http://www.hug-podcastnetwork.com
With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.

Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that reside within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.

Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>enMedicine©Hearts Unite the Globehttps://d3wo5wojvuv7l.cloudfront.net/t_rss_itunes_square_1400/images.spreaker.com/original/97304551b212fb784723812157ef799f.jpghttp://www.hug-podcastnetwork.comSun, 28 Dec 2025 07:14:02 +0000Anna JaworskiAnna Jaworskianna@hearttoheartwithanna.comRevitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners for years. Join us as we dive deep into the personal...
With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.

Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that reside within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.

Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>falseepisodicSupport the podcast!https://www.spreaker.com/episode/a-parent-s-guide-to-chd-neurodevelopment-and-resilience--69226068 (00:00:50) Heartfelt Holiday Wishes and Personal Announcement
(00:02:34) CHD News: Neurodevelopment and Congenital Heart Disease
(00:04:28) Introducing Dr. Dawn Ilardi
(00:05:54) Dr. Ilardi's Work with the Adult CHD Community
(00:07:23) Challenges and Variability in CHD
(00:08:28) Parenting Kids with CHD: New Online Program
(00:12:41) The Importance of Family-Centered Care
(00:15:20) Supporting Parents and Families
(00:33:59) The Power of Resilience and Love
(00:41:03) Conclusion and Farewell

What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families thrive. From prenatal influences on cognition and behavior to the protective force of stable routines and responsive parenting, we translate research into practical moves you can make this week.

We explore why CHD outcomes are shaped long before surgery and how heterogeneity makes each child unique, yet still able to benefit from adapted tools used in the general population. Dr. Ilardi explains how family factors—predictable structure, warm communication, and realistic challenges—can buffer stress and build resilience. We also address the quiet weight of medical trauma for parents and teens, outlining small, affordable supports like gratitude journaling, micro‑breaks, and CHD‑savvy counseling, alongside the healing power of honest community.

You’ll also hear about a new resource: Parenting Kids with CHD, an on‑demand library of short videos and monthly live Q&A designed to bridge the gap between science and everyday life. Topics range from ADHD meds and evaluation paths to tackling anxiety, early language delays, and transition to adult care. As Anna announces a writing hiatus, we highlight where to find archives and why the broader HUG network continues to amplify CHD stories and support.

Subscribe for more conversations that blend empathy and evidence. If this episode helped you feel seen—or gave you one concrete tool to try—share it with a friend, leave a review, and tell us the next question you want answered.

Dr. Ilardi’s other episodes:

Season 1: What is Normal Child Development in Children with Complex CHD? https://www.buzzsprout.com/62761/episodes/852321

Season 19: Unlocking Neurodevelopmental Breakthroughs: Impact of CHDs and Parental Influence https://www.buzzsprout.com/62761/episodes/15872291

Season 20: When Hearts and Minds Unite: Navigating Neurodevelopment in CHD https://www.buzzsprout.com/62761/episodes/16895529

Dr. Ilardi’s blog: https://pedneurocenter.com/author/dilardi/

Join the waitlist for the Parenting Kids with CHD: https://pedneurocenter.com/parenting-kids-with-chd/

The news article I mentioned at the top of the episode (Neurodevelopment in Congenital Heart Disease: A Review of Antenatal Mechanisms and Therapeutic Potentials): https://www.nature.com/articles/s41390-025-04360-y

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/69226068Sun, 28 Dec 2025 07:12:35 +0000Anna JaworskiWhat if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the... (00:00:50) Heartfelt Holiday Wishes and Personal Announcement
(00:02:34) CHD News: Neurodevelopment and Congenital Heart Disease
(00:04:28) Introducing Dr. Dawn Ilardi
(00:05:54) Dr. Ilardi's Work with the Adult CHD Community
(00:07:23) Challenges and Variability in CHD
(00:08:28) Parenting Kids with CHD: New Online Program
(00:12:41) The Importance of Family-Centered Care
(00:15:20) Supporting Parents and Families
(00:33:59) The Power of Resilience and Love
(00:41:03) Conclusion and Farewell

What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families thrive. From prenatal influences on cognition and behavior to the protective force of stable routines and responsive parenting, we translate research into practical moves you can make this week.

We explore why CHD outcomes are shaped long before surgery and how heterogeneity makes each child unique, yet still able to benefit from adapted tools used in the general population. Dr. Ilardi explains how family factors—predictable structure, warm communication, and realistic challenges—can buffer stress and build resilience. We also address the quiet weight of medical trauma for parents and teens, outlining small, affordable supports like gratitude journaling, micro‑breaks, and CHD‑savvy counseling, alongside the healing power of honest community.

You’ll also hear about a new resource: Parenting Kids with CHD, an on‑demand library of short videos and monthly live Q&A designed to bridge the gap between science and everyday life. Topics range from ADHD meds and evaluation paths to tackling anxiety, early language delays, and transition to adult care. As Anna announces a writing hiatus, we highlight where to find archives and why the broader HUG network continues to amplify CHD stories and support.

Subscribe for more conversations that blend empathy and evidence. If this episode helped you feel seen—or gave you one concrete tool to try—share it with a friend, leave a review, and tell us the next question you want answered.

Dr. Ilardi’s other episodes:

Season 1: What is Normal Child Development in Children with Complex CHD? https://www.buzzsprout.com/62761/episodes/852321

Season 19: Unlocking Neurodevelopmental Breakthroughs: Impact of CHDs and Parental Influence https://www.buzzsprout.com/62761/episodes/15872291

Season 20: When Hearts and Minds Unite: Navigating Neurodevelopment in CHD https://www.buzzsprout.com/62761/episodes/16895529

Dr. Ilardi’s blog: https://pedneurocenter.com/author/dilardi/

Join the waitlist for the Parenting Kids with CHD: https://pedneurocenter.com/parenting-kids-with-chd/

The news article I mentioned at the top of the episode (Neurodevelopment in Congenital Heart Disease: A Review of Antenatal Mechanisms and Therapeutic Potentials): https://www.nature.com/articles/s41390-025-04360-y

Become a supporter of this podcast: 2559false20476fullhttps://www.spreaker.com/episode/connecting-hearts-the-science-and-stories-of-congenital-heart-innovation--68814592 (00:00:24) Welcome and Personal Reflections
(00:01:31) November Adventures and Connections
(00:04:35) CHD News: Groundbreaking Genome Sequencing Study
(00:06:28) Interview with Nanotechnology Pioneer Tom Webster
(00:09:02) Exploring Nanotechnology in Medicine
(00:18:28) Combining Stem Cells and Nanotechnology
(00:28:30) Preventing Infections with Nanotechnology
(00:37:06) Future of Heart Health: Sensors and Innovations
(00:41:27) Conclusion and Final Reflections

A month of movement—across states, across continents, and across ideas—shapes this episode of Heart to Heart with Anna, where personal connection meets the frontiers of heart medicine. We begin with gratitude, travel, and family updates, then explore two breakthroughs shaping the future of congenital heart care: a major open-access study using whole-genome sequencing to forecast outcomes after CHD surgery, and nanotechnology that turns everyday implants into infection-resistant, tissue-regenerating tools. 

CHD News Article Referenced:
“Genome sequencing is critical for forecasting outcomes following congenital cardiac surgery,” published in Nature Communications (open-access).
🔗 https://www.nature.com/articles/s41467-025-61625-0

Our guest, Tom Webster, has spent more than two decades showing that the tiniest details can change everything. By adding nanoscale textures to already-approved implant materials, his teams have helped more than 30,000 patients—without a single reported implant failure. Tom explains how these nanostructured surfaces reduce infection without antibiotics, encourage heart and vascular tissue to heal, and speed up regulatory approval by keeping the chemistry the same while transforming the surface.

Together, we explore cardiac patches that act like “Band-Aids for the heart,” vascular stents that resist clotting, and lessons learned from nature’s own antibacterial designs. We also talk about emerging strategies that combine nanomaterials with stem cells—guiding differentiation without drugs and anchoring cells exactly where the body needs repair. And we look ahead to implantable nanosensors that may one day send real-time data straight to your phone, giving families and clinicians a continuous picture of heart health far beyond today’s occasional lab tests.

If you’re curious how genetics, materials science, and continuous monitoring could personalize heart care for people living with CHD, this is the episode for you. Press play, share it with someone who needs hope grounded in evidence, and subscribe for more conversations like this. If this episode moved you, please leave a review and let us know which ideas you’d like us to explore next.

Have a question for Tom?
He welcomes inquiries from listeners who are curious about nanotechnology, innovation, and heart health. Please send your question to Anna@HeartToHeartWithAnna.com, and I will be happy to pass it along to him.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/68814592Mon, 01 Dec 2025 09:07:34 +0000Anna JaworskiA month of movement—across states, across continents, and across ideas—shapes this episode of Heart to Heart with Anna, where personal connection meets the frontiers of heart medicine. We begin with gratitude, travel, and family updates, then explore... (00:00:24) Welcome and Personal Reflections
(00:01:31) November Adventures and Connections
(00:04:35) CHD News: Groundbreaking Genome Sequencing Study
(00:06:28) Interview with Nanotechnology Pioneer Tom Webster
(00:09:02) Exploring Nanotechnology in Medicine
(00:18:28) Combining Stem Cells and Nanotechnology
(00:28:30) Preventing Infections with Nanotechnology
(00:37:06) Future of Heart Health: Sensors and Innovations
(00:41:27) Conclusion and Final Reflections

A month of movement—across states, across continents, and across ideas—shapes this episode of Heart to Heart with Anna, where personal connection meets the frontiers of heart medicine. We begin with gratitude, travel, and family updates, then explore two breakthroughs shaping the future of congenital heart care: a major open-access study using whole-genome sequencing to forecast outcomes after CHD surgery, and nanotechnology that turns everyday implants into infection-resistant, tissue-regenerating tools. 

CHD News Article Referenced:
“Genome sequencing is critical for forecasting outcomes following congenital cardiac surgery,” published in Nature Communications (open-access).
🔗 https://www.nature.com/articles/s41467-025-61625-0

Our guest, Tom Webster, has spent more than two decades showing that the tiniest details can change everything. By adding nanoscale textures to already-approved implant materials, his teams have helped more than 30,000 patients—without a single reported implant failure. Tom explains how these nanostructured surfaces reduce infection without antibiotics, encourage heart and vascular tissue to heal, and speed up regulatory approval by keeping the chemistry the same while transforming the surface.

Together, we explore cardiac patches that act like “Band-Aids for the heart,” vascular stents that resist clotting, and lessons learned from nature’s own antibacterial designs. We also talk about emerging strategies that combine nanomaterials with stem cells—guiding differentiation without drugs and anchoring cells exactly where the body needs repair. And we look ahead to implantable nanosensors that may one day send real-time data straight to your phone, giving families and clinicians a continuous picture of heart health far beyond today’s occasional lab tests.

If you’re curious how genetics, materials science, and continuous monitoring could personalize heart care for people living with CHD, this is the episode for you. Press play, share it with someone who needs hope grounded in evidence, and subscribe for more conversations like this. If this episode moved you, please leave a review and let us know which ideas you’d like us to explore next.

Have a question for Tom?
He welcomes inquiries from listeners who are curious about nanotechnology, innovation, and heart health. Please send your question to Anna@HeartToHeartWithAnna.com, and I will be happy to pass it along to him.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2587anna_jaworski,artificial_heart_development,cardiac_patches,chd_family_stories,chd_research,congenital_cardiac_surgery,congenital_heart_community,congenital_heart_defects,genetic_testing,genome_sequencing,heart_health_technology,heart_innovation,medical_breakthroughs,medical_nanomaterials,nanotechnology,pediatric_cardiology,podcast,science_and_heart_health,stem_cell_therapy,tom_websterfalse20487fullhttps://www.spreaker.com/episode/ecmo-to-ironman-elmar-sprink-s-story-about-life-after-heart-transplant--68471803 (00:02:14) Anna's Story and Season Reflections
(00:05:29) Creativity, Crocheting, And New Books
(00:06:43) SV-ONE Conference And Inclusion Plans
(00:07:46) Patron Thanks And Disclaimers

(00:09:53) Meet Elmar Sprink
(00:12:26) Collapse, Diagnosis, And Transplant Path
(00:15:42) Learning To Move Again

(00:18:21) Training Safely Post-Transplant
(00:20:26) Medications And Health Management
(00:24:05) Mindset, Routine, And Resilience
(00:28:18) Purpose And Organ Donation Advocacy
(00:31:09) Gratitude, Perspective, And Small Joys

(00:33:14) Goals: Qualifying For Kona
(00:38:57) Conclusion and Final Thoughts

What does it take to learn to sit again, then stand, then chase the horizon at the Ironman World Championship? We sit down with endurance athlete and keynote speaker Elmar Sprink to trace the steps from sudden cardiac arrest and seven months on ECMO to a disciplined, data‑driven comeback fueled by routine, empathy, and stubborn hope. Elmar opens up about the invisible work of recovery—why he treated hospital life like a training plan, how a visitor spreadsheet kept his spirits up, and the role therapy and humor played when the outcome was uncertain.

We unpack the nuts and bolts of training after a heart transplant: threshold testing to set safe zones, the difference denervated hearts can make to heart rate response, and why indoor cycling and carefully staged swim returns protect against infection while rebuilding fitness. Elmar explains how steady training lowered his blood pressure and reduced medications, and he shares the small, daily wins—like a perfect cappuccino—that kept his motivation alive. Along the way, he reflects on gratitude for his unknown donor and the ritual of honoring that gift at every finish line.


Anna also spotlights creative sparks and community momentum: new children’s stories in the Living with CHD series that portray everyday family life with honesty, plus highlights from the SV-ONE conference where scientists, clinicians, and advocates collaborate for single ventricle care. We share upcoming inclusion goals, from an ASL episode to a new German episode featuring Elmar, and we talk candidly about organ donation advocacy—what messaging moves people, and how real stories can shift culture and save lives.

If you’re navigating CHD, recovery, or any long road back, this conversation offers a clear playbook: start small, be consistent, protect your body, lean on your people, and celebrate the quiet victories. Subscribe, share this episode with someone who needs a lift, and leave a review with your biggest takeaway—we’d love to hear what small win you’re chasing this week.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/68471803Sat, 08 Nov 2025 17:00:08 +0000Anna JaworskiWhat does it take to learn to sit again, then stand, then chase the horizon at the Ironman World Championship? We sit down with endurance athlete and keynote speaker Elmar Sprink to trace the steps from sudden cardiac arrest and seven months on ECMO... (00:02:14) Anna's Story and Season Reflections
(00:05:29) Creativity, Crocheting, And New Books
(00:06:43) SV-ONE Conference And Inclusion Plans
(00:07:46) Patron Thanks And Disclaimers

(00:09:53) Meet Elmar Sprink
(00:12:26) Collapse, Diagnosis, And Transplant Path
(00:15:42) Learning To Move Again

(00:18:21) Training Safely Post-Transplant
(00:20:26) Medications And Health Management
(00:24:05) Mindset, Routine, And Resilience
(00:28:18) Purpose And Organ Donation Advocacy
(00:31:09) Gratitude, Perspective, And Small Joys

(00:33:14) Goals: Qualifying For Kona
(00:38:57) Conclusion and Final Thoughts

What does it take to learn to sit again, then stand, then chase the horizon at the Ironman World Championship? We sit down with endurance athlete and keynote speaker Elmar Sprink to trace the steps from sudden cardiac arrest and seven months on ECMO to a disciplined, data‑driven comeback fueled by routine, empathy, and stubborn hope. Elmar opens up about the invisible work of recovery—why he treated hospital life like a training plan, how a visitor spreadsheet kept his spirits up, and the role therapy and humor played when the outcome was uncertain.

We unpack the nuts and bolts of training after a heart transplant: threshold testing to set safe zones, the difference denervated hearts can make to heart rate response, and why indoor cycling and carefully staged swim returns protect against infection while rebuilding fitness. Elmar explains how steady training lowered his blood pressure and reduced medications, and he shares the small, daily wins—like a perfect cappuccino—that kept his motivation alive. Along the way, he reflects on gratitude for his unknown donor and the ritual of honoring that gift at every finish line.


Anna also spotlights creative sparks and community momentum: new children’s stories in the Living with CHD series that portray everyday family life with honesty, plus highlights from the SV-ONE conference where scientists, clinicians, and advocates collaborate for single ventricle care. We share upcoming inclusion goals, from an ASL episode to a new German episode featuring Elmar, and we talk candidly about organ donation advocacy—what messaging moves people, and how real stories can shift culture and save lives.

If you’re navigating CHD, recovery, or any long road back, this conversation offers a clear playbook: start small, be consistent, protect your body, lean on your people, and celebrate the quiet victories. Subscribe, share this episode with someone who needs a lift, and leave a review with your biggest takeaway—we’d love to hear what small win you’re chasing this week.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2443anna_jaworski,cardiac_transplant,ecmo,elmar_sprink,endurance_athlete,fitness_challenges,fitness_transformation,heart_transplant,injury_recovery,ironman,marathon_training,mental_resilience,overcoming_obstacles,podcastfalse20486fullhttps://www.spreaker.com/episode/from-antidepressants-to-arrhythmias-a-candid-guide-to-drug-induced-long-qt--68223058
• Red Hat Society join and conference highlights
• Down syndrome and CHD awareness link
• Upcoming Zoom listening session details
• Live recording on transition and life stages
• Ayrton’s diagnosis of drug‑induced Long QT
• Warning signs during exercise and daily walks
• Role of wearables in spotting heart‑rate thresholds
• Tapering off venlafaxine and mental health impact
• Switching to citalopram and ongoing vigilance
• Triggers to avoid including sudden noises and swimming
• Practical safety tips including hydration and potassium
• Advocacy advice and seeking second opinions
• Remembering Edward and hidden electrical disorders

Join us on November 25th, 2025 at 4 p.m. Central Time for a Zoom listening event to hear Ellen Boyer’s episode "Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects.” Here is the Zoom link:  https://tinyurl.com/HUGZoomRoom

Patrons, meet us on October 30th at 4 p.m. Central Time for our live recording on "Transition and Life Changes." Here is the Zoom link: https://tinyurl.com/HUGZoomRoom

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/68223058Tue, 21 Oct 2025 06:25:40 +0000Anna JaworskiWe share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The...
• Red Hat Society join and conference highlights
• Down syndrome and CHD awareness link
• Upcoming Zoom listening session details
• Live recording on transition and life stages
• Ayrton’s diagnosis of drug‑induced Long QT
• Warning signs during exercise and daily walks
• Role of wearables in spotting heart‑rate thresholds
• Tapering off venlafaxine and mental health impact
• Switching to citalopram and ongoing vigilance
• Triggers to avoid including sudden noises and swimming
• Practical safety tips including hydration and potassium
• Advocacy advice and seeking second opinions
• Remembering Edward and hidden electrical disorders

Join us on November 25th, 2025 at 4 p.m. Central Time for a Zoom listening event to hear Ellen Boyer’s episode "Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects.” Here is the Zoom link:  https://tinyurl.com/HUGZoomRoom

Patrons, meet us on October 30th at 4 p.m. Central Time for our live recording on "Transition and Life Changes." Here is the Zoom link: https://tinyurl.com/HUGZoomRoom

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2165anna_jaworski,antidepressants,arrhythmias,ayrton_beatty,bradycardia,citalopram,drug-induced_long_q-t_syndrome,fitbit,genetics,heart_to_heart_with_anna,loud_noises,potassium,sudden_cardiac_arrest,sudden_cardiac_death,venlafaxine,warning_flagsfalse20485fullhttps://www.spreaker.com/episode/chd-connects-hearts-a-grandmother-s-mission-to-unite-us-all--67913812
Our conversation pulls back the curtain on the rarely discussed perspective of grandparents in the CHD journey. Christy's raw honesty about her emotional response – moving from shock to protection, anger to fear – reveals the complex ripple effects when a heart diagnosis enters a family. When COVID restrictions prevented her from being present for Hunter's birth or even meeting him until he faced a life-threatening cardiac arrest at two months old, Christy's determination only grew stronger.

The isolation heart families experience emerged as a central theme in our discussion. As Christy watched her daughter retreat from social gatherings to protect Hunter between surgeries, she recognized a hard truth many relatives miss: this isolation isn't a choice but a survival strategy. "This isn't 'I don't want them to get a cold,'" Christy explains. "This is life and death." Her passionate plea for extended family to keep inviting, even when the answer is consistently "no," offers valuable perspective for anyone supporting heart families.

But what makes this conversation truly special is how personal trauma transforms into purpose. After years of searching for resources to help her daughter and grandson, Christy grew frustrated with the scattered nature of CHD support. Rather than starting another foundation, she's created something revolutionary: CHD Connects Hearts, a distraction-free ecosystem bringing together patients, families, organizations, and researchers in one private community without the noise of advertising or algorithms.

Whether you're a heart parent, grandparent, or supporter, this episode offers both emotional validation and practical hope. As Christy reveals her vision for united progress in the CHD world, you'll be inspired to consider how connection might be our most powerful medicine.

Link to CHD Connects Hearts: https://chdconnectshearts.com/home

Anna's Blog: https://www.heartsunitetheglobe.com/hug-blog/moving-beyond-facebook-joining-forces-with-chd-connects-hearts

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/67913812Fri, 26 Sep 2025 22:00:07 +0000Anna JaworskiWhat happens when a grandmother's love collides with a broken system? When Christy Pace's grandson Hunter was diagnosed with Hypoplastic Left Heart Syndrome before birth, she found herself thrust into an unexpected role – not just as a supportive...
Our conversation pulls back the curtain on the rarely discussed perspective of grandparents in the CHD journey. Christy's raw honesty about her emotional response – moving from shock to protection, anger to fear – reveals the complex ripple effects when a heart diagnosis enters a family. When COVID restrictions prevented her from being present for Hunter's birth or even meeting him until he faced a life-threatening cardiac arrest at two months old, Christy's determination only grew stronger.

The isolation heart families experience emerged as a central theme in our discussion. As Christy watched her daughter retreat from social gatherings to protect Hunter between surgeries, she recognized a hard truth many relatives miss: this isolation isn't a choice but a survival strategy. "This isn't 'I don't want them to get a cold,'" Christy explains. "This is life and death." Her passionate plea for extended family to keep inviting, even when the answer is consistently "no," offers valuable perspective for anyone supporting heart families.

But what makes this conversation truly special is how personal trauma transforms into purpose. After years of searching for resources to help her daughter and grandson, Christy grew frustrated with the scattered nature of CHD support. Rather than starting another foundation, she's created something revolutionary: CHD Connects Hearts, a distraction-free ecosystem bringing together patients, families, organizations, and researchers in one private community without the noise of advertising or algorithms.

Whether you're a heart parent, grandparent, or supporter, this episode offers both emotional validation and practical hope. As Christy reveals her vision for united progress in the CHD world, you'll be inspired to consider how connection might be our most powerful medicine.

Link to CHD Connects Hearts: https://chdconnectshearts.com/home

Anna's Blog: https://www.heartsunitetheglobe.com/hug-blog/moving-beyond-facebook-joining-forces-with-chd-connects-hearts

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2784advocacy,anna_jaworski,cardiac_arrest_survivor,chd_community,chd_connects_hearts,chd_isolation,chd_online_support_group,chd_resources,christy,congenital_heart_defects,grandparent_advocacy,hlhs,hypoplastic_left_heart_syndrom,open-heart_surgery,pace,pediatric_heart_surgery,podcastfalse20484fullhttps://www.spreaker.com/episode/half-a-heart-whole-stories-steven-hutchison-jessica-cowin-and-more--67696728 
Diagnosed at two weeks old, Steven underwent staged surgeries including the Glenn and Fontan procedures, and now lives with Fontan-associated liver disease, one of the long-term complications that requires careful monitoring. But his story is about more than medical milestones. Steven shares how living on the same street as his parents and brother has created a strong support system, how he explains his condition to his children with honesty and hope, and how his faith and outlook shape the way he moves through life.

From two 12-hour ablations to participating in groundbreaking research with HeartWorks, Steven’s resilience continues to inspire. His message to parents of newly diagnosed HLHS babies is simple but powerful: there is so much more possibility today than when he was born.

Steven’s story is a reminder that people born with congenital heart disease can build meaningful lives filled with purpose, family, and joy—not despite their condition, but alongside it.

Links to events mentioned in this episode:

Link to register for FON-ONE: https://web.cvent.com/event/80f0addb-25c0-4d87-9cb1-99931b9062db/summary

CNOC Scientific Session: https://cardiacneuro.org/scientific-sessions/

HeartWorks: https://heartworksinc.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/67696728Wed, 10 Sep 2025 16:00:09 +0000Anna JaworskiSteven Hutchison has defied expectations his entire life. Born with hypoplastic left heart syndrome (HLHS) nearly four decades ago, he is now a 38-year-old husband, father of three, and full-time worker who approaches each day with remarkable... 
Diagnosed at two weeks old, Steven underwent staged surgeries including the Glenn and Fontan procedures, and now lives with Fontan-associated liver disease, one of the long-term complications that requires careful monitoring. But his story is about more than medical milestones. Steven shares how living on the same street as his parents and brother has created a strong support system, how he explains his condition to his children with honesty and hope, and how his faith and outlook shape the way he moves through life.

From two 12-hour ablations to participating in groundbreaking research with HeartWorks, Steven’s resilience continues to inspire. His message to parents of newly diagnosed HLHS babies is simple but powerful: there is so much more possibility today than when he was born.

Steven’s story is a reminder that people born with congenital heart disease can build meaningful lives filled with purpose, family, and joy—not despite their condition, but alongside it.

Links to events mentioned in this episode:

Link to register for FON-ONE: https://web.cvent.com/event/80f0addb-25c0-4d87-9cb1-99931b9062db/summary

CNOC Scientific Session: https://cardiacneuro.org/scientific-sessions/

HeartWorks: https://heartworksinc.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2840anna_jaworski,chd_family_support,cnoc,congenital_heart_defects,fald,fontan_associated_liver_diseas,fontan_circulation,fontan_procedure,glenn_procedure,half_a_heart,heart_transplant,heart_warrior,heartworks,hlhs,hypoplastic_left_heart_syndrom,jessica_cowin,parenting_with_chronic_illness,podcast,single_ventricle,steven_hutchisonfalse20483fullhttps://www.spreaker.com/episode/voices-of-strength-tyler-sajdak-s-hlhs-journey-and-advocacy-in-the-chd-community--67537290
"I've been told by people that just by looking at me, they wouldn't know that I had a heart defect," Tyler shares during our conversation. This invisibility is both a blessing and a challenge for the growing population of adult CHD survivors who must navigate a healthcare system still learning how to treat them.

Tyler's involvement with Single Ventricle One (SV1) - the recently unified organization combining pre-Fontan and post-Fontan networks - puts him at the forefront of efforts to improve care for adults with complex heart conditions. "I think my role is making sure the other planners are thinking of how the adults can be served as well," he explains, describing how medical conferences historically focused primarily on pediatric care.

Our conversation delves into deeply personal territory as Tyler recounts his experience with vocal cord paralysis following surgery and the profound moment when his grandfather, after suffering a stroke, heard Tyler speak with a full voice for the first time shortly before passing away. We also discuss his recent transplant evaluation, where doctors delivered some surprising news.

For anyone living with CHD or caring for someone with a heart defect, Tyler's story offers both practical guidance and emotional resonance. From balancing health concerns with career ambitions, to finding community with others who share similar experiences, he demonstrates how adults with congenital heart conditions can thrive while helping shape a medical field still discovering what lifelong care looks like for this first generation of survivors.

Connect with the SV1 community through their upcoming patient day in Indianapolis this October - whether you're a patient seeking connection, a parent looking toward your child's future, or a medical professional committed to advancing care standards for this unique population.

Helpful Links mentioned during this episode:

Boston Children's Hospital Single Ventricle Family Day at the New England Aquarium: https://ow.ly/omax50WAN8A

Kristi Pena’s episode about Barth Syndrome: https://www.buzzsprout.com/62761/episodes/398916

Link to register for SV-One Fall 2025: https://www.svone.org/events/fall-2025-learning-session

Link to "The Heart of a Heart Warrior" book series on Baby Hearts Press. Tyler's essay is in Volume One: Survival: https://babyheartspress.myshopify.com/products/the-heart-of-a-heart-warrior-volume-1

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/67537290Thu, 28 Aug 2025 16:00:08 +0000Anna JaworskiTyler Šajdák wasn't supposed to grow up. Born with hypoplastic left heart syndrome in 1993, he was part of a generation receiving experimental surgeries with uncertain outcomes. Today, at 31, he works as an academic advisor, pursues a master's degree,...
"I've been told by people that just by looking at me, they wouldn't know that I had a heart defect," Tyler shares during our conversation. This invisibility is both a blessing and a challenge for the growing population of adult CHD survivors who must navigate a healthcare system still learning how to treat them.

Tyler's involvement with Single Ventricle One (SV1) - the recently unified organization combining pre-Fontan and post-Fontan networks - puts him at the forefront of efforts to improve care for adults with complex heart conditions. "I think my role is making sure the other planners are thinking of how the adults can be served as well," he explains, describing how medical conferences historically focused primarily on pediatric care.

Our conversation delves into deeply personal territory as Tyler recounts his experience with vocal cord paralysis following surgery and the profound moment when his grandfather, after suffering a stroke, heard Tyler speak with a full voice for the first time shortly before passing away. We also discuss his recent transplant evaluation, where doctors delivered some surprising news.

For anyone living with CHD or caring for someone with a heart defect, Tyler's story offers both practical guidance and emotional resonance. From balancing health concerns with career ambitions, to finding community with others who share similar experiences, he demonstrates how adults with congenital heart conditions can thrive while helping shape a medical field still discovering what lifelong care looks like for this first generation of survivors.

Connect with the SV1 community through their upcoming patient day in Indianapolis this October - whether you're a patient seeking connection, a parent looking toward your child's future, or a medical professional committed to advancing care standards for this unique population.

Helpful Links mentioned during this episode:

Boston Children's Hospital Single Ventricle Family Day at the New England Aquarium: https://ow.ly/omax50WAN8A

Kristi Pena’s episode about Barth Syndrome: https://www.buzzsprout.com/62761/episodes/398916

Link to register for SV-One Fall 2025: https://www.svone.org/events/fall-2025-learning-session

Link to "The Heart of a Heart Warrior" book series on Baby Hearts Press. Tyler's essay is in Volume One: Survival: https://babyheartspress.myshopify.com/products/the-heart-of-a-heart-warrior-volume-1

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2752adults_with_chds,anna_jaworski,chronic_health_conditions,congenital_heart_defects,hlhs,hypoplastic_left_heart_syndrom,overcoming_obstacles,podcast,single_ventricle_conference,sv-one,tyler_šajdák,vocal_cord_paralysisfalse20475fullhttps://www.spreaker.com/episode/creating-change-the-heart-behind-embers-of-love--67211948
Haley shares the raw truth of those early days—the quiet car ride home after receiving concerning news at her 41-week ultrasound, being flown from Winnipeg to Edmonton for emergency treatment just days after Emberly's birth, and the month spent in a hotel across from the children's hospital. Her story captures both the inherent isolation of receiving a CHD diagnosis and the profound community support that emerged to sustain them.

The name "Embers of Love" came from a touching observation made during Emberly's hospital stay—that this tiny baby somehow "spreads embers of love to everyone she meets." What began with handmade keychains and candles has blossomed into a significant advocacy organization that's participated in over 35 initiatives since 2023. From donating sound machines to the NICU to organizing craft kits for Heart Camp campers, Haley shows how personal experience can transform into meaningful community action.

Most moving is Haley's reflection on how Amberlee has become "the flame to our family fire," completely shifting their perspective on what matters in life. Her story reminds us that even in our most vulnerable moments, we can find purpose, create lasting change, and spread those precious embers of love to others walking similar paths.

Ready to get involved in supporting the CHD community? Visit www.heartsunitetheglobe.com to learn how you can join our volunteer team and make a difference in the lives of heart warriors and their families.

Links:

Embers of Love: https://www.embersoflove.ca/

World’s smallest pacemaker story: https://tinyurl.com/TinyPmaker

Fascinating article about the history of the Taussig-Bing Anomaly: https://pmc.ncbi.nlm.nih.gov/articles/PMC2801930/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/67211948Fri, 01 Aug 2025 05:11:06 +0000Anna JaworskiWhat happens when a tiny heart warrior inspires a movement of love and advocacy? In this powerful conversation, I sit down with Haley Graham, whose daughter Emberly Dawn was born with multiple heart defects, including a rare Taussig-Bing anomaly....
Haley shares the raw truth of those early days—the quiet car ride home after receiving concerning news at her 41-week ultrasound, being flown from Winnipeg to Edmonton for emergency treatment just days after Emberly's birth, and the month spent in a hotel across from the children's hospital. Her story captures both the inherent isolation of receiving a CHD diagnosis and the profound community support that emerged to sustain them.

The name "Embers of Love" came from a touching observation made during Emberly's hospital stay—that this tiny baby somehow "spreads embers of love to everyone she meets." What began with handmade keychains and candles has blossomed into a significant advocacy organization that's participated in over 35 initiatives since 2023. From donating sound machines to the NICU to organizing craft kits for Heart Camp campers, Haley shows how personal experience can transform into meaningful community action.

Most moving is Haley's reflection on how Amberlee has become "the flame to our family fire," completely shifting their perspective on what matters in life. Her story reminds us that even in our most vulnerable moments, we can find purpose, create lasting change, and spread those precious embers of love to others walking similar paths.

Ready to get involved in supporting the CHD community? Visit www.heartsunitetheglobe.com to learn how you can join our volunteer team and make a difference in the lives of heart warriors and their families.

Links:

Embers of Love: https://www.embersoflove.ca/

World’s smallest pacemaker story: https://tinyurl.com/TinyPmaker

Fascinating article about the history of the Taussig-Bing Anomaly: https://pmc.ncbi.nlm.nih.gov/articles/PMC2801930/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2766anna_jaworski,canada,congenital_heart_defects,edmonton,embers_of_love,haley_graham,manitoba,open-heart_surgery,pacemaker,podcast,podcast_movement_2025,prenatal_diagnosis,taussig-bing_anomalyfalse20481fullhttps://www.spreaker.com/episode/from-cape-town-to-courage-navigating-chd-in-south-africa--67184578
Candice's journey began when her son Riley was diagnosed with Tetralogy of Fallot shortly after birth—despite monthly ultrasounds during pregnancy that detected nothing wrong. Through three open-heart surgeries and the constant waiting for a fourth, Candice discovered strength she never knew she had. "Despite whatever you are going through," she shares, "you and your family and your kid with heart disease, you are still there for the next heart parent."

The striking differences between CHD care in South Africa versus more developed nations become clear as Candice describes the waiting game for surgeries, where emergency cases repeatedly push Riley's procedure further down the list. Yet amidst these challenges, something beautiful emerges: a global community of heart families connected by shared experiences that transcend borders.

Perhaps most inspiring is how Riley defied medical expectations. Doctors predicted he would never attend a normal school, yet today he's a top student in his class. Even more remarkable, both Riley and another heart warrior have become advocates themselves, running awareness programs at their school.

This conversation reveals the universal truths of the CHD journey: the fear, the faith that sustains us, and the power of community. As Candice powerfully states, "Your child is my child. Together, we are one." Her words remind us that whether in South Africa or anywhere else in the world, heart families share a profound connection that makes us stronger together.

Links discussed in the episode:

The Cure Gala: https://www.buildingthecure.org/events

Brave Little Hearts South Africa: https://www.facebook.com/BraveLittleHeartsSA

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/67184578Wed, 30 Jul 2025 04:33:38 +0000Anna JaworskiWhat happens when your child needs heart surgery, but the operation keeps getting postponed? How do you navigate a complex healthcare system while still supporting other families going through similar struggles? Candice Swartland takes us deep into...
Candice's journey began when her son Riley was diagnosed with Tetralogy of Fallot shortly after birth—despite monthly ultrasounds during pregnancy that detected nothing wrong. Through three open-heart surgeries and the constant waiting for a fourth, Candice discovered strength she never knew she had. "Despite whatever you are going through," she shares, "you and your family and your kid with heart disease, you are still there for the next heart parent."

The striking differences between CHD care in South Africa versus more developed nations become clear as Candice describes the waiting game for surgeries, where emergency cases repeatedly push Riley's procedure further down the list. Yet amidst these challenges, something beautiful emerges: a global community of heart families connected by shared experiences that transcend borders.

Perhaps most inspiring is how Riley defied medical expectations. Doctors predicted he would never attend a normal school, yet today he's a top student in his class. Even more remarkable, both Riley and another heart warrior have become advocates themselves, running awareness programs at their school.

This conversation reveals the universal truths of the CHD journey: the fear, the faith that sustains us, and the power of community. As Candice powerfully states, "Your child is my child. Together, we are one." Her words remind us that whether in South Africa or anywhere else in the world, heart families share a profound connection that makes us stronger together.

Links discussed in the episode:

The Cure Gala: https://www.buildingthecure.org/events

Brave Little Hearts South Africa: https://www.facebook.com/BraveLittleHeartsSA

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2067advocate,anna_jaworski,brave_little_hearts_south_afri,candice_swartland,cape_town,chd_advocacy,chd_volunteer,congenital_heart_defects,open-heart_surgery,podcast,raadhiyah_matthews,south_africa,tetralogy_of_fallotfalse20480fullhttps://www.spreaker.com/episode/one-voice-united-against-congenital-heart-disease-with-monique-kemp--66815679
From those early days sitting beside her newborn's hospital bed to founding Heart of Hope-Cape Town, Monique shares with raw honesty how she transformed her personal pain into purpose. Her support group, now running for 12 years, fills a critical gap she identified during those long hospital stays – medical staff trained to heal bodies, not necessarily to hold space for parents' emotional trauma.

The conversation takes a dramatic turn when Monique reveals how her maternal instinct potentially saved her son's life. As Daniel entered his teen years, his complaints of pain were repeatedly dismissed as psychological by doctors who had known him since infancy. Only after switching to a new pediatrician did they discover his heart conduit had grown down into his stomach, displacing organs and causing genuine physical distress. This experience highlights a dangerous blind spot in CHD care–the critical transition period between ages 10-21 when patients are most likely to fall through the cracks.

Perhaps most eye-opening is Monique's perspective on global CHD care disparities, comparing attitudes toward heart interventions between North and South India, and advocating passionately for what the CHD community needs most: to become "one voice" as prominent as the condition itself, which remains the number one birth defect worldwide.

Whether you're a heart parent seeking community, a medical professional wanting deeper insight into patient experiences, or simply someone interested in how personal tragedy can transform into powerful advocacy, this conversation will leave you understanding why the CHD journey requires both medical expertise and emotional support that only other heart families can truly provide.Links Mentioned in the Episode:Top 20 Congenital Podcasts: https://podcast.feedspot.com/congenital_disorders_podcastsBaby Hearts Press: https://www.babyheartspress.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/66815679Tue, 01 Jul 2025 04:59:27 +0000Anna JaworskiMonique Kemp's world turned upside down when her unborn son was diagnosed with an interrupted aortic arch at seven months of pregnancy. What followed was a harrowing journey through six open-heart surgeries, months of hospitalization, and the birth of...
From those early days sitting beside her newborn's hospital bed to founding Heart of Hope-Cape Town, Monique shares with raw honesty how she transformed her personal pain into purpose. Her support group, now running for 12 years, fills a critical gap she identified during those long hospital stays – medical staff trained to heal bodies, not necessarily to hold space for parents' emotional trauma.

The conversation takes a dramatic turn when Monique reveals how her maternal instinct potentially saved her son's life. As Daniel entered his teen years, his complaints of pain were repeatedly dismissed as psychological by doctors who had known him since infancy. Only after switching to a new pediatrician did they discover his heart conduit had grown down into his stomach, displacing organs and causing genuine physical distress. This experience highlights a dangerous blind spot in CHD care–the critical transition period between ages 10-21 when patients are most likely to fall through the cracks.

Perhaps most eye-opening is Monique's perspective on global CHD care disparities, comparing attitudes toward heart interventions between North and South India, and advocating passionately for what the CHD community needs most: to become "one voice" as prominent as the condition itself, which remains the number one birth defect worldwide.

Whether you're a heart parent seeking community, a medical professional wanting deeper insight into patient experiences, or simply someone interested in how personal tragedy can transform into powerful advocacy, this conversation will leave you understanding why the CHD journey requires both medical expertise and emotional support that only other heart families can truly provide.Links Mentioned in the Episode:Top 20 Congenital Podcasts: https://podcast.feedspot.com/congenital_disorders_podcastsBaby Hearts Press: https://www.babyheartspress.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2050advocate,cape_town,congenital_heart_defects,heart_mom,heart_of_hope-ct,interrupted_aortic_arch,monique_kemp,open-heart_surgery,podcast,south_africafalse20384fullhttps://www.spreaker.com/episode/building-a-legacy-transforming-chd-care-in-pakistan--66686176 (00:04:41) Introduction and Anne-Marie's Legacy
(00:09:55) Dr. Novick's Global Cardiac Alliance
(00:14:57) Ana's Brother Daniel and His Condition
(00:24:56) The Search for a Heart Transplant
(00:30:41) Creating Heart for Daniel Foundation
(00:35:15) Building Pakistan's First Children's Heart Hospital

From a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change.

When Ana's athletic, academically gifted brother Daniel collapsed unexpectedly at age 15, no one suspected a heart condition. Despite receiving a pacemaker after being diagnosed with cardiomyopathy, Danial passed away at 16 while awaiting a heart transplant in India. This devastating loss became the catalyst for an extraordinary mission.

Together with her father and Farhan Ahmad (who also lost a child to congenital heart disease), Ana founded the Pakistan Children's Heart Foundation with an ambitious vision: to build the country's first specialized cardiac hospital for children. Through innovative fundraising campaigns inspired by Danial's athletic spirit and tireless advocacy, they've now achieved what once seemed impossible.

The Children's Heart Hospital opens in Lahore this April, eliminating the need for Pakistani families to seek expensive treatment abroad. Beyond the physical facility, their "Project by Danial" trains young cardiologists and surgeons specifically in pediatric cardiac care, ensuring sustainable healthcare improvements throughout the country.

Ana's story reminds us of the remarkable resilience of the human spirit. "We are trying to find peace in this world," she reflects. "He had already found his peace." Through their foundation's life-saving work, Danial's legacy touches countless families across Pakistan, transforming one family's grief into hope for an entire nation.

Join our community and discover how you can support organizations like the Pakistan Children's Heart Foundation that are changing the landscape of pediatric cardiac care worldwide.

Link to Global Cardiac Alliance: https://cardiac-alliance.org/

Link to the Heart to Heart with Anna episode featuring Farhan Ahmad: https://www.buzzsprout.com/62761/398968-a-miracle-in-pakistan

Pakistan Children's Heart Foundation (PCHF): https://pchf.org.pk/

Project Danial: https://pchf.org.pk/cause/project-danial/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/66686176Mon, 23 Jun 2025 20:00:08 +0000Anna JaworskiFrom a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change. When Ana's athletic, academically... (00:04:41) Introduction and Anne-Marie's Legacy
(00:09:55) Dr. Novick's Global Cardiac Alliance
(00:14:57) Ana's Brother Daniel and His Condition
(00:24:56) The Search for a Heart Transplant
(00:30:41) Creating Heart for Daniel Foundation
(00:35:15) Building Pakistan's First Children's Heart Hospital

From a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change.

When Ana's athletic, academically gifted brother Daniel collapsed unexpectedly at age 15, no one suspected a heart condition. Despite receiving a pacemaker after being diagnosed with cardiomyopathy, Danial passed away at 16 while awaiting a heart transplant in India. This devastating loss became the catalyst for an extraordinary mission.

Together with her father and Farhan Ahmad (who also lost a child to congenital heart disease), Ana founded the Pakistan Children's Heart Foundation with an ambitious vision: to build the country's first specialized cardiac hospital for children. Through innovative fundraising campaigns inspired by Danial's athletic spirit and tireless advocacy, they've now achieved what once seemed impossible.

The Children's Heart Hospital opens in Lahore this April, eliminating the need for Pakistani families to seek expensive treatment abroad. Beyond the physical facility, their "Project by Danial" trains young cardiologists and surgeons specifically in pediatric cardiac care, ensuring sustainable healthcare improvements throughout the country.

Ana's story reminds us of the remarkable resilience of the human spirit. "We are trying to find peace in this world," she reflects. "He had already found his peace." Through their foundation's life-saving work, Danial's legacy touches countless families across Pakistan, transforming one family's grief into hope for an entire nation.

Join our community and discover how you can support organizations like the Pakistan Children's Heart Foundation that are changing the landscape of pediatric cardiac care worldwide.

Link to Global Cardiac Alliance: https://cardiac-alliance.org/

Link to the Heart to Heart with Anna episode featuring Farhan Ahmad: https://www.buzzsprout.com/62761/398968-a-miracle-in-pakistan

Pakistan Children's Heart Foundation (PCHF): https://pchf.org.pk/

Project Danial: https://pchf.org.pk/cause/project-danial/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2214ana_tanveer_abdullah,cardiomyopathy,congenital_heart_defects,heart_for_danial,legacy,misdiagnosis,ngo,pacemaker,pakistan_children's_heart_foun,pchf,podcastfalse20478fullhttps://www.spreaker.com/episode/no-cure-just-courage-navigating-life-with-congenital-heart-disease--66348233
Born in 1983 with complex CHD in rural Australia, Elle's early years were defined by long journeys to Sydney for medical care. Growing up as the only person with a serious cardiac condition in her small town of Wagga Wagga created an isolating experience—one that shaped her understanding of her own health. The shocking realization at age 21 that her heart disease was not cured but rather a lifelong companion became a turning point in her identity and purpose.

Elle takes us through her remarkable transition from viewing CHD as something to hide to embracing it as part of her story. Her evolution into advocacy work led her to help develop Australia's groundbreaking Standards of Care for Childhood Onset Heart Disease, which includes world-first mental health and neurodevelopmental standards. This unified approach shows how Australia's tight-knit CHD community has created comprehensive care models that focus on whole-person wellness rather than just cardiac function.

The conversation explores fascinating comparisons between Australian and American healthcare systems, drawing from Elle's recent visit to the United States. Her insights reveal how different funding models, advocacy approaches, and support organizations shape patient experiences despite serving the same medical needs. Elle's perspective offers valuable lessons for anyone interested in healthcare policy and patient advocacy.

Most powerfully, Elle describes transforming her medical journey into resources for others. Her book "Your Ultimate Surgery Success Guide" and her platform "Adulting Well" address practical challenges faced by those with chronic conditions—from workplace conversations and financial planning to mental health support. By sharing her expertise on navigating healthcare systems, Elle demonstrates how lived experience becomes a powerful tool for helping others.

Join us for this inspirational conversation about resilience, advocacy, and finding purpose through personal challenge. If you're facing a chronic health condition or supporting someone who is, Elle's wisdom offers both practical guidance and heartfelt encouragement.

Global ARCH’s leadership training opportunity: https://global-arch.org/advocacy-training/ 

Elle’s Book on Amazon: https://www.amazon.com/dp/B0DCV2TCQZ

Elle’s Website: https://www.adultingwell.au/

Elle’s Blog: https://www.adultingwell.au/Blog

Elle’s Instagram: https://www.instagram.com/adultingwell/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/66348233Sat, 31 May 2025 09:39:32 +0000Anna JaworskiWhat happens when you've spent your whole life thinking your heart condition was "fixed," only to discover it's actually a lifelong journey? Elle Pendrick shares this profound revelation that came after her fourth open-heart surgery, forever changing...
Born in 1983 with complex CHD in rural Australia, Elle's early years were defined by long journeys to Sydney for medical care. Growing up as the only person with a serious cardiac condition in her small town of Wagga Wagga created an isolating experience—one that shaped her understanding of her own health. The shocking realization at age 21 that her heart disease was not cured but rather a lifelong companion became a turning point in her identity and purpose.

Elle takes us through her remarkable transition from viewing CHD as something to hide to embracing it as part of her story. Her evolution into advocacy work led her to help develop Australia's groundbreaking Standards of Care for Childhood Onset Heart Disease, which includes world-first mental health and neurodevelopmental standards. This unified approach shows how Australia's tight-knit CHD community has created comprehensive care models that focus on whole-person wellness rather than just cardiac function.

The conversation explores fascinating comparisons between Australian and American healthcare systems, drawing from Elle's recent visit to the United States. Her insights reveal how different funding models, advocacy approaches, and support organizations shape patient experiences despite serving the same medical needs. Elle's perspective offers valuable lessons for anyone interested in healthcare policy and patient advocacy.

Most powerfully, Elle describes transforming her medical journey into resources for others. Her book "Your Ultimate Surgery Success Guide" and her platform "Adulting Well" address practical challenges faced by those with chronic conditions—from workplace conversations and financial planning to mental health support. By sharing her expertise on navigating healthcare systems, Elle demonstrates how lived experience becomes a powerful tool for helping others.

Join us for this inspirational conversation about resilience, advocacy, and finding purpose through personal challenge. If you're facing a chronic health condition or supporting someone who is, Elle's wisdom offers both practical guidance and heartfelt encouragement.

Global ARCH’s leadership training opportunity: https://global-arch.org/advocacy-training/ 

Elle’s Book on Amazon: https://www.amazon.com/dp/B0DCV2TCQZ

Elle’s Website: https://www.adultingwell.au/

Elle’s Blog: https://www.adultingwell.au/Blog

Elle’s Instagram: https://www.instagram.com/adultingwell/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3251adultingwell,author,chronic_illness,congenital_heart_defects,elle_pendrick,fontan_heart,mental_health,mitral_valve,open-heart_surgery,pulmonary_atresia,speakerfalse20477fullhttps://www.spreaker.com/episode/putting-around-for-a-purpose-golf-heart-warriors-and-small-town-magic--66035862 (00:01:59) Anna's Wrist Injury Journey
(00:04:19) Introducing Amy Erhart
(00:05:46) Fundraising for the CHD Community
(00:12:27) Putt Around Kaleida Fundraiser
(00:20:34) Amy's Podcast Journey
(00:26:56) The Power of Shared Stories
(00:34:11) Family Support and Legacy

A broken wrist serves as an unexpected metaphor for the heart warrior's journey in this illuminating conversation with fundraiser and podcaster Amy Earhart. When Anna's recent accident left her with a titanium plate and a new perspective on recovery, it highlighted the resilience that characterizes the CHD community—adapting when our bodies say "enough" and finding creative ways forward.

Amy Erhart brings this resilience to life through her remarkable story. Born with hypoplastic left heart syndrome in 1983, she's channeled her experience into creating meaningful change. Her "Putt Around Kaleida" fundraiser transforms her small hometown into a mini-golf adventure where local businesses design elaborate putting greens—from a smoking firehouse to a church model that's been preserved for generations. What makes this event special goes beyond the $20,000 raised; it's the photos of local CHD children displayed at the town park, creating powerful moments of recognition for families still processing their diagnosis.

The conversation shifts to Amy's podcast journey with "Diaries of a Heart Warrior," where she's published over 30 episodes—far surpassing the six-episode mark where most podcasters abandon their shows. Through these conversations, Amy found the connection she'd been missing: "I didn't know a lot of people with CHD until these last couple years. This is how I'm finally meeting people." These exchanges have brought validation that she's not alone in her complex feelings about life with a congenital heart defect.

Perhaps most meaningful is Amy's approach to fundraising, focusing on direct support for families rather than solely research: heart camps for children, gas money for hospital trips, and hotel accommodations during treatments. It's a philosophy born from understanding that while research is crucial, the day-to-day needs of families navigating CHD require immediate attention.

Have you experienced the power of community support during health challenges? Listen now and discover how small towns and big hearts are creating meaningful change for CHD families everywhere.

Amy Erhart's podcast, "Diaries of a Heart Warrior": https://www.buzzsprout.com/2268461

Anna's CHD Connects Hearts link: https://chdconnectshearts.com/products-list?am_id=annajaworski3819

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/66035862Sun, 11 May 2025 08:00:08 +0000Anna JaworskiA broken wrist serves as an unexpected metaphor for the heart warrior's journey in this illuminating conversation with fundraiser and podcaster Amy Earhart. When Anna's recent accident left her with a titanium plate and a new perspective on recovery,... (00:01:59) Anna's Wrist Injury Journey
(00:04:19) Introducing Amy Erhart
(00:05:46) Fundraising for the CHD Community
(00:12:27) Putt Around Kaleida Fundraiser
(00:20:34) Amy's Podcast Journey
(00:26:56) The Power of Shared Stories
(00:34:11) Family Support and Legacy

A broken wrist serves as an unexpected metaphor for the heart warrior's journey in this illuminating conversation with fundraiser and podcaster Amy Earhart. When Anna's recent accident left her with a titanium plate and a new perspective on recovery, it highlighted the resilience that characterizes the CHD community—adapting when our bodies say "enough" and finding creative ways forward.

Amy Erhart brings this resilience to life through her remarkable story. Born with hypoplastic left heart syndrome in 1983, she's channeled her experience into creating meaningful change. Her "Putt Around Kaleida" fundraiser transforms her small hometown into a mini-golf adventure where local businesses design elaborate putting greens—from a smoking firehouse to a church model that's been preserved for generations. What makes this event special goes beyond the $20,000 raised; it's the photos of local CHD children displayed at the town park, creating powerful moments of recognition for families still processing their diagnosis.

The conversation shifts to Amy's podcast journey with "Diaries of a Heart Warrior," where she's published over 30 episodes—far surpassing the six-episode mark where most podcasters abandon their shows. Through these conversations, Amy found the connection she'd been missing: "I didn't know a lot of people with CHD until these last couple years. This is how I'm finally meeting people." These exchanges have brought validation that she's not alone in her complex feelings about life with a congenital heart defect.

Perhaps most meaningful is Amy's approach to fundraising, focusing on direct support for families rather than solely research: heart camps for children, gas money for hospital trips, and hotel accommodations during treatments. It's a philosophy born from understanding that while research is crucial, the day-to-day needs of families navigating CHD require immediate attention.

Have you experienced the power of community support during health challenges? Listen now and discover how small towns and big hearts are creating meaningful change for CHD families everywhere.

Amy Erhart's podcast, "Diaries of a Heart Warrior": https://www.buzzsprout.com/2268461

Anna's CHD Connects Hearts link: https://chdconnectshearts.com/products-list?am_id=annajaworski3819

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2227amy_erhart,chd,chd_advocate,congenital_heart_defects,diaries_of_a_heart_warrior,fundraiser,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,podcaster,putt_around_kaliedafalse20476fullhttps://www.spreaker.com/episode/marinas-reise-mit-angeborenem-herzfehler--65813372
(Besonderer Dank geht an Jodi Alderfel, die uns in dieser Folge als Gastmoderatorin zur Seite stand.)

In this special German-language episode of 'Heart to Heart with Anna,' Jodi Alderfel speaks with Marina Lohri, who was born with tricuspid atresia, ASD, and VSD and survived a modified Fontan procedure. Marina shares her lifelong journey, from her heart surgery as a baby to her career at atHeart Medical, a company developing devices to treat ASD. The episode also discusses Marina's experience with atrial fibrillation and an ablation in 2018. Marina's personal and professional experiences offer valuable insights for other patients with congenital heart disease and show how she leads a meaningful life through courage and determination.

Here is a link to Marina's episode in English with Anna: https://tinyurl.com/Marina-Lohri

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/65813372Wed, 30 Apr 2025 18:11:00 +0000Anna JaworskiIn dieser speziellen deutschsprachigen Episode von 'Herz zu Herz mit Anna' spricht Jodi Alderfel mit Marina Lohri, die mit Trikuspidalatresie, ASD und VSD geboren wurde und eine modifizierte Fontan-Operation überlebte. Marina teilt ihre lebenslange...
(Besonderer Dank geht an Jodi Alderfel, die uns in dieser Folge als Gastmoderatorin zur Seite stand.)

In this special German-language episode of 'Heart to Heart with Anna,' Jodi Alderfel speaks with Marina Lohri, who was born with tricuspid atresia, ASD, and VSD and survived a modified Fontan procedure. Marina shares her lifelong journey, from her heart surgery as a baby to her career at atHeart Medical, a company developing devices to treat ASD. The episode also discusses Marina's experience with atrial fibrillation and an ablation in 2018. Marina's personal and professional experiences offer valuable insights for other patients with congenital heart disease and show how she leads a meaningful life through courage and determination.

Here is a link to Marina's episode in English with Anna: https://tinyurl.com/Marina-Lohri

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1592angeborener,angeborener_herzfehler,angeborener_herzfehler_und_sch,asd,fontan-herz,fontan-verfahren,herzfehler_bei_erwachsenen,herzkämp,herzpatient,medizinischereise,risikoschwangerschaft,schweiz,ventrikelseptumdefekt,vorhofseptumdefekt,vsdfalse20475fullhttps://www.spreaker.com/episode/when-hearts-and-minds-unite-navigating-neurodevelopment-in-chd--65274797
Dr. Dawn Ilardi, a clinical neuropsychologist with over 16 years of experience in cardiac neurodevelopment, brings clarity to this often-overlooked aspect of heart care. Unlike typical developmental patterns, children with CCHDs may present with scattered strengths and weaknesses that don't fit neatly into standard diagnostic categories. While some may develop recognizable conditions like ADHD, autism, or dyslexia, others show unique profiles that require specialized understanding.

The conversation explores the fascinating heart-brain connection, revealing how brain development begins simultaneously with heart formation during fetal development. Structural heart defects can affect blood flow patterns to the developing brain, while surgical interventions carry risks of small strokes or other brain injuries. For parents wondering why their child struggles with handwriting, speech delays, or learning difficulties despite excellent medical care, this discussion provides crucial insights.

Particularly compelling is the discussion about balancing protection with developmental progress. How do you navigate the tension between keeping a medically fragile child safe while ensuring they develop age-appropriate skills and independence? Dr. Ilardi offers practical strategies for finding this balance, emphasizing the importance of creating a supportive "village" around both the child and parents.

Whether you're a parent, medical professional, or educator working with heart warriors, this profound conversation will transform your understanding of the developmental journey these remarkable children face. Most importantly, you'll discover pathways to help them reach their full potential through multisensory learning approaches, compensatory strategies, and family-centered support.

Helpful Links:

Christy Pace's CHD Connects Hearts: https://chdconnectshearts.com/home

Dawn Ilardi's other Heart to Heart with Anna Appearances:

Unlocking Neurodevelopmental Breakthroughs: Impact of CHDs and Parental Influence https://www.buzzsprout.com/62761/episodes/15872291

What is Normal Child Development in Children with Complex Congenital Heart Defects? https://tinyurl.com/DawnIlardi2014
 
Dr. Ilardi's website: https://www.pedneurocenter.com
 
Dr. Ilardi's email: DawnIlardi@pedneurocenter.com

Gastrointestinal Issues and Feeding Tubes in the CHD Community: https://www.buzzsprout.com/62761/episodes/1999819

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/65274797Tue, 01 Apr 2025 08:48:07 +0000Anna JaworskiThe journey of raising a child with a critical congenital heart defect (CCHD) involves navigating far more than just medical challenges. Behind every heart surgery and cardiology appointment lies a complex web of developmental considerations that can...
Dr. Dawn Ilardi, a clinical neuropsychologist with over 16 years of experience in cardiac neurodevelopment, brings clarity to this often-overlooked aspect of heart care. Unlike typical developmental patterns, children with CCHDs may present with scattered strengths and weaknesses that don't fit neatly into standard diagnostic categories. While some may develop recognizable conditions like ADHD, autism, or dyslexia, others show unique profiles that require specialized understanding.

The conversation explores the fascinating heart-brain connection, revealing how brain development begins simultaneously with heart formation during fetal development. Structural heart defects can affect blood flow patterns to the developing brain, while surgical interventions carry risks of small strokes or other brain injuries. For parents wondering why their child struggles with handwriting, speech delays, or learning difficulties despite excellent medical care, this discussion provides crucial insights.

Particularly compelling is the discussion about balancing protection with developmental progress. How do you navigate the tension between keeping a medically fragile child safe while ensuring they develop age-appropriate skills and independence? Dr. Ilardi offers practical strategies for finding this balance, emphasizing the importance of creating a supportive "village" around both the child and parents.

Whether you're a parent, medical professional, or educator working with heart warriors, this profound conversation will transform your understanding of the developmental journey these remarkable children face. Most importantly, you'll discover pathways to help them reach their full potential through multisensory learning approaches, compensatory strategies, and family-centered support.

Helpful Links:

Christy Pace's CHD Connects Hearts: https://chdconnectshearts.com/home

Dawn Ilardi's other Heart to Heart with Anna Appearances:

Unlocking Neurodevelopmental Breakthroughs: Impact of CHDs and Parental Influence https://www.buzzsprout.com/62761/episodes/15872291

What is Normal Child Development in Children with Complex Congenital Heart Defects? https://tinyurl.com/DawnIlardi2014
 
Dr. Ilardi's website: https://www.pedneurocenter.com
 
Dr. Ilardi's email: DawnIlardi@pedneurocenter.com

Gastrointestinal Issues and Feeding Tubes in the CHD Community: https://www.buzzsprout.com/62761/episodes/1999819

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3374anna_jaworski,anxiety,attention_deficit_hyperactivit,autism_spectrum_disorder,cchd,chd_community,congenital_heart_defect,development,dr._dawn_ilardi,dyslexia,executive_function,feeding_tube,language_disorder,learning_disabilities,neurodevelopment,reading,speech_pathology,strokes,support,therapyfalse20474fullhttps://www.spreaker.com/episode/from-tetralogy-of-fallot-to-changing-state-law-sara-bonneau-s-unstoppable-mission--64967841
Sara's candor about her mental health struggles resonates deeply as she shares her delayed PTSD diagnosis following her son's first surgery. "I experienced a lot of anxiety after Ryan was born. I remember being so scared he was going to die if I let him out of my sight," she reveals, encouraging other heart parents to seek help sooner than she did.

The conversation takes a powerful turn when Sara describes how tragedy became the catalyst for her unexpected advocacy work. After Sara discovered a 15-year-old basketball player in her son's rival team collapsed and died, she discovered there was no AED available that might have saved his life. Despite having no legal background, this special education teacher successfully campaigned for Rhode Island legislation requiring AEDs in all middle and high schools.

Her message to listeners facing their own struggles is beautifully simple: "Your voice matters. I was just a mom. I had a voice. I made a very significant change for student athletes and children in Rhode Island just by sharing my story and speaking from the heart." Sara's journey from terrified parent to legislative changemaker demonstrates how we can transform our deepest fears into purposeful action.

Whether you're a heart parent seeking connection, an advocate looking for inspiration, or someone navigating the healthcare system, Sara's story will remind you of the incredible power one determined voice can have. Subscribe now and join our community of families and professionals dedicated to improving lives in the congenital heart defect world.

Helpful Links:

Diane Pucci's episodes:

The Miracle of Growing Up with a CHD: https://www.buzzsprout.com/62761/episodes/398967

Voices of Victory: Overcoming Congenital Heart Challenges: https://www.spreaker.com/episode/voices-of-victory-overcoming-congenital-heart-challenges--58745010

Discord Server Link: https://discord.gg/WZwQf7pPM8

CardioHUB 2025 link: https://www.cardiologyconferenceeurope.com/

HUG website link: https://www.heartsunitetheglobe.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/64967841Wed, 19 Mar 2025 08:42:53 +0000Anna JaworskiWhen Sara Bonneau's newborn son was diagnosed with Tetralogy of Fallot, she had no roadmap for the journey ahead. In this raw and powerful conversation, she takes us through the evolution of parenting a child with a serious heart defect—from the...
Sara's candor about her mental health struggles resonates deeply as she shares her delayed PTSD diagnosis following her son's first surgery. "I experienced a lot of anxiety after Ryan was born. I remember being so scared he was going to die if I let him out of my sight," she reveals, encouraging other heart parents to seek help sooner than she did.

The conversation takes a powerful turn when Sara describes how tragedy became the catalyst for her unexpected advocacy work. After Sara discovered a 15-year-old basketball player in her son's rival team collapsed and died, she discovered there was no AED available that might have saved his life. Despite having no legal background, this special education teacher successfully campaigned for Rhode Island legislation requiring AEDs in all middle and high schools.

Her message to listeners facing their own struggles is beautifully simple: "Your voice matters. I was just a mom. I had a voice. I made a very significant change for student athletes and children in Rhode Island just by sharing my story and speaking from the heart." Sara's journey from terrified parent to legislative changemaker demonstrates how we can transform our deepest fears into purposeful action.

Whether you're a heart parent seeking connection, an advocate looking for inspiration, or someone navigating the healthcare system, Sara's story will remind you of the incredible power one determined voice can have. Subscribe now and join our community of families and professionals dedicated to improving lives in the congenital heart defect world.

Helpful Links:

Diane Pucci's episodes:

The Miracle of Growing Up with a CHD: https://www.buzzsprout.com/62761/episodes/398967

Voices of Victory: Overcoming Congenital Heart Challenges: https://www.spreaker.com/episode/voices-of-victory-overcoming-congenital-heart-challenges--58745010

Discord Server Link: https://discord.gg/WZwQf7pPM8

CardioHUB 2025 link: https://www.cardiologyconferenceeurope.com/

HUG website link: https://www.heartsunitetheglobe.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2725advocacy,aeds,anna_jaworski,athete's_death,automated_external_defibrillat,baby_hearts_press,bonneau,congenital_heart_defects,megan_tones,open-heart_surgery,podcast,rhode_island_law,sara,sudden_cardiac_death,the_heart_of_a_heart_warriorfalse20473fullhttps://www.spreaker.com/episode/how-research-is-reshaping-lives-in-congenital-heart-disease--64604749
Listeners will learn about the critical role of early diagnostics and how modern medicine has transformed the fatality rates associated with HLHS. The episode discusses the collaborative efforts across medical disciplines, which lead to innovative treatment and significant improvements in patient outcomes. With a keen focus on the importance of research to address genetic and environmental influences on heart conditions, Dr. Grossfeld emphasizes the need for community support in fundraising and awareness initiatives.

As the conversation shifts toward the importance of heart screenings for athletes, listeners will discover how these measures can prevent tragic outcomes and promote healthy practices among young sports enthusiasts. We encourage our audience to reflect on their understanding of pediatric heart health and to become advocates for research and support within the community. Join us in this eye-opening episode that aims not only to inform but to inspire action among listeners who share a commitment to the congenital heart disease community. Subscribe, share, and engage with us to help uplift and empower those affected by these conditions.

Here are some helpful links mentioned in this episode:

HeartWorks: https://www.webuildhearts.org

Dr. Paul Grossfeld's charities:
 
Light the Way: https://radyfoundation.org/get-involved/events/light-the-way/
Miracle Makers: https://radyfoundation.org/ways-to-give/fundraise/miracle-makers/

Support this podcast by visiting our website:
Hearts Unite the Globe (HUG): https://www.heartsunitetheglobe.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/64604749Thu, 27 Feb 2025 15:21:20 +0000Anna JaworskiIn this engaging episode of Heart to Heart with Anna, we dive into the significant strides made in pediatric cardiology, focusing on hypoplastic left heart syndrome (HLHS) and the inspiring journey of dedicated professionals like Dr. Paul Grossfeld....
Listeners will learn about the critical role of early diagnostics and how modern medicine has transformed the fatality rates associated with HLHS. The episode discusses the collaborative efforts across medical disciplines, which lead to innovative treatment and significant improvements in patient outcomes. With a keen focus on the importance of research to address genetic and environmental influences on heart conditions, Dr. Grossfeld emphasizes the need for community support in fundraising and awareness initiatives.

As the conversation shifts toward the importance of heart screenings for athletes, listeners will discover how these measures can prevent tragic outcomes and promote healthy practices among young sports enthusiasts. We encourage our audience to reflect on their understanding of pediatric heart health and to become advocates for research and support within the community. Join us in this eye-opening episode that aims not only to inform but to inspire action among listeners who share a commitment to the congenital heart disease community. Subscribe, share, and engage with us to help uplift and empower those affected by these conditions.

Here are some helpful links mentioned in this episode:

HeartWorks: https://www.webuildhearts.org

Dr. Paul Grossfeld's charities:
 
Light the Way: https://radyfoundation.org/get-involved/events/light-the-way/
Miracle Makers: https://radyfoundation.org/ways-to-give/fundraise/miracle-makers/

Support this podcast by visiting our website:
Hearts Unite the Globe (HUG): https://www.heartsunitetheglobe.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3676athlete_cardiac_screening,congenital_heart_disease,congenital_heart-disease,cutting-edge_research,dr._paul_grossfeld,dr._tim_nelson,genetic_defects,heartworks,hypoplastic_left_heart_syndrom,jacobson_syndrome,neural_crest_cells,novel_medical_therapies,pediatric_cardiologist,personalized_precision_medicin,philanthropic_funding,physician_researcher,podcast,project_adam,uc_san_diego,us_olympic_volleyball_teamfalse20472fullhttps://www.spreaker.com/episode/fort-worth-public-library-features-emily-falcon-and-anna-jaworski--64211176
Anna Jaworski, a mother to a single ventricle heart survivor, shares her story of advocacy through Baby Hearts Press, a publishing company she founded to offer resources for families dealing with congenital heart defects. Both Emily and Anna emphasize the transformative power of personal narratives in literature, offering hope and strength to those in similar battles. Together, they explore the challenges of accurately representing chronic illnesses in media and the significant impact of personalized doctor-patient relationships, encouraging listeners to become vocal champions for their health needs.

Our community extends beyond the airwaves with the launch of an innovative Discord channel, inviting listeners to engage directly with podcast guests like Hope, Rita Scoggins, and Megan Tones. This episode also teases an upcoming interview with Dr. Paul Grossfeld, who will discuss groundbreaking genetic discoveries related to heart conditions. With a focus on building supportive networks and fostering understanding through stories, we invite you to join us as we navigate personal advocacy and collective empowerment in the heart health community.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/64211176Wed, 05 Feb 2025 19:16:45 +0000Anna JaworskiEmily Falcon's journey with a rare heart condition is nothing short of inspiring. After multiple heart surgeries, she defied the odds and became a dedicated 5K athlete, showcasing resilience that many find empowering. Joined by Jenn Dimas from the...
Anna Jaworski, a mother to a single ventricle heart survivor, shares her story of advocacy through Baby Hearts Press, a publishing company she founded to offer resources for families dealing with congenital heart defects. Both Emily and Anna emphasize the transformative power of personal narratives in literature, offering hope and strength to those in similar battles. Together, they explore the challenges of accurately representing chronic illnesses in media and the significant impact of personalized doctor-patient relationships, encouraging listeners to become vocal champions for their health needs.

Our community extends beyond the airwaves with the launch of an innovative Discord channel, inviting listeners to engage directly with podcast guests like Hope, Rita Scoggins, and Megan Tones. This episode also teases an upcoming interview with Dr. Paul Grossfeld, who will discuss groundbreaking genetic discoveries related to heart conditions. With a focus on building supportive networks and fostering understanding through stories, we invite you to join us as we navigate personal advocacy and collective empowerment in the heart health community.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2618anna_jaworski,author,emily_falcon,fort_worth_reads,healing_literature,publisherfalse20471fullhttps://www.spreaker.com/episode/uniting-communities-for-better-heart-care-outcomes-with-kate-doherty-schmeck--63884616
During this episode, you'll meet the inspiring Kate Doherty-Schmeck, Executive Director of Global ARCH, who shares her dedication to transforming outcomes for childhood-onset heart diseases. Kate's insights into the power of global collaboration underscore the immense impact of organizations advocating for improved healthcare access. From the emotional encounter in a Guatemalan hospital to powerful events in Barcelona and Washington, D.C., discover how communities are coming together to fight disparities and ensure that every child receives the care they deserve.

As the episode unfolds, I offer encouragement and resources for those touched by congenital heart disease. Whether it's through volunteering with Global ARCH or becoming an empowered advocate, there are myriad ways to contribute to this vital cause. More than just stories, these narratives serve as a clarion call for action, reminding us all of the strength found in community and the enduring spirit of advocacy. Remember to tune in every Tuesday for new episodes filled with heartwarming stories and invaluable insights.

Global ARCH link: https://global-arch.org/
&Mamatoo: A Dash of Love: https://www.andmamatoo.com/home

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/63884616Fri, 24 Jan 2025 23:25:05 +0000Anna JaworskiAfter facing the heart-wrenching loss of a beloved family matriarch to a once-benign heart condition, I am reminded of the fragile nature of life and the critical importance of heart health. Join me as we explore these deeply personal connections to...
During this episode, you'll meet the inspiring Kate Doherty-Schmeck, Executive Director of Global ARCH, who shares her dedication to transforming outcomes for childhood-onset heart diseases. Kate's insights into the power of global collaboration underscore the immense impact of organizations advocating for improved healthcare access. From the emotional encounter in a Guatemalan hospital to powerful events in Barcelona and Washington, D.C., discover how communities are coming together to fight disparities and ensure that every child receives the care they deserve.

As the episode unfolds, I offer encouragement and resources for those touched by congenital heart disease. Whether it's through volunteering with Global ARCH or becoming an empowered advocate, there are myriad ways to contribute to this vital cause. More than just stories, these narratives serve as a clarion call for action, reminding us all of the strength found in community and the enduring spirit of advocacy. Remember to tune in every Tuesday for new episodes filled with heartwarming stories and invaluable insights.

Global ARCH link: https://global-arch.org/
&Mamatoo: A Dash of Love: https://www.andmamatoo.com/home

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2053advocacy,anna_jaworski,asd,boston_children's_hospital,chd,collaboration,congenital_heart_disease,executive_director,global_arch,heart_defects,heart_mom,hug_podcast_network,international_health,kate_doherty-schmeck,nicu,nonprofit_organization,public_health,rheumatic_heart_disease,vsdfalse20470fullhttps://www.spreaker.com/episode/2024-top-ten-heart-to-heart-with-anna-episodes-more--63608789
Our journey doesn't stop there. Reflecting on the Top Ten Episodes of 2024, discover the inspiring stories of resilience and advocacy from amazing individuals. Hear about Hope's passion for writing and the unwavering strength of heart moms like Rita Scoggins. Be inspired by advocates such as Deanna Altomara and Meagan Houpt, who continue to break barriers. Celebrate fitness and perseverance with Ben Johnson's triumph over tetralogy of Fallot, and witness Marina Lohri's transformation from survivor to heart community supporter. This episode serves as both a heartfelt reflection and an exciting preview of what's to come on Heart to Heart with Anna in 2025.

Top Ten Episodes:
#10 https://tinyurl.com/H2HAnna446
#9 https://tinyurl.com/H2HandChapter1
#8 https://tinyurl.com/H2HwAnna431
#7 https://tinyurl.com/H2HwAnna442
#6 https://tinyurl.com/H2HMeaganHouptCh3and4
#5 https://tinyurl.com/H2HwAnna444
#4 https://tinyurl.com/H2HwAnnaE434
#3 https://tinyurl.com/H2HwAnna466
#2 https://tinyurl.com/H2HwAnna443
#1 https://tinyurl.com/MarinaLohri


Link to Mended Little Hearts Heart Month Activities:  https://tinyurl.com/MLHFeb2024

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/63608789Wed, 08 Jan 2025 05:55:06 +0000Anna JaworskiCan an unexpected adventure in Kraków teach you about resilience and support? Join me, Anna Jaworski, as I recount a thrilling axe-throwing escapade with my husband, Frank, which became an unexpected metaphor for our family's journey with our...
Our journey doesn't stop there. Reflecting on the Top Ten Episodes of 2024, discover the inspiring stories of resilience and advocacy from amazing individuals. Hear about Hope's passion for writing and the unwavering strength of heart moms like Rita Scoggins. Be inspired by advocates such as Deanna Altomara and Meagan Houpt, who continue to break barriers. Celebrate fitness and perseverance with Ben Johnson's triumph over tetralogy of Fallot, and witness Marina Lohri's transformation from survivor to heart community supporter. This episode serves as both a heartfelt reflection and an exciting preview of what's to come on Heart to Heart with Anna in 2025.

Top Ten Episodes:
#10 https://tinyurl.com/H2HAnna446
#9 https://tinyurl.com/H2HandChapter1
#8 https://tinyurl.com/H2HwAnna431
#7 https://tinyurl.com/H2HwAnna442
#6 https://tinyurl.com/H2HMeaganHouptCh3and4
#5 https://tinyurl.com/H2HwAnna444
#4 https://tinyurl.com/H2HwAnnaE434
#3 https://tinyurl.com/H2HwAnna466
#2 https://tinyurl.com/H2HwAnna443
#1 https://tinyurl.com/MarinaLohri


Link to Mended Little Hearts Heart Month Activities:  https://tinyurl.com/MLHFeb2024

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1269adults_with_chds,audiobook,ben_johnson,chronic_health_conditions,congenital_heart_defects,episodes,heart_dad,heart_mom,hlhs,inspirational_messages,kelsi_rogers,marina_lohri,meagan_houpt,megan_tones,mental_health,podcast,tetralogy_of_fallot,the_heart_of_a_heart_warrior,top_ten,tricuspid_atresiafalse20469fullhttps://www.spreaker.com/episode/celebrating-11-years-heartfelt-reflections-and-future-innovations-in-heart-to-heart-with-anna--63532220
Looking towards 2025, there's an exciting shift on the horizon as we explore genetics and heart conditions in new ways. The community's input is invaluable as we consider themes like children's perspectives on parental scars and embark on bilingual episodes for CHD families in South Africa. We also chat about potential guest experts, including cardiologists who specialize in electrophysiology and transplants, and an intriguing idea about Lyme disease's impact on heart health. These diverse topics promise to enrich our conversations and expand our understanding of the heart's mysteries.

Jaworski, and Ayrton Beattie from Scotland also join us, highlighting the personal stories that have become the backbone of our show.

Looking towards 2025, there's an exciting shift on the horizon as we explore genetics and heart conditions in new ways. The community's input is invaluable as we consider themes like children's perspectives on parental scars and embark on bilingual episodes for CHD families in South Africa. We also chat about potential guest experts, including cardiologists who specialize in electrophysiology and transplants, and an intriguing idea about Lyme disease's impact on heart health. These diverse topics promise to enrich our conversations and expand our understanding of the heart's mysteries.

Experimentation and innovation are at the heart of our future plans. I'm contemplating format changes, such as integrating personal stories and community news segments to keep our listeners engaged. The idea of varying the podcast's frequency presents its own challenges and opportunities, and I share reflections on the experience of running a daily podcast. With the potential for live shows and guest hosts, we're excited to keep the spirit of collaboration alive, ensuring our podcast remains a vibrant and dynamic space for shared experiences and support. Join us in celebrating the power of community and the exciting journey ahead!



Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/63532220Wed, 01 Jan 2025 07:56:51 +0000Anna JaworskiAfter an unexpected illness during a trip to Poland, I found myself in a reflective state, pondering the journey of "Heart to Heart with Anna" and what lies ahead. This episode is a heartfelt celebration of our 11-year milestone, filled with gratitude...
Looking towards 2025, there's an exciting shift on the horizon as we explore genetics and heart conditions in new ways. The community's input is invaluable as we consider themes like children's perspectives on parental scars and embark on bilingual episodes for CHD families in South Africa. We also chat about potential guest experts, including cardiologists who specialize in electrophysiology and transplants, and an intriguing idea about Lyme disease's impact on heart health. These diverse topics promise to enrich our conversations and expand our understanding of the heart's mysteries.

Jaworski, and Ayrton Beattie from Scotland also join us, highlighting the personal stories that have become the backbone of our show.

Looking towards 2025, there's an exciting shift on the horizon as we explore genetics and heart conditions in new ways. The community's input is invaluable as we consider themes like children's perspectives on parental scars and embark on bilingual episodes for CHD families in South Africa. We also chat about potential guest experts, including cardiologists who specialize in electrophysiology and transplants, and an intriguing idea about Lyme disease's impact on heart health. These diverse topics promise to enrich our conversations and expand our understanding of the heart's mysteries.

Experimentation and innovation are at the heart of our future plans. I'm contemplating format changes, such as integrating personal stories and community news segments to keep our listeners engaged. The idea of varying the podcast's frequency presents its own challenges and opportunities, and I share reflections on the experience of running a daily podcast. With the potential for live shows and guest hosts, we're excited to keep the spirit of collaboration alive, ensuring our podcast remains a vibrant and dynamic space for shared experiences and support. Join us in celebrating the power of community and the exciting journey ahead!



Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2989anna_jaworski,ayrton_beatty,changes,cindy_moreland,congenital_heart_defects,frank_jaworski,genetics,gratitude,heart_to_heart_with_anna,megan_tones,michael_liben,nancy_jensen,new_guests,new_programs,new_topics,podcasting,raadhiyah_matthews,reflections,rita_scoggins,tracie_salgadofalse19468fullhttps://www.spreaker.com/episode/inside-heartworks-a-new-era-in-heart-disease-treatment--63069851
Meet the pioneers behind the scenes as Dr. Nelson explains how HeartWorks is bridging the gap between research and real-world applications. By harnessing patient-contributed data, this initiative is overcoming the frustrations of traditional clinical trials, making them more effective and timely. Rachael Gott shares her personal journey with HeartWorks, emphasizing the significant impact of ongoing research and patient empowerment in the fight against congenital heart disease.

Discover how HeartWorks is turning obstacles into opportunities through a data-driven cooperative platform. This patient-owned model is not only increasing enrollment in clinical trials, but also creating a collaborative network of institutions across the nation. From engineering heart muscle cells from skin biopsies to making clinical trials more accessible, HeartWorks is revolutionizing the way we think about congenital heart disease care. Tune in to learn how you can support these efforts and contribute to a brighter future for individuals of all ages affected by congenital heart conditions.

Rachael’s episode: Navigating Life with HLHS and Marfan Syndrome: Rachael’s Powerful Story: https://tinyurl.com/393hbmrm

Dr. Tim Nelson’s other “Heart to Heart with Anna” appearances:

Advancements in Stem Cell Therapies and Research for HLHS Heart Warriors: https://hearttoheartwithanna.buzzsprout.com/62761/episodes/494353-advancements-in-stem-cell-therapies-and-research-for-hlhs-heart-warriors

The Use of Stem Cells in Treatment for Hypoplastic Left Heart Syndrome (HLHS): https://hearttoheartwithanna.buzzsprout.com/62761/episodes/9949984-the-use-of-stem-cells-in-treatment-for-hypoplastic-left-heart-syndrome-hlhs

HeartWorks Update 2023:
https://hearttoheartwithanna.buzzsprout.com/62761/episodes/12191542-heartworks-update-2023

HeartWorks: https://heartworksinc.org/
The Co-Op: https://heartworksinc.org/coop

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/63069851Sat, 30 Nov 2024 07:09:31 +0000Anna JaworskiUnlock the future of heart care and understand how a revolutionary cooperative platform is reshaping the landscape of congenital heart disease treatment. Join us as we explore the groundbreaking innovations at HeartWorks, a transformative program at...
Meet the pioneers behind the scenes as Dr. Nelson explains how HeartWorks is bridging the gap between research and real-world applications. By harnessing patient-contributed data, this initiative is overcoming the frustrations of traditional clinical trials, making them more effective and timely. Rachael Gott shares her personal journey with HeartWorks, emphasizing the significant impact of ongoing research and patient empowerment in the fight against congenital heart disease.

Discover how HeartWorks is turning obstacles into opportunities through a data-driven cooperative platform. This patient-owned model is not only increasing enrollment in clinical trials, but also creating a collaborative network of institutions across the nation. From engineering heart muscle cells from skin biopsies to making clinical trials more accessible, HeartWorks is revolutionizing the way we think about congenital heart disease care. Tune in to learn how you can support these efforts and contribute to a brighter future for individuals of all ages affected by congenital heart conditions.

Rachael’s episode: Navigating Life with HLHS and Marfan Syndrome: Rachael’s Powerful Story: https://tinyurl.com/393hbmrm

Dr. Tim Nelson’s other “Heart to Heart with Anna” appearances:

Advancements in Stem Cell Therapies and Research for HLHS Heart Warriors: https://hearttoheartwithanna.buzzsprout.com/62761/episodes/494353-advancements-in-stem-cell-therapies-and-research-for-hlhs-heart-warriors

The Use of Stem Cells in Treatment for Hypoplastic Left Heart Syndrome (HLHS): https://hearttoheartwithanna.buzzsprout.com/62761/episodes/9949984-the-use-of-stem-cells-in-treatment-for-hypoplastic-left-heart-syndrome-hlhs

HeartWorks Update 2023:
https://hearttoheartwithanna.buzzsprout.com/62761/episodes/12191542-heartworks-update-2023

HeartWorks: https://heartworksinc.org/
The Co-Op: https://heartworksinc.org/coop

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2473biorepository,chds,congenital_heart_defects,co-op,dr._timothy_nelson,erin_borkowski,genetics,heartworks,matrix,podcast,rachael_gott,regenerative_medicine,research,stem_cellsfalse19467fullhttps://www.spreaker.com/episode/fit-and-fearless-defying-limits-with-tetralogy-of-fallot--62694513
Our conversation with Ben reveals the intricate journey of living with congenital heart defects, focusing on the visible reminders, including his scars and tattoos, and their role in shaping his life narrative. Delve into Ben's fitness journey where he embraces an active lifestyle with weightlifting, debunking common myths about limitations for heart patients. With the guidance of a personal trainer and self-monitoring, Ben exemplifies how managing health proactively can lead to a robust and fulfilling life, inspiring others with heart conditions to pursue their ambitions confidently.

The episode doesn't just stop at physical well-being. We explore the significant link between exercise and mental health, sharing personal triumphs over post-surgical discomfort and the incredible benefits of targeted workouts. From stretching and strengthening exercises to the profound impact of endorphins, discover how maintaining an active routine can elevate mood and reduce anxiety. Encouraging inclusivity in physical activities, we stress that everyone, irrespective of physical limitations, can find joy and freedom in movement. Join us in fostering a community of heart warriors, advocating for empowerment, and cherishing each milestone along our shared journeys.

Ben Johnson's contact information: https://tinyurl.com/y9yw53nj

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/62694513Tue, 12 Nov 2024 17:00:08 +0000Anna JaworskiEver thought you could lead an exhilarating life despite a congenital heart defect? Meet Ben Johnson, a formidable heart warrior born with tetralogy of Fallot. Tune in as Ben, now 45, recounts his spirited childhood and how his heart condition didn't...
Our conversation with Ben reveals the intricate journey of living with congenital heart defects, focusing on the visible reminders, including his scars and tattoos, and their role in shaping his life narrative. Delve into Ben's fitness journey where he embraces an active lifestyle with weightlifting, debunking common myths about limitations for heart patients. With the guidance of a personal trainer and self-monitoring, Ben exemplifies how managing health proactively can lead to a robust and fulfilling life, inspiring others with heart conditions to pursue their ambitions confidently.

The episode doesn't just stop at physical well-being. We explore the significant link between exercise and mental health, sharing personal triumphs over post-surgical discomfort and the incredible benefits of targeted workouts. From stretching and strengthening exercises to the profound impact of endorphins, discover how maintaining an active routine can elevate mood and reduce anxiety. Encouraging inclusivity in physical activities, we stress that everyone, irrespective of physical limitations, can find joy and freedom in movement. Join us in fostering a community of heart warriors, advocating for empowerment, and cherishing each milestone along our shared journeys.

Ben Johnson's contact information: https://tinyurl.com/y9yw53nj

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2296adult_with_chd,anxiety_reducing_exercise,congenital_heart_defects,diet,endorphins,mental_health,mind-body_connection,movement,nutrition,physical_activity,repetitive_diet,routine,stoicism,tetralogy_of_fallot,weightliftingfalse19466fullhttps://www.spreaker.com/episode/october-2024-heart-to-heart-live-from-trick-or-treat-to-compassion-fatigue--62578442
As we transition into the spirit of Halloween, nostalgia and safety tips blend together in our lively discussions. We reminisce about trick-or-treating in tight-knit communities, while also highlighting the essential precautions for children with heart conditions during these festivities. The contrast between past and present perceptions of safety reveals a world that’s both cautious and filled with connection through shared medical experiences. Our conversation is a heartwarming reminder of the bonds formed between parents and children, especially when magic and medicine intersect.

Finally, we address the often-overlooked emotional toll of compassion fatigue. With stories from heart camps and non-CHD friendships, we explore the challenges of maintaining relationships while living with ongoing health issues. Rita reflects on a memorable live show, demonstrating how our means of connecting have evolved. The conversation serves as a beacon for understanding and connection, underscoring the profound need for community support. We invite listeners to contribute their insights and stories, enriching the dialogue and reinforcing the shared journey of the CHD community.

Helpful Links:

The Rita, Victoria, and Heidi Scoggins' episode: https://tinyurl.com/3Scoggins

Amy Erhart's first Heart to Heart with Anna episode: https://www.buzzsprout.com/62761/episodes/15810923

One of Michael Liben's Heart to Heart with Anna episodes: https://www.buzzsprout.com/62761/episodes/736588

Compassion Fatigue Episode: https://www.buzzsprout.com/62761/episodes/736588

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/62578442Fri, 01 Nov 2024 05:18:27 +0000Anna JaworskiDo Halloween festivities bring more joy or concern when you’re living with a congenital heart defect? Ashley DeMarco shares her journey growing up with complex heart conditions, turning personal challenges into stories of resilience. Alongside her, we...
As we transition into the spirit of Halloween, nostalgia and safety tips blend together in our lively discussions. We reminisce about trick-or-treating in tight-knit communities, while also highlighting the essential precautions for children with heart conditions during these festivities. The contrast between past and present perceptions of safety reveals a world that’s both cautious and filled with connection through shared medical experiences. Our conversation is a heartwarming reminder of the bonds formed between parents and children, especially when magic and medicine intersect.

Finally, we address the often-overlooked emotional toll of compassion fatigue. With stories from heart camps and non-CHD friendships, we explore the challenges of maintaining relationships while living with ongoing health issues. Rita reflects on a memorable live show, demonstrating how our means of connecting have evolved. The conversation serves as a beacon for understanding and connection, underscoring the profound need for community support. We invite listeners to contribute their insights and stories, enriching the dialogue and reinforcing the shared journey of the CHD community.

Helpful Links:

The Rita, Victoria, and Heidi Scoggins' episode: https://tinyurl.com/3Scoggins

Amy Erhart's first Heart to Heart with Anna episode: https://www.buzzsprout.com/62761/episodes/15810923

One of Michael Liben's Heart to Heart with Anna episodes: https://www.buzzsprout.com/62761/episodes/736588

Compassion Fatigue Episode: https://www.buzzsprout.com/62761/episodes/736588

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2410amy_erhart,arrhythmias,ashley_demarco,autism,bereaved_but_still_me,cardiac_autonomic)neuropathy,congenital_heart_defects,double_outlet_right_ventricle,epilepsy,grief_podcast,halloween,hlhs,michael_liben,pacemaker,papvr,pulmonary_atresia,rita_scoggins,sick_sinus_syndrome,tricuspid_atresiafalse19465fullhttps://www.spreaker.com/episode/from-survivor-to-supporter-marina-lohri-s-tricuspid-atresia-journey-in-congenital-heart-care--62363402
Navigating the complexities of living with Atrial Fibrillation (AFib) and congenital heart defects is no small feat. Marina opens up about her personal experiences with rapid heart rates and the profound decision to undergo an ablation. As she contemplates the intricate considerations surrounding pregnancy with a congenital heart condition, we delve into the evolving medical advice she received and the diverse perspectives of healthcare professionals. Marina’s story is a testament to the importance of specialized care and the expertise found at top hospitals in Switzerland.

From finance to the medical field, Marina's career journey is a testament to aligning work with personal values and health needs. As she shares her transition to atHeart Medical, a startup focused on congenital heart defects, Marina highlights the rewards of working in a supportive environment that truly understands the challenges of living with CHD. Her advocacy extends beyond her professional life, as she continues to inspire others with similar heart conditions to pursue their passions and find purpose in their careers. Marina’s resilience shines through as she navigates life's challenges with a positive attitude and a commitment to the CHD community.

Helpful Links:

atHeart Medical website: https://atheartmedical.com

Support Organizations:

Mended Hearts: https://mendedhearts.org

(In German)
Herznetz: https://www.herznetz.ch/
Fontanherzen: https://fontanherzen.ch/
Swiss Heart: https://swissheart.ch/

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/62363402Mon, 14 Oct 2024 23:00:02 +0000Anna JaworskiMeet Marina Lohri, a true trailblazer in the world of congenital heart defects (CHDs). Born with tricuspid atresia, a ventricular septal defect, and an atrial septal defect, Marina’s journey from a life-saving C-section to being among the first in...
Navigating the complexities of living with Atrial Fibrillation (AFib) and congenital heart defects is no small feat. Marina opens up about her personal experiences with rapid heart rates and the profound decision to undergo an ablation. As she contemplates the intricate considerations surrounding pregnancy with a congenital heart condition, we delve into the evolving medical advice she received and the diverse perspectives of healthcare professionals. Marina’s story is a testament to the importance of specialized care and the expertise found at top hospitals in Switzerland.

From finance to the medical field, Marina's career journey is a testament to aligning work with personal values and health needs. As she shares her transition to atHeart Medical, a startup focused on congenital heart defects, Marina highlights the rewards of working in a supportive environment that truly understands the challenges of living with CHD. Her advocacy extends beyond her professional life, as she continues to inspire others with similar heart conditions to pursue their passions and find purpose in their careers. Marina’s resilience shines through as she navigates life's challenges with a positive attitude and a commitment to the CHD community.

Helpful Links:

atHeart Medical website: https://atheartmedical.com

Support Organizations:

Mended Hearts: https://mendedhearts.org

(In German)
Herznetz: https://www.herznetz.ch/
Fontanherzen: https://fontanherzen.ch/
Swiss Heart: https://swissheart.ch/

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2089adult_chder,afib,asd,asd_occluder,atheart_medical,atrial_fibrillation,atrial_septal_defect,cardiac_ablation,chd_and_pregnancy,chd_pioneer,congenital_heart_defect,fontan_heart,fontan_procedure,heart_warrior,high-risk_pregnancy,inspirational_story,switzerland,ventricular_septal_defect,vsd,zurichfalse19464fullhttps://www.spreaker.com/episode/unlocking-neurodevelopmental-breakthroughs-impact-of-chds-and-parental-influence--62248013
Hear a poignant story of parental vigilance that underscores the vital need for early detection and standardized imaging in pediatric cardiology. Despite the challenges faced by families with limited resources, new initiatives are bridging the gap between hospital-based care and private practice, providing essential support and education. Cultural perceptions of disabilities are also on the table, emphasizing the importance of culturally sensitive approaches tailored to diverse communities, ensuring all families receive the understanding and assistance they deserve.

Finally, we shed light on the crucial connection between parental mental health and a child's developmental journey. Understand the nuances of capturing accurate baselines in neurodevelopmental assessments for children with CHD and why repeat evaluations are essential. As we discuss the emotional rollercoaster faced by parents, we stress the value of community resources and social media groups in offering support. Join us to appreciate the profound impact of parental well-being on a child's health trajectory and learn strategies for balancing the demands of caregiving with the necessity of self-care.

Dr. Ilardi's previous "Heart to Heart with Anna" appearance: https://tinyurl.com/DawnIlardi2014

Dr. Ilardi's website: https://www.pedneurocenter.com

Dr. Ilardi's email: DawnIlardi@pedneurocenter.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/62248013Sat, 05 Oct 2024 15:00:02 +0000Anna JaworskiUnlock the latest in cardiac neurodevelopmental research with Dr. Dawn Ilardi, a distinguished clinical neuropsychologist, as we navigate the complexities of how congenital heart defects (CHDs) impact children's neurodevelopment. Discover the...
Hear a poignant story of parental vigilance that underscores the vital need for early detection and standardized imaging in pediatric cardiology. Despite the challenges faced by families with limited resources, new initiatives are bridging the gap between hospital-based care and private practice, providing essential support and education. Cultural perceptions of disabilities are also on the table, emphasizing the importance of culturally sensitive approaches tailored to diverse communities, ensuring all families receive the understanding and assistance they deserve.

Finally, we shed light on the crucial connection between parental mental health and a child's developmental journey. Understand the nuances of capturing accurate baselines in neurodevelopmental assessments for children with CHD and why repeat evaluations are essential. As we discuss the emotional rollercoaster faced by parents, we stress the value of community resources and social media groups in offering support. Join us to appreciate the profound impact of parental well-being on a child's health trajectory and learn strategies for balancing the demands of caregiving with the necessity of self-care.

Dr. Ilardi's previous "Heart to Heart with Anna" appearance: https://tinyurl.com/DawnIlardi2014

Dr. Ilardi's website: https://www.pedneurocenter.com

Dr. Ilardi's email: DawnIlardi@pedneurocenter.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2618cardiac_neurodevelopment,child_development,cnoc,dr._dawn_ilardi,family-centered_care,family_involvement,heart-brain_connection,mental_health_of_parents,neuropsychology,private_practicefalse19463fullhttps://www.spreaker.com/episode/heart-to-heart-live-an-open-mic-with-anna-and-her-community--62098879
Ever wondered what it takes to grow a podcast network dedicated to CHD? We share our ambitious plans for the next five years, including launching podcasts in multiple languages such as Spanish, Urdu, and even an African language. You’ll laugh along with us as we recount some of the humorous mishaps we've encountered—like losing an internet connection during a live show from a coffee shop! Our journey is a testament to the passion and community effort behind each episode, evolving from personal contacts to listener-generated suggestions.

This episode also offers a deep dive into the emotional landscape of CHD families. Special guests Meg Didier and Annie Ulchek, HLHS survivors, discuss the unique challenges they face. We cover a range of sensitive topics, such as the role of fathers, the experiences of career moms, and the emotional toll on siblings. Discover how CBD and THC are being used for anxiety and pain management, and meet a father who opens up about the scars left by navigating the challenge of raising a child with a CHD while also parenting two heart-healthy children. We cap off by emphasizing the importance of awareness initiatives like placing AEDs in schools and invite you, our listeners, to contribute your stories and feedback for future projects.

Previous episodes mentioned in this podcast episode:

The Courageous Chronicle of Hope: From Heart Surgery to Self-Discovery https://www.buzzsprout.com/62761/episodes/15027473

Congenital Heart Defects and Gender Identity:
https://www.buzzsprout.com/62761/11506572

LBGTQ+ and the CHD Community:
https://www.buzzsprout.com/62761/episodes/11968012

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/62098879Thu, 26 Sep 2024 04:30:02 +0000Anna JaworskiHow do families navigate the uncharted waters of raising children with congenital heart disease (CHD)? Join us on a groundbreaking episode of Heart to Heart with Anna, where we host our very first live show with a studio audience! With guests like...
Ever wondered what it takes to grow a podcast network dedicated to CHD? We share our ambitious plans for the next five years, including launching podcasts in multiple languages such as Spanish, Urdu, and even an African language. You’ll laugh along with us as we recount some of the humorous mishaps we've encountered—like losing an internet connection during a live show from a coffee shop! Our journey is a testament to the passion and community effort behind each episode, evolving from personal contacts to listener-generated suggestions.

This episode also offers a deep dive into the emotional landscape of CHD families. Special guests Meg Didier and Annie Ulchek, HLHS survivors, discuss the unique challenges they face. We cover a range of sensitive topics, such as the role of fathers, the experiences of career moms, and the emotional toll on siblings. Discover how CBD and THC are being used for anxiety and pain management, and meet a father who opens up about the scars left by navigating the challenge of raising a child with a CHD while also parenting two heart-healthy children. We cap off by emphasizing the importance of awareness initiatives like placing AEDs in schools and invite you, our listeners, to contribute your stories and feedback for future projects.

Previous episodes mentioned in this podcast episode:

The Courageous Chronicle of Hope: From Heart Surgery to Self-Discovery https://www.buzzsprout.com/62761/episodes/15027473

Congenital Heart Defects and Gender Identity:
https://www.buzzsprout.com/62761/11506572

LBGTQ+ and the CHD Community:
https://www.buzzsprout.com/62761/episodes/11968012

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>3104amanda_harper,amy_erhart,ana_tanveer,annie_ulchak,ayrton_beatty,career_heart_moms,chris_atherton,drug-induced_lqts,heart_to_heart_with_anna,joey_jaworski,lauren_elizabeth,medical_ptsd,meg_didier,michael_liben,rachael_gott,regina_lawrence,spencer_keaton,tracy_ripley,transgender_experience,veronica_gilbertfalse19462fullhttps://www.spreaker.com/episode/exploring-the-therapeutic-power-of-writing-with-megan-tones-and-sheri-turner--62011017
Anticipation builds as we discuss the upcoming volume of "The Heart of a Heart Warrior" book series, focusing on themes of resilience and reflection. This volume aims to capture a wide range of experiences, from parenting older children with CHD to navigating the unique challenges posed by COVID-19. We also delve into the neuropsychological hurdles faced by CHD patients and offer practical advice for those interested in contributing their stories. 

The episode takes a heartfelt turn as we grapple with themes of grief, loss, and support. Sheri shares her personal journey of questioning faith after the devastating loss of her son Thomas, highlighting the importance of validating the emotions of bereaved parents. We discuss the impact of sharing these deeply personal stories and Anna also announces how she and Sheri will be co-editing "The Heart of a CHD Angel" which will offer support and encouragement for bereaved CHD parents. 

Megan and Sheri’s insights encourage potential writers to join the Scribophile group for support and feedback, ensuring their voices are heard. As we wrap up, we emphasize the significance of community advocacy and encourage listeners to leave a review, helping more people in the CHD community discover these stories of resilience and hope.

Helpful links:

Baby Hearts Press for more information about upcoming books
https://www.babyheartspress.com

Scribophile group for anthology contributors
https://www.scribophile.com/groups/heart-to-heart-writing-group

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/62011017Wed, 18 Sep 2024 13:00:02 +0000Anna JaworskiHow do you condense a lifetime of experiences into a single essay? Megan Tones reveals the challenges and triumphs of contributing to the "Heart of a Heart Warrior" anthology, where she found a way to spotlight positivity amid adversity. Joined by...
Anticipation builds as we discuss the upcoming volume of "The Heart of a Heart Warrior" book series, focusing on themes of resilience and reflection. This volume aims to capture a wide range of experiences, from parenting older children with CHD to navigating the unique challenges posed by COVID-19. We also delve into the neuropsychological hurdles faced by CHD patients and offer practical advice for those interested in contributing their stories. 

The episode takes a heartfelt turn as we grapple with themes of grief, loss, and support. Sheri shares her personal journey of questioning faith after the devastating loss of her son Thomas, highlighting the importance of validating the emotions of bereaved parents. We discuss the impact of sharing these deeply personal stories and Anna also announces how she and Sheri will be co-editing "The Heart of a CHD Angel" which will offer support and encouragement for bereaved CHD parents. 

Megan and Sheri’s insights encourage potential writers to join the Scribophile group for support and feedback, ensuring their voices are heard. As we wrap up, we emphasize the significance of community advocacy and encourage listeners to leave a review, helping more people in the CHD community discover these stories of resilience and hope.

Helpful links:

Baby Hearts Press for more information about upcoming books
https://www.babyheartspress.com

Scribophile group for anthology contributors
https://www.scribophile.com/groups/heart-to-heart-writing-group

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2836advocacy,anthologies,bereaved_community,bereavement,chd_community,chicken_soup_for_the_soul,inspirational_stories,megan_tones,scribophile,self-help_stories,sheri_turner,storytelling,the_heart_of_a_chd_angel,the_heart_of_a_heart_warrior,writing_community,writing_therapyfalse19382fullhttps://www.spreaker.com/episode/from-diagnosis-to-advocacy-the-brave-little-hearts-south-africa-story--61329438
We also hear about Thaakirah's incredibly quick diagnosis at Red Cross Memorial Children's Hospital, leading to immediate surgery and a rollercoaster of emotions. The stakes heighten as Raadhiyah describes the complications, including a severe brain infection that resulted in emergency neurosurgery and temporary paralysis. Raadhiyah's strength and resilience is laid bare, offering listeners a raw, unfiltered look into the challenges of navigating a child's severe health crisis.

Cultural stigmas and the critical importance of pulse oximetry in early CHD detection form another essential part of our discussion. We explore the efforts of advocating for legislative changes to make this life-saving test mandatory, sharing personal stories that highlight ongoing struggles and successes. Concluding with a heartfelt tribute to Fareed Matthews, whose enduring legacy continues to inspire and support families through Brave Little Hearts South Africa, this episode is a deeply moving testament to the power of parental love, advocacy, and community in the face of congenital heart defects.

Helpful Links:

Brave Little Hearts South Africa: https://www.facebook.com/BraveLittleHeartsSA/
Global ARCH: https://global-arch.org/

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/61329438Tue, 10 Sep 2024 22:28:09 +0000Anna JaworskiWhat does it take to recognize the early signs of congenital heart defects (CHD) in a newborn? In this emotionally charged episode of "Heart to Heart with Anna," we welcome Raadhiyah Matthews, who recounts her harrowing journey with her daughter...
We also hear about Thaakirah's incredibly quick diagnosis at Red Cross Memorial Children's Hospital, leading to immediate surgery and a rollercoaster of emotions. The stakes heighten as Raadhiyah describes the complications, including a severe brain infection that resulted in emergency neurosurgery and temporary paralysis. Raadhiyah's strength and resilience is laid bare, offering listeners a raw, unfiltered look into the challenges of navigating a child's severe health crisis.

Cultural stigmas and the critical importance of pulse oximetry in early CHD detection form another essential part of our discussion. We explore the efforts of advocating for legislative changes to make this life-saving test mandatory, sharing personal stories that highlight ongoing struggles and successes. Concluding with a heartfelt tribute to Fareed Matthews, whose enduring legacy continues to inspire and support families through Brave Little Hearts South Africa, this episode is a deeply moving testament to the power of parental love, advocacy, and community in the face of congenital heart defects.

Helpful Links:

Brave Little Hearts South Africa: https://www.facebook.com/BraveLittleHeartsSA/
Global ARCH: https://global-arch.org/

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2709advocacy,brave_little_hearts_south_afri,chd_awareness,chd_community,congenital_heart_defects,double_outlet_right_ventricle,dr._pascal_verrier,global_arch,heart_to_heart_with_anna,mother’s_intuition,neurosurgery,nikaidoh-bex_procedure,open-heart_surgery,pediatric_cardiology,pulmonary_stenosis,pulse_oximetry,raadhiyah_matthews,red_cross_memorial_children’s_,transposition_of_the_great_art,ventricular_septal_defectfalse19460fullhttps://www.spreaker.com/episode/unexpected-diagnoses-digeorge-22q11-2-deletion-syndrome-in-the-lawrence-family--61266044
Listen as Regina recounts the unexpected revelation of her husband's diagnosis at age 35 and the impact it had on their family dynamics. Discover how the Lawrences juggle specialized medical care, feeding challenges, and the critical role of American Sign Language and communication tablets in Aubrey's day-to-day life. Learn about Tina, Aubrey's sister, and the family's experiences at Boston Children's Hospital. Regina's advocacy work within the CHD community also offers a passionate perspective on why genetic testing is paramount. This episode promises to leave you with a profound understanding of DiGeorge syndrome and the unbreakable spirit of a family united in their fight.

