http://www.spreaker.com/show/wehaveavoiceVisit: www.WeHaveAFace.org/Radio for more information.]]>enEducationCopyright 2016: WeHaveAFace.org Inc. - WeHaveAVoicehttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/3e34e7862a6720405cf282d58ba8938a.jpghttp://www.spreaker.com/show/wehaveavoiceTue, 23 Jun 2026 11:55:56 +0000WeHaveAVoiceWeHaveAVoicekevin12622@gmail.comWeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience...Visit: www.WeHaveAFace.org/Radio for more information.]]>falseepisodichttps://www.spreaker.com/episode/could-huntington-s-families-be-forced-into-institutions-the-truth-behind-the-new-doj-memo--72649001https://api.spreaker.com/episode/72649001Tue, 23 Jun 2026 11:53:23 +0000WeHaveAVoiceWhat does the new Justice Dept. memo really mean for people living with Huntington's Disease and their families?  We separate fact from fear in this episode.1315departmentofjustice,doj,forcedinstitutionalization,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/positive-eugenics-should-we-worry--69937668https://api.spreaker.com/episode/69937668Tue, 10 Feb 2026 04:56:45 +0000WeHaveAVoiceThat's not a rhetorical question. I'm not asking to provoke. I'm asking because something is shifting in our culture, and people with genetic disease  are the first to fell it.588changingculture,eugenics,huntingtonsdisease,juvenilehungtingtonsdisease,maid,positiveeugenicsfalsefullhttps://www.spreaker.com/episode/amt-130-update-breaking-through-the-hype--68676103https://api.spreaker.com/episode/68676103Fri, 21 Nov 2025 12:59:43 +0000WeHaveAVoiceAMT-130 was sold as the breakthrough Huntington’s families have waited generations for — a one-shot gene therapy that “changes everything.” Researchers celebrated, headlines exploded, and desperate families finally believed they might be saved. But...569amt-130,huntingtonsdisease,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/amt-130-and-the-75-slowdown-what-just-changed-for-huntington-s-disease-and-what-hasn-t--67886319





]]>https://api.spreaker.com/episode/67886319Thu, 25 Sep 2025 03:32:46 +0000WeHaveAVoiceWe Have A Voice Radio dives into the AMT-130 news for Huntington’s—what this one-time, brain-delivered gene therapy is, what the reported “75% slowdown” really means, what’s next for approval, and the hard truths on access and cost.





]]>1125amt-130,genesilencing,huntingtonsdisease,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/the-blue-within--67491067https://api.spreaker.com/episode/67491067Sat, 23 Aug 2025 20:54:06 +0000WeHaveAVoice"The Blue Within" dives into the surprising potential of methylene blue—a simple dye with extraordinary promise—in the fight against Huntington’s disease and other neurodegenerative disorders. Blending science, human stories, and community voices,...485falsefullhttps://www.spreaker.com/episode/chair-by-the-window-a-huntington-s-disease-story--67472841https://api.spreaker.com/episode/67472841Fri, 22 Aug 2025 00:42:00 +0000WeHaveAVoiceA Huntington's Disease Story about Ellen, abandoned by everyone she loved.329huntingtonsdisease,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/huntington-s-isn-t-rare-it-s-ignored--67325540https://api.spreaker.com/episode/67325540Mon, 11 Aug 2025 00:37:53 +0000WeHaveAVoiceA short monologue about how Huntington's disease is being ignored.1052falsefullhttps://www.spreaker.com/episode/the-endless-scroll-huntington-s-disease-in-the-age-of-doomscrolling--67148033https://api.spreaker.com/episode/67148033Mon, 28 Jul 2025 02:49:52 +0000WeHaveAVoiceThe modern phenomena of Doomscrolling and its affect on Huntington's Disease. A short monologue.437doomscrolling,huntingtonsdisease,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/nicotine-patches-huntington-s-disease-is-there-hope--67124904https://api.spreaker.com/episode/67124904Sat, 26 Jul 2025 06:42:22 +0000WeHaveAVoiceA short monologue concerning the possible use of nicotine patches for Huntington's Disease.464falsefullhttps://www.spreaker.com/episode/the-house-that-doesn-t-sleep--67080945https://api.spreaker.com/episode/67080945Wed, 23 Jul 2025 01:41:55 +0000WeHaveAVoiceA short monologue about caregiver burnout.411falsefullhttps://www.spreaker.com/episode/the-kids-who-carry-too-much--66736885https://api.spreaker.com/episode/66736885Wed, 25 Jun 2025 09:17:46 +0000WeHaveAVoiceChild caregivers are no longer uncommon and the numbers are rising.586childcaregiver,huntingtonsdisease,wehaveavoicefalsefullhttps://www.spreaker.com/episode/44-of-men-die-prematurely--66584508https://api.spreaker.com/episode/66584508Tue, 17 Jun 2025 01:00:37 +0000WeHaveAVoice44% of men die prematurely in Canada. Most likely higher in the US. But what about men with Huntington's Disease?484huntingtonsdisease,menshealth,prematuredeath,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/hd-research-what-s-in-store-for-2025-and-beyond-according-to-ai--64141563https://api.spreaker.com/episode/64141563Sun, 02 Feb 2025 07:25:16 +0000WeHaveAVoiceKevin uses AI to analyze all information to get a picture of what may happen in regards to HD research in light of possible policy changes due to a new U.S. administration. This is not a political post.1919falsefullhttps://www.spreaker.com/episode/rare-disease-day--58675500https://api.spreaker.com/episode/58675500Tue, 13 Feb 2024 17:19:52 +0000WeHaveAVoiceHost, Kevin Jess, talks about Rare Disease Day which is just around the corner752huntingtonsdisease,rarediseasedayfalsefullhttps://www.spreaker.com/episode/new-guidelines-to-revolutionize-care-for-huntington-s-disease-patients--58078881https://api.spreaker.com/episode/58078881Thu, 21 Dec 2023 02:10:02 +0000WeHaveAVoiceKevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD785huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/bunny-clark-and-the-10th-annual-huntington-s-heroes-walk--53975125https://api.spreaker.com/episode/53975125Tue, 23 May 2023 19:29:01 +0000WeHaveAVoiceBunny Clark talks about The Walk for Huntington's Disease May 28th818huntingtonsdisease,huntingtonsheroeswalk,huntingtonssocietyofcanadafalsefullhttps://www.spreaker.com/episode/erin-paterson-huntington-s-disease-heroes--53603475https://api.spreaker.com/episode/53603475Fri, 