https://www.researchgate.net/publication/326455213_Incidence_of_tuberous_sclerosis_and_age_at_first_diagnosis_new_data_and_emerging_trends_from_a_national_prospective_surveillance_study
https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/#
https://www.slu.edu/law/health/blog/2024/vence-bonham-dss.php#
https://tuberoussclerosiscenter.wustl.edu/about-tsc/causes/#
https://www.ncbi.nlm.nih.gov/books/NBK535878/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC5524257/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC5100696/#
https://link.springer.com/article/10.1007/s11569-025-00479-8#
https://www.ncbi.nlm.nih.gov/books/NBK535877/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC11306935/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC10338708/
https://www.thehastingscenter.org/genetic-therapies-for-rare-diseases-developing-ethical-regulatory-policies/#
https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/education/high-school-bioethics-project/learning-scenarios/jesse-gelsinger-case
https://www.cliffsnotes.com/cliffs-questions/5224266#
https://www.bstquarterly.com/article/using-synthetic-biology-to-create-therapeutic-solutions/#
https://www.sciencedirect.com/science/article/pii/S1359644621001574
https://www.sciencedirect.com/science/article/abs/pii/S1359644621001574#

#raredisease #TuberousSclerosisComplex #GeneEditing

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/70636885Sat, 14 Mar 2026 17:16:35 +0000Jill WoodworthEpisode 3 of TSC Talks 3.0 Research I drill down with the AI on the reality of what is happening in the rare disease expanse. The full expanse it's not explored we are jumping right into gene editing, like using whiteout, it isn't quite the same. It's...I drill down with the AI on the reality of what is happening in the rare disease expanse. The full expanse it's not explored we are jumping right into gene editing, like using whiteout, it isn't quite the same. It's a closed loop system. That is for sure.
links:
https://www.ninds.nih.gov/health-information/disorders/tuberous-sclerosis-complex#
https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/
https://www.ncbi.nlm.nih.gov/books/NBK1220/#
https://patienteducation.asgct.org/understanding-cell-gene-therapy/ethical-issues-germline-gene-editing#
https://pmc.ncbi.nlm.nih.gov/articles/PMC12103018/#
https://pubmed.ncbi.nlm.nih.gov/6873497/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC6277505/#
https://www.researchgate.net/publication/326455213_Incidence_of_tuberous_sclerosis_and_age_at_first_diagnosis_new_data_and_emerging_trends_from_a_national_prospective_surveillance_study
https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/#
https://www.slu.edu/law/health/blog/2024/vence-bonham-dss.php#
https://tuberoussclerosiscenter.wustl.edu/about-tsc/causes/#
https://www.ncbi.nlm.nih.gov/books/NBK535878/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC5524257/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC5100696/#
https://link.springer.com/article/10.1007/s11569-025-00479-8#
https://www.ncbi.nlm.nih.gov/books/NBK535877/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC11306935/#
https://pmc.ncbi.nlm.nih.gov/articles/PMC10338708/
https://www.thehastingscenter.org/genetic-therapies-for-rare-diseases-developing-ethical-regulatory-policies/#
1422biofield,crispr,geneediting,raredisease,tuberoussclerosisfalse33fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-2--70426088An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. I picked up where I left off with Episode 1 and talk through Epigenetic "Switches", Gut-Brain Axis and Neuroinflammation, Why Researchers Are Skipping These Links, Potential Reasons for the Research Focus, Funding and Corporate Partnerships, Neuroinflammation Research, The "TAND" Project (TSC-Associated Neuropsychiatric Disorders), The PREVENT Trial, Basic Science and "Somatic Mosaicism", The "Funding Gap" regarding Conflicts of Interest, The Logic of the "Omission", Lived Experience vs. "Proven" Science,Why It Feels "Diabolical" & Finding the "Clean" Data https://www.mdpi.com/1422-0067/22/14/7273 https://pmc.ncbi.nlm.nih.gov/articles/PMC11275973/ https://www.ncbi.nlm.nih.gov/books/NBK206940/ https://www.nature.com/articles/s41398-024-02752-y https://clinicaltrials.gov/study/NCT01289912 https://pmc.ncbi.nlm.nih.gov/articles/PMC9253752/ https://www.intechopen.com/chapters/82669 https://pmc.ncbi.nlm.nih.gov/articles/PMC6748183/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6278824/ https://www.nature.com/articles/s41439-022-00181-1 https://pmc.ncbi.nlm.nih.gov/articles/PMC3035853/ https://pmc.ncbi.nlm.nih.gov/articles/PMC5804531/ https://pubmed.ncbi.nlm.nih.gov/40558831/ https://docs.google.com/document/d/1ncDHvfDHkzVd1-H4Xgulz-mhSZxhwhydK6jWln90L5E/ (contact pjlacy6@gmail.com for access)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/70426088Tue, 03 Mar 2026 21:46:38 +0000Jill Woodworth​Episode 2 of ongoing research on Tuberous Sclerosis Complex based on the query~Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?" An exchange with Google AI mode in reference to the above query with the intention of making it clear the...An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. I picked up where I left off with Episode 1 and talk through Epigenetic "Switches", Gut-Brain Axis and Neuroinflammation, Why Researchers Are Skipping These Links, Potential Reasons for the Research Focus, Funding and Corporate Partnerships, Neuroinflammation Research, The "TAND" Project (TSC-Associated Neuropsychiatric Disorders), The PREVENT Trial, Basic Science and "Somatic Mosaicism", The "Funding Gap" regarding Conflicts of Interest, The Logic of the "Omission", Lived Experience vs. "Proven" Science,Why It Feels "Diabolical" & Finding the "Clean" Data https://www.mdpi.com/1422-0067/22/14/7273 https://pmc.ncbi.nlm.nih.gov/articles/PMC11275973/ https://www.ncbi.nlm.nih.gov/books/NBK206940/ https://www.nature.com/articles/s41398-024-02752-y https://clinicaltrials.gov/study/NCT01289912 https://pmc.ncbi.nlm.nih.gov/articles/PMC9253752/ https://www.intechopen.com/chapters/82669 https://pmc.ncbi.nlm.nih.gov/articles/PMC6748183/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6278824/ https://www.nature.com/articles/s41439-022-00181-1 https://pmc.ncbi.nlm.nih.gov/articles/PMC3035853/ https://pmc.ncbi.nlm.nih.gov/articles/PMC5804531/ https://pubmed.ncbi.nlm.nih.gov/40558831/ https://docs.google.com/document/d/1ncDHvfDHkzVd1-H4Xgulz-mhSZxhwhydK6jWln90L5E/ (contact pjlacy6@gmail.com for access)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1424crispr,epigenetics,geneediting,raredisease,tuberoussclerosisfalse32fullhttps://www.spreaker.com/episode/tsc-talks-3-0-research-episode-1--70394957https://youtu.be/lZKqFZWnp0c Here's a link to the queries. https://share.google/aimode/mwKaYPnKgzw54cs76












Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/70394957Mon, 02 Mar 2026 19:30:50 +0000Jill Woodworth"Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?" An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological...https://youtu.be/lZKqFZWnp0c Here's a link to the queries. https://share.google/aimode/mwKaYPnKgzw54cs76












Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1516crispr,crisprcas9,geneediting,toxins,tuberoussclerosis,vaccineinjuryfalse31fullhttps://www.spreaker.com/episode/tsc-talks-revival-justin-leslie-of-project-whistleblower-truth-under-fire--59091890https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.  

In "Project Whistleblower" Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition.

During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe.

In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling." (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/)
Contact info for Justin!
Justin Leslie: https://justintegrity.net/
Justin’s Linktree: https://linktr.ee/justinleslie
Contact: justinleslie3@protonmail.com
Donate to Justin's work: https://www.givesendgo.com/ProjectWhistleblower

WATCH THE DOCUMENTARY HERE:  https://justintegrity.net/project-whistleblower/
Produced by: https://linktr.ee.com/jillwoodworth https://jillwoodworth.com

Short clip produced by @jillwoodworth
https://jillwoodworth.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/59091890Mon, 18 Mar 2024 20:35:01 +0000Jill WoodworthThis is a special edition, TSC Talks Revival episode with Justin Leslie! Justin is an ex-Pfizer scientist and whistleblower. Justin was also one of my first guests on my podcast "TSC Talks" in 2018, (https://bit.ly/3Iz0FUU) where he shared his story...https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.  

In "Project Whistleblower" Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition.

During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe.

In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling." (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/)
Contact info for Justin!
Justin Leslie: https://justintegrity.net/
Justin’s Linktree: https://linktr.ee/justinleslie
Contact: justinleslie3@protonmail.com
Donate to Justin's work: https://www.givesendgo.com/ProjectWhistleblower

WATCH THE DOCUMENTARY HERE:  https://justintegrity.net/project-whistleblower/
Produced by: https://linktr.ee.com/jillwoodworth https://jillwoodworth.com

Short clip produced by @jillwoodworth
https://jillwoodworth.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>6367bigpharma,bohemiangrove,consciousness,covid,eua,halftruths,pfizer,pharmaceuticalindustry,polypharmacy,projectveritas,projectwhistleblower,raredisease,tuberoussclerosis,tuberoussclerosiscomplex,vaccines,whistleblowerfalsefullhttps://www.spreaker.com/episode/tsc-talks-final-podcast-wrapping-it-up-thanks--50305757
Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what's worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care.

Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one's reactions to other's sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we're all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

Thanks for tuning in and being here there and everywhere. It's been the pleasure of a lifetime to have the opportunity to create and share this work.

Love Jill

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/50305757Thu, 23 Jun 2022 15:42:24 +0000Jill WoodworthJill wraps up the podcast! I started in 2016 interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other...
Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what's worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care.

Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one's reactions to other's sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we're all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

Thanks for tuning in and being here there and everywhere. It's been the pleasure of a lifetime to have the opportunity to create and share this work.

Love Jill

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1511autism,cannabis,chronicillness,cptsd,finalepisode,health,lifewave,medical,medicaltrauma,mentalhealth,podcaster,polypharmacy,polyvagal,ptsd,specialneeds,specialneedsmom,spirituality,tand,trauma,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-linsey-hurley-holistic-health-coach-working-with-cutting-edge-energy-healing-technologies-silver-linings--49224798
Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below.

If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth
Here are a few links with some scientific info~
http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf
https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/
https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html
https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/
timestamps:
1-2:18 Introduction
2:18~Linsey’s story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer
3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system
3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she’s still here. She considers this a gift from her sister.
5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here
5:57~Linsey’s sister is still with her
6:32~Start of discussion on X39 patches which support the body’s natural systems
7:23~the body is brilliant! We can support it in the way it wants to heal
7:45~FDA glitch at beginning of the pandemic, Linsey could not use regular tools such as the Beamer and was led to X39 patches
8:06~X39 patches are a frequency device that activates the body’s stem cells.
8:37~A discussion of exactly what stem cell therapy is, what’s involved, the expense, often making it inaccessible and usually used as a last-ditch effort when all else has failed
9:53~further explanation of the patch, non-transdermal, made of amino acids and salt crystals, activates different reactions In the body
10:36~the science is putting frequencies on the skin that cause other reactions leading to doing some healing
11:04~David Schmidt is a scientist who was hired by the Navy to develop a patch for Navy Seals to replace amphetamines
12:02~Linsey uses a lot of patches now she has all her grandchildren living with her~more patches have been developed
12:24~David Schmidt brought this technology to a friend who was a coach of UCLA swimming, he’s been developing and working on it ever since. Different patches are all based on the frequency
13:15~X39 patch is the holy grail -activates GHK Copper Peptides that decline with age
14:10~It’s just actually about age reversal, have had a 70-year-old test with the body of a 50-year-old
15:00~Helps with all kinds of degenerative diseases, many testimonials, MS, Parkinson’s
16:17~comparison of different frequency devices, AO Scan, Beamer, all are wonderful and if possible used right now to get through these times when we are bombarded with energies, 5G, EMF…
17:20~Linsey had an autoimmune disorder, 15-20 years ago, had to quit her job, “3-year retreat”, trusted spirit, found Kangen water, another healing modality which was expensive but a good investment as she was able to heal.
20:29~Our healthcare systems are frustrating, organ-based, siloed, going from one drug to the next, Band-Aid instead of getting at the deeper reason for illness, no quality of life
22:06~Doctors educated at medical schools funded by big pharma and are taught nothing in regards to energy even though they use technology like MRIs which could be used in healing
23:18 Bruce Lipton~Placebo effect
24:00~Potential for special needs communities is huge with these patches, also for parents and caregivers
24:21~Only restriction is not to use the patches during chemotherapy as it will detox the chemo
25:05 If the patch effect is too strong, take it off for a few hours. Linsey’s experience with retracing
26:36~You won’t want to stop, you will see a decrease in results if you do not continue use, Linsey is very upfront about this. This is an out-of-the-box business paradigm and opportunity!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/49224798Mon, 28 Mar 2022 13:01:37 +0000Jill WoodworthI met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom!...
Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below.

If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth
Here are a few links with some scientific info~
http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf
https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/
https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html
https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/
timestamps:
1-2:18 Introduction
2:18~Linsey’s story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer
3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system
3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she’s still here. She considers this a gift from her sister.
5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here
5:57~Linsey’s sister is still with her
6:32~Start of discussion on X39 patches which support the body’s natural systems
7:23~the body is brilliant!...]]>1704falsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-part-two-leigh-anne-bianchi-founder-of-good-citizenship-project-activating-good-citizens--49038504I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits of the sort of unconventional programming Leigh Anne has developed through GCP and how this meets many of the huge gaping unmet needs for those individuals diagnosed with autism and other special needs that our systems of care have become too siloed and disconnected to address. “Developing a sense of meaning and purpose, social-emotional skills, work ethic, and peer relationships by volunteering, distributing donations, and supporting local farms.”

For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/ phone: (508) 868-0293 email: leighanne.bianchi143@gmail.com

Timestamps for part 2:
0-52 Intro
00:54- Antonio’s Waitress Olivia treats them like humans, the start of the discussion on sexuality and special needs
2:26 All the PC of working w/special needs has made sexuality issues really challenging. People taken advantage of, they are developmentally younger and no one talks about this
5:03 Karaoke, real-world situations help
5:28 Dashboard confessionals, you can say stuff without eye contact when conversations about penises and vaginas come out. Pediatricians recommend using scientific wording, Leigh Anne took all the training on autism/special needs and sexuality and can talk candidly.
9:27 Why questions, keep asking them. See the question behind the action. One client wanted to see Leigh Anne’s breasts, curiosity, she didn’t react or file a report but discussed it with him. So many lives could be ruined if everything is flagged as inappropriate. This population never gets to ask questions
11:06 Leigh Anne had to spend 5 minutes spend w/individual who had sex offender charges in ISP and Leigh Anne knew charges were not true-example
13:16 Paying for Good Citizenship Project….if you have an autism diagnosis, sometimes easier to get funding, agencies often don’t want to pick up those with autism but things changing and agencies can help you get funding to cover through DESE/Wraparound Family Services, Public Partnerships through Participant directed programming conduit, Private pay, PCA funds, DDS Family Respite funds
20:11 Leigh Anne should be paid more for all she offers. Charges $30/hour but will work with families. Leigh Anne does not have a BCBA or other letters after the name that would allow her to be recognized as a service agent but has the lived experience and work experience to exceed those with mere education
23:26 Becoming a non-profit would mean more strings attached, Johnny her horse would have to be certified as a therapy horse, her dog a pit bull mix, too many hoops to jump through. Jack couldn’t have used a log splitter!
26:31 Investor/philanthropist would be ideal with no strings attached. Leigh Anne took a chance w/Camp Marshall, wanting to partner and have it be her home base. If associated with an agency the volunteers would need to get paid. All benefits from GCP are not recognized as beneficial for many who don’t understand the depth of what she does.
31:31 Work to ride is an option or unpaid internship/apprenticeship. So much happens in learning these farm skills that is energetic…deciding how to perform tasks and learning from any mistakes, having the freedom to learn from mistakes like using a pitchfork instead of a shovel for a particular job…
34:21 Farmers giving the flexibility to figure out the approach to completing a job is helpful. So then it’s not regimented, can focus on the end results, not the niggling details and farmwork facilitates executive functioning in this area. Learning at the moment, the Montessori approach is part of Leigh Anne’s process
37:31 Give individual rules, allow them to screw up and figure it out is more powerful than reading how to do something in a book or being told what to do. Forced problem solving, you remember you had to take a different approach. This is empowering!
40:46 GCP NEEDS MONEY TO EXPAND! Fundraisers coming soon. Discussion of fundraisers
43:36 Looking for a home base with specific parameters. She needs to bring her animals. This has been challenging, small private barns are nervous to have special needs population-liability. Leigh Anne looking for a life in a caretaker position
46:21 Jack came in (Jill’s son who participates in GCP). Leigh Anne is looking for a situation where most of the labor at the new setting is done by members of the GCP. She screens applicants for a good match, meets parents and individuals, gives a grace period. Wants it known GCP is a for-profit not an agency.
49:01 But Leigh Anne is more than a job coach. The people she supports are part of her family. “So you want me to pay for you to force my kid to do slave labor” is some people’s attitude. No, they are learning transformative, resume-worthy skills.
51:11 Leigh Anne went to Salter College, able to be successful b/c was focused on one thing. There is real value in jobs that don’t require a degree. People do not see the scope of autism…Ford Motor Co was seeking to hire those on the Autism spectrum b/c of attention to detail/focus.
55:11 One of the goals of GCP is to raise awareness of what an autistic person looks like which has spread by word of mouth, inspiring others to think outside of the box in creating programs for this population. B/c of relationships developed through GCP, Leigh Anne has options-a temporary place to live if needed “if you do good things, they come back”. In our society many expect something in return for every little thing
60:11 Carla Bell is Leigh Anne’s business manager, helping her with a business plan and fundraising has worked in special ed
Thanks so much for listening!!! https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/49038504Sat, 12 Mar 2022 14:13:07 +0000Jill WoodworthSEE SHOW NOTES FOR PART ONE FOR MORE DETAIL! I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion...I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits of the sort of unconventional programming Leigh Anne has developed through GCP and how this meets many of the huge gaping unmet needs for those individuals diagnosed with autism and other special needs that our systems of care have become too siloed and disconnected to address. “Developing a sense of meaning and purpose, social-emotional skills, work ethic, and peer relationships by volunteering, distributing donations, and supporting local farms.”

For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/ phone: (508) 868-0293 email: leighanne.bianchi143@gmail.com

Timestamps for part 2:
0-52 Intro
00:54- Antonio’s Waitress Olivia treats them like humans, the start of the discussion on sexuality and special needs
2:26 All the PC of working w/special needs has made sexuality issues really challenging. People taken advantage of, they are developmentally younger and no one talks about this
5:03 Karaoke, real-world situations help
5:28 Dashboard confessionals, you can say stuff without eye contact when conversations about penises and vaginas come out. Pediatricians recommend using scientific wording, Leigh Anne took all the training on autism/special needs and sexuality and can talk candidly.
9:27 Why questions, keep asking them. See the question behind the action. One client wanted to see Leigh Anne’s breasts, curiosity, she didn’t react or file a report but discussed it with him. So many lives could be ruined if everything is flagged as inappropriate. This population never gets to ask questions
11:06 Leigh Anne had to spend 5 minutes spend w/individual who had sex offender charges in ISP and Leigh Anne knew charges were not true-example
13:16 Paying for Good Citizenship Project….if you have an autism diagnosis, sometimes easier to get funding, agencies often don’t want to pick up those with autism but things changing and agencies can help you get funding to cover through DESE/Wraparound Family Services, Public Partnerships through Participant directed programming conduit, Private pay, PCA funds, DDS Family Respite funds
20:11 Leigh Anne should be paid more for all she offers. Charges $30/hour but will work with families. Leigh Anne does not have a BCBA or other letters after the name that would allow her to be recognized as a service agent but has the lived experience and work experience to exceed those with mere education
23:26 Becoming a non-profit would mean more strings attached, Johnny her horse would have to be certified as a therapy horse, her dog a pit bull mix, too many hoops to jump through. Jack couldn’t have used a log splitter!
26:31 Investor/philanthropist would be ideal with no strings attached. Leigh Anne took a chance w/Camp Marshall, wanting to partner and have it be her home base. If associated with an agency the volunteers would need to get paid. All benefits from GCP are not recognized as beneficial for many who don’t understand the depth of what she does.
31:31 Work to ride is an option or unpaid internship/apprenticeship. So much happens in learning these farm skills that is energetic…deciding how to perform tasks and learning from any mistakes, having the freedom to learn from mistakes like using a pitchfork instead of a shovel for a particular job…
34:21 Farmers giving the flexibility to figure out the approach to completing a job is helpful. So then it’s not regimented, can focus on the end results, not the niggling details and farmwork facilitates executive functioning in this area. Learning at the moment, the Montessori approach is part of Leigh Anne’s process3727apprenticeship,autism,autismawareness,caretaker,dds,family,farming,forprofit,fundraising,intellectualdisabilities,internship,jobcoach,lifecoach,lifeskills,love,nonprofit,parenting,specialneeds,tuberoussclerosis,worktoridefalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-part-one-leigh-anne-bianchi-founder-of-good-citizenship-project-activating-good-citizens--49023846
In my opinion, what she shares are gems of vital importance. AS someone who carries a diagnosis of Autism AND has worked within our siloed and disconnected systems of care, she gets it on a whole new level. What is missing, what is needed. One of her most important assets is her ability to ask why and watch, observe what is going on without judgment or preconceived notions based on dogmatic teachings not relevant to real life. Leigh Anne IS real life. She knows how what and why to reach and engage kids who have often had no one their entire lives really see them. The energetics of the interactions are often the most important part and the very part of our offspring’s with special needs education that is rarely observed or explored. To do so freely requires unconventional programming and thinking and IS what will give these individuals deep embedded experience to carry forward and integrate into every aspect of their lives. Priceless.
So that being said, this is one of the most important discussions I’ve had to date on TSC Talks personally as my son Jack has benefitted immensely from participating in this sort of immersive, apprenticeship experience gaining valuable skills, both tangible and energetic. Here’s a recent description of gains made: “There's A LOT going on there when we're together. Not just the obvious, like physical fitness, and employment-based objectives, but Distress Tolerance, Mindfulness, Interpersonal Effectiveness, time management, generalizing skills, problem-solving.... learning how and when NOT to answer back to an authority figure. (Instead of saying, "I know," or "I was going to do that," when he clearly wasn't, just saying "OK.") We address that OFTEN. Staying on topic, being able to complete a task WHILE socializing...

Another example is planning. Looking at the task at hand (like cleaning a pen or stall) and being able to decide which tools you're going to need (the pen might require a garden rake and a metal pitchfork, vs. an aluminum shovel and a plastic pitchfork for the stall), and how to efficiently complete the task. Right now, he tends to be on autopilot at Jesse's, because he's done it before, and knows what tools to use. But if we go to a different barn/farm, he will sometimes just walk into the stall without any tools or automatically grab the tools that he'd use as Jesse's. But Jesse has brand-new rubber stall mats under the shavings, whereas other barns might have hard, packed-down dirt that is uneven, old, warped stall mats, or even slab cement under the shavings, which impacts the tools needed for the job. Additionally, the concept of 'using your head to save your feet and planning out the technique or way you're going to do something....like cleaning the stall of the older horse first so that you can put him in there to eat first since it takes him so long. Or, turning on the hose as you walk by it upon arrival, so you don't have to go all the way back out to the spigot when you're ready to fill waters” You get the idea.

For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/ phone: (508) 868-0293 email: leighanne.bianchi143@gmail.com

0-4:22 Introduction/opening comments
4:22 Formative years, Grandpa Frank, early signs of autism, overlooked in educational settings, temper, frustrations, family-supportive
6:42 Principal’s office, using a paddle, siblings with similarities
8:27 People on the spectrum are empathetic! Animals get it
9:52 Meeting Johnny-“he chose me”, a sucker for the underdog, …both dogs rescues, cats and house chicken!
12:12 Leigh Anne’s challenges-struggled through school, awareness of being different
12:47 Post grad programs-infuriating and necessary-started with good intentions but people not honest with students about reality
14:57 4 years in post grad almost wasted, doing worksheets, Leigh Anne shares story of a girl she worked with having to do preschool puzzles
17:02 Toileting-EIP avoided b/c it was assumed she was not going to ever use toilet but Leigh Anne noticed underdeveloped musculature~ “It’s amazing what you can figure out if you just pay attention a little bit” BCBA determines course of her future…. on a different track if cannot use toilet!
17:10 we need more people like you who presume competence!
19:57 Leigh Anne can see birds eye view on why the life skills programs are the way they are..too many kids, squeaky wheel/most intense needs, profound symptoms get attention and people with milder, more subtle issues fly under the radar
22:22 stop and look at why? Leigh Anne gives example with woman from Belchertown-only thing she could control was her bowels so used incontinence …give options and let her choose and always ask WHY is this happening?
26:02 So many things were out of young lady’s control, diagnosis can be a tool and a knife that cuts both ways
27:32 having a diagnosis can be helpful if you can handle it…
28:37 Rose colored glasses, person first language and pendulum swung other way for those turning 22. Leigh Anne thinks there should be required classes for parents, so they know what to expect when turning 22 and transitioning to adult services, etc.
32:29 Leigh Anne is UNCONVENTIONAL!! Case loads at DDS extreme, high turnover, problems with adequate staffing in group homes
33:16 GCP (good citizenship project) Started when she was working as a program coordinator at Seven Hills, minimal consequences for behavior with not realistic environment. Folks turning 22 smart, capable wonderful kids with potential and no self-awareness skills, minimal options
37:32 Nonprofit/volunteering issues, for profit volunteer issues, liability issues, not a lot of places for GCP so L.A. developed plan that you could not join GCP unless you had good attendance, no aggression, pitched to Phil Philbin (former head of Aspire) and GCP was started at Seven Hills
41:40 First event was a chili cook off, building community relations, thank firefighters, get constructive feedback, also hosted Friendsgiving, kids did all the work
43:44 GCP-you do nice things for other people without expectation of anything in return” You feel good when you do good things, and it will come back to you
46:32 Info on finding GCP, see above, no requirements for joining, Leigh Anne’s rules0deal with circumstances, weather, not for faint of heart, hard work
49:26 Jack’s response to GCP amazing. “A taste of success” from Better Off Dead 😊 get instant rewards with animals and practice. Very empowering
55:07 Emu Jersey is goofy, no boundaries, will nibble on jacket, kids will allow b/c it’s not a person so a way to practice
58:09 Leigh Anne was a Case manager, and she would never read up on clients b/c you form judgments
59:26 If you have a diagnosis and an IEP you’ve been taught how to judge first and think later
59:51 Leigh Anne wants members of GCP to have a sense of meaning and purpose, know how to speak up for themselves in an effective way
1:00:39 Jack, example fear of failing, etc
1:02:14 Unintended goals, squelching learned helplessness, parents often tired and will not give time for child to learn on their own
1:05:02Farm a great template, you need to keep yourself safe, level of self-responsibility required but they can find it!
1:07:09 Blend in to neurotypical, Leigh Anne wants to give tools, so life is not so difficult. Examples shared
1:08:37 Restaurant example-this population is not used to choosing, having discussions at a restaurant, taking pressure off
Stay tuned for Part 2!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/49023846Fri, 11 Mar 2022 01:54:34 +0000Jill WoodworthI had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits...
In my opinion, what she shares are gems of vital importance. AS someone who carries a diagnosis of Autism AND has worked within our siloed and disconnected systems of care, she gets it on a whole new level. What is missing, what is needed. One of her most important assets is her ability to ask why and watch, observe what is going on without judgment or preconceived notions based on dogmatic teachings not relevant to real life. Leigh Anne IS real life. She knows how what and why to reach and engage kids who have often had no one their entire lives really see them. The energetics of the interactions are often the most important part and the very part of our offspring’s with special needs education that is rarely observed or explored. To do so freely requires unconventional programming and thinking and IS what will give these individuals deep embedded experience to carry forward and integrate into every aspect of their lives. Priceless.
So that being said, this is one of the most important discussions I’ve had to date on TSC Talks personally as my son Jack has benefitted immensely from participating in this sort of immersive, apprenticeship experience gaining valuable skills, both tangible and energetic. Here’s a recent description of gains made: “There's A LOT going on there when we're together. Not just the obvious, like physical fitness, and employment-based objectives, but Distress Tolerance, Mindfulness, Interpersonal Effectiveness, time management, generalizing skills, problem-solving.... learning how and when NOT to answer back to an authority figure. (Instead of saying, "I know," or "I was going to do that," when he clearly wasn't, just saying "OK.") We address that OFTEN. Staying on topic, being able to complete a task WHILE socializing...

Another example is planning. Looking at the task at hand (like cleaning a pen or stall) and being able to decide which tools you're going to need (the pen might require a garden rake and a metal pitchfork, vs. an aluminum shovel and a plastic pitchfork for the stall), and how to efficiently complete the task. Right now, he tends to be on autopilot at Jesse's, because he's done it before, and knows what tools to use. But if we go to a different barn/farm, he will sometimes just walk into the stall without any tools or automatically grab the tools that he'd use as Jesse's. But Jesse has brand-new rubber stall mats under the shavings, whereas other barns might have hard, packed-down dirt that is uneven, old, warped stall mats, or even slab cement under the shavings, which impacts the tools needed for the job. Additionally, the concept of 'using your head to save your feet and planning out the technique or way you're going to do something....like cleaning the stall of the older horse first so that you can put him in there to eat first since it takes him so long. Or, turning on the hose as you walk by it upon arrival, so you don't have to go all the way back out to the spigot when you're ready to fill waters” You get the idea.

For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/...]]>4270animaltherapy,aspire,autism,boundaries,chronicillness,community,dds,farming,goodcitizens,horses,horsetherapy,intellectualdisabilities,lifeskills,lifeskillscoach,livedexperience,mentalhealth,neurodivergent,neurotypical,specialneeds,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-bryan-m-henry-founder-of-together-we-ascend-connected-to-love--48925812
Bryan is indeed connected to love and what he communicates in this podcast is just that as well as how we all are connected to love in the deepest and most complete of ways. Giving others an assist in rediscovering this conneciton is what Bryan is called to do. I got the chance to learn this first hand when I came across his Ascend Academy almost a year ago and booked my first session with Bryan. From there our connection grew, and I have been working with him for the last seven months. The recent intuitive podcasting workshop evolved out of our work together.

Here's one of Bryan's opening statements, "so I know that you you sent me a little bit of preliminary questions to kind of prepare myself but I feel like the best thing I could have done to prepare my pair myself was drop into here, and that chest region in that body to feel and rather than have some pre scripted answer. Sure what felt most inspiring in this moment. Perfect. That feels like today is the story of a guy that loves to serve, loves to be in service of others loves to contribute, loves to witness transformation take place before his eyes. I've over the course of my journey have come to my perspectives, my beliefs around what goes into living a joyous, filling and exciting life. And part of what that entails for me is being in service to something bigger than oneself. When I look back to all of my experiences, the accumulation of everything I've been through all of the best ones came from being connected to love and making it more about giving then getting. And the irony becomes when you find yourself centered in this space of wanting to give for you get to experience the joy and fulfillment that comes from that. You begin to realize that the giving and receiving are ultimately the same thing."

Linktree: https://linktr.ee/bryanmhenry
Website: https://togetherweascend.com
Some time stamps~
1:20 Introduction/opening statements
5:15 being in the moment, giving space for what comes through
9:38 challenges to staying in the moment when podcasting
10:30 Jill gives some background on Bryan's recent move
12:47 Hard to believe I went through hard times
13:46 Bryan has had many experiences, both treacherous and benevolent-came to core belief, we are of love
15:59 In order to tap into this, there is a whole lot of stuff that needs released
17:15 devoting work to helping others discover this love within themselves and that there is always more room for a higher love
19:45 Let stuff come up in layers
20:40 To feel and face allows the light beneath to shine through
21:15 old patterns can creep back in
21:48 inner work is VITAL
22:15 the cliche is where all the gems and truths are :)
23:45 discussion of loss of community
25:45 Individuals take responsibility to create community
27:50 Living a dream life-Bryan's response to this
29:00 how are you creating community?
29:44 speaking to audience
31:35 Going through his own personal chaos
32:15 Adversity builds character
32:34 Partner's memory loss was extreme, darkest of the dark places, remember the power that we are!
33:37 Love is the answer, many believe we will always suffer
34:19 How can we find peace within the chaos, how can we find peace within?
36:16 It does get better for all of us
36:32 Bryan came to experience divine intelligence expressed through all things, this intelligence wants us to grow
37:58 Practices, what are they? balance between discipline and flow! Internally directed
40:05 Internally driven, my decisions come from internal references
-how important it becomes to attune to internal compass that we already have
41:33 We all have a different balance, changing sense of balance. Recognize there is no right way to be-what may be right for you at one point is not in another, check in
45:15 In the flow-find out what works for you! Stuff shared by others, learn from it, but go within
45:59 Meditation would benefit everyone~Bryan's fundamental practice-using meditation as a means to attune ourselves w/our own internal guidance system
48:02 Attuning to and aligning with that internal compass
49:59 If you are listening to highest self, probably not in comfort zone
51:16 So many variables, do not lean on external world
52:12 Bryan's "pitch" We all have purpose to serve and are here for a reason
54:49 We deserve what we want, we are so worthy
"bring higher awareness -we are infinite spiritual beings, but also we're human beings with desires"
57:24 Ascend Academy, space for community to come together and explore everything, Bryan loves finding people to come on and teach, and is stepping back into role as a teacher and leader
58:52 Bryan here to share/teach and give

Thank you for listening!!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/48925812Wed, 02 Mar 2022 21:58:32 +0000Jill WoodworthIn this episode titled "Connected to Love" I had the pleasure of interviewing Bryan M. Henry, Founder of Together We Ascend, an organization and community that is on the mission of assisting in collective ascension, and the co-creation of more...
Bryan is indeed connected to love and what he communicates in this podcast is just that as well as how we all are connected to love in the deepest and most complete of ways. Giving others an assist in rediscovering this conneciton is what Bryan is called to do. I got the chance to learn this first hand when I came across his Ascend Academy almost a year ago and booked my first session with Bryan. From there our connection grew, and I have been working with him for the last seven months. The recent intuitive podcasting workshop evolved out of our work together.

Here's one of Bryan's opening statements, "so I know that you you sent me a little bit of preliminary questions to kind of prepare myself but I feel like the best thing I could have done to prepare my pair myself was drop into here, and that chest region in that body to feel and rather than have some pre scripted answer. Sure what felt most inspiring in this moment. Perfect. That feels like today is the story of a guy that loves to serve, loves to be in service of others loves to contribute, loves to witness transformation take place before his eyes. I've over the course of my journey have come to my perspectives, my beliefs around what goes into living a joyous, filling and exciting life. And part of what that entails for me is being in service to something bigger than oneself. When I look back to all of my experiences, the accumulation of everything I've been through all of the best ones came from being connected to love and making it more about giving then getting. And the irony becomes when you find yourself centered in this space of wanting to give for you get to experience the joy and fulfillment that comes from that. You begin to realize that the giving and receiving are ultimately the same thing."

Linktree: https://linktr.ee/bryanmhenry
Website: https://togetherweascend.com
Some time stamps~
1:20 Introduction/opening statements
5:15 being in the moment, giving space for what comes through
9:38 challenges to staying in the moment when podcasting
10:30 Jill gives some background on Bryan's recent move
12:47 Hard to believe I went through hard times
13:46 Bryan has had many experiences, both treacherous and benevolent-came to core belief, we are of love
15:59 In order to tap into this, there is a whole lot of stuff that needs released
17:15 devoting work to helping others discover this love within themselves and that there is always more room for a higher love
19:45 Let stuff come up in layers
20:40 To feel and face allows the light beneath to shine through
21:15 old patterns can creep back in
21:48 inner work is VITAL
22:15 the cliche is where all the gems and truths are :)
23:45 discussion of loss of community
25:45 Individuals take responsibility to create community
27:50 Living a dream life-Bryan's response to this
29:00 how are you creating community?
29:44 speaking to audience
31:35 Going through his own personal chaos
32:15 Adversity builds character
32:34 Partner's memory loss was extreme, darkest of the dark places, remember the power that we are!
33:37 Love is the answer, many believe we will always suffer
34:19 How can we find peace within the chaos, how can we find peace within?
36:16 It does get better for...]]>3730aligned,alignment,ascendacademy,ascension,awakening,breathwork,community,connection,costarica,evolution,flowstate,highestself,innercompass,livedexperience,love,meditation,peace,peaceinchaos,spirituality,torontofalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-lisa-smith-advocate-foster-parent-mom-all-100-sheep--48545565
As a special needs parent myself, this awareness was a true turning point in my understanding of this divine assignment where I became the student and realized my children are my teachers, one that Lisa feels and experiences every day.

“It’s biblical, she said at one point “And when I began to read the Bible, I had learned that some of my actual walks in life, were very biblical… There's a story that says, God got the 99 sheep, but there was one on the hill. He went back for that one. Most people in life. So God has designed me through my journey, not to forget the one.”

“Presence, presence, and presence. And to me? Be present. People always say things like, oh, if I win the lottery, I will do that. And I always tell people all the time I won the lottery five times, five children and people say, oh, they're so lucky to have you, but really….How do I know that I'm going to take care of my disabled son someday? Right? How do I know they're not there to help me when I become disabled someday? We do not know, you know, so we, you know, and, and we don't do it for those selfish reasons. So, we don't do anything to get things, you know, and, and, you know, we do things because that's who we are and that's our heart.”

I appreciated this podcast so much and hope you will too. I feel it was put in front of me by my higher self, as sound bite after sound bite so many of Lisa’s words not only related to me personally but also inspired and challenged me. Her faith in God is huge and expansive but she shares honestly the hard truths she’s faced personally to get to where she is now. Thanks, Lisa, for all the ways you are serving a higher calling and being willing to share your journey with me and this audience.

An article about Lisa Smith: https://www.wickedlocal.com/story/archive/2012/04/27/taunton-mom-using-what-she/38199711007/

Time stamps to be added!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/48545565Tue, 01 Feb 2022 21:48:33 +0000Jill WoodworthI recently had the distinct pleasure of interviewing Lisa Smith recently on TSC Talks. I met Lisa through a mutual friend, as is explained in the podcast. I was thrilled to do a podcast with another special needs parent and local to Massachusetts....
As a special needs parent myself, this awareness was a true turning point in my understanding of this divine assignment where I became the student and realized my children are my teachers, one that Lisa feels and experiences every day.

“It’s biblical, she said at one point “And when I began to read the Bible, I had learned that some of my actual walks in life, were very biblical… There's a story that says, God got the 99 sheep, but there was one on the hill. He went back for that one. Most people in life. So God has designed me through my journey, not to forget the one.”

“Presence, presence, and presence. And to me? Be present. People always say things like, oh, if I win the lottery, I will do that. And I always tell people all the time I won the lottery five times, five children and people say, oh, they're so lucky to have you, but really….How do I know that I'm going to take care of my disabled son someday? Right? How do I know they're not there to help me when I become disabled someday? We do not know, you know, so we, you know, and, and we don't do it for those selfish reasons. So, we don't do anything to get things, you know, and, and, you know, we do things because that's who we are and that's our heart.”

I appreciated this podcast so much and hope you will too. I feel it was put in front of me by my higher self, as sound bite after sound bite so many of Lisa’s words not only related to me personally but also inspired and challenged me. Her faith in God is huge and expansive but she shares honestly the hard truths she’s faced personally to get to where she is now. Thanks, Lisa, for all the ways you are serving a higher calling and being willing to share your journey with me and this audience.

An article about Lisa Smith: https://www.wickedlocal.com/story/archive/2012/04/27/taunton-mom-using-what-she/38199711007/

Time stamps to be added!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>5632advocate,autism,behavior,biblical,disability,faith,fostering,fosterparent,massachusetts,mentalhealth,nonverbal,nonverbalautism,ocd,ptsd,qualityoflife,specialeducation,specialneeds,specialneedsmomfalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-james-davis-of-bay-staters-for-natural-medicine-advocacy-from-the-heart--48484124
Links: https://www.baystatersnm.org/
https://linktr.ee/baystaters https://www.instagram.com/baystaters/
https://www.facebook.com/BayStaters
https://twitter.com/baystaters

"James Davis is a leader of Bay Staters for Natural Medicine. They have mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, Northampton, and Easthampton and have pending resolutions in Boston, Burlington (VT), Amherst, Worcester, Needham, Salem, and Medford. These resolutions decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction 55% after a single experience and have been proven to have statistically significant benefits for PTSD and depression. Their resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. In this episode, you will also learn about the other types of entheogenic plants and the power they hold to help us heal”

Here's an excerpt from the transcript, the full transcript is available on the website. Here's an excerpt from the transcript, the full transcript is available here~https://tsctalks.com/tsc-talks-james-davis-transcript/

Jill W: [00:00:00] Hello, welcome to TSC talks. Your host, Jill Woodworth. Here. I am so glad to be with James Davis. He is a, he is a volunteer among other things, but my basis of meeting him was a volunteer and the leader of bay Staters for natural medicine. Just to give you a little background here before we get started, I'm going to read this, but. He's done tremendous work. I'm really excited to have him here. And I'll tell you how our paths crossed in a minute, but he's the leader for Bay Staters for natural medicine. They've mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, North Hampton. East Hampton pending resolutions in Boston, Burlington, Vermont Amhurst, Worcester, Needham, Salem, and Medford.
These resolutions… resolutions, decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction. 55% after a single experience and have been proven to, have [00:01:00] statistically significant benefits for PTSD and depression. The resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. Let's see. And your day job, you're a legislative director to, Massachusetts state rep the chairs, the legislator’s cannabis committee, and formally did legislative work for the city council of Berkeley. You have a master's degree in public administration from USC and a BA in economics and history from Columbia and your views do not necessarily represent your employer. One thing that I read in what I was researching you a little bit, was your personal connection?

Actually, no, I'll let you go into it. So yeah. Why don't you tell me a little bit about yourself and about the advocacy work that you're doing and we will roll from.

James D: Thanks, James, thank you so much for having me, Jill. I'm really excited to chat and I am really [00:02:00] grateful for the support you showed for bay Staters.
When we were just a 10 follower Instagram group. We only started about a year and some months ago. And at that stage, We were just weirdos, emailing our city councils, sharing our stories with plant medicine. We took the philosophy that we didn't need to fundraise a lot of money. We didn't need to even have a website active to just start doing this advocacy work and start speaking from the heart.

And you know, what this has snowballed into is really, really awesome and beautiful and all the lessons we've learned along the way and advocacy. About the medicines themselves just from meeting so many people whose lives have been changed with this psilocybin experience or an MDMA experiment experience or an LSD experience.

So just really honored to be here and really glad that we met too. Yeah. Thanks. Yeah. To tell you a little bit more about who I [00:03:00] am. I know you mentioned all those credentials Yeah, they really don't define who I am. I would say. So I, I grew up in Kansas in a trailer park that was on the wrong side of the railroad tracks.

So all the middle-class kids lived on one side of a Walmart supercenter. And then I lived on the side that was mostly liquor stores and churches and run-down streets. So. I was raised by my mom my biggest inspiration in life and she Growing up was always working multiple jobs to make ends me really inspire me to work hard as well.

And then she was dealing with a lot of intergenerational trauma herself. Her father had served in the Pacific theater, the Korean war, and Vietnam. And. There was just a lot of, a lot of trauma that she had picked up from childhood and then relationships stemming from, from being a young woman and just growing [00:04:00] alongside her.

It really shaped me into the person I am today and made me really compassionate to help people who are struggling in poverty who have that intergenerational trauma. So that's why I think fundamentally this line of work emerged from.

Full transcript available at https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/48484124Fri, 28 Jan 2022 15:38:56 +0000Jill WoodworthI had the pleasure of interviewing James Davis recently on TSC Talks. As you’ll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time,...
Links: https://www.baystatersnm.org/
https://linktr.ee/baystaters https://www.instagram.com/baystaters/
https://www.facebook.com/BayStaters
https://twitter.com/baystaters

"James Davis is a leader of Bay Staters for Natural Medicine. They have mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, Northampton, and Easthampton and have pending resolutions in Boston, Burlington (VT), Amherst, Worcester, Needham, Salem, and Medford. These resolutions decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction 55% after a single experience and have been proven to have statistically significant benefits for PTSD and depression. Their resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. In this episode, you will also learn about the other types of entheogenic plants and the power they hold to help us heal”

Here's an excerpt from the transcript, the full transcript is available on the website. Here's an excerpt from the transcript, the full transcript is available here~https://tsctalks.com/tsc-talks-james-davis-transcript/

Jill W: [00:00:00] Hello, welcome to TSC talks. Your host, Jill Woodworth. Here. I am so glad to be with James Davis. He is a, he is a volunteer among other things, but my basis of meeting him was a volunteer and the leader of bay Staters for natural medicine. Just to give you a little background here before we get started, I'm going to read this, but. He's done tremendous work. I'm really excited to have him here. And I'll tell you how our paths crossed in a minute, but he's the leader for Bay Staters for natural medicine. They've mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, North Hampton. East Hampton pending resolutions in Boston, Burlington, Vermont Amhurst, Worcester, Needham, Salem, and Medford.
These resolutions… resolutions, decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction. 55% after a single experience and have been proven to,...]]>2763advocacy,cannabis,community,decriminalization,entheogens,heartcentered,hope,lsd,magicmushrooms,massachusetts,mdma,medicine,mentalhealth,mentalillness,peaceofmind,plantentheogens,psilocybin,psychedelics,qualityoflife,traumafalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-kimrah-minuty-ascension-coach-reiki-master-author-artist-podcaster-part-two-healing-broken-hearts--48229253
BIO~
“Welcome To Silver Lining Spirals where art is healing and healing is an art. I offer a range of services from custom digital business art creations to Ascension Coaching, Reiki energy healing,Intuitive guidance, Tarot/Oracle card readings and more
Experienced Writer with a demonstrated history of working in the retail industry. Skilled in Public Speaking, Art, Book Writing, Poetry, and Self-publishing. Strong arts and design professional with a Bachelors Degree focused in Psychology from University of Central Florida.
✨My name is Kimrâh Minuty an Intuitive Ascension Coach Reiki Master, Spiritual Consultant & Author. As an expert shadow healer, I work with coaching clients to taproot their soul by transforming their lives holistically through addressing gut, heart and mind issues that keep you from living your best life. I am the Host of a practical spirituality podcast called Gaia Soars. Check out my inspirational poetry book called “Lighten Up Phoenix, Keep Rising!” : https://amzn.to/3kWUluS ✨Thanks For Joining me Lets have Fun and Lighten up! ✨click here to Book a session: : http://kimrahminuty.com/sls_intuitive-guidance-special/ ✨New Weekly Episodes of Gaia Soars: ✨Contact and Follow me on social media : ✨ Tiktok: https://vm.tiktok.com/TTPd2gx3sV/ ✨FB: https://www.facebook.com/kminuty ✨IG: https://instagram.com/kimrahminuty?r=nametag ✨ donations and support : PayPal: https://www.paypal.me/kim1381 ✨CashApp: https://cash.app/$globalphoenixsoln
Lighten Up Phoenix, Keep Rising!: Inspirational Poetry based on The Law of Attraction

Kimrah Minuty, Part 2 Timestamps
0-1:55 The shower. Big conference with her galactic team, angelics, elementals, spirit guides, ancestors~sometimes like 60 people there, but have to get practical as a Mom
1:55 Water-discussion of, combat everything with water, grounding, presence
3:25 Now I know my purpose, right on time, only Kimrâh Minuty in US-Google her, Silver Lining Spirals
5:10 Shadow work is so important!! Listening to our guides, ego vs. higher self, no ego when channelling
7:10 most of the time in “the channel zone”, ground to start day, she can tell when she misses her practices, ground more than once if needed
9:45 Talking to mother earth
10:00 pulls a Tarot card, “Happiness” 😊, Abraham Hicks, law of attraction one of 12 universal laws. Issues with law of attraction~there’s more to it than is often discussed in the mainstream
12:00 Abraham Hicks-Kimrâh got in the hot seat, story about being on the show, leveraging the power of the universe
13:05 “my greatest gift to give is my happiness”
13:55 not feeling pain when in connection/meditation, did a lot of drugs, sensitives often end up using to mute clairvoyance
15:10 special needs kids are tapped in
16:05 teachers that learn techniques vs those with more lived experience
17:25-generational differences
18:10 Cannabis discussion, our moms, dosage, can become an oppressor, vary methodology, numbing out vs. intentional use
20:20 Spiritual awakening-dark night of the soul-subject for Kimrâh’s next class. How to navigate
21:20 Her book, how many challenges she had to bringing it forward. (see link) https://www.amazon.com.au/Lighten-Phoenix-Keep-Rising-Inspirational-ebook/dp/B07YFN481H Fibromyalgia, major pain, had car accident which was a major setback, TBI!
24:05 The book came from deep pain, Kimrâh shares pictures from book (see youtube video!)
25:15 Hard to sell her art, it’s a skill! The book is her baby, her art/poetry
26:30 Pain after accident, medical community treated poorly….another concussion, reinjured-this time medical community supportive, balancing the scales.
28:30 Recovering now, a long road back, movement challenging, not being able to go for walks, etc. Living with anger
30:10 Body coding verses general energy healing
31:00 “dude you’re awesome” we are not alone!
32:40 Reading of DARE TO DREAM, from her book! Message Kimrâh for a signed copy
34:30 Book tour was ruined by covid, no strength to fight disability decision, ended up taking a job just to fill in gaps
36:05 Silver Lining Spirals, Licensed Insurance Agent in 15 states, ACA under 65…
37:00 Started podcast in 2020 during pandemic, wasn’t freaking out like everyone, appreciated some aspects of covid w/6 ft apart, out of energetic field. Kimrâh transmutes energy, is a clear channel! Empath discussion
35:05 if you have shit boundaries, you take on everyone’s stuff
39:30 Reiki-energy healing, clears debris so you can come into focus, need maintenance
40:40 every 6 mos or so, Kimrâh calls her Reiki Master, with clear open chakras anything is possible, tough to function in 3D Muggles world
41:35 Society has become anti human, we are people, we’ve lost our humanity, industrial revolution is greatest detriment
42:40 outside in nature is where the truth is, we’ve lost the concept of cycles, cycles for everything
44:00 cut ourselves off, Seasonal Affective Disorder, we are out of the cycle. It’s ok to let stuff go, including people
45:55 Parenting-worst fear is losing a child, stages of life, we do not move with our won cycles of life, hold on too tightly. The only constant in life is change
47:45 We get attached b/c we think things are supposed to be here forever. Seize today-we hold back
49:10 tiny choices, do I say the right thing? forks in the road, on being an author, getting certificates so she could charge people $, never needed the paperwork -priceless lived knowing wisdom
50:55 Gotta do the thing to be of service
51:15 Credentials
52:15 Priestess!
53-end our discussion of using leftovers 😉

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/48229253Sun, 09 Jan 2022 20:26:08 +0000Jill WoodworthThanks to Kimrâh Minuty for this inspiring interview! BIO~ “Welcome To Silver Lining Spirals where art is healing and healing is an art. I offer a range of services from custom digital business art creations to Ascension Coaching, Reiki energy...
BIO~
“Welcome To Silver Lining Spirals where art is healing and healing is an art. I offer a range of services from custom digital business art creations to Ascension Coaching, Reiki energy healing,Intuitive guidance, Tarot/Oracle card readings and more
Experienced Writer with a demonstrated history of working in the retail industry. Skilled in Public Speaking, Art, Book Writing, Poetry, and Self-publishing. Strong arts and design professional with a Bachelors Degree focused in Psychology from University of Central Florida.
✨My name is Kimrâh Minuty an Intuitive Ascension Coach Reiki Master, Spiritual Consultant & Author. As an expert shadow healer, I work with coaching clients to taproot their soul by transforming their lives holistically through addressing gut, heart and mind issues that keep you from living your best life. I am the Host of a practical spirituality podcast called Gaia Soars. Check out my inspirational poetry book called “Lighten Up Phoenix, Keep Rising!” : https://amzn.to/3kWUluS ✨Thanks For Joining me Lets have Fun and Lighten up! ✨click here to Book a session: : http://kimrahminuty.com/sls_intuitive-guidance-special/ ✨New Weekly Episodes of Gaia Soars: ✨Contact and Follow me on social media : ✨ Tiktok: https://vm.tiktok.com/TTPd2gx3sV/ ✨FB: https://www.facebook.com/kminuty ✨IG: https://instagram.com/kimrahminuty?r=nametag ✨ donations and support : PayPal: https://www.paypal.me/kim1381 ✨CashApp: https://cash.app/$globalphoenixsoln
Lighten Up Phoenix, Keep Rising!: Inspirational Poetry based on The Law of Attraction

Kimrah Minuty, Part 2 Timestamps
0-1:55 The shower. Big conference with her galactic team, angelics, elementals, spirit guides, ancestors~sometimes like 60 people there, but have to get practical as a Mom
1:55 Water-discussion of, combat everything with water, grounding, presence
3:25 Now I know my purpose, right on time, only Kimrâh Minuty in US-Google her, Silver Lining Spirals
5:10 Shadow work is so important!! Listening to our guides, ego vs. higher self, no ego when channelling
7:10 most of the time in “the channel zone”, ground to start day, she can tell when she misses her practices, ground more than once if needed
9:45 Talking to mother earth
10:00 pulls a Tarot card, “Happiness” 😊, Abraham Hicks, law of attraction one of 12 universal laws. Issues with law of attraction~there’s more to it than is often discussed in the mainstream
12:00 Abraham Hicks-Kimrâh got in the hot seat, story about being on the show, leveraging the power of the universe
13:05 “my greatest gift to give is my happiness”
13:55 not feeling pain when in connection/meditation, did a lot of drugs, sensitives often end up using to mute clairvoyance
15:10 special needs kids are tapped in
16:05 teachers that learn techniques vs those with more lived experience
17:25-generational differences
18:10 Cannabis discussion, our moms, dosage, can become an oppressor, vary methodology, numbing out vs. intentional use
20:20 Spiritual awakening-dark night of the soul-subject for Kimrâh’s next class. How to navigate
21:20 Her book, how many challenges she had to bringing it forward. (see link) https://www.amazon.com.au/Lighten-Phoenix-Keep-Rising-Inspirational-ebook/dp/B07YFN481H Fibromyalgia, major pain,...]]>3348ascension,ascensioncoach,author,bodycoding,cannabis,channeling,clearchannel,evolution,grounding,parenting,podcaster,reiki,reikimaster,shadowwork,traumafalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-kimrah-minuty-ascension-coach-reiki-master-author-artist-podcaster-part-one-healing-broken-hearts--48179917
BIO~
“Welcome To Silver Lining Spirals where art is healing and healing is an art. I offer a range of services from custom digital business art creations to Ascension Coaching, Reiki energy healing,Intuitive guidance, Tarot/Oracle card readings and more

Experienced Writer with a demonstrated history of working in the retail industry. Skilled in Public Speaking, Art, Book Writing, Poetry, and Self-publishing. Strong arts and design professional with a Bachelors Degree focused in Psychology from University of Central Florida.

✨My name is Kimrâh Minuty an Intuitive Ascension Coach Reiki Master, Spiritual Consultant & Author. As an expert shadow healer, I work with coaching clients to taproot their soul by transforming their lives holistically through addressing gut, heart and mind issues that keep you from living your best life. I am the Host of a practical spirituality podcast called Gaia Soars. Check out my inspirational poetry book called “Lighten Up Phoenix, Keep Rising!” : https://amzn.to/3kWUluS ✨Thanks For Joining me Lets have Fun and Lighten up! ✨click here to Book a session: : http://kimrahminuty.com/sls_intuitive-guidance-special/ ✨New Weekly Episodes of Gaia Soars: ✨Contact and Follow me on social media : ✨ Tiktok: https://vm.tiktok.com/TTPd2gx3sV/ ✨FB: https://www.facebook.com/kminuty ✨IG: https://instagram.com/kimrahminuty?r=nametag ✨ donations and support : PayPal: https://www.paypal.me/kim1381 ✨CashApp: https://cash.app/$globalphoenixsoln
Lighten Up Phoenix, Keep Rising!: Inspirational Poetry based on The Law of Attraction

Timestamps
0-5:00 min Introduction
5:30 -7:15 Discussion on Facebook, pigeonholing, toxic social media
7:15 Using Facebook for therapy, feeding the energetics of social media.
9:00 “we are free to choose to be in bondage” Abraham Hicks
9:45 Comfy in anger -what is deeper fear?
10:45 viruses in society is the consciousness of fear
12:00 social media tracking, solo entrepreneurship is tough, going dark occasionally, goals for 2020
15:00 discussion on spirituality and spiritual journey
16:00 stuck in the systems -how we get stuck in our systems of care over time
1645 Spiritual bypass discussion, Integration of Mind Body Spirit
17:35 people walking around with broken hearts
18:15 working from heart chakra up, many people in the spiritual community do this, you have to embody
19:03 lower chakras. The Sacral Chakra, sexual trauma, people pleasing.
21:22 the energy of Creation, taking advantage of people, take advantage of you if you have the energy of Creation. They perceive it as sex, objectivity, misogyny.
23:21 my baseline for relationships is abuse, Shadow Work discussion
25:20 Worst has happened. So, you're the instrument of your demise. You are the author of your story becoming the Creator
27:00 leaning into eternal Divine, Self expansion
27:31 The algorithm is screwing me, focusing on TikTok
28:44 backstory~ moved to Florida, from Boston at a young age, dealing with asthma, racism rampant in Florida, it’s difficult
30:44 Heard planet cry at age nine when she got her first period. desperation to understand more, book on abnormal psychology, diagnosed herself as depressed anxious and bipolar. Got her first Crystal
31:58 never fit in
32:49 Said fuck it, had major awakening in 2014, in mental home for 7 days, gave away her stuff
34:08 The global awakening in 2012….her version in 2014, lost everything, lost sanity, came through knowing she was a divine being but people thought she was crazy, became the guru
36:10 After that, more focused, embodied “A star was born”. Spent time clearing rubble, building a super solid foundation, smooth, level, clear, supported-support system
37:50-limiting beliefs and higher self
40:00 Let the universe go on around me, “know you can change that”, you can teach a man to fish…
41:45 6-month coaching practice, talk about how deep she can go with coaching, transmuting energy when world falls apart
43:15 Once you shift the awareness, the universe has to respond. If you’re not manifesting, something is wrong
44:00 Unable to have another baby, she found out she would die if she had another-message from universe
44:30 “in the devastation, the gratitude is there b/c my awareness of dodging that bullet…”
46:30 Resources, Laureen Neau Shefchik, Emotion and Body Coaching, pinpoint an emotion and release it, can find specific years
48:15 Medications blunt your emotional variety-if you cannot tap emotions you cannot tap into spirit, coming off medication you have a huge range of emotions like a whole new world
50:15 Cannabis can help you connect to the divine and look at your shit. You're so fully in flight mode that you cannot relax without relaxation turning into a full blown panic attack
53:15 Kimrah can feel the energy of everything!
54:40 What we can do today
55:11 autism spectrum disorder, daughter possibly affected
56:24 Using tools-post it notes on the cabinets, building in affirmations, so then you eventually say them to yourself
58:00 grounding-end

Stay tuned for Part 2

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/48179917Wed, 05 Jan 2022 19:10:27 +0000Jill WoodworthI had the distinct pleasure of interviewing Kimrâh Minuty recently on TSC Talks. We had a free-flowing conversation with the main inquiry being how has her lived experience prepared her to step more fully into her soul’s purpose. As an Author, Poet,...
BIO~
“Welcome To Silver Lining Spirals where art is healing and healing is an art. I offer a range of services from custom digital business art creations to Ascension Coaching, Reiki energy healing,Intuitive guidance, Tarot/Oracle card readings and more

Experienced Writer with a demonstrated history of working in the retail industry. Skilled in Public Speaking, Art, Book Writing, Poetry, and Self-publishing. Strong arts and design professional with a Bachelors Degree focused in Psychology from University of Central Florida.

✨My name is Kimrâh Minuty an Intuitive Ascension Coach Reiki Master, Spiritual Consultant & Author. As an expert shadow healer, I work with coaching clients to taproot their soul by transforming their lives holistically through addressing gut, heart and mind issues that keep you from living your best life. I am the Host of a practical spirituality podcast called Gaia Soars. Check out my inspirational poetry book called “Lighten Up Phoenix, Keep Rising!” : https://amzn.to/3kWUluS ✨Thanks For Joining me Lets have Fun and Lighten up! ✨click here to Book a session: : http://kimrahminuty.com/sls_intuitive-guidance-special/ ✨New Weekly Episodes of Gaia Soars: ✨Contact and Follow me on social media : ✨ Tiktok: https://vm.tiktok.com/TTPd2gx3sV/ ✨FB: https://www.facebook.com/kminuty ✨IG: https://instagram.com/kimrahminuty?r=nametag ✨ donations and support : PayPal: https://www.paypal.me/kim1381 ✨CashApp: https://cash.app/$globalphoenixsoln
Lighten Up Phoenix, Keep Rising!: Inspirational Poetry based on The Law of Attraction

Timestamps
0-5:00 min Introduction
5:30 -7:15 Discussion on Facebook, pigeonholing, toxic social media
7:15 Using Facebook for therapy, feeding the energetics of social media.
9:00 “we are free to choose to be in bondage” Abraham Hicks
9:45 Comfy in anger -what is deeper fear?
10:45 viruses in society is the consciousness of fear
12:00 social media tracking, solo entrepreneurship is tough, going dark occasionally, goals for 2020
15:00 discussion on spirituality and spiritual journey
16:00 stuck in the systems -how we get stuck in our systems of care over time
1645 Spiritual bypass discussion, Integration of Mind Body Spirit
17:35 people walking around with broken hearts
18:15 working from heart chakra up, many people in the spiritual community do this, you have to embody
19:03 lower chakras. The Sacral Chakra, sexual trauma, people pleasing.
21:22 the energy of Creation, taking advantage of people, take advantage of you if you have the energy of Creation. They perceive it as sex, objectivity, misogyny.
23:21 my baseline for relationships is abuse, Shadow Work discussion...]]>3627ascension,ascensioncoach,author,autism,awakening,cannabis,limitingbeliefs,mentalhealth,podcaster,poet,psychology,spiritualawakening,spiritualguides,spiritualist,spiritualitytruefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-cannabis-spirituality-with-janna-champagne-rn-bsn--47839544
Previous podcasts with Janna:
https://tsctalks.com/tsc-talks-guest-jenna-champagne/ Janna’s story 12/2019
https://tsctalks.com/tsc-talks-guest-janna-champagne/-on Autism Safe Haven, Autism/Cannabis 12/2020

Links:
http://www.integratedholisticcare.com/providers.html
https://jannachampagne.com/
https://www.facebook.com/cannanursejanna/
https://www.linkedin.com/in/jannachampagne/
https://www.instagram.com/nursejanna/

From bio: Nurse Janna's introduction to the cannabis industry began as a cannabis patient who happens to be a nurse when she suffered a debilitating immune health collapse in 2012. Janna credits cannabis for helping to reduce her reliance on harmful pharmaceuticals and support her ability to regain her health, including reversal of autoimmune disease, against all odds. Janna is also known for her success in treating her daughter's Autism with cannabis, which was featured as a cover story in a national cannabis industry magazine in 2017. www.integratedholisticcare.com/news

Nurse Janna's focus is holistic treatment--natural alternatives to pharmaceuticals including CBD and cannabis therapy. Her work as a cannabis-specialty nurse since 2015 included educating thousands of patients, helping them optimize their cannabis therapy outcomes through an individualized and well-informed approach. Janna has since applied her extensive clinical knowledge to educate medical professionals about cannabis, and help producers create therapeutic quality and targeted cannabis products, with a goal of improving cannabis patient success rates. Janna is also founder of Autism Safe Haven, a 501c3 nonprofit dedicated to improving cannabis-inclusive Autism care resources.

Nurse Janna's specialties include: Autism, Inflammatory/Chronic Pain Syndromes, Autoimmune, Neurological, Gastrointestinal, and Mental Health conditions. Janna found that success with cannabis often led to reduced reliance on pharmaceuticals, meanwhile improving quality of life and function.

Nurse Janna is a founding member of Cannabis Nurses Network, serving on CNN's Speaker's Bureau, and as leadership. Janna was awarded Leader of Nursing and Outstanding Author for Cannabis Nurses Media in 2019 and nominated/awarded Cannabis Nurses Network 2020 Educator of the Year. Janna offers accredited cannabis nurse education programs, and also serves as a cannabis college professor, teaching graduate student medical practitioners through John Patrick University’s Masters of Integrative Medicine Degree Program. Helping producers create optimal cannabis products resulted in one of the CBD product lines winning Top 10 CBD of 2020 designation using Janna’s formula recipes (Verdania Fields). Janna also serves as medical advisor and patient advocate for United Patients Group, dedicated to educating consumers with reliable cannabis information. Nurse Janna is a member of the Oregon Cannabis Clinician's Group and volunteers on the Patient Care Subcommittee of the Oregon Cannabis Commission, and the Ryan’s Law Oregon Advocacy Team.

The flow:
0:00-4:00 Introduction of Janna, bio
4-6:00 Janna gives brief thoughts on her bio
6:25-7:04 Family life, early years, codependency/dysfunction/religiosity family of origin
7:05-8:04 Early experience with spirituality through Reiki
8:05-8:40 Graduated from hs at 17, went right into college, lots of jobs
8:41-55 Age 27 had a daughter and got ill later that year, the start of chronic health issues
8:55-9:39 Age 28 hospitalized, was septic, almost died and had near-death experience that made her want to become a nurse, daughter was only 9 mos old
9:40-10:19 contrast between a nurse that was an advocate vs shamin’ blamin’ nurse, demonstrated the impact and importance of good care
10:20-11:04 Natural childbirth was a breeze -compared to ongoing stomach issues
11:05-12:14 Root of pain turned out to be perforated appendix leaking! She was septic, peritonitis
12:15-15:00 Ongoing discussion of pain issues..NDE, own mother wasn’t sure she’d make it through surgery w/the perforated appendix did not see white lights but was given a choice of whether or not to return. She had thought of her daughter…
15:05-16:35 Starting nursing school, daughter diagnosed w/autism in 10/2004, did a lot of research related to autism, graduated with Bachelors, continued research, worked in intense nursing units, cardiac Cath lab, conscious sedation patients…ended up getting sick
16:35-17:49 Dropped out of nursing school b/c she was so sick, 5 credits short of Masters! Felt suicidal, without a purpose, diagnosed with lupus, on antibiotics, had kidney failure, chronic autoimmune issues
17:50-20:59 Started on Cannabis! Felt some guilt due to upbringing, programming…husband got some white widow, health improved, she couldn’t believe it. She started learning everything she could “hungry brain syndrome”
21:00-22:24 a Huge rift in her family of origin over her cannabis use. Catastrophic break, they couldn’t accept her use, despite her mom being a nurse. She had a lot of awarenesses about her childhood upbringing
22:25-23:19 Breaking long-standing generational patterns with family, doing a lot of inner work
23:20 Was told by a healer with whom she was working that Cannabis is one of her spirit guides
26:00-27:19 Discussion of deep programming around cannabis and other subjects, are we not allowed to question but just have faith? Religious beliefs question everything
27:20-28:19 She was sent to ultra-conservative HS, almost cultish and you were looked down upon if you hadn’t received the gift of speaking in tongues, also discussed PTSD
28:20-29:14 Cannabis is a piece of healing, led her to other tools such as transcendental meditation which was life-altering
29:15-30:09 Special needs moms…. the need to step out of the fire, meditation, walking meditation, being present
30:10-31:04 thoughts the root of all suffering, shifting beliefs, paradigms, we are supported always…
31:05-32:00 Staying in the flow of your life, inspired action, surrendering-the hardest moments have silver linings, stepping into your soul’s purpose, higher calling
32:00-32:59 writing a book, questioning medical system with daughter pediatricians clueless, “there’s nothing we can do here”
33:00-34:04 Neurodiversity, autism, pain issues, gut issues, goal to help her daughter live her best life, w/the best possibility of reaching full potential
34:05-34:54 had inclination w/Reiki, biomedical approach to daughter’s autism, imbalances in the gut, epigenetics/nutrigenomics, cannabis started in 2014 w/puberty crisis
34:55-36:19 Puberty crisis-behaviors become more extreme, pain formulations, communication
36:20-37:59 Narrowly escaped out of home placement, credits cannabis sparing her that additional trauma
38:00-39:14 Start researching cannabis NOW, Jill mentions why its important, cannabis doesn’t fix everything, can even just reduce reliance on pharma
39:15-40:05 Are stories are powerful, she published her daughter’s story!
40:06-40:49 Endocannabinoid system (ECS) deficiencies lead to chronic illness, autism, etc, many common conditions can be treated by regulating the ECS
40:50-42:09 Cannabis is a gift for our highest good, used for mainstream medicine until 1937. It should be a basic human right…. Jesus may have used cannabis, what would Jesus do?
42:10-43:29 Autism Safe Haven, guided by following cannabis patients needs, cannabis inclusive autism care resources
43:30-44:04 Unity Formulas, for-profit entities, in exchange for contributions…help overcome barriers
44:05-44:54 Building for profits to support nonprofit
44:55-48:34 Cannabis nurses network, Jim Bartel, Ryan’s Law, www.cannabisnurseapproved.com can find cannabis nurses
48:35 talk to Jesus, it’s a tool, tip of the iceberg, post-traumatic growth, stepping out of our stories, finding purpose in the story, seeing the benefit for others

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/47839544Wed, 08 Dec 2021 17:46:32 +0000Jill WoodworthI had the pleasure of interviewing Janna Champagne, RN, BSN recently to discuss cannabis and spirituality. Janna has been a fantastic TSC Talks Podcast guest several times in the past. I am linking to those podcasts for anyone interested in hearing...
Previous podcasts with Janna:
https://tsctalks.com/tsc-talks-guest-jenna-champagne/ Janna’s story 12/2019
https://tsctalks.com/tsc-talks-guest-janna-champagne/-on Autism Safe Haven, Autism/Cannabis 12/2020

Links:
http://www.integratedholisticcare.com/providers.html
https://jannachampagne.com/
https://www.facebook.com/cannanursejanna/
https://www.linkedin.com/in/jannachampagne/
https://www.instagram.com/nursejanna/

From bio: Nurse Janna's introduction to the cannabis industry began as a cannabis patient who happens to be a nurse when she suffered a debilitating immune health collapse in 2012. Janna credits cannabis for helping to reduce her reliance on harmful pharmaceuticals and support her ability to regain her health, including reversal of autoimmune disease, against all odds. Janna is also known for her success in treating her daughter's Autism with cannabis, which was featured as a cover story in a national cannabis industry magazine in 2017. www.integratedholisticcare.com/news

Nurse Janna's focus is holistic treatment--natural alternatives to pharmaceuticals including CBD and cannabis therapy. Her work as a cannabis-specialty nurse since 2015 included educating thousands of patients, helping them optimize their cannabis therapy outcomes through an individualized and well-informed approach. Janna has since applied her extensive clinical knowledge to educate medical professionals about cannabis, and help producers create therapeutic quality and targeted cannabis products, with a goal of improving cannabis patient success rates. Janna is also founder of Autism Safe Haven, a 501c3 nonprofit dedicated to improving cannabis-inclusive Autism care resources.

Nurse Janna's specialties include: Autism, Inflammatory/Chronic Pain Syndromes, Autoimmune, Neurological, Gastrointestinal, and Mental Health conditions. Janna found that success with cannabis often led to reduced reliance on pharmaceuticals, meanwhile improving quality of life and function.