Helpful Link:

The CHC Podcast: Congenital Heart Conversations:
https://tinyurl.com/CHCPodcastApple 

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/61266044Wed, 04 Sep 2024 21:05:01 +0000Anna JaworskiWhat would you do if you suddenly discovered that multiple members of your family were living with an intricate genetic condition? Join us for a heartfelt conversation with Regina Lawrence as she opens up about her family's journey with DiGeorge...
Listen as Regina recounts the unexpected revelation of her husband's diagnosis at age 35 and the impact it had on their family dynamics. Discover how the Lawrences juggle specialized medical care, feeding challenges, and the critical role of American Sign Language and communication tablets in Aubrey's day-to-day life. Learn about Tina, Aubrey's sister, and the family's experiences at Boston Children's Hospital. Regina's advocacy work within the CHD community also offers a passionate perspective on why genetic testing is paramount. This episode promises to leave you with a profound understanding of DiGeorge syndrome and the unbreakable spirit of a family united in their fight.

Helpful Link:

The CHC Podcast: Congenital Heart Conversations:
https://tinyurl.com/CHCPodcastApple 

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>207122q11.2_deletion_syndrome,american_sign_language,boston_children's_hospital,cleft_palate,communication_board,congenital_heart_defects,digeorge_syndrome,feeding_tube,genetic_conditions,genetic_testing,immune_system_weakness,in-utero_diagnosis,mitral_valve_replacement,open-heart_surgery,parenting_with_chd,regina_lawrence,special_education,speech_therapyfalse19459fullhttps://www.spreaker.com/episode/discovering-a-myocardial-bridge-at-65-jeff-s-journey-to-heart-health-advocacy--61193248
What happens when traditional medical tests don't give you the answers you need? In this episode, we delve into the complexities of diagnosing and treating ventricular tachycardia and myocardial bridging. Jeff shares the life-saving journey that led him to create his podcast, "Imperfect Heart," focusing on raising awareness about these underdiagnosed conditions. From the importance of self-advocacy in medical settings to the need for better education in medical schools, Jeff's mission is to use his "bonus time" to make a positive impact on the lives of others. Listen in to learn about the life-changing potential of surgical intervention and the power of recognizing and acting on heart-related symptoms.

Helpful Links:

Jeff's Imperfect Heart podcast: https://www.myimperfectheart.com/

Stanford's Myocardial Bridge Program: https://stanfordhealthcare.org/medical-conditions/blood-heart-circulation/myocardial-bridging.html

We're Rolling Studios' Instagram page: https://www.instagram.com/wererollingstudios/

Boots Knighton's episode: https://www.spreaker.com/episode/myocardial-bridging-and-boots-knighton--53439879

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/61193248Thu, 29 Aug 2024 03:00:02 +0000Anna JaworskiHave you ever ignored a small discomfort only to realize it was something far more serious? Join us on "Heart to Heart with Anna" for an eye-opening conversation with Jeff, the creator and host of a non-profit podcast network, who discovered a...
What happens when traditional medical tests don't give you the answers you need? In this episode, we delve into the complexities of diagnosing and treating ventricular tachycardia and myocardial bridging. Jeff shares the life-saving journey that led him to create his podcast, "Imperfect Heart," focusing on raising awareness about these underdiagnosed conditions. From the importance of self-advocacy in medical settings to the need for better education in medical schools, Jeff's mission is to use his "bonus time" to make a positive impact on the lives of others. Listen in to learn about the life-changing potential of surgical intervention and the power of recognizing and acting on heart-related symptoms.

Helpful Links:

Jeff's Imperfect Heart podcast: https://www.myimperfectheart.com/

Stanford's Myocardial Bridge Program: https://stanfordhealthcare.org/medical-conditions/blood-heart-circulation/myocardial-bridging.html

We're Rolling Studios' Instagram page: https://www.instagram.com/wererollingstudios/

Boots Knighton's episode: https://www.spreaker.com/episode/myocardial-bridging-and-boots-knighton--53439879

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>1908angiogram,boots_knighton,cardiac_rehab,coronary_artery,cyclist,endothelial_dysfunction,heart_attack,imperfect_heart,ischemic_incidents,jeff_holden,myocardial_bridge,nonprofit_podcast_network,pectus_excavatum,podcast_movement,stanford,stenosis,unroofing_procedure,vasospasmsfalse19458fullhttps://www.spreaker.com/episode/from-heart-block-to-myotonic-dystrophy-a-survivor-s-tale--61020957
Gwenyth's story takes a fascinating turn as she recounts the unexpected diagnosis of myotonic dystrophy, a condition initially masked by her heart defect symptoms. Discover how this genetic muscular dystrophy was finally identified through persistent symptoms and a critical health crisis after childbirth. Gwenyth sheds light on the often delayed and misdiagnosed nature of the condition, emphasizing the importance of comprehensive medical evaluations and genetic testing in uncovering interconnected health issues.

Self-advocacy emerges as a crucial theme throughout this episode. Gwenyth's experience underscores the necessity of seeking second opinions and consulting specialists to unravel the complexities of managing multiple health conditions. We delve into her daily strategies for coping with myotonic dystrophy, including medications, physical therapy, and mobility aids, and explore the emotional and mental resilience required to navigate such a challenging medical landscape. This episode is a powerful testament to perseverance, the importance of support, and the relentless pursuit of well-being.

Helpful Links:
Baby Hearts Press (for The Heart of a Heart Warrior): https://www.babyheartspress.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/61020957Wed, 14 Aug 2024 16:30:03 +0000Anna JaworskiWhat if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block...
Gwenyth's story takes a fascinating turn as she recounts the unexpected diagnosis of myotonic dystrophy, a condition initially masked by her heart defect symptoms. Discover how this genetic muscular dystrophy was finally identified through persistent symptoms and a critical health crisis after childbirth. Gwenyth sheds light on the often delayed and misdiagnosed nature of the condition, emphasizing the importance of comprehensive medical evaluations and genetic testing in uncovering interconnected health issues.

Self-advocacy emerges as a crucial theme throughout this episode. Gwenyth's experience underscores the necessity of seeking second opinions and consulting specialists to unravel the complexities of managing multiple health conditions. We delve into her daily strategies for coping with myotonic dystrophy, including medications, physical therapy, and mobility aids, and explore the emotional and mental resilience required to navigate such a challenging medical landscape. This episode is a powerful testament to perseverance, the importance of support, and the relentless pursuit of well-being.

Helpful Links:
Baby Hearts Press (for The Heart of a Heart Warrior): https://www.babyheartspress.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2011arrhythmia,cctga,complete_heart_block,congenital_heart_defect,escape_rhythm,genetics,heart_to_heart_with_anna,muscular_dystrophy,myotonic_dystrophy,pacemaker,rare_diseasesfalse19457fullhttps://www.spreaker.com/episode/navigating-life-with-hlhs-and-marfan-syndrome-rachael-s-powerful-story--60943757
Rachael's journey is one of incredible strength and persistence. She opens up about her experiences with multiple heart rhythm issues and the difficulties posed by various medications. As she discusses her forthcoming plans for an open-heart Maze procedure and potential heart and kidney transplants at the Cleveland Clinic, Rachael provides us with a unique glimpse into the emotional and physical toll of living with severe heart conditions. Her late diagnosis in her twenties brings a poignant perspective on the emotional reactions of her parents and how they coped with the news, underscoring the importance of a robust support system.

From a seemingly normal childhood filled with sports, singing, and dancing, to the shocking discovery of her condition following severe chest pain, Rachael's story is a testament to the human spirit's endurance. The medical community's awe at Rachael's case highlights the rarity and complexity of congenital heart defects like HLHS. Rachael's experience underscores the importance of community support and the strength she’s found in connecting with others facing similar challenges. Tune in to hear her express gratitude for these connections and learn how her journey may soon be shared in a book about resilience.

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60943757Wed, 07 Aug 2024 05:22:14 +0000Anna JaworskiDiscover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations...
Rachael's journey is one of incredible strength and persistence. She opens up about her experiences with multiple heart rhythm issues and the difficulties posed by various medications. As she discusses her forthcoming plans for an open-heart Maze procedure and potential heart and kidney transplants at the Cleveland Clinic, Rachael provides us with a unique glimpse into the emotional and physical toll of living with severe heart conditions. Her late diagnosis in her twenties brings a poignant perspective on the emotional reactions of her parents and how they coped with the news, underscoring the importance of a robust support system.

From a seemingly normal childhood filled with sports, singing, and dancing, to the shocking discovery of her condition following severe chest pain, Rachael's story is a testament to the human spirit's endurance. The medical community's awe at Rachael's case highlights the rarity and complexity of congenital heart defects like HLHS. Rachael's experience underscores the importance of community support and the strength she’s found in connecting with others facing similar challenges. Tune in to hear her express gratitude for these connections and learn how her journey may soon be shared in a book about resilience.

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>1905aortic_aneurysm,arrhythmia,cardiac_ablations,cardiac_pre-op_rehab,cleveland_clinic,congenital_heart_defects,cpest,cpex,heart-kidney_transplant,hlhs,hypoplastic_left_heart_syndrom,late_diagnosis,marfan_syndrome,maze_procedure,open-heart_surgery,pacemaker,rachael_gott,thoracic_aortic_aneurysmfalse19456fullhttps://www.spreaker.com/episode/chapter-10-life-lessons-from-congenital-heart-defects-stories-of-hope-and-resilience--60857556
In Chapter 10 of "The Heart of a Heart Warrior," we delve into the emotional rollercoaster of growing up with a severe heart defect. Michelle's narrative takes us through the trials and triumphs, with low oxygen levels and dire prognoses threatening to derail dreams—until the compassionate Dr. Hurley steps in. Experience the harrowing and hopeful moments that underscore the necessity of perseverance, advocacy, and compassionate medical care in overcoming life-threatening health challenges. We also benefit from both Emily's and Allison's reflections on what they've learned growing up with heart defects.

We close this chapter, and this episode, by exploring the unique psychological and emotional hurdles parents face when raising children with congenital heart defects. We discuss how the term "heart warrior" instills hope and courage amidst the unpredictability of chronic illness. Reflecting on the transformative advancements in pediatric cardiology, the collaborative efforts between healthcare professionals, and the unyielding support from parents, this chapter is a heartfelt tribute to the resilience and achievements of heart warriors and their families. Tune in to be inspired by stories that showcase the enduring spirit and remarkable strength of the congenital heart community.

To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60857556Tue, 30 Jul 2024 16:00:04 +0000Anna JaworskiWhat happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my...
In Chapter 10 of "The Heart of a Heart Warrior," we delve into the emotional rollercoaster of growing up with a severe heart defect. Michelle's narrative takes us through the trials and triumphs, with low oxygen levels and dire prognoses threatening to derail dreams—until the compassionate Dr. Hurley steps in. Experience the harrowing and hopeful moments that underscore the necessity of perseverance, advocacy, and compassionate medical care in overcoming life-threatening health challenges. We also benefit from both Emily's and Allison's reflections on what they've learned growing up with heart defects.

We close this chapter, and this episode, by exploring the unique psychological and emotional hurdles parents face when raising children with congenital heart defects. We discuss how the term "heart warrior" instills hope and courage amidst the unpredictability of chronic illness. Reflecting on the transformative advancements in pediatric cardiology, the collaborative efforts between healthcare professionals, and the unyielding support from parents, this chapter is a heartfelt tribute to the resilience and achievements of heart warriors and their families. Tune in to be inspired by stories that showcase the enduring spirit and remarkable strength of the congenital heart community.

To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2156allison_holmes,anna_jaworski,anthology,authors,baby_hearts_press,chd_book,congenital_heart_defects,emily_falcon,heart_to_heart_with_anna,inspiration,megan_tones,michelle_deroo,podcast,resilience,the_heart_of_a_heart_warriorfalse19455fullhttps://www.spreaker.com/episode/chapter-9-of-the-heart-of-a-heart-warrior-featuring-heart-warrior-authors--60773701
Discover the transformative power of storytelling through Kimberly Russell's essay, "You Should Write a Book," and Dr. Brandon Lane Phillips' journey from a rural Louisiana childhood to becoming a successful pediatric cardiologist. Kimberly's narrative underscores how sharing personal experiences can be a beacon of hope, especially for parents of children with CHD. Meanwhile, Dr. Phillips' narrative based on "When I Wished Upon a Star" showcases the profound impact of mentorship and personal connections, enriched by his encounters with child actor Jeremy Miller.

As we wrap up, Megan and I reflect on the invaluable contributions of Baby Hearts Press, a cornerstone for the CHD community since 1996. We discuss our experiences with the "Heart of a Heart Warrior" series and urge listeners to advocate for these pivotal resources at their local libraries. This episode is a testament to the power of community, encouraging everyone to draw strength from shared stories and support each other through the most challenging journeys. Join us for an episode that promises inspiration, empowerment, and a reminder that no one faces their battles alone.

To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60773701Tue, 23 Jul 2024 16:00:03 +0000Anna JaworskiHow do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects...
Discover the transformative power of storytelling through Kimberly Russell's essay, "You Should Write a Book," and Dr. Brandon Lane Phillips' journey from a rural Louisiana childhood to becoming a successful pediatric cardiologist. Kimberly's narrative underscores how sharing personal experiences can be a beacon of hope, especially for parents of children with CHD. Meanwhile, Dr. Phillips' narrative based on "When I Wished Upon a Star" showcases the profound impact of mentorship and personal connections, enriched by his encounters with child actor Jeremy Miller.

As we wrap up, Megan and I reflect on the invaluable contributions of Baby Hearts Press, a cornerstone for the CHD community since 1996. We discuss our experiences with the "Heart of a Heart Warrior" series and urge listeners to advocate for these pivotal resources at their local libraries. This episode is a testament to the power of community, encouraging everyone to draw strength from shared stories and support each other through the most challenging journeys. Join us for an episode that promises inspiration, empowerment, and a reminder that no one faces their battles alone.

To buy this book, visit Baby Hearts Press (https://www.babyheartspress.com)

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>20adults_with_chds,authors,brandon_lane_phillips,chd_authors,code_blue,congenital_heart_defects,from_vulnerable_to_victorious,in_a_heartbeat,jessica_carmel,kimberly_russell,podcast,resilience,the_heart_of_a_heart_warrior,the_hearts_of_a_girl,tori_geiger,when_i_wished_upon_a_starfalse19454fullhttps://www.spreaker.com/episode/the-heart-of-a-heart-warrior-chapter-8-featuring-megan-tones-and-julie-kerr--60714206
Prepare to be enchanted by the surreal transformations and fantastical elements in "Overworld" where Peter's bizarre metamorphosis leaves Elise pondering her reality. Experience an imaginative world where Elise and Peter's fluid shifts between human and animal forms highlight the magical nature of their journey. This episode is brimming with creativity, transformation, and heartwarming connections, perfect for aspiring writers seeking inspiration and guidance on contributing to Baby Hearts Press anthologies. Don't miss out on the chance to immerse yourself in these incredible narratives and the supportive platform they offer!

Links mentioned in the episode:

Baby Hearts Press — https://www.babyheartspress.com

Scribophile — https://www.scribophile.com
Anna and Megan's writing group on Scribophile: https://www.scribophile.com/groups/heart-to-heart-writing-group/

To get a copy of The Heart of a Heart Warrior: Volume 3 Transformation, visit the Baby Hearts Press website at: https://www.babyheartspress.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60714206Wed, 17 Jul 2024 12:34:16 +0000Anna JaworskiEver wondered how a heartfelt community can transform lives through stories and shared experiences? Join me on this special episode of "Heart to Heart with Anna" as I express my gratitude for the overwhelming birthday wishes from the congenital heart...
Prepare to be enchanted by the surreal transformations and fantastical elements in "Overworld" where Peter's bizarre metamorphosis leaves Elise pondering her reality. Experience an imaginative world where Elise and Peter's fluid shifts between human and animal forms highlight the magical nature of their journey. This episode is brimming with creativity, transformation, and heartwarming connections, perfect for aspiring writers seeking inspiration and guidance on contributing to Baby Hearts Press anthologies. Don't miss out on the chance to immerse yourself in these incredible narratives and the supportive platform they offer!

Links mentioned in the episode:

Baby Hearts Press — https://www.babyheartspress.com

Scribophile — https://www.scribophile.com
Anna and Megan's writing group on Scribophile: https://www.scribophile.com/groups/heart-to-heart-writing-group/

To get a copy of The Heart of a Heart Warrior: Volume 3 Transformation, visit the Baby Hearts Press website at: https://www.babyheartspress.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2494anna_jaworski,anthology,authors,baby_hearts_press,chd_book,congenital_heart_defects,heart_to_heart_with_anna,julie_kerr,megan_tones,podcast,the_heart_of_a_heart_warrior,works_of_fictionfalse19453fullhttps://www.spreaker.com/episode/heart-warrior-transformations-from-challenges-to-creative-triumphs--60617203
Prepare to be moved by the creative spirit of the CHD community. My co-editor, Megan Tones, and I highlight the diverse artistic expressions, from vivid visual artworks to heartfelt poetry and fiction. You’ll hear about the stunning ferret drawing by Julie Kerr and the poignant poems of Lisa Colvil and Becca Atherton. We honor not only the living artists but also those who have passed away, celebrating their enduring legacy through their art. Organizations like Hearts Unite the Globe play a pivotal role in supporting these heart warriors, amplifying their voices and their art.

The episode also touches on the critical role of parental advocacy and support. I share my personal journey navigating life with a child born with hypoplastic left heart syndrome (HLHS), which led me to write books and help form the Milagros support group. Inspired by these experiences, I continue to work on new volumes that capture the resilience and spirit of heart warriors, with Megan by my side as co-editor. Join us as we celebrate these empowering stories, remind everyone that they are not alone, and look forward to connecting with our listeners next week.

To get a copy of The Heart of a Heart Warrior: Volume 3 Transformation, visit the Baby Hearts Press website at: https://www.babyheartspress.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60617203Sat, 06 Jul 2024 07:19:22 +0000Anna JaworskiHave you ever wondered how living with a congenital heart defect can shape one's life journey? This week, we’re diving into the remarkable stories of heart warriors, those extraordinary individuals who navigate life with congenital heart defects. I'm...
Prepare to be moved by the creative spirit of the CHD community. My co-editor, Megan Tones, and I highlight the diverse artistic expressions, from vivid visual artworks to heartfelt poetry and fiction. You’ll hear about the stunning ferret drawing by Julie Kerr and the poignant poems of Lisa Colvil and Becca Atherton. We honor not only the living artists but also those who have passed away, celebrating their enduring legacy through their art. Organizations like Hearts Unite the Globe play a pivotal role in supporting these heart warriors, amplifying their voices and their art.

The episode also touches on the critical role of parental advocacy and support. I share my personal journey navigating life with a child born with hypoplastic left heart syndrome (HLHS), which led me to write books and help form the Milagros support group. Inspired by these experiences, I continue to work on new volumes that capture the resilience and spirit of heart warriors, with Megan by my side as co-editor. Join us as we celebrate these empowering stories, remind everyone that they are not alone, and look forward to connecting with our listeners next week.

To get a copy of The Heart of a Heart Warrior: Volume 3 Transformation, visit the Baby Hearts Press website at: https://www.babyheartspress.com

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>1664anna_jaworski,anthology,artwork,co-editors,congenital_heart_defects,creativity,heart_warriors,julie_kerr,karen_klein-mcnulty,lisa_colvil,megan_tones,painting,paula_miller,poetry,pointillism,single_ventricle,tetralogy_of_fallot,the_heart_of_a_heart_warriorfalse19452fullhttps://www.spreaker.com/episode/navigating-parenthood-with-a-congenital-heart-defect-during-covid-19-amelia-woods-journey--60508195
Amelia and her husband, Richard, had to master the art of setting boundaries to protect their medically fragile newborn amidst an unprecedented health crisis. Amelia opens up about the isolation they felt and the essential bonding time that these boundaries provided. She candidly discusses the importance of connecting with other heart moms for support, while also maintaining a degree of privacy for Henderson's future. Together, they reveal their strategies for navigating the postpartum period and the significance of familial support during such trying times.

In this heartfelt episode, we also spotlight Amelia's advocacy within the congenital heart defect (CHD) community. By writing a book, "The Boy Born Brave," Amelia is a beacon of resilience and activism. We delve into actionable steps you can take to raise awareness and support the CHD community, including nonprofit fundraisers and heart walks. Tune in to learn how combining unique talents can drive nonprofit success and how you, too, can make a difference in the lives of children with CHD.

Information Mentioned in the Episode:

Amelia's website: https://heartlikeamother.com 
Amelia's shop: @heartlikeamother.shop
Amelia on Instagram: @heartlikeamother

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support
]]>https://api.spreaker.com/episode/60508195Tue, 25 Jun 2024 21:00:03 +0000Anna JaworskiWhat happens when you're expecting a baby with a congenital heart defect during a global pandemic? Join me, Anna Jaworski, as I sit down with Amelia Woods, a courageous heart mom who faced this exact challenge. Amelia shares the emotional...
Amelia and her husband, Richard, had to master the art of setting boundaries to protect their medically fragile newborn amidst an unprecedented health crisis. Amelia opens up about the isolation they felt and the essential bonding time that these boundaries provided. She candidly discusses the importance of connecting with other heart moms for support, while also maintaining a degree of privacy for Henderson's future. Together, they reveal their strategies for navigating the postpartum period and the significance of familial support during such trying times.

In this heartfelt episode, we also spotlight Amelia's advocacy within the congenital heart defect (CHD) community. By writing a book, "The Boy Born Brave," Amelia is a beacon of resilience and activism. We delve into actionable steps you can take to raise awareness and support the CHD community, including nonprofit fundraisers and heart walks. Tune in to learn how combining unique talents can drive nonprofit success and how you, too, can make a difference in the lives of children with CHD.

Information Mentioned in the Episode:

Amelia's website: https://heartlikeamother.com 
Amelia's shop: @heartlikeamother.shop
Amelia on Instagram: @heartlikeamother

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support
]]>1825amelia_woods,anxiety,arterial_switch_procedure,atrial_balloon_septostomy,author,blogger,boundaries,covid,dextrotransposition_of_the_gre,d-tga,fetal_echoes,heart_mom,maternal_bonding,medically_fragile_baby,open-heart_surgery,prostaglandinfalse19451fullhttps://www.spreaker.com/episode/navigating-romantic-life-with-a-heart-condition-insights-from-dr-corinne-smorra--60457957Heart to Heart with Anna, we welcome back Dr. Corinne Smorra, a psychotherapist and adult living with congenital heart defects (CHD). Dr. Smorra opens up about her personal journey with truncus arteriosus and sheds light on the myths and misconceptions about dating with CHD. From her early days to becoming a psychotherapist, Corinne's experiences have inspired her to create a support group dedicated to helping others navigate dating without allowing their condition to overshadow their lives. Listen in as she shares practical advice on how to let your condition emerge organically in conversations, ensuring it doesn’t dominate the narrative from the start.

The challenges of social isolation, especially during the COVID-19 pandemic, are examined through the lens of those with CHD. We discuss the similarities between the social experiences of individuals with CHD and retired individuals, underscoring the importance of building connections beyond traditional work and school environments. Discover how modern technology like FaceTime, instant messaging, and Zoom can be leveraged to maintain relationships without physical strain. Energy management and setting specific times for social activities are crucial for avoiding burnout, and we provide tips on balancing social life and health seamlessly.

Our conversation goes further to address the evolving landscape of dating, highlighting the transition from close-knit community connections to today's broader but sometimes isolating online experiences. Dr. Smorra’s virtual support group offers a haven for those navigating the dating world with CHD, covering topics like handling insecurities about visible scars and inclusivity for the LGBTQ community. Through role-playing and peer support, this group provides practical tools and emotional backing for everyone involved. Tune in for an insightful discussion on forming genuine connections, seeking inclusivity, and finding support within the CHD community.

Link mentioned in this episode:
Dr. Corinne Smorra's website: https://www.heartandmindcounseling.com

Dr. Corinne Smorra's previous Heart to Heart with Anna episode: https://www.spreaker.com/episode/psychosocial-needs-for-parents-of-adults-with-chds--50930756

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60457957Fri, 21 Jun 2024 06:00:03 +0000Anna JaworskiWhat happens when your heart condition becomes part of your dating narrative? Today on Heart to Heart with Anna, we welcome back Dr. Corinne Smorra, a psychotherapist and adult living with congenital heart defects (CHD). Dr. Smorra opens up about her...Heart to Heart with Anna, we welcome back Dr. Corinne Smorra, a psychotherapist and adult living with congenital heart defects (CHD). Dr. Smorra opens up about her personal journey with truncus arteriosus and sheds light on the myths and misconceptions about dating with CHD. From her early days to becoming a psychotherapist, Corinne's experiences have inspired her to create a support group dedicated to helping others navigate dating without allowing their condition to overshadow their lives. Listen in as she shares practical advice on how to let your condition emerge organically in conversations, ensuring it doesn’t dominate the narrative from the start.

The challenges of social isolation, especially during the COVID-19 pandemic, are examined through the lens of those with CHD. We discuss the similarities between the social experiences of individuals with CHD and retired individuals, underscoring the importance of building connections beyond traditional work and school environments. Discover how modern technology like FaceTime, instant messaging, and Zoom can be leveraged to maintain relationships without physical strain. Energy management and setting specific times for social activities are crucial for avoiding burnout, and we provide tips on balancing social life and health seamlessly.

Our conversation goes further to address the evolving landscape of dating, highlighting the transition from close-knit community connections to today's broader but sometimes isolating online experiences. Dr. Smorra’s virtual support group offers a haven for those navigating the dating world with CHD, covering topics like handling insecurities about visible scars and inclusivity for the LGBTQ community. Through role-playing and peer support, this group provides practical tools and emotional backing for everyone involved. Tune in for an insightful discussion on forming genuine connections, seeking inclusivity, and finding support within the CHD community.

Link mentioned in this episode:
Dr. Corinne Smorra's website: https://www.heartandmindcounseling.com

Dr. Corinne Smorra's previous Heart to Heart with Anna episode: https://www.spreaker.com/episode/psychosocial-needs-for-parents-of-adults-with-chds--50930756

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2294author,congenital_heart_defect,dating,depression,dr._corinne_smorra,heart_valves,heart_warrior,isolation,open-heart_surgery,patent_ductus_arteriosus,pda,psychotherapist,relationships,the_heart_of_a_heart_warrior,truncus_arteriosusfalse19450fullhttps://www.spreaker.com/episode/james-robinson-s-emotional-odyssey-love-and-loss-in-a-heart-family--60351611
Explore the extraordinary resilience of families navigating medical crises. Genetic testing unveiled a unique mutation in the H5 gene carried by both parents, prompting profound reflections on fate and family dynamics. James shares invaluable strategies for maintaining family connections during prolonged hospital stays, emphasizing the importance of honesty and openness. The emotional journey reveals lessons about life, love, and humanity learned through the lens of a family's extraordinary experience with severe health issues.

Finally, we highlight the vital role of the hospital ecosystem in preserving humanity. Through heartfelt anecdotes, James discusses the indispensable support from nurses, therapists, and other professionals who added depth and compassion to Nadav's care. This episode also explores the lasting impact of connecting with a community of adult congenital heart disease survivors, offering solace and continuity for those affected. Join us for a compelling and heartfelt conversation that underscores the power of shared experiences and the transformative strength that love and community bring in times of profound adversity.

Helpful Links Mentioned in the Episode:

James Robinson's website: https://morethanamemoir.com/

Leigh Kamping-Carder's Interview with James Robinson: https://theheartdialogues.substack.com/p/meeting-adults-with-congenital-heart-disease

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60351611Tue, 11 Jun 2024 17:00:04 +0000Anna JaworskiWhat happens when your entire world is defined by hospital walls and medical jargon? On "Heart to Heart with Anna," we share the poignant and raw journey of James Robinson, a father who walks us through the emotional highs and profound lows of raising...
Explore the extraordinary resilience of families navigating medical crises. Genetic testing unveiled a unique mutation in the H5 gene carried by both parents, prompting profound reflections on fate and family dynamics. James shares invaluable strategies for maintaining family connections during prolonged hospital stays, emphasizing the importance of honesty and openness. The emotional journey reveals lessons about life, love, and humanity learned through the lens of a family's extraordinary experience with severe health issues.

Finally, we highlight the vital role of the hospital ecosystem in preserving humanity. Through heartfelt anecdotes, James discusses the indispensable support from nurses, therapists, and other professionals who added depth and compassion to Nadav's care. This episode also explores the lasting impact of connecting with a community of adult congenital heart disease survivors, offering solace and continuity for those affected. Join us for a compelling and heartfelt conversation that underscores the power of shared experiences and the transformative strength that love and community bring in times of profound adversity.

Helpful Links Mentioned in the Episode:

James Robinson's website: https://morethanamemoir.com/

Leigh Kamping-Carder's Interview with James Robinson: https://theheartdialogues.substack.com/p/meeting-adults-with-congenital-heart-disease

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>2714australia,blood_clot,btt_shunt,congenital_heart_defects,embryonic_cilia,fontan_procedure,genetic_mutation,genetic_testing,glenn_procedure,h5_gene,heterotaxy,james_robinson,loss_of_a_child,memoir,more_than_we_expected,nadav_robinson,nicu,open-heart_surgery,single_ventricle,twinfalse19449fullhttps://www.spreaker.com/episode/heartfelt-battles-to-artistic-revelations-with-amy-milz--60123407
The second act of Amy's tale is as colorful and textured as her artwork, a reflection of a journey through shadows into the light of self-discovery. Her transition from a myriad of jobs to pursuing an art education encapsulates a dance with purpose, one that illustrates the transformative power of embracing one's true calling. Amy's artwork, a series born out of navigating the complexities of Congenital Heart Disease (CHD), is more than a visual narrative; it's a testament to the therapeutic power of creative expression. Her experiences, which extend to the intimacy of her marriage and the importance of self-advocacy, are woven into a larger canvas of life lessons that resonate with all who face their own battles. Amy Milz, through her perseverance and passion, paints a picture of hope and reminds us of the beauty that can emerge from life's most challenging trials.

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60123407Wed, 22 May 2024 03:00:03 +0000Anna JaworskiAmy Milz opens her heart to us—quite literally—in a candid recount of her life as a congenital heart defect survivor. With grace and vulnerability, she takes us through the paces of her medical odyssey, from the relentless advocacy of her mother to...
The second act of Amy's tale is as colorful and textured as her artwork, a reflection of a journey through shadows into the light of self-discovery. Her transition from a myriad of jobs to pursuing an art education encapsulates a dance with purpose, one that illustrates the transformative power of embracing one's true calling. Amy's artwork, a series born out of navigating the complexities of Congenital Heart Disease (CHD), is more than a visual narrative; it's a testament to the therapeutic power of creative expression. Her experiences, which extend to the intimacy of her marriage and the importance of self-advocacy, are woven into a larger canvas of life lessons that resonate with all who face their own battles. Amy Milz, through her perseverance and passion, paints a picture of hope and reminds us of the beauty that can emerge from life's most challenging trials.

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>1841adult_with_chd,art,art-as-therapy,art_therapy,artwork,coa,coarctation_of_the_aorta,congenital_heart_defects,divorce,heart_warrior,marriage,open-heart_surgery,scars,subaortic_stenosis,transformation,ventricular_septal_defect,vsdfalse19448fullhttps://www.spreaker.com/episode/mother-s-day-reflections-the-valor-and-vitality-of-heart-moms--60049663What does Mother's Day mean to you?

When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep emotional landscapes of mothers like me. We'll traverse the highs of motherhood, the lows of fear, and the battles that come with CHD, all through the lens of Mother's Day. Discover how stories of resilience echo through our community, offering wisdom and celebrating the spirit of heart moms everywhere.

This episode isn't just about my journey; it's a chorus of voices from the heart mom community, sharing their own powerful narratives. Together, we recognize the role of pediatric cardiologists and the medical community in bolstering our strength, and we honor the courage required to let our children forge their own paths. Hear from fellow heart moms as they speak candidly about their experiences—moments of profound loss and the critical importance of support systems. It's an ode to the unwavering courage of families facing CHD and a beacon of hope for those who will join our ranks. Celebrate Mother's Day with us, and feel the solidarity of heart moms united by love and resilience.

Special thanks to Hollie Stephenson, Regina Lawrence, Sheri Turner, Eileen Pearlman, Victoria Baerg, and Kimberly Russell for sharing their experiences, memories and/or advice with us.

Sites or shows mentioned in this episode:

Hollie's show: https://www.spreaker.com/episode/embracing-life-s-pulse-amidst-hlhs-and-ple-hurdles-with-hollie-stevenson--59746502
Baby Hearts Press: https://www.babyheartspress.com/

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/60049663Wed, 15 May 2024 19:05:50 +0000Anna JaworskiWhat does Mother's Day mean to you? When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to...What does Mother's Day mean to you?

When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep emotional landscapes of mothers like me. We'll traverse the highs of motherhood, the lows of fear, and the battles that come with CHD, all through the lens of Mother's Day. Discover how stories of resilience echo through our community, offering wisdom and celebrating the spirit of heart moms everywhere.

This episode isn't just about my journey; it's a chorus of voices from the heart mom community, sharing their own powerful narratives. Together, we recognize the role of pediatric cardiologists and the medical community in bolstering our strength, and we honor the courage required to let our children forge their own paths. Hear from fellow heart moms as they speak candidly about their experiences—moments of profound loss and the critical importance of support systems. It's an ode to the unwavering courage of families facing CHD and a beacon of hope for those who will join our ranks. Celebrate Mother's Day with us, and feel the solidarity of heart moms united by love and resilience.

Special thanks to Hollie Stephenson, Regina Lawrence, Sheri Turner, Eileen Pearlman, Victoria Baerg, and Kimberly Russell for sharing their experiences, memories and/or advice with us.

Sites or shows mentioned in this episode:

Hollie's show: https://www.spreaker.com/episode/embracing-life-s-pulse-amidst-hlhs-and-ple-hurdles-with-hollie-stevenson--59746502
Baby Hearts Press: https://www.babyheartspress.com/

Become a subscriber: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>1589advice,compassionate_care,congenital_heart_defects,congestive_heart_failure,heart_moms,heart_warriors,hlhs,hypoplastic_left_heart_syndrom,life-threatening_illness,misdiagnosis,motherhood,mother's_day,newborn_breathing,ple,single_ventriclefalse19447fullhttps://www.spreaker.com/episode/the-courageous-chronicle-of-hope-from-heart-surgery-to-self-discovery--59907276
Flipping through the pages of Hope's past, we're reminded of the days when storytelling was a fledgling passion, cultivated through pen pals and children's magazines. The revelation of a bucket list in college sparked a monumental shift from engineering to writing, a decision that charted the course for my current literary adventures. Sharing these moments isn't just about nostalgia—it's about tracing the delicate threads that weave together to form a writer's identity, culminating in the excitement of discussing her latest book.

For anyone out there who's ever doubted the path of a writer, let this episode serve as a beacon. We'll journey through the landscape of crafting narratives, the role of supportive writing communities, and the reality of financial expectations in the writing world. The serendipity of connecting with a publisher keen on LGBT+ stories is a reminder that sometimes, the stars align in unexpected ways, providing the chance to see one's work in the hands of eager readers. Join us for a heart-to-heart that celebrates the written word and the unwavering spirit of those who dare to write it.

Hope's previous Heart to Heart with Anna Appearances:

Congenital Heart Defects and Gender Identity:
https://www.spreaker.com/episode/congenital-heart-defects-and-gender-identity--51586127

Celebrating 300 Episodes of “Heart to Heart with Anna"
https://www.spreaker.com/episode/celebrating-300-episodes-of-heart-to-heart-with-anna--44116049

Sports and Extra-Curricular Activities for CHD Survivors
https://www.spreaker.com/episode/encore-presentation-of-sports-and-extra-curricular-activities-for-chd-survivors--7730231

Surviving a Long Hospital Stay
https://www.spreaker.com/episode/encore-presentation-of-surviving-a-long-hospital-stay--7766703

Writer's League of Texas Agents and Editor's Conference (2024)
https://writersleague.org/calendar/2024-agents-editors-conference/

Armadillocon (2024)
https://armadillocon.org/d46/

Rattling Good Yarns
https://rattlinggoodyarns.com/

Slug Tribe
http://www.slugtribe.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/59907276Tue, 07 May 2024 21:26:10 +0000Anna JaworskiWhen my daughter Hope graced the podcast with her presence, her story wasn't just a chronicle of living with a single ventricle heart at 29—it was a profound testament to her strength amid her gender transition. Our conversation unveils the seamless...
Flipping through the pages of Hope's past, we're reminded of the days when storytelling was a fledgling passion, cultivated through pen pals and children's magazines. The revelation of a bucket list in college sparked a monumental shift from engineering to writing, a decision that charted the course for my current literary adventures. Sharing these moments isn't just about nostalgia—it's about tracing the delicate threads that weave together to form a writer's identity, culminating in the excitement of discussing her latest book.

For anyone out there who's ever doubted the path of a writer, let this episode serve as a beacon. We'll journey through the landscape of crafting narratives, the role of supportive writing communities, and the reality of financial expectations in the writing world. The serendipity of connecting with a publisher keen on LGBT+ stories is a reminder that sometimes, the stars align in unexpected ways, providing the chance to see one's work in the hands of eager readers. Join us for a heart-to-heart that celebrates the written word and the unwavering spirit of those who dare to write it.

Hope's previous Heart to Heart with Anna Appearances:

Congenital Heart Defects and Gender Identity:
https://www.spreaker.com/episode/congenital-heart-defects-and-gender-identity--51586127

Celebrating 300 Episodes of “Heart to Heart with Anna"
https://www.spreaker.com/episode/celebrating-300-episodes-of-heart-to-heart-with-anna--44116049

Sports and Extra-Curricular Activities for CHD Survivors
https://www.spreaker.com/episode/encore-presentation-of-sports-and-extra-curricular-activities-for-chd-survivors--7730231

Surviving a Long Hospital Stay
https://www.spreaker.com/episode/encore-presentation-of-surviving-a-long-hospital-stay--7766703

Writer's League of Texas Agents and Editor's Conference (2024)
https://writersleague.org/calendar/2024-agents-editors-conference/

Armadillocon (2024)
https://armadillocon.org/d46/

Rattling Good Yarns
https://rattlinggoodyarns.com/

Slug Tribe
http://www.slugtribe.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2042author,book,congenital_heart_defect,eliquis,fantasy_writer,fontan,hope_angelina,single_ventricle_heart,the_heart_of_a_heart_warriorfalse19446fullhttps://www.spreaker.com/episode/embracing-life-s-pulse-amidst-hlhs-and-ple-hurdles-with-hollie-stevenson--59746502
Through Tom's story, we uncover the myriad of long-term treatments and daily hurdles that come with managing PLE. We discuss the innovative treatments at the Children's Hospital of Philadelphia (CHOP) that led to significant improvements in his health and share insights from another patient's experience where a medication for Crohn's disease offered unexpected relief. These narratives illuminate the evolving field of pediatric cardiology and the crucial balance of medication management, driving home the message that children with heart conditions can and should lead full, joyous lives.

Parenting is an art—especially so when your child has a heart condition. Our conversation traverses the delicate art of letting go, allowing our children to taste independence and embrace life's experiences, from participating in sports to taking on careers. We explore the shift from advocacy to supporting our children's autonomy, the complexities of medication management into adulthood, and the emotional journey that comes with each milestone. Hollie and Anna share their personal challenges and triumphs, offering a heartfelt insight into what it means to parent through uncertainty with hope and courage. Join us for an episode that's not just about the struggles, but also the extraordinary victories that come with raising a child with a heart condition.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/59746502Wed, 01 May 2024 04:10:45 +0000Anna JaworskiWitnessing your child's bravery and resilience as they navigate a life-altering condition like hypoplastic left heart syndrome (HLHS) is both harrowing and inspiring. Hollie Stevenson joins Anna to share the profound story of her son Tom, who not only...
Through Tom's story, we uncover the myriad of long-term treatments and daily hurdles that come with managing PLE. We discuss the innovative treatments at the Children's Hospital of Philadelphia (CHOP) that led to significant improvements in his health and share insights from another patient's experience where a medication for Crohn's disease offered unexpected relief. These narratives illuminate the evolving field of pediatric cardiology and the crucial balance of medication management, driving home the message that children with heart conditions can and should lead full, joyous lives.

Parenting is an art—especially so when your child has a heart condition. Our conversation traverses the delicate art of letting go, allowing our children to taste independence and embrace life's experiences, from participating in sports to taking on careers. We explore the shift from advocacy to supporting our children's autonomy, the complexities of medication management into adulthood, and the emotional journey that comes with each milestone. Hollie and Anna share their personal challenges and triumphs, offering a heartfelt insight into what it means to parent through uncertainty with hope and courage. Join us for an episode that's not just about the struggles, but also the extraordinary victories that come with raising a child with a heart condition.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2179albumin,budesonide,children's_hospital_of_philade,chop,congenital_heart_defects,dr._jack_rychik,dr._schneider,hlhs,hollie_stephenson,hypoplastic_left_heart_syndrom,ivc_stent,ple,protein-losing_enteropathy,remission,single_ventricle,steriod,tom_stephensonfalse19445fullhttps://www.spreaker.com/episode/navigating-the-emotional-landscape-of-raising-children-with-congenital-heart-defects--59596877
The battle doesn't end with personal struggles; the war against CHD is fought on the frontlines of research and advocacy as well. In this heartfelt exchange, Kelsey and I explore the gap in CHD research funding and the misleading statistics that mask the true prevalence of these heart conditions. We dissect the critical need for comprehensive newborn cardiac screening to catch these silent afflictions early, recounting stories that underscore the urgency and importance of this cause. Our plea for increased education and advocacy rings clear, with a hope to catalyze change in how CHD research and screening practices are approached and executed.

Concluding on a note of hope, we cast a light on initiatives forging paths towards groundbreaking treatments, including the exciting prospects of in-utero solutions and the creation of privacy-preserving registries for targeted research through HeartWorks. By sharing personal anecdotes, we underscore the severity of electrical heart issues and rally for greater support and recognition. It's not just a podcast; it's a community coming together every Tuesday at noon Eastern time, sharing a commitment to empower and support the CHD community. Your participation breathes life into our mission, reinforcing the collective heartbeat of families touched by congenital heart disease.

Links mentioned in this podcast:

HeartFelt: https://www.facebook.com/heartfeltscreening
Tiny Tickers Trot: https://runsignup.com/Race/Events/CA/Chico/TinyTickersTrot

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.

HeartWorks: https://www.hlhsconsortium.org/heartworks/

]]>https://api.spreaker.com/episode/59596877Tue, 23 Apr 2024 16:00:04 +0000Anna JaworskiWhen your child's heartbeat is a symphony laced with irregularities, every moment becomes a measure of uncertainty. This is the world heart moms like myself, Anna Jaworski, and my guest Kelsi Rogers live in every day. Join us as we peel back the...
The battle doesn't end with personal struggles; the war against CHD is fought on the frontlines of research and advocacy as well. In this heartfelt exchange, Kelsey and I explore the gap in CHD research funding and the misleading statistics that mask the true prevalence of these heart conditions. We dissect the critical need for comprehensive newborn cardiac screening to catch these silent afflictions early, recounting stories that underscore the urgency and importance of this cause. Our plea for increased education and advocacy rings clear, with a hope to catalyze change in how CHD research and screening practices are approached and executed.

Concluding on a note of hope, we cast a light on initiatives forging paths towards groundbreaking treatments, including the exciting prospects of in-utero solutions and the creation of privacy-preserving registries for targeted research through HeartWorks. By sharing personal anecdotes, we underscore the severity of electrical heart issues and rally for greater support and recognition. It's not just a podcast; it's a community coming together every Tuesday at noon Eastern time, sharing a commitment to empower and support the CHD community. Your participation breathes life into our mission, reinforcing the collective heartbeat of families touched by congenital heart disease.

Links mentioned in this podcast:

HeartFelt: https://www.facebook.com/heartfeltscreening
Tiny Tickers Trot: https://runsignup.com/Race/Events/CA/Chico/TinyTickersTrot

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.

HeartWorks: https://www.hlhsconsortium.org/heartworks/

]]>2347ablations,arrhythmias,bradycardia,congenital_heart_defects,electrical_problems_in_the_hea,fluke_of_nature,heartworks,kelsi_rogers,mental_health,statistics,ticking_time_bomb,ventricular_tachycardia,vigilancefalse19444fullhttps://www.spreaker.com/episode/heart-mom-kelsi-rogers-on-jett-s-electrical-problems-with-his-heart--59271465
Tune in to find out what kind of heart defect Jett has, why the ablation was so extensive, and what kind of surgery eventually saved his life.

Following the interview with Kelsi Rogers, co-editors Megan Tones and Anna Jaworski read the last half of Chapter Seven: Facing My Mortality from their new book The Heart of a Heart Warrior Volume Two: Endurance.

Links mentioned in this podcast:

HeartFelt: https://www.facebook.com/heartfeltscreening
Tiny Tickers Trot: https://runsignup.com/Race/Events/CA/Chico/TinyTickersTrot

Baby Hearts Press: https://www.babyheartspress.com (for more information on the book The Heart of a Heart Warrior and more!)

To sign up for a Baby Hearts Press Book Study, visit our website here: https://www.babyheartspress.com/volume-2

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.
]]>https://api.spreaker.com/episode/59271465Wed, 03 Apr 2024 17:29:28 +0000Anna JaworskiThis episode of "Heart to Heart with Anna" features a very special heart mom. Kelsi Rogers talks about the surprising circumstances around her son's heart condition. Born with an electrical problem in his heart, Jett has already faced life-and-death...
Tune in to find out what kind of heart defect Jett has, why the ablation was so extensive, and what kind of surgery eventually saved his life.

Following the interview with Kelsi Rogers, co-editors Megan Tones and Anna Jaworski read the last half of Chapter Seven: Facing My Mortality from their new book The Heart of a Heart Warrior Volume Two: Endurance.

Links mentioned in this podcast:

HeartFelt: https://www.facebook.com/heartfeltscreening
Tiny Tickers Trot: https://runsignup.com/Race/Events/CA/Chico/TinyTickersTrot

Baby Hearts Press: https://www.babyheartspress.com (for more information on the book The Heart of a Heart Warrior and more!)

To sign up for a Baby Hearts Press Book Study, visit our website here: https://www.babyheartspress.com/volume-2

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.
]]>2966ablations,arrhythmias,asd,atrial_septal_defect,bradycardia,congenital_heart_defects,electrical_problems_in_the_hea,electrophysiologist,holter_monitor,kelsi_rogers,metabolic_acidosis,neemo_monitor,owlet_foot_monitor,pfo,propranolol,pseudoaneurysm,pvcsfalse19443fullhttps://www.spreaker.com/episode/an-author-for-chd-adults-with-learning-disabilities-deanna-altomara--59197052
Navigating the complex maze of medical procedures and developmental disabilities can be daunting for teens and their families, but this episode illuminates a path of understanding. It was essential for Deanna to create a book for her cousin, who was born with a heart defect and who also deals with developmental disabilities. We delve into the meticulous creation of age-appropriate resources that educate and resonate, merging factual information with fun. Discover how collaboration with an illustrator brought forth a book that captivates without patronizing, and how such tailored storytelling can touch the hearts of its readers and bridge significant gaps in resources.

Rounding out our heartfelt talk, we share insights into the creation of indispensable tools that guide parents through the intricacies of surgeries and special needs.

In the third segment of the podcast, you'll hear my co-editor Megan Tones and me, as we continue reading from The Heart of a Heart Warrior Volume Two Endurance. This week, we cover the first half of Chapter 7 which includes David Franco's harrowing recovery journey which underscores the essence of resilience. This chapter is entitled "Facing My Mortality" and you'll hear essays by Becca Atherton as she confronts life's fragility and her impending mortality. We also hear from Margaret Raymond as she describes how her mental health has been challenged over time due to living with her congenital heart defects. Despite the inevitable, we find a collective strength in this chapter.

Join our supportive community, where every Tuesday, we offer a dose of inspiration and the comforting reminder that no one walks this path alone.

You can find Deanna on @d.scribing.stories on Instagram and https://deannaaltomara.com

To sign up for a Baby Hearts Press Book Study, visit our website here: https://www.babyheartspress.com/volume-2

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/59197052Wed, 27 Mar 2024 16:49:18 +0000Anna JaworskiAs an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself,...
Navigating the complex maze of medical procedures and developmental disabilities can be daunting for teens and their families, but this episode illuminates a path of understanding. It was essential for Deanna to create a book for her cousin, who was born with a heart defect and who also deals with developmental disabilities. We delve into the meticulous creation of age-appropriate resources that educate and resonate, merging factual information with fun. Discover how collaboration with an illustrator brought forth a book that captivates without patronizing, and how such tailored storytelling can touch the hearts of its readers and bridge significant gaps in resources.

Rounding out our heartfelt talk, we share insights into the creation of indispensable tools that guide parents through the intricacies of surgeries and special needs.

In the third segment of the podcast, you'll hear my co-editor Megan Tones and me, as we continue reading from The Heart of a Heart Warrior Volume Two Endurance. This week, we cover the first half of Chapter 7 which includes David Franco's harrowing recovery journey which underscores the essence of resilience. This chapter is entitled "Facing My Mortality" and you'll hear essays by Becca Atherton as she confronts life's fragility and her impending mortality. We also hear from Margaret Raymond as she describes how her mental health has been challenged over time due to living with her congenital heart defects. Despite the inevitable, we find a collective strength in this chapter.

Join our supportive community, where every Tuesday, we offer a dose of inspiration and the comforting reminder that no one walks this path alone.

You can find Deanna on @d.scribing.stories on Instagram and https://deannaaltomara.com

To sign up for a Baby Hearts Press Book Study, visit our website here: https://www.babyheartspress.com/volume-2

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3488author,chrysalis,congenital_heart_defects,deanna_altomara,developmental_disabilities,heart_warrior,open-heart_surgery,preparations_for_surgery,special_needs_book,the_heart_of_a_heart_warrior_a,zipper_clubfalse19442fullhttps://www.spreaker.com/episode/shattering-stereotypes-in-the-world-of-down-syndrome-and-congenital-heart-defects--59108325
The legacy of Brett Boyer shines on, as we discuss the foundation in her memory that advocates for CHD research and support, reminding us how one life can ripple through the hearts of many.

Co-editors Megan Tones and Anna Jaworski continue reading from The Heart of a Heart Warrior: Volume 2: Endurance.

Motherhood, with all its joys and challenges, takes on profound new dimensions when interwoven with congenital heart defects (CHD). The narratives of Megan Hanshew, Gwenyth Murphy, and others paint a poignant picture of resilience and transformation. We also celebrate the active lives of those like Tracie Wendorf-Salgado, living with pacemakers yet refusing to be held back, and Kimberly Russell, whose journey through CHD led to the joyous adoption of her daughter.

Join us for an episode that's as much about courage as it is about compassion. Hear the raw, unfiltered experiences of those who not only survive but thrive despite the presence of CHD. Be inspired by Kimberly Russell's volunteer work in education advocacy, and be moved by Tracie Wendorf-Salgado's near-miss on the highway, a stark reminder of the fragility of life and the indomitable human spirit. This is an ode to the tenacity of the heart, both literal and metaphorical, and an invitation to walk alongside these extraordinary individuals through their remarkable journeys.

Links mentioned in this episode:

The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/

Baby Hearts Press: https://www.babyheartspress.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/59108325Wed, 20 Mar 2024 04:38:09 +0000Anna JaworskiWhen Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with...
The legacy of Brett Boyer shines on, as we discuss the foundation in her memory that advocates for CHD research and support, reminding us how one life can ripple through the hearts of many.

Co-editors Megan Tones and Anna Jaworski continue reading from The Heart of a Heart Warrior: Volume 2: Endurance.

Motherhood, with all its joys and challenges, takes on profound new dimensions when interwoven with congenital heart defects (CHD). The narratives of Megan Hanshew, Gwenyth Murphy, and others paint a poignant picture of resilience and transformation. We also celebrate the active lives of those like Tracie Wendorf-Salgado, living with pacemakers yet refusing to be held back, and Kimberly Russell, whose journey through CHD led to the joyous adoption of her daughter.

Join us for an episode that's as much about courage as it is about compassion. Hear the raw, unfiltered experiences of those who not only survive but thrive despite the presence of CHD. Be inspired by Kimberly Russell's volunteer work in education advocacy, and be moved by Tracie Wendorf-Salgado's near-miss on the highway, a stark reminder of the fragility of life and the indomitable human spirit. This is an ode to the tenacity of the heart, both literal and metaphorical, and an invitation to walk alongside these extraordinary individuals through their remarkable journeys.

Links mentioned in this episode:

The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/

Baby Hearts Press: https://www.babyheartspress.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>4003audiobook,blue_baby,bo_boyer,brett_boyer,congenital_heart_defects,digitalis,down_syndrome,ellen_boyer,failure_to_thrive,gwenyth_murphy,kimberly_russel,mayo_clinic,megan_hanshew,motherhood,patent_ductus_arteriosus,pda,the_brett_boyer_foundation,the_heart_of_a_heart_warrior,tracie_wendorf-salgado,world_down_syndrome_dayfalse19441fullhttps://www.spreaker.com/episode/ellen-boyer-and-world-down-syndrome-day-2024-volume-two-endurance--59024446
In the 2nd and 3rd segments of the episode, you'll hear co-editors Megan Tones and Anna Jaworski reading from The Heart of a Heart Warrior Volume 2: Endurance. This week they're reading essays from Chapter 5 in anticipation of the next Baby Hearts Press Book Study, which starts on World Down Syndrome Day (March 21st) from 5-6 PM USA CDT.

It's the personal journeys that often strike the deepest chord, and this chapter resonates with stories of tenacity and the transformative power of companionship. Listen to the heartening tale of Monica Mossey and her service dog Jax, whose bond exemplifies the extraordinary support that can come from our four-legged friends. The courage of Tracey Grasty, through multiple heart surgeries and life's relentless challenges, will remind you of the strength that lies within our community, and the remarkable resilience we can muster when faced with life's daunting obstacles.

We round out the conversation by stepping into the shoes of those whose professional lives are shaped by their personal experiences with congenital heart disease. From Victoria Scoggins' journey into healthcare administration to Megan Tones' research in rare diseases, these narratives showcase the depth of impact that personal health can have on career choices and the contributions these individuals make to the healthcare field. We end the chapter with an essay by heart warrior and nurse, Roslyn Rivera--a nurse whose practice spanned the globe. As your host, Anna Jaworski, I'm here to reaffirm that the power of advocacy and community is just a heartbeat away, and together, we can navigate the landscapes of the heart with courage, dedication, and hope.

Websites mentioned in this episode:

Baby Hearts Press: https://www.babyheartspress.com

The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/59024446Tue, 12 Mar 2024 22:00:02 +0000Anna JaworskiWhen Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every...
In the 2nd and 3rd segments of the episode, you'll hear co-editors Megan Tones and Anna Jaworski reading from The Heart of a Heart Warrior Volume 2: Endurance. This week they're reading essays from Chapter 5 in anticipation of the next Baby Hearts Press Book Study, which starts on World Down Syndrome Day (March 21st) from 5-6 PM USA CDT.

It's the personal journeys that often strike the deepest chord, and this chapter resonates with stories of tenacity and the transformative power of companionship. Listen to the heartening tale of Monica Mossey and her service dog Jax, whose bond exemplifies the extraordinary support that can come from our four-legged friends. The courage of Tracey Grasty, through multiple heart surgeries and life's relentless challenges, will remind you of the strength that lies within our community, and the remarkable resilience we can muster when faced with life's daunting obstacles.

We round out the conversation by stepping into the shoes of those whose professional lives are shaped by their personal experiences with congenital heart disease. From Victoria Scoggins' journey into healthcare administration to Megan Tones' research in rare diseases, these narratives showcase the depth of impact that personal health can have on career choices and the contributions these individuals make to the healthcare field. We end the chapter with an essay by heart warrior and nurse, Roslyn Rivera--a nurse whose practice spanned the globe. As your host, Anna Jaworski, I'm here to reaffirm that the power of advocacy and community is just a heartbeat away, and together, we can navigate the landscapes of the heart with courage, dedication, and hope.

Websites mentioned in this episode:

Baby Hearts Press: https://www.babyheartspress.com

The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>726av_canal,book,brett_boyer,brett_boyer_foundation,chapter_5,congenital_heart_defect,down_syndrome,end_the_stereotypes,loss_of_a_child,megan_tones,monica_mossey,roslyn_rivera,the_heart_of_a_heart_warrior,tracey_grasty,victoria_scogginsfalse19440fullhttps://www.spreaker.com/episode/learning-about-anesthesia-during-ablations-audiobook-volume-two--58940791Heart to Heart with Anna, we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation.

Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia for over 23 years. One of his favorite departments to work with is the EP lab. In this episode, Frank shares some tips to help those in the congenital heart defect community reduce their concerns when visiting the EP lab, he offers some helpful questions patients can ask their anesthesia providers, and even shares some tips for how to reduce anxiety during their EP visits.

The 2nd and 3rd Segments involve Anna reading from The Heart of a Heart Warrior Volume Two: Endurance. This is one of the newest books from Baby Hearts Press. This is the second in a 3-book series of essays and works of art by adults with congenital heart defects.

In this podcast episode, Anna will read from the front matter of the book, including the Foreword, Preface, and Introduction.

Baby Hearts Press is hosting a Book Study for those interested in meeting some of the contributors to ask questions, as well as an opportunity to share their own experiences related to the topics discussed in the book. The Book Study for Volume Two begins on Thursday, March 24th from 5-6 PM Central Daylight Savings Time and runs for 4 consecutive Thursdays. To get a ticket to attend for only $10 per session, visit https://www.babyheartspress.com.

 
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58940791Wed, 06 Mar 2024 07:06:13 +0000Anna JaworskiIn this episode of Heart to Heart with Anna, we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation. Frank is a...Heart to Heart with Anna, we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation.

Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia for over 23 years. One of his favorite departments to work with is the EP lab. In this episode, Frank shares some tips to help those in the congenital heart defect community reduce their concerns when visiting the EP lab, he offers some helpful questions patients can ask their anesthesia providers, and even shares some tips for how to reduce anxiety during their EP visits.

The 2nd and 3rd Segments involve Anna reading from The Heart of a Heart Warrior Volume Two: Endurance. This is one of the newest books from Baby Hearts Press. This is the second in a 3-book series of essays and works of art by adults with congenital heart defects.

In this podcast episode, Anna will read from the front matter of the book, including the Foreword, Preface, and Introduction.

Baby Hearts Press is hosting a Book Study for those interested in meeting some of the contributors to ask questions, as well as an opportunity to share their own experiences related to the topics discussed in the book. The Book Study for Volume Two begins on Thursday, March 24th from 5-6 PM Central Daylight Savings Time and runs for 4 consecutive Thursdays. To get a ticket to attend for only $10 per session, visit https://www.babyheartspress.com.

 
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2467ablations,anesthetics,anna_jaworski,anxiety,arrhythmias,audiobook,book,congenital_heart_defects,electrophysiology,emla_cream,ep_lab,medications,pvcs,svts,the_heart_of_a_heart_warrior,volume_two_endurancefalse19439fullhttps://www.spreaker.com/episode/navigating-the-journey-of-parenting-children-with-autism-and-congenital-heart-defects-a-heartfelt-conversation-and-advocacy--58865841
In this heartfelt episode, we explore the challenges of getting a diagnosis and the critical role of having an IEP in place to support our children. We share our experiences with ABA therapy during the pandemic and how it has helped us better understand our children's behavior. We also discuss the importance of connecting with other parents for emotional and practical support, and how tenacity and a willingness to try different approaches are essential when it comes to finding the right program for your child.

Our journey as parents has shown us the power of advocacy within the congenital heart community. Throughout this episode, we emphasize the need for early intervention, support, and utilizing trusted medical resources to provide the best help for our children. By sharing our experiences, we hope to inspire and empower you to become an advocate for the congenital heart community and ensure that our neurologically and cardiac-challenged children receive the care and attention they deserve.

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58865841Wed, 28 Feb 2024 17:28:19 +0000Anna JaworskiAs a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their...
In this heartfelt episode, we explore the challenges of getting a diagnosis and the critical role of having an IEP in place to support our children. We share our experiences with ABA therapy during the pandemic and how it has helped us better understand our children's behavior. We also discuss the importance of connecting with other parents for emotional and practical support, and how tenacity and a willingness to try different approaches are essential when it comes to finding the right program for your child.

Our journey as parents has shown us the power of advocacy within the congenital heart community. Throughout this episode, we emphasize the need for early intervention, support, and utilizing trusted medical resources to provide the best help for our children. By sharing our experiences, we hope to inspire and empower you to become an advocate for the congenital heart community and ensure that our neurologically and cardiac-challenged children receive the care and attention they deserve.

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2487aba_therapy,autism,autism_spectrum,autistic_child_in_public_schoo,covid,diagnosis,epilepsy,homeschooling_an_autistic_chil,kelly_blumenthal,melanie_letzer,neuropsych_evaluation,seizures,special_needs_child,speech_pathologist,stroke,swimmifalse18425fullhttps://www.spreaker.com/episode/embracing-the-heartbeat-of-motherhood-meagan-houpt-s-adoption-journey--58859478
In the second segment of the podcast, we continue reading from The Heart of a Heart Warrior Volume One: Survival. This week, we complete Chapter 3: Being Active with CHD.
The courage of those facing congenital heart defects takes center stage as we share stories of triumph and transformation. Hear how heart warriors like and Alicia Lynch and Megan Tones find ways to be active, despite having complex congenital heart defects.

Megan takes us on an Egyptian odyssey that defies the ordinary. Imagine scaling Mount Sinai and wandering amidst ancient temples, all while balancing the intricacies of medical needs with the thrill of adventure. Her narrative captures the essence of wanderlust, peppered with humor and humanity, proving that even with health challenges, the zest for exploration knows no bounds. Alicia inspires us with her journal entries which lead us from a time of despair to a time of rejoicing.

In Chapter 4: CHDs Around the Globe

Amy M. Le, Ellen Banoub, and Belen Blanton channel their battles into creating waves of change and offering a helping hand to others within the CHD community. Amy's pivot from a tech giant to a champion for indie writers, Ellen's leap from a CHD survivor to a beacon of support, and Belen’s recounting of finding God’s mission for her showcase the remarkable resilience and tenacity inherent in our human spirit.

Join us, and let these tales of bravery, resilience, and the indomitable will to embrace life’s adventures inspire you.

Did you miss hearing Chapter One or the Front Matter of the book? Here are the links:

Front matter (Foreword, Preface and Introduction): http://tinyurl.com/H2HwAnnaE434

Chapter 1: http://tinyurl.com/H2HandChapter1

Chapter 2 and the first half of Chapter 3: http://tinyurl.com/H2HandChapter2andMore

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2) Facebook (https://www.facebook.com/HearttoHeartwithAnna/) YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw) Instagram (https://www.instagram.com/hugpodcastnetwork/)

Please support the podcast. For less than a cup of coffee, you can help us provide a high-quality program to the CHD community. https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>https://api.spreaker.com/episode/58859478Wed, 28 Feb 2024 06:15:47 +0000Anna JaworskiWhen Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with...
In the second segment of the podcast, we continue reading from The Heart of a Heart Warrior Volume One: Survival. This week, we complete Chapter 3: Being Active with CHD.
The courage of those facing congenital heart defects takes center stage as we share stories of triumph and transformation. Hear how heart warriors like and Alicia Lynch and Megan Tones find ways to be active, despite having complex congenital heart defects.

Megan takes us on an Egyptian odyssey that defies the ordinary. Imagine scaling Mount Sinai and wandering amidst ancient temples, all while balancing the intricacies of medical needs with the thrill of adventure. Her narrative captures the essence of wanderlust, peppered with humor and humanity, proving that even with health challenges, the zest for exploration knows no bounds. Alicia inspires us with her journal entries which lead us from a time of despair to a time of rejoicing.

In Chapter 4: CHDs Around the Globe

Amy M. Le, Ellen Banoub, and Belen Blanton channel their battles into creating waves of change and offering a helping hand to others within the CHD community. Amy's pivot from a tech giant to a champion for indie writers, Ellen's leap from a CHD survivor to a beacon of support, and Belen’s recounting of finding God’s mission for her showcase the remarkable resilience and tenacity inherent in our human spirit.

Join us, and let these tales of bravery, resilience, and the indomitable will to embrace life’s adventures inspire you.

Did you miss hearing Chapter One or the Front Matter of the book? Here are the links:

Front matter (Foreword, Preface and Introduction): http://tinyurl.com/H2HwAnnaE434

Chapter 1: http://tinyurl.com/H2HandChapter1

Chapter 2 and the first half of Chapter 3: http://tinyurl.com/H2HandChapter2andMore

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2) Facebook (https://www.facebook.com/HearttoHeartwithAnna/) YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw) Instagram (https://www.instagram.com/hugpodcastnetwork/)

Please support the podcast. For less than a cup of coffee, you can help us provide a high-quality program to the CHD community. https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support]]>3918adoption,anticoagulants,chronic_illness,congenital_heart_defects,delivery,family_planning,fontan_heart,high-risk_pregnancy,hlhs,meagan_houpt,podcast,pregnancy,single_ventricle,surrogacyfalse19438fullhttps://www.spreaker.com/episode/resilience-in-motion-the-unseen-struggles-of-adult-life-with-congenital-heart-defects--58761226
Segment 2 showcases co-editors Megan Tones and Anna Jaworski reading Chapter 2 of The Heart of a Heart Warrior Volume One: Survival

The heart of the chapter beats to the rhythm of personal stories that exemplify the myriad ways individuals with CHD find identity and purpose. From Hope’s inspiring transition and embrace of her true self as a transgender woman, to Jason Crutchley's dedication to volunteerism, and Christie Sillman's leap into a nursing career, these narratives are a testament to the strength found in the CHD community. These journeys illuminate how our warriors, often dubbed so for their battles against physical conditions, also strive for agency and the power of choice in defining their lives.

Segment 3 showcases the first two essays from Chapter 3 of The Heart of a Heart Warrior Volume One: Survival

Physical activity, often seen as a mountain too high for those with CHD, emerges as a pinnacle of personal triumph in these essays. Lorrie Hill's career pivot, and Michael Hills' adaptation to sports outside his initial dreams, are stories that underscore the tenacity of the human spirit. These anecdotes are not just about overcoming limitations, but about redefining personal goals and embracing one's passions, all while living with the realities of a congenital heart condition. Join us for this heartfelt exploration of life's challenges and victories.

Won’t you join us while we discuss these essays in our next Book Study? Co-editors Megan Tones and Anna Jaworski are joined by contributors to the book and others who want to discuss the topics raised in the book. These 1-hour sessions take place on Zoom. Visit https://www.babyheartspress.com for more information.

Did you miss hearing Chapter One or the Front Matter of the book? Here are the links:

Front matter (Foreword, Preface and Introduction): http://tinyurl.com/H2HwAnnaE434

Chapter 1: http://tinyurl.com/H2HandChapter1

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart) Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58761226Wed, 21 Feb 2024 17:00:02 +0000Anna JaworskiNavigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD....
Segment 2 showcases co-editors Megan Tones and Anna Jaworski reading Chapter 2 of The Heart of a Heart Warrior Volume One: Survival

The heart of the chapter beats to the rhythm of personal stories that exemplify the myriad ways individuals with CHD find identity and purpose. From Hope’s inspiring transition and embrace of her true self as a transgender woman, to Jason Crutchley's dedication to volunteerism, and Christie Sillman's leap into a nursing career, these narratives are a testament to the strength found in the CHD community. These journeys illuminate how our warriors, often dubbed so for their battles against physical conditions, also strive for agency and the power of choice in defining their lives.

Segment 3 showcases the first two essays from Chapter 3 of The Heart of a Heart Warrior Volume One: Survival

Physical activity, often seen as a mountain too high for those with CHD, emerges as a pinnacle of personal triumph in these essays. Lorrie Hill's career pivot, and Michael Hills' adaptation to sports outside his initial dreams, are stories that underscore the tenacity of the human spirit. These anecdotes are not just about overcoming limitations, but about redefining personal goals and embracing one's passions, all while living with the realities of a congenital heart condition. Join us for this heartfelt exploration of life's challenges and victories.

Won’t you join us while we discuss these essays in our next Book Study? Co-editors Megan Tones and Anna Jaworski are joined by contributors to the book and others who want to discuss the topics raised in the book. These 1-hour sessions take place on Zoom. Visit https://www.babyheartspress.com for more information.

Did you miss hearing Chapter One or the Front Matter of the book? Here are the links:

Front matter (Foreword, Preface and Introduction): http://tinyurl.com/H2HwAnnaE434

Chapter 1: http://tinyurl.com/H2HandChapter1

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart) Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3574adulting,anna_jaworski,career_in_medicine,congenital_heart_defects,heart_moms,identity,open-heart_surgery,parenting_adults_with_chds,parent_to_an_adult,planning_for_the_future,podcast,power_of_attorney,rita_scoggins,service,sports,volunteering,willsfalse19437fullhttps://www.spreaker.com/episode/threads-of-resilience-sewn-by-heart-moms-and-their-children-with-chds--58678034
This episode continues with reading from The Heart of a Heart Warrior Volume One: Survival. In this episode, co-editors Megan Tones and Anna Jaworski, take turns reading essays from the book. In Chapter One we read the narratives of heart warriors who've faced body insecurities and the trials of scoliosis with courage. Laura Ryan's story, in particular, shines as a beacon of hope; her transformative experience at the waterslides in Lancaster, learning to embrace her surgery scars, offers a deep dive into the power of empathy and connection. We hear how individuals like Michael McKelvey and Dajah Scrivner channel their pain and resilience into poignant expressions of life with CHD.

Our episode doesn't simply share stories; it offers a lattice of support, exploring how adaptive clothing and familial love can buoy spirits amidst adversity. As we discuss the importance of finding strength in community and the solace of shared experiences, we invite you to join us in a space that celebrates overcoming obstacles and the beauty of human connection. For all who walk the path with heart-defect warriors, this conversation is a testament to the enduring spirit and the ties that bind us all.

Rita’s other podcast episodes:

Rita, Victoria and Heidi Scoggins on The CHC Podcast: ‘Taking Control of Your Heart Condition’ https://www.spreaker.com/episode/taking-control-of-your-heart-condition--52885553

Rita as a Guest Host on Heart to Heart with Anna interviewing Laura Ryan. ‘Heart Warrior Mom Raising Children to Adulthood’ https://www.buzzsprout.com/62761/518296

Rita and Victoria Scoggins on Heart to Heart with Anna: ‘Congenital Heart Defect Awareness 2015’ https://www.buzzsprout.com/62761/398983

Learn more about our The Heart of a Heart Warrior Volume One: Survival Book Study and join us to discuss the book and share your stories. https://events.humanitix.com/the-heart-of-a-heart-warrior-volume-one-survival-book-study

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58678034Tue, 13 Feb 2024 22:00:02 +0000Anna JaworskiNavigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing...
This episode continues with reading from The Heart of a Heart Warrior Volume One: Survival. In this episode, co-editors Megan Tones and Anna Jaworski, take turns reading essays from the book. In Chapter One we read the narratives of heart warriors who've faced body insecurities and the trials of scoliosis with courage. Laura Ryan's story, in particular, shines as a beacon of hope; her transformative experience at the waterslides in Lancaster, learning to embrace her surgery scars, offers a deep dive into the power of empathy and connection. We hear how individuals like Michael McKelvey and Dajah Scrivner channel their pain and resilience into poignant expressions of life with CHD.

Our episode doesn't simply share stories; it offers a lattice of support, exploring how adaptive clothing and familial love can buoy spirits amidst adversity. As we discuss the importance of finding strength in community and the solace of shared experiences, we invite you to join us in a space that celebrates overcoming obstacles and the beauty of human connection. For all who walk the path with heart-defect warriors, this conversation is a testament to the enduring spirit and the ties that bind us all.

Rita’s other podcast episodes:

Rita, Victoria and Heidi Scoggins on The CHC Podcast: ‘Taking Control of Your Heart Condition’ https://www.spreaker.com/episode/taking-control-of-your-heart-condition--52885553

Rita as a Guest Host on Heart to Heart with Anna interviewing Laura Ryan. ‘Heart Warrior Mom Raising Children to Adulthood’ https://www.buzzsprout.com/62761/518296

Rita and Victoria Scoggins on Heart to Heart with Anna: ‘Congenital Heart Defect Awareness 2015’ https://www.buzzsprout.com/62761/398983

Learn more about our The Heart of a Heart Warrior Volume One: Survival Book Study and join us to discuss the book and share your stories. https://events.humanitix.com/the-heart-of-a-heart-warrior-volume-one-survival-book-study

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3503anna_jaworski,back_brace,body_image,bullying,congenital_heart_defects,heart_moms,hope_jaworski,open-heart_surgery,parenting_adults_with_chds,parent_to_an_adult,podcast,resilience,rita_scoggins,scars,scoliosis,support,survival,transitions,victoria_scoggins,vocal_cord_paralysisfalse19436fullhttps://www.spreaker.com/episode/heart-month-news-february-2024-and-an-audiobook-surprise--58592242Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has a special sale for Heart Month and how we’ll be conducting a Book Study of Volume One of The Heart of a Heart Warrior.

You’ll also learn about the new writers’ platform we’re working with in order to create some new books. Scribophile is a place for writers to come together to support one another. Join us in the Heart to Heart group for information for the CHD community.

Lastly, I’ll be sharing some behind-the-scenes information about The Heart of a Heart Warrior, our Kickstarter campaign, and why I’ve decided to record the audiobook this month—and give it away freely on Heart to Heart with Anna.

This episode features the front matter of the Kickstarter edition of the book. The Kickstarter edition of The Heart of a Heart Warrior contains the first three volumes in one hardcover edition of the book. In this podcast episode, you’ll hear me reading the poem that starts our book—‘I am a Miracle Child’ by Becca Atherton, the Dedication, Foreword, Preface, Acknowledgements, Introduction, and the opening to Volume One: Survival.

Helpful Links:

Baby Hearts Press Submission Page: https://www.babyheartspress.com/submissions

Baby Hearts Press Bookstore: https://babyheartspress.myshopify.com/

Scribophile Heart to Heart Group: https://www.scribophile.com/groups/heart-to-heart-writing-group/

Victoria and Rita’s episode about CHD Awareness: http://tinyurl.com/VictoriaScoggins

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58592242Tue, 06 Feb 2024 22:54:55 +0000Anna JaworskiThis episode of Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn...Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has a special sale for Heart Month and how we’ll be conducting a Book Study of Volume One of The Heart of a Heart Warrior.

You’ll also learn about the new writers’ platform we’re working with in order to create some new books. Scribophile is a place for writers to come together to support one another. Join us in the Heart to Heart group for information for the CHD community.

Lastly, I’ll be sharing some behind-the-scenes information about The Heart of a Heart Warrior, our Kickstarter campaign, and why I’ve decided to record the audiobook this month—and give it away freely on Heart to Heart with Anna.

This episode features the front matter of the Kickstarter edition of the book. The Kickstarter edition of The Heart of a Heart Warrior contains the first three volumes in one hardcover edition of the book. In this podcast episode, you’ll hear me reading the poem that starts our book—‘I am a Miracle Child’ by Becca Atherton, the Dedication, Foreword, Preface, Acknowledgements, Introduction, and the opening to Volume One: Survival.

Helpful Links:

Baby Hearts Press Submission Page: https://www.babyheartspress.com/submissions

Baby Hearts Press Bookstore: https://babyheartspress.myshopify.com/

Scribophile Heart to Heart Group: https://www.scribophile.com/groups/heart-to-heart-writing-group/

Victoria and Rita’s episode about CHD Awareness: http://tinyurl.com/VictoriaScoggins

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2617advocacy,anna_jaworski,audiobook,baby_hearts_press,becca_atherton,book_community,book_sale,book_study,book_submissions,book_writing_community,chd_awareness,chd_day,chd_month,chd_week,congenital_heart_defects,dr._corinne_smorra,megan_tones,scribophile,support_group,the_heart_of_a_heart_warriorfalse19435fullhttps://www.spreaker.com/episode/enriching-lives-with-chd-support-networks-and-healing-stories--58509427Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our mission extends beyond conversation; it's a call to empower, educate, and enrich the lives entwined with CHD and bereavement. We're unveiling exciting tweaks to our website, orchestrated by the talented Lauren England, that streamline your access to our treasure trove of resources and introduce a town hall-style podcast format that embraces the shared experiences of our listeners.

The journey continues as we traverse the landscape of loss and healing, led by the poignant narratives from Michael Liben's Bereaved But Still Me to the hope-infused Everyday Miracles. As executive producer, I wear my pride on my sleeve for the platform we've created that fosters profound conversations on life's toughest trials. Dive into the compassionate offerings on the HUG website, where support groups, therapy options, and unique programs like bravery beads await to guide individuals at every step of their heart journey. Discover the myriad of voices represented in our podcasts, including the wisdom of those who've walked the path of grief, and let them be your beacon of light in the darker moments.

As the episode draws to a close, we raise the banner for the unwavering support these families need, recognizing the vital role of organizations like the Adult Congenital Heart Association and the Cardiac Neurodevelopmental Outcome Collaborative. The heart's resilience is mirrored in the community itself, where heart-related camps offer solace and solidarity. Your support is the lifeline for our mission, and we invite you to contribute in any way you can—financially, as a volunteer, or simply by sharing our cause. Together, let's forge ahead towards the momentous goal of hiring an executive director, and continue to extend our hand to more families navigating through the world of CHD.

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2) Facebook (https://www.facebook.com/HearttoHeartwithAnna/) YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw) Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58509427Wed, 31 Jan 2024 05:34:26 +0000Anna JaworskiEmbark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me,...Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our mission extends beyond conversation; it's a call to empower, educate, and enrich the lives entwined with CHD and bereavement. We're unveiling exciting tweaks to our website, orchestrated by the talented Lauren England, that streamline your access to our treasure trove of resources and introduce a town hall-style podcast format that embraces the shared experiences of our listeners.

The journey continues as we traverse the landscape of loss and healing, led by the poignant narratives from Michael Liben's Bereaved But Still Me to the hope-infused Everyday Miracles. As executive producer, I wear my pride on my sleeve for the platform we've created that fosters profound conversations on life's toughest trials. Dive into the compassionate offerings on the HUG website, where support groups, therapy options, and unique programs like bravery beads await to guide individuals at every step of their heart journey. Discover the myriad of voices represented in our podcasts, including the wisdom of those who've walked the path of grief, and let them be your beacon of light in the darker moments.

As the episode draws to a close, we raise the banner for the unwavering support these families need, recognizing the vital role of organizations like the Adult Congenital Heart Association and the Cardiac Neurodevelopmental Outcome Collaborative. The heart's resilience is mirrored in the community itself, where heart-related camps offer solace and solidarity. Your support is the lifeline for our mission, and we invite you to contribute in any way you can—financially, as a volunteer, or simply by sharing our cause. Together, let's forge ahead towards the momentous goal of hiring an executive director, and continue to extend our hand to more families navigating through the world of CHD.

Visit the HUG website here: https://www.heartsunitetheglobe.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2) Facebook (https://www.facebook.com/HearttoHeartwithAnna/) YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw) Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2875anna_jaworski,belen_blanton,bereaved_but_still_me,camps,chd_magazine,financial_assistance,guerreros_del_corazon,hearts_unite_the_globe,heart_to_heart_with_anna,housing,marta_montero,michael_liben,nancy_jensen,ngos,nonprofit_organization,oxygen,podcasts,support,town-hall_format,transportationfalse19434fullhttps://www.spreaker.com/episode/from-manuscript-to-masterpiece-tales-of-tenacity-and-triumph--58323451
Turning the page, we navigate the nitty-gritty of book formatting, a task as challenging as it is crucial. Converting our labor of love into an e-book format presented us with a labyrinth of technical hiccups, where attention to detail became our guiding light. We discuss the importance of meticulous proofreading and editing, ensuring the stories we hold dear don't lose their essence in translation. The warmth and excitement of the community's embrace of our work remind us that these stories are not just ours—they belong to all who find solace and strength in them.

Our episode rounds off with a look at the power of collaborative writing platforms, particularly Scribophile, where we foster the growth of aspiring authors. By moving beyond the confines of Facebook groups, we provide a structured sanctuary for creativity and constructive critique. Sharing the touching narratives of CHD siblings, we shed light on the oft-overlooked heroes whose stories of strength and solidarity are as influential as those of the heart warriors themselves. As we announce future collaborations with co-editors Desiree Vaught and Sheri Turner, we extend an invitation: whether your medium is words or art, your story has a home with us.

To learn more about Baby Hearts Press submissions, use this link: https://www.babyheartspress.com/submissions

Scribophile group link: https://www.scribophile.com/groups/heart-to-heart-writing-group/

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58323451Tue, 16 Jan 2024 22:00:01 +0000Anna JaworskiEver wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea...
Turning the page, we navigate the nitty-gritty of book formatting, a task as challenging as it is crucial. Converting our labor of love into an e-book format presented us with a labyrinth of technical hiccups, where attention to detail became our guiding light. We discuss the importance of meticulous proofreading and editing, ensuring the stories we hold dear don't lose their essence in translation. The warmth and excitement of the community's embrace of our work remind us that these stories are not just ours—they belong to all who find solace and strength in them.

Our episode rounds off with a look at the power of collaborative writing platforms, particularly Scribophile, where we foster the growth of aspiring authors. By moving beyond the confines of Facebook groups, we provide a structured sanctuary for creativity and constructive critique. Sharing the touching narratives of CHD siblings, we shed light on the oft-overlooked heroes whose stories of strength and solidarity are as influential as those of the heart warriors themselves. As we announce future collaborations with co-editors Desiree Vaught and Sheri Turner, we extend an invitation: whether your medium is words or art, your story has a home with us.

To learn more about Baby Hearts Press submissions, use this link: https://www.babyheartspress.com/submissions

Scribophile group link: https://www.scribophile.com/groups/heart-to-heart-writing-group/

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2848angels,authors,baby_hearts_press,book_production,co-editors,congenital_heart_defects,fathers,healing_stories,heart_warriors,masterpieces,medical_stories,mothers,new_books,patients,validations_through_stories,writersfalse19432fullhttps://www.spreaker.com/episode/embracing-healing-the-synergy-of-functional-medicine-aromatherapy-and-spirituality--58247145
A brush with the serene world of aromatherapy during our discussion spotlights the soothing properties of essential oils, proving invaluable within the high-tension walls of an ICU. We recall how the scent of chamomile provided a tranquil harbor for anxious parents navigating the stormy seas of a child's hospital stay. Through anecdotes and expert advice, we navigate the practicalities of integrating these calming fragrances into stressful environments, while also honoring the deeply rooted emotional connections our sense of smell can evoke. It's a sensory journey that underscores the link between our olfactory experiences and our mental landscape.

As our heartfelt dialogue draws to a close, we explore the interplay between spirituality and mental health. Discover how HeartMath's biofeedback tools bring peace and coherence to both adults and children, and delve into the ancient wisdom of the Four Agreements, discussing its potential to shape our mental health practices. We also confront the theme of forgiveness, its role in our lives, and the catharsis of releasing resentment. As I bid you farewell until our next conversation, I invite you to continue exploring these topics on the CHC Podcast – Congenital Heart Conversations, where we unite, inspire, and empower the Congenital Heart Disease community through stories and support.

Websites You May Find Helpful:

Valerie Chavez’ website: https://gutmend.com/

Ryan Hunter’s website: https://functionalcoachingtx.com/

HeartMath website: https://www.heartmath.com/

Book Mentioned in the Episode which may interest you:

The Four Agreements by Don Miguel Ruiz

It Didn’t Start with You: How Inherited Family Trauma Shapes Who We Are and How to End the Cycle by Mark Wolynn

The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel A. van der Kolk

When the Body Says No: Understanding the Stress Disease Connection by Gabor Maté, M.D.

Link to the first functional medicine episode:

Exploring Functional Medicine: Harnessing the Power of Essential Oils and Holistic Health Approaches: http://tinyurl.com/4bvup423


To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58247145Wed, 10 Jan 2024 01:00:03 +0000Anna JaworskiHave you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, I'm thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicine's transformative role...
A brush with the serene world of aromatherapy during our discussion spotlights the soothing properties of essential oils, proving invaluable within the high-tension walls of an ICU. We recall how the scent of chamomile provided a tranquil harbor for anxious parents navigating the stormy seas of a child's hospital stay. Through anecdotes and expert advice, we navigate the practicalities of integrating these calming fragrances into stressful environments, while also honoring the deeply rooted emotional connections our sense of smell can evoke. It's a sensory journey that underscores the link between our olfactory experiences and our mental landscape.

As our heartfelt dialogue draws to a close, we explore the interplay between spirituality and mental health. Discover how HeartMath's biofeedback tools bring peace and coherence to both adults and children, and delve into the ancient wisdom of the Four Agreements, discussing its potential to shape our mental health practices. We also confront the theme of forgiveness, its role in our lives, and the catharsis of releasing resentment. As I bid you farewell until our next conversation, I invite you to continue exploring these topics on the CHC Podcast – Congenital Heart Conversations, where we unite, inspire, and empower the Congenital Heart Disease community through stories and support.

Websites You May Find Helpful:

Valerie Chavez’ website: https://gutmend.com/

Ryan Hunter’s website: https://functionalcoachingtx.com/

HeartMath website: https://www.heartmath.com/

Book Mentioned in the Episode which may interest you:

The Four Agreements by Don Miguel Ruiz

It Didn’t Start with You: How Inherited Family Trauma Shapes Who We Are and How to End the Cycle by Mark Wolynn

The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel A. van der Kolk

When the Body Says No: Understanding the Stress Disease Connection by Gabor Maté, M.D.

Link to the first functional medicine episode:

Exploring Functional Medicine: Harnessing the Power of Essential Oils and Holistic Health Approaches: http://tinyurl.com/4bvup423


To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3375congenital_heart_defects,essential_oils,forgiveness,functional_medicine,heartmath,medical_trauma,meditiation,mental_health,painting,personalized_care_approach,prayer,puzzles,singing,smell,stress,stress_relievers,survival,touch,triggers,western_medicinefalse19431fullhttps://www.spreaker.com/episode/uniting-hearts-a-decade-of-hope-support-and-volunteerism--58175358
Stepping into the future, I'm excited to open the doors to compassionate individuals eager to make a difference. Your unique skills can shine in various volunteer roles, from scripting heartfelt narratives to amplifying our reach on social media. Our collective efforts support Hearts Unite the Globe, ensuring that no one walks their CHD path alone. I have a particular fondness for LinkedIn as a hub of engagement—let it be the place where you step forward to join our passionate mission. Together, we will continue to be a beacon of light, wrapping the CHD community in a blanket of support and ensuring that every heart feels heard and valued.

Top 5 2023 Heart to Heart with Anna Episodes:

Link to #5 Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy with two fantastic heart moms — Melanie Letzer and Kelly Blumenthal. https://www.buzzsprout.com/62761/12993576An Unseen Threat: The Cody Watkins Story of Heart Failure and Recovery https://www.buzzsprout.com/62761/13210321Link to #4 Myocardial Bridging and Boots Knighton https://www.buzzsprout.com/62761/12585318Link to #3 Heart Mom and Heart Daughter on Being a Mom https://www.buzzsprout.com/62761/12765679Link to #2 Cardiac Chronicles and Community Connections: Leigh Kamping-Carder’s Story https://www.buzzsprout.com/62761/12988991Link to #1 LGBTQ+ and the CHD Community https://www.buzzsprout.com/62761/11968012

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/58175358Tue, 02 Jan 2024 20:12:45 +0000Anna JaworskiAs I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America...
Stepping into the future, I'm excited to open the doors to compassionate individuals eager to make a difference. Your unique skills can shine in various volunteer roles, from scripting heartfelt narratives to amplifying our reach on social media. Our collective efforts support Hearts Unite the Globe, ensuring that no one walks their CHD path alone. I have a particular fondness for LinkedIn as a hub of engagement—let it be the place where you step forward to join our passionate mission. Together, we will continue to be a beacon of light, wrapping the CHD community in a blanket of support and ensuring that every heart feels heard and valued.

Top 5 2023 Heart to Heart with Anna Episodes:

Link to #5 Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy with two fantastic heart moms — Melanie Letzer and Kelly Blumenthal. https://www.buzzsprout.com/62761/12993576An Unseen Threat: The Cody Watkins Story of Heart Failure and Recovery https://www.buzzsprout.com/62761/13210321Link to #4 Myocardial Bridging and Boots Knighton https://www.buzzsprout.com/62761/12585318Link to #3 Heart Mom and Heart Daughter on Being a Mom https://www.buzzsprout.com/62761/12765679Link to #2 Cardiac Chronicles and Community Connections: Leigh Kamping-Carder’s Story https://www.buzzsprout.com/62761/12988991Link to #1 LGBTQ+ and the CHD Community https://www.buzzsprout.com/62761/11968012

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1270blogtalkradio,buzzsprout,congenital_heart_defects,gratitude,hearts_unite_the_globe,looking_back,looking_forward,podcasting,recap,spreaker,voiceamerica,volunteerism,volunteersfalse19430fullhttps://www.spreaker.com/episode/finding-hope-amidst-long-q-t-syndrome-jackie-renfrow-s-journey--57919573
Jackie's experiences with Long QT Syndrome open up a world that is often misunderstood. How do you navigate through life when you and multiple family members are affected by a genetic heart condition? Jackie gives us a first-hand account of the symptoms, diagnosis, and treatment of Long Q-T Syndrome, as well as the emotional toll it takes. She emphasizes the importance of regular medical check-ups, cautious medication use, and a proper diagnosis. Find out how her family is rallying around this, the importance of comprehensive medical care, and how they're facing the realities and challenges of living with Long QT Syndrome.

We may not choose the trials we face, but we can choose to find blessings amidst adversity. In the spirit of finding light in the darkness, I share my own experiences of living with a congenital heart defect and the support that has been instrumental in my journey. As we approach the holiday season, I encourage you to join us in providing free programming for the congenital heart defect and bereaved communities. It's through our stories that we realize we are not alone, and it's in our blessings that we find hope. Join us for a profound understanding of Long QT Syndrome and a message of resilience and hope.

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/57919573Tue, 05 Dec 2023 17:03:06 +0000Anna JaworskiImagine living in a family where sudden deaths were a tragic norm. That's the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent...
Jackie's experiences with Long QT Syndrome open up a world that is often misunderstood. How do you navigate through life when you and multiple family members are affected by a genetic heart condition? Jackie gives us a first-hand account of the symptoms, diagnosis, and treatment of Long Q-T Syndrome, as well as the emotional toll it takes. She emphasizes the importance of regular medical check-ups, cautious medication use, and a proper diagnosis. Find out how her family is rallying around this, the importance of comprehensive medical care, and how they're facing the realities and challenges of living with Long QT Syndrome.

We may not choose the trials we face, but we can choose to find blessings amidst adversity. In the spirit of finding light in the darkness, I share my own experiences of living with a congenital heart defect and the support that has been instrumental in my journey. As we approach the holiday season, I encourage you to join us in providing free programming for the congenital heart defect and bereaved communities. It's through our stories that we realize we are not alone, and it's in our blessings that we find hope. Join us for a profound understanding of Long QT Syndrome and a message of resilience and hope.

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2038advocacy,bereavement,blessing,congenital_heart_defect,death_of_a_child,diagnosis,genetic_heart_defect,genetics,grief,jackie_renfrow,long_q-t_syndrome,loss_of_a_child,medical_journey,misdiagnosis,treatment_of_lqtsfalse18403fullhttps://www.spreaker.com/episode/an-extraordinary-chronicle-of-friendship-and-advocacy-the-emily-and-mabel-story--57539219
Have you ever wondered how the body adapts itself to survive a chronic illness? Emily provides a firsthand account of her body's fight for survival, and the challenges she faced, leading to her penning down a memoir about living with chronic illness. Listen to her describe the difficulties she faced in expressing her emotions, the support she found in her friendship with Mabel, and their collective efforts to raise awareness of those with congenital heart defects.

Discover the depth of Emily and Mabel's friendship, born out of shared experiences and a summer camp for children with congenital heart defects. Hear them discuss the power of being your own advocate, the strength they found in their enduring friendship, and the importance of resources like Emily's book for others going through similar experiences. Through special memories, advice for others, and a best friend's forever necklace, Emily and Mabel exemplify the extraordinary strength of the human spirit in their battle with congenital heart defects. Join us as they share their inspiring stories, and remind us that it is not our challenges that define us, but how we respond to them.

Link to Emily's Book: https://www.babyheartspress.com/emily-falcon

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/57539219Tue, 07 Nov 2023 17:00:03 +0000Anna JaworskiHow does a young child learn to fight, to survive, and even thrive when they're born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let...
Have you ever wondered how the body adapts itself to survive a chronic illness? Emily provides a firsthand account of her body's fight for survival, and the challenges she faced, leading to her penning down a memoir about living with chronic illness. Listen to her describe the difficulties she faced in expressing her emotions, the support she found in her friendship with Mabel, and their collective efforts to raise awareness of those with congenital heart defects.

Discover the depth of Emily and Mabel's friendship, born out of shared experiences and a summer camp for children with congenital heart defects. Hear them discuss the power of being your own advocate, the strength they found in their enduring friendship, and the importance of resources like Emily's book for others going through similar experiences. Through special memories, advice for others, and a best friend's forever necklace, Emily and Mabel exemplify the extraordinary strength of the human spirit in their battle with congenital heart defects. Join us as they share their inspiring stories, and remind us that it is not our challenges that define us, but how we respond to them.

Link to Emily's Book: https://www.babyheartspress.com/emily-falcon

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1958advocate,alcapa,anomolous_left_coronary_artery,aol_chat,author,cardiac_journey,chd,collateral_arteries,congenital_heart_defects,emily_falcon,friendship,from_the_sidelines_to_the_fini,heart_attack,internet,mabel,memoir,summer_campfalse18388fullhttps://www.spreaker.com/episode/exploring-functional-medicine-harnessing-the-power-of-essential-oils-and-holistic-health-approaches--57051803
Harness the power of essential oils and understand the importance of sourcing from reputable sources in our exploration of this therapeutic world. Ryan Hunter unveils the secrets of these potent substances, their historical use, benefits in stress relief, sleep induction, inflammation reduction, and more. Imagine enhancing your mental and emotional well-being with the simple application or inhalation of these oils. Intriguing, isn't it?

As we wrap up, we shed light on the often overlooked sensitivities and allergies many have towards certain foods. Valerie unravels the importance of an elimination diet and the power of listening to our bodies. Find out about natural remedies for pain and stress, from Epsom salt baths to Arnica Montana and essential oils. Empower yourself with the knowledge to take charge of your health. Join us on this journey of exploring holistic health approaches. Don't just survive; thrive.

You can reach out to Ryan Hunter and Dr. Valerie Chavez here:

https://functionalcoachingtx.com/my.doterra.com/functionalcoaching

https://www.ifm.org/practitioners/valerie-chavez-m-d/

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/57051803Wed, 04 Oct 2023 01:30:02 +0000Anna JaworskiHave you ever considered how your lifestyle choices could be affecting your health? Ever wondered about the benefits of essential oils or how to improve your gut health? Then you're in the right place. In a riveting discourse with renowned Valerie...
Harness the power of essential oils and understand the importance of sourcing from reputable sources in our exploration of this therapeutic world. Ryan Hunter unveils the secrets of these potent substances, their historical use, benefits in stress relief, sleep induction, inflammation reduction, and more. Imagine enhancing your mental and emotional well-being with the simple application or inhalation of these oils. Intriguing, isn't it?

As we wrap up, we shed light on the often overlooked sensitivities and allergies many have towards certain foods. Valerie unravels the importance of an elimination diet and the power of listening to our bodies. Find out about natural remedies for pain and stress, from Epsom salt baths to Arnica Montana and essential oils. Empower yourself with the knowledge to take charge of your health. Join us on this journey of exploring holistic health approaches. Don't just survive; thrive.

You can reach out to Ryan Hunter and Dr. Valerie Chavez here:

https://functionalcoachingtx.com/my.doterra.com/functionalcoaching

https://www.ifm.org/practitioners/valerie-chavez-m-d/

To reach Anna, visit https://heartsunitetheglobe.com or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3234anxiety,arnica,aroma_therapy,chamomile,doterra_essential_oils,epsom_salts,essential_oils,functional_medicine,functional_medicine_coach,gardening,grounding,gut_health,magnesium,musculoskeletal_pain,rosemary,stress,stretching,vitamin_deficiency,western_medicinefalse18427fullhttps://www.spreaker.com/episode/a-kid-again-family--57051757
This compelling episode takes you through the emotional journey of the Blankenships, right from the moment they first received Ian's diagnosis. They bravely face the challenges of countless medical procedures, and share the different milestones they have celebrated, each one a testament to Ian's resilience. There's also a deep dive into the strong bonds they've forged within the CHD community, a source of support that has proven invaluable over the years. The couple touch on the unique grief and isolation that comes with having a child with a heart defect and stress the importance of self-care in their fight against the odds.

But that's not all. We also explore their experiences with A Kid Again, an organization that offers much-needed respite to families with children who have chronic illnesses. They share how A Kid Again differs from Make-a-Wish, the empathy it has nurtured in their daughter Haley, and the benefits they've reaped as a family. Through this enlightening episode, we hope to give you a glimpse of what it truly means to be a heart warrior family, and inspire you to find strength amidst adversity. Join us and discover an inspiring narrative of courage and love.

To reach Anna, visit https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/57051757Wed, 04 Oct 2023 00:12:36 +0000Anna JaworskiHave you ever wondered about the strength that it takes to parent a heart warrior child? What does the journey of raising a child with a congenital heart defect look like? Meet Alison and Brian Blankenship, parents to two children, one of whom is a...
This compelling episode takes you through the emotional journey of the Blankenships, right from the moment they first received Ian's diagnosis. They bravely face the challenges of countless medical procedures, and share the different milestones they have celebrated, each one a testament to Ian's resilience. There's also a deep dive into the strong bonds they've forged within the CHD community, a source of support that has proven invaluable over the years. The couple touch on the unique grief and isolation that comes with having a child with a heart defect and stress the importance of self-care in their fight against the odds.

But that's not all. We also explore their experiences with A Kid Again, an organization that offers much-needed respite to families with children who have chronic illnesses. They share how A Kid Again differs from Make-a-Wish, the empathy it has nurtured in their daughter Haley, and the benefits they've reaped as a family. Through this enlightening episode, we hope to give you a glimpse of what it truly means to be a heart warrior family, and inspire you to find strength amidst adversity. Join us and discover an inspiring narrative of courage and love.

To reach Anna, visit https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2868a-kid-again_nonprofit,alison_blankenship,brian_blankenship,chronic_illness_support,congenital_heart_defect,congenital_heart_defects,intact_ventricular_septum,make-a-wish,open-heart_surgery,parental_support,pulmonary_atresia,sibling_supportfalse18426fullhttps://www.spreaker.com/episode/an-unseen-threat-the-cody-watkins-story-of-heart-failure-and-recovery--56336699
Cody's story takes an unexpected turn when during a regular training session, his valve ruptures. The wake-up call led him to the emergency room where the reality of his condition hit home. Cody discusses the symptoms leading up to his heart failure, his diagnosis, and the urgent call to action around heart health awareness.

Brace yourselves as Cody talks about his astonishing recovery - from reversing heart failure to shrinking his heart back to a normal size within a year. We discuss the adjustments to his diet, the role of supplements, and his determination to participate in a bodybuilding show, all while healing. With a fresh lease on life, Cody's journey is a testament to the human spirit's resilience and an unyielding desire to inspire others walking a similar path. Join us as we delve into Cody's extraordinary journey and the valuable lessons he's gathered from his heart condition.

To reach Anna, visit https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/56336699Tue, 01 Aug 2023 16:00:03 +0000Anna JaworskiMeet Cody Watkins, a beacon of resilience and health, who brushed against mortality when he discovered a congenital heart problem lurking beneath his ripped physique. Unaware of the ticking time bomb in his chest for 30 years, Cody offers a riveting...
Cody's story takes an unexpected turn when during a regular training session, his valve ruptures. The wake-up call led him to the emergency room where the reality of his condition hit home. Cody discusses the symptoms leading up to his heart failure, his diagnosis, and the urgent call to action around heart health awareness.

Brace yourselves as Cody talks about his astonishing recovery - from reversing heart failure to shrinking his heart back to a normal size within a year. We discuss the adjustments to his diet, the role of supplements, and his determination to participate in a bodybuilding show, all while healing. With a fresh lease on life, Cody's journey is a testament to the human spirit's resilience and an unyielding desire to inspire others walking a similar path. Join us as we delve into Cody's extraordinary journey and the valuable lessons he's gathered from his heart condition.

To reach Anna, visit https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3167bicuspid_aortic_valve,bodybuilder,cody_watkins,congenital_heart_defect,fitbit,heart_valve,heart_valve_replacement,mechanical_valve,open-heart_surgery,ross_procedure,undiagnosed_heart_conditionfalse18425fullhttps://www.spreaker.com/episode/cardiac-chronicles-and-community-connections-leigh-kamping-carder-s-story--54114436
In our conversation, we explore the medical trauma that comes with surviving open-heart procedures and the importance of addressing and normalizing this often unspoken aspect of living with a heart condition. Leigh shares her unique perspective on the differences in care she experienced as an adult with a cardiac condition in Canada and the United States, and the potential benefits of a more laid-back approach to care. Discover the choices patients can make when considering their health care and the impact of different philosophies of care.

Lastly, we talk about the importance of writing and reading for those with congenital heart conditions and how Leigh's journalism background has played a vital role in creating "The Heart Dialogues." Listen in for Leigh's advice on carving out time to write and her understanding that her life and health are finite, fueling her mission to help others. Don't miss this heartfelt conversation with Leigh Kamping-Carder, and be sure to check out "The Heart Dialogues" for more candid conversations and support within the congenital heart community.

To read Leigh's newsletter or to contact her:The Heart Dialogues newsletter: theheartdialogues.substack.comLeigh's Twitter handle: @Leigh_KC twitter.com/Leigh_KC

To reach Anna, visit: https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
Facebook (https://www.facebook.com/HearttoHeartwithAnna/)
YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)
Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/54114436Tue, 06 Jun 2023 16:00:02 +0000Anna JaworskiWhat if you could find a space to share your story, ask questions, and connect with others living with congenital heart conditions? Join me as I chat with Leigh Kamping-Carder, founder and writer of "The Heart Dialogues," a free newsletter that does...
In our conversation, we explore the medical trauma that comes with surviving open-heart procedures and the importance of addressing and normalizing this often unspoken aspect of living with a heart condition. Leigh shares her unique perspective on the differences in care she experienced as an adult with a cardiac condition in Canada and the United States, and the potential benefits of a more laid-back approach to care. Discover the choices patients can make when considering their health care and the impact of different philosophies of care.

Lastly, we talk about the importance of writing and reading for those with congenital heart conditions and how Leigh's journalism background has played a vital role in creating "The Heart Dialogues." Listen in for Leigh's advice on carving out time to write and her understanding that her life and health are finite, fueling her mission to help others. Don't miss this heartfelt conversation with Leigh Kamping-Carder, and be sure to check out "The Heart Dialogues" for more candid conversations and support within the congenital heart community.

To read Leigh's newsletter or to contact her:The Heart Dialogues newsletter: theheartdialogues.substack.comLeigh's Twitter handle: @Leigh_KC twitter.com/Leigh_KC

To reach Anna, visit: https://heartsunitetheglobe.org or email her at Anna@hearttoheartwithAnna.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2472brooklyn,canada,fontan,fontan_heart,india,journalist,leigh_kamping-carder,newsletter,new_york,socialized_medicine,the_heart_dialogues,toronto,tracy_livecchi,travel,tricuspid_atresia,tricuspid_valvefalse18424fullhttps://www.spreaker.com/episode/heart-mom-and-heart-daughter-on-being-a-mom--53716035
Meg Didier is a 30-year-old hHLHS survivor and a mother. After we finished recording her episode, “HLHS Survivor and Mother” earlier this year, I said it would be so wonderful to have her back on the show with her own mother for May 2023, especially in celebration of Mothers’ Day and she agreed.

Patty Hansen and I “met” online over two decades ago, when the Internet was young. We met via a listserv and shared inspiring stories about our heart warriors, questions we had, and shared concerns. We prayed for one another, gave helpful advice, and encouraged one another. When I decided to put together an anthology of stories by women around the world affected by congenital heart defects, Patty contributed an essay entitled ‘Finding the Good,’ which you can read starting on page 179 of “The Heart of a Mother.” This is my first time to actually speak with Patty!

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/53716035Tue, 02 May 2023 16:00:03 +0000Anna JaworskiWhat was it like to give birth to a baby with hypoplastic left heart syndrome (HLHS) in the 1990s? How would it feel like to watch that miracle child grow up to become a mother herself? What is it like to then see your daughter's daughter for the...
Meg Didier is a 30-year-old hHLHS survivor and a mother. After we finished recording her episode, “HLHS Survivor and Mother” earlier this year, I said it would be so wonderful to have her back on the show with her own mother for May 2023, especially in celebration of Mothers’ Day and she agreed.

Patty Hansen and I “met” online over two decades ago, when the Internet was young. We met via a listserv and shared inspiring stories about our heart warriors, questions we had, and shared concerns. We prayed for one another, gave helpful advice, and encouraged one another. When I decided to put together an anthology of stories by women around the world affected by congenital heart defects, Patty contributed an essay entitled ‘Finding the Good,’ which you can read starting on page 179 of “The Heart of a Mother.” This is my first time to actually speak with Patty!

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2554advice,anxiety,appreciation,coach,congenital_heart_condition,congenital_heart_defects,grandchildren,gratitude,gymnastics,high-risk_pregnancy,hlhs,hypoplastic_left_heart_syndrom,joy,legacy,meg_didier,memories,motherhood,mother's_day,patty_hansen,pregnancyfalse18423fullhttps://www.spreaker.com/episode/myocardial-bridging-and-boots-knighton--53439879
Boots Knighton is a 45-year-old myocardial bridging survivor from Victor, Idaho, and an avid mountain biker. She suffered a heart attack while biking when she was in her 40s. To correct the myocardial bridging, she underwent open-heart surgery in 2021. Her experiences have inspired her to start a podcast, called “The Heart Chamber,” and she is also working on a book.
In this episode, we'll learn about how Boots' condition was diagnosed, why she started a podcast, and how she's also writing a book.

Links mentioned in this episode:

The Facebook group that saved Boots' life:
https://www.facebook.com/groups/MyocardialBridge

Boots' podcast, The Heart Chamber:
www.theheartchamberpodcast.com
@theheartchamberpodcast

Boots' blog:
https://suzannebootsknighton.substack.com/

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)


Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/53439879Tue, 04 Apr 2023 16:00:02 +0000Anna JaworskiWhat is myocardial bridging? Why might someone with myocardial bridging have a heart attack? What is The Heart Chamber? Boots Knighton is a 45-year-old myocardial bridging survivor from Victor, Idaho, and an avid mountain biker. She suffered a heart...
Boots Knighton is a 45-year-old myocardial bridging survivor from Victor, Idaho, and an avid mountain biker. She suffered a heart attack while biking when she was in her 40s. To correct the myocardial bridging, she underwent open-heart surgery in 2021. Her experiences have inspired her to start a podcast, called “The Heart Chamber,” and she is also working on a book.
In this episode, we'll learn about how Boots' condition was diagnosed, why she started a podcast, and how she's also writing a book.