21 Apr 2023 11:02:40 +0000WeHaveAVoice1340erinpaterson,huntingtonsdisease,huntingtonsdiseaseheroes,juvenilehuntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/wehaveaface-what-s-next--53224968https://api.spreaker.com/episode/53224968Thu, 16 Mar 2023 14:50:01 +0000WeHaveAVoiceKevin Jess announces charity closings and discusses what's next for WeHaveAFace.1210huntingtonsdisease,projectchange,wehaveafacefalsefullhttps://www.spreaker.com/episode/worthlessness--51416723https://api.spreaker.com/episode/51416723Thu, 29 Sep 2022 13:40:01 +0000WeHaveAVoiceKevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.1271virginriver,wehaveaface,wehaveavoice,worthlessfalse1fullhttps://www.spreaker.com/episode/coffee-talk-with-kevin-and-jen-chat-7--50429283https://api.spreaker.com/episode/50429283Fri, 01 Jul 2022 02:15:02 +0000WeHaveAVoiceJen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community2315abortion,huntingtonsdisease,ivf/pgd,roevwade,wehaveafacefalse1fullhttps://www.spreaker.com/episode/coffee-talk-with-kevin-and-jen-chat-6--50380416https://api.spreaker.com/episode/50380416Mon, 27 Jun 2022 16:10:02 +0000WeHaveAVoiceJen and Kevin talk about hope, testing and other topics3622coffeetalk,huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoicefalse1fullhttps://www.spreaker.com/episode/coffee-talk-with-jen-and-kevin-chat-5--50224695https://api.spreaker.com/episode/50224695Thu, 16 Jun 2022 14:15:02 +0000WeHaveAVoiceKevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 252645hdeducationday,huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/kevin-speaks-about-memories-and-nurturing-relationships--50197480https://api.spreaker.com/episode/50197480Tue, 14 Jun 2022 11:00:03 +0000WeHaveAVoiceKevin talks about memories of his wife Sheila and how it's important to nurture friendships1696huntingtonsdisease,juvenilehuntingtonsdisease,reminisce,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/coffee-talk-with-jen-and-kevin-chat-4--50166827https://api.spreaker.com/episode/50166827Sat, 11 Jun 2022 17:40:04 +0000WeHaveAVoiceJen gets an unexpected call and discussion ensues.2682curehd,huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/coffee-talk-with-jen-and-kevin-chat-3--50031906https://api.spreaker.com/episode/50031906Thu, 02 Jun 2022 00:00:02 +0000WeHaveAVoiceJen and Kevin chat about disappointments over the years in the Huntington's Disease community2876huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/coffee-talk-with-jen-and-kevin-chat-2--49943097https://api.spreaker.com/episode/49943097Wed, 25 May 2022 18:00:02 +0000WeHaveAVoiceJen and Kevin chat about the death of a loved one and strategies leading up to and after death.2724death,huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/coffee-talk-with-jen-and-kevin-chat-1--49834755https://api.spreaker.com/episode/49834755Tue, 17 May 2022 20:45:02 +0000WeHaveAVoiceKevin and Jen kick off a series of coffee talks concerning Huntington's Disease2352huntingtonsdisease,juvenilehuntingtonsdisease,sagetherapeutics,wehaveafacefalsefullhttps://www.spreaker.com/episode/james-valvano-and-what-s-next-for-wehaveaface--49156367https://api.spreaker.com/episode/49156367Tue, 22 Mar 2022 20:10:19 +0000WeHaveAVoiceJames speaks about the Project Change and an array of topics2082diagnosticcriteria,huntingtonsdisease,juvenilehuntingtonsdisease,wehaveafacenewzealandfalsefullhttps://www.spreaker.com/episode/dr-herwig-lange-and-james-valvano-discuss-why-it-is-necessary-to-change-the-diagnostic-criteria-for-huntington-s-disease--47657473https://www.youtube.com/watch?v=ZJs8EHEPMag]]>https://api.spreaker.com/episode/47657473Thu, 25 Nov 2021 20:55:02 +0000WeHaveAVoiceDr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease. To watch this episode with video, please go to https://www.youtube.com/watch?v=ZJs8EHEPMaghttps://www.youtube.com/watch?v=ZJs8EHEPMag]]>3425huntingtonsdisease,juvenilehuntingtonsdisease,wehaveafacefalsefullhttps://www.spreaker.com/episode/louise-vetter-concerning-support-for-changes-to-the-current-diagnostic-criteria-for-huntington-s-disease--47625483https://api.spreaker.com/episode/47625483Tue, 23 Nov 2021 20:55:11 +0000WeHaveAVoiceLouise Vetter (President and CEO of HDSA) underscores her support for the initiative to change the current diagnostic criteria and introduces the new Huntington's disease support platform - #PatientsLikeMe1796huntingtonsdisease,juvenilehuntingtonsdisease,louisevetter,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/erin-paterson-speaks-about-having-huntington-s-disease-and-starting-a-family--47375461https://api.spreaker.com/episode/47375461Mon, 08 Nov 2021 18:05:12 +0000WeHaveAVoiceErin speaks with Kevin about her 5 1/2 year struggle with fertility amidst having a diagnosis of HD2679erinpaterson,fertility,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/kevin-jess-speaks-candidly-about-the-recent-death-of-his-wife-sheila--46967396https://api.spreaker.com/episode/46967396Thu, 14 Oct 2021 02:41:42 +0000WeHaveAVoiceKevin Jess speaks about his wife Sheila, how they met up until her recent passing.1432death,huntingtonsdisease,wehaveafacefalsefullhttps://www.spreaker.com/episode/wehaveavoice-hdsa-hd-parity-act-with-jennifer-simpson--44756063https://api.spreaker.com/episode/44756063Tue, 11 May 2021 19:00:04 +0000WeHaveAVoicePlease listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and...1876congress,@congressdotgov,@dnc,@gop,hdparityact,hdsa,@hdsa,hr2050,letstalkabouthd,passthehdparityact,s868,@wehaveafacefalsefullhttps://www.spreaker.com/episode/wehaveavoice-radio-hd-warrior-john-howard-poetry--44679538https://api.spreaker.com/episode/44679538Fri, 07 May 2021 19:00:20 +0000WeHaveAVoice#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLoved481brain,braindisease,creativity,disease,hdsa,huntingtonsdisease,iheartradio,neurology,poetry,spreaker,twitter,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveaface-psa-hdsa-hd-parity-act-with-jennifer-simpson--44610467https://cqrcengage.com/hdsa/Caucus]]>https://api.spreaker.com/episode/44610467Mon, 03 May 2021 16:42:41 +0000WeHaveAVoiceOn May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their...https://cqrcengage.com/hdsa/Caucus]]>218als,brain,congress,facebook,hd,hdparityact,hdsa,huntingtonsdisease,iheartradio,neurology,twitter,wehaveafacefalsefullhttps://www.spreaker.com/episode/jimmy-pollard-finding-nana-s-smile--42230610https://api.spreaker.com/episode/42230610Mon, 30 Nov 2020 00:10:19 +0000WeHaveAVoiceJimmy Pollard talks about his new children's book, Finding Nana's Smile2018findingnanassmile,huntingtonsdisease,jimmypollard,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/james-valvano-season-1-of-wehaveaface-tv--41522950https://api.spreaker.com/episode/41522950Sun, 18 Oct 2020 18:10:16 +0000WeHaveAVoiceKevin Jess interviews James Valvano about the first season of WeHaveAFace TV3871huntingtonsdisease,juvenilehuntingtonsdisease,wehaveafacetv,wehaveavoicefalsefullhttps://www.spreaker.com/episode/dr-finn-of-the-mayo-clinic-how-and-when-to-talk-to-children-about-huntington-s-disease--40216554www.WeHaveAFace.org/survey2]]>https://api.spreaker.com/episode/40216554Sat, 08 Aug 2020 16:21:50 +0000WeHaveAVoiceDr. Kelsey M. Finn is a geneticist, bioethicist, and empathy enthusiast. Dr. Finn has devoted a large part of her career to researching whether, when, and how to communicate about genetic conditions and health information with children. She has...www.WeHaveAFace.org/survey2]]>1680brain,children,communication,disease,dr.finn,hdsa,huntington's,mayoclinic,neurology,parents,research,science,testing,wehaveafacefalsefullhttps://www.spreaker.com/episode/dr-bird-of-the-university-of-washington-speaks-about-the-hdsa-centers-of-excellence--40142159https://api.spreaker.com/episode/40142159Tue, 04 Aug 2020 18:22:49 +0000WeHaveAVoiceDr. Bird of the University of Washington speaks about the HDSA Centers of Excellence. Dr. Herwig Lange of the George Huntington Institute of Germany joins the conversation. Topics: What is a Center of Excellence (CoE)? How does a facility become a...3283bdnf,brain,covid-19,disease,dr.bird,dr.lange,global,hdsa,huntington,huntington's,medicine,neruology,psychiatry,radio,science,wehaveafacefalsefullhttps://www.spreaker.com/episode/grandma-has-hd-and-it-s-okay-with-dr-kelsey-finn--39886725https://api.spreaker.com/episode/39886725Tue, 21 Jul 2020 20:07:41 +0000WeHaveAVoiceDr. Kelsey Finn speaks about when to talk to your children about Huntington's Disease and her new children's book.2362grandmahashuntingtonsdisease,huntingtonsdisease,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/hd-jhd-facebook-wish-list-what-s-that-about--30696197https://api.spreaker.com/episode/30696197Sun, 14 Jun 2020 20:05:20 +0000WeHaveAVoiceMarie Blankenshop, Jen Almeida and Crystal Zachary speak out their new Facebook Wish List group2601huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoice,wishlistfalsefullhttps://www.spreaker.com/episode/coping-with-separation-anxiety-during-covid-19-pandemic--26386087https://api.spreaker.com/episode/26386087Thu, 30 Apr 2020 14:01:33 +0000WeHaveAVoiceDr. Susan Potter and Dr. Herwig Lange tackle a serious issue concering separation anxiety during the pandemic.3499anxietydisorder,coronavirus,covid-19,pandemic,sleepingdisorder,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveaface-wehaveavoice-carol-kennedy-president-of-whaf-england-and-wales-hd3-training-program-and-covid-19-discussion--26353410https://api.spreaker.com/episode/26353410Wed, 29 Apr 2020 14:30:19 +0000WeHaveAVoice#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion.3124cdc,cornavirus,covid19,disease,frontline,huntingtonsdisease,medical,nurses,virus,whofalsefullhttps://www.spreaker.com/episode/a-trip-down-memory-lane-with-mary-etta-robertson--25925004https://api.spreaker.com/episode/25925004Thu, 23 Apr 2020 00:39:57 +0000WeHaveAVoiceMary talks with Leanne and Kevin about yesterday and today3646disease,huntington's,maryrobertson,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/german-dr-ansgar-klimke-new-approach-for-hydroxychloroquine-in-aerosol-form-for-covid-19--25497569https://api.spreaker.com/episode/25497569Tue, 14 Apr 2020 17:46:01 +0000WeHaveAVoice#WeHaveAVoice Radio! German Doctor: Dr. Ansgar Klimke - New approach for hydroxychloroquine in aerosol form for #COVID19 #Coronavirus #Spreaker #CDC #WHO2528cnn,covid19,germany,hydroxychloroquine,msnbs,pandemic,treatmentfalsefullhttps://www.spreaker.com/episode/wehaveavoice-discussing-the-coronavirus-covid-19--24109416https://api.spreaker.com/episode/24109416Fri, 20 Mar 2020 22:13:55 +0000WeHaveAVoice#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDisease3318cdc,coronavirus,covid19,disease,hdsa,pandemic,research,virus,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/cherry-chism-when-you-leave-the-roche-clinical-trial--24066747https://api.spreaker.com/episode/24066747Thu, 19 Mar 2020 20:30:02 +0000WeHaveAVoiceCherry Chism talks about her husband leaving the Roche Trial2648clinicaltrials,huntingtonsdisease,rochepharmaceuticals,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/louise-vetter-president-and-ceo-of-hdsa-hd-trial-finder--23833587https://api.spreaker.com/episode/23833587Mon, 16 Mar 2020 14:37:42 +0000WeHaveAVoiceLouise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder. We must broaden awareness of studies and trials for our Huntington's disease population.2414chdi,cure,hdsa,huntingtonsdisease,research,science,studies,treatments,trialsfalsefullhttps://www.spreaker.com/episode/dr-peg-nopoulos-kidshd-change-hd--23803883https://api.spreaker.com/episode/23803883Thu, 12 Mar 2020 22:30:13 +0000WeHaveAVoiceDr. Peg talks about the ChAND-HD trial.2116chand-hd,huntington'sdisease,universityofiowa,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/jonathan-monkemeyer-rare-disease-day--23765653https://api.spreaker.com/episode/23765653Thu, 12 Mar 2020 03:10:20 +0000WeHaveAVoiceJonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHD3207falsefullhttps://www.spreaker.com/episode/james-valvano-new-horizons-after-2020--23648727https://api.spreaker.com/episode/23648727Sun, 08 Mar 2020 21:36:14 +0000WeHaveAVoiceWeHaveAFace founder, James Valvano