Nurse Janna is a founding member of Cannabis Nurses Network, serving on CNN's Speaker's Bureau, and as leadership. Janna was awarded Leader of Nursing and Outstanding Author for Cannabis Nurses Media in 2019 and nominated/awarded Cannabis Nurses Network 2020 Educator of the Year. Janna offers accredited cannabis nurse education programs, and also serves as a cannabis college professor, teaching graduate student medical...]]>3060alternativemedicine,autism,cannabis,chronicillness,endocannabinoidsystem,epigenetics,healthcrisis,nde,neardeathexperience,nurse,nursing,nutrigenomics,pharmaceuticals,ptsd,reiki,spirituality,transformation,traumafalsefullhttps://www.spreaker.com/episode/tsc-talks-points-of-light-cannabis-spirituality-with-sherri-tutkus-rn-bsn--47682326
So, I did what has become a foundational transformational process for me and I took it to the podcast to ask the burning question I had on my mind about cannabis and spirituality. I thought, “why not interview somebody that I know that has some lived experience in that area?” I reached out to my friend Sherri Tutkus, RN, BSN, Green Nurse, former podcast guest, to see if she’d have this discussion with me. (I will continue interviewing individuals who are interested in sharing their “story” of how their lived experiences, of all shades, let them to stepping more fully into their soul’s purpose.)

From a very young age, Sherri was connected and had some experiences with the divine. What followed from my initial query is a beautiful discussion with her just blowing my mind with the things she’s experienced and where she's gone and come back from to be a shining light and a heck of a guide for others. Through her combo of traditional medical education, deep lived experience as a patient, nurse, mother, medical cannabis patient, psychedelic explorer and guide, podcaster, businesswoman, and friend to many, her depth of insight is epic. I learned a lot and realized I had the answer within, which it always is, needing a little context & connection to spring it loose. Let’s hope you can find some valuable insight as well. Let it rip!

Sherri Tutkus BSN- RN is a leading force in the burgeoning cannabis industry as a nurse, patient, advocate, and activist. All that she shares and teaches facilitates our own innate ability to step more fully into our authentic, divine selves. Sherri is the Founder of The Green Nurse and Chief Nursing Officer at Holistic Caring- a global community of health professionals who provide vetted products and services to support the utilization of plant medicine and other progressive therapies to nourish the endocannabinoid system (ECS). Sherri educates and implements holistic integrative healing modalities within her nursing practice at https://thegreennurse.com/team/sherri-tutkus/

"And through all of that my discovery was this. We have beliefs, and beliefs are fed to us from the outside. And so, we have a choice to either believe it or not believe it. Right. But does a belief make it true? That's the question that people need to ask. So, truth.... what is truth? Truth is basically when someone has an experience, that can become their truth. All truth is truth. But all truth is not yours and mine at the same time."

Timestamps with links:

0:00-4:00~Introduction of topic and Sherri
4-5:50~Where it all started…Church (Irish Catholic), early experiences, the angelic realm
5:50-6:49~Beliefs and truth, What is Truth? “All truth is truth but not all truth is yours and mine at the same time”
6:50-7:19~Perception, consciousness, processing
7:20-8:00~ PTSD, trauma response…what happens inside someone is how they view the outside world. Go inside to heal.
8:00-8:45~my teachers throughout the years, exploring modalities, college
8:46-9:34~Sick as a child-Rhys Syndrome, almost died, sick in 2012, almost died~found cannabis
9:35-10:24~Spiritual journey enriched by cannabis, 2012-conventional medical system failed
10:25-11:19~Son Nicholas born dead. Had rare genetic disorder, communicated with her from birth, paranormal became normal in her home.
11:20-12:29~Spiritual experiences helped her evolve. Nicholas, saw angel, “Mike’s here, he’s a big angel and he wants to tell you that everything will be ok”~ was led into new healing modalities
12:30-12:55~All personal and professional experiences led her to where she is
12:56-13:24~Spirituality is everything! Everything we say or do affects everything else
13:25-15:14~from suffering to hope, decrease stigma, started her podcast, gained real world experiences~H.I.G.H. reframe
15:15-15:59~Spiritual principles
16:00-18:31~Jill on spiritual community concerns with cannabis, what does consciousness really mean? Question that.
18:32-19:19~on cannabis, anatomy and physiology impacted, neuroprotectant, open neural pathways and eliminate “the box”
19:20-19:59~all here to walk each other home!
20:00-21:00~Cannabis is Ppleotropic-multisystem…all physiological systems at the same time from within. Endocannabinoid system
21:01-22:40~Mother anti cannabis-Sherri interviewed a nun, Sister Suzanne who was on a ton of fentynal and got off using cannabinoid medicine (22:25-what would Jesus say? Jesus would say God is in that plant)
22:41-24:37~Nursing, spirituality, cannabis nursing~caring for the entire human experience, connecting with patients, no judgement, hold sacred space
24:38-26:42~ Jean Watson's theory on human caring is pretty much pairs up really nicely with how we take care of patients https://nurseslabs.com/jean-watsons-philosophy-theory-transpersonal-caring/ , Carey Clark,PhD https://www.amazon.com/Cannabis-Carey-Clark-PhD-AHN-BC/dp/1975144260 A nurse IS her office. Holding space and meeting the patient where they are at
26:43-27:43~ Sherri’s practices, other plant medicine, plant entheogens, psychedelic medicine, Psychedelic nurse with Keta, MD~certified to do home therapy, Shamanic journeys support exploration
27:44~Danielle Simone Brand’s book “Weed Mom” https://www.daniellesimonebrand.com/
28:43~Healy, frequency healing https://healanalyzer.com/
28:51-29:59~Psychedelics, understanding complex PTSD…getting triggered (everything that hurt you comes back), break the unconscious cycle, deepest work with Shamans
30:00-30:35~Psychedelic journeys, how can I heal myself so I can show another?
30:36-31:29~Holistic Caring, Psychedelic Nursing https://holisticcaring.com/
31:30-32:34~Psilocybin and Vets, Psychedelic Nursing, grow your own mushrooms
32:35-33:18~Psychedelics, legality~Ketamine is legal
33:19-34:16-Processing emotion, feelings are meant to be felt
34:17-35:48~Green Nurse Retreats for Energized Living with Denise Costello Cannabis retreats, immersive weekends, also will include psychedelic retreats-microdosing and hero’s journey. in the near future https://www.youtube.com/watch?v=bTu44Wq2NSo
35:49-38:00~Using Cannabis for “spirituality”…pay attention, gratitude, intention, what do you have to show me? Peace Begins with Me, pausing and listening. Nurse Carey Lee and Sherri…https://www.youtube.com/watch?v=mZE7uyiaiBU
38:01-39:59~What happens if you get TOO high? Too much THC-CBD! Lemons, shower
40:00-41:24~Sherri shares a funny personal experience when making edibles
41:25-43:06~Holistic Caring and The Green Nurse information, programs for those in the industry, energy healing, nonprofit…sponsorship goes back into nonprofit, vetting products, dispensaries that want a nursing line
43:06-45:14~Community, the importance of… free supportive community off social media at https://holisticcaring.com
45:15-end Thriving vs. Surviving

Thanks, Sherri!!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/47682326Sat, 27 Nov 2021 18:48:51 +0000Jill WoodworthI recently heard some talk in spiritual communities about cannabis and how it possibly harshes our evolution. I’ll admit, I was a little bit triggered when I first heard this. I felt for a moment that what I’d come to understand as my truth, (using...
So, I did what has become a foundational transformational process for me and I took it to the podcast to ask the burning question I had on my mind about cannabis and spirituality. I thought, “why not interview somebody that I know that has some lived experience in that area?” I reached out to my friend Sherri Tutkus, RN, BSN, Green Nurse, former podcast guest, to see if she’d have this discussion with me. (I will continue interviewing individuals who are interested in sharing their “story” of how their lived experiences, of all shades, let them to stepping more fully into their soul’s purpose.)

From a very young age, Sherri was connected and had some experiences with the divine. What followed from my initial query is a beautiful discussion with her just blowing my mind with the things she’s experienced and where she's gone and come back from to be a shining light and a heck of a guide for others. Through her combo of traditional medical education, deep lived experience as a patient, nurse, mother, medical cannabis patient, psychedelic explorer and guide, podcaster, businesswoman, and friend to many, her depth of insight is epic. I learned a lot and realized I had the answer within, which it always is, needing a little context & connection to spring it loose. Let’s hope you can find some valuable insight as well. Let it rip!

Sherri Tutkus BSN- RN is a leading force in the burgeoning cannabis industry as a nurse, patient, advocate, and activist. All that she shares and teaches facilitates our own innate ability to step more fully into our authentic, divine selves. Sherri is the Founder of The Green Nurse and Chief Nursing Officer at Holistic Caring- a global community of health professionals who provide vetted products and services to support the utilization of plant medicine and other progressive therapies to nourish the endocannabinoid system (ECS). Sherri educates and implements holistic integrative healing modalities within her nursing practice at https://thegreennurse.com/team/sherri-tutkus/

"And through all of that my discovery was this. We have beliefs, and beliefs are fed to us from the outside. And so, we have a choice to either believe it or not believe it. Right. But does a belief make it true? That's the question that people need to ask. So, truth.... what is truth? Truth is basically when someone has an experience, that can become their truth. All truth is truth. But all truth is not yours and mine at the same time."

Timestamps with links:

0:00-4:00~Introduction of topic and Sherri
4-5:50~Where it all started…Church (Irish Catholic), early experiences, the angelic realm
5:50-6:49~Beliefs and truth, What is Truth? “All truth is truth but not all truth is yours and mine at the same time”
6:50-7:19~Perception, consciousness, processing
7:20-8:00~ PTSD, trauma response…what happens inside someone is how they view the outside world. Go inside to heal.
8:00-8:45~my teachers throughout the years, exploring modalities, college
8:46-9:34~Sick as a child-Rhys Syndrome, almost died, sick in 2012, almost died~found cannabis
9:35-10:24~Spiritual journey enriched by cannabis,...]]>2743cannabis,healing,healingmodalities,hope,jeanwatson,love,mentalhealth,nursing,psychedelicmedicine,psychedelics,specialneeds,spirit,spirituality,theoryofnursingfalsefullhttps://www.spreaker.com/episode/tsc-talks-nina-patry-points-of-light-from-primal-scream-therapy-to-paradox-process-the-journey-home--47413898Paradox Process: https://www.paradoxprocess.org/
Ziva Meditation: https://zivameditation.com/
Thomas Jones on Luke Storey Podcast: https://youtu.be/cB5OT3vtpP8

A demo of Paradox Process with Thomas Jones and Emily Fletcher: https://youtu.be/vkXdaGmKTtQ

I can only say I’ve had one of the best times of my life getting to know Nina Patry. For all the negativity around Facebook, that’s where I met her. In a forum for Lorie Ladd, during the COVID madness. Our paths were destined to cross. Our connection and experience together, over the last 6 months, was enough to make me want to podcast again. You’ll hear the description of how I thought we met and then Nina’s description of how we met, which was far more accurate. Funny.
What I want to note is how important it has been for Nina to solidify her inner voice and deep knowing, her authentic self, despite the external reality into which she was born is one in which often didn’t make sense in a way that allowed her to feel loved and at home with her own awesomeness and value.

Born the oldest of 7, to a world-renowned, MD working in the field of Pharmacology~ in NYC, busy parents, whose hands were full, she internalized the message to stay out of the way and not draw attention to herself. did not follow any preconceived or single life path, like me, she’s been an avid student of life. Each experience led her further into asking the question, “Is this really all there is?”. From her earliest memories to today, she weaves a beautiful narrative based upon the inner and outer experience of each memory she shares. She states, “If I’d have had to plan a life for myself to get me to where I am today, I could not have planned it any better!”

I am honored to get the chance to ask her questions and discuss pretty much freestyle, her navigation across the time-space continuum, the adventures she’s had along the way, what was gleaned, what was stored, and how each experience held a gift, like a scavenger hunt, leading her along the path of further stepping into her soul’s purpose. There’s so much within the episode, and I’ve noted the timestamps that I thought jumped out, below. Please also note the very important links Nina asked me to share on Emily Fletcher and Ziva Meditation as well as on Thomas Jones and The Paradox Process.

“here's my mother picturing me living in the woods with an outhouse, etc, etc. And she had said to me, how can you be living such a Hard life. So one day I'm out there kicking the ice out of the buckets, thinking hard life. Wait a minute, when my mother was my age, she had five kids, the hardest thing I have to do is kick the frozen ice out of their buckets on these, you know, under zero-degree morning. That's the hardest thing that I do. What is she talking about? What is she talking about? Again, it's this whole relative reality, you know, the people look, five, just like me looking from the outside saying, I could never do that.”

6:22-Story of her birth
8:19-Moving around quite a bit, lessons of relative reality
10:30-Germany. Going to Germany as an exchange student-meeting Mormons
15:25-Nina’s boyfriend meets up with her dad at John’s Hopkins-dad did not face things emotionally
16:55 -What attracted her to Mormonism-the gestalt…what life was about, father in heaven, etc
18:55-Dad came home with a cat-couldn’t believe he had given her something so wonderful!
21:00-Always had knowings
22:01-Dream about the cat on the payphone
24:04-What am I getting out of this life if I’m the creator?
25:22-Living in East Village (NYC) during a tumultuous time
30:20-Drawn to the book, “The Primal Scream” without seeing the title. She thought it odd her father would have such a book
33:06-Being in a cult, what she got out of it, “life can be different” theme
34:12-Moving to Vermont, 1981
34:44-Living in the woods in Norwich VT area, no indoor plumbing, thought “they were crazy” at first but then she was in it
35:22-these experiences where she’d observe a situation and say to herself, “I could never do that” and then would be in the situation
36:30-Realization again of relative reality. Mother telling her she has a “hard life” living in the woods, when her mother had already had 5 children at her age
38:20-meeting husband Jim Patry, May 1, 1989 at 5pm
39:50-“Oh that Nina, she doesn’t appreciate our family” (yes she does)…
41:47- Tapping, one of the most effective methods she’s found
41:25-Looking for answers-always wanting to be healthy, looking at health, what did that mean… Healing modalities, “never met a healing modality she didn’t like”….
42:22-March 2020-Awareness of COVID from people at work (Vermont Country Store)-was not afraid at all
43:45-Nina dips back into some of her psychological history, having diagnoses, bi-polar, being put on medications
44:20-Found meditation via Emily Fletcher of Ziva meditation and decided she’s rather be “meditated, not medicated”
44:51-Coming off psych meds the right way after discovering Peter Breggin, M.D’s work
46:46-Meeting Thomas Jones, co creator of The Paradox Process
49:02-Nina’s definition of Paradox Process
50:36-The Paradox Process sends you inside for answers
53:45 Lorie Ladd and The Paradox Process-never happier!!
54:38-From Primal Scream Therapy to Paradox Process
55:34-There are a lot of performers that utilize The Paradox Process, they use their bodies as instruments that need tuning
56:00-Is this a cult? Initial questioning of The Paradox Process after her cult experience
58:25-Concluding discussion-Rutland MA/Rutland VT-Rutland Pharmacy
60:00 The Paradox Process, detailed information

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/47413898Wed, 10 Nov 2021 20:55:47 +0000Jill WoodworthLinks: Paradox Process: https://www.paradoxprocess.org/ Ziva Meditation: https://zivameditation.com/ Thomas Jones on Luke Storey Podcast: https://youtu.be/cB5OT3vtpP8 A demo of Paradox Process with Thomas Jones and Emily Fletcher:...Paradox Process: https://www.paradoxprocess.org/
Ziva Meditation: https://zivameditation.com/
Thomas Jones on Luke Storey Podcast: https://youtu.be/cB5OT3vtpP8

A demo of Paradox Process with Thomas Jones and Emily Fletcher: https://youtu.be/vkXdaGmKTtQ

I can only say I’ve had one of the best times of my life getting to know Nina Patry. For all the negativity around Facebook, that’s where I met her. In a forum for Lorie Ladd, during the COVID madness. Our paths were destined to cross. Our connection and experience together, over the last 6 months, was enough to make me want to podcast again. You’ll hear the description of how I thought we met and then Nina’s description of how we met, which was far more accurate. Funny.
What I want to note is how important it has been for Nina to solidify her inner voice and deep knowing, her authentic self, despite the external reality into which she was born is one in which often didn’t make sense in a way that allowed her to feel loved and at home with her own awesomeness and value.

Born the oldest of 7, to a world-renowned, MD working in the field of Pharmacology~ in NYC, busy parents, whose hands were full, she internalized the message to stay out of the way and not draw attention to herself. did not follow any preconceived or single life path, like me, she’s been an avid student of life. Each experience led her further into asking the question, “Is this really all there is?”. From her earliest memories to today, she weaves a beautiful narrative based upon the inner and outer experience of each memory she shares. She states, “If I’d have had to plan a life for myself to get me to where I am today, I could not have planned it any better!”

I am honored to get the chance to ask her questions and discuss pretty much freestyle, her navigation across the time-space continuum, the adventures she’s had along the way, what was gleaned, what was stored, and how each experience held a gift, like a scavenger hunt, leading her along the path of further stepping into her soul’s purpose. There’s so much within the episode, and I’ve noted the timestamps that I thought jumped out, below. Please also note the very important links Nina asked me to share on Emily Fletcher and Ziva Meditation as well as on Thomas Jones and The Paradox Process.

“here's my mother picturing me living in the woods with an outhouse, etc, etc. And she had said to me, how can you be living such a Hard life. So one day I'm out there kicking the ice out of the buckets, thinking hard life. Wait a minute, when my mother was my age, she had five kids, the hardest thing I have to do is kick the frozen ice out of their buckets on these, you know, under zero-degree morning. That's the hardest thing that I do. What is she talking about? What is she talking about? Again, it's this whole relative reality, you know, the people look, five, just like me looking from the outside saying, I could never do that.”

6:22-Story of her birth
8:19-Moving around quite a bit, lessons of relative reality
10:30-Germany. Going to Germany as an exchange student-meeting Mormons
15:25-Nina’s boyfriend meets up with her dad at John’s Hopkins-dad did not face things emotionally
16:55 -What attracted her to Mormonism-the gestalt…what life was about, father in heaven, etc
18:55-Dad came home with a cat-couldn’t believe he had given her something so wonderful!
21:00-Always had knowings
22:01-Dream about the cat on the payphone
24:04-What am I getting out of this life if I’m the creator?
25:22-Living in East Village (NYC) during a tumultuous time
30:20-Drawn to the book, “The Primal...]]>3828ascension,cult,evolution,livedexperience,lorieladd,love,meditation,mentalhealth,paradoxprocess,primalscream,primalscreamtherapy,psychiatry,psychology,relativereality,soul,spirituality,studentoflife,vermontfalsefullhttps://www.spreaker.com/episode/tsc-talks-finding-a-cure--46711851
Stay tuned for more content! https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/46711851Mon, 27 Sep 2021 20:31:54 +0000Jill WoodworthJill Woodworth, host of TSC Talks gives a commentary on the notion of "finding a cure", which is the tag line for about every chronic disease, and how this notion often clouds the less than loving motives behind the industry, corporations,...
Stay tuned for more content! https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>983allopathic,alternativemedicine,autism,cannabis,chronicdisease,chronicillness,digitaltwinning,epilepsy,findingacure,geneticcondition,healthcareburden,healthfreedom,holistic,love,mentalhealth,polypharmacy,raredisease,selfhealers,systemsofcare,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-exceptional-circumstances-making-it-work-when-systems-don-t-nikki-lawley-tbi-cannabis-advocate--43497775
Here are a few relevant quotes from the transcript~full transcript linked below:

“So I began the search for a diagnosis. It was hell, I was always a respected colleague in the medical field. And every doctor I went to was like, we don't understand why your symptoms are so long. We don't understand why you’re not better yet. We don't understand this headache that never goes away. How can you have a headache 24 /7. I'm like, I have a headache. 24/7. I have a headache that never goes away. And they basically told me that it was psychological at one point, and it was so de-humanizing for a person that's never had mental health challenges and extreme situations, to be told, like, this is all in your head. Really nothing wrong with you. And it was like, Whoa, is it really in my head? No, and I mean, chill. When I say I was upbeat and happy, you know, I was different than I was before. I was really quick, really witty really able to, you know, snapback and had a really fun life. I'm a different Nikki and I'm differently-abled, but I feel that patients are the experts, and they are not heard. We are not heard from a patient perspective. When I tell the doctor, this medicine isn't working. Why do I have to be in question?”

She goes on to say,

“It wasn't like a panacea that like one day I just opened my eyes and oh, cannabis is here. Oh, I'm all better. That's not how it works. Yeah, the universe has allowed me to explore. Honestly, it's allowed me to be able to understand my injury, it's been able to help me help others. I was able to see that cannabis isn't so bad. It's given me hope when I had none. and removing the stigma of this plant is honestly what's in my heart that I really want to help do.”

On the state of Cannabis legislation,

“But I've learned so much about this plant, and there's so much more to learn. And right. We're just at the beginning, really any of us. Exactly. And New York State is looking at legalization. Yes. I keep seeing that. Is that gonna happen? Well, I was part of it for the last two years and nothing happened. And it was incredibly disappointing. Incredibly. They all got a position so they can make the most money off of it, I think there's so much of that behind it. I don't know all of it. But oh, no, you're 100%. And I really didn't understand that. Like I always just heard people say that, but let me assure you, that's it. I've never seen a more corrupt system literally starting at the very, very top of how it all works together.”

“So I had to fight to just see the right providers, I spent so much money out of pocket. Workers' compensation pays for next to nothing. Yeah, unless you have specific doctors that they are willing to pay for, you can't get care, right. Everything was a struggle from medical massage, physical therapy, to cognitive therapy, you name it, they fought you on it. And then to have independent medical exams that are paid for by the insurance company, and they spend literally three and a half minutes with me. They look at all the medical records and say alright, she can return to work in six weeks, and she has no problems.”

For the full transcript: https://otter.ai/u/EDWInbGkx7qAhus2lgEyjYilyoM

Nikki’s links:
Linktree: https://linktr.ee/Nikkilawley
LinkedIn: https://www.linkedin.com/in/nikki-lawley-aa281517/
Facebook: https://www.facebook.com/nikki.lawley
Instagram: https://www.instagram.com/lawleynikki/?hl=en
Recent podcast: https://player.fm/series/coffee-party-usa-radio/i-want-access-4-all-nurse-nikki-lawley-stops-by-for-a-cup-of-joe
Blog article: https://www.mikesmedicines.com/medical-marijuana/cannabis-shopping-with-nikki-lawley-everyone-is-unique/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/43497775Tue, 16 Feb 2021 21:39:15 +0000Jill WoodworthTSC Talks guest Nikki Lawley is a former pediatric nurse, former blackjack dealer, and much more, who went from full active life to chronic daily pain and other debilitating symptoms after suffering a traumatic brain injury on the job in 2016. This is...
Here are a few relevant quotes from the transcript~full transcript linked below:

“So I began the search for a diagnosis. It was hell, I was always a respected colleague in the medical field. And every doctor I went to was like, we don't understand why your symptoms are so long. We don't understand why you’re not better yet. We don't understand this headache that never goes away. How can you have a headache 24 /7. I'm like, I have a headache. 24/7. I have a headache that never goes away. And they basically told me that it was psychological at one point, and it was so de-humanizing for a person that's never had mental health challenges and extreme situations, to be told, like, this is all in your head. Really nothing wrong with you. And it was like, Whoa, is it really in my head? No, and I mean, chill. When I say I was upbeat and happy, you know, I was different than I was before. I was really quick, really witty really able to, you know, snapback and had a really fun life. I'm a different Nikki and I'm differently-abled, but I feel that patients are the experts, and they are not heard. We are not heard from a patient perspective. When I tell the doctor, this medicine isn't working. Why do I have to be in question?”

She goes on to say,

“It wasn't like a panacea that like one day I just opened my eyes and oh, cannabis is here. Oh, I'm all better. That's not how it works. Yeah, the universe has allowed me to explore. Honestly, it's allowed me to be able to understand my injury, it's been able to help me help others. I was able to see that cannabis isn't so bad. It's given me hope when I had none. and removing the stigma of this plant is honestly what's in my heart that I really want to help do.”

On the state of Cannabis legislation,

“But I've learned so much about this plant, and there's so much more to learn. And right. We're just at the beginning, really any of us. Exactly. And New York State is looking at legalization. Yes. I keep seeing that. Is that gonna happen? Well, I was part of it for the last two years and nothing happened. And it was incredibly disappointing. Incredibly. They all got a position so they can make the most money off of it, I think there's so much of that behind it. I don't know all of it. But oh, no, you're 100%. And I really didn't understand that. Like I always just heard people say that, but let me assure you, that's it. I've never seen a more corrupt system literally starting at the very, very top of how it all works together.”

“So I had to fight to just see the right providers, I spent so much money out of pocket. Workers' compensation pays for next to nothing. Yeah, unless you have specific doctors that they are willing to pay for, you can't get care, right. Everything was a struggle from medical massage, physical therapy, to cognitive therapy, you name it, they fought you on it. And then to have independent medical exams that are paid for by the insurance company, and they spend literally three and a half minutes with me. They look at all the medical records and say alright, she can return to work in six weeks, and she has no problems.”

For the full transcript: 2947allopathicmedicine,alternativemedicine,cannabinoidmedicine,cannabis,cannabisasmedicine,cannabislegislation,endocannabinoidsystem,headinjury,medicalmarijuana,medicine,mentalhealth,newyorkstate,peaceofmind,plantmedicine,qualityoflife,tbi,traumaticbraininjury,weed,workers'compfalsefullhttps://www.spreaker.com/episode/tsc-talks-exceptional-circumstances-making-it-work-when-systems-don-t-episode-1-lisa-consolidates--43254701
Here’s a few lines from the podcast transcript to give you a bit of a teaser…
“Lisa, in the last year, actually in 2020, has transitioned members of her family that are older, into her living space, and I've just kind of watched it from outside. And it's been quite informative witnessing the challenges and the rewards. We thought it would be great for Lisa to come on. And just talk a little bit about, what made her decide to do this, how it happened, and, shed light on her process. I think this is a common theme for a lot of people is what do we do when our parents get older…”

Here is a link to the full transcript of the podcast: https://otter.ai/u/OpicltOInNrjw4bb31gSRck6oIo

Lisa’s links:
Facebook: https://www.facebook.com/lisa.o.larson
Instagram: https://www.instagram.com/lisalarson7/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/43254701Tue, 02 Feb 2021 22:29:38 +0000Jill WoodworthLisa Larson is a mother, daughter, Senior Care Advocate, Learning Assistant, Co-Owner of TSC Talks, LLC and all-around awesome human being. Lisa started working on the podcast in 2018 after hearing the resilience, intensity complicated nature of the...
Here’s a few lines from the podcast transcript to give you a bit of a teaser…
“Lisa, in the last year, actually in 2020, has transitioned members of her family that are older, into her living space, and I've just kind of watched it from outside. And it's been quite informative witnessing the challenges and the rewards. We thought it would be great for Lisa to come on. And just talk a little bit about, what made her decide to do this, how it happened, and, shed light on her process. I think this is a common theme for a lot of people is what do we do when our parents get older…”

Here is a link to the full transcript of the podcast: https://otter.ai/u/OpicltOInNrjw4bb31gSRck6oIo

Lisa’s links:
Facebook: https://www.facebook.com/lisa.o.larson
Instagram: https://www.instagram.com/lisalarson7/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1868accomodations,assistedliving,downsize,eldercare,elderly,familyimpact,health,healthcare,inspirational,mentalhealth,mothers,moving,multigenerationalliving,resilience,seniorcare,seniorcitizen,seniorsfalsefullhttps://www.spreaker.com/episode/tsc-talks-special-broadcast-the-tower-of-babel-part-2-group-homes-alternative-health-and-coping--43096726
Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Brooke is a mom, TSC advocate, Adult Regional Coordinator for the TS Alliance, and also Hairstylist. Check out her Facebook here: https://www.facebook.com/brookey21

Jill Woodworth. (Human being. Writer,) Podcaster. Chronicler of being human. Parent of 5, 3 of whom have Tuberous Sclerosis Complex, each with varying effect Committed to giving voice to the underdog, the oppressed, those for whom being heard is crucial to survival and quality of life. If you are part of my world, which is everyone willing to take an honest look at their lives and discuss how the direst and desperate of situations often led to the most understanding and personal growth and compassion plus an inner motivation to work toward social good, then join my network! Let me know if you have a story to tell or if you need help to connect with this growing market. Contact me on linked in or drop me a note on https://tsctalks.com/ or pjlacy6@gmail.com. Offering podcast sponsorship, advertising, consulting, research, speaking and more.

Here is an excerpt from the transcript, click link for full transcript: https://otter.ai/u/Y6Z9mem7vmGFueMlLMBQnPsaV34

“we've done our best to advocate and support our daughters, we've had to make tough decisions, lean on mental health services to keep them safe, preserve our own safety. And sometimes these choices are sorely inadequate. Sometimes our resources run out before we can get our loved ones into a situation where they can take advantage of supports and services and start to forge their own lives. Sometimes group homes are a good option, and ideally should be a good option for more. But again, we are dependent, or they're dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience.

Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like, honestly, I was in Darvocet in the basement, and like watch real world and just said My mind was just junk. Because I just like might as well live vicariously through someone else. Since I can't leave my basement.

Moving on, I ended up getting pregnant have a daughter with Tuberous sclerosis complex your directory, I was told that basically, you should have an abortion because your body will fight the fetus off anyways. But for me, I chose not to everybody has a different view on that. And that's fine. But that's something I wanted to have to live with. And then having her she was good for about the first four months. And you know, it's just, it's a whole long story when you have to see and I could break down every single little bit of our lives. But I then was pregnant for my son after she started seizing and went to Canada for infantile spasms. I mean, if you I know we've all been through a different differently. We're on a different boat, Jill has different stories with her children that I'll have with my daughter. But listen, that boat was sinking”

They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC and others who are dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience.

Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like, honestly, I was in Darvocet in the basement, and like watch real world and just said My mind was just junk. Because I just like might as well live vicariously through someone else. Since I can't leave my basement.

Moving on, I ended up getting pregnant have a daughter with Tuberous sclerosis complex your directory, I was told that basically, you should have an abortion because your body will fight the fetus off anyways. But for me, I chose not to everybody has a different view on that. And that's fine. But that's something I wanted to have to live with. And then having her she was good for about the first four months. And you know, it's just, it's a whole long story when you have to see and I could break down every single little bit of our lives. But I then was pregnant for my son after she started seizing and went to Canada for infantile spasms. I mean, if you I know we've all been through a different differently. We're on a different boat, Jill has different stories with her children that I'll have with my daughter. But listen, that boat was sinking..."

Brooke’s links: https://www.instagram.com/_b3mor34u_/
YouTube: https://www.youtube.com/channel/UCdP1KUfMBhO2l4bDHaciM0w
Jill: https://linktr.ee/jillwoodworth

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/43096726Sun, 24 Jan 2021 20:46:40 +0000Jill WoodworthThey also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and...
Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Brooke is a mom, TSC advocate, Adult Regional Coordinator for the TS Alliance, and also Hairstylist. Check out her Facebook here: https://www.facebook.com/brookey21

Jill Woodworth. (Human being. Writer,) Podcaster. Chronicler of being human. Parent of 5, 3 of whom have Tuberous Sclerosis Complex, each with varying effect Committed to giving voice to the underdog, the oppressed, those for whom being heard is crucial to survival and quality of life. If you are part of my world, which is everyone willing to take an honest look at their lives and discuss how the direst and desperate of situations often led to the most understanding and personal growth and compassion plus an inner motivation to work toward social good, then join my network! Let me know if you have a story to tell or if you need help to connect with this growing market. Contact me on linked in or drop me a note on https://tsctalks.com/ or pjlacy6@gmail.com. Offering podcast sponsorship, advertising, consulting, research, speaking and more.

Here is an excerpt from the transcript, click link for full transcript: https://otter.ai/u/Y6Z9mem7vmGFueMlLMBQnPsaV34

“we've done our best to advocate and support our daughters, we've had to make tough decisions, lean on mental health services to keep them safe, preserve our own safety. And sometimes these choices are sorely inadequate. Sometimes our resources run out before we can get our loved ones into a situation where they can take advantage of supports and services and start to forge their own lives. Sometimes group homes are a good option, and ideally should be a good option for more. But again, we are dependent, or they're dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience.

Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like,...]]>3688alternativemedicine,autism,cannabis,epilepsy,grouphome,healthcare,le-vel,marginalization,mentalhealth,neurology,oppression,polypharmacy,qualityoflife,raredisease,running,socialservices,specialneeds,thrive,tuberoussclerosis,wimhoffalsefullhttps://www.spreaker.com/episode/tsc-talks-women-in-weed-a-compilation--42960105
Tiffany Watkins Tiffany Watkins is a "Cannabis Enthusiast". She's been an activist for 20+ years and has done a lot of work to bring awareness to health care and proper distribution of Medical Cannabis as well as paving the way for Recreational Cannabis.

She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited.

She states, "Cannabis is my passion and I am driven to assist this industry in becoming the standard when it comes to treatment plans, revenue achievement, and sales models.
My intent is to continue helping, building and growing within the Cannabis industry. "
https://vanguardmediaonline.com
https://www.linkedin.com/in/tiffany-watkins-9910a5176/

Danielle McQueen

Danielle, (Dani) McQueen, is a true champion in the cannabis world, business owner, who has been nominated with Best Cannabis Company of the Year, Maine Cannabis Activist, Business Leader of the Year, Champion in Corrupt Responsibility, Best Innovation: Hot Cocoa, and Young Entrepreneur of the Year. While that, she is also a mother of a special superhero little girl that suffers from the same autoimmune disease as she does. Danielle demonstrates her rough path but also her strength to follow her instincts, and as every human being, with doubts and uncertainty but reaches an amazing lifestyle for her family while also helping other families. She shares a story of overcome but also the real struggle as a person who suffers from Ankylosing Spondylitis. Danielle just really uprooted herself and moved to Maine to help her child and herself.
Website: https://www.oldmanfarms.com/
Instagram: https://www.instagram.com/oldman_goodies_llc/
Facebook: https://www.facebook.com/oldmangoodiesllc/

Daniella Benea

Daniella Benea, Pharm.D., licensed pharmacist working in the medical marijuana industry in CT & MA comes on to discuss her experience thus far working in the growing cannabis industry. A graduate of UConn School of Pharmacy, Daniella started out working as a Stop & Shop store pharmacist but took advantage of an opportunity to work at a CT dispensary, hoping for more hands-on patient engagement.
She encourages all listeners to call The Botanist or Prime Wellness with questions
(if local to CT or MA) if you're interested in learning more or booking an appointment.

Links are as follows:
LinkedIn: https://www.linkedin.com/in/daniella-benea-pharmd-54a38418b/

Joyce Gerber & Amie Searles

Joyce Gerber is an attorney, advocate, and writer. She brings her exceptional organizational skills, patience, and compassion to the emerging cannabis industry. She is the creator and host of The Canna Mom Show. When not advocating for cannabis normalization, Joyce is active with many community and civic organizations in Cambridge, Massachusetts, where she lives with her husband, children, pets, and several students from the Berklee School of Music. In her spare time, she has managed a rock band, ran for a local political office, and likes to create beautiful quilts for friends and family. Joyce has degrees from Northeastern University, Tufts University, and Connecticut College. When asked to describe his mom, her son Josh said, “she’s a force to be reckoned with.”

Amie Searles

Joyce’s former partner is a top-performing agent specializing in residential sales and leasing in the Greater Boston area and was working with Joyce as co-host at the time of this recording.

Facebook: https://www.facebook.com/thecannamomshow
Instagram: https://www.instagram.com/thecannamomshow/ LinkedIn, Joyce: https://www.linkedin.com/in/joyce-gerber/ LinkedIn, LinkedIN https://www.linkedin.com/in/amie-searles-79329373/

Ruth Fisher

Ruth Fisher, Ph.D., Cannabis researcher, and analyst, Co-Founder of Cann Dynamics, as well as the author of The Medical Cannabis Primer,
Order: https://www.amazon.com/Medical-Cannabis-Primer-Ushering-Marijuana/dp/1885176023
https://www.linkedin.com/in/rfisher/
https://medicalcannabisprimer.com/
https://www.quantaa.com/
https://canndynamics.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/42960105Sat, 16 Jan 2021 00:47:35 +0000Jill WoodworthThis is a compilation of 6 different women who found their way to the cannabis industry. Inspired, motivated, and educated from their encounters with the plant, now all making a difference by using their lived experiences as women, as cannabis users,...
Tiffany Watkins Tiffany Watkins is a "Cannabis Enthusiast". She's been an activist for 20+ years and has done a lot of work to bring awareness to health care and proper distribution of Medical Cannabis as well as paving the way for Recreational Cannabis.

She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited.

She states, "Cannabis is my passion and I am driven to assist this industry in becoming the standard when it comes to treatment plans, revenue achievement, and sales models.
My intent is to continue helping, building and growing within the Cannabis industry. "
https://vanguardmediaonline.com
https://www.linkedin.com/in/tiffany-watkins-9910a5176/

Danielle McQueen

Danielle, (Dani) McQueen, is a true champion in the cannabis world, business owner, who has been nominated with Best Cannabis Company of the Year, Maine Cannabis Activist, Business Leader of the Year, Champion in Corrupt Responsibility, Best Innovation: Hot Cocoa, and Young Entrepreneur of the Year. While that, she is also a mother of a special superhero little girl that suffers from the same autoimmune disease as she does. Danielle demonstrates her rough path but also her strength to follow her instincts, and as every human being, with doubts and uncertainty but reaches an amazing lifestyle for her family while also helping other families. She shares a story of overcome but also the real struggle as a person who suffers from Ankylosing Spondylitis. Danielle just really uprooted herself and moved to Maine to help her child and herself.
Website: https://www.oldmanfarms.com/
Instagram: https://www.instagram.com/oldman_goodies_llc/
Facebook: https://www.facebook.com/oldmangoodiesllc/

Daniella Benea

Daniella Benea, Pharm.D., licensed pharmacist working in the medical marijuana industry in CT & MA comes on to discuss her experience thus far working in the growing cannabis industry. A graduate of UConn School of Pharmacy, Daniella started out working as a Stop & Shop store pharmacist but took advantage of an opportunity to work at a CT dispensary, hoping for more hands-on patient engagement.
She encourages all listeners to call The Botanist or Prime Wellness with questions
(if local to CT or MA) if you're interested in learning more or booking an appointment.

Links are as follows:
LinkedIn: https://www.linkedin.com/in/daniella-benea-pharmd-54a38418b/

Joyce Gerber & Amie Searles

Joyce Gerber is an attorney, advocate, and writer. She brings her exceptional organizational skills, patience, and compassion to the emerging cannabis industry. She is the creator and host of The Canna Mom Show. When not advocating for cannabis normalization, Joyce is active with many community and civic organizations in Cambridge, Massachusetts, where she lives with her husband, children, pets, and several students from the Berklee School of Music. In her spare time, she has managed a rock band, ran for...]]>2421alternativemedicine,cannabinoids,cannabis,dispensary,edibles,education,endocannabinoidsystem,equality,ganja,health,inspiration,marijuana,massachusetts,medicalmarijuana,pharmacist,podcast,pot,weed,womenfalsefullhttps://www.spreaker.com/episode/tsc-talks-mike-robinson-founder-global-cannabinoid-research-center-cannabis-content-curator-gcrc-publications--42735511
Mike's Bio from https://mikesmedicines.com: "CONTACT MIKE: HIS BIO & OTHER PUBLICATIONS
To make contact: Email Mike 50kreasons@gmail.com Instagram @Cannabismymedicine

Mike on LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/

Best Bet – Check him out at the Global Cannabinoid Research Center. If you or someone you know has a story of how cannabis has improved your life and you'd like to share it, please reach out to Mike at 50kreasons@gmail.com! https://globalcannabinoidrc.com/

Mike Robinson, the founder of the Global Cannabinoid Research
Center in Santa Barbara California, is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for Severe epilepsy, Chronic Lyme Disease, PTSD, and in pain management. Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was International Relations and Diplomacy. Robinson has an extensive history of leading a large compassion program that provided countless disadvantaged cannabis patients with various alternative protocol treatments, is a published journalist and international cannabinoid research specialist, is a former registered Civil Rights lobbyist and non attorney that represented countless disabled children pro bono nationwide for over 2 decades. He’s a past board member of Big Brothers and Sisters, the founder of multiple non profits for disabled children, and is well known for adopting a severely disabled child, Genevieve, from the compassion program he once ran."

Time Stamps:
Introducing GCRC Publications (3.58)
Why he felt the need to create publications (4:41)
Looking for writers (7:18)
Examining the wealth of info and putting it into publications (11:59)
Medical education course (14:37)
Discussing ADA lobbying (20:45)
His biological daughter’s birth during the time he was in a racing wreck (25:13)
Cannabis brings back his memory (29:15)
Evolution of his writing (35:47)
Send in your stuff even if it’s not perfect (37:45)

https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/42735511Thu, 31 Dec 2020 13:37:41 +0000Jill WoodworthIn this episode, Mike Robinson, Founder~Global Cannabinoid Research Center, discusses his work developing a number of publications designed to harness and consolidate much of the multitude of cannabis content available all over the internet. Mike's...
Mike's Bio from https://mikesmedicines.com: "CONTACT MIKE: HIS BIO & OTHER PUBLICATIONS
To make contact: Email Mike 50kreasons@gmail.com Instagram @Cannabismymedicine

Mike on LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/

Best Bet – Check him out at the Global Cannabinoid Research Center. If you or someone you know has a story of how cannabis has improved your life and you'd like to share it, please reach out to Mike at 50kreasons@gmail.com! https://globalcannabinoidrc.com/

Mike Robinson, the founder of the Global Cannabinoid Research
Center in Santa Barbara California, is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for Severe epilepsy, Chronic Lyme Disease, PTSD, and in pain management. Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was International Relations and Diplomacy. Robinson has an extensive history of leading a large compassion program that provided countless disadvantaged cannabis patients with various alternative protocol treatments, is a published journalist and international cannabinoid research specialist, is a former registered Civil Rights lobbyist and non attorney that represented countless disabled children pro bono nationwide for over 2 decades. He’s a past board member of Big Brothers and Sisters, the founder of multiple non profits for disabled children, and is well known for adopting a severely disabled child, Genevieve, from the compassion program he once ran."

Time Stamps:
Introducing GCRC Publications (3.58)
Why he felt the need to create publications (4:41)
Looking for writers (7:18)
Examining the wealth of info and putting it into publications (11:59)
Medical education course (14:37)
Discussing ADA lobbying (20:45)
His biological daughter’s birth during the time he was in a racing wreck (25:13)
Cannabis brings back his memory (29:15)
Evolution of his writing (35:47)
Send in your stuff even if it’s not perfect (37:45)

https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2647alternativemedicine,autism,cancersurvivor,cannabinoidmedicine,cannabis,cannabiscontent,cannabislovestory,cbd,cbg,endocannabinoidsystem,epilepsy,gcrc,hemp,hemppublications,naturalmedicine,writerfalsefullhttps://www.spreaker.com/episode/tsc-talks-janna-champagne-rn-bsn-on-autism-cannabis-autism-safe-haven--42237896From https://jannachampagne.com:
"Janna's introduction to the cannabis industry began as a cannabis patient who happens to be a nurse, when she suffered a debilitating immune health collapse in 2012.
Janna credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status against all odds.
Janna is also known for her daughter's cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017

Nurse Janna has educated thousands of patients, helping them optimize their cannabis therapy outcomes through an individualized and well-informed approach. Janna has gained extensive clinical application knowledge through her work, including individual considerations of cannabis therapy, and which products might best fit a patient's situation. This also lends to her current expertise in educating nurses/medical professionals about cannabis, formulating symptom-targeted products, and ensuring patient's find optimal medical cannabis formulations.

Following patient needs has led Nurse Janna to fulfill diverse cannabis industry roles:

Graduate Faculty - John Patrick University
Founder Nonprofit Autism Safe Haven
Education-Patients, Medical Professionals, Industry Staff
Symptom Targeted/Medical Cannabis Formulating
Research Review/Written Content Author
Prominent Cannabis Advocate, Presenter, and Public Speaker/Interviewee
Volunteer Roles: Subcommittee Member, Oregon Cannabis Commission. Founding Member, Oregon Cannabis Clinician's Group"

From the transcript: "So I'm a cannabis nurse full time. And I have come into this industry as a patient, I have benefited greatly from cannabis as medicine, as has my daughter. Our stories are very widely available. If you want more detail on that. And just by following patient needs, I progressed from a patient to a grower to helping patients to now I'm beginning to educate medical professionals about cannabis. And another project I'm working on is is improving the accessibility of cannabis inclusive autism care resources. My daughter is you know, with her autism, and she's 18 years of age and, you know, ready to move on in life. And there really are no resources. So I'm building this for her and for other children that rely on cannabis for their quality of life and is their medicine and to allow them access to their chosen medicine, you know, while also receiving the care that they require. So that's that's really the purpose of autism safe haven."
https://otter.ai/u/mqsmqUyb_WKDQvYiW13P0Ug1Sf0

Time stamps:
Puberty crisis and beginning cannabis with her daughter (2:36)
How she came to integrated care (5:00)
Oregon nurse’s license in jeopardy if practicing in the cannabis space and teaching at John Patrick University (6:05)
Filling an educational gap-drug/cannabis interaction potential (8:52)
Transitioning her daughter from pharmaceuticals to cannabis (10:50)
SSRI interactions with cannabis (12:53)
Risk / benefit for cannabis and pharmaceuticals (14:58)
Stigma vs science (16:02)
Stigma and propaganda surrounding cannabis (18:05)
Autism Safe Haven (20:01)
The remodeling efforts to convert to Autism Safe Haven (20:35)
Improving quality of life for the neurodiverse population (24:27)
Presumption of Competence (25:13)
Treating behaviors with cannabis (28:08)
Explaining the Endocannabinoid System (29:06)
Flow Criteria (31:34)
CBD and Epidiolex combined with other pharmaceuticals (34:51)
Autism Safe Haven business model (37:00)
Unity products (39:00)
Therapies at Autism Safe Haven (40:48)

Janna's links:
Autism Safe Haven: https://autismsafehaven.org/
http://www.integratedholisticcare.com/providers.html
https://www.cannabisnursesnetwork.com/speaker/janna-champagne-bsn-rn/
Twitter: https://twitter.com/cannanursejanna
LinkedIn: https://www.linkedin.com/in/janna-champagne-bsn-rn-95a51a167/
Facebook: https://www.facebook.com/jannababe
Instagram: https://www.instagram.com/nursejanna/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/42237896Mon, 30 Nov 2020 12:55:18 +0000Jill WoodworthTSC Talks was honored to host Janna Champagne, RN, BSN, as a guest for the second time. From https://jannachampagne.com: "Janna's introduction to the cannabis industry began as a cannabis patient who happens to be a nurse, when she suffered a...From https://jannachampagne.com:
"Janna's introduction to the cannabis industry began as a cannabis patient who happens to be a nurse, when she suffered a debilitating immune health collapse in 2012.
Janna credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status against all odds.
Janna is also known for her daughter's cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017

Nurse Janna has educated thousands of patients, helping them optimize their cannabis therapy outcomes through an individualized and well-informed approach. Janna has gained extensive clinical application knowledge through her work, including individual considerations of cannabis therapy, and which products might best fit a patient's situation. This also lends to her current expertise in educating nurses/medical professionals about cannabis, formulating symptom-targeted products, and ensuring patient's find optimal medical cannabis formulations.

Following patient needs has led Nurse Janna to fulfill diverse cannabis industry roles:

Graduate Faculty - John Patrick University
Founder Nonprofit Autism Safe Haven
Education-Patients, Medical Professionals, Industry Staff
Symptom Targeted/Medical Cannabis Formulating
Research Review/Written Content Author
Prominent Cannabis Advocate, Presenter, and Public Speaker/Interviewee
Volunteer Roles: Subcommittee Member, Oregon Cannabis Commission. Founding Member, Oregon Cannabis Clinician's Group"

From the transcript: "So I'm a cannabis nurse full time. And I have come into this industry as a patient, I have benefited greatly from cannabis as medicine, as has my daughter. Our stories are very widely available. If you want more detail on that. And just by following patient needs, I progressed from a patient to a grower to helping patients to now I'm beginning to educate medical professionals about cannabis. And another project I'm working on is is improving the accessibility of cannabis inclusive autism care resources. My daughter is you know, with her autism, and she's 18 years of age and, you know, ready to move on in life. And there really are no resources. So I'm building this for her and for other children that rely on cannabis for their quality of life and is their medicine and to allow them access to their chosen medicine, you know, while also receiving the care that they require. So that's that's really the purpose of autism safe haven."
https://otter.ai/u/mqsmqUyb_WKDQvYiW13P0Ug1Sf0

Time stamps:
Puberty crisis and beginning cannabis with her daughter (2:36)
How she came to integrated care (5:00)
Oregon nurse’s license in jeopardy if practicing in the cannabis space and teaching at John Patrick University (6:05)
Filling an educational gap-drug/cannabis interaction potential (8:52)
Transitioning her daughter from pharmaceuticals to cannabis (10:50)
SSRI interactions with cannabis (12:53)
Risk / benefit for cannabis and pharmaceuticals (14:58)
Stigma vs science (16:02)
Stigma and propaganda surrounding cannabis (18:05)
Autism Safe Haven (20:01)
The remodeling efforts to convert to Autism Safe Haven (20:35)
Improving quality of life for the neurodiverse population (24:27)
Presumption of Competence (25:13)
Treating behaviors with cannabis (28:08)
Explaining the Endocannabinoid System (29:06)
Flow Criteria (31:34)
CBD and Epidiolex combined with other pharmaceuticals (34:51)
Autism Safe Haven business model (37:00)
Unity products (39:00)
Therapies...]]>3071aba,alternativehealth,alternativemedicine,autism,autismsafehaven,behavior,cannabis,cannabisnurse,caregiver,grouphome,medicine,mentalhealth,naturalmedicines,nurse,nursing,pharmaceuticals,plantmedicinefalsefullhttps://www.spreaker.com/episode/tsc-talks-cannabis-nurse-carey-lee-leuer-r-n-feeding-my-soul--41998717
From https://thegreennurse.com/cannabis_nurses/carey-lee-leuer/"
"Nurse Carey Lee wasn’t always a nurse. Her first career spanning over 15 years was in mortgage finance. Although successful, finance did not ignite the fire in her belly like nursing would. 20+ years after high school, marriage, three boys, and a dog named Cooper she took a leap of faith and went back to school to get her nursing degree. Her clinical experience ranges from emergency medicine, skilled nursing in LTAC, geriatric behavioral health & dementia, restorative nursing, and now her primary practice is holistic integrative nursing. “Nursing is my second career but my first love.”

Nurse Carey Lee also brings her perspective as a patient to the table. She has battled her own emotional health and has experienced incorrect diagnoses and pharmaceutical trauma. This led her on a journey to find ways of healing other than Western medicine’s first line of treatment-pharmaceuticals. She quickly discovered that getting back to the basics of self-care would become the foundation of healing & maintaining optimal health of mind, body, & spirit. She is passionate about educating patients of various healing modalities and showing them how to THRIVE by implementing a customized self-care plan she lovingly refers to as her Daily Five to Thrive. This self-care plan incorporates the basics: sleep hygiene, nutrition, functional exercise, sunshine, and mindfulness.

“Cannabis is one tool we can use to heal & maintain the health of our body, mind, and spirit.” Her own endocannabinoid system was depleted from all of the years of chronic stress that comes with complex post traumatic stress disorder (CPTSD) and seasonal affective disorder (SAD). Thanks to medical cannabis and her daily five to thrive, her endocannabinoid system was replenished. She discovered that medical cannabis was the only way she found relief of the nightmares & terrors experienced most of her life. She also found relief from the chronic pain she battles thanks to Cervical Spondylotic Myelopathy. The plant has also allowed Nurse Carey Lee to open up to explore and discover other healing modalities from Eastern medicine, mycology, reiki, energy healing, and holistic psychology."

From the transcript:
"I've been a registered nurse for three years, a little over three years now. My first career was in mortgage finance completely. You think it would be the opposite? And I did that for about 15 years, everything from like processing, underwriting sales, ended with the bank, owned my own mortgage brokerage firm with my sister and my husband. Wow. Yeah, VIP mortgage group. We ran it out of Elgin, Illinois. And I pretty much ran operations. I handled every aspect of operations and you can be really good at something and hate it. Yeah. And that was me. I it was not fulfilling to me it was it did not tickle my fancy in the slightest. I was miserable. And what made you get into it in the first place? I just kind of fell it fell into it. I actually had left and moved down to Florida after high school in the in the early 90s. And when I came back home to the burbs of Chicago, my sister's still there. She was just got into the mortgage business herself. Hmm. And so I was crashing at her pad. And she was just like, Hey, you want to come in and check it out? And so I did. And, you know, it just it found me It fell in my lap. And I went with it, you know, so I had a great career, I earned a lovely income and met, plus lots of great life experiences. But like I said, it just wasn't it wasn't feeding your soul. It wasn't feeding my soul."

Going back to school for nursing (9:54)
How she found green nursing (12:06)
Regular cannabis user and feeling the stigma (13:42)
“Coming out” about cannabis use (15:02)
Working in an ER with c-PTSD (20:23)
Struggling with traditional medical treatment and it’s limitations (23:10)
Cannabis and c-PTSD (25:08)
Cannabis, anxiety and nausea (27:22)
Spirituality, religion and the plant (29:15)
Working with Dr. Clifton (32:07)
Difficulty finding a certifying provider (34:27)
What happens when mom finds out (35:11)
Other family members reaction (35:49)
Carey Lee’s Vision (38:25)
Pharmaceutical trauma/polypharmacy (40:21)

Carey Lee's Links:
Facebook: https://www.facebook.com/cannanursecareylee
Instagram: http://www.instagram.com/cannabisnursecareylee
LinkedIn: linkedin.com/in/carey-lee-leuer-24b8011a3
The Green Nurse: https://thegreennurse.com/cannabis_nurses/carey-lee-leuer/
Email/contact: greennurse17@gmail.com

LINK TO AI TRANSCRIPT: https://otter.ai/u/3O1SSQ7maoWo8oIOdh-H-6KdK4s

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41998717Mon, 16 Nov 2020 12:37:34 +0000Jill WoodworthTSC Talks had a fantastic chat with Cannabis Nurse, Carey Lee Leuer, R.N. recently. Carey Lee is a Registered Nurse, Iowa Green Nurse and Cannabis Nurse Consultant- Integrative Health, Geriatric’s, Mental Health. Here's some further info, snippets...
From https://thegreennurse.com/cannabis_nurses/carey-lee-leuer/"
"Nurse Carey Lee wasn’t always a nurse. Her first career spanning over 15 years was in mortgage finance. Although successful, finance did not ignite the fire in her belly like nursing would. 20+ years after high school, marriage, three boys, and a dog named Cooper she took a leap of faith and went back to school to get her nursing degree. Her clinical experience ranges from emergency medicine, skilled nursing in LTAC, geriatric behavioral health & dementia, restorative nursing, and now her primary practice is holistic integrative nursing. “Nursing is my second career but my first love.”

Nurse Carey Lee also brings her perspective as a patient to the table. She has battled her own emotional health and has experienced incorrect diagnoses and pharmaceutical trauma. This led her on a journey to find ways of healing other than Western medicine’s first line of treatment-pharmaceuticals. She quickly discovered that getting back to the basics of self-care would become the foundation of healing & maintaining optimal health of mind, body, & spirit. She is passionate about educating patients of various healing modalities and showing them how to THRIVE by implementing a customized self-care plan she lovingly refers to as her Daily Five to Thrive. This self-care plan incorporates the basics: sleep hygiene, nutrition, functional exercise, sunshine, and mindfulness.

“Cannabis is one tool we can use to heal & maintain the health of our body, mind, and spirit.” Her own endocannabinoid system was depleted from all of the years of chronic stress that comes with complex post traumatic stress disorder (CPTSD) and seasonal affective disorder (SAD). Thanks to medical cannabis and her daily five to thrive, her endocannabinoid system was replenished. She discovered that medical cannabis was the only way she found relief of the nightmares & terrors experienced most of her life. She also found relief from the chronic pain she battles thanks to Cervical Spondylotic Myelopathy. The plant has also allowed Nurse Carey Lee to open up to explore and discover other healing modalities from Eastern medicine, mycology, reiki, energy healing, and holistic psychology."

From the transcript:
"I've been a registered nurse for three years, a little over three years now. My first career was in mortgage finance completely. You think it would be the opposite? And I did that for about 15 years, everything from like processing, underwriting sales, ended with the bank, owned my own mortgage brokerage firm with my sister and my husband. Wow. Yeah, VIP mortgage group. We ran it out of Elgin, Illinois. And I pretty much ran operations. I handled every aspect of operations and you can be really good at something and hate it. Yeah. And that was me. I it was not fulfilling to me it was it did not tickle my fancy in the slightest. I was miserable. And what made you get into it in the first place? I just kind of fell it fell into it. I actually had left and moved down to Florida after high school in the in the early 90s. And when I came back home to the burbs of Chicago, my sister's still there. She was just got into the mortgage business herself. Hmm. And so I was crashing at her pad. And she was just like, Hey, you want to come in and check it out? And so I did. And, you know, it just it found me It fell in my lap. And I went with it, you know, so I had a great career, I earned a lovely income and met, plus lots of great life experiences. But like I said, it just wasn't it wasn't feeding your...]]>2648alternativemedicine,cannabis,cannabisnurse,cptsd,geriatrics,greennurse,holistic,integrativehealth,iowa,mentalhealth,naturalmedicines,nurse,nursing,ptsd,rnfalsefullhttps://www.spreaker.com/episode/tsc-talks-allison-chapman-legislative-director-health-choice-4-action-ma-pharma-safety-exemptions-mandates--41834915
I'm the Legislative Director for health choice for action, Massachusetts, and it's an all volunteer organization, it's not paid. I think a lot of people misinterpret that. But the reason you do it is to make sure that your children and your family members, that may be a little different than others have provided, continue to be able to access the community, and opportunities as everyone else's creation and jobs and all of these things, we want to make sure that everyone has access to when people are not being denied on the basis of their underlying medical issues, or their religious beliefs, or whatever it is, because we're in Massachusetts, we have all these wonderful laws that don't allow discrimination. And unfortunately, there's still some discrimination. So I help with other moms like myself, and I've been doing it for about 15 years. Wow, I've been injury advocate. So a lot longer than I was doing anything else. But that's what I've done for the last about 15 years. But health choice for actions just for a year, a few other organizations in Massachusetts has been for the last four years. So, you know, I've been doing it a long time, but it's with different organizations.

Allison Chapman is not an anti-vaxxer. She is, however, a firm believer in vaccine injury having watched all three of her children and her mother suffer significant effects from vaccinations. Allison is the Legislative Director for Health Choice for Action, Massachusetts and has been active with other organizations concerned with vaccine injury. Allison describes her journey and what happened to people she loved when they followed medical advice.

The first vaccine and reaction (7:36)
Why do my kids have physical reactions to shots (9:92)
Changes in her son after vaccine (11:20)
Years before doctors admitted her child had an “adverse event” (13:06)
Child number three has an adverse reaction to shot as does her mother (13:47)
Adverse reactions can happen and should be acknowledged. That doesn’t mean one has to be completely anti-vax (15:43)
Legislation and vaccine exemptions (19:01)
Religious exemptions (20:48)
Autism and vaccines (24:16)
Multiple vaccines administered together and what are the effects (21:44)
Vaccine Injury Compensation Fund (26:26)
Harvard Pilgrim study regarding vaccine injury (32:04)
HHS failure to study how to reduce the rate of reaction (35:14)
Poly-pharmacy and vaccine injury and failure to study efficacy/safety in people of color (36:55)
Shame and bullying of the vaccine injured (42:30)
Do the unvaccinated spread disease? (43:57)
Vaccines and politics (49:25)
Finding balance (50:55)
Mandatory flu vaccines (47:41)
Doctors and training and adverse events (52:23)
Differences in vaccine dosage and effectiveness on people of color (58:27)
Vaccines not studied long enough (1:00:31)

Allison's Links:

https://healthchoice.org/leader/allison-chapman/
https://www.healthchoicemassachusetts.org/about/
https://www.facebook.com/OpposeOverreach/
https://www.facebook.com/allison.chapman.184
https://www.telegram.com/article/20150603/NEWS/150609702
https://www.facebook.com/OpposeOverreach/posts/allison-chapman-legislative-chair-for-health-choice-4-action-ma-and-other-parent/366612521406100/
https://www.instagram.com/opposeoverreach.ma/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41834915Fri, 06 Nov 2020 23:57:22 +0000Jill WoodworthIn this episode, TSC Talks had the honor and pleasure of speaking with Allison Chapman, Legislative Director~Health Choice 4 Action MA. I met Allison through a Facebook Group called, "FLU YOU BAKER CLASS ACTION", formed to "stay connected, informed &...
I'm the Legislative Director for health choice for action, Massachusetts, and it's an all volunteer organization, it's not paid. I think a lot of people misinterpret that. But the reason you do it is to make sure that your children and your family members, that may be a little different than others have provided, continue to be able to access the community, and opportunities as everyone else's creation and jobs and all of these things, we want to make sure that everyone has access to when people are not being denied on the basis of their underlying medical issues, or their religious beliefs, or whatever it is, because we're in Massachusetts, we have all these wonderful laws that don't allow discrimination. And unfortunately, there's still some discrimination. So I help with other moms like myself, and I've been doing it for about 15 years. Wow, I've been injury advocate. So a lot longer than I was doing anything else. But that's what I've done for the last about 15 years. But health choice for actions just for a year, a few other organizations in Massachusetts has been for the last four years. So, you know, I've been doing it a long time, but it's with different organizations.

Allison Chapman is not an anti-vaxxer. She is, however, a firm believer in vaccine injury having watched all three of her children and her mother suffer significant effects from vaccinations. Allison is the Legislative Director for Health Choice for Action, Massachusetts and has been active with other organizations concerned with vaccine injury. Allison describes her journey and what happened to people she loved when they followed medical advice.

The first vaccine and reaction (7:36)
Why do my kids have physical reactions to shots (9:92)
Changes in her son after vaccine (11:20)
Years before doctors admitted her child had an “adverse event” (13:06)
Child number three has an adverse reaction to shot as does her mother (13:47)
Adverse reactions can happen and should be acknowledged. That doesn’t mean one has to be completely anti-vax (15:43)
Legislation and vaccine exemptions (19:01)
Religious exemptions (20:48)
Autism and vaccines (24:16)
Multiple vaccines administered together and what are the effects (21:44)
Vaccine Injury Compensation Fund (26:26)
Harvard Pilgrim study regarding vaccine injury (32:04)
HHS failure to study how to reduce the rate of reaction (35:14)
Poly-pharmacy and vaccine injury and failure to study efficacy/safety in people of color (36:55)
Shame and bullying of the vaccine injured (42:30)
Do the unvaccinated spread disease? (43:57)
Vaccines and politics (49:25)
Finding balance (50:55)
Mandatory flu vaccines (47:41)
Doctors and training and adverse events (52:23)
Differences in vaccine dosage and effectiveness on people of color (58:27)
Vaccines not studied long enough (1:00:31)

Allison's Links:

https://healthchoice.org/leader/allison-chapman/
https://www.healthchoicemassachusetts.org/about/
https://www.facebook.com/OpposeOverreach/
3787autoimmuneconditions,flumandate,governmentoverreach,healthchoice4actionma,healthfreedom,mandates,massachusetts,medicalexemption,neurological,pharmaceuticalinjury,religiousexemption,seizures,vaccineinjury,vaccines,vaccinesafetyfalsefullhttps://www.spreaker.com/episode/tsc-talks-chiara-juster-advocate-strategic-counsel-educate-advocate-legislate--41758181https://freedelisi.com).
From her bio:

“Chiara Juster is a social justice advocate and attorney. She advises Oaksterdam on government and policy matters and is OU’s liaison to DC; she represents the school as an active member of the National Cannabis Industry Association where she is in her second year on the Diversity Equity and Inclusion committee.

In addition to her work with Oaksterdam, Chiara is an advocate for reform, decarceration, cannabis & works on various policy matters. She was matched by Last Prisoner Project with the longest serving non-violent cannabis offender currently incarcerated in the United States, Richard DeLisi, who has been incarcerated since 1988. With gain time he is set to be released from his ninety year sentence in July, 2022, but that day may never come as Richard is older, in poor health, and in a prison experiencing a COVID19 out break. If you’d like this grandfather of five to live his days with his loving family please visit FreeDeLisi.com.

Chiara grew up in Portland, OR, though she was born in CA. She attended the University of Oregon where she received degrees in political science and sociology before attending the University of Miami School of Law. She realized as a young prosecutor that there was no such thing as prosecutorial discretion. Disheartened, she left the country & spent years traveling & learning, before returning stateside resolute on changing the laws. She is a graduate of Oaksterdam University & hosts High Tea Tuesdays on OU’s IG live where she discusses a Cannacopia of topics.”

Chiara starts off giving some background from a personal perspective:
“I was born in Northern California. But I grew up in Portland, Oregon, from the time I was a toddler, and ended up going to college in Oregon. in a state where cannabis had been decriminalized since 1973. I actually grew up in Earl Blumenauer’s district, I have one of his little pins behind me, he gives a nod on the hill. And when I went to University of Oregon, obviously cannabis had always been part of the culture in Eugene. When I then went to the University of Miami for law school, it was a whole different world, particularly when it came to drug policy, cannabis in particular, to harm reduction overall, and Community Investment”

Links to content:

3:35-Richard Delisi~The Last Prisoner Project
3:59-Early days, growing up in Oregon
5:34-Going to Law School~Univ. of Miami
8:13-Working at State Attorney’s Office in Miami, FL
10:07-Decriminalization vs. Legalization
12:45-Deciding to leave the country and travel
13:50-Living internationally
16:13-Oaksterdam University
18: 32-The Last Prisoner Project
20:13-Steve D’Angelo
23:16-Decarceration and Clemency
24:45-National Cannabis Industry Association - https://thecannabisindustry.org/
25:48-Cannabis ownership predominantly white men
26:40-Burden on Women esp. w/covid
29:15:-Canna Bros
32:40-Role of Bud Tenders
36:33-Talking to her daughter and our offspring about Cannabis
41:11-Medical Cannabis for children
44:18-Where we can find Chiara Juster online
45:35-High Tea Tuesdays, https://www.instagram.com/oaksterdamuniversity/

Chiara’s Links:
LinkedIn: https://www.linkedin.com/in/flowerlover/
Facebook: Oaksterdam Univ- https://www.facebook.com/OaksterdamUniversity/
Oaksterdam University Bio: https://oaksterdamuniversity.com/chiara-juster-esq/
Wikileaf: https://www.wikileaf.com/thestash/free-richard-delisi/
The Last Prisoner Project: https://www.lastprisonerproject.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41758181Mon, 02 Nov 2020 15:32:29 +0000Jill WoodworthTSC Talks had a chance to talk with Chiara Juster, Advocate and Strategic Counsel, Head of Government Affairs, Oaksterdam University, Host of High Tea Tuesdays on OU Instagram and Legal Advisor for The Last Prisoner Project, head counsel for Richard...https://freedelisi.com).
From her bio:

“Chiara Juster is a social justice advocate and attorney. She advises Oaksterdam on government and policy matters and is OU’s liaison to DC; she represents the school as an active member of the National Cannabis Industry Association where she is in her second year on the Diversity Equity and Inclusion committee.

In addition to her work with Oaksterdam, Chiara is an advocate for reform, decarceration, cannabis & works on various policy matters. She was matched by Last Prisoner Project with the longest serving non-violent cannabis offender currently incarcerated in the United States, Richard DeLisi, who has been incarcerated since 1988. With gain time he is set to be released from his ninety year sentence in July, 2022, but that day may never come as Richard is older, in poor health, and in a prison experiencing a COVID19 out break. If you’d like this grandfather of five to live his days with his loving family please visit FreeDeLisi.com.

Chiara grew up in Portland, OR, though she was born in CA. She attended the University of Oregon where she received degrees in political science and sociology before attending the University of Miami School of Law. She realized as a young prosecutor that there was no such thing as prosecutorial discretion. Disheartened, she left the country & spent years traveling & learning, before returning stateside resolute on changing the laws. She is a graduate of Oaksterdam University & hosts High Tea Tuesdays on OU’s IG live where she discusses a Cannacopia of topics.”

Chiara starts off giving some background from a personal perspective:
“I was born in Northern California. But I grew up in Portland, Oregon, from the time I was a toddler, and ended up going to college in Oregon. in a state where cannabis had been decriminalized since 1973. I actually grew up in Earl Blumenauer’s district, I have one of his little pins behind me, he gives a nod on the hill. And when I went to University of Oregon, obviously cannabis had always been part of the culture in Eugene. When I then went to the University of Miami for law school, it was a whole different world, particularly when it came to drug policy, cannabis in particular, to harm reduction overall, and Community Investment”

Links to content:

3:35-Richard Delisi~The Last Prisoner Project
3:59-Early days, growing up in Oregon
5:34-Going to Law School~Univ. of Miami
8:13-Working at State Attorney’s Office in Miami, FL
10:07-Decriminalization vs. Legalization
12:45-Deciding to leave the country and travel
13:50-Living internationally
16:13-Oaksterdam University
18: 32-The Last Prisoner Project
20:13-Steve D’Angelo
23:16-Decarceration and Clemency
24:45-National Cannabis Industry Association - https://thecannabisindustry.org/
25:48-Cannabis ownership predominantly white men
26:40-Burden on Women esp. w/covid
29:15:-Canna Bros
32:40-Role of Bud Tenders
36:33-Talking to her daughter and our offspring about Cannabis
41:11-Medical Cannabis for children
44:18-Where we can find Chiara Juster online
45:35-High Tea Tuesdays, https://www.instagram.com/oaksterdamuniversity/

Chiara’s Links:
LinkedIn: https://www.linkedin.com/in/flowerlover/
Facebook: Oaksterdam Univ- 2975attorney,barriers,budtender,cannabis,cannabisindustry,cannabislegislation,decarceration,lastprisonerproject,medicine,mmj,oaksterdamuniversity,oregon,prisoner,racialequity,richarddelisi,socialequity,womenincannabisfalsefullhttps://www.spreaker.com/episode/tsc-talks-plant-teachers-sarah-hope-psychedelic-teacher-microdose-coach--41644637https://www.linkedin.com/in/shopecoaching/

"I believe in your ability to reconnect with your own true, sacred and powerful nature. When you choose to do so you will access your own power in order to realize your own unique contribution to humanity. When we choose to work together we will settle for nothing less than the best expression of your talent and skill as we design the life you came here to live. I offer this work via three channels.

Forest Medicine Coaching: Whole life coaching programs and rituals for individuals, couples and groups. www.forestmedicinecoaching.com

Reclaiming the Sacred: Purposeful spiritual and cultural retreats and ceremonies and bilingual mindfulness services for people in the midst of life transition.

Trusted referral and connection services: I also help individuals and groups connect with the trusted professionals in the entheogenic and contemplative therapy community to find the best fit for their needs and availability.

Bilingual services and retreats in Mexico and South and Central America. "

For more information, check out Sarah's social media links:
Instagram: https://www.instagram.com/forestmedicinecoaching/
Facebook: https://www.facebook.com/forestmedicinecoaching/
https://thethirdwave.co/microdose-mom/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41644637Mon, 26 Oct 2020 14:15:04 +0000Jill WoodworthIt was wonderful to cross paths with Sarah Hope on LinkedIn recently and have her as a guest on the podcast. She is the first Microdose Coach I have met, let alone interviewed. I have a personal interest in microdosing, mostly cannabis, but recently...https://www.linkedin.com/in/shopecoaching/

"I believe in your ability to reconnect with your own true, sacred and powerful nature. When you choose to do so you will access your own power in order to realize your own unique contribution to humanity. When we choose to work together we will settle for nothing less than the best expression of your talent and skill as we design the life you came here to live. I offer this work via three channels.

Forest Medicine Coaching: Whole life coaching programs and rituals for individuals, couples and groups. www.forestmedicinecoaching.com

Reclaiming the Sacred: Purposeful spiritual and cultural retreats and ceremonies and bilingual mindfulness services for people in the midst of life transition.

Trusted referral and connection services: I also help individuals and groups connect with the trusted professionals in the entheogenic and contemplative therapy community to find the best fit for their needs and availability.