Links mentioned in this episode:

The Facebook group that saved Boots' life:
https://www.facebook.com/groups/MyocardialBridge

Boots' podcast, The Heart Chamber:
www.theheartchamberpodcast.com
@theheartchamberpodcast

Boots' blog:
https://suzannebootsknighton.substack.com/

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)
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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)


Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2365author,bicuspid_aortic_valve,boots_knighton,cardiology,dr._stephen_mckeller,endothelial_dysfunction,facebook_group,heart_attack,heart-lung_machine,lad,lcx,miracle,myocardial_bridging,open-heart_sugery,second_opinion,stanford_heatlhcare,stanford_hospital,the_heart_chamber,unroofing_surgeryfalsefullhttps://www.spreaker.com/episode/mended-little-hearts-austin-texas-coordinator-dana-henning--53123701
Dana is musically gifted. She is a former music teacher and choir director. These days she homeschools Evan and works as the Mended Little Hearts Austin Coordinator. She also works with the Parent Faculty Advisory Counsel at Dell Children’s Hospital in Austin, Texas. She serves on the Cardiac Patient & Family Partners team and her family is a member of the Dell Children’s Trust.

In this episode, Dana talks to Anna about what Mended Little Hearts does for the congenital heart defect community, how she is involved, and some of the activities the Austin Mended Little Hearts organization participates in. Of special note is an event occurring at an ice skating rink in Cedar Park in April 2023.

Links mentioned in this broadcast:

Dana's other Heart to Heart with Anna appearance:
https://www.spreaker.com/user/7668348/when-a-baby-needs-a-heart-transplant

Mended Little Hearts National page:
https://mendedhearts.org/about-us/about-mended-little-hearts/

Austin Mended Little Hearts Facebook page:
https://www.facebook.com/MendedLittleHeartsAustin

Email:
mendedlittleheartsaustin@gmail.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/53123701Tue, 07 Mar 2023 17:00:02 +0000Anna JaworskiDana Henning is mother to Evan Henning, who is a 12-year-old Heart Warrior born with a critical congenital heart defect. Evan has has multiple procedures and open-heart surgeries. His life is very full of therapy appointments, homeschool activities,...
Dana is musically gifted. She is a former music teacher and choir director. These days she homeschools Evan and works as the Mended Little Hearts Austin Coordinator. She also works with the Parent Faculty Advisory Counsel at Dell Children’s Hospital in Austin, Texas. She serves on the Cardiac Patient & Family Partners team and her family is a member of the Dell Children’s Trust.

In this episode, Dana talks to Anna about what Mended Little Hearts does for the congenital heart defect community, how she is involved, and some of the activities the Austin Mended Little Hearts organization participates in. Of special note is an event occurring at an ice skating rink in Cedar Park in April 2023.

Links mentioned in this broadcast:

Dana's other Heart to Heart with Anna appearance:
https://www.spreaker.com/user/7668348/when-a-baby-needs-a-heart-transplant

Mended Little Hearts National page:
https://mendedhearts.org/about-us/about-mended-little-hearts/

Austin Mended Little Hearts Facebook page:
https://www.facebook.com/MendedLittleHeartsAustin

Email:
mendedlittleheartsaustin@gmail.com

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1964austin_chd_sup,bravery_bags,cardiac_transplant,congenital_heart_conditions,congenital_heart_defects,dell_children's_hospital,heart_transplant,hlhs,hypoplastic_left_heart_syndrom,icu,mended_little_hearts,open-heart_surgeries,parents_in_the_icufalse18421fullhttps://www.spreaker.com/episode/vicky-gooden-2022-baby-hearts-press-people-s-choice-award-winner--52879198
Vicky Gooden is a senior consumer marketing professional with a career spanning over 18 years. She spent 15 years in the creative entertainment industries, working with record labels and broadcast television. She headed up United Kingdom and international marketing teams. Now Vicky is a freelance marketing consultant working with small businesses in industries, including interior design and healthcare.

A full-time mother, Vicky, understands the rigors of motherhood. She is a blogger and encourages other bloggers, as well. In the congenital heart defect community, she is probably best known for the book she wrote, My Wonder Line which is a children’s picture book about a little girl and her scar, based on Vicky’s own daughter, who was born with a congenital heart condition.

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52879198Tue, 28 Feb 2023 17:01:39 +0000Anna JaworskiToday's episode features Vicky Gooden, the author of My Wonder Line and the winner of the 2022 Baby Hearts Press People’s Choice Award. In this episode, we will hear about how Vicky came to write her book, what it meant to her to win the BHP People’s...
Vicky Gooden is a senior consumer marketing professional with a career spanning over 18 years. She spent 15 years in the creative entertainment industries, working with record labels and broadcast television. She headed up United Kingdom and international marketing teams. Now Vicky is a freelance marketing consultant working with small businesses in industries, including interior design and healthcare.

A full-time mother, Vicky, understands the rigors of motherhood. She is a blogger and encourages other bloggers, as well. In the congenital heart defect community, she is probably best known for the book she wrote, My Wonder Line which is a children’s picture book about a little girl and her scar, based on Vicky’s own daughter, who was born with a congenital heart condition.

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2005author,congenital_heart_defects,gooden,infertility,ivf,my_wonder_line,ope-heart_surgery,pregnancy,vickyfalse18420fullhttps://www.spreaker.com/episode/how-can-you-do-heart-surgery-through-a-hole-in-the-groin--52865367Heart to Heart with Anna for Heart Month, February 2023.

How can you do heart surgery through a hole in the groin? It seems like magic, but is it? What is a Maze Procedure? Why might someone need a pacemaker, even if they've had an ablation? How can heart valves be replaced via catheterization?

Tune in to hear certified, registered nurse anesthetist, Frank Jaworski, explain how these heart surgeries can occur, what kinds of problems doctors face when doing these procedures, and why anyone would want to have a procedure done this way rather than through open-heart surgery.

If you enjoyed this episode, you might enjoy the other Medical Monday episodes for Heart Month, February 2023:

A Parent Heart-Lung Machine: The Ultimate Gift
https://www.spreaker.com/user/7668348/medicalmonday-3

Medical Monday #2: Monkey Lungs!
https://www.spreaker.com/user/7668348/medicalmonday-2monkeylungs

HeartWorks Update 2023
https://www.spreaker.com/user/7668348/heartworks-update-2023

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)



Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52865367Mon, 27 Feb 2023 17:00:02 +0000Anna JaworskiWelcome to the 4th and final Medical Monday mini-series episode of Heart to Heart with Anna for Heart Month, February 2023. How can you do heart surgery through a hole in the groin? It seems like magic, but is it? What is a Maze Procedure? Why might...Heart to Heart with Anna for Heart Month, February 2023.

How can you do heart surgery through a hole in the groin? It seems like magic, but is it? What is a Maze Procedure? Why might someone need a pacemaker, even if they've had an ablation? How can heart valves be replaced via catheterization?

Tune in to hear certified, registered nurse anesthetist, Frank Jaworski, explain how these heart surgeries can occur, what kinds of problems doctors face when doing these procedures, and why anyone would want to have a procedure done this way rather than through open-heart surgery.

If you enjoyed this episode, you might enjoy the other Medical Monday episodes for Heart Month, February 2023:

A Parent Heart-Lung Machine: The Ultimate Gift
https://www.spreaker.com/user/7668348/medicalmonday-3

Medical Monday #2: Monkey Lungs!
https://www.spreaker.com/user/7668348/medicalmonday-2monkeylungs

HeartWorks Update 2023
https://www.spreaker.com/user/7668348/heartworks-update-2023

Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)



Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1931arrhythmia,atrial_fibrillation,cardioversion,congenital_heart_defects,cryoablaition,electrophysiology_lab,femoral_artery,interventional_cardiology,maze_procedure,open-chest_procedure,open-heart_surgery,pacemaker,prosthetic_valve,radiofrequency_ablation,scarring,super_glue,transcatheter_procedure,watchmanfalse18419fullhttps://www.spreaker.com/episode/a-heart-like-mine--52856563
Dan is father to Caylee Rodenbaugh, who was born on June 26, 2009, at St. Luke’s hospital in Lee’s Summit, Missouri. Caylee is his fourth daughter, but the first one with a heart condition.Dan Rodenbaugh is 52 years of age and he’s been happily married to Marie for 27 years. He was born with a heart defect and was treated at Children’s Mercy Hospital until he was 18 years old.He had a heart murmur which led to the discovery of his heart condition. Regardless, he did sports, including football, although he tired easier than other athletes his age.

In this episode, Frank talks to Dan about growing up with a congenital heart defect, what it was like to find out that his daughter also had a congenital heart defect, and what advice he has for his daughters and others when they have a history of congenital heart defects in their families.

Please take a moment to follow us on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52856563Sun, 26 Feb 2023 17:23:57 +0000Anna JaworskiThis is the final Heart Dad Sunday mini-series episode for Heart Month, February 2023. Frank Jaworski, Anna Jaworski's husband, and Heart Dad to a single ventricle heart warrior is back as the Guest Host. In this episode he interviews Dan Rodenbaugh....
Dan is father to Caylee Rodenbaugh, who was born on June 26, 2009, at St. Luke’s hospital in Lee’s Summit, Missouri. Caylee is his fourth daughter, but the first one with a heart condition.Dan Rodenbaugh is 52 years of age and he’s been happily married to Marie for 27 years. He was born with a heart defect and was treated at Children’s Mercy Hospital until he was 18 years old.He had a heart murmur which led to the discovery of his heart condition. Regardless, he did sports, including football, although he tired easier than other athletes his age.

In this episode, Frank talks to Dan about growing up with a congenital heart defect, what it was like to find out that his daughter also had a congenital heart defect, and what advice he has for his daughters and others when they have a history of congenital heart defects in their families.

Please take a moment to follow us on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1783aortic_atresia,aortic_valve_obstruction,bi-directional_glenn_shunt,catheterizations,children’s_mercy_hospital,congenital_heart_condition,congenital_heart_defect,ekg,fontan_procedure,grunting,heart_dad,hlhs,hypoplastic_left_heart_syndrom,mitral_atresia,multiple_organ_failure,norwood,pulmonary_stenosis,subaortic_stenosis,sub-valvular_aortic_stenosis,thick_ventricular_wallfalse18418fullhttps://www.spreaker.com/episode/the-heart-of-a-heart-warrior-book-project--52846514
Co-editors, Anna Jaworski and Megan Tones, open this podcast by talking about what the process of putting together a book like this has been like. They then take turns, just as they do in the book, with conducting mini-interviews with a handful of Heart Warrior contributors in the 2nd and 3rd segments.

You'll hear about new projects these authors are working on, how their lives have changed over the years since this project first came to be, or why they chose the topic they did. Anna hopes even more of the Heart Warrior contributors will share their experiences with the world, too.

To pre-order the book, use this link:
https://www.babyheartspress.com/heart-warrior-chd-pre-order-form.html


Please take a moment to follow us on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52846514Sat, 25 Feb 2023 17:00:02 +0000Anna JaworskiThis is our final episode for our Saturday Success Stories mini-series for Heart Month, February 2023, and it's hard to imagine any greater success story than the 40 Heart Warriors who have come together to create an amazing anthology called The Heart...
Co-editors, Anna Jaworski and Megan Tones, open this podcast by talking about what the process of putting together a book like this has been like. They then take turns, just as they do in the book, with conducting mini-interviews with a handful of Heart Warrior contributors in the 2nd and 3rd segments.

You'll hear about new projects these authors are working on, how their lives have changed over the years since this project first came to be, or why they chose the topic they did. Anna hopes even more of the Heart Warrior contributors will share their experiences with the world, too.

To pre-order the book, use this link:
https://www.babyheartspress.com/heart-warrior-chd-pre-order-form.html


Please take a moment to follow us on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2986anthology,anxiety,authors,book_project,congenital_heart_defects,emily_falcon,exceeding_expectations,facing_mortality,heart_warrior,laura_ryan,lauren_england,leslie_castro,lisa_colvil,lorrie_hill,margaret_raymond,megan_tones,michelle_deroofalse18417fullhttps://www.spreaker.com/episode/chds-in-society-the-movies--52837533
In this special mini-series episode for Heart Month 2023, Anna asks her Listeners to identify some famous movies which depict someone with a congenital heart condition (CHC).

Since congenital heart conditions are ubiquitous, it's interesting to see how people with these conditions are portrayed in the movies and what role the CHC plays in the movie's plot. Do you think the movies we chose did a good job of showing the world what it's like to have a CHC? Send us an email to Anna@hearttoheartwithanna.com to let us know what you think!

Other Links To CHD in Society episodes you may enjoy:

CHDs in Society #3: The Musicians
https://www.spreaker.com/user/7668348/chds-in-society-3-the-musicians

CHDs in Society #2: The Athletes
https://www.spreaker.com/user/7668348/chds-in-society-2-the-athletes

CHDs in Society #1: The Entertainers
https://www.spreaker.com/user/7668348/chdsinsociety-1theentertainers

Please take a moment to follow us on your preferred social media platforms:
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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52837533Fri, 24 Feb 2023 16:00:02 +0000Anna JaworskiWith congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their...
In this special mini-series episode for Heart Month 2023, Anna asks her Listeners to identify some famous movies which depict someone with a congenital heart condition (CHC).

Since congenital heart conditions are ubiquitous, it's interesting to see how people with these conditions are portrayed in the movies and what role the CHC plays in the movie's plot. Do you think the movies we chose did a good job of showing the world what it's like to have a CHC? Send us an email to Anna@hearttoheartwithanna.com to let us know what you think!

Other Links To CHD in Society episodes you may enjoy:

CHDs in Society #3: The Musicians
https://www.spreaker.com/user/7668348/chds-in-society-3-the-musicians

CHDs in Society #2: The Athletes
https://www.spreaker.com/user/7668348/chds-in-society-2-the-athletes

CHDs in Society #1: The Entertainers
https://www.spreaker.com/user/7668348/chdsinsociety-1theentertainers

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2257_pounds,barry_pepper,carroll_o’connor,chds,chds_in_society,congenital_heart_defects,david_duchovney,ethan_hawke,gattaca,jude_law,lawn_dogs,minnie_driver,mischa_barton,movies,return_to_me,rosario_dawson,sam_rockwell,uma_thurman,will_smith,woody_harrelsonfalse18386fullhttps://www.spreaker.com/episode/chd-spotlight-4-transposition-of-the-great-arteries--52826547
Chris Donald is a pediatric cardiology nurse and she was born with a complex congenital heart defect. Chris Donald also serves on the Hearts Unite the Globe Medical Board. Today's CHD Spotlight is on a type of heart defect commonly referred to as “TGA” or “TGV” -- transposition of the great arteries or transposition of the great vessels -- which are synonyms. We'll also learn about the difference between L-TGA and D-TGA, as well as, what cc-TGA means.

The other Heart to Heart with Anna episode featuring Chris Donald, RN:

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients https://www.buzzsprout.com/62761/3725774
This promo tells people about the raffle we have as HUG's fundraiser in early 2023.


Please take a moment to follow us on your preferred social media platforms:
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52826547Thu, 23 Feb 2023 17:00:02 +0000Anna JaworskiWelcome to the 4th CHD Spotlight episode for Heart Month 2023. Our Expert Guest is HUG MAB member, Chris Donald. Chris Donald is a pediatric cardiology nurse and she was born with a complex congenital heart defect. Chris Donald also serves on the...
Chris Donald is a pediatric cardiology nurse and she was born with a complex congenital heart defect. Chris Donald also serves on the Hearts Unite the Globe Medical Board. Today's CHD Spotlight is on a type of heart defect commonly referred to as “TGA” or “TGV” -- transposition of the great arteries or transposition of the great vessels -- which are synonyms. We'll also learn about the difference between L-TGA and D-TGA, as well as, what cc-TGA means.

The other Heart to Heart with Anna episode featuring Chris Donald, RN:

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients https://www.buzzsprout.com/62761/3725774
This promo tells people about the raffle we have as HUG's fundraiser in early 2023.


Please take a moment to follow us on your preferred social media platforms:
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1039cardiology,chd,heart,nurse,pediatric,tga,tgvfalse18415fullhttps://www.spreaker.com/episode/beauty-queen-author--52809717
Today’s show is Beauty Queen Author and our Guest is Faith Brackett. We’ll start today’s program by learning a bit about Faith and her health condition in Segment 1. In the second segment, we’ll talk about how Faith came to write a book and in the final segment, we’ll talk about how Tablet Talk and how Faith and her sister are working to help other children in the hospital.

Faith Brackett was born in the mid-1990s with HLHS. She has had 8 open-heart surgeries and was the first child to undergo what is now known as the bi-ventricle repair. She also received a valve-in-valve tricuspid replacement via the cath lab.

She has a Bachelor’s Degree in K-8 Elementary Education and a minor in Psychology. Faith has worn many hats, including educator, advocating for people with CHD, serving with CHD organizations, member of the Ultimate International Miss Organization, author, founder of CHD Tablet Talk, speaker, and content creator/ blogger.

Links related to this Guest:

www.faithbrackett.com
www.chdtablettalk.org
Instagram: @faithbrackett_

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52809717Wed, 22 Feb 2023 17:00:02 +0000Anna JaworskiHere is another episode in our Wednesday Writer Chat series of “Heart to Heart with Anna.” This is a special mini-series produced for Heart Month, February 2023. Today’s show is Beauty Queen Author and our Guest is Faith Brackett. We’ll start today’s...
Today’s show is Beauty Queen Author and our Guest is Faith Brackett. We’ll start today’s program by learning a bit about Faith and her health condition in Segment 1. In the second segment, we’ll talk about how Faith came to write a book and in the final segment, we’ll talk about how Tablet Talk and how Faith and her sister are working to help other children in the hospital.

Faith Brackett was born in the mid-1990s with HLHS. She has had 8 open-heart surgeries and was the first child to undergo what is now known as the bi-ventricle repair. She also received a valve-in-valve tricuspid replacement via the cath lab.

She has a Bachelor’s Degree in K-8 Elementary Education and a minor in Psychology. Faith has worn many hats, including educator, advocating for people with CHD, serving with CHD organizations, member of the Ultimate International Miss Organization, author, founder of CHD Tablet Talk, speaker, and content creator/ blogger.

Links related to this Guest:

www.faithbrackett.com
www.chdtablettalk.org
Instagram: @faithbrackett_

Please take a moment to follow us on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1617author,beauty_queen,bi-ventricular_repair,charity,congenital_heart_defects,ebook,faith_brackett,hlhs,open-heart_surgery,pageantry,self-advocacy,tablet_talkfalse18414fullhttps://www.spreaker.com/episode/warrior-pets-and-more-with-lilac-lumpkin--52803747How can one mom make a difference when it comes to children born with special needs? What kind of comfort and support is available to children living with a range of illnesses and disabilities? How can you get involved in helping our most vulnerable children feel supported?

Lilac Lumpkin is a mom to angel Heart Warrior Jaxon, who was born with HLHS. Jaxon loved many things in his life: pizza, superheroes, mac & cheese, and his mom. He never complained and never gave up. Jaxon lived to 5 years of age - 3 years longer than the doctors expected. To honor his life, Lilac started promoting a charity "Warrior Pets and More" which provides comfort and support to children living with special needs and raises awareness for a range of illnesses and disabilities.

The charity provides children with their own “Warrior Pet,” a customized stuffed animal embroidered with the child’s name and inspirational messages and shares the child’s story on their Facebook page. Every year for Jaxon’s birthday, Lilac and her husband Michael sponsor as many Warrior Pets as they can to bring joy to others. Lilac is also a stepmom to three wonderful children.

Link to Warrior Pets and More:
https://www.facebook.com/profile.php?id=100086189692329

Please take a moment to follow us on your preferred social media platforms:
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52803747Tue, 21 Feb 2023 17:00:57 +0000Anna JaworskiHow can one mom make a difference when it comes to children born with special needs? What kind of comfort and support is available to children living with a range of illnesses and disabilities? How can you get involved in helping our most vulnerable...How can one mom make a difference when it comes to children born with special needs? What kind of comfort and support is available to children living with a range of illnesses and disabilities? How can you get involved in helping our most vulnerable children feel supported?

Lilac Lumpkin is a mom to angel Heart Warrior Jaxon, who was born with HLHS. Jaxon loved many things in his life: pizza, superheroes, mac & cheese, and his mom. He never complained and never gave up. Jaxon lived to 5 years of age - 3 years longer than the doctors expected. To honor his life, Lilac started promoting a charity "Warrior Pets and More" which provides comfort and support to children living with special needs and raises awareness for a range of illnesses and disabilities.

The charity provides children with their own “Warrior Pet,” a customized stuffed animal embroidered with the child’s name and inspirational messages and shares the child’s story on their Facebook page. Every year for Jaxon’s birthday, Lilac and her husband Michael sponsor as many Warrior Pets as they can to bring joy to others. Lilac is also a stepmom to three wonderful children.

Link to Warrior Pets and More:
https://www.facebook.com/profile.php?id=100086189692329

Please take a moment to follow us on your preferred social media platforms:
Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1831angel_heart_mom,angel_warrior_pet,bi-directional_glenn_shunt,children_with_special_needs,collaterals,comfort,congenital_heart_defects,cyanotic_heart_condition,gratitude,heart_transplant,hlhs,hospice,jaundice,lilac_lumpkin,medically_fragile_children,norwood_procedure,stuffed_animals,support,warrior_pets,warrior_pets_and_morefalse18413fullhttps://www.spreaker.com/episode/a-parent-heart-lung-machine-the-ultimate-gift--52791562
What pediatric cardiothoracic surgeon seemed "too Hollywood"? Why? What is cross circulation and what was this experimental technique the predecessor of?

This Medical Monday episode deals with an amazing experimental surgical technique developed by Dr. C. Walton Lillehei. Frank and Anna Jaworski talk about what they learned about this procedure in the book King of Hearts by Rhode Island writer, G. Wayne Miller.

Dr. C. Walton Lillehei used cross circulation on 45 patients in the 1950s to operate on children with congenital heart defects. These children would have died without some form of surgical intervention. Not all of his surgeries were successful using this experimental technique, but it is amazing how many of his patients did survive! This technique was used on the first successful surgery to correct ventricular septal defect, atrioventricular canal defect, and tetralogy of Fallot.

Thanks to the work done by Dr. C. Walton Lillehei, and the development of the bubble oxygenator, he has become known as The Father of Open-Heart Surgery. We hope you enjoy this special episode of Heart to Heart with Anna.

Other Links You May Find Interesting: C. Walton Lillehei, the “Father of Open Heart Surgery” https://www.ahajournals.org/doi/10.1161/01.CIR.100.13.1364

King of Hearts (at Amazon)
https://www.amazon.com/King-Hearts-Maverick-Pioneered-Surgery/dp/0609807242/ref=sr_1_1?crid=U6PY4HODPPWC&keywords=King+of+Hearts+g.+wayne+miller&qid=1676907151&sprefix=king+of+hearts+g.+wayne+mille%2Caps%2C130&sr=8-1 C. Walton Lillehei, PhD, MD The Father of Open-Heart Surgery
https://med.umn.edu/lhi/about/c-walton-lillehei


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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52791562Mon, 20 Feb 2023 17:00:02 +0000Anna JaworskiThis is the 3rd episode in our Medical Monday mini-series for Heart Month, February 2023. What pediatric cardiothoracic surgeon seemed "too Hollywood"? Why? What is cross circulation and what was this experimental technique the predecessor of? This...
What pediatric cardiothoracic surgeon seemed "too Hollywood"? Why? What is cross circulation and what was this experimental technique the predecessor of?

This Medical Monday episode deals with an amazing experimental surgical technique developed by Dr. C. Walton Lillehei. Frank and Anna Jaworski talk about what they learned about this procedure in the book King of Hearts by Rhode Island writer, G. Wayne Miller.

Dr. C. Walton Lillehei used cross circulation on 45 patients in the 1950s to operate on children with congenital heart defects. These children would have died without some form of surgical intervention. Not all of his surgeries were successful using this experimental technique, but it is amazing how many of his patients did survive! This technique was used on the first successful surgery to correct ventricular septal defect, atrioventricular canal defect, and tetralogy of Fallot.

Thanks to the work done by Dr. C. Walton Lillehei, and the development of the bubble oxygenator, he has become known as The Father of Open-Heart Surgery. We hope you enjoy this special episode of Heart to Heart with Anna.

Other Links You May Find Interesting: C. Walton Lillehei, the “Father of Open Heart Surgery” https://www.ahajournals.org/doi/10.1161/01.CIR.100.13.1364

King of Hearts (at Amazon)
https://www.amazon.com/King-Hearts-Maverick-Pioneered-Surgery/dp/0609807242/ref=sr_1_1?crid=U6PY4HODPPWC&keywords=King+of+Hearts+g.+wayne+miller&qid=1676907151&sprefix=king+of+hearts+g.+wayne+mille%2Caps%2C130&sr=8-1 C. Walton Lillehei, PhD, MD The Father of Open-Heart Surgery
https://med.umn.edu/lhi/about/c-walton-lillehei


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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1721air_bolus,av_canal_defect,cardiac_surgery,cardiothoracic_surgeon,cross_circulation,c._walton_lillehei,dr._owen_wangensteen,dr._richard_varco,experiemental_technique,g._wayne_miller,heart-lung_machine,king_of_hearts,living_heart-lung_machine,open-heart_surgery,pediatric_cardiology,roller_pump,stroke,tetralogy_of_fallot,transparent_tubing,vsdfalse18412fullhttps://www.spreaker.com/episode/carl-wolford-heartwarrior-dad-and-grandfather--52782259
Carl Wolford was born with total anomalous pulmonary venous return or TAPVR and had surgery by Dr. Denton Cooley at 4 months of age in January 1958 at Texas Children’s Hospital in Houston, Texas. Carl was Dr. Cooley’s second successful case of this heart defect and the first one is now Carl’s friend.

Carl participated in a lifetime of sports: baseball, tennis, golf, anything with a ball and Carl was there. He even tried snow skiing–during which time he became aware of a problem with high altitudes and thin air when a person has a congenital heart condition.

Carl’s biggest passion is pool. He tours mostly the southern United States in tournaments. One of his goals was to win a national championship, which happened 3 years ago in Las Vegas. His new goal is to add a state title or two to his resume. Carl has 3 children and 5 grandchildren. None have any signs of heart issues of any kind. Carl has done great ever since he had his surgery with Dr. Cooley until he entered his 50s. He is now 65 years young and his motto is “Life is short, play hard.”

Carl's first appearance on Heart to Heart with Anna: https://www.buzzsprout.com/62761/398943 https://www.spreaker.com/user/7668348/encore-presentation-of-you-are-not-alone

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52782259Sun, 19 Feb 2023 17:33:42 +0000Anna JaworskiHere is another Heart Dad Sunday episode for Heart Month, February 2023. Like the other two episodes, this episode also features Heart Dad Frank Jaworski as the Guest Host. Today's Guest is Carl Wolford. Carl Wolford was born with total anomalous...
Carl Wolford was born with total anomalous pulmonary venous return or TAPVR and had surgery by Dr. Denton Cooley at 4 months of age in January 1958 at Texas Children’s Hospital in Houston, Texas. Carl was Dr. Cooley’s second successful case of this heart defect and the first one is now Carl’s friend.

Carl participated in a lifetime of sports: baseball, tennis, golf, anything with a ball and Carl was there. He even tried snow skiing–during which time he became aware of a problem with high altitudes and thin air when a person has a congenital heart condition.

Carl’s biggest passion is pool. He tours mostly the southern United States in tournaments. One of his goals was to win a national championship, which happened 3 years ago in Las Vegas. His new goal is to add a state title or two to his resume. Carl has 3 children and 5 grandchildren. None have any signs of heart issues of any kind. Carl has done great ever since he had his surgery with Dr. Cooley until he entered his 50s. He is now 65 years young and his motto is “Life is short, play hard.”

Carl's first appearance on Heart to Heart with Anna: https://www.buzzsprout.com/62761/398943 https://www.spreaker.com/user/7668348/encore-presentation-of-you-are-not-alone

Please take a moment to follow us on your preferred social media platforms:
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1969arrhythmias,carl_wolford,congenital_heart_defect,cyanosis,dr._denton_cooley,grandfather,open-heart_surgery,pacemaker,stress_test,tapvr,texas_children's_hospital,total_anomalous_pulmonary_venofalse18411fullhttps://www.spreaker.com/episode/2023-aha-teen-impact-sisters--52769807
This is the 2nd Saturday Success Story in our Heart Month 2023 mini-series! This features two sisters who have been impacted by congenital heart defects. My Loyal Listeners will remember when I interviewed their mother, Jessica Gutierrez-Rodriguez in Season 6 (Seizing the Day with Jessica Gutierrez-Rodriguez), or in Season 10 (Discovering Hidden Talents in Our Heart Warriors); however, this is the first time for her daughters to come on the program.Marianne and Angelica attend Great Hearts Monte Vista North School and are in the 8th and 9th grades. The girls have always been very close. Marianne does recreational fencing and is part of the National Hispanic Institute Great Debate San Antonio team. Angelica loves taking piano lessons. These young ladies have been nominated for the 2023 American Heart Association Teen of Impact award and are competing to make the most significant impact by raising awareness and critically needed funds to support research and education initiatives.To donate to Marianne and Angelica's initiative, use this link: https://www.oneheartonefight.org/

Links to Jessica Gutierrez-Rodriguez's other Heart to Heart with Anna appearances:

Seizing the Day with Jessica Gutierrez-Rodriguez!
https://www.spreaker.com/user/7668348/seizing-the-day-with-jessica-gutierrez-r

Discovering Hidden Talents in our Heart Warriors
https://www.spreaker.com/user/7668348/discovering-hidden-talents-in-our-heart-

The Children's Heart Foundation: https://www.childrensheartfoundation.org/

The American Heart Association:
https://www.heart.org/

The Maple Street Biscuit Company
https://locations.maplestreetbiscuits.com/en-us/tx/san-antonio/quarry-village/


Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52769807Sat, 18 Feb 2023 17:00:02 +0000Anna JaworskiWhy would a pair of teen sisters be interested in working with the American Heart Association? How can these sisters make a difference? How much money do these young ladies plan to raise and how can you get involved? This is the 2nd Saturday Success...
This is the 2nd Saturday Success Story in our Heart Month 2023 mini-series! This features two sisters who have been impacted by congenital heart defects. My Loyal Listeners will remember when I interviewed their mother, Jessica Gutierrez-Rodriguez in Season 6 (Seizing the Day with Jessica Gutierrez-Rodriguez), or in Season 10 (Discovering Hidden Talents in Our Heart Warriors); however, this is the first time for her daughters to come on the program.Marianne and Angelica attend Great Hearts Monte Vista North School and are in the 8th and 9th grades. The girls have always been very close. Marianne does recreational fencing and is part of the National Hispanic Institute Great Debate San Antonio team. Angelica loves taking piano lessons. These young ladies have been nominated for the 2023 American Heart Association Teen of Impact award and are competing to make the most significant impact by raising awareness and critically needed funds to support research and education initiatives.To donate to Marianne and Angelica's initiative, use this link: https://www.oneheartonefight.org/

Links to Jessica Gutierrez-Rodriguez's other Heart to Heart with Anna appearances:

Seizing the Day with Jessica Gutierrez-Rodriguez!
https://www.spreaker.com/user/7668348/seizing-the-day-with-jessica-gutierrez-r

Discovering Hidden Talents in our Heart Warriors
https://www.spreaker.com/user/7668348/discovering-hidden-talents-in-our-heart-

The Children's Heart Foundation: https://www.childrensheartfoundation.org/

The American Heart Association:
https://www.heart.org/

The Maple Street Biscuit Company
https://locations.maplestreetbiscuits.com/en-us/tx/san-antonio/quarry-village/


Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1697aha,american_heart_association,congenital_heart_defects,donations,fundraising,fundraising_campaign,hrhs,hypoplastic_right_heart_syndro,making_a_difference,open-heart_surgery,sisters,teen_impact_award,working_togetherfalse18410fullhttps://www.spreaker.com/episode/chds-in-society-3-the-musicians--52768054
In this special mini-series for Heart Month 2023, Anna asks her Listeners to identify some famous musicians who have been touched by CHDs.

So many people think that if they have a heart defect, they won't have the stamina to become great at what they love. That’s not true, my friends, and the following FOUR people are an example of how people can still excel, despite having a heart defect. Do you know who these people are? See if you can guess!

Links to other shows you may enjoy:

Paul Cardall
The Broken Miracle
https://www.spreaker.com/user/7668348/the-broken-miracle

Heart Dad Sunday -- A Child’s Role in Transplant Recovery for a Heart Dad
https://www.spreaker.com/user/7668348/a-childs-role-in-transplant-recovery-for

Myles Schweitzer
Seizing the Day with Myles Schweitzer!
https://www.spreaker.com/user/7668348/seizing-the-day-with-myles-schweitzer


Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52768054Fri, 17 Feb 2023 17:00:02 +0000Anna JaworskiWith congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their...
In this special mini-series for Heart Month 2023, Anna asks her Listeners to identify some famous musicians who have been touched by CHDs.

So many people think that if they have a heart defect, they won't have the stamina to become great at what they love. That’s not true, my friends, and the following FOUR people are an example of how people can still excel, despite having a heart defect. Do you know who these people are? See if you can guess!

Links to other shows you may enjoy:

Paul Cardall
The Broken Miracle
https://www.spreaker.com/user/7668348/the-broken-miracle

Heart Dad Sunday -- A Child’s Role in Transplant Recovery for a Heart Dad
https://www.spreaker.com/user/7668348/a-childs-role-in-transplant-recovery-for

Myles Schweitzer
Seizing the Day with Myles Schweitzer!
https://www.spreaker.com/user/7668348/seizing-the-day-with-myles-schweitzer


Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>425back_street_boys,brian_littrell,congenital_heart_defects,heartbeats,hlhs,jessie_j,music,musicians,myles_schweitzer,paul_cardall,piano,singer,song_writer,stone_angel_music,stroke,transplant,vsd,wild_mooseman_band,wolff-parkinson-white_syndromefalse18fullhttps://www.spreaker.com/episode/chd-spotlight-3-tetralogy-of-fallot--52755913
Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode, Roslyn shares with Anna what tetralogy of Fallot is, who coined the term for this complex congenital heart condition, what methods are used to palliate the condition, what some possible causes of the condition are, and survival rates for babies born with ToF.

In the second segment, Roslyn even shares the name of a famous athlete born with ToF, proving that ToF doesn't have to mean that a person will have an inferior life and that there is great hope for babies born with this heart condition today.

Other Heart to Heart with Anna episodes featuring Rosyln Rivera, RN:

Congenital Heart Defects Around the Globe: The Novick Cardiac Alliance
https://www.spreaker.com/user/7668348/chds-around-the-globe-novick-cardiac-all

A View From the Other Side of the Bed
https://www.spreaker.com/user/7668348/a-view-from-the-other-side-of-the-bed

Nurse Burnout in the CHD Community Part 1
https://www.spreaker.com/user/7668348/nurse-burnout-in-the-chd-community

Nurse Burnout in the CHD Community Part 2
https://www.spreaker.com/user/7668348/s15e8track1auphonic-1

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52755913Thu, 16 Feb 2023 17:00:02 +0000Anna JaworskiThis is the 3rd episode in our CHD Spotlight mini-series and we'll be talking about Tetralogy of Fallot. Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode,...
Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode, Roslyn shares with Anna what tetralogy of Fallot is, who coined the term for this complex congenital heart condition, what methods are used to palliate the condition, what some possible causes of the condition are, and survival rates for babies born with ToF.

In the second segment, Roslyn even shares the name of a famous athlete born with ToF, proving that ToF doesn't have to mean that a person will have an inferior life and that there is great hope for babies born with this heart condition today.

Other Heart to Heart with Anna episodes featuring Rosyln Rivera, RN:

Congenital Heart Defects Around the Globe: The Novick Cardiac Alliance
https://www.spreaker.com/user/7668348/chds-around-the-globe-novick-cardiac-all

A View From the Other Side of the Bed
https://www.spreaker.com/user/7668348/a-view-from-the-other-side-of-the-bed

Nurse Burnout in the CHD Community Part 1
https://www.spreaker.com/user/7668348/nurse-burnout-in-the-chd-community

Nurse Burnout in the CHD Community Part 2
https://www.spreaker.com/user/7668348/s15e8track1auphonic-1

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1296blalock-thomas-taussig_shunt,blue_baby_syndrome,complex_congenital_heart_defec,cyanosis,digeorge_syndrome,down_syndrome,dr._alfred_blalock,dr._helen_taussig,hybrid_procedure,interventional_cardiology,johns_hopkins_university,open-heart_surgery,overriding_aorta,pulmonary_stenosis,right_ventricular_hypertrophy,shaun_white,tetralogy_of_fallot,valve_replacement,vivien_thomas,vsdfalse18408fullhttps://www.spreaker.com/episode/heart-mom-author-maggie-schmeider--52743995
We’ll start today’s program by learning a bit about Maggie and her daughter’s health condition in Segment 1. In the second segment, we’ll talk about how Maggie came to write her book for the CHD community and in the final segment we’ll get some advice from Maggie and learn what her plans are for the future.Maggie Schmeider is an author and a self-proclaimed dabbler! She loves learning and when she finds something she loves, she pours her heart and soul into making that something little into something big. Her first book was A Very Divvy Day which captures her love for animals, whimsy, and words. Maggie is married to Derek and together they have two daughters–Ebby and Wynnie, dogs Dottie and Archie, and a pet hamster named Divvy! Maggie’s second daughter, Wynnie, has had a chronic heart condition which seems to be under better control now, but we’ll learn more about that in the first segment.

Helpful links:

For more info check out Maggie's website: https://www.maggieschmieder.comInstagram: @author_maggie_schmiederFacebook: Author Maggie Schmieder

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Website——https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52743995Wed, 15 Feb 2023 17:00:02 +0000Anna JaworskiThis is another episode in our Wednesday Writer Chat mini-series of Heart to Heart with Anna for Heart Month, February 2023. We’ll start today’s program by learning a bit about Maggie and her daughter’s health condition in Segment 1. In the second...
We’ll start today’s program by learning a bit about Maggie and her daughter’s health condition in Segment 1. In the second segment, we’ll talk about how Maggie came to write her book for the CHD community and in the final segment we’ll get some advice from Maggie and learn what her plans are for the future.Maggie Schmeider is an author and a self-proclaimed dabbler! She loves learning and when she finds something she loves, she pours her heart and soul into making that something little into something big. Her first book was A Very Divvy Day which captures her love for animals, whimsy, and words. Maggie is married to Derek and together they have two daughters–Ebby and Wynnie, dogs Dottie and Archie, and a pet hamster named Divvy! Maggie’s second daughter, Wynnie, has had a chronic heart condition which seems to be under better control now, but we’ll learn more about that in the first segment.

Helpful links:

For more info check out Maggie's website: https://www.maggieschmieder.comInstagram: @author_maggie_schmiederFacebook: Author Maggie Schmieder

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1410arrhythmias,author,books,congenital_heart_defects,electrical_heart_problems,electrophysiologist,heart_block,illustrator,lurie_children's_hospital,maggie_schmeider,pacemaker,self-publisherfalse18fullhttps://www.spreaker.com/episode/healing-hearts-and-minds-in-the-chd-community--52722553
Tracy Livecchi received her Master’s Degree in Social Work from Rutgers University. She has worked in a variety of settings as a private therapist, a clinical director, as well as a consultant for long-term care in hospital settings. She has been working as a psychotherapist in private practice since 1998, and currently provides psychotherapy to individual adults, adolescents, and couples in her Westport practice. She works from an eclectic theoretical orientation and provides supportive counseling while also utilizing cognitive, behavioral, psychodynamic, and trauma-informed, mindfulness approaches, when appropriate. She is the Mental Health Consultant for the Adult Congenital Heart Association’s Peer Mentorship Program and speaks nationwide on the importance of addressing the psychosocial effects of heart disease. She lives in Connecticut with her husband and two daughters. Recently, she teamed up with Liza Morton, another adult with a congenital heart condition. They have combined their experiences, knowledge, and efforts to write a book “Healing Hearts and Minds: A Guide to Coping Well With Congenital Heart Disease (CHD).” Links mentioned in this episode:

Tracy's other Heart to Heart with Anna appearance "Seizing the Day with Tracy Livecchi!" https://www.buzzsprout.com/62761/398951

Link to Tracy and Liza's book on Amazon: https://www.amazon.com/Healing-Hearts-Minds-Holistic-Congenital/dp/0197657281#detailBullets_feature_div,

@tracylivecchi (Instagram and twitter)
Tracy Livecchi, LCSW (Facebook)
www.tracylivecchi.com

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Website——https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52722553Tue, 14 Feb 2023 17:00:02 +0000Anna JaworskiWhat are some special considerations that need to be made for the mental health of someone born with a cardiac condition? Why should there be a book specifically for understanding the mental and emotional development of people born with critical...
Tracy Livecchi received her Master’s Degree in Social Work from Rutgers University. She has worked in a variety of settings as a private therapist, a clinical director, as well as a consultant for long-term care in hospital settings. She has been working as a psychotherapist in private practice since 1998, and currently provides psychotherapy to individual adults, adolescents, and couples in her Westport practice. She works from an eclectic theoretical orientation and provides supportive counseling while also utilizing cognitive, behavioral, psychodynamic, and trauma-informed, mindfulness approaches, when appropriate. She is the Mental Health Consultant for the Adult Congenital Heart Association’s Peer Mentorship Program and speaks nationwide on the importance of addressing the psychosocial effects of heart disease. She lives in Connecticut with her husband and two daughters. Recently, she teamed up with Liza Morton, another adult with a congenital heart condition. They have combined their experiences, knowledge, and efforts to write a book “Healing Hearts and Minds: A Guide to Coping Well With Congenital Heart Disease (CHD).” Links mentioned in this episode:

Tracy's other Heart to Heart with Anna appearance "Seizing the Day with Tracy Livecchi!" https://www.buzzsprout.com/62761/398951

Link to Tracy and Liza's book on Amazon: https://www.amazon.com/Healing-Hearts-Minds-Holistic-Congenital/dp/0197657281#detailBullets_feature_div,

@tracylivecchi (Instagram and twitter)
Tracy Livecchi, LCSW (Facebook)
www.tracylivecchi.com

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook——https://www.facebook.com/HearttoHeartwithAnna/

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MeWe——https://mewe.com/i/annajaworski

Twitter——https://twitter.com/AnnaJaworski

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Website——https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1761chronic_illness,congenital_heart_conditions,congenital_heart_defects,depression,mental_health,open-heart_surgery,psychosocial_development,stressfalse18406fullhttps://www.spreaker.com/episode/medical-monday-2-monkey-lungs--52717989
Curious about what procedure would utilize monkey lungs, Anna did some research and found an article in the December 2021 journal Perfusion Theory and she shared it with her husband, who is a certified, registered nurse anesthetist. He also looked deeper on the Internet to see what he could find out about this curious time in congenital heart disease history.

This episode not only reveals what Frank and Anna discovered online but some personal anecdotes from Frank about working in the operating room, as well as some interesting facts about Dr. William Thornton Mustard.

Links mentioned in this episode: Dr, Mustard’s Macabre Monkey Machine by Gary Grist and Kelly Hedlund https://perfusiontheory.com/history/dr-mustards-macabre-monkey-machine-by-gary-grist-and-kelly-hedlund/

Richard's Schwindt's episode: https://www.spreaker.com/user/7668348/richard-schwindt-revised

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52717989Mon, 13 Feb 2023 17:00:02 +0000Anna JaworskiThis is the second episode in our Heart Month 2023 Medical Monday series. In last week's Wednesday Writer Chat, Anna talked to author Richard Schwindt about his life and he was born in the 1950s with a congenital heart condition. He informed Anna that...
Curious about what procedure would utilize monkey lungs, Anna did some research and found an article in the December 2021 journal Perfusion Theory and she shared it with her husband, who is a certified, registered nurse anesthetist. He also looked deeper on the Internet to see what he could find out about this curious time in congenital heart disease history.

This episode not only reveals what Frank and Anna discovered online but some personal anecdotes from Frank about working in the operating room, as well as some interesting facts about Dr. William Thornton Mustard.

Links mentioned in this episode: Dr, Mustard’s Macabre Monkey Machine by Gary Grist and Kelly Hedlund https://perfusiontheory.com/history/dr-mustards-macabre-monkey-machine-by-gary-grist-and-kelly-hedlund/

Richard's Schwindt's episode: https://www.spreaker.com/user/7668348/richard-schwindt-revised

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>581congenital_heart_condition,congenital_heart_defect,dr._william_thornton_mustard,heart_lung_machine,heart-lung_machine_precursor,historical_anecdote,medical_history,medical_technology,monkey_lungs,mustard_procedure,rhesus_monkeysfalse18fullhttps://www.spreaker.com/episode/heart-dad-sunday-2-tom-hansen-heart-dad-podcaster-and-author--52706097Why would a heart dad decide to host a podcast? Why would he write a book for the congenital heart defect community? What has this dad learned from having a child with a heart defect?

Tom and Kat Hansen are parents to Audrey and Harding. In 2014, Harding was diagnosed with multiple congenital heart defects in utero, for which he has undergone three open-heart surgeries and multiple other procedures.

Inspired by their journey with Harding, Tom and his wife wrote a book and then they started a podcast, The Hope and Courage Podcast for CHD Parents, where they share their insights and interview experts and people with a lived experience of CHD.

Their book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease was released in 2022. A former high school math teacher, Tom is currently a corporate trainer and instructional designer. Tom’s family lives in Cincinnati, Ohio and they enjoy going on adventures together. Links for more information about Tom and Kat Hansen:

Their website: https://www.tomandkathansen.com/ (for their podcast, their book, and free resources)

Tom and Kat's previous Heart to Heart with Anna episode: The Tom-Kat Team: Raising Awareness of Congenital Heart Defects: https://www.spreaker.com/user/7668348/the-tom-kat-team-raising-awareness-of-co

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52706097Sun, 12 Feb 2023 17:00:02 +0000Anna JaworskiWhy would a heart dad decide to host a podcast? Why would he write a book for the congenital heart defect community? What has this dad learned from having a child with a heart defect? Tom and Kat Hansen are parents to Audrey and Harding. In 2014,...Why would a heart dad decide to host a podcast? Why would he write a book for the congenital heart defect community? What has this dad learned from having a child with a heart defect?

Tom and Kat Hansen are parents to Audrey and Harding. In 2014, Harding was diagnosed with multiple congenital heart defects in utero, for which he has undergone three open-heart surgeries and multiple other procedures.

Inspired by their journey with Harding, Tom and his wife wrote a book and then they started a podcast, The Hope and Courage Podcast for CHD Parents, where they share their insights and interview experts and people with a lived experience of CHD.

Their book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease was released in 2022. A former high school math teacher, Tom is currently a corporate trainer and instructional designer. Tom’s family lives in Cincinnati, Ohio and they enjoy going on adventures together. Links for more information about Tom and Kat Hansen:

Their website: https://www.tomandkathansen.com/ (for their podcast, their book, and free resources)

Tom and Kat's previous Heart to Heart with Anna episode: The Tom-Kat Team: Raising Awareness of Congenital Heart Defects: https://www.spreaker.com/user/7668348/the-tom-kat-team-raising-awareness-of-co

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Website——https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1751author,book,chds,compassion,congenital_heart_defects,congenital_heart_disease,courage,father,heart,hope,hope_&_courage_podcast,informed_optimism,in-utero_diagnosis,open-heart_surgery,podcaster,post-traumatic_growth,refiner's_fire,self-advocacy,tom_hansen,traumafalse18404fullhttps://www.spreaker.com/episode/hrhs-heart-warrior-mom--52701182
Katelynn Scoggins was born with a critical congenital heart defect known as hypoplastic right heart syndrome. Unlike many people born with HRHS, she has not had the Fontan Procedure. She has done very well medically.

and she was an intern with Hearts Unite the Globe for a while and I even got her to attend Toastmasters meetings with me in Gatesville. We also worked together with the Texas Chapter of the Children's Heart Foundation.

Katie and Christopher Scoggins were married in May 2018. They welcomed their son, Isaiah, into the world in December 2019. She’s coming on the show today to tell us about her journey to parenthood.

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
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Website: https://tinyurl.com/4kuckfn7
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Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic


Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52701182Sat, 11 Feb 2023 17:00:01 +0000Anna JaworskiHow safe is it for a woman born with hypoplastic right heart syndrome to get pregnant and carry a baby to term? What considerations need to be made when Heart Warriors with complex CHDs decide to get pregnant? What advice does a Heart Warrior Mom have...
Katelynn Scoggins was born with a critical congenital heart defect known as hypoplastic right heart syndrome. Unlike many people born with HRHS, she has not had the Fontan Procedure. She has done very well medically.

and she was an intern with Hearts Unite the Globe for a while and I even got her to attend Toastmasters meetings with me in Gatesville. We also worked together with the Texas Chapter of the Children's Heart Foundation.

Katie and Christopher Scoggins were married in May 2018. They welcomed their son, Isaiah, into the world in December 2019. She’s coming on the show today to tell us about her journey to parenthood.

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic


Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2063baylor_scott_&_white_hospital,children's_heart_foundation,congenital_heart_defect,electrophysiologist,high-risk_pregnancy,homeschool,hrhs,hypoplastic_right_heart_syndro,katie_scoggins,maternal_fetal_doctors,microtia,motherhood,ob-gyn,pacemaker,pregnancy,pulmonary_valve_regurgitation,self-advocacy.,single_ventricle_heartfalse18403fullhttps://www.spreaker.com/episode/chds-in-society-2-the-athletes--52671258
In this special mini-series for Heart Month 2023, Anna asks her Listeners to identify some famous athletes who have been touched by CHDs.

So many people think that if they have a heart defect, they can’t participate at an exceptional level in sports. That’s not true, my friends, and the following THREE people are an example of how people can still excel, despite having a heart defect. Do you know who these people are? See if you can guess!

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52671258Fri, 10 Feb 2023 17:00:02 +0000Anna JaworskiWith congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their...
In this special mini-series for Heart Month 2023, Anna asks her Listeners to identify some famous athletes who have been touched by CHDs.

So many people think that if they have a heart defect, they can’t participate at an exceptional level in sports. That’s not true, my friends, and the following THREE people are an example of how people can still excel, despite having a heart defect. Do you know who these people are? See if you can guess!

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>448american_football_player,american_heavyweight_kickboxer,aortic_stenosis,athletes,author,bruce_lee,chuck_norris,congenital_heart_defects,flying_tomato,mark_miller,nfl_analyst,olympic_athlete,shaun_white,snowboarding,stroke,tedy_bruschi,tetralogy_of_fallotfalse18402fullhttps://www.spreaker.com/episode/chd-spotlight-2-holes-in-the-heart--52671335
Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardiothoracic surgeon and the head of the Novick Cardiac Alliance, a nonprofit organization providing life-saving heart surgeries to children around the world.

In this episode, Dr. Novick shares the names of some specific congenital heart defects (they are commonly referred to as "holes in the heart") and the treatment used to help people born with these heart defects survive and thrive. He also discusses some heart defects which commonly have a hole in their heart, as well.

Former appearances by Dr. Novick on "Heart to Heart with Anna":

Healing the Hearts of Croatia, Libya, Ecuador and Beyond: https://www.spreaker.com/user/7668348/healing-the-hearts-of-croatia-libya-ecua

Doctor Burnout in the CHD Community: https://www.spreaker.com/user/7668348/doctor-burnout-in-the-congenital-heart-d

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52671335Thu, 09 Feb 2023 17:00:02 +0000Anna Jaworskin our second CHD Spotlight episode, we'll discuss holes in the heart—atrial septal defects (ASDs), ventricular septal defects (VSDs) and more! Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the...
Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardiothoracic surgeon and the head of the Novick Cardiac Alliance, a nonprofit organization providing life-saving heart surgeries to children around the world.

In this episode, Dr. Novick shares the names of some specific congenital heart defects (they are commonly referred to as "holes in the heart") and the treatment used to help people born with these heart defects survive and thrive. He also discusses some heart defects which commonly have a hole in their heart, as well.

Former appearances by Dr. Novick on "Heart to Heart with Anna":

Healing the Hearts of Croatia, Libya, Ecuador and Beyond: https://www.spreaker.com/user/7668348/healing-the-hearts-of-croatia-libya-ecua

Doctor Burnout in the CHD Community: https://www.spreaker.com/user/7668348/doctor-burnout-in-the-congenital-heart-d

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2277amplatzer_device,asd,atrial_septal_defect,cadaver_tissue,cath_lab,clamshell_device,congenital_heart_defects,gore-tex,open-heart_surgery,patent_ductus_arteriosus,patent_foramen_ovale,pda,pfo,tetralogy_of_fallot,tof,ventricular_septal_defect,vsdfalse18401fullhttps://www.spreaker.com/episode/social-worker-heart-warrior-author--52671144
This is our 2nd Wednesday Writer Chat--a special mini-series during Heart Month, February 2023.

Today’s show is "Social Worker, Heart Warrior Author" and our Guest is Richard Schwindt. We’ll start today’s program by learning a bit about Richard and his family in Segment 1. In the second segment, we’ll talk about how Richard’s book and in the final segment we’ll talk about how CHDs have affected another generation of his family, what that has meant to him, and advice for others in the same situation.

Richard Schwindt is married and has two children and two grandchildren. For the last 40 years, Richard has worked as a social worker, psychotherapist, and hypnotherapist. He has written 25 books, both fiction and nonfiction. For the congenital heart defect (or CHD) community, one book is especially pertinent–Emotional Recovery from Congenital Heart Disease, which is part of his Emotional Recovery series.

Richard’s interests include the management of anxiety in CHD patients and helping his teen and adult clients discover how they can live their lives to the fullest.

Richard has had multiple heart procedures, two surgeries, and many pacemakers. He is from Kingston, Ontario.

Here's a link to Richard's Amazon link: https://www.amazon.com/Emotional-Recovery-Congenital-Heart-Disease-ebook/dp/B0153VEL1E/ref=sr_1_7?crid=2C8B26YNP8WQC&keywords=richard+schwindt&qid=1675810257&sprefix=richard+schwindt%2Caps%2C171&sr=8-7

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook——https://www.facebook.com/HearttoHeartwithAnna/

Instagram——https://www.instagram.com/hearttoheartwithanna/

MeWe——https://mewe.com/i/annajaworski

Twitter——https://twitter.com/AnnaJaworski

YouTube——https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website——https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52671144Wed, 08 Feb 2023 17:00:02 +0000Anna JaworskiAre congenital heart defects hereditary? How might someone born with a hole in his heart choose to live his life? Why might a social worker choose to write a book to help the congenital heart defect community? This is our 2nd Wednesday Writer Chat--a...
This is our 2nd Wednesday Writer Chat--a special mini-series during Heart Month, February 2023.

Today’s show is "Social Worker, Heart Warrior Author" and our Guest is Richard Schwindt. We’ll start today’s program by learning a bit about Richard and his family in Segment 1. In the second segment, we’ll talk about how Richard’s book and in the final segment we’ll talk about how CHDs have affected another generation of his family, what that has meant to him, and advice for others in the same situation.

Richard Schwindt is married and has two children and two grandchildren. For the last 40 years, Richard has worked as a social worker, psychotherapist, and hypnotherapist. He has written 25 books, both fiction and nonfiction. For the congenital heart defect (or CHD) community, one book is especially pertinent–Emotional Recovery from Congenital Heart Disease, which is part of his Emotional Recovery series.

Richard’s interests include the management of anxiety in CHD patients and helping his teen and adult clients discover how they can live their lives to the fullest.

Richard has had multiple heart procedures, two surgeries, and many pacemakers. He is from Kingston, Ontario.

Here's a link to Richard's Amazon link: https://www.amazon.com/Emotional-Recovery-Congenital-Heart-Disease-ebook/dp/B0153VEL1E/ref=sr_1_7?crid=2C8B26YNP8WQC&keywords=richard+schwindt&qid=1675810257&sprefix=richard+schwindt%2Caps%2C171&sr=8-7

Please visit our Social Media and Podcast pages:

Apple Podcasts——https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook——https://www.facebook.com/HearttoHeartwithAnna/

Instagram——https://www.instagram.com/hearttoheartwithanna/

MeWe——https://mewe.com/i/annajaworski

Twitter——https://twitter.com/AnnaJaworski

YouTube——https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website——https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2036asd,atrial_septal_defect,author,coa,coarctation_of_the_aorta,congenital_heart_defects,dr._william_mustard,exposure_therapy,grandchildren,heart_attack,heart_murmur,hockey,monkey_lung,open-heart_surgery,pacemaker,richard_schwindt,road_hockeyfalse18400fullhttps://www.spreaker.com/episode/hlhs-survivor-and-mother--52348341
Meghan Roswick-Didier is 30 years old and was diagnosed with HLHS at 7 days of age. She had four open-heart surgeries at the Children's Hospital of Philadelphia including the Norwood at nine days old, the hemi-Fontan at seven months old, the Fontan at 13 months old, and a surgery to open her ASD at two-and-a-half-years old. Her doctors encouraged her to set her own limits which she did. She enjoyed gymnastics and sports in high school and never let anything hold her back. In her early 20s, she suffered a devastating stroke and took a year to recover. Meg has studied neuroscience at the University of Cincinnati, coaches gymnastics and advocates for better patient care for adults with congenital heart defects. In 2022 she embarked on her biggest journey yet, as she and her husband Dustin became parents to daughter Lucy. Meg joins us today to talk about her experiences of pregnancy, birth, and motherhood as an HLHS survivor.

Meg's Social Media Links:
FB: Meghan Roswick Didier - HLHS
IG: Meg Didier

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52348341Tue, 07 Feb 2023 17:00:02 +0000Anna JaworskiIs it possible to have a baby if you are a woman who was born with HLHS? What problems can occur when a person with a single ventricle heart becomes pregnant? What advice would a Heart Warrior offer others trying to have a baby? Meghan...
Meghan Roswick-Didier is 30 years old and was diagnosed with HLHS at 7 days of age. She had four open-heart surgeries at the Children's Hospital of Philadelphia including the Norwood at nine days old, the hemi-Fontan at seven months old, the Fontan at 13 months old, and a surgery to open her ASD at two-and-a-half-years old. Her doctors encouraged her to set her own limits which she did. She enjoyed gymnastics and sports in high school and never let anything hold her back. In her early 20s, she suffered a devastating stroke and took a year to recover. Meg has studied neuroscience at the University of Cincinnati, coaches gymnastics and advocates for better patient care for adults with congenital heart defects. In 2022 she embarked on her biggest journey yet, as she and her husband Dustin became parents to daughter Lucy. Meg joins us today to talk about her experiences of pregnancy, birth, and motherhood as an HLHS survivor.

Meg's Social Media Links:
FB: Meghan Roswick Didier - HLHS
IG: Meg Didier

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3623adoption,aspirin,birth,cardiac_icu,childbirth,colostrum,complicated_pregnancy,congenital_heart_defect,c-section,fontan,hlhs,hypoplastic_left_heart_syndrom,nicu,nursing_a_baby,pregnancy,premature_birth,rehabilitation,reproductive_options,strokefalse18fullhttps://www.spreaker.com/episode/heartworks-update-2023--52648393
Welcome to our first Medical Monday mini-series for Heart Month 2023. In this episode, you'll revisit HeartWorks, a very special company that is changing the face of treatment for those born with single ventricle hearts, especially hypoplastic left heart syndrome.

Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson’s research work is focused on cardiovascular regeneration using bioengineered stem cells to improve the ability to discover, diagnose, and ultimately treat mechanisms of degenerative diseases.


As director of the program, Dr. Nelson and his team are specifically interested in the cause of HLHS and finding ways to delay and prevent heart failure for individuals with HLHS. To better understand and treat this congenital heart disease, the program has taken a multifaceted approach that includes research into stem cells, genetics, imaging tools, and the creation of a biorepository. The program has launched clinical trials using autologous stem cells, also known as stem cells collected from an individual’s own body.


In June 2020, “HeartWorks” was created to accelerate and expand the product development undertaken by the program at the Mayo Clinic. Dr Nelson joins us today to talk about recent advancements in the treatment of HLHS.

For more information about HeartWorks, visit their website - https://www.heartworksinc.org/.

Follow HeartWorks on Twitter - @webuildhearts.


Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52648393Mon, 06 Feb 2023 17:00:02 +0000Anna JaworskiIs it possible there could actually be a cure for congenital heart defects? If so, what might that cure look like? Who would be responsible for creating such a cure? Welcome to our first Medical Monday mini-series for Heart Month 2023. In this...
Welcome to our first Medical Monday mini-series for Heart Month 2023. In this episode, you'll revisit HeartWorks, a very special company that is changing the face of treatment for those born with single ventricle hearts, especially hypoplastic left heart syndrome.

Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson’s research work is focused on cardiovascular regeneration using bioengineered stem cells to improve the ability to discover, diagnose, and ultimately treat mechanisms of degenerative diseases.


As director of the program, Dr. Nelson and his team are specifically interested in the cause of HLHS and finding ways to delay and prevent heart failure for individuals with HLHS. To better understand and treat this congenital heart disease, the program has taken a multifaceted approach that includes research into stem cells, genetics, imaging tools, and the creation of a biorepository. The program has launched clinical trials using autologous stem cells, also known as stem cells collected from an individual’s own body.


In June 2020, “HeartWorks” was created to accelerate and expand the product development undertaken by the program at the Mayo Clinic. Dr Nelson joins us today to talk about recent advancements in the treatment of HLHS.

For more information about HeartWorks, visit their website - https://www.heartworksinc.org/.

Follow HeartWorks on Twitter - @webuildhearts.


Please take a moment to follow Heart to Heart with Anna on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2328cardiovascular_regeneration,collaboration,congenital_heart_defects,consortium_of_hospitals,cord_blood,cure_for_chds,glenn_procedure,heartworks,hlhs,mayo_clinic,rare_disease,single_ventricle_heart,skin_cells,stem_cells,timothy_nelson,todd_and_karen_wanekfalse18398fullhttps://www.spreaker.com/episode/a-child-s-role-in-transplant-recovery-for-a-heart-dad--52642299How can a child help her father recover from heart transplant surgery? How important is it for parents to allow their children to be part of the recovery process? What advice does a heart transplant recipient have for others facing being listed for transplant when they are the parents of a young child?

This is the first Heart Dad Sunday episode for February 2023 and Frank Jaworski is our Guest Host.

Paul Cardall was born in 1973 with only half a heart. He had his first surgery a few hours after birth and two more surgeries at ages 13 and 14. As a child, he took piano lessons but wasn’t keen on practicing. As a teenager, he started composing and became obsessed. He was hired to play at weddings, in restaurants, and in department stores.

In 1994, author Richard Paul Evans invited him to compose a musical adaptation of his Number 1 New York Times best-selling novel The Christmas Box, which helped launch Paul’s professional career. In 1999, Paul founded Stone Angel Music, where he released his albums independently. His albums debuted at Number One on eight Billboard charts and have earned over 2 billion streams on Pandora alone.

By 2008, Paul's health had declined to the point where he was placed on the transplant list. Following his transplant in 2009, Paul experienced a newfound energy. Today, he lives a very full and active life as an entrepreneur, recording artist, podcast host of All Heart with Paul Cardall, husband and father.

Other Links you might enjoy:

Paul Cardall's previous Heart to Heart with Anna appearance: https://www.buzzsprout.com/62761/9193481

Eden Cardall's page: https://edencardall.com/

Paul's Website, Book and Album: https://www.thebrokenmiracle.com/
Paul's Podcast (All Heart with Paul Cardall): https://paulcardall.com/podcast

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52642299Sun, 05 Feb 2023 17:00:02 +0000Anna JaworskiHow can a child help her father recover from heart transplant surgery? How important is it for parents to allow their children to be part of the recovery process? What advice does a heart transplant recipient have for others facing being listed for...How can a child help her father recover from heart transplant surgery? How important is it for parents to allow their children to be part of the recovery process? What advice does a heart transplant recipient have for others facing being listed for transplant when they are the parents of a young child?

This is the first Heart Dad Sunday episode for February 2023 and Frank Jaworski is our Guest Host.

Paul Cardall was born in 1973 with only half a heart. He had his first surgery a few hours after birth and two more surgeries at ages 13 and 14. As a child, he took piano lessons but wasn’t keen on practicing. As a teenager, he started composing and became obsessed. He was hired to play at weddings, in restaurants, and in department stores.

In 1994, author Richard Paul Evans invited him to compose a musical adaptation of his Number 1 New York Times best-selling novel The Christmas Box, which helped launch Paul’s professional career. In 1999, Paul founded Stone Angel Music, where he released his albums independently. His albums debuted at Number One on eight Billboard charts and have earned over 2 billion streams on Pandora alone.

By 2008, Paul's health had declined to the point where he was placed on the transplant list. Following his transplant in 2009, Paul experienced a newfound energy. Today, he lives a very full and active life as an entrepreneur, recording artist, podcast host of All Heart with Paul Cardall, husband and father.

Other Links you might enjoy:

Paul Cardall's previous Heart to Heart with Anna appearance: https://www.buzzsprout.com/62761/9193481

Eden Cardall's page: https://edencardall.com/

Paul's Website, Book and Album: https://www.thebrokenmiracle.com/
Paul's Podcast (All Heart with Paul Cardall): https://paulcardall.com/podcast

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1797art_therapy,children,child’s_role_in_recovery,congenital,daughters,defects,divorce,eden_cardall,father-daughter_relationship,half_a_heart,heart,heart_transplant,hlhs,hypoplastic_left_heart_syndrom,miscarriage,music_therapy,nurse,parent-child_relationship,paul_cardall,transplantfalse18397fullhttps://www.spreaker.com/episode/finding-and-creating-success-in-my-life--52628406
She was diagnosed with CHF and cardiac cirrhosis in 2010. In June 2014, she was diagnosed with autoimmune serositis of the peritoneum. In December 2014 and January 2015, she was diagnosed with atrial flutters and has undergone two cardiac ablations. Following her most recent health struggles, Annie developed a passion for nutrition and improved her health dramatically via an overhaul of her diet.

Annie works full time as a dual executive assistant and project coordinator for a prominent Boston healthcare system. When she's not working, she can be found volunteering at Quincy Animal Shelter and for the Adult Congenital Heart Association’s Peer-to-Peer mentoring program.

Annie's other Heart to Heart with Anna episodes:

Living with HLHS & Evolving Diagnoses
https://www.buzzsprout.com/62761/4107911

Houston Methodist ACHD 2021 Virtual Conference
https://www.buzzsprout.com/62761/9476981


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

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MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52628406Sat, 04 Feb 2023 17:00:02 +0000Anna JaworskiAnnie Ulchak was born in Lima, Peru in 1979 with nomenclature HLHS, pulmonary stenosis, double inlet right atrium, and double outlet right ventricle. She was adopted and had the two-stage HLHS process: BT shunt at age 3 and classic Fontan at age 7 at...
She was diagnosed with CHF and cardiac cirrhosis in 2010. In June 2014, she was diagnosed with autoimmune serositis of the peritoneum. In December 2014 and January 2015, she was diagnosed with atrial flutters and has undergone two cardiac ablations. Following her most recent health struggles, Annie developed a passion for nutrition and improved her health dramatically via an overhaul of her diet.

Annie works full time as a dual executive assistant and project coordinator for a prominent Boston healthcare system. When she's not working, she can be found volunteering at Quincy Animal Shelter and for the Adult Congenital Heart Association’s Peer-to-Peer mentoring program.

Annie's other Heart to Heart with Anna episodes:

Living with HLHS & Evolving Diagnoses
https://www.buzzsprout.com/62761/4107911

Houston Methodist ACHD 2021 Virtual Conference
https://www.buzzsprout.com/62761/9476981


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2931advocacy,atrial_flutters,cardiac_ablations,cardiac_cirrhosis,chd,congenital_heart_defect,congestive_heart_failure,fears,fontan_heart,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,liver_issues,medical_trauma,positive_attitude,self-carefalse18396fullhttps://www.spreaker.com/episode/chds-in-society-1-the-entertainers--52628329
In this special mini-series for Heart Month 2023, Anna asks her Listeners to identify some famous entertainers who have been touched by CHDs. Put your thinking cap on and let's see if you can guess who these 4 Entertainers are!

Tune in tomorrow for our first Successful Saturday Story for Heart Month 2023!

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/ MeWe: https://mewe.com/i/annajaworski Twitter: https://twitter.com/AnnaJaworski Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52628329Fri, 03 Feb 2023 17:00:02 +0000Anna JaworskiWith congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their...
In this special mini-series for Heart Month 2023, Anna asks her Listeners to identify some famous entertainers who have been touched by CHDs. Put your thinking cap on and let's see if you can guess who these 4 Entertainers are!

Tune in tomorrow for our first Successful Saturday Story for Heart Month 2023!

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/ MeWe: https://mewe.com/i/annajaworski Twitter: https://twitter.com/AnnaJaworski Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>355actors,actress,adoption,arnold_schwarzenegger,beauty_and_the_beast,bicuspid_aortic_valve,billy_kimmel,congenital_heart_defects,heart_valve_surgery,ice_castles,jimmy_kimmel,katherine_heigl,producer,robby_benson,talk_show_host,the_terminatorfalse18395fullhttps://www.spreaker.com/episode/chd-spotlight-1-half-a-heart-conditions--52348268
Dr. Edward Bove is our expert guest. Dr. Bove spent most of his career as a pediatric cardiothoracic surgeon at the University of Michigan Health System. A graduate of the College of the Holy Cross and Albany Medical College, he went to the University of Michigan for his residency. He returned to U of M in 1985 and by 2012, he had performed 10,000 heart surgeries, mostly on babies. Dr. Bove is a long-time supporter of Hearts Unite the Globe and currently serves as the head of our Medical Advisory Board.

In this CHD Spotlight, Dr. Bove explains what HLHS, HRHS, and single ventricle hearts are, what methods are used to treat these conditions, and how treatment for these conditions has changed over time.

Former appearances by Dr. Bove on "Heart to Heart with Anna"
Advancements in Treatments for HLHS Heart Warriors: https://www.spreaker.com/user/7668348/advancements-in-treatments-for-hlhs-hear
Learning about ccTGA and the Double-Switch Procedure: https://www.spreaker.com/user/7668348/learning-about-cctga-and-the-double-swit

Visit our Heart to Heart with Anna Social Media and Podcast pages:
Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52348268Thu, 02 Feb 2023 17:00:02 +0000Anna JaworskiIn our first CHD Spotlight episode, we'll discuss half-a-heart conditions -- hypoplastic left heart syndrome (HLHS), hypoplastic right heart syndrome (HRHS), and single ventricle hearts. Dr. Edward Bove is our expert guest. Dr. Bove spent most of his...
Dr. Edward Bove is our expert guest. Dr. Bove spent most of his career as a pediatric cardiothoracic surgeon at the University of Michigan Health System. A graduate of the College of the Holy Cross and Albany Medical College, he went to the University of Michigan for his residency. He returned to U of M in 1985 and by 2012, he had performed 10,000 heart surgeries, mostly on babies. Dr. Bove is a long-time supporter of Hearts Unite the Globe and currently serves as the head of our Medical Advisory Board.

In this CHD Spotlight, Dr. Bove explains what HLHS, HRHS, and single ventricle hearts are, what methods are used to treat these conditions, and how treatment for these conditions has changed over time.

Former appearances by Dr. Bove on "Heart to Heart with Anna"
Advancements in Treatments for HLHS Heart Warriors: https://www.spreaker.com/user/7668348/advancements-in-treatments-for-hlhs-hear
Learning about ccTGA and the Double-Switch Procedure: https://www.spreaker.com/user/7668348/learning-about-cctga-and-the-double-swit

Visit our Heart to Heart with Anna Social Media and Podcast pages:
Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2443congenital_heart_defects,dr._edward_bove,dr._norwood,echocardiogram,fontan,glenn_procedure,heart_valves,heme-fontan,hlhs,hrhs,hybrid_procedures,hypoplastic_left_heart_syndrom,hypoplastic_right_heart_syndro,open-heart_surgery,pda,pediatric_cardiothoracic_surge,prostaglandin,single_ventricle_heart,tricuspid_valve,ventriclefalse18394fullhttps://www.spreaker.com/episode/from-educator-to-heart-mom-to-author--52338202

Katy Green is married to her husband Scott, and together they have three children: Henry, aged 8, Lyle, aged 6, and Charlotte, aged 4. Charlotte was born with Scimitar syndrome, which consists of several congenital defects.

In addition to the syndrome, she was also diagnosed with multiple other complex medical conditions and underwent six surgeries before she was 18 months old. Charlotte is yet to face heart surgery, which she will need at some time in the future.

Concerned that Charlotte will be old enough to remember her heart surgery, Katy wanted to help prepare her daughter for this day and build her confidence and resilience. A former educator, she wrote her first children's book "My Scars, My Brave Adventure" to help celebrate differences and surgical scars. Katy and her family live in Chicago, where they love to spend time at parks and museums as a family.

Links to Katy Green:

www.katygreenauthor.com
instagram: @katygreen_author
LinkedIn: Katy Green

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/ MeWe: https://mewe.com/i/annajaworski Twitter: https://twitter.com/AnnaJaworski Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52338202Wed, 01 Feb 2023 17:00:05 +0000Anna JaworskiHow can a special education teacher's training influence her writing technique when creating her first children's book? What elements of storytelling are important for young children when they are learning new concepts through books? Why did this...

Katy Green is married to her husband Scott, and together they have three children: Henry, aged 8, Lyle, aged 6, and Charlotte, aged 4. Charlotte was born with Scimitar syndrome, which consists of several congenital defects.

In addition to the syndrome, she was also diagnosed with multiple other complex medical conditions and underwent six surgeries before she was 18 months old. Charlotte is yet to face heart surgery, which she will need at some time in the future.

Concerned that Charlotte will be old enough to remember her heart surgery, Katy wanted to help prepare her daughter for this day and build her confidence and resilience. A former educator, she wrote her first children's book "My Scars, My Brave Adventure" to help celebrate differences and surgical scars. Katy and her family live in Chicago, where they love to spend time at parks and museums as a family.

Links to Katy Green:

www.katygreenauthor.com
instagram: @katygreen_author
LinkedIn: Katy Green

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/ MeWe: https://mewe.com/i/annajaworski Twitter: https://twitter.com/AnnaJaworski Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2210author,cardiac_mri,chd,child_life_specialists,congenital_heart_defect,heart_mom,hospital,katy_green,lauri_children's,nicu,papvr,partial_anomalous,premature_birth,pulmonary_venous-return,refrain,rhyming_book,scar,scimitar_syndrome,social_stories,underdeveloped_lungfalse17393fullhttps://www.spreaker.com/episode/lgbtq-and-the-chd-community--52338154What considerations need to be made if patients with congenital heart defects are aligned with the LGBTQ+ community?

Dr. Jake Kleinmahon attended medical school and completed his residency in pediatrics at Tulane University School of Medicine. He continued his training at Children's Colorado, completing fellowships in pediatric cardiology and pediatric heart transplant and advanced heart failure.

In 2018 he joined the faculty at Ochsner Hospital for Children in New Orleans where he serves as the medical director of a pediatric heart transplant, heart failure, and ventricular assist device programs. He has been active in multiple research efforts and societies to advance heart, lung, and transplant health outcomes, and works to improve healthcare disparities among different CHD racial groups.

He was awarded Doctor of the Year by the Colorado Pediatric Congenital Heart Association in 2018. His interests include taking care of children with cardiomyopathies, myocarditis, connective tissue disorders, heart transplant, pulmonary hypertension, and congenital heart disease. He lives in New Orleans with his husband Tom and two children, Isabel (6 y/o) and Connor (3 y/o).

Check out Dr. Jake Kleinmahon on Instagram!@Heartdoctordaddyshark

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52338154Tue, 03 Jan 2023 17:00:02 +0000Anna JaworskiWhat considerations need to be made if patients with congenital heart defects are aligned with the LGBTQ+ community? Dr. Jake Kleinmahon attended medical school and completed his residency in pediatrics at Tulane University School of Medicine. He...What considerations need to be made if patients with congenital heart defects are aligned with the LGBTQ+ community?

Dr. Jake Kleinmahon attended medical school and completed his residency in pediatrics at Tulane University School of Medicine. He continued his training at Children's Colorado, completing fellowships in pediatric cardiology and pediatric heart transplant and advanced heart failure.

In 2018 he joined the faculty at Ochsner Hospital for Children in New Orleans where he serves as the medical director of a pediatric heart transplant, heart failure, and ventricular assist device programs. He has been active in multiple research efforts and societies to advance heart, lung, and transplant health outcomes, and works to improve healthcare disparities among different CHD racial groups.

He was awarded Doctor of the Year by the Colorado Pediatric Congenital Heart Association in 2018. His interests include taking care of children with cardiomyopathies, myocarditis, connective tissue disorders, heart transplant, pulmonary hypertension, and congenital heart disease. He lives in New Orleans with his husband Tom and two children, Isabel (6 y/o) and Connor (3 y/o).

Check out Dr. Jake Kleinmahon on Instagram!@Heartdoctordaddyshark

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3388chd,coming_out,congenital_heart_defects,estrogen,gay,lesbian,lgtbq+_community,lgtbq+_issues,lgtbq+_sports_leagues,mental_health,safe_space,testosterone,transgender,transitionfalse17fullhttps://www.spreaker.com/episode/spending-the-holidays-in-the-hospital--52238481
We’ll answer these questions and more in this episode which features Jenny Muscatell and Lauren Backe. These heart moms have both faced plenty of hospital time and they have some advice and experiences to share with us.

Jenny Muscatell is a Licensed Social Worker, author, and radio host for Christian Mix 106. She is the Co-founder of Muscatell Ministries, The Heart Community Collection, and serves as Editor in Chief for CHD Magazine.

As a licensed social worker, Jenny has established an extensive reservoir of expertise specializing in crisis intervention, health systems, and end-of-life care. Her best-selling book, The Journey of Faith and Open Heart, shares the story of how she found faith battling for her daughter's life against odds in a true but inspirational journey of trial and triumph.
Through faith-filled presentations, and heartfelt written words, Jenny’s mission is to give voice to the vulnerable, hope to the hurting, and to make way for the unspoken to be told.

Lauren Backe is Mom to Jack and Everly. Her daughter Everly was born with a congenital heart defect. Everly was induced at a hospital 65 miles from home after a prenatal diagnosis determined she would need open-heart surgery right after birth.

Lauren and Matt Backe decided after their daughter’s surgery that they wanted to make life better for children born with CHDs, and other hospitalized children. Lauren currently serves on the Advocate Children's Hospital Family Advisory Council, is a board member for LJ's Healing Hearts and is an active contributor in planning and running LJ's events. She is also a committee member for Children's Heart Foundation Red Tie Ball. ​ Together, Lauren, Matt, Jack (10), and Everly (5) work with Brave Gowns to get soft, comfortable, and fun hospital gowns on kids. They collect pop tabs to benefit Ronald McDonald House Charities, and attend school kickoffs for the American Heart Association: Kids Heart Challenge.

The Backe Family also enjoyed writing a book about Everly's CHD journey in 2020 with the foundation, Books that Heal. The Backe Family recently set up a blood drive with the American Red Cross.

Helpful Links to Broadcast Episodes Mentioned in the Show:

Jenny Muscatell’s previous Heart to Heart with Anna appearances:

Jenny Muscatell: Heart Mom, and Author: https://tinyurl.com/mr6kr7nd The “CHD Magazine”: A Magazine for the Congenital Heart Defect Community: https://tinyurl.com/3yjerfk7
Jenny’s book: https://www.muscatellministries.com/jenny-muscatell

Matt Backe’s episode: Beyond the Scar: Bonding with our CHD Children: https://tinyurl.com/yc35b85m

LJ’s Healing Hearts: http://www.ljshealinghearts.com/
Brave Gowns: https://www.bravegowns.com/pages/what-is-a-brave-gown
Lauren’s book: https://www.theheartcommunitycollection.com/mattandlaurenbacke

Visit our Heart to Heart with Anna Social Media and Podcast pages:
Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/ MeWe: https://mewe.com/i/annajaworski Twitter: https://twitter.com/AnnaJaworski Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52238481Tue, 20 Dec 2022 17:00:02 +0000Anna JaworskiHow do you enjoy the holidays when your heart warrior is in the hospital during the holiday season? What can you do, as a parent, grandparent, or friend, when a child is in the hospital during the holidays? Why is it especially difficult to have a...
We’ll answer these questions and more in this episode which features Jenny Muscatell and Lauren Backe. These heart moms have both faced plenty of hospital time and they have some advice and experiences to share with us.

Jenny Muscatell is a Licensed Social Worker, author, and radio host for Christian Mix 106. She is the Co-founder of Muscatell Ministries, The Heart Community Collection, and serves as Editor in Chief for CHD Magazine.

As a licensed social worker, Jenny has established an extensive reservoir of expertise specializing in crisis intervention, health systems, and end-of-life care. Her best-selling book, The Journey of Faith and Open Heart, shares the story of how she found faith battling for her daughter's life against odds in a true but inspirational journey of trial and triumph.
Through faith-filled presentations, and heartfelt written words, Jenny’s mission is to give voice to the vulnerable, hope to the hurting, and to make way for the unspoken to be told.

Lauren Backe is Mom to Jack and Everly. Her daughter Everly was born with a congenital heart defect. Everly was induced at a hospital 65 miles from home after a prenatal diagnosis determined she would need open-heart surgery right after birth.

Lauren and Matt Backe decided after their daughter’s surgery that they wanted to make life better for children born with CHDs, and other hospitalized children. Lauren currently serves on the Advocate Children's Hospital Family Advisory Council, is a board member for LJ's Healing Hearts and is an active contributor in planning and running LJ's events. She is also a committee member for Children's Heart Foundation Red Tie Ball. ​ Together, Lauren, Matt, Jack (10), and Everly (5) work with Brave Gowns to get soft, comfortable, and fun hospital gowns on kids. They collect pop tabs to benefit Ronald McDonald House Charities, and attend school kickoffs for the American Heart Association: Kids Heart Challenge.

The Backe Family also enjoyed writing a book about Everly's CHD journey in 2020 with the foundation, Books that Heal. The Backe Family recently set up a blood drive with the American Red Cross.

Helpful Links to Broadcast Episodes Mentioned in the Show:

Jenny Muscatell’s previous Heart to Heart with Anna appearances:

Jenny Muscatell: Heart Mom, and Author: https://tinyurl.com/mr6kr7nd The “CHD Magazine”: A Magazine for the Congenital Heart Defect Community: https://tinyurl.com/3yjerfk7
Jenny’s book: https://www.muscatellministries.com/jenny-muscatell

Matt Backe’s episode: Beyond the Scar: Bonding with our CHD Children: https://tinyurl.com/yc35b85m

LJ’s Healing Hearts: http://www.ljshealinghearts.com/
Brave Gowns: https://www.bravegowns.com/pages/what-is-a-brave-gown
Lauren’s book: https://www.theheartcommunitycollection.com/mattandlaurenbacke

Visit our Heart to Heart with Anna Social Media and Podcast pages:
Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/ MeWe: https://mewe.com/i/annajaworski Twitter: https://twitter.com/AnnaJaworski Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue...]]>3456brave_gowns,christmas,congenital_heart_defects,disappointment,gratitude,heart_mom,holidays,hospital,hospitalization,jenny_muscatell,lauren_backe,ptsd,ronald_mcdonald_house,siblings,stress,thanksgivingfalse17391fullhttps://www.spreaker.com/episode/technology-advancements-in-the-chd-field-project-a-d-a-m--52046434In this episode, Gwen Fosse, RN will share with Anna what SCA is, who is affected, what Project A.D.A.M. is, and what people can do to be #READY to help someone who might have an SCA. Let’s work together to prevent Sudden Cardiac Death!
Gwen’s Helpful Links:
Project ADAM –
·       National: https://tinyurl.com/3bh5hpxc
·       Michigan: https://tinyurl.com/8vfd6bf3
·        Project ADAM social media
Michigan Dept of Health & Human Services – MI HEARTSafe Schools Program
·      https://tinyurl.com/2ppdv9tc
Data:
·       AHA info: https://tinyurl.com/mr3mv86x
·     AED App. https://tinyurl.com/ycxef3j5
·       SCA Outcomes: https://tinyurl.com/3t62b9sv
Pediatric Guideline

·       https://tinyurl.com/3xubxckj
School Nurses
·       https://www.nasn.org/home
·       Cardiac Emergency Response Planning for Schools - Policy Statement: https://tinyurl.com/5e9ubnhc
AHA
·       https://www.heart.org/
·       CPR and First Aid https://cpr.heart.org/en/
·       AHA Facebook – Heart attack vs. sudden cardiac arrest https://tinyurl.com/3h8neudx
CPR – Hands-Only resources:
·       http://heart.arizona.edu/learn-cpr
·       www.heart.org/handsonlycpr  (AHA 2012)
·       The Michigan Way - https://tinyurl.com/vf3brvj5
Sudden Cardiac Arrest conditions information:
·       SADS Foundation: https://sads.org/
·       Medication cautions: https://crediblemeds.org/

HeartSafe Homes: https://heartsafehomes.org/

Heart to Heart with Anna SCA episodes:

Saving a Life from Sudden Cardiac Death: https://tinyurl.com/bdcwu9uf
Jackie Renfrow’s show (about Long Q-T Syndrome): https://tinyurl.com/58b7w338
Championship Hearts: https://tinyurl.com/8dy2m2zt

Nonprofit organizations in Texas and beyond providing AEDs and heart screenings to the community:
Championship Hearts Foundation – https://www.champhearts.org
Living for Zachary – https://tinyurl.com/b6575u7s
Via Heart Project – https://viaheartproject.org/ 
CARES – Cardiac Arrest Registry to Enhance Survival – https://tinyurl.com/h43tdsd3
European Parliament Roberta Metsola’s speech about SCA – https://tinyurl.com/2fhuybce
American Red Cross Online First Aid, CPR, and AED Training – https://tinyurl.com/33x3r6st
American Academy of Pediatrics Sudden Cardiac Arrest Statement –https://tinyurl.com/yzdac94t

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/52046434Tue, 29 Nov 2022 17:05:01 +0000Anna JaworskiWho is at risk for sudden cardiac arrest (SCA)? What can we do to prepare ourselves to help someone who might suddenly collapse from SCA? What does it mean to be #READY?
 
Gwen Fosse is a Clinical Outreach Specialist at University of Michigan...In this episode, Gwen Fosse, RN will share with Anna what SCA is, who is affected, what Project A.D.A.M. is, and what people can do to be #READY to help someone who might have an SCA. Let’s work together to prevent Sudden Cardiac Death!
Gwen’s Helpful Links:
Project ADAM –
·       National: https://tinyurl.com/3bh5hpxc
·       Michigan: https://tinyurl.com/8vfd6bf3
·        Project ADAM social media
Michigan Dept of Health & Human Services – MI HEARTSafe Schools Program
·      https://tinyurl.com/2ppdv9tc
Data:
·       AHA info: https://tinyurl.com/mr3mv86x
·     AED App. https://tinyurl.com/ycxef3j5
·       SCA Outcomes: https://tinyurl.com/3t62b9sv
Pediatric Guideline

·       https://tinyurl.com/3xubxckj
School Nurses
·       https://www.nasn.org/home
·       Cardiac Emergency Response Planning for Schools - Policy Statement: https://tinyurl.com/5e9ubnhc
AHA
·       https://www.heart.org/
·       CPR and First Aid https://cpr.heart.org/en/
·       AHA Facebook – Heart attack vs. sudden cardiac arrest https://tinyurl.com/3h8neudx
CPR – Hands-Only resources:
·       http://heart.arizona.edu/learn-cpr
·       www.heart.org/handsonlycpr  (AHA 2012)
·       The Michigan Way - https://tinyurl.com/vf3brvj5
Sudden Cardiac Arrest conditions information:
·       SADS Foundation: https://sads.org/
·       Medication cautions: https://crediblemeds.org/

HeartSafe Homes: https://heartsafehomes.org/

Heart to Heart with Anna SCA episodes:

Saving a Life from Sudden Cardiac Death: https://tinyurl.com/bdcwu9uf
Jackie Renfrow’s show (about Long Q-T Syndrome): https://tinyurl.com/58b7w338
Championship Hearts: https://tinyurl.com/8dy2m2zt

Nonprofit organizations in Texas and beyond providing AEDs and heart screenings to the community:
Championship Hearts Foundation – https://www.champhearts.org
Living for Zachary – https://tinyurl.com/b6575u7s
Via Heart Project...]]>2896aed,arrhythmia,automatic_external_defibrillat,brugada_syndrome,cardiac_emergency_plan,cardiopulmonary_resuscitation,cares_registry,cpr,defibrillator,electrical_activity,fainting,fibrillation,heart,heart-safe_schools,long_q-t_syndrome,project_a.d.a.m.,roberta_metsola,sudden_cardiac_arrest,sudden_cardiac_death,wolff-parkinson-whitefalse17fullhttps://www.spreaker.com/episode/jake-ryan-and-dear-franklin-a-book-for-kids-with-heart-warrior-parents--51981435
Jake Ryan was a busy father of three-and-a-half-year-old twins - a son and daughter - when his life changed forever. He collapsed during a routine workout one day at the gym. Fortunately, he was rushed to the hospital where he was diagnosed with an aortic aneurysm and a faulty mitral valve. After his surgery, he worried that he would not be able to be the kind of involved and playful dad that his kids were used to. Finding no books for children that described a parent having a cardiac incident and needing surgery, he decided to write such a book. Today, he lives in New York City and is a single dad to his now teenage children. He runs a life coaching business and can be found on TicToc and Instagram as @FreeJakeRyan.

 

We’ll start today’s program by learning a bit about Jake and his immediate family. In the second segment, we’ll talk about the book he wrote and in the final segment, we’ll learn more about Jake Ryan’s plans for the future.

For Jake’s newsletter and more, use this link: https://stan.store/freejakeryan
Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51981435Tue, 22 Nov 2022 17:00:02 +0000Anna JaworskiWho is Jake Ryan and why did he write a book? What happens when it’s the parent who is the Heart Warrior? How do you prepare your children for your heart surgery? Jake Ryan was a busy father of three-and-a-half-year-old twins - a son and daughter -...
Jake Ryan was a busy father of three-and-a-half-year-old twins - a son and daughter - when his life changed forever. He collapsed during a routine workout one day at the gym. Fortunately, he was rushed to the hospital where he was diagnosed with an aortic aneurysm and a faulty mitral valve. After his surgery, he worried that he would not be able to be the kind of involved and playful dad that his kids were used to. Finding no books for children that described a parent having a cardiac incident and needing surgery, he decided to write such a book. Today, he lives in New York City and is a single dad to his now teenage children. He runs a life coaching business and can be found on TicToc and Instagram as @FreeJakeRyan.

 

We’ll start today’s program by learning a bit about Jake and his immediate family. In the second segment, we’ll talk about the book he wrote and in the final segment, we’ll learn more about Jake Ryan’s plans for the future.

For Jake’s newsletter and more, use this link: https://stan.store/freejakeryan
Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2346aortic_aneurysm,author,cardiac_rehab,cardiac_rehabilitation,children’s_book_author,congenital_heart_defect,free_jake_ryan,heart_attack,heart_murmur,heart_surgery,heart_warrior,jake_ryan,life_coach,mitral_valve_stenosis,mitral_valve_surgery,tiktokfalse17389fullhttps://www.spreaker.com/episode/the-gift-of-life-twice--51899661
Susan May is mom to Nick, 33, who was born with hypoplastic left heart syndrome, transposition of the great arteries, coarctation of the aorta, and a septal defect.  He had three surgeries at 5 days, 3 1/2 months, and one year of age, prior to receiving a heart transplant just before his second birthday. Nick is one of the first children in the US to receive a heart transplant and is the 5th longest-living transplant recipient. Today, he is married with a daughter.

Susan has written a book about her son's heart journey, with a revised edition released this year. Susan also writes professionally and has written 40 books in total, including a non-fiction book about a WWII flight surgeon and 33 medical romance novels. She has three other children and eight grandchildren. She likes to travel, read and sew. 

My Loyal Listeners will remember Susan from earlier in 2022 when she came on the program with an episode called, “Baby Heart Transplant Miracle.”

Link to Susan’s other show:

Baby Heart Transplant Miracle: https://www.buzzsprout.com/62761/10139146


Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51899661Tue, 15 Nov 2022 17:00:02 +0000Anna JaworskiHow is it possible an organ donor might actually be responsible for two lives, even when giving a heart to a man? What was life like for Nick May years after his heart transplant? Did Nick May have a similar experience as his siblings growing up,...
Susan May is mom to Nick, 33, who was born with hypoplastic left heart syndrome, transposition of the great arteries, coarctation of the aorta, and a septal defect.  He had three surgeries at 5 days, 3 1/2 months, and one year of age, prior to receiving a heart transplant just before his second birthday. Nick is one of the first children in the US to receive a heart transplant and is the 5th longest-living transplant recipient. Today, he is married with a daughter.

Susan has written a book about her son's heart journey, with a revised edition released this year. Susan also writes professionally and has written 40 books in total, including a non-fiction book about a WWII flight surgeon and 33 medical romance novels. She has three other children and eight grandchildren. She likes to travel, read and sew. 

My Loyal Listeners will remember Susan from earlier in 2022 when she came on the program with an episode called, “Baby Heart Transplant Miracle.”

Link to Susan’s other show:

Baby Heart Transplant Miracle: https://www.buzzsprout.com/62761/10139146


Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1937aorta_transplant,author,coa,coarctation_of_the_aorta,congenital_heart_defect,endocarditis,heart_transplant,hlhs,hypoplastic_left_heart_syndrom,nick_may,picc_line,pneumonia,retransplantation,septal_defect,siblings,strep_throat,susan_may,tga,transplant,transposition_of_the_great_artfalse17fullhttps://www.spreaker.com/episode/when-you-wish-upon-a-star-and-your-wishes-come-true--51834065
You'll learn the answers to these questions and more in this episode of "Heart to Heart with Anna."

Helpful Links to Broadcast Episodes Mentioned in the Show:

Starlight Foundation (for wishes for kids with chronic illness)
https://www.starlight.org/

Fox and Friends interview with Brandon and Jeremy: https://www.foxnews.com/entertainment/growing-pains-star-jeremy-miller-and-doctor-discuss-30-year-friendship

Dr. Brandon Lane Phillips’ Other “Heart to Heart with Anna” appearances:

8th Anniversary Special Part 1
https://www.buzzsprout.com/62761/9611160

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients
https://www.buzzsprout.com/62761/3725774

Interwoven Lives and Congenital Heart Defects
https://www.buzzsprout.com/62761/1539262

Dr. Brandon Phillips and Jeremy Miller’s other joint appearance:

A Wish-Made Friendship
https://www.buzzsprout.com/62761/4190255

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51834065Wed, 09 Nov 2022 05:30:42 +0000Anna JaworskiBaby Hearts Press People's Choice Award Winners, Dr. Brandon Lane Phillips and Jeremy Miller, return to "Heart to Heart with Anna' with an update on how their award-winning book is doing and all of the exciting news surrounding the book. Why would a...
You'll learn the answers to these questions and more in this episode of "Heart to Heart with Anna."

Helpful Links to Broadcast Episodes Mentioned in the Show:

Starlight Foundation (for wishes for kids with chronic illness)
https://www.starlight.org/

Fox and Friends interview with Brandon and Jeremy: https://www.foxnews.com/entertainment/growing-pains-star-jeremy-miller-and-doctor-discuss-30-year-friendship

Dr. Brandon Lane Phillips’ Other “Heart to Heart with Anna” appearances:

8th Anniversary Special Part 1
https://www.buzzsprout.com/62761/9611160

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients
https://www.buzzsprout.com/62761/3725774

Interwoven Lives and Congenital Heart Defects
https://www.buzzsprout.com/62761/1539262

Dr. Brandon Phillips and Jeremy Miller’s other joint appearance:

A Wish-Made Friendship
https://www.buzzsprout.com/62761/4190255

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2460alcohol,audiobook,baby_hearts_press_people's_cho,ben_seever,brandon_lane_phillips,brothers,congenital_heart_defects,jeremy_miller,lifelong_friends,literary_award,max_adler,podcast,starlight,tetralogy_of_fallotfalse17387fullhttps://www.spreaker.com/episode/dr-john-calhoon-on-doctor-burnout--51745956
Today's program is 'Dr. John Calhoon on Doctor Burnout in the CHD Community' and our Guest is Dr. John Calhoon.

Dr. Calhoon is both a congenital and adult cardiac surgeon and was my Heart Warrior’s surgeon. He also wrote the Foreword for my first book: “Hypoplastic Left Heart Syndrome: A Parent’s Handbook.”

Dr. Calhoon is the Professor and Founding Chair of the Department of Cardiothoracic Surgery at the University of Texas Health Science Center and also is the Director of the Congenital Heart Center in San Antonio, a partnership of UHS and UTH. Over the years, his interests and expertise have included complex congenital heart surgery; heart and lung transplantation; less invasive cardiac surgery, and improving education and patient care.

He has served as the President of many national cardiac associations and is currently President of the Society of Thoracic Surgeons – the largest heart and lung specialty organization in the world., He helped found HeartGift San Antonio, an organization that sponsors charitable lifesaving congenital heart repairs on kids from around the globe.

Dr. Calhoon is married to his wife Sarah, and together they have four children: Satchel, Stetson, Seve, and James.

Today we'll learn about Dr. Calhoon's views on doctor burnout, some of the causes of doctor burnout, and what the CHD community can do to help prevent or curb doctor burnout.

Here's a link to an article about Chip Oswalt – the surgeon who founded HeartGift - Austin: https://ctvstexas.com/a-doctor/



Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51745956Tue, 01 Nov 2022 16:00:02 +0000Anna JaworskiWhat are warning signs a doctor may be experiencing doctor burnout? How are some nonprofits affected by doctor burnout? What can members of the CHD community do to try to reduce doctor burnout? Today's program is 'Dr. John Calhoon on Doctor...
Today's program is 'Dr. John Calhoon on Doctor Burnout in the CHD Community' and our Guest is Dr. John Calhoon.

Dr. Calhoon is both a congenital and adult cardiac surgeon and was my Heart Warrior’s surgeon. He also wrote the Foreword for my first book: “Hypoplastic Left Heart Syndrome: A Parent’s Handbook.”

Dr. Calhoon is the Professor and Founding Chair of the Department of Cardiothoracic Surgery at the University of Texas Health Science Center and also is the Director of the Congenital Heart Center in San Antonio, a partnership of UHS and UTH. Over the years, his interests and expertise have included complex congenital heart surgery; heart and lung transplantation; less invasive cardiac surgery, and improving education and patient care.

He has served as the President of many national cardiac associations and is currently President of the Society of Thoracic Surgeons – the largest heart and lung specialty organization in the world., He helped found HeartGift San Antonio, an organization that sponsors charitable lifesaving congenital heart repairs on kids from around the globe.

Dr. Calhoon is married to his wife Sarah, and together they have four children: Satchel, Stetson, Seve, and James.

Today we'll learn about Dr. Calhoon's views on doctor burnout, some of the causes of doctor burnout, and what the CHD community can do to help prevent or curb doctor burnout.

Here's a link to an article about Chip Oswalt – the surgeon who founded HeartGift - Austin: https://ctvstexas.com/a-doctor/



Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2157balance,burnout,cardiothoracic_surgeon,congenital_heart_defects,covid,depression,doctor_burnout,dr._john_calhoon,gun_violence,isolation,life-threatening_illness,loss-of-filter,lung_failure,pandemic,spiritual_compass,the_golden_rule,triaging_patients,ukraine,vaccinefalse17fullhttps://www.spreaker.com/episode/addiction-and-congenital-heart-defects--51695697
Today’s show is Addiction and Congenital Heart Defects and our Guest is Joe Flowers. We’ll start today’s program by learning a bit about Joe in Segment 1. In the second segment, we’re going to talk about complications that Joe has had and in the third segment, we’ll discuss Joe’s pacemaker and future prognosis.

Joe Flowers was born in 1980 with Tricuspid Atresia, an ASD, and a VSD. He had a chronic sinus infection in his early life but remained well enough to avoid heart surgery until the age of 11 years. He had a modified Fontan which was successful and he enjoyed good heart health for almost 20 years. In 2009 at the age of 29, he was diagnosed with ventricular tachycardia, for which he received a defibrillator. Around this time, Joe also had back surgery. Unfortunately, a private struggle was building in Joe’s life with the pressures of work, marriage, and family and he developed an addiction problem, which he paid for dearly. Today, Joe wants to rebuild his health and take charge of his life. 

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51695697Wed, 26 Oct 2022 16:00:03 +0000Anna JaworskiWhat are some of the dangers of addiction when you have a Fontan heart? How does a Heart Warrior who has addiction problems break free from the addiction? What new project is Joe Flowers embarking upon in 2023? Today’s show is Addiction and...
Today’s show is Addiction and Congenital Heart Defects and our Guest is Joe Flowers. We’ll start today’s program by learning a bit about Joe in Segment 1. In the second segment, we’re going to talk about complications that Joe has had and in the third segment, we’ll discuss Joe’s pacemaker and future prognosis.

Joe Flowers was born in 1980 with Tricuspid Atresia, an ASD, and a VSD. He had a chronic sinus infection in his early life but remained well enough to avoid heart surgery until the age of 11 years. He had a modified Fontan which was successful and he enjoyed good heart health for almost 20 years. In 2009 at the age of 29, he was diagnosed with ventricular tachycardia, for which he received a defibrillator. Around this time, Joe also had back surgery. Unfortunately, a private struggle was building in Joe’s life with the pressures of work, marriage, and family and he developed an addiction problem, which he paid for dearly. Today, Joe wants to rebuild his health and take charge of his life. 

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/
IG: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast

Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2340aa,addiction,addictive_behaviors,alcohol,alcoholics_anonymous,asd,back_injury,congenital_heart_defect,depression,divorce,hrhs,hypoplastic_right_heart_syndro,mental_health,modified_fontan,overcoming_addiction,pain_medication,podcast,tricuspid_atresia,ventricular_tachycardia,vsdfalse17385fullhttps://www.spreaker.com/episode/congenital-heart-defects-and-gender-identity--51586127
Hope Jaworski was born in Temple, Texas with a single ventricle heart in 1994. She lived as a male under the name Alexander for twenty-seven years before realizing and accepting that she was a transgender woman. Hope enjoys writing, playing tabletop games with friends, and 3-D printing. She has worked in healthcare for seven years.

Today Hope and I will be discussing her coming out as transgender, the trans community, and in particular, concerns for trans people with complex medical conditions. Hope is my child and she has been on my program numerous times in the past, including when she interviewed me to celebrate my 300th podcast episode.

"Heart to Heart with Anna" episodes featuring Hope Jaworski (as Alex Jaworski):
Celebrating 300 Episodes of “Heart to Heart with Anna -- https://www.buzzsprout.com/62761/8240177
The Making of a Heart Dad -- https://www.buzzsprout.com/62761/10138853
Encore Presentation of Sports and Extra-Curricular Activities for CHD Survivors -- https://www.buzzsprout.com/62761/398939

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/

IG: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast
Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51586127Tue, 18 Oct 2022 16:00:02 +0000Anna JaworskiWhat considerations need to be made if people are born with congenital heart defects and determine their gender identity does not align with the sex they were assigned at birth? Is it possible for someone with a critical congenital heart defect to...
Hope Jaworski was born in Temple, Texas with a single ventricle heart in 1994. She lived as a male under the name Alexander for twenty-seven years before realizing and accepting that she was a transgender woman. Hope enjoys writing, playing tabletop games with friends, and 3-D printing. She has worked in healthcare for seven years.

Today Hope and I will be discussing her coming out as transgender, the trans community, and in particular, concerns for trans people with complex medical conditions. Hope is my child and she has been on my program numerous times in the past, including when she interviewed me to celebrate my 300th podcast episode.

"Heart to Heart with Anna" episodes featuring Hope Jaworski (as Alex Jaworski):
Celebrating 300 Episodes of “Heart to Heart with Anna -- https://www.buzzsprout.com/62761/8240177
The Making of a Heart Dad -- https://www.buzzsprout.com/62761/10138853
Encore Presentation of Sports and Extra-Curricular Activities for CHD Survivors -- https://www.buzzsprout.com/62761/398939

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/

IG: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast
Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2445aortic_aneurysm,cardiac_norwood_procedure,congenital_heart_defect,hlhs,hope_jaworski,hypoplastic_left_heart_syndrom,mental_health,open-heart_surgery,pediatric_cardiology,self-care,single_ventricle,transgender,transition,trans_womanfalse17384fullhttps://www.spreaker.com/episode/heart-mom-trusting-her-gut--51538812
Peg Eitl is a mom of three children: Joe, 40, Jason, 36, and Lacey, 31. Joe was born with Down Syndrome and a single ventricle heart. Due to his medical complexity and intellectual disability, the doctors advised Peg and her husband Craig to put him in a facility but they would have none of it! 

Fortunately, they met with cardiologist Dr. Black who encouraged them and gave them hope for Joe. Over the next few years, the new parents worked tirelessly with their son, enrolling him in early intervention, therapies, and extra-curricular activities in between cardiac appointments and procedures including a B-T shunt at 11 months, a Modified Glenn and Fontan at 7 years of age. 

Throughout his health battle, Joe and his parents have worked together to achieve the best outcomes possible: Joe’s determination to survive drove him to be the best he could be, and his parents’ advocacy in pushing for the best treatment possible resulted in him being listed for a heart/ liver transplant. This was an especially trying time because they also had to deal with the complexities that COVID-19 required.

This episode of "Heart to Heart with Anna" features a mom to a special-needs heart warrior who fought valiantly to survive multiple heart procedures, complications, and transplantation. Peg talks candidly with Anna about some of the most significant struggles they've faced, the medical changes their family has seen over the last four decades, and her hopes for the future.



Helpful Information about Joe:

Facebook - TeamJoeEitl
Instagram - @TeamJoe Eitl
"Last Chance Transplant" Docuseries on Discovery Plus - Episode 3
Joe is also a featured character (DJ Dog) in a children's book on Inclusion called "The Fusion of Inclusion, Where Friends Meat" written by his best friend Mark Graham and Coach Sean Hanley
https://www.developmentalfitness.com/meatball-man-and-hoagie-boy

There is an article written by VUMC that can be found here:
https://news.vumc.org/2021/12/15/down-syndrome-patient-celebrates-anniversary-of-novel-transplant/

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/

IG: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast
Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51538812Tue, 11 Oct 2022 16:06:26 +0000Anna JaworskiWhy would a doctor recommend parents take their child to a facility to live his life in the 1980s? Is there ever a good reason to take your child out of the hospital and take him to Disney instead? How did Peg trust her gut when it came to her son...
Peg Eitl is a mom of three children: Joe, 40, Jason, 36, and Lacey, 31. Joe was born with Down Syndrome and a single ventricle heart. Due to his medical complexity and intellectual disability, the doctors advised Peg and her husband Craig to put him in a facility but they would have none of it! 

Fortunately, they met with cardiologist Dr. Black who encouraged them and gave them hope for Joe. Over the next few years, the new parents worked tirelessly with their son, enrolling him in early intervention, therapies, and extra-curricular activities in between cardiac appointments and procedures including a B-T shunt at 11 months, a Modified Glenn and Fontan at 7 years of age. 

