GLIA-CTN: Characterizing Family Perspectives to Define Health Concepts in β-Propeller Protein–Associated Neurodegeneration

Dec 18, 2024 · 1m 40s
GLIA-CTN: Characterizing Family Perspectives to Define Health Concepts in β-Propeller Protein–Associated Neurodegeneration
Description

New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the Journal of Child Neurology on October 8, 2024, titled...

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New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the Journal of Child Neurology on October 8, 2024, titled "Determination of Health Concepts in β-Propeller Protein–Associated Neurodegeneration."

Read the paper here: https://journals.sagepub.com/doi/10.1177/08830738241283932

Learn more about GLIA-CTN: https://glia-ctn.rarediseasesnetwork.org
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Author RDCRN
Organization RDCRN
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