Bilingual services and retreats in Mexico and South and Central America. "

For more information, check out Sarah's social media links:
Instagram: https://www.instagram.com/forestmedicinecoaching/
Facebook: https://www.facebook.com/forestmedicinecoaching/
https://thethirdwave.co/microdose-mom/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2897brain,cannabis,colorado,forestbathing,forestmedicine,healing,microdose,microdosing,neurogenesis,neuroplasticity,parenting,psychedelicmedicine,psychedelics,soulfalsefullhttps://www.spreaker.com/episode/tsc-talks-tsc-and-covid-a-conversation-on-impact-hosted-by-daniel-price--41495229
Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9Sng

Meghan shares that her doctor believes she had Covid very early on before we knew it was in the US. (6:53)
Heather discusses what happened when her young son was admitted to the hospital for monitoring of seizures and how Covid complicated that. (8:46)
Kathy discusses what it was like for her in Canada when Covid first hit. (10:24)
Rob discusses what it was like to be on Capitol Hill in D.C. advocating for TSC support from politicians who obviously knew the seriousness of the virus (11:17)
Josh and Emily discuss how difficult it is to find a job right now as new college graduates (13:24)
Daniel discusses being furloughed from his job and how covid has impacted him. (15:20)
Jill notes that her life has not changed that much due to Covid (17:02)
Meghan discusses facing a serious health challenge during the shutdown. (18:28)
Rob discusses telehealth and its benefits and limitations. (21:27)
Josh speaks about his fear of going to hospitals for routine care at this time. (23:34)
Emily does not like telehealth visits and prefers seeing her doctors face to face in person. (24:32)
Heather and her children became sick with Covid. (25:48)
Kathy speaks about the disruption of care due to Covid (26:33)
Meghan shares about being in Minnesota and having life and medical care disrupted due to the racial justice riots and protests. (32:13)
Further discussion about telehealth, its benefits and its shortcomings (33:58)
The challenges of remote learning (37:23)
Discussion of stress, anxiety and mental health concerns during Covid. (47:01)
Stress and seizures (51:23)
TSC, stress and covid, we are used to adjusting (53:23)
Rob discusses the additional layer of stress caused by wildfires on the west coast (58:51)
Meghan discusses the riots and protests in Minneapolis (1:00:46)
Emily discusses the difficulty of being a new college graduate seeking a job (1:02:17)
Daniel, also on the west coast, talks about the widfires and the additional level of physical and mental stress they cause (1:05:34)
Kathy finds the blessings during Covid (1:06:25)
Rob misses the normalcy of going on dates with his wife (1:07:58)
Megan and Emilie talk gratitude (1:09:56)
Finishing up with one word that sums it up for everyone (1:14:07)

Rob Grandia Links:
https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/ https://www.tsalliance.org/about-us/our-leadership/ https://www.pe.com/2016/05/19/health-walk-helps-fight-disease-that-attacks-internal-organs/ https://www.facebook.com/rob.grandia.3

Daniel Price Links:
Facebook: https://www.facebook.com/daniel.price.1694
Instagram: https://www.instagram.com/pricendaniel/
LinkedIn: https://www.linkedin.com/in/daniel-n-price-7270156a/ https://www.tsalliance.org/wp-content/uploads/2019/06/06-June-Adults-with-TSC-Newsletter.pdf https://www.rareiscommunity.com/2019/11/27/navigating-a-forever-home-with-a-rare-disease-daniels-story/

Cathy Evanochko Links:
Facebook: https://www.facebook.com/cathy.evanochko https://www.tscanada.ca/about-us/board-of-directors/ https://www.raredisorders.ca/about-cord/ https://www.tscanada.ca/about-us/

Emilie Peters Links:
Facebook: https://www.facebook.com/emilie.n.peters Instagram: https://www.instagram.com/emilie_peters_/ LinkedIn: https://www.linkedin.com/in/emilie-peters-95ba421a3/ https://prezi.com/p/pflgttwujtiq/what-is-tsc/

Heather Still Links:
Instagram: https://www.instagram.com/hstillwaters/ LinkedIn: https://www.linkedin.com/in/heather-still-478a9991/

Joshua Shoup Links:
https://www.timesonline.com/7b8a15ce-62c5-11e7-8fcb-ffa59dd8ad56.html Facebook: https://www.facebook.com/joshua.shoup.3 LinkedIn: https://www.linkedin.com/in/joshua-shoup-88777a1aa/

Meghan Bittner Links:

Thanks for tuning in! We hope to produce another "TSC and COVID Convo" in early January. If you are interested in participating, contact TSC Talks on any of our social media channels.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41495229Fri, 16 Oct 2020 16:59:07 +0000Jill WoodworthTSC Talks discusses TSC in the time of Covid. Guest host Daniel Price joined Jill Woodworth for a roundtable discussion with guests Rob Grandia, Emilie Peters, Heather Still, Meghan Bittner, Joshua Stroup and Cathy Evanochko. Check out the time...
Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9Sng

Meghan shares that her doctor believes she had Covid very early on before we knew it was in the US. (6:53)
Heather discusses what happened when her young son was admitted to the hospital for monitoring of seizures and how Covid complicated that. (8:46)
Kathy discusses what it was like for her in Canada when Covid first hit. (10:24)
Rob discusses what it was like to be on Capitol Hill in D.C. advocating for TSC support from politicians who obviously knew the seriousness of the virus (11:17)
Josh and Emily discuss how difficult it is to find a job right now as new college graduates (13:24)
Daniel discusses being furloughed from his job and how covid has impacted him. (15:20)
Jill notes that her life has not changed that much due to Covid (17:02)
Meghan discusses facing a serious health challenge during the shutdown. (18:28)
Rob discusses telehealth and its benefits and limitations. (21:27)
Josh speaks about his fear of going to hospitals for routine care at this time. (23:34)
Emily does not like telehealth visits and prefers seeing her doctors face to face in person. (24:32)
Heather and her children became sick with Covid. (25:48)
Kathy speaks about the disruption of care due to Covid (26:33)
Meghan shares about being in Minnesota and having life and medical care disrupted due to the racial justice riots and protests. (32:13)
Further discussion about telehealth, its benefits and its shortcomings (33:58)
The challenges of remote learning (37:23)
Discussion of stress, anxiety and mental health concerns during Covid. (47:01)
Stress and seizures (51:23)
TSC, stress and covid, we are used to adjusting (53:23)
Rob discusses the additional layer of stress caused by wildfires on the west coast (58:51)
Meghan discusses the riots and protests in Minneapolis (1:00:46)
Emily discusses the difficulty of being a new college graduate seeking a job (1:02:17)
Daniel, also on the west coast, talks about the widfires and the additional level of physical and mental stress they cause (1:05:34)
Kathy finds the blessings during Covid (1:06:25)
Rob misses the normalcy of going on dates with his wife (1:07:58)
Megan and Emilie talk gratitude (1:09:56)
Finishing up with one word that sums it up for everyone (1:14:07)

Rob Grandia Links:
https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/ https://www.tsalliance.org/about-us/our-leadership/ https://www.pe.com/2016/05/19/health-walk-helps-fight-disease-that-attacks-internal-organs/ https://www.facebook.com/rob.grandia.3

Daniel Price Links:
Facebook: https://www.facebook.com/daniel.price.1694
Instagram: https://www.instagram.com/pricendaniel/
LinkedIn: https://www.linkedin.com/in/daniel-n-price-7270156a/ 4555autism,brainsurgery,covid,epilepsy,hope,inspiration,medical,mentalhealth,neurology,ptsd,qualityoflife,quarantine,raredisease,resilience,seizures,trauma,tsc,tsclinic,tuberoussclerosiscomplex,westernmedicinefalsefullhttps://www.spreaker.com/episode/tsc-talks-what-really-matters-katherine-caulfield-quantum-freedom-author-healer-astrologer-mystic--41369860
From her website, "Inspired by her own eye-opening spiritual and Kundalini awakening in 2013, Katherine began to follow her heart, her curiosity, her passions and to remember why she had incarnated on Earth. This led to lots of writing, energy work, astrology, travel, communing with nature, learning about consciousness and so much more! A few years later, in the summer of 2015, she received first contact from The Spirit Collective, a team of non-physical guides who informed her they had nine books for her to channel. She is now honored and grateful to deliver these important messages of love and wisdom to all of humanity."

Katy started out by sharing how she was led to this work through her grandmother, "I would say, it almost goes back to my grandmother. So I was named after her, Catherine Katie. And she was a psychic. And so she did these readings. So I grew up with this. I grew up thinking it was normal, you know."

She went on to explain coming to the realization that she had psychic abilities, "I think had always been on some level aware from a young age. Like I had an imaginary friend that I spoke to, which is probably more of like an angel. But, I didn't really step into it until into my 20s. And it was after she passed that, and you know, who knows how that all works, but, she's definitely supporting me on the other side as well."

Pretty cool stuff. Here's one more snippet and then you can go listen to the episode!
"2013 was when I really, as far as I know, I had a spontaneous Kundalini awakening.
It was very intense, very intense, it totally rocked my world. There was no control, there's no way that I could have changed it or, directed it, it was coming from a higher place. I mean, I experienced a lot. And I can go into that, but, very high highs, and then really low lows. So very transformative. But when it first happened, and really throughout, and since then, I would say the only way I could describe it was like a full embodiment, receiving of grace, like divine grace like that."

We will update these show notes with a listing of topics and time they play within the episode shortly!

Check out Katy's website: https://quantum-freedom.com
(203) 240-3687 | quantumfreedomllc@gmail.com
YouTube: https://www.youtube.com/channel/UCwz59snnvrvojifGHAuNhmQ
Instagram: https://www.instagram.com/quantum_freedom/
Facebook: https://www.facebook.com/katy.caulfield
https://www.facebook.com/quantumfreedom/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41369860Thu, 08 Oct 2020 21:43:11 +0000Jill WoodworthIt was our pleasure to speak with Katherine Caulfield on TSC Talks. Katy is an author, energy healer, astrologer and mystic "focused on self-love, self-healing and holistic wellness through uniting the spiritual and physical realms". Jill crossed...
From her website, "Inspired by her own eye-opening spiritual and Kundalini awakening in 2013, Katherine began to follow her heart, her curiosity, her passions and to remember why she had incarnated on Earth. This led to lots of writing, energy work, astrology, travel, communing with nature, learning about consciousness and so much more! A few years later, in the summer of 2015, she received first contact from The Spirit Collective, a team of non-physical guides who informed her they had nine books for her to channel. She is now honored and grateful to deliver these important messages of love and wisdom to all of humanity."

Katy started out by sharing how she was led to this work through her grandmother, "I would say, it almost goes back to my grandmother. So I was named after her, Catherine Katie. And she was a psychic. And so she did these readings. So I grew up with this. I grew up thinking it was normal, you know."

She went on to explain coming to the realization that she had psychic abilities, "I think had always been on some level aware from a young age. Like I had an imaginary friend that I spoke to, which is probably more of like an angel. But, I didn't really step into it until into my 20s. And it was after she passed that, and you know, who knows how that all works, but, she's definitely supporting me on the other side as well."

Pretty cool stuff. Here's one more snippet and then you can go listen to the episode!
"2013 was when I really, as far as I know, I had a spontaneous Kundalini awakening.
It was very intense, very intense, it totally rocked my world. There was no control, there's no way that I could have changed it or, directed it, it was coming from a higher place. I mean, I experienced a lot. And I can go into that, but, very high highs, and then really low lows. So very transformative. But when it first happened, and really throughout, and since then, I would say the only way I could describe it was like a full embodiment, receiving of grace, like divine grace like that."

We will update these show notes with a listing of topics and time they play within the episode shortly!

Check out Katy's website: https://quantum-freedom.com
(203) 240-3687 | quantumfreedomllc@gmail.com
YouTube: https://www.youtube.com/channel/UCwz59snnvrvojifGHAuNhmQ
Instagram: https://www.instagram.com/quantum_freedom/
Facebook: https://www.facebook.com/katy.caulfield
https://www.facebook.com/quantumfreedom/

Become a supporter of this podcast: 2979astrologer,astrology,awakening,channeling,divine,healer,healing,kundalini,mentalhealth,psychic,quantumhealing,spiritualguide,spiritualhealing,spirituality,tarotfalsefullhttps://www.spreaker.com/episode/tsc-talks-a-voice-for-women-in-cannabis-tiffany-watkins-lady-canna-founder-vanguard-media--41212558
She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited.

“I am Tiffany Watkins a.k.a. LadyCanna.

In three decades I have witnessed a lot of changes in this industry, but one thing remains the same; not everyone gets to have a voice. I have been treated with disrespect, talked down to in situations, and made to feel as if my contributions to the Cannabis community didn’t matter.
I knew this treatment was not only because I am a POC, but because I am a Woman. I also knew…I wasn’t alone.

Since the 1990’s it has been my focus to have equity and unity surrounding Cannabis. Working together, with every voice having validity, has been both our greatest asset and our biggest struggle.

Closing the gap between the sexes in the cannabis industry will take hard work from us all. I founded Vanguard Media with providing a platform to bridge that gap in mind. Women in the cannabis community deserve the spotlight…and we shall stand in it unapologetically. “


Women in Weed- 3:14
Tiffany Watkins Bio (Activism and Fostering Education)- 5:55
Activism as a Women- 10:03
At the Capitol on Lobby Day- 10:58
Personal experience with Cannabis- 13:57
Interest in Holistic Medicine- 15:55
Stigma with Misinformation- 19:29
Vanguard Media- 21:26
“You Will Be Heard!”- 23:56
Learning the Virtual World Communication Challenges- 28:21
Legitimacy of Cannabis Business- 31:40

AI transcript link: https://otter.ai/s/K9ox4juPRwyGH0zjv6mZBw

VANGUARD MEDIA Links
Website: https://www.vanguardmediaonline.com/
Social Media:
Facebook
Twitter
Instagram
Linked In

Previous TSC Talks Podcast: https://tsctalks.com/tsc-talks-guest-tiffany-watkins/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41212558Tue, 29 Sep 2020 20:21:33 +0000Jill WoodworthTSC Talks guest Tiffany Watkins is a “Cannabis Enthusiast”, founder and CEO of Vanguard Media, and cannabis activist. She’s been an activist for 20+ years and has done a lot of work to bring awareness to health care and proper distribution of Medical...
She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited.

“I am Tiffany Watkins a.k.a. LadyCanna.

In three decades I have witnessed a lot of changes in this industry, but one thing remains the same; not everyone gets to have a voice. I have been treated with disrespect, talked down to in situations, and made to feel as if my contributions to the Cannabis community didn’t matter.
I knew this treatment was not only because I am a POC, but because I am a Woman. I also knew…I wasn’t alone.

Since the 1990’s it has been my focus to have equity and unity surrounding Cannabis. Working together, with every voice having validity, has been both our greatest asset and our biggest struggle.

Closing the gap between the sexes in the cannabis industry will take hard work from us all. I founded Vanguard Media with providing a platform to bridge that gap in mind. Women in the cannabis community deserve the spotlight…and we shall stand in it unapologetically. “


Women in Weed- 3:14
Tiffany Watkins Bio (Activism and Fostering Education)- 5:55
Activism as a Women- 10:03
At the Capitol on Lobby Day- 10:58
Personal experience with Cannabis- 13:57
Interest in Holistic Medicine- 15:55
Stigma with Misinformation- 19:29
Vanguard Media- 21:26
“You Will Be Heard!”- 23:56
Learning the Virtual World Communication Challenges- 28:21
Legitimacy of Cannabis Business- 31:40

AI transcript link: https://otter.ai/s/K9ox4juPRwyGH0zjv6mZBw

VANGUARD MEDIA Links
Website: https://www.vanguardmediaonline.com/
Social Media:
Facebook
Twitter
Instagram
Linked In

Previous TSC Talks Podcast: https://tsctalks.com/tsc-talks-guest-tiffany-watkins/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2482activist,cannabis,endocannabinoidsystem,inspirational,marijuanalegislation,medicalmarijuana,mother,podcast,qualityoflife,racialequity,socialequity,tsctalks,vanguardmedia,weed,womenincannabis,womensequality,womensvoicesfalsefullhttps://www.spreaker.com/episode/tsc-talks-innovate-educate-with-keith-butler-ceo-dr-jim-kane-ph-d-chief-science-officer-op-innovates--41026593
Keith talks about his early years of cannabis activism and how the science today indicates that using cannabis is actually helpful for our bodies and minds. At 56, Keith is pharma free and healthy.

Keith is..."A native of Washington DC and 40-year industry veteran who has been working with Cannabis and Hemp since 1979. Keith Butler has formulated some of the most effective products available including patent pending natural methods of water solubility and bioavailability of cannabinoids. Butler's passion for Cannabis was nurtured through extensive travel across Asia, South America, and Africa. Through this experience, Keith brings great depth and knowledge of the plant ranging from law and medicine to manufacturing processes and international distribution. “Nature provides us with everything we need to heal and nourish the mind and body”.

LifePatent is an innovative research company focused on unlocking the natural medicinal properties of hemp; dedicated to advancing the science behind the growth, extraction and application of hemp cannabinoids for healthier living. For more information, visit LifePatent.com."

Dr. Jim Kane is a"PhD Microbiologist and pharmaceutical research veteran and our cannabinoid expert.

An excerpt; " So between Jim Annie and myself, we have all facets of the industry covered. I am a 40 year veteran of the cannabis industry and in this world since the mid 80s. I worked at America's first hemp company, that was owned by Steve DeAngelo in the early 90s. I've known Steve since the late 70s. Worked with his company in the 80s. I worked with EcoBoost In the 90s and we're still friends today. Annie Rouse is our resident academic. She is the world's only Fulbright scholar in the subject of hemp. She is also currently the only person who carries a master's degree in hemp. She and others have put hemp in space. We are studying hemp on the International Space Station. Jim and I are working on novel delivery devices. We have two patents filed, one for cannabinoids and lipophilic compounds and another for reduction of the spread of coronavirus using our delivery device and some of our cannabinoids and other features and he is an expert on regulation. Annie sits on the board of directors, she is the secretary of the Hemp Industry Association. She is on the board of directors for the US Hemp Authority and the hemp roundtable. I am on the board of directors for the National Cannabis Industry is Association and I am on the Hemp Industry Committee. Our job is education and getting the knowledge out there about the plant and that it's good for people to use"

Introduction- 4:01
Keith Butler Background- 4:35
Dr. Jim Kane Background- 7:50
Companion Plant- 10:09
Taboo- 10:43
Balanced Body- 15:13
The Difference Between Cannabis and Pharmaceuticals- 17:08
OP Innovates Group Intro- 21:00
Bioavailability- 21:25
Hemp Mellow- 24:19
Hemp at Space- 26:38
Explanation on the Variety of Products Out There- 29:18
The Last Prisoner Project- 38:59
Roadblocks- 40:51
The Vision of Revolutionizing the Healthcare System- 46:40

Website: https://www.opandme.com/
https://www.hempmellow.com/
https://overcomeveryday.com/
https://www.thinkhempythoughts.com/

Email: hello@opandme.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/41026593Sun, 20 Sep 2020 19:41:03 +0000Jill WoodworthTSC Talks interviewed 2 team members from OP Innovates, Dr. Jim Kane, Chief Science Officer, and Keith Butler, Chief Executive Officer. "OP Innovates formulates with the plant in mind. Using research, experience and our unique patent-pending delivery...
Keith talks about his early years of cannabis activism and how the science today indicates that using cannabis is actually helpful for our bodies and minds. At 56, Keith is pharma free and healthy.

Keith is..."A native of Washington DC and 40-year industry veteran who has been working with Cannabis and Hemp since 1979. Keith Butler has formulated some of the most effective products available including patent pending natural methods of water solubility and bioavailability of cannabinoids. Butler's passion for Cannabis was nurtured through extensive travel across Asia, South America, and Africa. Through this experience, Keith brings great depth and knowledge of the plant ranging from law and medicine to manufacturing processes and international distribution. “Nature provides us with everything we need to heal and nourish the mind and body”.

LifePatent is an innovative research company focused on unlocking the natural medicinal properties of hemp; dedicated to advancing the science behind the growth, extraction and application of hemp cannabinoids for healthier living. For more information, visit LifePatent.com."

Dr. Jim Kane is a"PhD Microbiologist and pharmaceutical research veteran and our cannabinoid expert.

An excerpt; " So between Jim Annie and myself, we have all facets of the industry covered. I am a 40 year veteran of the cannabis industry and in this world since the mid 80s. I worked at America's first hemp company, that was owned by Steve DeAngelo in the early 90s. I've known Steve since the late 70s. Worked with his company in the 80s. I worked with EcoBoost In the 90s and we're still friends today. Annie Rouse is our resident academic. She is the world's only Fulbright scholar in the subject of hemp. She is also currently the only person who carries a master's degree in hemp. She and others have put hemp in space. We are studying hemp on the International Space Station. Jim and I are working on novel delivery devices. We have two patents filed, one for cannabinoids and lipophilic compounds and another for reduction of the spread of coronavirus using our delivery device and some of our cannabinoids and other features and he is an expert on regulation. Annie sits on the board of directors, she is the secretary of the Hemp Industry Association. She is on the board of directors for the US Hemp Authority and the hemp roundtable. I am on the board of directors for the National Cannabis Industry is Association and I am on the Hemp Industry Committee. Our job is education and getting the knowledge out there about the plant and that it's good for people to use"

Introduction- 4:01
Keith Butler Background- 4:35
Dr. Jim Kane Background- 7:50
Companion Plant- 10:09
Taboo- 10:43
Balanced Body- 15:13
The Difference Between Cannabis and Pharmaceuticals- 17:08
OP Innovates Group Intro- 21:00
Bioavailability- 21:25
Hemp Mellow- 24:19
Hemp at Space- 26:38
Explanation on the Variety of Products Out There- 29:18
The Last Prisoner Project- 38:59
Roadblocks- 40:51
The Vision of Revolutionizing the Healthcare System- 46:40

Website: https://www.opandme.com/
https://www.hempmellow.com/
https://overcomeveryday.com/
https://www.thinkhempythoughts.com/

Email: hello@opandme.com

Become a supporter...]]>3566alternativemedicine,cannabinoids,cannabis,cannabisindustry,cbd,education,endocannabinoidsystem,entrepreneurs,healing,hemp,hempindustry,marijuana,microbiologist,minorcannabinoids,naturalmedicine,opinnovates,pharmaceutical,science,thc,tsctalksfalsefullhttps://www.spreaker.com/episode/tsc-talks-what-is-a-male-green-nurse-episode-4-nurse-mark-joined-by-sherri-tutkus-rn-bsn-absolutely-cking-amazing--40813781
Nurse Mark has a personal experience with medical cannabis. He’s dealt with lifelong, medication-resistant depression and mood disorder. He’s been through the mental health system, explored all the pathways to health and happiness, and have successfully created a daily regimen designed to relieve his depression and allow for the creation of the greatest, joy-filled life ever.
He states, “I truly believe that you can do anything you want to do. The power lies in choice – choosing what you want and then getting into action.”

"The Green Nurse is a holistic practitioner who focuses on Bio-Psycho-Social-Spiritual aspects of healing using a total health care approach to empower both patients and other health care practitioners to make choices on various modalities that are appropriate to support a healthy endocannabinoid system.

The Green Nurse platform is a global community of empowered health care practitioners that are trained in modalites that support the ECS. We are educating and providing information on Green Nurse Approved products and services to usher in hope and inspiration for growth and healing."
Sherri is the Founder, CEO, and Executive Director at GreenNurse Group, Member of International Association of Psychedelic Nursing, Director of Nursing (DON) at Irie Bliss Wellness, Founding Member at Cannabis Nurses Network, and member at American Cannabis Nurses Association. Sherri is a cannabis nurse, patient, and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is a highly skilled Registered Nurse with 30 years of practical experience in various departments within the hospital and home setting.

She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years.

She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients' homes, and she regularly does pop up events and expos.
Mark Worster-links

Email- info@nursemark.co
Website- https://nursemark.co/
https://nursemark.co/podcast/
https://www.facebook.com/nursemark/
https://twitter.com/markworster
https://www.instagram.com/nursemarkw/
https://www.linkedin.com/in/markworster/

Sherri Tutkus-links
Websites-
https://iriebliss.com/
https://greennursegroup.com/
https://sherripics.smugmug.com/
Instagram- @the_greennurse/
https://www.facebook.com/GreenNurseSherri
LinkedIn- https://www.linkedin.com/in/sherri-tutkus-rn-bsn-912b7776/
Email- info@greennursegroup.com
https://twitter.com/Green_Nurses
Instagram- /greennursegroup/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/40813781Thu, 10 Sep 2020 15:40:51 +0000Jill WoodworthNurse Mark is an entrepreneur, leader, fitness guru, business/life coach, healthcare professional, and author of Absolutely F**king Amazing: Living a Life You Love, an Amazon #1 Best Seller. He is a Registered Nurse licensed in Massachusetts and New...
Nurse Mark has a personal experience with medical cannabis. He’s dealt with lifelong, medication-resistant depression and mood disorder. He’s been through the mental health system, explored all the pathways to health and happiness, and have successfully created a daily regimen designed to relieve his depression and allow for the creation of the greatest, joy-filled life ever.
He states, “I truly believe that you can do anything you want to do. The power lies in choice – choosing what you want and then getting into action.”

"The Green Nurse is a holistic practitioner who focuses on Bio-Psycho-Social-Spiritual aspects of healing using a total health care approach to empower both patients and other health care practitioners to make choices on various modalities that are appropriate to support a healthy endocannabinoid system.

The Green Nurse platform is a global community of empowered health care practitioners that are trained in modalites that support the ECS. We are educating and providing information on Green Nurse Approved products and services to usher in hope and inspiration for growth and healing."
Sherri is the Founder, CEO, and Executive Director at GreenNurse Group, Member of International Association of Psychedelic Nursing, Director of Nursing (DON) at Irie Bliss Wellness, Founding Member at Cannabis Nurses Network, and member at American Cannabis Nurses Association. Sherri is a cannabis nurse, patient, and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is a highly skilled Registered Nurse with 30 years of practical experience in various departments within the hospital and home setting.

She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years.

She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients' homes, and she regularly does pop up events and expos.
Mark Worster-links

Email- info@nursemark.co
Website- https://nursemark.co/
https://nursemark.co/podcast/
https://www.facebook.com/nursemark/
https://twitter.com/markworster
https://www.instagram.com/nursemarkw/
https://www.linkedin.com/in/markworster/

Sherri Tutkus-links
Websites-
https://iriebliss.com/
https://greennursegroup.com/
https://sherripics.smugmug.com/
Instagram- @the_greennurse/
https://www.facebook.com/GreenNurseSherri
LinkedIn- 3551author,cannabis,cbd,community,endocannabinoidsystem,entrepreneur,greennurse,healers,malenurse,marinecorp,medicalmarijuana,mentalhealth,military,nurses,nursing,ptsd,registerednurses,specialneeds,stigma,veteranstruefullhttps://www.spreaker.com/episode/tsc-talks-what-is-a-green-nurse-episode-3-supporting-the-endocannabinoid-system-sherri-tutkus-rn-bsn-mark-worster-nurse-mark--40484436
Sherri is the Founder, CEO, and Executive Director at GreenNurse Group, Member of International Association of Psychedelic Nursing, Director of Nursing (DON) at Irie Bliss Wellness, Founding Member at Cannabis Nurses Network, and member at American Cannabis Nurses Association. Sherri is a cannabis nurse, patient, and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is a highly skilled Registered Nurse with 30 years of practical experience in various departments within the hospital and home setting.

She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years.

She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients' homes, and she regularly does pop up events and expos.

Nurse Mark is an entrepreneur, leader, fitness guru, business/life coach, healthcare professional, and author of Absolutely F**king Amazing: Living a Life You Love, an Amazon #1 Best Seller. He is a Registered Nurse licensed in Massachusetts and New York. In 2017, he began his cannabis education – studying how to utilize it as a tool to create a happier, less stressed, pain-free life and completed in-depth training to become a Cannabis Nurse, which has allowed him to do work that he loves: Showing folks how to use this amazing plant to create powerful lives.

Nurse Mark has a personal experience with medical cannabis. He’s dealt with lifelong, medication-resistant depression and mood disorder. He’s been through the mental health system, explored all the pathways to health and happiness, and have successfully created a daily regimen designed to relieve his depression and allow for the creation of the greatest, joy-filled life ever.

He states, “I truly believe that you can do anything you want to do. The power lies in choice – choosing what you want and then getting into action.”

What is a Green Nurse- With Sherri Tutkus and Mark Worster

Intro to Sherri and Mark- 4:05

Mark’s Background- 5:17

Wanting to create a positive, meaningful impact- 5:40

How he got into Cannabis- 6:20

From a Cannabis Agnostic to a Green Nurse- 7:29

Sherri’s Background- 9:18

Founded the Green Nurse Group After Founding Out How Cannabis Worked for Her- 10:30

Co-Founders of the Green Nurse Platform- 11:17

Patient Empowerment- 14:18

Qualifications and Certifications to Become a Green Nurse- 15:26

What a Person Should do When Interested in Using Cannabinoid Medicine- 17:34

An Experience that Stands Out- 20:47

What Supports the Endocannabinoid System- 27:30

The 12th System- 36:36

Green Nurse Jody- 39:54

Impact and Adaptation to COVID-19- 42:28

Inspiration, Growth, and Healing- 44:32

Contact and Links:

Sherri Tutkus

Websites-
IrieBliss.com
MyGreenNurse.com
TheGreenNurses.com
GreenNurseRadioShow.com
GreenNurseGroup.com
Sherripics.com
Instagram- the_greennurse/
Facebook- GreenNurseSherri/
LinkedIn- /in/stutkusherri

Green Nurse Group

Email- info@greennursegroup.com
Websites- https://greennursegroup.com/
Facebook- GreenNurseGroup/
Twitter- /Green_Nurses
Instagram- /greennursegroup/

Mark Worster

Email- info@nursemark.co
Website- https://nursemark.co/
Podcast- https://podcasts.apple.com/us/podcast/nursemark/id1459301823
Facebook- /nursemark
Twitter- @markworster
Instagram- /nursemarkw/
LinkedIn- /in/markworster/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/40484436Tue, 25 Aug 2020 20:55:56 +0000Jill WoodworthTSC Talks guests Sherri Tuktus and Mark Worster fill us in on how Green Nurses turn the tables on some of the aspects of the top-heavy traditional healthcare model and seek to empower the patient with education, empowering them to ask questions and...
Sherri is the Founder, CEO, and Executive Director at GreenNurse Group, Member of International Association of Psychedelic Nursing, Director of Nursing (DON) at Irie Bliss Wellness, Founding Member at Cannabis Nurses Network, and member at American Cannabis Nurses Association. Sherri is a cannabis nurse, patient, and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is a highly skilled Registered Nurse with 30 years of practical experience in various departments within the hospital and home setting.

She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years.

She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients' homes, and she regularly does pop up events and expos.

Nurse Mark is an entrepreneur, leader, fitness guru, business/life coach, healthcare professional, and author of Absolutely F**king Amazing: Living a Life You Love, an Amazon #1 Best Seller. He is a Registered Nurse licensed in Massachusetts and New York. In 2017, he began his cannabis education – studying how to utilize it as a tool to create a happier, less stressed, pain-free life and completed in-depth training to become a Cannabis Nurse, which has allowed him to do work that he loves: Showing folks how to use this amazing plant to create powerful lives.

Nurse Mark has a personal experience with medical cannabis. He’s dealt with lifelong, medication-resistant depression and mood disorder. He’s been through the mental health system, explored all the pathways to health and happiness, and have successfully created a daily regimen designed to relieve his depression and allow for the creation of the greatest, joy-filled life ever.

He states, “I truly believe that you can do anything you want to do. The power lies in choice – choosing what you want and then getting into action.”

What is a Green Nurse- With Sherri Tutkus and Mark Worster

Intro to Sherri and Mark- 4:05

Mark’s Background- 5:17

Wanting to create a positive, meaningful impact- 5:40

How he got into Cannabis- 6:20

From a Cannabis Agnostic to a Green Nurse- 7:29

Sherri’s Background- 9:18

Founded the Green Nurse Group After Founding Out How Cannabis Worked for Her- 10:30

Co-Founders of the Green Nurse Platform- 11:17

Patient Empowerment- 14:18

Qualifications and Certifications to Become a Green Nurse- 15:26

What a Person Should do When Interested in Using Cannabinoid Medicine- 17:34

An Experience that Stands Out- 20:47

What Supports the Endocannabinoid System- 27:30

The 12th System- 36:36

Green Nurse Jody- 39:54

Impact and Adaptation to COVID-19- 42:28

Inspiration, Growth, and Healing- 44:32

Contact and Links:

Sherri Tutkus

Websites-
IrieBliss.com
MyGreenNurse.com
TheGreenNurses.com
GreenNurseRadioShow.com
GreenNurseGroup.com
Sherripics.com
Instagram- the_greennurse/
Facebook- GreenNurseSherri/
LinkedIn- /in/stutkusherri

Green Nurse Group

Email- info@greennursegroup.com
Websites- 2847alternativemedicine,cannabis,cannabisheals,cbd,cbdheals,endocannabinoidsystem,greennurse,greennursegroup,greennursing,hospice,livingyourbestlife,marinecorp,massachusetts,medical,mentalhealth,nursing,patientempowerment,pharmaceutical,ptsd,qualityoflifefalsefullhttps://www.spreaker.com/episode/tsc-talks-what-is-a-green-nurse-episode-2-nurse-bonnie-bonnie-drake-cannabis-evangelist--40326782
CBD allowed Bonnie to become Opioid free within six months after ten years of “Prescribed Addiction,” allowed her to walk on fractured and dislocated great toe for three weeks without pain, and allowed her to endure a three-hour surgical procedure without anesthesia or nerve block. Overall, Bonnie says, “Gives me energy and helps me live my life helping others.” She is another Forest Bather enthusiast who has encountered the magnificent benefits with the improvement of quality of life that cannabis products provide.

Topics Discussed:

Intro to Bonnie- 00:49

Congenital Scoliosis- 5:18

Extensive Results on an MRI- 6:00

A Motivational Therapy Puppy- 6:19

Introduced to CBD for Dogs- 9:47

Immediate Reaction from CBD- 12:04

Research Time! 12:52

Melted the Pain With the First Dose- 13:08

A Heart Attack- 13:47

Motivation for Doing Compassion Care- 16:02

Patients' Testimonials- 17:47

Interactions Between CBD and Medications- 22:38

Being Active- 24:49

From 68 to 40- 30:42

Your Skin is the Largest Organ on your Body- 34:44

“Dr. Slam the Door”- 35:29

Awakening in her Soul- 41:42

Links:

https://cannabisevangelists.com/

https://puresciencelab.news/

https://www.hillsdale.net/news/20190220/local-woman-shares-benefits-of-products
Topics Discussed:

Intro to Bonnie- 00:49

Congenital Scoliosis- 5:18

Extensive Results on an MRI- 6:00

A Motivational Therapy Puppy- 6:19

Introduced to CBD for Dogs- 9:47

Immediate Reaction from CBD- 12:04

Research Time! 12:52

Melted the Pain With the First Dose- 13:08

A Heart Attack- 13:47

Motivation for Doing Compassion Care- 16:02

Patients' Testimonials- 17:47

Interactions Between CBD and Medications- 22:38

Being Active- 24:49

From 68 to 40- 30:42

Your Skin is the Largest Organ on your Body- 34:44

“Dr. Slam the Door”- 35:29

Awakening in her Soul- 41:42

Links:

https://cannabisevangelists.com/

https://puresciencelab.news/

https://www.hillsdale.net/news/20190220/local-woman-shares-benefits-of-products

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/40326782Fri, 14 Aug 2020 19:18:37 +0000Jill WoodworthThanks for listening! It was a pleasure to interview "Nurse Bonnie". Bonnie Drake, BSN/CRT, Member of the American Cannabis Nurses Association, CBD/HEMP Advocate is a Green Nurse with an extensive history and medical past with a background in nursing...
CBD allowed Bonnie to become Opioid free within six months after ten years of “Prescribed Addiction,” allowed her to walk on fractured and dislocated great toe for three weeks without pain, and allowed her to endure a three-hour surgical procedure without anesthesia or nerve block. Overall, Bonnie says, “Gives me energy and helps me live my life helping others.” She is another Forest Bather enthusiast who has encountered the magnificent benefits with the improvement of quality of life that cannabis products provide.

Topics Discussed:

Intro to Bonnie- 00:49

Congenital Scoliosis- 5:18

Extensive Results on an MRI- 6:00

A Motivational Therapy Puppy- 6:19

Introduced to CBD for Dogs- 9:47

Immediate Reaction from CBD- 12:04

Research Time! 12:52

Melted the Pain With the First Dose- 13:08

A Heart Attack- 13:47

Motivation for Doing Compassion Care- 16:02

Patients' Testimonials- 17:47

Interactions Between CBD and Medications- 22:38

Being Active- 24:49

From 68 to 40- 30:42

Your Skin is the Largest Organ on your Body- 34:44

“Dr. Slam the Door”- 35:29

Awakening in her Soul- 41:42

Links:

https://cannabisevangelists.com/

https://puresciencelab.news/

https://www.hillsdale.net/news/20190220/local-woman-shares-benefits-of-products
Topics Discussed:

Intro to Bonnie- 00:49

Congenital Scoliosis- 5:18

Extensive Results on an MRI- 6:00

A Motivational Therapy Puppy- 6:19

Introduced to CBD for Dogs- 9:47

Immediate Reaction from CBD- 12:04

Research Time! 12:52

Melted the Pain With the First Dose- 13:08

A Heart Attack- 13:47

Motivation for Doing Compassion Care- 16:02

Patients' Testimonials- 17:47

Interactions Between CBD and Medications- 22:38

Being Active- 24:49

From 68 to 40- 30:42

Your Skin is the Largest Organ on your Body- 34:44

“Dr. Slam the Door”- 35:29

Awakening in her Soul- 41:42

Links:

https://cannabisevangelists.com/

https://puresciencelab.news/

https://www.hillsdale.net/news/20190220/local-woman-shares-benefits-of-products

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2772alternativemedicine,backinjury,backpain,cannabinoidmedicine,cannabis,cannabisevangelist,cannabisnurse,cbd,cbdforpets,endocannabinoidsystem,greennurse,hemp,michigan,nurse,nursing,opiates,pain,qualityoflife,therapydogfalsefullhttps://www.spreaker.com/episode/tsc-talks-what-is-a-green-nurse-a-series-episode-1-retrospective-going-green--40159818
Marissa Fratoni: Nurse, blogger, freelance writer at Holistic Nurse Mama, and Registered Yoga Teacher at Central Mass Yoga And Wellness. She is a wealth of information and insight on cannabinoid therapeutics holistic medicine and integrative health.

Marissa Fratoni’s Background Story: 7:38

Visiting Nursing: 8:34

How She Got Into Cannabis: 9:16

Another Perception of the Plant, Seeing Miraculous Changes: 9:58

Cannabis helps Detox from Addiction: 10:50

Full Podcast Episode with Marissa Fratoni: https://tsctalks.com/tsc-talks-guest-marissa-fratoni/
https://holisticnursemama.blog/

Janna Champagne- Founder at Integrated Holistic Care. Janna’s introduction to the cannabis industry began as a cannabis patient when she suffered a health collapse in 2012. She credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status. Janna is also known for her daughter’s cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017.

Cannabis Helped Her Daughter: 14:06

Cumulative Long-Term Impact of Pharmaceuticals: 14:53

The Mental Health Industry- Wild West: 16:53

Pharmaceuticals Side Effects: 18:29

Risk VS. Benefit: 19:45

Reversals of Dementia, Improved Behavior in Autism, Improved Function, and Quality of life: 20:06

Gut and Brain Connection: 20:42

Pharmaceutical Driven: 21:21

Full Podcast Episode with Janna Champagne: https://tsctalks.com/tsc-talks-guest-jenna-champagne/
https://jannachampagne.com/

Sherri Tuktus- Sherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelor's in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years’ practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients' homes and she regularly does pop up events, seminars and expos. Sherri is an international speaker and she has contributed to the writing of the first cannabis nursing textbook with her cannabis nurse colleagues that will be available in nursing schools across the country. Sherri is a member of the American Cannabis Nurses Association and founding member of The Cannabis Nurses Network and was nominated as one of two nurses for “Health Professional of the Year” for the 2020 New England Cannabis Convention. Sherri brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool.

Background History- Pseudomembranous Colitis: 21:55

From Being a Nurse to Being a Patient: 24:00

Polypharmacy Journey: 25:34

Medical and Pharmaceutical Trauma: 27:04

Drain of Despair: 29:02

Cannabinoid Therapeutics Comes to the Rescue: 29:49

Full Podcast Episode with Sherri Tuktus: https://tsctalks.com/sherri-tutkus-2/
https://greennursegroup.com/

Dedee Culley: Has over 20 years of nursing experience and is the co-owner of 2 Leaf Nurses, which provides alternative & holistic health services from Springfield, Missouri. Culley loves home health for its opportunity to connect with patients and their environment. She is incredibly blessed and she was able to gather up courage and strength to pursue her passion in nursing while stepping out of the ordinary medicinal ways of these modern days and encourage others to be safe and successful at taking care of their bodies from the inside out with natural approaches. She has a loving attitude and an open mind to seek and research various holistic methods to reach a significantly positive result. She has also dealt with personal health issues within her family and has seen significant changes when she chooses to ask questions and be in the loop of the available options and their side effects.

Background History: 30:22

First Time Questioning Medicine: 30:53

Don’t Apologize for Questioning: 34:27

Got Into Nursing: 35:06

Home Heath: 37:00

Full Podcast with Dedee Culley: https://tsctalks.com/podcast/show-notes/tsc-talks-guest-dedee-culley/
https://www.2leafnurses.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/40159818Thu, 06 Aug 2020 09:40:16 +0000Jill WoodworthGreen Nurses ARE the bridge between alternative and traditional medicine and have helped transform and provide legitimacy and respect for cannabis as medicine and other alternative options as well! We are grateful for collaboration and support on this...
Marissa Fratoni: Nurse, blogger, freelance writer at Holistic Nurse Mama, and Registered Yoga Teacher at Central Mass Yoga And Wellness. She is a wealth of information and insight on cannabinoid therapeutics holistic medicine and integrative health.

Marissa Fratoni’s Background Story: 7:38

Visiting Nursing: 8:34

How She Got Into Cannabis: 9:16

Another Perception of the Plant, Seeing Miraculous Changes: 9:58

Cannabis helps Detox from Addiction: 10:50

Full Podcast Episode with Marissa Fratoni: https://tsctalks.com/tsc-talks-guest-marissa-fratoni/
https://holisticnursemama.blog/

Janna Champagne- Founder at Integrated Holistic Care. Janna’s introduction to the cannabis industry began as a cannabis patient when she suffered a health collapse in 2012. She credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status. Janna is also known for her daughter’s cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017.

Cannabis Helped Her Daughter: 14:06

Cumulative Long-Term Impact of Pharmaceuticals: 14:53

The Mental Health Industry- Wild West: 16:53

Pharmaceuticals Side Effects: 18:29

Risk VS. Benefit: 19:45

Reversals of Dementia, Improved Behavior in Autism, Improved Function, and Quality of life: 20:06

Gut and Brain Connection: 20:42

Pharmaceutical Driven: 21:21

Full Podcast Episode with Janna Champagne: https://tsctalks.com/tsc-talks-guest-jenna-champagne/
https://jannachampagne.com/

Sherri Tuktus- Sherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelor's in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years’ practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients' homes and she regularly does pop up events, seminars and expos. Sherri is an international speaker and she has contributed to the writing of the first cannabis nursing textbook with her cannabis nurse colleagues that will be available in nursing schools across the country. Sherri is a member of the American Cannabis Nurses Association and founding member of The Cannabis Nurses Network and was nominated as one of two nurses for “Health Professional of the Year” for the 2020 New...]]>2379addiction,alternativemedicine,autism,cancer,cannabis,cbd,cdiff,education,endocannabinoidsystem,greennurse,greennurses,healthcare,healthcarerevolution,medicine,mentalhealth,nursing,qualityoflife,thc,thegreennursefalsefullhttps://www.spreaker.com/episode/tsc-talks-the-ongoing-toll-of-war-veterans-ptsd-cannabis-with-chris-chambers-purple-heart-vietnam-vet-founder-vet-meds-matter--40012947
Chris Chambers is a generous, humble, living piece of art! He gave us details on his life since his early childhood, through his experiences in the army, and through many rough patches that he’s been through. He truly has shocking experiences, and now he is happy to be breathing and being able to do good to this world. A truly humble human being that can be considered a living miracle.

He has an extensive resume which includes Sr. Chief Operations Director at VAONC, business owner at Aqua Business Development, Sr. Vice Commander at LifeCall MediAlert Inc., former Superior & Federal Court Officer at County Legal Services of Santa Clara County, former President/CEO at Top Priority Solutions, founder of The Water Chamber, and studied Computer Science and Technology.

Here’s a blog about Chris Chambers written by Mike Robinson: Purple Heart Recipient Chris Chambers Talks Cannabis and Veterans- Wounded Physically In A Brutal War & Fighting A System That Refuses To Properly Help P.T.S.D., Cannabis Is His Medicine To Set His Mind At Ease:

Early family History and Civil Air Patrol at Age 14 [0:33]
Army [2:41]
Unwelcomed Back [4:45]
Unwelcomed Home [5:54]
Remorse Wanted him Dead [6:38}
Abducted [10:43]
His Journey Taught him to be a Humanitarian [16:00]
New Beginning [16:26]
Proposed a Bill to Congress [17:35]
Saving Thousands of Lives each Month with “Life Call- Life Alert- Lifeline” [18:34]
The Water Chamber [20:12]
100% Disability for Extreme PTSD [29:21]
64 Pills a Day vs. Cannabis [29:59]
From Federal Officer to Truck Driver [31:51]
Another Crumbling Accident [34:28]
Cannabis Led him to Mr. Peron [36:01]
Cannabis Regrowing Bone Marrow [36:18]
A Living Piece of Art [37:27]
Cannabis’ Continuing Impact [38:23]

Chris's Links:
Facebook: https://www.facebook.com/chrischambers07
The Dab Station: https://www.facebook.com/thedabstation/
Vet Meds Matter: https://www.facebook.com/VetMedsMatter/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/40012947Tue, 28 Jul 2020 09:47:56 +0000Jill WoodworthI got the chance to interview Chris Chambers recently. I saw him on a video Mike Robinson posted during the 100, 000, 000 million mg CBD giveaway and was impressed with his story. In our first conversation, (of which it took 3 to get this audio! :)),...
Chris Chambers is a generous, humble, living piece of art! He gave us details on his life since his early childhood, through his experiences in the army, and through many rough patches that he’s been through. He truly has shocking experiences, and now he is happy to be breathing and being able to do good to this world. A truly humble human being that can be considered a living miracle.

He has an extensive resume which includes Sr. Chief Operations Director at VAONC, business owner at Aqua Business Development, Sr. Vice Commander at LifeCall MediAlert Inc., former Superior & Federal Court Officer at County Legal Services of Santa Clara County, former President/CEO at Top Priority Solutions, founder of The Water Chamber, and studied Computer Science and Technology.

Here’s a blog about Chris Chambers written by Mike Robinson: Purple Heart Recipient Chris Chambers Talks Cannabis and Veterans- Wounded Physically In A Brutal War & Fighting A System That Refuses To Properly Help P.T.S.D., Cannabis Is His Medicine To Set His Mind At Ease:

Early family History and Civil Air Patrol at Age 14 [0:33]
Army [2:41]
Unwelcomed Back [4:45]
Unwelcomed Home [5:54]
Remorse Wanted him Dead [6:38}
Abducted [10:43]
His Journey Taught him to be a Humanitarian [16:00]
New Beginning [16:26]
Proposed a Bill to Congress [17:35]
Saving Thousands of Lives each Month with “Life Call- Life Alert- Lifeline” [18:34]
The Water Chamber [20:12]
100% Disability for Extreme PTSD [29:21]
64 Pills a Day vs. Cannabis [29:59]
From Federal Officer to Truck Driver [31:51]
Another Crumbling Accident [34:28]
Cannabis Led him to Mr. Peron [36:01]
Cannabis Regrowing Bone Marrow [36:18]
A Living Piece of Art [37:27]
Cannabis’ Continuing Impact [38:23]

Chris's Links:
Facebook: https://www.facebook.com/chrischambers07
The Dab Station: https://www.facebook.com/thedabstation/
Vet Meds Matter: https://www.facebook.com/VetMedsMatter/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3342cannabinoidmedicine,cannabis,cannabisoil,cbd,endocannabinoidsystem,grenade,inspirational,mentalhealth,military,ohio,podcast,ptsd,soldier,trauma,tsctalks,veteran,veteransforcannabis,vetmedsmatter,vietnam,vietnamvetfalsefullhttps://www.spreaker.com/episode/tsc-talks-open-up-patrick-spencer-podcaster-open-podcast-2020--39870324
"I've always had a very closed mindset, a very narrow mind. And it's always sort of kept me in the dark on a lot of things. And I've never really opened myself up to that looking at the world and problems and stuff like that. And recently, I've been through a little bit of personal stuff, and it sort of opened my mind up a little bit more to, to sort of see and seeing the bigger issues and obviously we've the Black Lives Matter movement has happened as well. And it's just all over my mind, a lot of other stuff as well. And yeah, sort of what I was going through had me feeling terrible. I was feeling really down. And I thought you know what, I know there's so many other people in the world who feel like this and feel worse than this and if there's something I can do to help one of them maybe then that that'd be really good, even if I don't know about it. So that's what it was. It wasn't anything specific. It was just a sort of a whole collection of things that that put me in this position."

Patrick gives us a little bit of his background, gets up close and personal about his struggles, his personal life, and introduces us to his podcast channel called The Open Podcast. The Open Podcast features various types of guests, with various backgrounds, and various life experiences to share with the world about the good that they are doing and about mutual interests to Patrick himself and his public.

Topics Discussed

Intro [0:30]

Make the world a better place! [1:16]

Profession [4:47}

COVID Lockdown in London [6:16]

The Open Podcast Guests [9:47]

The Transition from Engineer/songwriter/soccer player to Podcaster [11:21]

From Relationships to Overcoming a Rough Patch [15:13]

More on The Open Podcast [24:11] 

Learning from Guests [25:46]

Channeling Emotions into Something Positive [26:30]

Different Points of View are Valid! [28:01]

Closings [30:05]

Links to Patrick Spencer- The Open Podcast

https://www.instagram.com/openpodcast2020/

You can find Patrick's podcast on YouTube: https://www.youtube.com/channel/UC6dALX3qCzXiY_2MeeInFMA

Check out our new website: https://thesourcecannabinoids.com
Our main podcast site is still https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/39870324Mon, 20 Jul 2020 21:31:16 +0000Jill WoodworthTSC Talks guest Patrick Spencer is a 21-year-old from South London, and a new podcaster. After chatting a bit through Instagram, Jill thought it would be fun to bring in a younger generation and have an open conversation about his views and struggles....
"I've always had a very closed mindset, a very narrow mind. And it's always sort of kept me in the dark on a lot of things. And I've never really opened myself up to that looking at the world and problems and stuff like that. And recently, I've been through a little bit of personal stuff, and it sort of opened my mind up a little bit more to, to sort of see and seeing the bigger issues and obviously we've the Black Lives Matter movement has happened as well. And it's just all over my mind, a lot of other stuff as well. And yeah, sort of what I was going through had me feeling terrible. I was feeling really down. And I thought you know what, I know there's so many other people in the world who feel like this and feel worse than this and if there's something I can do to help one of them maybe then that that'd be really good, even if I don't know about it. So that's what it was. It wasn't anything specific. It was just a sort of a whole collection of things that that put me in this position."

Patrick gives us a little bit of his background, gets up close and personal about his struggles, his personal life, and introduces us to his podcast channel called The Open Podcast. The Open Podcast features various types of guests, with various backgrounds, and various life experiences to share with the world about the good that they are doing and about mutual interests to Patrick himself and his public.

Topics Discussed

Intro [0:30]

Make the world a better place! [1:16]

Profession [4:47}

COVID Lockdown in London [6:16]

The Open Podcast Guests [9:47]

The Transition from Engineer/songwriter/soccer player to Podcaster [11:21]

From Relationships to Overcoming a Rough Patch [15:13]

More on The Open Podcast [24:11] 

Learning from Guests [25:46]

Channeling Emotions into Something Positive [26:30]

Different Points of View are Valid! [28:01]

Closings [30:05]

Links to Patrick Spencer- The Open Podcast

https://www.instagram.com/openpodcast2020/

You can find Patrick's podcast on YouTube: https://www.youtube.com/channel/UC6dALX3qCzXiY_2MeeInFMA

Check out our new website: https://thesourcecannabinoids.com
Our main podcast site is still https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2164addiction,cocaine,covid,creditscore,england,family,football,independence,mentalhealth,music,opinions,podcaster,podcasting,pubs,relationships,soccer,southlondon,ukfalsefullhttps://www.spreaker.com/episode/tsc-talks-roberto-paleco-founder-research-can-trailblazing-cannabis-scientist-researcher-australia--38675063
Roberto mentions the gastrointestinal microbiome. It's something that I just learned about in probably the last five or six years. As someone who was on a bunch of pharmaceuticals, the impact on the gastrointestinal system was significant. And the mind-body connection, I think that's something that while it's taught, it's becoming more prevalent. People are understanding the microbiome and the gut that connects gut/brain connection.

He developed ResearchCan to make a difference. He mentions it was a hard decision to step out and expose his research, but he also acknowledges that he needs to show the public what he is discovering. Roberto stated that, “We understood the necessity of providing medical cannabis industries with the technology to develop products using pharmaceutical enhancement and medical devices.”

Roberto has an extensive and interesting journey in this field. He explained:
“My passion for natural medicine started during my university studies, where I had obtained the medical and pharmaceutical knowledge to create drugs and the understanding of drug interaction with the human body. As a scientist, I always found the chemistry of the body and the pharmaceutical technologies fascinating. In my career, I studied different diseases and therapies to have a bigger vision of medical treatments. I studied topic formulation to treat skin cancer in Ireland. I moved to Sydney to become an expert on inhalation and nasal administration for respiratory conditions. I have participated in a clinical trial in collaboration with UTS, where I remained fascinated by the connection mind-body studying gastrointestinal conditions. In all of these apparently unrelated conditions and others in my advice, medical cannabis can be used as primary therapy or as a combination to help unavailable and sometimes inefficient conventional treatments.”

“I’ve been aware of the potential of medical cannabis for a long time, and I always tried in my career in Academia to make people understand it. However, nowadays, the barrier is still strong. In the years, I saw people suffering and even die from pathologies that could be treated with this plant. Finally, the world looks like realigning about the use of medical cannabis and I hope one day Australia will lead to this change.”

“My personal experience is that the Academia here is not ready for this change and my advice is that medical cannabis companies should invest money in research and developing medical products privately and directly as pharmaceutical companies always did. Australian universities have incredible laboratories and scientists, but at the moment, there are not sufficient government grants to develop cannabis research within the University, and the old bureaucracy around the intellectual property is discouraging the cannabis industry to invest in research. Besides this limitation, there is here in Australia, a market and a business interest in terms of investment and capability. Government legislation around cannabis prohibition is fast-changing, so I think that with a different approach, we can make the difference.”

Roberto explained the development and creation of ResearchCan:
“I created ResearchCan with a group of friends, all experts on formulation development and almost ten years of experience as medical researchers. We understood the necessity of providing medical cannabis industries with the technology to develop products using pharmaceutical enhancement and medical devices. I decided to create an independent group of scientists to detach our company and research from university bureaucracy and pharmaceutical company control, to be able to deliver cost-worthy research and the access to medical technologies to medical cannabis companies. We hope to become the pharmaceutical research and development partner of a medical cannabis company that has our same vision of this unique opportunity.”

“Our vision is to use medical chosen extracts more efficiently delivered to better target conditions using medical products. Having pharmaceutical formulations to deliver cannabis extracts using different administration pathways can increase the use of medical cannabis. The use of available pharmaceutical technologies will allow the reduction of active ingredients required and a real reduction of the therapy cost, improving the bioavailability and efficacy of the drug. Reducing the cost and creating products with high patient compliance is the key to deliver this medicine and to speed up the change in the legislation that is happening worldwide driven by many patients.”

He also has a vision for the future! He states the following:
“Nowadays, we have access to the technology to prove cannabis’ medical efficacy and to create the pharmaceutical products that the market need. The use of in vitro analysis can help to choose appropriate extracts to be used to treat specific diseases and conditions. The in vitro analyses are used to develop a treatment for specific cancer types, to develop a formulation to access the brain efficiently to treat epilepsy seizures and to test cannabis for the treatment of chronic inflammation diseases efficiently. The use of in vitro analysis can help to choose appropriate extracts to be used to treat specific diseases and conditions. The in vitro analyses are used to develop a treatment for specific cancer types, to develop a formulation to access the brain efficiently to treat epilepsy seizures and to test cannabis for the treatment of chronic inflammation diseases efficiently. Furthermore, getting scientific proofs and creating medical formulations is essential to help health professionals to prescribe medical cannabis more safely and efficaciously, opening future access to more diseases. As a group of experts in pharmaceutical formulation delivery, we have been developing prototypes for a nebulizer, a nasal spray formulation and a fast-dissolving sublingual tablet to administer the cannabis extract in different dosages and to better access specific targets. Our plan is to create the knowledge and products needed to give millions of patients an alternative that they need.”

One important aspect mentioned by Roberto is that these prototypes are not standard medical formulations, and that is because it needs to be unique for each individual, their different needs, and the individual’s specific body aspects.

Links to Roberto Paleco:
https://www.linkedin.com/in/roberto-paleco-66139417a/
https://www.researchcan.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/38675063Sat, 11 Jul 2020 22:19:33 +0000Jill WoodworthRoberto Paleco joined us in our “virtual land” to discuss his amazing journey and career as a Medical Researcher/Scientist, Entrepreneur, from Australia, Italian born. He started a company to do research and clinical trials "for hire" to bridge the...
Roberto mentions the gastrointestinal microbiome. It's something that I just learned about in probably the last five or six years. As someone who was on a bunch of pharmaceuticals, the impact on the gastrointestinal system was significant. And the mind-body connection, I think that's something that while it's taught, it's becoming more prevalent. People are understanding the microbiome and the gut that connects gut/brain connection.

He developed ResearchCan to make a difference. He mentions it was a hard decision to step out and expose his research, but he also acknowledges that he needs to show the public what he is discovering. Roberto stated that, “We understood the necessity of providing medical cannabis industries with the technology to develop products using pharmaceutical enhancement and medical devices.”

Roberto has an extensive and interesting journey in this field. He explained:
“My passion for natural medicine started during my university studies, where I had obtained the medical and pharmaceutical knowledge to create drugs and the understanding of drug interaction with the human body. As a scientist, I always found the chemistry of the body and the pharmaceutical technologies fascinating. In my career, I studied different diseases and therapies to have a bigger vision of medical treatments. I studied topic formulation to treat skin cancer in Ireland. I moved to Sydney to become an expert on inhalation and nasal administration for respiratory conditions. I have participated in a clinical trial in collaboration with UTS, where I remained fascinated by the connection mind-body studying gastrointestinal conditions. In all of these apparently unrelated conditions and others in my advice, medical cannabis can be used as primary therapy or as a combination to help unavailable and sometimes inefficient conventional treatments.”

“I’ve been aware of the potential of medical cannabis for a long time, and I always tried in my career in Academia to make people understand it. However, nowadays, the barrier is still strong. In the years, I saw people suffering and even die from pathologies that could be treated with this plant. Finally, the world looks like realigning about the use of medical cannabis and I hope one day Australia will lead to this change.”

“My personal experience is that the Academia here is not ready for this change and my advice is that medical cannabis companies should invest money in research and developing medical products privately and directly as pharmaceutical companies always did. Australian universities have incredible laboratories and scientists, but at the moment, there are not sufficient government grants to develop cannabis research within the University, and the old bureaucracy around the intellectual property is discouraging the cannabis industry to invest in research. Besides this limitation, there is here in Australia, a market and a business interest in terms of investment and capability. Government legislation around cannabis prohibition is fast-changing, so I think that with a different approach, we can make the difference.”
2374academia,alternativemedicine,australia,bureacracy,cancer,cannabis,cbd,chemist,epilepsy,extraction,italian,medical,medicalcannabis,mentalhealth,mindbodyspirit,pharma,pharmaceutical,podcast,researcher,thcfalsefullhttps://www.spreaker.com/episode/tsc-talks-danielle-mcqueen-owner-old-man-goodies-llc-why-i-do-what-i-do--33682520
“I always knew I wanted to help people. At an early age, I also knew something was wrong with me too. I had gotten into a little bit of trouble at school. I love the gymnastics part in flipping and I thought I could do this. But I also started to realize that I was getting pains, you know, and everyone kind of chalked it up until I was probably around 16, when it really started to affect me. By 17 years old I started, you know, I've seen every doctor. I've been diagnosed with lupus, rheumatoid arthritis, to everything. So, being diagnosed with so many diagnoses, it’s just because it was kind of unknown. It was a little by 18 when they had known that it was Ankylosing Spondylitis and I was put on oxycodone.”
“This next month, I'll be going into my third surgery, they'll be doing a full fusion from the cervix down. Just because I've had so many slipped discs and fractures that are kind of just deteriorating. So I'm a little nervous.”
“Every time something like this happens I think of my daughter, what her future might look like. Because like I was saying, when I was a teenager, they put me on oxycodone and it helps, of course. Back then, these drugs were just coming to market. These doctors were taught by the pharmaceuticals that these were lifesavers or they were for some people, I'm not denying that fact. But for me, being so young, I probably shouldn't have been put on oxycodone. Over time, it stopped helping. And at this point, I was in college and I was going to school to be a nurse and now at this time, after oxycodone, I'm put on the fentanyl patch and this I'm usingwith the oxycodone. The fentanyl patch and the oxycodone. So now I'm in school and I'm learning in the medical world. And I start to learn that maybe I shouldn't be on these doses. Maybe I shouldn't be on these medications. Maybe it's okay to question the doctors.”
“I was a manager of a Suboxone clinic a few years ago, and I thought to myself, I was no different than these people, except they went to get their drugs from the street; I just had to go to my doctor. She'd write me a prescription and I'd be on my way. I mean, there was no difference to me.”
“I just felt something was wrong. I feel really guilty saying this. One time I'd walked into my doctor's office to get a prescription. There were a lot of people in police uniforms and there are people carrying boxes and the nurse was really sneaky about getting me into a room. I don't remember seeing the doctor that day. I just saw my prescription. And I was in a haze. I feel like from 18 to 22 I literally feel like I don't recall a lot of how I managed to graduate school and do the things I did in that time period, still amazing to me. But that next day I read in the newspaper that my doctor was under investigation for overprescribing narcotics. There were a lot of overdoses in our town at that time. And this doctor was connected to them. Well, next thing I know I'm being called by the board of medicine because my medical records have been found outside of her office being disposed of. So now I'm caught in this, ‘I'm addicted to drugs. who's going to supply my drugs now. This is so embarrassing. It's in the newspaper. I'm in the medical field.’ I went through this stage of full-blown depression, I didn't know what to do on my bed. Thankfully, it was a time of my life- life has given back to me because I had no choice other than to either go to the streets and become a drug addict or detox. And I don't recommend detoxing at home, but I was too ashamed to go to the same hospital I worked in. And so I detox at home. The worst 14 days of my life. Pain I never felt, sickness and things I've never felt before, and I wouldn't want to ever again. I think that's why I've stayed off of narcotics because that feeling I remember of coming off of them. On day 15 I remember my younger brother offering me a joint and I was mortified. I was like, whoa, how dare you!”
Yeah, the recovery movement. They really were not very pro-cannabis. In fact, I dropped out because they weren't. I was in an addiction. I was going back to school to become an addiction counselor and they passed around this magazine with marijuana on the front of it like it was the worse thing, and I was sitting there and I had just started using. I felt so guilty and it was helping me and I was getting off meds and I was like, I can't do this. I can't get off.
“I get it. I was mortified. And then you know what, I did it because what was the other option? I was so sick, I was so sick, and all of a sudden I feel better, and how do we get more of this stuff? You know? So here I am. I work at the hospital. I'm using my younger brother to go buy me marijuana, you know, like, mortifying, but then I started to realize this is going to help. This is going to be the thing that helps me. And it started to help me and then I started to want to help other people. I got a job at a Suboxone clinic and I wanted to help people. I just thought that I could save the world. Then I started to realize I'm drug testing these patients. They are coming back positive for THC and the doc says, ‘that's okay, Danny. No big deal. They come back something else that's a problem.’ And I'm thinking why is this not legal? Why aren't we just using it? Why can't we give them weed because here I am… I'm smoking cannabis every day. It's helping me stay clean, function with my disease, I'm treating these patients, and I'm hiding the fact that I probably smell like it. They thought it was them. It's me the whole time.”
“Then you know what I got pregnant and there was no more I could hide it. There was no more of ‘I had to be quiet about it’ because Harley Rose, in 2015, early on, started to show symptoms of something and nobody knew what it was. But one day I went into her crib, she was stiff as a board. I picked her up and she was very hard, and her joints were very red and she had a fever of 102 and I knew right at that moment that I had genetically passed down something to her. It was the worst day of my life. I just thought everything was like flashing. Everything I had gone through and I blamed… I blame myself. Her pediatrician was great. Quickly after the test they found out she had A.S. And right then it was like a whiplash.”
“I was very angry at this point, more at myself. I think Because I just felt like this is all my fault. I gave this to her my child's gonna have to endure all the same things I have. So I was very scared and then like I said it was like a slide. they just wanted ‘Let's do this. Let's do that.’ And I said ‘let's do none of it! What can I do herbally?”
“The doctors were not supportive of anything alternative. And about a week went by from the diagnosis and I was sitting, probably on a Friday and watching her and her body, she just hurt. You could tell, and I didn't know what to do. And I had a prescription for pain medication and I was holding it and I just knew, I just knew I couldn't do it. And within days, you know, we had quit our jobs. We had packed our home up and we had found a place in West Baldwin, Maine. And we didn't have any jobs here. We didn't have anything, only the hopes that somebody was going to help my daughter. And we left. We met Dr. Dustin.”
“I probably sounded like a lunatic. You know, I just said ‘please, I know you're not accepting new patients. I need you to help.’ And within probably 24 hours, 48 hours, there was a callback. We had an appointment within days. We went in and I was terrified because still at this point didn’t want to give her the cannabis. I don't know. I thought maybe this guy was just going to be able to give her an herbal. I don't know what I thought. Honestly, I don't know what I was doing or what I thought. I was so scared. He was so wonderful. He was like this white light come over us and we started her on cannabis and she started to do things you've never done before. I'll never forget the day she took off running, jumped on the arm of the couch and Ninja flips.”
“And I thought, ‘do it again!’ My sisters would look at me and give me that look like ‘you shouldn't be letting your baby do that.’ But I did I let her do things that maybe you shouldn't have done.”
“I thought, maybe she’d been trapped, you know. So at that moment, the stigma for myself, you know, here I was, it was helping me but I still was scared to give it to my child. Then I gave it to her. She's remarkable.”
“That's when it was like, game on, world! Because if I'm doing everything, teach me how to grow, teach me how to grow cannabis, teach me how to do everything about cannabis.”
“And then I started to help one mom, and then that started to be two moms. And then it just really grew. And I never connected my business name with who I was as a mom helping these women." (read the full blog on our website: https://tsctalks.com)
Website: https://www.oldmanfarms.com/
Instagram: https://www.instagram.com/oldman_goodies_llc/
Facebook: https://www.facebook.com/oldmangoodiesllc/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/33682520Fri, 26 Jun 2020 16:12:26 +0000Jill WoodworthDanielle, (Dani) McQueen, is a true champion in the cannabis world, business owner, who has been nominated with Best Cannabis Company of the Year, Maine Cannabis Activist, Business Leader of the Year, Champion in Corrupt Responsibility, Best...
“I always knew I wanted to help people. At an early age, I also knew something was wrong with me too. I had gotten into a little bit of trouble at school. I love the gymnastics part in flipping and I thought I could do this. But I also started to realize that I was getting pains, you know, and everyone kind of chalked it up until I was probably around 16, when it really started to affect me. By 17 years old I started, you know, I've seen every doctor. I've been diagnosed with lupus, rheumatoid arthritis, to everything. So, being diagnosed with so many diagnoses, it’s just because it was kind of unknown. It was a little by 18 when they had known that it was Ankylosing Spondylitis and I was put on oxycodone.”
“This next month, I'll be going into my third surgery, they'll be doing a full fusion from the cervix down. Just because I've had so many slipped discs and fractures that are kind of just deteriorating. So I'm a little nervous.”
“Every time something like this happens I think of my daughter, what her future might look like. Because like I was saying, when I was a teenager, they put me on oxycodone and it helps, of course. Back then, these drugs were just coming to market. These doctors were taught by the pharmaceuticals that these were lifesavers or they were for some people, I'm not denying that fact. But for me, being so young, I probably shouldn't have been put on oxycodone. Over time, it stopped helping. And at this point, I was in college and I was going to school to be a nurse and now at this time, after oxycodone, I'm put on the fentanyl patch and this I'm usingwith the oxycodone. The fentanyl patch and the oxycodone. So now I'm in school and I'm learning in the medical world. And I start to learn that maybe I shouldn't be on these doses. Maybe I shouldn't be on these medications. Maybe it's okay to question the doctors.”
“I was a manager of a Suboxone clinic a few years ago, and I thought to myself, I was no different than these people, except they went to get their drugs from the street; I just had to go to my doctor. She'd write me a prescription and I'd be on my way. I mean, there was no difference to me.”
“I just felt something was wrong. I feel really guilty saying this. One time I'd walked into my doctor's office to get a prescription. There were a lot of people in police uniforms and there are people carrying boxes and the nurse was really sneaky about getting me into a room. I don't remember seeing the doctor that day. I just saw my prescription. And I was in a haze. I feel like from 18 to 22 I literally feel like I don't recall a lot of how I managed to graduate school and do the things I did in that time period, still amazing to me. But that next day I read in the newspaper that my doctor was under investigation for overprescribing narcotics. There were a lot of overdoses in our town at that time. And this doctor was connected to them. Well, next thing I know I'm being called by the board of medicine because my...]]>2876alternativemedicine,ankylosingspondylitis,cannabinoids,cannabis,family,fentanyl,healthcare,hope,medical,mentalhealth,multiplesclerosis,narcotics,oldmangoodiesllc,overprescribing,pain,parenting,physician,polypharmacyfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-tower-of-babel-parenting-healthcare-in-america-with-brooke-alisha-jill-woodworth--32512519
They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!
Get info at: https://tsctalks.com

Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21

To order Forest Bathing and learn more:
https://tsctalks.com
This is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body.

They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!
Get info at: https://tsctalks.com

Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21

To order Forest Bathing and learn more:
This is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body.

They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!
Get info at: https://tsctalks.com

Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21

To order Forest Bathing and learn more:
https://igg.me/at/forestbathing/x#/
https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/32512519Mon, 22 Jun 2020 21:09:33 +0000Jill WoodworthThis is the full-length audio recording of our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with...
They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!
Get info at: https://tsctalks.com

Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21

To order Forest Bathing and learn more:
https://tsctalks.com
This is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body.

They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living...]]>3583autism,behavior,cannabis,c-ptsd,developmentaldisability,epilepsy,family,forestbathing,intellectualdisability,mentalhealth,neuropsychiatric,psychhospital,psychiatric,ptsd,seizures,tand,thrive,tsc,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-dedee-culley-r-n-cannabis-nurse-co-owner-2-leaf-nurses-from-pain-to-passion--30264371This is her background and mission:

(Dedee Culley and her business partner Angela Huff)
“I am a registered nurse for over 20 years now; a variety of backgrounds. And there came a point when I said, you know what, enough is enough, there's more to our lives than just ‘the doctor said’, and we do this and we do that. We need to be able to heal our own bodies and we need to work on our own bodies to get them healthy. So, I started a company called 2 Leaf Nurses. And our focus is on the education of patients, as well as businesses, healthcare professionals (our own health care professionals have to have education, bless their hearts), as well as the community. That's what we really focus on, powering everybody.”