Throughout his health battle, Joe and his parents have worked together to achieve the best outcomes possible: Joe’s determination to survive drove him to be the best he could be, and his parents’ advocacy in pushing for the best treatment possible resulted in him being listed for a heart/ liver transplant. This was an especially trying time because they also had to deal with the complexities that COVID-19 required.

This episode of "Heart to Heart with Anna" features a mom to a special-needs heart warrior who fought valiantly to survive multiple heart procedures, complications, and transplantation. Peg talks candidly with Anna about some of the most significant struggles they've faced, the medical changes their family has seen over the last four decades, and her hopes for the future.



Helpful Information about Joe:

Facebook - TeamJoeEitl
Instagram - @TeamJoe Eitl
"Last Chance Transplant" Docuseries on Discovery Plus - Episode 3
Joe is also a featured character (DJ Dog) in a children's book on Inclusion called "The Fusion of Inclusion, Where Friends Meat" written by his best friend Mark Graham and Coach Sean Hanley
https://www.developmentalfitness.com/meatball-man-and-hoagie-boy

There is an article written by VUMC that can be found here:
https://news.vumc.org/2021/12/15/down-syndrome-patient-celebrates-anniversary-of-novel-transplant/

Visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://tinyurl.com/H2HwAnnapodcast
FB: https://www.facebook.com/HearttoHeartwithAnna/

IG: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

Website: https://tinyurl.com/4kuckfn7
YouTube: https://tinyurl.com/HUGpodcast
Music thanks to the Baby Blue Sound Collective - https://tinyurl.com/BBSCmusic

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: 2582bt_shunt,cardiac_pioneer,cardiology,cells,chds,complications,congenital_heart_defects,depression,fontan,fontan_failure,fontan_revision,heart-liver_transplant,hlhs,hypoplastic_left_heart_syndrom,modified_glenn,open-heart_surgery,pacemaker,ple,protein-losing_enteropathy,stemfalse17fullhttps://www.spreaker.com/episode/families-with-chds-dealing-with-mental-health-issues--51467267
Bridgett Streacker has been married to her husband Brian for 34 years. They have four children: Jacob 33, Chesna (stillborn), Mallory (their Heart Warrior), and Haleigh 24. As a family, they have gone through many surgeries and obstacles, heartbreak and triumphs, which have made them closer.  Bridgett describes her Heart Warrior as one of a kind, who never let her CHD define her and lives like there is no tomorrow. The family faced one of its biggest challenges during COVID, when Mallory had a heart transplant and was allowed no visitors for her entire hospital stay.

In this episode, Bridgett and Anna discuss what it’s like to be a CHD family, how they deal with mental health issues, and some advice for other families facing situations such as the ones they’ve faced.

Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51467267Tue, 04 Oct 2022 16:15:06 +0000Anna JaworskiHow can a family deal with the loss of a child? What happens when a surviving child needs a transplant? What advice does a long-time Heart Mom have for other heart families? Bridgett Streacker has been married to her husband Brian for 34 years....
Bridgett Streacker has been married to her husband Brian for 34 years. They have four children: Jacob 33, Chesna (stillborn), Mallory (their Heart Warrior), and Haleigh 24. As a family, they have gone through many surgeries and obstacles, heartbreak and triumphs, which have made them closer.  Bridgett describes her Heart Warrior as one of a kind, who never let her CHD define her and lives like there is no tomorrow. The family faced one of its biggest challenges during COVID, when Mallory had a heart transplant and was allowed no visitors for her entire hospital stay.

In this episode, Bridgett and Anna discuss what it’s like to be a CHD family, how they deal with mental health issues, and some advice for other families facing situations such as the ones they’ve faced.

Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2692ablations,a-fib,aplatzer_device,arrhythmias,asd,atrial_flutter,atrial_septal_defect,bidirectional_glenn,cardiofversions,congenital_heart_defects,ebstein’s_anomaly,heart_failure,heart_murmur,heart_transplant,mott_children’s_hospital,open-heart_surgery,pig_valve,stillborn_baby,tricuspid_valve_replacement,turner_syndromefalse17fullhttps://www.spreaker.com/episode/heart-warrior-writer-producer-of-broken-hearts--51395888
Alessandra Lichtenfeld was born with pulmonary stenosis and has 6 procedures on her heart, starting from when she was 2 years of age. Throughout her life, she has had periods of illness at age 9 and as a young adult. She is a filmmaker and music video director whose work has been showcased in Billboard, Pitchfork, Stereogum, Under the Radar, and more. She received her B.A. from U.C. Berkeley with a double major in psychology and linguistics. She has an MFA in Film and Media Production from UT Austin. She enjoys making surreal, absurdist comedies and dramas about difficult subjects such as bullying and chronic illness. To date, she has directed four films including Broken Hearts, Pixie Sticks, Just Here for the Good Vibes, and Just in My Head.


Alessandra Lichtenfeld Links:

www.AlessandraFilm.com
Personal Instagram @alessandraur
Broken Hearts Film Instagram @brokenheartsthefilm


Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51395888Tue, 27 Sep 2022 16:00:02 +0000Anna JaworskiWho is Alessandra Lichtenfeld and why did she write a film entitled “Broken Hearts”? What can a heart warrior teach the world about living with a CHD through film? How does a Heart Warrior go from being “fixed” to needing open-heart surgery at 23...
Alessandra Lichtenfeld was born with pulmonary stenosis and has 6 procedures on her heart, starting from when she was 2 years of age. Throughout her life, she has had periods of illness at age 9 and as a young adult. She is a filmmaker and music video director whose work has been showcased in Billboard, Pitchfork, Stereogum, Under the Radar, and more. She received her B.A. from U.C. Berkeley with a double major in psychology and linguistics. She has an MFA in Film and Media Production from UT Austin. She enjoys making surreal, absurdist comedies and dramas about difficult subjects such as bullying and chronic illness. To date, she has directed four films including Broken Hearts, Pixie Sticks, Just Here for the Good Vibes, and Just in My Head.


Alessandra Lichtenfeld Links:

www.AlessandraFilm.com
Personal Instagram @alessandraur
Broken Hearts Film Instagram @brokenheartsthefilm


Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2370alessandra_lichtenfeld,animal_lover,anxiety,broken_hearts,camp_del_corazon,cat_lover,depression,film_festivals,filmmaker,heart_warrior,linguistics,mentor,open-heart_surgery,psychology,pulmonary_stenosis,screenwriter,slam_dance_film_festival,valve_replacement,writerfalse17fullhttps://www.spreaker.com/episode/heart-mom-psychologist-on-anxiety-ptsd-depression-and-treatment--51321111
Amy Bjorkman is the mother to a 17-year-old daughter with a single ventricle heart who has had 6 heart surgeries and spent her first 7 months in the hospital. She is also a licensed psychologist who has specialized in trauma for the last 20 years. She is an expert on how the body holds trauma and the concomitant dysregulation of the nervous system that directly impacts our sense of safety and ability to self-soothe. She works with clients from a somatic perspective to enhance their window of tolerance in managing stress such that they are able to feel more grounded and connected to themselves and others. She has a deep understanding of complex medical trauma from her work, and even more so from her lived experiences as a heart mom.

In this episode, Amy talks with Anna about the trauma experienced when a child is born with a congenital heart defect, how it affects the child and family members, and what can be done about it.

To learn more about Amy, check out her website!

Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51321111Tue, 20 Sep 2022 16:00:03 +0000Anna JaworskiWhy are members of the CHD community more at risk for certain kinds of psychological problems than those outside of the heart world? What makes people more at risk and what can be done about it? Thanks to Covid, people seem more reluctant to leave...
Amy Bjorkman is the mother to a 17-year-old daughter with a single ventricle heart who has had 6 heart surgeries and spent her first 7 months in the hospital. She is also a licensed psychologist who has specialized in trauma for the last 20 years. She is an expert on how the body holds trauma and the concomitant dysregulation of the nervous system that directly impacts our sense of safety and ability to self-soothe. She works with clients from a somatic perspective to enhance their window of tolerance in managing stress such that they are able to feel more grounded and connected to themselves and others. She has a deep understanding of complex medical trauma from her work, and even more so from her lived experiences as a heart mom.

In this episode, Amy talks with Anna about the trauma experienced when a child is born with a congenital heart defect, how it affects the child and family members, and what can be done about it.

To learn more about Amy, check out her website!

Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2754amy_bjorkman,congenital_heart_defects,continual_traumatic_stress_dis,ctsd,depression,eating_disorders,emdr,heart_procedures,medical_trauma,mental_health,nervous_system,open-heart_surgery,post-traumatic_stress_disorder,psychologist,ptsd,somatic_lens,somatic_therapy,stress,trauma,trauma_therapyfalse17fullhttps://www.spreaker.com/episode/kate-sydney-and-ollie-hinkle-heart-foundation--51316393
Kate Stacy and Sydney Philpott-Streiff both work at Ollie Hinkle Heart Foundation, a nonprofit committed to year-round support for families and children affected by pediatric heart disease.

Kate is mom to six-year-old Stella, born with Hypoplastic Left Heart Syndrome in 2015. She underwent three open-heart surgeries at two days, 4 months, and 3 years of age. In her early months, she was hospitalized frequently with GI issues but has been very active, happy, and healthy since her last OHS. Kate and her husband Adam also have twins born via IVF, Connor, and Ellie, aged 8 years.

Sydney was unexpectedly diagnosed with a CHD at age 27. She was on a morning run with her husband Andy when she went into cardiac arrest. Andy performed CPR until paramedics arrived. Sydney was in a coma for 48 hours and needed open heart surgery. Although her recovery was challenging, Andy and Sydney are expecting their first child in January.

In this episode, they talk about their experiences working with the Ollie Hinkle Heart Foundation.


Helpful OHHF links:

Ollie Hinkle Heart Foundation website: www.theohhf.org

Instagram: @kestacy, @sydthekyd92, @theohhf

Registration for Take Heart: https://meetingtomorrow.com/webcast/TakeHeart2022

Sydney's Story Video: https://www.youtube.com/watch?v=Uus76Zj_AE4



Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904



If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51316393Tue, 20 Sep 2022 15:24:44 +0000Anna JaworskiWhy would a heart mom work for a CHD organization? What would prompt a young woman to leave her career and work for the same organization? How does this organization help families affected by CHD? Kate Stacy and Sydney Philpott-Streiff both work...
Kate Stacy and Sydney Philpott-Streiff both work at Ollie Hinkle Heart Foundation, a nonprofit committed to year-round support for families and children affected by pediatric heart disease.

Kate is mom to six-year-old Stella, born with Hypoplastic Left Heart Syndrome in 2015. She underwent three open-heart surgeries at two days, 4 months, and 3 years of age. In her early months, she was hospitalized frequently with GI issues but has been very active, happy, and healthy since her last OHS. Kate and her husband Adam also have twins born via IVF, Connor, and Ellie, aged 8 years.

Sydney was unexpectedly diagnosed with a CHD at age 27. She was on a morning run with her husband Andy when she went into cardiac arrest. Andy performed CPR until paramedics arrived. Sydney was in a coma for 48 hours and needed open heart surgery. Although her recovery was challenging, Andy and Sydney are expecting their first child in January.

In this episode, they talk about their experiences working with the Ollie Hinkle Heart Foundation.


Helpful OHHF links:

Ollie Hinkle Heart Foundation website: www.theohhf.org

Instagram: @kestacy, @sydthekyd92, @theohhf

Registration for Take Heart: https://meetingtomorrow.com/webcast/TakeHeart2022

Sydney's Story Video: https://www.youtube.com/watch?v=Uus76Zj_AE4



Please visit our Heart to Heart with Anna Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904



If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2352asd,b-t_shunt,chd,congenital_heart_defects,cpr,defibrillator,feeding_tube,hlhs,kate_stacy,norwood,ollie_hinkle_heart_foundation,open-heart_surgery,pacemaker,pfo,ptsd,sinus_venosus_asd,sydney_philpott-streiff,tee,twins,venitlatorfalse17fullhttps://www.spreaker.com/episode/the-heart-of-a-heart-warrior-book-coming-soon--51180854
 Anna Jaworski became part of the congenital heart defect (CHD) community when her child was born with hypoplastic left heart syndrome (HLHS).  She looked for resources to learn about HLHS, and unable to find anything suitable, she created and shared resources, thus the publishing company, Baby Hearts Press, was born. She has written several books for families, and edited two books of essays – one written by heart dads and another written by heart moms called The Heart of a Father and The Heart of a Mother, respectively.  

Megan Tones has been on several “Heart to Heart with Anna” episodes over the years. She was born with a VSD and had a pulmonary banding operation at 4 months of age. She had two more surgeries as a child, at age 5 and 10, and one surgery at age 25. Megan works as a researcher and likes to do creative things in her spare time including sewing, writing, and painting.

In 2018, Anna approached Megan about editing a third book in “The Heart of a…” series. The book would contain essays from adults in the congenital heart defect community. Nearly 4 years later, the book is almost complete. Megan and Anna are talking today about the journey that has been The Heart of a Heart Warrior.   

Links to things mentioned in the podcast:

The Heart of a Mother and The Heart of a Father are available at https://www.babyheartspress.com/, amazon.com, and many other online sites.

Megan’s podcast episodes:

"Expressions from the Heart on HeartWire" https://www.buzzsprout.com/62761/398986
"One Heart Warrior's Educational Experience Down Under" https://www.buzzsprout.com/62761/546571
"Travels of a Heart Warrior" https://www.buzzsprout.com/62761/1512628
"When You're Married to a Heart Warrior" https://www.buzzsprout.com/62761/1686034
“CHD in the 1980s: Mum, Dad and Daughter” https://www.buzzsprout.com/62761/9395362

Amy’s podcast episodes

Amy’s previous appearances:
The “CHD Magazine”: A Magazine for the Congenital Heart Defect Community (with Jenny Muscatell)
https://www.buzzsprout.com/62761/10987642
A Surprise for Heart Warrior Amy M. Le! https://www.buzzsprout.com/62761/8667060
Vietnamese Refugee, Author & Heart Warrior https://www.buzzsprout.com/62761/8324425
Tasty Thursday: Lemon Cheesecake
https://www.buzzsprout.com/62761/10127357
Tasty Thursday: Boeuf Bourgignon
https://www.buzzsprout.com/62761/10080444
Tasty Thursday: Yellow Curry Chicken
https://www.buzzsprout.com/62761/10049265
Tasty Thursday: Spring Rolls
https://www.buzzsprout.com/62761/10003800

Amy’s links:

https://www.youtube.com/channel/UCi7us6JMa2kyBQWWIKyM7a
https://www.etsy.com/shop/QuillHawkPublishing 
https://www.storyrocket.com/Amy.39a5779b
https://www.facebook.com/authoramymle
https://www.amazon.com/author/amymle
https://www.instagram.com/amy_m_le/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51180854Thu, 08 Sep 2022 03:26:31 +0000Anna JaworskiAmy M. Le is the guest host for this episode of “Heart to Heart with Anna.” She interviews Anna Jaworski and Megan Tones about their upcoming book “The Heart of a Heart Warrior.”  Anna Jaworski became part of the congenital heart defect (CHD)...
 Anna Jaworski became part of the congenital heart defect (CHD) community when her child was born with hypoplastic left heart syndrome (HLHS).  She looked for resources to learn about HLHS, and unable to find anything suitable, she created and shared resources, thus the publishing company, Baby Hearts Press, was born. She has written several books for families, and edited two books of essays – one written by heart dads and another written by heart moms called The Heart of a Father and The Heart of a Mother, respectively.  

Megan Tones has been on several “Heart to Heart with Anna” episodes over the years. She was born with a VSD and had a pulmonary banding operation at 4 months of age. She had two more surgeries as a child, at age 5 and 10, and one surgery at age 25. Megan works as a researcher and likes to do creative things in her spare time including sewing, writing, and painting.

In 2018, Anna approached Megan about editing a third book in “The Heart of a…” series. The book would contain essays from adults in the congenital heart defect community. Nearly 4 years later, the book is almost complete. Megan and Anna are talking today about the journey that has been The Heart of a Heart Warrior.   

Links to things mentioned in the podcast:

The Heart of a Mother and The Heart of a Father are available at https://www.babyheartspress.com/, amazon.com, and many other online sites.

Megan’s podcast episodes:

"Expressions from the Heart on HeartWire" https://www.buzzsprout.com/62761/398986
"One Heart Warrior's Educational Experience Down Under" https://www.buzzsprout.com/62761/546571
"Travels of a Heart Warrior" https://www.buzzsprout.com/62761/1512628
"When You're Married to a Heart Warrior" https://www.buzzsprout.com/62761/1686034
“CHD in the 1980s: Mum, Dad and Daughter” https://www.buzzsprout.com/62761/9395362

Amy’s podcast episodes

Amy’s previous appearances:
The “CHD Magazine”: A Magazine for the Congenital Heart Defect Community (with Jenny Muscatell)
https://www.buzzsprout.com/62761/10987642
A Surprise for Heart Warrior Amy M. Le! https://www.buzzsprout.com/62761/8667060
Vietnamese Refugee, Author & Heart Warrior https://www.buzzsprout.com/62761/8324425
Tasty Thursday: Lemon Cheesecake
https://www.buzzsprout.com/62761/10127357
Tasty Thursday: Boeuf Bourgignon
https://www.buzzsprout.com/62761/10080444
Tasty Thursday: Yellow Curry Chicken
https://www.buzzsprout.com/62761/10049265
Tasty Thursday: Spring Rolls
https://www.buzzsprout.com/62761/10003800

Amy’s links:

https://www.youtube.com/channel/UCi7us6JMa2kyBQWWIKyM7a
https://www.etsy.com/shop/QuillHawkPublishing 
2712amy_m._le,anna_jaworski,anthology,baby_hearts_press,body_image,book,bullying,chd,heart_warriors,hope,inspiration,jeni_busta,laura_ryan,megan_tones,scar,snow_in_vietnam,stories,the_heart_of_a_father,the_heart_of_a_heart_warrior,the_heart_of_a_motherfalse17fullhttps://www.spreaker.com/episode/heart-moms-on-ptsd-and-ctsd--51033297

Djinni Yancey is the mother of 3 young adult children. Lauren is 23, Brianna is 21, and Isaac is 19. Isaac is a Heart Warrior who was born with a single ventricle heart. In addition to his congenital heart defect, he has other medical issues.

Djinni is a US Navy veteran, a recent college graduate (she graduated in Dec. 2020), and she works full-time in PR for the Federal Government.

Officially diagnosed with PTSD (or post-traumatic stress disorder) in 2018 after several panic attacks and mental breakdowns. After several months of therapy, Djinni’s therapist suggested she attend a mindfulness group. Fearful of the group at first, it took a lot of encouragement and motivation for her to go, but she has learned that mindfulness is really helpful.

Today Djinni and I will be discussing Djinni’s history as a Heart Mom, what PTSD and CTSD are, what mindfulness is, and how mindfulness might help other Heart Moms or Heart Parents.

Djinni's helpful links:

Her Blog: laughingwarrior.blogspot.com
Her LinkedIn account: linkedin.com/in/djinni-yancey-a4855b69 To contact Djinni via email: ceohatsfromheaven@gmail.com
Djinni's mindfulness podcast


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51033297Fri, 26 Aug 2022 02:45:02 +0000Anna JaworskiHow can Heart Mom use therapeutic techniques to overcome PTSD and CTSD? What is CTSD anyway? What is mindfulness and how can it help someone suffering from traumatic events? Djinni Yancey is the mother of 3 young adult children. Lauren is 23,...

Djinni Yancey is the mother of 3 young adult children. Lauren is 23, Brianna is 21, and Isaac is 19. Isaac is a Heart Warrior who was born with a single ventricle heart. In addition to his congenital heart defect, he has other medical issues.

Djinni is a US Navy veteran, a recent college graduate (she graduated in Dec. 2020), and she works full-time in PR for the Federal Government.

Officially diagnosed with PTSD (or post-traumatic stress disorder) in 2018 after several panic attacks and mental breakdowns. After several months of therapy, Djinni’s therapist suggested she attend a mindfulness group. Fearful of the group at first, it took a lot of encouragement and motivation for her to go, but she has learned that mindfulness is really helpful.

Today Djinni and I will be discussing Djinni’s history as a Heart Mom, what PTSD and CTSD are, what mindfulness is, and how mindfulness might help other Heart Moms or Heart Parents.

Djinni's helpful links:

Her Blog: laughingwarrior.blogspot.com
Her LinkedIn account: linkedin.com/in/djinni-yancey-a4855b69 To contact Djinni via email: ceohatsfromheaven@gmail.com
Djinni's mindfulness podcast


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2231accommodations,blalock-taussig_shunt,b-t_shunt,congenital_heart_defect,continuous_traumatic_stress_di,ctsd,hypoplastic_right_heart_syndro,mental_health,mindfulness,open-heart_surgery,post-traumatic_stress_disorder,ptsd,therapy,trauma,traumatic_experiencesfalse17fullhttps://www.spreaker.com/episode/heart-moms-on-ptsd-and-ctsd--51028489

Djinni Yancey is the mother of 3 young adult children. Lauren is 23, Brianna is 21, and Isaac is 19. Isaac is a Heart Warrior who was born with a single ventricle heart. In addition to his congenital heart defect, he has other medical issues.

Djinni is a US Navy veteran, a recent college graduate (she graduated in Dec. 2020), and she works full-time in PR for the Federal Government.

Officially diagnosed with PTSD (or post-traumatic stress disorder) in 2018 after several panic attacks and mental breakdowns. After several months of therapy, Djinni’s therapist suggested she attend a mindfulness group. Fearful of the group at first, it took a lot of encouragement and motivation for her to go, but she has learned that mindfulness is really helpful.

Today Djinni and I will be discussing Djinni’s history as a Heart Mom, what PTSD and CTSD are, what mindfulness is, and how mindfulness might help other Heart Moms or Heart Parents.

Djinni's helpful links:

Her Blog: laughingwarrior.blogspot.com
Her LinkedIn account: linkedin.com/in/djinni-yancey-a4855b69 To contact Djinni via email: ceohatsfromheaven@gmail.com
Djinni's mindfulness podcast


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/51028489Thu, 25 Aug 2022 16:00:02 +0000Anna JaworskiHow can Heart Mom use therapeutic techniques to overcome PTSD and CTSD? What is CTSD anyway? What is mindfulness and how can it help someone suffering from traumatic events? Djinni Yancey is the mother of 3 young adult children. Lauren is 23,...

Djinni Yancey is the mother of 3 young adult children. Lauren is 23, Brianna is 21, and Isaac is 19. Isaac is a Heart Warrior who was born with a single ventricle heart. In addition to his congenital heart defect, he has other medical issues.

Djinni is a US Navy veteran, a recent college graduate (she graduated in Dec. 2020), and she works full-time in PR for the Federal Government.

Officially diagnosed with PTSD (or post-traumatic stress disorder) in 2018 after several panic attacks and mental breakdowns. After several months of therapy, Djinni’s therapist suggested she attend a mindfulness group. Fearful of the group at first, it took a lot of encouragement and motivation for her to go, but she has learned that mindfulness is really helpful.

Today Djinni and I will be discussing Djinni’s history as a Heart Mom, what PTSD and CTSD are, what mindfulness is, and how mindfulness might help other Heart Moms or Heart Parents.

Djinni's helpful links:

Her Blog: laughingwarrior.blogspot.com
Her LinkedIn account: linkedin.com/in/djinni-yancey-a4855b69 To contact Djinni via email: ceohatsfromheaven@gmail.com
Djinni's mindfulness podcast


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2231accommodations,blalock-taussig_shunt,b-t_shunt,congenital_heart_defect,continuous_traumatic_stress_di,ctsd,hypoplastic_right_heart_syndro,mental_health,mindfulness,open-heart_surgery,post-traumatic_stress_disorder,ptsd,therapy,trauma,traumatic_experiencesfalse17fullhttps://www.spreaker.com/episode/psychosocial-needs-for-parents-of-adults-with-chds--50930756
Dr. Smorra is passionate about psychotherapy for the CHD community. Being born with CHD herself, she brings experiential knowledge, along with her training, and research when working with clients, families, and medical professionals impacted by CHD.

Her research interest is social work services, and therapy for individuals who are born with congenital heart disease. Her experience is counseling individuals who are permanently impacted by automobile accidents, afflicted with chronic disease, and experiencing grief, depression, anxiety, and end of life.

She enjoys helping students succeed academically. Dr. Smorra earned her Bachelor’s in Business Administration from Western Michigan University, Master’s in Social Work from Western New Mexico University, and Doctorate in Social Work from Walden University. Currently, she is an Adjunct Associate Professor, MSW Program at Western New Mexico University, Contributing Faculty, MSW Program at Walden University, as well as Chief Clinical Officer (CCO) for Heart and Mind Counseling, LLC. She is currently licensed in multiple states.

Dr. Smorra’s Helpful Information:

Website: www.heartandmindcounseling.com
Instagram @heartandmindcounseling
Facebook: https://www.facebook.com/HeartandMindLLC/ or @heartandmindllc
Facebook Group: Congenital Heart Disease and Mental Health


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50930756Tue, 16 Aug 2022 16:00:03 +0000Anna JaworskiWhy would it be helpful for parents of adults with congenital heart defects (or CHDs) to have group therapy? What kinds of problems might parents of adult Heart Warriors face? Who provides this specialized kind of therapy? Dr. Smorra is passionate...
Dr. Smorra is passionate about psychotherapy for the CHD community. Being born with CHD herself, she brings experiential knowledge, along with her training, and research when working with clients, families, and medical professionals impacted by CHD.

Her research interest is social work services, and therapy for individuals who are born with congenital heart disease. Her experience is counseling individuals who are permanently impacted by automobile accidents, afflicted with chronic disease, and experiencing grief, depression, anxiety, and end of life.

She enjoys helping students succeed academically. Dr. Smorra earned her Bachelor’s in Business Administration from Western Michigan University, Master’s in Social Work from Western New Mexico University, and Doctorate in Social Work from Walden University. Currently, she is an Adjunct Associate Professor, MSW Program at Western New Mexico University, Contributing Faculty, MSW Program at Walden University, as well as Chief Clinical Officer (CCO) for Heart and Mind Counseling, LLC. She is currently licensed in multiple states.

Dr. Smorra’s Helpful Information:

Website: www.heartandmindcounseling.com
Instagram @heartandmindcounseling
Facebook: https://www.facebook.com/HeartandMindLLC/ or @heartandmindllc
Facebook Group: Congenital Heart Disease and Mental Health


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2594adults_with_chds,bereavement,congenital_heart_defects,counselor,dr._corinne_smorra,group_therapy,hancock_conduit,heart_and_mind_counseling,individual_therapy,loss,mayo_clinic,mental_health,parents_of_adults_with_heart_d,social_work,therapy,truncus_arteriosusfalse17fullhttps://www.spreaker.com/episode/the-chd-magazine-a-magazine-for-the-congenital-heart-defect-community--50648672
Who are the editors of the "CHD Magazine" and how do they choose their articles?

What have been some of the featured articles and what is yet to come?

This program features former Guests and authors Jenny Muscatell and Amy M. Le. We discuss how the "CHD Magazine" came to be, who helps in various ways, and how members of the CHD community can find the magazine and even become a part of it.

Helpful links:

Jenny’s previous appearance: Jenny Muscatell: Heart Mom and Author https://www.buzzsprout.com/62761/8195423

Amy’s previous appearances:

A Surprise for Heart Warrior Amy M. Le! https://www.buzzsprout.com/62761/8667060
Vietnamese Refugee, Author & Heart Warrior https://www.buzzsprout.com/62761/8324425

Tasty Thursday: Lemon Cheesecake
https://www.buzzsprout.com/62761/10127357

Tasty Thursday: Boeuf Bourgignon
https://www.buzzsprout.com/62761/10080444

Tasty Thursday: Yellow Curry Chicken
https://www.buzzsprout.com/62761/10049265

Tasty Thursday: Spring Rolls
https://www.buzzsprout.com/62761/10003800

The CHD Magazine link: https://www.theheartcommunitycollection.com/magazine

THCC website link: https://www.theheartcommunitycollection.com/
THCC FB page: https://www.facebook.com/theheartcommunitycollection
THCC Instagram handle: https://www.instagram.com/theheartcommunitycollection/
THCC Blog URL: https://www.theheartcommunitycollection.com/blog

Jenny’s links:

Jenny’s podcast website: https://open.spotify.com/show/759bJYcz9n3LgNAfOz9F1Q?si=th4djwysROyV0nQKzjzM6A&nd=1

Anna and Frank's appearance on And That's the #Truth: There Has to be Something Good | Frank & Anna Jaworski: https://podcasts.apple.com/us/podcast/there-has-to-be-something-good-frank-anna-jaworski/id1566867794?i=1000546329995

Jenny’s professional website: https://www.muscatellministries.com/

Amy’s links:

https://www.youtube.com/channel/UCi7us6JMa2kyBQWWIKyM7a
https://www.etsy.com/shop/QuillHawkPublishing
https://www.storyrocket.com/Amy.39a5779b
https://www.facebook.com/authoramymle
https://www.amazon.com/author/amymle
https://www.instagram.com/amy_m_le/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website: https://www.hug-podcastnetwork.com/


Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50648672Tue, 19 Jul 2022 19:00:02 +0000Anna JaworskiWhy devote a magazine to the congenital heart defect community? Who are the editors of the "CHD Magazine" and how do they choose their articles? What have been some of the featured articles and what is yet to come? This program features...
Who are the editors of the "CHD Magazine" and how do they choose their articles?

What have been some of the featured articles and what is yet to come?

This program features former Guests and authors Jenny Muscatell and Amy M. Le. We discuss how the "CHD Magazine" came to be, who helps in various ways, and how members of the CHD community can find the magazine and even become a part of it.

Helpful links:

Jenny’s previous appearance: Jenny Muscatell: Heart Mom and Author https://www.buzzsprout.com/62761/8195423

Amy’s previous appearances:

A Surprise for Heart Warrior Amy M. Le! https://www.buzzsprout.com/62761/8667060
Vietnamese Refugee, Author & Heart Warrior https://www.buzzsprout.com/62761/8324425

Tasty Thursday: Lemon Cheesecake
https://www.buzzsprout.com/62761/10127357

Tasty Thursday: Boeuf Bourgignon
https://www.buzzsprout.com/62761/10080444

Tasty Thursday: Yellow Curry Chicken
https://www.buzzsprout.com/62761/10049265

Tasty Thursday: Spring Rolls
https://www.buzzsprout.com/62761/10003800

The CHD Magazine link: https://www.theheartcommunitycollection.com/magazine

THCC website link: https://www.theheartcommunitycollection.com/
THCC FB page: https://www.facebook.com/theheartcommunitycollection
THCC Instagram handle: https://www.instagram.com/theheartcommunitycollection/
THCC Blog URL: https://www.theheartcommunitycollection.com/blog

Jenny’s links:

Jenny’s podcast website: https://open.spotify.com/show/759bJYcz9n3LgNAfOz9F1Q?si=th4djwysROyV0nQKzjzM6A&nd=1

Anna and Frank's appearance on And That's the #Truth: There Has to be Something Good | Frank & Anna Jaworski: https://podcasts.apple.com/us/podcast/there-has-to-be-something-good-frank-anna-jaworski/id1566867794?i=1000546329995

Jenny’s professional website: https://www.muscatellministries.com/

Amy’s links:

https://www.youtube.com/channel/UCi7us6JMa2kyBQWWIKyM7a
https://www.etsy.com/shop/QuillHawkPublishing
https://www.storyrocket.com/Amy.39a5779b
https://www.facebook.com/authoramymle
https://www.amazon.com/author/amymle
2150altruism,amy_m_le,and_that's_the_#truth,art,author,chd_magazine,community,congenital_heart_defects,connection,cover,heart_condition,help_others,inspiration,isolation,jenny_muscatell,layout,magazine,storyfalse17fullhttps://www.spreaker.com/episode/living-with-a-single-ventricle-heart-but-no-fontan--50549117
Ellen Banoub was born in Egypt 30 years ago. She is a Heart Warrior, diagnosed with a hypoplastic left ventricle, transposition of the great arteries (TGA), pulmonary atresia, and dextrocardia. Ellen has had two surgeries, a shunt operation at one year of age, and a half-Fontan when she was 11 years old. She moved to Canada in 2013. She is studying social services and academic English and hopes to study social work to help others with social and medical problems. She has three heart-healthy siblings. Her older sister is a doctor who takes care of Ellen's health. Ellen recently became an aunt to Molly, who was born in early 2022. Aside from studying and spending time with family, Ellen enjoys acting, watching movies, listening to music, and reading.

Ellen talks with Anna about how she was born with a single ventricle heart and had surgery abroad since she was unable to have the surgery in her homeland (Egypt). Ellen talks about how she eventually moved to Canada where she has been able to get the care she needed for her heart. She shares how she came to study social work and how working in this field is her new purpose in life.

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50549117Tue, 12 Jul 2022 18:00:03 +0000Anna JaworskiHow can a 30-year-old Heart Warrior single ventricle survivor live without the Fontan? What special considerations need to be made when moving from Egypt to Canada? What are the biggest concerns when you fall out of cardiac care? Ellen Banoub was...
Ellen Banoub was born in Egypt 30 years ago. She is a Heart Warrior, diagnosed with a hypoplastic left ventricle, transposition of the great arteries (TGA), pulmonary atresia, and dextrocardia. Ellen has had two surgeries, a shunt operation at one year of age, and a half-Fontan when she was 11 years old. She moved to Canada in 2013. She is studying social services and academic English and hopes to study social work to help others with social and medical problems. She has three heart-healthy siblings. Her older sister is a doctor who takes care of Ellen's health. Ellen recently became an aunt to Molly, who was born in early 2022. Aside from studying and spending time with family, Ellen enjoys acting, watching movies, listening to music, and reading.

Ellen talks with Anna about how she was born with a single ventricle heart and had surgery abroad since she was unable to have the surgery in her homeland (Egypt). Ellen talks about how she eventually moved to Canada where she has been able to get the care she needed for her heart. She shares how she came to study social work and how working in this field is her new purpose in life.

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1967acting,bi-directional_glenn_heart,canada,congenital_heart_defect,deborah_heart_and_lung_center,egypt,fontan,heart_warrior,hemi-fontan,open-heart_surgery,pulmonary_atresia,pulmonary_hypertension,single_venticle,social_work,tga,transposition_of_the_great_artfalse17fullhttps://www.spreaker.com/episode/overcoming-challenges-with-tricuspid-atresia--50470573
Born in 1988, Amanda Braun was diagnosed with Tricuspid Atresia, VSD, and HRHS. She had her first of 6 surgeries at 3 months old, which was a pulmonary artery banding. At 4 she developed endocarditis and had to have the PA banding redone. Amanda required no other surgeries until age 14 when she had the Glenn and Fontan done. Apart from a sternal wire removal at age 22, Amanda was well until 32 years of age, when she began to develop a range of symptoms as her heart struggled. She had a dual-lead pacemaker implanted, which was complicated and required two procedures due to her Fontan anatomy. Amanda lives in Indiana and works as a Cardiac Monitor Technician. She also runs “Amanda’s Blankets” where she makes customized blankets for adults, children, babies, and pets.

The program starts with us learning a bit about Amanda in Segment 1. In the second segment, we talk about complications that Amanda has had, and in the third segment, we discuss Amanda’s pacemaker and future prognosis.

Helpful Related Links for Listeners:

Medical Monday with Greg Hummer: Devices to Help Heart Warriors in Heart Failure -https://www.buzzsprout.com/62761/10138859

Continuing Education for Understanding the Liver in Fontan Patients - https://www.buzzsprout.com/62761/2654281

Advancements in Understanding the Liver in Fontan Patients Part 1 - https://www.buzzsprout.com/62761/466531

Advancements in Understanding the Liver in Fontan Patients Part 2 - https://www.buzzsprout.com/62761/469590

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50470573Tue, 05 Jul 2022 16:00:02 +0000Anna JaworskiWhat is tricuspid atresia? What kind of complications did Amanda Braun face over the last three decades? What surgical interventions have helped Amanda overcome her cardiac challenges? Born in 1988, Amanda Braun was diagnosed with Tricuspid...
Born in 1988, Amanda Braun was diagnosed with Tricuspid Atresia, VSD, and HRHS. She had her first of 6 surgeries at 3 months old, which was a pulmonary artery banding. At 4 she developed endocarditis and had to have the PA banding redone. Amanda required no other surgeries until age 14 when she had the Glenn and Fontan done. Apart from a sternal wire removal at age 22, Amanda was well until 32 years of age, when she began to develop a range of symptoms as her heart struggled. She had a dual-lead pacemaker implanted, which was complicated and required two procedures due to her Fontan anatomy. Amanda lives in Indiana and works as a Cardiac Monitor Technician. She also runs “Amanda’s Blankets” where she makes customized blankets for adults, children, babies, and pets.

The program starts with us learning a bit about Amanda in Segment 1. In the second segment, we talk about complications that Amanda has had, and in the third segment, we discuss Amanda’s pacemaker and future prognosis.

Helpful Related Links for Listeners:

Medical Monday with Greg Hummer: Devices to Help Heart Warriors in Heart Failure -https://www.buzzsprout.com/62761/10138859

Continuing Education for Understanding the Liver in Fontan Patients - https://www.buzzsprout.com/62761/2654281

Advancements in Understanding the Liver in Fontan Patients Part 1 - https://www.buzzsprout.com/62761/466531

Advancements in Understanding the Liver in Fontan Patients Part 2 - https://www.buzzsprout.com/62761/469590

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2289amanda_braun,arrhythmias,chf,congestive_heart_failure,dual-chamber_pacemaker,ekg_technician,failure_to_thrive,fontan,glenn,heart-liver_transplant,hrhs,migraines,open-heart_surgery,pa_banding,pacemaker,riley_children's_hospital,svt,tricuspid_atresia,ventricular_septal_defect,vsdfalse17fullhttps://www.spreaker.com/episode/meeting-rachael-and-sam-hosts-of-from-the-heart-podcast--50278874
Sam Stolberg and Rachael Knowles are the hosts of 'From the Heart,' a podcast by HeartKids - the only national charity solely focused on supporting people impacted by childhood heart disease based in Australia. Childhood heart disease (CHD) includes both congenital conditions, and heart conditions acquired during childhood. HeartKids seeks to give everyone with CHD a fighting chance to live a long, healthy, and fulfilling life.

‘From the Heart’ explores stories of people impacted by CHD. Sam's CHD didn't affect him much growing up, as he played high-level rugby league throughout high school. Then all of a sudden he needed open-heart surgery at the age of 26.

Rachael grew up in a small town and vowed never to let her heart condition (tricuspid atresia) get in the way. However, she found herself pushing through rather than processing the trauma she experienced, and sought professional help.

Both Sam and Rachael understand the importance of advocating for yourself, being proactive with your mental health and resilience, and so much more. In this episode, they will be talking about their experiences and the podcast.

Helpful Links:

'From the Heart podcast: https://www.heartkids.org.au/page/245/heartkids-podcast
Sam’s podcast episode: https://www.buzzsprout.com/1900105/9682026-how-open-heart-surgery-at-26-changed-my-life-sam-stolberg-s-story
Rachael’s podcast episode: https://www.buzzsprout.com/1900105/10031016-the-grief-at-the-heart-of-it-rachael-knowles-story
https://www.familyplanningallianceaustralia.org.au/

FB: @HeartKidsAustralia
IG: @heartkids

Sam Stolberg IG:@ronin.stolz
Rachael Knowles IG: @rachaelknowles_

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50278874Tue, 21 Jun 2022 16:00:02 +0000Anna JaworskiWhy would an Australian support group start a podcast? Why is it valuable to have ‘HeartKids’ doing interviews? What topics interest Aussies who listen to this podcast? Sam Stolberg and Rachael Knowles are the hosts of 'From the Heart,' a podcast...
Sam Stolberg and Rachael Knowles are the hosts of 'From the Heart,' a podcast by HeartKids - the only national charity solely focused on supporting people impacted by childhood heart disease based in Australia. Childhood heart disease (CHD) includes both congenital conditions, and heart conditions acquired during childhood. HeartKids seeks to give everyone with CHD a fighting chance to live a long, healthy, and fulfilling life.

‘From the Heart’ explores stories of people impacted by CHD. Sam's CHD didn't affect him much growing up, as he played high-level rugby league throughout high school. Then all of a sudden he needed open-heart surgery at the age of 26.

Rachael grew up in a small town and vowed never to let her heart condition (tricuspid atresia) get in the way. However, she found herself pushing through rather than processing the trauma she experienced, and sought professional help.

Both Sam and Rachael understand the importance of advocating for yourself, being proactive with your mental health and resilience, and so much more. In this episode, they will be talking about their experiences and the podcast.

Helpful Links:

'From the Heart podcast: https://www.heartkids.org.au/page/245/heartkids-podcast
Sam’s podcast episode: https://www.buzzsprout.com/1900105/9682026-how-open-heart-surgery-at-26-changed-my-life-sam-stolberg-s-story
Rachael’s podcast episode: https://www.buzzsprout.com/1900105/10031016-the-grief-at-the-heart-of-it-rachael-knowles-story
https://www.familyplanningallianceaustralia.org.au/

FB: @HeartKidsAustralia
IG: @heartkids

Sam Stolberg IG:@ronin.stolz
Rachael Knowles IG: @rachaelknowles_

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2331adults_with_chds,aortic_dilation,australia,bicuspid_aortic_valve,childhood_heart_disease,congenital_heart_disease,family_planning,fontan,from_the_heart_podcast,mechanical_valve,mental_health,open-heart_surgery,rachael_knowles,rugby,sam_stolberg,trauma,tricuspid_atresia,tricuspid_valve_shuunt,warfarinfalse17fullhttps://www.spreaker.com/episode/a-leve-med-hypoplastisk-venstre-hjertesyndrom-i-norge--50201101
Lasse Fagereng er født i Norge med HVHS. Foreldrene hans tok ham med til barnesykehuset i Philadelphia, hvor han fikk sin første operasjon bare to dager gammel av Dr. Norwood. I dag er Lasse en frisk 35-åring som eier og driver et treningssenter, og han elsker å trene. Han er gift, og har to hjertefriske sønner på 2 og 5 år. Takket være den hjelpen har fikk i Philadelphia, har Lasse en egen kjærlighet til USA, han har sitt andre hjem der som han elsker å besøke sammen med familien sin.

I dag er Heidi Ingvaldsen vår gjestevert, og dette er vår første episode på norsk. Hun vil snakke med Lasse om opplevelsen med å bli født med et veldig spesielt hjerte i Norge, hvordan han etter hvert møtte kona, og bekymringene han og kona hadde angående fødselen av hans egne sønner. Til slutt vil han dele med oss hva han føler for USA, hvorfor han fortsetter å reise til USA, og hvordan COVID har påvirket virksomheten hans.

Lasselitens fond for hjertesyke barn.
Stiftelsens formål:
- gi økonomisk støtte til hjertesyke barn og ungdom i forbindelse med hjerteoperasjoner og annen medisinsk behandling
-å bidra med økonomisk støtte til forskning relatert til hjertesykdommer hos barn og ungdom
-å bidre økonomisk til utstyr og material til sykehus avdelingene for hjertesyke barn
-å bidra økonomisk til sosiale tiltak av ulik art for hjertesyke barn og ungdom og deres foreldre/foresatte.
Søknadsfrist er 1 mars og 1 september hvert år. Henvendelser kan gjøres til Foreningen for hjertesyke barn, Postboks 222, Sentrum, 0103 Oslo. Telefonnummer 23 05 80 00 eller mail: ffhb@ffhb.no

Vennligst besøk våre sosiale medier og podcast-sider:

Apple Podcaster: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Nettsted: https://www.hug-podcastnetwork.com/
Hvis du liker dette programmet og ønsker å bli en fast lytter, vennligst sjekk ut vår Patreon-side: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50201101Tue, 14 Jun 2022 16:00:02 +0000Anna JaworskiHvordan kan en 35 år gammel HVHS hjertekriger overleve når han ble født i Norge? Hvilke spesielle hensyn måtte gjøres når han mottok helsehjelp i USA? Var denne hjertekrigeren bekymret for at barna hans også hadde en hjertefeil? Lasse Fagereng er...
Lasse Fagereng er født i Norge med HVHS. Foreldrene hans tok ham med til barnesykehuset i Philadelphia, hvor han fikk sin første operasjon bare to dager gammel av Dr. Norwood. I dag er Lasse en frisk 35-åring som eier og driver et treningssenter, og han elsker å trene. Han er gift, og har to hjertefriske sønner på 2 og 5 år. Takket være den hjelpen har fikk i Philadelphia, har Lasse en egen kjærlighet til USA, han har sitt andre hjem der som han elsker å besøke sammen med familien sin.

I dag er Heidi Ingvaldsen vår gjestevert, og dette er vår første episode på norsk. Hun vil snakke med Lasse om opplevelsen med å bli født med et veldig spesielt hjerte i Norge, hvordan han etter hvert møtte kona, og bekymringene han og kona hadde angående fødselen av hans egne sønner. Til slutt vil han dele med oss hva han føler for USA, hvorfor han fortsetter å reise til USA, og hvordan COVID har påvirket virksomheten hans.

Lasselitens fond for hjertesyke barn.
Stiftelsens formål:
- gi økonomisk støtte til hjertesyke barn og ungdom i forbindelse med hjerteoperasjoner og annen medisinsk behandling
-å bidra med økonomisk støtte til forskning relatert til hjertesykdommer hos barn og ungdom
-å bidre økonomisk til utstyr og material til sykehus avdelingene for hjertesyke barn
-å bidra økonomisk til sosiale tiltak av ulik art for hjertesyke barn og ungdom og deres foreldre/foresatte.
Søknadsfrist er 1 mars og 1 september hvert år. Henvendelser kan gjøres til Foreningen for hjertesyke barn, Postboks 222, Sentrum, 0103 Oslo. Telefonnummer 23 05 80 00 eller mail: ffhb@ffhb.no

Vennligst besøk våre sosiale medier og podcast-sider:

Apple Podcaster: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Nettsted: https://www.hug-podcastnetwork.com/
Hvis du liker dette programmet og ønsker å bli en fast lytter, vennligst sjekk ut vår Patreon-side: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1574åpenhjertekirurgi,children's_hospital_of_pion,diesel,dr._william_norwood,fontan_procedure,helse,hlhs,hrhs,hypoplastisk_høyre_hjertesyndr,hypoplastisk_venstre_hjertesyn,lightcontrol,norwood_prosedyre,patent_ductus_arteriosus,pda,rikshospitalet,spedbarnstapfalse17fullhttps://www.spreaker.com/episode/living-with-hlhs-in-norway--50107659
Lasse Fagereng was born in Norway with HLHS. His parents took him to Children's Hospital of Philadelphia, where he had his first surgery at two days of age by Dr. Norwood. Today, Lasse is a healthy 35-year-old who owns and runs a fitness center and loves to work out. He is married with two heart-healthy sons aged 2 and 5 years. Thanks to his great experience with care, Lasse has a love for the USA, owns a second home there and loves to visit with his family.

We'll talk with Lasse about his experience being born with a very special heart in Norway, how he met his wife, and the concerns he and his wife had regarding the birth of his own sons. Lastly, he'll share with us how he feels about the United States, why he continues to travel to the US, and how COVID has affected his business.

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50107659Tue, 07 Jun 2022 16:00:02 +0000Anna JaworskiHow can a 35-year-old HLHS Heart Warrior survive when he was born in Norway? What special considerations needed to be made when receiving care in the USA? Did this Heart Warrior have concerns about his children having a heart defect, too? Lasse...
Lasse Fagereng was born in Norway with HLHS. His parents took him to Children's Hospital of Philadelphia, where he had his first surgery at two days of age by Dr. Norwood. Today, Lasse is a healthy 35-year-old who owns and runs a fitness center and loves to work out. He is married with two heart-healthy sons aged 2 and 5 years. Thanks to his great experience with care, Lasse has a love for the USA, owns a second home there and loves to visit with his family.

We'll talk with Lasse about his experience being born with a very special heart in Norway, how he met his wife, and the concerns he and his wife had regarding the birth of his own sons. Lastly, he'll share with us how he feels about the United States, why he continues to travel to the US, and how COVID has affected his business.

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2160children's_hospital_of_philade,diet,dr._william_norwood,exercise,fontan_procedure,hlhs,hrhs,hypoplastic_left_heart_syndrom,hypoplastic_right_heart_syndro,infant_loss,light_weights,norway,norwood_procedure,open-heart_surgery,patent_ductus_arteriosus,pda,portion_controlfalse17fullhttps://www.spreaker.com/episode/beating-failure-to-thrive--50013632
Debi Lewis is the mom of two daughters – Ronni and Sammi. In 2005, Debi’s second daughter’s birth began what would be a nearly decade-long journey through the confusion and inefficiencies of modern pediatric specialty medicine. Initially trusting and slowly growing more frustrated, Debi learned quickly that even within the same hospital, silos had developed that kept her child from an accurate diagnosis and treatment plan. Through research and introspection, Debi began piecing together the mistakes and wrong turns that took her family from constant medical mystery into the final surgery that would change her daughter’s life — and her own — for good.

She is the author of Kitchen Medicine: How I Fed My Daughter out of Failure to Thrive and has written for outlets including The New York Times, Bon Appetit, Huffington Post, Romper, Wired, and more. You can learn more about her at http://www.debilewis.com and follow her on Twitter at @growthesunshine.

Helpful Links:

Debi's episode on 'And That's the #Truth' with Jenny and Dan Muscatell: https://podcasts.apple.com/us/podcast/kitchen-medicine-debi-lewis/id1566867794?i=1000554358646

The 'Heart to Heart with Anna' episode on feeding tubes: https://www.spreaker.com/user/7668348/rerun-of-gastrointestinal-issues-and-fee

Debi's Information:

debilewis.com
twitter.com/growthesunshine
instagram.com/growthesunshine

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/50013632Tue, 31 May 2022 18:00:03 +0000Anna JaworskiWhat exactly is “Failure to Thrive”? How has one mother battled that diagnosis? What resources are available to help other families dealing with Failure to Thrive? Debi Lewis is the mom of two daughters – Ronni and Sammi. In 2005, Debi’s second...
Debi Lewis is the mom of two daughters – Ronni and Sammi. In 2005, Debi’s second daughter’s birth began what would be a nearly decade-long journey through the confusion and inefficiencies of modern pediatric specialty medicine. Initially trusting and slowly growing more frustrated, Debi learned quickly that even within the same hospital, silos had developed that kept her child from an accurate diagnosis and treatment plan. Through research and introspection, Debi began piecing together the mistakes and wrong turns that took her family from constant medical mystery into the final surgery that would change her daughter’s life — and her own — for good.

She is the author of Kitchen Medicine: How I Fed My Daughter out of Failure to Thrive and has written for outlets including The New York Times, Bon Appetit, Huffington Post, Romper, Wired, and more. You can learn more about her at http://www.debilewis.com and follow her on Twitter at @growthesunshine.

Helpful Links:

Debi's episode on 'And That's the #Truth' with Jenny and Dan Muscatell: https://podcasts.apple.com/us/podcast/kitchen-medicine-debi-lewis/id1566867794?i=1000554358646

The 'Heart to Heart with Anna' episode on feeding tubes: https://www.spreaker.com/user/7668348/rerun-of-gastrointestinal-issues-and-fee

Debi's Information:

debilewis.com
twitter.com/growthesunshine
instagram.com/growthesunshine

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2192and_that's_the_#truth,author,barium_swallow_study,book,cardiothoracic_surgeon,chd,congenital_heart_defects,ct_with_contrast_study,debi_lewis,eosinophilic_esophogitis,esophagus,failure_to_thrive,gastroenterologist,jenny_and_dan_muscatell,kitchen_medicine,laryngomalacia,one-and-done_surgery,trachea,vascular_ringfalse17fullhttps://www.spreaker.com/episode/beyond-the-scar-bonding-with-our-chd-children--49924510
Matt Backe is married to his wife Laura and together they have a 10-year-old son Jack and a 4-year-old daughter named Everly, who was born with a critical heart defect. Matt went viral on the internet after having a scar tattoo on his chest to match Everly's so she wouldn't feel alone. His wife Lauren followed suit the same day, getting an EKG tattoo on her left arm. Their unique tattoos help them to raise awareness of CHD and remind other families that they are not alone. The Backes live in Crystal Lake, Illinois, where Matt is a commercial insurance salesperson and Lauren stays home to take care of the family's needs. Everly attends preschool and loves to dance. They recently celebrated her's half birthday with a trip to Disney on Ice.

In this episode of "Heart to Heart with Anna," Matt shares with Anna why he got a tattoo of a scar on his chest, how a video of that went viral, and what it means to be a Heart Dad and a Heart Ambassador.

Related links:

Today.com article: https://www.today.com/health/health/dad-tattoo-daughter-heart-surgery-scar-rcna17321

NBC Chicago Article: https://www.nbcchicago.com/news/local/crystal-lake-dad-gets-tattoo-of-daughters-open-heart-surgery-zipper-scar/2746095/

Matt’s Twitter is @youngestoffive2

Matt’s LinkedIn is: https://www.linkedin.com/in/matt-backe-cic-6ab989a/

Matt’s wife (Lauren) is a board member of CHD NFP LJs Healing Hearts (www.ljshealinghearts.com), a member of the Advocate Children’s Family Advisory Council, an advocate of Ronald McDonald House Charity NW Indiana & Chicagoland as well as many other CHD-related not-for-profit organizations and foundations.

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/49924510Tue, 24 May 2022 16:00:02 +0000Anna JaworskiWhy might a father get a tattoo to resemble his daughter's open-heart surgery chest scar? How could getting a tattoo like that change his life? What does being an advocate for the CHD community mean to Matt Backe? Matt Backe is married to his wife...
Matt Backe is married to his wife Laura and together they have a 10-year-old son Jack and a 4-year-old daughter named Everly, who was born with a critical heart defect. Matt went viral on the internet after having a scar tattoo on his chest to match Everly's so she wouldn't feel alone. His wife Lauren followed suit the same day, getting an EKG tattoo on her left arm. Their unique tattoos help them to raise awareness of CHD and remind other families that they are not alone. The Backes live in Crystal Lake, Illinois, where Matt is a commercial insurance salesperson and Lauren stays home to take care of the family's needs. Everly attends preschool and loves to dance. They recently celebrated her's half birthday with a trip to Disney on Ice.

In this episode of "Heart to Heart with Anna," Matt shares with Anna why he got a tattoo of a scar on his chest, how a video of that went viral, and what it means to be a Heart Dad and a Heart Ambassador.

Related links:

Today.com article: https://www.today.com/health/health/dad-tattoo-daughter-heart-surgery-scar-rcna17321

NBC Chicago Article: https://www.nbcchicago.com/news/local/crystal-lake-dad-gets-tattoo-of-daughters-open-heart-surgery-zipper-scar/2746095/

Matt’s Twitter is @youngestoffive2

Matt’s LinkedIn is: https://www.linkedin.com/in/matt-backe-cic-6ab989a/

Matt’s wife (Lauren) is a board member of CHD NFP LJs Healing Hearts (www.ljshealinghearts.com), a member of the Advocate Children’s Family Advisory Council, an advocate of Ronald McDonald House Charity NW Indiana & Chicagoland as well as many other CHD-related not-for-profit organizations and foundations.

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/
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MeWe: https://mewe.com/i/annajaworski
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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1891atrial_stenosis,b-t_replacement,chd_ambassador,chd_awareness,congenital_heart_defect,facebook,heart_dad,interrupted_aortic_arch,lung_infection,media,mental_health_month,norwood_procedure,open-heart_surgeries,play_therapy,rastelli_procedure,scar,tattoo,ventricular_septal_defect,vsdfalse17fullhttps://www.spreaker.com/episode/adult-stem-cell-success-story--49830913
Brenton Ball was born in 1990. He was diagnosed with hypoplastic left heart syndrome or HLHS and was airlifted to Mercy Hospital in Des Moines, Iowa in his first week of life. He has had several heart surgeries including a pulmonary artery banding, hemi-Fontan, and completion Fontan. He's had many stents put in, a pacemaker, and two ICDs.

Brenton has been married to his wife Kelsey for 5 years. They live in Iowa with their pet rabbit McBoon, a gift from Brenton’s sister last summer. They live close to their families and are a loving uncle and aunt to their four nephews and one niece. Brenton works part-time as a hotel desk clerk and enjoys reading and spending time with his family.


In this episode of "Heart to Heart with Anna," Brenton shares with Anna what his medical journey entailed, how he came to take part in a revolutionary, new medical procedure using stem cells, and how he endured having COVID-19.

Helpful links:

Heartworks: https://www.heartworksinc.org/products-1

The Use of Stem Cells in Treatment for Hypoplastic Left Heart Syndrome (HLHS): https://www.spreaker.com/user/7668348/2022timothynelsontrack1auphonic_3

Advancements in Stem Cell Therapies and Research for HLHS Heart Warriors
https://www.spreaker.com/user/7668348/advancements-in-stem-cell-therapies-and-

Stem Cells for an HLHS (hypoplastic left heart syndrome) Heart
https://www.spreaker.com/user/7668348/stem-cells-for-hlhs-heart-revised

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/49830913Wed, 18 May 2022 15:43:46 +0000Anna JaworskiWhat happens when a Fontan patient’s ejection fraction dips too low? Can a person’s heart damage be reversed? Is there hope for a cure for congenital heart defects? Brenton Ball was born in 1990. He was diagnosed with hypoplastic left heart...
Brenton Ball was born in 1990. He was diagnosed with hypoplastic left heart syndrome or HLHS and was airlifted to Mercy Hospital in Des Moines, Iowa in his first week of life. He has had several heart surgeries including a pulmonary artery banding, hemi-Fontan, and completion Fontan. He's had many stents put in, a pacemaker, and two ICDs.

Brenton has been married to his wife Kelsey for 5 years. They live in Iowa with their pet rabbit McBoon, a gift from Brenton’s sister last summer. They live close to their families and are a loving uncle and aunt to their four nephews and one niece. Brenton works part-time as a hotel desk clerk and enjoys reading and spending time with his family.


In this episode of "Heart to Heart with Anna," Brenton shares with Anna what his medical journey entailed, how he came to take part in a revolutionary, new medical procedure using stem cells, and how he endured having COVID-19.

Helpful links:

Heartworks: https://www.heartworksinc.org/products-1

The Use of Stem Cells in Treatment for Hypoplastic Left Heart Syndrome (HLHS): https://www.spreaker.com/user/7668348/2022timothynelsontrack1auphonic_3

Advancements in Stem Cell Therapies and Research for HLHS Heart Warriors
https://www.spreaker.com/user/7668348/advancements-in-stem-cell-therapies-and-

Stem Cells for an HLHS (hypoplastic left heart syndrome) Heart
https://www.spreaker.com/user/7668348/stem-cells-for-hlhs-heart-revised

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2134c-diff,cell_rejuvenation,coarctation_of_the_aorta,damus-kaye-stansel_procedure,dehydration,dks,ejection_fraction,fontan_procedure,fontan_revision,glenn_procedure,hlhs,hypoplastic_left_heart_syndrom,mayo_clinic,mercy_hospital,norwood_procedure,pullmonary_banding,seeding_stem_cells,stem_cells,stem_cell_surgeryfalse17fullhttps://www.spreaker.com/episode/mom-trusting-her-gut-and-finding-an-expert-from-afar--49743131
Carli Valentine lives with her husband and their two sons, Finnegan and Lochlan, in Ogden, Utah. Finnegan was born with a heart defect which contributed to other medical challenges. Carli's experiences as a mother have informed her as an author. She has written several children's books that explore themes including congenital heart defects, ADHD, emotional regulation, executive dysfunction, and airway disorders. She hopes to share the magic of books with children to instill a passion for reading. When she's not writing, she enjoys spending time with her family and volunteering at her son's school or with CHD charities.

She is the author of six children’s books including Turkey Trot, Bad Habit Rabbit and more. You can learn more about her at linktr.ee/AuthorCarliValentine and follow her on Facebook at @carlivalentineauthor.

Link to Carli’s author page on The Heart Community Collection: https://www.theheartcommunitycollection.com/carlievalentine
Carli's Facebook link: Https://www.facebook.com/Carli-Valentine-Childrens-Book-AuthorIllustrator-102280112241008/
Carli's Instagram link: https://www.instagram.com/carlivalentineauthor
Carli's TikTok link: https://vm.tiktok.com/ZTdf8bdFy/
Carli's YouTube channel link: https://www.youtube.com/channel/UCCDudGYn8Q1tcQIRm-_jbXg
Carli's Goodreads link: https://www.goodreads.com/user/show/99499463

Please visit our "Heart to Heart with Anna" Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/49743131Tue, 10 May 2022 16:00:03 +0000Anna JaworskiThis episode deals with a very unusual congenital heart defect (CHD) -- a vascular ring defect. In this episode, we will be learning about what this heart defect is, how it affects the body, how the defect can be surgically managed, and how one mother...
Carli Valentine lives with her husband and their two sons, Finnegan and Lochlan, in Ogden, Utah. Finnegan was born with a heart defect which contributed to other medical challenges. Carli's experiences as a mother have informed her as an author. She has written several children's books that explore themes including congenital heart defects, ADHD, emotional regulation, executive dysfunction, and airway disorders. She hopes to share the magic of books with children to instill a passion for reading. When she's not writing, she enjoys spending time with her family and volunteering at her son's school or with CHD charities.

She is the author of six children’s books including Turkey Trot, Bad Habit Rabbit and more. You can learn more about her at linktr.ee/AuthorCarliValentine and follow her on Facebook at @carlivalentineauthor.

Link to Carli’s author page on The Heart Community Collection: https://www.theheartcommunitycollection.com/carlievalentine
Carli's Facebook link: Https://www.facebook.com/Carli-Valentine-Childrens-Book-AuthorIllustrator-102280112241008/
Carli's Instagram link: https://www.instagram.com/carlivalentineauthor
Carli's TikTok link: https://vm.tiktok.com/ZTdf8bdFy/
Carli's YouTube channel link: https://www.youtube.com/channel/UCCDudGYn8Q1tcQIRm-_jbXg
Carli's Goodreads link: https://www.goodreads.com/user/show/99499463

Please visit our "Heart to Heart with Anna" Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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MeWe: https://mewe.com/i/annajaworski
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Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2299acceptance,adhd,author,congenital_heart_defect,empathy,esophagram,esophagus,executive_function_skills,extra_special_heart,kindness,love,socioemotional_issues,swallowing_issues,trachea,triple_team,vascular_ring,zebra_diagnosisfalse17fullhttps://www.spreaker.com/episode/beads-of-courage-for-chd-warriors--49241729
Today’s show is Beads of Courage for CHD Warriors and our Guests are Beth Moneck and Brianna Hartmann. Beth has 6 years of experience working on a Cardiac Intensive Care Unit and Acute Care unit and Cardiac Intensive Care Unit and Cardiac Clinic as a Child Life Specialist at Children’s Hospital of Pittsburgh. For the past 7 ½ years, she has been working with the Beads of Courage program, a not for profit organization who partners with clinicians from hospitals in the US and worldwide to provide innovative arts in medicine programs to support the emotional well-being of young people coping with serious illnesses.

Brianna Hartmann is a recipient of the Beads of Courage program. She has an ASD that was repaired at 6 month of age, and is currently experiencing problems with her aortic valve and blood pressure. She is 32 and lives in Minnesota. In her spare time, she loves to play music, paint pour, and hang out with her nieces and family.

Beth and Brianna share their experiences with the Beads of Courage program with Anna. You can learn more about the Beads of Courage program here: https://beadsofcourage.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/49241729Tue, 29 Mar 2022 16:00:03 +0000Anna JaworskiWhat are Beads of Courage? Why would someone with a heart defect want to receive beads when experiencing difficulties in their medical journey? Who can benefit from the Beads of Courage program? Today’s show is Beads of Courage for CHD Warriors and...
Today’s show is Beads of Courage for CHD Warriors and our Guests are Beth Moneck and Brianna Hartmann. Beth has 6 years of experience working on a Cardiac Intensive Care Unit and Acute Care unit and Cardiac Intensive Care Unit and Cardiac Clinic as a Child Life Specialist at Children’s Hospital of Pittsburgh. For the past 7 ½ years, she has been working with the Beads of Courage program, a not for profit organization who partners with clinicians from hospitals in the US and worldwide to provide innovative arts in medicine programs to support the emotional well-being of young people coping with serious illnesses.

Brianna Hartmann is a recipient of the Beads of Courage program. She has an ASD that was repaired at 6 month of age, and is currently experiencing problems with her aortic valve and blood pressure. She is 32 and lives in Minnesota. In her spare time, she loves to play music, paint pour, and hang out with her nieces and family.

Beth and Brianna share their experiences with the Beads of Courage program with Anna. You can learn more about the Beads of Courage program here: https://beadsofcourage.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2100beads,beads_of_courage,child_life_specialist,congenital_heart_defects,courage,encouragement,heart_warrior,medical_narrativefalse17fullhttps://www.spreaker.com/episode/heart-friends-meet-for-the-first-time--49143306
Do most Heart Warriors -- men and women born with congenital heart defects -- grow up knowing other Heart Warriors? Is that something that is more common today than decades ago? What kind of bond do Heart Warriors form when they come to know each other?

Today’s show is 'Heart Friends Meet for the First Time!' and our Guests are Lauren England and Jeni Busta.

Jeni Busta and Lauren England were both born with hypoplastic left heart syndrome (HLHS). In the first two years of life, they underwent multiple surgeries to repair their hearts. They later developed arrhythmias and received pacemakers, but have continued to experience SVT and other arrhythmias which have disrupted their lives at different times.

Jeni lives in Southern California with her husband Nick, a high school history teacher. They have been married for 13 years. Jeni has been actively involved in the CHD community since childhood. Who would have guessed that Jeni’s making of a documentary would later bring her into Lauren’s life?

Lauren has lived in Texas her whole life. Her heart has led her to a passion for the arts, and a beautiful friendship with Jeni.


Helpful Links:

Journey's Beginning Trailer: https://vimeo.com/31302268
Surviving the Teenage Years with a CHD (podcast) -- https://www.spreaker.com/user/7668348/encore-presentation-of-surviving-the-tee
Adult Congenital Heart Defect Survivors Finding Love (podcast) -- https://www.spreaker.com/user/7668348/adults-with-congenital-heart-defects-fin
Anniversary of a Heart Documentary (podcast) -- https://www.spreaker.com/user/heart2heartannaandfriends/s15e13track1auphonic
Camp Del Corazon -- https://www.campdelcorazon.org/
"The Heart of a Mother" (book) https://www.babyheartspress.com/store/p2/The_Heart_of_a_Mother.html

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/49143306Tue, 22 Mar 2022 16:00:03 +0000Anna JaworskiThis is a special episode of "Heart to Heart with Anna" featuring two heart friends who interacted with one another for seven years before meeting each other face-to-face in person. Anna Jaworski, our Host, was lucky to be invited to this special...
Do most Heart Warriors -- men and women born with congenital heart defects -- grow up knowing other Heart Warriors? Is that something that is more common today than decades ago? What kind of bond do Heart Warriors form when they come to know each other?

Today’s show is 'Heart Friends Meet for the First Time!' and our Guests are Lauren England and Jeni Busta.

Jeni Busta and Lauren England were both born with hypoplastic left heart syndrome (HLHS). In the first two years of life, they underwent multiple surgeries to repair their hearts. They later developed arrhythmias and received pacemakers, but have continued to experience SVT and other arrhythmias which have disrupted their lives at different times.

Jeni lives in Southern California with her husband Nick, a high school history teacher. They have been married for 13 years. Jeni has been actively involved in the CHD community since childhood. Who would have guessed that Jeni’s making of a documentary would later bring her into Lauren’s life?

Lauren has lived in Texas her whole life. Her heart has led her to a passion for the arts, and a beautiful friendship with Jeni.


Helpful Links:

Journey's Beginning Trailer: https://vimeo.com/31302268
Surviving the Teenage Years with a CHD (podcast) -- https://www.spreaker.com/user/7668348/encore-presentation-of-surviving-the-tee
Adult Congenital Heart Defect Survivors Finding Love (podcast) -- https://www.spreaker.com/user/7668348/adults-with-congenital-heart-defects-fin
Anniversary of a Heart Documentary (podcast) -- https://www.spreaker.com/user/heart2heartannaandfriends/s15e13track1auphonic
Camp Del Corazon -- https://www.campdelcorazon.org/
"The Heart of a Mother" (book) https://www.babyheartspress.com/store/p2/The_Heart_of_a_Mother.html

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
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Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2180arrhythmias,chd_support_groups,fontan,friends,hlhs,hospitalization,hypoplastic_left_heart_syndrom,jeni_busta,journey's_beginning,lauren_england,long-distance_friends,open-heart_surgery,pacemaker,podcast,supraventricular_tachycardia,svtsfalse17fullhttps://www.spreaker.com/episode/nonverbal-learning-disabilities-in-the-chd-community--49069711Dr. Brandon Lane Phillips met Dr. Amy Margolis, an Associate Professor of Medical Psychology, at a Non Verbal Learning Disorder, or NVLD, conference. Dr. Margolis is the Principal Investigator of a project sponsored by the NVLD Project that examines the neural correlates of Non-Verbal Learning Disability.
Dr. Phillips and Dr. Margolis are joining us today to share their experiences of nonverbal learning disorder (NVLD).
Helpful Links:

Dr. Brandon Lane Phillips' other "Heart to Heart with Anna" appearances

Interwoven Lives and Congenital Heart Defects: https://www.spreaker.com/user/heart2heartannaandfriends/interwoven-lives-and-congenital-heart-de
Heart Warrior Doctor-Nurse Team Treating CHD Patients: https://www.spreaker.com/user/heart2heartannaandfriends/heart-warrior-doctor-nurse-team-treating
A Wish-Made Friendship: https://www.spreaker.com/user/heart2heartannaandfriends/a-wish-made-friendship
8th Anniversary Special Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/8th-anniversary-special-part-1

Environment, Brain, and Behavior Lab at Columbia University (Dr. Amy Margolis)
: https://www.ebblab.com

Please visit our Social Media and Podcast pages:

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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/49069711Tue, 15 Mar 2022 16:00:03 +0000Anna JaworskiWhat is NVLD? Why do some people want to change the name of NVLD to developmental visual-spatial disorder? What difficulties do people with NVLD have?

Ever since Brandon Lane Phillips, M.D. had his first open-heart surgery when he was 2 years old, he...Dr. Brandon Lane Phillips met Dr. Amy Margolis, an Associate Professor of Medical Psychology, at a Non Verbal Learning Disorder, or NVLD, conference. Dr. Margolis is the Principal Investigator of a project sponsored by the NVLD Project that examines the neural correlates of Non-Verbal Learning Disability.
Dr. Phillips and Dr. Margolis are joining us today to share their experiences of nonverbal learning disorder (NVLD).
Helpful Links:

Dr. Brandon Lane Phillips' other "Heart to Heart with Anna" appearances

Interwoven Lives and Congenital Heart Defects: https://www.spreaker.com/user/heart2heartannaandfriends/interwoven-lives-and-congenital-heart-de
Heart Warrior Doctor-Nurse Team Treating CHD Patients: https://www.spreaker.com/user/heart2heartannaandfriends/heart-warrior-doctor-nurse-team-treating
A Wish-Made Friendship: https://www.spreaker.com/user/heart2heartannaandfriends/a-wish-made-friendship
8th Anniversary Special Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/8th-anniversary-special-part-1

Environment, Brain, and Behavior Lab at Columbia University (Dr. Amy Margolis)
: https://www.ebblab.com

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>27973-d_thinking,congenital_heart_defects,developmental_visual-spatial_d,diagnostic_and_statistical_man,dr._amy_margolis,dr._brandon_lane_phillips,dsm,executive_function_problems,interpreting_pictures,math_problems,motor_skill_problems,nonverbal_learning_disability,nvld,social_problems,spatial_estimation,special_education,visual-spatial_construction,visual-spatial_memory,visual-spatial_orientation,visual-spatial_trackingfalse17fullhttps://www.spreaker.com/episode/dr-tom-forsberg-and-dr-chad-hoyt-founders-of-healing-hearts-vietnam--48993261
Dr. Tom Forsberg and Dr. Chad Hoyt are co-founders of Healing Hearts Vietnam. Dr. Forsberg is an emergency physician with Centra Health in Central Virginia.  He currently serves in four emergency departments throughout the region. Dr. Chad Hoyt specializes in advanced cardiovascular imaging and has been in partnership with Centra Health for the past sixteen years. He currently serves as the executive medical director of Centra’s Heart & Vascular Center, a busy four-hospital system with seven office locations and forty clinical providers. 



For nearly a decade, Dr. Forsberg and Dr. Hoyt have shared their expertise with Vietnam. During their trips, they became aware of the great need for cardiac surgeries in children. Upon returning from Vietnam, Dr. Forsberg led the charge to form Healing Hearts Vietnam which was established in 2015. Today, Healing Heart Vietnam provides financial assistance to allow children with congenital heart disease to access life-saving surgeries.

In this episode of "Heart to Heart with Anna," Dr. Tom Forsberg and Dr. Chad Hoyt share with Anna how they came to form a nonprofit organization to save the lives of children and adults in Vietnam with broken hearts. They share how certain devices have helped them identify who they can serve and how they can best help the people of Vietnam. They also share how people in the community can donate to their organization in a variety of ways.



Links mentioned in the episode:



Healing Hearts Vietnam website: https://healingheartsvietnam.com/

Healing Hearts Vietnam

Facebook page: https://www.facebook.com/healingheartsvietnam



Vietnamese Boat People episode with Amy M. Le: https://podcasts.apple.com/gb/podcast/22-snow-in-vietnam/id1438422235?i=1000489236152

Vietnamese Boat People podcast: https://www.vietnameseboatpeople.org/podcast


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48993261Tue, 08 Mar 2022 17:00:03 +0000Anna JaworskiWhy would doctors choose to spend time volunteering in another country and creating a nonprofit organization to save children’s lives overseas? Dr. Tom Forsberg and Dr. Chad Hoyt are co-founders of Healing Hearts Vietnam. Dr. Forsberg is an...
Dr. Tom Forsberg and Dr. Chad Hoyt are co-founders of Healing Hearts Vietnam. Dr. Forsberg is an emergency physician with Centra Health in Central Virginia.  He currently serves in four emergency departments throughout the region. Dr. Chad Hoyt specializes in advanced cardiovascular imaging and has been in partnership with Centra Health for the past sixteen years. He currently serves as the executive medical director of Centra’s Heart & Vascular Center, a busy four-hospital system with seven office locations and forty clinical providers. 



For nearly a decade, Dr. Forsberg and Dr. Hoyt have shared their expertise with Vietnam. During their trips, they became aware of the great need for cardiac surgeries in children. Upon returning from Vietnam, Dr. Forsberg led the charge to form Healing Hearts Vietnam which was established in 2015. Today, Healing Heart Vietnam provides financial assistance to allow children with congenital heart disease to access life-saving surgeries.

In this episode of "Heart to Heart with Anna," Dr. Tom Forsberg and Dr. Chad Hoyt share with Anna how they came to form a nonprofit organization to save the lives of children and adults in Vietnam with broken hearts. They share how certain devices have helped them identify who they can serve and how they can best help the people of Vietnam. They also share how people in the community can donate to their organization in a variety of ways.



Links mentioned in the episode:



Healing Hearts Vietnam website: https://healingheartsvietnam.com/

Healing Hearts Vietnam

Facebook page: https://www.facebook.com/healingheartsvietnam



Vietnamese Boat People episode with Amy M. Le: https://podcasts.apple.com/gb/podcast/22-snow-in-vietnam/id1438422235?i=1000489236152

Vietnamese Boat People podcast: https://www.vietnameseboatpeople.org/podcast


Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2293asd,atrial_septal_defect,catheter-based_solutions,chad_hoyt,charity,continuing_medical_education,curry,echocardiogram,healing_hearts_vietnam,ho_chi_minh_city,medical_mission,mekong_delta,nonprofit_organization,patent_ductus_arteriosus,pda,tom_forsberg,typhoon,vietnamfalse17fullhttps://www.spreaker.com/episode/baby-heart-transplant-miracle--48911456
Susan May is mom to Nick, 32, who was born with hypoplastic left heart syndrome, transposition of the great arteries, coarctation of the aorta, and a septal defect. He had three surgeries at 5 days, 3 1/2 months, and one year of age, prior to receiving a heart transplant just before his second birthday. Nick is one of the first children in the US to receive a heart transplant and is the 5th longest living transplant recipient. Today, he is married with a daughter.

Susan has written a book about her son's heart journey, with a revised edition released this year. Susan also writes professionally and has written 40 books in total, including a nonfiction book about a World War II flight surgeon and 33 medical romance novels. She has three other children and eight grandchildren. She likes to travel, read and sew.

This episode of 'Heart to Heart with Anna" is filled with so many stories! Susan May certainly is a great storyteller. She shares so many heartfelt stories about the people who have helped Nick in his life. Anybody who is living with a transplanted heart, or whose baby may need a heart transplant needs to listen to this episode.

Links mentioned in the show:

Susan's 'The Heart Community Collection' page: https://www.theheartcommunitycollection.com/susan-may

Susan's website: http://www.susancmay.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48911456Tue, 01 Mar 2022 17:00:03 +0000Anna JaworskiWhat was it like to be a parent of a baby with a critical congenital heart defect over 30 years ago? What was life like for Susan, Nick, and the rest of the family after Nick received a heart transplant? Why would an author choose to revise a book...
Susan May is mom to Nick, 32, who was born with hypoplastic left heart syndrome, transposition of the great arteries, coarctation of the aorta, and a septal defect. He had three surgeries at 5 days, 3 1/2 months, and one year of age, prior to receiving a heart transplant just before his second birthday. Nick is one of the first children in the US to receive a heart transplant and is the 5th longest living transplant recipient. Today, he is married with a daughter.

Susan has written a book about her son's heart journey, with a revised edition released this year. Susan also writes professionally and has written 40 books in total, including a nonfiction book about a World War II flight surgeon and 33 medical romance novels. She has three other children and eight grandchildren. She likes to travel, read and sew.

This episode of 'Heart to Heart with Anna" is filled with so many stories! Susan May certainly is a great storyteller. She shares so many heartfelt stories about the people who have helped Nick in his life. Anybody who is living with a transplanted heart, or whose baby may need a heart transplant needs to listen to this episode.

Links mentioned in the show:

Susan's 'The Heart Community Collection' page: https://www.theheartcommunitycollection.com/susan-may

Susan's website: http://www.susancmay.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2224aortic_aneurysm,cardiac_transplant,children's_healthcare_of_atlan,complex_congenital_heart_defec,congenital_heart_defect,egleston_children's_hospital,emory_university_school_of_med,endocarditis,hlhs,hypoplastic_left_heart_syndrom,immunosuppressed,kirk_kanter_m.d.,norwood_procedure,open-heart_surgery,pediatric_cardiology,quality_of_life,single_ventricle,susan_maysfalse17fullhttps://www.spreaker.com/episode/medical-monday-with-greg-hummer-devices-to-help-heart-warriors-in-heart-failure--48884260
Most of the Medical Monday programs were relatively short, but Mr. Hummer talked about 4 different devices! Are you curious about the different kinds of pacemakers available? What makes an ICD different from a pacemaker? What kind of rhythm problems do pacemakers treat? What about leadless devices? Are they science fact or fiction?

Tune in for a lesson on arrhythmias heart failure, the progression some Heart Warriors face as they age, and the devices that can improve their quality of life and even save their lives.

Abbott's website page on Heart Failure: https://www.structuralheart.abbott/patients/heart-failure-treatment

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48884260Mon, 28 Feb 2022 17:00:03 +0000Anna JaworskiEach Monday in February we've been broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is the last of the four Medical Monday programs and features Greg Hummer, a Senior...
Most of the Medical Monday programs were relatively short, but Mr. Hummer talked about 4 different devices! Are you curious about the different kinds of pacemakers available? What makes an ICD different from a pacemaker? What kind of rhythm problems do pacemakers treat? What about leadless devices? Are they science fact or fiction?

Tune in for a lesson on arrhythmias heart failure, the progression some Heart Warriors face as they age, and the devices that can improve their quality of life and even save their lives.

Abbott's website page on Heart Failure: https://www.structuralheart.abbott/patients/heart-failure-treatment

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>628arrhythmia,biventricular_pacemaker,congenital_heart_defects,dual-chamber_pacemaker,heart_failure,icds,implantable_cardioverter_defib,leads,pacemakers,resynchronization_therapy,scar,single_chamber_pacemaker,sinus_node_functionfalse17fullhttps://www.spreaker.com/episode/the-making-of-a-heart-dad--48884157
Frank Jaworski is married to Anna Jaworski. Together they had two sons – Joey and Alex Jaworski. Frank Jaworski is a certified registered nurse anesthetist or CRNA. He has worked a number of jobs over the years and we’ll talk more about that in a little bit. He also serves as the President of Hearts Unite the Globe: A Nonprofit Organization for the Congenital Heart Defect Community – a nonprofit organization founded by Frank and Anna Jaworski, Bob Daigneault, Bill Tse, Sue Dove, and Brenda Vignaroli. Frank also did all of the illustrations for Anna’s first book, “Hypoplastic Left Heart Syndrome: A Handbook for Parents,” and for the Glossary of “The Heart of a Mother.” He wrote an essay and the connecting material for the book, “The Heart of a Father.”



Frank Jaworski loves traveling, cooking, reading, writing, and playing with his two new dogs – Buck and Chloe.  In addition to hearing him on Heart Dad Sundays during Heart Month, February 2022, he was also Anna’s Fun Fact Friday Guest, and he and Anna made recipes from Amy M. Le’s cookbook “Snow’s Kitchen” for Tasty Thursday.



Frank shares his journey from husband to father, from emergency medical technician to nurse, and what it meant for him to become a Heart Dad. He also shares some advice he has learned the hard way -- from saying good-bye and losing control. It's a touching interview between a man and his Heart Warrior.



Helpful Links



Baby Hearts Press (for the books Frank and Anna put together): https://www.babyheartspress.com/

Hearts Unite the Globe: A Nonprofit Organization for the CHD Community: https://www.heartsunitetheglobe.org



Heart Dad Sunday #3: Dealing with Autism & Epilepsy https://www.spreaker.com/user/7668348/beyond-chds-dealing-with-autism-epilepsy

Heart Dad Sunday #2: Beyond the Heart: When Neurological Problems Accompany HLHS
https://www.spreaker.com/user/7668348/beyond-the-heart-when-neurological-probl
Heart Dad Sunday #1: Dad of an ACHA Founder https://www.spreaker.com/user/7668348/dad-of-an-acha-founder

Fun Face Friday #4: Why do some people with bicuspid aortic valves need surgery and some don't? https://www.spreaker.com/user/7668348/fun-fact-friday-why-do-some-people-with-
Fun Face Friday #3: What is prostaglandin E1 and why is it important? https://www.spreaker.com/user/7668348/fun-fact-friday-what-is-prostaglandin-e1

Fun Face Friday #2: What arrhythmias are life-threatening? https://www.spreaker.com/user/7668348/s17e343arrhythmias_2

Fun Face Friday #1: Who is the Father of Interventional Cardiology? https://www.spreaker.com/user/7668348/fun-fact-friday-who-is-the-father-of-int

Tasty Thursday #4: Lemon Cheesecake  https://www.spreaker.com/user/7668348/tasty-thursday-lemon-cheesecake

Tasty Thursday #3: Boeuf Bourgignon https://www.spreaker.com/user/7668348/tasty-thursday-boeuf-bourgignon
Tasty Thursday #2: Yellow Curry Chicken https://www.spreaker.com/user/7668348/tasty-thursday-yellow-curry-chicken
Tasty Thursday #1: Spring Rolls https://www.spreaker.com/user/7668348/tasty-thursday-spring-rolls

Alex interviewing Anna on the 300th episode of "Heart to Heart with Anna" https://www.spreaker.com/user/7668348/celebrating-300-episodes-of-heart-to-hea

Links to Social Media:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48884157Sun, 27 Feb 2022 17:00:02 +0000Anna JaworskiThis is the final Heart Dad Sunday episode for Heart Month, February 2022 and it features a surprise -- instead of Frank Jaworski being the Guest Host, he is the Guest and his Heart Warrior son Alexander is the Guest Host.

 Frank Jaworski is...
Frank Jaworski is married to Anna Jaworski. Together they had two sons – Joey and Alex Jaworski. Frank Jaworski is a certified registered nurse anesthetist or CRNA. He has worked a number of jobs over the years and we’ll talk more about that in a little bit. He also serves as the President of Hearts Unite the Globe: A Nonprofit Organization for the Congenital Heart Defect Community – a nonprofit organization founded by Frank and Anna Jaworski, Bob Daigneault, Bill Tse, Sue Dove, and Brenda Vignaroli. Frank also did all of the illustrations for Anna’s first book, “Hypoplastic Left Heart Syndrome: A Handbook for Parents,” and for the Glossary of “The Heart of a Mother.” He wrote an essay and the connecting material for the book, “The Heart of a Father.”



Frank Jaworski loves traveling, cooking, reading, writing, and playing with his two new dogs – Buck and Chloe.  In addition to hearing him on Heart Dad Sundays during Heart Month, February 2022, he was also Anna’s Fun Fact Friday Guest, and he and Anna made recipes from Amy M. Le’s cookbook “Snow’s Kitchen” for Tasty Thursday.



Frank shares his journey from husband to father, from emergency medical technician to nurse, and what it meant for him to become a Heart Dad. He also shares some advice he has learned the hard way -- from saying good-bye and losing control. It's a touching interview between a man and his Heart Warrior.



Helpful Links



Baby Hearts Press (for the books Frank and Anna put together): https://www.babyheartspress.com/

Hearts Unite the Globe: A Nonprofit Organization for the CHD Community: https://www.heartsunitetheglobe.org



Heart Dad Sunday #3: Dealing with Autism & Epilepsy https://www.spreaker.com/user/7668348/beyond-chds-dealing-with-autism-epilepsy

Heart Dad Sunday #2: Beyond the Heart: When Neurological Problems Accompany HLHS
https://www.spreaker.com/user/7668348/beyond-the-heart-when-neurological-probl
Heart Dad Sunday #1: Dad of an ACHA Founder https://www.spreaker.com/user/7668348/dad-of-an-acha-founder

Fun Face Friday #4: Why do some people with bicuspid aortic valves need surgery and some don't? https://www.spreaker.com/user/7668348/fun-fact-friday-why-do-some-people-with-
Fun Face Friday #3: What is prostaglandin E1 and why is it important? https://www.spreaker.com/user/7668348/fun-fact-friday-what-is-prostaglandin-e1

Fun Face Friday #2: What arrhythmias are life-threatening? https://www.spreaker.com/user/7668348/s17e343arrhythmias_2

Fun Face Friday #1: Who is the Father of Interventional Cardiology? https://www.spreaker.com/user/7668348/fun-fact-friday-who-is-the-father-of-int

Tasty Thursday #4: Lemon Cheesecake  https://www.spreaker.com/user/7668348/tasty-thursday-lemon-cheesecake
1796alex_jaworski,certified_registered_nurse_ane,congenital_heart_defect,crna,diagnosis,dr._john_calhoon,emt,frank_jaworski,heart_dad,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,nurse,open-heart_surgery,san_antoniofalse17fullhttps://www.spreaker.com/episode/the-making-of-a-louisiana-legend--48881463
Today’s episode is entitled “The Making of a Louisiana Legend” and our guest is Dr. Terry King.

Dr. Terry King completed his training in Pediatrics and Pediatric Cardiology at the University of Texas and Duke University. He started practicing in 1965, caring for children in the state of Louisiana.

In 1975, Dr. King and Dr. Noel Mills invented the “cardiac umbrella” to close holes in the heart without surgery and were the first to implant the device in humans. This technology forever changed how structural defects in the heart are repaired, both in children and adults. They were nominated for the Nobel Prize in Physiology in 1976.

Dr. King considers the greatest responsibility you can give another person is the care of your child and he has dedicated his life and work to educating others on this important journey. He has helped to build the capacity of scholars and researchers in the field, delivering lectures and establishing a pediatric symposium for health professionals.

He has helped to establish Neonatal and Pediatric Intensive Care Units in underserved areas of Louisiana to assist children with heart disease and their families who have no other means of receiving care.

Links mentioned in this episode:

PBS Louisiana Legend: Terry King, MD : https://www.youtube.com/watch?v=jNX5bf_rolM

Ocshner Hospital: https://www.ochsner.org/

HeartWorks: https://www.heartworksinc.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48881463Sat, 26 Feb 2022 21:00:02 +0000Anna JaworskiWho was the first person to close holes in the heart between the upper chambers of the heart in the cath lab? What exactly is interventional cardiology and why is it important? What future devices do our Heart Warriors have to look forward to?...
Today’s episode is entitled “The Making of a Louisiana Legend” and our guest is Dr. Terry King.

Dr. Terry King completed his training in Pediatrics and Pediatric Cardiology at the University of Texas and Duke University. He started practicing in 1965, caring for children in the state of Louisiana.

In 1975, Dr. King and Dr. Noel Mills invented the “cardiac umbrella” to close holes in the heart without surgery and were the first to implant the device in humans. This technology forever changed how structural defects in the heart are repaired, both in children and adults. They were nominated for the Nobel Prize in Physiology in 1976.

Dr. King considers the greatest responsibility you can give another person is the care of your child and he has dedicated his life and work to educating others on this important journey. He has helped to build the capacity of scholars and researchers in the field, delivering lectures and establishing a pediatric symposium for health professionals.

He has helped to establish Neonatal and Pediatric Intensive Care Units in underserved areas of Louisiana to assist children with heart disease and their families who have no other means of receiving care.

Links mentioned in this episode:

PBS Louisiana Legend: Terry King, MD : https://www.youtube.com/watch?v=jNX5bf_rolM

Ocshner Hospital: https://www.ochsner.org/

HeartWorks: https://www.heartworksinc.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2456amplatzer,catheterization,dr._noah_mills,dr._terry_king,father_of_interventional_cardi,helix_device,infant_mortality,interventional_cardiology,louisiana,louisiana_legend,neonatal_intensive_care_unit,nicu,nitinol,ocshner_hospital,pbs_special,pediatric_cardiologist,pediatric_intensive_care_unit,picu,suzette_creppel,umbrella_closure_devicefalse17fullhttps://www.spreaker.com/episode/fun-fact-friday-why-do-some-people-with-bicuspid-aortic-valves-need-surgery-and-some-don-t--48839251
In this final episode of our mini-series, Frank will answer the question, "Why do some people with bicuspid aortic valves need surgery and some don't?

Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/

Image by Mohamed Hassan from Pixabay -- thanks! (https://pixabay.com/vectors/heart-doctor-medical-health-care-6771075/)

Please visit our Social Media and Podcast pages:


Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48839251Fri, 25 Feb 2022 17:00:03 +0000Anna JaworskiWelcome to Fun Fact Friday -- a special weekly podcast during Heart Month (February 2022). Each Friday we have been sharing fun facts for the congenital heart defect community. Our Guest is Frank Jaworski, CRNA -- he is a father to a 27-year-old...
In this final episode of our mini-series, Frank will answer the question, "Why do some people with bicuspid aortic valves need surgery and some don't?

Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/

Image by Mohamed Hassan from Pixabay -- thanks! (https://pixabay.com/vectors/heart-doctor-medical-health-care-6771075/)

Please visit our Social Media and Podcast pages:


Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>386aortic_aneurysm,bav,bicuspid_aortic_valve,congenital_heart_defect,decreased_cardiac_output,open-heart_surgery,regurgitation,taver,transarterial_valve_replacemen,tricuspid_valvefalse17fullhttps://www.spreaker.com/episode/tasty-thursday-lemon-cheesecake--48839079
In this final episode of our Tasty Thursday mini-series during Heart Month, February 2022, Anna Jaworski and her husband Frank talk with the author of Snow's Kitchen about making Lemon Cheesecake.

To make this recipe keto:

Instead of using honey graham crackers, white flour, 3 cups of sugar, and store-bought lemon curd (resulting in 72 grams of carbs per serving), we substituted Cinnamon-flavored Magic Pop for the honey graham crackers, erythitol and aspartame for the sugar, almond flour for the white flour, and we still used the Dickinson’s lemon curd in the lemon curd frosting along with our home-made lemon curd.

Believe it or not, by making these substitutions, our carb count was 12 grams of carbs per serving with the cheesecake cut into 12 slices.

Don't miss our Tasty Thursday episode where we made Spring Rolls! (https://tinyurl.com/m35zm45u)

or the Tasty Thursday episode where we made Yellow Curry Chicken! (https://tinyurl.com/2u3mycep)

or the Boeuf Bourgignon 3rd episode of Tasty Thursday! (https://www.spreaker.com/user/7668348/tasty-thursday-boeuf-bourgignon)

To purchase Amy's cookbook, "Snow's Kitchen" use this link
For an autographed copy of the book, use this link
Amy's website: https://www.etsy.com/shop/HeartCommunity
"Heart to Heart with Anna" BONUS COUPON! To receive a 20% discount on the autographed copy of the book, plus free domestic shipping, use the coupon code TASTYTHURSDAY

Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website:
http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.html

Please visit our Social Media and Podcast pages:


Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48839079Thu, 24 Feb 2022 17:00:02 +0000Anna JaworskiEach Thursday we will have author Amy M. Le joining us to chat about recipes from her cookbook Snow’s Kitchen. For those of you who don’t know, Amy is the author of a trilogy of books revolving around her Vietnamese mother’s journey to the United...
In this final episode of our Tasty Thursday mini-series during Heart Month, February 2022, Anna Jaworski and her husband Frank talk with the author of Snow's Kitchen about making Lemon Cheesecake.

To make this recipe keto:

Instead of using honey graham crackers, white flour, 3 cups of sugar, and store-bought lemon curd (resulting in 72 grams of carbs per serving), we substituted Cinnamon-flavored Magic Pop for the honey graham crackers, erythitol and aspartame for the sugar, almond flour for the white flour, and we still used the Dickinson’s lemon curd in the lemon curd frosting along with our home-made lemon curd.

Believe it or not, by making these substitutions, our carb count was 12 grams of carbs per serving with the cheesecake cut into 12 slices.

Don't miss our Tasty Thursday episode where we made Spring Rolls! (https://tinyurl.com/m35zm45u)

or the Tasty Thursday episode where we made Yellow Curry Chicken! (https://tinyurl.com/2u3mycep)

or the Boeuf Bourgignon 3rd episode of Tasty Thursday! (https://www.spreaker.com/user/7668348/tasty-thursday-boeuf-bourgignon)

To purchase Amy's cookbook, "Snow's Kitchen" use this link
For an autographed copy of the book, use this link
Amy's website: https://www.etsy.com/shop/HeartCommunity
"Heart to Heart with Anna" BONUS COUPON! To receive a 20% discount on the autographed copy of the book, plus free domestic shipping, use the coupon code TASTYTHURSDAY

Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website:
http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.html

Please visit our Social Media and Podcast pages:


Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>937amy_m._le,dessert,dickinson's_lemon_curd,filling,glaze,keto-friendlly_recipe,lemon_cheesecake,lemon_zest,magic_pop,snow's_kitchen,substitutions,vietnamese_cookingfalse17fullhttps://www.spreaker.com/episode/mental-health-wednesday-stretching-exercises-to-soothe-the-soul--48838783https://www.karger.com/Article/Pdf/223730)

Neurodegenerative diseases become more prevalent as individuals age and, therefore, represent a serious issue for the healthcare system. Since inactivity is the number one risk factor for many diseases, physical activity has become an emerging topic of interest for many investigators. Exercise might act as an efficient and low-cost adjunctive factor in the treatment and prevention of age-related neurodegenerative processes [1, 2] . Clinical evidence has demonstrated that exercise has a positive relationship with the outcome of different mental diseases, such as depression, Alzheimer’s disease and Parkinson’s disease, improving not only patients’ quality of life but the disease itself [7–9] . Indeed, exercise is related to enhanced cognitive functioning and brain plasticity [10, 11]

I think we can all agree that we feel better after a good workout but lately, I’ve been too busy to work out. I’ve been sitting at my computer cranking out scripts and recording podcasts and I’ve been building up a lot of tension in my shoulders, neck, and back. Therefore, I decided in this last episode of Mental Health Wednesday that I would do some stretching exercises. Whenever I do my yoga, I feel better and I thought that if I feel better doing those exercises, surely everyone else would, too. Exercise is good for our mental health.

Helping me today is a very special Heart Warrior. She is a Hearts Unite the Globe Patron and a contributor to my newest book — “The Heart of a Heart Warrior.” Alicia Lynch and I had an opportunity to meet in person several years ago at a conference in Boston. I’m completely delighted that she is joining me in the studio today.

Thanks to Tammy Oropesa for the music at the beginning and ending of this episode. Visit Tammy's website: https://www.okay-tee.com/

To follow along with Alicia and me, use our YouTube link here: https://www.youtube.com/watch?v=MmketAlGRo0

Thanks to Siddhartha Corsus for the music accompanying our workout
“Oh, Radiant One” https://freemusicarchive.org/music/Siddhartha
Here is this artist’s website: https://siddhartha.music.blog/

Special thanks to Alicia Lynch for guiding us in this exercise routine. This is the final installment of our Mental Health Wednesday mini-series during Heart Month, February 2022.

Special thanks to Stephanie Scherer for sound engineering and production assistance and to Spencer Tyme for being our Producer for this episode.

Please visit our Social Media and Podcast pages:


Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48838783Wed, 23 Feb 2022 17:00:02 +0000Anna JaworskiAccording to an article in Neuropsychobiology entitled “Exercise and Mental Health: Many Reasons to Move” (https://www.karger.com/Article/Pdf/223730) Neurodegenerative diseases become more prevalent as individuals age and, therefore, represent a...https://www.karger.com/Article/Pdf/223730)

Neurodegenerative diseases become more prevalent as individuals age and, therefore, represent a serious issue for the healthcare system. Since inactivity is the number one risk factor for many diseases, physical activity has become an emerging topic of interest for many investigators. Exercise might act as an efficient and low-cost adjunctive factor in the treatment and prevention of age-related neurodegenerative processes [1, 2] . Clinical evidence has demonstrated that exercise has a positive relationship with the outcome of different mental diseases, such as depression, Alzheimer’s disease and Parkinson’s disease, improving not only patients’ quality of life but the disease itself [7–9] . Indeed, exercise is related to enhanced cognitive functioning and brain plasticity [10, 11]

I think we can all agree that we feel better after a good workout but lately, I’ve been too busy to work out. I’ve been sitting at my computer cranking out scripts and recording podcasts and I’ve been building up a lot of tension in my shoulders, neck, and back. Therefore, I decided in this last episode of Mental Health Wednesday that I would do some stretching exercises. Whenever I do my yoga, I feel better and I thought that if I feel better doing those exercises, surely everyone else would, too. Exercise is good for our mental health.

Helping me today is a very special Heart Warrior. She is a Hearts Unite the Globe Patron and a contributor to my newest book — “The Heart of a Heart Warrior.” Alicia Lynch and I had an opportunity to meet in person several years ago at a conference in Boston. I’m completely delighted that she is joining me in the studio today.

Thanks to Tammy Oropesa for the music at the beginning and ending of this episode. Visit Tammy's website: https://www.okay-tee.com/

To follow along with Alicia and me, use our YouTube link here: https://www.youtube.com/watch?v=MmketAlGRo0

Thanks to Siddhartha Corsus for the music accompanying our workout
“Oh, Radiant One” https://freemusicarchive.org/music/Siddhartha
Here is this artist’s website: https://siddhartha.music.blog/

Special thanks to Alicia Lynch for guiding us in this exercise routine. This is the final installment of our Mental Health Wednesday mini-series during Heart Month, February 2022.

Special thanks to Stephanie Scherer for sound engineering and production assistance and to Spencer Tyme for being our Producer for this episode.

Please visit our Social Media and Podcast pages:


Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this...]]>836aging,brain_plasticity,cognitive_functioning,congenital_heart_defects,depression,exercises,mental_health,neurodegenerative_disease,physical_activity,stress,stretching,tense_muscles,yogafalse17fullhttps://www.spreaker.com/episode/plastic-bronchitis-and-immune-deficiency--48822478
Anna: Heidi Ingvaldsen is 38 years old and lives in the north of Norway with her partner Karl Stian. The couple has three children from previous relationships, Karl's sons, Nicklas, aged 17, and Tobias, aged 14, and Heidi's daughter, Maya, aged 17. Heidi and Karl welcomed their son, Karl Emil, 5 years ago. Karl Emil was born with hypoplastic left heart syndrome or HLHS and also has plastic bronchitis and an immune deficiency. He has had three heart surgeries and lives with Fontan circulation. Heidi is committed to advocating for her son's health to get him the best care possible. Living in Norway makes advocacy more of a challenge. In this episode, Heidi shares with Anna how she is learning about pediatric cardiology and what she hopes for her son's future.

Other "Heart to Heart with Anna" episodes about plastic bronchitis:

Heart Family Living with Plastic Bronchitis: https://www.spreaker.com/user/heart2heartannaandfriends/heart-family-living-with-plastic-bronchi

Surviving Plastic Bronchitis Thanks to a Heart Transplant: https://www.spreaker.com/user/heart2heartannaandfriends/surviving-plastic-bronchitis-thanks-to-a

Facebook page mentioned in this episode:
Families Dealing with Plastic Bronchitis: https://www.facebook.com/groups/plasticbronchitis

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48822478Tue, 22 Feb 2022 17:00:03 +0000Anna JaworskiWhat is plastic bronchitis? What is immune deficiency and how might it be related to plastic bronchitis? More importantly, what can be done about it? Today’s Guest will answer those questions and more! Anna: Heidi Ingvaldsen is 38 years old and...
Anna: Heidi Ingvaldsen is 38 years old and lives in the north of Norway with her partner Karl Stian. The couple has three children from previous relationships, Karl's sons, Nicklas, aged 17, and Tobias, aged 14, and Heidi's daughter, Maya, aged 17. Heidi and Karl welcomed their son, Karl Emil, 5 years ago. Karl Emil was born with hypoplastic left heart syndrome or HLHS and also has plastic bronchitis and an immune deficiency. He has had three heart surgeries and lives with Fontan circulation. Heidi is committed to advocating for her son's health to get him the best care possible. Living in Norway makes advocacy more of a challenge. In this episode, Heidi shares with Anna how she is learning about pediatric cardiology and what she hopes for her son's future.

Other "Heart to Heart with Anna" episodes about plastic bronchitis:

Heart Family Living with Plastic Bronchitis: https://www.spreaker.com/user/heart2heartannaandfriends/heart-family-living-with-plastic-bronchi

Surviving Plastic Bronchitis Thanks to a Heart Transplant: https://www.spreaker.com/user/heart2heartannaandfriends/surviving-plastic-bronchitis-thanks-to-a

Facebook page mentioned in this episode:
Families Dealing with Plastic Bronchitis: https://www.facebook.com/groups/plasticbronchitis

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1916casts,congenital_heart_defects,critical_congenital_heart_defe,fontan,hemi-fontan,hlhs,hypoplastic_left_heart_syndrom,immune_deficiency,low_igg,molly_fee,norway,plastic_bronchitis,sano_procedure,strokefalse17fullhttps://www.spreaker.com/episode/medical-monday-with-dr-terry-king--48814147
Today we’ll be talking about a congenital heart defect known as an atrial septal defect or ASD -- more commonly referred to as a 'hole in the heart' and one doctor's mission to find a way to use a device in a cardiac catheterization to close the hole. Although ASDs were being closed via open-heart surgery in the 1970s, Dr. King joined forces with Dr. Noel Millls, a cardiothoracic surgeon, and together they developed the King-Mills umbrella device. Dr. King shares how he came upon the inspiration needed to invent this life-saving device.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48814147Mon, 21 Feb 2022 17:00:02 +0000Anna JaworskiEach Monday in February we're broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is the third of four Medical Monday programs and features a gentleman commonly referred to as...
Today we’ll be talking about a congenital heart defect known as an atrial septal defect or ASD -- more commonly referred to as a 'hole in the heart' and one doctor's mission to find a way to use a device in a cardiac catheterization to close the hole. Although ASDs were being closed via open-heart surgery in the 1970s, Dr. King joined forces with Dr. Noel Millls, a cardiothoracic surgeon, and together they developed the King-Mills umbrella device. Dr. King shares how he came upon the inspiration needed to invent this life-saving device.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>569asd,atrial_septal_defect,catheterization_lab,closure_device.,congenital_heart_defect,dacron,dr._noel_mills,dr._terry_king,interventional_cardiology,king-mills_umbrella_device,silicone_ring,snap_closure,stainless_steel,umbrellasfalse17fullhttps://www.spreaker.com/episode/beyond-chds-dealing-with-autism-epilepsy--48808797
Michael is the father of three children: 27-year old Idan, 25-year-old Sapir, and forever 15-year old Liel. Michael and Leora have been married for 34 years and Michael made aliyah to Jerusalem after college.

Michael was a former filmmaker, high school teacher, adjunct professor of television and radio production, and he now works in security. For almost 6 years Michael has been working with Frank's wife, Anna, as the Host of a bereavement podcast now entitled, “Bereaved But Still Me.”

Links to Michael's other appearances on "Heart to Heart with Anna"

Congenital Heart Defects Around the Globe: Israel -- http://www.spreaker.com/user/heart2heartannaandfriends/chds-around-the-globe-israel

Liel and Her Many Gifts: A Family's Decision to Donate One Girl's Lungs, Kidneys -- https://www.spreaker.com/user/heart2heartannaandfriends/s12e1-michael-liben

Michael and Jamie: An Interview with an Organ Recipient and Donor's Dad -- https://www.spreaker.com/user/heart2heartannaandfriends/s12e3-track-1-auphonic

Link to Michael's podcast -- Bereaved But Still Me -- https://www.hug-podcastnetwork.com/bereaved-but-still-me.html

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48808797Sun, 20 Feb 2022 19:30:03 +0000Anna JaworskiThis is the 3rd of 4 episodes of Heart Dad Sunday -- a mini-series developed for Heart Month, February 2022. Heart Dad Frank Jaworski returns in this episode as the Guest Host. He interviews long-time friend, Michael Liben, about what it was like to...
Michael is the father of three children: 27-year old Idan, 25-year-old Sapir, and forever 15-year old Liel. Michael and Leora have been married for 34 years and Michael made aliyah to Jerusalem after college.

Michael was a former filmmaker, high school teacher, adjunct professor of television and radio production, and he now works in security. For almost 6 years Michael has been working with Frank's wife, Anna, as the Host of a bereavement podcast now entitled, “Bereaved But Still Me.”