talks about his upcoming retirement and the future of WeHaveAFace.4138huntingtonsdisease,jamesvalvano,juvenilehuntingtonsdisease,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/jimmy-pollard-of-chdi-hd-education-on-a-global-scale--23566170https://api.spreaker.com/episode/23566170Sat, 07 Mar 2020 18:01:55 +0000WeHaveAVoiceJimmy Pollard talks about his experiences and imparts lessons to apply to HD caregiving.3501huntingtonsdisease,jimmypollard,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/gene-veritas-chdi-therapeutics-conference--23482698https://api.spreaker.com/episode/23482698Thu, 05 Mar 2020 17:45:18 +0000WeHaveAVoiceGene Veritas talks about his recent attendance at the CHDI Therapeutics Conference.3228chdi,geneveritas,huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/karen-marais-hd-in-south-africa--23434829https://api.spreaker.com/episode/23434829Tue, 03 Mar 2020 18:30:21 +0000WeHaveAVoiceKaren Marais talks about her relationship with her partner Chris who has Huntington's Disease3514huntingtonsdisease,juvenilehuntingtonsdisease,southafrica,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/advocating-in-suicide-prevention-and-other-topics-with-sarah-warehime-and-dr-herwig-lange--21558937https://api.spreaker.com/episode/21558937Sat, 11 Jan 2020 00:35:14 +0000WeHaveAVoiceLeanne and Kevin speak with Sarah Warehime, a beginner as a suicide prevention advocate and Dr. Herwig Lange. We talk about a range of topics including suicide prevention and how to get involved.3455huntingtonsdisease,juvenilehuntingtonsdisease,suicide,suicideprevention,wehaveafacefalsefullhttps://www.spreaker.com/episode/a-caregivers-experience-with-behaviorial-issues-with-huntington-s-disease--21153759https://api.spreaker.com/episode/21153759Sun, 29 Dec 2019 03:45:09 +0000WeHaveAVoice"Kay" talks about her relationship with her best friend who has Huntington's Disease and how her mood swings are affecting important decisions she has to make.3462huntington'sdisease,moodswings,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/diamonds-on-the-water--20025582https://api.spreaker.com/episode/20025582Thu, 14 Nov 2019 12:30:19 +0000WeHaveAVoiceKevin Jess reads an excerpt from his novel that is still in progress.544huntingtonsdisease,jhd,novel,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/one-woman-s-experience-with-testing-for-huntington-s-disease--19488855https://api.spreaker.com/episode/19488855Sun, 13 Oct 2019 19:00:05 +0000WeHaveAVoiceKevin Jess talks with his daughter about her recent experience with testing for Huntington's Disease4223genetictesting,huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/2019-convention-and-event-update--19254232https://api.spreaker.com/episode/19254232Fri, 27 Sep 2019 08:10:13 +0000WeHaveAVoiceOur panel of speakers for our Convention in November, 2019239huntingtonsdisease,juvenilehungtingtonsdisease,wehaveafaceconvention,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/james-valvano-talks-with-kevin-about-his-climb-in-scotland--18942533https://api.spreaker.com/episode/18942533Wed, 28 Aug 2019 22:20:11 +0000WeHaveAVoiceJames Valvano speaks with Kevin about his mountain climb at Ben Nevis, Scotland and a talk about future shows.4203bennevis,huntingtonsdisease,juvenilehuntingtonsdisease,scotland,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/juvenile-huntington-s-disease-a-story-of-friendship--18767298https://api.spreaker.com/episode/18767298Thu, 08 Aug 2019 21:30:03 +0000WeHaveAVoiceKevin speaks with Rebecca Bratt, Erin Wade's best friend2854huntingtonsdisease,juvenilehuntingtonsdisease,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/walk-for-a-cure--18708608https://api.spreaker.com/episode/18708608Fri, 02 Aug 2019 18:20:16 +0000WeHaveAVoiceKevin and Leanne speak with Cindy Moore, President of WeHaveAFace Canada2122huntingtonsdisease,radio,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/episode-104-milestones--18349597https://api.spreaker.com/episode/18349597Sun, 23 Jun 2019 02:06:20 +0000WeHaveAVoiceKevin Jess talks about milestones1264huntingtonsdisease,milestonesfalsefullhttps://www.spreaker.com/episode/wehaveaface-with-special-guest-james-valvano--17781138https://api.spreaker.com/episode/17781138Mon, 29 Apr 2019 20:40:13 +0000WeHaveAVoiceKevin and James talk about events and issues of the day relating to HD advocacy and upcoming events2911huntingtonsdisease,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/the-case-for-repurposing-existing-drugs-for-the-fight-against-huntington-s-disease--17757201https://api.spreaker.com/episode/17757201Fri, 26 Apr 2019 23:00:18 +0000WeHaveAVoiceJonathan Monkemeyer talks with Kevin Jess and Leanne Delong3904huntingtonsdisease,jonathanmonkemeyer,methyleneblue,repurposingdrugsfalsefullhttps://www.spreaker.com/episode/huntington-s-disease-awareness-month-the-port-pub-and-bistro--17708760https://api.spreaker.com/episode/17708760Mon, 22 Apr 2019 02:00:03 +0000WeHaveAVoiceSpotlight on Huntington's Disease Awareness month initiatives for the month of May337huntingtonsdisease,ladiesnight,theportpubandbistrofalsefullhttps://www.spreaker.com/episode/wehaveavoice-radio-show-updates--17423877https://api.spreaker.com/episode/17423877Sun, 24 Mar 2019 16:45:15 +0000WeHaveAVoiceWeHaveAVoice Radio Show Updates422huntingtonsdisease,juvenilehuntingtonsdisease,wehaveafacefalsefullhttps://www.spreaker.com/episode/wehaveaface-news-and-events-teva-update--17274131https://api.spreaker.com/episode/17274131Sat, 09 Mar 2019 18:55:12 +0000WeHaveAVoiceWeHaveaFace news and updates concerning fundraising events from around the world as well as TEVA Pharmaceutical grant updates.420fundraising,huntingtonsdisease,jhd,tevapharmaceuticals,wehaveafacefalsefullhttps://www.spreaker.com/episode/difficulties-with-hd-testing--17253893https://api.spreaker.com/episode/17253893Fri, 08 Mar 2019 00:00:13 +0000WeHaveAVoiceLeanne Delong interviews Kevin Jess in regards to his son being tested for HD3010genetictesting,huntingtonsdisease,wehaveavoicefalsefullhttps://www.spreaker.com/episode/james-valvano-climbing-mountains-for-huntington-s-disease--17203737https://api.spreaker.com/episode/17203737Sat, 