Whenever I meet someone that's in the cannabis industry from, you know, more than Midwest, I'm like, it's got to be a whole different. You know, different, awkward struggle just to get to be legit and it's hard anywhere just because we're so ingrained in our way of understanding medicine that it's hard to get back and I think that as Culley shares her story, what I found is the people that are in the industry is particularly the great nurses. I'm so grateful. I asked her about what made her take this approach:

“So yes, I am in southwest Missouri. We are seven generations deep in this area. My great-great-grandma was actually known as a medicine woman around here because one we didn't have a whole lot of doctors and those doctors cost money which our farmers didn't have. So I spent a lot of time with my grandma, and we had to utilize plants and things that we would now call ‘alternatives’. It opened up a world for me that just seemed natural. My grandma used rosewater and glycerin. And so those were all normal to me. It just was normal.”

Dedee Culley says she realized that there are two types of people, the ones that accept what the doctors say and what they say goes, and the ones that question things and wonder if there are better ways to go about something. She is definitely the type that questions, and wonders, and researches and tries to find the best way to solve something and the best way to certainly narrow down a diagnosis. She stated:

“People like me who go, ‘Well, wait a minute, why are we doing this? Why do we have to do that? Why do we have to cut both ends off a ham when we cook it? Why do we do that?’ Those are the kind of things I'm always asking. And I always have gotten in trouble many times for asking why. People take that as you are questioning them, you're questioning their integrity and their character and their knowledge. And I'm like, No, I'm just asking the question. Because when we get right down to it, there might be another way.”

A doctor once told her to not apologize for asking questions. She was motivated to do so and to dig deeper every time.

She expected to have a simple life, ‘get married, raise a family, and bake some cookies’. But for her, there was more to life than that. She witnessed a cousin have a seizure, and she started asking questions… how, why. While at the time they could only do so much, they blamed immunizations. Her grandmother also helped her see alternative methods other than hardcore pills and medicines. While her grandmother had to be hospitalized for Alzheimer’s, her grandmother had to be knocked out because she was so agitated. But while she could visit, she felt a deep connection with her grandmother since she was able to calm her down with only the touch of her palms. She goes on to explain another amazing experience she had with her grandmother, “She’d be incredibly agitated. I could sit down on the couch, hold her hand, and we would just rub hands. And to this day, I can still feel that and she was totally calm. And she would look at me and I could see grandma. And I know there was that connection. I took a doll... She always took care of all of the babies in the family, all of the kids. So I took a baby doll up there. And she held that baby and she would feed that baby and she would cuddle and calm her down immediately. So no medications were required. You know, they didn't have to do all of those things. And it proved to me how it improved the quality of her life. But it made me question, Why do we do this? And then, of course, that was the thing that took me into nursing. That thing that the doctor told me, don't ever stop asking questions, that's how we learn, you know, and encouraged me. When I got into the hospital I was told, ‘No, you don't ask questions. We are the doctors.’ So I got that message. It wasn't long after I started in the hospital, I was probably two or three years into the hospital.”

Her husband, on their fifth anniversary, was diagnosed with Stage 4 Glioblastoma. She goes on to share this tangible experience: “This is someone who is crazy healthy at the time he was diagnosed. He was actually training for a military marathon with his brother, he was in the Air Force. My husband is 26 years in the Army, and they were going to do a military marathon. And then this boom, all of a sudden seizures happen and we get this diagnosis. So we got that diagnosis after our five year anniversary. And I thought, ‘you know what, I'm just not cool with all of it, really. I need some other answers.’ And so I began asking why. I started really digging deep and do the research. And cannabis was the only thing that really has shown promise because it's able to penetrate the blood brain barrier. It's very selective in what it works synergistically with you. So there's a synergy between the brain cancer and the THC that it creates an environment that kills cancer cells. Yet it doesn't kill the good cells. I've read it also has this ability to help with the generation and regeneration of some of the healthy brain cells. So, that's huge.”
In the midst of all these experiences, she found out about cannabis nursing (ACNA). She goes on to explain 2 Leaf Nurses:

“So one of the things that we do at 2 Leaf nurses is not only teaching the body how It's designed to work. Well, what happens when it doesn't? And when you understand how your body is supposed to work, and you understand what happens when it doesn't, it also makes it much easier to understand how cannabis, or anything else, other supplements, other plants, and diet, how that may or may not help you, right? And I always say there are always those caveats that you can't do it. You know, they're just, they're just a certain kind of thing. So we learn about that, but then we take you to the next step of figuring out what you want, what you need, okay? Okay. I can't tell you that you need to smoke a flower. I can't tell you. You need to use a tincture. I can't tell you those things. Only you can make those decisions, right? You just need to be educated about what those things are.”

As an incredible nurse with a passion for others, her own family structured her path to find holistic approaches, which indeed gave her and her family hope for a better life.

“When you're looking at things holistically, it's not one thing; you have to look at the whole picture. So mind, body, and soul. So I have to think about his exercise, keeping him out getting him good energies, keeping his spirits up, giving him hope, and encouragement, but we also have to be cognizant of our diet and what we consume and the supplements and things like that. So, it's been a very, very broad approach. And I will say that for me to start a business, most of it was not in my game plan. I would have just assumed, ‘just stayed back and taking care of him, and let's call it good.’ That's not the way it was supposed to go apparently. And you know, a lot of the things that I have done, all started falling into place and wondering what I was supposed to do how I was supposed to do it. It all fell into place. And you know what? I just have to keep helping people. That is my calling, to help and to empower and educate people. So, there we have it.”

Facebook: https://www.facebook.com/2-Leaf-Nurses-111026430353251/
Instagram: https://instagram.com/2leafnurses?igshid=8zsfxtspce75
LinkedIn: https://www.linkedin.com/in/2-leaf-nurses-477b49196/
Email: info@2leafnurses.com
http://freebdworld.com/what-is-a-cannabis-nurse
https://mogreenway.com/2020/04/21/quality-of-life-vs-therapeutic-use-which-is-medical-marijuana-used-for/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/30264371Thu, 11 Jun 2020 10:23:25 +0000Jill WoodworthThanks for listening to TSC Talks with Dedee Culley. With over 20 years of nursing experience, she is the co-owner of 2 Leaf Nurses, which provides alternative & holistic health services from Springfield, Missouri. Culley loves home health for its...This is her background and mission:

(Dedee Culley and her business partner Angela Huff)
“I am a registered nurse for over 20 years now; a variety of backgrounds. And there came a point when I said, you know what, enough is enough, there's more to our lives than just ‘the doctor said’, and we do this and we do that. We need to be able to heal our own bodies and we need to work on our own bodies to get them healthy. So, I started a company called 2 Leaf Nurses. And our focus is on the education of patients, as well as businesses, healthcare professionals (our own health care professionals have to have education, bless their hearts), as well as the community. That's what we really focus on, powering everybody.”

Whenever I meet someone that's in the cannabis industry from, you know, more than Midwest, I'm like, it's got to be a whole different. You know, different, awkward struggle just to get to be legit and it's hard anywhere just because we're so ingrained in our way of understanding medicine that it's hard to get back and I think that as Culley shares her story, what I found is the people that are in the industry is particularly the great nurses. I'm so grateful. I asked her about what made her take this approach:

“So yes, I am in southwest Missouri. We are seven generations deep in this area. My great-great-grandma was actually known as a medicine woman around here because one we didn't have a whole lot of doctors and those doctors cost money which our farmers didn't have. So I spent a lot of time with my grandma, and we had to utilize plants and things that we would now call ‘alternatives’. It opened up a world for me that just seemed natural. My grandma used rosewater and glycerin. And so those were all normal to me. It just was normal.”

Dedee Culley says she realized that there are two types of people, the ones that accept what the doctors say and what they say goes, and the ones that question things and wonder if there are better ways to go about something. She is definitely the type that questions, and wonders, and researches and tries to find the best way to solve something and the best way to certainly narrow down a diagnosis. She stated:

“People like me who go, ‘Well, wait a minute, why are we doing this? Why do we have to do that? Why do we have to cut both ends off a ham when we cook it? Why do we do that?’ Those are the kind of things I'm always asking. And I always have gotten in trouble many times for asking why. People take that as you are questioning them, you're questioning their integrity and their character and their knowledge. And I'm like, No, I'm just asking the question. Because when we get right down to it, there might be another way.”

A doctor once told her to not apologize for asking questions. She was motivated to do so and to dig deeper every time.

She expected to have a simple life, ‘get married, raise a family, and bake some cookies’. But for her, there was more to life than...]]>3336alternativemedicine,cannabinoids,cannabis,cannabisnurse,endocannabinoidsystem,glioblastoma,grandmother,heartattack,husband,inspiration,medicalcannabis,medicalmarijuana,missouri,nursing,supplements,traditionalmedicinefalsefullhttps://www.spreaker.com/episode/tsc-talks-three-on-tsc-you-got-this-now-tomorrow-s-gonna-be-better-with-brielle-izabelle-co-hosted-by-brooke-alisha--28346999
My co-host for this episode was Brooke Alisha, Brooke is our TSC Talks YouTube Vlogger and is an adult and parent living with TSC. She is also a TSC Advocate, Adult Regional Coordinator for Adult Support Region 5, LeVel Promotor. She has quite a story of challenges and hurdles, traumatic events, and heartache but also MUCH resilience, inner fortitude, a heart of love and hope and I was grateful to have her jump right in and contribute to this interview with her own insights and understanding of TSC related challenges and add another valuable perspective to our discussion.

As a parent of three offspring with TSC who has been through quite a sampling of the TSC experience in terms of encountering ranges of manifestations, treatments, surgeries, medications, and interfacing with systems of care, I am always learning what I don’t know about another’s personal experience, and grateful to gain yet another glimpse of how others navigate and come through their own personal crises and come to understand and put in place a framework for moving forward and accepting the diagnosis without letting it define them. This was yet one more “schooling” I received on the many colors and faces of this complicated diagnosis.

I am sharing some pertinent quotes that help illustrate the content we discussed. Brielle discussed her greatest challenges growing up with a TSC diagnosis, those being educational and mental health challenges. “You know, I've dealt with school situations, like bullying because of how intense it really was for me, I did struggle. But the school system that I was involved in, they were amazing. And I was able to be super successful in school. I went to my dream college, and education is the biggest way that this has impacted me. And now as an adult, or young adult, I think that it really affected me with my mental health, which is something that I had no idea it would. I think that since my whole life has been relatively stable, I didn't realize that okay, you know, there's other things that aren’t, which has been my mental health, anxiety and depression and things like that. So, I think my whole life, it's really just been my education. But now that I'm an adult, and I'm more in charge of my education, it's definitely my mental health and mental health awareness. So that's the biggest thing and it's affected me a lot to be honest with you”
Brooke also shared her perspective on what Brielle mentions, also tying in TAND, which stands for Tuberous Sclerosis Complex Associated Neuropsychiatric Disorders; “I know like 80% of people deal with a mental illness and you know, sometimes you deal with it worse at different ages. I honestly didn't really pay attention to it when I was younger, because I didn't know, but watching my daughter struggle with the bullying and the IEP s and the learning and the therapists and all that stuff. It is very traumatic for someone to go through at any level. You talk very well, and you are very educated. Whoever has worked with you has done an amazing job. And I think that's incredible growth for you”

Brielle underwent brain surgery at age 8 and states, “So I think that brain surgery was one of those things where I was sort of like, this is happening, you know, what is going to happen after this? How am I going to be impacted, I wasn't educated. All I knew was that, you know, one of my tumors in my brain needed to come out and it needed to come out as soon as possible. So, I think that being who I am today, as well, I could say that if I didn't have brain surgery, I wouldn't know who I was, either. Because that was like my, my greatest achievement, you know, to survive something so traumatic like that. A lot of people don't come out of that. So I'm so blessed. And I think that going through that and now being so healthy today, is something that is just amazing, something that I had to do something that I had to face, I couldn't go around it, I can wait a year for it to be done”

Brooke added, “I'm really thankful you talked about the brain surgery. My daughter had it when she was three, but like, that's what she lives off of…” this happened to me.” I always tell her it does not define you. But it is so hard to get that out of their head when they go through so much stuff and like you said, you blocked things out.” I also would acknowledge how important it is to not let these major medical events that are outside of one’s control define, but give one a sense of passion and purpose having gone through something most people never experience, living through it, and owning the courage and bravery it takes to reorient and not let memory of these traumatic events hold one hostage.

Brooke elaborates on her own challenges with the mental health aspects of TSC, “Nobody understood my mental illness, you know, they were supportive and they kept me going, but until I got older and really dealt with it, I was in my home and wouldn't leave, and it was a really bad place. I was alone, it was devastating to my life. So to see you at 21, just, you know, I know that there still rough days, but you're glowing, you're doing incredible. And I am so thankful that you're reaching out to these other girls. I know that's been a huge support for my daughter, having her camp friends that all had TSC to talk to because you do get very lonely, nobody understands you, they don't even know what to say to you. So they say nothing and then you're left in a hole, you know. So I'm really thankful to hear your story and to hear you rise up from all this. I think it's great. I know there's going to be tough days, like you said, there's no cure, but you have to like rise above that and you're doing very well. You're doing a really good job.”

I would echo that statement and will wrap up with this quote from Brielle on how she came to use journaling and ultimately vlogging to help her process her experiences and cope, “Something that I was actually very opposed to doing because I was so in denial that it would help me is journaling. I had an empty journal in my room that my dad gave me, and I put it all the way in the back of the drawer. And I refused to even write my name. I didn’t even want to draw in it. I did not want to even think about putting my feelings down. And one day I was feeling so terrible. And I said, I just want to get this out, even if this is the first and last time that I write in it, and ever since that day, I have not stopped writing in it every single night. Just like Brooke said, I will write, “you got this now, tomorrow's gonna be better.” You know, ask yourself the question, like, let me know how tomorrow goes and then tomorrow I'll write down today. Especially now that I can't see my therapist, I need a means of releasing how I've been feeling and I actually made a video about anxiety and depression as well. Writing in the journal and giving yourself motivational words, you know, it doesn't have to be something cliche or something that someone else told you. It’s something that is individualized to you. So yeah, I write like 15 pages written ..or I'll write like three pages a day of just thoughts and thoughts. And sometimes my hand will cramp up and I'll say, wow, you know, today was a rough day. Just go for something. Because sometimes it's just, very hard”

Both these two women are powerful examples of coping with some off the beaten path challenges that few will encounter in their lifetimes and both have chosen to accept the fact that they have this condition, are not letting it define them but remain grateful for being able to be here now and find joy, meaning despite the daily roller coaster of circumstance. Tools mentioned for coping are journaling, vlogging, connecting with others that can relate and a lot of self-love, self-compassion and reminders on the mirror of just how awesome they are. Because it is so true. I was inspired and moved listening to both of these women and am glad to share this episode with my own daughters, as well as many others within and without the TSC community, who have dealt with and are dealing with similar issues related to self-esteem, mental health, and staying positive in this crazy world we live in.

This episode is dedicated to my friend Paul Collins who passed away recently. Paul was a unique and inspirational individual I met in the local 12 step program when I had hit a personal bottom dealing with addiction and mental health stressors that led to a serious psychotic break. Paul inspired me to live the wisdom of the saying, “you’re only as sick as your secrets” which in part inspired the creation and evolution of this podcast. Thanks for listening!

Brielle’s links:
YouTube: https://www.youtube.com/channel/UCfFMGjj9KrOFG-k1d-MKXjQ
Facebook: https://www.facebook.com/brielle.izabelle

Brooke’s links:
Instagram: https://www.instagram.com/_brookealisha_/
Facebook: https://www.facebook.com/brookey21
Twitter: @BrookeAlisha

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/28346999Tue, 26 May 2020 10:02:57 +0000Jill WoodworthI had the pleasure of having Brielle Izabelle join myself and co-host, Brooke Alisha on the podcast to discuss her lived experience as a young adult living with Tuberous Sclerosis Complex. Brielle is from New Jersey, is a college student at Fairleigh...
My co-host for this episode was Brooke Alisha, Brooke is our TSC Talks YouTube Vlogger and is an adult and parent living with TSC. She is also a TSC Advocate, Adult Regional Coordinator for Adult Support Region 5, LeVel Promotor. She has quite a story of challenges and hurdles, traumatic events, and heartache but also MUCH resilience, inner fortitude, a heart of love and hope and I was grateful to have her jump right in and contribute to this interview with her own insights and understanding of TSC related challenges and add another valuable perspective to our discussion.

As a parent of three offspring with TSC who has been through quite a sampling of the TSC experience in terms of encountering ranges of manifestations, treatments, surgeries, medications, and interfacing with systems of care, I am always learning what I don’t know about another’s personal experience, and grateful to gain yet another glimpse of how others navigate and come through their own personal crises and come to understand and put in place a framework for moving forward and accepting the diagnosis without letting it define them. This was yet one more “schooling” I received on the many colors and faces of this complicated diagnosis.

I am sharing some pertinent quotes that help illustrate the content we discussed. Brielle discussed her greatest challenges growing up with a TSC diagnosis, those being educational and mental health challenges. “You know, I've dealt with school situations, like bullying because of how intense it really was for me, I did struggle. But the school system that I was involved in, they were amazing. And I was able to be super successful in school. I went to my dream college, and education is the biggest way that this has impacted me. And now as an adult, or young adult, I think that it really affected me with my mental health, which is something that I had no idea it would. I think that since my whole life has been relatively stable, I didn't realize that okay, you know, there's other things that aren’t, which has been my mental health, anxiety and depression and things like that. So, I think my whole life, it's really just been my education. But now that I'm an adult, and I'm more in charge of my education, it's definitely my mental health and mental health awareness. So that's the biggest thing and it's affected me a lot to be honest with you”
Brooke also shared her perspective on what Brielle mentions, also tying in TAND, which stands for Tuberous Sclerosis Complex Associated Neuropsychiatric Disorders; “I know like 80% of people deal with a mental illness and you know, sometimes you deal with it worse at different ages. I honestly didn't really pay attention to it when I was younger, because I didn't know, but watching my daughter struggle with the bullying and the IEP s and the learning and the therapists and all that stuff. It is very traumatic for someone to go through at any level. You talk very well, and you are very educated. Whoever has worked with you has done an amazing job. And I think that's incredible growth for you”

Brielle underwent brain surgery at age 8 and states, “So I think that brain surgery was one of those things where I was sort of like, this is happening,...]]>2388advocacy,brainsurgery,cannabisfortsc,coping,coronavirus,education,epilepsy,faith,journaling,mentalhealth,neurology,newjersey,ohio,raredisease,seizures,stress,tand,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-on-cbd-advanced-topical-solutions-to-enhance-your-lifestyle-with-herb-tech-pharmaceuticals--27755754
A bit of information how Herb Tech Pharmaceuticals came about: "Our development took a different pathway and having been focused on the pharmaceutical sector, specifically with drug delivery technology, and in fact, working with a specialty pharmaceutical development company in Boston mass that works on transdermal drug delivery technology, thought that the application of principles developed there with that technology could be directly applicable for CBD. One of the big problems obviously with CBD is that if you smoke it with all the problems with COVID-19 and everything else, obviously smoking is harmful to the lungs. If you are ingesting it, the onset of it is terrible and you've got to push the active components through the walls, into your stomach then you have first pass liver first effect and thereafter, in which case it's highly inefficient and can be problematic as well. Topicals and transdermals is could be an interesting pathway, it's safe, but you need technology to be able to get the CBD to the receptors, cannabidiol receptors. And when Laura approached me and said, Gee, is there a way we could use the technology or develop other technology that would allow us to create a company that could effectively create products to have the benefits of the CBD and other botanicals as well, but the advanced technology that allowed the CBD and the botanicals to interact much more efficiently with the human body, that's how our tech was born. We function on the same focus as really a pharmaceutical business, but just applied to CBD in botanicals."

Laura goes on to explain further: "So currently, CBD, there's so many health benefits to it, we all know it. However, the side effects of current delivery methods don't overcome the benefits of the CBD. Smoking, the amount of CBD that's needed to ingest to have an effect, because again, as John mentioned, when your stomach sort of chews up most of the CBD in your stomach, you're actually getting very little into your system. And then there's a side effects of having such a high dose that you're having to take. So there's stomach upset. There's onset of action, it can have effect in 10 minutes, or it can be six hours, right? It's very unpredictable. So those two methods, they weren't efficient and they weren't working. So we said Wow, why can't we take all the wellness of botanicals, not just CBD, all herbal extracts, and really make them more effective, because we all want to use nature. But we have to be able to receive that nature, to receive it safely through the skin, which again, will not happen unless you have some sort of emulsion technology, it will just sit on the outer layer of the skin, that dead skin and it won't have an effect internally. So we're trying to create something that's only effective, but it's safe, and we've priced it so people can afford it. So I'm really excited to introduce this line of products to folks."

Check out the video on our phase change technology: https://herbtechpharma.com/technology/

Laura continues with a description of their product line: "There are a lot of products out there, one size fits all, take CBD for everything. Herbal extracts can help you in certain lifestyle situations throughout your day. So we created six different need states with other botanicals infused in this delivery system. One is "be sleepy" with melatonin, chamomile, lavender "be calm" with a St. John's wort. We have "be active" with white willow, which is a precursor to aspirin, for you know to put on muscles and joints. We have a "be intimate" which is very different. And that's again infused with Red Ginseng. We have "be healthy" and to "be empowered". And again all these are not just infused with botanicals but this is something that we're very proud of. 1000 Mg's of CBD hemp extract, and again just because someone says they have 1000 mg of extract You have no idea how much CBD is in that extract. You have no idea unless the manufacturer tells you and we tell you on our labels 80 to 95% pure, and then you go to our website, there's a QR code on our bottles. We're very proud of our labels, we're very clear and precise instructions. We again tell you there's 20 mgs per pump."

On their very thorough manufacturing, testing, certification and validation process : "What we do is we actually contract with the CBD supplier, and we make sure that under contract, we have a guaranteed amount of CBD actually in it because the other missing link to this whole thing whether it's full spectrum or broad spectrum, how much of the CBD is actually in it. We have guarantees from our infuser, we balance these out with certified analysis, the flower, everything else on a full spectrum, but we guarantee and certify that we have 80 to 95% concentration of CBD in our full spectrum mix. So it's another level that we can guarantee to the consumer. Not only do we have all the parts of the plant, we have a guaranteed amount of CBD in it, and that's all certified. And in addition to that, I mean from a validation standpoint, you know, that's one aspect of what we do relative to the CBD, but the full panel analysis that we do is much more along a cgmp Type Certification process. Our bases for these products are manufactured in a cgmp facility. Basically that means that every aspect of the manufacturing process is validated with this double signature on all the the measurements and all the mixing steps. We then have that validated with microbiological challenge testing to make sure that that's not biologically contaminated. that then gets shipped to our CBD infuser partner who then will mix in blend in the CBD pursuant to our formulation. And then when it gets into full panel certification, we look for everything, we guarantee and certify the amount of actual CBD that's in it. We certify that it's in full compliance with the farm act, meaning that there's less than 0.3% THC in it. Then we make sure that it's full panel is none of the heavy metals and LEDs and other things. And we also do another microbiological challenge test, to make sure and confirm that in fact that there is no microbiological contamination. So when someone is getting our product, they're getting it validated from the very beginning, from the sourcing of all the raw materials that go into the base all the way to the final step, and every part in between."

On the process of securing hemp: "Our hemp is sourced from one of the largest and oldest manufacturers and growers in Kentucky, which was around not just for the 2018 Farm Bill, but also for the original federal research pilot program in 2014. This is basically research grade hemp that's being grown and refined into what we believe to be and what's been demonstrated to certification to us, one of the most purest forms of CBD and hemp extract that's on the marketplace today. So just like our botanical extracts are naturally grown, every component of the formulas has been sourced from what we believe and continually verify to be the best product components available."

I appreciated the thoroughness of this team in creating a product line that addresses many of the concerns and needs that people have when making a decision to try CBD. They gave meticulous detail of their phase change technology for rapid delivery and quick onset of action, the added botanicals which provide aromatherapy and synergy and contribute the the overall effectiveness of the product, their incredibly thorough testing and certification process, high quality hemp, precise dosage control, with a non greasy feel.

I had the opportunity to try several of these products and will give my personal endorsement that they delivered excellent results!! As a runner who deals with chronic muscle pain, especially as I get older, the relief felt after utilizing the "be active" product eliminated the need for post run ibuprofen and other more toxic pain relievers. I highly encourage anyone out there looking for a high quality product, with some bells and whistles that you don't see for such a reasonable price, check any or all of this unique product line, asap!!

"Our website is the best places to actually buy the product and to learn about the technology and the information to see about the validation, and watch the video. So we actually encourage people to go directly to the website. At the same token, we're in the process of increasing the number of retail locations that we have. And we're in the process of putting an affiliate program together as well that will basically allow us to have other people on the internet recommending the products to the friends and family."

Herb Tech Pharmaceuticals Links:
Website: https://herbtechpharma.com/
Facebook: https://www.facebook.com/BetterOnCBD/
Instagram: https://www.instagram.com/betteroncbd/
Twitter: https://twitter.com/BetterOnCBD
Pinterest: https://www.pinterest.com/herbtechpharma/

CONTACT
(978) 522 0049
info@herbtechpharma.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/27755754Tue, 19 May 2020 20:24:35 +0000Jill WoodworthIn this episode, Laura and John from Herb Tech Pharmaceuticals join the podcast to discuss their new line of CBD topicals with Penetrating Topical CBD Phase-change Technology designed to be absorbed rapidly, provide relief and enhance your lifestyle....
A bit of information how Herb Tech Pharmaceuticals came about: "Our development took a different pathway and having been focused on the pharmaceutical sector, specifically with drug delivery technology, and in fact, working with a specialty pharmaceutical development company in Boston mass that works on transdermal drug delivery technology, thought that the application of principles developed there with that technology could be directly applicable for CBD. One of the big problems obviously with CBD is that if you smoke it with all the problems with COVID-19 and everything else, obviously smoking is harmful to the lungs. If you are ingesting it, the onset of it is terrible and you've got to push the active components through the walls, into your stomach then you have first pass liver first effect and thereafter, in which case it's highly inefficient and can be problematic as well. Topicals and transdermals is could be an interesting pathway, it's safe, but you need technology to be able to get the CBD to the receptors, cannabidiol receptors. And when Laura approached me and said, Gee, is there a way we could use the technology or develop other technology that would allow us to create a company that could effectively create products to have the benefits of the CBD and other botanicals as well, but the advanced technology that allowed the CBD and the botanicals to interact much more efficiently with the human body, that's how our tech was born. We function on the same focus as really a pharmaceutical business, but just applied to CBD in botanicals."

Laura goes on to explain further: "So currently, CBD, there's so many health benefits to it, we all know it. However, the side effects of current delivery methods don't overcome the benefits of the CBD. Smoking, the amount of CBD that's needed to ingest to have an effect, because again, as John mentioned, when your stomach sort of chews up most of the CBD in your stomach, you're actually getting very little into your system. And then there's a side effects of having such a high dose that you're having to take. So there's stomach upset. There's onset of action, it can have effect in 10 minutes, or it can be six hours, right? It's very unpredictable. So those two methods, they weren't efficient and they weren't working. So we said Wow, why can't we take all the wellness of botanicals, not just CBD, all herbal extracts, and really make them more effective, because we all want to use nature. But we have to be able to receive that nature, to receive it safely through the skin, which again, will not happen unless you have some sort of emulsion technology, it will just sit on the outer layer of the skin, that dead skin and it won't have an effect internally. So we're trying to create something that's only effective, but it's safe, and we've priced it so people can afford it. So I'm really excited to introduce this line of products to folks."

Check out the video on our phase change technology: https://herbtechpharma.com/technology/

Laura continues with a description of their product line: "There are a lot of products out there, one size fits all, take CBD for everything. Herbal extracts can help you in certain lifestyle situations throughout your day. So we created six different need states with other botanicals infused in this delivery system. One is "be sleepy" with...]]>1587botanicals,cannabidiol,cannabinoids,cbd,covid19,endocannabinoidsystem,epidermis,formulations,fullspectrum,health,hemp,herbtechpharma,mentalhealth,oncbd,painrelief,penetrate,phasechangetechnology,plant,sleep,technologyfalsefullhttps://www.spreaker.com/episode/tsc-talks-cannabis-mental-health-with-sherri-tutkus-rn-bsn-founder-ceo-green-nurse-group--27148269
In this episode, Sherri shares from the annals of intensely personal experience detailing how her entire life went from one of a busy full time nurse, working in hospitals in Boston, single mother of three to becoming completely bedridden, dependent on others for care. She states,

"I'm going to be a little bit transparent today. I think it'll be really helpful to talk from my own personal perspective in working with cannabinoid therapeutics and mental health in regards to my own mental health. So before I got sick in 2012 I had a history of migraines and ADHD-attention deficit disorder. Both of those were managed very well with medications, working full time as a nurse in the big teaching hospitals in Boston, three kids. I was highly functioning. When I took a hit from eating a bacteria while I was working I ended up in the intensive care unit, with a mega colon, an infectious disease, and it was really bad. So I got sick in 2012, took a hit to my gut. I went from high functioning to not functioning at all"

From here Sherri lays out the journey back and how a fellow nurse at a particularly low point after she'd been put on 16 pharmaceuticals and was "circling the drain of despair", encouraged her to try cannabis as medicine.

"I was on the other side of the bed, like in a really big bad way, all of a sudden I'm the patient and having to advocate for myself. So not only was it the physical issues that I had, but I also had to deal with the system, the system that I worked in, how is that going to affect my mental health and how are they going to take care of me? The trauma that I experienced from this illness is so overwhelming high functioning to not functioning, home- bed bound in the hospital- couldn't take care of my kids -could barely eat. I'm just gonna say it like it is explosive diarrhea, and nausea, vomiting, abdominal pain, pooping your pants in public. So you can see how literally I can talk about anything. From running around the block naked to talking about poop and stuff that comes out your bum. I was so mortified, horrified that I had this gastrointestinal illness that was debilitating, complete loss of control, it was horrible. And then the issues with eating and being able to take in food. So that spiraled into, mental health issues, the developing anxiety and the depression. And over time, I wasn't getting better. I had agoraphobia, I was afraid to leave."

And I'm going to tell you too, and this is the part of trauma that I'm really trying to help patients with now, when I'm working with them because I've been there. You know, I've been there. I call it medical trauma. And Pharmaceutical trauma.

It was cannabinoid therapeutics that came into my life that really made the significant impactful change, that allowed everything that wasn't working to start working again and actually allowed me to start processing information from a different place because I was pulled out of the story of the sickness, the story or the trajectory of sickness. an illness. You know, it was the cannabinoids that actually opened the door that allowed everything that wasn't working to start working again."

I was utilizing all of the other tools that existed. The traditional system, the holistic system, the functional integrative system, acupuncture, chiropractor, essential oils, homeopathy, you name it, and none of it worked. Why? Because my endocannabinoid system was completely 100% deficient. I was not making enough of my own internal endogenous cannabinoids to keep my system regulated including my brain"

"And so what it took was it was one of my nursing colleagues who had just retired. She was one of my patients because I do energy healing work. I do Reiki and Reconnective Healing and she was one of my clients from energy healing. She had been trying to get in touch with me and she had just turned 70 and I kept blowing her off. So she came to my house with a big giant, big fat joint. And she walked into my bedroom and I looked at her and I go, are you kidding me? I mean, is this a joke? Seriously, you're bringing me weed? Like, how is this gonna help me?"

There's much more within this episode as Sherri goes into a lot of detail on various aspects of cannabis as medicine and how it works to restore homeostasis, what this means for so many conceivably impossible to treat conditions, how this has profound implications, for ushering in a new paradigm of modern medicine, bridging the gaps between traditional and alternative medicine with results, research and centuries of "anecdotal experience" evidencing profound efficacy and facilitating personal autonomy and decreased dependence on a broken healthcare system.

For Sherri, these brutal series of experiences were the launching pad for what is now her business, Green Nurse Group and has led to her work as Medical Director of Irie Bliss Wellness. She has the opportunity to help others on their journey with cannabis. She discusses the personal stigma she had to overcome as well as challenges within her own family who were not initially supportive of her foray into the cannabis industry among other potential roadblocks so many of us experience as we advocate for what we know to be true about cannabis. It is a life saving plant that has the power to transform one's entire state of being.

Sherri and Green Nurse Group as well as many other Cannabis Nurses, Doctors who are slowly starting to embrace cannabis and other professionals with whom Sherri inspires sit at the crossroads of this exciting yet also frustrating time in traditional medicine as the systems we have depended on for so long to help keep us alive and having quality of life are not leading to overall improved quality of life for more than not.

One final quote from Sherri and then be sure to check out her links: "I honestly see this (cannabis as medicine) being integrated into mainstream medicine, but it's going to happen in the community first. So in other words, as healthcare professionals, a lot of cannabis nurses, including myself, the traditional healthcare system has failed us in multiple ways. Not only were surgeries denied, medications were denied. I had to fight for my for surgical procedures, the mental health system-completely broken. Bottom line is that a lot of systems that we medical professionals, especially cannabis nurses have come from, we've come from broken systems, and so we want to make it better. And how do we make it better? We start in our communities by educating and then there's going to be a critical mass eventually. It's going to happen and I've already seen it ...now I'm getting phone calls from more doctors asking, "Hey, what's the green nurse?" "

Sherri's Links:

Green Nurse Group: https://www.greennursegroup.com/
Facebook: https://www.facebook.com/GreenNurseSherri
Instagram: https://www.instagram.com/sherri_tutkus/,

https://www.instagram.com/greennursegroup/
Twitter: https://twitter.com/Green_Nurses
LinkedIn: https://www.linkedin.com/in/sherri-tutkus-rn-bsn-912b7776/
Recent Articel: https://www.bizjournals.com/boston/news/2019/10/10/the-system-is-a-big-fat-failure-access-to-cannabis.html
Recent podcast appearance: http://www.theaddictionarypodcast.com/e/part-viii-of-cannachronicles-with-sherri-tutkus/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/27148269Tue, 12 May 2020 10:55:50 +0000Jill WoodworthSherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelors in Science and Nursing from...
In this episode, Sherri shares from the annals of intensely personal experience detailing how her entire life went from one of a busy full time nurse, working in hospitals in Boston, single mother of three to becoming completely bedridden, dependent on others for care. She states,

"I'm going to be a little bit transparent today. I think it'll be really helpful to talk from my own personal perspective in working with cannabinoid therapeutics and mental health in regards to my own mental health. So before I got sick in 2012 I had a history of migraines and ADHD-attention deficit disorder. Both of those were managed very well with medications, working full time as a nurse in the big teaching hospitals in Boston, three kids. I was highly functioning. When I took a hit from eating a bacteria while I was working I ended up in the intensive care unit, with a mega colon, an infectious disease, and it was really bad. So I got sick in 2012, took a hit to my gut. I went from high functioning to not functioning at all"

From here Sherri lays out the journey back and how a fellow nurse at a particularly low point after she'd been put on 16 pharmaceuticals and was "circling the drain of despair", encouraged her to try cannabis as medicine.

"I was on the other side of the bed, like in a really big bad way, all of a sudden I'm the patient and having to advocate for myself. So not only was it the physical issues that I had, but I also had to deal with the system, the system that I worked in, how is that going to affect my mental health and how are they going to take care of me? The trauma that I experienced from this illness is so overwhelming high functioning to not functioning, home- bed bound in the hospital- couldn't take care of my kids -could barely eat. I'm just gonna say it like it is explosive diarrhea, and nausea, vomiting, abdominal pain, pooping your pants in public. So you can see how literally I can talk about anything. From running around the block naked to talking about poop and stuff that comes out your bum. I was so mortified, horrified that I had this gastrointestinal illness that was debilitating, complete loss of control, it was horrible. And then the issues with eating and being able to take in food. So that spiraled into, mental health issues, the developing anxiety and the depression. And over time, I wasn't getting better. I had agoraphobia, I was afraid to leave."

And I'm going to tell you too, and this is the part of trauma that I'm...]]>2593alternativemedicine,cannabinoids,cannabis,c-diff,depression,despair,endocannabinoidsystem,greennurse,greennursegroup,healthcare,medical,medicalmarijuana,megacolon,mentalhealth,nurse,nursing,pharmaceuticals,polypharmacy,ptsd,traumafalsefullhttps://www.spreaker.com/episode/tsc-talks-special-episode-on-special-education-during-covid19-how-to-file-an-ocr-complaint-with-mike-robinson--26902824
Under A provision of the coronavirus relief package that passed at the end of March, Betsy DeVos had until Monday to recmmmend any additional waivers of federal education law to Congress. Already, states have been able to apply for waivers to skip annual tests and change how they spend certain federal education dollars. She issues no waivers.

NO STATE has been given the authority to NOT educate special education individuals in the same manner they would regular education individuals or to make the same allowances, as per the Individuals with Disabilities Education Act (IDEA).

https://edsource.org/2020/education-and-coronavirus-whats-the-latest/625119
Education and the coronavirus crisis: What’s the latest?

Under the federal Individuals With Disabilities Education Act, or IDEA, school districts must offer all students an equitable education or they are not supposed to offer it to any of them. Not many school systems have come up with a way to extend online learning and other critical services to the 7 million children with disabilities across the country. And some districts, because they cannot provide special education services at home, aren’t offering online instruction to any student. Now, there is tension between groups that advocate for these students — who each have an Individualized Education Program or IEP — and organizations that represent special education administrators. The advocates are demanding that school districts deliver education equitably, as the law requires, while administrators say they cannot do the same things they did when schools were open and need some flexibility.

Education Secretary Betsy DeVos won’t recommend giving school districts the option to bypass major parts of federal special education law, the department announced Monday. The move will be celebrated by disability rights advocates, who had feared that giving districts any wiggle room could pave the way for a more permanent undoing of civil rights for the country’s nearly 7 million students with disabilities.

https://www.chalkbeat.org/2020/4/27/21239124/no-special-education-waivers-betsy-devos-congress-recommendations-idea

To file a complaint with OCR: https://www2.ed.gov/about/offices/list/ocr/docs/howto.html
Questions: https://www2.ed.gov/about/offices/list/ocr/qa-complaints.html

Thank you Mike Robinson for your advocacy and education on this crucial action that can and should be taken by any and all for whom special education services have been stymied or non existent.

Mike's Links:
https://mikesmedicines.com
https://genevievesdream.com
https://globalcannabinoidrc.com
https://carouselchallenge.com

To contact Mike about the MILLION MILLIGRAM CBD GIVEAWAY: 50KREASONS@GMAIL.COM
For more information on "Mike Drops" stay tuned and check out https://tsctalks.com/tsc-talks-new-product/
For The Mike Drop on TSC Talks: https://tsctalks.com/special-contributor-mike-robinson/the-mike-drop/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/26902824Fri, 08 May 2020 12:32:41 +0000Jill WoodworthIn this powerful episode, Mike Robinson, Founder, Global Cannabinoid Research Center, Cancer Survivor, Cannabis Advocate AND former registered Civil Rights lobbyist and non attorney that represented countless disabled children, discusses what's...
Under A provision of the coronavirus relief package that passed at the end of March, Betsy DeVos had until Monday to recmmmend any additional waivers of federal education law to Congress. Already, states have been able to apply for waivers to skip annual tests and change how they spend certain federal education dollars. She issues no waivers.

NO STATE has been given the authority to NOT educate special education individuals in the same manner they would regular education individuals or to make the same allowances, as per the Individuals with Disabilities Education Act (IDEA).

https://edsource.org/2020/education-and-coronavirus-whats-the-latest/625119
Education and the coronavirus crisis: What’s the latest?

Under the federal Individuals With Disabilities Education Act, or IDEA, school districts must offer all students an equitable education or they are not supposed to offer it to any of them. Not many school systems have come up with a way to extend online learning and other critical services to the 7 million children with disabilities across the country. And some districts, because they cannot provide special education services at home, aren’t offering online instruction to any student. Now, there is tension between groups that advocate for these students — who each have an Individualized Education Program or IEP — and organizations that represent special education administrators. The advocates are demanding that school districts deliver education equitably, as the law requires, while administrators say they cannot do the same things they did when schools were open and need some flexibility.

Education Secretary Betsy DeVos won’t recommend giving school districts the option to bypass major parts of federal special education law, the department announced Monday. The move will be celebrated by disability rights advocates, who had feared that giving districts any wiggle room could pave the way for a more permanent undoing of civil rights for the country’s nearly 7 million students with disabilities.

https://www.chalkbeat.org/2020/4/27/21239124/no-special-education-waivers-betsy-devos-congress-recommendations-idea

To file a complaint with OCR: https://www2.ed.gov/about/offices/list/ocr/docs/howto.html
Questions: https://www2.ed.gov/about/offices/list/ocr/qa-complaints.html

Thank you Mike Robinson for your advocacy and education on this crucial action that can and should be taken by any and all for whom special education services have been stymied or non existent.

Mike's Links:
https://mikesmedicines.com
https://genevievesdream.com
https://globalcannabinoidrc.com
https://carouselchallenge.com

To contact Mike about the MILLION MILLIGRAM CBD GIVEAWAY: 50KREASONS@GMAIL.COM
For more information on "Mike Drops" stay tuned and...]]>2517accomodations,autism,cannabis,cbd,cbdoil,civilrights,coronavirus,covid19,disabilities,education,epilepsy,fape,idea,iep,intellectualdisabilities,officeofcivilrights,specialeducation,specialneeds,tscfalsefullhttps://www.spreaker.com/episode/tsc-talks-addiction-is-not-a-disease-with-marc-d-lewis-ph-d-neuroscientist-professor-emeritus-author--26510776
I had the honor and pleasure of interviewing Marc. D. Lewis on TSC Talks to discuss his life and work with the focus of the conversation on how he developed his understanding of addiction, and how he debunked the more traditional theory that addiction is indeed a disease. Marc is a neuroscientist, recently retired full professor of developmental psychology, at the University of Toronto from 1989 to 2010, and at Radboud University in the Netherlands from 2010 to 2016. He is the author or co-author of over 50 journal publications in psychology, cognitive science, and neuroscience, editor of an academic book on developmental psychology, and co-author of a book for parents. More recently he has written two books on the science and experience of addiction.

I heard Marc on a podcast several years ago after reading his blog, https://memoirsofanaddictedbrain.com. I was a few years into recovery from substance abuse addiction and struggling with many of the traditional modes of treatment. As a parent of children with some extra challenges case managing their TSC related care post-divorce, I was buoyed when I heard Marc discussing his 2nd book, The Biology of Desire, Why Addiction is Not a Disease (2015)which claims “the scientific facts don’t support the disease model of addiction. Rather, addiction, like romantic love and other emotionally loaded habits, develops through deep learning and limited alternatives. Combining scientific views with intimate biographies of addicts who recovered, the book also shows how addiction can be overcome, through self-directed change in one’s goals and perspectives.”

Having felt more validated in my own personal experience knowing that there were multiple factors personally at play that led to my own demise, I went and started reading more of his blog and research. Viewing myself as victim of a disease while at the same time having to maintain a somewhat subservient stance to wrangle the services necessary to help our family recover from years of ongoing traumas, was almost too much to bear. I simply could not accept the idea that I had a disease and as I chose to navigate away from that model of understanding, including delving into cannabinoid medicine, I was finally able to intimately integrate past present and future in a way that I could truly climb out of many self-limiting beliefs reinforced by this notion. Clinging to the disease model of addiction was limiting and I have to say, Marc’s work has made a tangible impact on my own and so many others who have had less than typical experiences for which the confines of traditional recovery methods led to deeper despair and frustration. I’m including a bit more information from Marc’s bio along with some quotes that highlight might be helpful and lead you to download and/or at least listen to this fabulous chat.

Beginning during his undergraduate years in Berkeley, California, Marc experimented with a large variety of drugs, eventually becoming addicted to opiates. He moved to Toronto in 1976 and began to study psychology at the University of Toronto, but at the same time encountered serious personal and legal troubles resulting from his addiction. After quitting drugs at age 30, he continued his graduate education in developmental psychology. He received a Ph.D. and license to practice psychology in 1989, and he was appointed to the position of assistant professor the same year.

Around 2006, Marc’s research led him back to addiction, this time as a neuroscientist studying the brain changes that accompany addiction and recovery. His 2011 book, Memoirs of an Addicted Brain, blends his life story with a user-friendly account of how drugs (from LSD and alcohol to speed and heroin) affect the brain and how alterations in brain function help explain addiction.
His more recent book is The Biology of Desire: Why Addiction is Not a Disease (2015), and it has stirred controversy among people with addictions, their families, addiction researchers, and treatment providers.”

“The fact is that we in the West embrace the logic of pigeonholing problems, giving them unique names and finding technical solutions-the more targeted the better-for alleviating them. That is, to a T, the logic of Western medicine.”

We also discussed the impact of social distancing and quarantine measures on those that might be struggling with addiction during this global pandemic. Please note Marc’s links to social media as well as multiple articles, videos that might be helpful and illuminating for anyone currently struggling.

“What often goes together with addiction is a kind of narrowing of the social world, you get your needs for soothing and satisfaction or pleasure from a substance. You do not need to connect as much. So, the social world kind of shrinks around you. And before long, you kind of lose the opportunity, you lose the availability of other people, you lose friends, you lose family, you kind of, you know, you kind of bury yourself in a little hole in the ground, where you have your substance and you have maybe a couple of other people around you that also are involved in substances That's it. The Coronavirus also is pushing us to burrow into a shrinking environment. We are sitting there at home by ourselves. And people are just losing even more the opportunity to connect outside of themselves, to extend their, their social web and to extend their possible the availability of getting your needs met by other people and other activities. So that in itself, I think is just the built-in hardship of this lockdown phase that we're in.”

If you or a loved one or anyone in your circles is feeling at risk and struggling with mental health issues, please don’t hesitate to call National Suicide Prevention Lifeline https://suicidepreventionlifeline.org/ 1-800-273-8255.

Marc’s links are as follows:

Website: https://memoirsofanaddictedbrain.com YouTube: https://www.youtube.com/channel/UCQvHfB1Kg4zStk5YwMYWH9Q Wikipedia: https://en.wikipedia.org/wiki/Marc_David_Lewis ResearchGate: https://www.researchgate.net/profile/Marc_Lewis3 The Guardian: https://www.theguardian.com/culture/2015/aug/30/marc-lewis-the-neuroscientist-who-believes-addiction-is-not-a-disease
Videos that are awesome! https://youtu.be/aOSD9rTVuWc Addiction and Trust: https://www.youtube.com/watch?v=e3p_LuTM73k With Dalai Lama: https://www.youtube.com/watch?v=WZgx-6GOBAs
Order His Books!:
https://www.memoirsofanaddictedbrain.com/buy-biology-of-desire/
https://www.memoirsofanaddictedbrain.com/buy-it/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/26510776Fri, 01 May 2020 19:07:09 +0000Jill Woodworth“If we are to understand anything so complex and troubling as addiction, we need to gaze directly at the point where experience and biology meet. Because that’s the bottleneck, the linchpin, where human affairs are cast and crystallized. That’s where...
I had the honor and pleasure of interviewing Marc. D. Lewis on TSC Talks to discuss his life and work with the focus of the conversation on how he developed his understanding of addiction, and how he debunked the more traditional theory that addiction is indeed a disease. Marc is a neuroscientist, recently retired full professor of developmental psychology, at the University of Toronto from 1989 to 2010, and at Radboud University in the Netherlands from 2010 to 2016. He is the author or co-author of over 50 journal publications in psychology, cognitive science, and neuroscience, editor of an academic book on developmental psychology, and co-author of a book for parents. More recently he has written two books on the science and experience of addiction.

I heard Marc on a podcast several years ago after reading his blog, https://memoirsofanaddictedbrain.com. I was a few years into recovery from substance abuse addiction and struggling with many of the traditional modes of treatment. As a parent of children with some extra challenges case managing their TSC related care post-divorce, I was buoyed when I heard Marc discussing his 2nd book, The Biology of Desire, Why Addiction is Not a Disease (2015)which claims “the scientific facts don’t support the disease model of addiction. Rather, addiction, like romantic love and other emotionally loaded habits, develops through deep learning and limited alternatives. Combining scientific views with intimate biographies of addicts who recovered, the book also shows how addiction can be overcome, through self-directed change in one’s goals and perspectives.”

Having felt more validated in my own personal experience knowing that there were multiple factors personally at play that led to my own demise, I went and started reading more of his blog and research. Viewing myself as victim of a disease while at the same time having to maintain a somewhat subservient stance to wrangle the services necessary to help our family recover from years of ongoing traumas, was almost too much to bear. I simply could not accept the idea that I had a disease and as I chose to navigate away from that model of understanding, including delving into cannabinoid medicine, I was finally able to intimately integrate past present and future in a way that I could truly climb out of many self-limiting beliefs reinforced by this notion. Clinging to the disease model of addiction was limiting and I have to say, Marc’s work has made a tangible impact on my own and so many others who have had less than typical experiences for which the confines of traditional recovery methods led to deeper despair and frustration. I’m including a bit more information from Marc’s bio along with some quotes that highlight might be helpful and lead you to download and/or at least listen to this fabulous chat.

Beginning during his undergraduate years in Berkeley, California, Marc experimented with a large variety of drugs, eventually becoming addicted to opiates. He moved to Toronto in 1976 and began to study psychology at the University of Toronto, but at the same time encountered serious personal and legal troubles resulting from his addiction. After quitting drugs at age 30, he continued his graduate education in developmental psychology. He received a Ph.D. and license to practice psychology in 1989, and he was appointed to the position of assistant professor the same year.

Around 2006, Marc’s research led him back to addiction, this time as a neuroscientist studying the brain changes that...]]>2469addiction,alcoholic,author,coronavirus,covid19,drugs,harmreduction,heroin,mentalhealth,neuroscience,neuroscientist,opiates,psychologist,psychology,ptsd,recovery,sobriety,stimulants,substancesfalsefullhttps://www.spreaker.com/episode/tsc-talks-what-is-truth-on-vaccine-injury-with-leigh-carr-r-n-b-s-n-special-needs-mom-cannabis-nurse--26024222https://hariomhemp.com/

Leigh shares the experience she had with her son who stopped talking, stopped walking correctly, he kept falling over, he stopped eating the foods he loved, and his behavior completely and radically changed following his 15 month vaccines. Leigh followed the pediatrician’s recommendations, sought various therapies, many not covered by insurance and continued to hope that her son would start to improve. That did not happen despite brush offs from her doctor who kept telling Leigh, that “he is a boy and boys are different”. Finally, at the end of her rope, she began to dig deeper and do her own research which led this nurse, extensively trained in traditional medicine, to question everything she had been taught. Leigh has had the lived experience working in traditional medicine, spent time doing pharmaceutical research, and worked in an ER for quite a while Her last bedside nursing job was at a very prestigious hospital in the Kansas City area in a pediatric unit, doing well child visits for an entire year and was trained on vaccines. I am sharing Leigh’s Facebook post from March 31st, 2020, the 5 year anniversary of her son receiving his 15 month vaccinations here and following this post is a list of resources that can be found publicly related to vaccines and topics mentioned in our interview. I am glad to report that after breaking away from traditional medicine, Leigh found a combination of treatments and therapies in the alternative medicine that have helped her son significantly. At his last IEP meeting she reported that he no longer qualifies for any services but speech!

Leigh wants to emphasize, “this is not to attack those that do vaccinate and not to attack me who I have chosen not to continue to vaccinate mine for medical reasons. This is a post to hopefully wake a few people up to the harmful dangers of vaccines. Please don’t find out your child has the MTHFR gene mutation the way I did. Do your homework and make sure you have informed consent and ask for the vaccine insert the next time you are at your pediatrician's office and look at this list of side effects, again another thing I was not shown nor taught in nursing school.”

“Thank you to all those who wished me a Happy Birthday yesterday but this birthday was different for me this year. Yesterday I was reminded in my timehop of the day that will permanently be in my head forever. I’ve thought about how I would say this a million times but it never gets easier to tell a story that has caused you so much pain and suffering. On March 31st of 2016 5 years ago my husband and I took our son into his WELL child visit for his 15 months vaccines, little did I know that this would be the beginning of a really long road ahead of us.

Within 3 months after my son’s vaccines he stopped talking words he knew how to communicate simple words like dog, hi and bye, he stopped eating foods he loved and would request, his balance became weak and he would fall over all the time.

What unfolded over the next two years was mind boggling and I will not go into detail how many doctors we saw and how much money we spent on out of pocket therapies but it was 5 figures.
There were two times I went to the pediatrician telling him that something was wrong and different with my child and both times I was told he is just a boy and that boys are hyper and are picky eaters. Well he was wrong. My son was not a picky eater prior to his 15 month vaccines and he was the sweetest kindest most loving little boy.

As a mother and a nurse I dug deeper for answers, scientific answers because that is my training to look at double blind placebo studies and credible sources.. I wanted to know why my son had 8 ear infections within one year after his 15 month vaccines and why he no longer could talk and why we were in speech therapy and still are to this day. What I have uncovered since keeps me awake at night, makes me question all my training that I had as a nurse and how we were taught and drilled in our heads that vaccines are safe and effective. I went on to find out that Vaccines were anything but that and have not been studied for the last 30 year and that all manufacturers are protected from any law suits. Had they been safe I would not be where I am today telling the story I am. Not only have they not been studied but do yourself a favor and take a look at the ingredients in them. Your mind will be blown just like mine, again not something we are ever taught about in nursing school nor during my training on vaccines at a pediatric office (a very well known and prestigious one).

This post is not to attack those that do vaccinate and not to attack me who I have chosen not to continue to vaccinate mine for medical reasons. This is a post to hopefully wake a few people up to the harmful dangers of vaccines. Please don’t find out your child has the MTHFR gene mutation the way I did. Do your homework and make sure you have informed consent and ask for the vaccine insert the next time you are at your pediatrician's office and look at this list of side effects, again another thing I was not shown nor taught in nursing school.

I wish you all the best and want nothing more than to see children succeeding in schools and free of pharmaceuticals. If you are someone you know resonate with this post please reach out. I am here to talk, here to listen, here to help, my ears and arms are open. There is so much more to our story and I plan to share it with you all. Nolan has been on a long road to healing his injury and we are so hopeful in his healing journey. We actually even had his IEP meeting this week and were told he no longer qualifies for any services but SPEECH! This is amazing and we are so excited by the leaps and bounds he is making and cannot wait till the day that we can say he is healed! Hari Om” ( Hari Om is a famous Sanskrit mantra thought to erase all suffering. It allows the individual speaking it to remove their personal suffering and reconnect with the universal consciousness. Hari means "the remover" and refers to the one who removes troubles, blockages, pain and bondages.) https://www.yogapedia.com/definition/7560/hari-om

Resources:

Ingredients.
1. https://www.cdc.gov/vaccines/pubs/pinkbook/downloads/appendices/B/excipient-table-2.pdf

2. Compensation for vaccine injury to date: $4,297,913,380.97 and counting...
https://www.hrsa.gov/vaccine-compensation/data/index.html

3. VAERS site for vaccine injury.
https://vaers.hhs.gov

4. Stipulated Order Proving CDC Has No Studies To Support Claim That Vaccines Given in First 6 Months of Life Do Not Cause Autism https://www.icandecide.org/wp-content/uploads/2020/03/Stipulation-and-Order-Fully-Executed.pdf

5. HHS lawsuit that shows no safety studies have been conducted on vaccines for 32 years.
http://icandecide.org/government/ICAN-HHS-Stipulated-Order-July-2018.pdf

6. 1986 National Childhood Vaccine Injury Act that shields vaccine manufacturers from liability.https://www.congress.gov/bill/99th-congress/house-bill/5546

7. Supreme Court rules vaccines,
“unavoidably unsafe.” https://www.supremecourt.gov/opinions/10pdf/09-152.pdf

8. Stipulated Order Confirming Non-Compliance With 42 USC 300AA-27C https://www.icandecide.org/wp-content/uploads/2019/09/Stipulated-Order-copy-1.pdf

9. The Health Resources and Services Administration Vaccine Injury Table https://www.hrsa.gov/sites/default/files/vaccinecompensation/vaccineinjurytable.pdf

10. Stipulated Order Showing FDA’s Off-Label Use of Vaccines During Pregnancy https://www.icandecide.org/wp-content/uploads/2019/11/ICAN-v-FDA-Resolved-Court-Filed-Copy-Copy.pdf

11. Stipulated Order Confirming Non-Compliance With 42 USC 300AA-27C https://www.icandecide.org/wp-content/uploads/2019/09/Stipulated-Order-copy-1.pdf

Leigh’s links:
https://www.linkedin.com/in/leigh-zarda-carr-bsn-rn-895a8113/
https://www.facebook.com/leigh.zarda
https://www.facebook.com/hariomhemp/
https://www.instagram.com/holisticmamacarr/
https://www.instagram.com/hariomhemp/
https://mogreenway.com/2019/05/15/women-to-watch-leigh-zarda-carr/
http://evolution-mag.com/about-us
https://www.greenwaymo.com/2020/03/hari-om-hemp-most-creative-cbd-company/
https://www.proathleteinc.com/blog/2019/7/3/speaker-series-recap-hari-om-hemp

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/26024222Sat, 25 Apr 2020 12:48:00 +0000Jill WoodworthLeigh Zarda Carr, R.N., BSN, is a mother of 2, business owner, Chairman of the Board of Directors at Bleeding Kansas Advocates, Contributing Writer at The Evolution Magazine and Cannabis Nurse Consultant at Kansas City Cannabis Company. The name of...https://hariomhemp.com/

Leigh shares the experience she had with her son who stopped talking, stopped walking correctly, he kept falling over, he stopped eating the foods he loved, and his behavior completely and radically changed following his 15 month vaccines. Leigh followed the pediatrician’s recommendations, sought various therapies, many not covered by insurance and continued to hope that her son would start to improve. That did not happen despite brush offs from her doctor who kept telling Leigh, that “he is a boy and boys are different”. Finally, at the end of her rope, she began to dig deeper and do her own research which led this nurse, extensively trained in traditional medicine, to question everything she had been taught. Leigh has had the lived experience working in traditional medicine, spent time doing pharmaceutical research, and worked in an ER for quite a while Her last bedside nursing job was at a very prestigious hospital in the Kansas City area in a pediatric unit, doing well child visits for an entire year and was trained on vaccines. I am sharing Leigh’s Facebook post from March 31st, 2020, the 5 year anniversary of her son receiving his 15 month vaccinations here and following this post is a list of resources that can be found publicly related to vaccines and topics mentioned in our interview. I am glad to report that after breaking away from traditional medicine, Leigh found a combination of treatments and therapies in the alternative medicine that have helped her son significantly. At his last IEP meeting she reported that he no longer qualifies for any services but speech!

Leigh wants to emphasize, “this is not to attack those that do vaccinate and not to attack me who I have chosen not to continue to vaccinate mine for medical reasons. This is a post to hopefully wake a few people up to the harmful dangers of vaccines. Please don’t find out your child has the MTHFR gene mutation the way I did. Do your homework and make sure you have informed consent and ask for the vaccine insert the next time you are at your pediatrician's office and look at this list of side effects, again another thing I was not shown nor taught in nursing school.”

“Thank you to all those who wished me a Happy Birthday yesterday but this birthday was different for me this year. Yesterday I was reminded in my timehop of the day that will permanently be in my head forever. I’ve thought about how I would say this a million times but it never gets easier to tell a story that has caused you so much pain and suffering. On March 31st of 2016 5 years ago my husband and I took our son into his WELL child visit for his 15 months vaccines, little did I know that this would be the beginning of a really long road ahead of us.

Within 3 months after my son’s vaccines he stopped talking words he knew how to communicate simple words like dog, hi and bye, he stopped eating foods he loved and would request, his balance became weak and he would fall over all the time.

What unfolded over the next two years was mind boggling and I will not go into detail how many doctors we saw and how much money we spent on out of pocket therapies but it was 5 figures.
There were two times I went to the pediatrician telling him that...]]>1977alternativemedicine,cbd,chiropracter,family,geneticmutation,hariom,hemp,holistic,kansas,mentalhealth,mthfr,nurse,nursing,parenting,pediatrician,speechdelay,speechtherapy,truth,vaccineinjury,vaccinesfalsefullhttps://www.spreaker.com/episode/tsc-talks-a-420-compilation-with-sherri-tutkus-keith-stroup-nikki-lawley-and-mike-robinson--25811835
First up is Sherri Tutkus, RN, BSN~Founder and CEO of GreenNurse Group, Medical Director of Irie Bliss Wellness and host of GreenNurse on the Go Radio Show.

1. Sherri is a cannabis nurse, patient and advocate. Sherri earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients homes and she regularly does pop up events and expos.

Sherri is a member of the American Cannabis Nurses Association and the Cannabis Nurses Network and she brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool. https://greennursegroup.com
Shari's episode on TSC Talks: https://tsctalks.com/sherri-tutkus/

2. Keith Stroup, Mr. Keith Stroup is a Washington, DC public-interest attorney who founded NORML in 1970. Stroup obtained his undergraduate degree in political science from the University of Illinois in 1965, and in 1968 he graduated from Georgetown Law School in Washington, DC. Following two years as staff counsel for the National Commission on Product Safety, Mr. Stroup founded NORML and ran the organization through 1979, during which 11 states decriminalized minor marijuana offenses.

Stroup has also practiced criminal law, lobbied on Capitol Hill for family farmers and artists, and for several years served as executive director of the National Association of Criminal Defense Lawyers (NACDL). https://norml.org
Keith's episode on TSC Talks: https://tsctalks.com/tsc-talks-guest-keith-stroup/

3. Nikki Lawley~Nikki Lawley, Cannabis Advocate and Educator

Traumatic brain injury stole my joy, but cannabis returned it.

Nikki, a NY state resident, has always been a proud and diligent worker. She’s served as an HVAC filtration salesperson, later starting her own company, then as a casino dealer, and most recently, as a pediatric nurse. She had suffered two traumatic brain injuries during her younger years, but it was the third TBI that suddenly changed everything. In a heartbeat, her life changed from one of optimism, vibrancy, enthusiasm, confidence, and extroversion, to one of constant pain, withdrawal, depression, and hopelessness.

While trying to help administer a routine vaccine to a young boy, Nikki was thrown against the wall, suffering a significant TBI and cervical instability in the process. Nikki’s TBI has caused cognitive deficiencies, confusion, memory loss, anxiety, and pain. She found herself unable to work, unable to interact with others, and in a very dark place. None of the numerous traditional medications she’s tried helped, and if fact, their ghastly side effects left her even worse off.

She had long since reached the end of her rope, when, on a whim, figuring she had nothing more to lose, she turned to cannabis. https://linktr.ee/Nikkilawley
Nikki's episode on TSC Talks: https://tsctalks.com/tsc-talks-guest-nikki-lawley/

4. Mike Robinson~Mike Robinson, the founder of the Global Cannabinoid Research
Center in Santa Barbara California, is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for Severe epilepsy, Chronic Lyme Disease, PTSD, and in pain management. Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was International Relations and Diplomacy. Robinson has an extensive history of leading a large compassion program that provided countless disadvantaged cannabis patients with various alternative protocol treatments, is a published journalist and international cannabinoid research specialist, is a former registered Civil Rights lobbyist and non attorney that represented countless disabled children pro bono nationwide for over 2 decades. He’s a past board member of Big Brothers and Sisters, the founder of multiple non profits for disabled children, and is well known for adopting a severely disabled child, Genevieve, from the compassion program he once ran.

Read Genevieve’s Journey in High Times: https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://mikesmedicines.com, https://globalcannabinoidrc.com, https://genevievesdream.com, https://carouselchallenge.com

Thanks for listening! If you liked what you heard, please write us a review on any of the following platforms:
https://www.facebook.com/pg/tsctalks/reviews/
https://podcasts.apple.com/us/podcast/tsc-talks/id1438344290

Utilize medication and stay medicated :)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/25811835Mon, 20 Apr 2020 19:30:49 +0000Jill WoodworthIn this Special Edition 420 Compilation, we share some favorite audio clips from several of our past guests on the 20th of April, 2020! First up is Sherri Tutkus, RN, BSN~Founder and CEO of GreenNurse Group, Medical Director of Irie Bliss Wellness...
First up is Sherri Tutkus, RN, BSN~Founder and CEO of GreenNurse Group, Medical Director of Irie Bliss Wellness and host of GreenNurse on the Go Radio Show.

1. Sherri is a cannabis nurse, patient and advocate. Sherri earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients homes and she regularly does pop up events and expos.

Sherri is a member of the American Cannabis Nurses Association and the Cannabis Nurses Network and she brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool. https://greennursegroup.com
Shari's episode on TSC Talks: https://tsctalks.com/sherri-tutkus/

2. Keith Stroup, Mr. Keith Stroup is a Washington, DC public-interest attorney who founded NORML in 1970. Stroup obtained his undergraduate degree in political science from the University of Illinois in 1965, and in 1968 he graduated from Georgetown Law School in Washington, DC. Following two years as staff counsel for the National Commission on Product Safety, Mr. Stroup founded NORML and ran the organization through 1979, during which 11 states decriminalized minor marijuana offenses.

Stroup has also practiced criminal law, lobbied on Capitol Hill for family farmers and artists, and for several years served as executive director of the National Association of Criminal Defense Lawyers (NACDL). https://norml.org
Keith's episode on TSC Talks: https://tsctalks.com/tsc-talks-guest-keith-stroup/

3. Nikki Lawley~Nikki Lawley, Cannabis Advocate and Educator

Traumatic brain injury stole my joy, but cannabis returned it.

Nikki, a NY state resident, has always been a proud and diligent worker. She’s served as an HVAC filtration salesperson, later starting her own company, then as a casino dealer, and most recently, as a pediatric nurse. She had suffered two traumatic brain injuries during her younger years, but it was the third TBI that suddenly changed everything. In a heartbeat, her life changed from one of optimism, vibrancy, enthusiasm, confidence, and extroversion, to one of constant pain, withdrawal, depression, and hopelessness.

While trying to help administer a routine vaccine to a young boy, Nikki was thrown against the wall, suffering a significant TBI and cervical instability in the process. Nikki’s TBI has caused cognitive deficiencies, confusion, memory loss, anxiety, and pain. She found herself unable to work, unable to interact with others, and in a very dark place. None of the numerous traditional medications she’s tried helped, and if fact, their ghastly side effects left her even worse off.

She had long since reached the end of her rope, when, on a whim, figuring she had nothing more to lose, she turned to cannabis. https://linktr.ee/Nikkilawley
Nikki's episode on TSC Talks: 1421420,bofs,cannabinoidmedicine,cannabinoids,cannabis,cannabisforautism,coronavirus,fourtwenty,genevievesdream,greennursegroup,headtrauma,marijuana,medicalcannabis,medicalmarijuana,mentalhealth,norml,ptsd,tbi,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-state-of-relationships-special-needs-a-conversation-with-j-d-brigham-partner-bf-to-jill-woodworth-host--25643670
John or JD as they know him in Newport, Vermont, where he was born, is a man of few- but carefully chosen words. A highly skilled programmer in the medical/healthcare industry, he also recently worked as a technology teacher at Stetson School in Barre, MA, a school for behaviorally challenged young boys/men. Harnessing the life lessons learned early from growing up in a large family with working parents who passed on a depth of inner wisdom, perseverance, and commitment that John has tapped and utilized well to help "crack the code" of my offspring's TSC associated neuropsychiatric disorders (TAND) and many other challenges that are inevitable in any relationship where there's more than just two people involved, but particularly one where several children have issues that fall outside of the margins of typical. Oh and John also loves skiing, football, and Animé😊. With much gratitude and love

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/25643670Fri, 17 Apr 2020 12:45:08 +0000Jill WoodworthA frank discussion with John D. Brigham partner/boyfriend of the host of TSC Talks, Jill Woodworth on his experience moving in with our family dealing with extreme circumstances TSC related, trauma-related. How we made it work and how we're coping...
John or JD as they know him in Newport, Vermont, where he was born, is a man of few- but carefully chosen words. A highly skilled programmer in the medical/healthcare industry, he also recently worked as a technology teacher at Stetson School in Barre, MA, a school for behaviorally challenged young boys/men. Harnessing the life lessons learned early from growing up in a large family with working parents who passed on a depth of inner wisdom, perseverance, and commitment that John has tapped and utilized well to help "crack the code" of my offspring's TSC associated neuropsychiatric disorders (TAND) and many other challenges that are inevitable in any relationship where there's more than just two people involved, but particularly one where several children have issues that fall outside of the margins of typical. Oh and John also loves skiing, football, and Animé😊. With much gratitude and love

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1483autism,behaviors,cannabis,coping,covid19,divorce,endocannabinoidsystem,epilepsy,family,livedexperience,love,medical,neurological,parenting,programmer,relationships,tand,tsc,tuberoussclerosiscomplex,vermontfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-2-a-rock-and-a-hard-place-jadyn-s-journey-with-liz-minda-r-n-mike-robinson-founder-global-cannabinoid-research-center--25284912
Liz’s daughter had no further seizures until she was 4. When the seizures came back, they were severe grand mal status epilepticus seizures. Liz hesitated to medicate her daughter because as an RN, she was aware of the difficulty of finding an effective medicine as well as the myriad of side effects anti-seizure meds can cause. When the seizures continued, they eventually started meds which began a cycle of seizures increasing in both frequency and duration. In addition to meds, they put the child on the ketogenic diet. The grueling regimen did not help her seizure activity. Liz was desperate after even the rescue med Diastat began to fail to control the seizures.
Liz got her daughter into the Epidiolex study at Mass General and her daughter’s seizures diminished for a few months, but they returned. When the seizures started again, doctors increased her pharmaceuticals which restarted the med, seizure pattern. Liz grew frustrated with the medical establishment who seemed determined to throw prescription after prescription at them at great financial, physical and emotional cost. She found a neuro-epileptologist who helped her begin weaning her daughter from some of the prescription meds and helped her transition to Charlotte’s Web.

Liz connected with Mike Robinson online and Mike and others in the Compassionate Cannabis world assisted Liz in finding a balanced cannabinoid medicine that worked for her daughter. Mike and Liz discuss Epidiolex and the pharmaceutical interactions which do not seem to be compensated for when using that med. Liver issues can be serious when Epidiolex or any type of CBD is combined with certain medications. Mike shares, “Even though we were using the Charlotte's Web, Charlotte's Web wasn't enough to help us get off. We needed something stronger. We needed the Rick Simpson oil or full extract cannabis oil to get her off. Because we only had you know, once you get down to the miniscule doses of the pharmaceuticals, now you're really up against you know, fighting seizures, because you go with a really slow business and that's pretty much where we've stepped in, you know, it's right with the actual compassion provision.”

Both Mike and Liz believe vaccine injury is real. We ask you to keep an open mind while listening. Before you form an opinion, walk a mile with Liz and Mike, hear their stories and then decide. Liz comments, “and then people say, vaccines don't cause autism? Yes, they do, and here's why. When the brain heats up and you get a fever, you've got brain on fire” and she believes that “brain on fire” condition causes both seizures and autism.

TSC Talks is not pro or anti vaccine but believes each parent should make the decision they believe is best for their child.

Liz’s Links:
https://en.wikipedia.org/wiki/Brain_on_Fire
LinkedIn: https://www.linkedin.com/in/liz-minda-98b9b1126/
Facebook: https://www.facebook.com/profile.php?id=100011148612874
https://www.mikesmedicines.com/medical-marijuana/liz-minda-and-her-fight-for-jadyn-cannabis-for-epilepsy/
https://herb.co/news/health/rhode-island-cbd-school-minda/
https://digboston.com/medical-cannabis-special-treating-yourself/
https://www.wpri.com/news/special-reports/family-fights-to-change-law-says-medical-cannabis-should-be-administered-in-school/

Mike’s Links:
https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/25284912Sat, 11 Apr 2020 11:02:03 +0000Jill WoodworthIn Part 2 of this episode of TSC Talks, I spoke to Liz Minda, RN and Mike Robinson, former TSC Talks guest, drops in for the second half of our conversation. Liz has three children, one of whom has significant special needs and issues related to...
Liz’s daughter had no further seizures until she was 4. When the seizures came back, they were severe grand mal status epilepticus seizures. Liz hesitated to medicate her daughter because as an RN, she was aware of the difficulty of finding an effective medicine as well as the myriad of side effects anti-seizure meds can cause. When the seizures continued, they eventually started meds which began a cycle of seizures increasing in both frequency and duration. In addition to meds, they put the child on the ketogenic diet. The grueling regimen did not help her seizure activity. Liz was desperate after even the rescue med Diastat began to fail to control the seizures.
Liz got her daughter into the Epidiolex study at Mass General and her daughter’s seizures diminished for a few months, but they returned. When the seizures started again, doctors increased her pharmaceuticals which restarted the med, seizure pattern. Liz grew frustrated with the medical establishment who seemed determined to throw prescription after prescription at them at great financial, physical and emotional cost. She found a neuro-epileptologist who helped her begin weaning her daughter from some of the prescription meds and helped her transition to Charlotte’s Web.