Links to Michael's other appearances on "Heart to Heart with Anna"

Congenital Heart Defects Around the Globe: Israel -- http://www.spreaker.com/user/heart2heartannaandfriends/chds-around-the-globe-israel

Liel and Her Many Gifts: A Family's Decision to Donate One Girl's Lungs, Kidneys -- https://www.spreaker.com/user/heart2heartannaandfriends/s12e1-michael-liben

Michael and Jamie: An Interview with an Organ Recipient and Donor's Dad -- https://www.spreaker.com/user/heart2heartannaandfriends/s12e3-track-1-auphonic

Link to Michael's podcast -- Bereaved But Still Me -- https://www.hug-podcastnetwork.com/bereaved-but-still-me.html

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1801autism,chd,critical_congenital_heart_defe,dorv,double_outlet_left_ventricle,epilepsy,heart_block,kibbutz,open-heart_surgery,organ_donation,pacemaker,pulmonary_banding,rastelli,seizures,sudden_unexpected_death_in_epi,sudep,tga,ventricular_septal_defect,vsdfalse17fullhttps://www.spreaker.com/episode/carrlee-mcguire-lim-from-camper-to-camp-nurse--48797445
Carrlee McGuire-Lim is a Heart Warrior who was born with Hypoplastic Right Heart Syndrome, Coarctation, and TGA. She has had several cardiac surgeries over her lifetime and a Pacemaker placed at age 5. Carlee also has severe scoliosis requiring surgical rod placement at age 13.

Carrlee knew from a young age that she wanted to be a nurse, but always had concerns if her heart would be strong enough to work the long hours in a high stress environment. Beating the odds, Carrlee successfully graduated from nursing school in 2017 and works as a NICU nurse caring for tiny newborns, some with congenital heart disease too! Carrlee pursued more and graduated with her MSN and starting teaching nursing students in 2021.

She married the love of her life in 2017 and has big plans for her future.

Our Guest Host is Roslyn Rivera. She is also a Heart Warrior and a nurse! Roslyn is also a Medical Advisory Board member.

Links mentioned in this program:

Camp Del Corazon website: https://www.campdelcorazon.org/

A video with Carrlee and Roslyn: https://www.youtube.com/watch?v=nH3dxB251cE

Roslyn's former "Heart to Heart with Anna" episodes:

A View From the Other Side of the Bed: https://www.spreaker.com/user/heart2heartannaandfriends/a-view-from-the-other-side-of-the-bed

Congenital Heart Defects Around the Globe: The Novick Cardiac Alliance: http://www.spreaker.com/user/heart2heartannaandfriends/chds-around-the-globe-novick-cardiac-all

Nurse Burnout in the CHD Community Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/nurse-burnout-in-the-chd-community

Nurse Burnout in the CHD Community Part 2: https://www.spreaker.com/user/heart2heartannaandfriends/s15e8track1auphonic-1


Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48797445Sat, 19 Feb 2022 17:00:02 +0000Anna JaworskiHow can a heart camp, like Camp Del Corazon, enhance a Heart Warrior's life? What made one Heart Warrior decide to become a nurse and eventually to go back to Camp Del Corazon as a Camp Nurse? What is the next step for a Heart Warrior after she is too...
Carrlee McGuire-Lim is a Heart Warrior who was born with Hypoplastic Right Heart Syndrome, Coarctation, and TGA. She has had several cardiac surgeries over her lifetime and a Pacemaker placed at age 5. Carlee also has severe scoliosis requiring surgical rod placement at age 13.

Carrlee knew from a young age that she wanted to be a nurse, but always had concerns if her heart would be strong enough to work the long hours in a high stress environment. Beating the odds, Carrlee successfully graduated from nursing school in 2017 and works as a NICU nurse caring for tiny newborns, some with congenital heart disease too! Carrlee pursued more and graduated with her MSN and starting teaching nursing students in 2021.

She married the love of her life in 2017 and has big plans for her future.

Our Guest Host is Roslyn Rivera. She is also a Heart Warrior and a nurse! Roslyn is also a Medical Advisory Board member.

Links mentioned in this program:

Camp Del Corazon website: https://www.campdelcorazon.org/

A video with Carrlee and Roslyn: https://www.youtube.com/watch?v=nH3dxB251cE

Roslyn's former "Heart to Heart with Anna" episodes:

A View From the Other Side of the Bed: https://www.spreaker.com/user/heart2heartannaandfriends/a-view-from-the-other-side-of-the-bed

Congenital Heart Defects Around the Globe: The Novick Cardiac Alliance: http://www.spreaker.com/user/heart2heartannaandfriends/chds-around-the-globe-novick-cardiac-all

Nurse Burnout in the CHD Community Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/nurse-burnout-in-the-chd-community

Nurse Burnout in the CHD Community Part 2: https://www.spreaker.com/user/heart2heartannaandfriends/s15e8track1auphonic-1


Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1313bullying,camp_del_corazon,catheterizations,coa,congenital_heart_defect,fontan,friendships,glenn,heart_warrior,hrhs,hypoplasticc_right_heart_syndr,kevin_shannon,lisa_knight,nicu,norwoodd,nurse,open-heart_surgery,pacemaker,scars,tgafalse17fullhttps://www.spreaker.com/episode/fun-fact-friday-what-is-prostaglandin-e1-and-why-is-it-important--48751116
In this episode, Frank will answer the question, "What is prostaglandin E1 and why is it important?"

Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/

Thanks to Pixabay for the image used with the podcast. Image by WikimediaImages from Pixabay

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48751116Fri, 18 Feb 2022 17:00:03 +0000Anna JaworskiWelcome to Fun Fact Friday -- a special weekly podcast during Heart Month (February 2022). Each Friday we have been sharing fun facts for the congenital heart defect community. Our Guest is Frank Jaworski, CRNA -- he is a father to a 27-year-old...
In this episode, Frank will answer the question, "What is prostaglandin E1 and why is it important?"

Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/

Thanks to Pixabay for the image used with the podcast. Image by WikimediaImages from Pixabay

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

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MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>323congenital_heart_defect,critical_congenital_heart_defe,ductus_arteriosus,hole_in_the_heart,hormone,mixing_of_blood,patent_ductus_arteriosus,prostaglandin_e1false17fullhttps://www.spreaker.com/episode/tasty-thursday-boeuf-bourgignon--48751046
In this episode, Anna Jaworski and her husband Frank talk with the author of Snow's Kitchen about the recipe on page 175-177 of Snow’s Kitchen -- Boeuf Bourgignon.

To make this recipe keto:

Instead of using white flour, we used almond flour, and cauliflower rice instead of noodles, rice, mashed potatoes, baguettes, or polenta. The carb count for the original boeuf bourgignon would be about 40 grams of carbs per serving but with the modifications we made, the carb count was 17 grams of carbs.

Don't miss our Tasty Thursday episode where we made Spring Rolls! (https://tinyurl.com/m35zm45u)

or the Tasty Thursday episode where we made Yellow Curry Chicken! (https://tinyurl.com/2u3mycep)

To purchase Amy's cookbook, "Snow's Kitchen" use this link (https://bookshop.org/books/snow-s-kitchen-a-novella-and-cookbook-9781735119441/9781735119458)
For an autographed copy of the book, use this link (https://bookshop.org/books/snow-s-kitchen-a-novella-and-cookbook-9781735119441/9781735119458)
Amy's website: https://www.etsy.com/shop/HeartCommunity

Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website:
http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.html

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48751046Thu, 17 Feb 2022 17:00:03 +0000Anna JaworskiEach Thursday we will have author Amy M. Le joining us to chat about recipes from her cookbook Snow’s Kitchen. For those of you who don’t know, Amy is the author of a trilogy of books revolving around her Vietnamese mother’s journey to the United...
In this episode, Anna Jaworski and her husband Frank talk with the author of Snow's Kitchen about the recipe on page 175-177 of Snow’s Kitchen -- Boeuf Bourgignon.

To make this recipe keto:

Instead of using white flour, we used almond flour, and cauliflower rice instead of noodles, rice, mashed potatoes, baguettes, or polenta. The carb count for the original boeuf bourgignon would be about 40 grams of carbs per serving but with the modifications we made, the carb count was 17 grams of carbs.

Don't miss our Tasty Thursday episode where we made Spring Rolls! (https://tinyurl.com/m35zm45u)

or the Tasty Thursday episode where we made Yellow Curry Chicken! (https://tinyurl.com/2u3mycep)

To purchase Amy's cookbook, "Snow's Kitchen" use this link (https://bookshop.org/books/snow-s-kitchen-a-novella-and-cookbook-9781735119441/9781735119458)
For an autographed copy of the book, use this link (https://bookshop.org/books/snow-s-kitchen-a-novella-and-cookbook-9781735119441/9781735119458)
Amy's website: https://www.etsy.com/shop/HeartCommunity

Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website:
http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.html

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

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Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>670amy_m._le,beef,boeuf_bourgignon,congenital_heart_defect,keto-friendly_recipe,open-heart_surgery,recipe,snow's_kitchen,stew,vietnam,vietnamese_food,vietnam_refugeefalse17fullhttps://www.spreaker.com/episode/mental-health-wednesday-sharing-a-small-aspect-of-your-day--48750944
Don't forget to share a small aspect of your day with Anna on any of the social media platforms listed below or by visiting her website and filling out the contact form there.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Thanks to Frank Jaworski for always being willing to share with me and for supporting me in my podcasting endeavors.

Here's the link to my YouTube video of Buck and Chloe: https://youtu.be/t1jcy1i5xx4

Here is a link to the article I mentioned at the top of the program from the Mental Health Foundation.: https://www.mentalhealth.org.uk/a-to-z/f/friendship-and-mental-health

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

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Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48750944Wed, 16 Feb 2022 17:00:03 +0000Anna JaworskiI believe the power of friendship to enhance our feeling of well-being cannot be overrated. Friends do so much to make us feel better about ourselves, to multiply our happiness, and to divide our sorrow. It's with the help of friends that many of us...
Don't forget to share a small aspect of your day with Anna on any of the social media platforms listed below or by visiting her website and filling out the contact form there.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Thanks to Frank Jaworski for always being willing to share with me and for supporting me in my podcasting endeavors.

Here's the link to my YouTube video of Buck and Chloe: https://youtu.be/t1jcy1i5xx4

Here is a link to the article I mentioned at the top of the program from the Mental Health Foundation.: https://www.mentalhealth.org.uk/a-to-z/f/friendship-and-mental-health

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>319dogs,friendship,happiness,mental_health,pets,stress_reduction,wellnessfalse17fullhttps://www.spreaker.com/episode/resiliency-overcoming-challenges-with-ebstein-s-anomaly--48735865
Today’s show is Resiliency: Overcoming Challenges with Ebstein’s Anomaly and our Guest is Tori Geiger. We’ll start today’s program by learning a bit about Tori in Segment 1. In the second segment, we’re going to talk about becoming an advocate and an author and in the final segment, we will discover what Tori and her husband have planned for the future.

Heart Warrior Tori Geiger was diagnosed with Ebstein's Anomaly and Coarctation of the aorta. She had open-heart surgery at 4 days, 2 months, and 7 months of age. She had an ablation for Supra-ventricular Tachycardia in 7th Grade and in her freshman year of high school. These experiences have taught Tori a lot about resilience and overcoming obstacles. During school and college, Tori was a competitive athlete and still takes part in athletics today. She is the author of the inspirational book: From Vulnerable to Victorious: Turning Your Chronic Illness Into Your Victory Story, and has her own website and Instagram to motivate and inspire others. Tori lives with her husband Devin, who is her best friend and business partner, and their pet Goldendoodle Teddy. They hope to expand their family one day.

Links for Show Notes:

Tori’s website: https://www.torijoygeiger.com

Instagram: @torijoygeiger

The Heart Community Collection – https://www.theheartcommunitycollection.com/torijoygeiger

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48735865Tue, 15 Feb 2022 17:00:08 +0000Anna JaworskiWhat is Ebstein’s Anomaly? How did living with congenital heart defects influence Tori Geiger’s career choice? What does having Ebstein’s Anomaly mean for a newly married couple wanting a family? Today’s show is Resiliency: Overcoming Challenges...
Today’s show is Resiliency: Overcoming Challenges with Ebstein’s Anomaly and our Guest is Tori Geiger. We’ll start today’s program by learning a bit about Tori in Segment 1. In the second segment, we’re going to talk about becoming an advocate and an author and in the final segment, we will discover what Tori and her husband have planned for the future.

Heart Warrior Tori Geiger was diagnosed with Ebstein's Anomaly and Coarctation of the aorta. She had open-heart surgery at 4 days, 2 months, and 7 months of age. She had an ablation for Supra-ventricular Tachycardia in 7th Grade and in her freshman year of high school. These experiences have taught Tori a lot about resilience and overcoming obstacles. During school and college, Tori was a competitive athlete and still takes part in athletics today. She is the author of the inspirational book: From Vulnerable to Victorious: Turning Your Chronic Illness Into Your Victory Story, and has her own website and Instagram to motivate and inspire others. Tori lives with her husband Devin, who is her best friend and business partner, and their pet Goldendoodle Teddy. They hope to expand their family one day.

Links for Show Notes:

Tori’s website: https://www.torijoygeiger.com

Instagram: @torijoygeiger

The Heart Community Collection – https://www.theheartcommunitycollection.com/torijoygeiger

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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MeWe -- https://mewe.com/i/annajaworski

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Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1942ablation,arrhythmia,author,congenital_heart_defects,ebstein's_anomaly,instagram,resiliency,tori_geiger,victoryfalse17fullhttps://www.spreaker.com/episode/medical-monday-with-dr-gregory-perens--48720786
Today we’ll be talking about 3-D printed hearts and our Guest is Dr. Gregory Perens. Dr. Perens has been a pediatric cardiologist at UCLA since 2006. His clinical interests include Marfan Syndrome, echocardiography, and focus on 3-D printing and virtual reality assessment of congenital heart disease to plan surgery and cardiac catheterization.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48720786Mon, 14 Feb 2022 17:00:04 +0000Anna JaworskiEach Monday in February we're broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is conducted by Hearts Unite the Globe Medical Advisory Board Member, Roslyn Rivera, RN....
Today we’ll be talking about 3-D printed hearts and our Guest is Dr. Gregory Perens. Dr. Perens has been a pediatric cardiologist at UCLA since 2006. His clinical interests include Marfan Syndrome, echocardiography, and focus on 3-D printing and virtual reality assessment of congenital heart disease to plan surgery and cardiac catheterization.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>10163-d_printed_hearts,3-d_printing,catheterization_lab,cath_lab,congenital_heart_defects,dorv,double_outlet_right_ventricle,medical_model,open-heart_surgery,papvr,pediatric_cardiologist,single_ventricle_heart,stent,surgical_planning,surgical_prep,technologyfalse17fullhttps://www.spreaker.com/episode/beyond-the-heart-when-neurological-problems-accompany-hlhs--48719820
In this episode, Frank revisits living with HLHS with an old friend. Rob Springham is a recently retired UPS driver. He and his wife, Linda, are parents to two sons. Michael will soon be a 25-year-old hypoplastic left heart syndrome (or HLHS) Heart Warrior. Because of his congenital heart defect (or CHD), Michael has cognitive disabilities along with other health issues. As a child, Michael needed a feeding tube for 2 years, eye surgery, and foot surgery. For Michael, the biggest challenge he has on a daily basis is the cognitive challenge he battles.

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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MeWe -- https://mewe.com/i/annajaworski

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Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48719820Mon, 14 Feb 2022 03:00:02 +0000Anna JaworskiThis is the second of four special 'Heart Dad Sunday' episodes guest hosted by Frank Jaworski. Frank is Anna Jaworski's husband and together they have two children. Their youngest child was born with a single ventricle heart. Frank is also an advanced...
In this episode, Frank revisits living with HLHS with an old friend. Rob Springham is a recently retired UPS driver. He and his wife, Linda, are parents to two sons. Michael will soon be a 25-year-old hypoplastic left heart syndrome (or HLHS) Heart Warrior. Because of his congenital heart defect (or CHD), Michael has cognitive disabilities along with other health issues. As a child, Michael needed a feeding tube for 2 years, eye surgery, and foot surgery. For Michael, the biggest challenge he has on a daily basis is the cognitive challenge he battles.

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1615arnold_palmer_hospital,chd,cognitive_disorder,cognitive_issue,critical_congenital_heart_defe,dr._gary_haas,eye_surgery,feeding_tube,foot_surgery,heart_cath,hlhs,hypoplastic_left_heart_syndrom,in-utero_diagnosis,neurological_disorder,special_olympics,strabismusfalse17fullhttps://www.spreaker.com/episode/accepting-your-chd-and-thriving--48704580
Michael McKelvey is 30 years old and lives with a complex congenital heart defect (CHD) called double outlet right ventricle, or DORV. He works as an internet service provider technician in Pittsburgh. Growing up, life wasn't easy for Michael. He underwent four open-heart surgeries between the ages of 9 days and 16 years and was a small, skinny, sickly kid who was always told what he couldn't do. As he grew older and began to understand his CHD, he struggled to accept his condition. Over time, this changed and he began to embrace what he could do. Today, Michael is married and lives a very active lifestyle even though he will face more surgeries in the future. He is talking to us today in the hopes that his outlook can help others.

Links to helpful sites and to materials mentioned in the show:

TAPVR: https://www.mayoclinic.org/diseases-conditions/total-anomalous-pulmonary-venous-return/cdc-20385613#dialogId36635208

DORV: https://kidshealth.org/en/parents/dorv.html#:~:text=Double%20outlet%20right%20ventricle%20(DORV)%20is%20a%20heart%20defect%20where,it%20is%20born%20with%20it.

Pulmonary artery banding: https://emedicine.medscape.com/article/905353-overview

Michael’s YouTube channel: https://www.youtube.com/watch?v=3NPGuIh9LmA

Michael’s poem: https://shareyourheart.live/poem-michael?fbclid=IwAR2T8vC4Fxikw0C6aiBom0MR6goKJCS2m5rEFzccX82LwTSc0VzKXnOjQNw

Tom Dahlborg's page: https://www.theheartcommunitycollection.com/thomas-dahlborg

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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MeWe -- https://mewe.com/i/annajaworski

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48704580Sat, 12 Feb 2022 18:00:03 +0000Anna JaworskiWhat is Double Outlet Right Ventricle? What is TAPVR? How did living with congenital heart defects influence Michael McKelvey’s life growing up? What has Michael achieved in adulthood? Michael McKelvey is 30 years old and lives with a complex...
Michael McKelvey is 30 years old and lives with a complex congenital heart defect (CHD) called double outlet right ventricle, or DORV. He works as an internet service provider technician in Pittsburgh. Growing up, life wasn't easy for Michael. He underwent four open-heart surgeries between the ages of 9 days and 16 years and was a small, skinny, sickly kid who was always told what he couldn't do. As he grew older and began to understand his CHD, he struggled to accept his condition. Over time, this changed and he began to embrace what he could do. Today, Michael is married and lives a very active lifestyle even though he will face more surgeries in the future. He is talking to us today in the hopes that his outlook can help others.

Links to helpful sites and to materials mentioned in the show:

TAPVR: https://www.mayoclinic.org/diseases-conditions/total-anomalous-pulmonary-venous-return/cdc-20385613#dialogId36635208

DORV: https://kidshealth.org/en/parents/dorv.html#:~:text=Double%20outlet%20right%20ventricle%20(DORV)%20is%20a%20heart%20defect%20where,it%20is%20born%20with%20it.

Pulmonary artery banding: https://emedicine.medscape.com/article/905353-overview

Michael’s YouTube channel: https://www.youtube.com/watch?v=3NPGuIh9LmA

Michael’s poem: https://shareyourheart.live/poem-michael?fbclid=IwAR2T8vC4Fxikw0C6aiBom0MR6goKJCS2m5rEFzccX82LwTSc0VzKXnOjQNw

Tom Dahlborg's page: https://www.theheartcommunitycollection.com/thomas-dahlborg

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1712basketb,cath_lab,chd,conduit,critical_congenital_heart_defe,dorv,double_outlet_left_ventricle,open-heart_surgery,pulmonary_banding,pulmonary_valve_regurgitation,tapvr,total_anomolous_pulmonary_venu,valve_replacement,ventricular_septal_defect,vsdfalse17fullhttps://www.spreaker.com/episode/medical-monday-with-dr-daniel-levi--48677905
Today’s topic is the Harmony™ Transcatheter Pulmonary valve and the Alterra Pre-stent and our Guest is Dr. Daniel Levi. Dr. Levi is an interventional pediatric cardiologist and professor at UCLA School of Medicine. He is internationally known for his clinical and translation research and is a world leader in pulmonary valve replacement.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48677905Sat, 12 Feb 2022 17:21:07 +0000Anna JaworskiEach Monday in February we're broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is conducted by Hearts Unite the Globe Medical Advisory Board Member, Roslyn Rivera, RN....
Today’s topic is the Harmony™ Transcatheter Pulmonary valve and the Alterra Pre-stent and our Guest is Dr. Daniel Levi. Dr. Levi is an interventional pediatric cardiologist and professor at UCLA School of Medicine. He is internationally known for his clinical and translation research and is a world leader in pulmonary valve replacement.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>499alterra_prestent,cath_llab,congenital_heart_defect,congenitall_heart_defects,devices,harmony_vallve,innovation,interventional_cardiology,open-heart_surgery,pediatric_cardiologyfalse17fullhttps://www.spreaker.com/episode/fun-fact-friday-what-arrhythmias-are-life-threatening--48682859
In this episode, Frank will answer the question: what arrhythmias are life-threatening?

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Image by OpenClipart-Vectors from Pixabay. Thank you!

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48682859Sat, 12 Feb 2022 17:12:09 +0000Anna JaworskiWelcome to Fun Fact Friday -- a special weekly podcast during Heart Month (February 2022). Each Friday we'll be sharing fun facts for the congenital heart defect community. Our Guest is Frank Jaworski, CRNA and father to a 27-year-old single ventricle...
In this episode, Frank will answer the question: what arrhythmias are life-threatening?

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Image by OpenClipart-Vectors from Pixabay. Thank you!

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>4041st_degree_heart_block,2nd_degree_block,3rd_degree_block,arrhythmia,at,atria,bradycardia,cardiac_output,congenital_heart_defect,dropped_beat,long_q-t_syndrome,perfusion,p-wave,qrs-wave,supervertricular_tachycardia,ventricles,wolff-parkinson-white_syndromefalse17fullhttps://www.spreaker.com/episode/tasty-thursday-yellow-curry-chicken--48674891
To make this recipe more keto-friendly, substitute sweet potatoes for Russet potatoes, agave for sugar, and cauliflower rice for the starch to be used with the curry. It takes the carb count from 35 grams of carbs per serving to 18 grams per serving.

Don't miss our Tasty Thursday episode where we made Spring Rolls!
For a home-made peanut sauce, use this link: Tu David Phu (@cheftudavidphu) • Instagram photos and videos

To purchase Amy's cookbook, "Snow's Kitchen" use this link
For an autographed copy of the book, use this link
Amy's website: https://www.etsy.com/shop/HeartCommunity

Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website:
http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.html

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48674891Thu, 10 Feb 2022 17:00:03 +0000Anna JaworskiIt's Tasty Thursday! Won't you join cookbook author, Amy M. Le, and Frank and Anna Jaworski as they dish about an appetizer found in Amy M. Le's cookbook, 'Snow's Kitchen'? This week, and for every Thursday in Heart Month (February), these three...
To make this recipe more keto-friendly, substitute sweet potatoes for Russet potatoes, agave for sugar, and cauliflower rice for the starch to be used with the curry. It takes the carb count from 35 grams of carbs per serving to 18 grams per serving.

Don't miss our Tasty Thursday episode where we made Spring Rolls!
For a home-made peanut sauce, use this link: Tu David Phu (@cheftudavidphu) • Instagram photos and videos

To purchase Amy's cookbook, "Snow's Kitchen" use this link
For an autographed copy of the book, use this link
Amy's website: https://www.etsy.com/shop/HeartCommunity

Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website:
http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.html

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>540amy_m._le,chd_awareness,cooking,curry,keto_cooking,snow's_kitchen,tasty_thursday,vietnamese_curry,vietnamese_food,yellow_curry_chickenfalse17fullhttps://www.spreaker.com/episode/mental-health-wednesday-an-act-of-kindness--48660350
Don't forget to share your act of kindness with Anna on any of the social media platforms listed below or by visiting her website and filling out the contact form there.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Image by S. Hermann & F. Richter from Pixabay -- thanks!

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48660350Wed, 09 Feb 2022 17:00:03 +0000Anna JaworskiWouldn't it be lovely if everyone responded to one another with kindness? In today's Mental Health Wednesday, Anna talks with her Listeners about the mental health benefits of acting with kindness and she challenges her Listeners to perform an act of...
Don't forget to share your act of kindness with Anna on any of the social media platforms listed below or by visiting her website and filling out the contact form there.

Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/

Image by S. Hermann & F. Richter from Pixabay -- thanks!

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>280act_of_kindness,anxiety,depression,gift,happiness,hope,kindness,mental_health,music,optimism,sadness,tammy_oropesa,wellnessfalse17fullhttps://www.spreaker.com/episode/liz-zangara-living-a-life-of-healing--48613696
Today’s show is Liz Zangara: Living a Life of Healing and our Guest is Liz Zangara. We’ll start today’s program by learning a bit about Liz and her medical conditions in Segment 1. In the second segment, we’ll talk about how she specializes in acupuncture and the mind-body connection. In the final segment, we’ll learn about Liz’s career choices and how her congenital heart defect affected them.

Liz Zangara is the mother of two sons, Dante and Luca. Liz is a Heart Warrior who was born with cc-TGA. She has had 7 surgeries over the last 30 years. Her last complication was a bacterial infection her doctors worried was possibly attached to her pacemaker.

She has experienced tremendous amounts of emotional and spiritual growth over the course of her life. She works as an acupuncturist, yoga teacher, life coach and she specializes in trauma and somatic work. It’s become imperative to Liz to reach out to the CHD community to bring forth healing.

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48613696Wed, 09 Feb 2022 13:25:39 +0000Anna JaworskiWhat kind of medical trauma might a Heart Warrior experience? What are some of the things a person can do to reduce the anxiety associated with medical trauma? What is one Heart Warrior's approach to living a meaningful life? Today’s show is Liz...
Today’s show is Liz Zangara: Living a Life of Healing and our Guest is Liz Zangara. We’ll start today’s program by learning a bit about Liz and her medical conditions in Segment 1. In the second segment, we’ll talk about how she specializes in acupuncture and the mind-body connection. In the final segment, we’ll learn about Liz’s career choices and how her congenital heart defect affected them.

Liz Zangara is the mother of two sons, Dante and Luca. Liz is a Heart Warrior who was born with cc-TGA. She has had 7 surgeries over the last 30 years. Her last complication was a bacterial infection her doctors worried was possibly attached to her pacemaker.

She has experienced tremendous amounts of emotional and spiritual growth over the course of her life. She works as an acupuncturist, yoga teacher, life coach and she specializes in trauma and somatic work. It’s become imperative to Liz to reach out to the CHD community to bring forth healing.

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2155accupressure,accupuncture,cctga,chd,chinese_medicine,congenital_heart_defects,eastern_medicine,healing,heart_surgery,life_coach,massage,massage_therapist,medical_trauma,pacemaker,trauma,western_medicinefalse17fullhttps://www.spreaker.com/episode/dad-of-an-acha-founder--48612668
This is the first of four special episodes to be released on Sundays in Heart Month 2022. This series, Heart Dad Sunday, is hosted by Frank Jaworski -- a Heart Dad and Anna Jaworski's husband.

Tony is the father of Dr. Anthony R. Cordaro, Jr., one of the original co-founders of the Adult Congenital Heart Association or ACHA. Tony was involved from the beginning of ACHA as one of the first board members helping the organization through its initial growth phases in securing its 501(c)(3) designation and assisting in the success of its first conference. After taking a leave from an active involvement for a few years, and seeing the phenomenal growth of ACHA, Tony wanted to get back involved as a Peer Mentor for the organization. Tony says he is humbled at seeing what the organization is today with its exponential growth. Most importantly, he is deeply impressed at how many lives of individuals and families that ACHA has touched and is touching today in both subtle and dramatic ways.

Today we'll hear more about Tony's early days in raising a son with a congenital heart defect, an unexpected surprise with his daughter Angela, and some of the changes Tony has seen over the decades of raising a son with a congenital heart defect.

Links mentioned in the program:

Adult Congenital Heart Association: https://www.achaheart.org/

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48612668Sun, 06 Feb 2022 17:00:02 +0000Anna JaworskiWho was a co-founder of the Adult Congenital Heart Association? Why did the founders believe it was necessary to create an organization specifically for adults with heart defects? How were the co-founders' parents involved in setting up the ACHA as a...
This is the first of four special episodes to be released on Sundays in Heart Month 2022. This series, Heart Dad Sunday, is hosted by Frank Jaworski -- a Heart Dad and Anna Jaworski's husband.

Tony is the father of Dr. Anthony R. Cordaro, Jr., one of the original co-founders of the Adult Congenital Heart Association or ACHA. Tony was involved from the beginning of ACHA as one of the first board members helping the organization through its initial growth phases in securing its 501(c)(3) designation and assisting in the success of its first conference. After taking a leave from an active involvement for a few years, and seeing the phenomenal growth of ACHA, Tony wanted to get back involved as a Peer Mentor for the organization. Tony says he is humbled at seeing what the organization is today with its exponential growth. Most importantly, he is deeply impressed at how many lives of individuals and families that ACHA has touched and is touching today in both subtle and dramatic ways.

Today we'll hear more about Tony's early days in raising a son with a congenital heart defect, an unexpected surprise with his daughter Angela, and some of the changes Tony has seen over the decades of raising a son with a congenital heart defect.

Links mentioned in the program:

Adult Congenital Heart Association: https://www.achaheart.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1750acha,adult_congenital_heart_associa,balloon_atrial_septostomy,bicuspid_aortic_valve,congenital_heart_defect,dr._denton_cooley,heart_cath,life-long_care,mustard_procedurre,open-heart_surgery,pediatric_cardiologist,quality_of_life,stroke,texas_children's,tga,transposition_of_the_great_artfalse17fullhttps://www.spreaker.com/episode/fontan-revision-a-success-story--48607332
Welcome to the first of four Saturday Success Story programs! Saturday Success Stories will be released each Saturday in Heart Month (February 2022) and this one features Jimmy Bachenheimer.

Jimmy Bachenheimer was born in August 1981 with a single ventricle heart. He was diagnosed with hypoplastic left heart syndrome. Jimmy had the typical series of operations to palliate his condition.

Jimmy is also a dad. He has a 10-year-old daughter named Brooklyn who is in 5th grade.

Jimmy is a salesman. He works for Hillcrest Volkswagen in New Kensington, Pennsylvania.

Link to Article Mentioned in our Program:

First pig-to-human heart transplant: what can scientists learn? https://www.nature.com/articles/d41586-022-00111-9

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48607332Sun, 06 Feb 2022 05:07:28 +0000Anna JaworskiWhat happens when a Fontan patient needs a tune-up? What kinds of procedures might a Fontan patient need after living with a Fontan heart? What can we learn from someone who has experienced a Fontan revision? Welcome to the first of four Saturday...
Welcome to the first of four Saturday Success Story programs! Saturday Success Stories will be released each Saturday in Heart Month (February 2022) and this one features Jimmy Bachenheimer.

Jimmy Bachenheimer was born in August 1981 with a single ventricle heart. He was diagnosed with hypoplastic left heart syndrome. Jimmy had the typical series of operations to palliate his condition.

Jimmy is also a dad. He has a 10-year-old daughter named Brooklyn who is in 5th grade.

Jimmy is a salesman. He works for Hillcrest Volkswagen in New Kensington, Pennsylvania.

Link to Article Mentioned in our Program:

First pig-to-human heart transplant: what can scientists learn? https://www.nature.com/articles/d41586-022-00111-9

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>19091980s,aortic_aneurysm,compression_socks,fatherhood,fontan,generator,geraldo,healthy_living,hlhs,hypoplastic_left_heart_syndrom,low-sodium_diet,maze_procedure,open-heart_surgery,pacemaker,partenthood,self-caree,tga,transposition_of_the_great_art,tv,varicose_veinsfalse17fullhttps://www.spreaker.com/episode/fun-fact-friday-who-is-the-father-of-interventional-cardiology--48583087
In this episode, Frank will answer the question: Who is the 'Father of Interventional Cardiology'?

Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/

Thanks to Pixabay for the image used with the podcast. https://pixabay.com/vectors/people-group-folks-community-154111/

Please visit our Social Media and Podcast pages:

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YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48583087Fri, 04 Feb 2022 17:00:02 +0000Anna JaworskiWelcome to Fun Fact Friday -- a special weekly podcast during Heart Month (February 2022). Each Friday we'll be sharing fun facts for the congenital heart defect community. Our Guest is Frank Jaworski, CRNA and father to a 27-year-old single ventricle...
In this episode, Frank will answer the question: Who is the 'Father of Interventional Cardiology'?

Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/

Thanks to Pixabay for the image used with the podcast. https://pixabay.com/vectors/people-group-folks-community-154111/

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>260advanced_practice_nurse,asd,atrial_septal_defect,balloon_atrial_septostomy,cath_lab,certified_registered_nurse_ane,crna,device,dr_bill_rashkind,dr_charles_e._mullins,dr_mills,dr_terry_king,father_of_interventional_cardi,fun_fact,introducer,louisiana_legend,nurse,pediatric_cardiology,umbrella_devicefalse17fullhttps://www.spreaker.com/episode/tasty-thursday-spring-rolls--48573818
Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website: http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.htm

To purchase Amy's cookbook, "Snow's Kitchen" use this link: https://bookshop.org/books/snow-s-kitchen-a-novella-and-cookbook-9781735119441/9781735119458
For an autographed copy of the book, use this link: https://www.etsy.com/shop/HeartCommunity
Amy's website: amy-m-le.com
For a home-made peanut sauce, use this link: Tu David Phu (@cheftudavidphu) • Instagram photos and videos

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48573818Thu, 03 Feb 2022 19:33:03 +0000Anna JaworskiIt's Tasty Thursday! Won't you join cookbook author, Amy M. Le, and Frank and Anna Jaworski as they dish about an appetizer found in Amy M. Le's cookbook, 'Snow's Kitchen'? This week, and for every Thursday in Heart Month (February), these three...
Special thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive. https://freemusicarchive.org/music/christian-h-soetemann/music-for-museums

Here is this artist’s website: http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.htm

To purchase Amy's cookbook, "Snow's Kitchen" use this link: https://bookshop.org/books/snow-s-kitchen-a-novella-and-cookbook-9781735119441/9781735119458
For an autographed copy of the book, use this link: https://www.etsy.com/shop/HeartCommunity
Amy's website: amy-m-le.com
For a home-made peanut sauce, use this link: Tu David Phu (@cheftudavidphu) • Instagram photos and videos

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>487amy_m_le,author,congenital_heart_defects,keto-friendly_recipes,low-carb_recipes,snow's_kitchen,spring_rolls,vietnamese_foodfalse17fullhttps://www.spreaker.com/episode/mental-health-wednesday-practicing-gratitude--48558650https://www.hug-podcastnetwork.com/contact-us.html).

This is our first Mental Health Wednesday and it's all about gratitude. Research has shown that people who are grateful for what they have tend to be happier overall and suffer less from depression and anxiety. Today we will share 3 things we are grateful for.

Anna will share 3 things on the podcast and you can share three things you are grateful for on her "Heart to Heart with Anna" Facebook page or on the Hearts Unite the Globe website (see link above).

In addition to the 3 things Anna is talking about on the podcast, she is also very grateful for the free music she found to accompany each Mental Health Wednesday program. Thank you Siddhartha Corsus! This song is “Oh, Radiant One” and you can find it at https://freemusicarchive.org/music/Siddhartha
Here is this artist’s website: https://siddhartha.music.blog/

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48558650Wed, 02 Feb 2022 17:00:05 +0000Anna JaworskiEach Wednesday in Heart Month (February) 2022 I will invite you to do something to contribute to your mental health. Please share your tasks with me on my Facebook page (just look for "Heart to Heart with Anna!") or on my website...https://www.hug-podcastnetwork.com/contact-us.html).

This is our first Mental Health Wednesday and it's all about gratitude. Research has shown that people who are grateful for what they have tend to be happier overall and suffer less from depression and anxiety. Today we will share 3 things we are grateful for.

Anna will share 3 things on the podcast and you can share three things you are grateful for on her "Heart to Heart with Anna" Facebook page or on the Hearts Unite the Globe website (see link above).

In addition to the 3 things Anna is talking about on the podcast, she is also very grateful for the free music she found to accompany each Mental Health Wednesday program. Thank you Siddhartha Corsus! This song is “Oh, Radiant One” and you can find it at https://freemusicarchive.org/music/Siddhartha
Here is this artist’s website: https://siddhartha.music.blog/

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>211congenital_heart_defect_commun,granddaughter,gratefulness,gratitude,happiness,happy,husband,mental_healthfalsefullhttps://www.spreaker.com/episode/venezuela-heart-nonprofit-estrellita-de-belen-foundation--48165522
Belen Blanton was born with tricuspid atresia in Caracas, Venezuela back in 1965. When she was born, many doctors told her mom that she was not going to make it. Fortunately, her mother took her to a cardiologist that had contact with Houston Children's hospital in Texas, where she had surgery, a Potts Shunt procedure performed by Dr. Denton Cooley.

From age 15 she began to experience complications including arrhythmia. When she was 21 she moved to the US and from age 30 experienced atrial fibrillation, endocarditis, Eisenmenger Syndrome, and pulmonary hypertension. She is married with two sons and has recently started a charity to help those living in her home country of Venezuela. She believes her life has been a gift and she has felt a need to give back to others in her country by creating a nonprofit organization called ‘Estrellita de Belen Foundation.’

Links mentioned during the episode:

Belen's "Heart to Heart with Anna" episode: 'Heart Warrior from Venezuela to the USA' --https://www.spreaker.com/user/7668348/heart-warrior-from-venezuela-to-the-usa

Belen Blanton's foundation
Fundacion Estrellita de Belen -- https://fundacionestrellitadebelen.org/

Belen's IG page, 'You Don't Have to Look Sick' -- https://www.instagram.com/youdonthavetolooksick/

Adult Congenital Heart Association -- https://www.achaheart.org/

Hearts Unite the Globe -- https://www.hug-podcastnetwork.com/

Global ARCH: https://global-arch.org/

Conquering CHD: https://www.conqueringchd.org/


Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48165522Tue, 01 Feb 2022 17:00:03 +0000Anna JaworskiWhy would someone born with a heart defect in Venezuela who has moved to the USA care about children born with heart defects in her country today? How can one woman make a difference in the lives of children living in a dictatorship? What is the most...
Belen Blanton was born with tricuspid atresia in Caracas, Venezuela back in 1965. When she was born, many doctors told her mom that she was not going to make it. Fortunately, her mother took her to a cardiologist that had contact with Houston Children's hospital in Texas, where she had surgery, a Potts Shunt procedure performed by Dr. Denton Cooley.

From age 15 she began to experience complications including arrhythmia. When she was 21 she moved to the US and from age 30 experienced atrial fibrillation, endocarditis, Eisenmenger Syndrome, and pulmonary hypertension. She is married with two sons and has recently started a charity to help those living in her home country of Venezuela. She believes her life has been a gift and she has felt a need to give back to others in her country by creating a nonprofit organization called ‘Estrellita de Belen Foundation.’

Links mentioned during the episode:

Belen's "Heart to Heart with Anna" episode: 'Heart Warrior from Venezuela to the USA' --https://www.spreaker.com/user/7668348/heart-warrior-from-venezuela-to-the-usa

Belen Blanton's foundation
Fundacion Estrellita de Belen -- https://fundacionestrellitadebelen.org/

Belen's IG page, 'You Don't Have to Look Sick' -- https://www.instagram.com/youdonthavetolooksick/

Adult Congenital Heart Association -- https://www.achaheart.org/

Hearts Unite the Globe -- https://www.hug-podcastnetwork.com/

Global ARCH: https://global-arch.org/

Conquering CHD: https://www.conqueringchd.org/


Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2376acha,adult_congenital_heart_assoc.,cardiologist,congenital_heart_defects,conquering_chd,death_of_a_child,e,eisenmenger's_syndrome,fundacion_estrellita_de_belen,global_arch,hearts_unite_the_globe,international_organization,pediatric_cardiologist,private_hospital,pulmonay_hypertension,tga,transposition_of_the_great_art,venezuela,wolff-parkinson-white_syndrome,wpwfalsefullhttps://www.spreaker.com/episode/the-use-of-stem-cells-in-treatment-for-hypoplastic-left-heart-syndrome-hlhs--48440388
Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson’s research work is focused on cardiovascular regeneration using bioengineered stem cells to improve the ability to discover, diagnose, and ultimately treat mechanisms of degenerative diseases. 

As director of the program, Dr. Nelson and his team are specifically interested in the cause of HLHS and finding ways to delay and prevent heart failure for individuals with HLHS. To better understand and treat this congenital heart disease, the program has taken a multifaceted approach that includes research into stem cells, genetics, imaging tools, and the creation of a biorepository. The program has launched clinical trials using autologous stem cells, also known as stem cells collected from an individual’s own body.

In June 2020, “HeartWorks” was created to accelerate and expand the product development undertaken by the program at the Mayo Clinic. 

This episode includes discussion about Dr.  Timothy Nelson's research as well as a conversation about an important, upcoming fundraising event.



Links mentioned in the podcast:



Jennifer Gutman on "Heart to Heart with Anna" talking about her HLHS child's participation in the Mayo Clinic's stem cell research project:  https://www.spreaker.com/user/heart2heartannaandfriends/stem-cells-for-an-hlhs-heart

Dr.
Timothy Nelson on "Heart to Heart with Anna" in Season 9: http://www.spreaker.com/user/heart2heartannaandfriends/advancements-in-stem-cell-therapies-and-



A Cure is in the Works Celebration: https://p2p.onecause.com/heartworksp2p/event/a-cure-is-in-the-works-celebration



Todd and Karen Wanek Family Program for HLHS: https://www.mayo.edu/research/centers-programs/todd-karen-wanek-family-program-hypoplastic-left-heart-syndrome/hlhs-research/clinical-trials



Please visit our Social Media and Podcast pages:



Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2



Facebook -- https://www.facebook.com/HearttoHeartwithAnna/



Instagram -- https://www.instagram.com/hearttoheartwithanna/



MeWe -- https://mewe.com/i/annajaworski



Twitter -- https://twitter.com/AnnaJaworski



YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48440388Tue, 25 Jan 2022 17:55:18 +0000Anna JaworskiWhat is being done in 2022 to help children born with hypoplastic left heart syndrome (HLHS)? Is it possible to consider there may be a day when heart defects can actually be cured? What event is occurring on February 3, 2022 to raise funds to stamp...
Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson’s research work is focused on cardiovascular regeneration using bioengineered stem cells to improve the ability to discover, diagnose, and ultimately treat mechanisms of degenerative diseases. 

As director of the program, Dr. Nelson and his team are specifically interested in the cause of HLHS and finding ways to delay and prevent heart failure for individuals with HLHS. To better understand and treat this congenital heart disease, the program has taken a multifaceted approach that includes research into stem cells, genetics, imaging tools, and the creation of a biorepository. The program has launched clinical trials using autologous stem cells, also known as stem cells collected from an individual’s own body.

In June 2020, “HeartWorks” was created to accelerate and expand the product development undertaken by the program at the Mayo Clinic. 

This episode includes discussion about Dr.  Timothy Nelson's research as well as a conversation about an important, upcoming fundraising event.



Links mentioned in the podcast:



Jennifer Gutman on "Heart to Heart with Anna" talking about her HLHS child's participation in the Mayo Clinic's stem cell research project:  https://www.spreaker.com/user/heart2heartannaandfriends/stem-cells-for-an-hlhs-heart

Dr.
Timothy Nelson on "Heart to Heart with Anna" in Season 9: http://www.spreaker.com/user/heart2heartannaandfriends/advancements-in-stem-cell-therapies-and-



A Cure is in the Works Celebration: https://p2p.onecause.com/heartworksp2p/event/a-cure-is-in-the-works-celebration



Todd and Karen Wanek Family Program for HLHS: https://www.mayo.edu/research/centers-programs/todd-karen-wanek-family-program-hypoplastic-left-heart-syndrome/hlhs-research/clinical-trials



Please visit our Social Media and Podcast pages:



Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2



Facebook -- https://www.facebook.com/HearttoHeartwithAnna/



Instagram -- https://www.instagram.com/hearttoheartwithanna/



MeWe -- https://mewe.com/i/annajaworski



Twitter -- https://twitter.com/AnnaJaworski



YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw



Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: 2300adult_with_congenital_heart_de,cardiology,chds,clinical_trials,congenital_heart_defects,cure_for_heart_defects,fertilizers,heart_growth,heart_muscle_regeneration,hlhs,hypoplastic_left_heart_syndrom,mayo_clinic,pediatric_cardiology,pre-clinical_model_systems,regenerative_medicine,seeds,stem_cells,todd_and_karen_wanekfalsefullhttps://www.spreaker.com/episode/oyauma-garrison-ceo-and-president-of-a-kid-again--48152259
Oyauma Garrison is the President and CEO of A Kid Again, Inc, a nonprofit organization that provides ongoing, cost-free adventures for children facing life-threatening conditions. A Kid Again provides hope, happiness, and healing through ongoing fun activities called Adventures. These adventures are available to the whole family and are always entirely free of charge.

Prior to his involvement in the charity, Oyauma was an insurance company executive of over 20 years. He currently serves as a Director on the Board of Buckeye Insurance.

Active in the community, Oyauma has received numerous awards for leadership and community service. He has received an honorary doctorate degree from Franklin University for Community Leadership.

Oyauma received his bachelor’s degree from Denison University and his MBA from Franklin University. A native of Baltimore, Maryland, Oyauma is married to Dr. Sacheen Garrison and the proud father of Mya, Cameron, and Carter.

Links mentioned during this episode:

A Kid Again website: https://akidagain.org/
Make-A-Wish: https://wish.org/
Nationwide Children's Hospital: https://www.nationwidechildrens.org/

A Kid Again Social Media Pages:

https://www.facebook.com/akidagain/

https://twitter.com/akidagain

https://www.instagram.com/a_kid_again/


Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48152259Tue, 18 Jan 2022 17:00:02 +0000Anna JaworskiWho is Oyauma Garrison? What is ‘A Kid Again’ and how can that organization help the congenital heart defect community? What services do ‘A Kid Again’ provide? Oyauma Garrison is the President and CEO of A Kid Again, Inc, a nonprofit organization...
Oyauma Garrison is the President and CEO of A Kid Again, Inc, a nonprofit organization that provides ongoing, cost-free adventures for children facing life-threatening conditions. A Kid Again provides hope, happiness, and healing through ongoing fun activities called Adventures. These adventures are available to the whole family and are always entirely free of charge.

Prior to his involvement in the charity, Oyauma was an insurance company executive of over 20 years. He currently serves as a Director on the Board of Buckeye Insurance.

Active in the community, Oyauma has received numerous awards for leadership and community service. He has received an honorary doctorate degree from Franklin University for Community Leadership.

Oyauma received his bachelor’s degree from Denison University and his MBA from Franklin University. A native of Baltimore, Maryland, Oyauma is married to Dr. Sacheen Garrison and the proud father of Mya, Cameron, and Carter.

Links mentioned during this episode:

A Kid Again website: https://akidagain.org/
Make-A-Wish: https://wish.org/
Nationwide Children's Hospital: https://www.nationwidechildrens.org/

A Kid Again Social Media Pages:

https://www.facebook.com/akidagain/

https://twitter.com/akidagain

https://www.instagram.com/a_kid_again/


Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2494501(c)3,adventure,advocates,a_kid_again,arrhythmia,charity,cost-free,do_good,family,family_activities,family_ambassadors,family-centered_holistic_care,life-threatening_condition,make-a-wish,nonprofit,oyauma_garrison,supraventricular_tachycardia,svtfalsefullhttps://www.spreaker.com/episode/the-tom-kat-team-raising-awareness-of-congenital-heart-defects--48245492
Tom and Kat Hansen are parents to 9-year-old daughter Audrey and 7-year-old son Harding. In 2014, Harding was diagnosed with multiple congenital heart defects in utero, for which he has undergone three open-heart surgeries and multiple other procedures.

Inspired by their journey with Harding, they wrote a book, and then they started a podcast, The Hope and Courage Podcast for CHD Parents, where they share their insights and interview experts and people with a lived experience of CHD. Their book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease will be released in 2022.

A former high school math teacher, Tom is currently a corporate trainer and instructional designer. In addition to caring for their children, Kat runs the Hope and Courage platform. The family lives in Cincinnati, Ohio, and enjoys going on adventures together.

Links mentioned in this episode:

Tom and Kat's website: https://www.tomandkathansen.com/

Tom and Kat's Instagram page: https://www.instagram.com/tomandkathansen/

Tom and Kat's podcast: https://www.tomandkathansen.com/podcast

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48245492Tue, 11 Jan 2022 17:00:03 +0000Anna JaworskiWhy would parents of a child with a congenital heart defect start a podcast? Why would they write a book? What does this dynamic duo hope to achieve when it comes to helping the congenital heart defect (CHD) community? Tom and Kat Hansen are parents...
Tom and Kat Hansen are parents to 9-year-old daughter Audrey and 7-year-old son Harding. In 2014, Harding was diagnosed with multiple congenital heart defects in utero, for which he has undergone three open-heart surgeries and multiple other procedures.

Inspired by their journey with Harding, they wrote a book, and then they started a podcast, The Hope and Courage Podcast for CHD Parents, where they share their insights and interview experts and people with a lived experience of CHD. Their book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease will be released in 2022.

A former high school math teacher, Tom is currently a corporate trainer and instructional designer. In addition to caring for their children, Kat runs the Hope and Courage platform. The family lives in Cincinnati, Ohio, and enjoys going on adventures together.

Links mentioned in this episode:

Tom and Kat's website: https://www.tomandkathansen.com/

Tom and Kat's Instagram page: https://www.instagram.com/tomandkathansen/

Tom and Kat's podcast: https://www.tomandkathansen.com/podcast

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2039authors,book,chd,coarctation_of_the_aorta,congenital_heart_defect,courage,depression,dtga,heart_parents,heart_warrior,hope,hope_and_courage,hrhs,inspirational_stories,marriage,normalcy,open-heart_surgeries,podcast,staged_surgeries,supportfalsefullhttps://www.spreaker.com/episode/a-family-dealing-with-an-atrial-septal-defect--48142065
Amna Saeed Salman is the author of Style Stripped, a prominent fashion and lifestyle blog in Pakistan. She is also Mom to beautiful 4-year-old twin boys. One of the boys was diagnosed with a 24mm atrial septal defect at age 1. Amna researched surgery options in England, Pakistan, and America and received differing opinions. Watching her son struggle to keep up with his brother, she decided to go for the surgery when he was 20 months of age. Amna noticed an immediate improvement in her son and today he is thriving.

In this episode of "Heart to Heart with Anna," Amna talks with Anna about her son's medical journey, some of the differences between medical treatment of CHDs in Pakistan and abroad, and how she has become a CHD advocate.

Here is a link to an article referencing Amna's blog: https://tribune.com.pk/story/439325/make-way-for-pakistan%E2%80%99s-fashion-bloggers

Here is an article about another team having a medical mission to Pakistan: https://www.hmpgloballearningnetwork.com/site/cathlab/content/humanitarian-spotlight-medical-mission-pakistan

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48142065Tue, 04 Jan 2022 17:00:03 +0000Anna JaworskiHow can having an atrial septal defect, or ASD, affect a baby’s growth and development? Specifically, could an ASD be responsible for feeding issues? What are the dangers of surgeons operating on a baby too soon if their congenital heart defect (CHD)...
Amna Saeed Salman is the author of Style Stripped, a prominent fashion and lifestyle blog in Pakistan. She is also Mom to beautiful 4-year-old twin boys. One of the boys was diagnosed with a 24mm atrial septal defect at age 1. Amna researched surgery options in England, Pakistan, and America and received differing opinions. Watching her son struggle to keep up with his brother, she decided to go for the surgery when he was 20 months of age. Amna noticed an immediate improvement in her son and today he is thriving.

In this episode of "Heart to Heart with Anna," Amna talks with Anna about her son's medical journey, some of the differences between medical treatment of CHDs in Pakistan and abroad, and how she has become a CHD advocate.

Here is a link to an article referencing Amna's blog: https://tribune.com.pk/story/439325/make-way-for-pakistan%E2%80%99s-fashion-bloggers

Here is an article about another team having a medical mission to Pakistan: https://www.hmpgloballearningnetwork.com/site/cathlab/content/humanitarian-spotlight-medical-mission-pakistan

Please visit our Social Media and Podcast pages:

Apple Podcasts -- https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook -- https://www.facebook.com/HearttoHeartwithAnna/

Instagram -- https://www.instagram.com/hearttoheartwithanna/

MeWe -- https://mewe.com/i/annajaworski

Twitter -- https://twitter.com/AnnaJaworski

YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website -- https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2536ahmadiyya_muslim_community,asd,atrial_septal_defect,charity,congenital_heart_defect,evelina_hospital,heart_mom,london,medical_mission,open-heart_surgery,pakistan,tahir_heart_hospitalfalsefullhttps://www.spreaker.com/episode/spirituality-and-my-congenital-heart-defect--48086805
Allison Holmes was born in 1972 with seven heart defects, and she is also a cancer survivor. She has been evaluated twice for the heart and lung transplant list but is not on the list at this time. Since Allison has Situs Inversus, doctors are not sure how to hook up a healthy heart and lungs to the rest of her organs. At present, her heart condition seems to be stable, but she is dealing with pulmonary hypertension. She works as an ESL tutor from home and volunteers with Meals on Wheels and Carolina Waterfowl Rescue. She is also an Adult Congenital Heart Association Ambassador for North Carolina. Allison feels that her spiritual beliefs have helped her through her CHD journey.

In the first segment, we’ll meet Allison and discover a little bit more about her health journey. The 2nd Segment will involve us learning more about how her spirituality has helped her on that journey and in the last segment, we will learn about Allison’s future.

Links mentioned during the episode:

Allison's "Heart to Heart with Anna" episode: 'Thriving with CHD' -- https://tinyurl.com/6826rzf3

Belen Blanton's foundation
Fundacion Estrellita de Belen - https://fundacionestrellitadebelen.org/

Adult Congenital Heart Association -- https://www.achaheart.org/

Please visit our Social Media and Podcast pages:


Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2


Facebook: https://www.facebook.com/HearttoHeartwithAnna/


Instagram: https://www.instagram.com/hearttoheartwithanna/


MeWe: https://mewe.com/i/annajaworski


Twitter: https://twitter.com/AnnaJaworski


YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw


Website: https://www.hug-podcastnetwork.com/



Anna's Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817 (we both benefit if you sign up with Buzzsprout with my link - yay!)

Join our Patreon program here: https://www.patreon.com/hearttoheart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/48086805Tue, 28 Dec 2021 17:00:02 +0000Anna JaworskiHow can a person’s spirituality help her when it comes to coping with her congenital heart defect? What spiritual practices can help Heart Warriors? Why would a Heart Warrior be willing to talk about her spirituality? Allison Holmes was born in 1972...
Allison Holmes was born in 1972 with seven heart defects, and she is also a cancer survivor. She has been evaluated twice for the heart and lung transplant list but is not on the list at this time. Since Allison has Situs Inversus, doctors are not sure how to hook up a healthy heart and lungs to the rest of her organs. At present, her heart condition seems to be stable, but she is dealing with pulmonary hypertension. She works as an ESL tutor from home and volunteers with Meals on Wheels and Carolina Waterfowl Rescue. She is also an Adult Congenital Heart Association Ambassador for North Carolina. Allison feels that her spiritual beliefs have helped her through her CHD journey.

In the first segment, we’ll meet Allison and discover a little bit more about her health journey. The 2nd Segment will involve us learning more about how her spirituality has helped her on that journey and in the last segment, we will learn about Allison’s future.

Links mentioned during the episode:

Allison's "Heart to Heart with Anna" episode: 'Thriving with CHD' -- https://tinyurl.com/6826rzf3

Belen Blanton's foundation
Fundacion Estrellita de Belen - https://fundacionestrellitadebelen.org/

Adult Congenital Heart Association -- https://www.achaheart.org/

Please visit our Social Media and Podcast pages:


Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2


Facebook: https://www.facebook.com/HearttoHeartwithAnna/


Instagram: https://www.instagram.com/hearttoheartwithanna/


MeWe: https://mewe.com/i/annajaworski


Twitter: https://twitter.com/AnnaJaworski


YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw


Website: https://www.hug-podcastnetwork.com/



Anna's Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817 (we both benefit if you sign up with Buzzsprout with my link - yay!)

Join our Patreon program here: https://www.patreon.com/hearttoheart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1975acha_ambassador,asd,atrial_septal_defect,baptist,b-t_shunt,cancer,congenital_heart_defects,dorv,double_outlet_left_ventricle,heart-lung_transplant,pentacostal,psalms,single_ventricle,situs_inversus,spirituality,tga,tgv,ventricular_septal_defect,vsd,waterston_shuntfalsefullhttps://www.spreaker.com/episode/loyal-listeners-on-8-years-of-heart-to-heart-with-anna--47936432
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47936432Wed, 15 Dec 2021 19:35:50 +0000Anna JaworskiLoyal Listeners of "Heart to Heart with Anna" fill the studio in this extra-special episode. They celebrate the 8th anniversary of the podcast by sharing who they are in the congenital heart defect (CHD) community, what episodes are their favorites...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2676acha,amy_m_le,autism,bi-directional_glenn,congenital_heart_defects,eisenmenger's_syndrome,fontan,fundacion_estrellita_de_belen,guerreros_del_corazon,heart_warrior,immune_deficiency,open-heart_surgery,plastic_bronchiitis,single_ventricle,tga,transposition_of_the_great_artfalsefullhttps://www.spreaker.com/episode/new-heart-new-lease-on-life--47814817
Unfortunately, due to increased symptoms and increased physical decline, Lorrie was admitted to the hospital in early February 2021 to finish the wait for her transplant. After seven weeks of being inpatient, Lorrie received her new heart on March 31st, 2021. After a bout of rejection and two biopsies in the first 3.5 weeks post-transplant, Lorrie was able to go home and continue the recovery process there.



Lorrie has been a Guest on "Heart to Heart with Anna" previously to share what it was like for her as she began to decline. She wanted to help others understand what it was like to go into congestive heart failure and have to make critical decisions for end-of-life care. We appreciate how earnest she has been with us and how much she has shared her own personal journey to help others who might be facing the same situation.



Links to Lorrie's other episodes:


Waiting for a Heart https://tinyurl.com/5ceezdvy
Still Waiting for a Heart. https://tinyurl.com/2sybeu6d

Please visit our Social Media and Podcast pages:


Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2


Facebook: https://www.facebook.com/HearttoHeartwithAnna/


Instagram: https://www.instagram.com/hearttoheartwithanna/


MeWe: https://mewe.com/i/annajaworski


Twitter: https://twitter.com/AnnaJaworski


YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw


Website: https://www.hug-podcastnetwork.com/



Anna's Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817 (we both benefit if you sign up with Buzzsprout with my link - yay!)

Join our Patreon program here: https://www.patreon.com/hearttoheart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47814817Tue, 07 Dec 2021 17:00:02 +0000Anna JaworskiLorrie Hill grew up in Texas, mostly Houston and Dallas. She was born with a single ventricle heart and has had four open-heart surgeries in her 25 years, including a pulmonary artery band and bi-directional Glenn shunt. She was listed for a heart...
Unfortunately, due to increased symptoms and increased physical decline, Lorrie was admitted to the hospital in early February 2021 to finish the wait for her transplant. After seven weeks of being inpatient, Lorrie received her new heart on March 31st, 2021. After a bout of rejection and two biopsies in the first 3.5 weeks post-transplant, Lorrie was able to go home and continue the recovery process there.



Lorrie has been a Guest on "Heart to Heart with Anna" previously to share what it was like for her as she began to decline. She wanted to help others understand what it was like to go into congestive heart failure and have to make critical decisions for end-of-life care. We appreciate how earnest she has been with us and how much she has shared her own personal journey to help others who might be facing the same situation.



Links to Lorrie's other episodes:


Waiting for a Heart https://tinyurl.com/5ceezdvy
Still Waiting for a Heart. https://tinyurl.com/2sybeu6d

Please visit our Social Media and Podcast pages:


Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2


Facebook: https://www.facebook.com/HearttoHeartwithAnna/


Instagram: https://www.instagram.com/hearttoheartwithanna/


MeWe: https://mewe.com/i/annajaworski


Twitter: https://twitter.com/AnnaJaworski


YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw


Website: https://www.hug-podcastnetwork.com/



Anna's Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817 (we both benefit if you sign up with Buzzsprout with my link - yay!)

Join our Patreon program here: https://www.patreon.com/hearttoheart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2168atg,bi-directional_glenn_shunt,cardiac_transplant,cat_scan,congenital_heart_defect,congenital_heart_defects,congestive_heart_failure,heart_transplant,low_oxygen_saturations,open-heart_surgery,pulmonary_artery_band,rabbit_antibodies,rejection,single_ventricle_heart,snovid,texas_children's_hospitalfalsefullhttps://www.spreaker.com/episode/8th-anniversary-special-part-2--47722575
Links to participants' past shows (if applicable):

Kathy Ware
A Heart Warrior’s Early Onset Menopause: https://tinyurl.com/3y8cs2kw
From Learning Disabled to College Professor: https://tinyurl.com/2p86m5bw
Panel Discussion on Labels or Terms Used in the Heart Community: https://tinyurl.com/5uatuydw

Chris Freeman

Marta Montero
CHDs Around The Globe Puerto Rico: https://tinyurl.com/y34z6hba
You’re Never Too Old to Dream a New Dream: Education for Heart Parents: https://www.spreaker.com/user/heart2heartannaandfriends/you-re-never-too-old-to-dream-a-new-drea

Deb Gerrits

Lisa Colvil
Lisa Colvil: Heart Warrior Author and Poet: https://www.spreaker.com/user/7668348/lisa-colvil-heart-warrior-author-and-poe
Three Generations: Heart Warrior, Heart Mom & Heart Daughter: https://www.spreaker.com/user/7668348/three-generations-heart-warrior-heart-mo

Brenda Vignaroli Pool
How Parents’ Relationships are Affected by Having a Child with a CHD: https://tinyurl.com/42ptf9tj

Belen Blanton
Heart Warrior from Venezuela to the USA: https://www.spreaker.com/user/heart2heartannaandfriends/heart-warrior-from-venezuela-to-the-usa

Sajani Nair
Mom to an Adult Heart Warrior in India: https://www.spreaker.com/user/heart2heartannaandfriends/mom-to-an-adult-heart-warrior-in-india

Dr. Huie Lin
5th Annual Adult Congenital Heart Symposium: https://www.spreaker.com/user/heart2heartannaandfriends/5th-annual-adult-congenital-heart-sympos

Dr. Fred Wu
Advancements in Understanding the Liver in Fontan Patients: Part 1: http://www.spreaker.com/user/heart2heartannaandfriends/advancements-in-understanding-the-liver-
Advancements in Understanding the Liver in Fontan Patients: Part 2: https://www.spreaker.com/user/7668348/advancements-in-understanding-the-liver-_1
Coronary Artery Disease in the Congenital Heart Defect Community: https://www.spreaker.com/user/heart2heartannaandfriends/coronary-artery-disease-in-the-congenita
Continuing Education for Understanding the Liver in Fontan Patients: https://www.spreaker.com/user/heart2heartannaandfriends/continuing-education-for-understanding-t

Deena Barber, RN
Nurse Burnout in the CHD Community Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/nurse-burnout-in-the-chd-community
Nurse Burnout in the CHD Community Part 2: https://www.spreaker.com/user/heart2heartannaandfriends/s15e8track1auphonic-1
The Natural Course of Congenital Heart Disease: http://www.spreaker.com/user/heart2heartannaandfriends/the-natural-course-of-congenital-heart-d
A Nurses Perspective: Changes in Care over the last 30 Years: Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/a-nurse-s-perspective-changes-in-care-ov
A Nurses Perspective: Changes in Care over the last 30 Years: Part 2: http://www.spreaker.com/user/heart2heartannaandfriends/a-nurse-s-perspective-changes-in-care-ov_1

Roslyn Rivera, RN
A View From the Other Side of the Bed: https://www.spreaker.com/user/heart2heartannaandfriends/a-view-from-the-other-side-of-the-bed
Nurse Burnout in the CHD Community Part 1: https://www.spreaker.com/user/heart2heartannaandfriends/nurse-burnout-in-the-chd-community
Nurse Burnout in the CHD Community Part 2: https://www.spreaker.com/user/heart2heartannaandfriends/s15e8track1auphonic-1
Congenital Heart Defects Around the Globe: The Novick Cardiac Alliance: http://www.spreaker.com/user/heart2heartannaandfriends/chds-around-the-globe-novick-cardiac-all

Laura Redfern
Insurance Issues and Financial Planning in the Congenital Heart Defect Community: https://www.spreaker.com/user/heart2heartannaandfriends/insurance-issues-and-financial-planning-
Behind the Scenes with Hearts Unite the Globe: https://tinyurl.com/p9cdbhs3
End-of-Life Financial Planning: Considerations for the Members of the Congenital Heart Defect Community: https://www.spreaker.com/user/heart2heartannaandfriends/end-of-life-financial-planning-considera

Alex Jaworski
Sports and Extra-Curricular Activities for CHD Survivors: https://www.spreaker.com/user/7668348/encore-presentation-of-sports-and-extra-
Dealing with a Long Hospital Stay: https://www.spreaker.com/user/7668348/hearttoheartwithanna-2014-06-17-dealing-

David Richman
Cycling Through the Pain: https://www.spreaker.com/user/7668348/cycling-through-the-pain

Other Organizations Mentioned:
Guerreros Del Corazon: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Belen's website: https://fundacionestrellitadebelen.org/
Zipper Sisters: https://www.facebook.com/groups/womenwithchd/
Sisters by Heart: https://www.sistersbyheart.org/
Team Uncle Joe: https://teamunclejoe.org/
David's website: https://david-richman.com/
Adult Congenital Heart Association: https://www.achaheart.org/
Conquering CHD: https://www.conqueringchd.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

To support our show, visit our Patreon page here: www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47722575Tue, 30 Nov 2021 17:00:02 +0000Anna JaworskiIn this episode celebrating 8 years of “Heart to Heart with Anna," we have many of the Hearts Unite the Globe (HUG) Volunteers, the HUG Medical Advisory Board, and our Patrons. Links to participants' past shows (if applicable): Kathy Ware A Heart...
Links to participants' past shows (if applicable):

Kathy Ware
A Heart Warrior’s Early Onset Menopause: https://tinyurl.com/3y8cs2kw
From Learning Disabled to College Professor: https://tinyurl.com/2p86m5bw
Panel Discussion on Labels or Terms Used in the Heart Community: https://tinyurl.com/5uatuydw

Chris Freeman

Marta Montero
CHDs Around The Globe Puerto Rico: https://tinyurl.com/y34z6hba
You’re Never Too Old to Dream a New Dream: Education for Heart Parents: https://www.spreaker.com/user/heart2heartannaandfriends/you-re-never-too-old-to-dream-a-new-drea

Deb Gerrits

Lisa Colvil
Lisa Colvil: Heart Warrior Author and Poet: https://www.spreaker.com/user/7668348/lisa-colvil-heart-warrior-author-and-poe
Three Generations: Heart Warrior, Heart Mom & Heart Daughter: https://www.spreaker.com/user/7668348/three-generations-heart-warrior-heart-mo

Brenda Vignaroli Pool
How Parents’ Relationships are Affected by Having a Child with a CHD: https://tinyurl.com/42ptf9tj

Belen Blanton
Heart Warrior from Venezuela to the USA: https://www.spreaker.com/user/heart2heartannaandfriends/heart-warrior-from-venezuela-to-the-usa

Sajani Nair
Mom to an Adult Heart Warrior in India: https://www.spreaker.com/user/heart2heartannaandfriends/mom-to-an-adult-heart-warrior-in-india

Dr. Huie Lin
5th Annual Adult Congenital Heart Symposium: https://www.spreaker.com/user/heart2heartannaandfriends/5th-annual-adult-congenital-heart-sympos

Dr. Fred Wu
Advancements in Understanding the Liver in Fontan Patients: Part 1: http://www.spreaker.com/user/heart2heartannaandfriends/advancements-in-understanding-the-liver-
Advancements in Understanding the Liver in Fontan Patients: Part 2: https://www.spreaker.com/user/7668348/advancements-in-understanding-the-liver-_1
Coronary Artery Disease in the Congenital Heart Defect Community: https://www.spreaker.com/user/heart2heartannaandfriends/coronary-artery-disease-in-the-congenita
Continuing Education for Understanding the Liver in Fontan Patients: https://www.spreaker.com/user/heart2heartannaandfriends/continuing-education-for-understanding-t

Deena Barber, RN
Nurse Burnout in...]]>3379adult_congenital_heart_disease,advocacy,congenital_heart_defects,eisenmenger's_syndrome,fontan,heart_mom,hearts_unite_the_globe,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,india,israel,medical_advisory_board,pediatric_cardiology,puerto_rico,pulmonary_hypertension,single_directional_glenn,tricuspid_atresia,volunteerfalsefullhttps://www.spreaker.com/episode/8th-anniversary-special-part-1--47647976
Our participants and links to their past shows (if applicable):

HUG Volunteers

Rita Scoggins:
Congenital Heart Defect Awareness 2015! https://tinyurl.com/4x7hz9b2
Heart Warrior Mom Raising Children to Adulthood https://tinyurl.com/75cf6pwf

Allison Holmes:
Thriving with CHD. https://tinyurl.com/6826rzf3

Vicki Lucas:
Special Education Transitions for Heart Warriors. https://tinyurl.com/yept4ts7
The Changing Landscape of Care for Young Adults with CCHDs. https://tinyurl.com/fev9mywc
What is Normal Child Development in Children with Complex Congenital Heart Defects? https://tinyurl.com/3jv3r9dy

Megan Tones:
Expressions from the Heart on HeartWire. https://tinyurl.com/y4ykxj3c
Travels of a Heart Warrior! https://tinyurl.com/r9hwfxfz
When You're Married to a Heart Warrior https://tinyurl.com/s38pyerk
One Heart Warrior’s Educational Experience Down Under. https://tinyurl.com/5dasevwv
CHD in the 1980s: Mum, Dad, and Daughter. https://tinyurl.com/26k64jxv

Janet Thompson, previous Volunteer Coordinator

Deborah Meisten Nagarajan:
A Family Dealing with Tetralogy of Fallot. https://tinyurl.com/wjyumst4

Lorrie Hill:
Waiting for a Heart https://tinyurl.com/5ceezdvy
Still Waiting for a Heart. https://tinyurl.com/2sybeu6d

Laura Ryan:
Heart Warrior Mom Raising Children to Adulthood. https://tinyurl.com/75cf6pwf
Panel Discussion on Labels or Terms Used in the Heart Community. https://tinyurl.com/5uatuydw
A Heart Warrior’s Early Onset Menopause. https://tinyurl.com/3y8cs2kw
Living with a Bi-Directional Glenn Heart. https://tinyurl.com/32w44x9c

HUG Medical Advisory Board Members

Dr. Brandon Lane Phillips:
Interwoven Lives and Congenital Heart Defects. https://tinyurl.com/5bm8avk6
Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients https://tinyurl.com/8evze52x
A Wish-Made Friendship. https://tinyurl.com/3vuahrm6

Chris Donald, RN
Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients. https://tinyurl.com/8evze52x

Dr. Edward Bove
Advancements in Treatments for HLHS Heart Warriors. https://tinyurl.com/c32mmpes
Learning about ccTGA and the Double Switch Procedure. https://tinyurl.com/fwmc924u

Patrons

Joey Jaworski
Siblings in the CHD Community. https://tinyurl.com/2srnatmp
Brother of an HLHS Warrior. https://tinyurl.com/w9rtr7zy

Frank Jaworski
How Parents’ Relationships are Affected by Having a Child with a CHD. https://tinyurl.com/42ptf9tj
Miracle of a CCHD Baby's Survival. https://tinyurl.com/3eu93we9
Behind the Scenes with Hearts Unite the Globe https://tinyurl.com/p9cdbhs3
Turning the Tables: David Simpson Interviews Anna and Frank Jaworski. https://tinyurl.com/whnnvkmb

Pam Davis, HUG Secretary

Alicia Lynch, Heart Warrior

Jack Lubben, HUG President

Other Links:
The Writers League of Texas https://writersleague.org/
Annual Texas Book Festival. https://www.texasbookfestival.org/
The Heart Community Collection. https://www.theheartcommunitycollection.com/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

To support our show, visit our Patreon page here: www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47647976Thu, 25 Nov 2021 07:14:14 +0000Anna JaworskiIn this first of a 2-part series of episodes celebrating 8 years of “Heart to Heart with Anna. we have many of the Hearts Unite the Globe (HUG) Volunteers, the HUG Medical Advisory Board, and our Patrons celebrating and sharing with us. Our...
Our participants and links to their past shows (if applicable):

HUG Volunteers

Rita Scoggins:
Congenital Heart Defect Awareness 2015! https://tinyurl.com/4x7hz9b2
Heart Warrior Mom Raising Children to Adulthood https://tinyurl.com/75cf6pwf

Allison Holmes:
Thriving with CHD. https://tinyurl.com/6826rzf3

Vicki Lucas:
Special Education Transitions for Heart Warriors. https://tinyurl.com/yept4ts7
The Changing Landscape of Care for Young Adults with CCHDs. https://tinyurl.com/fev9mywc
What is Normal Child Development in Children with Complex Congenital Heart Defects? https://tinyurl.com/3jv3r9dy

Megan Tones:
Expressions from the Heart on HeartWire. https://tinyurl.com/y4ykxj3c
Travels of a Heart Warrior! https://tinyurl.com/r9hwfxfz
When You're Married to a Heart Warrior https://tinyurl.com/s38pyerk
One Heart Warrior’s Educational Experience Down Under. https://tinyurl.com/5dasevwv
CHD in the 1980s: Mum, Dad, and Daughter. https://tinyurl.com/26k64jxv

Janet Thompson, previous Volunteer Coordinator

Deborah Meisten Nagarajan:
A Family Dealing with Tetralogy of Fallot. https://tinyurl.com/wjyumst4

Lorrie Hill:
Waiting for a Heart https://tinyurl.com/5ceezdvy
Still Waiting for a Heart. https://tinyurl.com/2sybeu6d

Laura Ryan:
Heart Warrior Mom Raising Children to Adulthood. https://tinyurl.com/75cf6pwf
Panel Discussion on Labels or Terms Used in the Heart Community. https://tinyurl.com/5uatuydw
A Heart Warrior’s Early Onset Menopause. https://tinyurl.com/3y8cs2kw
Living with a Bi-Directional Glenn Heart. https://tinyurl.com/32w44x9c

HUG Medical Advisory Board Members

Dr. Brandon Lane Phillips:
Interwoven Lives and Congenital Heart Defects. https://tinyurl.com/5bm8avk6
Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients https://tinyurl.com/8evze52x
A Wish-Made Friendship. https://tinyurl.com/3vuahrm6

Chris Donald, RN
Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients. https://tinyurl.com/8evze52x

Dr. Edward Bove
Advancements in Treatments for HLHS Heart Warriors. https://tinyurl.com/c32mmpes
Learning about ccTGA and the Double Switch Procedure. 3476brothers,congenital_heart_defect,congenital_heart_defects,fontan,heart_moms,heart_parents,heart_warriors,heterotaxy,hlhs,nurses,patrons,pediatric_cardiologists,single_ventricle,tetralogy_of_fallot,volunteersfalsefullhttps://www.spreaker.com/episode/enjoying-sports-while-living-with-congenital-heart-defects--47383329
Michael Hills was born in February of 1998 in Ontario, Canada. He was diagnosed with Hypoplastic Left Heart Syndrome when he was five and a half months old. He has had three surgeries: a Norwood at nearly six months, a Glenn at nine months, and a Fontan at two years and four months of age. Ever since the last surgery, he has enjoyed good health. Michael has a passion for sports and played on several sports teams during his school days. Since leaving school, he has studied sports management and sport and event marketing and currently works for a variety of sports clubs and teams. He also enjoys traveling to different countries. Michael wants to share his story about how sports allowed him to live a life with joy and a sense of normalcy, and to show a healthy, active life with complex CHD is possible.

Links mentioned in the episode:

Links Michael sent me to better understand curling

Joanne Courtney Explains Curling Shoe Grippers
https://www.youtube.com/watch?v=igG5WyPvyDo

Super Sweeper Joanne Courtney critiques sweeping technique
https://www.youtube.com/watch?v=1iZbrteHx1o

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

To support our show, visit our Patreon page here: www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47383329Tue, 09 Nov 2021 17:00:15 +0000Anna JaworskiHow does having obstacles to playing sports affect a boy’s feelings of self-worth when growing up? In what ways can a young man feed his desire for sports and athletics, even if his body isn’t able to do what his mind wishes he could do? How can an...
Michael Hills was born in February of 1998 in Ontario, Canada. He was diagnosed with Hypoplastic Left Heart Syndrome when he was five and a half months old. He has had three surgeries: a Norwood at nearly six months, a Glenn at nine months, and a Fontan at two years and four months of age. Ever since the last surgery, he has enjoyed good health. Michael has a passion for sports and played on several sports teams during his school days. Since leaving school, he has studied sports management and sport and event marketing and currently works for a variety of sports clubs and teams. He also enjoys traveling to different countries. Michael wants to share his story about how sports allowed him to live a life with joy and a sense of normalcy, and to show a healthy, active life with complex CHD is possible.

Links mentioned in the episode:

Links Michael sent me to better understand curling

Joanne Courtney Explains Curling Shoe Grippers
https://www.youtube.com/watch?v=igG5WyPvyDo

Super Sweeper Joanne Courtney critiques sweeping technique
https://www.youtube.com/watch?v=1iZbrteHx1o

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

To support our show, visit our Patreon page here: www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1850adults_with_chds,adult_with_congenital_heart_de,baseball,canada,cardiology,chds,congenital_heart_defects,curling,hlhs,hockey,hypoplastic_left_heart_syndrom,ice_skating,pediatric_cardiology,single_ventricle,skating,sports,sports_career,swimming,toronto_blue_jaysfalsefullhttps://www.spreaker.com/episode/houston-methodist-achd-2021-virtual-conference--47275971

Annie Ulchak was born in Lima, Peru in 1979 with nomenclature HLHS, pulmonary stenosis, double inlet right atrium, and double outlet right ventricle. She was adopted and had the two-stage HLHS process: BT shunt at age 3 and classic Fontan at age 7 at Boston Children's Hospital. She was diagnosed with CHF and cardiac cirrhosis in 2010. In June 2014, she was diagnosed with autoimmune serositis of the peritoneum. In December 2014 and January 2015, she was diagnosed with atrial flutters and has undergone two cardiac ablations. Following her most recent health struggles, Annie developed a passion for nutrition and improved her health dramatically via an overhaul of her diet. Annie works full-time as a dual executive assistant and project coordinator for a prominent Boston health care system. When she's not working she can be found volunteering at Quincy Animal Shelter or cooking something delicious in her kitchen.

In this episode of "Heart to Heart with Anna," Annie will be sharing with us a little bit about her history, how she became involved with Houston Methodist Hospital, and what we can expect from their upcoming Adult Congenital Heart Conference -- which will be virtual this year. Annie will tell us how she'll be participating in the conference and what others in the CHD community can expect to hear and learn, and why it's important for us to have conferences devoted to adults with congenital heart defects.

Links to things discussed in this episode:

Annie's former "Heart to Heart with Anna" episode: https://www.buzzsprout.com/62761/4107911

Registration Link for the Houston Methodist Adults with Congenital Heart Disease Conference: https://tinyurl.com/62nx499d

Fontan Outcomes Network: https://www.fontanoutcomesnetwork.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47275971Tue, 02 Nov 2021 16:10:58 +0000Anna JaworskiWhy are conferences specifically for adults with congenital heart defects important? Who attends ACHD conferences? What can a person expect to learn at a virtual conference? Annie Ulchak was born in Lima, Peru in 1979 with nomenclature HLHS,...

Annie Ulchak was born in Lima, Peru in 1979 with nomenclature HLHS, pulmonary stenosis, double inlet right atrium, and double outlet right ventricle. She was adopted and had the two-stage HLHS process: BT shunt at age 3 and classic Fontan at age 7 at Boston Children's Hospital. She was diagnosed with CHF and cardiac cirrhosis in 2010. In June 2014, she was diagnosed with autoimmune serositis of the peritoneum. In December 2014 and January 2015, she was diagnosed with atrial flutters and has undergone two cardiac ablations. Following her most recent health struggles, Annie developed a passion for nutrition and improved her health dramatically via an overhaul of her diet. Annie works full-time as a dual executive assistant and project coordinator for a prominent Boston health care system. When she's not working she can be found volunteering at Quincy Animal Shelter or cooking something delicious in her kitchen.

In this episode of "Heart to Heart with Anna," Annie will be sharing with us a little bit about her history, how she became involved with Houston Methodist Hospital, and what we can expect from their upcoming Adult Congenital Heart Conference -- which will be virtual this year. Annie will tell us how she'll be participating in the conference and what others in the CHD community can expect to hear and learn, and why it's important for us to have conferences devoted to adults with congenital heart defects.

Links to things discussed in this episode:

Annie's former "Heart to Heart with Anna" episode: https://www.buzzsprout.com/62761/4107911

Registration Link for the Houston Methodist Adults with Congenital Heart Disease Conference: https://tinyurl.com/62nx499d

Fontan Outcomes Network: https://www.fontanoutcomesnetwork.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1803ablations,adults_with_chds,atrial_flutter,autoimmune_serositis,cardiac_cirrhosis,chf,congenital_heart_defects,congestive_heart_failure,diet,dirv,dorv,double-inlet-right_ventricle,double_outlet_right_ventricle,fald,hlhs,hypoplastic_left_heart_syndrom,liver_disease,nutrition,pulmonary_stenosis,single_ventriclefalsefullhttps://www.spreaker.com/episode/juggling-tetralogy-of-fallot-and-epilepsy--47146988
How can you manage epilepsy in a child with CHD?

Melanie Letzer is a geriatric nurse practitioner. She lives in Maryland with her husband Jack and their three children. Her older son, Freddy, now 16, was born with Tetralogy of Fallot with Pulmonary Atresia with Multiple Aortopulmonary Collateral Arteries (MAPCAS). Her younger son, Nicholas, now 5, was also born with TOF and later developed epilepsy. Melanie and John also have a heart-healthy daughter, Alexandra, who is 13.

In this episode of "Heart to Heart with Anna," Melanie talks with Anna about finding out her sons would be born with heart defects, their surgical treatments, and what it was like for Melanie to have a heart-healthy daughter. She also talks a bit about their family dynamic and their philosophy in living with chronic illness.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/


To become a Patron, go here: https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47146988Tue, 26 Oct 2021 16:00:11 +0000Anna JaworskiWhat is it like to be the mom of not one but two children with CHD? How can you manage epilepsy in a child with CHD? Melanie Letzer is a geriatric nurse practitioner. She lives in Maryland with her husband Jack and their three children. Her older...
How can you manage epilepsy in a child with CHD?

Melanie Letzer is a geriatric nurse practitioner. She lives in Maryland with her husband Jack and their three children. Her older son, Freddy, now 16, was born with Tetralogy of Fallot with Pulmonary Atresia with Multiple Aortopulmonary Collateral Arteries (MAPCAS). Her younger son, Nicholas, now 5, was also born with TOF and later developed epilepsy. Melanie and John also have a heart-healthy daughter, Alexandra, who is 13.

In this episode of "Heart to Heart with Anna," Melanie talks with Anna about finding out her sons would be born with heart defects, their surgical treatments, and what it was like for Melanie to have a heart-healthy daughter. She also talks a bit about their family dynamic and their philosophy in living with chronic illness.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/


To become a Patron, go here: https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2135chronic_illness,congenital_heart_defect,congenital_heart_defects,epilepsy,heart-healthy_sibling,mapcas,multiple_aorto-pulmonary_colla,open-heart_surgery,pulmonary_atresia,tetralogy_of_fallot,tof,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/chd-in-the-1980s-mum-dad-and-daughter--47047258
Donna and Ian were born in Brisbane, Australia in the 1950s. They met in the early 1980s and married in 1982. Megan was born in February 1983. All was going well for the new family until Megan became unwell at 6 days old. Megan made her first ambulance trip to the pediatric cardiology unit at Prince Charles Hospital. With her parents by her side, Megan spent the first four months of her life in the hospital where she had a pulmonary banding operation and finally became strong enough to go home. Megan had two more surgeries as a child, at age 5 and 10, and one surgery at age 25. Today, Donna is very active in her local church and the sewing guild, and Ian plays drums in several local bands.

Megan's former "Heart to Heart with Anna" appearances:

"Expressions from the Heart on HeartWire" https://www.buzzsprout.com/62761/398986
"One Heart Warrior's Educational Experience Down Under" https://www.buzzsprout.com/62761/546571
"Travels of a Heart Warrior" https://www.buzzsprout.com/62761/1512628
"When You're Married to a Heart Warrior" https://www.buzzsprout.com/62761/1686034

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/


To become a Patron, go here: https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/47047258Tue, 19 Oct 2021 16:00:19 +0000Anna JaworskiWhat was it like raising a daughter with a congenital heart defect in Australia in the 1980s? What challenges did parents of a daughter requiring open-heart surgery face? What does an adult Heart Warrior appreciate about her parents now that she's all...
Donna and Ian were born in Brisbane, Australia in the 1950s. They met in the early 1980s and married in 1982. Megan was born in February 1983. All was going well for the new family until Megan became unwell at 6 days old. Megan made her first ambulance trip to the pediatric cardiology unit at Prince Charles Hospital. With her parents by her side, Megan spent the first four months of her life in the hospital where she had a pulmonary banding operation and finally became strong enough to go home. Megan had two more surgeries as a child, at age 5 and 10, and one surgery at age 25. Today, Donna is very active in her local church and the sewing guild, and Ian plays drums in several local bands.

Megan's former "Heart to Heart with Anna" appearances:

"Expressions from the Heart on HeartWire" https://www.buzzsprout.com/62761/398986
"One Heart Warrior's Educational Experience Down Under" https://www.buzzsprout.com/62761/546571
"Travels of a Heart Warrior" https://www.buzzsprout.com/62761/1512628
"When You're Married to a Heart Warrior" https://www.buzzsprout.com/62761/1686034

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

MeWe: https://mewe.com/i/annajaworski

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/


To become a Patron, go here: https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2256adult_child,australia,congenital_heart_defect,congenital_heart_defects,heart_warrior,inspirational_story,middle_child,open-heart_surgery,parenting,parenting_a_medical_needs_chil,parents,ventricular_septal_defectfalsefullhttps://www.spreaker.com/episode/libby-andrew-heart-mom-and-author--46819317
Australian Libby Andrew is a busy mom to four sons: John, 14, Matthew, 12, Stuart, 10, and Daniel, 7. Her youngest son Daniel was born with half a heart. Diagnosed in utero at 20 weeks, Daniel was not expected to survive. He had his first surgery at 21 days old, his second surgery, a Glenn shunt, at 5 months, and a Fontan at 3.5 years of age.

Unable to find the resources she needed to guide her on her journey, Libby wrote a book “Living with HALF A HEART: A Mother's Guide to Navigating Fontan Surgery.”

Since his surgeries, Daniel has been thriving - he enjoys being with his older brothers and attends school.

Libby's show on Amazon: https://smile.amazon.com/Living-HALF-HEART-Mothers-Navigating/dp/1925884910/ref

Libby's book in The Heart Community Collection: https://heartcollection.wixsite.com/bookstore/chd-education-wellness

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

To become a Patron, go here: https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/46819317Wed, 06 Oct 2021 17:44:10 +0000Anna JaworskiWhat lessons can we learn from our Heart Warriors? Why might a Heart Mom write a book about her life experiences dealing with CHD? How does a Heart Mom use her personal experiences to fight for others in the hospital? Australian Libby Andrew is a...
Australian Libby Andrew is a busy mom to four sons: John, 14, Matthew, 12, Stuart, 10, and Daniel, 7. Her youngest son Daniel was born with half a heart. Diagnosed in utero at 20 weeks, Daniel was not expected to survive. He had his first surgery at 21 days old, his second surgery, a Glenn shunt, at 5 months, and a Fontan at 3.5 years of age.

Unable to find the resources she needed to guide her on her journey, Libby wrote a book “Living with HALF A HEART: A Mother's Guide to Navigating Fontan Surgery.”

Since his surgeries, Daniel has been thriving - he enjoys being with his older brothers and attends school.

Libby's show on Amazon: https://smile.amazon.com/Living-HALF-HEART-Mothers-Navigating/dp/1925884910/ref

Libby's book in The Heart Community Collection: https://heartcollection.wixsite.com/bookstore/chd-education-wellness

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

To become a Patron, go here: https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2242asd,atrial_septal_defect,cc-tga,complex_congenital_heart_defec,congenital_heart_defects,congenitally_corrected_transpo,dextrocardia,fontan_heart,fontan_procedure,in-utero_diagnosis,sin,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/heart-warrior-psychologist-and-author--46619731
Joy Ogawa was born  in Hawaii with tetralogy of Fallot in 1979  and had an open-heart surgery at 22 months of age. She considers herself lucky to have only experienced one surgery in her lifetime.
 
Despite other health issues affecting her eyes, ears, abdomen and her emotional wellbeing, Joy was able to participate in physical activities and complete her education and is now a psychologist working in Corrections/Public Safety. 

Joy highlights her experience of living with CHD in her newly released self- published, illustrated children’s book “I am a Heart Warrior.”

In this episode of “Heart to Heart with Anna,” Joy shares with Anna some of the medical challenges she has faced over her 40+ years of living with a congenital heart defect and why she considers herself to be as fortunate as she is.

Links mentioned in the show:


Friends, to donate to Hearts Unite the Globe through the AmazonSmile Program, go here: http://smile.amazon.com/ch/46-4352863. Thank you for your support!

Joy's book on Amazon: https://tinyurl.com/djvvvudf

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/46619731Tue, 21 Sep 2021 16:00:10 +0000Anna JaworskiWhat was it like to grow up with tetralogy of Fallot in the 1980s? How can having a heart defect influence your career choice as an adult? What psychological challenges do Heart Warriors face? Joy Ogawa was born  in Hawaii with tetralogy of Fallot in...
Joy Ogawa was born  in Hawaii with tetralogy of Fallot in 1979  and had an open-heart surgery at 22 months of age. She considers herself lucky to have only experienced one surgery in her lifetime.
 
Despite other health issues affecting her eyes, ears, abdomen and her emotional wellbeing, Joy was able to participate in physical activities and complete her education and is now a psychologist working in Corrections/Public Safety. 

Joy highlights her experience of living with CHD in her newly released self- published, illustrated children’s book “I am a Heart Warrior.”

In this episode of “Heart to Heart with Anna,” Joy shares with Anna some of the medical challenges she has faced over her 40+ years of living with a congenital heart defect and why she considers herself to be as fortunate as she is.

Links mentioned in the show:


Friends, to donate to Hearts Unite the Globe through the AmazonSmile Program, go here: http://smile.amazon.com/ch/46-4352863. Thank you for your support!

Joy's book on Amazon: https://tinyurl.com/djvvvudf

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2031author,congenital_heart_defects,ear_problems,eye_problems,eye_surgery,hawaii,lasik_surgery,lazy_eye,open-heart_surgery,psychologist,tetralogy_of_fallot,toffalsefullhttps://www.spreaker.com/episode/the-broken-miracle--46516776
In this episode of "Heart to Heart with Anna," Paul talks with Anna about being born with a congenital heart defect and growing up with that condition until his heart could no longer sustain his life. Paul Cardall also talks about the event that caused him to rediscover the power of music and what music has done for him mentally and emotionally. Additionally, Paul conveys what service means to him and how his music has enabled him to serve others in the congenital heart defect community.

Links mentioned in this program:

Paul's Website, Book and Album: https://www.thebrokenmiracle.com/
Paul's Podcast (All Heart with Paul Cardall): https://paulcardall.com/podcast

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/46516776Tue, 14 Sep 2021 16:00:10 +0000Anna JaworskiPaul Cardall was born in 1973 with only half a heart. He had his first open-heart surgery a few hours after birth and two more surgeries at age 13 and 14. As a child, he took piano lessons but wasn’t keen on practice. As a teenager, he started...
In this episode of "Heart to Heart with Anna," Paul talks with Anna about being born with a congenital heart defect and growing up with that condition until his heart could no longer sustain his life. Paul Cardall also talks about the event that caused him to rediscover the power of music and what music has done for him mentally and emotionally. Additionally, Paul conveys what service means to him and how his music has enabled him to serve others in the congenital heart defect community.

Links mentioned in this program:

Paul's Website, Book and Album: https://www.thebrokenmiracle.com/
Paul's Podcast (All Heart with Paul Cardall): https://paulcardall.com/podcast

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1908asd,atrial_septal_defect,broken_miracle,cardiac_transplant,congenital_heart_defects,death_of_a_friend,dilv,double-inlet_left_ventricle,fontan,heart_transplant,loss,music,music_therapy,near-death_experience,paul_cardall,philanthropy,piano,single_ventricle_heart,tga,transplantfalsefullhttps://www.spreaker.com/episode/heart-mom-liz-schurrer-and-conquering-chd--46136502
Liz Schurrer is mom to eight-year-old Eli, who was prenatally diagnosed with truncus arteriosus. Her family’s life changed forever as they were thrown into the CHD world. Eli had his first open-heart surgery at one week old,  his second at age three, and may need another surgery in the future. 

Liz began volunteering on behalf of all CHD families when Eli was six months old. On Eli’s first birthday, she flew to Washington D.C. to advocate for increased research funding on behalf of her son and all those with CHD. She co-founded the Conquering CHD Ohio state chapter. Conquering CHD directly supports CHD patients and families. 

In 2019, she joined the staff of Conquering CHD. As the Donor Relations Director, she finds it rewarding to work with generous donors who help change the outcomes for CHD patients. Liz has a Bachelor's Degree in Journalism and lives with her husband Jim and their children Maddie and Eli.

In this episode, Liz shares with Anna how it was that she became involved with Conquering CHD and why she felt compelled to help others. She explains how the organization has grown and morphed over the years and what it is that they do on The Hill once a year. Find out how you can also become involved in Conquering CHD and what all advocates for the CHD community need to know in this episode of “Heart to Heart with Anna.”

Links mentioned in this episode:

Conquering CHD website: https://www.conqueringchd.org/
Registration form for “Not Another Lunch and Learn” — https://conqueringchd.app.neoncrm.com/np/clients/conqueringchd/event.jsp?event=39&

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/46136502Wed, 18 Aug 2021 03:59:25 +0000Anna JaworskiWhy might a Heart Mom choose to volunteer with an advocacy organization? What can an advocacy organization do to help others learn about congenital heart defects? What are the future plans for Conquering CHD and how can people get involved? Liz...
Liz Schurrer is mom to eight-year-old Eli, who was prenatally diagnosed with truncus arteriosus. Her family’s life changed forever as they were thrown into the CHD world. Eli had his first open-heart surgery at one week old,  his second at age three, and may need another surgery in the future. 

Liz began volunteering on behalf of all CHD families when Eli was six months old. On Eli’s first birthday, she flew to Washington D.C. to advocate for increased research funding on behalf of her son and all those with CHD. She co-founded the Conquering CHD Ohio state chapter. Conquering CHD directly supports CHD patients and families. 

In 2019, she joined the staff of Conquering CHD. As the Donor Relations Director, she finds it rewarding to work with generous donors who help change the outcomes for CHD patients. Liz has a Bachelor's Degree in Journalism and lives with her husband Jim and their children Maddie and Eli.

In this episode, Liz shares with Anna how it was that she became involved with Conquering CHD and why she felt compelled to help others. She explains how the organization has grown and morphed over the years and what it is that they do on The Hill once a year. Find out how you can also become involved in Conquering CHD and what all advocates for the CHD community need to know in this episode of “Heart to Heart with Anna.”

Links mentioned in this episode:

Conquering CHD website: https://www.conqueringchd.org/
Registration form for “Not Another Lunch and Learn” — https://conqueringchd.app.neoncrm.com/np/clients/conqueringchd/event.jsp?event=39&

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>18871_birth_defect,activist,advocacy,advocate,asd,atrial_septa_defect,chd,congenital_heart_defect,congenital_heart_disease,conquering_chd,fear,heart_mom,heart_parent,lobbying,nonprofit_organization,open-heart_surgery,stress,the_hill,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/the-art-of-the-heart--46040191
Susan Russell Hall is a Northwest artist and medical illustrator who comes from a long line of artisans. Her first solo exhibition was in 1977 at the Women’s Cultural Center at the University of Washington. In 1979, she commenced working as a medical illustrator at Seattle Children's Hospital, moving to Mary Bridge Children's Hospital in 1998. Her work involves documenting pediatric heart surgeries from the operating room. Over the years, she has created more than 6500 individual heart drawings. These intricate works of art are created by using charcoal, graphite, and colored pencil. As a professional artist, Susan has explored other mediums, such as acrylic and oil painting and eventually pyrographs, the actual art of painting with fire. Susan joined us earlier this year in the episode entitled, “A Surprise for Heart Warrior Amy M. Le! “

In this episode of “Heart to Heart with Anna,” Susan shares with Anna what it meant to be a medical illustrator, exactly how a medical illustrator learns and practices her craft as well as the other artistic pursuits that she enjoys.

Links mentioned in this episode:

Susan’s website: https://www.susanrussellhall.com/

Susan’s website with her art partner: https://www.russellrishel.com/

Susan’s Friesen Gallery exhibit: https://www.friesengallery.com/exhibitions/s-russell-hall-t-rishel

Susan’s previous “Heart to Heart with Anna” appearance: ‘A Surprise for Heart Warrior Amy M. Le!’: https://www.buzzsprout.com/62761/8667060

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/46040191Tue, 10 Aug 2021 16:17:53 +0000Anna JaworskiWhy would an artist choose a career working in the operating room of a pediatric hospital? What joy is to be had of drawing broken hearts and the operations surgeons use to save these critically ill babies’ lives? In what other ways does artist Susan...
Susan Russell Hall is a Northwest artist and medical illustrator who comes from a long line of artisans. Her first solo exhibition was in 1977 at the Women’s Cultural Center at the University of Washington. In 1979, she commenced working as a medical illustrator at Seattle Children's Hospital, moving to Mary Bridge Children's Hospital in 1998. Her work involves documenting pediatric heart surgeries from the operating room. Over the years, she has created more than 6500 individual heart drawings. These intricate works of art are created by using charcoal, graphite, and colored pencil. As a professional artist, Susan has explored other mediums, such as acrylic and oil painting and eventually pyrographs, the actual art of painting with fire. Susan joined us earlier this year in the episode entitled, “A Surprise for Heart Warrior Amy M. Le! “

In this episode of “Heart to Heart with Anna,” Susan shares with Anna what it meant to be a medical illustrator, exactly how a medical illustrator learns and practices her craft as well as the other artistic pursuits that she enjoys.

Links mentioned in this episode:

Susan’s website: https://www.susanrussellhall.com/

Susan’s website with her art partner: https://www.russellrishel.com/

Susan’s Friesen Gallery exhibit: https://www.friesengallery.com/exhibitions/s-russell-hall-t-rishel

Susan’s previous “Heart to Heart with Anna” appearance: ‘A Surprise for Heart Warrior Amy M. Le!’: https://www.buzzsprout.com/62761/8667060

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2488abstract_art,art,ashcan_school,carl_cook,chiura_obata,congenital_heart_defects,encaustic_art,heart_drawings,medical_artist,medical_illustrator,open-heart_surgery,pyrography,realism,sumi_painting,susan_russell_hallfalsefullhttps://www.spreaker.com/episode/tom-dahlborg-author-and-patient-advocate--45860055
Why might a patient advocate write a book about his life-changing heart event? 

How does someone who has worked in the field of healthcare for 37 years see the field of healthcare changing to better suit the needs of patients?

Thomas Dahlborg is from Brockton, Massachusetts. He began his career in healthcare as a transport aid, IV aid, and housekeeper where he saw firsthand the impact of relationships and connections within a healthcare system on clinicians and staff, and patients, families, and communities. He also has the experience of being a patient, when he developed viral myocarditis and was told he would never work again and would need a transplant.

Now with 37 years of experience in healthcare service and leadership, Tom is passionate about improving the healthcare system and making healthcare better – for employees to work, physicians to practice medicine, patients and families to receive care, and communities to thrive. Last year, he published his healthcare book “From Heart to Head and Back Again … a journey through the healthcare system.”

Today Tom lives with his bride Darlene, and their papillon Gabriel in West Michigan; and together they enjoy visiting their three children -- Samantha, Tommy Jr., and Haylee, in New England as often as possible.

In this episode, Tom shares with Anna how his experience in the medical field and his own health journey spurred him into becoming an author and what his research has led him to believe about healthcare in general. Tom and Anna also turn their attention to the current healthcare crisis thanks to Covid-19. What does Tom feel about bullying given the world’s healthcare crisis right now? What does Tom feel all people need to do in order to be better consumers of healthcare? Tune in for the answers to these questions and much more!

Links mentioned in this episode:

Tom Dahlborg’s book (From Heart to Head and Back Again) and website: https://www.health-caring.org/


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45860055Tue, 27 Jul 2021 16:23:14 +0000Anna JaworskiWhat can a healthcare advocate learn by becoming a patient facing a life-and-death situation? Why might a patient advocate write a book about his life-changing heart event?  How does someone who has worked in the field of healthcare for 37 years see...
Why might a patient advocate write a book about his life-changing heart event? 

How does someone who has worked in the field of healthcare for 37 years see the field of healthcare changing to better suit the needs of patients?

Thomas Dahlborg is from Brockton, Massachusetts. He began his career in healthcare as a transport aid, IV aid, and housekeeper where he saw firsthand the impact of relationships and connections within a healthcare system on clinicians and staff, and patients, families, and communities. He also has the experience of being a patient, when he developed viral myocarditis and was told he would never work again and would need a transplant.

Now with 37 years of experience in healthcare service and leadership, Tom is passionate about improving the healthcare system and making healthcare better – for employees to work, physicians to practice medicine, patients and families to receive care, and communities to thrive. Last year, he published his healthcare book “From Heart to Head and Back Again … a journey through the healthcare system.”

Today Tom lives with his bride Darlene, and their papillon Gabriel in West Michigan; and together they enjoy visiting their three children -- Samantha, Tommy Jr., and Haylee, in New England as often as possible.

In this episode, Tom shares with Anna how his experience in the medical field and his own health journey spurred him into becoming an author and what his research has led him to believe about healthcare in general. Tom and Anna also turn their attention to the current healthcare crisis thanks to Covid-19. What does Tom feel about bullying given the world’s healthcare crisis right now? What does Tom feel all people need to do in order to be better consumers of healthcare? Tune in for the answers to these questions and much more!

Links mentioned in this episode:

Tom Dahlborg’s book (From Heart to Head and Back Again) and website: https://www.health-caring.org/


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2232abraham_verghese,advocate,author,bullying,caring,dr._john_ioannides,healthcare,health-caring,heart_patient,ipatient,love,malpractice,parents,patients,power_of_love,science-based_evidence,scientific_evidence,shamingfalsefullhttps://www.spreaker.com/episode/learning-about-cctga-and-the-double-switch-procedure--45773487
Erin Beckemeier is mom to Conway, born in 2007 with ccTGA, a large ventricular septal defect or VSD, and sub-pulmonic stenosis. He was later diagnosed with an Ebsteinoid tricuspid valve. At six months of age he had an arterial switch with a Senning (a double switch), VSD closure, and resection of the stenosis. Conway’s recovery from these procedures was rocky, as he suffered a seizure and complete heart block, requiring a dual-chambered pacemaker. By two years of age, he was struggling with atrial flutter, and underwent a mitral annuloplasty and ablation/Maze procedure.

At five years, his RV-PA conduit was replaced and he was upgraded to a bi-ventricular or CRT pacing system. At 11 years old he needed a new atrial lead and generator replacement. The new atrial lead became infected and was removed the following month. At age 14 he received 2 new leads and his 4th pacemaker. Due to a significant growth spurt, his mitral valve, RV-PA homograft and left ventricular function are being closely monitored. Erin lives with her husband Greg and their five children. She is a fourth grade teacher and she is here today to share her story with Anna.

Dr. Edward Bove is a cardiac surgeon at C.S. Mott Children’s Hospital and chair of the Department of Cardiac Surgery at University of Michigan Health System, is an internationally acclaimed, board-certified pediatric cardiac and thoracic surgeon and the chair of the Hearts Unite the Globe Medical Advisory Board! Earlier this year, Dr. Bove was awarded the 2021 Earl Bakken Scientific Achievement Award by The Society of Thoracic Surgeons during the organization’s virtual 57th Annual Meeting.

My long-time Listeners will remember Dr. Edward Bove from Season 9. His show was entitled, “Advancements in Treatments for HLHS Heart Warriors” (https://tinyurl.com/357a7z4x). We are thrilled Dr. Bove is returning to the program to talk to us about a very complicated ccTGA patient of his. He will also be sharing with us a bit about the history of the double-switch procedure and who would most benefit from that invasive surgery, as well as, predictions for the future of ccTGA Heart Warriors in the years to come.


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/



Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45773487Tue, 20 Jul 2021 16:00:16 +0000Anna JaworskiWhat is congenitally corrected transposition of the great arteries or ccTGA? Historically, people born with ccTGA tended to do fairly well. Why is it today doctors are choosing to operate on the hearts of babies born with ccTGA? What does Dr. Edward...
Erin Beckemeier is mom to Conway, born in 2007 with ccTGA, a large ventricular septal defect or VSD, and sub-pulmonic stenosis. He was later diagnosed with an Ebsteinoid tricuspid valve. At six months of age he had an arterial switch with a Senning (a double switch), VSD closure, and resection of the stenosis. Conway’s recovery from these procedures was rocky, as he suffered a seizure and complete heart block, requiring a dual-chambered pacemaker. By two years of age, he was struggling with atrial flutter, and underwent a mitral annuloplasty and ablation/Maze procedure.

At five years, his RV-PA conduit was replaced and he was upgraded to a bi-ventricular or CRT pacing system. At 11 years old he needed a new atrial lead and generator replacement. The new atrial lead became infected and was removed the following month. At age 14 he received 2 new leads and his 4th pacemaker. Due to a significant growth spurt, his mitral valve, RV-PA homograft and left ventricular function are being closely monitored. Erin lives with her husband Greg and their five children. She is a fourth grade teacher and she is here today to share her story with Anna.

Dr. Edward Bove is a cardiac surgeon at C.S. Mott Children’s Hospital and chair of the Department of Cardiac Surgery at University of Michigan Health System, is an internationally acclaimed, board-certified pediatric cardiac and thoracic surgeon and the chair of the Hearts Unite the Globe Medical Advisory Board! Earlier this year, Dr. Bove was awarded the 2021 Earl Bakken Scientific Achievement Award by The Society of Thoracic Surgeons during the organization’s virtual 57th Annual Meeting.

My long-time Listeners will remember Dr. Edward Bove from Season 9. His show was entitled, “Advancements in Treatments for HLHS Heart Warriors” (https://tinyurl.com/357a7z4x). We are thrilled Dr. Bove is returning to the program to talk to us about a very complicated ccTGA patient of his. He will also be sharing with us a bit about the history of the double-switch procedure and who would most benefit from that invasive surgery, as well as, predictions for the future of ccTGA Heart Warriors in the years to come.