02 Mar 2019 19:02:56 +0000WeHaveAVoiceJames Valvano speaks candidly with Kevin about his journey to climb mountains for Huntington's Disease2832huntingtonsdisease,iheartradio,wehaveaface,wehaveavoiceradiofalsefullhttps://www.spreaker.com/episode/how-and-when-to-talk-to-your-children-about-huntington-s-disease--17161035https://api.spreaker.com/episode/17161035Sat, 02 Mar 2019 00:00:04 +0000WeHaveAVoiceKevin and Leanne talk with Dr. Bonnie Hennig-Trestman, Leaha Mattinson and Dr. Herwig Lange about the importance of knowing when and how to talk to your children about Huntington’s Disease offering important strategies for best outcomes.2888disease,huntington’s,wehaveafacefalsefullhttps://www.spreaker.com/episode/baby-shaming-in-the-huntington-s-disease-community--17111442https://api.spreaker.com/episode/17111442Fri, 22 Feb 2019 16:30:14 +0000WeHaveAVoice1975babyshaming,cag,huntingtonsdisease,wehaveafacefalsefullhttps://www.spreaker.com/episode/moving-beyond-body-limits-and-the-quickest-way-to-wellness--17069787https://api.spreaker.com/episode/17069787Sun, 17 Feb 2019 22:59:44 +0000WeHaveAVoice2901huntingtonsdisease,leaha,mattinson,wehaveaface,wehaveavoicefalsefullhttps://www.spreaker.com/episode/james-valvano-addresses-hd-jhd-community-about-2019--17036210https://api.spreaker.com/episode/17036210Fri, 15 Feb 2019 18:00:11 +0000WeHaveAVoiceFounder of WeHaveAFace.org, James Valvano Addresses HD/JHD Community about 2019.741huntingtonsdisease,iheartradio,juvenilehuntingtonsdisease,nonprofitfalsefullhttps://www.spreaker.com/episode/a-new-host-for-2019-kevin-jess-vp-of-whaf-canada--16764569https://api.spreaker.com/episode/16764569Mon, 21 Jan 2019 15:05:18 +0000WeHaveAVoiceA couple of announcements to our community.229disease,huntingtons,wehaveafacefalsefullhttps://www.spreaker.com/episode/wehaveaface-international-events-update--15787042https://api.spreaker.com/episode/15787042Sun, 23 Sep 2018 14:09:59 +0000WeHaveAVoice243falsefullhttps://www.spreaker.com/episode/wehaveavoice-suicide-in-huntington-s-disease--15547188https://api.spreaker.com/episode/15547188Wed, 22 Aug 2018 18:59:49 +0000WeHaveAVoice3577wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveavoice-with-leaha-mattinson--14641689
She developed her own wellness protocol to halt the onset of the disease by focusing on nutrition, exercise, restorative sleep, mindfulness, and a pervasive sense of reverence for life. But the most crucial attribute of Leaha’s success is her mindset: She embraces passion, happiness, and possibility, and turns all negativity into positive life experiences. She attributes her work ethic and values to the example set by her beloved parents and a childhood growing up on a farm where she was immersed in the rhythms of nature.

Her mission is to share these valuable insights with others. As a thought coach, she guides her clients toward self-improvement by helping them resolve underlying fears, interrupt bad habits, and break through barriers in order to achieve their goals. She is also a speaker, addressing topics such as facing chronic or terminal illness, finding the Wellness Within yourself, stress management, finding courage, discovering purpose and living in uncertainty.

Leaha is a wellness advocate, she hosts the Leaha Mattinson Show and Master Your Life with Cohost Dr. Howard Rankin on Internet radio, which reaches a global audience. They are aimed at people who are passionate about overcoming obstacles, wellness, personal growth, and self-improvement—those who are eager to bring real change to the way they live and find meaning in a world that’s often brutally stressful and disconnected.

Silver Linings: How to Be Unstoppable in the Face of a Terminal Illness is Leaha’s first book. It’s companion guide Silver Linings Course Correction Guide: Your Nurturing Journey Starts Here takes the reader further into self-discovery and wellness through their own deep contemplation.

She is a mother and grandmother who lives in Alberta, Canada. To learn more about Leaha, visit her website LeahaMattinson.com]]>https://api.spreaker.com/episode/14641689Thu, 26 Apr 2018 17:46:49 +0000WeHaveAVoiceLeaha Mattinson is a change management specialist, life coach, speaker, and author who “walks her talk” in a truly extraordinary way. In 2008 she learned she would someday inherit Huntington’s disease, a genetic, neurological, terminal illness that...
She developed her own wellness protocol to halt the onset of the disease by focusing on nutrition, exercise, restorative sleep, mindfulness, and a pervasive sense of reverence for life. But the most crucial attribute of Leaha’s success is her mindset: She embraces passion, happiness, and possibility, and turns all negativity into positive life experiences. She attributes her work ethic and values to the example set by her beloved parents and a childhood growing up on a farm where she was immersed in the rhythms of nature.

Her mission is to share these valuable insights with others. As a thought coach, she guides her clients toward self-improvement by helping them resolve underlying fears, interrupt bad habits, and break through barriers in order to achieve their goals. She is also a speaker, addressing topics such as facing chronic or terminal illness, finding the Wellness Within yourself, stress management, finding courage, discovering purpose and living in uncertainty.

Leaha is a wellness advocate, she hosts the Leaha Mattinson Show and Master Your Life with Cohost Dr. Howard Rankin on Internet radio, which reaches a global audience. They are aimed at people who are passionate about overcoming obstacles, wellness, personal growth, and self-improvement—those who are eager to bring real change to the way they live and find meaning in a world that’s often brutally stressful and disconnected.

Silver Linings: How to Be Unstoppable in the Face of a Terminal Illness is Leaha’s first book. It’s companion guide Silver Linings Course Correction Guide: Your Nurturing Journey Starts Here takes the reader further into self-discovery and wellness through their own deep contemplation.