Liz connected with Mike Robinson online and Mike and others in the Compassionate Cannabis world assisted Liz in finding a balanced cannabinoid medicine that worked for her daughter. Mike and Liz discuss Epidiolex and the pharmaceutical interactions which do not seem to be compensated for when using that med. Liver issues can be serious when Epidiolex or any type of CBD is combined with certain medications. Mike shares, “Even though we were using the Charlotte's Web, Charlotte's Web wasn't enough to help us get off. We needed something stronger. We needed the Rick Simpson oil or full extract cannabis oil to get her off. Because we only had you know, once you get down to the miniscule doses of the pharmaceuticals, now you're really up against you know, fighting seizures, because you go with a really slow business and that's pretty much where we've stepped in, you know, it's right with the actual compassion provision.”

Both Mike and Liz believe vaccine injury is real. We ask you to keep an open mind while listening. Before you form an opinion, walk a mile with Liz and Mike, hear their stories and then decide. Liz comments, “and then people say, vaccines don't cause autism? Yes, they do, and here's why. When the brain heats up and you get a fever, you've got brain on fire” and she believes that “brain on fire” condition causes both seizures and autism.

TSC Talks is not pro or anti vaccine but believes each parent should make the decision they believe is best for their child.

Liz’s Links:
https://en.wikipedia.org/wiki/Brain_on_Fire
LinkedIn: https://www.linkedin.com/in/liz-minda-98b9b1126/
Facebook: 2841alternativemedicine,autism,cannabinoids,cannabis,cbd,charlottefigi,charlottesweb,coronavirus,covid19,endocannabinoidsystem,epidiolex,epilepsy,epilepsyawareness,medicalmarijuana,nurse,pharmaceuticals,rhodeisland,seizures,thc,vaccinesfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-1-a-rock-and-a-hard-place-jadyn-s-journey-with-epilepsy-more-with-liz-minda-r-n--25168457
Liz’s daughter had no further seizures until she was 4. When the seizures came back, they were severe grand mal status epilepticus seizures. Liz hesitated to medicate her daughter because as an RN, she was aware of the difficulty of finding an effective medicine as well as the myriad of side effects anti-seizure meds can cause. When the seizures continued, they eventually started meds which began a cycle of seizures increasing in both frequency and duration. In addition to meds, they put the child on the ketogenic diet. The grueling regimen did not help her seizure activity. Liz was desperate after even the rescue med Diastat began to fail to control the seizures.

Liz got her daughter into the Epidiolex study at Mass General and her daughter’s seizures diminished for a few months, but they returned. When the seizures started again, doctors increased her pharmaceuticals which restarted the med, seizure pattern. Liz grew frustrated with the medical establishment who seemed determined to throw prescription after prescription at them at great financial, physical and emotional cost. She found a neuro-epileptologist who helped her begin weaning her daughter from some of the prescription meds and helped her transition to Charlotte’s Web.

Liz connected with Mike Robinson online and Mike and others in the Compassionate Cannabis world assisted Liz in finding a balanced cannabinoid medicine that worked for her daughter. Mike and Liz discuss Epidiolex and the pharmaceutical interactions which do not seem to be compensated for when using that med. Liver issues can be serious when Epidiolex or any type of CBD is combined with certain medications. Mike shares, “Even though we were using the Charlotte's Web, Charlotte's Web wasn't enough to help us get off. We needed something stronger. We needed the Rick Simpson oil or full extract cannabis oil to get her off. Because we only had you know, once you get down to the miniscule doses of the pharmaceuticals, now you're really up against you know, fighting seizures, because you go with a really slow business and that's pretty much where we've stepped in, you know, it's right with the actual compassion provision.”

Both Mike and Liz believe vaccine injury is real. We ask you to keep an open mind while listening. Before you form an opinion, walk a mile with Liz and Mike, hear their stories and then decide. Liz comments, “and then people say, vaccines don't cause autism? Yes, they do, and here's why. When the brain heats up and you get a fever, you've got brain on fire” and she believes that “brain on fire” condition causes both seizures and autism.

TSC Talks is presenting this narrative and these views do not necessarily represent the views of TSC Talks. We are encouraging you as listeners, to "walk a mile" in Liz's shoes and understand the vast variability in the human genome which calls for a far more personalized approach to medicine than is currently the status quo.

Liz’s Links:
https://en.wikipedia.org/wiki/Brain_on_Fire
LinkedIn: https://www.linkedin.com/in/liz-minda-98b9b1126/
Facebook: https://www.facebook.com/profile.php?id=100011148612874
https://www.mikesmedicines.com/medical-marijuana/liz-minda-and-her-fight-for-jadyn-cannabis-for-epilepsy/
https://herb.co/news/health/rhode-island-cbd-school-minda/
https://digboston.com/medical-cannabis-special-treating-yourself/
https://www.wpri.com/news/special-reports/family-fights-to-change-law-says-medical-cannabis-should-be-administered-in-school/

Mike’s Links:
https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/25168457Thu, 09 Apr 2020 20:22:48 +0000Jill WoodworthIn this episode of TSC Talks, I spoke to Liz Minda, RN and Mike Robinson, former TSC Talks guest, drops in for the second half of our conversation. Liz has three children, one of whom has significant special needs and issues related to epileptic...
Liz’s daughter had no further seizures until she was 4. When the seizures came back, they were severe grand mal status epilepticus seizures. Liz hesitated to medicate her daughter because as an RN, she was aware of the difficulty of finding an effective medicine as well as the myriad of side effects anti-seizure meds can cause. When the seizures continued, they eventually started meds which began a cycle of seizures increasing in both frequency and duration. In addition to meds, they put the child on the ketogenic diet. The grueling regimen did not help her seizure activity. Liz was desperate after even the rescue med Diastat began to fail to control the seizures.

Liz got her daughter into the Epidiolex study at Mass General and her daughter’s seizures diminished for a few months, but they returned. When the seizures started again, doctors increased her pharmaceuticals which restarted the med, seizure pattern. Liz grew frustrated with the medical establishment who seemed determined to throw prescription after prescription at them at great financial, physical and emotional cost. She found a neuro-epileptologist who helped her begin weaning her daughter from some of the prescription meds and helped her transition to Charlotte’s Web.

Liz connected with Mike Robinson online and Mike and others in the Compassionate Cannabis world assisted Liz in finding a balanced cannabinoid medicine that worked for her daughter. Mike and Liz discuss Epidiolex and the pharmaceutical interactions which do not seem to be compensated for when using that med. Liver issues can be serious when Epidiolex or any type of CBD is combined with certain medications. Mike shares, “Even though we were using the Charlotte's Web, Charlotte's Web wasn't enough to help us get off. We needed something stronger. We needed the Rick Simpson oil or full extract cannabis oil to get her off. Because we only had you know, once you get down to the miniscule doses of the pharmaceuticals, now you're really up against you know, fighting seizures, because you go with a really slow business and that's pretty much where we've stepped in, you know, it's right with the actual compassion provision.”

Both Mike and Liz believe vaccine injury is real. We ask you to keep an open mind while listening. Before you form an opinion, walk a mile with Liz and Mike, hear their stories and then decide. Liz comments, “and then people say, vaccines don't cause autism? Yes, they do, and here's why. When the brain heats up and you get a fever, you've got brain on fire” and she believes that “brain on fire” condition causes both seizures and autism.

TSC Talks is presenting this narrative and these views do not necessarily represent the views of TSC Talks. We are encouraging you as listeners, to "walk a mile" in Liz's shoes and understand the vast variability in the human genome which calls for a far more personalized approach to medicine than is currently the status quo.

Liz’s Links:
https://en.wikipedia.org/wiki/Brain_on_Fire
LinkedIn: 1929autism,cannabinoidmedicine,cannabinoids,cannabis,cbd,charlottesweb,coronavirus,covid19,epidiolex,epilepsy,hemp,hope,inspiration,medical,medicalmarijuana,neurology,pharmaceuticals,seizures,statusepilepticus,vaccinesfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-state-of-birth-before-during-covid-19-with-corrine-pellard-jodi-chapin-jessica-petrone--24775865
Corrine Pellard is an Empath, Psychic Medium and Reiki Master. She is also a mom of two and tells us about her experience of both a hospital birth and an at-home birth. Corrine discusses the lack of control over the birthing experience that she experienced with her first child. She discusses being considered high risk because of her age and weight and how the entire birth experience was centered around preconceived notions based on the masses and not her individually. She was induced, unnecessarily in her view, was sick from the drug used to induce and delivered by cesarean section. She shares, “It was traumatic, and my healing my first two months of being a mother was physically painful and my anxiety post, I had postpartum anxiety to a very severe degree.” When Corrine became pregnant again, she knew she wanted a different birthing experience. She found Birth Matters and decided to try a natural, vaginal delivery at home.
Jodi Churchill Chapin has been a Registered Nurse for 32 years, most of which she has spent in Labor and Delivery. Jodi discusses bridging the traditional birth and hospital procedures with less traditional therapies such as Reiki. Jodi states, “And we incorporated, you know, you're there, you’re exchanging energy. It's how the patient uses her energy and is able to focus on the birth process. And I think what’s important is that being able to balance, you know, following policy and procedure, but also carrying out the patient (and) the family's wishes of how they envisioned birth. I mean birth is, you know, one of those things, it's like, even planning a wedding, you look forward to this one day you plan you plan you plan, you think it's going to go one way and then plans change on a dime. And how it's handled can make it or break it.”

Jessica Petrone is a Certified Professional Midwife (CPM), RN and BSN who has been in practice for 13 years. Her practice saw a record number of home births last year and Jessica believes that number will continue to grow. She relates, “But I think specifically in the last couple of years, there seems to be a shift in people just taking charge of their health care even in the medical setting. There's more conscious awareness, practices and practitioners breaking away from the traditional systems and framework but yeah, we love home birth. We do a lot of water birth we work with a lot of different practitioners to enhance really healthy pregnancies. We absolutely consult with medical providers when it's necessary.” Corrine shared about her experience with Jessica and Birth Matters, “So, I will say one of the biggest differences that I noticed on my very first appointment with a Birth Matters in the home birth midwives is they asked my consent, which nobody asked my consent. I mean, sure I signed forms but before touching me, nobody offered before examining me, nobody asked permission to touch my body.”

The conversation continues to the state of birth currently with the threat of COVID19. Jodi discusses the difficulty of taking the necessary precautions in the time of a pandemic while trying to connect with an expectant mom during the labor and delivery process. “This Covid19 has put a huge damper on healthy women wanting to come in to have their normal birth. Especially right now, today. Anybody and everybody walking into the hospital or around the hospital has to wear a mask. You cannot take that mask off anytime you are on hospital property that includes in the labor room, that includes the patient that includes the patient's one person that's helping them with birth, there are no visitors allowed, no children, family, nobody else. The only person allowed in the room is the one that will be wearing that second baby bracelet that's given out when a baby's born. I mean, labor, you're breathing with women, you're teaching. I mean, it's all about the closeness. How do you socially distance yourself from somebody who needs your support, your encouragement, your empowerment?”

Jessica discusses the fact that more women are considering home births currently. “The influx of inquiries is so unexpected, I can't keep up. I'm getting probably 10 emails a day, which it is impossible for us to entertain the idea of taking all these women on. And that's true of a lot of midwives across the state, really. Not everybody is a good candidate. I mean most people probably inquiring last minute. We had yesterday, a woman inquire and she's due March 30. That's like, less than a week from now. If people are making choices out of fear and panic it is not what's happening, and whenever we get an inquiry that somebody is so afraid of the hospital and so afraid of other providers and afraid of needles, I mean, we all encounter that in patient care, but they may not be a great candidate. But that's not what's happening right now. These are women that are realizing that their birth plan, what they thought they were going to experience in the hospital, is drastically different and there is obviously a great concern about becoming sick and being exposed but a lot of the women are making the choice based on the fact that their support person might not be able to be present with them.” Jessica recommends that women do their research before opting for a home birth.
I am grateful to these remarkable women for sharing their wisdom.

Corrine Pellard is an Empath and a Psychic Medium. Even as a small child, Corrine has had a special insight into other people’s emotions. Beginning in her early teenage years, her intuition would alert her when something important was about to occur, either for herself or a loved one. At age 14, Corrine began using the wisdom of Tarot Cards to enhance her psychic connection. As years went on, Corrine became more aware of her ability as her readings became more accurate and her predictions began to materialize. At the age of 30, she began having premonition dreams. After seeking the guidance of her Shaman, she came to accept that she is an Empath & an Intuitive. Corrine is a natural healer, using her Empathy, Intuition, and Reiki to heal others emotionally, spiritually, and physically. Corrine is also able to mediate communication between people who are no longer living to those who still are. She offers private readings and hearings and in-home parties. She is a wedding officiant offering custom designed ceremonies. Her true passion is teaching others to honor their own abilities and helping others heal themselves.
Beyond the Gate
508-690-0444
gobeyondthegate@gmail.com
https://www.gobeyondthegate.com/
https://www.buzzsprout.com/865777/2868628-sobriety-as-an-empath-corrine-s-story

Jodi Churchill Chapin has been a Registered Nurse for 32 years. She has an extensive background in women’s health as a labor and delivery nurse and has also worked in oncology. She resides in Framingham with her husband of 25 years. Together, they have 3 children ranging from middle school age to college, 2 dogs, 2 cats and a bunny named Kiwi. Jodi firmly believes that vulnerability is to be met with compassion, respect, and active listening to ensure that her patients have the very best outcomes. She credits her extensive nursing career and healer background with these virtues and skills. Jodi is also a Usui Shiki Ryoho Reiki Level II Practitioner. Through this healing art, Jodi may be able to help people who are struggling with a wide range of health conditions such as headaches, insomnia, back pain, cancer, heart disease, chronic pain, depression, anxiety, and may even be used to help in the recovery from injuries and surgery. As an active member of the American Cannabis Nurses Association and a GNG team member, she helps advocate for people who choose to use cannabis as a complementary or alternative treatment, providing education, insight, guidance, and support in the process.
https://www.greennursegroup.com/our-team
https://www.emedevents.com/speaker-profile/jodi-churchill-chapin
https://green-nurse-sandbox.iriebliss.com/green_nurse_staff/jodi-chapin/

Jessica Petrone, CPM, RN, BSN
Jessica's experience in birth includes her work as a doula, her completion of a 3 year midwifery apprenticeship in a very busy home birth practice and being a mother of four, with the last being an unassisted home birth attended only by her husband and herself. Her own births led her to become a doula which led her to become an apprentice and, in turn, a midwife. But that’s the abbreviated version! Jessica has been attending home births since 2006. She is co-president of the Massachusetts Midwives Alliance, a member of ALACE (Association of Labor Assistants and Childbirth Educators), and a member of the Birth Year Network (a Southeastern Mass, Cape and Islands Birth Resource Network). She holds certifications in CPR and Neonatal Resuscitation. She completed her formal education remotely through the National College of Midwifery in Taos, New Mexico, where she earned a degree in the Science of Midwifery. Most recently, Jessica has completed a Bachelor of Science in Nursing, which included a 6-month preceptorship in a high volume/high risk maternity unit at Massachusetts General Hospital.
https://homebirthmatters.com/about/jessica-petrone/
https://www.modernmamamidwifery.com/the-midwives
http://bostonvoyager.com/interview/meet-jessica-petrone-sarafina-kennedy-birthmatters-llc-boson/
Supplemental Article:
https://nypost.com/2020/03/23/pregnant-women-share-what-its-like-to-be-expecting-during-coronavirus-pandemic/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/24775865Fri, 03 Apr 2020 12:00:40 +0000Jill WoodworthI had the honor of speaking to three accomplished women about the current state of birth both locally and nationally. We discuss the increasing interest in home births, the advantages and disadvantages of home versus hospital births and how those...
Corrine Pellard is an Empath, Psychic Medium and Reiki Master. She is also a mom of two and tells us about her experience of both a hospital birth and an at-home birth. Corrine discusses the lack of control over the birthing experience that she experienced with her first child. She discusses being considered high risk because of her age and weight and how the entire birth experience was centered around preconceived notions based on the masses and not her individually. She was induced, unnecessarily in her view, was sick from the drug used to induce and delivered by cesarean section. She shares, “It was traumatic, and my healing my first two months of being a mother was physically painful and my anxiety post, I had postpartum anxiety to a very severe degree.” When Corrine became pregnant again, she knew she wanted a different birthing experience. She found Birth Matters and decided to try a natural, vaginal delivery at home.
Jodi Churchill Chapin has been a Registered Nurse for 32 years, most of which she has spent in Labor and Delivery. Jodi discusses bridging the traditional birth and hospital procedures with less traditional therapies such as Reiki. Jodi states, “And we incorporated, you know, you're there, you’re exchanging energy. It's how the patient uses her energy and is able to focus on the birth process. And I think what’s important is that being able to balance, you know, following policy and procedure, but also carrying out the patient (and) the family's wishes of how they envisioned birth. I mean birth is, you know, one of those things, it's like, even planning a wedding, you look forward to this one day you plan you plan you plan, you think it's going to go one way and then plans change on a dime. And how it's handled can make it or break it.”

Jessica Petrone is a Certified Professional Midwife (CPM), RN and BSN who has been in practice for 13 years. Her practice saw a record number of home births last year and Jessica believes that number will continue to grow. She relates, “But I think specifically in the last couple of years, there seems to be a shift in people just taking charge of their health care even in the medical setting. There's more conscious awareness, practices and practitioners breaking away from the traditional systems and framework but yeah, we love home birth. We do a lot of water birth we work with a lot of different practitioners to enhance really healthy pregnancies. We absolutely consult with medical providers when it's necessary.” Corrine shared about her experience with Jessica and Birth Matters, “So, I will say one of the biggest differences that I noticed on my very first appointment with a Birth Matters in the home birth midwives is they asked my consent, which nobody asked my consent. I mean, sure I signed forms but before touching me, nobody offered before examining me, nobody asked permission to touch my body.”

The conversation continues to the state of birth currently with the threat of COVID19. Jodi discusses the difficulty of taking the necessary precautions in the time of a pandemic while trying to connect with an expectant mom during the labor and delivery process. “This Covid19 has put a huge damper on healthy women wanting to come in to have their normal birth. Especially right now, today. Anybody and everybody walking into the hospital or around the hospital has to wear a mask. You cannot take that mask off anytime you are on hospital property that includes in the labor room, that includes the patient that includes the patient's one person that's helping them with...]]>3033alternativemedicine,birthing,coronavirus,covid-19,doula,greennurse,greennursegroup,homebirthing,homebirths,hospitalbirths,irieblisswellness,medical,mentalhealth,midwife,nursemidwife,nursing,podcast,pregnancy,psychic,tsctalksfalsefullhttps://www.spreaker.com/episode/tsc-talks-love-over-fear-a-mother-s-story-sherri-tutkus-rn-bsn-founder-ceo-of-green-nurse-group--24542453
Sherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years’ practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients homes and she regularly does pop up events, seminars and expos. Sherri is an international speaker and she has contributed to the writing of the first cannabis nursing textbook with her cannabis nurse colleagues that will be available in nursing schools across the country. Sherri is a member of the American Cannabis Nurses Association and founding member of The Cannabis Nurses Network and was nominated as one of two nurses for “Health Professional of the Year” for the 2020 New England Cannabis Convention. Sherri brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool.

In the first part of this podcast, Sherri discusses her own background and connection to cannabinoid medicine. The tools she learned in her own journey enabled Sherri to cope with frequent and ongoing surgeries, procedures, treatments for her son Nicholas and advocate vociferously on his behalf.

"When I'm presenting to people, I use myself as a case study. Because basically, prior to me getting ill, I had a history of migraine headaches, ADHD, and anxiety, that was managed with traditional medicine. I was functioning, I was healthy, single mother of three, child with a disability that we're going to talk about, but knowing that I had migraine headaches and at ADHD symptoms should have been a clear indicator that I had an Endocannabinoid deficiency. So everything that we do or don't do in our lives as far as health and wellness affects this neurotransmitter signaling system called the endocannabinoid system, and that the job of that system is to bring balance."

She goes on to explain, "By the end before I discovered cannabis. I was on over 16 pharmaceuticals. So, as I've learned over time, if you're taking more than 10 pharmaceuticals, there's 100% chance of having an adverse drug reaction. Polypharmacy. I fit into that polypharmacy category. I am not anti pharma. However, what is really essential for people to understand when they are being prescribed pharmaceuticals is to ask those critical questions and to look at what side effects there are to look at the blackbox warning Okay, how many people have died? You know, what are the side effects, what are the adverse effects, you need to have knowledge knowledge is power. The other thing that people People don't realize is that a lot of pharmaceuticals have a drug nutrient depletion"

She goes on to explain, " I have have a history of Polycystic Ovarian disease which is very interesting. And that yeah, that is considered to be a clinical Endocannabinoid deficiency diagnoses as well. So I had issues with fertility all along. ... And then my third pregnancy... it's interesting, you know I gained all kinds of weight and wasn't happy and I started changing my lifestyle when the babies came. And all of a sudden my reproductive system started to auto regulate. I was using specific supplements and nutrition. I changed my diet, I became vegan, I did a raw diet, and all of a sudden, I'm a fertile Myrtle. And before we know it, I'm pregnant with my third"

From here, Sherri goes on to discuss the birth of Nicholas and the immediate realization that he had multiple issues of which she was not aware of up until the moment of his birth. She explained to me in writing prior to the recording of this episode, the following, "All of my births were traumatic experiences however this pregnancy was the best and the easiest. I had an uneventful healthy pregnancy. I broke my water 6 weeks early and when my first boy was born he was not breathing and they had to resuscitate him and over the course of my first postpartum days I learned that my son had a rare genetic disorder called Branchio-Oculo Facial Syndrome."

BOFS is inherited in an autosomal dominant manner. Each child of an individual with BOFS has a 50% change of inheriting the variant. Nick’s dad carried the gene and at the time of diagnoses the gene had not been identified.

She discusses the realization of impact, "you have these craniofacial anomalies that required over 15 surgeries, but the things that they said about mental retardation was not true. The surgical stuff they were able to do . I engaged upon a journey with him that I would do anything for him. It was kind of like, I just got to do this. And so he became my full time job. "

I asked Sherri the question, "How did you do it? How did you handle this huge weight of reality repeatedly?" She explained, "I got back to really the basics of self care and being present and grounded. I had already have a lot of those spiritual tools. My son opened up the door to the unseen worlds for me, which is a whole other show. But literally, I kind of felt like and I know it sounds crazy, but I'm sure other mothers can agree or associate or identify.... that I just felt a really strong connection with him and being able to understand what his needs were even before he could communicate."

She goes on to add, "it gets back to what I can and cannot control you know, even if I can't control my emotions, even if I'm out of control, like hysterical or anxiety-ridden or sad, I still can have the ability to control what I'm doing and not doing in my life. And so what I knew to be true was in order for me to be the best version of myself, I needed to do everything that I could to take care of myself. And that included my mental health."

She goes on to say, "But he's a true miracle. I gave him every opportunity. And he basically showed me through his own actions and his kindness and compassion and his grit and his ability. The kid had so much resilience and he wanted to heal, you know, he's not mentally retarded, he got set up with the Deaf Services as we found out later, he doesn't have sensory neural hearing loss, he has a bone conduction hearing loss. And so he basically told me one day Mom, I want to smile with the rest of the kids. And I was like, oh, of course you do. How do I make that happen? And boy, that was a scary journey. We literally embarked upon the journey of having my boy get a smile."

"The amazing craniofacial team at Boston Children's Hospital did an experimental surgery that is called facial reanimation. And basically they didn't know. They said it would evolve over time, would the nerve take and would it connect and would it work? So here we are... I don't know here we are going. Through 16 hours of surgery 10 days in the hospital, not knowing if this is going to work or not. That was another faith based thing. Honestly, you know, it's all you have, and then literally one morning when I was waking him up for school, all of a sudden he sits up in bed. He smiles. So he's really he's come a long way. He's 14 years old now. When he was in sixth grade, he said, I want to go to public school. Oh my god, how is he going to be able to go to public school? So I was like, Okay, let's try to make it happen. And we embarked on the journey of integrating him into the public system."

Bringing us to current day, Sherri explains, "You know, he is thriving. He's finishing up the eighth grade this year. And his freshman year, next year in high school, he will be in the public school. He still has an IEP, he's going to be in all honors and advanced honors classes is number one subject Spanish. And one of the other thing is that, you know, oftentimes as parents, we may feel sorry for our kid and you may feel bad. He doesn't feel sorry for himself. He doesn't feel bad."

A final quote, "So what can I control? I try to control other people. And we can't control anyone. We can't. And that's the part that was the biggest lesson that I learned. And he taught me that, he taught me where my power lies and where it doesn't lie and how to choose and pick my battles and what's important and what's not important. And in the grand scheme of life, when you can pull back from that and see, what am I doing to be the best version of myself, so I can help my child thrive?"

Sherri's links:
Green Nurse Group: https://www.greennursegroup.com/
Facebook: https://www.facebook.com/GreenNurseSherri
Instagram: https://www.instagram.com/sherri_tutkus/, https://www.instagram.com/greennursegroup/
Twitter: https://twitter.com/Green_Nurses
LinkedIn: https://www.linkedin.com/in/sherri-tutkus-rn-bsn-912b7776/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/24542453Sun, 29 Mar 2020 12:43:37 +0000Jill WoodworthIn this episode, my guest Sherri Tutkus, RN, BSN, Founder & CEO of Green Nurse Group, came on the podcast to share a powerful and inspiring mother son story that follows the timeline from receiving a diagnosis at birth of her son Nicholas with...
Sherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years’ practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities within her practice for over 20 years. She educates on the endocannabinoid system and the safe utilization of cannabis at dispensaries, hospitals, clinics, patients homes and she regularly does pop up events, seminars and expos. Sherri is an international speaker and she has contributed to the writing of the first cannabis nursing textbook with her cannabis nurse colleagues that will be available in nursing schools across the country. Sherri is a member of the American Cannabis Nurses Association and founding member of The Cannabis Nurses Network and was nominated as one of two nurses for “Health Professional of the Year” for the 2020 New England Cannabis Convention. Sherri brings passion and purpose to her work teaching bio-psycho-social-spiritual healing using cannabis as a tool.

In the first part of this podcast, Sherri discusses her own background and connection to cannabinoid medicine. The tools she learned in her own journey enabled Sherri to cope with frequent and ongoing surgeries, procedures, treatments for her son Nicholas and advocate vociferously on his behalf.

"When I'm presenting to people, I use myself as a case study. Because basically, prior to me getting ill, I had a history of migraine headaches, ADHD, and anxiety, that was managed with traditional medicine. I was functioning, I was healthy, single mother of three, child with a disability that we're going to talk about, but knowing that I had migraine headaches and at ADHD symptoms should have been a clear indicator that I had an Endocannabinoid deficiency. So everything that we do or don't do in our lives as far as health and wellness affects this neurotransmitter signaling system called the endocannabinoid system, and that the job of that system is to bring balance."

She goes on to explain, "By the end before I discovered cannabis. I was on over 16 pharmaceuticals. So, as I've learned over time, if you're taking more than 10 pharmaceuticals, there's 100% chance of having an adverse drug reaction. Polypharmacy. I fit into that polypharmacy category. I am not anti pharma. However, what is really essential for people to understand when they are being prescribed pharmaceuticals is to ask those critical questions and to look at what side effects there are to look at the blackbox warning Okay, how many people have died? You know, what are the side effects, what are the adverse effects, you need to have knowledge knowledge is power. The other thing that people People don't realize is that a lot of pharmaceuticals have a drug nutrient depletion"

She goes on to explain, " I have have a history of Polycystic Ovarian disease which is very interesting. And that yeah, that is considered to be a...]]>2613anomalies,branchio-oculo-facial-syndrome,cannabinoidmedicine,cannabis,cannabisnurse,cleftlip,cleftpalate,coronavirus,cranio-facial,geneticdisorder,greennursegroup,greennurses,gtube,medicaltrauma,mental/emotional/spiritual,nicu,nursing,ptsd,resilience,traumafalsefullhttps://www.spreaker.com/episode/tsc-talks-a-coronavirus-covid19-conversation-with-dr-uma-dhabalanan-md-mph-faafp-mro-cms--24542293https://youtu.be/cIp6BinWD6c

In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage in a discussion on the impact of #Coronavirus/ #COVID19 We'll talk about the personal impact, local impact in MA on the cannabis community, and beyond MA, Info on symptoms, knowing when to stay home and when to contact a doctor, what we can do to decrease our risk and boost our immune system. Dr. Uma shared thoughts on the importance of learning from this global pandemic, and how we can come together despite social distancing, and hold onto hope that there is life after Covid19, and hope is important as we walk through this very challenging and confusing time. Thank you for watching and/or listening !!🙏

Dr. Uma Dhanabalan MD MPH FAAFP MRO CMS is is a highly respected physician trained in Family Medicine, Occupational & Environmental Medicine, specialized in heavy metals, a Fellow of the American Academy of Family Physicians, a Cannabinoid Medicine Specialist and Medical Review Officer.

She created the TotalHealthCareTHC model where she “Educates Embraces Empowers” patients and promotes cannabis as a treatment option at Uplifting Health and Wellness, in Natick, Massachusetts. She is an advocate, activist, and educator and speaks globally about cannabis as a plant medicine. Her mission is to change the Stigma regarding Cannabis and for the world to know about the Endocannabinoid system through education.

Dr. Uma can be found at http://totalhealthcarethc.com/ on Facebook UpliftingHealth AndWellness. Namaste.💙 Additional Links as follows:

Dr. Uma was a previous guest on TSC Talks. Her podcast link: https://tsctalks.com/tsc-talks-guest-dr-uma-dhanabalan/

Facebook: https://www.facebook.com/people/Uma-Dhanabalan/100008556311630
https://www.facebook.com/upliftinghealthandwellness
Instagram: https://www.instagram.com/dr.uma_thc/, https://www.instagram.com/uplifting_health_and_wellness/
LinkedIn: https://www.linkedin.com/in/dr-uma-dhanabalan-md-mph-faafp-mro-cms-02843040/
Twitter: https://twitter.com/drumasays
https://necann.com/news/speaker/dr-uma-dhanabalan/

Check our FB page and website: https://tsctalks.com and stay tuned for more incredible content. 💙🙏

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/24542293Sun, 29 Mar 2020 10:22:50 +0000Jill WoodworthHere is the audio version of the Facebook Live episode that aired on March 26, 2020. The YouTube link for the video is as follows: https://youtu.be/cIp6BinWD6c In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage...https://youtu.be/cIp6BinWD6c

In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage in a discussion on the impact of #Coronavirus/ #COVID19 We'll talk about the personal impact, local impact in MA on the cannabis community, and beyond MA, Info on symptoms, knowing when to stay home and when to contact a doctor, what we can do to decrease our risk and boost our immune system. Dr. Uma shared thoughts on the importance of learning from this global pandemic, and how we can come together despite social distancing, and hold onto hope that there is life after Covid19, and hope is important as we walk through this very challenging and confusing time. Thank you for watching and/or listening !!🙏

Dr. Uma Dhanabalan MD MPH FAAFP MRO CMS is is a highly respected physician trained in Family Medicine, Occupational & Environmental Medicine, specialized in heavy metals, a Fellow of the American Academy of Family Physicians, a Cannabinoid Medicine Specialist and Medical Review Officer.

She created the TotalHealthCareTHC model where she “Educates Embraces Empowers” patients and promotes cannabis as a treatment option at Uplifting Health and Wellness, in Natick, Massachusetts. She is an advocate, activist, and educator and speaks globally about cannabis as a plant medicine. Her mission is to change the Stigma regarding Cannabis and for the world to know about the Endocannabinoid system through education.

Dr. Uma can be found at http://totalhealthcarethc.com/ on Facebook UpliftingHealth AndWellness. Namaste.💙 Additional Links as follows:

Dr. Uma was a previous guest on TSC Talks. Her podcast link: https://tsctalks.com/tsc-talks-guest-dr-uma-dhanabalan/

Facebook: https://www.facebook.com/people/Uma-Dhanabalan/100008556311630
https://www.facebook.com/upliftinghealthandwellness
Instagram: https://www.instagram.com/dr.uma_thc/, https://www.instagram.com/uplifting_health_and_wellness/
LinkedIn: https://www.linkedin.com/in/dr-uma-dhanabalan-md-mph-faafp-mro-cms-02843040/
Twitter: https://twitter.com/drumasays
https://necann.com/news/speaker/dr-uma-dhanabalan/

Check our FB page and website: https://tsctalks.com and stay tuned for more incredible content. 💙🙏

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2053alternativemedicine,cannabinoidmedicine,cannabis,coronavirus,covid19,doctor,endocannabinoidsystem,family,familymedicine,hope,hygiene,immunesystem,massachusetts,md,medicalmarijuana,namaste,occupationalmedicine,physician,socialdistancing,telehealthfalsefullhttps://www.spreaker.com/episode/tsc-talks-healer-vs-m-d-with-mike-robinson-cancer-survivor-cannabis-activist-founder-global-cannabinoid-research-center--24094169
We also discuss the sharing of information parent to parent on platforms such as Facebook, and how this can be valuable as well as how professional platforms often don't give the level of detail one can gain from online groups. There is much caution needed in all areas of sharing information on cannabinoid medicine as well as assessing what is accurate and reliable. Mike has years of in-depth hands-on experience working in the compassion program one on one with many many individuals and discusses what it takes to "dial-in" a protocol, emphasizing the need for personalization and tweaking of one's regimen, getting in touch with our physical and psychological cues to learn what will work best for our own cannabinoid medicine treatment as well as our loved ones for whom we might seek support and guidance in learning to implement this valuable and often last-resort life-saving treatment for those living with chronic and often life-threatening conditions.


Below are some links with more information. Stay tuned for another full podcast episode with Mike discussing the disconnect between the healer and the M.D. in traditional and cannabinoid medicine and offers some suggestions and hope for bridging that gap.

There's a lot more here that's well worth your time. Please note that Mike has launched (in his spare time) a platform for those who are "in need of help" in light of the global pandemic we are facing with covid19. https://whosneedinghelp.com.

We will shortly be launching another podcast with content related to Mike Robinson's work and other life minded professionals and patients will be housed and will shortly be including more information on this podcast where we hope to put out shorter, more frequent information/Q & A, support and resources on cannabinoid medicine, and promoting our shortly to be launched botanical beverage that will truly knock your socks off. Watch our website, look for announcements on the front page banner related to this new content.

As always, thanks for listening caring and sharing as we talk about "the things no one else wants to talk about " and try to bridge gaps in misunderstandings, perception, and lack of education to come together as human beings doing our best to find some quality of life and joy while here on this planet.

Mike's links:

Article about his personal experience: https://www.mikesmedicines.com/medical-marijuana/fighting-ordered-isolation-with-cannabiniods-coronavirus-scare-hits-our-home/

On the role of cannabinoids in fighting disease: https://globalcannabinoidrc.com/f/immunoregulatory-role-of-cannabinoids-during-infectious-disease

https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/24094169Fri, 20 Mar 2020 13:13:09 +0000Jill WoodworthMike Robinson, Cancer Survivor/Cannabis Activist - Founder, Global Cannabinoid Research Center, comes on to discuss some of the current challenges in the cannabis community as well as exciting opportunities and projects coming your way. He starts off...
We also discuss the sharing of information parent to parent on platforms such as Facebook, and how this can be valuable as well as how professional platforms often don't give the level of detail one can gain from online groups. There is much caution needed in all areas of sharing information on cannabinoid medicine as well as assessing what is accurate and reliable. Mike has years of in-depth hands-on experience working in the compassion program one on one with many many individuals and discusses what it takes to "dial-in" a protocol, emphasizing the need for personalization and tweaking of one's regimen, getting in touch with our physical and psychological cues to learn what will work best for our own cannabinoid medicine treatment as well as our loved ones for whom we might seek support and guidance in learning to implement this valuable and often last-resort life-saving treatment for those living with chronic and often life-threatening conditions.


Below are some links with more information. Stay tuned for another full podcast episode with Mike discussing the disconnect between the healer and the M.D. in traditional and cannabinoid medicine and offers some suggestions and hope for bridging that gap.

There's a lot more here that's well worth your time. Please note that Mike has launched (in his spare time) a platform for those who are "in need of help" in light of the global pandemic we are facing with covid19. https://whosneedinghelp.com.

We will shortly be launching another podcast with content related to Mike Robinson's work and other life minded professionals and patients will be housed and will shortly be including more information on this podcast where we hope to put out shorter, more frequent information/Q & A, support and resources on cannabinoid medicine, and promoting our shortly to be launched botanical beverage that will truly knock your socks off. Watch our website, look for announcements on the front page banner related to this new content.

As always, thanks for listening caring and sharing as we talk about "the things no one else wants to talk about " and try to bridge gaps in misunderstandings, perception, and lack of education to come together as human beings doing our best to find some quality of life and joy while here on this planet.

Mike's links:

Article about his personal experience: https://www.mikesmedicines.com/medical-marijuana/fighting-ordered-isolation-with-cannabiniods-coronavirus-scare-hits-our-home/

On the role of cannabinoids in fighting disease: https://globalcannabinoidrc.com/f/immunoregulatory-role-of-cannabinoids-during-infectious-disease

https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
2987alternativemedicine,cancersurvivor,cannabinoids,cannabis,cannabisoil,cbd,coronavirus,covid19,endocannabinoidsystem,globalunity,healer,lymedisease,marijuana,m.d.,medicalmarijuana,medicine,mentalhealth,mikesmedicines,thc,tsctalksfalsefullhttps://www.spreaker.com/episode/tsc-talks-special-edition-coronavirus-with-mike-robinson-cancer-survivor-cannabis-activist-founder-global-cannabinoid-research-center--23932130
Mike's been blogging about this situation and below are some links with more information. Stay tuned for another full podcast episode with Mike discussing the disconnect between the healer and the M.D. in traditional and cannabinoid medicine and offers some suggestions and hope for bridging that gap.

Mike's links:

Article about his personal experience: https://www.mikesmedicines.com/medical-marijuana/fighting-ordered-isolation-with-cannabiniods-coronavirus-scare-hits-our-home/

On the role of cannabinoids in fighting disease: https://globalcannabinoidrc.com/f/immunoregulatory-role-of-cannabinoids-during-infectious-disease

https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/23932130Mon, 16 Mar 2020 12:34:54 +0000Jill WoodworthMike Robinson, Cancer Survivor/Cannabis Activist - Founder, Global Cannabinoid Research Center, comes on to discuss a recent experience he had with the Coronavirus situation, his concerns over the gravity of this situation and the impact it's having...
Mike's been blogging about this situation and below are some links with more information. Stay tuned for another full podcast episode with Mike discussing the disconnect between the healer and the M.D. in traditional and cannabinoid medicine and offers some suggestions and hope for bridging that gap.

Mike's links:

Article about his personal experience: https://www.mikesmedicines.com/medical-marijuana/fighting-ordered-isolation-with-cannabiniods-coronavirus-scare-hits-our-home/

On the role of cannabinoids in fighting disease: https://globalcannabinoidrc.com/f/immunoregulatory-role-of-cannabinoids-during-infectious-disease

https://mikesmedicines.com
https://globalcannabinoidrc.com/
https://carouselchallenge.com
https://genevievesdream.com
https://nanobles.com
LinkedIn: https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/
Facebook: https://www.facebook.com/MikesEpilepsy
Instagram: https://www.instagram.com/cannabismymedicine/
Twitter: https://twitter.com/MikeRob47354384, https://twitter.com/MikeRob23307223
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.imedpub.com/proceedings/cbn-the-cancer-fighting-cannabinoid-5528.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1658autism,cancersurvivor,cannabinoidmedicine,cannabinoids,cannabis,cannabismedicine,cannabisoils,cbd,cbg,cbga,cbn,coronavirus,coronavirususa,endocannabinoidsystem,epilepsy,immunology,medicalmarijuana,quarantine,socialdistancing,unityfalsefullhttps://www.spreaker.com/episode/tsc-talks-cannabis-is-personalized-medicine-with-ruth-d-fisher-ph-d-author-the-medical-cannabis-primer--23640903
“Getting clear, concise, and easy to understand information about cannabis is tough. There are lots of resources, but which ones can you trust? How can you be sure the information isn’t biased? How are you supposed to even understand all the terminology and science? Is it even legal?

All of this becomes doubly important if you’re researching medical cannabis as an alternative to conventional treatments or pharmaceuticals. You or someone you love may have recently been diagnosed with cancer, epilepsy, autism, MS, or PTSD. You may have been dealing with chronic pain. Whatever your personal reason, you deserve access to clear, concise information about medical cannabis….That’s where “The Medical Cannabis Primer” by Ruth D. Fisher, Ph.D. and edited & designed by her brother, A. Arthur Fisher, comes in. They’ve assembled a comprehensive, easy to read compendium of cannabis knowledge that’s full of unbiased information and easy to understand charts, graphs, and images.”

Ruth shares that it was through the process of helping her brother, who was diagnosed with Multiple Sclerosis, find adequate treatment, that she ended up researching cannabis. Raised by a father who was a private practice physician, a successful children's eye doctor, and Ruth’s idol, she speaks of his influence, “My dad was also an iconoclast, he didn't take things at face value, just because people said so. He did research in his area of medicine, and he questioned authority. And he encouraged us to do so. He would send us stuff to read a lot. And he would send an article and say, “read this article.!”, I'm like, “Dad, just tell me what it says.” He says, “No, I want you to read it yourself”. And that was always a pain. But at some point, I realized he didn't want to bias, the presentation of the information his view and his perspective. He wanted us to read it for ourselves and develop our own perspective or interpretation on what we thought of it. I always thought that was very interesting. It took me a long time to appreciate that”

Another formative factor Ruth mentions as shaping her life view was graduate school. “ I'm an economist. In economics, you learn that everything is supply and demand. So, you learn how you know all markets are shaped by the forces of supply and demand and you kind of understand things in those terms…. What's really interesting, and it was finally drummed into me that it doesn't matter what the results are. If your data and methodology aren't valid, they're not found, then the results don't matter. They're meaningless. That was really, really important in forming my attitudes about reading research and trying to evaluate whether or not I should consider them to be valid, based on the methodology and the data used. And it really, really impressed upon me the importance of good methodology in order to provide valid results.”

Here are a few quotes from the transcript of our interview highlighting Ruth’s entry into the cannabis industry and her realization that educating herself was necessary, “So I got into cannabis about four or five years ago. My brother started having health problems. And it turns out he was eventually diagnosed with multiple sclerosis. And MS manifests itself differently in different people and the manifestation he gets is pain, a lot of neuropathic pain from different sources. And he was on a lot of different drugs trying to control or manage the pain and they all have really, really ugly side effects. And while they were helping some they weren't really doing enough. And my brother’s neurologist said, you know, maybe you could use benefit from cannabis"

"So, I will say that, yes, I had also smoked cannabis or pot in college and decided to, you know, wasn't my thing. And I knew that it was out there in the medical world, but really didn't pay any attention to it. I come in now, and the situation is, my brother has a lot of pain. He has chronic pain. And all I know is I want to do anything I can to help him minimize his pain. And so, I go into cannabis and my job as I saw it was to go in and figure out if cannabis was for real, and if so help him figure out what would help him. And so my goal here was to cut through all the BS and I didn't care what anyone had to say whether they were pro or anti, all I cared about was finding something that would help reduce my brother's pain. So, I drew upon all my past experiences in approaching things and I started reading…th first question was, well, what is cannabis and how does it work on the body? And I started reading about that and wow, kind of overwhelming.”

Ruth explains the challenges to finding well-rounded information and unbiased research on cannabis for multiple reasons and goes into detail on why this is so. Here’s one quote elaborating on this issue.

“In 1937 with the Marijuana Tax Act, the funds for research essentially dried up, not fully -there was a trickle of funding, but they largely dried up, except for NIDA. And so, you had this, and then in 1970, with the Controlled Substances Act when cannabis was officially categorized as a schedule one drug, all of a sudden, there's this one department within the National Institute of Health that had all this money to study the bad effects of cannabis. If you want to study the good effects, then it's really hard to get funding and it's really onerous. There's a lot of restrictions, you have to file with the DEA and get permission from them. You have to go through all these hoops with the government. It's really difficult and it's really stigmatized. You know, it could hurt your career if you do this”

She summarizes the state of research, “when people in the healthcare industry say there's no evidence that cannabis has been shown to be safe and effective, what they mean is no studies period, they mean no large scale clinical trials. And a large scale clinical trial is very expensive. And it's generally done by someone who's seeking FDA approval for a pharmaceutical. There are certain cannabis pharmaceuticals out there. And they've gone through a number of clinical trials. But again, those are isolates. And people who are doing the whole plant medicine and who are finding really amazing results. They don't have the money to fund large scale clinical trials. And I'm not trying, I'm not trying to make an excuse. I'm trying to explain why that evidence doesn't exist.”

This episode is rich with information and I personally learned a ton through the process of preparing for and interviewing Ruth and then reading her book. I’ll leave you with a final quote but please take the time to listen to this thorough, fascinating and very personal discussion providing not only information on medical cannabis such as dosing, forms of use, whole plant, but the many factors that have influenced healthcare opposition, recent advances, risks and more.

“The big problem I had is the people who are close to it, and who have patients who are afraid to tell them that they're using cannabis because now you're missing all the interactions. And now you're going to have people using it with zero oversight from their doctors, and you're going to cause all sorts of problems. So, I think the first step is for the doctors to start learning from the patients and just being open to it. I know that my brother had a neurologist, and very early on, he had some really, really bad symptoms. And very early on, he was going through things and he got to the point many times where he's like, I am willing to try anything to address this problem. And at one point, you know, he got to diet, and he put himself on a very limited diet. And lo and behold, that solved a lot of his problem. And he went to one of his neurologists, his neurologist who's making different recommendations. And my brother said, Well, you know, I changed my diet, and that has really helped. And the neurologist said, Yeah, you know, I've heard that from other patients, but I really know nothing about nutrition, so I can't really comment on that. And Eddie, that doctor did end up becoming informed on nutrition and actually now incorporates that into his programs.”

Here are Ruth’s links:

Order: https://www.amazon.com/Medical-Cannabis-Primer-Ushering-Marijuana/dp/1885176023
https://www.linkedin.com/in/rfisher/
https://medicalcannabisprimer.com/
https://www.quantaa.com/
https://canndynamics.com/
https://incolor.net/news
https://www.cedfoundation.com/2019/06/07/ruth-fishers-cannabis-primer-book/
https://www.techzone360.com/topics/techzone/articles/2020/01/30/444355-canndynamics-co-founder-educate-engage-cannabis-the-blockchain.htm
https://www.independent.com/2020/01/06/the-medical-cannabis-primer-cuts-through-the-crap/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/23640903Sun, 08 Mar 2020 13:13:37 +0000Jill WoodworthI thoroughly enjoyed having Ruth Fisher, Ph.D., Cannabis researcher, and analyst, Co-Founder of Cann Dynamics, as well as the author of The Medical Cannabis Primer, on TSC Talks! I heard about Ruth’s book from another recent guest, Nikki Lawley and...
“Getting clear, concise, and easy to understand information about cannabis is tough. There are lots of resources, but which ones can you trust? How can you be sure the information isn’t biased? How are you supposed to even understand all the terminology and science? Is it even legal?

All of this becomes doubly important if you’re researching medical cannabis as an alternative to conventional treatments or pharmaceuticals. You or someone you love may have recently been diagnosed with cancer, epilepsy, autism, MS, or PTSD. You may have been dealing with chronic pain. Whatever your personal reason, you deserve access to clear, concise information about medical cannabis….That’s where “The Medical Cannabis Primer” by Ruth D. Fisher, Ph.D. and edited & designed by her brother, A. Arthur Fisher, comes in. They’ve assembled a comprehensive, easy to read compendium of cannabis knowledge that’s full of unbiased information and easy to understand charts, graphs, and images.”

Ruth shares that it was through the process of helping her brother, who was diagnosed with Multiple Sclerosis, find adequate treatment, that she ended up researching cannabis. Raised by a father who was a private practice physician, a successful children's eye doctor, and Ruth’s idol, she speaks of his influence, “My dad was also an iconoclast, he didn't take things at face value, just because people said so. He did research in his area of medicine, and he questioned authority. And he encouraged us to do so. He would send us stuff to read a lot. And he would send an article and say, “read this article.!”, I'm like, “Dad, just tell me what it says.” He says, “No, I want you to read it yourself”. And that was always a pain. But at some point, I realized he didn't want to bias, the presentation of the information his view and his perspective. He wanted us to read it for ourselves and develop our own perspective or interpretation on what we thought of it. I always thought that was very interesting. It took me a long time to appreciate that”

Another formative factor Ruth mentions as shaping her life view was graduate school. “ I'm an economist. In economics, you learn that everything is supply and demand. So, you learn how you know all markets are shaped by the forces of supply and demand and you kind of understand things in those terms…. What's really interesting, and it was finally drummed into me that it doesn't matter what the results are. If your data and methodology aren't valid, they're not found, then the results don't matter. They're meaningless. That was really, really important in forming my attitudes about reading research and trying to evaluate whether or not I should consider them to be valid, based on the methodology and the data used. And it really, really impressed upon me the importance of good methodology in order to provide valid results.”

Here are a few quotes from the transcript of our interview highlighting Ruth’s entry into the cannabis industry and her realization that educating herself was necessary, “So I got into cannabis about four or five years ago. My brother started having health problems. And it turns out he was eventually diagnosed with multiple sclerosis. And MS manifests itself differently in different people and the manifestation he gets is pain, a lot of neuropathic pain from different sources. And he was on a lot of different drugs trying to control or manage the...]]>4306cannabinoidmedicine,cannabinoids,cannabis,cbd,ceo,cognitivedissonance,dispensary,doctors,economist,endocannabinoidsystem,healthcare,medicalcannabis,medicalmarijuana,multiplesclerosis,ph.d,researcher,thc,themedicalcannabisprimer,tsc,tsctalksfalsefullhttps://www.spreaker.com/episode/tsc-talks-calming-the-chaos-with-brooke-alisha-tsc-tand-advocate-adult-parent-living-with-tsc-hair-stylist-thriver--23355219
Diagnosed with Tuberous Sclerosis Complex (TSC is a condition that causes benign tumors to grow in different organs of the body) at the age of 18, Brooke gives us a picture, “I was very active. I was a cheerleader. I was in a precision ice skating team. I was very active in my church. I was in a traveling singing group. We had so many things. So for me, my life was.. always on the go and involved in something, a part of something and suddenly, I was on Darvocet and it literally brought me to my knees. I was in the middle of hair school. I had just started after I graduated. And I missed three months. I had to take medical leave because I couldn't get up. I was afraid to hurt my kidneys and the stent and that whole thing and then on top of it being on that medication. That was the start of everything really for me.”

She talks of the utter devastation that followed post-diagnosis, “you looked at Google, you know, or Web MD or something. And it was like, awful. And I'm like, how can my life go from this to this? How am I supposed to (go on) and that it just made it worse”?

After moving in with her boyfriend and withdrawing, there was more challenging news, “And so when I went to go see about the cysts on my ovaries, I actually found out I was two months pregnant with my daughter. So I did have this on my ovaries, but they're like, um, you're pregnant, and we're going to put you on Prozac because we don't know if you'll handle the baby or if you'll keep it or anything”

To make things more challenging, she now had doctors weighing in, “She told me she advised an abortion and I wasn't okay with that. It wasn't how I grew up personally. And I thought, there's a reason I'm having her. So, I'm going to just have her and I'm going to get through it. And if I lose her, then it's meant to be I had to live with myself personally.”

Her baby daughter started having infantile spasms at 4 months and diagnosed with TSC. She gives us a look at the inner experience of these circumstances and more challenges, “I guess I was so young, you know, I was scared to death of what was to come and she had just got diagnosed with Tuberous sclerosis complex, she has the seizures and they started to get more intense. And they were up to about 10 to 12 times a day, we started to have to digest that. Then I found out I was pregnant with my son, so it was a lot.”

Listening to Brooke and reflecting on my own experience, “I can relate to some of that, you know, I was getting pregnant and finding out at while I had other kids with TSC, and you know, I think back on those times that I don't remember the details. It's like talking to you, I just kind of remembered that craziness. You know, it was always like kind of living through at the moment and getting through the day and, you know, putting out brush fires one thing after the other, so I don't know if it was like that for you, but I didn't have a lot of like time to really reflect on what was happening and how I was. It was just so much action-reaction.”

Brooke shares more of her experience with her daughter, “she had brain surgery, a lot of people know the intensity of that, it's a six-month thing. To get tested and all of this stuff done and, you know, it kind of all becomes a blur and then you spend about a month in the hospital because they’ve got to do two surgeries. And we did get social security disability income for that month that I was off, but it was exhausting. I had a son at home. She wasn't going to the bathroom by herself. They told me about the social regression, they removed her right frontal lobe of the brain, all the executive decision making”

She also discusses waking up to an understanding of TAND, Tuberous Sclerosis Associated Neuropsychiatric Condition, both personally and with her daughter. 80-90% of individuals with a diagnosis of TSC will have some degree of TAND, manifesting in a myriad of different ways, encompassing the entire mental health diagnostic umbrella!

“And you just fix it and you figure it out. But you know, for the longest time, everything would defeat me. Because, you know, for me, 80% of people with TSC have a mental illness, TAND is something I didn't even know what it was, and I feel like it's not talked about enough. It's not expressed enough. It's not shown to families like okay your child might have TSC but look out for TAND, they need to be pre warned for this because you have no idea it will come hit you like a bus.”

Here’s an excruciating narrative outlining a TAND incident, “It seems like with these medications, so for her anti-psychotics make her psychotic. And we were like afraid to drive home. We were hoping a cop saw us and said let me take her from you. I have never been that mom that wishes anything on my children ever, ever ever in my life. I know I talked previously about not dreaming of being that mother or that Betty Crocker person, but I definitely am a person that when I have something, I go all out and I go all in. If I'm going to take care of something, I'm going to take care of it the way it needs to be taken care of. How do you take care of that? I didn't know how to take care of that situation. That moment. everybody's lives are in danger. My son was being choked from the back. It was very traumatic.”

So clearly, Brooke is a survivor, with resilience like no other. She narrates example after example of circumstances that are unimaginable and yet she continues to rise.

“And you know, for the longest time I lived as that victim like …victim, victim victim and I decided I wasn't going to live there anymore. And once you decide that you must be at a really big place where you're like, you know, I'm ready. Because you're going to get tested and you're going to get tried, and it's going to try to break you, but you have to just rise up really. But you have to be at that place, and I can't tell you how to get there other than feeding your mind with happy things and good things. I started working out. So I started to try to do things that would help my mental health I went seek counseling. I just I started to really like being a hairstylist too, you’re also a therapist. So, you need to have an out. I needed a healthy out for sure.”

Brooke uses premium nutrition, and continues to talk with her doctors, and this system has worked for her, “a premium lifestyle plan to help individuals experience and reach peak physical and mental levels” and has great results. She continues to promote this product as a side business to supplement her work as a hairstylist/beautician” and focuses on helping people feel beautiful inside and out. Having the opportunity to give her clients a little bit more in terms of offering a product she has had success with and believes in has been a wonderful way of infusing her work with her own lived experience and positive energy.

This episode is chock full of inspiration and hope despite multiple and ongoing challenges. I’ll leave you with this final quote, and encourage you to listen and share this incredible testimony to the power of the human spirit, faith and deep passion and love for her family, friends, committed to doing her best to push the needle of knowledge, education, and support for those living with TSC forward daily!

“I mean, there's been lots of like little miracles, you know, like as you go on, like, Oh, she can read now. And for me, my tumors went from four and a half centimeters down to nothing. So yes, so that's been amazing, but just the miracle of being 36 now and being told at 30 I'd be in a wheelchair like that's a miracle. And when people see me and do that stuff, I want them to know that it's never too late. You still have a life to live!” Bravo Brooke!

Brooke’s links:
Instagram: https://www.instagram.com/_brookealisha_/
Facebook: https://www.facebook.com/brookey21
Twitter: @BrookeAlisha
Adult Regional Coordinator-FB group: https://www.facebook.com/TsAllianceOfOhio/
TS Alliance Regional Coordinators: https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/
Brook’s hair services: https://www.facebook.com/brookesbliss13hair/
https://www.facebook.com/thecolourpalettesalon/
Thrive/Le-Vel: https://brooke2330.le-vel.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/23355219Sun, 01 Mar 2020 13:34:22 +0000Jill WoodworthI had the extreme honor of interviewing Brooke Alisha, TSC Advocate, Parent, Adult Living with TSC, Adult Regional Coordinator for Adult Support Region 5, LeVel Promotor. She has quite a story of challenges and hurdles, traumatic events, and heartache...
Diagnosed with Tuberous Sclerosis Complex (TSC is a condition that causes benign tumors to grow in different organs of the body) at the age of 18, Brooke gives us a picture, “I was very active. I was a cheerleader. I was in a precision ice skating team. I was very active in my church. I was in a traveling singing group. We had so many things. So for me, my life was.. always on the go and involved in something, a part of something and suddenly, I was on Darvocet and it literally brought me to my knees. I was in the middle of hair school. I had just started after I graduated. And I missed three months. I had to take medical leave because I couldn't get up. I was afraid to hurt my kidneys and the stent and that whole thing and then on top of it being on that medication. That was the start of everything really for me.”

She talks of the utter devastation that followed post-diagnosis, “you looked at Google, you know, or Web MD or something. And it was like, awful. And I'm like, how can my life go from this to this? How am I supposed to (go on) and that it just made it worse”?

After moving in with her boyfriend and withdrawing, there was more challenging news, “And so when I went to go see about the cysts on my ovaries, I actually found out I was two months pregnant with my daughter. So I did have this on my ovaries, but they're like, um, you're pregnant, and we're going to put you on Prozac because we don't know if you'll handle the baby or if you'll keep it or anything”

To make things more challenging, she now had doctors weighing in, “She told me she advised an abortion and I wasn't okay with that. It wasn't how I grew up personally. And I thought, there's a reason I'm having her. So, I'm going to just have her and I'm going to get through it. And if I lose her, then it's meant to be I had to live with myself personally.”

Her baby daughter started having infantile spasms at 4 months and diagnosed with TSC. She gives us a look at the inner experience of these circumstances and more challenges, “I guess I was so young, you know, I was scared to death of what was to come and she had just got diagnosed with Tuberous sclerosis complex, she has the seizures and they started to get more intense. And they were up to about 10 to 12 times a day, we started to have to digest that. Then I found out I was pregnant with my son, so it was a lot.”

Listening to Brooke and reflecting on my own experience, “I can relate to some of that, you know, I was getting pregnant and finding out at while I had other kids with TSC, and you know, I think back on those times that I don't remember the details. It's like talking to you, I just kind of remembered that craziness. You know, it was always like kind of living through at the moment and getting through the day and, you know, putting out brush fires one thing after the other, so I don't know if it was like that for you, but I didn't have a lot of like time to really reflect on what was happening and how I was. It was just so much action-reaction.”

Brooke shares more of her experience with her daughter, “she had brain surgery, a lot of people know the intensity of that, it's a six-month thing. To get tested and all of this stuff done and, you know, it kind of all becomes a blur and then you spend about a month in the hospital because they’ve got to do two surgeries. And we did get social security disability income for that month that I was off, but it was exhausting. I had a son at home. She wasn't going to the bathroom by herself. They told me about the social regression, they removed her right frontal lobe...]]>3073advocate,autism,epilepsy,hairstylist,medical,medicaltrauma,mentalhealth,neurology,ohio,polypharmacy,ptsd,qualityoflife,raredisease,tand,thrive,trauma,tsalliance,tsc,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-tyrone-williams-respect-redemption-growing-up-fast-in-the-cannabis-industry--23029545
In this episode, Tyrone walks us through the timeline of his life, detailing one challenge after tragedy after another. He is passionate about the potential of cannabis to revolutionalize the world, has deep knowledge of multiple aspects of the cannabis industry, and speaks with passion and purpose about the lack of equity in the industry, as well as the need to respect the living history of those that have sacrificed, lost and suffered defending their right to use the plant over the years. He makes note repeatedly that it's not the cannabis business of today, where we take for granted the reduced stigma and ease of access, but the gritty illegal side of the business, that of Netflix docudramas, in which his father and other relatives were immersed when he was born. Despite the high stakes danger and tragic outcomes of these illegal operations, they laid the groundwork for the movement toward marijuana legalization and reform that exists today.

Tyrone's early years were defined by excitement, tragedy, and turmoil; "One of my first memories is sitting in a pile of money and throwing it up and throwing up in the air like Richie Rich. When I was three years old, we dropped my uncle off at the airport and he was shot down by the Mexican military on his way back. on his way back. He was a very, very good pilot and
It was a C130 plane so there's no way that it would have just fallen out of the sky"

Despite this tragedy and others, Tyrone mentions his mother and grandmother as positive influences, "Yeah, I didn't have any guidance. I didn't have anyone to look to except for my grandmother on my mom's side. You know she and my mom gave me my work ethic and my ability to love. I will always love them for that because, you know, for my first five years, I had nothing but love and even though there were these events. They weren't tragic to me, because I was so young. And my mom was still, you know, she was running around with me in a carrier, and she was a thrift store shopper. She didn't care about money"

He expresses his deep desire to be there for his son, "the second half of my life is going to be where I put my legacy together for my son. He's getting four As and 2 Bs. He just got his report card. He's doing so good in school, he's loving it. He's got, friends. I mean, he's happy and he really loves that we have a good relationship. We talk all the time. And you know, we do stuff. It's something that I didn't have whatsoever, so I know exactly what to give him. Yesterday I got an argument with my dad. And I actually thanked him for being you tell me exactly what not to do"

In describing how he was able to learn from all the trauma, fighting and things he saw going on, "I don't believe in arguments because all it does is piss both parties off. But I do believe in communication and discussion. Yeah, we can agree to disagree, but lets at least listen both over each other sides and not try to make either of us feel like we're inferior to the other. Because there's that starts to occur, then people close down and nothing's heard whatsoever. " Amen Tyrone.

Relating his frustrations with the influx of people into the industry with "certificates and resumes" and bypassing those who have deep lived experience in the industry, real-time. Those who are passed over frequently when in many cases they are far more knowledgeable and educated than those who merely sat in a classroom and were taught about the plant, "I mean, these companies come in and I was brokering trim and there was a couple of companies that came into California and bought all the trim up and now it's $2 higher than what it was before. And they just priced me out of everything. And then if you want to get any type of position with any of these companies they want you to have some resume that shows that you went to some stupid school to get some freakin 'certificate that shows that you can do something."

One of his ongoing concerns with the industry, "So that's another problem with this influx of new money into the industry is that people are so greedy that they'll do anything, they don't care about trying to follow the rules, there's no etiquette whatsoever anymore."

Tyrone goes on to mention, how he cannot believe what he's lived through stating, "Yeah, this is all true, real firsthand experience, not just something that I heard about from somebody else, the third person, this and that. So, yeah, and that's why when I read back thru it, I'm like, I don't even believe it."

And in conclusion, I'll leave you with this quote that gives evidence to the reason Tyrone has survived lived experiences beyond belief and has been able to rise above overwhelming circumstances to come on this podcast and talk to us today. Thanks, Tyrone for your honest, painful, inspiring glimpse of another side of the industry that many don't understand.

"I don't believe in arguments because all it does is both parties off. But I do believe in communication and discussion. Yeah, we can agree to disagree, but lets at least listen over each other sides and not try to make either of us feel like we're inferior to the other. Because when that starts to occur, then people close down and nothing's heard whatsoever. They're just thinking about what they're gonna say". Truth.

From LinkedIn: https://www.linkedin.com/in/tyrone-sky-williams-5b4b45195/
"I’m a second-generation grower with 20 years in indoor hydroponic space design and quality control. Specializing in licensed farm direct THC products of the highest quality. The products personally rigorously tested and vetted from only the best quality. I have designed products that have proven positive results that I will be introducing to the market if anyone is interested in an investment opportunity."

https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/23029545Fri, 21 Feb 2020 14:19:20 +0000Jill WoodworthTyrone Williams is a Proud Father👣 Direct From Source Supplier🌿Licensed THC and Hemp Product Acquisition and Quality Control Specialist🤔Problem Solver. This is his story of life in the fast lane in the early days of the cannabis industry in Southern...
In this episode, Tyrone walks us through the timeline of his life, detailing one challenge after tragedy after another. He is passionate about the potential of cannabis to revolutionalize the world, has deep knowledge of multiple aspects of the cannabis industry, and speaks with passion and purpose about the lack of equity in the industry, as well as the need to respect the living history of those that have sacrificed, lost and suffered defending their right to use the plant over the years. He makes note repeatedly that it's not the cannabis business of today, where we take for granted the reduced stigma and ease of access, but the gritty illegal side of the business, that of Netflix docudramas, in which his father and other relatives were immersed when he was born. Despite the high stakes danger and tragic outcomes of these illegal operations, they laid the groundwork for the movement toward marijuana legalization and reform that exists today.

Tyrone's early years were defined by excitement, tragedy, and turmoil; "One of my first memories is sitting in a pile of money and throwing it up and throwing up in the air like Richie Rich. When I was three years old, we dropped my uncle off at the airport and he was shot down by the Mexican military on his way back. on his way back. He was a very, very good pilot and
It was a C130 plane so there's no way that it would have just fallen out of the sky"

Despite this tragedy and others, Tyrone mentions his mother and grandmother as positive influences, "Yeah, I didn't have any guidance. I didn't have anyone to look to except for my grandmother on my mom's side. You know she and my mom gave me my work ethic and my ability to love. I will always love them for that because, you know, for my first five years, I had nothing but love and even though there were these events. They weren't tragic to me, because I was so young. And my mom was still, you know, she was running around with me in a carrier, and she was a thrift store shopper. She didn't care about money"

He expresses his deep desire to be there for his son, "the second half of my life is going to be where I put my legacy together for my son. He's getting four As and 2 Bs. He just got his report card. He's doing so good in school, he's loving it. He's got, friends. I mean, he's happy and he really loves that we have a good relationship. We talk all the time. And you know, we do stuff. It's something that I didn't have whatsoever, so I know exactly what to give him. Yesterday I got an argument with my dad. And I actually thanked him for being you tell me exactly what not to do"

In describing how he was able to learn from all the trauma, fighting and things he saw going on, "I don't believe in arguments because all it does is piss both parties off. But I do believe in communication and discussion. Yeah, we can agree to disagree, but lets at least listen both over each other sides and not try to make either of us feel like we're inferior to the other. Because there's that starts to occur, then people close down and nothing's heard whatsoever. " Amen Tyrone.

Relating his frustrations with the influx of people into the industry with "certificates and resumes" and bypassing those who have deep lived experience in the industry, real-time. Those who are passed over frequently when in many cases they are far more knowledgeable and educated than those who merely sat in a classroom and were taught about the plant, "I mean, these...]]>2516california,cannabis,cannabisindustry,cartel,coma,depression,entrepreneur,grower,marijuana,marijuanalegalization,mentalhealth,og,opiates,psychedelic,smuggler,spirituality,tbi,weedfalsefullhttps://www.spreaker.com/episode/tsc-talks-michael-pedersen-cannabis-in-canada-cannabis-update-podcast-more--22779830
I appreciated Michael’s willingness to come on the podcast and share some pro-tips related to podcasting and marketing that have already proved helpful. He infuses his work with loads of enthusiasm, wit and genuine interest in all subject matter. It was a lot of fun to chat about common challenges in podcasting, experiences interviewing in the cannabis space as well as hear his thoughts on the state of the cannabis industry in Canada vs the US, and more.

The Cannabis Update Podcast is a podcast that gives leaders & organizations an opportunity to tell their stories and share information. Based on a long-form interview format, the podcast has featured countless industry leaders, giving them an opportunity to communicate their message in a timely and professional manner. This podcast falls under the umbrella of Distinct Media, which he also founded & currently directs.

Here's a quote from Michael discussing the podcast, “My day job is a general manager at a radio station in Calgary, Alberta, Canada. So, my background is in production. So naturally, podcasting is something that I liked originally like, I like listening to them. And when the cannabis whole, the whole business of cannabis in Canada started to evolve and grow, I saw a need for a podcast that sort of interviewed industry players. So with my production background, and with my interest in the cannabis space, I thought, well, this is perfect, why don't I just jump in and start so that's really why I started and I had friends who were investing in Cannabis Stocks in Canada. And when I looked into it, I thought, well, there's got to be a podcast out there, I can listen to where I can learn about the companies. And there wasn't, I thought, Oh, geez, I got it. I better do something here. So that's kind of like how I started, and the podcast has evolved over time. Now it's a little bit more culture and not always business. You know, some science I try really get into the individual, the personalities of the people in the space, so people get to know who's kind of steering the ship in these companies, you know, a little bit more than simply numbers and figures”
He talks about podcasting challenges and how he created Cannabis Media Collective to bring several podcasts together, “Why not create a place where all of us can produce and publish together so that if you subscribe to one thing, the cannabis media collective, every single day, you get a new podcast from a new producer? And you don't have to go around and have 50 subscriptions and try to read through them and all that. The only thing about it though, is it's a lot of work. And it's hard to monetize it, like anything. And yeah, it's hard to make money off it. So, you have to really like it has to be in your heart. You have to want to do this. And you have to write to make it work in your schedule. I have two little boys. So, I'm up at 5 am most days producing and editing and sending emails and all that because that's my time. I can't do it at your school time.”

He mentions challenges getting paid for his work and how he addresses this, “I’ll interview your multimillion-dollar CEO. I'm going to send you a media kit and here My price is (xyz) and they'll say like, Oh, we don't have a budget for this. And I say, well, you gave me that big song and dance about how huge you are and how you're going to be the next Coca Cola of CBD. I don't understand why you can't afford a few hundred dollars for me to put in probably four hours work for you and help you promote yourself?”

We also discussed his thoughts on the cannabis industry as a whole, “Well, I think that we're in a very, very interesting place. And you know, as far as the science that surrounds the cannabis plant is concerned, you know, and I speak for Canada, I think the US is the same. We've been prohibited since like the 1920s. People haven't even in controlled laboratory environments that have not been allowed by law to even look at the plant, which is bonkers. But now, that's all changing, and we have a lot of extremely qualified PhDs chemists that are really looking at it on a molecular level. I think you're going to see in the next decade, a lot of change in the medical environment. But unfortunately, it could turn out that pharmaceutical companies buy up all the technology trademark everything and turn around and sell it to make a profit all over again. Like, it's not to say that this is going to change the world, this could actually just turn into another pharmaceutical avenue of revenue for those guys. And that's what I fear.”