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/



Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2296anti-arrhythmic_drugs,arterial_switch_procedure,cardiothoracic_surgeon,cardioversion,cctga,congenital_heart_defect,congenitally_corrected_transpo,double_switch_procedure,dr._edward_bove,erin_beckemeier,feeding_tube,grand_mal_seizure,heart_block,heart_failure,maze_procedure,ng_tube,open-heart_surgery,pacing_system,procedure,senningfalsefullhttps://www.spreaker.com/episode/leslie-s-big-day-fontan-revision-cox-maze-procedure-and-pacemaker-implantation--45681876Leslie Castro is a 48-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. She is almost 2 years post-transplant. 
Prior to transplant, Leslie had a very complicated journey with her heart. In just one day, she underwent a Fontan revision, Cox-Maze procedure, and pacemaker implantation. She also experienced arrhythmias and tried a range of medications to control her symptoms. Ultimately, the Fontan revision was unsuccessful which led to her receiving a transplant from a Hepatitis C positive intravenous drug user.   
Fortunately, today Leslie is doing well and she is here to talk to us about her journey to transplant. 


Links to Leslie’s other “Heart to Heart with Anna” appearances:
Classic Fontan Survivor Post-Cardiac Transplant: https://www.buzzsprout.com/62761/7884964
Hepatitis C and Cardiac Transplantation:  https://www.buzzsprout.com/62761/8500544
An article by Dr. Barbara Deal, Dr. Constantine Mavroudis, and Dr. Carl Backer regarding their experience with Fontan revisions: https://academic.oup.com/ejcts/article/34/5/1034/379177?login=true

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45681876Tue, 13 Jul 2021 16:00:20 +0000Anna JaworskiWhat happens when a Fontan patient needs a tune-up? What kinds of procedures might a Fontan patient need after living with a Fontan heart? What can we learn from an experienced Fontanner who might be facing multiple medical procedures? Leslie Castro...Leslie Castro is a 48-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. She is almost 2 years post-transplant. 
Prior to transplant, Leslie had a very complicated journey with her heart. In just one day, she underwent a Fontan revision, Cox-Maze procedure, and pacemaker implantation. She also experienced arrhythmias and tried a range of medications to control her symptoms. Ultimately, the Fontan revision was unsuccessful which led to her receiving a transplant from a Hepatitis C positive intravenous drug user.   
Fortunately, today Leslie is doing well and she is here to talk to us about her journey to transplant. 


Links to Leslie’s other “Heart to Heart with Anna” appearances:
Classic Fontan Survivor Post-Cardiac Transplant: https://www.buzzsprout.com/62761/7884964
Hepatitis C and Cardiac Transplantation:  https://www.buzzsprout.com/62761/8500544
An article by Dr. Barbara Deal, Dr. Constantine Mavroudis, and Dr. Carl Backer regarding their experience with Fontan revisions: https://academic.oup.com/ejcts/article/34/5/1034/379177?login=true

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2043abnormal_electrical_signals,arrhythmias,cardiac_cath,cardiac_catherization,congenital_heart_defects,cox-maze_procedure,decreased_appetite,dr._barbara_deal,dr._carl_backer,dr._constantine_mavroudis,dr._james_cox,fontan,fontan_procedure,fontan_revision,irregular_heartbeats,reduced_cognitive_function,single-ventricle_heart,super-ventricular_tachycardia,tachycardia,tiasfalsefullhttps://www.spreaker.com/episode/sharing-families-stories-the-value-of-our-medical-histories--45598558

Lisa and Michael Olivares are parents to identical twins Mabel and Maggie, born in 2013. The pregnancy was complicated by Twin-to-Twin transfusion syndrome and Mabel was smaller than Maggie. Two days after they were born, a nurse picked up a heart murmur in Mabel. She was diagnosed with coarctation of the aorta and had surgery at 9 days of age. 


Just after her first birthday Mabel was diagnosed with subaortic membrane, and had her second surgery shortly before 2 years of age, followed by a third emergency surgery at 4 years of age due to heart and lung symptoms. At the age of 4, she developed heart and kidney failure but has thankfully responded well to medical therapy. Mabel also attended physical therapy for musculoskeletal hypermobility but she has graduated from physical therapy! 


Mabel loves playing dress-up and being outside in the fresh air with her twin sister Maggie. She was nominated for Make-A-Wish and the family spent a week at Give Kids the World Village in Florida where Mabel met her favorite princess - Snow White - at Disney World.


Today the Olivares share with Anna what their medical journey with Mabel was like, some advice for other parents going through the same kind of medical journey, and why they feel sharing family medical stories is so important.


Links to organizations mentioned in this episode: 
Songs of Love: The Medicine of Music:  https://www.songsoflove.org/
Make-A-Wish Foundation: https://wish.org/
Give Kids the World Village: https://www.gktw.org/


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45598558Tue, 06 Jul 2021 16:10:42 +0000Anna JaworskiWhat happens when one daughter, in a set of twins, is diagnosed with a congenital heart defect and the other twin is heart-healthy? How can a family handle having one child in the hospital, separated from her twin? What should families tell their...

Lisa and Michael Olivares are parents to identical twins Mabel and Maggie, born in 2013. The pregnancy was complicated by Twin-to-Twin transfusion syndrome and Mabel was smaller than Maggie. Two days after they were born, a nurse picked up a heart murmur in Mabel. She was diagnosed with coarctation of the aorta and had surgery at 9 days of age. 


Just after her first birthday Mabel was diagnosed with subaortic membrane, and had her second surgery shortly before 2 years of age, followed by a third emergency surgery at 4 years of age due to heart and lung symptoms. At the age of 4, she developed heart and kidney failure but has thankfully responded well to medical therapy. Mabel also attended physical therapy for musculoskeletal hypermobility but she has graduated from physical therapy! 


Mabel loves playing dress-up and being outside in the fresh air with her twin sister Maggie. She was nominated for Make-A-Wish and the family spent a week at Give Kids the World Village in Florida where Mabel met her favorite princess - Snow White - at Disney World.


Today the Olivares share with Anna what their medical journey with Mabel was like, some advice for other parents going through the same kind of medical journey, and why they feel sharing family medical stories is so important.


Links to organizations mentioned in this episode: 
Songs of Love: The Medicine of Music:  https://www.songsoflove.org/
Make-A-Wish Foundation: https://wish.org/
Give Kids the World Village: https://www.gktw.org/


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1989coa,coarctation_of_the_aorta,congenital_heart_defects,dialysis,donor_valve,ecmo,edema,emergency_surgery,heart_and_kidney_failure,heart_murmur,miracle,musculoskeletal_hypermobility,nicu,open-heart_surgery,physical_therapy,ross_procedure,roth_procedure,twins,twin-to-twin_profusion_syndromfalsefullhttps://www.spreaker.com/episode/long-q-t-syndrome-genetics-and-pregnancy--45494983
Jackie Renfrow thought her family had a history of epilepsy. After losing her son Jimmy in 2000 and her daughter Crissy in 2002, she was desperate to find a way to save her two baby granddaughters. It wasn't until her own mother started fainting and having irregular heartbeats that she finally got answers. Emergency doctors performed an electrocardiogram (ECG) and promptly diagnosed her with Long Q-T syndrome. Jackie and her granddaughters Alexis and Jessica also had an ECG and they were diagnosed with the syndrome as well. Jackie has since started a chapter of the Sudden Cardiac Arrest Association in Indianapolis. She works with scientists, doctors, parents, and others to promote awareness of sudden cardiac arrest and access to defibrillation and treatment. In honor of her children and grandchildren, she works to spread awareness of Long Q-T syndrome in order to help other families prevent the loss of their loved ones.

In this episode, Jackie talks with Anna about what she has learned in living with Long Q-T Syndrome and seeing it affect generations of her family.


Link mentioned in this episode:

Jackie's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/398945-seizing-the-day-with-jackie-renfrow

Jackie's appearances on "Heart to Heart with Michael"
Losing Loved Ones to a Misdiagnosis: https://www.buzzsprout.com/123208/1101869
Living with Loss after Loss: https://www.buzzsprout.com/123208/1133858

SADS Foundation: www.sads.org

Sudden Cardiac Arrest Association: https://suddencardiacarrest.org/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45494983Tue, 29 Jun 2021 16:00:03 +0000Anna JaworskiHow can a mother, grandmother, and great-grandmother -- determine how to help families like her own? Why would a woman make it her mission to help others with an invisible illness? What can we learn from such a woman? Jackie Renfrow thought her...
Jackie Renfrow thought her family had a history of epilepsy. After losing her son Jimmy in 2000 and her daughter Crissy in 2002, she was desperate to find a way to save her two baby granddaughters. It wasn't until her own mother started fainting and having irregular heartbeats that she finally got answers. Emergency doctors performed an electrocardiogram (ECG) and promptly diagnosed her with Long Q-T syndrome. Jackie and her granddaughters Alexis and Jessica also had an ECG and they were diagnosed with the syndrome as well. Jackie has since started a chapter of the Sudden Cardiac Arrest Association in Indianapolis. She works with scientists, doctors, parents, and others to promote awareness of sudden cardiac arrest and access to defibrillation and treatment. In honor of her children and grandchildren, she works to spread awareness of Long Q-T syndrome in order to help other families prevent the loss of their loved ones.

In this episode, Jackie talks with Anna about what she has learned in living with Long Q-T Syndrome and seeing it affect generations of her family.


Link mentioned in this episode:

Jackie's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/398945-seizing-the-day-with-jackie-renfrow

Jackie's appearances on "Heart to Heart with Michael"
Losing Loved Ones to a Misdiagnosis: https://www.buzzsprout.com/123208/1101869
Living with Loss after Loss: https://www.buzzsprout.com/123208/1133858

SADS Foundation: www.sads.org

Sudden Cardiac Arrest Association: https://suddencardiacarrest.org/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: 2233advocate,anxiety,cpr_training,death_of_a_child,defibrillators,dizzy_spells,epilepsy,fainting,long_q-t_syndrome,lqts,passing_out,pregnancy,rapid_heartbeat,seizures,sudden_arrhythmia_death_syndro,sudden_cardiac_arrest_associat,sudden_death,wolff-parkinson-white_syndromefalsefullhttps://www.spreaker.com/episode/three-generations-heart-warrior-heart-mom-heart-daughter--45398985
Link mentioned in this episode:

Lisa's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/8083369

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45398985Tue, 22 Jun 2021 16:03:27 +0000Anna JaworskiHeart Warrior Lisa Dang Colvil returns to "Heart to Heart with Anna" but this time she is joined by her mother and her daughter. Lisa was born with a complicated congenital heart defect and Anna talks to her mother, Kim, about her experience fleeing...
Link mentioned in this episode:

Lisa's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/8083369

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1532american,buddhist_nun,chd,christian,congenital_heart_defect,dorv,double_outlet_right_ventricle,heart,heart_mom,patent_ductus_arteriosus,pda,poetry,refugee,sub-pulmonic_stenosis,three_generations,vietnam,warrior,writerfalsefullhttps://www.spreaker.com/episode/a-blalock-thomas-taussig-cooley-miracle-boy-wonder-mike-edenburn--45311296
Today Mike will talk with Anna about the legendary doctors who worked with him, the choices he made in life and what kind of quality of life he has had, and what advice he has for others who are currently living with congenital heart defects. In the last segment, Mike shares with Anna what it's meant to him to be part of the Rotary Club's Gift of Life Program and how he has witnessed it change the lives of its recipients.

Links mentioned in the program:

Mike's Rotary club website: http://rotarycebu.org/
Mike's Rotary club Facebook page: https://www.facebook.com/rotarycebu
Gift of Life International website: https://www.giftoflifeinternational.org/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45311296Tue, 15 Jun 2021 16:00:17 +0000Anna JaworskiMike Edenburn was born in 1943 with Tetralogy of Fallot (ToF). Mike was the 44th patient to receive the Blalock Taussig shunt. On October 2, 1945, Dr. Alfred Blalock, Vivian Thomas, and Dr. Denton Cooley performed heart surgery on Mike. After the...
Today Mike will talk with Anna about the legendary doctors who worked with him, the choices he made in life and what kind of quality of life he has had, and what advice he has for others who are currently living with congenital heart defects. In the last segment, Mike shares with Anna what it's meant to him to be part of the Rotary Club's Gift of Life Program and how he has witnessed it change the lives of its recipients.

Links mentioned in the program:

Mike's Rotary club website: http://rotarycebu.org/
Mike's Rotary club Facebook page: https://www.facebook.com/rotarycebu
Gift of Life International website: https://www.giftoflifeinternational.org/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1845adhd,advocate,attention_deficit_hyperactivit,blue_baby_syndrome,chd,congenital_heart_defect,congenital_heart_defects,dr._alfred_blalock,dr._denton_cooley,dr._helen_taussig,dr._horace_stansel,entrepreneur,gift_of_life_international,mentor,open-heart_surgery,philanthropist,rotary_club,tetralogy_of_fallot,tof,vivien_thomasfalsefullhttps://www.spreaker.com/episode/a-surprise-for-heart-warrior-amy-m-le--45216670

Today’s show is A Surprise for Heart Warrior Amy M. Le! and our Guests are many! You will come to meet them over the course of our program.

Some of you will remember Amy M. Le from just a couple of shows ago -- it was broadcast on April 13, 2021. 

For those of you who missed Amy M. Le's earlier show, Amy was born in Vietnam and immigrated with her family to the United States in 1980 due to the fall of Saigon. She had surgery for a congenital heart defect at the age of 5. Today, Amy lives in Oklahoma with her husband and son and is a full-time author.

Links Mentioned During this Episode:


Payton's Nonprofit Organization: http://www.ourheartsjoined.org/



Amy M. Le's previous "Heart to Heart with Anna" episode: https://tinyurl.com/5yhnm4zs

Amy's website: https://www.amy-m-le.com

Amy's author page on Facebook: https://www.facebook.com/authoramymle/



The article about Susan Hall I mentioned:  
https://southsoundmag.com/south-sound-women-to-watch-2018/

Susan's TED talk: https://www.youtube.com/watch?v=2AWlehANPPo



Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817



Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:



Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2


MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw


Website: https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45216670Tue, 08 Jun 2021 16:16:51 +0000Anna JaworskiIs it possible to meet one’s surgeon over 4 decades after open-heart surgery when you don’t even know if your surgeon was a man or a woman and you only know the last name? Who can help you when the hospital tells you that they don’t have your records...

Today’s show is A Surprise for Heart Warrior Amy M. Le! and our Guests are many! You will come to meet them over the course of our program.

Some of you will remember Amy M. Le from just a couple of shows ago -- it was broadcast on April 13, 2021. 

For those of you who missed Amy M. Le's earlier show, Amy was born in Vietnam and immigrated with her family to the United States in 1980 due to the fall of Saigon. She had surgery for a congenital heart defect at the age of 5. Today, Amy lives in Oklahoma with her husband and son and is a full-time author.

Links Mentioned During this Episode:


Payton's Nonprofit Organization: http://www.ourheartsjoined.org/



Amy M. Le's previous "Heart to Heart with Anna" episode: https://tinyurl.com/5yhnm4zs

Amy's website: https://www.amy-m-le.com

Amy's author page on Facebook: https://www.facebook.com/authoramymle/



The article about Susan Hall I mentioned:  
https://southsoundmag.com/south-sound-women-to-watch-2018/

Susan's TED talk: https://www.youtube.com/watch?v=2AWlehANPPo



Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817



Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:



Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2


MeWe: https://mewe.com/i/annajaworski

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

Instagram: https://www.instagram.com/hearttoheartwithanna/

Twitter: https://twitter.com/AnnaJaworski

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw


Website: https://www.hug-podcastnetwork.com/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1996amy_m._le,art_cart,artist,artwork,cardiothoracic_illustrator,cardiothoracic_surgeon,child_life_specialist,congenital_heart_defects,dr._dale_hall,medical_illustrator,miracle,open-heart_surgery,payton_allen,surgeon,susan_hallfalsefullhttps://www.spreaker.com/episode/fontan-heart-warrior-nurse-practitioner-and-liver-specialist--45123480

Mary is a 29-year-old female with hypoplastic right heart syndrome, atrial septal defect, transposition of the great vessels, and coarctation of the aorta. At 9 days old, she had the Norwood, then at 3-6 months old, the Glenn, and Fontan around 2 years old. After the Fontan, she saw her pediatric cardiologist semiannually for routine checkups but overall felt like a “normal” child. At 15, she started having increased fatigue, which led to a pacemaker/defibrillator implantation. She was so inspired by the healthcare providers caring for her that she earned a nursing (BSN) and Nurse Practitioner degree (Doctor of Nursing Practice - DNP). She began working as a nurse practitioner in Gastroenterology and eventually hepatology. She is passionate about working with congenital heart disease patients with chronic liver disease. She has also become an advocate for CHD and started a website called notaperfectheart with her mom.

Link Mentioned in this Episode:

Mary's website: http://notaperfectheart.com/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45123480Tue, 01 Jun 2021 16:00:18 +0000Anna JaworskiWhy would a Heart Warrior choose to become a Nurse Practitioner? What does the liver and liver health mean to a Fontan Heart Warrior? What does the future hold for people with single ventricle hearts and compromised livers? Mary is a 29-year-old...

Mary is a 29-year-old female with hypoplastic right heart syndrome, atrial septal defect, transposition of the great vessels, and coarctation of the aorta. At 9 days old, she had the Norwood, then at 3-6 months old, the Glenn, and Fontan around 2 years old. After the Fontan, she saw her pediatric cardiologist semiannually for routine checkups but overall felt like a “normal” child. At 15, she started having increased fatigue, which led to a pacemaker/defibrillator implantation. She was so inspired by the healthcare providers caring for her that she earned a nursing (BSN) and Nurse Practitioner degree (Doctor of Nursing Practice - DNP). She began working as a nurse practitioner in Gastroenterology and eventually hepatology. She is passionate about working with congenital heart disease patients with chronic liver disease. She has also become an advocate for CHD and started a website called notaperfectheart with her mom.

Link Mentioned in this Episode:

Mary's website: http://notaperfectheart.com/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1910asd,atrial_septal_defect,bi-directional_glenn,bloodwork,cirrhosis,coa,coarctation_of_the_aorta,congenital_heart_defects,congested_liver,fatigue,fontan_heart,fontan_procedure,hrhs,hypoplastic_right_heart_syndro,liver_specialist,norwood_procedure,pacemaker,tga,transposition_of_the_great_art,ultrasoundfalsefullhttps://www.spreaker.com/episode/margaret-ellis-raymond-author-and-youtuber--45028352
Margaret Ellis Raymond is an author, editor, and YouTuber from Portland, Maine. She was born with tricuspid atresia and other heart defects for which she underwent three surgeries before the age of 3. Margaret's love of stories started early when her mother placed her in front of a tape recorder to tell stories. It was her way of occupying the talkative child while she got ready for her day. Her love of stories helped her to overcome reading difficulties, and by fifth grade, she began to tackle chapter books. As an adult, Margaret has written a series of three books for young children and started a YouTube channel about tricuspid atresia to educate herself and others. Her hobbies include fencing, photography, and laughing too much. One day she hopes to write a book where the protagonist has a CHD. She also hopes to self-publish an anthology of essays written by CHD patients, their friends, and family, as well as those in the CHD medical field.

Links Mentioned in this Episode:

Margaret's website: https://margaretellisraymo.wixsite.com/mellisr
Margaret's Facebook Page: https://www.facebook.com/profile.php?id=100006756858119
Margaret's 1st book on Amazon: https://www.amazon.com/Buttercup-Adventures-One-Glass-Frog/dp/0996584412

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/45028352Tue, 25 May 2021 16:00:15 +0000Anna JaworskiWhat can encourage a Heart Warrior to start learning more about her heart condition? What kind of books has Margaret Ellis Raymond written and what’s the hold-up with the 4th and 5th books? Why would a Heart Warrior start a YouTube channel and what...
Margaret Ellis Raymond is an author, editor, and YouTuber from Portland, Maine. She was born with tricuspid atresia and other heart defects for which she underwent three surgeries before the age of 3. Margaret's love of stories started early when her mother placed her in front of a tape recorder to tell stories. It was her way of occupying the talkative child while she got ready for her day. Her love of stories helped her to overcome reading difficulties, and by fifth grade, she began to tackle chapter books. As an adult, Margaret has written a series of three books for young children and started a YouTube channel about tricuspid atresia to educate herself and others. Her hobbies include fencing, photography, and laughing too much. One day she hopes to write a book where the protagonist has a CHD. She also hopes to self-publish an anthology of essays written by CHD patients, their friends, and family, as well as those in the CHD medical field.

Links Mentioned in this Episode:

Margaret's website: https://margaretellisraymo.wixsite.com/mellisr
Margaret's Facebook Page: https://www.facebook.com/profile.php?id=100006756858119
Margaret's 1st book on Amazon: https://www.amazon.com/Buttercup-Adventures-One-Glass-Frog/dp/0996584412

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1839advocate,author,congenital_heart_defect,congenital_heart_disease,heart_warrior,in-utero_diagnosis,open-heart_surgery,teacher,tricuspid_atresia,writer,youtuberfalsefullhttps://www.spreaker.com/episode/hepatitis-c-and-cardiac-transplantation--44755677
Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intravenous drug user, and Leslie had to take a case study drug to avoid contracting the virus. Leslie had a very bumpy road to recovery with multiple complications involving her brain, heart, and lungs, and required procedures after the transplant to alleviate a brain bleed and drain fluid from her lungs.

This is Leslie’s second appearance on the show. My loyal Listeners may remember Leslie’s other program, “Classic Fontan Survivor Post-Cardiac Transplant!” (https://www.buzzsprout.com/62761/7884964)

In this episode, Leslie teaches us about how some heart transplant recipients are now receiving hearts from donors who tested positive for Hepatitis C and what that means for donors and recipients.

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/44755677Tue, 11 May 2021 16:28:52 +0000Anna JaworskiLeslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. Just over a year ago,...
Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intravenous drug user, and Leslie had to take a case study drug to avoid contracting the virus. Leslie had a very bumpy road to recovery with multiple complications involving her brain, heart, and lungs, and required procedures after the transplant to alleviate a brain bleed and drain fluid from her lungs.

This is Leslie’s second appearance on the show. My loyal Listeners may remember Leslie’s other program, “Classic Fontan Survivor Post-Cardiac Transplant!” (https://www.buzzsprout.com/62761/7884964)

In this episode, Leslie teaches us about how some heart transplant recipients are now receiving hearts from donors who tested positive for Hepatitis C and what that means for donors and recipients.

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1841arrhythmias,bt_shunt,cardiac_ablation,cardiac_transplant,congenital_heart_defect,cox-maze_procedure,epclusa,fald,fontan,fontan-associated_liver_diseas,heart_transplant,hep_c_donor_heart,hep-c_transplant,liver_fibrosis,liver_transplant,pleural_effusions,single_venticle,stroke,tia,transient_ischemic_accidentfalsefullhttps://www.spreaker.com/episode/meeting-eric-ankerud-of-heartfelt-dreams-foundation--44625823
Eric Ankerud’s wife, Lori, was born in 1958 with a serious heart defect called 'tetralogy of Fallot.' Lori was known as a “blue baby,” and she had a ventricular septal defect or “hole in her heart. Her first open-heart surgery was a Blalock-Taussig shunt at the age of 2. At 3, her ventricular septal defect was closed and her pulmonary artery was repaired, which allowed her to have more normal blood flow to the lungs.

While Lori’s early childhood was fraught with heart procedures and doctor’s visits, it was also filled with the love of family and opportunities for her artistic abilities to blossom.

Lori and Eric married in 1985. They have two adult children. Although Lori has needed follow-up care including major heart reconstructive surgery, she has led a great quality of life. She and her husband felt inspired to start a nonprofit organization to help others in the CHD community.

In this episode of "Heart to Heart with Anna," Eric shares with Anna how his wife's congenital heart defect (CHD) journey has helped them to understand the needs of the CHD community and what their nonprofit is doing to help fill the needs they have witnessed over the course of their lives together.

To learn more about Eric and Lori's nonprofit organization, use this link: https://www.heartfeltdreamsfoundation.org/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/44625823Tue, 04 May 2021 16:00:19 +0000Anna JaworskiWho is Eric Ankerud? Why would someone want to start a nonprofit organization to help the congenital heart defect community? What services does Heartfelt Dreams Foundation provide? Eric Ankerud’s wife, Lori, was born in 1958 with a serious heart...
Eric Ankerud’s wife, Lori, was born in 1958 with a serious heart defect called 'tetralogy of Fallot.' Lori was known as a “blue baby,” and she had a ventricular septal defect or “hole in her heart. Her first open-heart surgery was a Blalock-Taussig shunt at the age of 2. At 3, her ventricular septal defect was closed and her pulmonary artery was repaired, which allowed her to have more normal blood flow to the lungs.

While Lori’s early childhood was fraught with heart procedures and doctor’s visits, it was also filled with the love of family and opportunities for her artistic abilities to blossom.

Lori and Eric married in 1985. They have two adult children. Although Lori has needed follow-up care including major heart reconstructive surgery, she has led a great quality of life. She and her husband felt inspired to start a nonprofit organization to help others in the CHD community.

In this episode of "Heart to Heart with Anna," Eric shares with Anna how his wife's congenital heart defect (CHD) journey has helped them to understand the needs of the CHD community and what their nonprofit is doing to help fill the needs they have witnessed over the course of their lives together.

To learn more about Eric and Lori's nonprofit organization, use this link: https://www.heartfeltdreamsfoundation.org/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1678blalock-taussig_shunt,congenital_heart_defects,eric_ankerud,financial_aid,heartfelt_dreams_foundation,heart_warrior,hole_in_the_heart,nonprofit_organization,philanthropy,pulmonary_artery_repair,scholarship,tetralogy_of_fallot,tof,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/vietnamese-refugee-author-heart-warrior--44312096
Amy M. Le shares an amazing story with Anna about her mother's life-changing decision to flee war-torn Vietnam to save her daughter's life by going to the United States where her daughter could have surgery. In Vietnam, there was no hospital to take care of Amy's congenital heart defect, but in the United States, she could receive open-heart surgery and a chance for a future. Amy shares the story of what lengths her mother and cousin went to in order for them to escape and start a brand new life thanks to the kindness of strangers.

Amy also shares information about the book she has written based on her mother's story. If you'd like to order a copy of the book, you can do so here: https://www.barnesandnoble.com/w/snow-in-vietnam-amy-m-le/1131712030?ean=9781948577977 or at our new Heart Community Collection cooperative bookstore: https://heartcollection.wixsite.com/bookstore/about-1-1

Amy's website: https://www.amy-m-le.com

Amy's author page on Facebook: https://www.facebook.com/authoramymle/

The podcast where I discovered Amy: https://www.vietnameseboatpeople.org/podcast/episode/b9fe7048/22-snow-in-vietnam


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/44312096Tue, 13 Apr 2021 16:00:09 +0000Anna JaworskiWhat is it like to be born in Vietnam in the 1970s with a heart defect? What efforts would a mother make to ensure her daughter has a chance for life? How does understanding one’s family history impact one’s future? Amy M. Le shares an amazing story...
Amy M. Le shares an amazing story with Anna about her mother's life-changing decision to flee war-torn Vietnam to save her daughter's life by going to the United States where her daughter could have surgery. In Vietnam, there was no hospital to take care of Amy's congenital heart defect, but in the United States, she could receive open-heart surgery and a chance for a future. Amy shares the story of what lengths her mother and cousin went to in order for them to escape and start a brand new life thanks to the kindness of strangers.

Amy also shares information about the book she has written based on her mother's story. If you'd like to order a copy of the book, you can do so here: https://www.barnesandnoble.com/w/snow-in-vietnam-amy-m-le/1131712030?ean=9781948577977 or at our new Heart Community Collection cooperative bookstore: https://heartcollection.wixsite.com/bookstore/about-1-1

Amy's website: https://www.amy-m-le.com

Amy's author page on Facebook: https://www.facebook.com/authoramymle/

The podcast where I discovered Amy: https://www.vietnameseboatpeople.org/podcast/episode/b9fe7048/22-snow-in-vietnam


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>17791970s,amy_m._le,asd,blue_baby,buddhiist,catholic,congenital_heart_defect,cultural_exchange,hole_in_the_heart,mother-daughter_relationship,open-heart_surgery,presbyterian_church,scar,snow_in_seattle,snow_in_vietnam,snow's_kitchen,sponsor,vietnam,vietnam_refugee,vietnam_warfalsefullhttps://www.spreaker.com/episode/celebrating-300-episodes-of-heart-to-heart-with-anna--44116049
How did the longest-running podcast devoted to the congenital heart defect community come to be? Who was instrumental in helping Anna get started? How did Anna choose her Guests? Who were Anna's favorite Guests? Who made trouble for Anna? What advice does Anna have for others in the CHD community who want to start a podcast? Tune in for answers to these questions and so much more!

Link mentioned in this podcast:

VoiceAmerica: https://www.voiceamerica.com/
BlogTalkRadio: https://www.blogtalkradio.com/
Hearts Unite the Globe: https://www.heartsunitetheglobe.org
Children's Heart Foundation: https://www.childrensheartfoundation.org/
The Heart Community Collective Bookstore website: https://heartcollection.wixsite.com/bookstore
The SlugTribe (Alex's writer's group): http://www.slugtribe.org/
Audacity (the editing software Anna uses): https://www.audacityteam.org/download/
Half Heart Whole Life: An HLHS Dad's blog (Chris Perez): https://hlhsdad.com/
WEGO Health Awards: https://www.wegohealth.com/awards
Mended Little Hearts: https://mendedhearts.org/topic/mended-little-hearts-updates/
Unbeatable (Margaret Ellis Raymond's show): https://www.youtube.com/channel/UCgBq478iAeZMvm0KQtkI9GA
Moms of Heart Podcast (Nicole Groenewald's podcast): https://podcasts.apple.com/us/podcast/moms-of-heart-podcast/id1473078810
Not a Perfect Heart (Mary Rouzer's podcast): https://podcasts.apple.com/us/podcast/not-a-perfect-heart-podcast-discussions-for-the-heart/id1556174815
Heart to Heart with Nicole and David: https://www.hug-podcastnetwork.com/h2h-with-david-and-nicole.html
Guerreros Del Corazon: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Bereaved But Still Me (formerly Heart to Heart with Michael): https://www.hug-podcastnetwork.com/bereaved-but-still-me.html
Fundacion Estrellita de Belen: https://FundacionEstrellitadeBelen.org

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/44116049Tue, 30 Mar 2021 16:00:04 +0000Anna JaworskiIt's official! We are celebrating 300 episodes of "Heart to Heart with Anna"! To help us with this celebration, Alexander Jaworski, Anna's son who was born with a critical congenital heart defect, is the Guest Host and Anna is in the hot seat...
How did the longest-running podcast devoted to the congenital heart defect community come to be? Who was instrumental in helping Anna get started? How did Anna choose her Guests? Who were Anna's favorite Guests? Who made trouble for Anna? What advice does Anna have for others in the CHD community who want to start a podcast? Tune in for answers to these questions and so much more!

Link mentioned in this podcast:

VoiceAmerica: https://www.voiceamerica.com/
BlogTalkRadio: https://www.blogtalkradio.com/
Hearts Unite the Globe: https://www.heartsunitetheglobe.org
Children's Heart Foundation: https://www.childrensheartfoundation.org/
The Heart Community Collective Bookstore website: https://heartcollection.wixsite.com/bookstore
The SlugTribe (Alex's writer's group): http://www.slugtribe.org/
Audacity (the editing software Anna uses): https://www.audacityteam.org/download/
Half Heart Whole Life: An HLHS Dad's blog (Chris Perez): https://hlhsdad.com/
WEGO Health Awards: https://www.wegohealth.com/awards
Mended Little Hearts: https://mendedhearts.org/topic/mended-little-hearts-updates/
Unbeatable (Margaret Ellis Raymond's show): https://www.youtube.com/channel/UCgBq478iAeZMvm0KQtkI9GA
Moms of Heart Podcast (Nicole Groenewald's podcast): https://podcasts.apple.com/us/podcast/moms-of-heart-podcast/id1473078810
Not a Perfect Heart (Mary Rouzer's podcast): https://podcasts.apple.com/us/podcast/not-a-perfect-heart-podcast-discussions-for-the-heart/id1556174815
Heart to Heart with Nicole and David: https://www.hug-podcastnetwork.com/h2h-with-david-and-nicole.html
Guerreros Del Corazon: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.html
Bereaved But Still Me (formerly Heart to Heart with Michael): https://www.hug-podcastnetwork.com/bereaved-but-still-me.html
Fundacion Estrellita de Belen: https://FundacionEstrellitadeBelen.org

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple...]]>3166advocacy,authors,books,celebration,congenital_heart_defects,grandparents,heart_warriors,interviews,memories,parents,podcastfalsefullhttps://www.spreaker.com/episode/jenny-muscatell-heart-mom-and-author--44016841
Why might a Heart Mom write a book about her life experiences dealing with CHD?

How does a Heart Mom take her personal experiences to fight for others in the hospital?

Jenny Muscatell is a licensed social worker, blogger, author, photographer, and podcaster. She earned her Bachelor’s in Mental Health and Human Services through the University of Maine.

She has over two decades of experience in the social services field, specializing in crisis intervention, health systems, and end-of-life care. Deeply passionate about her work, Jenny is regarded as a fierce advocate, earning her the Child Welfare Rising to the Challenge Award.

Jenny lives with her husband Dan, and two daughters. Her first daughter Faith was born with Hypoplastic Left Heart Syndrome. Jenny shared her life experiences, authoring the Amazon Best Selling book, “The Journey of Faith and an Open Heart” and as a public speaker on multiple platforms.

Through faith-filled presentations, heartfelt written words, and photography, Jenny’s mission is to give voice to the vulnerable, hope to the hurting, and to make way for the unspoken to be told.

Link mentioned in this podcast:

Jenny's website: https://www.jennymuscatell.com/about-me

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/44016841Tue, 23 Mar 2021 16:00:08 +0000Anna JaworskiWhat lessons can we learn from our adult Heart Warriors? Why might a Heart Mom write a book about her life experiences dealing with CHD? How does a Heart Mom take her personal experiences to fight for others in the hospital? Jenny Muscatell is a...
Why might a Heart Mom write a book about her life experiences dealing with CHD?

How does a Heart Mom take her personal experiences to fight for others in the hospital?

Jenny Muscatell is a licensed social worker, blogger, author, photographer, and podcaster. She earned her Bachelor’s in Mental Health and Human Services through the University of Maine.

She has over two decades of experience in the social services field, specializing in crisis intervention, health systems, and end-of-life care. Deeply passionate about her work, Jenny is regarded as a fierce advocate, earning her the Child Welfare Rising to the Challenge Award.

Jenny lives with her husband Dan, and two daughters. Her first daughter Faith was born with Hypoplastic Left Heart Syndrome. Jenny shared her life experiences, authoring the Amazon Best Selling book, “The Journey of Faith and an Open Heart” and as a public speaker on multiple platforms.

Through faith-filled presentations, heartfelt written words, and photography, Jenny’s mission is to give voice to the vulnerable, hope to the hurting, and to make way for the unspoken to be told.

Link mentioned in this podcast:

Jenny's website: https://www.jennymuscatell.com/about-me

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1996author,bi-directional_glenn,bi-ventricular_repair,chest_x-ray,congenital_heart_defect,congestive_heart_failure,cyanosis,damus-kaye-stansel_procedure,enlarged_heart,faith,hlhs,invisible_illness,jenny_muscatell,lung_complications,norwood_procedure,social_worker,story-telling,valve_replacement,valvuloplasty,vulnerabilityfalsefullhttps://www.spreaker.com/episode/getting-to-know-healing-little-hearts-with-sanjiv-nichani--43916568
Dr. Sanjiv Nichani is a Consultant Pediatrician and the current Director of the Children’s Intensive Care Unit for University Hospitals of Leicester, UK. For over 30 years, Dr. Nichani has specialized in looking after critically ill babies, children, and teenagers following open-heart surgery. In 2009 he founded the charity Healing Little Hearts. Their goal is to ensure that every child has access to the heart surgery they need and deserve. They send volunteer teams to treat the poorest of children who come from families that do not have the resources to pay for their healthcare.

The charity also builds the capacity of surgeons in these countries to help ensure ongoing care. Since 2009, Healing Little Hearts has undertaken 151 international missions to 12 countries and operated on over 2000 children. Dr. Nichani is joining us today to talk about the huge unmet need of CHD and capacity building in the developing world.

Links mentioned in this podcast:

Healing Little Hearts website: https://healinglittlehearts.org/

Healing Little Hearts Facebook Page: https://www.facebook.com/HLHcharity/

Novick Cardiac Alliance: https://cardiac-alliance.org/

Global ARCH: https://global-arch.org/


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43916568Tue, 16 Mar 2021 16:00:03 +0000Anna JaworskiWhy would the Queen of England bestow an Order of the British Empire honor upon a doctor for his services to medicine and charity - especially when the charity does not serve the children of Great Britain? How many children around the globe have been...
Dr. Sanjiv Nichani is a Consultant Pediatrician and the current Director of the Children’s Intensive Care Unit for University Hospitals of Leicester, UK. For over 30 years, Dr. Nichani has specialized in looking after critically ill babies, children, and teenagers following open-heart surgery. In 2009 he founded the charity Healing Little Hearts. Their goal is to ensure that every child has access to the heart surgery they need and deserve. They send volunteer teams to treat the poorest of children who come from families that do not have the resources to pay for their healthcare.

The charity also builds the capacity of surgeons in these countries to help ensure ongoing care. Since 2009, Healing Little Hearts has undertaken 151 international missions to 12 countries and operated on over 2000 children. Dr. Nichani is joining us today to talk about the huge unmet need of CHD and capacity building in the developing world.

Links mentioned in this podcast:

Healing Little Hearts website: https://healinglittlehearts.org/

Healing Little Hearts Facebook Page: https://www.facebook.com/HLHcharity/

Novick Cardiac Alliance: https://cardiac-alliance.org/

Global ARCH: https://global-arch.org/


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1724advocate,charity,congenital_heart_defects,deaths,dr._sanjiv_nichani,healing_little_hearts,india,ngo,obe,order_of_the_british_empire,south_africa,training_medical_teamsfalsefullhttps://www.spreaker.com/episode/lisa-colvil-heart-warrior-author-and-poet--43755761
Today’s show is Lisa Colvil: Heart Warrior Author and Poet and our Guest is Lisa Dang Colvil. We’ll start today’s program by learning a bit about Lisa, then we’ll actually hear Lisa reading her poetry and at the end of the program, we’ll talk to Lisa about the book she had published in 2019.

Lisa Dang Colvil was born in Pennsylvania in 1979. A CHD warrior, she was born with double outlet right ventricle (DORV), severe subpulmonic stenosis, and patent ductus arteriosus (PDA). She had her first surgery at 3 months of age in her home state, and second surgery at 6 years of age at Children's Hospital of Philadelphia, which was complicated by bilateral chylothorax. As a child, she felt different from others and did not fully understand her congenital heart defect and what it meant for her life.

Lisa spent much of her childhood writing poems and short stories and has honed her passion over many years. Now in her 40s, Lisa has recently published her first book, a 50-day devotional called Through the Beauty of Grace I Will. Lisa is also a devoted Christian wife and mother of two children aged 8 and 10.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43755761Tue, 09 Mar 2021 17:00:21 +0000Anna JaworskiHow might a Heart Warrior use her adversity to become a poet? What might bring a woman to accept Jesus Christ into her life and thus change her future forever? What can we learn from this gentle spirit who has come close to death herself and lived to...
Today’s show is Lisa Colvil: Heart Warrior Author and Poet and our Guest is Lisa Dang Colvil. We’ll start today’s program by learning a bit about Lisa, then we’ll actually hear Lisa reading her poetry and at the end of the program, we’ll talk to Lisa about the book she had published in 2019.

Lisa Dang Colvil was born in Pennsylvania in 1979. A CHD warrior, she was born with double outlet right ventricle (DORV), severe subpulmonic stenosis, and patent ductus arteriosus (PDA). She had her first surgery at 3 months of age in her home state, and second surgery at 6 years of age at Children's Hospital of Philadelphia, which was complicated by bilateral chylothorax. As a child, she felt different from others and did not fully understand her congenital heart defect and what it meant for her life.

Lisa spent much of her childhood writing poems and short stories and has honed her passion over many years. Now in her 40s, Lisa has recently published her first book, a 50-day devotional called Through the Beauty of Grace I Will. Lisa is also a devoted Christian wife and mother of two children aged 8 and 10.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1539author,children's_hospiital_of_philad,chop,christian,chylothorax,congenital_heart_defect,devotional,double_outlet_right_ventricle,jesus_christ,open-heart_surgery,poet,poetry,refugee,single_ventricle_heart,vietnamfalsefullhttps://www.spreaker.com/episode/sameer-s-legacy-the-genesis-foundation-helping-children-with-heart-defects-in-india--43680993
Today's Guest, Jyoti Sagar, answers those questions and so much more!

Jyoti Sagar and his wife Prema lost their son Sameer, who was born on December 20, 1983, to a congenital heart defect over 30 years ago. Devastated by the loss of their son, after some time they began working at Missionaries of Charity. It gave them a whole new meaning to life, and this is how their journey started as they felt they could reach out and assist in the best way possible - enriching the lives of others and their own.

Since then, they have dedicated their lives and professions to saving the lives of critically ill children in India through their non-government organization (NGO) – Genesis Foundation. The main aim of the Foundation is to offer support to children with CHD from families where the monthly income does not exceed $198. They strongly believe that every life should be given a chance and that no child should die due to poverty.

Links mentioned in this podcast:

Genesis Foundation: https://www.genesis-foundation.net/
Kasauli Rhythm and Blues Festival (Genesis Foundation): https://www.genesis-foundation.net/KasauliEvents.aspx

Missionaries of Charity:
https://www.motherteresa.org/missionaries-of-charity.html

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43680993Tue, 02 Mar 2021 17:00:02 +0000Anna JaworskiHow can a couple survive the loss of their precious son? What can be done when an entire country seems to be neglecting the needs of its most vulnerable residents? How can people make a difference in their community? Today's Guest, Jyoti Sagar,...
Today's Guest, Jyoti Sagar, answers those questions and so much more!

Jyoti Sagar and his wife Prema lost their son Sameer, who was born on December 20, 1983, to a congenital heart defect over 30 years ago. Devastated by the loss of their son, after some time they began working at Missionaries of Charity. It gave them a whole new meaning to life, and this is how their journey started as they felt they could reach out and assist in the best way possible - enriching the lives of others and their own.

Since then, they have dedicated their lives and professions to saving the lives of critically ill children in India through their non-government organization (NGO) – Genesis Foundation. The main aim of the Foundation is to offer support to children with CHD from families where the monthly income does not exceed $198. They strongly believe that every life should be given a chance and that no child should die due to poverty.

Links mentioned in this podcast:

Genesis Foundation: https://www.genesis-foundation.net/
Kasauli Rhythm and Blues Festival (Genesis Foundation): https://www.genesis-foundation.net/KasauliEvents.aspx

Missionaries of Charity:
https://www.motherteresa.org/missionaries-of-charity.html

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1960apgar_scores,blue_baby,cardiorespiratory_arrest,ceo_chef_lunch,congenital_heart_defects,c-section,death_of_a_child,dehli,difficult_pregnancy,dying,genesis_foundation,grief,india,kasauli_r&b_,loss,medical_insurance,missionaries_of_charity,post-traumatic_growth,prolapsed_uterus,share-a-smile_eventsfalsefullhttps://www.spreaker.com/episode/dhillon-s-gift-a-chd-legacy--43599789
Links mentioned in the program:

UNC's webpage about Dhillon's Gift: https://nursing.unc.edu/giving/dhillons-gift/
Dhillon's Heart Journey: https://www.facebook.com/dhillonsheartjourney
CHOP Pediatric Cardiology Center: https://tinyurl.com/oy22sjr7
CHOP Single Ventricle Program: https://tinyurl.com/rymfn7yl
Victory Junction Summer Camp: https://tinyurl.com/1gr5gr5v
The Gift of Life House: https://www.giftoflifefamilyhouse.org/

To contact Beverly, use Bev_Foster@unc.edu


Another "Heart to Heart with Anna" episode dealing with transplantation and protein-losing enteropathy: https://youtu.be/lQeWrbT3UdE


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43599789Tue, 23 Feb 2021 17:00:14 +0000Anna JaworskiIn this touching episode of "Heart to Heart with Anna," grandmother Beverly Foster shares with Anna her heart journey with her grandson, Heart Warrior Dhillon. From diagnosis through today, Dhillon's spirit remains steadfast and everyone knows exactly...
Links mentioned in the program:

UNC's webpage about Dhillon's Gift: https://nursing.unc.edu/giving/dhillons-gift/
Dhillon's Heart Journey: https://www.facebook.com/dhillonsheartjourney
CHOP Pediatric Cardiology Center: https://tinyurl.com/oy22sjr7
CHOP Single Ventricle Program: https://tinyurl.com/rymfn7yl
Victory Junction Summer Camp: https://tinyurl.com/1gr5gr5v
The Gift of Life House: https://www.giftoflifefamilyhouse.org/

To contact Beverly, use Bev_Foster@unc.edu


Another "Heart to Heart with Anna" episode dealing with transplantation and protein-losing enteropathy: https://youtu.be/lQeWrbT3UdE


Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1995atrial_flutter,cardiac_transplant,children's_hospital_of_philade,chop,complications,congenital_heart_defects,dhillon_jordan_shah_innovation,dhillon's_legacy,fontan,grandmother's_story,heart_transplant,hlhs,hypoplastic_left_heart_syndrom,legacy,open-heart_surgery,ple,protein-losing_enteropathy,pulmonary_hypertension,transplant,unc_chapel_hillfalsefullhttps://www.spreaker.com/episode/classic-fontan-survivor-post-cardiac-transplant--43479472
Leslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985.

Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intravenous drug user, and Leslie had to take a case study drug to avoid contracting the virus. Leslie had a very bumpy road to recovery with multiple complications involving her brain, heart, and lungs, and required procedures after the transplant to alleviate a brain bleed and drain fluid from her lungs.

Fortunately, today Leslie is doing well and she is here to talk to us about her early life growing up with a heart defect, and how she feels as a survivor today.

Links That May Interest You:

The obituary of Leslie's beloved surgeon: https://www.post-gazette.com/news/obituaries/2020/01/23/Obituary-Ralph-Siewers-Longtime-pediatric-heart-surgeon-at-Children-s/stories/202001230175

The hospital where Leslie had her surgeries: https://www.chp.edu/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page:
https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43479472Tue, 16 Feb 2021 17:00:09 +0000Anna JaworskiHow can a child with a complex congenital heart defect survive multiple surgeries resulting in a funky anatomy and then have a successful heart transplant experience? What was it like to be a child with a congenital heart defect in the 1970s when...
Leslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985.

Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intravenous drug user, and Leslie had to take a case study drug to avoid contracting the virus. Leslie had a very bumpy road to recovery with multiple complications involving her brain, heart, and lungs, and required procedures after the transplant to alleviate a brain bleed and drain fluid from her lungs.

Fortunately, today Leslie is doing well and she is here to talk to us about her early life growing up with a heart defect, and how she feels as a survivor today.

Links That May Interest You:

The obituary of Leslie's beloved surgeon: https://www.post-gazette.com/news/obituaries/2020/01/23/Obituary-Ralph-Siewers-Longtime-pediatric-heart-surgeon-at-Children-s/stories/202001230175

The hospital where Leslie had her surgeries: https://www.chp.edu/

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
MeWe: https://mewe.com/i/annajaworski
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page:
https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1786504_plans,arrhythmia,brain_bleed,cardiac_transplant,classic_fontan,congenital_heart_defect,digoxin_toxicity,dr._ralph_siewers,fontan_procedure,heart_transplant,heart_warrior,ieps,open-heart_surgery,pulmonary_stenosis,scars,single_ventricle,survivor's_guilt,transplant,tricuspid_atresia,university_of_pittsburgh_childfalsefullhttps://www.spreaker.com/episode/heart-family-living-with-plastic-bronchitis--43372890
Molly Fee is a mom of two boys and lives SE of Pittsburg. Her 9-year-old younger son, Marshall, was born with hypoplastic left heart syndrome or HLHS. Marshall had his Fontan Procedure at age 4, and also has a repaired tricuspid valve. About 18 months ago, Marshall was diagnosed with a rare complication associated with complex congenital heart defects, called “plastic bronchitis.” In today’s program, we’re going to learn what plastic bronchitis is, how one American family has dealt with this condition, and what advice they have for others living with plastic bronchitis.

Link mentioned in this podcast:

CHOP Lymphatic System page: https://www.chop.edu/centers-programs/jill-and-mark-fishman-center-lymphatic-disorders

Anna Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43372890Tue, 09 Feb 2021 21:36:01 +0000Anna JaworskiWhat is plastic bronchitis? What are the red flags that lead to a diagnosis of plastic bronchitis and how is it diagnosed? More importantly, what can be done about it? Today’s guest will answer those questions for us and more! Molly Fee is a mom of...
Molly Fee is a mom of two boys and lives SE of Pittsburg. Her 9-year-old younger son, Marshall, was born with hypoplastic left heart syndrome or HLHS. Marshall had his Fontan Procedure at age 4, and also has a repaired tricuspid valve. About 18 months ago, Marshall was diagnosed with a rare complication associated with complex congenital heart defects, called “plastic bronchitis.” In today’s program, we’re going to learn what plastic bronchitis is, how one American family has dealt with this condition, and what advice they have for others living with plastic bronchitis.

Link mentioned in this podcast:

CHOP Lymphatic System page: https://www.chop.edu/centers-programs/jill-and-mark-fishman-center-lymphatic-disorders

Anna Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2337cardiologist,casts,chylous_effusions,complication,congenital_heart_defects,cyanosis,emergency_c-section,facebook_groups,fontan_procedure,hlhs,hypoplastic_left_heart_syndrom,insurance,low_amniotic_fluid,plastic_bronchitis,protein-losing_enteropathy,stentsfalsefullhttps://www.spreaker.com/episode/l-arte-di-riparare-il-cuore--43241227
La puntata di oggi è intitolata “L’Arte di Riparare il Cuore”, e la nostra ospite è Gabriella Ricciardi. Inizieremo la puntata di oggi conoscendo meglio Gabriella ed il suo costante amore per l’arte nella Prima Parte. Nella Seconda Parte, parleremo del percorso che ha Gabriella ha intrapreso per diventare un Cardiochirurgo Pediatrico e, nella Parte Finale, parleremo di come il suo talento artistico abbia contribuito alla sua pratica chirurgica.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43241227Tue, 02 Feb 2021 18:00:09 +0000Anna JaworskiNino Barbalace es il conduttore della versione in Italiano del Programma di "Cuore a cuore con Anna." La puntata di oggi è intitolata “L’Arte di Riparare il Cuore”, e la nostra ospite è Gabriella Ricciardi. Inizieremo la puntata di oggi conoscendo...
La puntata di oggi è intitolata “L’Arte di Riparare il Cuore”, e la nostra ospite è Gabriella Ricciardi. Inizieremo la puntata di oggi conoscendo meglio Gabriella ed il suo costante amore per l’arte nella Prima Parte. Nella Seconda Parte, parleremo del percorso che ha Gabriella ha intrapreso per diventare un Cardiochirurgo Pediatrico e, nella Parte Finale, parleremo di come il suo talento artistico abbia contribuito alla sua pratica chirurgica.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>894artista,cardiochirurgo_pediatrico,chirurgia_a_cuore_aperto,cuore,difetti_cardiaci_congeniti,medicofalsefullhttps://www.spreaker.com/episode/the-art-of-repairing-the-heart--43241044
Today’s show is 'The Art of Repairing the Heart' and our Guest is Gabriella Ricciardi. Gabriella Ricciardi is an artist and cardiothoracic surgeon from Torre Annunziata, Italy. She has just completed her internship as a Resident Fellow in Pediatric Cardiac Surgery at LUMC in Leiden, the Netherlands. Gabriella uses art in her work and has recently had some of her anatomical drawings accepted for publication in the "World Journal for Paediatric and Congenital Heart Surgery." Today, she will be talking with us about the relationship between art and science, and how her drawings help her in the fascinating and complicated world of pediatric cardiac surgery.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43241044Tue, 02 Feb 2021 17:00:21 +0000Anna JaworskiWhat kind of career field can a woman passionate about art and science enter into to satisfy both of her needs to be creative? What attracted Gabriella Ricciardi to the field of cardiothoracic surgery for tiny broken hearts? Exactly how can artistic...
Today’s show is 'The Art of Repairing the Heart' and our Guest is Gabriella Ricciardi. Gabriella Ricciardi is an artist and cardiothoracic surgeon from Torre Annunziata, Italy. She has just completed her internship as a Resident Fellow in Pediatric Cardiac Surgery at LUMC in Leiden, the Netherlands. Gabriella uses art in her work and has recently had some of her anatomical drawings accepted for publication in the "World Journal for Paediatric and Congenital Heart Surgery." Today, she will be talking with us about the relationship between art and science, and how her drawings help her in the fascinating and complicated world of pediatric cardiac surgery.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>13533-d_medical_models,3-d_printing_of_hearts,art,congenital_heart_defects,italian_surgeon,italy,medical_illustrations,medical_technology,open-heart_surgery,pediatric_cardiothoracic_surge,walt_disneyfalse16292fullhttps://www.spreaker.com/episode/a-heart-mom-s-journey-while-choosing-joy--43111487
Nicole Groenewald is a Heart Mom to Henry who has HLHS. At the time that Nicole found out about Henry's diagnosis, she felt like she might never be happy again. Her husband had been ill, and the Groenwalds had already filed for bankruptcy due to mounting medical bills. Then one day, she read that babies can feel their mother's emotions before they're born. This set her on a path of changing her emotions and choosing joy. At first, she started with simple things like music and self-care. As her challenges grew in life, she became more determined to pursue a joyful life. Today, she works to inspire and encourage others to pursue joy with intentionality, and has started a website and podcast called "Moms of Heart!" Today, Nicole joins us to talk about her and Henry's journey and the benefits of choosing joy.

Links mentioned in this podcast:

Nicole's podcast -- Mom's of Heart: http://momsofheart.com/podcast/?fbclid=IwAR0RnRYa4S3boRRr5FCu18M9sEqFXhf0BxpnGqjR0XSKS6dl5pPpRbh9SwM

Nicole's podcast -- Chase Joy 100 Ways: https://podcasts.apple.com/us/podcast/chase-joy-100-ways/id1506207814

Nicole's Hospital Journal: https://momsofheart.com/shop/hospital-journal/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/43111487Tue, 26 Jan 2021 17:00:19 +0000Anna JaworskiDo Heart Moms who have babies with heart defects have an easier time of things? Why would a Heart Mom write a book? What might entice a Heart Mom to start a podcast? Answers to these questions and more are in this week's episode of "Heart to Heart...
Nicole Groenewald is a Heart Mom to Henry who has HLHS. At the time that Nicole found out about Henry's diagnosis, she felt like she might never be happy again. Her husband had been ill, and the Groenwalds had already filed for bankruptcy due to mounting medical bills. Then one day, she read that babies can feel their mother's emotions before they're born. This set her on a path of changing her emotions and choosing joy. At first, she started with simple things like music and self-care. As her challenges grew in life, she became more determined to pursue a joyful life. Today, she works to inspire and encourage others to pursue joy with intentionality, and has started a website and podcast called "Moms of Heart!" Today, Nicole joins us to talk about her and Henry's journey and the benefits of choosing joy.

Links mentioned in this podcast:

Nicole's podcast -- Mom's of Heart: http://momsofheart.com/podcast/?fbclid=IwAR0RnRYa4S3boRRr5FCu18M9sEqFXhf0BxpnGqjR0XSKS6dl5pPpRbh9SwM

Nicole's podcast -- Chase Joy 100 Ways: https://podcasts.apple.com/us/podcast/chase-joy-100-ways/id1506207814

Nicole's Hospital Journal: https://momsofheart.com/shop/hospital-journal/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2023author,chase_joy_100_ways,choosing_joy,congenital_heart_defects,fetal_echo,grief,hlhs,hypoplastic_left_heart_syndrom,loss,match.com_success_story,midwife,moms_of_heart,nurse,palliative_care,podcaster,ptsd,self-care,texas_children's_hospitalfalsefullhttps://www.spreaker.com/episode/mom-to-an-adult-heart-warrior-in-india--42806630
Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they struggled to find care. At three and a half years of age, he had a pulmonary artery banding procedure at Narayana Health in Bangalore. He currently needs the arterial switch procedure. Obtaining medical care is difficult in India, as there is no insurance for congenital conditions, forcing families to rely on private hospitals. To help other families affected by CHD, Sajani started a support group in India and a letter-writing campaign to urge the health minister in the central government to address CHD. Her efforts have attracted the attention of doctors and others, who are now working together to support her cause, a life of dignity for people born with CHD.

Facebook Link to Justice for Children with Congenital Heart Defects: https://www.facebook.com/sajaninairheartmom/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/42806630Tue, 19 Jan 2021 17:15:08 +0000Anna JaworskiWhat is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts? Sajani...
Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they struggled to find care. At three and a half years of age, he had a pulmonary artery banding procedure at Narayana Health in Bangalore. He currently needs the arterial switch procedure. Obtaining medical care is difficult in India, as there is no insurance for congenital conditions, forcing families to rely on private hospitals. To help other families affected by CHD, Sajani started a support group in India and a letter-writing campaign to urge the health minister in the central government to address CHD. Her efforts have attracted the attention of doctors and others, who are now working together to support her cause, a life of dignity for people born with CHD.

Facebook Link to Justice for Children with Congenital Heart Defects: https://www.facebook.com/sajaninairheartmom/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1787arterial_switch_operation,bangalore,caste_system,cctga,chd_warrior,congenital_heart_defects,congenitally-corrected_tga,india,insurance,open-heart_surgery,pa_banding,pediatric_cardiology,socialized_medicine,tga,tgv,transposition_of_the_great_art,transposition_of_the_great_ves,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/still-waiting-for-a-heart--42799108
Lorrie Hill grew up in Texas, mostly Houston and Dallas. She was born with a single ventricle heart and has had three open-heart surgeries in her 24 years, including a pulmonary artery band and bidirectional Glenn shunt. She was listed for a heart transplant on February 24th, 2020. Since then, she graduated with honors from her undergraduate university and moved to Houston to be closer to Texas Children's Hospital where she will receive her transplant. She has even begun her Master of Public Health epidemiology graduate program. She talks to Anna about life now and her hope of receiving a new heart.

This is a follow-up episode to the one Lorrie did in March 2020. To hear that episode or to read a transcript of the program, use this link: https://www.buzzsprout.com/62761/episodes/3188779

Here are the links to the websites Lorrie mentioned in this episode:

Donate Life: https://www.donatelife.net/
UNOS Transplant Living: https://transplantliving.org/
Organ Procurement and Transplantation Network: https://optn.transplant.hrsa.gov/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/42799108Tue, 12 Jan 2021 17:00:21 +0000Anna JaworskiWhat is it like to be an adult with a congenital heart defect whose heart has given out? What does a typical journey on the road to transplant like? Does it look anything like what we see portrayed on television or in movies? Lorrie Hill grew up in...
Lorrie Hill grew up in Texas, mostly Houston and Dallas. She was born with a single ventricle heart and has had three open-heart surgeries in her 24 years, including a pulmonary artery band and bidirectional Glenn shunt. She was listed for a heart transplant on February 24th, 2020. Since then, she graduated with honors from her undergraduate university and moved to Houston to be closer to Texas Children's Hospital where she will receive her transplant. She has even begun her Master of Public Health epidemiology graduate program. She talks to Anna about life now and her hope of receiving a new heart.

This is a follow-up episode to the one Lorrie did in March 2020. To hear that episode or to read a transcript of the program, use this link: https://www.buzzsprout.com/62761/episodes/3188779

Here are the links to the websites Lorrie mentioned in this episode:

Donate Life: https://www.donatelife.net/
UNOS Transplant Living: https://transplantliving.org/
Organ Procurement and Transplantation Network: https://optn.transplant.hrsa.gov/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1965cardiac_transplant,chd,college,congenital_heart_defect,covid-19,epidemiology_student,graduate_school,heart_transplant,milrinone,organ_donation,organ_procurement,single_ventricle_heart,transplantation,united_network_of_organ_sharin,unosfalsefullhttps://www.spreaker.com/episode/a-family-dealing-with-tetralogy-of-fallot--42785168
Deborah Meisten and her husband are the parents of a baby who was born with tetralogy of Fallot (TOF). Deborah and her husband are in healthcare. She is a pediatric nurse practitioner and her husband is a pediatrician. Their son is now 16 years old. The family is preparing for the future to empower their son to transition to age-appropriate health care responsibilities.

In this episode of "Heart to Heart with Anna," Deborah shares with Anna what her heart journey has been like, some advice she's gained along the way, and ways she, her husband, and her son's cardiologist have worked to help him transition from cardiac care as a child to transferring that care onto him.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/42785168Tue, 05 Jan 2021 17:00:06 +0000Anna JaworskiDo you have a child with tetralogy of Fallot (ToF)? Do you wonder what that child's life might be like? Do you ever worry about how you will help your child move beyond childhood into adulthood where your child will be in charge of his/her own...
Deborah Meisten and her husband are the parents of a baby who was born with tetralogy of Fallot (TOF). Deborah and her husband are in healthcare. She is a pediatric nurse practitioner and her husband is a pediatrician. Their son is now 16 years old. The family is preparing for the future to empower their son to transition to age-appropriate health care responsibilities.

In this episode of "Heart to Heart with Anna," Deborah shares with Anna what her heart journey has been like, some advice she's gained along the way, and ways she, her husband, and her son's cardiologist have worked to help him transition from cardiac care as a child to transferring that care onto him.

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hearttoheartwithanna/

Website: https://www.hug-podcastnetwork.com/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1987amnio,amniocentesis,chronic_illness,echo,open-heart_surgery,pediatric_cardiologist,post-traumatic_stress_disorder,ptsd,stress,tetralogy_of_fallot,tof,trauma,ultrasoundfalsefullhttps://www.spreaker.com/episode/update-on-keith-flynn-finally-on-the-list--41204802
It's been about a year since we heard from Keith. In this episode, he shares with Anna what has transpired in the last year -- which has most notably been complicated by COVID-19. He talks about his chances of getting a liver and a heart in these difficult times and how his treatment plan has been affected by the pandemic.

Keith also shares with Anna what he has learned about financial support for people needing a transplant. He shares helpful advice for others who might need an organ transplant and even shares what he and his family have done for the last year to optimize his quality of life.

Here is a link to Keith's Transplant Journey Facebook page: https://www.facebook.com/keithsheart

Here is a link to Keith's GoFundMe page: https://www.gofundme.com/f/keith039s-liver-and-heart-transplant-fund

Here is a link to Keith's 2019 "Heart to Heart with Anna" episode: https://tinyurl.com/y39l6evk

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/41204802Tue, 29 Sep 2020 16:00:20 +0000Anna JaworskiLoyal Listeners of "Heart to Heart with Anna" will remember Keith Flynn from 2019 when he came on the show to talk about his need for a heart and liver transplant. He graciously agreed to periodically return to let everyone know what it's like to be...
It's been about a year since we heard from Keith. In this episode, he shares with Anna what has transpired in the last year -- which has most notably been complicated by COVID-19. He talks about his chances of getting a liver and a heart in these difficult times and how his treatment plan has been affected by the pandemic.

Keith also shares with Anna what he has learned about financial support for people needing a transplant. He shares helpful advice for others who might need an organ transplant and even shares what he and his family have done for the last year to optimize his quality of life.

Here is a link to Keith's Transplant Journey Facebook page: https://www.facebook.com/keithsheart

Here is a link to Keith's GoFundMe page: https://www.gofundme.com/f/keith039s-liver-and-heart-transplant-fund

Here is a link to Keith's 2019 "Heart to Heart with Anna" episode: https://tinyurl.com/y39l6evk

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1883congenital_heart_defect,covid-19,emotional_support,financial_support,fundraiser,heart-liver_transplant,heart_transplant,liver_transplant,pandemic,single_ventricle,transplantfalsefullhttps://www.spreaker.com/episode/new-transplant-guidelines-and-transplant-alternatives-with-dr-ali-zaidi--41063521
Dr. Ali N. Zaidi is an Adult Congenital Heart Disease Specialist. He is one of only a few selected cardiologists’ in the U.S. who is board certified in Pediatrics, Internal Medicine, Pediatric Cardiology, Adult Cardiovascular Disease, Adult Echocardiography, and Adult Congenital Heart Disease. Dr. Zaidi heads the Mount Sinai Adult Congenital Heart Disease Center in NYC.

For more information about the change in status in 2018 and for answers to more questions regarding heart transplantation, use this link: https://optn.transplant.hrsa.gov/data/organ-datasource/heart/heart-allocation-questions-and-answers/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/41063521Tue, 22 Sep 2020 16:00:17 +0000Anna JaworskiWhy did the statuses for being listed for a heart transplant change in 2018? Why would someone born with a congenital heart defect need a transplant and how do they compare to adults born with healthy hearts who suddenly need a heart transplant...
Dr. Ali N. Zaidi is an Adult Congenital Heart Disease Specialist. He is one of only a few selected cardiologists’ in the U.S. who is board certified in Pediatrics, Internal Medicine, Pediatric Cardiology, Adult Cardiovascular Disease, Adult Echocardiography, and Adult Congenital Heart Disease. Dr. Zaidi heads the Mount Sinai Adult Congenital Heart Disease Center in NYC.

For more information about the change in status in 2018 and for answers to more questions regarding heart transplantation, use this link: https://optn.transplant.hrsa.gov/data/organ-datasource/heart/heart-allocation-questions-and-answers/

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1984acquired_heart_disease,adult_congenital_heart_special,artificial_heart,berlin_heart,cardiologist,cardiomyopathy,congenital_heart_disease,destination_therapy,ejection_fraction,end-stage_biventricular_heart_,heart_failure,heart_pump,mechanical_circulatory_support,pediatric_cardiologist,social_support,transplant_guidelines,transplant_status,unos,vad,ventricular_assist_devicefalsefullhttps://www.spreaker.com/episode/heart-warrior-from-venezuela-to-the-usa--40915417
Tune in to this week's episode of "Heart to Heart with Anna" to hear Belen Blanton talk with Anna about her heart journey, how she made it to the USA, and why she has started a nonprofit organization to help children with congenital heart defects in her native country - Venezuela.

Here is the foundation Belen has started for children with CHDs in Venezuela on Facebook:

@Fundacion Estrellita de Belen

and on the Internet: www.fundacionestrellitadebelen.org

Find Belen on Instagram:

@youdonthavetolooksick


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/40915417Tue, 15 Sep 2020 16:03:50 +0000Anna JaworskiWhat was it like to be born in 1965 with a severe congenital heart defect in Venezuela? What kind of care was available there? What was a parent to do? Tune in to this week's episode of "Heart to Heart with Anna" to hear Belen Blanton talk with Anna...
Tune in to this week's episode of "Heart to Heart with Anna" to hear Belen Blanton talk with Anna about her heart journey, how she made it to the USA, and why she has started a nonprofit organization to help children with congenital heart defects in her native country - Venezuela.

Here is the foundation Belen has started for children with CHDs in Venezuela on Facebook:

@Fundacion Estrellita de Belen

and on the Internet: www.fundacionestrellitadebelen.org

Find Belen on Instagram:

@youdonthavetolooksick


Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1891adult_with_chd,a-fib,aminodorone,arrhythmia,congenital_heart_defects,digoxin,dr._arwa_saidi,dr._ivan_machado_atias,electrophysiologist,nonprofit_organization,tetralogy_of_fallot,tof,tricuspid_atresia,venezuelafalsefullhttps://www.spreaker.com/episode/children-s-heartlink-healing-hearts-worldwide-with-bistra-zheleva--40775562
Tune in to this episode of "Heart to Heart with Anna" to meet Bistra Zheleva - an advocate for children born in low-resource countries who need live-saving surgeries for their congenital heart defects. Bistra has a wealth of information about what CHDs look like worldwide, what problems people in countries like Malaysia, Brazil, China, Vietnam, and India face on a daily basis, what organizations have come together to assist people worldwide, and how even a common person with no medical training can still be part of a world-wise voice for the CHD community.

The article Bistra mentioned -- 'The Global Burden of Congenital Heart Disease'
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3721933/

Non-government organizations (NGOs) and 501(c)(3)s mentioned in this episode:

Children's HeartLink – follow, join our mailing list, donate

www.childrensheartlink.org

Facebook https://www.facebook.com/childrensheartlink/

Twitter @CHeartlink

YouTube https://www.youtube.com/user/CHeartLink

Instagram https://www.instagram.com/childrensheartlink/

Global ARCH – follow, join our mailing list, donate

http://www.global-arch.org/

https://www.facebook.com/GlobalARCH18/

Twitter @GlobalARCH18

Novick Cardiac Foundation: https://cardiac-alliance.org/

Newborn Foundation: http://www.newbornfoundation.org/


Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)


Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/40775562Tue, 08 Sep 2020 16:00:51 +0000Anna JaworskiDo you know how many children are born every single year around the world with the most common birth defect? What percentage of children born with this condition actually live in a country where appropriate care is available? What are non-government...
Tune in to this episode of "Heart to Heart with Anna" to meet Bistra Zheleva - an advocate for children born in low-resource countries who need live-saving surgeries for their congenital heart defects. Bistra has a wealth of information about what CHDs look like worldwide, what problems people in countries like Malaysia, Brazil, China, Vietnam, and India face on a daily basis, what organizations have come together to assist people worldwide, and how even a common person with no medical training can still be part of a world-wise voice for the CHD community.

The article Bistra mentioned -- 'The Global Burden of Congenital Heart Disease'
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3721933/

Non-government organizations (NGOs) and 501(c)(3)s mentioned in this episode:

Children's HeartLink – follow, join our mailing list, donate

www.childrensheartlink.org

Facebook https://www.facebook.com/childrensheartlink/

Twitter @CHeartlink

YouTube https://www.youtube.com/user/CHeartLink

Instagram https://www.instagram.com/childrensheartlink/

Global ARCH – follow, join our mailing list, donate

http://www.global-arch.org/

https://www.facebook.com/GlobalARCH18/

Twitter @GlobalARCH18

Novick Cardiac Foundation: https://cardiac-alliance.org/

Newborn Foundation: http://www.newbornfoundation.org/


Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)


Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this...]]>19891_birth_defect,501(c)(3)_organizations,annamarie_saarinen,cardiac_outcomes,cardiac_surgery,congenital_heart_defects,global_arch,global_initiative,grassroots_ngos,international_quality_improvem,iqic,medical_ethics,minneapolis,minnesota,newborn_foundation,ngo,non-governmental_organizations,nonprofit_organizations,novick_cardiac_alliance,pulse_oximentryfalsefullhttps://www.spreaker.com/episode/in-memory-of-david-franco-beloved-son-father-brother-and-friend--40635665
This episode is an opportunity for David's mother, sister, and two of his brothers to share memories with Anna of David. Anna also shares some memories and conversations she had with David, who was the Producer of "Heart to Heart with Anna" for years, as well as a frequent Sound Engineer, and the Host of "Heart to Heart with Nicole and David" - one of the podcasts in the HUG Podcast Network.

Join us in this episode as we share stories, laughter, and tears while remembering a very special Heart Warrior.

If you want to learn more about David Franco, here are some other podcasts that might interest you:

David's podcasts where he was a Guest:

12/16/14 Living with Transposition of the Great Arteries - https://www.buzzsprout.com/62761/398989-living-with-cc-tga-heart-defect
6/28/16 Considerations for Non-Cardiac Surgeries for Adults with CHD - https://www.buzzsprout.com/62761/398898-considerations-for-non-cardiac-surgeries-for-adults-with-chds
8/7/18 Quality of Life Versus Quantity of Life: Decisions Regarding End-of-Life Care - https://www.buzzsprout.com/62761/770497-quality-of-life-versus-quantity-of-life-decisions-regarding-end-of-life-care
7/16/19 Silent Cries: Breaking Through CHD Awareness - https://www.buzzsprout.com/62761/1417627-silent-cries-breaking-through-chd-awareness

David's podcasts where he was a Host (Heart to Heart with Nicole and David):

1/4/2017 A New Beginning - https://api.spreaker.com/v2/episodes/10238041/download.mp3
2/1/2017 Raising Awareness for Congenital Heart Defects - https://api.spreaker.com/v2/episodes/10441855/download.mp3
3/1/2017 Diet and Exercise for Heart Warriors - https://api.spreaker.com/v2/episodes/11236937/download.mp3

Family Members' Podcasts involving living with David:

1/29/18 Big Sister to a CHD Warrior: Time Together, Time Away (Roseann Bischoff) -
https://www.buzzsprout.com/62761/638199-big-sister-to-a-chd-warrior-time-together-time-away
2/12/19 A Family of Faith (Roseann Franco) - https://www.buzzsprout.com/62761/953012-a-family-of-faith
2/19/19 Lessons Learned by a Long-Time Heart Mom (Roseann Franco) -https://www.buzzsprout.com/62761/961150-lessons-learned-by-a-long-time-heart-mom

Another Memorial podcast about David:

5/5/2020 Silent Cries and David Franco https://www.buzzsprout.com/62761/3632317-remembering-david-franco-and-silent-cries

Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https
Another Memorial podcast about David:

5/5/2020 Silent Cries and David Franco https://www.buzzsprout.com/62761/3632317-remembering-david-franco-and-silent-cries

Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/40635665Tue, 01 Sep 2020 16:00:18 +0000Anna JaworskiDavid Franco was born on December 19, 1966, with congenitally corrected transposition of the great arteries (or cc-TGA). David was actually a pioneer as an early cc-TGA Survivor. He was an avid athlete, an advocate for the congenital heart defect...
This episode is an opportunity for David's mother, sister, and two of his brothers to share memories with Anna of David. Anna also shares some memories and conversations she had with David, who was the Producer of "Heart to Heart with Anna" for years, as well as a frequent Sound Engineer, and the Host of "Heart to Heart with Nicole and David" - one of the podcasts in the HUG Podcast Network.

Join us in this episode as we share stories, laughter, and tears while remembering a very special Heart Warrior.

If you want to learn more about David Franco, here are some other podcasts that might interest you:

David's podcasts where he was a Guest:

12/16/14 Living with Transposition of the Great Arteries - https://www.buzzsprout.com/62761/398989-living-with-cc-tga-heart-defect
6/28/16 Considerations for Non-Cardiac Surgeries for Adults with CHD - https://www.buzzsprout.com/62761/398898-considerations-for-non-cardiac-surgeries-for-adults-with-chds
8/7/18 Quality of Life Versus Quantity of Life: Decisions Regarding End-of-Life Care - https://www.buzzsprout.com/62761/770497-quality-of-life-versus-quantity-of-life-decisions-regarding-end-of-life-care
7/16/19 Silent Cries: Breaking Through CHD Awareness - https://www.buzzsprout.com/62761/1417627-silent-cries-breaking-through-chd-awareness

David's podcasts where he was a Host (Heart to Heart with Nicole and David):

1/4/2017 A New Beginning - https://api.spreaker.com/v2/episodes/10238041/download.mp3
2/1/2017 Raising Awareness for Congenital Heart Defects - https://api.spreaker.com/v2/episodes/10441855/download.mp3
3/1/2017 Diet and Exercise for Heart Warriors - https://api.spreaker.com/v2/episodes/11236937/download.mp3

Family Members' Podcasts involving living with David:

1/29/18 Big Sister to a CHD Warrior: Time Together, Time Away (Roseann Bischoff) -
https://www.buzzsprout.com/62761/638199-big-sister-to-a-chd-warrior-time-together-time-away
2/12/19 A Family of Faith (Roseann Franco) - https://www.buzzsprout.com/62761/953012-a-family-of-faith
2/19/19 Lessons Learned by a Long-Time Heart Mom (Roseann Franco) -https://www.buzzsprout.com/62761/961150-lessons-learned-by-a-long-time-heart-mom

Another Memorial podcast about David:

5/5/2020 Silent Cries and David...]]>2259adult_with_chd,catholicism,cc-tga,chronic_illness,congenital_heart_defects,congenitally_corrected_transpo,david_franco,depression,dog_ownership,dogs,handicapped_sticker,heart_to_heart_with_nicole_and,memorial,open-heart_surgery,pacemaker,podcast_host,producer,siblings,sound_engineer,strokefalsefullhttps://www.spreaker.com/episode/working-in-the-nicu-when-you-re-a-heart-mom--40485004
In this episode of "Heart to Heart with Anna," Meagan Sheakoski, P.A., and Anna Jaworski talk about Meagan's life choices -- her decision to become a physician assistant, her pregnancy with her son, and her decision to use her experience as a Heart Mom to help other families in the NICU. You won't want to miss this heartwarming interview with 2 Heart Moms.

Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/40485004Tue, 25 Aug 2020 16:00:15 +0000Anna JaworskiWhat is it like to be a physician assistant working in the NICU and then having your firstborn son admitted to the same NICU? Meagan Sheakoski talks to Anna about her experience with Anna after giving birth to a son who had an unknown birth defect. It...
In this episode of "Heart to Heart with Anna," Meagan Sheakoski, P.A., and Anna Jaworski talk about Meagan's life choices -- her decision to become a physician assistant, her pregnancy with her son, and her decision to use her experience as a Heart Mom to help other families in the NICU. You won't want to miss this heartwarming interview with 2 Heart Moms.

Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1939arterial_switch_operation,aso,chd_survivor,congenital_heart_defects,dextro-transposition_of_the_gr,d-tga,heart_warrior,nurse,patient_advocate,physician_assistant,premature_baby,pulmonary_stenosis,respiratory_distressfalsefullhttps://www.spreaker.com/episode/aging-care-of-a-fontan-patient--40385875
Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/40385875Tue, 18 Aug 2020 16:06:26 +0000Anna JaworskiTexas Reardon is a Heart Warrior. Whitney is his wife of 10 years. Born with a host of congenital heart defects, Texas explains to Anna, in this episode of "Heart to Heart with Anna," about his complicated medical history, and some consequences he's...
Links to our Social Media and Podcast Pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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Pages and Episodes mentioned in this program:

CongenitalHeartDefects.com Camp Information Page -- https://www.hug-podcastnetwork.com/camp-links-us--canada.html

Siblings in the CHD Community -- "Heart to Heart with Anna" featuring Don Meyer and SibShops -- https://www.buzzsprout.com/62761/398925

SibShops information -- https://www.siblingsupport.org/about-sibshops

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Apple Podcasts -- https://podcasts.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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YouTube -- https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/40268687Tue, 11 Aug 2020 16:00:17 +0000Anna JaworskiTen years ago, Chelsea King discovered that the twins she carried had a potentially deadly secret. The months that followed were full of doctor's appointments, a move to another city, bed rest, and concern. Tune in to hear Chelsea King talk with Host...
Pages and Episodes mentioned in this program:

CongenitalHeartDefects.com Camp Information Page -- https://www.hug-podcastnetwork.com/camp-links-us--canada.html

Siblings in the CHD Community -- "Heart to Heart with Anna" featuring Don Meyer and SibShops -- https://www.buzzsprout.com/62761/398925

SibShops information -- https://www.siblingsupport.org/about-sibshops

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Apple Podcasts -- https://podcasts.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1797alaska,chds,congenital_heart_defects,congenital_heart_walk,duane_syndrome,eye_surgery,eye_therapy,grandparents,in-utero_diagnosis,melody_valve,misdiagnosis,open-heart_surgery,physical_therapy,sibshops,tetralogy_of_fallot,tof,trisomy_18falsefullhttps://www.spreaker.com/episode/d-tga-and-a-mustard-procedure-survivor--40138724
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Jeffrey lives in Wichita with his wife Ashley and two heart-healthy children: Mason and Amelia. In this episode of "Heart to Heart with Anna," Jeffrey talks about why he is becoming a registered nurse, how he feels about the quality of life a person with d-TGA should have, some modifications that may need to be made, and what the future holds for him and his family.

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Jeffrey lives in Wichita with his wife Ashley and two heart-healthy children: Mason and Amelia. In this episode of "Heart to Heart with Anna," Jeffrey talks about why he is becoming a registered nurse, how he feels about the quality of life a person with d-TGA should have, some modifications that may need to be made, and what the future holds for him and his family.

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The article mentioned in the Podcast:
"Post-Intensive Care Syndrome" by the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/21161-post-intensive-care-syndrome-pics

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The article mentioned in the Podcast:
"Post-Intensive Care Syndrome" by the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/21161-post-intensive-care-syndrome-pics

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Other Heart to Heart with Anna Episodes involving heterotaxy syndrome:

Ivemark Syndrome: Yesterday and Today: https://tinyurl.com/ya3j82wm

Raising Awareness of Ivemark Syndrome: https://tinyurl.com/y45ezc5b

Homeschooling a Special Needs Heart Warrior: https://tinyurl.com/yd6vqu42

A Connection Between Flu, Arthritis & Heart Disease: A Mother's Instincts. https://tinyurl.com/y8k8wmmx

Facebook Heterotaxy Support Groups:

Heterotaxy Connection Support: https://www.facebook.com/groups/527102137400705/

The Heterotaxy Network:
https://www.facebook.com/groups/Theheterotaxynetwork/

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Other Heart to Heart with Anna Episodes involving heterotaxy syndrome:

Ivemark Syndrome: Yesterday and Today: https://tinyurl.com/ya3j82wm

Raising Awareness of Ivemark Syndrome: https://tinyurl.com/y45ezc5b

Homeschooling a Special Needs Heart Warrior: https://tinyurl.com/yd6vqu42

A Connection Between Flu, Arthritis & Heart Disease: A Mother's Instincts. https://tinyurl.com/y8k8wmmx

Facebook Heterotaxy Support Groups:

Heterotaxy Connection Support: https://www.facebook.com/groups/527102137400705/

The Heterotaxy Network:
https://www.facebook.com/groups/Theheterotaxynetwork/

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/37087919Tue, 07 Jul 2020 16:00:15 +0000Anna JaworskiBorn in 1960, Kimberly Russell was diagnosed as a "blue baby" and wasn't expected to survive infancy. Kimberly Russell's care for her complex heart was always just a step behind what was necessary to keep her alive. In 2020, Kimberly is preparing to...https://www.facebook.com/Kimsheartbeat/

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To purchase Daphne's book, go to this website: https://drdaphheartitude.com/


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To purchase Daphne's book, go to this website: https://drdaphheartitude.com/


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Julia is joined on this episode of "Heart to Heart with Anna" by Biörn Ivemark's grandson, Richard Ivemark. Growing up, Richard’s family sometimes spoke of Ivemark Syndrome, but
nobody fully understood what it was. After the passing of his grandfather in 2005, Richard was unable to get a complete picture of the disorder. So, in 2019 at the age of 18, he decided to write a paper on Ivemark Syndrome to understand his grandfather’s legacy. In doing so, he found the small, yet welcoming, Ivemark Syndrome community online trying to raise awareness about this rare disorder.

Julia and Richard share what they've learned about Ivemark Syndrome with Anna, as well as, their hopes for the future of the label "Ivemark Syndrome." Julia also gives some advice for others looking to get information about rare diseases.

Links to Programs and Organizations Mentioned in this Podcast:

Julie's other "Heart to Heart with Anna" episode: https://62761.buzzsprout.com/62761/1798234-raising-awareness-of-ivemark-syndrome

Julie and Richard's Ivemark Syndrome Support Group:
https://www.facebook.com/groups/2555846374495429/

NORD - https://rarediseases.org/

RaDaR - https://ncats.nih.gov/radar

GARD - https://rarediseases.info.nih.gov/

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/32530232Tue, 23 Jun 2020 16:00:19 +0000Anna JaworskiBiörn Ivemark is credited with the discovery of Ivemark Syndrome in 1955. According to the National Organisation for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal...and or abdomen. Julia Mayfield is an adult born with this rare genetic condition called Ivemark Syndrome.

Julia is joined on this episode of "Heart to Heart with Anna" by Biörn Ivemark's grandson, Richard Ivemark. Growing up, Richard’s family sometimes spoke of Ivemark Syndrome, but
nobody fully understood what it was. After the passing of his grandfather in 2005, Richard was unable to get a complete picture of the disorder. So, in 2019 at the age of 18, he decided to write a paper on Ivemark Syndrome to understand his grandfather’s legacy. In doing so, he found the small, yet welcoming, Ivemark Syndrome community online trying to raise awareness about this rare disorder.

Julia and Richard share what they've learned about Ivemark Syndrome with Anna, as well as, their hopes for the future of the label "Ivemark Syndrome." Julia also gives some advice for others looking to get information about rare diseases.

Links to Programs and Organizations Mentioned in this Podcast:

Julie's other "Heart to Heart with Anna" episode: https://62761.buzzsprout.com/62761/1798234-raising-awareness-of-ivemark-syndrome

Julie and Richard's Ivemark Syndrome Support Group:
https://www.facebook.com/groups/2555846374495429/

NORD - https://rarediseases.org/

RaDaR - https://ncats.nih.gov/radar

GARD - https://rarediseases.info.nih.gov/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1729advocacy,angelman_syndrome_day,chd_awareness_day,congenital_heart_defects,dr._ivemark,dr._noonan,gard,genetic_and_rare_diseases_info,heterotaxy,heterotaxy_syndrome,ivemark_syndrome,ivemark_syndrome_day,national_organization_for_rare,nord,radar,rare_birth_defect,rare_diseases_registry_programfalsefullhttps://www.spreaker.com/episode/a-wish-made-friendship--31021187
On this episode of "Heart to Heart with Anna," these long-time friends talk to Anna about how they were brought together, what transpired in their lives for them to be brought together time and again, and how they came to write a book together -- "When I Wished Upon a Star: From Broken Homes to Mended Hearts" and what it meant to them to win the Baby Hearts Press People's Choice Award.

Here are Brandon Lane Phillips other "Heart to Heart with Anna" appearances:

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients: https://tinyurl.com/y6w3g7s4

Interwoven Lives and Congenital Heart Defects: https://tinyurl.com/yxewn596

To order the book "When I Wished Upon a Star: From Broken Homes to Mended Hearts," Use this link: https://wheniwisheduponastar.com/

The nonprofit organization responsible for granting Brandon's wish: https://www.starlight.org/

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/31021187Tue, 16 Jun 2020 16:00:20 +0000Anna JaworskiBrandon Lane Phillips and Jeremy Miller are unlikely friends. Brandon was born with tetralogy of Fallot and lived with his family in Louisiana. Jeremy was a child actor, perhaps best known for his portrayal of Ben Seaver on the hit 1980s sitcom...
On this episode of "Heart to Heart with Anna," these long-time friends talk to Anna about how they were brought together, what transpired in their lives for them to be brought together time and again, and how they came to write a book together -- "When I Wished Upon a Star: From Broken Homes to Mended Hearts" and what it meant to them to win the Baby Hearts Press People's Choice Award.

Here are Brandon Lane Phillips other "Heart to Heart with Anna" appearances:

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients: https://tinyurl.com/y6w3g7s4

Interwoven Lives and Congenital Heart Defects: https://tinyurl.com/yxewn596

To order the book "When I Wished Upon a Star: From Broken Homes to Mended Hearts," Use this link: https://wheniwisheduponastar.com/

The nonprofit organization responsible for granting Brandon's wish: https://www.starlight.org/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)
Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2029actor,addiction,alcohol,alcoholism,ben_seaver,black-out_drunk,blessing,brandon_lane_phillips,broken_homes,chd,congenital_heart_defects,divorce,dr._varco,growing_pains,jeremy_miller,mental_abuse,starlight_foundation,step-father,tetralogy_of_fallot,wishfalsefullhttps://www.spreaker.com/episode/living-with-hlhs-evolving-diagnoses--30057912
In the 3rd segment, Annie mentions creating a medical history that Heart Warriors can keep with them. Here is a link to the Adult Congenital Heart Association page which helps adults build a convenient History Passport: https://www.achaheart.org/media/1215/php2018web.pdf

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/30057912Tue, 16 Jun 2020 02:37:04 +0000Anna JaworskiAnnie Ulchak is a unique Heart Warrior. Born in Lima, Peru in 1979 with nomenclature HLHS, she came to the United States for life-saving surgery, after she was adopted. She joins Anna on this episode of "Heart to Heart with Anna" to talk to her about...
In the 3rd segment, Annie mentions creating a medical history that Heart Warriors can keep with them. Here is a link to the Adult Congenital Heart Association page which helps adults build a convenient History Passport: https://www.achaheart.org/media/1215/php2018web.pdf

Please visit our Social Media and Podcast pages:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1914ablation,acha_ambassador,advocate,arrhythmias,autoimmune_serositis_of_the_pe,boston_children's_hospital,cardiac_ablation,congenital_heart_defects,congenital_heart_disease,dr._castenada,dr._fred_wu,electrophysiology,ep-specialist,fald,fontan-associated_liver_diseas,gluten,hlhs,hypoplastic_left_heart_syndrom,nomenclature_hlhs,strokefalsefullhttps://www.spreaker.com/episode/becoming-an-author-while-raising-children-with-special-needs--28862036
To listen to the episode of "Heart to Heart with Anna" featuring Sandra's son Darryl, use this link: https://tinyurl.com/ych3a6hv

Find Sandra on Social Media:

https://www.facebook.com/sandra.wallis1
https://www.facebook.com/Sandra-Wallis-Author
Instagram: sandrawallis1

To purchase Sandra's book, contact her on Facebook or Instagram or purchase at Amazon here; https://tinyurl.com/yadk5kxs
or Baby Hearts Press here: www.babyheartspress.com

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/28862036Tue, 02 Jun 2020 16:00:07 +0000Anna JaworskiSandra Wallis is the author of "Not What I Bargained For: My Journey Raising Four Incredible Kids, Including Two With Severe Medical Conditions." She joins Anna in this episode of "Heart to Heart with Anna" to talk about what it was like for her to...
To listen to the episode of "Heart to Heart with Anna" featuring Sandra's son Darryl, use this link: https://tinyurl.com/ych3a6hv

Find Sandra on Social Media:

https://www.facebook.com/sandra.wallis1
https://www.facebook.com/Sandra-Wallis-Author
Instagram: sandrawallis1

To purchase Sandra's book, contact her on Facebook or Instagram or purchase at Amazon here; https://tinyurl.com/yadk5kxs
or Baby Hearts Press here: www.babyheartspress.com

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2050bladder_problems,bowel_problems,celiac_dise,gastrointestinal_pseudo-obstru,g-tube,intravenous_feeding,spina_bifida,spina_bifida_occultafalsefullhttps://www.spreaker.com/episode/living-with-the-sorrow-of-losing-a-child--28328035
To be put on the waiting list for Sandra's book, Twenty-Seven Hours of Will, visit her Facebook page: https://www.facebook.com/SandraHarperLamgo/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/28328035Tue, 26 May 2020 16:00:16 +0000Anna JaworskiSandra Harper Lamgo has a very special story. She talks with Anna about what it was like for her to grow her family and how one loss, in particular, changed her husband's and her life forever. Undiagnosed hypoplastic left heart syndrome resulted in a...
To be put on the waiting list for Sandra's book, Twenty-Seven Hours of Will, visit her Facebook page: https://www.facebook.com/SandraHarperLamgo/

Please visit our Social Media and Podcast pages:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1813adoption,advocate,author,congenital_heart_defects,death,death_of_a_child,hlhs,hypoplastic_left_heart_syndrom,infant_loss,infertility,journaling,loss,miscarriage,pregnancy,sorrowfalsefullhttps://www.spreaker.com/episode/learning-about-goldenhar-syndrome--27776340child, who has spent a lot of time in hospitals and doctors’ offices. Greg has
Goldenhar Syndrome, as well as LPA ring-sling complex. She is from the
Canadian Prairies and is familiar with many hospitals in the country.
She is a devoted mother and advocate for families dealing with
Goldenhar Syndrome.

Bonnie joins Anna to talk about what Goldenhar Syndrome is and how this rare birth defect has affected her family. She also talks about what it means to have a child with special medical needs in rural Canada and the special challenges her family faces dealing with hospitals that are many miles from her home.

Recorded during the height of the COVID-19, Bonnie and Anna discuss what it means for a medically-fragile child to deal with germs, how the coronavirus is affecting the congenital heart defect community, and what language is now part of the world's experience and how that vocabulary might help Bonnie in the future.

To learn more about Bonnie, check out her blog: https://dwellinglogs.com

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/27776340Tue, 19 May 2020 17:21:56 +0000Anna JaworskiBonnie Hunt is a mother of three children, including a medically complex child, who has spent a lot of time in hospitals and doctors’ offices. Greg has Goldenhar Syndrome, as well as LPA ring-sling complex. She is from the Canadian Prairies and is...child, who has spent a lot of time in hospitals and doctors’ offices. Greg has
Goldenhar Syndrome, as well as LPA ring-sling complex. She is from the
Canadian Prairies and is familiar with many hospitals in the country.
She is a devoted mother and advocate for families dealing with
Goldenhar Syndrome.

Bonnie joins Anna to talk about what Goldenhar Syndrome is and how this rare birth defect has affected her family. She also talks about what it means to have a child with special medical needs in rural Canada and the special challenges her family faces dealing with hospitals that are many miles from her home.

Recorded during the height of the COVID-19, Bonnie and Anna discuss what it means for a medically-fragile child to deal with germs, how the coronavirus is affecting the congenital heart defect community, and what language is now part of the world's experience and how that vocabulary might help Bonnie in the future.

To learn more about Bonnie, check out her blog: https://dwellinglogs.com

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: 2586advocacy,asd,atrial_septal_defect,awareness,beads_of_courage,cardiothoracic_surgeon,congenital_heart_defects,cranial-facial_anomalies,esophagus,goldenhar_syndrome,lpa,lpa_reimplementation,lpa_sling-ring_complex,otolaryngologist,pulmonary_artery,slide_tracheoplasty,trachea,wonderfalsefullhttps://www.spreaker.com/episode/heart-warrior-doctor-nurse-team-treating-pediatric-cardiology-patients--27156093
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/27156093Tue, 12 May 2020 16:00:03 +0000Anna JaworskiBrandon Lane Phillips, M.D. and Chris Donald, RN are a unique doctor-nurse duo. Both of these professionals work with children born with heart defects -- just as both of them were born with heart defects themselves. In this episode of "Heart to Heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2279author,baby_hearts_press_people's_cho,brandon_lane_phillips,chris_donald,coronavirus,covid-19,dr._denton_cooley,driskell_children's_hospital,hrhs,hypoplastic_right_heart_syndro,mayo_clinic,nurse,pediatric_cardiologist,pediatric_cardiology,registered_nurse,staying_safe,tetralogy_of_fallot,texas_children's_hospital,virusfalsefullhttps://www.spreaker.com/episode/remembering-david-franco-and-silent-cries--26774835
David Michael Franco passed away on March 12, 2020. He is remembered in this program but this episode is about even more than that! We also get a sneak peek behind the scenes and learn about how the documentary was made, where they went to shoot the film, and who was instrumental in creating a legacy for all involved.

Other programs and information mentioned in the show:

Silent Cries: Breaking Through CHD Awareness
https://tinyurl.com/ycvxfnvg

Phillip Wolf's other appearance on "Heart to Heart with Anna"
Silent Cries: Breaking Through CHD AwarenessSilent Cries: Breaking Through CHD Awareness
https://www.buzzsprout.com/62761/1417627-silent-cries-breaking-through-chd-awareness

Nicole Vickery's other appearances on "Heart to Heart with Anna"

Silent Cries: Moving from Philanthropist to Producer
https://www.buzzsprout.com/62761/398984-silent-cries-moving-from-philanthropist

Transitioning from Teen to Adult
https://www.buzzsprout.com/62761/419422-transitioning-from-teen-to-adult

"Heart to Heart with Nicole and David" featuring Nicole Vickery and David Franco
A New Beginning - https://tinyurl.com/yd3rkgop

Raising Awareness for Congenital Heart Defects
https://tinyurl.com/y85b3x23

Diet and Exercise for Heart Warriors
https://tinyurl.com/y85b3x23

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/26774835Tue, 05 May 2020 16:00:06 +0000Anna JaworskiSilent Cries is an internationally acclaimed documentary created by the father of a son with hypoplastic left heart syndrome for the congenital heart defect community. David Franco was an instrumental part of the team that helped to create this...
David Michael Franco passed away on March 12, 2020. He is remembered in this program but this episode is about even more than that! We also get a sneak peek behind the scenes and learn about how the documentary was made, where they went to shoot the film, and who was instrumental in creating a legacy for all involved.

Other programs and information mentioned in the show:

Silent Cries: Breaking Through CHD Awareness
https://tinyurl.com/ycvxfnvg

Phillip Wolf's other appearance on "Heart to Heart with Anna"
Silent Cries: Breaking Through CHD AwarenessSilent Cries: Breaking Through CHD Awareness
https://www.buzzsprout.com/62761/1417627-silent-cries-breaking-through-chd-awareness

Nicole Vickery's other appearances on "Heart to Heart with Anna"

Silent Cries: Moving from Philanthropist to Producer
https://www.buzzsprout.com/62761/398984-silent-cries-moving-from-philanthropist

Transitioning from Teen to Adult
https://www.buzzsprout.com/62761/419422-transitioning-from-teen-to-adult

"Heart to Heart with Nicole and David" featuring Nicole Vickery and David Franco
A New Beginning - https://tinyurl.com/yd3rkgop

Raising Awareness for Congenital Heart Defects
https://tinyurl.com/y85b3x23

Diet and Exercise for Heart Warriors
https://tinyurl.com/y85b3x23

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2038catholic,cctga,chd,congenital_heart_defects,congenitally_corrected_transpo,david_franco,documentary,gofundme,greg_johnson,independent_film,indiegogo,kevin_johnson,kickboxer,mark_miller,m.d.,movie_production,nicole_vickery,phillip_wolf,silent_cries,toffalsefullhttps://www.spreaker.com/episode/the-bionic-man-of-table-tennis--26295559
In this episode of "Heart to Heart with Anna," Navin shares with Anna what kind of surgeries he has undergone, what challenges he has faced, and how he believes that he has a purpose in life that has transcended any medical obstacles that he may have encountered -- including early-onset Parkinson's disease. He shares his philosophy of life, and in the final segment, he tells Anna about some new and upcoming projects he is excited to be working on.


To read more about Navin P. Kumar here is his IMDB page: www.imdb.me/Navin-P-Kumar

Table tennis articles:

https://www.teamusa.org/USA-Table-Tennis/Features/2014/September/16/Navin-Kumar-Feature

http://www.mhtabletennis.com/2015/01/the-bionic-man-ping-pongs-ultimate.html

Parkinson Article:

http://www.parkingsuns.com/2017/03/19/navin-kumar-parkie-ping-pong-powerhouse/

General Articles:

https://www.chinadaily.com.cn/a/201910/30/WS5db86fb5a310cf3e355744d7.html

https://dbknews.com/0999/12/31/arc-wnpcjswzuzdp3egmwowzv2d7ci/


Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/26295559Tue, 28 Apr 2020 19:00:11 +0000Anna JaworskiNavin P. Kumar is an extraordinary person who has met medical challenges head-on with a positive attitude and a smile. As a child of the 1970s born with a rare, severe congenital heart defect, Navin has endured multiple open-heart surgeries. He was...
In this episode of "Heart to Heart with Anna," Navin shares with Anna what kind of surgeries he has undergone, what challenges he has faced, and how he believes that he has a purpose in life that has transcended any medical obstacles that he may have encountered -- including early-onset Parkinson's disease. He shares his philosophy of life, and in the final segment, he tells Anna about some new and upcoming projects he is excited to be working on.


To read more about Navin P. Kumar here is his IMDB page: www.imdb.me/Navin-P-Kumar

Table tennis articles:

https://www.teamusa.org/USA-Table-Tennis/Features/2014/September/16/Navin-Kumar-Feature

http://www.mhtabletennis.com/2015/01/the-bionic-man-ping-pongs-ultimate.html

Parkinson Article:

http://www.parkingsuns.com/2017/03/19/navin-kumar-parkie-ping-pong-powerhouse/

General Articles:

https://www.chinadaily.com.cn/a/201910/30/WS5db86fb5a310cf3e355744d7.html

https://dbknews.com/0999/12/31/arc-wnpcjswzuzdp3egmwowzv2d7ci/


Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2058actor,aortic_aneurysm,bicuspid_aortic_valve,bionic_heart,congenital_heart_defects,early-onset_parkinson's,mechanical_heart,mitral_valve,navin_p._kumar,open-heart_surgery,parkinson's_disease,philosophy,philosophy_of_life,positive_outlook,positivity,shone's_complex,shone's_syndrome,stroke,table_tennis,texas_children's_hospitalfalsefullhttps://www.spreaker.com/episode/teens-and-the-coronavirus--25847853
Frank Jaworski was also on "Heart to Heart with Anna" on the following episodes:

How Parents’ Relationships are Affected by Having a Child with a CHD
https://tinyurl.com/ybjzltfc

The Miracle of a CCHD Baby's Survival
https://tinyurl.com/ycsqj9al

Congenital Heart Defect Awareness at Podcast Movement 2019
https://tinyurl.com/y63x6mdj

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/25847853Tue, 21 Apr 2020 16:00:14 +0000Anna JaworskiZach Frey and Eva Gambon are teenagers born with hypoplastic left heart syndrome living in the world during the coronavirus pandemic of 2020. Zach, a senior in high school, and Eva, a 7th grader, share their experiences with living during the...
Frank Jaworski was also on "Heart to Heart with Anna" on the following episodes:

How Parents’ Relationships are Affected by Having a Child with a CHD
https://tinyurl.com/ybjzltfc

The Miracle of a CCHD Baby's Survival
https://tinyurl.com/ycsqj9al

Congenital Heart Defect Awareness at Podcast Movement 2019
https://tinyurl.com/y63x6mdj

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2152bi-ventricular_repair,congenital_heart_defect,coronavirus,covid-19,handwashing,hlhs,home_schooling,hypoplastic_left_heart_syndrom,immune_system,lockdown,masks,myth_busting,myths,restrictions,social_distancing,vaccinesfalsefullhttps://www.spreaker.com/episode/how-parents-relationships-are-affected-by-having-a-child-with-a-chd--25848157
This is an encore presentation from Season 1 of "Heart to Heart with Anna."

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/25848157Tue, 21 Apr 2020 15:17:13 +0000Anna JaworskiAccording to the American Psychological Association “Marriage and divorce are both common experiences. In Western cultures, more than 90% of people marry by age 50. Healthy marriages are good for couples’ mental and physical health. They are also good...
This is an encore presentation from Season 1 of "Heart to Heart with Anna."

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3567congenital_heart_defect,congenital_heart_defects,death_of_a_child,divorce,marital_stress,marriage,parents,post_traumatic_stress,post_traumatic_stress_disorder,ptsd,relationships,stress,traumafalsefullhttps://www.spreaker.com/episode/anniversary-of-a-heart-documentary--25495883
James Eric is a heart patient, a director and the producer of Journey’s Beginning, a documentary about Jeni Busta and her life with hypoplastic left heart syndrome or HLHS.

James was a sound technician, producer, writer and director in Hollywood, California until he had a heart attack in 2008. After recovering from quad bypass surgery, he met counselors and campers from Camp Del Corazon on the set of ER and volunteered at the camp the following year. That’s where he met Jeni Busta and learned that a person could actually live with half a heart. A year later, Mr. Eric’s cousin and his wife discovered they were expecting a little girl with hypoplastic left heart syndrome (or HLHS), and decided to continue the pregnancy despite advice from others to terminate.

Jeni and James took a road trip to Colorado to meet his cousin and their daughter. They filmed the journey and created the documentary almost 10 years ago.

Jeni Busta was born with HLHS in 1985. She had her Norwood Procedure at 1 day of age and the Fontan Procedure at 17 months of age. She received a pacemaker when she was 3 years old and has had numerous pacemaker replacements and heart catheterizations since then. Jeni, her parents Jill and Paul Sorensen, and her husband Nick Busta have all been strong advocates in the congenital heart defect community. Perhaps the biggest project for Jeni, to date, has been her participation in the making of the documentary Journey’s Beginning.

To view this documentary, use this link: https://youtu.be/JisLUAfTATc
On Facebook: https://www.facebook.com/Journeys-Beginning-119486121504657/

Here are links of other programs with Jeni Busta mentioned in this episode:

Adults with Congenital Heart Defects Finding Love: https://tinyurl.com/vr25msb

Surviving the Teenage Years with a Congenital Heart Defect: https://tinyurl.com/w49uuz3


Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/25495883Tue, 14 Apr 2020 16:10:37 +0000Anna JaworskiTen years ago two strangers met at a camp for children born with heart defects and became fast friends. The seed of a project was also planted at that time. In this episode of "Heart to Heart with Anna," we'll meet Producer, Director, and Sound...
James Eric is a heart patient, a director and the producer of Journey’s Beginning, a documentary about Jeni Busta and her life with hypoplastic left heart syndrome or HLHS.

James was a sound technician, producer, writer and director in Hollywood, California until he had a heart attack in 2008. After recovering from quad bypass surgery, he met counselors and campers from Camp Del Corazon on the set of ER and volunteered at the camp the following year. That’s where he met Jeni Busta and learned that a person could actually live with half a heart. A year later, Mr. Eric’s cousin and his wife discovered they were expecting a little girl with hypoplastic left heart syndrome (or HLHS), and decided to continue the pregnancy despite advice from others to terminate.

Jeni and James took a road trip to Colorado to meet his cousin and their daughter. They filmed the journey and created the documentary almost 10 years ago.

Jeni Busta was born with HLHS in 1985. She had her Norwood Procedure at 1 day of age and the Fontan Procedure at 17 months of age. She received a pacemaker when she was 3 years old and has had numerous pacemaker replacements and heart catheterizations since then. Jeni, her parents Jill and Paul Sorensen, and her husband Nick Busta have all been strong advocates in the congenital heart defect community. Perhaps the biggest project for Jeni, to date, has been her participation in the making of the documentary Journey’s Beginning.

To view this documentary, use this link: https://youtu.be/JisLUAfTATc
On Facebook: https://www.facebook.com/Journeys-Beginning-119486121504657/

Here are links of other programs with Jeni Busta mentioned in this episode:

Adults with Congenital Heart Defects Finding Love: https://tinyurl.com/vr25msb

Surviving the Teenage Years with a Congenital Heart Defect: https://tinyurl.com/w49uuz3


Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1823bypass_surgery,camp_del_corazon,congenital_heart_defects,director,documentary,fontan_procedure,heart_cath,heart_patient,hlhs,hypoplastic_left_heart_syndrom,inspiration,james_eric,jeni_busta,journey's_beginning,norwood_procedure,pacemaker,pregnancy,producer,sound_engineerfalsefullhttps://www.spreaker.com/episode/coronavirus-and-the-chd-community--24927049
We'll hear from returning Guest, Ann Koplow, a therapist who has experience working with this virus on a number of levels. She will share her struggles and her advice as an at-risk individual on two fronts -- due to her age and her heart condition. We'll also hear from Valerie Guerin, who is the mother of a teen who was born with a congenital heart defect and three years ago received a heart transplant. As the mother of three children and the wife of a now stay-at-home worker, Valerie has her own unique battles and advice.