She is a mother and grandmother who lives in Alberta, Canada. To learn more about Leaha, visit her website LeahaMattinson.com]]>2483health,huntingtonsdisease,lifecoach,wellnessfalsefullhttps://www.spreaker.com/episode/wehaveavoice-radio-poetry-project--14485269https://api.spreaker.com/episode/14485269Sun, 08 Apr 2018 13:15:39 +0000WeHaveAVoiceListen to #HuntingtonsDisease patient, John Howard as he reads his poetry. @iHeartRadio @Spreaker490falsefullhttps://www.spreaker.com/episode/wehaveaface-wehaveavoice-event-updates-filmfestival-documentary--14341334https://api.spreaker.com/episode/14341334Tue, 20 Mar 2018 17:34:13 +0000WeHaveAVoice236falsefullhttps://www.spreaker.com/episode/wehaveavoice-join-the-new-poetry-project--14118796https://api.spreaker.com/episode/14118796Thu, 22 Feb 2018 18:23:18 +0000WeHaveAVoiceLet your voice and poem be heard!174huntingtonsdisease,@iheartradio,@spreaker,wehaveavoice,youarelovedfalsefullhttps://www.spreaker.com/episode/wehaveavoice-wehaveaface-canada-live--14070849https://api.spreaker.com/episode/14070849Fri, 16 Feb 2018 20:00:38 +0000WeHaveAVoiceCindy Moore and Kevin Jess3800@iheartradio,@spreaker,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveaface-canada-introducing-dr-susan-potter--13599175https://api.spreaker.com/episode/13599175Fri, 15 Dec 2017 21:36:11 +0000WeHaveAVoice#HuntingtonsDisease @iHeartRadio @Spreaker1915falsefullhttps://www.spreaker.com/episode/wehaveavoice-live-update-ionis-httrx-hope-for-huntington-s-disease--13575261https://api.spreaker.com/episode/13575261Wed, 13 Dec 2017 17:26:30 +0000WeHaveAVoice259@hdbuzzfeed,huntingtonsdisease,@ionispharma,wehaveavoicefalsefullhttps://www.spreaker.com/episode/introducing-wehaveaface-mexico--13454228https://api.spreaker.com/episode/13454228Tue, 28 Nov 2017 15:45:21 +0000WeHaveAVoiceBrenda Vega and Daniel Medina join me to discuss #WeHaveAFace #Mexico3583falsefullhttps://www.spreaker.com/episode/wehaveavoice-cindy-moore-listen-to-erin-wade-s-story--13245201https://api.spreaker.com/episode/13245201Sat, 04 Nov 2017 19:23:13 +0000WeHaveAVoice#JuvenileHuntingtonsDisease #FeedingTube2062huntingtonsdisease,junvenile,neurological,terminal-illness,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveavoice-with-carol-kennedy-hd3-training-program--13228691https://api.spreaker.com/episode/13228691Thu, 02 Nov 2017 18:43:36 +0000WeHaveAVoice1330falsefullhttps://www.spreaker.com/episode/wehaveavoice-update-help4hd-org-2017-symposium--13106097https://api.spreaker.com/episode/13106097Mon, 23 Oct 2017 16:25:16 +0000WeHaveAVoiceWhat's all the HIPE about? Listen in!370huntingtonsdisease,iheartradio,wehaveafacefalsefullhttps://www.spreaker.com/episode/huntington-s-disease-assistance-fund-hurricane-irma--12768386https://api.spreaker.com/episode/12768386Sun, 10 Sep 2017 19:39:42 +0000WeHaveAVoice133huntingtonsdisease,hurricaneirmafalsefullhttps://www.spreaker.com/episode/live-wehaveavoice--12699539https://api.spreaker.com/episode/12699539Thu, 31 Aug 2017 23:10:22 +0000WeHaveAVoice3117falsefullhttps://www.spreaker.com/episode/wehaveaface-in-the-uk-and-germany-thepurpleroad--12363908https://api.spreaker.com/episode/12363908Sun, 16 Jul 2017 10:21:20 +0000WeHaveAVoiceWeHaveAFace.org/ThePurpleRoad130documentary,juvenilehuntingtonsdisease,thepurpleroad,wehaveafacefalsefullhttps://www.spreaker.com/episode/live-help4hd-president-katie-jackson-talks-about-key-webinar--12288995https://api.spreaker.com/episode/12288995Wed, 05 Jul 2017 17:59:57 +0000WeHaveAVoice1830huntingtonsdisease,keyfalsefullhttps://www.spreaker.com/episode/live-show-katiejackson-help4hd-7-5-17--12273806https://api.spreaker.com/episode/12273806Mon, 03 Jul 2017 15:17:00 +0000WeHaveAVoice159huntingtonsdisease,key,webinarfalsefullhttps://www.spreaker.com/episode/wehaveavoice-michael-greene-from-greene-s-quality-construction-of-jacksonville--12243773https://api.spreaker.com/episode/12243773Thu, 29 Jun 2017 17:36:19 +0000WeHaveAVoice1264charity,golf,huntingtonsdisease,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveavoice-radio-news-updates--12226187https://api.spreaker.com/episode/12226187Tue, 27 Jun 2017 16:34:52 +0000WeHaveAVoice724huntingtonsdisease,news,updates,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveaface-upcoming-events-huntingtonsdisease--12175316https://api.spreaker.com/episode/12175316Wed, 21 Jun 2017 15:46:45 +0000WeHaveAVoice135huntingtonsdisease,juvenilehuntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/wehaveaface-2nd-annual-convention-june-10th-cporlandouniv--12041408https://api.spreaker.com/episode/12041408Mon, 05 Jun 2017 20:57:28 +0000WeHaveAVoice196huntingtonsdisease,wehaveafacefalsefullhttps://www.spreaker.com/episode/wehaveavoice-live-update-huntingtonsdisease-awareness-month--11952508https://api.spreaker.com/episode/11952508Thu, 25 May 2017 14:46:06 +0000WeHaveAVoice469huntingtonsdisease,@iheartradio,@spreaker,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveavoice-blue-and-purple-poetry-publication--11842962https://api.spreaker.com/episode/11842962Thu, 11 May 2017 17:28:12 +0000WeHaveAVoice122huntingtonsdisease,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveavoice-live-update-huntingtonsg--11818814https://api.spreaker.com/episode/11818814Mon, 08 May 2017 16:24:28 +0000WeHaveAVoice160huntingtonsdisease,iheartradio,wehaveavoicefalsefullhttps://www.spreaker.com/episode/wehaveavoice-live-with-heather-hare-huntington-study-group--11793724https://api.spreaker.com/episode/11793724Thu, 04 May 2017 23:00:11 +0000WeHaveAVoice3695@huntingtonsg,wehaveavoicefalsefullhttps://www.spreaker.com/episode/may-is-hd-jhd-awareness-month-wehaveaface-live-update--11759164https://api.spreaker.com/episode/11759164Mon, 01 May 2017 15:26:41 +0000WeHaveAVoiceMay is HD/JHD Awareness Month! Listen to this LIVE update and stay connected!252huntingtonsdisease,iheartradio,wehaveafacefalsefullhttps://www.spreaker.com/episode/hd-care-improvement-project-huntingtonsdisease-survey-huntingtonsg--11741150https://goo.gl/k9W0Rx]]>https://api.spreaker.com/episode/11741150Fri, 28 Apr 2017 18:24:16 +0000WeHaveAVoiceFollow the link to the survey! We need your help! 👉https://goo.gl/k9W0Rxhttps://goo.gl/k9W0Rx]]>133huntingtonsdiseasefalsefullhttps://www.spreaker.com/episode/dr-herwig-lange-wendet-sich-an-unsere-patienten-and-familien--11732498https://api.spreaker.com/episode/11732498Thu, 27 Apr 2017 17:03:33 +0000WeHaveAVoiceUnser Beratender Arzt Dr. Herwig Lange wendet sich an unsere Patienten und Familien in deutscher Sprache. Es ist wichtig, dass unsere Leidensgenossen an WeHaveAVoice-Radio teilnehmen. Wir sind nicht allein. Wir werden Sie wissen lassen, wenn Dr....197community,deutsch,germany,huntington'sfalsefullhttps://www.spreaker.com/episode/wehaveaface-canada-meet-the-team--11676227https://api.spreaker.com/episode/11676227Thu, 20 Apr 2017 23:00:13 +0000WeHaveAVoiceWeHaveAFace.org has grown substantially over the last year. We are proud to have nonprofit organizations in the USA, Canada, and the United Kingdom. Tonight, we will talk to with the team of WeHaveAFace Canada!2652canada,disease,huntington's,nonprofitfalsefullhttps://www.spreaker.com/episode/live-update-wehaveaface-canada-publications--11623919https://api.spreaker.com/episode/11623919Thu, 13 Apr 2017 15:18:15 +0000WeHaveAVoiceA short LIVE update: WeHaveAFace.org Canada, "Blue and Purple" - Poetry Project, and the "WeHaveAFace" Magazine!178brain,communiy,huntington's,poetryfalsefullhttps://www.spreaker.com/episode/hsg-dr-frank-discusses-teva-s-new-drug-austedo-treatment-of-chorea-in-huntington-s-disease--11571328https://api.spreaker.com/episode/11571328Thu, 06 Apr 2017 22:59:52 +0000WeHaveAVoiceTonight Dr. Samuel Frank of the Huntington Study Group (HSG) discusses TEVA's new drug - AUSTEDO for the treatment of chorea in Huntington's disease. There will be questions from the community! #YouAreLoved2473austedo,community,disease,tevafalsefullhttps://www.spreaker.com/episode/live-update-teva-pharmaceuticals-released-hd-drug--11553159https://api.spreaker.com/episode/11553159Tue, 04 Apr 2017 18:00:52 +0000WeHaveAVoice#WeHaveAVoice LIVE Updated! LIVE UPDATE! TEVA Pharmaceuticals released HD Drug! Poetry Project - Volume 2! 2nd Annual WeHaveAFace Convention!166drug,huntington's,poetry,tevafalsefullhttps://www.spreaker.com/episode/live-show-dr-lange-talks-about-hd-webinar--11516703https://api.spreaker.com/episode/11516703Thu, 30 Mar 2017 16:39:45 +0000WeHaveAVoiceStay tuned for the Genefo HD Webinar which will take place on April 6, 2017 with our very own Dr. Herwig Lange of the George Huntington Institute!2209brain,diseas,huntington's,webinarfalsefullhttps://www.spreaker.com/episode/live-update-from-costa-mesa-california--11467375https://api.spreaker.com/episode/11467375Fri, 24 Mar 2017 01:49:05 +0000WeHaveAVoice#WeHaveAFace travels to California - editing "The Warriors" the Juvenile Huntington's Disease documentary.245california,communty,documentary,jhdfalsefullhttps://www.spreaker.com/episode/update-from-sacramento--11406201https://api.spreaker.com/episode/11406201Thu, 16 Mar 2017 23:17:07 +0000WeHaveAVoice35falsefullhttps://www.spreaker.com/episode/wehaveavoice-live-dental-care-and-hd-jhd--11347691https://api.spreaker.com/episode/11347691Thu, 09 Mar 2017 20:00:09 +0000WeHaveAVoiceToday Dr. Herwig Lange of the George Huntington Institute will be answering questions about dental care and HD/JHD. We thank Dr. Lange for his ongoing support!2541care,community,dental,huntington'sfalsefullhttps://www.spreaker.com/episode/cannabis-oils-can-they-help-patients-with-huntington-s-and-juvenile-huntington-s-disease--10677220https://api.spreaker.com/episode/10677220Fri, 10 Feb 2017 00:00:09 +0000WeHaveAVoice#WeHaveAVoice LIVE Radio! Tonight: Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt discuss their children's experiences using cannabis oils for Juvenile Huntington's Disease.4516brain,cannabis,medicinal,neurologicalfalsefullhttps://www.spreaker.com/episode/let-s-talk-about-cannabis-oils-cindy-moore-and-traci-pratt--10582381Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt!
We will hear from these amazing JHD Mothers and the miracle of Cannabis Oils which have helped their children! Stay tuned and join the conversation! #YouAreLoved]]>https://api.spreaker.com/episode/10582381Mon, 06 Feb 2017 22:18:07 +0000WeHaveAVoiceWeHaveAVoice - Thursday, February 9, 2017! Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt! We will hear from these amazing JHD Mothers and the miracle of Cannabis Oils which have helped their children! Stay tuned and join the...Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt!