Talking about the differences between the Cannabis market in the US vs. Canada, “And in Canada, it goes province by province, as far as local regulations go on the cannabis plant and retail and that sort of thing. So, I'm in Alberta, and within a year in Alberta, we had 350 stores in our province 350 with a population of about 3 million in the whole province. You take British Columbia, which has a way larger population, a way longer history of cannabis culture. You know, so much great legacy market cannabis has grown there to this day, and they're like, super restrictive. They're just starting to roll stores out now. And it's crazy, but it just boils down to the provincial government and what they decide that they want to do for their own provinces. Some provinces are rolling along making tons of tax revenue. And other ones are still trying to figure out how to make the model work, which is crazy. So, you look at comparing Canada in the US. You go into a legal dispensary in Oregon. They've got so many cool products; you know what I mean? Edibles and different things and you can learn about them. And it's almost like, you know, microbreweries for a beer or something. We don't allow that. Yet. The problem with craft in Canada is that the government requires so much paperwork, for example. And if you want to do a craft facility, you have to build it first before you can apply for a license. So, think about the kind of money you need just to get the ball rolling. They're making it almost impossible craft market to proliferate. Now, will it change? I'm hoping so. And now what they're doing is they're creating co-ops. A lot of craft growers or potential craft growers are saying, Let's work together. Let's build almost like a union. And let's approach it together and all apply together and help each other that way. So that's it. Probably the biggest differences between Canada and the US.”

Regarding medicinal Cannabis in Canada, “we do have clinics in Canada, and most of our major cities now that specialize in diagnosing and prescribing cannabis-related medicine. They tend to be more on the private end because we have social medicine here in Canada. But you can go in there and they have doctors who are making their best efforts to be knowledgeable about cannabis as medicine. So that's changing but the thing is, cannabis isn't really regarded federally as medicine the same way that a prescription might be for some pharmaceutical. A lot of medical cannabis patients in Canada are upset by that, there are different taxes that apply. You can't get it the same way, can't source it. Still a lot of rules and loopholes. If you want cannabis to help you sleep, or maybe stimulate your appetite, there's a whole system you have to go through in order to qualify for it and then get a prescription. They have to order it, and it has to come in the mail…totally different. So, we still have a long way to go with medicinal cannabis here.”

Finally, a parting quote from Michael, followed by his links and recent articles, “Now you can't be afraid to evolve and when you see somebody doing something and you go “that would make it better, just go forget it. I'm doing it. Bang. And that's not to say change everything but don't be afraid of change.”

Michael’s Links:
Cannabis Update Podcast: http://www.cannabisupdate.ca/
Distinct Media: https://www.distinctmedia.ca/
LinkedIn: https://www.linkedin.com/in/michael-pedersen-98263213
Instagram: https://www.instagram.com/cannabisupdatepodcast/
Twitter: https://twitter.com/CannUpdatePod
YouTube: https://www.youtube.com/channel/UCrDyXDaJaoMtFwsXsHi6xhA
Facebook: https://www.facebook.com/cannupdatepod/
Article: https://timlowing.com/read-the-lowdown-here/f/michael-pedersen---canadian-cannabis-update

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/22779830Sat, 15 Feb 2020 10:14:30 +0000Jill WoodworthIt was my pleasure to have Michael Pedersen is Host/Producer of Cannabis Update Podcast, Founder of Distinct Media as well as Station Manager of Multicultural Broadcasting Corporation, Inc. in Calgary Alberta. “Michael has worked in broadcasting and...
I appreciated Michael’s willingness to come on the podcast and share some pro-tips related to podcasting and marketing that have already proved helpful. He infuses his work with loads of enthusiasm, wit and genuine interest in all subject matter. It was a lot of fun to chat about common challenges in podcasting, experiences interviewing in the cannabis space as well as hear his thoughts on the state of the cannabis industry in Canada vs the US, and more.

The Cannabis Update Podcast is a podcast that gives leaders & organizations an opportunity to tell their stories and share information. Based on a long-form interview format, the podcast has featured countless industry leaders, giving them an opportunity to communicate their message in a timely and professional manner. This podcast falls under the umbrella of Distinct Media, which he also founded & currently directs.

Here's a quote from Michael discussing the podcast, “My day job is a general manager at a radio station in Calgary, Alberta, Canada. So, my background is in production. So naturally, podcasting is something that I liked originally like, I like listening to them. And when the cannabis whole, the whole business of cannabis in Canada started to evolve and grow, I saw a need for a podcast that sort of interviewed industry players. So with my production background, and with my interest in the cannabis space, I thought, well, this is perfect, why don't I just jump in and start so that's really why I started and I had friends who were investing in Cannabis Stocks in Canada. And when I looked into it, I thought, well, there's got to be a podcast out there, I can listen to where I can learn about the companies. And there wasn't, I thought, Oh, geez, I got it. I better do something here. So that's kind of like how I started, and the podcast has evolved over time. Now it's a little bit more culture and not always business. You know, some science I try really get into the individual, the personalities of the people in the space, so people get to know who's kind of steering the ship in these companies, you know, a little bit more than simply numbers and figures”
He talks about podcasting challenges and how he created Cannabis Media Collective to bring several podcasts together, “Why not create a place where all of us can produce and publish together so that if you subscribe to one thing, the cannabis media collective, every single day, you get a new podcast from a new producer? And you don't have to go around and have 50 subscriptions and try to read through them and all that. The only thing about it though, is it's a lot of work. And it's hard to monetize it, like anything. And yeah, it's hard to make money off it. So, you have to really like it has to be in your heart. You have to want to do this. And you have to write to make it work in your schedule. I have two little boys. So, I'm up at 5 am most days producing and editing and sending emails and all that because that's my time. I can't do it at your school time.”

He mentions challenges getting paid for his work and how he addresses this, “I’ll interview your multimillion-dollar CEO. I'm going to send...]]>2370alberta,broadcaster,canada,cannabinoidmedicine,cannabis,cannabisculture,cannabisindustry,cannabismediacollective,dispensary,distinctmedia,marketing,medicalcannabis,monetize,pharmaceutical,podcaster,podcasting,radiofalsefullhttps://www.spreaker.com/episode/tsc-talks-trailblazers-nadia-bodkin-ceo-vincent-crowley-svp-of-blaze-therapeutics-llc--22525735
"Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional medical communities that target the improvement of overall health, wellness, and quality of life. We believe in amplifying the beauty of life through the pursuit of wellness. Blaze Therapeutics is comprised of a team of experts concentrated from the healthcare, patient advocacy, nutraceutical and cannabis industries. Blaze Therapeutics is engaged in supporting the open market through Responsible Distribution of plant-based dietary supplements and the Rx market through the pursuit of FDA approved cannabis-based nutraceuticals."

Nadia is also President at EDSers United for Ehlers Danlos Syndrome, but is also a member of the advocacy movement in regards to Blaze. Nadia is a seasoned rare disease patient advocate, born with three main rare conditions herself. Immediately after graduation, Nadia went straight into advocacy through EDSers United, a foundation she founded as a student. Nadia has held leadership positions at several rare disease advocacy focused organizations assisting in everything between nonprofit corporate management to event planning to therapeutic product development. She is also one of the founding members of New Love Ventures LLC and facilitates the coordination of the Rare Advocacy Movement's activities along with fellow colleagues.

Vincent Crowley, Senior VP, is a medically retired veteran of the United States Army. His past experience in the army was as a dental hygienist. He also studied psychology at the University of Maryland. Vincent is co-founder New Love Ventures, During his years of service, Vincent discovered a heightened awareness for his core values, and beliefs (i.e loyalty, duty, respect, selfless service, honor, integrity, and personal courage). Incorporating these core values into his daily life and his passion to help other service members navigate life post military service and transition back into the civilian sector, spurred an interest to earn a degree in Psychology and Mental Health. As a student of the University of Maryland University College, Vincent makes himself available to veterans seeking guidance through social media platforms and in-person meetings. As the Executive Sales Director at Blaze Therapeutics, Vincent is leading the effort to introduce the military community to Blaze Approved nutraceuticals and therapeutics as alternative options to addressing their health concerns."

This episode is rich with information. A few pertinent quotes:

"We both connected over our passion for advocacy work. And his focus has always been on advocating for veterans and helping them transition into civilian life. And after meeting and gaining a better understanding of each other's advocacy work, we learned that both the veteran and rare disease communities are both dealing with very similar socio-economic and healthcare issues."

Discussing the responsible distribution of CBD:

"Responsible distribution model is a model designed specifically for the healthcare industry for cautions taken to protect customers' safety and ultimately protect businesses from potential liability issues. And because the cannabis industry is young and vulnerable, unfortunately, most of the products on the market are contaminated with toxins and labeled inaccurately. So products that are responsibly distributed, come with a certificate of analysis that are unbiased third party tests."

Talking about other products in the holistic industry:

"The overall holistic products industry includes, you know, the spices that we use to season our foods and a lot of our spices have silicone in them. And a lot of our chronic pain is caused by all the different products that have so many toxins that are building up it's increasing our inflammatory system, our bodies are trying to fight all these toxins. It's incredible what we found"

Discussing the role of big pharma and the open CBD market:

"Big Pharma and responsible players from the open market industry can collaborate and work together. When it comes to educating the public and the healthcare industry, doctors need to know what options are available to them and the unfortunate risky realities of the open market so that they can best advise their patients. And consumers need to know that they need to consult with their doctors to identify their personal dosage of CBD, what to ask for and what to avoid when navigating the open market in order to avoid purchasing toxic or fraudulent products"

Regarding the controversy with newly FDA approved CBD isolate medication, Epidiolex:

"And so one of the hot topics that has been circulating the rate of the space currently regarding Epidiolex include sucralose as an inactive ingredient. Because of this, we're seeing some parents and patients with rare epileptic conditions choose to turn to the open market as opposed to taking Epidiolex either on label or off label because of the sucralose, which is an artificial sweetener found in the formulation."..." sucralose significantly decreased beneficial gut bacteria, negative effects have occurred at a sucralose dosage as low as 1.1 milligrams per kilogram, and FDA acceptable daily intake for sucralose is five milligrams per kilogram, so several individuals with GI issues do their best typically stay away from this artificial sweetener"

Continuing this conversation and discussing how doctors can take advantage of what Blaze Therapeutics has to offer:

"So for those practitioners in states with medical marijuana programs, of course, they can manage medical marijuana patients, they can prescribe Epidiolex to patients with certain types of severe epilepsies or they can choose to responsibly distribute CBD by signing up as a wholesaler at Blaze Therapeutics and selling CBD directly to the patients in the office or they sign up under our referral program, the and they receive they receive a percentage of the revenue per order that's made."

On New Love Ventures, LLC:

"So a little plug in there for new love ventures and basically what we're doing with new love ventures. It's a new love culture, it's a social movement to help people bring awareness to themselves and being human, you know, looking out for their, their fellow person, regardless of what they're doing in their lives and what they believe in"

There is a large amount of detailed but well-explained information contained in this episode. A final quote on how we as patients can ask doctors to enter the conversation which is of utmost importance:

"Can you please reach out to blazetherapeutics.com and the people there or just call that company and then we will help educate them in an expedited, then we understand their busy schedules, we will provide them with the materials in order for them to learn what they need to do in order to help their patients. Right now the stigma within the health care community has dwindled. There's enough clinical evidence out there for cannabis. So now doctors are actually learning "

Thanks for listening! For more information, see the following links:

Website: https://www.blazetherapeutics.com/
Website Resources: https://www.blazetherapeutics.com/resources
Facebook: https://www.facebook.com/blazetherapeutics/
Instagram: https://www.instagram.com/blazetherapeutics/
Twitter: https://twitter.com/blazetherapy
LinkedIn: https://www.linkedin.com/company/blaze-therapeutics/
New Love Ventures: https://www.newloveculture.com/
Nadia on LinkedIn: https://www.linkedin.com/in/nadiabodkin/
Vincent on LinkedIn: https://www.linkedin.com/in/vincent-crowley-a87a1a55/
Nadia Bodkin Rare Advocacy Movement: https://www.rareadvocacymovement.com/nadia-bodkin

Thanks for tuning in!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/22525735Sat, 08 Feb 2020 12:13:00 +0000Jill WoodworthNadia Bodkin, CEO and Vincent Crowley, SVP of Blaze Therapeutics, LLC are an incredible team bringing a rich and relevant background of lived and learned experience across multiple special interest groups, including the rare disease community,...
"Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional medical communities that target the improvement of overall health, wellness, and quality of life. We believe in amplifying the beauty of life through the pursuit of wellness. Blaze Therapeutics is comprised of a team of experts concentrated from the healthcare, patient advocacy, nutraceutical and cannabis industries. Blaze Therapeutics is engaged in supporting the open market through Responsible Distribution of plant-based dietary supplements and the Rx market through the pursuit of FDA approved cannabis-based nutraceuticals."

Nadia is also President at EDSers United for Ehlers Danlos Syndrome, but is also a member of the advocacy movement in regards to Blaze. Nadia is a seasoned rare disease patient advocate, born with three main rare conditions herself. Immediately after graduation, Nadia went straight into advocacy through EDSers United, a foundation she founded as a student. Nadia has held leadership positions at several rare disease advocacy focused organizations assisting in everything between nonprofit corporate management to event planning to therapeutic product development. She is also one of the founding members of New Love Ventures LLC and facilitates the coordination of the Rare Advocacy Movement's activities along with fellow colleagues.

Vincent Crowley, Senior VP, is a medically retired veteran of the United States Army. His past experience in the army was as a dental hygienist. He also studied psychology at the University of Maryland. Vincent is co-founder New Love Ventures, During his years of service, Vincent discovered a heightened awareness for his core values, and beliefs (i.e loyalty, duty, respect, selfless service, honor, integrity, and personal courage). Incorporating these core values into his daily life and his passion to help other service members navigate life post military service and transition back into the civilian sector, spurred an interest to earn a degree in Psychology and Mental Health. As a student of the University of Maryland University College, Vincent makes himself available to veterans seeking guidance through social media platforms and in-person meetings. As the Executive Sales Director at Blaze Therapeutics, Vincent is leading the effort to introduce the military community to Blaze Approved nutraceuticals and therapeutics as alternative options to addressing their health concerns."

This episode is rich with information. A few pertinent quotes:

"We both connected over our passion for advocacy work. And his focus has always been on advocating for veterans and helping them transition into civilian life. And after meeting and gaining a better understanding of each other's advocacy work, we learned that both the veteran and rare disease communities are both dealing with very similar socio-economic and healthcare issues."

Discussing the responsible distribution of CBD:

"Responsible distribution model is a model designed specifically for the healthcare industry for cautions taken to protect customers' safety and ultimately protect businesses from potential liability issues. And because the cannabis industry is young and vulnerable, unfortunately, most of the products on the market are contaminated with toxins and labeled inaccurately. So products that are responsibly distributed, come with a certificate of analysis that are unbiased third party tests."

Talking about other products in the holistic industry:

"The overall holistic products industry includes, you...]]>3627blazetherapeutics,cannabinoids,cannabis,cbd,doctors,education,endocannabinoidsystem,health,healthcare,medical,newloveventures,nutraceuticals,rarediseaseadvocate,rarediseases,responsibledistribution,tsctalks,veteranadvocate,veteransfalsefullhttps://www.spreaker.com/episode/tsc-talks-canna-combo-mini-pod-with-blaze-therapeutics-michael-pedersen-tyrone-william-mike-robinson--22270185
1-"Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional medical communities that target the improvement of overall health, wellness, and quality of life. We believe in amplifying the beauty of life through the pursuit of wellness.

Blaze Therapeutics, Nadia Bodkin-Rare Disease Advocacy Professional, Executive Officer, Philanthropist and Vincent Crowley-Senior Vice President-Blaze is comprised of a team of experts concentrated from the healthcare, patient advocacy, nutraceutical and cannabis industries. Blaze Therapeutics is engaged in supporting the open market through Responsible Distribution of plant-based dietary supplements and the Rx market through the pursuit of FDA approved cannabis-based nutraceuticals."
Website: http://www.blazetherapeutics.com

2-Michael Pederson, Host, Producer of Cannabis Update Podcast. "This podcast features stories about the leaders and organizations involved in cannabis legalization in Canada. This is not a "Pro Pot"​ podcast, but a balanced representation of news and information pertaining to legalization"
Website: https://www.distinctmedia.ca/cannabis-update-podcast

3- Tyrone Williams-Proud Father👣 Direct From Source Supplier🌿License THC and Hemp Product Acquisition and Quality Control Specialist. I’m a second generation grower with 20 years in indoor hydroponic space design and quality control. Specializing in licensed farm direct THC products of the highest quality. The products personally rigorously tested and vetted from only the best quality. I have designed products that have proven positive results that I will be introducing to the market, if anyone is interested in an investment opportunity.

https://www.linkedin.com/in/tyrone-william-5b4b45195

4- Mike Robinson -Cancer Survivor/Cannabis Activist, Founder, Global Cannabinoid Research Ctr., Chief Operating Officer at Nanobles, Inc. "Cannabis is Medicine and it's important it's recognized globally as such by all nations. Setting the pace now to educate those providing healthcare is imperative for both patients and providers. As a cancer survivor with severe epilepsy that quit a 24 yr. pharma opioid addiction with the use of Cannabis oils to overcome, choosing a healthy alternative medicine was the key to my own success - and for many is the key to exit the Pandora's Box of addiction, illness, and so much more."

https://www.mikesmedicines.com/mikes-other-publications/
https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192

Thanks for tuning in! Stay tuned for Blaze Therapeutics up this week and keep on keepin' on.
https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/22270185Fri, 31 Jan 2020 14:15:35 +0000Jill WoodworthA mini compilation of a few Canna conversations; Blaze Therapeutics, Michael Pedersen, Tyrone Williams & past guest Mike Robinson. 1-"Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional...
1-"Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional medical communities that target the improvement of overall health, wellness, and quality of life. We believe in amplifying the beauty of life through the pursuit of wellness.

Blaze Therapeutics, Nadia Bodkin-Rare Disease Advocacy Professional, Executive Officer, Philanthropist and Vincent Crowley-Senior Vice President-Blaze is comprised of a team of experts concentrated from the healthcare, patient advocacy, nutraceutical and cannabis industries. Blaze Therapeutics is engaged in supporting the open market through Responsible Distribution of plant-based dietary supplements and the Rx market through the pursuit of FDA approved cannabis-based nutraceuticals."
Website: http://www.blazetherapeutics.com

2-Michael Pederson, Host, Producer of Cannabis Update Podcast. "This podcast features stories about the leaders and organizations involved in cannabis legalization in Canada. This is not a "Pro Pot"​ podcast, but a balanced representation of news and information pertaining to legalization"
Website: https://www.distinctmedia.ca/cannabis-update-podcast

3- Tyrone Williams-Proud Father👣 Direct From Source Supplier🌿License THC and Hemp Product Acquisition and Quality Control Specialist. I’m a second generation grower with 20 years in indoor hydroponic space design and quality control. Specializing in licensed farm direct THC products of the highest quality. The products personally rigorously tested and vetted from only the best quality. I have designed products that have proven positive results that I will be introducing to the market, if anyone is interested in an investment opportunity.

https://www.linkedin.com/in/tyrone-william-5b4b45195

4- Mike Robinson -Cancer Survivor/Cannabis Activist, Founder, Global Cannabinoid Research Ctr., Chief Operating Officer at Nanobles, Inc. "Cannabis is Medicine and it's important it's recognized globally as such by all nations. Setting the pace now to educate those providing healthcare is imperative for both patients and providers. As a cancer survivor with severe epilepsy that quit a 24 yr. pharma opioid addiction with the use of Cannabis oils to overcome, choosing a healthy alternative medicine was the key to my own success - and for many is the key to exit the Pandora's Box of addiction, illness, and so much more."

https://www.mikesmedicines.com/mikes-other-publications/
https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192

Thanks for tuning in! Stay tuned for Blaze Therapeutics up this week and keep on keepin' on.
https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>756alternativemedicine,canada,cannabinoid,cannabis,cannabisindustry,cannabisupdatepodcast,cbd,drugcartel,endocannabinoidsystem,epilepsy,grower,medical,medicalcannabis,medicalmarijuana,pharmaceutical,plantmedicine,podcaster,polypharmacy,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-10-and-ace-despite-it-all-on-tbi-with-nikki-lawley-former-pediatric-nurse-tbi-survivor-cannabis-patient--22015445
Nikki states: "I suffered both a traumatic brain (TBI) and whiplash injury to my neck. Due to this, I have been unable to work as a nurse ever since. My injury also comes with some debilitating symptoms, which include cognitive issues, chronic headaches, and severe neck pain. Cannabis helps alleviate my pain, bringing it from a 7/10 daily pain and down to a more tolerable 2 and 3. Other symptoms of my injury include impacted balance/coordination, visual impairment, and depression/anxiety."

She details what was an active, chock full life, growing up in Buffalo, NY, relocating to Fort Myers, FLA and then returning to the Buffalo area, having to change careers moving from nursing to HVC sales, working at a local Planned Parenthood and back to nursing, as well as taking on a second job as a blackjack dealer at a local casino. After listening to Nikki talk about how she was able to roll with life's challenges repeatedly and reinvent herself time after time, one can see how life as she knew it coming to a screeching halt after her TBI, was a brutal blow. It was in part, the perseverance and tenacity from years of walking through changes and challenges that gave her the ability to push to find answers and not give up after her injury.

Regarding the aftermath of the TBI, she states, "And I expected to be out a day, maybe two, definitely not three-plus years. And when I say, I could not cognitively function, I could not stop the head pain. I literally cried for the first year after my injury so often, because I just, I had so many different medications and yeah, so many treatments failed and people were like, "Well, it can't be from the concussion." She goes on to further explain, "So two of my ligaments are completely level three in the front and they really caused a huge amount of issues as far as, I get no cerebral spinal fluid CSF flow to my frontal parts of my brain because of the way the bones are and again, it causes complete compression and occlusion of the CSF flow. The neurosurgeon said, Oh, you don't need surgery will wire back to work and, and I constantly felt like I had to tell people my side of the story like I'm not crazy people, there's something really wrong. It is not normal to never not have a headache. So one of the biggest things that devastated me and probably the most of my cognitive challenges was I can't count anymore. When I worked at the casino, I emptied a deck of cards. So fast in blackjack, and I could count like backward. Just never a challenge. I cannot count higher (now) consistently than five."

So after years of seeking treatments, paying out of her own pocket repeatedly, traveling around the country and doing everything and anything she could to lessen the daily nightmare she was living in, on a trip to Vegas, she saw a "sign from God" in the form of a billboard advertising,

“So I'm standing outside looking and it's hot, and it's like, the sun's on my face. So, I should be feeling happy because I came out of Buffalo in January. I wonder though. They have these driving billboards on the Vegas Strip, and I see this “get your medical cannabis card today. ..call one 800 get your weed card” and I’m like, I doubt that'll help. And then it comes back by again. What the hell? So, my husband came back from a walk because he said I literally can't stand to be around you. I have to get out of the room. Yeah. So I mentioned to him when he gets back, I'm like, there's this billboard, “get your weed card”, you know and he said do it. He said, “Do it like just do it now. Let's do it.”

Nikki was finally able to find some relief with some guidance and using particular strains of cannabis that she has only been able to find in Nevada and Canada. The cannabis took her pain from a daily level 7/10 to a 2/3 on the pain scale. However, it has been incredibly frustrating not to have access to the strains of cannabis that actually work in her home state of NY due to restrictive regulations. Nikki often travels to Nevada and Canada to find the right strains that give her the relief that allows her to function.

Throughout this journey, despite hitting some true "window ledges" where she didn't know how she was going to go on, she's come back to being a passionate and eloquent advocate for TBI survivors, sharing her story of hope and the amazing potential of the cannabis plant every chance she gets.

"What I do now is I just started sharing my story. I sent it to Mike (Mike Robinson, Cannabis Advocate/Activist) and I have a very good friend Rachelle Gordon, who is a writer for financial cannabis news. And she kind of helped me lose some of the rambles and make my story more concise. And then I said to Mike, "I don't know do you think this is worth having more exposure? Do you think people want to hear about this?" You know, I'm not trying to be famous in any way shape or form. I'm just trying to promote awareness."

For Nikki, while cannabis has provided relief, she still struggles with misunderstanding and judgment because injuries related to TBI are invisible. Sharing this final quote here;

"But you know, if nothing else, since this injury, I've learned so many things about chronic illness, and how, how much is misunderstood about it. And just because somebody doesn't have a broken leg or isn't in a wheelchair doesn't mean they're not disabled, it doesn't mean that they're not challenged in some way. If I use my parking sticker, it's usually when it's icy out, and I met a huge risk fall risk. So I still suffer with dizziness and balance issues and depth perception issues. I feel guilty that as the person using that sometimes, and I shouldn't."

There's a lot more in this episode you don't want to miss! Thank you Nikki Lawley for the inspiration and education on TBI, cannabis and dealing with life!

Nikki's links:
LinkedIn: https://www.linkedin.com/in/nikki-lawley-aa281517/
Facebook: https://www.facebook.com/nikki.lawley
Instagram: https://www.instagram.com/lawleynikki/?hl=en
Recent podcast: https://player.fm/series/coffee-party-usa-radio/i-want-access-4-all-nurse-nikki-lawley-stops-by-for-a-cup-of-joe
Blog article: https://www.mikesmedicines.com/medical-marijuana/cannabis-shopping-with-nikki-lawley-everyone-is-unique/
Nikki's book suggestion: https://www.amazon.com/Medical-Cannabis-Primer-Ushering-Marijuana/dp/1885176023

https://tsctalks.com STAY TUNED FOR MORE!
TBI One Love: https://www.tbionelove.com/single-post/TBI-One-Love-Survivor-Nikki-Lawley

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/22015445Fri, 24 Jan 2020 12:34:29 +0000Jill WoodworthNikki Lawley is a former pediatric nurse, former blackjack dealer and much more, who went from a full active life to chronic daily pain and other debilitating symptoms after suffering a traumatic brain injury on the job in 2016. This is the story of...
Nikki states: "I suffered both a traumatic brain (TBI) and whiplash injury to my neck. Due to this, I have been unable to work as a nurse ever since. My injury also comes with some debilitating symptoms, which include cognitive issues, chronic headaches, and severe neck pain. Cannabis helps alleviate my pain, bringing it from a 7/10 daily pain and down to a more tolerable 2 and 3. Other symptoms of my injury include impacted balance/coordination, visual impairment, and depression/anxiety."

She details what was an active, chock full life, growing up in Buffalo, NY, relocating to Fort Myers, FLA and then returning to the Buffalo area, having to change careers moving from nursing to HVC sales, working at a local Planned Parenthood and back to nursing, as well as taking on a second job as a blackjack dealer at a local casino. After listening to Nikki talk about how she was able to roll with life's challenges repeatedly and reinvent herself time after time, one can see how life as she knew it coming to a screeching halt after her TBI, was a brutal blow. It was in part, the perseverance and tenacity from years of walking through changes and challenges that gave her the ability to push to find answers and not give up after her injury.

Regarding the aftermath of the TBI, she states, "And I expected to be out a day, maybe two, definitely not three-plus years. And when I say, I could not cognitively function, I could not stop the head pain. I literally cried for the first year after my injury so often, because I just, I had so many different medications and yeah, so many treatments failed and people were like, "Well, it can't be from the concussion." She goes on to further explain, "So two of my ligaments are completely level three in the front and they really caused a huge amount of issues as far as, I get no cerebral spinal fluid CSF flow to my frontal parts of my brain because of the way the bones are and again, it causes complete compression and occlusion of the CSF flow. The neurosurgeon said, Oh, you don't need surgery will wire back to work and, and I constantly felt like I had to tell people my side of the story like I'm not crazy people, there's something really wrong. It is not normal to never not have a headache. So one of the biggest things that devastated me and probably the most of my cognitive challenges was I can't count anymore. When I worked at the casino, I emptied a deck of cards. So fast in blackjack, and I could count like backward. Just never a challenge. I cannot count higher (now) consistently than five."

So after years of seeking treatments, paying out of her own pocket repeatedly, traveling around the country and doing everything and anything she could to lessen the daily nightmare she was living in, on a trip to Vegas, she saw a "sign from God" in the form of a billboard advertising,

“So I'm standing outside looking and it's hot, and it's like, the sun's on my face. So, I should be feeling happy because I came out of Buffalo in January. I wonder though. They have these driving billboards on the Vegas Strip, and I see this “get your medical cannabis card today. ..call one 800 get your weed card” and I’m like, I doubt that'll help. And then it comes back by again. What the...]]>3495blackjack,blackjackdealer,cannabinoidmedicine,cannabis,chronicpain,cognitiveissues,headaches,hope,medicalcannabis,medicalmarijuana,mentalhealth,neurology,nurse,nursing,pediatricnurse,tbi,tbisurvivor,traumaticbraininjury,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-no-holds-barred-advocate-extraordinaire-daniel-price-tsc-rare-disease-adoption-lgbtq-advocate--21761966
This happens to be one of Daniel Price’s favorite quotes and as you will see and hear, has truly framed the way Daniel lives his life. Daniel Price, a rare disease and adoption advocate, and young adult from the Seattle Washington area who is living with TSC. He’s Auxiliary Adult Regional Coordinator West and has been an active volunteer for the last 3+ years. Working in the airline/travel industry part-time, has given Daniel the opportunity and scheduling flexibility to travel the country and to parts of the globe to participate in TSC conferences and other events such as; Step Forward to Cure TSC walks in Seattle as well as Northern and Southern California; Sound Bites in Minnesota; Regional Conferences in Houston, San Diego, Saint Louis and Los Angeles; and the 2018 TSC World Conference in Dallas. Recently he attended the TS Alliance Board Meeting in Chicago and the 2019 March on Capitol Hill in Washington, DC. He’s flown to Melbourne, Australia to help them with their first Comedy for a Cure.

Daniel was adopted from mainland China at the age of 3 and diagnosed with TSC at the age of 6 when visiting a dermatologist to examine the red bumps on his face. He is the only family member with a rare genetic disease and states, “I've had seizures as a younger child. Development delay issues in K through 12 education and had a special education program. I've gone through a speech and language program, was kicked out and then put back in later in my K to 12 programs and have had many other challenges through trying to maintain in work, living and other daily challenges as well facing life “

Daniel’s mother sought the best treatments for Daniel as she could at the time but the TS Alliance was just being formed and there was not as much information available about TSC as there is currently. Eventually, Daniel found the TS Alliance, stating, “I reached out to- I think the headquarters in DC and they mailed me out to a couple of people in the Washington area. And they email-connected me to someone named Gloria, and I was like, Oh, okay. And then she's said that we're going to have a picnic coming up in Seattle. So, then I go to this picnic and meet other people (with TSC & families), and it changed my life. It changed the way I saw it. So yeah. I've learned a lot from Gloria and the other people that within the TSC community within the Pacific Northwest”

Seeking better medical care, Daniel traveled to the TS Clinic in Cincinnati and was excited to be able to visit all TSC related specialists in one location and talk to medical professionals with specific expertise in treating TSC. He carries a book on TSC with him to every appointment and hospital visit to share with any and all of the treating team to not only make sure they have a quick reference guide on TSC at their fingertips but also raise awareness of the condition and educate as many people as possible.

Outlining ongoing challenges Daniel states, “I mainly struggle with TAND, (stands for) tuberous sclerosis complex neuropsychological disorder. I struggle a lot with depression, anxiety, mood swings, socializing with other people. And many people just don’t see it They see a regular person going to work, paying their bills, driving, going to school, but they don't see the outcome of what TAND or TSC. They don't see the real picture. They don't see the big picture of what TAND can do. I do get mood swings. There are times where I just want to like shut people off and shut off from the world when it's just too much sometimes”

We discuss his return to China, with his entire family, and was able to meet caregivers and other members of the local community who remembered Daniel and what a moving experience this was. Daniel talks about coming out as a gay man being an active member of the LGBTQ community and his desire to find connections with others who are in this community that also have a rare disease.

“So I came out four or five years ago…I came out as a gay man, a young person questioning my sexuality, but also I was trying to (a couple years ago), connect with people with a rare genetic disease, but also who have been adopted and part of the LGBTQ community as well. I have not been able to find anyone. I've been to other organizations on the west coast and other people who are LGBTQ but have not been able to connect with other people that have the other two aspects.”

There’s a lot more in this episode. In conclusion, Daniel states eloquently; “the most meaningful thing is being able to advocate at different events, socializing with other people within the TSC community, connecting with them, learning from them. But being a voice for those that don't have…or can't give a voice. Learning how to cope with things from other people, learning their styles, learning how they advocate for change, being able to go to events and help raise money to help eradicate this disease. Being able to be that change, to help other people who can't help themselves or help other people within the community. They may be a little shy or closed off from other people, not only just here, not only just in the TSC community, but the LGBTQ community and adoption community, or any community. I am thankful to have the privilege to advocate, to be able to change the way other people perceive TSC Tuberous sclerosis complex-a rare genetic disease, adoption, LGBTQ or any of those communities.”

Here are Daniel’s links!

Facebook: https://www.facebook.com/daniel.price.1694
Instagram: https://www.instagram.com/pricendaniel/
LinkedIn: https://www.linkedin.com/in/daniel-n-price-7270156a/
https://www.tsalliance.org/wp-content/uploads/2019/06/06-June-Adults-with-TSC-Newsletter.pdf
https://www.rareiscommunity.com/2019/11/27/navigating-a-forever-home-with-a-rare-disease-daniels-story/

Links on Adoption:
https://www.adoptioncouncil.org/
http://www.adoptioncouncil.org/2020-gala https://adoptionsbygladney.com/ http://www.gladneyasia.org/index.html
http://cccwaen.mca.gov.cn/
China Center for Children's Welfare and Adoption (CCCWA) and Bridge of Love Adoption Services (BLAS) https://www.ccaifamily.org/
https://onesky.org/
http://moveablefest.com/nanfu-wang-one-child-nation/?fbclid=IwAR3e4i5m-Ajkl1Bj5efLC88IJX7lnIFw1Py0qqBM66kv29tLog97RjSjlX4
https://www.holtinternational.org/

LGBTQ links for Asian Americans who are LGBTQ:
https://www.facebook.com/pg/crn.ngo/about/
https://gapafoundation.org/ in SF

Stay tuned for more, including information about a new podcast hosted by Thomas Van Antwerp, Chief Development Officer of Nicky’s Gardens of Hope discussing issues related to “The Cliff”….turning 21 with Autism, IDD, TSC…”, appropriately named, “Over The Cliff”. (https://nickysgardensofhope.com). Thanks for tuning in! https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/21761966Fri, 17 Jan 2020 12:37:23 +0000Jill Woodworth“You are here for a purpose. There is not a duplicate of you in the whole wide world; there never has been, there never will be. You were brought here now to fill a certain need. Take time to consider what it might be.” Lou Austin. This happens to...
This happens to be one of Daniel Price’s favorite quotes and as you will see and hear, has truly framed the way Daniel lives his life. Daniel Price, a rare disease and adoption advocate, and young adult from the Seattle Washington area who is living with TSC. He’s Auxiliary Adult Regional Coordinator West and has been an active volunteer for the last 3+ years. Working in the airline/travel industry part-time, has given Daniel the opportunity and scheduling flexibility to travel the country and to parts of the globe to participate in TSC conferences and other events such as; Step Forward to Cure TSC walks in Seattle as well as Northern and Southern California; Sound Bites in Minnesota; Regional Conferences in Houston, San Diego, Saint Louis and Los Angeles; and the 2018 TSC World Conference in Dallas. Recently he attended the TS Alliance Board Meeting in Chicago and the 2019 March on Capitol Hill in Washington, DC. He’s flown to Melbourne, Australia to help them with their first Comedy for a Cure.

Daniel was adopted from mainland China at the age of 3 and diagnosed with TSC at the age of 6 when visiting a dermatologist to examine the red bumps on his face. He is the only family member with a rare genetic disease and states, “I've had seizures as a younger child. Development delay issues in K through 12 education and had a special education program. I've gone through a speech and language program, was kicked out and then put back in later in my K to 12 programs and have had many other challenges through trying to maintain in work, living and other daily challenges as well facing life “

Daniel’s mother sought the best treatments for Daniel as she could at the time but the TS Alliance was just being formed and there was not as much information available about TSC as there is currently. Eventually, Daniel found the TS Alliance, stating, “I reached out to- I think the headquarters in DC and they mailed me out to a couple of people in the Washington area. And they email-connected me to someone named Gloria, and I was like, Oh, okay. And then she's said that we're going to have a picnic coming up in Seattle. So, then I go to this picnic and meet other people (with TSC & families), and it changed my life. It changed the way I saw it. So yeah. I've learned a lot from Gloria and the other people that within the TSC community within the Pacific Northwest”

Seeking better medical care, Daniel traveled to the TS Clinic in Cincinnati and was excited to be able to visit all TSC related specialists in one location and talk to medical professionals with specific expertise in treating TSC. He carries a book on TSC with him to every appointment and hospital visit to share with any and all of the treating team to not only make sure they have a quick reference guide on TSC at their fingertips but also raise awareness of the condition and educate as many people as possible.

Outlining ongoing challenges Daniel states, “I mainly struggle with TAND, (stands for) tuberous sclerosis complex neuropsychological disorder. I struggle a lot with depression, anxiety, mood swings, socializing with other people. And many people just don’t see it They see a regular person going to work, paying their bills, driving, going to school, but they don't see the outcome of what TAND or TSC. They don't see the real picture. They don't see the big picture of what TAND can do. I do get mood swings. There are times where I just want to like shut people off and shut off from the world when it's just too much sometimes”

We discuss his return to China, with his entire family, and was able to meet caregivers and other members of the local community who remembered Daniel and what...]]>2177adoption,adoptionadvocate,advocate,china,depression,lgbtq,medical,mentalhealth,neurological,raisingawareness,raredisease,rarediseaseadvocate,specialeducation,tand,tsalliance,tsc,tuberoussclerosiscomplex,volunteerfalsefullhttps://www.spreaker.com/episode/tsc-talks-tiffani-goff-unplugged-author-of-loving-tiara-memoir-mom-wife-interior-decorator-chronic-volunteer--21540813
What Tiffani details is often heart-rending and painful, Treatment after medication after surgery after procedure. In Tiffani’s own words; “So whenever normally work, didn't work for her. So it was a lot of trial and error. And I think for even families who have a child not as affected (by TSC) as Tiara, that's the most important piece as a parent and/or caretaker is being able to identify; Is this a behavior from medication? What're the side effects? What is the actual condition? How is my child feeling when they can't communicate? That's the hardest part and guessing and guessing. Am I doing this right? Am I doing this wrong?... but I kind of feel like the best advice, if I'm giving advice was kind of just gotta go with your gut. And you just have to really pay attention.”

Managing a condition such as TSC requires a parent or caregiver become incredibly knowledgeable about various aspects of medicine, A TSC case manager is a person that has learned to traverse multiple systems of care at the same time and bridge the communication gaps between these systems of care in order to make sure nothing slips through the cracks, amassing legions of knowledge about pharmaceuticals, insurance companies, social services, the mental health and behavioral health industry, dentistry, and more in order to insure that all treating are as close to on the same page as possible.

“And when I was dealing with Tiara after the first couple meds didn't work, and I knew they weren't working and I realized that some of the doctors, like when a doctor, in the beginning, who's our first doctor, just picked up and left. I was like, Oh, my, I realized I'm responsible for her. So a doctor can just leave us and he was like our lifeline. And so that first made me realize I have to be in charge here. I can't just depend, (on anyone) and then when you can't get visits, so I just put aside my fear. I think that is one of the biggest things for anyone, whether not getting a new job or being afraid to speak up, is fear. And I just was …I am not going to. I was scared, but I was like, forget it. I'm not being scared.”

Tiffani continues throughout the episode to walk us through the timeline of her life managing Tiara’s TSC diagnosis, which got more involved, complicated and convoluted with each passing day but also impinged greatly on the lives of her family, She discusses these challenges as well. Challenges to find balance in the midst of chaos, challenges to stay connected to all of our family members and fulfill our “societal obligations” when our hearts are breaking in pieces daily.

“So I think I just knew Tiara was not going to live forever. So it was kind of like, I know she's taking up so much time but these kids are here for a reason. I've got two other kids and I can't drop the ball and I knew wasn't going to be forever. You know, so it was kind of like God was keeping me going because they were going to be here. I knew they were going to be here a lot longer, and I just couldn't abandon them. And my husband is the sweetest guy in the whole world. But he's never filled out a piece of paperwork for school. He doesn't know. He didn't know any of that, you know, he didn't even know how to find the volleyball schedule online. So, if I wasn't going to do it, nobody was going to do it. Let me do it. And then when Tiara was here, then well, you know, I just felt like, I didn't have a choice. And I was always trying to overcompensate. I would not sleep.”

Tiffani talks as well about coping throughout Tiara’s journey, and in the days following her passing, discussing her faith in this quote that I absolutely love for it’s authenticity, humor and deep wisdom, in my opinion; “And then after Tiara passed away, I went to mass every day. I mean, that's what it is. There are so many downsides to being a Catholic. But one of the great things about being a Catholic is that you can go to any church in the world. And everyone's saying the same prayer on the same day and standing up and kneeling. And it's just like a meditation for me. And I don't limit myself to the Catholic beliefs. It's like, that's my home. I love those people. I go there, there's so many faults and so much that’s wrong. But it kind of just kind of keeps me centered. Because I do believe in mediums and psychics and I believe if you're Buddhist, your God is still going to be the same as my God, I just like, being a good person and living with integrity. And doing the right thing is my God. And so, it just happens to be I find that at my church.”

Finally, Tiffani discusses poignantly the final days when Tiara was in hospice an she had an interaction with a hospice doctor; “so when we went home from that visit, on hospice when the hospice physician came over, and I was describing Tiara and her life, and she was only able to crawl (at this point in her life) and he was very quiet. It went on and on. And it was so quiet, and I said, Do you think that she's going to pass away? Like, what do you think? And he said, “’ I've kind of never seen something like this. And I'm having a hard time telling you how I'm feeling (he said), because she is suffering so much, and I can't believe you can still find joy for her.’” And he said, “I can't believe you've made it this far”. I was like, Really? I mean, he couldn’t talk. I was like, so you think she's going to die? And he said, “yeah, I don't know how she's still alive. We're keeping her alive.” I was so baffling to me. But it was confirming that I wasn't crazy because he was a total outside person who'd never met her. And just looking at her, and just the way she was struggling to walk or to breathe and how was like, “I need to let her go.”

The full episode is full of wisdom, humor, honesty, tears and a testament to the inner strength, faith and passion on Tiffani’s behalf, a final quote on the power of authenticity in written form, “it's going to benefit our whole community. You know, because having this many people read about TSC and I'm sadly My story is, other people’s story. There are other families that live that same story. But they don't have the way to get it out.”

Tiffani’s links!
Purchase the book! 😊 https://amzn.to/2s7tMLg
Tiffani’s amazon page: https://amzn.to/2QDbvPo
Website: https://tiffanigoff.com/
Facebook: https://www.facebook.com/TiffaniGoffAtHome/
Twitter: https://twitter.com/twigdecor?lang=en
Instagram: https://www.instagram.com/tiffanigoff/?hl=en
YouTube: https://www.youtube.com/user/tiffanigoff
LinkedIn: https://www.linkedin.com/in/tiffanigoff/
https://www.goodreads.com/book/show/48912091-loving-tiara
Indiebound.org
Barnesandnoble.com
https://nonfictionauthorsassociation.com/directory/25788/tiffani-goff/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/21540813Fri, 10 Jan 2020 12:24:52 +0000Jill WoodworthI was honored to interview Tiffani Goff, mother, blogger, author of Loving Tiara: A Memoir on the podcast. I followed Tiffani’s journey with her daughter Tiara who had TSC for several years on Facebook as she shared glimpses from her day to day life...
What Tiffani details is often heart-rending and painful, Treatment after medication after surgery after procedure. In Tiffani’s own words; “So whenever normally work, didn't work for her. So it was a lot of trial and error. And I think for even families who have a child not as affected (by TSC) as Tiara, that's the most important piece as a parent and/or caretaker is being able to identify; Is this a behavior from medication? What're the side effects? What is the actual condition? How is my child feeling when they can't communicate? That's the hardest part and guessing and guessing. Am I doing this right? Am I doing this wrong?... but I kind of feel like the best advice, if I'm giving advice was kind of just gotta go with your gut. And you just have to really pay attention.”

Managing a condition such as TSC requires a parent or caregiver become incredibly knowledgeable about various aspects of medicine, A TSC case manager is a person that has learned to traverse multiple systems of care at the same time and bridge the communication gaps between these systems of care in order to make sure nothing slips through the cracks, amassing legions of knowledge about pharmaceuticals, insurance companies, social services, the mental health and behavioral health industry, dentistry, and more in order to insure that all treating are as close to on the same page as possible.

“And when I was dealing with Tiara after the first couple meds didn't work, and I knew they weren't working and I realized that some of the doctors, like when a doctor, in the beginning, who's our first doctor, just picked up and left. I was like, Oh, my, I realized I'm responsible for her. So a doctor can just leave us and he was like our lifeline. And so that first made me realize I have to be in charge here. I can't just depend, (on anyone) and then when you can't get visits, so I just put aside my fear. I think that is one of the biggest things for anyone, whether not getting a new job or being afraid to speak up, is fear. And I just was …I am not going to. I was scared, but I was like, forget it. I'm not being scared.”

Tiffani continues throughout the episode to walk us through the timeline of her life managing Tiara’s TSC diagnosis, which got more involved, complicated and convoluted with each passing day but also impinged greatly on the lives of her family, She discusses these challenges as well. Challenges to find balance in the midst of chaos, challenges to stay connected to all of our family members and fulfill our “societal obligations” when our hearts are breaking in pieces daily.

“So I think I just knew Tiara was not going to live forever. So it was kind of like, I know she's taking up so much time but these kids are here for a reason. I've got two other kids and I can't drop the ball and I knew wasn't going to be forever. You know, so it was kind of like God was keeping me going because they were going to be here. I knew they were going to be here a lot longer, and I just couldn't abandon them. And my husband is the sweetest guy in the whole world. But he's never filled out a piece of paperwork for school. He doesn't know. He didn't know any of that, you know, he didn't even know how to find the...]]>3797author,autism,behavior,blogger,epilepsy,hospitals,infantilespasms,intellectualdisabilities,interiordesigner,lovingtiara,medical,mentalhealth,neurology,polypharmacy,ptsd,seizures,siblingimpact,tuberoussclerosiscomplex,writer,writterfalsefullhttps://www.spreaker.com/episode/tsc-talks-o-pioneer-on-assistive-technology-with-rj-cooper-ceo-and-founder-at-rj-cooper-associates-inc--21289222
In his own words: I love what I do because my products make a tangible impact on the lives of the users by unlocking their hidden capabilities. What gives me the greatest pleasure is working one-on-one with my clients to help them tap into those abilities. For the last 18 years, I have conducted Road Trips spanning three continents to meet learners and caregivers, so I can help provide solutions that will help them overcome obstacles that they may not have thought possible"

"When I began my career, not many people realized the potential technology would have on the lives of those with special needs. My love for people and my interest in special needs drove me to also pursue a Bachelor's in Developmental Psychology from University of California-Irvine and a Master’s in Education, concentration in Autism Spectrum Disorder, from Arizona State University."

RJ shares how he develops products from requests he receives globally. “On the product development side. It's a different process. This one is very simple. I just listened to everybody who has a suggestion on what they think it necessary to create. And even if it's one person in Australia, or China or wherever it is, I'll try to create or adapt something for that specific person. And then, over the years, I've found that there are always going to be others in the world. Not many but others that have that same specific need. I offer it even if I've only made one just for that one person, I'll still usually put it up at the website as a quote-unquote product. And every once in awhile, somebody else will buy that same thing that I made specifically for that one person in XYZ. And that's where the product ideas come from”

He also discusses some of his advocacy work in school districts both with parents and the school systems; "it's the parents that I'm advocating for. And they have the legal right to draw me into the frame so to speak. And I'll be sort of advocating for the child, the parents, in my opinion towards some necessity for the school district spending some money as far as they look at it. And sometimes it's the reverse. The school district heard from the parent, the parent wants them to buy a Tobii Dynavox thing for $10,000. The school district comes in and says we think the iPad is the right tool. What's your expert opinion? Would you be willing to assess this kid by video?"

He discusses the theory behind the development of one of his most helpful products that can help a broad range of individuals with mobility and/or cognitive issues that make it tough to operate something as simply as a television. (https://store.rjcooper.com/products/tv-controller) "I'm trying to get to something that's so simple that my theory -and I don't have any academic or even experiential background in this- is that if you give someone something simple enough that they can read learn it each day rather than having to remember it from the day before, which of course is the actual essence of dementia, right? So instead of a controller, like you and I have a Remote Control, which requires memory cognitive ability, physical acuity, I make a box with three large buttons on it. One is for next channel. One is for previous channels, and one is for power. Yeah, you give them the box, you put them in front of the TV, but my limited testing, but that shows that it's enough that if they press the button, they can quickly understand what each button does. And it's not so much remember that the next day, it's more that each day they take 30-40 seconds, and they actually read learn it, they relearn it."

Surprisingly enough, the filed of assistive technology has not been overwhelmingly successful in integrating products into the mainstream and is one of RJ's concerns going forward, "And every single person, even in my field that wants to believe like we've done some good in the world, they all say the same thing. Never. I've never seen anybody in the grocery store using an assistive device. I've never seen anybody in any academic session, other than the ones that I was called in on using something to access the computer. The only time I see these things that we've created over years being used is at the specialized conferences and events. That's it. Once you get out in the real world, you rarely see anything, you don't see it on TV, you don't see it in the real world. The whole field has not been that successful, but we don't want to say those words out loud."

In conclusion, RJ emphasizes that "Many times, it's the parent who just refuses to give up. And they've been rejected or had to move on to a different direction, Time after time, but they never give up for their kiddo. And somehow they push that kid with the assistance through, you know, one through 12. But they are the exception, right?"

There's a great amount more fascinating material in this interview and I don't want to give it all away so give it a listen and check out R.J. Cooper's links here:

Website: https://store.rjcooper.com/
Index: http://rjcooper.com/index-ipad.html
LinkedIn: https://www.linkedin.com/company/rjcooper/
Facebook: https://www.facebook.com/rjcooperinc
YouTube: https://www.youtube.com/user/rjcooper725/
Twitter: @rjcooperinc
Instagram: https://www.instagram.com/rj_cooper_associates_inc/
Pinterest: https://www.pinterest.com/rjcooperinc/
Closing the Gap Conference Info: https://www.closingthegap.com/conference-exhibitor/rj-cooper/
Apple Store: https://apps.apple.com/us/developer/rj-cooper-associates-inc/id412790299
http://atoralhistory.uconn.edu/podcasts/cooper.php

Contact info: RJ Cooper & Associates, Inc.
640 S. Grand Ave., Suite 109
Santa Ana, CA 92705
1-800-RJCooper (752-6673) 949-582-3169 (fax)
info@rjcooper.com

Thanks R.J.!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/21289222Fri, 03 Jan 2020 11:26:17 +0000Jill WoodworthR.J. Cooper, Founder & CEO of R.J. Cooper & Associates is an inventor, technologist, and student of human behavior. RJ has always carried with him the goal of wanting to help as many people as possible. His interest in the area of assistive...
In his own words: I love what I do because my products make a tangible impact on the lives of the users by unlocking their hidden capabilities. What gives me the greatest pleasure is working one-on-one with my clients to help them tap into those abilities. For the last 18 years, I have conducted Road Trips spanning three continents to meet learners and caregivers, so I can help provide solutions that will help them overcome obstacles that they may not have thought possible"

"When I began my career, not many people realized the potential technology would have on the lives of those with special needs. My love for people and my interest in special needs drove me to also pursue a Bachelor's in Developmental Psychology from University of California-Irvine and a Master’s in Education, concentration in Autism Spectrum Disorder, from Arizona State University."

RJ shares how he develops products from requests he receives globally. “On the product development side. It's a different process. This one is very simple. I just listened to everybody who has a suggestion on what they think it necessary to create. And even if it's one person in Australia, or China or wherever it is, I'll try to create or adapt something for that specific person. And then, over the years, I've found that there are always going to be others in the world. Not many but others that have that same specific need. I offer it even if I've only made one just for that one person, I'll still usually put it up at the website as a quote-unquote product. And every once in awhile, somebody else will buy that same thing that I made specifically for that one person in XYZ. And that's where the product ideas come from”

He also discusses some of his advocacy work in school districts both with parents and the school systems; "it's the parents that I'm advocating for. And they have the legal right to draw me into the frame so to speak. And I'll be sort of advocating for the child, the parents, in my opinion towards some necessity for the school district spending some money as far as they look at it. And sometimes it's the reverse. The school district heard from the parent, the parent wants them to buy a Tobii Dynavox thing for $10,000. The school district comes in and says we think the iPad is the right tool. What's your expert opinion? Would you be willing to assess this kid by video?"

He discusses the theory behind the development of one of his most helpful products that can help a broad range of individuals with mobility and/or cognitive issues that make it tough to operate something as simply as a television. (https://store.rjcooper.com/products/tv-controller) "I'm trying to get to something that's so simple that my theory -and I don't have any academic or even experiential background in this- is that if you give someone something simple enough that they can read learn it each day rather than having to remember it from the day before, which of course is the actual essence of dementia, right? So instead of a controller, like you and I have a Remote Control, which requires memory cognitive ability, physical acuity, I make a box with three large buttons on it. One is for next channel. One is for previous channels, and one is for power. Yeah, you give them the box, you put them in front of the TV, but my limited testing, but that shows that it's enough that if they press the button, they can quickly understand what each button does. And it's not so much remember that the next day, it's more...]]>2868assistivetechnology,at,autism,autismspectrumdisorder,closingthegap,communication,computeraccess,computersoftware,disability,disabled,epilepsy,inclusion,ipad,psychology,remotecontrol,specialneeds,superswitch,switch,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-persistance-pays-off-with-ricardo-e-rivera-acevedo-ph-d-cannabinologist-professor-podcaster-entrepreneur--21084894
Born and raised in Puerto Rico, he attended City University of Puerto Rico. One of his college professors was from Canada and encouraged him to check out Vancouver where he ended up coming and starting his Ph.D. at the University of British Columbia in the Department of Pharmacology with a fantastic mentor. “That’s kind of where I started my path of not just drug development, medical research, but also my introduction into the science of cannabis.”

While preparing for his Ph.D. comprehensive examination, he mentions, “while studying the capsaicin receptor (the spicy hot feeling when eating a chili pepper) that receptor is actually activated and interacts with cannabinoids. And that receptor is also directly involved in pain sensation, noxious pain sensation. So I began to prepare this document for this examination. And I began to realize, Oh, you know what, there's a lot more to cannabis than I had previously considered in terms of like these molecular interactions because I always thought cannabis just had its effects on you know, on CB 1 receptor, cannabinoid receptor one and CB 2, and that's it. But it's much more complex than that and much more dynamic. And so that kind of began to push me in that direction”

Ricardo discusses being involved in the first clinical trial with dried cannabis on the island of Puerto Rico. “We were able to do the hard work and effort to initiate the first clinical trial with dried cannabis on the island of Puerto Rico, one of the first of its kind to any US territory.” He describes some of what he learned from this research; “So the basis by which you should really guide your therapeutic use is through the ratios of cannabinoids, CBD and THC. Now there are a bunch of other cannabinoids and they have some very interesting effects. But the main cannabinoids that are well studied right now are the THC and CBD. We've definitely established this conclusively, but it's also something that other groups and other labs have seen and many people have known for a long time, which is that when it comes to cannabis, the whole is greater than the sum of its parts. So what does that mean? That means that when you have for example, CBD by itself, it is not as effective as CBD with THC, and then CBD with the other constituents in cannabis. But the issue is that, sadly, people have been focusing on CBD and THC for a very long time. So there's a lot of other chemical constituents that are now being explored but because they occur at such low levels in the plants, they're very difficult to get at levels too, to do a lot of these scientific experiments, particularly in smaller sort of academic environment. So what we're trying to do is to isolate them, purify them and then begin to introduce them back into a formula that reproduces what’d in the plant, but then we can also add or remove these different cannabinoids and see what happens. Because, honestly, to be just like open with you right now, it's kind of interesting and novel information that we've discovered. It's not just CBD and THC, that are doing this stuff, we're seeing effects that we can't describe just by looking at the THC and CBD that are very beneficial for a patient. And it has to do with the other cannabinoids that are actually present. And some strains have some of these cannabinoids like CBC for example, or, or even CBN that people have said, Oh, that’s the degraded products of THC. They do seem to have benefits for patients that are now only being teased apart.”

Ricardo also discusses his podcast; “Cannabis Science Podcast is exclusively dedicated to discussing the most up-to-date science on cannabis and cannabinoids, from an industry insider’s perspective”. He decided to start this labor of love to educate and inform anyone and everyone on the science of cannabis. What he had assumed was common knowledge even among the scientific population was not necessarily so. The podcast was launched in an effort to get everyone on the same page to inform and education on the science of cannabis.

In his own words; “I am a scientist and entrepreneur working to help biotech companies find better ways to solve poorly managed health conditions. To do this, my areas of expertise include drug chemistry and pharmacology, extraction, formulation, product development, facility design and operation, project management, regulatory consultation, as well as designing, organizing and directing clinical trials. I also strongly believe in science education and communication as valuable tools to improve people's lives by empowering them to make well-informed decisions for themselves and society. At this moment, I provide the training, knowledge, and skills necessary for organizations to successfully achieve their product and research goals”

From his website bio: Dr. Rivera-Acevedo is an Adjunct Professor in the Department of Anesthesiology, Pharmacology & Therapeutics at the University of British Columbia in Vancouver. He is also cannabinologist and consultant for various pharma companies around the world.

With a BSc from the University of Puerto Rico – Cayey and PhD in Pharmacology from the University of British Columbia, he has extensive knowledge and expertise researching cannabis and its derivatives. In 2015, he established the first laboratory for cannabinoid research in the Department of Pharmacology at UBC, which is dedicated to understanding the therapeutic uses of different cannabis strains and formulations to treat different diseases.

He also teaches various undergraduate courses within the department including Introduction to Pharmacology, Statistics in Science, Drug Development, Natural Health Products, and Pharmacogenomics.

As former Director of Chemistry for Cannevert Therapeutics Ltd, he lead the chemistry team conducting R&D, QA/QC, and manufacturing research to improve cannabinoid extract formulations and development of new delivery methods. He also helped organize and supervise one of the first internationally recognized clinical trials with cannabis in Puerto Rico.

When not in the lab, he can be found in the dojo practicing Brazilian Jiu-Jitsu, teaching mindfulness to high school students with the Vancouver Crisis Centre, co-hosting the shows Cannabis Science Podcast, Cannabis Con Ciencia Podcast, and El Bus De Las 7 on Vancouver Coop Radio 100.5 FM.”

Thank you, Ricardo, for providing us with a glimpse of your ongoing research, work and projects in the area of cannabis science! There’s a lot more within this rich, informative episode that will be helpful for anyone wanting to increase their scientific knowledge on cannabis and gaining more of an understanding of the vast untapped potential of this plant.

Ricardo’s Links:
LinkedIn: https://www.linkedin.com/in/ricoriver/
Website: cannabisconciencia.org  (Cannabis Science and Research)
Podcast: https://cannabisconciencia.org/podcast/
Email: ricardo.rivera@ubc.ca
Twitter: CannabisFaculty, payme4science
The Univ. of British Columbia: https://www.grad.ubc.ca/alumni/profile/ricardo-rivera-acevedo
Press Release: https://apnews.com/7fa52c472c1092fdcb22ca734d4e449b
Research Gate: https://www.researchgate.net/profile/Ricardo_Rivera-Acevedo

TSC Talks: https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/21084894Thu, 26 Dec 2019 14:43:00 +0000Jill WoodworthIn this episode, my guest is Ricardo Rivera-Acevedo, Chief Science Officer and Director at Ecovita Health Corporation, Vancouver, British Columbia, Canada working to initiate and manage a medical cannabis extraction facility and guide research and...
Born and raised in Puerto Rico, he attended City University of Puerto Rico. One of his college professors was from Canada and encouraged him to check out Vancouver where he ended up coming and starting his Ph.D. at the University of British Columbia in the Department of Pharmacology with a fantastic mentor. “That’s kind of where I started my path of not just drug development, medical research, but also my introduction into the science of cannabis.”

While preparing for his Ph.D. comprehensive examination, he mentions, “while studying the capsaicin receptor (the spicy hot feeling when eating a chili pepper) that receptor is actually activated and interacts with cannabinoids. And that receptor is also directly involved in pain sensation, noxious pain sensation. So I began to prepare this document for this examination. And I began to realize, Oh, you know what, there's a lot more to cannabis than I had previously considered in terms of like these molecular interactions because I always thought cannabis just had its effects on you know, on CB 1 receptor, cannabinoid receptor one and CB 2, and that's it. But it's much more complex than that and much more dynamic. And so that kind of began to push me in that direction”

Ricardo discusses being involved in the first clinical trial with dried cannabis on the island of Puerto Rico. “We were able to do the hard work and effort to initiate the first clinical trial with dried cannabis on the island of Puerto Rico, one of the first of its kind to any US territory.” He describes some of what he learned from this research; “So the basis by which you should really guide your therapeutic use is through the ratios of cannabinoids, CBD and THC. Now there are a bunch of other cannabinoids and they have some very interesting effects. But the main cannabinoids that are well studied right now are the THC and CBD. We've definitely established this conclusively, but it's also something that other groups and other labs have seen and many people have known for a long time, which is that when it comes to cannabis, the whole is greater than the sum of its parts. So what does that mean? That means that when you have for example, CBD by itself, it is not as effective as CBD with THC, and then CBD with the other constituents in cannabis. But the issue is that, sadly, people have been focusing on CBD and THC for a very long time. So there's a lot of other chemical constituents that are now being explored but because they occur at such low levels in the plants, they're very difficult to get at levels too, to do a lot of these scientific experiments, particularly in smaller sort of academic environment. So what we're trying to do is to isolate them, purify them and then begin to introduce them back into a formula that reproduces what’d in the plant, but then we can also add or remove these different cannabinoids and see what happens. Because, honestly, to be just like open with you right now, it's kind of interesting and novel information that we've discovered. It's not just CBD and THC, that are doing this stuff, we're seeing effects that we can't describe just by looking at the THC and CBD that are very beneficial for a patient. And it has to do with the other cannabinoids that are actually present. And some strains have some of these cannabinoids like CBC for example, or, or even CBN that...]]>3079canada,cannabinoids,cannabinologist,cannabis,cannabissciencepodcast,cbd,clinicaltrials,education,endocannabinoid,medicine,pharmacology,physicians,podcast,polypharmacy,puertorico,research,scientist,thc,tsctalks,vancouverfalsefullhttps://www.spreaker.com/episode/tsc-talks-in-the-hot-seat-with-professor-petrus-de-vries-alexis-minnaar-a-discussion-on-tsc-assoc-neuropsychiatric-disorders-aka-tand--20864620
Recently, Professor de Vries’ along with Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) were awarded funding from the Tuberous Sclerosis Association and the King Baudouin Foundation for the TANDem project, which will bring together a worldwide team of families affected by TSC, researchers and clinicians to provide scientific evidence for greater TAND intervention and treatment. The two-part project will first focus on the development of a self-report TAND checklist and identification smartphone app, to measure how people are affected by TAND. The second part of the study will investigate the best ways to treat TAND, including agreement on suitable clinical guidelines for TAND. Following this work in identifying and treating TAND, the TANDem Project will help to prepare a global team of TAND researchers to raise awareness and lead future research into TAND.

Bringing both Alexis and Professor de Vries together to discuss their lived experiences with TAND in a Q & A session to bring to light the perspective of patient, doctor and a parent, to hash out the very different experiences. Professor de Vries coined the term TAND when in need of a succinct way to sum up the grouping of symptoms in a way that is easier for families also to talk to others about.

“It can be easier to say; “I have, or my child has epilepsy or I've got something on my skin or got a kidney thing” than to talk about anxiety, about mental health issues and about learning issues and about all sorts of stuff like that. So, the journey to share often takes even longer for people about those kinds of things. And that's why it was so important for us to find a way of building a kind of a language around TAND. And to give the message, the simple message to people is that TAND is as much part of tuberous sclerosis complex as all the other things are. And therefore, it's not something to be ashamed about or shy about or embarrassed about. This is something that we need to know about them that we can do something about. And so that really is, you know, you you're talking about how do we how do we put down on a level playing field with all the other things, it's just as important and just the same as all these physical health problems that people have learned to talk about and have learned to treat in a better way. And so for many decades, very little research was done on behavior and psychiatry and mental health. It was, in 2012, when we had the consensus conference in the US to revise the diagnostic criteria and to revise the treatment guidelines that we the neuro psychiatry group that said, What? We've been trying to tell people to do these things, and nobody has been doing anything. What can we do to make it simple, so that people might start to listen to us? And the one thing we realized was, we've been talking about know, you have to think about the behavioral issues and the psychiatric issues and the academic issues and the intellectual issues and the psychosocial issues. And you know, by the time I said that whole sentence, people aren't listening to me anymore. And so that was why we decided we needed to come up with a simple term that puts all these things together. And that was the birth of the word TAND, which stands as you know, for TSC, associated neuro psychiatric disorders across all those different levels. We wanted a simple word that you and I can talk about TAND in one word, and then we can start to break it up, rather than to talk about all these fuzzy words that in a psychiatrist often like to talk about, that nobody follows. Right? So that was really the reason to give us that you can talk about it.”

Alexis shares her own lived experience with TAND as well; “(my mother) She said I was having temper tantrums at school starting at about age seven. And she actually got to a point where she had to speak to my doctor say, look, you know, is it the TSC that's causing this or is it anger, or is it discipline issues? Or, you know, how do I deal with this? And so, my pediatric neurologist, her advice at the time was-there's no excuse for bad behavior. So, my mom had to put me on a strict discipline, freedom within boundaries sort of routine. I had strict routines in terms of schooling. Whether I was homeschooled or not, you know, you wake up at seven, you started school at eight, you work 'til two. And after that, you could do what you wanted. You took your medicine at seven, you know, they were they were structured systems in place so that I didn't have an excuse, and it's been very helpful. I did go through the TAND checklist last night, actually. And I kind of giggled because I realized I do kind of struggle to in terms of organization, I think you called it executive functioning”

I am personally passionate about TAND because of the impact it had on our entire family. There tends to be a ripple effect when dealing with a lot of dysregulated and unpredictable behavior on top of seizures for long time periods and the whole family develops dysfunctional ways of coping. So when I heard Professor de Vries talk about TAND, first on YouTube and then in person at the World TSC Conference in 2017 in Dallas, the entire history of our life with TSC started to make more sense.

More regarding the TANDem project; “And so what the TANDem project will do is three things: One, we're going to make a self-report version of the checklist, so that you either as a parent or caregiver or an individual that lives at TSC can fill it in yourself. Two-then we're going to put it into an app so that you can download an app and fill it in on the app. Three-And then we are going to create an expert group of people, consensus guidelines for treatment, next steps interventions for all these seven clusters of TAND difficulties. And then we're going to build them into the app so that when you sit down and you fill in the app for yourself or for your son or daughter, and you click on it, it will show you your child’s cluster profile. And you can click on it and it'll tell you what you can do about your that specific type of manifestation. And it will also tell you what the clinicians and the physicians ought to be doing as the next steps for your TAND profile. The TANDem project is just starting. We will create a website. And as soon as there are updates, we will inform people like you and the TS Alliance and the TCI, etc. So, the people just follow the story and give us input into the progress of the project over the next four years. It’s funded for four years by a Belgian foundation. It's called the King Baudouin Foundation. And they have funded us basically to develop this app, to validate the app and we will use people in the US and different parts of the world to make sure that we have something that we think is a good product that can then be launched for anybody in the world to use towards the end of the project. So that's the idea. You can see it's very practical. And it's really about empowering families and people who live with TSC. Because we know we can't wait until you can get somebody who knows about TAND- we need to give you the tools. I also don't want everyone to think that TANDem will solve all the problems of TAND in the world, but I think it's the kind of next step that we're taking in the community with people in the community that I'm really excited about.”
From Alexis: “Education is where my heart lies for kids with TAND or any other genetic disorder, autism, anything else of because there is none in South Africa. All the children get sent to a special needs school and they get cheated and it’s frustrating.”

Thanks for listening and many many thanks to both Professor Petrus de Vries and Alexis Minnaar for being willing to engage in this important conversation and shed some light on the lived and learned experience of TSC & TAND. WE will be watching and waiting to hear more on the TANDem project as it develops. Find us at: https://tsctalks.com

Professor Petrus de Vries’ links:
University of Cape Town: http://www.psychiatry.uct.ac.za/psych/staff/petrus-de-vries
Centre For Autism Research: http://www.cara.uct.ac.za/petrus-de-vries
TANDem press release: https://www.tsalliance.org/international-tand-research-project-awarded-funding/
Professor de Vries discussing TANDem: https://www.facebook.com/watch/?v=699529333889383
Recent article: https://www.spectrumnews.org/opinion/viewpoint/offer-support-young-autistic-children-south-africa/
Instagram: https://www.instagram.com/profpetrusdevries/
TSC South Africa: https://www.facebook.com/TSSouthAfrica/

Alexis Minnaar links:
Blog: http://theycallmetsc.blogspot.com/
Facebook: https://www.facebook.com/alexisbilyard
Living with TSC Facebook: https://www.facebook.com/theycallmetsc/
Instagram: https://www.instagram.com/they_call_me_tsc/
Previous podcasts on TSC Talks: https://www.spreaker.com/episode/18952329 and https://www.spreaker.com/episode/19010713

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20864620Thu, 19 Dec 2019 12:11:58 +0000Jill WoodworthIn this episode, we are joined by Professor Petrus de Vries, Sue Struengmann Professor of Child & Adolescent Psychiatry, Academic Head: Child & Adolescent Psychiatry, University of Cape Town, South Africa and Alexis Minnaar, English and Geography...
Recently, Professor de Vries’ along with Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) were awarded funding from the Tuberous Sclerosis Association and the King Baudouin Foundation for the TANDem project, which will bring together a worldwide team of families affected by TSC, researchers and clinicians to provide scientific evidence for greater TAND intervention and treatment. The two-part project will first focus on the development of a self-report TAND checklist and identification smartphone app, to measure how people are affected by TAND. The second part of the study will investigate the best ways to treat TAND, including agreement on suitable clinical guidelines for TAND. Following this work in identifying and treating TAND, the TANDem Project will help to prepare a global team of TAND researchers to raise awareness and lead future research into TAND.

Bringing both Alexis and Professor de Vries together to discuss their lived experiences with TAND in a Q & A session to bring to light the perspective of patient, doctor and a parent, to hash out the very different experiences. Professor de Vries coined the term TAND when in need of a succinct way to sum up the grouping of symptoms in a way that is easier for families also to talk to others about.

“It can be easier to say; “I have, or my child has epilepsy or I've got something on my skin or got a kidney thing” than to talk about anxiety, about mental health issues and about learning issues and about all sorts of stuff like that. So, the journey to share often takes even longer for people about those kinds of things. And that's why it was so important for us to find a way of building a kind of a language around TAND. And to give the message, the simple message to people is that TAND is as much part of tuberous sclerosis complex as all the other things are. And therefore, it's not something to be ashamed about or shy about or embarrassed about. This is something that we need to know about them that we can do something about. And so that really is, you know, you you're talking about how do we how do we put down on a level playing field with all the other things, it's just as important and just the same as all these physical health problems that people have learned to talk about and have learned to treat in a better way. And so for many decades, very little research was done on behavior and psychiatry and mental health. It was, in 2012, when we had the consensus conference in the US to revise the diagnostic criteria and to revise the treatment guidelines that we the neuro psychiatry group that said, What? We've been trying to tell people to do these things, and nobody has been doing anything. What can we do to make it simple, so that people might start to listen to us? And the one thing we realized was, we've been talking about know, you have to think about the behavioral issues and the psychiatric issues and the academic issues and the intellectual issues and the psychosocial issues. And you know, by the time I said that whole sentence, people aren't listening to me anymore. And so that was why we decided we needed to come up with a simple term that puts all these things together. And that was the birth of the word TAND, which stands as you know,...]]>3555aba,aggression,anxiety,autism,behavior,depression,epilepsy,mentalhealth,neuropsychiatic,parenting,professorpetrusdevries,seizures,southafrica,tand,tandem,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-full-circle-farming-to-finance-cancer-cannabis-w-jon-workman-vp-industrial-hemp-business-dev-at-american-cannabis-co--20739561
He shares, "I was in the hospital for over 60 days at City of Hope in Los Angeles, I was down to about 139 pounds. I'm six-one and it didn't look real real good on me. In fact, I was scared I was going to not make it out of there. So I I took it upon myself to bring in some assistance in the form of cannabis edibles" While Jon would not say cancer cured him, it definitely helped ease his recovery and he's gone on to be in remission since shortly after his last bone marrow transplant to address his TTP. In his own words,

"I am a stage 2 cancer survivor of multiple myeloma bone marrow cancer. After two bone marrow transplants and countless hours in the infusion room getting the poison they call chemotherapy I can say I didn't know if I was going to survive. Fast forward 19 years later and looking back I see with clarity that my survival was comforted by the use of medicinal cannabis. Now I am here to share my story in an industry that is growing like a weed (bad joke)."