If you enjoy hearing Ann Koplow's advice, you might also enjoy her blog, The Year(s) of Living Non-Judgmentally here: https://annkoplow.wordpress.com/

Here's a link to Ann's previous "Heart to Heart with Anna" appearance: https://tinyurl.com/y2gp5ute (Shameless Appeals for Applause: With A 66-Year Old ccTGA Heart Warrior)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/24927049Tue, 07 Apr 2020 16:00:19 +0000Anna JaworskiThe coronavirus pandemic has changed our world. We are experiencing social distancing, lockdowns, and fear such as we, in this generation, have never known before. In this episode of "Heart to Heart with Anna," two members of the congenital heart...
We'll hear from returning Guest, Ann Koplow, a therapist who has experience working with this virus on a number of levels. She will share her struggles and her advice as an at-risk individual on two fronts -- due to her age and her heart condition. We'll also hear from Valerie Guerin, who is the mother of a teen who was born with a congenital heart defect and three years ago received a heart transplant. As the mother of three children and the wife of a now stay-at-home worker, Valerie has her own unique battles and advice.

If you enjoy hearing Ann Koplow's advice, you might also enjoy her blog, The Year(s) of Living Non-Judgmentally here: https://annkoplow.wordpress.com/

Here's a link to Ann's previous "Heart to Heart with Anna" appearance: https://tinyurl.com/y2gp5ute (Shameless Appeals for Applause: With A 66-Year Old ccTGA Heart Warrior)

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1855connections,coping_strategies,coronavirus,distance_therapy,endocarditis,facetime,fever,group_therapy,habits,heart_transplant,meditation,pandemic,positivity,social_distancing,transplantfalsefullhttps://www.spreaker.com/episode/waiting-for-a-heart--24682902
If you would like to connect with Lorrie Hill, here is her Instagram handle: @theheartofthejourney

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/24682902Tue, 31 Mar 2020 18:17:37 +0000Anna JaworskiLorrie Hill is a 23-year-old Heart Warrior. Living with a single ventricle heart, she has learned a great deal about the heart, her heart's idiosyncracies, and the importance of exercise in staying healthy. In this episode of "Heart to Heart with...
If you would like to connect with Lorrie Hill, here is her Instagram handle: @theheartofthejourney

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2067asd,atrial_septal_defect,av_canal_repair,bidirectional_glenn,cardiac_transplant,complete_av_canal,congenital_heart_defect,dilv,double-inlet_left_ventricle,ejection_fraction,energy_walls,heart_transplant,oxygen_saturation_level,pa_band,single_ventricle,supplemental_oxygen,transplant,valve_separation,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/panel-discussion-on-labels-or-terms-used-in-the-heart-community--23737650
How do terms and labels affect those born with congenital heart defects? Do terms define a person? Do labels hurt? Can labels cause bullying? What are the pros and cons of using abbreviations and labels when referring to people who were born with congenital heart defects?

Panelists include return Guests Laura Ryan, Kathy Ware, Aubyn Baker-Riley and new "Heart to Heart with Anna" Guests Jen Hart Mulder and Felisha Jarschke. Tune in to hear how these panelists refer to themselves, refer to others in the heart community, and what terms are considered acceptable and which terms or labels are disliked by panelists.

Other "Heart to Heart with Anna" episodes mentioned in this podcast:

Laura Ryan's podcast:
Heart Warrior Mom Raising Children to Adulthood -- https://api.spreaker.com/v2/episodes/11707240/download.mp3
Living with a Bi-directional Glenn Heart: https://api.spreaker.com/v2/episodes/18985475/download.mp3

Laura Ryan and Kathy Ware's podcast:
A Heart Warrior’s Early Onset Menopause -- https://api.spreaker.com/v2/episodes/11757168/download.mp3

Kathy Ware's podcast:
From Learning Disabled to College Professor -- https://api.spreaker.com/v2/episodes/18441301/download.mp3

Aubyn Baker-Riley's podcast:
When a Heart Warrior is Living in Heart Failure --https://api.spreaker.com/v2/episodes/19214807/download.mp3

Jen Hart Mulder's podcast:
Hartfelt: Living Life with Congenital Heart Disease --
https://podcasts.apple.com/us/podcast/episode-1-in-the-beginning/id1499538729?i=1000465969520

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/23737650Wed, 11 Mar 2020 16:00:15 +0000Anna JaworskiThis panel discussion includes four adults who were born with congenital heart defects and one parent of a twin daughter who was born with a heart defect. Host, Anna Jaworski, is the mother of an adult son who was born with a congenital heart defect....
How do terms and labels affect those born with congenital heart defects? Do terms define a person? Do labels hurt? Can labels cause bullying? What are the pros and cons of using abbreviations and labels when referring to people who were born with congenital heart defects?

Panelists include return Guests Laura Ryan, Kathy Ware, Aubyn Baker-Riley and new "Heart to Heart with Anna" Guests Jen Hart Mulder and Felisha Jarschke. Tune in to hear how these panelists refer to themselves, refer to others in the heart community, and what terms are considered acceptable and which terms or labels are disliked by panelists.

Other "Heart to Heart with Anna" episodes mentioned in this podcast:

Laura Ryan's podcast:
Heart Warrior Mom Raising Children to Adulthood -- https://api.spreaker.com/v2/episodes/11707240/download.mp3
Living with a Bi-directional Glenn Heart: https://api.spreaker.com/v2/episodes/18985475/download.mp3

Laura Ryan and Kathy Ware's podcast:
A Heart Warrior’s Early Onset Menopause -- https://api.spreaker.com/v2/episodes/11757168/download.mp3

Kathy Ware's podcast:
From Learning Disabled to College Professor -- https://api.spreaker.com/v2/episodes/18441301/download.mp3

Aubyn Baker-Riley's podcast:
When a Heart Warrior is Living in Heart Failure --https://api.spreaker.com/v2/episodes/19214807/download.mp3

Jen Hart Mulder's podcast:
Hartfelt: Living Life with Congenital Heart Disease --
https://podcasts.apple.com/us/podcast/episode-1-in-the-beginning/id1499538729?i=1000465969520

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1855chd,chd_fighter,child_with_chd,congenital_heart_defect,congenital_heart_disease,definitions,emotion,fontan,heart_community,heart_condition,heart_defect,heart_disease,heart_hero,heart_survivor,heart_thriver,heart_warrior,labels,stigma,terms,zipper_sisterfalsefullhttps://www.spreaker.com/episode/heart-warrior-choosing-adoption--23434428
In this episode, Brenna shares with Anna how she and George came to decide on adoption as the method for them to grow their family. Brenna openly shares with Anna what it was like growing up with a heart defect and her conversations with her doctors and her loved ones regarding pregnancy, surrogacy, and adoption. Tune in to hear how Brenna feels about all of these options and what advice she has for others contemplating the same journey she and George are currently on.

Other Heart to Heart with Anna episode you might enjoy:

The Miracles of Adopting a Child with a Congenital Heart Defect: https://www.buzzsprout.com/62761/398971-the-miracles-of-adoption


Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/23434428Tue, 03 Mar 2020 17:00:14 +0000Anna JaworskiOwen Brenna Isaacson was born with a complex congenital heart defect who has had multiple open-heart surgeries, pacemakers implanted, cardioversions and ablations. Despite the medical challenges she has faced, she has been able to lead a fairly normal...
In this episode, Brenna shares with Anna how she and George came to decide on adoption as the method for them to grow their family. Brenna openly shares with Anna what it was like growing up with a heart defect and her conversations with her doctors and her loved ones regarding pregnancy, surrogacy, and adoption. Tune in to hear how Brenna feels about all of these options and what advice she has for others contemplating the same journey she and George are currently on.

Other Heart to Heart with Anna episode you might enjoy:

The Miracles of Adopting a Child with a Congenital Heart Defect: https://www.buzzsprout.com/62761/398971-the-miracles-of-adoption


Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1801ablations,adoption,complex_congenital_heart_defec,congenital_heart_defects,family_planning,in-vitro_fertilization,ivf,open-heart_surgery,pacemaker,single_ventricle_heart,surrogacy,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/nurse-burnout-in-the-chd-community-part-2--23176481
Other Heart to Heart with Anna episodes you might enjoy:

Nurse Burnout in the Congenital Heart Defect Community Part 1: https://tinyurl.com/rwtuazs

Doctor Burnout in the Congenital Heart Defect Community: https://tinyurl.com/rgtgwvn

Deena Barber's programs -- The Natural Course of Congenital Heart Defects https://tinyurl.com/w36ywtf

A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 1 and Part 2
https://tinyurl.com/wrmy5rs
https://tinyurl.com/us4ac2o

Christy Sillman's program -- Rethinking Transition Care for CHD Survivors
https://tinyurl.com/vcfr7ms

Roslyn Rivera's programs -- CHDs Around the Globe - Novick Cardiac Alliance
https://tinyurl.com/rv3rcll

A View From the Other Side of the Bed
https://tinyurl.com/w7cydol

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/23176481Tue, 25 Feb 2020 17:00:20 +0000Anna JaworskiThis episode of "Heart to Heart with Anna" is a continuation of the episode on nurse burnout. Part 1 of this two-part series dealt with identifying what kind of people tend to be attracted to working in the field of congenital heart defects, what...
Other Heart to Heart with Anna episodes you might enjoy:

Nurse Burnout in the Congenital Heart Defect Community Part 1: https://tinyurl.com/rwtuazs

Doctor Burnout in the Congenital Heart Defect Community: https://tinyurl.com/rgtgwvn

Deena Barber's programs -- The Natural Course of Congenital Heart Defects https://tinyurl.com/w36ywtf

A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 1 and Part 2
https://tinyurl.com/wrmy5rs
https://tinyurl.com/us4ac2o

Christy Sillman's program -- Rethinking Transition Care for CHD Survivors
https://tinyurl.com/vcfr7ms

Roslyn Rivera's programs -- CHDs Around the Globe - Novick Cardiac Alliance
https://tinyurl.com/rv3rcll

A View From the Other Side of the Bed
https://tinyurl.com/w7cydol

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

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YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

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If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2830advocacy,anger,anxiety,aromatherapy,breathing_exercises,debriefings,depression,gratitude_jar,meditation,morbidity_and_mortality_confer,nurse_burnout,nurses,provider_wellness,ptsd,schwartz_rounds,the_art_of_nursing,trauma,wellness,wellness_workshopfalsefullhttps://www.spreaker.com/episode/nurse-burnout-in-the-chd-community-part-1--22903969
This program is the first of a two-part series investigating this important topic. Next week's program specifically deals with solutions to nurse burnout -- solutions that the CHD community can quickly and easily implement, as well as suggestions for hospitals, clinics, and organizations that employ nurses serving this special population.

Other Heart to Heart with Anna episodes mentioned in this episode include:

Deena Barber's programs -- The Natural Course of Congenital Heart Defects https://tinyurl.com/w36ywtf

A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 1 and Part 2
https://tinyurl.com/wrmy5rs
https://tinyurl.com/us4ac2o

Christy Sillman's program -- Rethinking Transition Care for CHD Survivors
https://tinyurl.com/vcfr7ms

Roslyn Rivera's programs -- CHDs Around the Globe - Novick Cardiac Alliance
https://tinyurl.com/rv3rcll

A View From the Other Side of the Bed
https://tinyurl.com/w7cydol

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Doctor Burnout in the Congenital Heart Defect Community
https://tinyurl.com/rgtgwvn

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/22903969Tue, 18 Feb 2020 17:00:14 +0000Anna JaworskiAnna Jaworski is joined by a panel of nurses to discuss a very important topic in this episode of "Heart to Heart with Anna." Deena Barber, Christy Sillman and, Roslyn Rivera share their experiences with Anna about nurse burnout, why nurses who serve...
This program is the first of a two-part series investigating this important topic. Next week's program specifically deals with solutions to nurse burnout -- solutions that the CHD community can quickly and easily implement, as well as suggestions for hospitals, clinics, and organizations that employ nurses serving this special population.

Other Heart to Heart with Anna episodes mentioned in this episode include:

Deena Barber's programs -- The Natural Course of Congenital Heart Defects https://tinyurl.com/w36ywtf

A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 1 and Part 2
https://tinyurl.com/wrmy5rs
https://tinyurl.com/us4ac2o

Christy Sillman's program -- Rethinking Transition Care for CHD Survivors
https://tinyurl.com/vcfr7ms

Roslyn Rivera's programs -- CHDs Around the Globe - Novick Cardiac Alliance
https://tinyurl.com/rv3rcll

A View From the Other Side of the Bed
https://tinyurl.com/w7cydol

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Doctor Burnout in the Congenital Heart Defect Community
https://tinyurl.com/rgtgwvn

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1899anger,burnout,congenital_heart_defects,depression,grief,nurse_burnout,nurses,nurse_wellness,pediatric_cardiology,post-traumatic_stress_disorder,ptsd,resiliency,stressfalsefullhttps://www.spreaker.com/episode/a-scar-behind-the-scrubs--22661306
In this episode, we'll learn more about Nauman, why he decided to study medicine, how his knowledge has helped him deal with unexpected situations, and what he hopes for his future.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/22661306Tue, 11 Feb 2020 17:00:13 +0000Anna JaworskiNauman Shahid is currently a 33-year-old male who knows that the right things came together for his survival. Nauman’s parents were told that tetralogy of Fallot (TOF) had no cure in Pakistan in 1987 and that any chance of survival would be in either...
In this episode, we'll learn more about Nauman, why he decided to study medicine, how his knowledge has helped him deal with unexpected situations, and what he hopes for his future.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1839children_of_the_world,deborah_heart_and_lung_center,doctor,inspirational_story,lion's_club,medical_school,open-heart_surgery,osteopathic_medicine,pakistan,tetralogy_of_fallot,toffalsefullhttps://www.spreaker.com/episode/continuing-education-for-understanding-the-liver-in-fontan-patients--22394869
Tune in to discover answers to these questions and much, much more!

Articles that Dr. Wu mentioned in our episode:

https://www.ahajournals.org/doi/10.1161/CIR.0000000000000535 (Diagnosis and Management of Noncardiac Complications in Adults with Congenital Heart Disease: A Scientific Statement from the AHA)

https://www.sciencedirect.com/science/article/pii/S0735109717412976?via%3Dihub (Fontan-Associated Liver Disease: Proceedings from the ACC Stakeholders Meeting)

https://www.ahajournals.org/doi/10.1161/CIR.0000000000000696 (Evaluation and Management of the Child and Adult with Fontan Circulation: A Scientific Statement from the AHA)

You can listen to Dr. Wu's earlier podcasts here:

Advancements in Understanding the Liver in Fontan Patients: Part 1 (https://api.spreaker.com/v2/episodes/10373705/download.mp3)

Advancements in Understanding the Liver in Fontan Patients Part 2 (https://api.spreaker.com/v2/episodes/10412937/download.mp3)

This episode is not meant as personal medical advice, but rather an educational interview designed to enlighten members of the CHD community and to spark conversation about a topic. Always consult your own doctor or medical team regarding your treatment plan.

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page

Instagram

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/22394869Tue, 04 Feb 2020 17:00:10 +0000Anna JaworskiDr. Fred Wu returns to "Heart to Heart with Anna" for an update on the Fontan-Liver connection that we have come to understand in the last ten years. What are the factors that contribute to Fontan-Associated-Liver Disease? Who is at risk? What...
Tune in to discover answers to these questions and much, much more!

Articles that Dr. Wu mentioned in our episode:

https://www.ahajournals.org/doi/10.1161/CIR.0000000000000535 (Diagnosis and Management of Noncardiac Complications in Adults with Congenital Heart Disease: A Scientific Statement from the AHA)

https://www.sciencedirect.com/science/article/pii/S0735109717412976?via%3Dihub (Fontan-Associated Liver Disease: Proceedings from the ACC Stakeholders Meeting)

https://www.ahajournals.org/doi/10.1161/CIR.0000000000000696 (Evaluation and Management of the Child and Adult with Fontan Circulation: A Scientific Statement from the AHA)

You can listen to Dr. Wu's earlier podcasts here:

Advancements in Understanding the Liver in Fontan Patients: Part 1 (https://api.spreaker.com/v2/episodes/10373705/download.mp3)

Advancements in Understanding the Liver in Fontan Patients Part 2 (https://api.spreaker.com/v2/episodes/10412937/download.mp3)

This episode is not meant as personal medical advice, but rather an educational interview designed to enlighten members of the CHD community and to spark conversation about a topic. Always consult your own doctor or medical team regarding your treatment plan.

Please take a moment to follow us on your preferred social media platforms:

Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)

Facebook (https://www.facebook.com/HearttoHeartwithAnna/)

YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)

Instagram (https://www.instagram.com/hugpodcastnetwork/)

If you enjoy this program and would like to be a Patron, please check out our Patreon page

Instagram

If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2145active_lifestyle,alcohol,biventricular_repair,cardiac_output,central-venous_pressure,ct-scan,dr._fred_wu,fibrosis,fontan-associated-liver_diseas,fontan-liver_disease,fontan_procedure,heart-liver-transplant_pumps,hepatisis,liver_congestion,liver_disease,mri,nodules,obesity,scar_tissue,variose_veinsfalsefullhttps://www.spreaker.com/episode/end-of-life-financial-planning-considerations-for-the-members-of-the-congenital-heart-defect-community--22160370
Laura has a passion for educating individuals on financial topics and speaking in “real world” terms to inspire individuals to become confident in making financial decisions. An experienced speaker and trainer, Laura has presented financial seminars at the American Business Women’s Association, Temple College and McLennan Community College.

Laura has almost 2 decades of experience working with teachers, baby boomers and women to align financial goals with life values. Laura’s mission is to reduce clients’ stress, make money meaningful, and take the fear out of finance.

In today's episode, Laura and Anna talk about end-of-life financial planning. Laura helps us understand if people in certain circumstances need to have special financial planning considerations and she talks about certain groups of people in the CHD community and how their plans may be (or may not be) different than the general public. Enjoy this informative program that busts certain myths about finance and provides a lot of information that can help anyone and everyone!

Notes from Laura:

The information contained herein should not be construed as personalized investment advice.

The Certified Financial Transitionist Designation is offered and recognized through the Financial Transitionist Institute. More information about the requirements can be found here: https://www.finra.org/investors/professional-designations/ceftr

Investment advisory services offered through, Shadowridge Asset Management, a registered investment adviser.

Here are some links we used in putting this episode together. While we found them helpful, we are not responsible for the content and recommend you seek counsel from your own professionals when actually planning your medical and financial future.

HSA (Health Savings Accounts): https://www.healthcare.gov/glossary/health-savings-account-hsa/

Estate planning documents (select your state): https://eforms.com/estate-planning/tx/

IRS Info on Medical Deductions: https://www.irs.gov/publications/p502

Medicare info, specifically on organ transplants: https://www.medicare.gov/coverage/organ-transplants

Medicare and Medicaid info and attorneys: http://www.attorneys.com/wills-trusts-and-probate/medicare-and-medicaid

Search for Medicare and Medicaid attorneys in your area, including reviews: https://www.lawyers.com/medicare-and-medicaid/find-law-firms-by-location/

Info on CFP / why choose a CFP Pro/search for CFP in your area: https://www.letsmakeaplan.org/why-choose-a-cfp-professional

Foundation for Financial Planning, Pro Bono resource: https://foundationforfinancialplanning.org/consumer-resources/

Article about free or inexpensive financial advice resources: https://www.nerdwallet.com/blog/investing/free-financial-advice/

Shadowridge FAQ page: https://shadowridgeinvest.com/faq/

Living Will information https://www.legalzoom.com/knowledge/living-will/topic/what-is-a-living-will


Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/22160370Tue, 28 Jan 2020 17:00:09 +0000Anna JaworskiLaura Redfern, CFP® earned her Certified Financial Planner™ designation in 2011, after working for over 10 years in the financial services industry. Having a background in investment management and retirement planning, Laura was attracted to...
Laura has a passion for educating individuals on financial topics and speaking in “real world” terms to inspire individuals to become confident in making financial decisions. An experienced speaker and trainer, Laura has presented financial seminars at the American Business Women’s Association, Temple College and McLennan Community College.

Laura has almost 2 decades of experience working with teachers, baby boomers and women to align financial goals with life values. Laura’s mission is to reduce clients’ stress, make money meaningful, and take the fear out of finance.

In today's episode, Laura and Anna talk about end-of-life financial planning. Laura helps us understand if people in certain circumstances need to have special financial planning considerations and she talks about certain groups of people in the CHD community and how their plans may be (or may not be) different than the general public. Enjoy this informative program that busts certain myths about finance and provides a lot of information that can help anyone and everyone!

Notes from Laura:

The information contained herein should not be construed as personalized investment advice.

The Certified Financial Transitionist Designation is offered and recognized through the Financial Transitionist Institute. More information about the requirements can be found here: https://www.finra.org/investors/professional-designations/ceftr

Investment advisory services offered through, Shadowridge Asset Management, a registered investment adviser.

Here are some links we used in putting this episode together. While we found them helpful, we are not responsible for the content and recommend you seek counsel from your own professionals when actually planning your medical and financial future.

HSA (Health Savings Accounts): https://www.healthcare.gov/glossary/health-savings-account-hsa/

Estate planning documents (select your state): https://eforms.com/estate-planning/tx/

IRS Info on Medical Deductions: https://www.irs.gov/publications/p502

Medicare info, specifically on organ transplants: https://www.medicare.gov/coverage/organ-transplants

Medicare and Medicaid info and attorneys: http://www.attorneys.com/wills-trusts-and-probate/medicare-and-medicaid

Search for Medicare and Medicaid attorneys in your area, including reviews: https://www.lawyers.com/medicare-and-medicaid/find-law-firms-by-location/

Info on CFP / why choose a CFP Pro/search for CFP in your area: https://www.letsmakeaplan.org/why-choose-a-cfp-professional

Foundation for Financial Planning, Pro Bono resource: https://foundationforfinancialplanning.org/consumer-resources/

Article about free or inexpensive financial...]]>2219401k,beneficiaries,congenital_heart_defects,donations,end-of-life_planning,financial_planner,financial_planning,fundraisers,gift,gofundme,health_savings_account,help,hsa,insurance,laura_redfern,medicaid,medicare,taxable_income,taxes,willfalsefullhttps://www.spreaker.com/episode/the-mental-health-of-a-heart-mom--21410638
Please take a moment to follow us on your preferred social media platforms:

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Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/21410638Tue, 21 Jan 2020 17:00:14 +0000Anna JaworskiHeart Mom veterans and dear friends, Helen Simpson and Anna Jaworski, discuss a concern they have regarding the mental health needs of women whose babies have been identified with congenital heart defects and need surgery. As mothers of young adults...
Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2069congenital_heart_defects,counseling,heart_moms,heart_warriors,hlhs,hospitalization,hypoplastic_left_heart_syndrom,mental_health,open-heart_surgery,post-traumatic_stress_disorder,ptsd,support,support_groupsfalsefullhttps://www.spreaker.com/episode/doctor-burnout-in-the-congenital-heart-defect-community--21676754
Dr. Ami Bhatt and Dr. William Novick join Anna to discuss this important topic. What shift in framework is being taught to residents and fellows in some parts of the United States? What changes in the field of medicine in the last 20 years have contributed to doctor burnout? Are certain types of doctors more at risk than others?

Tune in to hear the answers to these questions and much, much more!
Articles, people, and organizations mentioned in this broadcast:

Many US Cardiologists ‘On the Brink of Burnout’
https://www.tctmd.com/news/many-us-cardiologists-brink-burnout
Burnout – preventing, recognising and treating
https://www.helsana.ch/en/blog/burnout-preventing-recognising-and-treating
Beyond the Economics of Burnout
Annals of Internal Medicine. 2019; 170(11): 807-808.

Additional links for Dr. Ami Bhatt:
Ami Bhatt: Closer at a Distance (Business Innovation Factory)
https://www.businessinnovationfactory.com/video/ami-bhatt-closer-at-a-distance/
Telemedicine and Patients with Congenital Heart Defects (Heart to Heart with Anna) https://tinyurl.com/wny9l3l

Additional link for Dr. William Novick
Healing the Hearts of Croatia, Libya, Ecuador, and Beyond (Heart to Heart with Anna) https://tinyurl.com/ss7suto
Benson-Henry Institute: https://www.bensonhenryinstitute.org/

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/21676754Tue, 14 Jan 2020 17:00:02 +0000Anna JaworskiDoctor Burnout is not a new phenomenon but this episode of Heart to Heart with Anna tackles the topic from a unique perspective. How can members of the congenital heart defect (CHD) community come together to acknowledge that doctor burnout does exist...
Dr. Ami Bhatt and Dr. William Novick join Anna to discuss this important topic. What shift in framework is being taught to residents and fellows in some parts of the United States? What changes in the field of medicine in the last 20 years have contributed to doctor burnout? Are certain types of doctors more at risk than others?

Tune in to hear the answers to these questions and much, much more!
Articles, people, and organizations mentioned in this broadcast:

Many US Cardiologists ‘On the Brink of Burnout’
https://www.tctmd.com/news/many-us-cardiologists-brink-burnout
Burnout – preventing, recognising and treating
https://www.helsana.ch/en/blog/burnout-preventing-recognising-and-treating
Beyond the Economics of Burnout
Annals of Internal Medicine. 2019; 170(11): 807-808.

Additional links for Dr. Ami Bhatt:
Ami Bhatt: Closer at a Distance (Business Innovation Factory)
https://www.businessinnovationfactory.com/video/ami-bhatt-closer-at-a-distance/
Telemedicine and Patients with Congenital Heart Defects (Heart to Heart with Anna) https://tinyurl.com/wny9l3l

Additional link for Dr. William Novick
Healing the Hearts of Croatia, Libya, Ecuador, and Beyond (Heart to Heart with Anna) https://tinyurl.com/ss7suto
Benson-Henry Institute: https://www.bensonhenryinstitute.org/

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2363benson-henry_institute,compartmentalization,congenital_heart_defects,doctor_burnout,electronic_medical_records,emrs,frame_of_mind,frame_shift,positive_thinking,promoting_wellness,resilience_training,stress,warning_signs,wellnessfalsefullhttps://www.spreaker.com/episode/turning-the-tables-david-simpson-interviews-anna-and-frank-jaworski--21377047
In this episode, you'll discover why Anna does what she does and what she has planned for the future. You'll also hear from her husband Frank as he shares with David what it's like to be a medical professional with a son with a complex congenital heart defect.

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/21377047Tue, 07 Jan 2020 17:00:15 +0000Anna JaworskiAfter 250 episodes and 6 years of broadcasting, Guest Host David Simpson turns the tables on Host Anna Jaworski and becomes the interviewer. David Simpson is a former Guest on "Heart to Heart with Anna" and he and his wife Helen had a chance to meet...
In this episode, you'll discover why Anna does what she does and what she has planned for the future. You'll also hear from her husband Frank as he shares with David what it's like to be a medical professional with a son with a complex congenital heart defect.

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1882author,books,congenital_heart_defects,crna,heart_community,heart_dad,heart_mom,icu_nurse,medical_professional,nurse,nurse_anesthetist,open-heart_surgery,podcast,siblingsfalsefullhttps://www.spreaker.com/episode/getting-to-know-keith-flynn-a-heart-transplant-hopeful--19751028
In his 30s, Keith started experiencing syncopal (or fainting) episodes, and on one occasion was rescued by his wife after fainting while swimming. As a result of these episodes, Keith received a pacemaker and recording device and was treated with Sotalol, a beta-blocker. However, Keith had also begun to experience fluid retention related to heart failure, and doctors told him that he would need a heart and liver transplant. He is currently undergoing the required testing to be listed for both organs.

Over the years, Keith worked for a variety of retail and restaurant businesses, before working his way up to managing and owning businesses. He also started doing stand up comedy. Most recently, he has worked in the health and disability rights fields and earned his Bachelor’s degree in Accounting. He met his wife in 2003 and currently lives in Baltimore.

In this episode, Keith will share more about his life -- living with a congenital heart defect -- with Anna. He will also explain how he has come to need to be listed for two different organs. He will also share with Anna what he believes keeps him going, even when the going gets rough.

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19751028Tue, 29 Oct 2019 16:00:06 +0000Anna JaworskiKeith Flynn was born in 1975 and shortly after birth, he was diagnosed with Ventricular Septal Defect, Double Inlet Left Ventricle, Pulmonary Atresia, and Hypoplastic Right Ventricle. He had two Blalock-Taussig shunts at age 6 months and 5 years, and...
In his 30s, Keith started experiencing syncopal (or fainting) episodes, and on one occasion was rescued by his wife after fainting while swimming. As a result of these episodes, Keith received a pacemaker and recording device and was treated with Sotalol, a beta-blocker. However, Keith had also begun to experience fluid retention related to heart failure, and doctors told him that he would need a heart and liver transplant. He is currently undergoing the required testing to be listed for both organs.

Over the years, Keith worked for a variety of retail and restaurant businesses, before working his way up to managing and owning businesses. He also started doing stand up comedy. Most recently, he has worked in the health and disability rights fields and earned his Bachelor’s degree in Accounting. He met his wife in 2003 and currently lives in Baltimore.

In this episode, Keith will share more about his life -- living with a congenital heart defect -- with Anna. He will also explain how he has come to need to be listed for two different organs. He will also share with Anna what he believes keeps him going, even when the going gets rough.

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1851ablations,arrhythmias,blalock-taussig_shunt,congenital_heart_defects,congestive_heart_failure,double_inlet_left_ventricle,fainting,fontan_procedure,heart-liver_transplant,heart_transplant,hypoplastic_right_ventricle,liver_transplant,organ_donation,pacemaker,pulmonary_atresia,single_ventricle_heart,syncope,transplantation,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/texas-heart-mom-and-daniel-s-lion-heart-founder-staci-geiger--19631616
A mother, teacher and friend in the heart community, Staci decided to start a nonprofit organization to assist Christians facing the same trauma she experienced. Armed with compassion and a strong faith in God, she is working to provide support and comfort to others in the congenital heart defect community.

Tune in to this new podcast to hear Staci share her story about her son's medical journey, why and how she started a nonprofit organization and what her vision for the future is.

To visit Daniel's Lion Heart Foundation, go to: www.danielslionheart.com

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

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YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19631616Tue, 22 Oct 2019 16:00:15 +0000Anna JaworskiTexas Heart Mom, Staci Geiger, has experienced the trauma of handing her son over to surgeons far too many times. This experience left her grateful for the amazing care her son received and feeling blessed for his resilience and fortitude but it also...
A mother, teacher and friend in the heart community, Staci decided to start a nonprofit organization to assist Christians facing the same trauma she experienced. Armed with compassion and a strong faith in God, she is working to provide support and comfort to others in the congenital heart defect community.

Tune in to this new podcast to hear Staci share her story about her son's medical journey, why and how she started a nonprofit organization and what her vision for the future is.

To visit Daniel's Lion Heart Foundation, go to: www.danielslionheart.com

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1715501c3,advocacy,chd_support,christian_nonprofit,congenital_heart_defects,daniel's_lion_heart,dlhf,heart_mom,hlhs,hypoplastic_left_heart_syndrom,nonprofit_organization,supportfalsefullhttps://www.spreaker.com/episode/care-hope-discover-2019-conference--19519690
This one-day educational conference is for CHD patients, family, friends, and caregivers. There will be an amazing group of speakers, medical providers and an inspiring panel of adults who are either living with CHD or a parent of a CHD patient. The conference begins at 9:00 a.m. (registration opens at 8 a.m.) and runs until 4:30 p.m. A Saturday Post-Conference Networking event is included with registration and begins at 5:00 p.m.

Featured speakers include Drs. Ram Emani, Mike Landzberg, Doug Mah, Fred Wu, Boston Children's Hospital; Ami Bhatt, Mass General; Mark Zilberman, Tufts Medical Center; and Paul Thayer, Boston University.

Use this link for more information and registration.

ACHA is a co-sponsor of this event along with It's My Heart New England, Adults Living with CHD of MA and The Children's Heart Foundation - New England Chapter.


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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19519690Tue, 15 Oct 2019 16:00:06 +0000Anna JaworskiIn this episode of Heart to Heart with Anna, returning Guest, Mary Kay Klein talks with Anna about an upcoming conference for the congenital heart defect community. Care, Hope, Discover 2019: A Congenital Heart Defect Conference will occur on October...
This one-day educational conference is for CHD patients, family, friends, and caregivers. There will be an amazing group of speakers, medical providers and an inspiring panel of adults who are either living with CHD or a parent of a CHD patient. The conference begins at 9:00 a.m. (registration opens at 8 a.m.) and runs until 4:30 p.m. A Saturday Post-Conference Networking event is included with registration and begins at 5:00 p.m.

Featured speakers include Drs. Ram Emani, Mike Landzberg, Doug Mah, Fred Wu, Boston Children's Hospital; Ami Bhatt, Mass General; Mark Zilberman, Tufts Medical Center; and Paul Thayer, Boston University.

Use this link for more information and registration.

ACHA is a co-sponsor of this event along with It's My Heart New England, Adults Living with CHD of MA and The Children's Heart Foundation - New England Chapter.


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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1716congenital_heart_defect,congenital_heart_defect_confer,congenital_heart_defects,continuing_education,dr._ami_bhatt,dr._doug_mah,dr._fred_wu,dr._mark_zilberman,dr._mike_landzberg,dr._ram_emani,heart_conference,medical_conference,paul_thayerfalsefullhttps://www.spreaker.com/episode/raising-awareness-of-ivemark-syndrome--19309426
Julia Mayfield is and adult born with a rare genetic condition called Ivemark Syndrome. According to the National Organization for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in the chest and or abdomen. Julia’s heart is on the right side of her chest and she is missing her spleen. By the time she was nine, she had been through four open-heart surgeries, the final of which caused a massive stroke post-op. She also developed severe scoliosis and required surgery. She is joining us today to raise awareness of Ivemark Syndrome and share her experiences of growing up and adulthood with this condition.

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19309426Tue, 01 Oct 2019 16:00:12 +0000Anna JaworskiIf you've ever wondered what Ivemark Syndrome is, you need to listen to this program! Ivemark Syndrome is a very rare constellation of birth defects which typically include malformations of the heart. Julia Mayfield is and adult born with a rare...
Julia Mayfield is and adult born with a rare genetic condition called Ivemark Syndrome. According to the National Organization for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in the chest and or abdomen. Julia’s heart is on the right side of her chest and she is missing her spleen. By the time she was nine, she had been through four open-heart surgeries, the final of which caused a massive stroke post-op. She also developed severe scoliosis and required surgery. She is joining us today to raise awareness of Ivemark Syndrome and share her experiences of growing up and adulthood with this condition.

Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1809aspleenia,congenital_heart_defects,fontan,heterotaxy,ivemark_syndrome,open-heart-surgery,polysplenia,procedure,rare_disorderfalsefullhttps://www.spreaker.com/episode/when-a-heart-warrior-is-living-in-heart-failure--19214807
Although Aubyn is only in her 50s, it's unusual for someone like her to have made it to adulthood. Many people born in the 1960s, and even in the next decade, succumbed to their heart defects before reaching adulthood. What has Aubyn's path been like for her? What symptoms and warning signs has she had?

More importantly, what is it like to live in heart failure? What are some coping techniques that can be used if you are in heart failure? Aubyn answers these questions and more in today's episode of "Heart to Heart with Anna."

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19214807Tue, 24 Sep 2019 16:00:19 +0000Anna JaworskiAubyn Baker-Riley is an adult born in 1963 with a bicuspid aortic valve and coarctation of the aorta. She had open-heart surgery at 7 years of age to widen the coarctation and ablations in 2005, 2016 and 2018. She is currently in heart failure....
Although Aubyn is only in her 50s, it's unusual for someone like her to have made it to adulthood. Many people born in the 1960s, and even in the next decade, succumbed to their heart defects before reaching adulthood. What has Aubyn's path been like for her? What symptoms and warning signs has she had?

More importantly, what is it like to live in heart failure? What are some coping techniques that can be used if you are in heart failure? Aubyn answers these questions and more in today's episode of "Heart to Heart with Anna."

Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2136ablations,amiodarone,anxiety,arrhythmias,bicuspid_aortic_valve,coarctation_of_the_aorta,congenital_heart_defect,depression,edema,heart_failure,mri,open_heart_surgery,overeating,pet,positron_emission_tomography,quality_of_life,stress,uncertaintyfalsefullhttps://www.spreaker.com/episode/5th-annual-adult-congenital-heart-symposium--19126795
Dr. C. Huie Lin specializes in the care of adults with congenital heart defects. He is certified in the care of adults with congenital heart defects -- which is a fairly new specialization. Dr. Lins’s research work is focused on surgical intervention in congenital heart disease and adult congenital heart disease programs. Along with medicine, Dr. Lin also helped to establish the Adult Congenital Heart Symposium, a regional Houston conference which is held every year.

In this episode of Heart to Heart with Anna, Dr. Lin shares with Anna what to expect at the 5th Annual Adult Congenital Heart Symposium. He talks about why the symposium was created by him and Dr. Ari Cedars. He explained their goals with providing the community with an opportunity for doctors, parents, Heart Warriors and anyone else in their lives to all come together to learn about topics of interest to those living with congenital heart defects.

For the Houston Methodist YouTube channel go here: https://www.youtube.com/channel/UCb8PGmJ6SILfyOvOWJvHZIg

Use this link for the playlist of last year’s Adult Congenital Heart symposium: https://www.youtube.com/playlist?list=PLZpDzANLjPtWXE2mv8oWSEMuEtteQhElH

To register for this year's Adult Congenital Heart Symposium, use this link: http://events.houstonmethodist.org/events/5th-annual-adult-congenital-heart-symposium/event-summary-da59d4fc2cf04f4cbb6d2828b55fb2d2.aspx

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19126795Tue, 17 Sep 2019 16:00:03 +0000Anna JaworskiDr. C. Huie Lin is the Director of the Adult Congenital Heart Program at Houston Methodist Hospital. Dr. Lin earned his Ph.D. and M.D. from the University of Virginia. His residency was done at Beth Israel Deaconess Medical Center in Boston and he...
Dr. C. Huie Lin specializes in the care of adults with congenital heart defects. He is certified in the care of adults with congenital heart defects -- which is a fairly new specialization. Dr. Lins’s research work is focused on surgical intervention in congenital heart disease and adult congenital heart disease programs. Along with medicine, Dr. Lin also helped to establish the Adult Congenital Heart Symposium, a regional Houston conference which is held every year.

In this episode of Heart to Heart with Anna, Dr. Lin shares with Anna what to expect at the 5th Annual Adult Congenital Heart Symposium. He talks about why the symposium was created by him and Dr. Ari Cedars. He explained their goals with providing the community with an opportunity for doctors, parents, Heart Warriors and anyone else in their lives to all come together to learn about topics of interest to those living with congenital heart defects.

For the Houston Methodist YouTube channel go here: https://www.youtube.com/channel/UCb8PGmJ6SILfyOvOWJvHZIg

Use this link for the playlist of last year’s Adult Congenital Heart symposium: https://www.youtube.com/playlist?list=PLZpDzANLjPtWXE2mv8oWSEMuEtteQhElH

To register for this year's Adult Congenital Heart Symposium, use this link: http://events.houstonmethodist.org/events/5th-annual-adult-congenital-heart-symposium/event-summary-da59d4fc2cf04f4cbb6d2828b55fb2d2.aspx

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>28093-d_imaging,cardiology,congenital_heart_defects,consortium,debakey_heart_and_vascular_cen,echocardiography,heart_community,heart_imaging,heart_research,heart_valves,houston_methodist,interventional_cardiology,l-vad,patient_stories,robotic_surgeryfalsefullhttps://www.spreaker.com/episode/when-you-re-married-to-a-heart-warrior--19059051
Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/19059051Tue, 10 Sep 2019 16:00:16 +0000Anna JaworskiHow is life different for a couple when the wife has a congenital heart defect? This week's episode features Megan and Matthew Tones. Megan was born with multiple, complex congenital heart defects which have required treatment since infancy. Tune in...
Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2034chronic_illness,congenital_heart_defects,husband,marriage,relationships,travel,wifefalsefullhttps://www.spreaker.com/episode/living-with-a-bi-directional-glenn-heart--18985475
In this episode she shares what it was like for her as a child and what her endurance was like. She talks about how she interacted with her siblings and friends. She then moves on to share what it was like for her once she decided she wanted to start her family. In this very candid interview, Laura shares some of the travails she endured and what helped to her make it through the difficult times.

Finally, Laura shares how she feels pregnancy affected her body and her heart. She also shares her doctor's prognosis for her future, especially given her sequence of medical events thus far. Laura's story is one of inspiration and hope.

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18985475Tue, 03 Sep 2019 16:00:07 +0000Anna JaworskiMost people today (2019) with a single ventricle heart typically have one of two courses of treatment for their heart condition: 1) a series of surgeries culminating with the Fontan Procedure or 2) a heart transplant. That is not the case with our...
In this episode she shares what it was like for her as a child and what her endurance was like. She talks about how she interacted with her siblings and friends. She then moves on to share what it was like for her once she decided she wanted to start her family. In this very candid interview, Laura shares some of the travails she endured and what helped to her make it through the difficult times.

Finally, Laura shares how she feels pregnancy affected her body and her heart. She also shares her doctor's prognosis for her future, especially given her sequence of medical events thus far. Laura's story is one of inspiration and hope.

Please take a moment to follow us on your preferred social media platforms:

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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1975abortion,bi-directional_glenn,cc-tga,dilv,double-inlet_left_ventricle,fontan_procedure,heart-lung_transplant,heart_transplant,high-risk_pregnancy,l-tga,open-heart_surgery,potts_shunt,pregnancy,pulmonary_artery,pulmonary_atresia,scar_tissue,single_ventricle_heart,transplant,transposition_of_the_great_art,waterston_shuntfalsefullhttps://www.spreaker.com/episode/congenital-heart-defect-awareness-at-podcast-movement-2019--18920059
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18920059Tue, 27 Aug 2019 16:00:13 +0000Anna JaworskiAnna Jaworski, the Host of "Heart to Heart with Anna" attended Podcast Movement 2019 -- a conference, especially for podcasters. While at the conference, Anna met a number of people who had been touched by congenital heart defects, a fact she became...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1535asplenia,congenital_heart_defects,congenital_heart_disease,fontan_procedure,heart_transplant,heterotaxy,hole_in_the_heart,hypoplastic_left_heart_syndrom,inspiring_stories,intestinal_surgery,in-utero_diagnosis,lvad,malrotation_of_the_intestines,open-heart_surgery,single_ventricle_heart,survivors,vsdfalsefullhttps://www.spreaker.com/episode/behind-the-scenes-with-hearts-unite-the-globe--18865599
Listen as the three Board Members talk about what HUG means to them, where HUG has been and where the Board Members believe it's headed, why HUG now has a Patreon account and how others can be Patrons, supporters of Heart to Heart with Anna, Heart to Heart with Michael and future podcasts in the HUG Podcast Network.

Special thanks to Buzzsprout (http://www.buzzsprout.com) for setting up the studio and doing the recording of this program.

For more information about HUG, check out our website: http://www.heartsunitetheglobe.org

Our Patreon account is here: http://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18865599Tue, 20 Aug 2019 16:00:12 +0000Anna JaworskiThis is a special episode of Heart to Heart with Anna that was recorded at Podcast Movement 2019 in Orlando, Florida. Buzzsprout set up a studio and invited its members to record a show at the conference. Three Hearts Unite the Globe (HUG) Board...
Listen as the three Board Members talk about what HUG means to them, where HUG has been and where the Board Members believe it's headed, why HUG now has a Patreon account and how others can be Patrons, supporters of Heart to Heart with Anna, Heart to Heart with Michael and future podcasts in the HUG Podcast Network.

Special thanks to Buzzsprout (http://www.buzzsprout.com) for setting up the studio and doing the recording of this program.

For more information about HUG, check out our website: http://www.heartsunitetheglobe.org

Our Patreon account is here: http://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1849board_members,buzzsprout,congenital_heart_defects,hearts_unite_the_globe,heart_to_heart_with_anna,heart_to_heart_with_michael,nonprofit_organization,patreon,podcast,podcast_movement,podcast_movement_2019,podcasts,visionfalsefullhttps://www.spreaker.com/episode/interwoven-lives-and-congenital-heart-defects--18800375
To purchase Dr. Phillip's book, use this link: https://tinyurl.com/y5grtz7v

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18800375Tue, 13 Aug 2019 15:00:16 +0000Anna JaworskiBrandon Lane Phillips, M.D. is a very special doctor -- he's a pediatric cardiologist who was also born with a severe congenital heart defect -- tetralogy of Fallot. In this episode of "Heart to Heart with Anna," Brandon talks to Anna about the people...
To purchase Dr. Phillip's book, use this link: https://tinyurl.com/y5grtz7v

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1906accommodations,adults_with_congenital_heart_d,congenital_heart_defect,congenital_heart_defects,faith,growing_pains,jeremy_miller,learning_disabilities,medical_school,pediatric_cardiologist,pediatric_cardiology,reading_difficulties,reading_disability,standardized_tests,starlight_foundation,testing,tetralogy_of_fallot,wishesfalsefullhttps://www.spreaker.com/episode/travels-of-a-heart-warrior--18743672
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18743672Tue, 06 Aug 2019 17:51:35 +0000Anna JaworskiMegan Tones is a woman who was born with multiple congenital heart defects and who has undergone multiple medical procedures. In this episode of Heart to Heart with Anna, Megan details special considerations and precautions she underwent before (and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1857china,congenital_heart_defects,dietary_considerations,egypt,japan,lasix,medical_consideration,mitral_valve_repair,pulmonary_artery_banding,right_ventricular_outflow_trac,travel,travel_insurance,ventricular_septal_defectfalsefullhttps://www.spreaker.com/episode/the-changing-landscape-of-care-for-young-adults-with-critical-congenital-heart-defects--18676663
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18676663Tue, 30 Jul 2019 16:00:12 +0000Anna JaworskiReturning Guest, Vicki Lucas, shares with Anna how care for her son, Alexander, has changed over time, especially as he has transitioned from pediatric care to care for an adult with a critical congenital heart defect. As a special education teacher,...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1849acha,advocacy,advocate,congenital_heart_disease,critical_congenital_heart_defe,health_care_plan,johns_hopkins,pediatric_cardiologist,transitionfalsefullhttps://www.spreaker.com/episode/hearts-unite-the-globe-s-summer-of-2019-audio-newsletter--18621205
You'll also hear about a special award presented to Anna Jaworski (Host of Heart to Heart with Anna and HUG's Executive Director) during the Mended Little Hearts annual CHD Symposium. Tune in to discover what CHD conferences will be held during the rest of 2019 and locate information about the conferences on https://www.hug-podcastnetwork.com/scheduled-events-calendar.html. In this episode, you'll also discover why Anna chose to create a Facebook birthday fundraiser and how it turned out. Also, tune in to hear about why Michael Liben (Host of Heart to Heart with Michael) decided to volunteer to work with HUG and why he continues to work with HUG 3 years later.

In the final segment of the program, you'll discover why people enjoy volunteering with HUG. You'll also find out why HUG has a Patreon page and how you, too, can be a HUG Patron by visiting https://www.patreon.com/HearttoHeart and signing up to be a member!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18621205Tue, 23 Jul 2019 16:00:07 +0000Anna JaworskiHearts Unite the Globe (HUG) is full of news! Tune into this episode of Heart to Heart with Anna to hear about all of the activities in which HUG members are participating. In this episode of Heart to Heart with Anna, learn about upcoming training...
You'll also hear about a special award presented to Anna Jaworski (Host of Heart to Heart with Anna and HUG's Executive Director) during the Mended Little Hearts annual CHD Symposium. Tune in to discover what CHD conferences will be held during the rest of 2019 and locate information about the conferences on https://www.hug-podcastnetwork.com/scheduled-events-calendar.html. In this episode, you'll also discover why Anna chose to create a Facebook birthday fundraiser and how it turned out. Also, tune in to hear about why Michael Liben (Host of Heart to Heart with Michael) decided to volunteer to work with HUG and why he continues to work with HUG 3 years later.

In the final segment of the program, you'll discover why people enjoy volunteering with HUG. You'll also find out why HUG has a Patreon page and how you, too, can be a HUG Patron by visiting https://www.patreon.com/HearttoHeart and signing up to be a member!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1648conferences,congenital_heart_defects,hearth-to-heart-with-michael,hearts_unite_the_globe,heart-to-heart-with-anna,hug,hug_retreats,mended_little_hearts_annual_ch,michael_liben,mlh_leadership_summit,patreon,patreon-hearttoheart,post-traumatic_growth,tita_hutchen's_award,training,volunteer,volunteeringfalsefullhttps://www.spreaker.com/episode/silent-cries-breaking-through-chd-awareness--18562638
Join Anna today as she interviews the creator and producers of Silent Cries. Phillip Wolf was inspired to create this documentary due to the death of his son, Jeremiah, from his congenital heart defect. Executive Producer/Producer Nicole Vickery was born with a congenital heart, as was Co-Producer David Franco. They share with Anna why they became involved with this project and why it's important for everyone to watch this documentary.

Silent Cries: Breaking Through CHD Awareness will be available on Amazon Prime Video. For more information, check out Phillip Wolf's website: http://www.pwfilms.net/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18562638Tue, 16 Jul 2019 16:00:07 +0000Anna JaworskiPremiering August 6, 2019, Silent Cries: Breaking Through CHD Awareness is Phillip Wolf's latest documentary. With over forty types of CHDs, Silent Cries: Breaking Through CHD Awareness is produced to focus on children and adults born with heart...
Join Anna today as she interviews the creator and producers of Silent Cries. Phillip Wolf was inspired to create this documentary due to the death of his son, Jeremiah, from his congenital heart defect. Executive Producer/Producer Nicole Vickery was born with a congenital heart, as was Co-Producer David Franco. They share with Anna why they became involved with this project and why it's important for everyone to watch this documentary.

Silent Cries: Breaking Through CHD Awareness will be available on Amazon Prime Video. For more information, check out Phillip Wolf's website: http://www.pwfilms.net/

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1724cctga,chd_awareness,congenital_heart_defect,congenital_heart_disease,congenitally_corrected_tga,david_franco,death_of_a_child,documentary,heart_survivor,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,inspirational_story,loss_of_a_child,l-tga,nicole_vickery,phillip_wolf,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/shameless-appeals-for-applause-with-a-66-year-old-cctga-heart-warrior--18501431
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18501431Tue, 09 Jul 2019 16:00:17 +0000Anna JaworskiAnn Koplow is an extraordinary Heart Warrior, blogger, and musician. Born in 1953, she is one of the oldest child survivors of heart block requiring pacemaker insertion. Despite many mechanical failures with her pacemaker, Ann has continued to have an...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1853anxiety,cctga,congenital_heart_defects,counselor,endocarditis,heart_block,heart_valve,heart_valve_replacement,heart_warrior,inspirational_story,l-tga,optimist,pacemaker,positive_attitude,post_traumatic_stress_disorder,ptsdfalsefullhttps://www.spreaker.com/episode/from-learning-disabled-to-college-professor--18441301
In this episode of Heart to Heart with Anna, Kathy Ware talks with Anna about what it was like to be diagnosed with a learning disability and how she overcame her issues to become a college professor. She gives advice to other heart families about dealing with congenital heart defects and learning disabilities. She also demonstrates through her own life how perseverance and determination can allow people to overcome seemingly insurmountable obstacles.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18441301Tue, 02 Jul 2019 16:00:13 +0000Anna JaworskiKathy Ware was born in 1974 with tricuspid atresia and pulmonary stenosis. Her first surgery occurred in her first year of life when she had a Potts shunt. At age 5, she had a central shunt inserted. In 1989 she had a Potts reconstruction and modified...
In this episode of Heart to Heart with Anna, Kathy Ware talks with Anna about what it was like to be diagnosed with a learning disability and how she overcame her issues to become a college professor. She gives advice to other heart families about dealing with congenital heart defects and learning disabilities. She also demonstrates through her own life how perseverance and determination can allow people to overcome seemingly insurmountable obstacles.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1868auditory_processing_problem,blalock-taussig_shunt,central_shunt,college_professor,developmental_delay,glenn_procedure,inspirational_story,learning_disability,learning_disorder,overcoming_obstacles,potts_shunt,pulmonary_stenosis,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/a-connection-between-the-flu-arthritis-heart-disease-a-mother-s-instincts--18370572
Marie O’Donnell is a return Guest. During Season 2, Marie joined Kathy Baker and Dawn Silverman in an episode entitled, “Making Memories Every Day.” Marie is a schoolteacher and has worked with the Make a Wish Foundation as a Wish Granter.

In this episode of "Heart to Heart with Anna," Marie talks with Anna about her daughter's experience after she contracted the flu. Is there a connection between heart defects, the flu, and arthritis? Tune in to hear what Marie's motherly instinct believes about her daughter's chronic illness.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18370572Tue, 25 Jun 2019 16:00:05 +0000Anna JaworskiMarie O’Donnell is Heart Mom to Anna who was born with complex, congenital heart disease. Anna is a Fontan Warrior and has been a model cardiac patient for more than a decade. Anna was born with double outlet right ventricle, complete atrioventricular...
Marie O’Donnell is a return Guest. During Season 2, Marie joined Kathy Baker and Dawn Silverman in an episode entitled, “Making Memories Every Day.” Marie is a schoolteacher and has worked with the Make a Wish Foundation as a Wish Granter.

In this episode of "Heart to Heart with Anna," Marie talks with Anna about her daughter's experience after she contracted the flu. Is there a connection between heart defects, the flu, and arthritis? Tune in to hear what Marie's motherly instinct believes about her daughter's chronic illness.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1788adhd,anxiety_disorder,arthritis,atrioventricular_canal_defect,av_canal_defect,congenital_heart_defects,dorv,double_outlet_right_ventricle,flu,flu_a,fontan_procedure,heterotaxy_syndrome,liver_damage,patent_ductus_arteriosis,pda,rheumatoid_arthritisfalsefullhttps://www.spreaker.com/episode/crunching-numbers-for-chd-research--18303051
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18303051Tue, 18 Jun 2019 16:00:11 +0000Anna JaworskiAntara Mondal was born with aortic stenosis and has undergone open-heart surgery. In this episode of Heart to Heart with Anna, Antara shares what it was like growing up with a congenital heart defect (CHD), how it affected her childhood and early...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1754acha,adult_with_chd,aortic_stenosis,arrhythmia,balloon_valvuloplasty,biostatistics,carnegie_mellon,children's_hospital_of_philade,chop,college,congenital_heart_defect,mathematics,statistics,university_of_pittsburgh,valve_replacementfalsefullhttps://www.spreaker.com/episode/2019-mended-little-hearts-symposium-and-leadership-summit-with-jodi-smith--18237338https://mendedhearts.org/chd-symposium/

In this episode, Jodi tells Anna about how the Keynote Speaker was selected, why people should attend the Leadership Summit and Symposium and what benefits they can derive from attending. She details what it has been like for her as a parent of a child with a heart defect and how others can not only help themselves but help others, too, by being part of this organization.

With professional training from Parent-to-Parent of Wisconsin and Ex Fabula, the Leadership Summit will be a must-attend event for those who wish to promote congenital heart defect awareness. The symposium will feature speakers and panel discussions sure to assist parents and Heart Warriors alike.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18237338Tue, 11 Jun 2019 16:00:18 +0000Anna JaworskiMended Little Hearts National Program Director Jodi Smith joins Anna in this episode to discuss the upcoming 2019 Mended Little Hearts Symposium and Leadership Summit in Milwaukee, Wisconsin. The Leadership Summit will occur on July 12th and the...https://mendedhearts.org/chd-symposium/

In this episode, Jodi tells Anna about how the Keynote Speaker was selected, why people should attend the Leadership Summit and Symposium and what benefits they can derive from attending. She details what it has been like for her as a parent of a child with a heart defect and how others can not only help themselves but help others, too, by being part of this organization.

With professional training from Parent-to-Parent of Wisconsin and Ex Fabula, the Leadership Summit will be a must-attend event for those who wish to promote congenital heart defect awareness. The symposium will feature speakers and panel discussions sure to assist parents and Heart Warriors alike.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1914children's_hospital_of_wiscons,congenital_heart_defect_awaren,congenital_heart_defects,ex_fabula,mended_little_hearts,mlh_leadership_summit,mlh_symposium,parent-to-parent_of_wisconsin,professional_trainingfalsefullhttps://www.spreaker.com/episode/upbeat-chd-thriver-author-and-motivational-speaker-beth-greenaway--18170072
As you can see by the cover photo, Beth Greenaway is a published author. She shares with Anna how she came to write a book and how it can help people, not only in the congenital heart defect (CHD) community but in other communities where they might face medical adversity.

Join us today, or at your convenience, to hear this motivational, exceptional CHD Thriver, Author and, dare we say, Philosopher?!

To purchase Beth's book, use this link: https://tinyurl.com/y4qwq76w

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/18170072Tue, 04 Jun 2019 17:31:59 +0000Anna JaworskiBeth Greenaway has an amazing story to share with Anna in this brand new episode of Heart to Heart with Anna. Beth helps Anna kick off Season 14 of this podcast for the CHD community by sharing her CHD journey and how she most recently came to deal...
As you can see by the cover photo, Beth Greenaway is a published author. She shares with Anna how she came to write a book and how it can help people, not only in the congenital heart defect (CHD) community but in other communities where they might face medical adversity.

Join us today, or at your convenience, to hear this motivational, exceptional CHD Thriver, Author and, dare we say, Philosopher?!

To purchase Beth's book, use this link: https://tinyurl.com/y4qwq76w

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1794author,beth_greenaway,congenital_heart_defect,endocarditis,heart_thriver,heart_warrior,medical_adversity,motivational_speaker,stroke,valve_replacementfalsefullhttps://www.spreaker.com/episode/coronary-artery-disease-in-the-congenital-heart-defect-community--17582120
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17582120Tue, 09 Apr 2019 16:00:07 +0000Anna JaworskiThis new episode of Heart to Heart with Anna featured Guest, Dr. Fred Wu from Boston Children's Hospital and he interacts with a live, studio audience to answer their questions regarding coronary artery disease in adults born with congenital heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2294acquired_heart_disease,cctga,congenital_heart_defects,congenital_heart_disease,coronary_artery_disease,tga,transposition_of_the_great_artfalsefullhttps://www.spreaker.com/episode/pediatric-cardiologist-researcher-mentor-podcaster--17509541
He has started a Pediatric Cardiology Podcast that reviews some of the latest literature in the field of pediatric cardiovascular medicine and he also interviews thought leaders in the field. The program, ‘Pediheart: Pediatric Cardiology Today,’ is available on iTunes, Spotify and Stitcher. Today he talks with Anna about how he entered the field of pediatric cardiology, what he does as a pediatric cardiologist and how he came to add “podcaster” to his resume.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17509541Tue, 02 Apr 2019 16:00:21 +0000Anna JaworskiDr. Robert Pass is the Chief of Pediatric Cardiology and the co-director of the Pediatric Heart Center at The Icahn School of Medicine at Mount Sinai in NYC. He is also the director of pediatric electrophysiology at the same institution. His career...
He has started a Pediatric Cardiology Podcast that reviews some of the latest literature in the field of pediatric cardiovascular medicine and he also interviews thought leaders in the field. The program, ‘Pediheart: Pediatric Cardiology Today,’ is available on iTunes, Spotify and Stitcher. Today he talks with Anna about how he entered the field of pediatric cardiology, what he does as a pediatric cardiologist and how he came to add “podcaster” to his resume.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2078cardiovascular_medicine,congenital_heart_defects,dr._robert_pass,electrophysiologist,electrophysiology,pediatric_cardiology,pediheart:_pediatric_cardiolog,podcaster,podcastingfalsefullhttps://www.spreaker.com/episode/telemedicine-and-patients-with-congenital-heart-defects--17441806
In this episode, Anna talks with Dr. Bhatt about becoming an adult congenital cardiologist specializing in the care of adults with CHDs, why she developed a telemedicine program for her patients and where she believes the future of medicine is headed. You won't want to miss this show which discusses an up-and-coming trend to prevent Heart Warriors from being lost to follow-up care.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17441806Tue, 26 Mar 2019 16:00:21 +0000Anna JaworskiDr. Ami Bhatt is the featured Guest on this episode of Heart to Heart with Anna. Dr. Ami Bhatt is an active clinical cardiologist, clinical investigator, and educator. She has developed a robust multidisciplinary curriculum at Mass General to provide...
In this episode, Anna talks with Dr. Bhatt about becoming an adult congenital cardiologist specializing in the care of adults with CHDs, why she developed a telemedicine program for her patients and where she believes the future of medicine is headed. You won't want to miss this show which discusses an up-and-coming trend to prevent Heart Warriors from being lost to follow-up care.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1858adults_with_congenital_heart_d,cardiology,congenital_heart_defects,doctor-patient_relationship,medical_trend,pediatric_cardiologist,pediatric_cardiology,telemedicinefalsefullhttps://www.spreaker.com/episode/a-conversation-with-a-psychologist-born-with-a-congenital-heart-defect--17367111
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17367111Tue, 19 Mar 2019 16:00:12 +0000Anna JaworskiIn this episode of Heart to Heart with Anna, Dr. Liza Morton rejoins Anna to talk more about polyvagal theory, how feeling safe is important to those born with congenital heart defect, especially when they are in vulnerable conditions (such as when...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1841attachment_theory,bowlby's_attachment_theory,congenital_heart_defects,harlow's_monkeys,polyvagal_theory,post-traumatic_stress_disorder,ptsdfalsefullhttps://www.spreaker.com/episode/an-embodied-understanding-of-living-with-a-chd--17293353
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17293353Tue, 12 Mar 2019 16:00:15 +0000Anna JaworskiDr. Liza Morton, a Heart Warrior, is also a psychologist who really understands what it means to live with chronic illness. In this episode, she talks with Anna about a new theory that she feels will revolutionize people's understanding of living with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1999asd,atrial_septal_defect,bullying,congenital_heart_defects,hospital,pacemaker,polyvagal_theory,post-traumatic_stress_disorder,psychologist,psychology,ptsd,somerville_foundationfalsefullhttps://www.spreaker.com/episode/helping-our-children-become-their-own-best-advocates--17226729
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17226729Tue, 05 Mar 2019 17:00:05 +0000Anna JaworskiThis week's featured episode discusses a very important topic -- transitioning our Heart Warriors from dependents to advocates -- and it doesn't happen overnight. Lisa Rodebaugh does an excellent job of sharing how she raised Andrew Rodebaugh so that...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1599advocacy,apps,congenital_heart_defects,heart,heart_mom,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,teenager,transition_from_child_to_adultfalsefullhttps://www.spreaker.com/episode/nutritional-considerations-for-the-congenital-heart-defect-community--17158584
In this episode, Skylar talks with Anna about the special dietary concerns of members of the congenital heart defect community. She shares with Anna why she is passionate about nutrition and being a dietician and she explains how taking care of ourselves by eating healthy food doesn't have to be that hard.

In addition to talking with Anna, Skylar spends the last segment of the show answering questions from a live, studio audience. The audience features members from around the world! You won't want to miss this very special episode!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17158584Tue, 26 Feb 2019 17:00:16 +0000Anna JaworskiSkylar Griggs is a licensed registered dietitian and nutrition counselor specializing in a variety of nutrition-related conditions. She has experience working in pediatric and family nutrition as well as pre/post-natal nutrition, eating disorders,...
In this episode, Skylar talks with Anna about the special dietary concerns of members of the congenital heart defect community. She shares with Anna why she is passionate about nutrition and being a dietician and she explains how taking care of ourselves by eating healthy food doesn't have to be that hard.

In addition to talking with Anna, Skylar spends the last segment of the show answering questions from a live, studio audience. The audience features members from around the world! You won't want to miss this very special episode!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2566adults_with_congenital_heart_d,cholesterol,congenital_heart_defects,dash_diet,diet,dietary_considerations,dietician,heart-healthy_diet,keto_diet,mediterranean_diet,nutrition,paleo_diet,vegan,vegetarianfalsefullhttps://www.spreaker.com/episode/lessons-learned-by-a-long-time-heart-mom--17074220
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17074220Tue, 19 Feb 2019 17:00:23 +0000Anna JaworskiRoseann Franco returns to "Heart to Heart with Anna" for another episode to talk about the lessons she has learned over the last five decades raising a son with congenitally corrected transposition of the great arteries (also known as L-TGA). She...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1840congenital_heart_defect,congenitally_corrected-tga,lessons_learned,l-tga,mom,mother,pediatric_cardiology,raising_childrenfalsefullhttps://www.spreaker.com/episode/a-family-of-faith--17012678
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/17012678Tue, 12 Feb 2019 17:00:10 +0000Anna JaworskiRoseann Franco is the mother of a Heart Warrior in his 50s. He was born when the field of pediatric cardiology was in its infancy. Tune in to hear Rosanne share stories with Anna about what it was like raising a Heart Warrior while working and going...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1749congenital_heart_defects,congenitally_corrected_transpo,l-tga,l-tgv,pediatric_cardiology,tetralogy_of_fallot,transposition_of_the_great_artfalsefullhttps://www.spreaker.com/episode/championship-hearts-foundation-2019-heartbeats-heroes-gala--16953028
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16953028Tue, 05 Feb 2019 17:00:20 +0000Anna JaworskiThis episode of Heart to Heart with Anna features Executive Director of Championship Hearts Foundation Michelle Garcia and Board Member, Lisa Kattawar. Tune in to hear these ladies explain why they decided to join this nonprofit organization, what the...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1899athlete_cardiac_screenings,athletes,cardiac_screenings,championship_hearts_foundation,congenital_heart_defects,hcm,hypertrophic_cardiomyopathy,scd,sudden_cardiac_deathfalsefullhttps://www.spreaker.com/episode/thriving-with-chd--16874051
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16874051Tue, 29 Jan 2019 17:00:21 +0000Anna JaworskiAllison Holmes is a 46-year-old survivor of CHD. She has seven defects and is also a cancer survivor. She feels that she is thriving with CHD.  She has been evaluated twice for the heart and lung transplant list but is not on the list at this time....
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2023acha,adult_congenital_heart_associa,cancer,cancer_survivor,congenital_heart_defects,heart-lung_transplant,heart_survivor,heart_warrior,inspiration,single_ventricle,transplant,volunteerfalsefullhttps://www.spreaker.com/episode/finding-a-new-direction-through-adversity-a-mother-and-son-s-story--16808384
David was born not only with a serious heart defect but also with Hemifacial Microsomia. These two conditions affected him in a variety of ways -- naturally, David's early milestones and development were impacted by his need for surgery and in consideration of his birth defects. In this episode, he'll talk with Anna about how dealing with adversity made him the man he is today.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16808384Tue, 22 Jan 2019 17:00:12 +0000Anna JaworskiWhen David was born with a critical congenital heart defect, Monica's world changed completely. A former businesswoman, she soon discovered she would need to know more about medicine to take care of her afflicted son. This led to a career change that...
David was born not only with a serious heart defect but also with Hemifacial Microsomia. These two conditions affected him in a variety of ways -- naturally, David's early milestones and development were impacted by his need for surgery and in consideration of his birth defects. In this episode, he'll talk with Anna about how dealing with adversity made him the man he is today.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2098actor,author,birth_defects,congenital_heart_defect,double_outlet_right_ventricle,fontan,genetics,hemifacial_microsomia,inspirationfalsefullhttps://www.spreaker.com/episode/healing-the-hearts-of-croatia-libya-ecuador-and-beyond--16584513
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16584513Tue, 15 Jan 2019 17:00:16 +0000Anna JaworskiDr. William Novick is a most unusual cardiothoracic surgeon who travels the world mending broken hearts in countries where many of these children would be left to succumb to their congenital heart defects. Together with his team, Dr. Novick does even...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1856501(c)(3),congenital_heart_defect,doctors_teaching_doctors,fontan,glenn_procedure,heart_surgery,medical_education,novick_cardiac_alliance,philanthropy,single_ventricle_heart,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/heart-mom-to-a-son-with-vacterl-association--16605908
Colton, AKA Superman without a Cape, was born with VACTERL Association, a disorder that affects many body systems. VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities.

As part of his condition, Colton has multiple CHDs including truncus arteriosus, ventricular septal defect, atrial septal defect, pulmonary stenosis, and right aortic arch. During his short life Colton has had 52 procedures, including 6 heart catheterizations and 4 open-heart surgeries.

Aubrey is married to Rick and together they have a unique, rare outlook on life which has helped them stay together. Aubrey studied American Sign Language Interpreting at Augustana University and works as a freelance interpreter/translator.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16605908Tue, 08 Jan 2019 17:00:14 +0000Anna JaworskiAubrey Byrnes is a rare mom - she's the mother of Wyatt Nathan Arthur Byrnes, aged 5, and Colton Paul Byrnes, aged 4. Wyatt was born 13 weeks premature and had a rough medical journey. Colton, AKA Superman without a Cape, was born with VACTERL...
Colton, AKA Superman without a Cape, was born with VACTERL Association, a disorder that affects many body systems. VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities.

As part of his condition, Colton has multiple CHDs including truncus arteriosus, ventricular septal defect, atrial septal defect, pulmonary stenosis, and right aortic arch. During his short life Colton has had 52 procedures, including 6 heart catheterizations and 4 open-heart surgeries.

Aubrey is married to Rick and together they have a unique, rare outlook on life which has helped them stay together. Aubrey studied American Sign Language Interpreting at Augustana University and works as a freelance interpreter/translator.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2043asd,atrial_septal_defect,birth_defects,congenital_heart_defect,congenital_heart_defects,genetics,hope,pulmonary_stenosis,rare_diseases,right_aortic_arch,truncus_arteriosis,vacterl_association,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/making-a-difference-thanks-to-gabe--16603718
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16603718Tue, 01 Jan 2019 17:00:12 +0000Anna JaworskiAnita Moreno Marcelo, as the mother of a son with a congenital heart defect (CHD), penned a poem that touched many lives in the CHD community. In this episode of "Heart to Heart with Anna" she talks about why she wrote the poem entitled "The Presence...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2460cardiac_transplant,care_team,congenital_heart_defect,congenital_heart_defects,end-of-life_care,heart_transplant,hospice,palliative_care,palliative_surgery,single_ventricle_heartfalsefullhttps://www.spreaker.com/episode/making-memories-everyday-with-our-chd-families-remastered--16564613
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16564613Tue, 25 Dec 2018 17:00:13 +0000Anna JaworskiWhen a parent has a normally healthy child, it's easy to take a day for granted. Conversely, when a parent gives birth to a special needs child, every day takes on new importance. When a parent has a child with a life-threatening illness, each day can...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3226chd_families,congenital_heart_defects,critical_congenital_heart_defe,families,family_history,making_a_difference,making_a_difference_in_the_wor,making_each_day_count,making_memories,memoriesfalsefullhttps://www.spreaker.com/episode/working-dads-vs-stay-at-home-dads-remastered--16512947
When a family is told they have a baby with a life-threatening illness, does one of the parents have to stay home with the child? Why do some parents choose to become stay-at-home parents? Why do some parents decide to continue working? In this show, we'll discuss the pros and cons of staying at home versus going back to work. Is the health of the child at risk? What about insurance? What about the quality of life of the child with a heart defect? of the family? These are just a few of the issues we'll discuss in this show.

Our Guests today have lived through multiple heart procedures with their children, open-heart surgeries and hospitalizations. They have been there through their children's recoveries and complications. Tune in today to hear about how these fathers decided to handle childcare and their return to work. Find out how their thinking changed over time and what they have come to value most. The fathers share helpful advice for others and what people need to keep in mind when dealing with such a difficult topic.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16512947Tue, 18 Dec 2018 17:04:28 +0000Anna JaworskiJoin us today as we talk with Heart Dads, Chris Perez and Michael Madsen about how they made decisions regarding childcare and work after having a child with a critical congenital heart defect. When a family is told they have a baby with a...
When a family is told they have a baby with a life-threatening illness, does one of the parents have to stay home with the child? Why do some parents choose to become stay-at-home parents? Why do some parents decide to continue working? In this show, we'll discuss the pros and cons of staying at home versus going back to work. Is the health of the child at risk? What about insurance? What about the quality of life of the child with a heart defect? of the family? These are just a few of the issues we'll discuss in this show.

Our Guests today have lived through multiple heart procedures with their children, open-heart surgeries and hospitalizations. They have been there through their children's recoveries and complications. Tune in today to hear about how these fathers decided to handle childcare and their return to work. Find out how their thinking changed over time and what they have come to value most. The fathers share helpful advice for others and what people need to keep in mind when dealing with such a difficult topic.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3143congenital_heart_defect,critical_congenital_heart_defe,insurance,medical_insurance,medically_fragile_children,stay-at-home_dads,stay-at-home_moms,working_dadsfalsefullhttps://www.spreaker.com/episode/babysitting-and-daycare-for-chd-survivors--16427955
Heart Moms Amy Bennett, Adinamarie Pelicci-Alsina and Dawn Silverman discuss strategies and experiences in leaving a CHD survivor in a daycare situation or with babysitters. We will discuss things to look for in a daycare or babysitter and how to best prepare everyone involved for a good transition.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16427955Tue, 11 Dec 2018 17:00:03 +0000Anna JaworskiHow can you identify a good babysitter or daycare when looking for a facility to care for a child with a congenital heart defect? Is it ever appropriate to leave a child with a congenital heart defect in the care of someone else? What can parents do...
Heart Moms Amy Bennett, Adinamarie Pelicci-Alsina and Dawn Silverman discuss strategies and experiences in leaving a CHD survivor in a daycare situation or with babysitters. We will discuss things to look for in a daycare or babysitter and how to best prepare everyone involved for a good transition.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3611babysitters,babysitting,cchds,congenital_heart_defect,cpr,critical_congenital_heart_defe,daycare,grandmother,grandparents,illness_prevention,medically_fragile_children,mother-in-law,preschool,preschool_teachersfalsefullhttps://www.spreaker.com/episode/breastfeeding-your-chd-baby-remastered--16373687
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16373687Tue, 04 Dec 2018 17:00:13 +0000Anna JaworskiBreastfeeding a baby with a congenital heart defect has unique and special challenges. Many babies with critical congenital heart defects are taken away from the mother before having a chance to nurse at all. These babies also frequently have...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3468breastfeeding,breastfeeding_special_needs_ch,breastmilk,congenital_heart_defects,critical_congenital_heart_defe,heart-moms,medically_fragile_babies,myths,open-heart_surgeryfalsefullhttps://www.spreaker.com/episode/sports-and-boys-with-critical-chds-remastered--16318572
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16318572Tue, 27 Nov 2018 17:00:09 +0000Anna JaworskiBoys born with critical congenital heart defects are frequently not able to participate in sports like their heart-healthy peers. Because of the multiple surgeries needed, the frequent need for pacemakers or the concern about arrhythmias and the other...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2940athlete,cardiac_athlete,cchds,congenital_heart_defects,fontan_procedure,glenn_procedure,hlhs,hypoplastic_left_heart_syndrom,norwood_procedure,sportsfalsefullhttps://www.spreaker.com/episode/rainbow-babies-pregnancy-after-losing-a-child-to-a-chd-remastered--16268508
What are the concerns a mother might have in getting pregnant again after having lost a child to a congenital heart defect? What is the likelihood a woman will have more than one child with a congenital heart defect? How do women deal with infertility after having lost a baby to stillbirth or death? These are some of the issues we will address during this episode.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16268508Tue, 20 Nov 2018 17:00:14 +0000Anna Jaworski"Rainbow babies" are babies who are conceived after women have experienced a stillbirth or after a baby has died. We will discuss the process one woman has decided to go through in order to have her own rainbow baby, who is helping her and how others...
What are the concerns a mother might have in getting pregnant again after having lost a child to a congenital heart defect? What is the likelihood a woman will have more than one child with a congenital heart defect? How do women deal with infertility after having lost a baby to stillbirth or death? These are some of the issues we will address during this episode.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3203baby,bereavement,congenital_heart_defect,death_of_a_child,hope,loss_of_a_child,rainbow_babyfalsefullhttps://www.spreaker.com/episode/congenital-heart-defect-advocacy-remastered--16204753
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16204753Tue, 13 Nov 2018 17:00:10 +0000Anna JaworskiCongenital Heart Defect (or CHD) Awareness is an extremely important issue. Congenital heart defects (heart defects present at birth) are the #1 Birth Defect. While a commonly reported statistic is 1 in 100 babies are born with a heart defect, that...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2756advocacy,chd_advocacy,chd_awareness_day,congenital_heart_defects,congenital_heart_futures_act,heart_advocate,heart_mom,legislation,mended_little_hearts,mom_on_a_mission,open-heart_surgery_survivor,pediatric_congenital_heart_assfalsefullhttps://www.spreaker.com/episode/what-is-normal-child-development-in-children-with-complex-congenital-heart-defects-remastered--16139081
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16139081Tue, 06 Nov 2018 17:00:19 +0000Anna JaworskiWith more children with complex, congenital heart defects, or CHDs, living beyond their first year of life than ever before, parents and the professionals working with those children need to know what normal development is for this group of survivors....
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3101504,child_development,cognitive_development,congenital_heart_defects,early_childhood_education,failure_to_thrive,feeding_tubes,iep,individualized_education_plan,language_development,neuropsychologist,special_education_teacher,speech_development,speech-language_pathologistfalsefullhttps://www.spreaker.com/episode/non-cardiac-health-issues-for-survivors-with-complex-congenital-heart-defects-remastered--16092083
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16092083Tue, 30 Oct 2018 16:00:06 +0000Anna JaworskiThere are over one million adults alive with a congenital heart defect or CHD. Many surgeries performed on survivors are corrective but not curative. The non-cardiac health issues that seem to appear fairly regularly include, but are not limited to:...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2881cngenital_heart_defects,co-morbidities,eye_problems,geneticist,genetics,protein_losing_enteropathy,scoliosis,strokesfalsefullhttps://www.spreaker.com/episode/snowflakes-how-each-heart-is-unique-remastered--16031712
We will discuss the noninvasive and invasive procedures doctors currently use to obtain a diagnosis for children with congenital heart defects. We’ll talk with the mother of a child with a very unique heart and how having that child has affected her. We’ll also meet a nurse who is working on developing a feeding protocol to help babies born with congenital heart defects survive when they are between surgeries.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/16031712Tue, 23 Oct 2018 16:00:40 +0000Anna JaworskiThe heart is an extremely complicated organ. The muscle on one side of the heart differs from the muscle on the other side of the heart. There are valves that open and close allowing blood to travel to different parts of the heart, to the body and/or...
We will discuss the noninvasive and invasive procedures doctors currently use to obtain a diagnosis for children with congenital heart defects. We’ll talk with the mother of a child with a very unique heart and how having that child has affected her. We’ll also meet a nurse who is working on developing a feeding protocol to help babies born with congenital heart defects survive when they are between surgeries.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2804cardiac_cath,cardiac_intervention,cardiac_mri,cardiology,congenital_heart_defects,echocardiography,rare_diseases,valve_replacementfalsefullhttps://www.spreaker.com/episode/cora-s-law-why-it-s-important-remastered--15975006
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15975006Tue, 16 Oct 2018 16:00:13 +0000Anna JaworskiAlthough congenital heart defects are the number one birth defect, typically newborns have not been screened for heart defects before leaving the hospital. This has tragically led to some newborns passing away from undiagnosed congenital heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2891congenital_heart_defect,critical_congenital_heart_defe,infant_death,newborn_screening,pulse_oximetryfalsefullhttps://www.spreaker.com/episode/genetics-in-the-congenital-heart-defect-community-remastered--15917395
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15917395Tue, 09 Oct 2018 16:00:04 +0000Anna JaworskiCongenital heart defects, the #1 birth defect, affect at least 1 in 100 babies born throughout the world yet when asked what causes heart defects, most doctors have had to admit they don’t really know. Many doctors tell parents that their children’s...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>289922q11.2_distal_deletion,arthrogryposis,benson,congenital_heart_defect,dr.,geneticist,genetics,gerd,heart_hope_foundation,hypoplastic_left_heart_syndrom,woodyfalsefullhttps://www.spreaker.com/episode/heart-transplant-recipient-and-world-traveler-jordan-d-marcia--15857765
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15857765Tue, 02 Oct 2018 16:00:03 +0000Anna JaworskiGuest, Jordan D. Marcia joins Guest Host, Megan Tones again this week. He talks to her about his goal to visit countries all over the world and how he has traveled to many different countries. Jordan and Megan share some travel stories and tips for...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1548adventurer,cancer,cardiac_transplant,carpe_diem,congenital_heart_defect,heart_transplant,plastic_bronchitis,transplantation,travel,travelerfalsefullhttps://www.spreaker.com/episode/surviving-plastic-bronchitis-thanks-to-a-heart-transplant--15798133
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15798133Tue, 25 Sep 2018 16:00:05 +0000Anna JaworskiJordan Marcia is an amazing survivor! He shares with Guest Host, Megan Tones, his unconventional medical history which included being born with transposition of the great arteries, multiple failed surgeries to palliate his heart condition, the...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1255body-to-body_transplantation,cancer,cardiac-transplant,congenital-heart-defect,congenital-heart-defects,gift,heart-transplant,life,medical_miracle,of,plastic-bronchitis,tga,tgv,transplantation,transposition-of-the-great-art,transposition-of-the-great-vesfalsefullhttps://www.spreaker.com/episode/thankful-for-the-lvad-bridge-to-transplant--15742615
Vikas shares his medical history with us, how he came to need an LVAD and in the last segment he tells us about receiving the Gift of Life and offers some advice for others who might be walking the same path he did.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15742615Tue, 18 Sep 2018 16:00:05 +0000Anna JaworskiVikas Mahajan is a heart transplant recipient who was fortunate enough to have the benefit of modern medicine to enable him to wait for 3 years for a transplant. Born with hypertrophic cardiomyopathy, he has had to endure the implantation of...
Vikas shares his medical history with us, how he came to need an LVAD and in the last segment he tells us about receiving the Gift of Life and offers some advice for others who might be walking the same path he did.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1706cardiac_transplant,congestive_heart_failure,gift_of_life,hcm,heart_transplant,hypertrophic_cardiomyopathy,icd,implantable_cardioverter_defib,left_ventricular_assist_device,lvad,pacemaker,transplantfalsefullhttps://www.spreaker.com/episode/an-interview-with-the-transplant-helper-jim-murrell--15688367
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15688367Tue, 11 Sep 2018 16:00:06 +0000Anna JaworskiJim Murrell is commonly known on YouTube as "The Transplant Helper" due to his YouTube channel full of episodes helping the transplant community. Jim was born with a congenital heart defect known as transposition of the great arteries. The Mustard...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2253arrhythmias,cardiac_transplant,congenital_heart_defect,flatline,gift_of_life,heart_transplant,icd,milrinone,mustard_procedure,pvcs,the_transplant_helper,transplantation,transposition_of_the_great_artfalsefullhttps://www.spreaker.com/episode/life-thanks-to-the-berlin-heart-prior-to-transplant--15636639
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15636639Tue, 04 Sep 2018 16:00:05 +0000Anna JaworskiMelanie Slavinski talks with Anna about her son's medical journey in living with a congenital heart defect. Xavier's heart defect, cardiomyopathy, resulted in his need for a heart transplant. Join Anna and Melanie as they discuss Xavier's journey,...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2145berlin_heart,cardiac_transplant,cardiomyopathy,congenital_heart_defect,ecmo,gift_of_life,heart_transplant,re-transplantation,stroke,tcad,thrombectomy,transplant_coronary_artery_dis,ventricular_assist_devicefalsefullhttps://www.spreaker.com/episode/transplant-recipient-debunks-myths-about-transplants--15587238
From the age of 19 until he received the Gift of Life, Chuck lived a life of uncertainty yet he never let go of his dream. When he finally couldn't play soccer and be the player his team deserved he retired from the sport but shortly after became a soccer coach.

In today's episode of "Heart to Heart with Anna" Chuck talks with Anna about common myths surrounding heart transplantation and what the truth is behind the misconceptions. Chuck's five years of living with a transplanted heart make him an expert in this field.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15587238Tue, 28 Aug 2018 16:00:06 +0000Anna JaworskiFormer professional soccer player, Chuck Estrada, shares his heart journey with Anna on this episode of "Heart to Heart with Anna." Chuck describes how he was born with transposition of the great arteries in 1974, the surgeries he required over time...
From the age of 19 until he received the Gift of Life, Chuck lived a life of uncertainty yet he never let go of his dream. When he finally couldn't play soccer and be the player his team deserved he retired from the sport but shortly after became a soccer coach.

In today's episode of "Heart to Heart with Anna" Chuck talks with Anna about common myths surrounding heart transplantation and what the truth is behind the misconceptions. Chuck's five years of living with a transplanted heart make him an expert in this field.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1933arrhythmias,cardiac_transplant,coach,congenital_heart_defects,goalie,heart_transplant,icd,internal_cardiac_defibrillator,mustard_procedure,myth_buster,myths,pacemaker,soccer,tga,transplant,transplantation,transposition_of_the_great_artfalsefullhttps://www.spreaker.com/episode/heart-transplantation-due-to-protein-losing-enteropathy--15532119https://www.chop.edu/conditions-diseases/protein-losing-enteropathy-ple but to explain it very simply, this is a condition where the body is unable to process proteins properly and, if it's serious enough, a person can die due to lack of growth and development.

When Eric's condition became dire enough, the family turned to their last option -- a heart transplant. Shannon tells Anna about the wait for a heart and what happened to Eric after he received the gift of life. Most importantly, she shares what happened to Eric's PLE after the heart transplant process.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15532119Tue, 21 Aug 2018 16:00:05 +0000Anna JaworskiShannon Arriaga is the mother of a child who was born with a critical, congenital heart defect. Eric was born with hypoplastic left heart syndrome and he ended up having a Fontan Procedure. Shortly after the Fontan Procedure, he developed a...https://www.chop.edu/conditions-diseases/protein-losing-enteropathy-ple but to explain it very simply, this is a condition where the body is unable to process proteins properly and, if it's serious enough, a person can die due to lack of growth and development.

When Eric's condition became dire enough, the family turned to their last option -- a heart transplant. Shannon tells Anna about the wait for a heart and what happened to Eric after he received the gift of life. Most importantly, she shares what happened to Eric's PLE after the heart transplant process.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2205advocacy,awareness,cardiac_transplant,congenital_heart_defect,empowerment,gift_of_life,heart_transplant,hlhs,hypoplastic_left_heart_syndrom,mom_on_a_mission,organ_donation,ple,protein-losing_enteropathy,transplantationfalsefullhttps://www.spreaker.com/episode/transplant-sisters-when-a-family-faces-heart-and-kidney-transplant-issues--15488998
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15488998Tue, 14 Aug 2018 16:00:06 +0000Anna JaworskiThis episode features returning Guests Amy and Jessica Cowin. Amy Cowin was featured in Season 11 of "Heart to Heart with Anna" in the Heart Warrior Siblings series. She is a heart-healthy sister. Jessica Cowin is Amy's older sister who was born with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2531cardiac_transplant,children's_organ_transplant_as,congenital_heart_defect,congenital_heart_defects,cota,failing_fontan,heart_transplant,hlhs,hypoplastic_left_heart_syndrom,insurance,kidney_transplant,medical_trust_fund,theheartofagirl,transplantfalsefullhttps://www.spreaker.com/episode/quality-of-life-versus-quantity-of-life-decisions-regarding-end-of-life-care--15441161
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15441161Tue, 07 Aug 2018 16:00:06 +0000Anna JaworskiReturning Guest, David Franco, talks with Anna about what it's like to go into congestive heart failure and the new issues he is facing when considering medical end-of-life care. He talks about how his congenital heart defect has affected his activity...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2345cc-tga,congenital_heart_defect,congestive_heart_failure,end-of-life_care,gift_of_life,heart_transplantation,l-tga,organ_transplantation,tga,tgv,transposition_of_the_great_art,transposition_of_the_great_vesfalsefullhttps://www.spreaker.com/episode/when-a-baby-needs-a-heart-transplant--15386985
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15386985Tue, 31 Jul 2018 16:00:06 +0000Anna JaworskiReturning Guest, Dana Henning, shares with Anna what it was like for her family to find out in utero that her baby would be born with hypoplastic left heart syndrome and how they were prepared for their son to need surgical intervention but how they...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1709cardiac_transplant,gift_of_life,heart_transplant,hlhs,hypoplastic_left_heart,infant_transplant,tapvr,total_anomolous_venous_return,transplant,transplantationfalsefullhttps://www.spreaker.com/episode/multiple-organ-transplant-due-to-gastric-intestinal-pseudo-obstruction--15311073The extremely rare condition Darryl was born with is known as gastric-intestinal pseudo-obstruction. When Darryl was 20, he received a quadruple organ transplant, which included his stomach, small and large intestines, liver and pancreas.

Darryl is now the father of a son who has also been diagnosed with the same genetic mutation. Today we’ll talk with him about how this condition has affected his life, his support for organ donation in Canada and what it was like to wait for multiple organs. He'll also tell us about how he is doing today and what it's like to be the recipient of multiple organs.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15311073Tue, 24 Jul 2018 15:00:06 +0000Anna JaworskiDarryl Wallis is a 32-year-old pharmacist in Toronto, Canada. Because of a genetic mutation called MHY11, Darryl was born with a constellation of problems with his gastrointestinal tract. The extremely rare condition Darryl was born with is known as...The extremely rare condition Darryl was born with is known as gastric-intestinal pseudo-obstruction. When Darryl was 20, he received a quadruple organ transplant, which included his stomach, small and large intestines, liver and pancreas.

Darryl is now the father of a son who has also been diagnosed with the same genetic mutation. Today we’ll talk with him about how this condition has affected his life, his support for organ donation in Canada and what it was like to wait for multiple organs. He'll also tell us about how he is doing today and what it's like to be the recipient of multiple organs.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1899gastric-intestinal,gift_of_life,intestinal_transplant,mhy11,multiple_organ_transplant,organ_donation,pancreas_transplant,stomach_transplant,transplantationfalsefullhttps://www.spreaker.com/episode/still-waiting-for-a-heart--15272982
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15272982Tue, 17 Jul 2018 16:00:06 +0000Anna JaworskiChristiana Whallon's daughter, Jaylee, was listed for a heart transplant due to being born with hypoplastic left heart syndrome and going into congestive heart failure. In this episode, Christiana shares with Anna what it was like watching her...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1665cardiac_transplant,congenital_heart_defect,death,dying,hlhs,hypoplastic_left_heart_syndrom,infant_death,organ_donation,organ_transplantation,transplant,transplantationfalsefullhttps://www.spreaker.com/episode/michael-jamie-an-interview-with-an-organ-recipient-and-a-donor-s-father--15227029
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15227029Tue, 10 Jul 2018 16:00:05 +0000Anna JaworskiIn today's episode former Guests Jamie Alcroft and Michael Liben come on the program together to deliver a powerful portrayal of two sides of the organ donation coin -- with Jamie Alcroft we hear about what it means to be an organ donor recipient and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1524brave,cornea_donation,gift_of_life,hero,jamie_alcroft,kidney_donation,liver_transplant,lung_donation,michael_liben,organ_donation,transplantationfalsefullhttps://www.spreaker.com/episode/receiving-the-gifts-of-a-liver-and-a-heart--15183930
In this episode of "Heart to Heart with Anna," Jamie shares with Anna what happened in his life that required him to get a heart and liver transplant, what it was like waiting for the organs needed to save his life and how the gift of life has affected him. You won't want to miss this episode of "Heart to Heart with Anna"!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15183930Tue, 03 Jul 2018 16:00:07 +0000Anna JaworskiJamie Alcroft has been entertaining audiences as part of the comedy duo Mack & Jamie for over 35 years. His appearances with Mack on The Tonight Show both with Johnny Carson and Jay Leno led to 125 original episodes of the syndicated half-hour COMEDY...
In this episode of "Heart to Heart with Anna," Jamie shares with Anna what happened in his life that required him to get a heart and liver transplant, what it was like waiting for the organs needed to save his life and how the gift of life has affected him. You won't want to miss this episode of "Heart to Heart with Anna"!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2041donate_life,gift_of_life,heart_transplant,jamie_alcroft,liver_transplant,one_legacy,organ_transplant,transplantationfalsefullhttps://www.spreaker.com/episode/liel-and-her-many-gifts-a-family-s-decision-to-donate-one-girl-s-lungs-kidneys-and-more--14971604
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14971604Tue, 26 Jun 2018 16:00:06 +0000Anna JaworskiMichael Liben is the Host of "Heart to Heart with Michael" and he is also the bereaved father of Liel Liben. In today's program, Michael discusses with Host, Anna Jaworski, why he and his family decided to donate Liel's organs when she died. He talks...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1732congenital_heart_defects,cornea_donation,gift_of_life,kidney_donation,liver_donation,lung_donation,organ_donation,transplantationfalsefullhttps://www.spreaker.com/episode/saving-hearts-in-pakistan--15081430
His passion for helping children in Pakistan came from the loss of his daughter to congenital heart defects or CHDs when she was three years old. Pakistan suffers from an acute shortage of specialized staff and resources for any Pakistani child born with CHDs.

Farhan shares the mission and vision for the Pakistan Children's Heart Foundation and the steps that will be needed for them to achieve their goals. He talks about the problems he and his countrymen have if they are to solve the persistently high percentage of children born in his country with congenital heart defects. Lastly, Mr. Ahmad speaks hopefully about the future of children in Pakistan and how his country can make the needed changes by embracing the help of experts from around the world.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15081430Tue, 19 Jun 2018 12:00:07 +0000Anna JaworskiFarhan Ahmad is a social innovator and philanthropist who has devoted his life to helping children born in Pakistan with congenital heart defects. He is the founder & CEO of the Pakistan Children’s Heart Foundation, a non-governmental organization...
His passion for helping children in Pakistan came from the loss of his daughter to congenital heart defects or CHDs when she was three years old. Pakistan suffers from an acute shortage of specialized staff and resources for any Pakistani child born with CHDs.

Farhan shares the mission and vision for the Pakistan Children's Heart Foundation and the steps that will be needed for them to achieve their goals. He talks about the problems he and his countrymen have if they are to solve the persistently high percentage of children born in his country with congenital heart defects. Lastly, Mr. Ahmad speaks hopefully about the future of children in Pakistan and how his country can make the needed changes by embracing the help of experts from around the world.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1811advocacy,cardiac_research,cardiac_surgery,children's_heart_hospital,congenital_heart_defects,heart_surgery,holes_in_heart,pakistan,pediatric_cardiologyfalsefullhttps://www.spreaker.com/episode/una-madre-en-mision--15025845
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/15025845Tue, 19 Jun 2018 06:30:49 +0000Anna JaworskiEl programa de hoy es uno de un par de programas que se presentarán durante esta serie de Spotlight que presenta Defectos cardíacos en todo el mundo. El programa de hoy está en español y el programa de la semana pasada fue en inglés. Nuestro programa...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1636corazón,empoderamiento,hlhs,luchafalsefullhttps://www.spreaker.com/episode/mom-on-a-mission--14969059
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14969059Tue, 05 Jun 2018 16:00:05 +0000Anna JaworskiToday's program is one in a pair of programs to be presented during this Spotlight Series which features Heart Defects Around the Globe. Today's program is in English and next week's program will feature Guest Host, Marta Montero and Guest, Jennifer...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1854advocacy,congenital_heart_defect,congenital_heart_defects,empowerment,hlhs,hypoplastic_left_heart_syndrom,lobbyingfalsefullhttps://www.spreaker.com/episode/lgdwl-m-hwt-b-lt-zrkym-mywhdym--14799749
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14799749Tue, 15 May 2018 17:00:05 +0000Anna Jaworskiעידן וספיר ליבן משוחחים עם המנחה האורחת רחל גרינבוים על איך מתנהלים החיים במחיצתו של אחות בעלת מום לב מולד ואוטיזם. הם ישתפו אותנו בחוויותיהם כאחים לאחות יוצאת דופן ויספרו לנו איך היא העשירה את חייהם
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1788אוטיזם,אנגלית,מומי,עבריתfalsefullhttps://www.spreaker.com/episode/growing-up-with-a-special-needs-sister-in-english-hebrew--14799398
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14799398Tue, 15 May 2018 16:00:05 +0000Anna JaworskiIn addition to getting a more in-depth perspective regarding growing up with a special needs sister, what sets this episode apart from other "Heart to Heart with Anna" episodes is the fact that it is our very first program in Hebrew. In addition to...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1809autism,brother,congenital_heart_defects,english,hebrew,sibling,sister,special_needs_childrenfalsefullhttps://www.spreaker.com/episode/een-nederlandse-moeder-s-ervaring-met-een-kind-met-een-aangeboren-hartafwijking--14733884

Dit is de eerste show van “Heart to Heart with Anna” die in het Engels en in het Nederlandse opgenomen is. Cora den Harder is de gast interviewer voor de Nederlandstalige show.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14733884Tue, 08 May 2018 17:00:05 +0000Anna JaworskiPhilippina Wijtmans, oftewel Pien, is de moeder van 3 kinderen: Rinske, Sven, en Kyle. Pien is een Nederlandse van geboorte, maar ze verhuisde naar Amerika vanwege haar man’s werk. Vandaag is ze als gast op de show “Heart to Heart with Anna.” Zij...

Dit is de eerste show van “Heart to Heart with Anna” die in het Engels en in het Nederlandse opgenomen is. Cora den Harder is de gast interviewer voor de Nederlandstalige show.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1623aangeboren_hartafwijking,aangeboren_hartafwijkingen,arteriële_switch_operatie,hartafwijkingen,nederlandstalig,transpositie_van_de_grote_vatefalsefullhttps://www.spreaker.com/episode/a-dutch-mother-s-experience-with-congenital-heart-defects--14733312
This is the first "Heart to Heart with Anna" to be presented in both English and Dutch. Cora DenHarder will be the Guest Host for the Dutch version of the program.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14733312Tue, 08 May 2018 16:00:06 +0000Anna JaworskiPhilippina Wijtmans, Pien for short, is the mother of 3 children – Rinske, Sven, and Kyle. Pien grew up in the Netherlands but moved to the USA due to her husband's job. Today on "Heart to Heart with Anna" Pien shares with Anna what it was like for...
This is the first "Heart to Heart with Anna" to be presented in both English and Dutch. Cora DenHarder will be the Guest Host for the Dutch version of the program.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1906arterial_switch_operation,congenital_heart_defect,dutch,netherlands,tga,tgv,transpositionfalsefullhttps://www.spreaker.com/episode/siblings-of-a-sister-with-special-needs--14493603
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14493603Tue, 10 Apr 2018 16:00:05 +0000Anna JaworskiWhat was it like for Sapir and Idan to live with a sister who had special needs? How did it affect them as they grew up? How did their sister's death affect them? What advice do these young adults have for other siblings living with a sibling with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2038autism,brother,congenital_heart_defect,death,dorv,double_outlet_right_ventricle,epilepsy,loss,sibling,sister,special_needsfalsefullhttps://www.spreaker.com/episode/brothers-of-a-heart-warrior-sister--14436594
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14436594Tue, 03 Apr 2018 16:00:05 +0000Anna JaworskiLauren Bednarz was born with a very complex heart defect requiring multiple surgeries. Her older brother Ryan Celeskey and her younger brother Aaron Celeskey talk about what it was like growing up with a sister with a special heart. Ryan talks about...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1802brother,brothers,chronic_illness,congenital_heart_defect,family,hrhs,hypoplastic_right_ventricle,relationships,sibling,sister,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/rainbow-baby-brother-life-after-the-loss-of-a-sibling--14389609
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14389609Tue, 27 Mar 2018 16:00:05 +0000Anna JaworskiDebbie Gilmore was pregnant with her son Brandon when her older child, Matthew, passed away due to complications from his open-heart surgery to fix his congenital heart defect. Today Brandon will share with us what it has been like to be a Rainbow...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1675brother,brothers,congenital_heart_defects,death,family,life_after_death,loss_of_a_child,rainbow_baby,relationship,sibling,siblings,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/heart-sister-chd-advocate-and-heart-mom--14318648
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14318648Tue, 20 Mar 2018 16:00:05 +0000Anna JaworskiKristi Gimpel has a remarkable story. As a little girl, her younger sister had to undergo multiple open-heart surgeries. Kristi tells Anna about who took care of her, how she felt about her sister, especially when other children were curious about her...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2036chronic_illness,congenital_heart_defect,hrhs,hypoplastic_right_heart,sibling,sister,sistersfalsefullhttps://www.spreaker.com/episode/my-heart-brother-best-friend--14258113
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14258113Tue, 13 Mar 2018 16:00:06 +0000Anna JaworskiUsman Shahid is the older brother of Nauman Shahid. In this episode of "Heart to Heart with Anna" Usman shares with Anna what it was like for him to grow up with two younger siblings with special needs. He talks about what he remembers from Nauman's...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1654brother,brothers,chronic_illness,congenital_heart_defect,down_syndrome,family,sibling,siblings,sister,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/growing-up-with-a-heart-warrior-brother--14216110
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14216110Tue, 06 Mar 2018 17:00:06 +0000Anna JaworskiDaniel Sadjak shares with Anna what it was like to grow up in a family with heart-healthy siblings and one sibling born with hypoplastic left heart syndrome (HLHS). He talks about his earliest memories, what it was like going to school with his...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1803brother,brothers,chronic_illness,congenital_heart_defects,family,hlhs,hypoplastic_left_heart_syndrom,sibling,siblingsfalsefullhttps://www.spreaker.com/episode/a-special-bond-between-sisters--14155208
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/14155208Tue, 27 Feb 2018 17:00:05 +0000Anna JaworskiSisters Amy and Jessica Cowin share a special secret. They have both been touched by organ donation and transplantation. Jessica was born with hypoplastic left heart syndrome or HLHS and needed a heart transplant. As if that wasn't stressful enough,...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1896congenital_heart_defects,heart_warrior,hlhs,hypoplastic_left_heart_syndrom,kidney_donation,kidney_transplant,sibling,sister,sisters,transplantfalsefullhttps://www.spreaker.com/episode/heart-sister-to-heart-sister--13984515
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13984515Tue, 06 Feb 2018 17:00:05 +0000Anna JaworskiIn today's program Katie Hunt talks about what it was like to grow up with tetralogy of Fallot and how she longed for a sister or brother. She talks about what it was like to be bullied in school and how that experience led her to move to a new school...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1830angel,congenital_heart_defects,epstein's_anomaly,loss,miracle,only_child,sibling,sisters,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/big-sister-to-a-chd-warrior-time-together-time-away--13926486
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13926486Tue, 30 Jan 2018 17:00:05 +0000Anna JaworskiRoseann Franco Bischoff is David Franco's big sister. She shares with Anna what it was like for her growing up in a house full of siblings where she had a lot of responsibility and how that became amplified when her brother David was born with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1867brother,cc-tga,cc-tgv,congenital_heart_defect,sibling,sister,tga,tgvfalsefullhttps://www.spreaker.com/episode/brother-of-an-hlhs-warrior--13817370
Joey Jaworski is 3 years older than his brother Alex who was born with HLHS. Both Joey and Alex are now in their 20s. Joey talks about what it was like for him to try to help his family when his little brother had 2 open-heart surgeries within the first year of his life and then another one when Alex was 17 and Joey was 20 years old.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13817370Tue, 23 Jan 2018 17:00:05 +0000Anna JaworskiIn today's episode, big brother Joey Jaworski, talks about what it was like growing up with a brother with hypoplastic left heart syndrome or HLHS. He shares some of his earliest memories with Anna (who also happens to be his mother), talks about ways...
Joey Jaworski is 3 years older than his brother Alex who was born with HLHS. Both Joey and Alex are now in their 20s. Joey talks about what it was like for him to try to help his family when his little brother had 2 open-heart surgeries within the first year of his life and then another one when Alex was 17 and Joey was 20 years old.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1893brother,chronic_illness,congenital_heart_defects,family,hlhs,hypoplastic_left_heart,siblingfalsefullhttps://www.spreaker.com/episode/heart-sister-now-and-forever--13750608
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13750608Tue, 16 Jan 2018 17:00:04 +0000Anna JaworskiToday on "Heart to Heart with Anna" Ayrton Beatty talks with Anna about growing up in Scotland with her brother Edward. She tells Anna what they had in common, what it was like going to school together, what friends they had and how she communicates...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1627adoption,bereavement,brother,cardiac_risk_in_the_young,cardiomyopathy,congenital_heart_defects,scotland,sibling,sister,soccer,sudden_adult_death_syndrome,undiagnosed_heart_defectfalsefullhttps://www.spreaker.com/episode/heart-sister-heart-warrior-and-heart-mom--13741968
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13741968Tue, 09 Jan 2018 17:00:05 +0000Anna JaworskiSteffe Becker is in a unique position. She is the sister to a brother with a congenital heart defect (CHD). She was born with a heart defect herself and she is the mother of twins. One of the twins was born with a heart defect. Tune in to today's...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1802aortic_stenosis,bicuspid_aortic_valve,brother,chronic_illness,congenital_heart_defects,heart_defect,nonprofit,pacemaker,pocketful_of_hearts,sibling,sister,twinfalsefullhttps://www.spreaker.com/episode/siblings-of-a-truncus-arteriosus-sister--13709222
Jessica Weiner, at 32, is the heart-healthy, youngest of three siblings. Jessica’s sister, Jennifer, was born with Truncus Arteriosus in 1982. Jessica was not yet born when her sister had her first surgery. However, the two siblings, who shared a room growing up, are quite close; Jessica often takes on the role of secondary caregiver to her older sister.

Join us today as we talk with these siblings about what it's like to grow up with a sibling with a congenital heart defect, how her heart defect and hospitalizations affected their lives and what it meant to Jeff once he decided to start a family of his own.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13709222Tue, 02 Jan 2018 17:00:05 +0000Anna JaworskiJeff is the oldest of three siblings, born in 1977, and the only son to Chris and Jeff Sr. Jeff was just over 4 years old, when Jennifer was born with a congenital heart defect. Growing up, he was responsible for walking Jennifer to the school they...
Jessica Weiner, at 32, is the heart-healthy, youngest of three siblings. Jessica’s sister, Jennifer, was born with Truncus Arteriosus in 1982. Jessica was not yet born when her sister had her first surgery. However, the two siblings, who shared a room growing up, are quite close; Jessica often takes on the role of secondary caregiver to her older sister.

Join us today as we talk with these siblings about what it's like to grow up with a sibling with a congenital heart defect, how her heart defect and hospitalizations affected their lives and what it meant to Jeff once he decided to start a family of his own.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1855brother,chronically_ill,congenital_heart_defect,hospitalization,open-heart_surgery,sibling,sister,truncus_arteriosusfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-olympic-athlete-paul-wylie--13671012
You'll also discover what it means to Paul to be a Cardiac Athlete™ and how he might contribute to the sequel to the book Cardiact Athletes: Real Superheroes Beating Heart Disease (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1513015853&sr=8-2&keywords=cardiac+athlete+lars+andrews).

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13671012Tue, 26 Dec 2017 17:00:05 +0000Anna JaworskiWho would ever believe that an Olympic athlete harbored a hidden heart defect for decades? What happened to Olympic Silver Medalist Paul Wylie? How did he survive sudden cardiac arrest? Tune in today to "Heart to Heart with Anna" to hear Paul's story...
You'll also discover what it means to Paul to be a Cardiac Athlete™ and how he might contribute to the sequel to the book Cardiact Athletes: Real Superheroes Beating Heart Disease (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1513015853&sr=8-2&keywords=cardiac+athlete+lars+andrews).