We will hear from these amazing JHD Mothers and the miracle of Cannabis Oils which have helped their children! Stay tuned and join the conversation! #YouAreLoved]]>131brain,cannabis,oils,treatmentsfalsefullhttps://www.spreaker.com/episode/listen-to-dr-herwig-lange-discussion-about-cag--10343719https://api.spreaker.com/episode/10343719Thu, 19 Jan 2017 21:47:27 +0000WeHaveAVoiceWeHaveAVoice Radio with Dr. Herwig Lange from the George Huntington Institute in Germany! Dr. Lange has agreed to join us to discuss the topic of CAG.3344brain,cag,huntington,neurologyfalsefullhttps://www.spreaker.com/episode/wehaveavoice-behavior-with-huntington-s-and-juvenile-huntington-s-disease-with-dr-herwig-lange-from-germany--10017254https://api.spreaker.com/episode/10017254Fri, 02 Dec 2016 00:00:06 +0000WeHaveAVoice#WeHaveAFVoice - Tonight's LIVE show will discuss "Behavior with Huntington's and Juvenile Huntington's Disease" with our great panel of guests! Tonight's topics: Aggression, Anxiety, and Altered Sexuality with HD and JHD!4004aggression,anxiety,huntington's,sexualityfalsefullhttps://www.spreaker.com/episode/live-update-brockville-ontario-canada-jhd-bowling-tournament-on-november-11-2016--9682274https://api.spreaker.com/episode/9682274Thu, 20 Oct 2016 19:46:31 +0000WeHaveAVoiceTonight Cindy Moore joins us from Brockville, Ontario Canada to give us an update on the upcoming JHD Bowling Tournament on November 11, 2016. We look forward to another amazing event with our friends in Canada! Stay Tuned!397bowling,canada,charity,huntingtonsfalsefullhttps://www.spreaker.com/episode/hurricane-matthew-live-update-saint-cloud-florida--9588935https://api.spreaker.com/episode/9588935Fri, 07 Oct 2016 17:08:00 +0000WeHaveAVoiceHurricane Matthew is slowly making its way up the coast! We are coming to you LIVE from Saint Cloud, Florida! James Valvano and Mary Etta Robertson.198community,huntington's,hurricane matthew,neurologyfalsefullhttps://www.spreaker.com/episode/live-update-hd-jhd-community-events--9554640https://api.spreaker.com/episode/9554640Mon, 03 Oct 2016 14:39:20 +0000WeHaveAVoiceOn Thursday, October 6th, we will have another LIVE Broadcast regarding HD/JHD events within the community! Stay tuned...we will be discussing events here in the USA, and in England! #YouAreLoved232community,england,events,huntington'sfalsefullhttps://www.spreaker.com/episode/families-torn-apart-by-huntington-s-and-juvenile-huntingtn-s-disease-live-radio-broadcast--9527894https://api.spreaker.com/episode/9527894Thu, 29 Sep 2016 23:00:10 +0000WeHaveAVoice#WeHaveAVoice" Radio: Families torn apart by HD/JHD" - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar. #YouAreLoved5102community,family,huntington's,socialfalsefullhttps://www.spreaker.com/episode/all-about-cag-live-with-dr-herwig-lange-from-the-george-huntington-institute-of-germany--9218235https://api.spreaker.com/episode/9218235Thu, 18 Aug 2016 23:00:05 +0000WeHaveAVoice"All About CAG" - LIVE with Dr. Herwig Lange from The George Huntington Institute of Germany! This is a much needed conversation regarding a true negative and a positive test result for Huntington's and Juvenile Huntington's disease. The discussion...3341cag,disease,huntington,researchfalsefullhttps://www.spreaker.com/episode/brockville-ontario-canadian-jhd-walk-live-with-dr-kyle-fink-and-dr-jan-nolta-of-uc-davis-california--9144580Tonight we celebrate the 1st Canadian walk for Juvenile Huntington's Disease! We are LIVE with Cindy Moore, Erin Moore, Dr. Kyle Fink, and Dr. Jan Nolta! Fundraiser Show! #YouAreLoved]]>https://api.spreaker.com/episode/9144580Sun, 07 Aug 2016 22:00:38 +0000WeHaveAVoiceLIVE from Brockville, Ontario Canada! Tonight we celebrate the 1st Canadian walk for Juvenile Huntington's Disease! We are LIVE with Cindy Moore, Erin Moore, Dr. Kyle Fink, and Dr. Jan Nolta! Fundraiser Show! #YouAreLovedTonight we celebrate the 1st Canadian walk for Juvenile Huntington's Disease! We are LIVE with Cindy Moore, Erin Moore, Dr. Kyle Fink, and Dr. Jan Nolta! Fundraiser Show! #YouAreLoved]]>871dna,huntington's,research,stemcell,ucdavisfalsefullhttps://www.spreaker.com/episode/hd-jhd-awareness-events-live-update--9072187www.WeHaveAFace.org/Events]]>https://api.spreaker.com/episode/9072187Wed, 27 Jul 2016 18:59:11 +0000WeHaveAVoiceWeHaveAFace.org Global HUBS - Awareness events for Huntingotn's and Juvenile Huntington's disease! Today we are updating the community regarding some wonderful events we have scheduled for August and October 2016! For additional information:...www.WeHaveAFace.org/Events]]>1332community,disease,events,huntington'sfalsefullhttps://www.spreaker.com/episode/community-address-for-john-valvano--9022971https://api.spreaker.com/episode/9022971Wed, 20 Jul 2016 14:16:47 +0000WeHaveAVoiceOur brother John gained his Huntington’s wings on July 17, 2016 and became an HD Angel. On behalf of my entire family, we thank you from the bottom of our hearts for your love, support, and strength during this time. It is impossible to reply to all...245advocacy,community,family,lovefalsefullhttps://www.spreaker.com/episode/home-healthcare-nursing-home-care-and-sexuality-in-huntington-s-disease--8148111https://api.spreaker.com/episode/8148111Thu, 31 Mar 2016 23:00:06 +0000WeHaveAVoiceTonight's show we will discuss home healthcare, nursing home care, and sexuality in Huntington's disease. Our guests: Mary Etta Robertson, Sarah Parker Foster, and Marie Clay. Sensitive subject matter is important to discuss to further educate our...6102disease,huntingtons,medical,sex,stemcellfalsefullhttps://www.spreaker.com/episode/home-healthcare-nursing-homes-sexuality-and-huntington-s-disease--8130317https://api.spreaker.com/episode/8130317Tue, 29 Mar 2016 18:16:14 +0000WeHaveAVoiceLIVE this Thursday night at 7PM (EST) with special guests - Mary Etta Robertson, Sarah Parker Foster, and Marie Salvaggio Clay! Topics: Home Healthcare / Nursing Care, and Sexuality and Huntington's disease! As will all of our shows, WeHaveAVoice...294brain,disease,healthcare,huntington's,nursingfalsefullhttps://www.spreaker.com/episode/no-time-to-spare-1st-community-bowling-tournament-for-huntington-s-and-juvenile-huntington-s-disease--7989496https://api.spreaker.com/episode/7989496Sat, 12 Mar 2016 20:13:48 +0000WeHaveAVoiceLIVE from: "No Time To Spare!" WeHaveAVoice - 1st Community Bowling Tournament for Huntington's and Juvenile Huntington's Disease! Orange Bowl Lanes in Kissimmee, Florida! Engaging the Huntington's disease community is part of our mission!138advocacy,awareness,community,fundraising,nonprofitfalsefullhttps://www.spreaker.com/episode/mary-robertson-speaks-from-the-heart-caring-for-her-husband-paul-who-had-huntington-s-disease--7972332https://api.spreaker.com/episode/7972332Fri, 11 Mar 2016 00:00:16 +0000WeHaveAVoiceMarch 10, 2016 7PM (EST): Special guest Mary Etta Robertson from North Carolina! Mary has been a loving wife and caregiver of her husband Paul Robertson for over fifteen years. Paul gained his Huntington's wings recently, and we will hear Mary's...4029brain,caregiving,community,disease,huntington'sfalsefullhttps://www.spreaker.com/episode/special-show-with-mary-etta-robertson-love-and-care-for-huntington-s-disease--7933556https://api.spreaker.com/episode/7933556Sat, 05 Mar 2016 19:24:03 +0000WeHaveAVoiceOn March 10th at 7PM (EST), we will air our first LIVE show. The incredible Mary Etta Robertson (from North Carolina) will be our first guest of the year. Mary will share her inspirational story of love...strength...and hope with our Huntington's...139advocacy,disease,huntington,neurology,supportfalsefull