Jon discusses his entrance into the hemp and cannabis industry, moving back to his home state of Arkansas, being inspired and encouraged by a childhood best friend to enter the cannabis industry; "at the end of the day, I came to think that it's what brought me to where I am, it saved me in some ways, and it's a message. I think that it's something God really wants me to do. I really you're put in places in your life and sometimes it's just opportunistic, but at the same time, I think it's a thing called luck. What is luck? I think John Wooden called it "when opportunity meets preparation meets opportunity" ".

Jon describes his current role with American Cannabis Company; "with what happened in 2018 with the new farm bill, at the beginning of this year it transitioned my role at American Cannabis Company to the role I'm in now, which is the Vice President of Hemp Business Development. And so throughout this year, I've been working with farmers throughout the country to basically offer the same services we did with our marijuana but, but more for outdoor applications, then of course, indoor and there are quite a few greenhouse operations that we consult with as well for hemp, but we've been involved with quite a few different states and in these states are university pilot programs. In fact, just this morning, about two hours ago, we got the release of the USDA interim rules on hemp cultivation, for 2020. crop year. This is the first USDA rules we've had since well since 1937"

Jon continues to outline his extensive involvement in the cannabis industry," I also work with a team of cannabis industry professionals to help individuals and organizations gain entry into the legal recreational and medical marijuana industry. We provide business to business consultative services for dispensaries, grow operations and extraction facilities. Our team is dedicated to providing real-world solutions for the ever-changing cannabis markets in the U.S. and abroad."

There's much more within this rich episode. Thanks so much to Jon Workman for this education on overcoming adversity and finding inspiration and motivation within and without the cannabis industry; "When people I meet ask me what I do in the industry, I usually reply with, "I connect the dots for those that are trying to start an industrial hemp business as well as find markets for them to sell their product." Simply put my approach is to provide my customers with Best of Class products and service which I do on a daily basis." Thank you Jon!

Here are Jon's links:
LinkedIn: https://www.linkedin.com/in/jonworkman/
Facebook: https://www.facebook.com/jsworkman63
Press Release: https://americancannabisconsulting.com/american-cannabis-company-inc-announces-hemp-business-development-appointment-of-chief-operations-officer/
Bloomberg: https://www.bloomberg.com/profile/person/20938691
American Cannabis Company: https://americancannabisconsulting.com/

Thanks for listening! Reviews on our FB page, or ITunes are much appreciated! https://tscatlks.com
FB: https://www.facebook.com/tsctalks/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20739561Sat, 14 Dec 2019 11:42:54 +0000Jill WoodworthJon Workman is Vice President - Industrial Hemp Business Development at American Cannabis Company and President - Arkansas Hemp Assoc. He has had a long career in the industry, starting out growing up on a farm in Arkansas, getting into the finance...
He shares, "I was in the hospital for over 60 days at City of Hope in Los Angeles, I was down to about 139 pounds. I'm six-one and it didn't look real real good on me. In fact, I was scared I was going to not make it out of there. So I I took it upon myself to bring in some assistance in the form of cannabis edibles" While Jon would not say cancer cured him, it definitely helped ease his recovery and he's gone on to be in remission since shortly after his last bone marrow transplant to address his TTP. In his own words,

"I am a stage 2 cancer survivor of multiple myeloma bone marrow cancer. After two bone marrow transplants and countless hours in the infusion room getting the poison they call chemotherapy I can say I didn't know if I was going to survive. Fast forward 19 years later and looking back I see with clarity that my survival was comforted by the use of medicinal cannabis. Now I am here to share my story in an industry that is growing like a weed (bad joke)."

Jon discusses his entrance into the hemp and cannabis industry, moving back to his home state of Arkansas, being inspired and encouraged by a childhood best friend to enter the cannabis industry; "at the end of the day, I came to think that it's what brought me to where I am, it saved me in some ways, and it's a message. I think that it's something God really wants me to do. I really you're put in places in your life and sometimes it's just opportunistic, but at the same time, I think it's a thing called luck. What is luck? I think John Wooden called it "when opportunity meets preparation meets opportunity" ".

Jon describes his current role with American Cannabis Company; "with what happened in 2018 with the new farm bill, at the beginning of this year it transitioned my role at American Cannabis Company to the role I'm in now, which is the Vice President of Hemp Business Development. And so throughout this year, I've been working with farmers throughout the country to basically offer the same services we did with our marijuana but, but more for outdoor applications, then of course, indoor and there are quite a few greenhouse operations that we consult with as well for hemp, but we've been involved with quite a few different states and in these states are university pilot programs. In fact, just this morning, about two hours ago, we got the release of the USDA interim rules on hemp cultivation, for 2020. crop year. This is the first USDA rules we've had since well since 1937"

Jon continues to outline his extensive involvement in the cannabis industry," I also work with a team of cannabis industry professionals to help individuals and organizations gain entry into the legal recreational and medical marijuana industry. We provide business to business consultative services for dispensaries, grow operations and extraction facilities. Our team is dedicated to providing real-world solutions for the ever-changing cannabis markets in the U.S. and abroad."

There's much more within this rich episode. Thanks so much to Jon Workman for this education on overcoming adversity and finding inspiration and motivation within and without the cannabis industry; "When people I meet ask me what I do in the industry, I usually reply with, "I connect the dots for those that are trying to start an industrial hemp business as well as find markets for them to sell their product." Simply put my approach is to provide my customers with Best of Class products and...]]>27472018hempbill,americancannabiscompany,arkansas,cancersurvivor,cannabis,cannabiscultivation,cannabisindustry,edibles,farmer,farmingindustry,financial,grower,hemp,hempindustry,medicalcannabis,medicinal,multiplemyeloma,plant,sharecropping,ttpfalsefullhttps://www.spreaker.com/episode/tsc-talks-tiffany-watkins-cannabis-activist-enthusiast-founder-of-lady-canna--20607348
She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited.

She states, "Cannabis is my passion and I am driven to assist this industry in becoming the standard when it comes to treatment plans, revenue achievement, and sales models.
My intent is to continue helping, building and growing within the Cannabis industry. "

We discussed her early years getting involved as an activist and what drew her to get involved in the industry; "what drew me in was during that time in the early 90s, we were really coming off the scare of the 80s with HIV and AIDS and there were plenty of my friends whose lives had been touched. They either had a family member or they were personally affected and at that time they were noticing that cannabis was very helpful in easing side effects from some of the very heavy medications that they were on to try to help with the HIV and sometimes full-blown aids. Cannabis helped stave the wasting away. They were using cannabis to increase appetite and lift the mood and just have a better quality of life. They were treated like criminals."

We go on to discuss the timeline of her life and career, after early activism, exploring other options as there was not an opportunity to build a career in cannabis. Eventually, Tiffany delved into agriculture distribution which "just kind of steamrolled into me making a choice, leaving behind the mainstream and just going head headfirst back into cannabis."

She talks about her work at Old Pal The home mantra and an ethos of the company is "it's just weed". It's for the people and it's accessible to everyone. And we spend some time discussing her new business called "Lady Canna"; "when I first developed the concept of Lady Canna, it was geared towards women. It was geared towards the forgotten voices. And as cannabis has really become more mainstream, it is very much so dominated by males....ao that's where it kind of was born. But where it's ended up is being a platform for education, change of stigma, and overall approach to usage of cannabis"

" I think that that really is where is the fire burning underneath is that I just want everyone to understand we have another choice out there for help for relaxation for all a multitude of things that happen in our lives. We have another thing out there that can help us and we need to listen and stop making a villain out of it"

Tiffany is full of wisdom, inspiration and demonstrates the kind of longevity and tenacity that will make Lady Canna a success. There's much more in this episode to educate, inform and empower all who listen. Check out Tiffany's links:

LinkedIn: https://www.linkedin.com/in/tiffany-watkins-9910a5176/
Instagram: https://www.instagram.com/ladycanna101
Facebook: https://www.facebook.com/ladycanna101/
Old Pal: https://oldpal.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20607348Tue, 10 Dec 2019 11:21:34 +0000Jill WoodworthTiffany Watkins is a "Cannabis Enthusiast". She's been an activist for 20+ years and has done a lot of work to bring awareness to health care and proper distribution of Medical Cannabis as well as paving the way for Recreational Cannabis. She has...
She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited.

She states, "Cannabis is my passion and I am driven to assist this industry in becoming the standard when it comes to treatment plans, revenue achievement, and sales models.
My intent is to continue helping, building and growing within the Cannabis industry. "

We discussed her early years getting involved as an activist and what drew her to get involved in the industry; "what drew me in was during that time in the early 90s, we were really coming off the scare of the 80s with HIV and AIDS and there were plenty of my friends whose lives had been touched. They either had a family member or they were personally affected and at that time they were noticing that cannabis was very helpful in easing side effects from some of the very heavy medications that they were on to try to help with the HIV and sometimes full-blown aids. Cannabis helped stave the wasting away. They were using cannabis to increase appetite and lift the mood and just have a better quality of life. They were treated like criminals."

We go on to discuss the timeline of her life and career, after early activism, exploring other options as there was not an opportunity to build a career in cannabis. Eventually, Tiffany delved into agriculture distribution which "just kind of steamrolled into me making a choice, leaving behind the mainstream and just going head headfirst back into cannabis."

She talks about her work at Old Pal The home mantra and an ethos of the company is "it's just weed". It's for the people and it's accessible to everyone. And we spend some time discussing her new business called "Lady Canna"; "when I first developed the concept of Lady Canna, it was geared towards women. It was geared towards the forgotten voices. And as cannabis has really become more mainstream, it is very much so dominated by males....ao that's where it kind of was born. But where it's ended up is being a platform for education, change of stigma, and overall approach to usage of cannabis"

" I think that that really is where is the fire burning underneath is that I just want everyone to understand we have another choice out there for help for relaxation for all a multitude of things that happen in our lives. We have another thing out there that can help us and we need to listen and stop making a villain out of it"

Tiffany is full of wisdom, inspiration and demonstrates the kind of longevity and tenacity that will make Lady Canna a success. There's much more in this episode to educate, inform and empower all who listen. Check out Tiffany's links:

LinkedIn: https://www.linkedin.com/in/tiffany-watkins-9910a5176/
Instagram: https://www.instagram.com/ladycanna101
Facebook: https://www.facebook.com/ladycanna101/
Old Pal: https://oldpal.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2092activist,cannabinoids,cannabis,cannabiseducation,cannabisindustry,cannabislegalization,education,healthcare,medicalcannabis,oldpal,thc,tsctalks,womenincannabisfalsefullhttps://www.spreaker.com/episode/tsc-talks-endocannabinoid-egalitarian-expert-dr-uma-v-a-dhanabalan-md-mph-faafp-mro-cms--20534550
She completed her Bachelor of Arts degree with high honors from Rutgers University and a Medical degree from the University of Medicine & Dentistry in Newark, New Jersey. She completed a Family Practice Residency at the Medical University of South Carolina, in Charleston, South Carolina and then her Master’s in Public Health and Occupational & Environmental Medicine Residency and Fellowship at the Harvard School of Public Health in Boston Massachusetts. She is also certified by the American Academy of Cannabinoid Medicine and by the Medical Review Officer Certification Council.

She has received awards from the American College of Occupational & Environmental Medicine for her research project: “Occupational & Environmental Exposure to Lead in South India”, from The 7th World Ayurveda Conference & Arogya Expo for her presentation “Cannabis & The Therapeutic Uses” and the Educational Achievement Award presented by Clover Leaf at Cannabis Business Award 2017

She is the Founder/CEO for Global Health & Hygiene Solutions, LLC established in 2006, with a mission to promote wellness and prevent illness. She worked for Kimberly Clark as Regional Medical Director for Asia Pacific She worked for the Hanford Site in Richland, Washington, the largest and most complex cleanup projects in the world, where plutonium was manufactured for the first nuclear bomb detonated in Japan.

She created the TotalHealthCareTHC model where she “Educates Embraces Empowers” patients and promotes cannabis as a treatment option at Uplifting Health and Wellness, in Natick, Massachusetts. She is an advocate, activist, and educator and speaks globally about cannabis as a plant medicine. Her mission is to change the Stigma regarding Cannabis and for the world to know about the Endocannabinoid system through education" https://necann.com/news/speaker/dr-uma-dhanabalan/

Dr. Dhanabalan states: “Cannabis is not for everyone, yet it should be a first-line option not the last resort,” and “Cannabis is not an entrance drug, it is an exit drug from pharmaceuticals narcotics and alcohol.”

Meeting and talking to Dr. Uma was a transformational experience for me. She logically explains the evolution of her understanding of cannabinoid medicine, starting from an early age. Born in India, moving to the US from India at age 8 with her father, a chemical engineer and her mother, a mathematician and working in computer software, she was raised with a strong interest in science as well as a passion for understanding preventative health.

"I'm a family doctor, went to South Carolina (and) finished my practice residency, then I decided to do my second life which brought me back to Massachusetts to Harvard. Where I did my masters in public health because that's where I really realized I had to go back to that calling of preventative medicine."

She goes on to say, " That was something that has been rooted in me, that's never really encouraged in most doctors' lives. You know, it's always -make a diagnosis- what's the treatment plan? What's the ICD code that you have to bill with, and how many people?... La la la la la. That's the world of healthcare. Ultimately, what people have to live with today. I was very fortunate also, not only did I have all of that as a background, I had a culture. My parents kept up with my language. I spoke five different languages when I came to this country."

Dr. Uma discusses various experiences she had leading up to her "AHA" moment when she was with her mother who was dying of lung cancer for unbeknownst reasons, "she had seen a TV program and I could still hear her saying using ganja and I damn well knew what that word was. I beelined it and I heard her said they're using it for COPD, asthma, lung cancer, PTSD, and I still remember that" From there Dr. Uma has gone on to become one of only 50 physicians certified to practice cannabinoid medicine in the United States. She was one of High Times' top 50 females in Cannabis in 2019. I'll share one more quote to wrap up this intro, with the 3 key facts she shares when doing public speaking, and often she is told by doctors that they just didn't know this;

"number one, nobody, and I use the word nobody because there are no deaths ever in the world from this medicine. You cannot die from it. You may feel like you're dying, you ain't gonna die from it. Fact number two, the government has a patent number 66 35 07, issued on October 7, 2003, and it's owned by the government. And it clearly states cannabinoids, not just one, cannabinoids, as an antioxidant. And guess what? A neuroprotectant. There's nothing here about the developing brain. There's nothing here about neurotoxicity. It says neuroprotectant, and they have known about it for Parkinson's, Alzheimer's, dementia, strokes, protection of the heart. They have known about it. Fact number three, doctors had the liberty to write prescriptions because it was allowed. And it was in the United States pharmacopeia from 1852 to 1942." Wow. Check out her website to learn more: http://totalhealthcarethc.com/

Dr. Uma's Links:
Facebook: https://www.facebook.com/profile.php?id=100008556311630
Twitter: https://twitter.com/drumasays
Instagram: https://www.instagram.com/dr.uma_thc/
LinkedIn: https://www.linkedin.com/in/dr-uma-dhanabalan-md-mph-faafp-mro-cms-02843040/
Other links:
https://necann.com/news/speaker/dr-uma-dhanabalan/
https://hightimes.com/news/honorees-high-times-female-50/
https://www.cancerschmancer.org/summit/
https://www.linkedin.com/pulse/cannabinoid-medicine-rebirth-nature-dr-uma-dr-david-bearman/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20534550Fri, 06 Dec 2019 19:35:22 +0000Jill WoodworthDr. Uma Dhanabalan is Founder/CEO, Global Health & Hygiene Solutions LLC, Uplifting Health & Wellness, Natick, MA. "She is a highly respected physician trained in Family Medicine, Occupational & Environmental Medicine, specialized in heavy metals, a...
She completed her Bachelor of Arts degree with high honors from Rutgers University and a Medical degree from the University of Medicine & Dentistry in Newark, New Jersey. She completed a Family Practice Residency at the Medical University of South Carolina, in Charleston, South Carolina and then her Master’s in Public Health and Occupational & Environmental Medicine Residency and Fellowship at the Harvard School of Public Health in Boston Massachusetts. She is also certified by the American Academy of Cannabinoid Medicine and by the Medical Review Officer Certification Council.

She has received awards from the American College of Occupational & Environmental Medicine for her research project: “Occupational & Environmental Exposure to Lead in South India”, from The 7th World Ayurveda Conference & Arogya Expo for her presentation “Cannabis & The Therapeutic Uses” and the Educational Achievement Award presented by Clover Leaf at Cannabis Business Award 2017

She is the Founder/CEO for Global Health & Hygiene Solutions, LLC established in 2006, with a mission to promote wellness and prevent illness. She worked for Kimberly Clark as Regional Medical Director for Asia Pacific She worked for the Hanford Site in Richland, Washington, the largest and most complex cleanup projects in the world, where plutonium was manufactured for the first nuclear bomb detonated in Japan.

She created the TotalHealthCareTHC model where she “Educates Embraces Empowers” patients and promotes cannabis as a treatment option at Uplifting Health and Wellness, in Natick, Massachusetts. She is an advocate, activist, and educator and speaks globally about cannabis as a plant medicine. Her mission is to change the Stigma regarding Cannabis and for the world to know about the Endocannabinoid system through education" https://necann.com/news/speaker/dr-uma-dhanabalan/

Dr. Dhanabalan states: “Cannabis is not for everyone, yet it should be a first-line option not the last resort,” and “Cannabis is not an entrance drug, it is an exit drug from pharmaceuticals narcotics and alcohol.”

Meeting and talking to Dr. Uma was a transformational experience for me. She logically explains the evolution of her understanding of cannabinoid medicine, starting from an early age. Born in India, moving to the US from India at age 8 with her father, a chemical engineer and her mother, a mathematician and working in computer software, she was raised with a strong interest in science as well as a passion for understanding preventative health.

"I'm a family doctor, went to South Carolina (and) finished my practice residency, then I decided to do my second life which brought me back to Massachusetts to Harvard. Where I did my masters in public health because that's where I really realized I had to go back to that calling of preventative medicine."

She goes on to say, " That was something that has been rooted in me, that's never really encouraged in most doctors' lives. You know, it's always -make a diagnosis- what's the treatment plan? What's the ICD code that you have to bill with, and how many people?... La la la la la. That's the world of healthcare. Ultimately, what people have to live with today. I was very fortunate also, not only did I have all of that as a background, I had a culture. My parents kept up with my language. I spoke five different languages when I came to this country."

Dr. Uma discusses various experiences she had leading up to...]]>3314alternativemedicine,cannabinoids,cannabis,cbd,druma,endocannabinoid,familyphysician,ganja,healthcare,india,medical,medicalmarijuana,medicine,occupationalmedicine,opiods,polypharmacy,preventativemedicine,qualityoflife,thc,tscfalsefullhttps://www.spreaker.com/episode/tsc-talks-out-of-southern-illinois-come-a-down-home-country-boy-with-keith-stroup-founder-of-norml--20436579After getting his law degree and working with Ralph Nader, he was inspired to start a consumer group for cannabis users and using his legal skills to try and impact public policy rather than simply "to assist your individual clients get richer, stay out of trouble or whatever"

On founding NORML: "First off, I enjoyed smoking it but I also had become part obviously, of the underground culture of millions of smokers around this country, and began to be aware of the hundreds of thousands of people who were being arrested and having their lives destroyed because of a senseless policy. So I got some friends together a couple of colleagues of mine at the time and we found it normal as marijuana smokers lobby. "

From here Keith goes on to outline his work with NORML over the years along with key moments in the history of marijuana legislation, starting with the foundational motivation of avoiding being drafted, "but for that Vietnam War and that experience of having lived through that terrifying experience and thinking you're going to be drafted and sent to war, I don't think I ever would have had the interest to start NORML, but because of that, it that I jumped into it with both feet. I think I was a bit naive at the time. I remember someone asked me how long I thought it was going to take. And I said I thought it would take at least 10 years. Well, that was in 1970. So it's taken us a little longer than that, where I think we're in our 45th year at NORML, but it is now finally happening"

Keith discusses the shift in public opinion under the influence of more conservative leaders; "Well, we underestimated the possibility of the public mood shifting. And as of the late 70s, early 80s, you had Ronald Reagan and Nancy Reagan. (The) "Just say no" movement, the parents movement, there was a period there where we began as a country to evaluate drug proposals on whether they were good for children. Well, no one is suggesting that children should be using marijuana or alcohol or any other drugs. But nonetheless, that was started the test and as a result, after we got the 11th state to decriminalized in 1978, we didn't win another statewide victory for 18 years"

Bringing us to the current day, Keith discusses the latest legislation approved by the house judiciary committee, " And one of the reasons that the bill at the House Judiciary Committee approved just yesterday, right is so important is because it's called the MORE act. And among the things that would do the most important is it wouldn't just lower marijuana to a lower schedule under the Controlled Substances Act, it would, in fact, remove it altogether from the Controlled Substances Act. "

Keith has been a trailblazer in pushing forward on marijuana legislation nationwide and encourages anyone interested in understanding more about their state laws to visit the website https://norml.org/ and click on their state to read all the applicable state and federal legislation.

There's a lot more here, check out Keith's links and thank you, Keith, for your groundbreaking work to reform marijuana legislation over the last 50 years!

NORML: https://norml.org/. https://norml.org/about/item/r-keith-stroup-jd
LinkedIn: https://www.linkedin.com/in/keith-stroup-68997b6/
Facebook: https://www.facebook.com/keith.stroup
Twitter: https://twitter.com/keithstroup
Instagram: https://www.instagram.com/keithstroup/
Wikipedia: https://en.wikipedia.org/wiki/Keith_Stroup
Recent articles:
https://www.arlingtonmagazine.com/life-after-50with-cannabis/3/
https://www.cannabisindustrylawyer.com/keith-stroup-norml/
https://www.playboy.com/read/weed-warriors

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20436579Tue, 03 Dec 2019 09:24:18 +0000Jill WoodworthKeith Stroup, Founder of NORML, may be a down-home country boy, from Southern Illinois, but he sure did make it in the big city (from Box #10 w/Jim Croce). Keith takes me on a walk, through the annals of his legendary history as a founding father of...After getting his law degree and working with Ralph Nader, he was inspired to start a consumer group for cannabis users and using his legal skills to try and impact public policy rather than simply "to assist your individual clients get richer, stay out of trouble or whatever"

On founding NORML: "First off, I enjoyed smoking it but I also had become part obviously, of the underground culture of millions of smokers around this country, and began to be aware of the hundreds of thousands of people who were being arrested and having their lives destroyed because of a senseless policy. So I got some friends together a couple of colleagues of mine at the time and we found it normal as marijuana smokers lobby. "

From here Keith goes on to outline his work with NORML over the years along with key moments in the history of marijuana legislation, starting with the foundational motivation of avoiding being drafted, "but for that Vietnam War and that experience of having lived through that terrifying experience and thinking you're going to be drafted and sent to war, I don't think I ever would have had the interest to start NORML, but because of that, it that I jumped into it with both feet. I think I was a bit naive at the time. I remember someone asked me how long I thought it was going to take. And I said I thought it would take at least 10 years. Well, that was in 1970. So it's taken us a little longer than that, where I think we're in our 45th year at NORML, but it is now finally happening"

Keith discusses the shift in public opinion under the influence of more conservative leaders; "Well, we underestimated the possibility of the public mood shifting. And as of the late 70s, early 80s, you had Ronald Reagan and Nancy Reagan. (The) "Just say no" movement, the parents movement, there was a period there where we began as a country to evaluate drug proposals on whether they were good for children. Well, no one is suggesting that children should be using marijuana or alcohol or any other drugs. But nonetheless, that was started the test and as a result, after we got the 11th state to decriminalized in 1978, we didn't win another statewide victory for 18 years"

Bringing us to the current day, Keith discusses the latest legislation approved by the house judiciary committee, " And one of the reasons that the bill at the House Judiciary Committee approved just yesterday, right is so important is because it's called the MORE act. And among the things that would do the most important is it wouldn't just lower marijuana to a lower schedule under the Controlled Substances Act, it would, in fact, remove it altogether from the Controlled Substances Act. "

Keith has been a trailblazer in pushing forward on marijuana legislation nationwide and encourages anyone interested in understanding more about their state laws to visit the website https://norml.org/ and click on their state to read all the applicable state and federal legislation.

There's a lot more here, check out Keith's links and thank you, Keith, for your groundbreaking work to reform marijuana legislation over the last 50 years!

NORML: https://norml.org/. https://norml.org/about/item/r-keith-stroup-jd
LinkedIn: 3258alcohol,attorney,cannabis,cannabislegislation,cbd,criminallaw,georgetownlaw,keithstroup,marijuanalawreform,marijuanalegalization,marijuanalegislation,nonprofit,norml,prohibition,qualityoflife,ralphnadar,reefermadness,southernillinois,thc,vietnamwarfalsefullhttps://www.spreaker.com/episode/tsc-talks-inclusion-for-everybody-tina-guenette-pedersen-founder-of-r-a-m-p-real-access-motivates-progress--20313488
"I'm a four-time cancer survivor-breast twice, bladder twice. And during one of my bladder cancer surgeries, it was a very minor surgery to my bladder machine, because I have a machine now that helps my bladder. During a tweak to that with a 20-minute surgery, I took a stroke to my spinal cord and woke up and never walked again. So literally, a little over five years ago, I walked into surgery and never walked again"

"So it was kind of like here's a wheelchair, go home and figure it out. And that's what I had to do. It took me a while. I mean, of course, I had my downtime in the frustration and just trying to get through your day to day because like I said at the time, my daughter was a senior in high school, my son was a freshman. I was her cheerleading coach for competitive cheerleading. I had to figure out how to live my life and how to make this wheelchair work and figure it out as I went along and I then threw myself into finding out as much as I could what was out there? And like I said, that's when I decided to start an organization for other people who ended up like me."

"In 2018, Tina was named Ms. Wheelchair Rhode Island and her advocacy of inclusion for all began. In this journey, she met many individuals with all types of disabilities and gathered insight and information for change. She was appointed to the Governor's Commission on Disability and voted as Vice Chairwoman."

"Tina's foundation, R.A.M.P. -Real Access Motivates Progress, R.A.M.P.’s mission is to educate and advocate about accessibility and inclusion. We support any and all individuals with disabilities both visible and invisible, their families and support staff in creating a safe, barrier-free environment in all communities. http://rampisinclusion.com/

Tina started an initiative to provide RED BAGS to meet an unmet need, to "keep your (medical emergency) information updated easily and readily available. Not digital and easily accessible for emergency agencies with no technical issues." Join the RED BAG movement! Be a RED BAG carrier—it could SAVE YOUR LIFE!" Learn more on her website and order here: https://www.paypal.me/RAMPisinclusion?locale.x=en_US

Tina is quite a power of example and refuses to harbor negativity and resentment, she lives her life knowing that every day is a chance to make a difference, and the time is now, " we need to be making the people who live here now in this situation right now better and include more people"

Links!
Website: http://rampisinclusion.com/
Facebook: https://www.facebook.com/RAMPorg/
Twitter: https://twitter.com/rampisinclusion
Instagram: https://www.instagram.com/ramp_is_inclusion/
YouTube: https://www.youtube.com/channel/UCo6u01UIYuN7vWGEtTNsBIQ
LinkedIn: https://www.linkedin.com/in/tina-guenette-pedersen-b101a018a/
Recent Articles:
https://www.abilities.com/community/ramp.html
https://www.valleybreeze.com/2018-04-25/cumberland-lincoln-area/accessibility-dignity#.XeEc1ehKhPY
http://johnstonsunrise.net/stories/my-time-to-make-a-difference,140277

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20313488Fri, 29 Nov 2019 13:34:55 +0000Jill WoodworthTina Guenette Pedersen is the President & Founder of R.A.M.P.~Real Access Motivates Progress, and this is how her story starts; "Well, my name is Tina Pedersen. I'm 47 years old. I have two children and two grandchildren. And I was very active in my...
"I'm a four-time cancer survivor-breast twice, bladder twice. And during one of my bladder cancer surgeries, it was a very minor surgery to my bladder machine, because I have a machine now that helps my bladder. During a tweak to that with a 20-minute surgery, I took a stroke to my spinal cord and woke up and never walked again. So literally, a little over five years ago, I walked into surgery and never walked again"

"So it was kind of like here's a wheelchair, go home and figure it out. And that's what I had to do. It took me a while. I mean, of course, I had my downtime in the frustration and just trying to get through your day to day because like I said at the time, my daughter was a senior in high school, my son was a freshman. I was her cheerleading coach for competitive cheerleading. I had to figure out how to live my life and how to make this wheelchair work and figure it out as I went along and I then threw myself into finding out as much as I could what was out there? And like I said, that's when I decided to start an organization for other people who ended up like me."

"In 2018, Tina was named Ms. Wheelchair Rhode Island and her advocacy of inclusion for all began. In this journey, she met many individuals with all types of disabilities and gathered insight and information for change. She was appointed to the Governor's Commission on Disability and voted as Vice Chairwoman."

"Tina's foundation, R.A.M.P. -Real Access Motivates Progress, R.A.M.P.’s mission is to educate and advocate about accessibility and inclusion. We support any and all individuals with disabilities both visible and invisible, their families and support staff in creating a safe, barrier-free environment in all communities. http://rampisinclusion.com/

Tina started an initiative to provide RED BAGS to meet an unmet need, to "keep your (medical emergency) information updated easily and readily available. Not digital and easily accessible for emergency agencies with no technical issues." Join the RED BAG movement! Be a RED BAG carrier—it could SAVE YOUR LIFE!" Learn more on her website and order here: https://www.paypal.me/RAMPisinclusion?locale.x=en_US

Tina is quite a power of example and refuses to harbor negativity and resentment, she lives her life knowing that every day is a chance to make a difference, and the time is now, " we need to be making the people who live here now in this situation right now better and include more people"

Links!
Website: http://rampisinclusion.com/
Facebook: https://www.facebook.com/RAMPorg/
Twitter: https://twitter.com/rampisinclusion
Instagram: https://www.instagram.com/ramp_is_inclusion/
YouTube: https://www.youtube.com/channel/UCo6u01UIYuN7vWGEtTNsBIQ
LinkedIn: https://www.linkedin.com/in/tina-guenette-pedersen-b101a018a/
Recent Articles:
https://www.abilities.com/community/ramp.html2623accessibility,bladdercancer,breastcancer,cancersurvivor,community,disabilities,disabled,health,inclusion,inclusionaforall,medical,mentalhealth,qualityoflife,r.a.m.p.,realaccessmotivatesprogress,rhodeisland,specialneeds,tsctalks,wheelchairfalsefullhttps://www.spreaker.com/episode/tsc-talks-planting-the-seeds-sowing-hope-with-marissa-fratoni-rn-bsn-holistic-rn-cannabis-advocate-green-nurse-freelance-writer--20191334
We started off talking about how she went from traditional nursing in a very demanding operating room at a local hospital to becoming a visiting nurse, then "on a whim" taking a job in a local dispensary, she says,

"Working in the dispensary just completely opened, changed my entire perception of the plant. I was in interacting with people who were very chronically ill and seeing miraculous changes in their overall quality of life with the use of cannabis. And these are things as a visiting nurse, I didn't see you know, my patients were always you know, very a lot of them were very compliant with their pharmaceutical regimens and whatever their doctors were telling them, but they weren't healing and what I saw in the dispensary was cannabis patients consistently coming in and saying, this is helping me it's improved my entire life. It's changed my life. I mean, those are things that I'm was not hearing as a visiting nurse"

She ended up engaging with a lot of people looking for support and she started to offer consultations to women; mainly weight loss, wellness consultations in the realm of motherhood. But then, she started working at the dispensary and had patients who found her that way too when her name was coming up as a cannabis nurse.

"It was a game-changer for them, you know they were looking for people who could help them build a bridge between what they weren't receiving in the medical community and what they were getting in the medical cannabis community. For a lot of patients, they're stuck navigating all of this on their own. And that's essentially where cannabis nurses come in"

We also discuss her role interacting with the traditional medical community, she states, "my goal as a nurse is to not to get them to just completely transfer off of medications. I think there's a lot of poor information out there and a lot of people think that it's either-or, and it shouldn't be. There's a lot of great things available through modern medicine. There's also a lot of great things available through holistic and integrative medicine and practices. And I think my goal as a holistic nurse is to help to again, bridge that gap."

We discuss the CBD craze, her concerns with product safety and labeling, emphasizing that every company that has a quality CBD product on the market will be backed up by functional lab testing, where they're able to tell you the cannabinoid profile and if it's tested positive or negative for any contaminants. If it's tested positive experiment, it shouldn't be on the shelf but they should be able to tell you what is in that product within that bottle."

Marissa also has some experience working with patients in recovery using cannabis as a "harm reduction" tool and has some really relevant insights on working with those struggling with heroin addiction and how cannabis can be a useful but cautions that medical supervision and support are needed when detoxing, etc.

It was a pleasure to pick Marissa's brain on her broad offerings and wide array of lived experiences she's developed into a fabulous platform. Check out her links and thanks for listening!

Links:
Website: https://holisticnursemama.blog/
Facebook: https://www.facebook.com/marissa.fratoni
Instagram: @holisticnursemama
Twitter: @Marissa_Fratoni
LinkedIn: https://www.linkedin.com/in/marissa-fratoni-94b62429/
Central MA Yoga: https://centralmassyoga.com/marissa-fratoni/
Medium: https://medium.com/@marissafratoni
https://cannamommy.org/about

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20191334Sat, 23 Nov 2019 10:56:41 +0000Jill WoodworthMarissa Fratoni, Holistic RN - Cannabis Therapeutics - Maternal Health - Writer - Public Speaker, is a wealth of information and insight on cannabinoid therapeutics holistic medicine and integrative health. I met Marissa through Jessie Gill,...
We started off talking about how she went from traditional nursing in a very demanding operating room at a local hospital to becoming a visiting nurse, then "on a whim" taking a job in a local dispensary, she says,

"Working in the dispensary just completely opened, changed my entire perception of the plant. I was in interacting with people who were very chronically ill and seeing miraculous changes in their overall quality of life with the use of cannabis. And these are things as a visiting nurse, I didn't see you know, my patients were always you know, very a lot of them were very compliant with their pharmaceutical regimens and whatever their doctors were telling them, but they weren't healing and what I saw in the dispensary was cannabis patients consistently coming in and saying, this is helping me it's improved my entire life. It's changed my life. I mean, those are things that I'm was not hearing as a visiting nurse"

She ended up engaging with a lot of people looking for support and she started to offer consultations to women; mainly weight loss, wellness consultations in the realm of motherhood. But then, she started working at the dispensary and had patients who found her that way too when her name was coming up as a cannabis nurse.

"It was a game-changer for them, you know they were looking for people who could help them build a bridge between what they weren't receiving in the medical community and what they were getting in the medical cannabis community. For a lot of patients, they're stuck navigating all of this on their own. And that's essentially where cannabis nurses come in"

We also discuss her role interacting with the traditional medical community, she states, "my goal as a nurse is to not to get them to just completely transfer off of medications. I think there's a lot of poor information out there and a lot of people think that it's either-or, and it shouldn't be. There's a lot of great things available through modern medicine. There's also a lot of great things available through holistic and integrative medicine and practices. And I think my goal as a holistic nurse is to help to again, bridge that gap."

We discuss the CBD craze, her concerns with product safety and labeling, emphasizing that every company that has a quality CBD product on the market will be backed up by functional lab testing, where they're able to tell you the cannabinoid profile and if it's tested positive or negative for any contaminants. If it's tested positive experiment, it shouldn't be on the shelf but they should be able to tell you what is in that product within that bottle."

Marissa also has some experience working with patients in recovery using cannabis as a "harm reduction" tool and has some really relevant insights on working with those struggling with heroin addiction and how cannabis can be a useful but cautions that medical supervision and support are needed when detoxing, etc.

It was a pleasure to pick Marissa's brain on her broad offerings and wide array of lived experiences she's developed into a fabulous platform. Check out her links and thanks for listening!

Links:
Website: https://holisticnursemama.blog/
Facebook: https://www.facebook.com/marissa.fratoni
Instagram: @holisticnursemama
Twitter: @Marissa_Fratoni
LinkedIn: 2522addiction,cannabinoidmedicine,cannabis,cannabisforaddiction,cannabisspace,cbd,entrepreneur,greennurse,holistic,holisticnurse,holisticnursemama,massachusetts,mentalhealth,recovery,rn,thc,tuberoussclerosiscomplex,visitingnurse,writer,yogainstructorfalsefullhttps://www.spreaker.com/episode/tsc-talks-tsc-talks-meets-the-canna-mom-show-inspiring-stories-told-by-real-cannabis-moms-with-joyce-gerber-amie-searles--20101334
We talk initially about cannabis and parenting and our observations that cannabis has helped us all, in many instances be better parents, or at least more able to engage in the now and connect with our offspring. Making the connection with the TSC community, I will share personally that using cannabis helped me greatly slow down the frequent crises long enough to observe my son's TSC/TAND behaviors, my own role in perpetuating patterns, and start to break the cycle. One small example of how the potential of cannabis as medicine can positively impact the entire family.

Their pitch is as follows: 'Are you interested in hearing inspiring cannabis stories told by real cannabis moms? This is the show for you! Former family law attorney and mother of two, Joyce Gerber, and her canna-sister, Amie Searles, a 420 Realtor, talk with women from coast to coast who are leaders in the revolution of cannabis and caregiving and crushing the cannabis stigma, one canna story at a time."

While an overall lighthearted conversation, we dipped down into the weeds a bit to get some of the deeper motivations for their willingness to step away from more traditional careers and launch a podcast. Not just any podcast, but one on cannabis. Joyce discusses some life challenges with juggling career and parenthood and coming back to a career in her 50s and how that pushed her to try something different. Amie relates how her own experience being diagnosed with breast cancer and using cannabis as part of her treatment regimen gave her the impetus to speak out about her positive experiences instead of holding on to the many years of shame, guilt and confusion so many from our generation felt and continue to feel for using something that can actually contribute to improved mental and physical health.

"But the truth is everybody has a cannabis story. You know, Even myself, I'm very active in my temple and in our synagogue, I'm having a doctor come in, and we're going to do a talk on cannabis, Friday night, pre-service. You know, these are older women a little older than me. And we are the fastest growing population of users"

We discuss the local cannabis industry in MA, challenges with legislation in cities such as Cambridge, MA, some of the fun events these ladies have attended to engage with the local community and promote their work, such as a Cannabis Wedding Expo. Also discussed are the CBD market,, CBD safety and Cannabis interactions with medications, the overmedicating of America with pharmaceuticals, and much more. This one will make you laugh, cry, giggle, inspire you & broaden your vision in regards to the potential of cannabis as medicine, as a recreational substance, and more. Also, how podcasters as communicators speaking out about this sometimes controversial subject matter have the power to truly affect change, at a local and national level. Go Canna Moms!

Links:
Facebook: https://www.facebook.com/thecannamomshow
Instagram: https://www.instagram.com/thecannamomshow/
Stitcher: https://www.stitcher.com/podcast/the-canna-mom-show
Apple: https://podcasts.apple.com/us/podcast/the-canna-mom-show-with-joyce-and-amie/id1485037386
Tune In: https://tunein.com/podcasts/Health--Wellness-Podcasts/The-Canna-Mom-Show-p1245811/
LinkedIn, Joyce: https://www.linkedin.com/in/joyce-gerber/
LinkedIn, Amie: https://www.linkedin.com/in/amie-searles-79329373/
YouTube Promotion: https://www.youtube.com/watch?v=TSeN5j1pWlo

Thanks for listening! Reviews on ITunes are much appreciated. Check out our website: https://tsctalks.com and our current market research survey: https://www.surveymonkey.com/r/YFGZMX9

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/20101334Mon, 18 Nov 2019 20:34:38 +0000Jill WoodworthJoyce Gerber & Amie Searles are The Canna Moms who started the local-to-MA podcast called The Canna Mom Show!. Referred to as The Click and Clack of Cannabis, while also aspiring to be the Terry Gross of Cannabis Talk, these ladies were awesome....
We talk initially about cannabis and parenting and our observations that cannabis has helped us all, in many instances be better parents, or at least more able to engage in the now and connect with our offspring. Making the connection with the TSC community, I will share personally that using cannabis helped me greatly slow down the frequent crises long enough to observe my son's TSC/TAND behaviors, my own role in perpetuating patterns, and start to break the cycle. One small example of how the potential of cannabis as medicine can positively impact the entire family.

Their pitch is as follows: 'Are you interested in hearing inspiring cannabis stories told by real cannabis moms? This is the show for you! Former family law attorney and mother of two, Joyce Gerber, and her canna-sister, Amie Searles, a 420 Realtor, talk with women from coast to coast who are leaders in the revolution of cannabis and caregiving and crushing the cannabis stigma, one canna story at a time."

While an overall lighthearted conversation, we dipped down into the weeds a bit to get some of the deeper motivations for their willingness to step away from more traditional careers and launch a podcast. Not just any podcast, but one on cannabis. Joyce discusses some life challenges with juggling career and parenthood and coming back to a career in her 50s and how that pushed her to try something different. Amie relates how her own experience being diagnosed with breast cancer and using cannabis as part of her treatment regimen gave her the impetus to speak out about her positive experiences instead of holding on to the many years of shame, guilt and confusion so many from our generation felt and continue to feel for using something that can actually contribute to improved mental and physical health.

"But the truth is everybody has a cannabis story. You know, Even myself, I'm very active in my temple and in our synagogue, I'm having a doctor come in, and we're going to do a talk on cannabis, Friday night, pre-service. You know, these are older women a little older than me. And we are the fastest growing population of users"

We discuss the local cannabis industry in MA, challenges with legislation in cities such as Cambridge, MA, some of the fun events these ladies have attended to engage with the local community and promote their work, such as a Cannabis Wedding Expo. Also discussed are the CBD market,, CBD safety and Cannabis interactions with medications, the overmedicating of America with pharmaceuticals, and much more. This one will make you laugh, cry, giggle, inspire you & broaden your vision in regards to the potential of cannabis as medicine, as a recreational substance, and more. Also, how podcasters as communicators speaking out about this sometimes controversial subject matter have the power to truly affect change, at a local and national level. Go Canna Moms!

Links:
Facebook: https://www.facebook.com/thecannamomshow
Instagram: https://www.instagram.com/thecannamomshow/
Stitcher: https://www.stitcher.com/podcast/the-canna-mom-show
Apple: 2759420realestate,addiction,attorney,cambridgema,cannabinoid,cannabis,cbd,entrepreneurs,medicalcannabis,medicalmarijuana,mentalhealth,podcast,podcasters,polypharmacy,pot,socialgood,thecannamomshow,tsctalks,vapingban,weedfalsefullhttps://www.spreaker.com/episode/tsc-talks-unlocking-the-potential-of-our-planet-with-russell-cole-visionary-cannabis-industry-leader-ceo-of-organic-grow-solutions--19991935
In this episode, we start off discussing how Russell got his start in the cannabis industry and his current role as CEO of Organic Grow Solutions. He details the operations of OGS; "We work with cultivators on advanced imaging. So really taking a look at the bio physiology of the crops through imaging solutions and having the opportunity to see what's really going on at the crop level based on wavelengths of light that we can't see what the human eye but these cameras can. We just take photos using these very advanced imaging lenses. We start to look at the different types of light signatures that the plants give off and sometimes that signature indicates that a plant has low nutrient levels or maybe possibly a disease or pest pressure zone that's starting to break out. And we're able to really start to take that information and build data libraries with more precise information”

We also get into a discussion on the cannabis industry in a broader sense, comparing the North American and European markets; "they're fortunately able to take the best practices from Canada from other countries that they've seen to develop their policy and regulations behind the medicinal side. What that's doing is, it's stopping the hype from creating a brand sort of propaganda if you will, and just focusing on the validation of it being a medicine today, and really working the system to include pharmacies, studies, and research"

Wrapping it up, Russell pulls it all together and shares his live vision; "My life vision is taking technologies, call it cannabis, call it anything a biosynthetic, 3d printed organs in the future and other technologies that that I think are very valuable to society, but are there are barriers to accessing those technologies and we've seen that with cannabis, whether it's because of government regulations and prohibition or whether it's because of costs, whether it's because of data. I think that bringing access to the things that humans could really value from is a mission I'm on and whether again that's cannabis or biosynthetic 3d printed organs, I think it's very important to commercialize and accelerate and lobby and push the boundaries. Yep. And that's mostly my thought is just giving access to people and accelerating our development towards making sure that our world can, just improve."

Thanks, Russell for your dedication, vision, and work to the cannabis industry and the world in general!

Russell's links:
LinkedIn: https://www.linkedin.com/in/russellcole/
Organic Grow Solutions: https://www.organicgrowsolutions.com/
Facebook: https://www.facebook.com/OrganicGrow-Solutions-283257502607493/
https://growupconference.com/speakers/russell-cole/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19991935Wed, 13 Nov 2019 10:35:41 +0000Jill WoodworthRussell Cole describes himself as "FUTURIST - EDUCATOR - BUSINESS LEADER, An entrepreneur who is motivated by providing access to technologies and innovations that we should already be benefiting from. I am humbled by the deep network of passionate,...
In this episode, we start off discussing how Russell got his start in the cannabis industry and his current role as CEO of Organic Grow Solutions. He details the operations of OGS; "We work with cultivators on advanced imaging. So really taking a look at the bio physiology of the crops through imaging solutions and having the opportunity to see what's really going on at the crop level based on wavelengths of light that we can't see what the human eye but these cameras can. We just take photos using these very advanced imaging lenses. We start to look at the different types of light signatures that the plants give off and sometimes that signature indicates that a plant has low nutrient levels or maybe possibly a disease or pest pressure zone that's starting to break out. And we're able to really start to take that information and build data libraries with more precise information”

We also get into a discussion on the cannabis industry in a broader sense, comparing the North American and European markets; "they're fortunately able to take the best practices from Canada from other countries that they've seen to develop their policy and regulations behind the medicinal side. What that's doing is, it's stopping the hype from creating a brand sort of propaganda if you will, and just focusing on the validation of it being a medicine today, and really working the system to include pharmacies, studies, and research"

Wrapping it up, Russell pulls it all together and shares his live vision; "My life vision is taking technologies, call it cannabis, call it anything a biosynthetic, 3d printed organs in the future and other technologies that that I think are very valuable to society, but are there are barriers to accessing those technologies and we've seen that with cannabis, whether it's because of government regulations and prohibition or whether it's because of costs, whether it's because of data. I think that bringing access to the things that humans could really value from is a mission I'm on and whether again that's cannabis or biosynthetic 3d printed organs, I think it's very important to commercialize and accelerate and lobby and push the boundaries. Yep. And that's mostly my thought is just giving access to people and accelerating our development towards making sure that our world can, just improve."

Thanks, Russell for your dedication, vision, and work to the cannabis industry and the world in general!

Russell's links:
LinkedIn: https://www.linkedin.com/in/russellcole/
Organic Grow Solutions: https://www.organicgrowsolutions.com/
Facebook: https://www.facebook.com/OrganicGrow-Solutions-283257502607493/
https://growupconference.com/speakers/russell-cole/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2373biosynthetic,cannabis,cannabisgrowers,cannabisindustry,drones,lightimagingtechnology,podcast,technology,visionaryfalsefullhttps://www.spreaker.com/episode/tsc-talks-revolutionizing-healthcare-with-cannabinoid-medicine-janna-champagne-rn-bsn-cannabis-nurse-medical-cannabis-expert--19886235
Janna's introduction to the cannabis industry began as a cannabis patient when she suffered a health collapse in 2012. She credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status. Janna is also known for her daughter's cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017.

We engage in a discussion covering Janna's initial entry into the industry to address her own serious health issues and from there launch into a discussion of her daughter's diagnosis and lived experience of Autism.

"I believe Autism is dysfunction in the is the triad of the gut, the brain and the immune system and the interactions between them okay, this is where main mainstream medicine is really failing to address autism because it's not looking at that it's, it's doing it like many of the mental health disorders where they just they have these symptoms. We're going to label them autism. Oh, yeah, I think we can do put it in the bottle we can try the mental health pharmaceuticals. But beyond that, they don't look at how to heal the gut."

"As a nurse, my approach has always been with my daughter with myself , my patients, we're supposed to weigh the risk versus benefit of all of the options and guide our patient to make an informed decision. And obviously, you know, ideally, they would choose the least risky options with the most potential benefits. And I have seen literally I've worked with thousands of patients directly individually. And it's so commonplace for patients to reduce their reliance on pharmaceuticals, once they start cannabis therapy, and really improve their quality of life. You know, in the elderly population. I've seen reversals of dementia, really the autism population I've seen improved behavior, improved quality of life, improved function."

"I see cannabis as having the potential to revolutionize our broken healthcare system with you, but the only way that is going to happen is if we keep it pure, and keep it medical quality and keep it patient-focused, because if we go the farmer route, we're going to end up exactly where are right now with pharmaceuticals that aren't effective, they're creating customers not cures, and they're not in the best interest of patients. That's why I am so driven to try to educate, and really bring people on board that are patient-focused, and really highlight those companies."

Thanks Janna for opening our eyes to the amazing potential of cannabis to continue to profoundly impact the lives of so many desperate for answers beyond the mainstream medical system. A true Healthcare Revolution!

Check out Janna's links! She's done and is doing amazing work and has much information published:

https://jannachampagne.com/
http://www.integratedholisticcare.com/providers.html
https://www.cannabisnursesnetwork.com/member/cannabisnursejanna/
https://www.linkedin.com/in/janna-champagne-bsn-rn-95a51a167
https://twitter.com/cannanursejanna
https://www.marijuanamommy.com/cannabis-nurses-chat-with-janna-champagne/
https://www.facebook.com/jannababe
https://www.instagram.com/nursejanna/
https://youtu.be/aUgDjgFjbA8

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19886235Wed, 06 Nov 2019 16:55:29 +0000Jill WoodworthNurse Janna Champagne, RN, BSN, Cannabis Nurse and Medical Cannabis Expert joined me to discuss her lived experience and work in the cannabis industry, including the success she's had utilizing cannabinoid medicine for her daughter with Autism....
Janna's introduction to the cannabis industry began as a cannabis patient when she suffered a health collapse in 2012. She credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status. Janna is also known for her daughter's cannabis/Autism success story, which published on the cover story in a nationwide industry magazine in 2017.

We engage in a discussion covering Janna's initial entry into the industry to address her own serious health issues and from there launch into a discussion of her daughter's diagnosis and lived experience of Autism.

"I believe Autism is dysfunction in the is the triad of the gut, the brain and the immune system and the interactions between them okay, this is where main mainstream medicine is really failing to address autism because it's not looking at that it's, it's doing it like many of the mental health disorders where they just they have these symptoms. We're going to label them autism. Oh, yeah, I think we can do put it in the bottle we can try the mental health pharmaceuticals. But beyond that, they don't look at how to heal the gut."

"As a nurse, my approach has always been with my daughter with myself , my patients, we're supposed to weigh the risk versus benefit of all of the options and guide our patient to make an informed decision. And obviously, you know, ideally, they would choose the least risky options with the most potential benefits. And I have seen literally I've worked with thousands of patients directly individually. And it's so commonplace for patients to reduce their reliance on pharmaceuticals, once they start cannabis therapy, and really improve their quality of life. You know, in the elderly population. I've seen reversals of dementia, really the autism population I've seen improved behavior, improved quality of life, improved function."

"I see cannabis as having the potential to revolutionize our broken healthcare system with you, but the only way that is going to happen is if we keep it pure, and keep it medical quality and keep it patient-focused, because if we go the farmer route, we're going to end up exactly where are right now with pharmaceuticals that aren't effective, they're creating customers not cures, and they're not in the best interest of patients. That's why I am so driven to try to educate, and really bring people on board that are patient-focused, and really highlight those companies."

Thanks Janna for opening our eyes to the amazing potential of cannabis to continue to profoundly impact the lives of so many desperate for answers beyond the mainstream medical system. A true Healthcare Revolution!

Check out Janna's links! She's done and is doing amazing work and has much information published:

https://jannachampagne.com/
http://www.integratedholisticcare.com/providers.html
https://www.cannabisnursesnetwork.com/member/cannabisnursejanna/
https://www.linkedin.com/in/janna-champagne-bsn-rn-95a51a167
https://twitter.com/cannanursejanna
https://www.marijuanamommy.com/cannabis-nurses-chat-with-janna-champagne/
3606autism,autismawareness,cannabinoidmedicine,cannabis,cannabiseducation,cannabisforautism,cannabisfortsc,cannabisnurse,cbd,epilepsy,holistic,homeschooling,marijuana,medicalmarijuana,nursing,podcast,pubertycrisis,transitiontoadulthood,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-stacey-jackson-special-education-advocate-keeping-the-big-picture-in-mind-setting-the-bar-high--19840897
Stacey discusses how the immersive experience living away from home in a setting such as Riverview School, a co-educational boarding school placement, can be beneficial for those with "complex learning challenges" and has served her daughter well. Keeping the big picture in mind while advocating for the most effective programming for our loved ones challenged by special needs and trying to stay positive while making and keeping connections, are a few tools that have served Stacey well over the years. She urges parents to keep setting the bar high and remember that the main goal of any transition is that our loved ones are able to hold a job and live independently as possible.

She states, "I don't know if it's just people have pity on kids with special needs....oh their lives are so hard that you know... let's not push them anymore. Let's keep them happy. But she's the type of kid that like most kids, if you're not going to push her, she's not going to take on anything herself, she's going to sit back and coast and play Uno all day if they'll let you. But at the end of the day, we're doing these kids a tremendous disservice because, okay, we might be keeping them happy, but that's going to help them later on. Is that going to help only hold a job or live independently or have you know, great friendships with people if they're not pushed outside their comfort zone? "

To hear the original podcast episode with Stacey Jackson: https://www.spreaker.com/user/8658658/stacey-jackson-take-2

Stacey's Links:

Facebook: https://www.facebook.com/stacey.w.jackson.9
Riverview School: https://riverviewschool.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19840897Mon, 04 Nov 2019 14:00:32 +0000Jill WoodworthStacey Jackson, special education advocate, parent, engineer & past school committee member stopped by the podcast to give us an update on her daughter's out of district placement as well as engage in a discussion on the transition process. Stacey...
Stacey discusses how the immersive experience living away from home in a setting such as Riverview School, a co-educational boarding school placement, can be beneficial for those with "complex learning challenges" and has served her daughter well. Keeping the big picture in mind while advocating for the most effective programming for our loved ones challenged by special needs and trying to stay positive while making and keeping connections, are a few tools that have served Stacey well over the years. She urges parents to keep setting the bar high and remember that the main goal of any transition is that our loved ones are able to hold a job and live independently as possible.

She states, "I don't know if it's just people have pity on kids with special needs....oh their lives are so hard that you know... let's not push them anymore. Let's keep them happy. But she's the type of kid that like most kids, if you're not going to push her, she's not going to take on anything herself, she's going to sit back and coast and play Uno all day if they'll let you. But at the end of the day, we're doing these kids a tremendous disservice because, okay, we might be keeping them happy, but that's going to help them later on. Is that going to help only hold a job or live independently or have you know, great friendships with people if they're not pushed outside their comfort zone? "

To hear the original podcast episode with Stacey Jackson: https://www.spreaker.com/user/8658658/stacey-jackson-take-2

Stacey's Links:

Facebook: https://www.facebook.com/stacey.w.jackson.9
Riverview School: https://riverviewschool.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2051advocacy,iep,learningchallenges,mentalhealth,neurodiversity,podcaster,riverviewschool,specialedadvocate,specialeducation,specialneeds,transitionservices,transitiontoadulthood,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-cannabis-education-accessibility-affordability-acceptance-with-dr-marymd-kevin-greene-of-cleveland-school-of-cannabis--19766026
"She is a published researcher, a national speaker on women’s health and osteoporosis, and author of four books, and two new soon-to-be-released books on CBD and Cannabis – what you need to know, how to use them and a COOKBOOK to support ease of use." https://cbdandcannabisinfo.com

Check out Kevin and Mary's links!

Mary Clifton, M.D.

DrMarymd.com
Twitter: https://twitter.com/drmarymd
Facebook: https://www.facebook.com/mary.k.clifton.5
Instagram: https://www.instagram.com/cbd_thc_md/
YouTube: https://www.youtube.com/channel/UCYWQ8H9L7RIIUkSNena8bCg
LinkedIn: https://www.linkedin.com › marycliftonmd
https://cbdandcannabisinfo.com
https://health.usnews.com/doctors/mary-clifton-572365
https://www.amazon.com › Mary-Clifton-MD
https://www.entrepreneur.com › author › mary-clifton-md
https://www.forbes.com/sites/warrenbobrow/2019/08/30/the-five-questions-discussed-by-cannabis-md-dr-mary-clifton/#2f9e5e26325b
https://drmaryjanemd.com/
https://www.mindbodygreen.com/wc/dr-mary-clifton

Kevin Greene:

https://www.linkedin.com/in/kevin-greene-48b5b7b7/
Cleveland School of Cannabis
https://www.linkedin.com/company/clevelandcannabiscollege/about/
Facebook: https://www.facebook.com/Cleveland-School-of-Cannabis-2409311089353307/
Twitter: https://twitter.com/ohiocannabisedu
IG: https://www.instagram.com/clevelandschoolofcannabis/
YouTube: https://www.youtube.com/channel/UC9SHx-_odKX-FJ7hqx-ypDw
info@csceducation.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19766026Thu, 31 Oct 2019 10:47:42 +0000Jill WoodworthKevin Greene, VP of Cleveland School of Cannabis is an Entrepreneur - Strategic Marketer - Business Development - Cannabis Entrepreneur. He shares his experience in the education arm of the cannabis industry and the novel programs and success of CSC...
"She is a published researcher, a national speaker on women’s health and osteoporosis, and author of four books, and two new soon-to-be-released books on CBD and Cannabis – what you need to know, how to use them and a COOKBOOK to support ease of use." https://cbdandcannabisinfo.com

Check out Kevin and Mary's links!

Mary Clifton, M.D.

DrMarymd.com
Twitter: https://twitter.com/drmarymd
Facebook: https://www.facebook.com/mary.k.clifton.5
Instagram: https://www.instagram.com/cbd_thc_md/
YouTube: https://www.youtube.com/channel/UCYWQ8H9L7RIIUkSNena8bCg
LinkedIn: https://www.linkedin.com › marycliftonmd
https://cbdandcannabisinfo.com
https://health.usnews.com/doctors/mary-clifton-572365
https://www.amazon.com › Mary-Clifton-MD
https://www.entrepreneur.com › author › mary-clifton-md
https://www.forbes.com/sites/warrenbobrow/2019/08/30/the-five-questions-discussed-by-cannabis-md-dr-mary-clifton/#2f9e5e26325b
https://drmaryjanemd.com/
https://www.mindbodygreen.com/wc/dr-mary-clifton

Kevin Greene:

https://www.linkedin.com/in/kevin-greene-48b5b7b7/
Cleveland School of Cannabis
https://www.linkedin.com/company/clevelandcannabiscollege/about/
Facebook: https://www.facebook.com/Cleveland-School-of-Cannabis-2409311089353307/
Twitter: https://twitter.com/ohiocannabisedu
IG: https://www.instagram.com/clevelandschoolofcannabis/
YouTube: https://www.youtube.com/channel/UC9SHx-_odKX-FJ7hqx-ypDw
info@csceducation.com

Become a supporter of this podcast: 2654alternativemedicine,autism,cannabis,cannabiseducation,cannabisindustry,cbd,cbdandcannabinoidmedicine,education,epilepsy,hope,medical,medicalmarijuana,mentalhealth,neuroscience,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-questioning-the-status-quo-steven-l-kelley-president-ceo-of-ellenville-regional-hospital-tsc-talks-update--19653935
Steve has been the President and CEO of Ellenville Regional Hospital since September 2003. "He has a diverse background in the computer, research, and healthcare industries. Under Mr. Kelley’s leadership, ERH has been recognized with 4 national awards from HRSA for patient safety and medication safety, has been recognized by the National Rural Health Association as one of the top 20 Critical Access Hospitals in the country for Quality, and has been a leader in New York State in the areas of quality measurement and rural health. Many other significant awards have followed."(http://bit.ly/31zKK0E). I thoroughly enjoyed my discussion with Steve and have more audio that will be included in future episodes. He discusses his entry into the healthcare industry after some words from his grandfather; "I was really quite successful in what I was doing in it. And I visited my 90 some year old grandfather. And I was telling him how successful I was how I had really nice clothes and suspenders and I had a new car and took great vacations. I owned a house before I was 25. I kind of the world by the tail, but my grandfather was a farmer and a Presbyterian minister and any money that he ever made, he gave away. Because he thought other people needed it more. And all of my efforts to impress him. Were all they did is turned him off. "

He talks more about how he went from working in a business/IT setting to the healthcare industry and how this led to his success questioning the reasoning of doing things the same way because that's the way they've always been done. He is continually thinking outside the box and looking for ways to innovate, improve collaboratively with his staff which has led to a complete turnaround for Ellenville Regional Hospital.

"Under Mr. Kelley’s leadership, ERH has been recognized with 4 national awards from HRSA for patient safety and medication safety, has been recognized by the National Rural Health Association as one of the top 20 Critical Access Hospitals in the country for Quality, and has been a leader in New York State in the areas of quality measurement and rural health"

He also serves as a board member for Nicky's Gardens of Hope, an innovative program designated as is the first Financially and Environmentally sustainable resident community solution designed to provide a holistic life for Adults with Autism and IDD (Intellectually Developmentally Disabled). (http://bit.ly/316fk1L)

Steve discusses how he was inspired by Founder & CEO of NGOH, Adriana PIltz and why he is motivated and inspired by the innovative and unique approach Adriana and her team at NGOH has to meet the long term needs of this rapidly growing population.

If you'd like to skip past the intro and jump right into the episode, jump to 14 minutes! Check out our crowdfunder and please share it if you can: http://bit.ly/33xlERc

Steven Kelley's Links:
Ellenville Regional Hospital: http://www.ellenvilleregional.org/
LinkedIn: https://www.linkedin.com/in/steve-kelley-a28847a/
Nicky's Gardens of Hope: https://nickysgardensofhope.com
Adriana Piltz' GoFundMe: http://bit.ly/316fk1L

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19653935Wed, 23 Oct 2019 19:46:09 +0000Jill WoodworthSteven L. Kelley, President, and CEO of Ellenville Regional Hospital joins Jill in a discussion on the changing landscape of the healthcare industry as well as his involvement with Nicky's Gardens of Hope as a Board Member. Jill also gives a longer...
Steve has been the President and CEO of Ellenville Regional Hospital since September 2003. "He has a diverse background in the computer, research, and healthcare industries. Under Mr. Kelley’s leadership, ERH has been recognized with 4 national awards from HRSA for patient safety and medication safety, has been recognized by the National Rural Health Association as one of the top 20 Critical Access Hospitals in the country for Quality, and has been a leader in New York State in the areas of quality measurement and rural health. Many other significant awards have followed."(http://bit.ly/31zKK0E). I thoroughly enjoyed my discussion with Steve and have more audio that will be included in future episodes. He discusses his entry into the healthcare industry after some words from his grandfather; "I was really quite successful in what I was doing in it. And I visited my 90 some year old grandfather. And I was telling him how successful I was how I had really nice clothes and suspenders and I had a new car and took great vacations. I owned a house before I was 25. I kind of the world by the tail, but my grandfather was a farmer and a Presbyterian minister and any money that he ever made, he gave away. Because he thought other people needed it more. And all of my efforts to impress him. Were all they did is turned him off. "

He talks more about how he went from working in a business/IT setting to the healthcare industry and how this led to his success questioning the reasoning of doing things the same way because that's the way they've always been done. He is continually thinking outside the box and looking for ways to innovate, improve collaboratively with his staff which has led to a complete turnaround for Ellenville Regional Hospital.

"Under Mr. Kelley’s leadership, ERH has been recognized with 4 national awards from HRSA for patient safety and medication safety, has been recognized by the National Rural Health Association as one of the top 20 Critical Access Hospitals in the country for Quality, and has been a leader in New York State in the areas of quality measurement and rural health"

He also serves as a board member for Nicky's Gardens of Hope, an innovative program designated as is the first Financially and Environmentally sustainable resident community solution designed to provide a holistic life for Adults with Autism and IDD (Intellectually Developmentally Disabled). (http://bit.ly/316fk1L)

Steve discusses how he was inspired by Founder & CEO of NGOH, Adriana PIltz and why he is motivated and inspired by the innovative and unique approach Adriana and her team at NGOH has to meet the long term needs of this rapidly growing population.

If you'd like to skip past the intro and jump right into the episode, jump to 14 minutes! Check out our crowdfunder and please share it if you can: http://bit.ly/33xlERc

Steven Kelley's Links:
Ellenville Regional Hospital: http://www.ellenvilleregional.org/
LinkedIn: https://www.linkedin.com/in/steve-kelley-a28847a/
Nicky's Gardens of Hope: https://nickysgardensofhope.com
Adriana Piltz' GoFundMe: 2866falsefullhttps://www.spreaker.com/episode/tsc-talks-major-motivators-spectrum-sports-sports-fitness-programs-for-autism-idd-more--19515413
"Spectrum Sports is an exercise program for individuals with disabilities such as Autism, Asperger's, Down Syndrome, and other multiple disabilities. We provide exercise through various sports, games, and group fitness. Our qualified team offers several activities that provide unique individuals, and their families, with fun and exercise in a judgment-free zone."

Since launching, they've had huge success and have expanded their programming to include different age groups and methods of delivery. What I loved about this team is they are truly focused on making everyone's experience with sports and fitness related activities a positive one. They assess each participant, get some history as to challenges and strengths and find a way to engage them on an individual and group level. Finding the balance between motivating and provoking anxiety and resistance can be tough but through humor, individualized approach and incredible encouragement, they've been able to be hugely successful. As their business grows, it's part of their vision to open their own facility and expand the scope of programming. They work to keep costs low and hope to continue to do so.

From their site: We divide our program into two categories – passive and active – to let athletes learn at a comfortable pace. Our active group jumps right into competition, while our passive group works on motor skills to develop and strengthen their muscle movements. We offer various sports, collaborative games, group exercise and more! We now offer sessions for kids aged 5-11 as well as for kids aged 12+. Spectrum Sports was created because there are so many disorders and disabilities prevalent in today’s society; however, there are no places that offer these special groups of people and their families a place where they can exercise, play games, and socialize with similar individuals or families. Simply put, Spectrum Sports wants to get people with special needs active. We simply offer various activities and games that get people with special needs on their feet and moving. We will be teaching and play various sports and games such as basketball, volleyball, soccer, tennis baseball, whiffle ball, kickball, obstacle courses. We will also be running group exercise like Zumba and P90X."

I was honored to meet this team of passionate, purposeful individuals working to improve the quality of life for those with special needs through sports & fitness. Motivating neurodiverse individuals who have already had negative experiences with more typical programming and showing them the joys and rewards of physical activity, is much needed in our society and hearing about those programs out there making a difference is truly needed and inspiring!

Links:
Website: https://spectrumsportsnj.com
Facebook: https://www.facebook.com/spectrumsports3/
Twitter: https://twitter.com/SpectrumSports8
https://www.instagram.com/spectrumsports3/
https://www.camdencounty.com/event/spectrum-sports-6/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19515413Tue, 15 Oct 2019 10:48:53 +0000Jill WoodworthThe Spectrum Sports team is comprised of Dan Minko, Lisa Faracchio and James Paoletti, all involved in special education in some capacity in their local NJ high school. They got together to form Spectrum Sports. All are passionate about fitness and...
"Spectrum Sports is an exercise program for individuals with disabilities such as Autism, Asperger's, Down Syndrome, and other multiple disabilities. We provide exercise through various sports, games, and group fitness. Our qualified team offers several activities that provide unique individuals, and their families, with fun and exercise in a judgment-free zone."

Since launching, they've had huge success and have expanded their programming to include different age groups and methods of delivery. What I loved about this team is they are truly focused on making everyone's experience with sports and fitness related activities a positive one. They assess each participant, get some history as to challenges and strengths and find a way to engage them on an individual and group level. Finding the balance between motivating and provoking anxiety and resistance can be tough but through humor, individualized approach and incredible encouragement, they've been able to be hugely successful. As their business grows, it's part of their vision to open their own facility and expand the scope of programming. They work to keep costs low and hope to continue to do so.

From their site: We divide our program into two categories – passive and active – to let athletes learn at a comfortable pace. Our active group jumps right into competition, while our passive group works on motor skills to develop and strengthen their muscle movements. We offer various sports, collaborative games, group exercise and more! We now offer sessions for kids aged 5-11 as well as for kids aged 12+. Spectrum Sports was created because there are so many disorders and disabilities prevalent in today’s society; however, there are no places that offer these special groups of people and their families a place where they can exercise, play games, and socialize with similar individuals or families. Simply put, Spectrum Sports wants to get people with special needs active. We simply offer various activities and games that get people with special needs on their feet and moving. We will be teaching and play various sports and games such as basketball, volleyball, soccer, tennis baseball, whiffle ball, kickball, obstacle courses. We will also be running group exercise like Zumba and P90X."

I was honored to meet this team of passionate, purposeful individuals working to improve the quality of life for those with special needs through sports & fitness. Motivating neurodiverse individuals who have already had negative experiences with more typical programming and showing them the joys and rewards of physical activity, is much needed in our society and hearing about those programs out there making a difference is truly needed and inspiring!

Links:
Website: https://spectrumsportsnj.com
Facebook: https://www.facebook.com/spectrumsports3/
Twitter: https://twitter.com/SpectrumSports8
https://www.instagram.com/spectrumsports3/
https://www.camdencounty.com/event/spectrum-sports-6/

Become a supporter of this podcast: 2283autism,autismawareness,community,disabilities,diversity,downsyndrome,exercise,fitness,groupfitness,groupsports,health,inclusion,mentalhealth,parenting,physicalfitness,socialgood,specialneedsfitness,spectrumsports,tuberoussclerosiscomplex,zumbafalsefullhttps://www.spreaker.com/episode/tsc-talks-mmj-mystery-minimized-with-marijuana-mommy-jessie-gill-cannabis-nurse-educator-advocate--19499169
To her surprise, cannabinoid medicine provided great relief and further motivated her to combine her education and experience as a nurse with cannabis advocacy and launch Marijuana Mommy. Her site, www.marijuanamommy.com teaches new patients how and why to use cannabis, while challenging the stigma against marijuana use. She's had great success and is an established expert in the cannabis industry. Due to a high volume of requests for one on one support, she's rolling out a new course in a few weeks designed to walk individuals through all the details they need to know to get started safely using medical marijuana.

We discuss her process of working with clients, her writing and web platform, her thoughts on the CBD market and she makes several recommendations on brands and safety-related to CBD. Overcoming the fear and stigma surrounding mmj use is decreasing and collaborating with medical professionals who are knowledgeable about cannabinoid medicine and willing to work with their patients can often be a challenge. Her process is to review all the medications that the patients are on, talk about potential interactions and things to watch for, and we have to work with physicians to manage medication adjustments. "That's a big piece of what I'm pushing is to get people to be aware of that and and not let that stop them"

Cannabinoid medicine is a viable option for many and there are ways to do it. Jessie encourages people to keep asking questions and push past your fears and doubts. She sees Cannabinoid medicine offering a far more individualized treatment which can be adjusted incrementally based on each person's unique presentation and provide. "I think the whole pharmaceutical industry is focused on having a pill that is mass-produced and everyone is different." We wrap our discussion with her sharing some insight on CBD. "You know, CBD is so important. The majority of my patients take more CBD than THC. I take a lot of CBD. But again, it's individualized, just like THC. Just like all of the cannabinoids are, you know, some people respond better to one thing than other things and it's a matter of trial and error. But I think the really the most important part is to get high-quality products and not get junk."

