INC: Investigating Patient Perspectives on Disease Burden Over Time in Charcot-Marie-Tooth Disease

Jan 29, 2025 · 1m 40s
INC: Investigating Patient Perspectives on Disease Burden Over Time in Charcot-Marie-Tooth Disease
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New research from the Inherited Neuropathy Consortium (INC). This summary is based on a paper published in the Journal of the Peripheral Nervous System on October 10, 2024, titled "Patient-reported...

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New research from the Inherited Neuropathy Consortium (INC). This summary is based on a paper published in the Journal of the Peripheral Nervous System on October 10, 2024, titled "Patient-reported disease burden in the Accelerate Clinical Trials in Charcot–Marie–Tooth Disease Study." 

Read the paper here: https://onlinelibrary.wiley.com/doi/10.1111/jns.12662

Learn more about INC: https://inc.rarediseasesnetwork.org
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