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1414aortic_stenosis,congenital_heart_defect,figure_skater,icd,pacemaker,paul_wylie,pig_valve,sudden_cardiac_arrest,valve_replacementfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-beth-greenaway--13627081
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13627081Tue, 19 Dec 2017 17:00:05 +0000Anna JaworskiBeth Greenaway was an extremely competitive athlete despite the fact that she was born with a pulmonary valve problem which required surgery in her childhood. Join us today as she describes the kind of problems she encountered after falling out of...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1481atrial_septal_defect,cardiac_athlete™,congenital_heart_defect,open_heart_surgery,pulmonary_stenosis,pulmonary_valve_replacement,strokefalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-greg-bassett--13561025https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1513015853&sr=8-2&keywords=cardiac+athlete+lars+andrews) affected him and why he feels it's such a helpful resource!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13561025Tue, 12 Dec 2017 17:00:04 +0000Anna JaworskiGreg Bassett was an athlete in his 40s when he was told, during a routine physical, that he had a heart murmur. Before he knew it, he was visiting a cardiologist and events would transpire to change his life. Join us as Anna talks with Greg about what...https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1513015853&sr=8-2&keywords=cardiac+athlete+lars+andrews) affected him and why he feels it's such a helpful resource!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1187heart_valve,mitral_valve_regurgitation,open_heart_surgery,triathlon,valve_repairfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-ed-rucci--13510326


Ed Rucci might be submitting an essay for the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13510326Tue, 05 Dec 2017 17:00:04 +0000Anna JaworskiEd Rucci joins Anna today on 'Heart to Heart with Anna" to talk about how his heart attack has affected his life. Join us to hear how the event transpired, surprising this Cardiac Athlete™ who was a competitive athlete taking part in triathlons. Learn...


Ed Rucci might be submitting an essay for the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>954cardiac_arrest,cardiac_athlete,cardiac_rehab,heart_attack,triatholonfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-graeme-sutton--13428141
Graeme Sutton has submitted an essay for the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13428141Tue, 28 Nov 2017 17:00:04 +0000Anna JaworskiGraeme Sutton was 50 years old before discovering he had a potentially life-threatening heart defect. Join us today as Graeme shares with Anna what it was like to discover that he had, not only a serious heart defect, but also a disease process which...
Graeme Sutton has submitted an essay for the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1201bacterial_endocarditis,bicuspid_aortic_valve,congenital_heart_defect,deep_vein_thrombosis,valve_replacementfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-roger-potter--13384136
Lars Andrews' wrote a book, Cardiac Athletes which has stories about athletes who have endured cardiac surgeries (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1509401650&sr=8-2&keywords=lars+andrews+cardiac+athlete). Lars Andrews is working on the 2nd book in this series and Roger Potter has contributed an essay to this book.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13384136Tue, 21 Nov 2017 17:00:04 +0000Anna JaworskiRoger Potter was born in the 1940s -- a critical time in the era of open-heart surgery because it was in 1944 that Dr. Blalock and Dr. Taussig performed the first operation to save a "blue baby." Roger was one of the original "blue babies" saved by...
Lars Andrews' wrote a book, Cardiac Athletes which has stories about athletes who have endured cardiac surgeries (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1509401650&sr=8-2&keywords=lars+andrews+cardiac+athlete). Lars Andrews is working on the 2nd book in this series and Roger Potter has contributed an essay to this book.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>901blue-baby,congenital_heart_defects,open-heart_surgery,patent_ductus_arteriosus,pdafalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-neil-collins--13317908
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13317908Tue, 14 Nov 2017 17:00:04 +0000Anna JaworskiNeil Collins was born with the most common congenital heart defect - a bicuspid aortic valve. Join us today as we learn about what it was like growing up with this heart defect, how long it took to become a problem and what Neil did about it. We'll...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>973bicuspid_aortic_valve,congenital_heart_defect,congenital_heart_defects,tissue_replacement,valve_replacementfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-aimee-osinski--13205729
To learn more about Aimee, check out her essay in Lars Andrews' book, Cardiac Athletes (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1509401650&sr=8-2&keywords=lars+andrews+cardiac+athlete). Lars Andrews is working on the 2nd book in this series and there may be an update from Aimee for that book, but you'll hear her story on Heart to Heart with Anna first!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13205729Tue, 07 Nov 2017 17:00:04 +0000Anna JaworskiLike so many of the Cardiac Athletes™ Anna has interviewed for this Spotlight on Cardiac Athletes™, Aimee Osinski discovered her heart condition after she thought she was in tip-top shape and in adulthood. It was quite a shock for Aimee to discover...
To learn more about Aimee, check out her essay in Lars Andrews' book, Cardiac Athletes (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1509401650&sr=8-2&keywords=lars+andrews+cardiac+athlete). Lars Andrews is working on the 2nd book in this series and there may be an update from Aimee for that book, but you'll hear her story on Heart to Heart with Anna first!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1171aneurysm,aortic_aneurysm,autoimmune_disorder,connective_tissue_disorder,runnerfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-martin-brady--13144161
Martin Brady was a runner from an early age but at age 24 he discovered something startling -- he was born with a bicuspid aortic valve. Join us as Martin shares what happened to him after he discovered he had this birth defect, how he prepared himself for the inevitable and what consequences he's endured since having his heart valve replaced.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13144161Tue, 31 Oct 2017 16:00:05 +0000Anna JaworskiMartin Brady was a runner from an early age but at age 24 he discovered something startling -- he was born with a bicuspid aortic valve. Join us as Martin shares what happened to him after he discovered he had this birth defect, how he prepared...
Martin Brady was a runner from an early age but at age 24 he discovered something startling -- he was born with a bicuspid aortic valve. Join us as Martin shares what happened to him after he discovered he had this birth defect, how he prepared himself for the inevitable and what consequences he's endured since having his heart valve replaced.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1341aneurysm,bicuspid_aortic_valve,congenital_heart_defects,heart_valve,valve_replacementfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-michael-montgomery--13113690
To learn more about Michael Montgomery, visit his website: https://www.themichaelmontgomery.com/

To learn more about Michael Montgomery's nonprofit organization, go here: https://www.themichaelmontgomery.com/foundation-1

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13113690Tue, 24 Oct 2017 16:00:05 +0000Anna JaworskiGreen Bay Packer #96 -- Michael Montgomery -- was a defensive end with a history of 123 tackles and 5 sacks. He also harbored a little-known secret -- he was born with a potentially life-threatening congenital heart defect. Had it not been for the...
To learn more about Michael Montgomery, visit his website: https://www.themichaelmontgomery.com/

To learn more about Michael Montgomery's nonprofit organization, go here: https://www.themichaelmontgomery.com/foundation-1

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1069arrhythmia,congenital_heart_defects,green-bay-packers,michael_montgomery,wolff-parkinson-whitefalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-tracie-happel--13052079
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/13052079Tue, 17 Oct 2017 16:00:04 +0000Anna JaworskiToday we'll meet with Cardiac Athlete™ Tracie Happel as she talks with Anna about the unusual circumstances that led to the diagnosis of a rare heart defect that could have claimed the life of her and her son. Tune in to hear the difficulties Tracie...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1199congenital_heart_defects,heart_block,heart block intermittent,high grade av block,medical_misdiagnosisfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-richard-gardner--12998001
Richard Gardner will be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12998001Tue, 10 Oct 2017 16:00:04 +0000Anna JaworskiTune in to hear Richard Gardner talk to Anna about his journey from athlete to discovery that his heart had a valve problem to having open-heart surgery and then his decisions regarding exercise following his surgery. Listen to the compromises he had...
Richard Gardner will be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>941bicuspid_aortic_valve,cleveland_clinic,congenital_heart_defects,triathlete,valve_replacementfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-barry-stone--12943872
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12943872Tue, 03 Oct 2017 16:00:05 +0000Anna JaworskiBarry Stone is a very special Cardiac Athlete™. At 74 years old he is a triathlete who has loved athletics all his life. Tune in to hear him share about his life, his challenges, what it was like to be told he had a "heart murmur" in his 30s and what...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>848cardiac_athletes,heart_murmur,mitral_valve-regurgitation,stent,triathletesfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-benjamin-lee--12891341
Benjamin Lee is a preacher, an author and a motivational speaker. He might be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12891341Tue, 26 Sep 2017 16:00:05 +0000Anna JaworskiJoin us on Heart to Heart with Anna this week for another spotlight on Cardiac Athletes. Today we’re talking with athlete Benjamin Lee who went from living a "normal" life as an athlete for over two decades before discovering he had a potentially...
Benjamin Lee is a preacher, an author and a motivational speaker. He might be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1174congenital_heart_defects,hcm,hypertrophic_cardiomyopathy,icd,internal_cardiac_defibrillatorfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-lisa-johnson--12835020
Lisa Johnson will be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12835020Tue, 19 Sep 2017 16:00:05 +0000Anna JaworskiJoin us on Heart to Heart with Anna this week for another spotlight on Cardiac Athletes. Today we’re talking with athlete Lisa Johnson who went from training in gymnastics, Olympic weightlifiting and crossfit to heart surgery and finding out she had...
Lisa Johnson will be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1188atrial_septal_defect,autoimmunedisease,congenital_heart_defects,crossfit,heart_surgeryfalsefullhttps://www.spreaker.com/episode/cardiac-athlete-spotlight-tim-howard--12778303http://cardiacathletes.com/

This week's spotlight is on Tim Howard. Join us as Anna interviews Tim about his cardiac disease, how he responded to his doctors and what it means to him to be a Cardiac Athlete.

Tim Howard will be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12778303Tue, 12 Sep 2017 16:00:04 +0000Anna JaworskiThis week, and for the next several weeks, Heart to Heart with Anna will be a Spotlight on a Cardiac Athlete. You can learn more about Cardiac Athletes, you can visit this website: http://cardiacathletes.com/ This week's spotlight is on Tim Howard....http://cardiacathletes.com/

This week's spotlight is on Tim Howard. Join us as Anna interviews Tim about his cardiac disease, how he responded to his doctors and what it means to him to be a Cardiac Athlete.

Tim Howard will be participating in the 2nd book in the Cardiac Athlete series by Lars Andrews. To purchase the first book in the series, go to this link (and you'll also help out Hearts Unite the Globe -- the nonprofit that provides this podcast free of charge to Listeners): https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1505177810&sr=8-2&keywords=cardiac+athletes+lars+andrews

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1041cardiac-arrest,cardiac_athletes,cardiac_rehab,heart_attack,overcomingadversityfalsefullhttps://www.spreaker.com/episode/progres-dans-la-comprehension-du-foie-chez-les-patients-de-fontan--12727603
La procédure de Fontan a été utilisée depuis les années 1970 pour traiter les personnes avec une physiologie du ventricule unique--également connu sous le nom d’un cœur options. Il a également été utilisé dans les dernières décennies pour traiter le syndrome d’hypoplasie du coeur gauche (hCG) ou syndrome d’hypoplasie du coeur droit (HRHS). Il y a maintenant assez survivants à long terme de la procédure de Fontan le milieu médical pour savoir quels types de conséquences vu telle une physiologie radicale pose. Lorsque la seule fonction du coeur est de pomper le sang dans le corps, et il se déplace passivement aux poumons pour l’oxygène, comment cette anatomie affecte-t-elle autres organes, notamment le foie ?

Notre médecin invité s’appelle Magalie Ladouceur, qui est cardiologue et spécialiste des Cardiopathies Congénitales de l’Adolescent et de l’Adulte. Elle coordonne le programme d’éducation thérapeutique des adolescents atteints de cardiopathies congénitales à l’hôpital Necker Enfants-malades à Paris, mais elle est aussi Cardiologue à l’hôpital Européen Georges Pompidou AP-HP au sein de l’Unité Médico-Chirurgicale des cardiopathies congénitales de l’adolescent et de l’adulte qui est centre de référence des malformations cardiaques congénitales complexes en France.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12727603Tue, 05 Sep 2017 16:00:05 +0000Anna JaworskiThis is our first Heart to Heart with Anna episode entirely in French for our French-speaking Heart Community. Today's topic deals with the Fontan heart and liver involvement. La procédure de Fontan a été utilisée depuis les années 1970 pour traiter...
La procédure de Fontan a été utilisée depuis les années 1970 pour traiter les personnes avec une physiologie du ventricule unique--également connu sous le nom d’un cœur options. Il a également été utilisé dans les dernières décennies pour traiter le syndrome d’hypoplasie du coeur gauche (hCG) ou syndrome d’hypoplasie du coeur droit (HRHS). Il y a maintenant assez survivants à long terme de la procédure de Fontan le milieu médical pour savoir quels types de conséquences vu telle une physiologie radicale pose. Lorsque la seule fonction du coeur est de pomper le sang dans le corps, et il se déplace passivement aux poumons pour l’oxygène, comment cette anatomie affecte-t-elle autres organes, notamment le foie ?

Notre médecin invité s’appelle Magalie Ladouceur, qui est cardiologue et spécialiste des Cardiopathies Congénitales de l’Adolescent et de l’Adulte. Elle coordonne le programme d’éducation thérapeutique des adolescents atteints de cardiopathies congénitales à l’hôpital Necker Enfants-malades à Paris, mais elle est aussi Cardiologue à l’hôpital Européen Georges Pompidou AP-HP au sein de l’Unité Médico-Chirurgicale des cardiopathies congénitales de l’adolescent et de l’adulte qui est centre de référence des malformations cardiaques congénitales complexes en France.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1654cardiopathie congénitale,cirrhose,coeur de ventricule unique,foie,procédure de fontanfalsefullhttps://www.spreaker.com/episode/discovering-hidden-talents-in-our-heart-warriors--12668816
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12668816Tue, 29 Aug 2017 16:00:04 +0000Anna JaworskiToday Jessica Gutierrez-Rodriguez talks with us about how she has discovered her single-ventricle heart warrior's hidden talents. She also shares with us Marianne's early years and some of the challenges she's had to overcome. Jessica shares how she...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1949congenital_heart_defects,parenting,parentingadvice,single_ventricle,talentfalsefullhttps://www.spreaker.com/episode/educating-twin-heart-warrior-toddlers--12604588
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12604588Tue, 22 Aug 2017 18:00:05 +0000Anna JaworskiThe importance of early childhood education (ECI) cannot be denied. At-risk children who are given ECI tend to do better and many can even start kindergarden with their peers. Today's program features Roxanne Montalvo-Tsai, a heart mom to a healthy...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1792congenital_heart_defect,congenital_heart_defects,early_childhood_education,tetralogy_of_fallot,twinsfalsefullhttps://www.spreaker.com/episode/you-re-never-too-old-to-dream-a-new-dream-education-for-heart-parents--12574518
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12574518Tue, 15 Aug 2017 18:00:04 +0000Anna JaworskiWhat happens to Heart Parents's dreams after they have a baby with a critical congenital heart defect? How can parents juggle having a baby needing so much medical attention AND the desire to continue their education? Marta Montero shares her story.
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1991congenital_heart_defects,dreams,education,single_ventricle,special_educationfalsefullhttps://www.spreaker.com/episode/special-education-accommodations-individualized-health-care-plans--12526208
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12526208Tue, 08 Aug 2017 16:00:07 +0000Anna JaworskiIt's back-to-school time and "Heart to Heart with Anna" wants to make sure that Heart Parents are prepared to send their Heart Warriors back to school! Enjoy today's program with Lisa O'Connor, a special education advocate. Lisa shares with Anna some...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2018accommodations,advocacy,congenital_heart_defects,health_care_plan,special_educationfalsefullhttps://www.spreaker.com/episode/moving-from-high-school-to-adulthood--12479397
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12479397Tue, 01 Aug 2017 16:00:10 +0000Anna JaworskiWhat happens when our Heart Warriors age out of high school but are not ready for college or trade school? What can parents do to prepare their children for adulthood when cognitively they may not be where their peers are? Join us today as Kathy...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1844cardiac_transplant,congenital_heart_defects,hypoplastic_left_heart,neurological_disorder,transitionsfalsefullhttps://www.spreaker.com/episode/one-heart-warrior-s-educational-experience-down-under--12426434
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12426434Tue, 25 Jul 2017 16:00:25 +0000Anna JaworskiSeason 10 of Heart to Heart with Anna is focused on educational issues but almost all of the programs have dealt with Heart Warriors in the United States. Join us with this program as we go Down Under to talk with an Australian Heart Warrior and what...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1902australia,congenital_heart_defects,education,ventricular_septal_defect,vsdfalsefullhttps://www.spreaker.com/episode/the-faces-of-special-education--12377019
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12377019Tue, 18 Jul 2017 16:00:19 +0000Anna JaworskiJoin us in this episode as we investigate a world filled with acronyms and letters (504 Plans, IEPs, ARDs). Special Education Instructor and Heart Mom Marie O'Donnell demystifies the world of special education as she explains what different kind of...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1969504_plan,congenital_heart_defects,health_care_directive,iep,special_educationfalsefullhttps://www.spreaker.com/episode/homeschooling-and-self-advocacy--12326928
Tune in to this program to hear experienced homeschool mother Chelle McIntyre-Brewer share with Anna what event caused her to homeschool her two children, what advantages she believes the children have been afforded by being homeschooled and how they are learning self-advocacy in addition to typical subjects. Chelle McIntyre-Brewer is a military wife and she details how choosing to homeschool has been an excellent option for her family. She talks about curriculum, socialization and other popular topics related to homeschooling in this episode with Anna Jaworski. You won't want to miss how these two Heart Moms talk about what homeschooling meant to them regarding their heart-healthy children and their children with congenital heart defects.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12326928Tue, 11 Jul 2017 16:00:50 +0000Anna JaworskiThe number of families in the United States and around the world who are choosing to homeschool seems to be on the rise. There are a number of countries where it is illegal to homeschool but in the countries where it is not illegal, it is a viable...
Tune in to this program to hear experienced homeschool mother Chelle McIntyre-Brewer share with Anna what event caused her to homeschool her two children, what advantages she believes the children have been afforded by being homeschooled and how they are learning self-advocacy in addition to typical subjects. Chelle McIntyre-Brewer is a military wife and she details how choosing to homeschool has been an excellent option for her family. She talks about curriculum, socialization and other popular topics related to homeschooling in this episode with Anna Jaworski. You won't want to miss how these two Heart Moms talk about what homeschooling meant to them regarding their heart-healthy children and their children with congenital heart defects.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1909congenital_heart_defects,homeschool,homeschooling,medically_fragile_children,self-advocacyfalsefullhttps://www.spreaker.com/episode/learning-about-the-function-of-the-heart--12279903
Tune in to hear Katina Robalino discuss this important topic. As a teacher, Katina knows the importance of having valuable information before making potentially life-threatening decisions. Discover what Katina did to educate herself and how she now advocates for her two daughters born with congenital heart defects and the heart-heatlhy daughter she has as well. Learn from this teacher how you can teach your own children and what information they should be given at different levels of development.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12279903Tue, 04 Jul 2017 16:00:51 +0000Anna JaworskiWhat happens when you expect a perfectly healthy baby but after delivery you discover your baby has a heart defect -- one that will require open-heart-surgery to fix? How can ordinary parents learn about the function of the heart? What should they...
Tune in to hear Katina Robalino discuss this important topic. As a teacher, Katina knows the importance of having valuable information before making potentially life-threatening decisions. Discover what Katina did to educate herself and how she now advocates for her two daughters born with congenital heart defects and the heart-heatlhy daughter she has as well. Learn from this teacher how you can teach your own children and what information they should be given at different levels of development.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1991atrioventricular_defect,congenital_heart_defects,heart,pediatric_cardiology,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/special-education-transitions-for-heart-warriors--12225309
What special struggles might they face? How can parents help their children to transition over the course of their lives? What do parents need to do to help their children become independent and successful? If infants are diagnosed as a "special needs children" will they ever be able to shake that label to live "normal" lives? Vicki Lucas, special educator and Heart Mom, shares her stories about watching her son, Alex (born with hypoplastic left heart syndrome or HLHS) go from infancy to adulthood. She expounds upon some of the struggles Alex endured and how he has achieved success as an adult. You won't want to miss this inspiring program.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12225309Tue, 27 Jun 2017 16:00:14 +0000Anna JaworskiIt is a commonly known fact in the congenital heart defect (CHD) community that now there are more adults alive with CHDs than babies being born. That means we have more people reaching adulthood than ever before and that means that more people than...
What special struggles might they face? How can parents help their children to transition over the course of their lives? What do parents need to do to help their children become independent and successful? If infants are diagnosed as a "special needs children" will they ever be able to shake that label to live "normal" lives? Vicki Lucas, special educator and Heart Mom, shares her stories about watching her son, Alex (born with hypoplastic left heart syndrome or HLHS) go from infancy to adulthood. She expounds upon some of the struggles Alex endured and how he has achieved success as an adult. You won't want to miss this inspiring program.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2023congenital_heart_defects,hlhs,hypoplastic_left_heart,special_education,transitionsfalsefullhttps://www.spreaker.com/episode/continuing-education-through-conferences-and-support-groups--12166692
Today's Guest is Heart Mom and Braveheart Support Society Founder, Yarrow Gillis. She'll entertain us with stories about the growth and development of multiple resources for the CHD community and how Listeners can take advantage of those resources, even if they don't live in Canada! Listen to Yarrow share stories about her own family and those she has come to know since she had a daughter with a critical congenital heart defect.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12166692Tue, 20 Jun 2017 16:00:37 +0000Anna JaworskiThis season we're focusing on education for Heart Warriors and today's show exemplifies how learning is a life-long process. Today's show deals not only with how Heart Warriors can continue their education about congenital heart defects (CHDs), but...
Today's Guest is Heart Mom and Braveheart Support Society Founder, Yarrow Gillis. She'll entertain us with stories about the growth and development of multiple resources for the CHD community and how Listeners can take advantage of those resources, even if they don't live in Canada! Listen to Yarrow share stories about her own family and those she has come to know since she had a daughter with a critical congenital heart defect.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1860chd_conference,chd_summer_camp,chd_support_group,chd_survivor,congenital_heart_defectsfalsefullhttps://www.spreaker.com/episode/homeschooling-a-special-needs-heart-warrior--12102247
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12102247Tue, 13 Jun 2017 16:00:45 +0000Anna JaworskiThe United States Department of Education reports that homeschooling continues to grow with an estimated 1,770,000 homeschooled students in 2013. That is 3.4% of the school-aged population! This is an increase of 61.8% over the previous ten years....
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1882congenital_heart_defects,heterotaxy,homeschool,homeschooling,medicallyfragilefalsefullhttps://www.spreaker.com/episode/how-military-families-deal-with-having-a-child-with-a-chd-encore-presentation--12046871
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/12046871Tue, 06 Jun 2017 16:00:13 +0000Anna JaworskiMilitary families lead a very different life than civilian families do. Military families come from all walks of life and, when their children are diagnosed with heart defects, the challenges can vary according to location, branch of service, and of...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3429congenital_heart_defects,deployment,military_families,usa_army,usa_marinesfalsefullhttps://www.spreaker.com/episode/physical-education-for-heart-warriors--11987122
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11987122Tue, 30 May 2017 16:00:18 +0000Anna JaworskiMany years ago, when people were diagnosed with congenital heart defects, their doctors warned parents about the dangers of allowing their children to cry, to become upset or to exert themselves. What have doctors learned from those early pioneers in...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1815cardiac,congenital_heart_defects,exercise,exercise_tolerance,physicaleducationfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-cardiac-athletes-beating-heart-disease-around-the-world--11931061
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11931061Tue, 23 May 2017 16:00:55 +0000Anna JaworskiCardiac athletes are all around us. There are athletes who develop heart problems or who discover, after they have been athletes for a while, that there heart has some imperfections that may require surgery and there are people who were born with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1968cardiac_athletes,cardiac_rehab,congenital_heart_defects,exercise,pacemakersfalsefullhttps://www.spreaker.com/episode/strokes-and-tias-in-the-chd-patient--11877116
Many people who have CHDs have rhythm problems and these electrical problems with the heart can lead to TIAs or strokes. Additionally, some people with CHDs have valve problems, holes in their hearts or heart failure. All of these conditions create an environment that is conducive to the formation of blood clots or blockages which could lead to a stroke. This is why it's extremely important for people with CHDs to be aware of the warning signs of strokes or TIAs.

Carol Raimondi, a CHD and Stroke Survivor, is today's Guest Host. She interviews TIA survivor, Frank Lynn, and Stroke Survivor, Terese Quarino, about what happened to them when they suffered their neurological event, what warning signs presented themselves, how the Survivors reacted to those warning signs and what advice they have for other Heart Warriors. This is a very important topic for all Heart Warriors and their families.

For more information about CHDs and strokes, check out this webpage: https://www.verywell.com/heart-disease-that-leads-to-stroke-4083060.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11877116Tue, 16 May 2017 16:00:17 +0000Anna JaworskiPeople who are born with congenital heart defects (CHDs) are at greater risk for having a TIA (mini-stroke or transcient ishchemic attack) or stroke. A stroke occurs when there is bleeding into the brain (hemorrhagic stroke) or a blood clot blocking...
Many people who have CHDs have rhythm problems and these electrical problems with the heart can lead to TIAs or strokes. Additionally, some people with CHDs have valve problems, holes in their hearts or heart failure. All of these conditions create an environment that is conducive to the formation of blood clots or blockages which could lead to a stroke. This is why it's extremely important for people with CHDs to be aware of the warning signs of strokes or TIAs.

Carol Raimondi, a CHD and Stroke Survivor, is today's Guest Host. She interviews TIA survivor, Frank Lynn, and Stroke Survivor, Terese Quarino, about what happened to them when they suffered their neurological event, what warning signs presented themselves, how the Survivors reacted to those warning signs and what advice they have for other Heart Warriors. This is a very important topic for all Heart Warriors and their families.

For more information about CHDs and strokes, check out this webpage: https://www.verywell.com/heart-disease-that-leads-to-stroke-4083060.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1724congenital_heart_defects,cva,strokes,tia,transient_ischemic_attackfalsefullhttps://www.spreaker.com/episode/the-emotional-toll-of-living-with-congenital-heart-disease--11826027
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11826027Tue, 09 May 2017 16:00:57 +0000Anna JaworskiToday's podcast deals with a topic that all Heart Parents know all too well -- the emotional impact of having a child with a congenital heart defect. Our expert Guest, Yarrow Gillis, talks candidly with Anna about what it's like to have a child born...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1890chronicillness,congenital_heart_defects,emotional-health,mental-healthfalsefullhttps://www.spreaker.com/episode/a-heart-warrior-s-early-onset-menopause--11757168
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11757168Tue, 02 May 2017 16:00:05 +0000Anna JaworskiNow that more Heart Warriors are surviving to adulthood than ever before, there is a growing cohort of individuals actually entering middle age. So for the first time ever, there is a group of female Heart Warriors who are actually experiencing the...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1630adult_heart_warrior,aging,congenital_heart_defects,menopause,peri-menopausefalsefullhttps://www.spreaker.com/episode/heart-warrior-mom-raising-children-to-adulthood--11707240
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11707240Tue, 25 Apr 2017 16:00:24 +0000Anna JaworskiGuest Host, Rita Scoggins, interviews Heart Warrior, Laura Ryan, today about what it was like to raise two children. Laura Ryan is a congenitally corrected transposition of the great arteries and DILV (or double inlet left ventricle) Heart Warrior....
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1768cc-tga,congenital_heart_defects,heart_warriors,parenting,parentingadvicefalsefullhttps://www.spreaker.com/episode/stem-cells-for-hlhs-heart-revised--11656369
This first episode of Season 9 has been remastered using improved sound editing techniques.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11656369Tue, 18 Apr 2017 16:00:54 +0000Anna JaworskiJennifer Gutman is the mother of a son born with hypoplastic left heart syndrome. In today's show Jennifer talks with Anna about finding out about her son's condition after having lost a sibling to the same condition 30 years earlier. She also shares...
This first episode of Season 9 has been remastered using improved sound editing techniques.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1779congenital_heart_defects,hlhs,hypoplastic_left_heart,mayo_clinic,stemcellfalsefullhttps://www.spreaker.com/episode/a-view-from-the-other-side-of-the-bed--11602543
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11602543Tue, 11 Apr 2017 16:00:25 +0000Anna JaworskiToday's show features two Heart Warriors -- Guest Host Carol Raimondi and Guest Roslyn Rivera. Both of these Heart Warriors decided to go into nursing. Tune in to hear why Carol (a cc-TGA Heart Warrior) and Roslyn (an partial atrio-ventricular septal...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1725cc-tga,congenital_heart_defects,heart_warriors,mitral_valve_replacement,nursingfalsefullhttps://www.spreaker.com/episode/advancements-in-pulmonary-hypertension--11548707
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11548707Tue, 04 Apr 2017 16:00:34 +0000Anna JaworskiDr. Wayne Franklin is a pediatric cardiologist specializing in the care of adults with congenital heart defects, and especially those adults with pulmonary hypertension. Today he talks to Anna about the advancements made regarding pulmonary...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1855congenital_heart_defects,emphysema,pah,pulmonaryhypertension,pulmonary-hypertensionfalsefullhttps://www.spreaker.com/episode/advancements-in-stem-cell-therapies-and-research-for-hlhs-heart-warriors--11494425
In today's program, Dr. Nelson talks with Anna about the research that is being conducted at Mayo Clinic for both infants and adults. He talks about who can participate, how to find out more information and how people can contact his program for more information. Dr. Nelso also talks with Anna about where he believes the future of stem cell therapy and research is headed.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11494425Tue, 28 Mar 2017 16:00:32 +0000Anna JaworskiDr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson and his team are specifically interested in the cause of hypoplastic left heart syndrome (HLHS) and finding ways to delay and prevent...
In today's program, Dr. Nelson talks with Anna about the research that is being conducted at Mayo Clinic for both infants and adults. He talks about who can participate, how to find out more information and how people can contact his program for more information. Dr. Nelso also talks with Anna about where he believes the future of stem cell therapy and research is headed.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2273congenital_heart_defects,hypoplastic_left_heart,stemcell,stemcell_regeneration,stemcelltherapyfalsefullhttps://www.spreaker.com/episode/advancements-in-treatments-for-hlhs-heart-warriors--11439241
Dr. Edward L. Bove is known throughout the world as "the man with the golden hands" because of his surgical skill working on babies with critical congenital heart defects. He joined the faculty at the University of Michigan as director of Pediatric Cardiovascular Surgery and became Head of the Section of Cardiac Surgery in 1999. He has given hundreds of presentations on heart surgery around the world. He has served on numerous committees including the American Heart Association, the Society of Thoracic Surgeons, the American Association for Thoracic Surgery, and the American Board of Thoracic Surgery. Dr. Bove serves on a number of editorial boards, has published over 300 manuscripts, dozens of book chapters, and edited two books.

Dr. Bove is Anna's featured Guest today and he'll answer the questions posed above and much, much more! If you, or someone you love, has HLHS, you won't want to miss this program!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11439241Tue, 21 Mar 2017 16:00:29 +0000Anna JaworskiHypoplastic left heart syndrome (HLHS) is a critical congenital heart defect -- meaning that surgery within the first year of life is necessary to survive. Several decades ago, HLHS was uniformly fatal (except in some very rare cases) and most infants...
Dr. Edward L. Bove is known throughout the world as "the man with the golden hands" because of his surgical skill working on babies with critical congenital heart defects. He joined the faculty at the University of Michigan as director of Pediatric Cardiovascular Surgery and became Head of the Section of Cardiac Surgery in 1999. He has given hundreds of presentations on heart surgery around the world. He has served on numerous committees including the American Heart Association, the Society of Thoracic Surgeons, the American Association for Thoracic Surgery, and the American Board of Thoracic Surgery. Dr. Bove serves on a number of editorial boards, has published over 300 manuscripts, dozens of book chapters, and edited two books.

Dr. Bove is Anna's featured Guest today and he'll answer the questions posed above and much, much more! If you, or someone you love, has HLHS, you won't want to miss this program!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2065congenital_heart_defects,dr._edward_bove,hlhs,hypoplastic_left_heart,medical_advancementsfalsefullhttps://www.spreaker.com/episode/advancements-in-understanding-the-psychology-of-living-with-a-chd--11381403
Today's Guest is Adrienne Kovacs, Ph.D. She works at the Knight Cardiovascular Institute at Oregon Health & Science University where she established and is the director of the Behavioral Cardiovascular Program. She will answer the questions posted above and much, much more!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11381403Tue, 14 Mar 2017 16:00:11 +0000Anna JaworskiFor decades the medical profession was engrossed in finding a way to help babies born with congenital heart defects to survive infancy and early childhood. It seemed relatively rare for babies born with complex congenital heart defects to become...
Today's Guest is Adrienne Kovacs, Ph.D. She works at the Knight Cardiovascular Institute at Oregon Health & Science University where she established and is the director of the Behavioral Cardiovascular Program. She will answer the questions posted above and much, much more!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2183anxiety,congenital_heart_defects,depression,psychosocial,ptsdfalsefullhttps://www.spreaker.com/episode/advancements-in-pregnancy-for-congenital-heart-defect-warriors--11328576
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11328576Tue, 07 Mar 2017 17:00:12 +0000Anna JaworskiThe field of pediatric cardiology and that of congenital heart disease has changed a great deal in the last couple of decades. Once upon a time, people born with critical congenital heart defects were called "blue babies" or "cardiac cripples" and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1860adoption,congenital_heart_defects,family_planning,pregnancy,surrogacyfalsefullhttps://www.spreaker.com/episode/advancements-in-family-centered-care--11231574
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/11231574Tue, 28 Feb 2017 17:00:46 +0000Anna JaworskiToday's show features two very special Guests -- Michelle Steltzer is a nurse and the sister of a Heart Warrior born with a single ventricle heart in the 1970s. Susan Romanesko is Michelle and Greg's mother. She talks with Anna about what it was like...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2262complex_congenital_heart,congenital_heart_defects,medical_care_plan,medical_care_team,single_ventriclefalsefullhttps://www.spreaker.com/episode/advancements-in-electrophysiology--10993991
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10993991Tue, 21 Feb 2017 17:00:31 +0000Anna JaworskiWilson Lam is a board certified cardiologist who specializes in adult congenital cardiology and rhythm disorders. In this program Dr. Lam outlines the advancements which have been made in the field of electrophysiology. He shares with Anna the changes...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2199ablations,a-fib,arrhythmias#,congenital_heart_defects,electrophysiologyfalsefullhttps://www.spreaker.com/episode/the-roadmap-to-success-for-complex-chd-survivors-part-2--10767349
In today's broadcast we delve deeper into why this roadmap concept is so important. We talk about what palliative care means in a medical setting and how that term is used differently for children with heart defects than with children who have cancer. We talked about Dr. Wernovsky's passions.

As a bonus, Dr. Wernovsky talked about his passion for music and how he has found that many others in the heart community share his passion for music. He introduces us to the Baby Blue Sound Collective and we even get to enjoy a song from the new CD that has been created and is being distributed just in time for Heart Month 2017. Home. Tonight. Forever. is the name of the CD that Dr. Wernovsky created with his band the Baby Blue Sound Collective. He shares with us how the money from the sale of the CD goes to fund congenital heart defect research.

Finally, Dr. Wernovsky shares his own personal advice about moving forward while living with a critical congenital heart defect. He discusses what parents need to do to help their children become involved and educated adult Heart Warriors. He also talks about how to maintain medical records that, hopefully, this roadmap concept will enhance. You won't want to miss this program!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10767349Tue, 14 Feb 2017 17:00:11 +0000Anna JaworskiLast week we met Dr. Gil Wernovsky, a renowed pediatric cardiologist who has dedicated 30 years to treating babies born with congenital heart defects. We talked about a new approach that he designed by working collaboratively with doctors, nurses and...
In today's broadcast we delve deeper into why this roadmap concept is so important. We talk about what palliative care means in a medical setting and how that term is used differently for children with heart defects than with children who have cancer. We talked about Dr. Wernovsky's passions.

As a bonus, Dr. Wernovsky talked about his passion for music and how he has found that many others in the heart community share his passion for music. He introduces us to the Baby Blue Sound Collective and we even get to enjoy a song from the new CD that has been created and is being distributed just in time for Heart Month 2017. Home. Tonight. Forever. is the name of the CD that Dr. Wernovsky created with his band the Baby Blue Sound Collective. He shares with us how the money from the sale of the CD goes to fund congenital heart defect research.

Finally, Dr. Wernovsky shares his own personal advice about moving forward while living with a critical congenital heart defect. He discusses what parents need to do to help their children become involved and educated adult Heart Warriors. He also talks about how to maintain medical records that, hopefully, this roadmap concept will enhance. You won't want to miss this program!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1992congenital_heart_defects,medical_care_plan,medical_care_team,medical_treatment_plan,single_ventriclefalsefullhttps://www.spreaker.com/episode/the-roadmap-to-success-for-complex-chd-survivors-part-1--10595933
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10595933Tue, 07 Feb 2017 17:00:31 +0000Anna JaworskiRenowned pediatric cardiologist, author and researcher Gil Wernovsky, M.D., shares his experiences and proposal for a new way to treat those born with complex congenital heart defects with Anna. He shares his holistic vision for treatment of this...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2208criticalcongenitalheartdefect,hlhs,medical_treatment_plan,pediatric_cardiology,single_ventriclefalsefullhttps://www.spreaker.com/episode/advancements-in-understanding-the-liver-in-fontan-patients-part-2--10412937
Dr. Fred Wu of Boston Children's Hospital is an expert in working with adults with congenital heart defects with liver involvement. Today's episode is a continuation of the conversation he had with Anna last week. In today's program he talks about whether or not Stage IV of the Fontan is actually transplantation, what advice he feels Fontan Survivors and parents of children born with single ventricle hearts need to hear and finally, he gives us his prediction for what the future holds for this unique population.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10412937Tue, 31 Jan 2017 17:00:51 +0000Anna JaworskiThe Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology -- also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic...
Dr. Fred Wu of Boston Children's Hospital is an expert in working with adults with congenital heart defects with liver involvement. Today's episode is a continuation of the conversation he had with Anna last week. In today's program he talks about whether or not Stage IV of the Fontan is actually transplantation, what advice he feels Fontan Survivors and parents of children born with single ventricle hearts need to hear and finally, he gives us his prediction for what the future holds for this unique population.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1706fontan_procedure,hlhs,liver,liver_transplant,single_ventriclefalsefullhttps://www.spreaker.com/episode/advancements-in-understanding-the-liver-in-fontan-patients-part-1--10373705
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10373705Tue, 24 Jan 2017 17:00:06 +0000Anna JaworskiWhat can Survivors of the Fontan Procedure expect regarding their liver? What kinds of consequences can arise from having a Fontan physiology? What forms of surveillance are used to monitor liver health? Tune in to hear renowned expert, Dr. Fred Wu,...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1870congenital_heart_defects,fontan_procedure,liver,liver_consequences,single_ventriclefalsefullhttps://www.spreaker.com/episode/a-nurse-s-perspective-changes-in-care-over-the-last-30-years-part-2--10323440
Following the program we will "meet" in the HUG Podcast Chatroom on Paltalk. Please join us! We want to hear from our Listeners. Do you have a question? You can type out your questions in the chatroom during the show or immediately after OR you can actually speak to Anna and Deena (if she's not with a patient!). Paltalk is a free program that can be downloaded to your computer, tablet or smartphone. See the blog on www.hearttoheartwithanna.com for specific directions.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10323440Tue, 17 Jan 2017 17:00:00 +0000Anna JaworskiDeena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change...
Following the program we will "meet" in the HUG Podcast Chatroom on Paltalk. Please join us! We want to hear from our Listeners. Do you have a question? You can type out your questions in the chatroom during the show or immediately after OR you can actually speak to Anna and Deena (if she's not with a patient!). Paltalk is a free program that can be downloaded to your computer, tablet or smartphone. See the blog on www.hearttoheartwithanna.com for specific directions.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2051hlhs,tetralogy_of_fallot,tga,tof,transpositionfalsefullhttps://www.spreaker.com/episode/a-nurse-s-perspective-changes-in-care-over-the-last-30-years-part-1--10276531
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10276531Tue, 10 Jan 2017 17:00:05 +0000Anna JaworskiDeena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1983congenital_heart_defects,interventional_cardiology,medical_advancements,nursing,open-heart_surgeryfalsefullhttps://www.spreaker.com/episode/stem-cells-for-an-hlhs-heart--10230792
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/10230792Tue, 03 Jan 2017 17:00:13 +0000Anna JaworskiJennifer Gutman is the mother of a son born with hypoplastic left heart syndrome. In today's show Jennifer talks with Anna about finding out about her son's condition after having lost a sibling to the same condition 30 years earlier. She also shares...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1779congenital_heart_defects,hlhs,hypoplastic_left_heart,mayo_clinic,stemcellfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-achders-on-the-hill--9769888
This is how the Congenital Heart Futures Act came into effect. Members of the Adult Congenital Heart Association (ACHA) organized a coalition of members to storm the Hill together to request more government money being spent on those with congenital heart defects. Today's episode will feature 2 ACHA members who met with lawmakers on the Hill to discuss the future of those born with congenital heart defects. Jon Ritchings, Jr. and Michael Pernick are strong advocates of the CHD community who want to be heard and want to help you be heard yourself!

If you've ever wondered how you could take a stand a make a difference, not only for today's survivors but for all future survivors, you won't want to miss this show.

"Heart to Heart with Anna" Guest, Jon Ritchings, Jr., will also be on a panel discussion at the Care, Hope Discover 2016 conference in Boston, Massachusetts. For more information about this conference -- devoted to adult survivors and families of young CHD survivors -- visit http://www.carehopediscover.com/.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9769888Tue, 01 Nov 2016 16:00:23 +0000Anna JaworskiHow can members of the congenital heart defect (CHD) community lobby for change in today's laws in the United States? One thing they can do is to come together as a unified group to speak to their lawmakers and request, in a collective voice, for...
This is how the Congenital Heart Futures Act came into effect. Members of the Adult Congenital Heart Association (ACHA) organized a coalition of members to storm the Hill together to request more government money being spent on those with congenital heart defects. Today's episode will feature 2 ACHA members who met with lawmakers on the Hill to discuss the future of those born with congenital heart defects. Jon Ritchings, Jr. and Michael Pernick are strong advocates of the CHD community who want to be heard and want to help you be heard yourself!

If you've ever wondered how you could take a stand a make a difference, not only for today's survivors but for all future survivors, you won't want to miss this show.

"Heart to Heart with Anna" Guest, Jon Ritchings, Jr., will also be on a panel discussion at the Care, Hope Discover 2016 conference in Boston, Massachusetts. For more information about this conference -- devoted to adult survivors and families of young CHD survivors -- visit http://www.carehopediscover.com/.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2107advocacy,advocate,congenital_heart_defects,congenital_heart_futures_act,legislationfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-the-miracle-of-growing-up-with-a-congenital-heart-defect--9716128
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9716128Tue, 25 Oct 2016 16:00:42 +0000Anna JaworskiWhat is life like for a person born in the late 1950s with a complex congenital heart defect known as L-TGA? What complications were experienced? What miracles were witnessed?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1935congenital_heart_defects,heart_block,l-tga,pacemaker,vsdfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-living-with-eisenmenger-s-syndrome--9662477
Have you ever wondered what Eisenmenger's Syndrome is? Who gets it? What are the symptoms? How does it affect a person's body from childhood to adulthood? What changes occur with the aging survivor?

Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9662477Tue, 18 Oct 2016 16:00:09 +0000Anna JaworskiToday's encore presentation features a very special "Heart to Heart with Anna" Guest, Carolyn Robinson. Carolyn was on the podcast in both Season 3 and Season 7 -- to talk about Eisenmenger's Syndrome in Season 3 and in Season 7 to address what it was...
Have you ever wondered what Eisenmenger's Syndrome is? Who gets it? What are the symptoms? How does it affect a person's body from childhood to adulthood? What changes occur with the aging survivor?

Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1760congenital_heart_defects,eisenmenger's,pulmonary-hypertension,truncus_arteriosus,ventricular_septal_defectfalsefullhttps://www.spreaker.com/episode/rerun-of-gastrointestinal-issues-and-feeding-tubes-in-the-chd-community--9612983
Healthy babies double their weight in 6 months; however, children with congenital heart defects put on weight more slowly. Their growth is also affected by the heart defect.

Why do children with congenital heart disease not grow as other children do? The answer is because the heart defect makes them need more energy. Their diagnosis might also complicate feeding for several different reasons. Heart failure makes them too tired to feed. Some of them might have trouble keeping down their feeds. Others seem to have difficulty in coordinating breathing and nursing.

This episode will investigate what kinds of equipment might be needed to help a babe with a congenital heart defect if that baby cannot nurse or feed normally. Listen as one mother shares her experience with her baby -- who needed a feeding tube. We'll also talk with a clinical psychologist who specializes in early infancy and childhood as well as eating disorders and tube feeding. She works for the NoTube Limited Liability Corporation, which was founded to help children all over the world to overcome the severe condition of tube dependency. Discover how one mother and a company over six thousand miles apart helped one little boy wean successfully from his feeding tube without ever leaving home! The show originally aired on 7/8/14. Please keep in mind that prices quoted may be quite different now!

Links mentioned in our show:

http://www.corience.org/living-with-a-heart-defect/parents/heart-childrens-health/feeding-problems/

(Corience: An Independent European platform on congenital heart defects: For patients, parents, doctors, and scientists)

www.notube.com (NoTube) To write to someone at NoTube, use this email: support@notube.com

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9612983Tue, 11 Oct 2016 16:00:25 +0000Anna JaworskiAccording to Corience: An Independent European Platform on Congenital Heart Defects, "As many as 40–60% of children with congenital heart defects are undernourished." Healthy babies double their weight in 6 months; however, children with congenital...
Healthy babies double their weight in 6 months; however, children with congenital heart defects put on weight more slowly. Their growth is also affected by the heart defect.

Why do children with congenital heart disease not grow as other children do? The answer is because the heart defect makes them need more energy. Their diagnosis might also complicate feeding for several different reasons. Heart failure makes them too tired to feed. Some of them might have trouble keeping down their feeds. Others seem to have difficulty in coordinating breathing and nursing.

This episode will investigate what kinds of equipment might be needed to help a babe with a congenital heart defect if that baby cannot nurse or feed normally. Listen as one mother shares her experience with her baby -- who needed a feeding tube. We'll also talk with a clinical psychologist who specializes in early infancy and childhood as well as eating disorders and tube feeding. She works for the NoTube Limited Liability Corporation, which was founded to help children all over the world to overcome the severe condition of tube dependency. Discover how one mother and a company over six thousand miles apart helped one little boy wean successfully from his feeding tube without ever leaving home! The show originally aired on 7/8/14. Please keep in mind that prices quoted may be quite different now!

Links mentioned in our show:

http://www.corience.org/living-with-a-heart-defect/parents/heart-childrens-health/feeding-problems/

(Corience: An Independent European platform on congenital heart defects: For patients, parents, doctors, and scientists)

www.notube.com (NoTube) To write to someone at NoTube, use this email: support@notube.com

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3425congenital_heart_defects,failure_survive_thrive,feeding_issues,feedingtube,notube,supplementalfoodfalsefullhttps://www.spreaker.com/episode/rerun-of-failure-to-thrive-oral-aversions-nutrition-for-chd-survivors--9559662
Our Guests today include Heart Mom, Danielle Leppo, and pediatric dietician, Kristi King. The discuss the diagnosis of Failure to Thrive and why some babies and children with congenital heart defects suffer from oral aversions and poor nutrition and what parents can do about it. Listen to our show to hear of others who have dealt with these issues and find out how they have overcome problems. There is hope!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9559662Tue, 04 Oct 2016 16:00:43 +0000Anna JaworskiOne of the problems many of our CHD children suffer from is "Failure to Thrive" and because the children with critical congenital heart defects usually have surgery within the first days or months of their lives, they may develop oral aversion (very...
Our Guests today include Heart Mom, Danielle Leppo, and pediatric dietician, Kristi King. The discuss the diagnosis of Failure to Thrive and why some babies and children with congenital heart defects suffer from oral aversions and poor nutrition and what parents can do about it. Listen to our show to hear of others who have dealt with these issues and find out how they have overcome problems. There is hope!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3739congenital_heart_defects,failure_survive_thrive,feedingtube,nutrition,oral_aversionfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-this-is-not-the-trip-i-planned-for--9493181
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9493181Tue, 27 Sep 2016 16:00:17 +0000Anna JaworskiChris Perez is a Heart Dad from North Carolina. His son Nolan was born in 2012 with Hypoplastic Left Heart Syndrome. For almost 3 years he's written a blog called Half Heart. Whole Life: an HLHS Dad's blog, where he lays out the life of a Heart Dad...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1582congenital_heart_defects,hlhs,hlhsdad,hypoplastic_left_heart,welcome_to_hollandfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-ruling-the-world-one-cookie-at-a-time--9439873
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9439873Tue, 20 Sep 2016 16:00:36 +0000Anna JaworskiToday's episode of Heart to Heart with Anna features Guest Host, Chris Perez (a.k.a. the HLHS Dad) and shows how a heart mom - inspired by her daughter's determination - has begun a successful small business. The guest for this exciting episode is...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1720business,congenital_heart_defects,inspiration,miracle,the-cookie-cultfalsefullhttps://www.spreaker.com/episode/compassion-fatigue-silent-enemy-soul-sickness--9396186
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9396186Tue, 13 Sep 2016 16:00:02 +0000Anna JaworskiIs the stress of caring for a child with a serious medical condition wearing you down? Do you find yourself being snappy with others? Is negativity showing through? Tune in to hear Guest Host, Chris Perez (a.k.a. HLHS Dad) interview Daniel Miles, the...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1726burnout,compassion,compassion_fatigue,congenital_heart_defects,stressfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-the-natural-course-of-congenital-heart-disease--9342784
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9342784Tue, 06 Sep 2016 16:00:28 +0000Anna JaworskiWhat is the natural course of congenital heart disease? What obstacles do adult congenital heart defects Survivors (ACHDers) faces as they age? What transition challenges do ACHDers have to deal with? As Nurse Program Coordinator of the Akron...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1814aging,congenital_heart_defects,exercise,nurse,transitionsfalsefullhttps://www.spreaker.com/episode/long-term-consequences-of-a-fontan-physiology--9295897
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9295897Tue, 30 Aug 2016 16:00:04 +0000Anna JaworskiMany people born with a single ventricle heart end up with a Fontan physiology but what are the long-term consequences of that anatomy? As the Fontan Procedure has changed over time, have the long-term consequences also changed? What are the red...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1975congenital_heart_defects,electrophysiologist,failing_fontan,fontan_procedure,pacemakerfalsefullhttps://www.spreaker.com/episode/rethinking-transition-care-for-chd-survivors--9246240
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9246240Tue, 23 Aug 2016 16:00:01 +0000Anna JaworskiNow that children with congenital heart defects (CHDs) are living to adulthood, it's time to rethink transition care. What can we do to help CHD Survivors have a quality life? How is transition for CHD Survivors different from their heart-healthy...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2089adults_with_heart_defects,cardiology_care,congenital_heart_defects,d-tga,single_ventriclefalsefullhttps://www.spreaker.com/episode/insurance-issues-and-financial-planning-in-the-chd-community--9201882
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9201882Tue, 16 Aug 2016 16:00:29 +0000Anna JaworskiDo you wonder what a financial planner does and if you can even afford one? Can you afford NOT to have one? What kind of emotional issues are common with chronic illness? How can anyone afford to have congenital heart disease and anything else happen...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2168chronicillness,congenital_heart_defects,financialplanning,psychotherapist,psychotherapyfalsefullhttps://www.spreaker.com/episode/the-road-forward-in-achd-research-where-we-are-now-where-we-need-to-be--9155285
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9155285Tue, 09 Aug 2016 16:00:33 +0000Anna JaworskiDr. Ari Cedars is a cardiologist at Baylor University medical Center in Dallas, Texas. He is a physician and the director of the Center for Adults with Congenital Heart Disease (ACHD). He trained in Adult Congenital Heart Disease at Washington...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1933adults_with_heart_defects,congenital_heart_defects,medical_research,pediatric_cardiologyfalsefullhttps://www.spreaker.com/episode/transitioning-from-teen-to-adult-with-a-congenital-heart-defect--9107809
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9107809Tue, 02 Aug 2016 16:00:05 +0000Anna JaworskiHow does a teen with congenital heart defect transition to being an adult with a congenital heart defect? What can go wrong? What kinds of things can parents do to help the transition go more smoothly? What makes transitioning so difficult?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1856congenital_heart_defects,tetralogy_of_fallot,tga,tgv,transitionfalsefullhttps://www.spreaker.com/episode/growing-up-with-an-achd-parent--9063568
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9063568Tue, 26 Jul 2016 16:00:22 +0000Anna JaworskiWhat is it like growing up with a parent with a congenital heart defect? What kind of challenges do mothers and daughters face? What lessons can be learned from living with adversity? Today we'll talk with Misty and Milena Castenada about living with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1698adults_with_heart_defects,congenital_heart_defects,mother-daughter;,tetralogyoffallot,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/the-natural-course-of-congenital-heart-disease--9014879
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/9014879Tue, 19 Jul 2016 16:00:05 +0000Anna JaworskiWhat is the natural course of congenital heart disease? What obstacles do adult congenital heart defects Survivors (ACHDers) faces as they age? What transition challenges do ACHDers have to deal with? As Nurse Program Coordinator of the Akron...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1950aging,congenital_heart_defects,exercise,nurse,transitionsfalsefullhttps://www.spreaker.com/episode/adult-chd-survivors-with-neurological-problems--8919353
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8919353Tue, 12 Jul 2016 16:00:12 +0000Anna JaworskiWhat kind of neurological problems can children with congenital heart defects acquire? What prognosis is there for an adult CHD survivor who suffers from cognitive problems? What kinds of things can parents do to help their adult children?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1893cardiac_transplant,congenital_heart_defects,guardianship,hypoplastic_left_heart,neurological_disorderfalsefullhttps://www.spreaker.com/episode/difficulties-growing-up-with-a-chd--8911279
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8911279Tue, 05 Jul 2016 16:00:44 +0000Anna JaworskiWhat is it like to grow up with critical congenital heart defects requiring surgery in the first year of life? How does having multiple surgeries through a person's life affect their career choices? How are two amazing adult survivors giving back?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1812congenital_heart_defects,hlhs,hypoplastic_left_heart,pulmonary_atresia,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/considerations-for-non-cardiac-surgeries-for-adults-with-chds--8869826
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8869826Tue, 28 Jun 2016 16:00:01 +0000Anna JaworskiDavid Franco was born with congenitally-corrected transposition of the great arteries and a ventricular septal defect (or VSD). David is 49 years old and has had several cardiac and several other, non-cardiac surgeries. In this episode of "Heart to...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1913cc-tga,congenital_heart_defects,medical-considerations,orthopedic_surgery,surgeryfalsefullhttps://www.spreaker.com/episode/what-s-new-with-anticoagulants--8819795
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8819795Tue, 21 Jun 2016 16:00:43 +0000Anna JaworskiWhat's new with anticoagulants? What should adults with congenital heart defects know about anticoagulants? What should adults with CHDs know about Coumadin? Pharmacist Rebekah Brunell shares her knowledge about anticoagulants with us and what new...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1934anticoagulants,aspirin,congenital_heart_defects,coumadin,pharmacistfalsefullhttps://www.spreaker.com/episode/when-chds-are-diagnosed-after-infancy--8767704
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8767704Tue, 14 Jun 2016 16:00:08 +0000Anna JaworskiHow can a coarctation of the aorta affect a person's life? What happens to a person when their congenital heart defect, once dormant, suddenly becomes an issue? How does an adult deal with the intrusion of a birth defect after living a normal life?...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1819aortic_aneurysm,bicuspid_aortic_valve,coarctation_of_the_aorta,congenital_heart_defects,open-heart_surgeryfalsefullhttps://www.spreaker.com/episode/taking-charge-of-my-health--8712004
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8712004Tue, 07 Jun 2016 16:00:08 +0000Anna JaworskiHow did a transposition of the great arteries Survivor take charge of her health and change the course of her heart disease? What are some powerful ways you can take back your health, despite what your doctor might say? What advice does this Survivor...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1682adults_with_heart_defects,congenital_heart_defects,health,icd,tgafalsefullhttps://www.spreaker.com/episode/special-encore-presentation-with-frank-celeskey-and-alysanne-crymes--8653211https://www.gofundme.com/25rjxdgc.

Today's show features both Frank Celeskey and Alysanne Crymes as they discuss how our parenting relationship changes as our CHD Warriors grow up and become Adult Survivors.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8653211Tue, 31 May 2016 16:00:17 +0000Anna JaworskiWe are providing this special encore presentation in honor of Frank Celeskey -- one of the Guests in today's show. He was a sweet heart dad who adored his daughter. Sadly, Frank passed away on May 14, 2016. Lauren has set up a GoFundMe to help take...https://www.gofundme.com/25rjxdgc.

Today's show features both Frank Celeskey and Alysanne Crymes as they discuss how our parenting relationship changes as our CHD Warriors grow up and become Adult Survivors.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1878adults_with_heart_defects,congenital_heart_defects,parent-adult_relationships,parent-child_relationships,transitionsfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-achders-on-motherhood--8482010
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8482010Tue, 17 May 2016 16:00:59 +0000Anna JaworskiHow do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3263adoption,adults_with_heart_defects,congenital_heart_defects,motherhood,surrogacyfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-interview-with-lori-m-jones--8417286
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8417286Tue, 10 May 2016 16:00:24 +0000Anna JaworskiWhat inspired Lori M. Jones to become an author? What nonprofit organization does Lori work with? How is she using her voice to help those in the CHD community? Tune in to hear Lori share stories and information with us.
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1845advocate,author,congenital_heart_defects,pacemaker,speakerfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-a-mother-s-miracle--8407531
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8407531Tue, 03 May 2016 16:00:03 +0000Anna JaworskiThis show has been specially chosen in honor of Mother's Day. Tune in to hear this mother's story about the miracles she has witnessed from watching her infant son undergo surgery for transposition of the great arteries, face feeding issues and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1915congenital_heart_defects,feeding_tube,miracle,mother,tgafalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-brazil--8351679
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8351679Tue, 26 Apr 2016 16:00:22 +0000Anna JaworskiGabriel Santana was born in São Paulo Brazil in 1988 with hypoplastic right, single ventricle, ventricular septal defect and a heart murmur. At first the doctors thought Gabriel only had a heart murmur and sent him home. After almost a year Gabriel’s...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1780brazil,congenital_heart_defects,hypoplastic_right_heart,protein_losing_enteropathy,single_ventriclefalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-puerto-rico--8296682
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8296682Tue, 19 Apr 2016 16:00:17 +0000Anna JaworskiWhat is healthcare like in Puerto Rico? How did one mother respond when she couldn't find resources for her son in Spanish? What advice does Marta Montero have for other Puerto Rican heart parents?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1709congenital_heart_defects,healthcare,puerto.rico,single_ventricle,tgafalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-down-under--8239418
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8239418Tue, 12 Apr 2016 16:00:15 +0000Anna JaworskiWhat is healthcare like in Australia? What support group is there for children born with congenital heart defects (CHDs) in Australia? Is there hope for children born with critical congenital heart defects Down Under? Tune in to hear two heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1908australia,congenital_heart_defects,hypoplastic_left_heartfalsefullhttps://www.spreaker.com/episode/defectos-congenitos-del-corazon-del-mundo-costa-rica--8185144
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8185144Tue, 05 Apr 2016 17:00:03 +0000Anna Jaworski¿Qué es cuidado de la salud como en Costa Rica? ¿Qué piensa un cardiólogo pediatra, son algunos de los problemas de que su gente tiene en conseguir la atención médica que necesitan si nace con un defecto cardíaco?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1868costa_rica,cuidado_de_la_salud,defecto_congenito_del_corazonfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-costa-rica--8182138
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8182138Tue, 05 Apr 2016 16:54:26 +0000Anna JaworskiWhat is healthcare like in Costa Rica? What does a pediatric cardiologist think are some of the problems his countrymen have in getting the healthcare they need if they're born with a heart defect? How common are heart defects in Costa Rica? Tune in...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1798congenital_heart_defects,costa-rica,electrophysiologist,healthcare,pediatric_cardiologyfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-italy--8127204
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8127204Tue, 29 Mar 2016 16:00:00 +0000Anna JaworskiWhat is health like in Italy? How does a father, who is also a doctor, deal with having a son with a critical heart defect? What advice does the father of an adult with a heart defect have for other Italian heart parents?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2079congenital_heart_defects,healthcare,hlhs,hypoplastic_left_heart,italyfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-world-down-syndrome-day-in-the-u-k--8070369
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8070369Tue, 22 Mar 2016 16:00:01 +0000Anna JaworskiWhat is World Down Syndrome Day? How many people born with Down Syndrome also have a CHD? What do parents of children born with Down Syndrome need to know?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1849asvd,atrioventricular_defect,congenital_heart_defects,down_syndrome,world_down_syndrome_dayfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-children-of-the-world--8006627
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/8006627Tue, 15 Mar 2016 16:00:17 +0000Anna JaworskiTwenty-nine years ago a boy was born in Pakistan with a broken heart. What happened to him? What profession is he studying now as a means of giving back? What nonprofit organization gave this boy, and his whole family, a chance to live a happy and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1781children_of_the_world,congenital_heart_defects,lionsclubinternational,tetralogyoffallot,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-germany--7950346
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7950346Tue, 08 Mar 2016 17:00:16 +0000Anna JaworskiHow does the mother of an angel and a rainbow baby feel about the medical care she received in Germany? What kind of care was there for babies with heart defects in Germany almost 20 years ago? What advice does this mother have for other German mothers?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1758congenital_heart_defects,germany,tetralogyoffallot,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-kenya--7902267
Sadly, Peter Mbogo Kamau passed away in 2016. Since then the NGO he started in 1992 is going strong, although it has changed names. Now known as Care for a Child's Heart, the organization is still funding life-saving surgery to children in Africa who would otherwise perish. Here is the link to their website: https://cfach.org/about-us/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7902267Tue, 01 Mar 2016 21:00:06 +0000Anna JaworskiWhat is healthcare like in Keyna? What assistance is there for children born with congenital heart defects (CHDs) in Keyna? What can Listeners do to help the CHD community in Keyna? Today's Guest, Peter Mbogo Kamau tells us about the nonprofit...
Sadly, Peter Mbogo Kamau passed away in 2016. Since then the NGO he started in 1992 is going strong, although it has changed names. Now known as Care for a Child's Heart, the organization is still funding life-saving surgery to children in Africa who would otherwise perish. Here is the link to their website: https://cfach.org/about-us/

Support the show (https://www.patreon.com/HearttoHeart)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1914charity,congenital_heart_defects,kenya,open_heart_surgery,take_heart_associationfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-miracles-in-cardiomyopathy--7894254
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7894254Mon, 29 Feb 2016 20:00:17 +0000Anna JaworskiThis show features Kristi Pena, the mother of a Barth Syndrome survivor. She shares stories about the miracles she has experienced since Christopher's birth and diagnosis.
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1701barth_syndrome,cardiomyopathy,congenital_heart_defects,hospice,miraclefalsefullhttps://www.spreaker.com/episode/encore-presentation-of-adult-chd-survivors-on-pregnancy-motherhood--7888688
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7888688Sun, 28 Feb 2016 21:00:42 +0000Anna JaworskiHow do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3275adoption,congenital_heart_defects,motherhood,pregnancy,surrogacyfalsefullhttps://www.spreaker.com/episode/adults-with-congenital-heart-defects-finding-love--7882696
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7882696Sat, 27 Feb 2016 20:00:17 +0000Anna JaworskiIs it possible to find true love even if you're born with a broken heart? What kind of people are willing to marry a person with a congenital heart defect? What advice do adults with CHDs have for others looking for love?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3659congenital_heart_defects,finding_love,hypoplastic_left_heart,hypoplastic_right_heart,marriagefalsefullhttps://www.spreaker.com/episode/encore-presentation-forever-young-cognitive-impairments-chd--7875973
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7875973Fri, 26 Feb 2016 20:00:32 +0000Anna JaworskiWhat happens when a child born with a heart defect (CHD) also has mental impairments? What problems do children with cognitive impairments have? What advice does a mom dealing with a child with both a CHD and cognitive impairment have for others?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1969brain_injury,cognitive_impairment,congenital_heart_defects,neurological_disorder,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/encore-presentation-hope-for-babies-diagnosed-in-utero--7867596
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7867596Thu, 25 Feb 2016 20:00:09 +0000Anna JaworskiWhat should parents do if they're told their unborn children will be born with a heart defect? What professionals can help pregnant women who have babies with heart defects? Is there hope for babies born with broken hearts?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1975congenital_heart_defects,hypoplastic_left_heart,in_utero_diagnosis,pulmonary_atresia,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-achders-on-the-hill--7860295
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7860295Wed, 24 Feb 2016 20:00:04 +0000Anna JaworskiWhat laws are needed to help members of the CHD community? How can individuals make a difference when it comes to lobbying? Why do Adults with Congenital Heart Defects (ACHDers) need to be involved in fighting for their rights? Guests and Adult...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2138adults_with_heart_defects,advocacy,advocacy_for_change,congenital_heart_defects,lobbyingfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-israel--7851449
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7851449Tue, 23 Feb 2016 21:00:31 +0000Anna JaworskiWhat is healthcare like in Israel? What assistance is there for children born with congenital heart defects (CHDs) in Israel? What educational services are available to Israeli children who have congenital heart defects and autism and epilepsy? Tune...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1828autsim,congenital_heart_defects,death_of_a_child,epilepsy,israelfalsefullhttps://www.spreaker.com/episode/school-issues-bullying-parent-advocacy-making-schools-safe-for-chd-survivors--7844344
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7844344Mon, 22 Feb 2016 20:00:14 +0000Anna JaworskiTune in to hear a CHD Adult Survivor, a parent and a special education teacher discuss what it means to send a child with a CHD to public school. What laws are there to help our CHD Survivors? How can parents work to make schools safer?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3319bullying,congenital_heart_defects,parent_advocacy,schools,special_needsfalsefullhttps://www.spreaker.com/episode/learning-disabilities-possible-brain-injury-in-children-with-cchds--7831123
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7831123Sun, 21 Feb 2016 20:00:45 +0000Anna JaworskiHow does having open-heart surgery affect the brain in infants and children? Is it possible when heart grow malformed, the brain can also have problems? What can parents do to help their children with CHDs if they have learning disabilities?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3236anoxia,brain_injury,congenital_heart_defects,learningdisabilities,strokefalsefullhttps://www.spreaker.com/episode/encore-presentation-of-siblings-in-the-chd-community--7820495
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7820495Sat, 20 Feb 2016 20:00:03 +0000Anna JaworskiWhat can we learn from siblings of CHD survivors? How can we help siblings and how important is it for them to be there when a brother or sister is in the hospital? Tune in to find out!
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7813246Fri, 19 Feb 2016 20:00:12 +0000Anna JaworskiHow does being a caregiver for a baby with a congenital heart defect affect mothers? What challenges do mothers face when their babies have a heart defect? What do these mothers wish others knew about caregiving for a child with a heart defect?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3469caregivers,congenital_heart_defects,d-tga,hlhs,hypoplastic_left_heartfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-chiropractic-care-for-chd-survivors--7817438
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7817438Thu, 18 Feb 2016 20:00:39 +0000Anna JaworskiSo many times traditional medicine doesn’t quite do everything necessary to help our CHD survivors have the quality of life we want them to have. Sometimes we have to go in another direction. A chiropractor and mother share their experience with us today.
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7810026Wed, 17 Feb 2016 20:00:37 +0000Anna JaworskiWhat miracles are involved with adopting a child with a congenital heart defect? How does adoption benefit everyone involved? What advice does Becky have to share with others regarding adoption?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1851adoption,congenital_heart_defects,dilv,d-tga,special_needs_adoptionfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-pakistan--7800529
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7800529Tue, 16 Feb 2016 21:00:58 +0000Anna JaworskiWhat is healthcare like in Pakistan? What assistance is there for children born with congenital heart defects (CHDs) in Pakistan? What can Listeners do to help the CHD community in Pakistan?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1743congenital_heart_defects,healthcare,nonprofit,pakistan,pakistan_children's_heartfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-saving-a-life-from-scd--7790220
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7790220Mon, 15 Feb 2016 20:00:10 +0000Anna JaworskiWhat kills 1000 people a day or one person every two minutes? What kills more people annually than breast cancer, lung cancer and HIV/AIDs combined? How can lives be saved from sudden cardiac death?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1952congenital_heart_defects,cpr,genetics,sudden_cardiac_deathfalsefullhttps://www.spreaker.com/episode/encore-presentation-of-organ-donation-and-transplantation--7786755
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7786755Sun, 14 Feb 2016 20:00:05 +0000Anna JaworskiWhat kind of heart defects result in needing a heart transplant? How do survivors and parents of survivors feel about heart transplants? What is one wish many heart parents hold in their hearts when thinking their children may need another transplant?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7780219Sat, 13 Feb 2016 20:00:30 +0000Anna JaworskiNobody wants to talk about the bad feelings a person can have from dealing with a CHD but that doesn't mean they don't exist. How are members of the CHD community affected by post-traumatic stress disorder, anxiety and survivor's guilt? Tune in to...
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7774485Fri, 12 Feb 2016 20:00:35 +0000Anna JaworskiHow does a "natural" mother who wanted a home birth deal with the disappointment of being told she would have to deliver in a hospital? How does that same mother feel after her son is diagnosed with a potential life-threatening birth defect?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7766703Thu, 11 Feb 2016 20:02:14 +0000Anna JaworskiHow does a teenager with a congenital heart defect survive a long hospital stay? What can parents of children with CHDs do to help their children when they have a long hospital stay? What do Child Life Specialists have to say about long hospital stays?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7758170Wed, 10 Feb 2016 20:00:41 +0000Anna JaworskiWhat causes congenital heart defects? How has the field of genetics evolved? What advancements have been made in genetics regarding congenital heart defects?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1724congenital_heart_defects,cysticfibrosis,geneticist,genetics,hypoplastic_left_heartfalsefullhttps://www.spreaker.com/episode/chds-around-the-globe-novick-cardiac-alliance--7750791
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7744586Mon, 08 Feb 2016 20:00:10 +0000Anna JaworskiToday's show will feature two gentlemen who have suffered from heart failure. Tune in to hear what miracles they've experienced and what advice they have for others.
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7735934Sun, 07 Feb 2016 20:00:05 +0000Anna JaworskiHow difficult is it to go through the teenage years when you have a congenital heart defect? How does having had open-heart surgery set a person apart from their peers? What advice do these Guests have for other teens with congenital heart defects?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7730231Sat, 06 Feb 2016 20:23:46 +0000Anna JaworskiAre children with critical congenital hearts able to play sports? What kinds of extra-curricular activities interest heart defect survivors? What can parents do to help their children born with broken heart do to help them enjoy sports?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7718919Fri, 05 Feb 2016 20:00:13 +0000Anna JaworskiWhat heart defect did Fox news anchor Bret Baier's baby have? How did Bret Baier and his wife Amy react to having a child with a critical congenital heart defect? Tune in to hear the answer to these questions and more!
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7705545Wed, 03 Feb 2016 19:59:16 +0000Anna JaworskiHow does a parent survive losing a child to a congenital heart defect? What keeps parents living even when they feel their own hearts will break? Tune in to hear 3 mothers' tales of survival after loss.
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3705congenital_heart_defects,death,grief,lossofchild,parentsfalsefullhttps://www.spreaker.com/episode/congenital-heart-defects-around-the-globe-canada--7695584
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7695584Tue, 02 Feb 2016 21:00:47 +0000Anna JaworskiHow does a long-time Canadian Survivor of congenital heart defects negotiate the medical system? What is healthcare like in Canada? How does Carolyn deal with her diagnoses of Eisenmenger Syndrome, truncus arteriosus and heart block?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7689927Mon, 01 Feb 2016 20:00:31 +0000Anna JaworskiWhat is the number one birth defect? How have grandparents, survivors and parents felt about being part of the congenital heart defect community? Tune in to hear the answer to these questions and more!
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>3111congenital_heart_defects,heart_defects,hlhs,hypoplastic_left_heart,tapvrfalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-jessica-cowin--7646873
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7646873Tue, 26 Jan 2016 21:00:13 +0000Anna JaworskiHow does a 32-year old HLHS Survivor seize the day? Why would such a young woman write her memoirs? What advice does this multiple-transplant survivor have for others? Tune in to hear the answer to these questions and more!
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7591869Tue, 19 Jan 2016 21:00:23 +0000Anna JaworskiHow does a wife, mother and grandmother seize the day when her family has a terrible secret? What secret was in the genes of her, her children and mother that could cause sudden death? How does Jackie help her granddaughters to seize the day?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7545504Tue, 12 Jan 2016 21:00:16 +0000Anna JaworskiHow does a 30-year-old HLHS Survivor "seize the day"? How does she seize the day with her husband? What advice does she have for parents of HLHS babies and HLHS Survivors? Tune in to hear Maribeth Poole share this information and more!
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7499613Tue, 05 Jan 2016 21:00:13 +0000Anna JaworskiHow does the mother of a daughter with HRHS seize the day? How does her job also help her to seize the day? What advice does she have for other parents?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1793carpe_diem,congenital_heart_defects,generative_space,healthcare_facilities,hypoplastic_right_heartfalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-dr-wilson-lam--7459106
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7459106Tue, 29 Dec 2015 21:00:13 +0000Anna JaworskiHow does a cardiologist for adults born with congenital heart defects seize the day? What obstacles has he encountered in working with adults with congenital heart defects? What's new in the field of pediatric cardiology regarding anti-arrhythmia drugs?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7414168Tue, 22 Dec 2015 21:00:11 +0000Anna JaworskiWhat is HeartGift? How do doctors in the United States save children in countries that don't have hospitals that perform life-saving open-heart surgery? Why is Rachael Wright involved with HeartGift?
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7363709Tue, 15 Dec 2015 21:00:20 +0000Anna JaworskiHow does an Eisenmenger Survivor seize the day? How does receiving a heart/double-lung transplant affect your philosophy of life? What does this 65-year old congenital heart defect Survivor have to teach us?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1905carpe_diem,congenital_heart_defects,eisenmenger's,heart_transplant,pulmonary-hypertensionfalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-tracy-livecchi--7323929
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7323929Tue, 08 Dec 2015 21:00:15 +0000Anna JaworskiGrowing up with a congenital heart defect for many children means more visits to the hospital and clinic than for their heart healthy peers. Today's Guest was born with transposition of the great arteries and she has used her experiences and her...
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Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7273853Tue, 01 Dec 2015 21:00:07 +0000Anna JaworskiSeizing the day, or Carpe Diem, can be a difficult concept for people in the throes of extreme distress and few experiences are as distressing as having to hand over a child for open-heart surgery. Now imagine doing it twice. Now imagine one of the...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1915carpe_diem,congenital_heart_defects,heart_transplant,hypoplastic_right_heart,ventricular_septal_defectfalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-tracey-grasty--7227100
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7227100Tue, 24 Nov 2015 21:00:30 +0000Anna JaworskiHow does a 49-year-old HRHS Survivor "seize the day"? What makes Tracey Grasty exceptional? How does being a nurse affect her philosophy of life? Tune in to discover the answer to those questions and more!
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1855carpediem,congenital heart defects,heart_survivor,hypoplastic_right_heart,seize_the_dayfalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-myles-schweitzer--7181545
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7181545Tue, 17 Nov 2015 21:00:23 +0000Anna JaworskiHow does a 25-year-old HLHS Survivor "seize the day"? What makes Myles Schweitzer exceptional? How does being a musician affect his philosophy of life? Tune in to discover the answer to those questions and more!
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1843carpediem,congenital_heart_defects,hlhs,hypoplastic_left_heart,musicianfalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-lauren-bednarz-and-suzanne-meredith--7116272
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7116272Tue, 10 Nov 2015 21:00:07 +0000Anna JaworskiHow do a mother and daughter duo seize the day when they're dealt the blow of a chronic illness? How does their perspective change over time? What advice do they have for others?
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1822carpe_diem,chd_survivor,congenital_heart_defects,hypoplastic_right_heart,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/seizing-the-day-with-jim-larson--7041085
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/7041085Tue, 03 Nov 2015 15:12:16 +0000Anna JaworskiSeason Six of "Heart to Heart with Anna" is all about Carpe Diem -- Seizing the Day. In this episode we'll learn about a remarkable congenital heart defect (CHD) Survivor who was born in the 1950s. Being born with tetralogy of Fallot in the 1950s...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1796adult_chd_survivor,carpe_diem,congenital_heart_defects,survivor,tetralogy_of_fallotfalsefullhttps://www.spreaker.com/episode/ruling-the-world-one-cookie-at-a-time--6563485
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6563485Tue, 01 Sep 2015 18:00:03 +0000Anna JaworskiToday's episode of Heart to Heart with Anna shows how a heart mom - inspired by her daughter's determination - has begun a successful small business. The guest for this exciting episode is Jessie Wimmer, who is a heart mom from Charlotte, NC. She...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1630business,chd,cookies,jessiewimmer,thecookiecultfalsefullhttps://www.spreaker.com/episode/compassion-fatigue-silent-enemy-soul-sickness--6530221
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6530221Tue, 25 Aug 2015 18:00:17 +0000Anna JaworskiHave you ever felt like things are just getting out of hand or getting away from you? Is the stress of being a caregiver affecting the way you relate to others? On today's episode we will discuss the topic of Compassion Fatigue, which is present in...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1635chd,compassion,fatigue,hlhs,self-carefalsefullhttps://www.spreaker.com/episode/this-is-not-the-trip-i-planned-for--6501185
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6501185Tue, 18 Aug 2015 20:00:04 +0000Anna JaworskiChris Perez is a Heart Dad from North Carolina. His son Nolan was born in 2012 with Hypoplastic Left Heart Syndrome. For almost 2 years he's written a blog called Half Heart. Whole Life: an HLHS Dad's blog, where he lays out the life of a Heart Dad...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1582congenital_heart_defects,heart_dad,hlhs,hlhs_dad,hypoplastic_left_heartfalsefullhttps://www.spreaker.com/episode/miracle-of-stranger-s-gift--6464697
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6464697Tue, 11 Aug 2015 20:00:11 +0000Anna JaworskiThis episode of "Heart to Heart with Anna" is the final episode of Season 5: Miracles DO Happen! We started Season Five with a miracle story about a woman who found out after she gave birth that her son had a critical congenital heart defect and who...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1771angels,congenital_heart_defects,miracles,pulmonary_stenosis,ventricular_septal_defectfalsefullhttps://www.spreaker.com/episode/the-miracle-of-giving-back--6435733
Sometimes a person used her personal trauma to empathetically reach out to others. That's what this show is all about. Tune in to hear how a CHD Survivor has used her experiences to reach out to others -- specifically to children with learning and medical disabilities. Discover the miracles she has witnessed over the years and the good that can come of living a challenging life.

Today's show, "The Miracle of Giving Back" features CHD Survivor and special education teacher Catherine Scavone.
***Thanks to Stuart Miles of FreeDigitalPhotos.net for the illustration***

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6435733Tue, 04 Aug 2015 20:00:32 +0000Anna JaworskiThose who have been through the trauma of having open-heart surgeries and dealing with all of the situations that accompany them have many choices. They can choose to be positive and to see the bright side, even when things get difficult or they can...
Sometimes a person used her personal trauma to empathetically reach out to others. That's what this show is all about. Tune in to hear how a CHD Survivor has used her experiences to reach out to others -- specifically to children with learning and medical disabilities. Discover the miracles she has witnessed over the years and the good that can come of living a challenging life.

Today's show, "The Miracle of Giving Back" features CHD Survivor and special education teacher Catherine Scavone.
***Thanks to Stuart Miles of FreeDigitalPhotos.net for the illustration***

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1842congenital_heart_defects,miracles,pulmonary_atresia,special_education,special_needsfalsefullhttps://www.spreaker.com/episode/a-mother-s-miracle--6411844
Today's show will feature a mother who has seen all of that and more! Difficulty with feeding, feeding tubes, the fear that the heart defect may be genetic and thus worries over having a second child are all issues that our Guest, Angela Gilbert, has faced head on thanks to her son being born with transposition of the great arteries. Tune in to hear how she faced these issues, how her son, Gary, was able to overcome these obstacles and many more to become a healthy 16-year old teenager and what advice she has for other parents facing the same problems she has encountered.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6411844Tue, 28 Jul 2015 20:00:52 +0000Anna JaworskiMany mothers believe their babies are miracles, but few know that to be a fact like mothers of children born with broken hearts. When mothers are told their unborn or newborn babies have something wrong with their hearts, the news is devastating. When...
Today's show will feature a mother who has seen all of that and more! Difficulty with feeding, feeding tubes, the fear that the heart defect may be genetic and thus worries over having a second child are all issues that our Guest, Angela Gilbert, has faced head on thanks to her son being born with transposition of the great arteries. Tune in to hear how she faced these issues, how her son, Gary, was able to overcome these obstacles and many more to become a healthy 16-year old teenager and what advice she has for other parents facing the same problems she has encountered.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1853congenital_heart_defects,feedingtube,miracles,tga,tgvfalsefullhttps://www.spreaker.com/episode/the-miracle-of-a-new-heart--6381106
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6381106Tue, 21 Jul 2015 20:00:11 +0000Anna JaworskiSome people are born with broken hearts that seem to function adequately for years before they start to decline and become unable to sufficiently support life. With the invention of pacemakers, ventricular assist devices, and defibrillators, it seems...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1757cardiac_transplant,congenital_heart_defects,d-tga,heart_transplant,miraclesfalsefullhttps://www.spreaker.com/episode/a-modern-medical-miracle--6349882
This show will feature the mother of two daughters who is grateful for the advances in pediatric cardiology and how those advances have personally affected her life. Tune in to hear how Sharisse Roberts feels she has a medical miracle living with her and the advice she has for others who find themselves being told their unborn child will be born with a congenital heart defect.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6349882Tue, 14 Jul 2015 20:00:47 +0000Anna JaworskiMiracles seem to be all around us, but some miracles are thanks to the great strides made in the field of pediatric cardiology. What kind of advances have been made over the years? What are some techniques being used that can save untold numbers of...
This show will feature the mother of two daughters who is grateful for the advances in pediatric cardiology and how those advances have personally affected her life. Tune in to hear how Sharisse Roberts feels she has a medical miracle living with her and the advice she has for others who find themselves being told their unborn child will be born with a congenital heart defect.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1882cardiac_catheterization,congenital_heart_defects,interventional_cardiology,miracles,pulmonary_atresiafalsefullhttps://www.spreaker.com/episode/a-cardiomyopathy-miracle--6317257
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6317257Tue, 07 Jul 2015 20:00:09 +0000Anna JaworskiWhat happens when you're told your baby's only hope for survival is a heart transplant and that even with that there were no guarantees? When parents rely on faith, instead of on medical "facts," can they possibly be granted a miracle? Tune in to hear...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1665barth_syndrome,cardiomyopathy,congenital_heart_defects,hospice_care,miraclesfalsefullhttps://www.spreaker.com/episode/the-miracle-of-an-ordinary-life--6287785
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6287785Tue, 30 Jun 2015 20:00:04 +0000Anna JaworskiWhen parents are told their children will be born with a heart defect, they often wonder what kind of life their children will have. Will they constantly be hospitalized? Will they have to endure one surgery after another? Will they be able to run and...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1815cardioversion,congenital_heart_defects,fontan_procedure,miracles,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/the-miracle-of-growing-up-with-a-chd--6257424
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6257424Tue, 23 Jun 2015 20:00:26 +0000Anna JaworskiWhen children survived the early heart surgeries of the 1940s, ‘50s and 60s, it was often considered miraculous. It is because of amazing doctors Dr. Robert Gross, Dr. Helen Taussig, Dr. Alfred Blalock, Dr. William Rashkind (and far too many others...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1866adult_with_heart_defect,congenital_heart_defects,l-tga,miracles,pediatric_cardiologyfalsefullhttps://www.spreaker.com/episode/a-miracle-in-pakistan--6223958
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6223958Tue, 16 Jun 2015 20:00:06 +0000Anna JaworskiSeason Five of "Heart to Heart with Anna" has focused on miracles that happen in the congenital heart defect community. The first 4 shows were all about miracles that took place in the United States of America. Today's show will feature a very special...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1686congenital_heart_defects,hospital,miracle,pakistan,pakistan_children's_heartfalsefullhttps://www.spreaker.com/episode/mary-beth-miller-s-miracle-story--6191167
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6191167Tue, 09 Jun 2015 20:00:02 +0000Anna JaworskiSometimes a person is with us for only a short period of time and yet that person leaves a legacy that touches others forever. That is the case with little Mary Beth Miller. Tune in to her her mother and father talk about her life, the miracles they...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1804congenital_heart_defects,healthcarereform,laws,pulse_oximetry,tricuspid_atresiafalsefullhttps://www.spreaker.com/episode/miracle-of-a-cchd-baby-s-survival--6156654
Frank Jaworski is a certified registered nurse anesthetist who experienced this situation. In this show he'll reflect on what happened when his second son was born with a critical congenital heart defect which went undiagnosed until the baby was in congestive heart failure. He'll also share, as a medical professional, what he learned as a nurse and how others can benefit from his experience.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6156654Tue, 02 Jun 2015 20:00:28 +0000Anna JaworskiWhat happens when you are a nurse and the father of a child who is perfectly healthy when all of a sudden you are the father of a baby with a chronic illness but nobody believes you when you say something is wrong? What lessons can be learned from a...
Frank Jaworski is a certified registered nurse anesthetist who experienced this situation. In this show he'll reflect on what happened when his second son was born with a critical congenital heart defect which went undiagnosed until the baby was in congestive heart failure. He'll also share, as a medical professional, what he learned as a nurse and how others can benefit from his experience.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1637congenital_heart_defects,congestive_heart_failure,hypoplastic_left_heart,miracles,nursefalsefullhttps://www.spreaker.com/episode/the-miracles-of-adoption--6122125
Children with medical issues can be more difficult to place with adoptive families. While adopting a child with special medical needs can be frightening, it can also be the answer to prayer. Adoptive parents have a chance to make a miracle happen, but one of the most amazing things to witness is how much joy the adopted child can bring to a special family.

Today's show will feature an adoptive mother who, along with her supportive husband, decided to adopt a child with a congenital heart defect. Tune in to hear about the miracles that have happened since Becky and Joe adopted little Tess. You'll also learn about what adoptive parents need to be aware of once they've made the decision to adopt a child with special medical needs.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6122125Tue, 26 May 2015 20:00:00 +0000Anna JaworskiThere are hundreds of thousands of children awaiting adoption around the world. In the United States alone, according to the Adopt America Network, there are 130,000 children in the U.S. foster care system waiting to be adopted. Children are awaiting...
Children with medical issues can be more difficult to place with adoptive families. While adopting a child with special medical needs can be frightening, it can also be the answer to prayer. Adoptive parents have a chance to make a miracle happen, but one of the most amazing things to witness is how much joy the adopted child can bring to a special family.

Today's show will feature an adoptive mother who, along with her supportive husband, decided to adopt a child with a congenital heart defect. Tune in to hear about the miracles that have happened since Becky and Joe adopted little Tess. You'll also learn about what adoptive parents need to be aware of once they've made the decision to adopt a child with special medical needs.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1743adoption,arterial_switch,congenital_heart_defects,d-tga,single_ventriclefalsefullhttps://www.spreaker.com/episode/a-twin-miracle--6089909
To read about the story of Kathy's birth experience, check out her blog: http://lovinlifewithkids.blogspot.com/2014/10/the-twins-birth-story-part-1.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/6089909Tue, 19 May 2015 20:00:02 +0000Anna JaworskiHaving twins seems like a miracle all by itself, but our Guest, Kathy Kolodzinski has a remarkable story to share. Listen to her as she shares the miracle of birth, how her son's undiagnosed congenital heart defect could have taken his life shortly...
To read about the story of Kathy's birth experience, check out her blog: http://lovinlifewithkids.blogspot.com/2014/10/the-twins-birth-story-part-1.html

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1730congenital_heart_defects,home_birth,hospital,tapvr,twinsfalsefullhttps://www.spreaker.com/episode/lars-andrews-on-cardiac-athletes--5959205
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5959205Tue, 21 Apr 2015 20:00:22 +0000Anna JaworskiCardiac athletes are all around us. There are athletes who develop heart problems or who discover, after they have been athletes for a while, that there heart has some imperfections that may require surgery and there are people who were born with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1918cardiac_athletes,cardiac_rehab,congenital_heart_defects,heart_disease,pacemakerfalsefullhttps://www.spreaker.com/episode/how-cps-almost-destroyed-a-heart-family--5919449
How could this organization pull a family apart? Did the child’s congenital heart defect play a pivotal role in CPS’ decision to remove that child from the family? How can other families safeguard their own families from a similar event occurring?

We’ll discover the answers to those questions and more in today’s show which is entitled “How Child Protective Services Almost Destroyed One Heart Family.”

Special thanks to jesadaphorn of www.freedigitalphotos.net for the use of the image in on this page.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5919449Tue, 14 Apr 2015 20:00:07 +0000Anna JaworskiChild Protective Services is supposed to help children who may be neglected or abused but what kind of damage can they exact when they interfere with a family who has a child with a complicated medical history -- including a congenital heart defect?...
How could this organization pull a family apart? Did the child’s congenital heart defect play a pivotal role in CPS’ decision to remove that child from the family? How can other families safeguard their own families from a similar event occurring?

We’ll discover the answers to those questions and more in today’s show which is entitled “How Child Protective Services Almost Destroyed One Heart Family.”

Special thanks to jesadaphorn of www.freedigitalphotos.net for the use of the image in on this page.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1869child_protective_services,congenital_heart_defects,cps,ehlers-danlos_syndrome,ricketsfalsefullhttps://www.spreaker.com/episode/in-utero-surgery-for-babies-with-hlhs--5890990
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5890990Tue, 07 Apr 2015 20:00:21 +0000Anna JaworskiNow, more than ever before, parents are finding out in utero if their baby will be born with some kind of congenital birth defect. One potentially fatal congenital heart defect is hypoplastic left heart syndrome (or HLHS). According to Texas...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1714boston_children's_hospital,congenital_heart_defects,hlhs,hypoplastic_left_heart,in_utero_surgeryfalsefullhttps://www.spreaker.com/episode/twins-in-the-chd-community--5858400http://www.freedigitalphotos.com for the image!)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5858400Tue, 31 Mar 2015 20:00:01 +0000Anna JaworskiHaving twins is a very special occurrence since it doesn't happen all that often. What happens when you have twins but one, or both of them, have a congenital heart defect? How does that affect other children in the same family? Will you be able to...http://www.freedigitalphotos.com for the image!)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1667breastfeediing,congenital_heart_defects,siblings,tetralogyoffallot,twinsfalsefullhttps://www.spreaker.com/episode/unlocking-the-mysteries-of-chds--5824155
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5824155Tue, 24 Mar 2015 20:00:30 +0000Anna JaworskiDr. Woody Benson has been practicing in the field of pediatric cardiology for 43 years. He is a pioneer in the field of pediatric electrocardiology and for the last 20 years he has been training or researching the molecular genetics of pediatric heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1689bicuspid_aortic_valve,congenital_heart_defects,cysticfibrosis,genetics,hypoplastic_left_heartfalsefullhttps://www.spreaker.com/episode/living-with-congenital-heart-defects--5790620
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5790620Tue, 17 Mar 2015 20:00:10 +0000Anna JaworskiTed and Mary Kay Klein will talk about how their daughter, Karen Klein McNulty, inspired them to become involved in the CHD community and how Karen had the insight to develop an organization specifically for adults with congenital heart defects. Tune...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1778achd_conference,adults_with_heart_defects,congenital_heart_defects,living_with_chds,professional_conferencefalsefullhttps://www.spreaker.com/episode/wild-things-when-achders-rebel--5758220
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5758220Tue, 10 Mar 2015 20:00:45 +0000Anna JaworskiBeing born with the most common birth defect still means you're not like everyone else. Going through the teen and young adult years is difficult for everyone, but it's even more difficult for survivors of congenital heart defects. Unlike their peers,...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1982bullying,congenital_heart_defects,denial,depression,fontan,hlhs,teenage_rebellion,teens,valve_replacement,young_men,young_womenfalsefullhttps://www.spreaker.com/episode/ecmo-success-for-babies-with-chds--5725365
Twenty years ago, when my son was just a baby, all of the babies I knew who were put on ECMO passed away. But like with so many types of new technology, things have changes and improved over the year. Now being put on ECMO doesn't have to be a death sentence. Today's show will feature three mothers whose children have been put on ECMO and survived. Hear about their experiences and what they feel other parents need to know on today's show. (Thanks to Dell Children's for the image used with today's show.)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5725365Tue, 03 Mar 2015 21:00:00 +0000Anna JaworskiSometimes our littlest heart heroes need extraordinary help in order to survive. One of the most extraordinary machines used to save our babies born with congenital heart defects is known as ECMO which stands for extracorporeal membrane oxygenation....
Twenty years ago, when my son was just a baby, all of the babies I knew who were put on ECMO passed away. But like with so many types of new technology, things have changes and improved over the year. Now being put on ECMO doesn't have to be a death sentence. Today's show will feature three mothers whose children have been put on ECMO and survived. Hear about their experiences and what they feel other parents need to know on today's show. (Thanks to Dell Children's for the image used with today's show.)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1967babies,bypass,congenital_heart_defects,ecmo,heart_lung_bypassfalsefullhttps://www.spreaker.com/episode/kids-w-chds-falling-between-the-cracks--5671060(Thanks to potowizard of FreeDigitalPhotos.net for the image!)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5671060Tue, 24 Feb 2015 21:00:28 +0000Anna JaworskiIt is not uncommon for children who have undergone open-heart surgery to have some developmental delays. Are these delays severe enough for them to qualify for special services? What happens when our children with congenital heart defects have...(Thanks to potowizard of FreeDigitalPhotos.net for the image!)

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1854504_plans,congenital_heart_defects,critical_chd,early_childhood_education,educational_issues,iep,kindergarten,psych_evaluations,special_education,special_needsfalsefullhttps://www.spreaker.com/episode/hope-for-heart-babies-diagnosed-in-utero--5657580
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5657580Tue, 17 Feb 2015 21:00:03 +0000Anna JaworskiWhat happens when you are pregnant and go in for a routine ultrasound only to discover your baby has a heart defect? How do you handle the news? What options are you given? Even though congenital heart defects are the number one birth defect, there...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1860abortion,congenital_heart_defects,hypoplastic_left_heart,pulmonary_atresia,tetralogyoffallotfalsefullhttps://www.spreaker.com/episode/congenital-heart-defect-awareness-2015--5628139
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5628139Tue, 10 Feb 2015 21:00:22 +0000Anna JaworskiCongenital heart defects (or CHDs) are the number one birth defect and yet, this is one of the best-kept secrets! How do members of the CHD community change all of that? Our Guests today include a young woman born with a critical congenital heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1726advocacy,advocate,awareness,congenital heart defects,specialneedsfalsefullhttps://www.spreaker.com/episode/silent-cries-moving-from-philanthropist--5597143
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5597143Tue, 03 Feb 2015 21:00:57 +0000Anna JaworskiCongenital heart defects are the number one birth defect yet there are few movies depicting members of the congenital heart defect (CHD) community or CHD themes. "Silent Cries" is a movie written by the father of a child with hypoplastic left heart...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1720collisionsrockingthescars,congenital heart defects,documentary,silentcries,tetralogyoffallotfalsefullhttps://www.spreaker.com/episode/interviewing-the-inventor-of-myheartapp--5561272
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5561272Tue, 27 Jan 2015 21:00:09 +0000Anna JaworskiWhat happens when you're born with a congenital heart defect but have the opportunity to lead a normal, healthy life until you reach adulthood but then your whole world gets upended when your heart becomes the focus of your existence? How can a person...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1701arrhythmias#,christinecourtelis#,congenital_heart_defects,myheartapp#,pacemakerfalsefullhttps://www.spreaker.com/episode/expressions-from-the-heart-on-heartwire--5442842http://heartwiremyheart.org) and Megan Tones.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5442842Tue, 06 Jan 2015 21:00:20 +0000Anna JaworskiWhen a person is born with a broken heart, parents must face a multitude of decisions -- many life-threatening and terrifying. As children age, they themselves become aware of their heart problems and face their own mortality. Many of us in the heart...http://heartwiremyheart.org) and Megan Tones.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1809art_therapy,complementary_therapy,congenital_heart_defects,heartwire,music_therapyfalsefullhttps://www.spreaker.com/episode/saving-a-life-from-sudden-cardiac-death--5413092
Today's show will be about the survivor of, not one but over 140 sudden cardiac arrests, and his wife. We'll learn why he has suffered so many SCAs, even though he is a relatively young, otherwise healthy man. Lastly, we'll find out what his experience has taught him and his family and what he and his wife have established so others, like he, will be survivors.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5413092Tue, 30 Dec 2014 21:00:24 +0000Anna JaworskiWhat kills 1000 people a day or one person every two minutes? What kills more people annually than breast cancer, lung cancer and HIV/AIDs combined? What is one event that kills most of the people who suffer from it, but who could possibly be saved?...
Today's show will be about the survivor of, not one but over 140 sudden cardiac arrests, and his wife. We'll learn why he has suffered so many SCAs, even though he is a relatively young, otherwise healthy man. Lastly, we'll find out what his experience has taught him and his family and what he and his wife have established so others, like he, will be survivors.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1850cprsclubhouse,genetic_mutation,heart,sudden_cardiac_arrest,sudden_cardiac_deathfalsefullhttps://www.spreaker.com/episode/saving-a-life-with-infant-cpr--5387939
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5387939Tue, 23 Dec 2014 21:00:14 +0000Anna JaworskiInfant cardiopulmonary resuscitation (CPR) is not usually done for the same reasons that adults have CPR performed on them. Whereas adult CPR is very commonly performed for sudden cardiac arrest, infant CPR may need to be performed in a number of...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1658choking,congenital_heart_defects,infant_cpr,infants,save_a_lifefalsefullhttps://www.spreaker.com/episode/living-with-cc-tga-heart-defect--5357952
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5357952Tue, 16 Dec 2014 09:00:47 +0000Anna JaworskiThe most common cyanotic congenital heart defect that presents in the first month after birth is transposition of the great arteries (TGA) -- dextro-TGA (d-TGA) and levo-TGA (l-TGA) or congenitally corrected TGA (also known as cc-TGA). Because cc-TGA...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1772cc-tga,congenital_heart_defects,heart_defects,l-tga,tgafalsefullhttps://www.spreaker.com/episode/forever-young-brain-injury-chds--5329404
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5329404Tue, 09 Dec 2014 21:00:46 +0000Anna JaworskiChildren who are born with complex congenital heart defects and require open-heart surgery in the first year of life are more at risk for having brain injuries which will result in problems learning speech, language and academic skills. Who is most at...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1886braininjury,congenital_heart_defects,digeorge_syndrome,neurological,therapyfalsefullhttps://www.spreaker.com/episode/surviving-holidays-after-losing-a-child--5293364
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5293364Tue, 02 Dec 2014 21:00:42 +0000Anna JaworskiCongenital heart defects claim far too many Heart Warriors' lives. It is a leading cause of death amongst newborns and consequently, there are a lot of bereaved parents suffering the loss of their precious babies. How does a parent survive the loss of...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1708bereavement,congenital_heart_defects,holiday_stress,lossofchild,parentingfalsefullhttps://www.spreaker.com/episode/parenting-changes-when-chd-kids-grow-up--5253629
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5253629Tue, 25 Nov 2014 21:00:18 +0000Anna JaworskiSo many of us parents were told that our children wouldn't survive to adulthood decades ago. It's a different world now, with most children born with congenital heart defects having better surgeries and better outcomes than ever before! But what about...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1806adults_with_heart_defects,congenital_heart_defects,parenthood,parenting,parentingadvicefalsefullhttps://www.spreaker.com/episode/teen-and-young-adults-w-chds-rebellion--5222098
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5222098Tue, 18 Nov 2014 21:00:05 +0000Anna JaworskiIt seems that most teens and young adults go through a normal period of rebellion. Some only grow out their hair (or get it cut in some trendy fashion), others get tattoos or piercings. It's common for young adults and teens to experiment with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1715alcohol,heart-defects,piercings,tattoos,teensfalsefullhttps://www.spreaker.com/episode/natural-medicine-for-chd-survivors-remastered--5175169
Today's show will feature Carolyn Harrington, the owner of Maty's Healthy Products. Carolyn is the mother of Maty, a daughter who was born with a congenital heart defect and who has had several open-heart surgeries. Discover why Carolyn started Maty's Healthy Products and whether or not using complementary and alternative medicine might be an option for you or a loved one.

The information contained in our show is not intended to-constitute comprehensive professional medical services or treatment of any kind. The CONTENT SHOULD NOT BE USED FOR MEDICAL ADVICE, DIAGNOSIS, OR TREATMENT. Our show should be considered as an educational service only.

This program originally aired on November 11, 2014.

For the links mentioned in this program, visit the Heart to Heart with Anna website: https://annamariejaworski.com/health-alternatives-for-chd-survivors/

Please take a moment to follow us on your preferred social media platforms:

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5175169Tue, 11 Nov 2014 21:00:02 +0000Anna JaworskiIs it safe to use non-traditional medicine with babies and children who were born with congenital heart defects? Do others in the heart community use non-traditional medicine? Why would a parent consider using complementary and alternative medicine...
Today's show will feature Carolyn Harrington, the owner of Maty's Healthy Products. Carolyn is the mother of Maty, a daughter who was born with a congenital heart defect and who has had several open-heart surgeries. Discover why Carolyn started Maty's Healthy Products and whether or not using complementary and alternative medicine might be an option for you or a loved one.

The information contained in our show is not intended to-constitute comprehensive professional medical services or treatment of any kind. The CONTENT SHOULD NOT BE USED FOR MEDICAL ADVICE, DIAGNOSIS, OR TREATMENT. Our show should be considered as an educational service only.

This program originally aired on November 11, 2014.

For the links mentioned in this program, visit the Heart to Heart with Anna website: https://annamariejaworski.com/health-alternatives-for-chd-survivors/

Please take a moment to follow us on your preferred social media platforms:

iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

Facebook: https://www.facebook.com/HearttoHeartwithAnna/

YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Instagram: https://www.instagram.com/hugpodcastnetwork/

If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1661alternativemedicine,congenital_heart_defects,health_alternatives,kids_with_chds,nontraditional_medicinefalsefullhttps://www.spreaker.com/episode/adults-with-heart-defects-on-the-hill--5164737
This is how the Congenital Heart Futures Act came into effect. Members of the Adult Congenital Heart Association (ACHA) organized a coalition of members to storm the Hill together to request more government money being spent on those with congenital heart defects. Today's episode will feature 2 ACHA members who met with lawmakers on the Hill to discuss the future of those born with congenital heart defects.

If you've ever wondered how you could take a stand a make a difference, not only for today's survivors but for all future survivors, you won't want to miss this show.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5164737Tue, 04 Nov 2014 21:00:03 +0000Anna JaworskiHow can members of the congenital heart defect (CHD) community lobby for change in today's laws in the United States? One thing they can do is to come together as a unified group to speak to their lawmakers and request, in a collective voice, for...
This is how the Congenital Heart Futures Act came into effect. Members of the Adult Congenital Heart Association (ACHA) organized a coalition of members to storm the Hill together to request more government money being spent on those with congenital heart defects. Today's episode will feature 2 ACHA members who met with lawmakers on the Hill to discuss the future of those born with congenital heart defects.

If you've ever wondered how you could take a stand a make a difference, not only for today's survivors but for all future survivors, you won't want to miss this show.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>2046activists,adults_with_heart_defects,advocacy,congenital_heart_defects,lobbyingfalsefullhttps://www.spreaker.com/episode/living-with-eisenmenger-s-syndrome--5138401
Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5138401Tue, 28 Oct 2014 19:00:08 +0000Anna JaworskiHave you ever wondered what Eisenmenger's Syndrome is? Who gets it? What are the symptoms? How does it affect a person's body from childhood to adulthood? What changes occur with the aging survivor? Carolyn Robinson, a long-time Eisenmenger Syndrome...
Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1727achder,eisenmenger's,heart-defects,pulmonary-hypertension,vsdfalsefullhttps://www.spreaker.com/episode/empowerment-thru-helping-others--5108910
Wayverly Mouse-Evangelista will share how her love of arts and crafts enabled her to find a way to reach out to others in the CHD community. She will share what specific items she has created for the heart community and how others can find them.

Susan Vanderpool will share how her situation caused her to see a need for vital information in a heartbeat. She will tell us about how she created a product to calm mothers' fears. Having a school-aged child with a major heart defect in school full-time, away from a loving parent, can be a scary prospect. Ms. Vanderpool shares how her product can relieve parents' anxiety about this situation.

We will also hear from CHD Survivor Natalie McGee how she found a way to give back to her community. Through her own adversity she was able to create a product to help herself and others. Find out what she created and how you can benefit from the creations she and her mother have designed.

Sometimes reaching out to others in need is the best therapy a person can have!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5108910Tue, 21 Oct 2014 20:00:50 +0000Anna JaworskiAs the parent of a child with a life-threatening heart defect, it's easy to feel overwhelmed by the new "heart world" the family is immediately part of. On this show two mothers who have children with critical congenital heart defects (CHDs) will...
Wayverly Mouse-Evangelista will share how her love of arts and crafts enabled her to find a way to reach out to others in the CHD community. She will share what specific items she has created for the heart community and how others can find them.

Susan Vanderpool will share how her situation caused her to see a need for vital information in a heartbeat. She will tell us about how she created a product to calm mothers' fears. Having a school-aged child with a major heart defect in school full-time, away from a loving parent, can be a scary prospect. Ms. Vanderpool shares how her product can relieve parents' anxiety about this situation.

We will also hear from CHD Survivor Natalie McGee how she found a way to give back to her community. Through her own adversity she was able to create a product to help herself and others. Find out what she created and how you can benefit from the creations she and her mother have designed.

Sometimes reaching out to others in need is the best therapy a person can have!

Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1815empowerment,emt_wraps,helpingothers,hospitalgown,medic_alertfalsefullhttps://www.spreaker.com/episode/an-interview-with-author-lori-m-jones--5079251
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5079251Tue, 14 Oct 2014 19:00:23 +0000Anna JaworskiOne of the most helpless feelings in the world is being told your child has a congenital heart defect, will need surgery and will have a lifetime of follow-up appointments and untold future procedures. Some parents have great difficulty dealing with...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1741advocate,author,charity,heart,pacemakerfalsefullhttps://www.spreaker.com/episode/an-interview-with-news-anchor-bret-baier--5023961
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>https://api.spreaker.com/episode/5023961Tue, 30 Sep 2014 16:00:24 +0000Anna JaworskiWhat author and public figure has had a child born with a congenital heart defect? What efforts has this person taken to spread awareness of congenital heart defects? Our special guest, Bret Baier, is working hard to promote his book about congenital...
Become a supporter of this podcast: https://www.spreaker.com/podcast/heart-to-heart-with-anna--1256958/support.]]>1521advocatingforchildren,authorinterviews,baier,birthdefects,heartdefectfalsefull