Thanks Jessie for sharing your insight and wisdom gleaned much lived and learned experience with TSC Talks!

Jessie's expertise has been been featured and cited in a variety of publications like Forbes, High Times, and Centennial Press. My work has also appeared in a variety of publications like Good Housekeeping and VICE. I’ve also been highlighted on Viceland and in a variety of news features and documentaries.

Jessie's links:
www.marijuanamommy.com
PrettyPipeShop.com
Cannabisforchange.org
Facebook: https://www.facebook.com/jessie.gill1
Instagram: https://www.instagram.com/jessiegill.marijuanamommy/
Twitter: @Marijuana_Mommy
LinkedIn: https://www.linkedin.com/in/jessie-gill/
YouTube: www.youtube.com/c/MarijuanaMommy

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19499169Mon, 14 Oct 2019 17:27:25 +0000Jill WoodworthJessie Gill, AKA "Marijuana Mommy" is a Mom, Cannabis Advocate and R.N with a background in holistic health and hospice. She shares the story of her path leading to cannabis advocacy after a spinal injury left her at a personal rock bottom. Jessie...
To her surprise, cannabinoid medicine provided great relief and further motivated her to combine her education and experience as a nurse with cannabis advocacy and launch Marijuana Mommy. Her site, www.marijuanamommy.com teaches new patients how and why to use cannabis, while challenging the stigma against marijuana use. She's had great success and is an established expert in the cannabis industry. Due to a high volume of requests for one on one support, she's rolling out a new course in a few weeks designed to walk individuals through all the details they need to know to get started safely using medical marijuana.

We discuss her process of working with clients, her writing and web platform, her thoughts on the CBD market and she makes several recommendations on brands and safety-related to CBD. Overcoming the fear and stigma surrounding mmj use is decreasing and collaborating with medical professionals who are knowledgeable about cannabinoid medicine and willing to work with their patients can often be a challenge. Her process is to review all the medications that the patients are on, talk about potential interactions and things to watch for, and we have to work with physicians to manage medication adjustments. "That's a big piece of what I'm pushing is to get people to be aware of that and and not let that stop them"

Cannabinoid medicine is a viable option for many and there are ways to do it. Jessie encourages people to keep asking questions and push past your fears and doubts. She sees Cannabinoid medicine offering a far more individualized treatment which can be adjusted incrementally based on each person's unique presentation and provide. "I think the whole pharmaceutical industry is focused on having a pill that is mass-produced and everyone is different." We wrap our discussion with her sharing some insight on CBD. "You know, CBD is so important. The majority of my patients take more CBD than THC. I take a lot of CBD. But again, it's individualized, just like THC. Just like all of the cannabinoids are, you know, some people respond better to one thing than other things and it's a matter of trial and error. But I think the really the most important part is to get high-quality products and not get junk."

Thanks Jessie for sharing your insight and wisdom gleaned much lived and learned experience with TSC Talks!

Jessie's expertise has been been featured and cited in a variety of publications like Forbes, High Times, and Centennial Press. My work has also appeared in a variety of publications like Good Housekeeping and VICE. I’ve also been highlighted on Viceland and in a variety of news features and documentaries.

Jessie's links:
www.marijuanamommy.com
PrettyPipeShop.com
Cannabisforchange.org
Facebook: https://www.facebook.com/jessie.gill1
Instagram: https://www.instagram.com/jessiegill.marijuanamommy/
Twitter: @Marijuana_Mommy
LinkedIn: https://www.linkedin.com/in/jessie-gill/
YouTube: 2124autism,cannabis,cannabisadvocacy,cannabiseducation,cannabisnurse,cannabisreform,cannabistesting,cbd,cbdoil,chronicpain,holisticnurse,hospicenursing,marijuana,marijuanamommy,medicalmarijuana,mentalhealth,nursing,parenting,parentsforpot,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-cannabis-cbd-pharma-talk-with-daniella-benea-pharm-d-a-medical-marijuana-dispensary-pharmacist-in-ct-ma--19391691
The bulk of our discussion centers on her patient interactions, the sorts of concerns she addresses and her process for analyzing a patient's medications and making recommendations related to the vast array of choices available. We talk about the most common patient medications and diagnoses, and she gives some examples of how these considerations influence her recommendations.

There is much opportunity for one on one interaction, as she had hoped and she loves the positive atmosphere and the joy of seeing improvements over time in many of the individuals with whom she's worked. She emphasizes the importance of forthright communication with a medical doctor and how this will further solidify the validity of cannabis as medicine. Finally, we discuss the CBD craze and she advises caution when choosing a brand and dosage as well as mentioning that it is not a miracle cure-all and safety needs to be a top priority when choosing to use not only CBD but all Cannabinoid medicine.

In conclusion, I'm sharing a apropos quote from Daniella on the podcast regarding use of CBD; "There's a lot of CBD out there. It's almost like the newest fad. people making CBD oil, selling them all kinds of places. I just like to give a caution. A lot of people will like to try it before they become a patient to see what is the thing that is helpful for me to know where the product is made. Do the research? Is it tested? Where is it being grown? It's been grown responsibly. chemicals in it? What's the dosing? A lot of those products don't have dosing, they just have a general...Oh, "there are 1000 milligrams in a bottle" Okay, well, what's the measuring tool?"

She encourages all listeners to call The Botanist or Prime Wellness with questions
(if local to CT or MA) if you're interested in learning more or booking an appointment.

Links are as follows:
LinkedIn: https://www.linkedin.com/in/daniella-benea-pharmd-54a38418b/
Facebook: https://www.facebook.com/daniella.benea
Prime Wellness: https://www.facebook.com/PrimeWellnessCT/
https://www.primewellnessofct.com/
The Botanist: https://www.facebook.com/TheBotanist.MA/
https://www.shopbotanist.com/locations/worcester/
Check out our newly launched Indiegogo Crowdfunder, raising funds to test, and compile a Family Cannabis Guidebook with supporting podcasts: https://igg.me/at/TSCTalksCBDCannaTestGuidebook/x#/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19391691Mon, 07 Oct 2019 19:47:39 +0000Jill WoodworthDaniella Benea, Pharm.D., licensed pharmacist working in the medical marijuana industry in CT & MA comes on to discuss her experience thus far working in the growing cannabis industry. A graduate of UConn School of Pharmacy, Daniella started out...
The bulk of our discussion centers on her patient interactions, the sorts of concerns she addresses and her process for analyzing a patient's medications and making recommendations related to the vast array of choices available. We talk about the most common patient medications and diagnoses, and she gives some examples of how these considerations influence her recommendations.

There is much opportunity for one on one interaction, as she had hoped and she loves the positive atmosphere and the joy of seeing improvements over time in many of the individuals with whom she's worked. She emphasizes the importance of forthright communication with a medical doctor and how this will further solidify the validity of cannabis as medicine. Finally, we discuss the CBD craze and she advises caution when choosing a brand and dosage as well as mentioning that it is not a miracle cure-all and safety needs to be a top priority when choosing to use not only CBD but all Cannabinoid medicine.

In conclusion, I'm sharing a apropos quote from Daniella on the podcast regarding use of CBD; "There's a lot of CBD out there. It's almost like the newest fad. people making CBD oil, selling them all kinds of places. I just like to give a caution. A lot of people will like to try it before they become a patient to see what is the thing that is helpful for me to know where the product is made. Do the research? Is it tested? Where is it being grown? It's been grown responsibly. chemicals in it? What's the dosing? A lot of those products don't have dosing, they just have a general...Oh, "there are 1000 milligrams in a bottle" Okay, well, what's the measuring tool?"

She encourages all listeners to call The Botanist or Prime Wellness with questions
(if local to CT or MA) if you're interested in learning more or booking an appointment.

Links are as follows:
LinkedIn: https://www.linkedin.com/in/daniella-benea-pharmd-54a38418b/
Facebook: https://www.facebook.com/daniella.benea
Prime Wellness: https://www.facebook.com/PrimeWellnessCT/
https://www.primewellnessofct.com/
The Botanist: https://www.facebook.com/TheBotanist.MA/
https://www.shopbotanist.com/locations/worcester/
Check out our newly launched Indiegogo Crowdfunder, raising funds to test, and compile a Family Cannabis Guidebook with supporting podcasts: https://igg.me/at/TSCTalksCBDCannaTestGuidebook/x#/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2526alternativemedicine,autism,cannabinoidmedicine,cannabis,cannabiscommunity,cannabismedicine,cbd,cbdhealth,cbdoil,dispensary,epilepsy,medical,medicalmarijuana,mentalhealth,pharmacist,primewellness,ptsd,seizures,thebotanist,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-strong-and-steady-shelly-meitzler-mom-of-three-2-with-tsc-community-programs-manager-east-ts-alliance--19292203
We discuss the intricate challenges of having 2 individuals affected by TSC, and the varying impact due to the increase in understanding, better treatments, and knowledge in the space of time between diagnosis of her oldest daughter and younger son. She also has another daughter who is not affected by TSC. Shelly shares her unfiltered experience dealing with the intensity of managing the needs of her children & juggling a career, and how this impacted her mental health. She took a leap of faith, leave her former career so she'd be able to devote more time to her family and TSC case management.

"In January 2017, Shelly joined the team on as National Walks Coordinator; in September 2017, she joined the staff full time. Shelly has been involved with the TS Alliance for the past decade, including serving as both Community Alliance Chair and Step Forward to Cure TSC Chair in Delaware/Lehigh Valley. Last year, she delivered an inspirational speech at the TS Alliance Congressional Briefing on Capitol Hill chronicling her journey as a TSC mom to Ashlin and Mason. She is grateful to have an extended, supportive family that has helped navigate the journey of TSC and allowed her to be involved on various levels in the community. Shelly’s story has provided hope as ongoing TSC research has offered new insight over the last decade and solidified her determination to continue to advocate, educate, and raise vital research dollars for all those impacted by TSC. In her free time, she enjoys spending time with family and friends, laughing, enjoying life, and the occasional hockey game with her husband, Matt." (tsalliance.org)

There is not much that rattles this powerful advocate who above all else is devoted to her family, friends and work at the TS Alliance, improving the quality of life of those affected and working to discover a cure. In her own words; "I'm spontaneous, fun, love to be around people, love to make me people laugh. Nothing compares to being a MOM....love my kids more than anything. And will give everything but UP, to find a cure for Tuberous Sclerosis for Ashlin, Mason, and all those affected with TS!" Keep on keeping on Shelly! And thanks for the inspiration.

Shelly's links:
https://www.tsalliance.org/about-us/our-team/
https://www.facebook.com/shelly.richards.313
https://cdmrp.army.mil/cwg/stories/2017/shelly_meitzler_profile
https://www.linkedin.com › shelly-meitzler-054877160
https://twitter.com/momof2withtsc
https://www.readingeagle.com/life/article/wyomissing-mom-a-tireless-advocate-for-her-children
https://www.youtube.com/watch?v=V9IvFxonu6M

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19292203Mon, 30 Sep 2019 13:02:57 +0000Jill WoodworthShelly Meitzler is an amazing, inspiring individual who's life took a challenging turn when she received a diagnosis of TSC in her oldest daughter in August 2001. Starting out in the ER with her seizing baby, Shelly and her husband had to weather the...
We discuss the intricate challenges of having 2 individuals affected by TSC, and the varying impact due to the increase in understanding, better treatments, and knowledge in the space of time between diagnosis of her oldest daughter and younger son. She also has another daughter who is not affected by TSC. Shelly shares her unfiltered experience dealing with the intensity of managing the needs of her children & juggling a career, and how this impacted her mental health. She took a leap of faith, leave her former career so she'd be able to devote more time to her family and TSC case management.

"In January 2017, Shelly joined the team on as National Walks Coordinator; in September 2017, she joined the staff full time. Shelly has been involved with the TS Alliance for the past decade, including serving as both Community Alliance Chair and Step Forward to Cure TSC Chair in Delaware/Lehigh Valley. Last year, she delivered an inspirational speech at the TS Alliance Congressional Briefing on Capitol Hill chronicling her journey as a TSC mom to Ashlin and Mason. She is grateful to have an extended, supportive family that has helped navigate the journey of TSC and allowed her to be involved on various levels in the community. Shelly’s story has provided hope as ongoing TSC research has offered new insight over the last decade and solidified her determination to continue to advocate, educate, and raise vital research dollars for all those impacted by TSC. In her free time, she enjoys spending time with family and friends, laughing, enjoying life, and the occasional hockey game with her husband, Matt." (tsalliance.org)

There is not much that rattles this powerful advocate who above all else is devoted to her family, friends and work at the TS Alliance, improving the quality of life of those affected and working to discover a cure. In her own words; "I'm spontaneous, fun, love to be around people, love to make me people laugh. Nothing compares to being a MOM....love my kids more than anything. And will give everything but UP, to find a cure for Tuberous Sclerosis for Ashlin, Mason, and all those affected with TS!" Keep on keeping on Shelly! And thanks for the inspiration.

Shelly's links:
https://www.tsalliance.org/about-us/our-team/
https://www.facebook.com/shelly.richards.313
https://cdmrp.army.mil/cwg/stories/2017/shelly_meitzler_profile
https://www.linkedin.com › shelly-meitzler-054877160
https://twitter.com/momof2withtsc
https://www.readingeagle.com/life/article/wyomissing-mom-a-tireless-advocate-for-her-children
https://www.youtube.com/watch?v=V9IvFxonu6M

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>4347advocacy,autism,epilepsy,epilepsyawareness,hope,medicaltrauma,mentalhealth,pennsylvania,ptsd,relationships,seizures,selfcare,shakenbabysyndrome,siblingimpact,specialneeds,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-2-a-discussion-on-cbd-cannabinoid-medicine-with-mike-robinson-founder-global-cannabinoid-research-center--19137695
He emphasizes positive experiences with doctors, “I've had so many things happen when it comes to doctors and I've had good experiences. It's important to talk about that. I've met with doctors, that wanted to fully integrate all cannabis into medicine including a neurologist, here locally, who is now interested in doing an extended EEG on me in the hospital, allowing the oil in the hospital while he does it. He wants to take away what little medication I'm using right now, while I'm on oil to possibly see if I can escape all pharmaceuticals.

Additionally, Mike shares his knowledge and concerns on the state of CBD drug development in the US and the focus on developing pharmaceuticals from CBD isolates with additives that are unnecessary and can be harmful. “We need more clinical trials and research on human beings, and a more individualized approach to medicine overall, but particularly when it comes to cannabinoid medicine”. He admonishes: “It's time for America to step up to the plate. We don't need legalization. We don't need government control just end prohibition. End prohibition and allow the research”

The information and discussion in this episode is involved and extensive. I want to add that we are not doctors and are putting this information out there in audio format to broaden the scope of our understanding and include resources and the voices of those with lived experience. I’m including some links to more of Mike’s online resources and work and will look forward to future panel episodes and further discussion on the topic of Cannabinoid medicine and will be recruiting medical professionals, nurses and more to further this important discussion.

Check out this new nonprofit Mike started with his partner Anne Mari based on their experience with Genevieve and desire to create a wave of love and fun for disabled kids; "Bring Back Santa Barbara's Carousel! Our first mission: By participating in Genevieve's Carousel Challenge, which started on her 16th Birthday 8/6/2019, and getting others to do so you'll create a wave of love and fun as well as create more carousels for disabled kids to enjoy. You can give simply by sharing this website and/or challenging those you know to post their favorite carousel moments with the #CarouselChallenge hashtag - follow on Instagram @carouselchallenge - and share your photos with us so we can share with the world too!. Let's create something big that will benefit kids that don't ask for much and give us plenty of joy while at the same time making rides available for more people every day!" https://carouselchallenge.com/

More links:
https://www.facebook.com/MikesEpilepsy
www.mikesmedicines.com
https://globalcannabinoidrc.com
http://www.cannabisindustryinstitute.com/cannabis_speaker/mike-robinson/
https://hightimes.com/health/mental-health-cannabis-anxiety-depression/
https://www.civilized.life/articles/how-these-patients-used-cannabis-to-replace-opioids/
MikeRob47354384
https://hightimes.com/culture/genevieves-journey-how-cannabis-helped-save-life-create-family/
https://www.askmen.com/fitness/health/why-you-may-want-to-consider-using-cbd-after-a-workout.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19137695Wed, 18 Sep 2019 12:29:09 +0000Jill Woodworth"Be the change you want to see in this world" is one of Mike's favorite quotes and his lived experience clearly exemplifies this intention. In this episode, Mike starts off by advising listeners, "Please people, please tell your doctor because there...
He emphasizes positive experiences with doctors, “I've had so many things happen when it comes to doctors and I've had good experiences. It's important to talk about that. I've met with doctors, that wanted to fully integrate all cannabis into medicine including a neurologist, here locally, who is now interested in doing an extended EEG on me in the hospital, allowing the oil in the hospital while he does it. He wants to take away what little medication I'm using right now, while I'm on oil to possibly see if I can escape all pharmaceuticals.

Additionally, Mike shares his knowledge and concerns on the state of CBD drug development in the US and the focus on developing pharmaceuticals from CBD isolates with additives that are unnecessary and can be harmful. “We need more clinical trials and research on human beings, and a more individualized approach to medicine overall, but particularly when it comes to cannabinoid medicine”. He admonishes: “It's time for America to step up to the plate. We don't need legalization. We don't need government control just end prohibition. End prohibition and allow the research”

The information and discussion in this episode is involved and extensive. I want to add that we are not doctors and are putting this information out there in audio format to broaden the scope of our understanding and include resources and the voices of those with lived experience. I’m including some links to more of Mike’s online resources and work and will look forward to future panel episodes and further discussion on the topic of Cannabinoid medicine and will be recruiting medical professionals, nurses and more to further this important discussion.

Check out this new nonprofit Mike started with his partner Anne Mari based on their experience with Genevieve and desire to create a wave of love and fun for disabled kids; "Bring Back Santa Barbara's Carousel! Our first mission: By participating in Genevieve's Carousel Challenge, which started on her 16th Birthday 8/6/2019, and getting others to do so you'll create a wave of love and fun as well as create more carousels for disabled kids to enjoy. You can give simply by sharing this website and/or challenging those you know to post their favorite carousel moments with the #CarouselChallenge hashtag - follow on Instagram @carouselchallenge - and share your photos with us so we can share with the world too!. Let's create something big that will benefit kids that don't ask for much and give us plenty of joy while at the same time making rides available for more people every day!" https://carouselchallenge.com/

More links:
https://www.facebook.com/MikesEpilepsy
www.mikesmedicines.com
https://globalcannabinoidrc.com
http://www.cannabisindustryinstitute.com/cannabis_speaker/mike-robinson/
3377autism,autismawareness,cannabinoidmedicine,cannabis,cannabisactivist,cbd,cbdoil,clinicaltrials,epidiolex,epilepsy,medical,mikerobinson,neurology,pharmaceuticals,seizures,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-1-the-cbd-cannabinoid-conundrum-on-epilepsy-autism-a-cannabis-love-story-with-mike-robinson--19114445https://mikesmedicines.com; "Mike is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for severe epilepsy, chronic Lyme Disease, PTSD, and in pain management.

Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post-grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was on International Relations and Diplomacy. He has an extensive background includes being an effective leader of a large Cannabis compassion program providing to the disadvantaged that treated countless medicinal cannabis consumers with various alternative protocol treatments, published journalist and international cannabinoid research specialist, former Registered Ca. State Lobbyist 1997, Pro bono non-attorney representative for children with disabilities nationwide for over 2 decades, a member of the Board of Directors for Big Brothers and Sisters, the founder of multiple nonprofits that advocate/advocated for the rights of disabled children. Most important Mike is well known for taking on one of his compassion patients, a child with severe autism and epilepsy that received precious oils from his program, is now his own daughter."

Mike starts off talking about the first time he used CBD unknowingly to treat his severe, refractory epilepsy with status events caused by a high-speed auto racing wreck. He had right side paralysis, was in a wheelchair, intubated and put into ICU in a coma 39 times, has had over 200 hospitalizations after being brought to ER in status over an 18-year period. It all came to an end on September 8, 2013 with the introduction of “can't eat it all” Korean Ruby, given to him by a roommate which was edible balls of CBD. He gained the understanding that cannabis is awesome medicine if you know how to use it correctly. Mike is also a special needs attorney & advocate who has worked extensively across the US, pro bono, representing families in special needs litigation. After going public about his treatment with CBD and Cannabinoid medicine he was unable to litigate due to his use of a schedule 1 substance so turned his focus to working in the compassion program. The compassion program was started under Prop. 215 in CA. It was the dream of Dennis Peron to provide treatment for those people with severe conditions that can't afford the oils, don't know what to get, then bringing them what they need, showing them how to use it, researching the actual product, the actual Cannabinoids being used and show family members, “Hey, this is why we're using this application”. It could be oils that are ingested it could be suppositories, etc.

Mike continues the narrative, sharing how he was on his way to check in with an individual who then was then 1-year seizure-free, now 4 years seizure-free when he got a call from a frantic mom concerned about her daughter with autism and severe epilepsy. He remembers being profoundly concerned when this mother gave him the list of multiple medications, she was taking that didn’t jive with each other and went to meet with this parent. He showed up at the house and the daughter was having a grand mal status seizure. Mike was able to help this family treat the daughter’s epilepsy with CBD oils and whole plant medicine, “I’m a firm believer in using the whole plant when it comes to severe autism. I believe that using THC, it's degraded cousin CBD, I'm sorry. CBN. CBN is a cannabinoid that really mellows out any behavior, including my own, it promotes sleep, rest. And makes the mind rest. So it really calms down children with autism. Yes, CBN. So anyway, I mean, she responded so well. It was just beyond incredible. The day after she started her mom took her to the doctor and the doctor was like, What did you do what happened?”

There is so much more discussed in this episode regarding Mike’s phenomenal advocacy and perseverance in the face of incredible barriers and resistance from within and without the healthcare and medical communities. Stay tuned for more from Mike in Part 2 of this informative and moving podcast episode! You can read more about Mike’s work at:
https://globalcannabinoidrc.com/
https://www.mikesmedicines.com/
https://nanobles.com/
https://www.linkedin.com/in/mike-robinson-~-cannabis-heals-256b3192/

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19114445Mon, 16 Sep 2019 12:17:13 +0000Jill WoodworthMike Robinson, Cannabis Activist, Founder of Global Cannabinoid Research Center, Severe Epilepsy & Cancer Survivor and fascinating human being has much to share. From his bio on https://mikesmedicines.com; "Mike is a multiple Cancer survivor that’s...https://mikesmedicines.com; "Mike is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for severe epilepsy, chronic Lyme Disease, PTSD, and in pain management.

Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post-grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was on International Relations and Diplomacy. He has an extensive background includes being an effective leader of a large Cannabis compassion program providing to the disadvantaged that treated countless medicinal cannabis consumers with various alternative protocol treatments, published journalist and international cannabinoid research specialist, former Registered Ca. State Lobbyist 1997, Pro bono non-attorney representative for children with disabilities nationwide for over 2 decades, a member of the Board of Directors for Big Brothers and Sisters, the founder of multiple nonprofits that advocate/advocated for the rights of disabled children. Most important Mike is well known for taking on one of his compassion patients, a child with severe autism and epilepsy that received precious oils from his program, is now his own daughter."

Mike starts off talking about the first time he used CBD unknowingly to treat his severe, refractory epilepsy with status events caused by a high-speed auto racing wreck. He had right side paralysis, was in a wheelchair, intubated and put into ICU in a coma 39 times, has had over 200 hospitalizations after being brought to ER in status over an 18-year period. It all came to an end on September 8, 2013 with the introduction of “can't eat it all” Korean Ruby, given to him by a roommate which was edible balls of CBD. He gained the understanding that cannabis is awesome medicine if you know how to use it correctly. Mike is also a special needs attorney & advocate who has worked extensively across the US, pro bono, representing families in special needs litigation. After going public about his treatment with CBD and Cannabinoid medicine he was unable to litigate due to his use of a schedule 1 substance so turned his focus to working in the compassion program. The compassion program was started under Prop. 215 in CA. It was the dream of Dennis Peron to provide treatment for those people with severe conditions that can't afford the oils, don't know what to get, then bringing them what they need, showing them how to use it, researching the actual product, the actual Cannabinoids being used and show family members, “Hey, this is why we're using this application”. It could be oils that are ingested it could be suppositories, etc.

Mike continues the narrative, sharing how he was on his way to check in with an individual who then was then 1-year seizure-free, now 4 years seizure-free when he got a call from a frantic mom concerned about her daughter with autism and severe epilepsy. He remembers being profoundly concerned when this mother gave him the list of multiple medications, she was taking that didn’t jive with each other and went to meet with this parent. He showed up at the house and the daughter was having a grand mal status seizure. Mike was able to help this family treat the daughter’s epilepsy with CBD oils and whole plant medicine, “I’m a firm believer in using the whole plant when it comes to severe autism. I believe that using THC, it's degraded cousin CBD, I'm sorry. CBN. CBN is a cannabinoid that really mellows out any behavior, including my own, it promotes...]]>2645activist,autism,autismawareness,autismspeaks,cannabinoidmedicine,cannabinoids,cbd,cbdoil,cbn,epidiolex,epilepsy,epilepsyawareness,hope,plantmedicine,seizures,specialeducationadvocacy,statusseizures,thc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-when-law-enforcement-meets-autism-with-ricardo-a-gomez--19042363Despite moments of sheer terror as he imagined Ryan's inner experience and the many unknowns with which he was faced over the course of the day, he was able to remain calm. Following the day's events, Ricardo chose a proactive approach in attempting to piece together how an innocent situation evolved and escalated. He met with the branch of law enforcement involved in securing and transporting Ryan to a local facility for evaluation, reviewed the body cam footage from the police officer involved in the event, spoke with his son's direct support professional and was able to gain understanding and insight which he chose to integrate into a learning experience. Ricardo composed a few facebook blog posts which can be read on his Facebook page and which has been posted as a guest blog post with his permission at https://nickysgardensofhope.com. He offers his interpretation of the situation as well as how he is using this event in which things could have ended in far more tragic ways to communicate the need for better training for families of special needs individuals in terms of how to act around police. In his words, " This whole experience taught me that just as law enforcement receives tactical communication training, the autism community also needs training on how to communicate and react to law enforcement. We ended the meeting talking about putting a training together at our local church for parents of special needs and case workers on how to properly communicate/interact with law enforcement. This can help avoid unnecessary use of force situations." Stay tuned for more information on how Ricardo's valiant efforts to take the higher ground evolves into initiatives and opportunity to bridge gaps of communication and reduce fear surrounding interactions with police officers within the autism and special needs communities and give Law Enforcement an understanding and opportunity to better understand the challenges of a wide range of community members as they work to perform their jobs keeping all members of their community safe and secure.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19042363Mon, 09 Sep 2019 10:27:08 +0000Jill WoodworthIn this episode, precipitated by a Facebook post which caught the attention of many, titled, "When Law Enforcement Meets Autism", Ricardo A. Gomez shared the events occurring in relation to his son Ryan, a young adult with autism, who was with a...Despite moments of sheer terror as he imagined Ryan's inner experience and the many unknowns with which he was faced over the course of the day, he was able to remain calm. Following the day's events, Ricardo chose a proactive approach in attempting to piece together how an innocent situation evolved and escalated. He met with the branch of law enforcement involved in securing and transporting Ryan to a local facility for evaluation, reviewed the body cam footage from the police officer involved in the event, spoke with his son's direct support professional and was able to gain understanding and insight which he chose to integrate into a learning experience. Ricardo composed a few facebook blog posts which can be read on his Facebook page and which has been posted as a guest blog post with his permission at https://nickysgardensofhope.com. He offers his interpretation of the situation as well as how he is using this event in which things could have ended in far more tragic ways to communicate the need for better training for families of special needs individuals in terms of how to act around police. In his words, " This whole experience taught me that just as law enforcement receives tactical communication training, the autism community also needs training on how to communicate and react to law enforcement. We ended the meeting talking about putting a training together at our local church for parents of special needs and case workers on how to properly communicate/interact with law enforcement. This can help avoid unnecessary use of force situations." Stay tuned for more information on how Ricardo's valiant efforts to take the higher ground evolves into initiatives and opportunity to bridge gaps of communication and reduce fear surrounding interactions with police officers within the autism and special needs communities and give Law Enforcement an understanding and opportunity to better understand the challenges of a wide range of community members as they work to perform their jobs keeping all members of their community safe and secure.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3334autism,autismawareness,directsupportworker,disability,disabilityemployment,facebook,inspiration,intellectualdisabilities,lawenforcement,lawenforcementofficer,love,mentalhealth,neurodiversity,parenting,police,policeofficer,riversideca,specialneeds,specialneedsparents,tacticaltrainingfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-2-with-alexis-minnaar-living-with-tsc-never-a-dull-moment-a-south-african-perspective--19010713Despite some teenage rebellion which she outlines, she has fully come around to acceptance;"What got through to me, I think was the idea that you can have fun, but in moderation". Alexis wants all to know that despite the often grim information given to families upon receiving a diagnosis, not to let any of this information be the final word. "I think we need to try and come together and put up a system that educates teenagers, in particular, on their condition as well as parents....where you say, your child is not in primary school anymore- they are trying to find their own identity. Yes, how you can help them, give them these alternative safe options, but don't control" . A brilliant take away from this young lady who is passionate about using her voice to affect change and raise awareness in South Africa and beyond!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/19010713Thu, 05 Sep 2019 12:54:17 +0000Jill WoodworthIn Part 2 with Alexis Minnaar, we go into further detail on the realities of growing up with TSC. She shares more about relationships, mentioning the fact that she has TSC with potential partners, and how this news was received. Meeting her husband,...Despite some teenage rebellion which she outlines, she has fully come around to acceptance;"What got through to me, I think was the idea that you can have fun, but in moderation". Alexis wants all to know that despite the often grim information given to families upon receiving a diagnosis, not to let any of this information be the final word. "I think we need to try and come together and put up a system that educates teenagers, in particular, on their condition as well as parents....where you say, your child is not in primary school anymore- they are trying to find their own identity. Yes, how you can help them, give them these alternative safe options, but don't control" . A brilliant take away from this young lady who is passionate about using her voice to affect change and raise awareness in South Africa and beyond!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3597behaviormanagment,epilepsy,homeschoolng,indaba,livedexperience,mentalhealth,montessori,neurodiversity,neurology,neuroscience,seizures,socialgood,southafrica,tand,tsalliance,tsc,tscsouthafrica,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-alexis-minnaar-living-with-tsc-never-a-dull-moment-a-south-african-perspective--18952329http://theycallmetsc.blogspot.com/. Quoting her blog headline, "Living with Tuberous Sclerosis Complex, may seem daunting, maybe even impossible. But it doesn't have to be... This my story of hope". Powerful, inspiring words from this articulate, brave, humorous and caring young woman. Stay tuned for Part 2!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18952329Fri, 30 Aug 2019 10:12:05 +0000Jill WoodworthIn Part 1 of this two-part episode, Alexis Minnaar, an English and Geography teacher from South Africa, and young adult living with Tuberous Sclerosis Complex shares the process of coming to terms with having TSC and learning how to manage the...http://theycallmetsc.blogspot.com/. Quoting her blog headline, "Living with Tuberous Sclerosis Complex, may seem daunting, maybe even impossible. But it doesn't have to be... This my story of hope". Powerful, inspiring words from this articulate, brave, humorous and caring young woman. Stay tuned for Part 2!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2793activism,advocate,epilepsy,journaling,montessori,raredisease,socialgood,southafrica,teacher,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-occupant-with-autism-autism-the-role-of-law-enforcement-with-chief-joseph-snyder-officer-phil-kraus-new-paltz-ny-pd--18797472https://www.facebook.com/NewPaltzPolice/), website (http://www.townofnewpaltz.org/police) and check out this recent article: https://spectrumlocalnews.com/nys/hudson-valley/public-safety/2019/05/29/new-paltz-autism-sticker

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18797472Mon, 12 Aug 2019 13:12:20 +0000Jill WoodworthChief Joseph Snyder & Officer Phillip Kraus of the New Paltz, NY Police Department discuss their background and experiences with community members that sparked the idea behind their new "Occupant with Autism" sticker. This sticker is a combination of...https://www.facebook.com/NewPaltzPolice/), website (http://www.townofnewpaltz.org/police) and check out this recent article: https://spectrumlocalnews.com/nys/hudson-valley/public-safety/2019/05/29/new-paltz-autism-sticker

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1947autism,autismawareness,autisminitiative,autismspectrumdisorder,community,developmentaldisabilities,differentlyabled,disability,familysupport,firstresponder,intellectualdisabilities,lawenforcement,mentalhealthawareness,neurodiversity,newpaltzny,police,policedepartment,policetrainingfalsefullhttps://www.spreaker.com/episode/tsc-talks-mark-martin-the-tsc-connector-6-state-regional-coordinator-advocate-musician-adult-parent-living-w-tsc--18783599
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18783599Sun, 11 Aug 2019 10:31:35 +0000Jill WoodworthMark Martin is an Adult & Parent living with TSC. He also is the Adult Regional Coordinator of 6 States for the TS Alliance, & was a past Volunteer of the Year. He started a Facebook group for TSC Dads, has worked as an ER Tech, and is an accomplished...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3835advocacy,autism,connecticut,epilepsy,familysupport,mentalhealth,neurology,neuropsychiatric,neuroscience,parenting,ptsd,raredisease,seizures,specialneedsparent,traumainformed,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-an-invitation-to-inspiration-with-devoted-dad-husband-tsc-advocate-rob-grandia--18696051
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18696051Thu, 01 Aug 2019 14:10:25 +0000Jill WoodworthRob Grandia is an adult with TSC and father of 3 children affected by TSC. In this episode, he gives an inside look at not only receiving a diagnosis of TSC in his children but also finding out as an adult that he also is affected. We discuss the...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3028autism,epilepsy,faith,family,familysupport,idd,intellectualdisabilities,medical,mentalhealth,neurodiversity,neurology,parenting,podcast,raredisease,seizures,specialneeds,specialneedsdad,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-idd-me-i-wish-he-could-talk-on-sibling-impact-with-max-piltz-brother-to-nicky-with-tsc-idd--18637554
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18637554Thu, 25 Jul 2019 12:26:08 +0000Jill WoodworthMax Piltz, brother of Nicky, the inspiration for Nicky's Gardens of Hope, gives his 2 cents on life with a nonverbal sibling who is significantly impacted by Tuberous Sclerosis Complex and Intellectual Disability. Max hits it home with his honest and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>464autism,behavior,differentlyabled,disabilityemployment,esg,familyimpact,grouphome,humandignity,idd,intellectualdisabilities,mentalhealth,neurodiversity,nonverbal,parenting,qualityoflife,siblingimpact,socialgood,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-there-is-no-other-choice-nicky-s-gardens-of-hope-or-bust-with-tsc-mom-founder-ceo-adriana-piltz--18624470info@ngohllc.com or visit https://nickysgardensofhope.com.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18624470Wed, 24 Jul 2019 11:34:58 +0000Jill WoodworthAdriana Piltz, is Founder & CEO of Nicky's Gardens of Hope (NGOH). She came on the podcast back in October 2018 to give us an introduction and explanation of this one of a kind project. In this episode she gives us an update, discussing what's...info@ngohllc.com or visit https://nickysgardensofhope.com.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2670autism,developmentaldisabilities,disability,disabilityemployment,downsydrome,esg,fragilexsyndrome,impactinvesting,incubatorbusinesses,intellectualdisabilities,neurodiversity,ngoh,nutrition,qualityoflife,socialgood,tbi,tuberoussclerosiscomplex,typebcorp,wallstreet,worktherapyfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-2-are-you-listening-this-is-who-i-am-this-is-what-our-family-is-with-cecilia-pratt--18620646https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18620646Tue, 23 Jul 2019 13:40:55 +0000Jill WoodworthIn Part 2, Cecilia talks about coping, working out, overcoming a food addiction, feeling like everything is on her shoulders and dealing with burn out. She also discusses getting unsolicited advice, dealing with SSI uncertainties, pharmacy issues and...https://tsctalks.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2355baltimore,behaviortherapy,caregiverburnout,coping,epilepsy,faith,family,foodaddiction,kennedykrieger,mentalhealth,multiracialfamily,neurodiversity,neurology,parenting,ptsd,seizures,specialeducation,specialneeds,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-1-are-you-listening-getting-real-with-cecilia-pratt-tsc-case-manager-mom--18606364
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18606364Mon, 22 Jul 2019 10:36:07 +0000Jill WoodworthCecilia Pratt, reached out via Facebook to share her lived experience of a TSC diagnosis in her son and former husband. She clearly depicts how it felt to receive this heavy diagnosis download in a dermatologists office, based on skin symptoms and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2332adhd,advocacy,autism,baltimoremd,behavior,epilepsy,family,familysupport,iep,medicallyfragile,medicaltrauma,medicationmanagement,mentalhealth,parenting,raredisease,seizures,specialneeds,specialneedsparenting,tuberoussclerosis,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-hope-on-the-horizon-part-2-with-jaye-isham-master-communicator-vp-of-communication-strategy-ts-alliance--18521743
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18521743Thu, 11 Jul 2019 12:04:59 +0000Jill WoodworthJaye Isham, VP of Communication Strategy @ TS Alliance, and beloved TSC community member shares from his work and lived experience in Part 2 of this 2 part episode. A quote that says it all: "Yeah, you know, and I'm very lucky that I allow myself to...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2554autism,branding,communications,disabilities,empathy,epilepsy,facebook,familysupport,medicalresearch,medicine,mentalhealth,neurodiversity,neurology,nonprofit,raredisease,seizures,socialmedia,specialneeds,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-hope-on-the-horizon-with-jaye-isham-master-communicator-vp-of-communication-strategy-ts-alliance--18503476https://tsctalks.com .

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18503476Tue, 09 Jul 2019 16:45:29 +0000Jill WoodworthJaye Isham, VP of Communication Strategy @ TS Alliance, and beloved TSC community member shares from the annals of his lived experience in Part 1 of this 2 part episode you don't want to miss. In his words, "While I want to give your listeners a...https://tsctalks.com .

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2841autism,branding,communications,communitysupport,epilepsy,familysupport,healthcare,iamtsc,marketing,medicalresearch,musician,neurodiversity,nonprofit,raredisease,seizures,socialmedia,tsalliance,tuberoussclerosiscomplex,vicepresident,websitedevelopmentfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-power-of-tsc-moms-from-gratitude-to-grief-back-6-sound-bites--18411594
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18411594Fri, 28 Jun 2019 18:02:11 +0000Jill WoodworthIn this episode, I tried something different! I used pieces of pertinent audio from 6 past guests, some has been released in previous episodes and some content is from the cutting room floor. I kick it off with gratitude and HUGE thanks to the TSC...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1879autism,behavior,epilepsy,familysupport,intellectualdisabilities,medical,mentalhealth,neurodiversity,neurology,neuroscience,nonprofit,parenting,psychology,ptsd,seizures,selfcare,tand,trauma,traumainformed,tuberoussclerosfalsefullhttps://www.spreaker.com/episode/tsc-talks-trauma-101-a-preview-for-parents-of-medically-complex-kids-with-caroline-clyborne-lpc--18331711
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18331711Thu, 20 Jun 2019 21:49:37 +0000Jill WoodworthCaroline Clyborne, LPC gives us the low down on her upcoming webinar, "Trauma 101-For Parents of Medically Complex Kids" on June 25, 2019. Previously on TSC Talks, Episode 27, Caroline gave us an excellent explanation of the different types of trauma,...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3063autism,brainsurgery,chronicongoingtrauma,c-ptsd,epilepsy,medicallyfragile,medicaltrauma,mentalhealth,neurodiversity,neuroscience,parenting,polyvagaltheory,ptsd,raredisease,specialeducation,specialneeds,stevenporges,trauma,traumatherapy,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-part-3-it-s-a-wrap-tand-tandem-etc-with-dena-hook-vp-of-support-services-ts-alliance--18307241https://soundcloud.com/paavoilves
Music promoted by https://www.free-stock-music.com
Creative Commons Attribution-ShareAlike 3.0 Unported
https://creativecommons.org/licenses/by-sa/3.0/deed.en_US)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18307241Wed, 19 Jun 2019 09:20:54 +0000Jill WoodworthIn Part 3 of this three-part series with Dena Hook, VP of Support Services at the TS Alliance, what I want to highlight in this description is our discussion of Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND). "TAND describes...https://soundcloud.com/paavoilves
Music promoted by https://www.free-stock-music.com
Creative Commons Attribution-ShareAlike 3.0 Unported
https://creativecommons.org/licenses/by-sa/3.0/deed.en_US)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3366autism,behavior,disabilities,education,epilepsy,idea,iep,medicine,mentalhealth,neurology,neuropsych,neuropsychiatric,neuroscience,nonprofit,professionaladvocacy,seizures,specialeducation,tand,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-dedicated-dynamic-dena-part-2-creation-implementation-development-of-volunteer-programs-at-the-ts-alliance--18253212https://www.serpentsoundstudios.com
Music promoted by https://www.free-stock-music.com
Attribution 4.0 International (CC BY 4.0)
https://creativecommons.org/licenses/by/4.0/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18253212Wed, 12 Jun 2019 19:44:46 +0000Jill WoodworthIn Part 2, Dena discusses crossing paths with Kari Rosbeck (TS Alliance President) and how she got her first position with the TS Alliance, moved to DC and never looked back. She outlines the development of the volunteer programs she initiated, and...https://www.serpentsoundstudios.com
Music promoted by https://www.free-stock-music.com
Attribution 4.0 International (CC BY 4.0)
https://creativecommons.org/licenses/by/4.0/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1653advocacy,autism,charity,compassion,epilepsy,globaloutreach,idea,iep,mentalhealth,neuroscience,nonprofit,parenting,parenttraining,raredisease,specialed,specialeducation,specialneeds,staffingmodel,tuberoussclerosiscomplex,volunteersfalsefullhttps://www.spreaker.com/episode/tsc-talks-dedicated-dynamic-dena-part-1-her-early-career-dena-hook-vp-of-support-services-with-the-ts-alliance--18204065https://www.purple-planet.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18204065Fri, 07 Jun 2019 14:07:02 +0000Jill WoodworthThe TSC world famous & beloved Dena Hook, Vice President of Support Services at the TS Alliance comes on the podcast to discuss, well, a lot. This is Part 1 of our conversation and Dena walks us through her history right up until she started working...https://www.purple-planet.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1709autism,disabilities,earlychildhoodeducation,epilepsy,idea,iepadvocacy,mediator,mentalhealth,neurology,ohio,osep,pacer,parenting,professionaladvocate,specialeducation,specialeducationmediator,truancymediation,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-benefits-of-community-connection-turning-the-tables-on-tsc-with-emilie-peters--18126621www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18126621Thu, 30 May 2019 20:04:13 +0000Jill WoodworthMy guest, Emilie Peters, hailing from Oklahoma, is a Junior Leader with the TS Alliance, co-facilitator for the new TSC Young Adult Connect Group, and just received her Associates Degree from Tulsa Community College. She gives a gripping personal...www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3162depression,epilepsy,lebonheurchildrenshospital,livedexperience,mentalhealth,neurodiversity,neuropsychiatric,neuroscience,oklahoma,raredisease,seizures,sharedstories,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-bring-on-the-rain-part-3-affecting-systemic-change-with-julie-comeaux-education-parent-mentor-advocate-tsc-mom--18066910
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/18066910Fri, 24 May 2019 19:16:09 +0000Jill WoodworthIn this final segment, Julie goes into detail discussing her son's progress once he became eligible through a waiver funded by the Louisiana Department of Health’s Office for Citizens with Developmental Disabilities. Julie was able to hire a Direct...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1974amtrak,autism,developmentaldisabilities,directsupportprofessional,epilepsy,homeschooling,iepadvocacy,louisiana,mentalhealth,neurology,neuroscience,raredisease,seizures,specialneeds,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-bring-on-the-rain-part-2-affecting-systemic-change-with-julie-comeaux-education-parent-mentor-advocate-tsc-mom--17901416(www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17901416Sat, 11 May 2019 20:54:19 +0000Jill WoodworthIn Part 2 of this 3 part episode, Julie Comeaux gives us more details on the events that happened with her son leading up to filing a systemic complaint as well as having one filed against her. This ultimately led to filing a systemic complaint...(www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1651advocacy,autism,autismspectrum,drrossgreene,educationaladvocacy,epilepsy,familysupport,homeschooling,inclusion,livedexperience,louisiana,mentalhealth,parenting,parentmentor,raredisease,schooldiscipline,specialeducation,specialneeds,tscomplex,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-bring-on-the-rain-affecting-systemic-change-with-julie-comeaux-education-parent-mentor-advocate-tsc-mom--17873638www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17873638Wed, 08 May 2019 21:21:01 +0000Jill WoodworthIn Part 1 of this series, Julie Comeaux begins to give an inside look at her experiences in the education system in Louisiana with her son that has TSC. She has attended multiple parent training events on IEP, 504, Transition, and SPED Law 101 and...www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2795504,advocacy,autism,civilrights,epilepsy,family,governmentadvocacy,iep,louisiana,mentalhealth,parenting,parentmentor,parentrights,specialeducation,specialneeds,specialneedsparent,tsalliance,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-tidal-waves-of-tsc-part-2-strength-under-pressure-with-chelsea-holman--17782037www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17782037Mon, 29 Apr 2019 21:14:21 +0000Jill WoodworthContinuing our conversation from Part 1, Chelsea talks a bit about difficulties with the local school system, coping with stigma, mental health issues, seeking support, finding the moments and living them, rocking out to AC/DC, thriving with Thrive...www.bensound.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1966ad/dc,angiofibromas,behavior,courage,epilepsy,faith,familysupport,homeschooling,hope,medical,mentalhealth,neurology,nickysgardenofhope,raredisease,seizures,stigma,thrive,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-tidal-waves-of-tsc-taking-it-a-day-at-a-time-making-it-work-part-1-with-tsc-mom-chelsea-holman--17767940https://www.bensound.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17767940Sun, 28 Apr 2019 11:15:58 +0000Jill WoodworthMy guest, Chelsea Holman, is a TSC Mom from Nevada. Impacted personally by TSC, having a son, and various other family members affected with the diagnosis, Chelsea gives a raw look at receiving a diagnosis later in life, managing and reigning in chaos...https://www.bensound.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2020cbdoil,depression,dermatology,diet,epilepsy,family,hope,innerstrength,kidneyissues,mentalhealth,miracles,nevada,parenting,raredisease,seizures,specialneeds,specialneedsmom,thrive,tsalliance,tscfalsefullhttps://www.spreaker.com/episode/tsc-talks-the-therapy-of-theater-skuby-talk-comedy-for-a-cure-with-alex-skuby-actor-podcaster--17681312Music Credit, "Lucky Stars" www.woodywoodworth.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17681312Thu, 18 Apr 2019 21:18:23 +0000Jill WoodworthAlex Skuby, Actor, Co Hosted the recent Comedy for A Cure Fundraiser for the TS Alliance and was kind enough to come on TSC Talks, share some laughs and give me the low down on life. He shares from his early years growing up in NJ, how he got into...Music Credit, "Lucky Stars" www.woodywoodworth.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2133acting,actor,alexskuby,autism,bones,comedyforacure,epilepsy,hollywood,idd,kingofqueens,podbean,podcasthost,skuby222,skubytalks,theater,thefosters,tsalliance,tscomplex,voiceovertruefullhttps://www.spreaker.com/episode/tsc-talks-no-young-adult-with-tsc-fights-alone-with-ts-alliance-junior-leader-young-adult-advocate-brianna-johnson--17631441www.woodywoodworth.com "peace like a river")

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17631441Sat, 13 Apr 2019 11:26:19 +0000Jill WoodworthMy guest Briana Johnson is 21 years old and lives in Scottsdale Arizona. She'll be graduating this month from Grand Canyon University with a bachelors degree in marketing. Over the past few months, she had the opportunity to be a national Junior...www.woodywoodworth.com "peace like a river")

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1560activism,advocacy,afinitor,epilepsy,familysupport,grandcanyonuniversity,hope,kidneysurgery,marketingmajor,mayoclinic,medicallycomplex,neurology,parenting,photography,raredisease,scottsdalearizona,specialneeds,transition,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-living-it-giving-everything-but-up-lauren-shores-shillinger-tsc-mom-advocate-a-ts-alliance-volunteer-of-the-year--17553002
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17553002Sat, 06 Apr 2019 11:22:43 +0000Jill WoodworthLauren Shores Shillinger was a dynamic, enthusiastic guest, ready to share her lived experience as a TSC Mom, Advocate and Chair of TS Alliance of Maryland. She was recently named one of four recipients of the TS Alliance Volunteer of the Year Award...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3715activism,advocate,autism,autismawareness,brainsurgery,capitolhill,epilepsy,familysupport,governmentadvocacy,mentalhealth,parenting,raredisease,seizures,specialneeds,tsalliance,tsc,tuberoussclerosis,volunteeroftheyearfalsefullhttps://www.spreaker.com/episode/tsc-talks-triathlons-transition-and-tsc-with-reiko-donato-tsc-mom-ironman-triathlete-chair-ts-alliance-ga--17471470https://cdmrp.army.mil/cwg/stories/2013/donato_profile) (music credit: https://www.purple-planet.com/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17471470Fri, 29 Mar 2019 09:49:23 +0000Jill WoodworthReiko Donato, TSC Mom, Brand Ambassador at Coeur Sports, Chair of the TS Alliance of Atlanta and past TS Alliance Board of Directors Member, walks me thru the timeline from diagnosis of her daughter thru the current day. She details the process of...https://cdmrp.army.mil/cwg/stories/2013/donato_profile) (music credit: https://www.purple-planet.com/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>4039advocacy,autism,coeursports,epilepsy,fundraising,ironman,ironmanhawaii,mentalhealth,parenting,raredisease,runner,running,seizures,specialneeds,specialneedsparent,swimming,transition,triathlete,triathlon,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-vocatus-atque-non-vocatus-deus-aderit-with-grassroots-tsc-advocate-griffin-s-mom-debora-moritz--17430886https://www.purple-planet.com/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17430886Mon, 25 Mar 2019 13:36:54 +0000Jill WoodworthDebora Moritz is a Grassroots Advocate, Chair of TS Alliance of Arizona, Member of the Government Relations Committee, and most importantly "just Griffin's mom trying to make things better for him and few other folks along the way." From diagnosis of...https://www.purple-planet.com/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3913afinator,autism,biosample,clinicaltrials,epilepsy,exceptionalparent,fda,governmentadvocacy,grassrootsmovement,medicine,neurologist,neurology,parenting,raredisease,specialneeds,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-closing-the-deal-with-tsc-mom-blogger-tsc-advocate-heather-lens-as-she-turns-no-to-yes-in-congress-life--17404406https://www.spreaker.com/episode/17404406 my guest Heather Lens shares from her heart about the lonely day when she first received the Tuberous Sclerosis Complex diagnosis in her then-5 month old daughter Madilyn and not wanting to leave the hospital, facing a multitude of daunting unknowns to the cascading events that followed; infantile spasms, challenges with seizure control, brain surgery, kidney involvement and more. She gives a gripping account of not only the external events but her inner process as she coped with wave after wave of devastating TSC related issues. She shares how she managed to turn this grief and pain to jumping right into the pool of advocacy with fundraising, walks, eventually becoming the TS Alliance Chair of OK.
She gives a moving narrative on "closing" the deal at the March on Capitol Hill by getting every member of Congress in Oklahoma to sign the Dear Colleague letter starting with Markwayne Mullen, by asking the simple question, "What do I need to do to get your signature?" Homegrown sincerity, perseverance, and a willingness to examine the deeper feelings that often overwhelm us when managing the diverse uncertainties involved in TSC care, of a medically fragile child. Heather will leave you wanting to get up out of your seat and cheer her on as she continues to advocate, blog, sell real estate, and manage her daughter's care. "Learning to Love the Life I Never Wanted", the title of a recent blog Heather wrote in Huff Post is a cornerstone in the foundation of this woman's purpose as she closes the deal repeatedly, with love for her family as her guiding force.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17404406Fri, 22 Mar 2019 14:43:49 +0000Jill WoodworthIn this episode of TSC Talks, https://www.spreaker.com/episode/17404406 my guest Heather Lens shares from her heart about the lonely day when she first received the Tuberous Sclerosis Complex diagnosis in her then-5 month old daughter Madilyn and not...https://www.spreaker.com/episode/17404406 my guest Heather Lens shares from her heart about the lonely day when she first received the Tuberous Sclerosis Complex diagnosis in her then-5 month old daughter Madilyn and not wanting to leave the hospital, facing a multitude of daunting unknowns to the cascading events that followed; infantile spasms, challenges with seizure control, brain surgery, kidney involvement and more. She gives a gripping account of not only the external events but her inner process as she coped with wave after wave of devastating TSC related issues. She shares how she managed to turn this grief and pain to jumping right into the pool of advocacy with fundraising, walks, eventually becoming the TS Alliance Chair of OK.
She gives a moving narrative on "closing" the deal at the March on Capitol Hill by getting every member of Congress in Oklahoma to sign the Dear Colleague letter starting with Markwayne Mullen, by asking the simple question, "What do I need to do to get your signature?" Homegrown sincerity, perseverance, and a willingness to examine the deeper feelings that often overwhelm us when managing the diverse uncertainties involved in TSC care, of a medically fragile child. Heather will leave you wanting to get up out of your seat and cheer her on as she continues to advocate, blog, sell real estate, and manage her daughter's care. "Learning to Love the Life I Never Wanted", the title of a recent blog Heather wrote in Huff Post is a cornerstone in the foundation of this woman's purpose as she closes the deal repeatedly, with love for her family as her guiding force.

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3266advocate,blogger,brainsurgery,congress,epilepsy,family,government,grief,huffpost,infantilespasms,mentalhealth,oklahoma,parenting,raredisease,seizures,specialneeds,spreaker,tsalliance,tsc,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-march-on-capitol-hill-2019-mastermind-ts-alliance-manager-of-research-global-affairs-katie-smith--17344894(intro music: https://www.purple-planet.com}

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17344894Sat, 16 Mar 2019 16:46:13 +0000Jill WoodworthIn this episode, my guest Katie Smith, Manager of Research and Global Affairs at TS Alliance discusses with me in detail, just how she coordinates March on Capitol Hill every year to advocate for federal funding for the Tuberous Sclerosis Complex...(intro music: https://www.purple-planet.com}

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1954autism,cdmrp,congress,dearcolleagueletter,epilepsy,federalfunding,globalaffairs,grassrootsmovement,houseofrepresentatives,marchoncapitolhill,medicalresearch,raredisease,senate,tsalliance,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-steering-the-ship-with-passion-purpose-ts-alliance-president-ceo-kari-luther-rosbeck--17343475https://www.purple-planet.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17343475Sat, 16 Mar 2019 13:00:41 +0000Jill WoodworthKari Luther Rosbeck, President and CEO of the TS Alliance since 2007, has masterfully steered the ship from the early days where “all we could do was hold the hands of parents as they went thru the struggle to today where we have drugs that shrink TSC...https://www.purple-planet.com)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1931autism,cdmrp,departmentofdefense,entrepreneurship,epilepsy,fundraising,geneticdisorder,grassrootsmovement,grief,inspiration,leadership,mentalhealth,parenting,pharmaceutical,powerfulwomen,raredisease,sids,specialneeds,tsalliance,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-igniting-the-flame-of-infinite-potential-for-the-human-spirit-with-jackie-woodside--17272147https://www.purple-planet.com/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17272147Sat, 09 Mar 2019 12:54:57 +0000Jill WoodworthJackie Woodside, certified (CPC, LICSW) and a best-selling author, TEDx speaker, radio and television personality and seminar leader who is passionate about expanding the edge of human potential, kindly granted TSC Talks this interview. She was...https://www.purple-planet.com/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2312awakening,epilepsy,hope,inspiration,jackiewoodside,lifechallenges,massachusetts,meditation,mentalhealth,mentalhealthawareness,mentalhealthcounselor,military,neurologicaldisorder,parenting,socialwork,specialneeds,specialneedsmom,specialneedsparent,spiritualawakeningfalsefullhttps://www.spreaker.com/episode/tsc-talks-everything-is-broken-trauma-tsc-me-family-impact-survival-and-hope-with-22-yr-grizzled-tsc-vet-mom-jill--17194766
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17194766Fri, 01 Mar 2019 18:32:53 +0000Jill WoodworthIn this episode, TSC Talks Audio Editor Interviews grizzled TSC veteran, Jill Woodworth on what happened, what she learned, who she met and what's next. How understanding the impact of trauma has been the key that unlocked the doors to the integration...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2236autism,behavior,caregiverptsd,epilepsy,healthcare,infantilespasms,mentalhealth,neuroscience,parenting,polyvagaltheory,ptsd,raredisease,running,selfhealers,specialneeds,spirituality,trauma,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-30-riding-the-waves-of-tsc-tand-an-update-with-marlo-tsc-mom-past-chair-of-the-ts-alliance-of-new-england--17115195
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17115195Fri, 22 Feb 2019 11:49:08 +0000Jill WoodworthMarlo Grolnic, TSC Mom, past chair of the Tuberous Sclerosis Alliance of New England and previous guest on TSC TALKS in September 2018, takes time out of her day to give us an update on how her son's adjusted to an out of district placement he had...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1888autism,autismawareness,behaviormanagement,epilepsy,familyroles,iep,mentalhealth,neurology,neuropsychiatricdisorder,neuroscience,parenting,playtherapy,ptsd,raredisease,specialneeds,specialneedsparent,tsc,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-29-charting-a-course-home-tsc-mom-heather-little-describes-how-she-s-managed-overcome-infinite-challenges-with-tsc--17042482
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/17042482Thu, 14 Feb 2019 15:21:34 +0000Jill WoodworthFrom a mismanaged initial TSC diagnosis in her daughter to struggles getting treatment for Infantile Spasms, challenges finding an adequate setting for brain surgery, educational and behavioral issues as well as personal and family impact, Heather...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>4880autism,brainsurgery,chronicdisease,epilepsy,familysupport,hope,iamtsc,infantilespasms,mentalhealth,parenting,ptsd,raredisease,selfcare,specialneeds,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-28-ripple-a-discussion-with-danny-van-leeuwen-mph-rn-cphq-patient-and-caregiver-activist-writer-speaker-more--16985466www.health-hats.com .

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16985466Fri, 08 Feb 2019 14:48:35 +0000Jill WoodworthDanny graciously put down one of his many "health hats" and came on the podcast to share his wisdom and deep knowledge of the inner workings of the medical industrial complex, aka healthcare system, from the many hats he's worn within the healthcare...www.health-hats.com .

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3035autism,caregiver,caregiveractivist,epilepsy,healthcare,healthcareactivist,healthcarewriter,iamtsc,massgeneral,mentalhealth,multiplesclerosis,musician,nurse,nursing,patientadvocate,patientleader,pcori,transition,wegohealth,writerfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-27-invincible-summer-on-tsc-trauma-with-body-oriented-psychotherapist-tsc-mom-caroline-ramirez--16895024
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16895024Thu, 31 Jan 2019 17:08:45 +0000Jill WoodworthIn this fascinating and inspiring episode, Caroline Ramirez, TSC Mom & Licensed Professional Counselor discusses the impact of different types of trauma, shock trauma & developmental trauma, and how this is relevant to TSC. She discusses how we as...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3943ableism,aces,autism,brainsurgery,cognitivedisability,epilepsy,grief,hemiparesis,hope,mentalhealth,polyvagaltheory,ptsd,seizures,specialneeds,trauma,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-26-the-road-out-exceptional-challenges-on-the-tsc-path-with-phd-psychotherapist-special-needs-mom-ginger-sullivan--16832852
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16832852Thu, 24 Jan 2019 19:34:20 +0000Jill WoodworthPh.D. Psychotherapist, Writer, and Special Needs Mom, Ginger Sullivan, gives us some of her insight, wisdom, and humor gleaned from over 26 years as a therapist in the D.C. area. We discuss the therapeutic process and the exceptional challenges to...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2139autism,chronicstress,epilepsy,grouptherapy,hope,mentalhealth,mentalillness,psychology,psychotherapy,ptsd,selfcare,specialneedsparent,tuberoussclerosiscomplex,washingtondc,wheatoncollegefalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-25-the-epilepsy-experience-from-diagnosis-to-acceptance-and-activism-with-saaim-ali--16746008
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16746008Fri, 18 Jan 2019 13:09:53 +0000Jill WoodworthListen to this articulate and inspiring young lady, Saaim Ali, as she gives us a gripping inside look at the experience of having epilepsy. From diagnosis at age 7, thru the current day as a computer science major near Buffalo, NY, she discusses how...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2160advocacy,chronicdisease,depression,epilepsy,epilepsyawareness,epilepsywarrior,hope,mentalhealth,mentalillness,neuropsych,seizuresfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-24-weed-indeed-drop-seizures-cannabis-advocacy-and-more-with-becky-gaunt--16697999
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16697999Sun, 13 Jan 2019 10:00:35 +0000Jill WoodworthWriter, Advocate, TSC Mom, Rebecca Gaunt shares her experience of TSC with her son Connor. She highlights her involvement with Cannabis legislation in GA, after finding it the only treatment adequate to gain control of devastating drop seizures. She...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2951autism,cannabis,cannabisadvocacy,dropseizures,epidiolex,epilepsy,hope,iamtsc,mentalhealth,psychmeds,raredisease,specialneedsparent,writerfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-23-rebecca-thereault-joy-and-sorrow-on-the-tsc-journey-laughing-at-the-insanity-of-life--16638449
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16638449Sat, 05 Jan 2019 23:15:17 +0000Jill WoodworthIn this episode Rebecca shares her challenging experiences and incredible advocacy as a TSC Mom, getting an accurate diagnosis of certain TSC manifestations such as seizures, including infantile spasms and autism spectrum disorder. She gives multiple...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>4613autism,coping,epilepsy,hope,mentalhealth,poetry,ptsd,ptsdinparents,raredisease,specialneedsparent,specialneedsparenting,tuberoussclerosiscomplex,writingfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-22-ptsd-in-parents-and-caregivers-with-hillary-savoie-listen-to-us-do-not-turn-the-other-way--16539507
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16539507Fri, 21 Dec 2018 14:03:22 +0000Jill WoodworthHillary Savoie, writer, advocate, consultant, and most importantly, mother of Esmé, a medically fragile, developmentally delayed child, discusses the impact of PTSD on parents, Her recent article in Romper.com delves into this crucial topic as she...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3071autism,autismspectrumdisorder,caregiverburnout,epilepsy,hope,mentalhealth,mentalhealthawareness,ptsd,ptsdawareness,raredisease,specialneedsparentfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-21-a-moment-with-maryellen-lacy-22-year-old-with-tsc-update-on-shared-living-sitch-new-program-etc--16503139
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16503139Mon, 17 Dec 2018 23:53:57 +0000Jill WoodworthIn this brief episode, MaryEllen Lacy, 22, an adult living with TSC, gives me an update on her current living situation after moving out last April to Shared Living. I recently interviewed her caregiver Claire in Episode 18. MaryEllen fills us in on...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>800autism,autismspectrum,caregiver,dds,epilepsy,hmea,hope,mentalhealth,millburyma,mychoiceprograms,ptsd,sharedliving,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-20-strange-things-aka-infantile-spasms-in-tsc-with-tarra-hassin-a-primer-on-perseverance-perception-and-acceptance--16423747
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16423747Sun, 09 Dec 2018 14:31:18 +0000Jill WoodworthTarra Hassin gives us an inside look at her experience with her son Colin's TSC diagnosis at 10 weeks old with seizures and how she started to notice "strange things" happening. and that led to IS diagnosis and treatment. We also discuss TS Clinic in...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3061abatherapy,acth,autism,epilepsy,familyimpact,hope,infantilespasms,parenting,raredisease,seizures,specialneedsparent,tuberoussclerosiscomplex,vigabatrinfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-19-shannon-grandia-tsc-mom-spouse-advocate-teacher-finding-joy-on-the-tsc-path--16373887
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16373887Mon, 03 Dec 2018 18:28:54 +0000Jill WoodworthA discussion with Shannon Grandia, wife, mother, first-grade teacher, TS Alliance Volunteer, and Advocate! She shares her experience over the last 19 years with her children, Rylee, Jake and Luke, all affected by TSC as well as spouse Rob who is also...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2831autism,autismawareness,chronicdisease,epilepsy,hope,parenting,raredisease,relationships,seizures,specialneeds,specialneedsmom,specialneedsparent,tuberoussclerosiscomplex,volunteeringfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-18-claire-despres-shared-living-provider-for-maryellen-lacy-young-adult-with-tsc--16335397
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16335397Thu, 29 Nov 2018 10:39:07 +0000Jill WoodworthA day in the life of Shared Living Provider, Claire Despres. We discuss the ins and outs of shared living; the program itself, the process of finding a client, the role of a good case management team, and then we get a glimpse at a day in the life...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1967autism,epilepsy,iamtsc,mychoiceprograms,parenting,raredisease,sharedliving,specialneeds,tsctalks,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-17-going-local-finding-the-middle-ground-in-special-education-with-stacey-jackson--16228458https://tsctalks.com and @tsctalks on FB for detailed questions and answers and information discussed!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16228458Thu, 15 Nov 2018 14:47:30 +0000Jill WoodworthIn this episode, I go local in this discussion of special education with past school committee member and experienced special needs mother, Stacey Jackson. We go in-depth on Stacey's hands-on experience advocating for her daughter, from early...https://tsctalks.com and @tsctalks on FB for detailed questions and answers and information discussed!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3436advocate,collaboration,datadriven,education,parenting,sepac,specialneeds,specialneedsparenting,wrsdfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-16-hope-wins-meghan-wilson-cameran-teamcambam--16157071
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16157071Wed, 07 Nov 2018 12:28:57 +0000Jill WoodworthHOPE WINS. In the words of new TSC Mom Meghan Wilson, "Live the Moments". Meghan talks about her baby Cameran's diagnosis at 2 months, getting seizure control, ketogenic diet, the MGH TS Clinic, and family support with TeamCamBam. #TeamCamBam was made...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1825autism,chronicdisease,epilepsy,familysupport,ketodiet,ketogenicdiet,marathon,mentalhealth,neurology,parenting,podcasting,raredisease,runner,seizures,teamcambam,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-15-jill-talks-team-tsc-and-the-big-race-with-guest-host-dorina-leslie--16032816
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/16032816Tue, 23 Oct 2018 16:52:40 +0000Jill WoodworthPrevious podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS Alliance, Team TSC as well as origins of TSC Talks...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1782autism,epilepsy,hope,iamtsc,marathoner,marinecorpmarathon,mentalhealth,mentalillness,neuropsych,running,suicideprevention,teamtsc,trump,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-14-kristina-occupational-therapist-the-importance-of-hope-in-early-intervention-services--15988089
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15988089Wed, 17 Oct 2018 21:21:59 +0000Jill WoodworthKristina Hansson, Occupational Therapist of 25 years discusses her motivation for becoming an OT, Importance of Early Intervention programs, the process of requesting services, her diagnosis of Neurofibromatosis, and much more!
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1213autismawareness,earlyintervention,epilepsy,hope,mentalhealth,neurofibromatosis,parenting,raredisease,specialneeds,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-13-mary-comeau-there-s-always-hope--15968187
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15968187Mon, 15 Oct 2018 18:24:16 +0000Jill WoodworthTSC Mom, Mary Comeau shares her nail-biter of an experience with TSC. From potential TSC diagnosis at 20 wks pregnancy, the start of seizures, difficulty with seizure control, keto diet, brain surgery, Early Intervention, Special Ed Teachers, and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1875autism,brainsurgery,cbd,epidiolex,epilepsy,healthcare,ketodiet,parenting,podcasting,raredisease,specialneeds,specialneedsparenting,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-12-adriana-piltz-nicky-s-garden-of-hope--15862407
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15862407Tue, 02 Oct 2018 17:55:20 +0000Jill WoodworthA conversation about Adriana's experience with her son Nicky who is 20 and severely affected by TSC and the incredible project she's started called Nicky’s Gardens of Hope. "The pilot project will build our first facility, one that can truly help...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>3762autism,epilepsy,iamtsc,mentalhealth,parenting,raredisease,specialneeds,specialneedsparenting,tuberoussclerosiscomplex,tuberroussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-11-woody-seagren-role-of-a-school-psychologist-re-tsc--15860569
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15860569Tue, 02 Oct 2018 13:59:42 +0000Jill WoodworthWoody and I discuss his background and experience, the role of a school psychologist, how parents/students affected by TSC can best make use of services of a school psychologist, the use of labels, advocates, working as a team.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2437autism,mentalhealth,schoolpsychologist,specialeducation,specialneedsfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-10-tsc-mom-renee-a-canadian-perspective-w-non-verbal-son--15810958
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15810958Wed, 26 Sep 2018 13:08:17 +0000Jill WoodworthRenée and I go in depth into her journey with her son Aaden who is non-verbal with TSC, diagnosis to current day. Renée gives perspective from Canada on managing TSC, from diagnosis, brain surgery to current day.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>4311autism,autismawareness,epilepsy,iamtsc,specialneedsfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-8-tsc-mom-marlo-the-journey-continues--15749111
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15749111Tue, 18 Sep 2018 20:00:25 +0000Jill WoodworthMarlo discusses the weight of a TSC diagnosis and all it's implications. From diagnosis during pregnancy to behaviors and school related issues, seizure frustrations, med management, healthcare professionals and more. She narrates the difficulty of...
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>2612autism,epilepsy,iamtsc,mentalhealth,parenting,specialeducation,specialneedsfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-9-dorina-leslie-finding-true-north-tsc-mental-health--15748528
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15748528Tue, 18 Sep 2018 18:32:23 +0000Jill WoodworthIn this episode, I interview Dorina Leslie, mother of Justin Leslie regarding her experiences with TSC diagnosis as well as mental health issues, and finding one's "True North".
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1860anxiety,depression,mentalhealth,mentalhealthawareness,outofthedarkness,parenting,raredisease,spirituality,tuberoussclerosiscomplexfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-7-justin-leslie-hard-work-and-acceptance-dedicated-to-the-memory-of-keith-hall--15692676
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/15692676Tue, 11 Sep 2018 17:05:48 +0000Jill WoodworthJustin, 20, URI student. young adult living with TSC. Spoke of his diagnosis, the impact, manifestations, inspiration, influencers, Keith Hall and others. 
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>1830autism,epilepsy,iamtsc,mentalhealth,mentalhealthawareness,parenting,raredisease,tuberoussclerosiscomplexfalse7fullhttps://www.spreaker.com/episode/tsc-talks-episode-6-maryellen-22-year-old-talks-about-shared-living--14487194
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/14487194Sun, 08 Apr 2018 19:46:56 +0000Jill Woodworth22 year old with tuberous sclerosis complex discusses move to shared living
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>623autism,autismawareness,epilepsyawareness,sharedliving,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-5-interview-with-jack-lacy--8065300
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/8065300Mon, 21 Mar 2016 18:48:32 +0000Jill WoodworthJill Woodworth chats with her son Jack, age 14, about what it's like to have TSC.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>412epilepsy,iamtsc,seizures,specialneeds,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-4-part-2-the-interview-with-mary-ellen-lacy--7962295
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/7962295Wed, 09 Mar 2016 18:59:55 +0000Jill WoodworthMary Ellen Lacy talks about the end of high school and beyond with Mom.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>774autismspectrumdisorder,iamtsc,specialneeds,tuberoussclerosisfalsefullhttps://www.spreaker.com/episode/tsc-talks-episode-3-the-interview-mary-ellen-lacy--7947739https://www.spreaker.com/podcast/tsc-talks--1666046/support.]]>https://api.spreaker.com/episode/7947739Mon, 07 Mar 2016 21:57:35 +0000Jill Woodworth1025autism,iamtsc,specialneeds,tsc,tuberoussclerosisfalsefull